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I keep looking back for an update, I hope all is well.

Casey
- Sunday, May 20, 2012 1:34 AM CDT

Wow! All of the sudden the challenges I am facing aren't nearly as bad as I could imagine.D
Denise LaRose <deniselarose29@yahoo.com>
- Thursday, January 12, 2012 10:18 AM CST

Thinking of you guys.
Casey
- Saturday, December 31, 2011 1:16 AM CST

I am catching up on your last two posts. Is there a way to sign up for emails for updates?
That fungus infection must be so frustrating to deal with. I hope the constant meds will help and that if there is a way to help his immune system it is found. Kind of strange that on one child you will want to supplement his immune system and with Tray when he gets his heart, you will need to suppress it.
I really don't know how you are juggling all this.
My prayers for lots of good answers to lots of different problems including the perfect timing of a perfect heart.

Wishing you a quiet but fun Christmas!
heart hugs,
Wendy caringbridge site: waitingforaheart/ carepages.com andrewjosephspage
Wendy
IL - Sunday, December 18, 2011 7:44 PM CST

Renee...do you feel panic'd when you have or before you have the attacks? 'Cause Gabby likes to go out...or is it your body doing this for whatever reason?
Tammy Fiffick
Johnstown, PA USA - Tuesday, November 29, 2011 3:18 PM CST

Think of you often and send lots of prayers :)
Debbie Field <DField1@stny.rr.com>
Pine City, NY United States - Saturday, November 19, 2011 9:32 AM CST

Thanks Renee for the additional holter monitor info. Gabby takes some crap at school for her illness sometimes. Wearing the holter monitor with electrodes would just give some of the kids more ammunition so she asked me and I asked the dr and they said it was our choice. She goes to school part time anyway and already has a tutor and a 504 plan so I agreed. I figured with everything else she contends with I didn't want to make things worse on her. You don't know how much I appreciate your knowledge - it's a God send! *hugs*
Tammy Fiffick
Johnstown, PA USA - Wednesday, November 16, 2011 5:51 PM CST

Renee let me ask you something, since you have used the haltermonitor before and I haven't. How do the kids know when to press the button???? That is my biggest issue - when to tell her to press the button....Thanks - you are lifesaver!!!! :) With love...
Tammy Fiffick <thefifficks@atlanticbb.net>
Johnstown, PA USA - Wednesday, November 16, 2011 1:10 PM CST

Hi Renee,
I am here after reading your message on the Htx group. What an amazing family you have! How my heart goes out to you and what a joy it is to read about each of your children. Your plate is certainly full and yet I see what a blessing your children are.
I am Wendy, mom of Andrew who is waiting for a heart along with Tray. I have two other sons as well. We live in the Chicago area. Andrew has a Caringbridge site as well called waiting for a heart also a carepage: andrewjosephspage which goes back to 2004 I believe.
I just stopped by to learn more about you and Tray and your other kids. I look forward to following your journey and to praying for your family.
Hugs to each of you,

wendy
Chicago, IL - Wednesday, November 16, 2011 8:57 AM CST

You are an amazing family with such a unique set of challenges. It's so great that you allow it to keep you closer together. My best wishes to you and your family!!

Grüße aus Deutschland!
Amanda
Osnabrück, Germany - Wednesday, November 16, 2011 5:05 AM CST

I'm praying for you and your boys Renee. I'm so glad I got to spend a little bit of time with you on Sunday. Please let me know if there is anything I can do to help.
Megan Valletta
Liverpool, NY 13088 - Wednesday, November 9, 2011 7:58 AM CST

My now 4yr old daughter Megan was diagnosised with ependymoblastoma dec 2009 at 2 1/2 yrs old. She finished treatment JAn 2011. Was so happy to read about Joshua being 12yr survivor!! www.caringbridge.org/visit/brandiparker is her website.
Brandi Parker <jbjmbparker@gmail.com>
Middleburg, FL USA - Wednesday, October 26, 2011 9:26 PM CDT

Renee --

Miriam often told me about your family from reading your website. Checking your updates was the last thing she was able to do with her computer. She cared deeply about your family, and I do as well. To all your angels: be good, and love your Mom. She is an incredible woman.
Matthew Clark
Oak Park, MI USA - Sunday, September 25, 2011 5:00 PM CDT

What wonderful, caring people you are! I'm so glad you are able to give all these special kids a safe, loving home. May you always have the strength needed for each new joy and sorrow.
Faith Bryant
Greenville, Va USA - Sunday, August 21, 2011 9:25 AM CDT

So glad to hear Joshua is doing well! You all are amazing!

Lots of prayers and love to you all!
Suzanne Jacobs <Suzanne@friendsofjaclyn.org>
- Friday, July 8, 2011 8:00 PM CDT

Goodness I am glad to see the update that Joshua is doing well. Hoping for continued improvement!
Laurie Guest
Ottawa, On Canada - Thursday, July 7, 2011 9:37 AM CDT

You and Peter are truly two of earths angels.
Kristie Haberstroh <Naylorkk@yahoo.com>
Horseheads, NY - Wednesday, July 6, 2011 9:43 PM CDT

Been thinking of you daily. Praying that Sergio doesn't do anything funny tonight and his fever disappears. Praying to for continued improvement for Joshua's fever and a short rehab stay so you can head home. Take care of yourself the best you can (easier said than done I know).
Holly
Delafield, WI - Wednesday, July 6, 2011 9:38 PM CDT

Hi Renee - what an amazing story. I wish only the best for you and your family. God Bless!!
Stephanie Tatro <ctatro4@comcast.net>
Portland, CT USA - Wednesday, July 6, 2011 9:15 PM CDT

I hope all is well with Joshua and all the other kids as well. Thinking about you all!
Laurie Guest
Ottawa, ON Canada - Sunday, July 3, 2011 8:22 PM CDT

I just read your page and am truly inspired by you and your whole family. I currently intern with the Friends of Jaclyn organization which is how I heard about your family and they led me to your page. I wish Joshua great luck in his upcoming surgery and he will be in my thoughts and prayers, as well as the rest of your family!
Nikki Pinkowski <nikki@friendsofjaclyn.org>
Marcellus, NY USA - Sunday, June 19, 2011 1:20 PM CDT

You have so much going on yet you continue to deal with it with grace and trust. I can't imagine how your head has to be swimming right now. I wish so much I lived there so I could help you out. I know you will all come out OK in the end and it will work out, but I continue to pray things can go smoothly and you are able to be where you need to be when you need to be there. The fieldtrip/bus thing makes me furious. There is no reason to treat anyone that way and someone with the issues she has... well I have no words. As for your neighbor I can't even come up with words, tears, but no words. Life never seems just at times like these. Will be praying for this family also. Many hugs and thoughts coming your way as you enter these next weeks.
Holly
Delafield, WI - Tuesday, June 7, 2011 10:04 PM CDT

Dear Renee and Peter,
The few times we stayed with your children, so you could have a small amount of time together, were spectacular. We would love to give you some time again to enjoy yourselves. We are not medically certified but will do whatever we can to honor your love for children who need extra special care.
Fred and Charlene Brissette <fbrissette@twcny.rr.com>
Liverpool, NY USA - Wednesday, June 1, 2011 1:49 PM CDT

I have few words, but my heart goes out to you. I pray for strength for each of you... and the extra peace and patience you need as the Mama orchestrating all of this. Thanks for taking the extra moment to keep us posted. Hope tomorrow is a day of turn around for Sergio.
Holly
Delafield, WI United States - Tuesday, May 31, 2011 7:40 PM CDT

Just read your page for the first time. What a beautiful family. You guys are wonderful. I'm praying for all of you. You have so much going on.
Suzanne Jacobs <suzanne@friendsofjaclyn.org>
Yorktown Heights, NY 10598 - Friday, May 27, 2011 8:32 AM CDT

thank you for visited joseph care bridge page ....i'm sorry that your family has so much going on... i wished we lived closer togather.. i would to meet you and your family... good luck with things that are going on. hugs

http://www.caringbridge.org/visit/josephknight/mystory

colleen knight <colleenknight26@yahoo.com>
irmo, sc usa - Friday, May 20, 2011 8:03 PM CDT

I know you have a lot going on... so if I don't see you sunday I will save you a gift card. You are an unbelievably loving and giving person... I admire you very much... I just want to give a little back to you.
Gayle Froio <smilesforshannon@yahoo.com>
Liverpool, NY USA - Friday, May 20, 2011 8:00 AM CDT

Thank you Renee for the update. We are praying for all the details that you "LOL" about which I am guessing is to keep yourself sane. It was good to see you and Peter today.
Karen Ernst <kernst@twcny.rr.com>
Liverpool, NY USA - Thursday, May 19, 2011 8:25 PM CDT

I love ALL OF YOU!!!! I wish I could be there to help out while Joshua has his surgery....I know everything will work out ok...God has a way of seeing us through. My prayers are flowing every day and I am thinking of each of you all the time. Much love and many hugs all around. XOXOXOXOXOXOXOXOXXO
Auntie Andrea <andreanestor42@yahoo.com>
Richmond, MN USA - Thursday, May 19, 2011 8:21 PM CDT

thank you .....for supporting foster/adoption tooo ..... i wish more people would be open to adopting special need children they love tooo....my two boys have give us a new look at life.... plus my three step children too. we live in columbia sc... my cell 803 354 0697 feel free to call any time... i grow up in NY ...we lived in boonville NY i still have family up there ... maybe one day you could meet .....

http://www.caringbridge.org/visit/josephknight/mystory
colleen knight <colleenknight26@yahoo.com>
irmo, sc usa - Wednesday, May 4, 2011 8:59 AM CDT

thank you .....for supporting foster/adoption tooo ..... i wish more people would be open to adopting special need children they love tooo....my two boys have give us a new look at life.... plus my three step children too. we live in columbia sc... my cell 803 354 0697 feel free to call any time... i grow up in NY ...we lived in boonville NY i still have family up there ... maybe one day you could meet .....

colleen knight <colleenknight26@yahoo.com>
irmo, sc usa - Wednesday, May 4, 2011 8:58 AM CDT

Finally!!!! Thanks for your words of wisdom... I shall be calling on your and your expert advice! (although they did give us really good books) Your children are all soooo beautiful! Love to you all Kyle and Gang
Rebecca Curkendall
Candor, NY USA - Thursday, April 14, 2011 9:01 PM CDT

Renee you and your family truly amaze and inspire me. I don't know how you do it but know that God knew what he was doing when he brought you all together. May God bless you all.

Ryan's mom
www.caringbridge.org/visit/ryanjacksonroars
Jennifer Jackson <bailey39@hotmail.com>
Parish, NY USA - Thursday, March 31, 2011 8:50 PM CDT

Renee,
You are a living angel. You inspire me, wholly.
Lauri Nolan <lauri123@twcny.rr.com>
Syracuse, ny - Thursday, March 31, 2011 10:48 AM CDT

very interesting,i enjoyed reading this. renee you should have your own column you're a natural writer.
Michaela De La Cruz <mykostaki@yahoo.com>
syracuse, ny usa - Sunday, March 20, 2011 11:56 PM CDT

So great to hear you guys are truckin on and doing good Renee. I love being able to keep up with your family via your site. Happy Valentine's day. Take a moment and kiss everyone for me. xoxo
Susan Harvey <forsusan@gmail.com>
Sterling, VA USA - Tuesday, February 8, 2011 9:22 PM CST

Wow... what a amzging family. God has blessed you so much and privded such amazing strength.
Beautiful children :D
Aya Pierre <aya.pierre@gmail.com>
San Jose, CA USA - Wednesday, January 26, 2011 10:29 AM CST

Hi Renee,
I enjoyed reading about your family, sounds like there's never a dull moment at your place! Your web page is a touching testament to the love you feel for your family. It seems you've been busy changing other people's lives and touching many with all the gifts you have to share since our high school days, I'm glad to know that you're happy and enjoying every moment with the people you love. May your life be blessed with many more happy worthwhile moments
Mary Cleveland <mdclevelan@yahoo.com>
Glens Falls, NY United States - Tuesday, January 25, 2011 8:23 PM CST

Renee, I know that there are many, many people like you and Pete in the world, though I have only had the fortune of meeting you guys, to know that people like you live among us in this crazy world gives me renewed hope in man. You two are so amazing and the world is a better place because of you. I just want you to know how many people love you, pray for you and thank God daily that you were put into our lives. You may think that you are only touching the lives of those fantastic kids of yours, but the truth is that you have touched, helped and healed more people than you will ever know! And that goes to all the other "Renee and Pete's" of the world that we have never met. I just wish there was a way to show you the gratitude that we all feel for your efforts and love. I know that God will be able to show you, but all I can do is say thanks. You are truly amazing and I hope your thanksgiving went well and that you have a truly magical Christmas holiday!!
BearMonkey <snappyjeff@cinci.rr.com>
Cincinnati, ohio - Friday, November 26, 2010 7:01 AM CST

Praying for you all all of the family tonight. your plate is so full yet you always seem to take it in stride. Sending lots of hugs, peace, and comfort your way... wishing I could also send along coffee, chocolate, and a soft bed.

Holly
www.caringbridge.org/mi/mayam
Delafield, WI - Sunday, November 7, 2010 8:40 PM CST

Glad to hear that you are feeling better. Is there a website that we could go to to order magazines for her benefit?
Mary Anne Klein <maklein55@comcast.net>
Pittsburgh, Pa - Monday, October 11, 2010 6:16 AM CDT

praying, praying, praying. There is way more on your plate with you being sick too than any one family can handle for long.... and I know you can handle a lot. Praying no one else gets sick and you get get the rest you need...

fyi-when you are getter if you are interested I can give you our experience with the ileostomy for the same reasons you are looking at it.

Holly
Holly
Delafield, WI - Tuesday, October 5, 2010 9:22 PM CDT

Hi Renee,
Nice to get an update - you have added to your family considerably since I last saw you! You must be busier than I am! :)
God bless Trayvon, and the rest of you too!
Love, Karen
Karen Galvan <galvank@upstate.edu>
Syracuse, NY USA - Wednesday, September 15, 2010 3:29 PM CDT

Hey Tray. I hope that you remember me and Lucas. I was a substitute teacher at LBE and Lucas was in your class in 3rd and 4th grade with Mrs. Sardo. We are both praying for a complete recovery and that a heart with your name on it is ready for you. We remember your laugh and your smile would light up the room and we miss that. We are going to the fundraiser tonight so that we can do a small part to help your family. Please know that we are thinking of you and wish you all the best. Don't give up and keep on smiling!!! Love ya, Mrs. Manganiello and Lucas
Lynn and Lucas Manganiello <gmangani@twcny.rr.com>
Liverpool, NY USA - Saturday, September 11, 2010 8:27 AM CDT

I just seen the interview on channel 9 news and it was came out really nice. Tell Trayvon he did a GREAT job and keep up the good work! Have fun at the benafit.
Our prayers are with you guys.
Michele Hyde and Family <MHyde67@twcny.rr.com>
Bridgeport, NY - Friday, September 10, 2010 5:19 PM CDT

Renee & Peter, we are so sorry to hear about Treyvon's condition. I remember his bright smile and his hugs. I miss seeing you guys at LBE.
If there is anyway we could help, give us a call. Our prayers are with Treyvon's recovery. We miss the Curkendall Family at LBE... Send my love to Treyvon.
Gwen Basilio-Capria <gbasiliocapria@yahoo.com>
Liverpool, ny usa - Friday, September 10, 2010 7:56 AM CDT

Renee and Pete,
We wish you to have great success on Trayvon's fundraiser. How admirable couple you are, so generous and loving. God will continue helping you as you love Him that much. We pray for you and will try to be there on Friday to support your cause. Hugs and kisses to Marriella from Blossom.
Love, The Jaimes-Montano
Xochitl <jaimes.montano.family@verizon.net>
Syracuse, NY USA - Thursday, September 9, 2010 6:10 PM CDT

Renne & Pete:

Renee, you and I have never met, and Pete...I can't remember the last time you and I saw each other. I read a thread posted by Lynn Williams and she's right; the world IS a better place with you in it. What an inspiration...your family!!! We (my wife Ivette, daughter Abigail and I) live in NJ. I work in NYC. If you and Pete need an immediate place to stay, please don't hesitate to call me. Just email me and I'll send you my #. You are all in our daily thoughts and prayers.

Scott Little
Tinton Falls, NJ USA - Thursday, September 9, 2010 1:26 PM CDT

Bless you all!
Susan Yager
Tucson, AZ USA - Wednesday, September 8, 2010 10:11 AM CDT

Renee & Pete,

Was on Facebook & my friends in Lpool posted your benefit! I was like, hey I know that Trey!!! So sorry to see his heart is just not holding up. Many prayers!!! If you hadn't heard, we moved last month and are now living in Florida. I'm so thrilled to see this page so I can keep up with all of you. God has blessed you over and over and I pray that he will continue to no matter what the outcomes. You two are truly angels!!! Miss u!!
The Lohr's - Mark, Jenn, Cameron, Jordan
Jennifer Bednarz Lohr <jblohr@gmail.com>
Fort Myers, FL USA - Sunday, August 29, 2010 7:43 PM CDT

Renee and Pete,
You two are very amazing individuals I wish I had the courage and strength to take on the responsibilities that you have with your children. If the world was filled with people like you we would be blessed. The love, dedication and heart you put into raising your children is admirable. Thank you for being accepting, loving and selfless. I feel privledged that I am related to you.
Kieley Riker <kieleyriker@yahoo.com>
Liverpool , NY USA - Monday, August 23, 2010 11:43 AM CDT

Renee you are wonderful and such an inspiration I am so glad I read your page God Bless you for all you and your husband do
Melissa Bayle-Burke <m_bayle@yahoo.com>
Glens Falls, ny usa - Monday, August 23, 2010 8:31 AM CDT

Renee I have gone back and read many of your past entries and am so impressed with how you manage to balance everything. And for your obvious love for your family.

We are back at RMH, as you may have learned, and Andrew will discuss with us his plans and Thursday we have an appointment with his cardiologist to tell her what he wants to do. She is calling him Monday night with the resuts of the discussion of the cardiologist and heart surgeons on any other options. I am really praying that we will have answers of which way he wishes to go and that we can start. Whatever starting means.
Prayers to you for a heart to be found quickly and for great success. Thanks for stopping by our carepage- I don't know how you find the time to read with all you must do each day. take care,
Wendy
Wendy
Chicago, - Friday, August 20, 2010 7:49 AM CDT

What a perspective on life your lives have given me. Sainthood doesn't seem adequate to describe your committment to children and family. You make the world a more beautiful place and restore my faith in the human race.
Lynn C Williams <LynnCWilliams@gmail.com>
Elmira, NY USA - Thursday, August 19, 2010 8:05 AM CDT

Renee, Thank you so much for stopping in and leaving me a note on my son's carepage. Matthew is on Nuerontin, Bentyl, Lamichtal, Trileptal, Levocarnitiene, CoQ10, Prilosec, Erythromyecin, Clonidine, Zofran, Flovent, Albuterol, Zyrtec, SennaKot, and I am sure I am missing something. Thanks for the idea of pulling a Cortisol level I will defifnitly have that done. Please keep in touch.
heather friedhoff <heatherheis@hotmail.com>
waynesville, oh usa - Sunday, August 15, 2010 9:23 AM CDT

Renee, Thank you so much for stopping in and leaving me a note on my son's carepage. Matthew is on Nuerontin, Bentyl, Lamichtal, Trileptal, Levocarnitiene, CoQ10, Prilosec, Erythromyecin, Clonidine, Zofran, Flovent, Albuterol, Zyrtec, SennaKot, and I am sure I am missing something. Thanks for the idea of pulling a Cortisol level I will defifnitly have that done. Please keep in touch.
Heather Friedhoff <Heatherheis@hotmail.com>
Waynesville, OH USA - Sunday, August 15, 2010 9:22 AM CDT

Renee, Thank you so much for stopping in and leaving me a note on my son's carepage. Matthew is on Nuerontin, Bentyl, Lamichtal, Trileptal, Levocarnitiene, CoQ10, Prilosec, Erythromyecin, Clonidine, Zofran, Flovent, Albuterol, Zyrtec, SennaKot, and I am sure I am missing something. Thanks for the idea of pulling a Cortisol level I will defifnitly have that done. Please keep in touch.
Heather Friedhoff <Heatherheis@hotmail.com>
Waynesville, OH USA - Sunday, August 15, 2010 9:21 AM CDT

hello all
i know you have all been busy and we havent been able to get together but look forward to seeing you at the benefit you know unless something like illness keeps me from going i wouldnt miss it for the world
sandra buck <sanjeanbu@yahoo.com>
central square, ny usa - Friday, August 6, 2010 10:06 AM CDT

I don't have many words and not the right words, but what I do know is what you feel is normal, what you are going with isn't wrong. I know that you are right and with a little sleep you can deal so much better with those thoughts, process them different, prioritize and do what you have to do to get through the day to day, but some days reality is just right there in front of you and smacks you in the face. All you can do is accept the comfort, prayers and thoughts of others. Know tomorrow brings yet another day. Sending hugs your way. You are an amazing mom, such a gift to each of those precious children.
holly
Delafield, WI - Monday, August 2, 2010 11:40 PM CDT

Finally got to look at your site and get updated. i'm one of the ladies that helps Sandra with CaringCrocheters.
God has blesses you with more joy in your heart than most people ever get to expereince. He will continue to give you strength.
JoAnn <jomcgowan1@gmail.com>
chittenango, ny usa - Wednesday, July 28, 2010 8:37 AM CDT

Hello my Dear Renee!!
I'm feeling like a total cad that I sent you the e-mail the other day not realizing that the little man was still feeling so bad. I pray that a change will come that will reduce his discomfort, it is by far the worst pain watching your baby in pain. Why is it that appointments for the big stuff take the longest?!! Shouldn't it be the other way around! I am however amazed at how many balls you are juggling at once for all the kids, you are nothing short of amazing!!! You make me feel like a darn baby!! I always remember you in my prayers and your beautiful kids for strength and wisdom when strength gets a little worn down! I truly hope that Sergio finds relief soon. Please let me know if there is anything at all that I can ever do!!
Do you take Josh to 5c for IVIG?? I can't imagine after all these years of going there that we've never been on the same day! Well, give every single baby of yours a big squeeze from me please!!! Your children are sooo very blessed to have you for their mom!!!!!
(((Renee)))

Brenda Haggett, mom to Zachie ML II/III <jhrufus@aol.com >
Syracuse, NY USA - Wednesday, May 19, 2010 4:33 PM CDT

Hello Curkendall family.
My name is Brandi Gordon. I am a volunteer for the friends of Jaclyn organization and I am an assistant softball coach at Harvard. Just wanted to wishing you well from Boston, MA. I am inspired by your story and to let you know that Sergio and the rest of the family are in my prayers! Thinking about you and your family with love and with unconditional respect for your strength. Keep up the good fight.

Brandi Gordon <brandimgordon@gmail.com>
Boston, MA - Friday, April 30, 2010 11:43 AM CDT

I'm so, so sorry. Praying for your dear, sweet little guy and for strength for you and your husband.

ON another note, can't you try a warm pack on his tummy? it's not the best, but it might help with the pain. A lot of pseudo obstruction kids find this helps and that sounds like what your dealing with as far as the belly. Can you vent him? (again, you may already be doing this, but I wish I could help and figure I'd throw a few things out there just in case). I hope they can help him. I'm sure a tummy that is sore isn't helping his breathing either. Praying you both get some relief soon and some answers. If they do the LP are they going to get metabolic labs off it at the same time? Might help you avoid some other testing? I don't know... again, not saying any of this is new or might help, but wanting to do something.
Holly
Delafield, WI - Tuesday, April 27, 2010 7:12 PM CDT

You are absolutely amazing! the children are so lucky to have you in their lives!
Lauri Fischer Boice
Hudson Falls, NY usa - Monday, April 26, 2010 11:55 AM CDT

praying Renee... like crazy. Love you
Jill <jillianssweeney@aim.com>
Syracuse, NY - Monday, April 26, 2010 9:31 AM CDT

Glad you might break free soon. Been thinking about you today and praying for improvement. TAke care you are such an awesome mom.

Holly
www.caringbridge.org/mi/mayam
Delafield, WI United States - Thursday, April 22, 2010 10:53 PM CDT

With an elevated lactic acid Maya always become ataxic. An elevated lactic acid is often the cause of metabolic acidosis which in itself can cause the symptoms you are talking about. Is his CO2 low? With Maya we are often able to give her acetylzolemide and within hours see improvements as it helps correct the acidosis. It would still be nice to know the cause though. I'm wondering since he has resp issues if they are assuming the acidosis is resp and not metabolic? We went years with these episodes until we finally hit the right neurologist who was able to tell us what was going on. I pray things improve and they find some answers for you. Did they do an MRS while he was getting his MRI? That could have shown them more, especially in regards to the lactic acid and metabolic component (if there is one). We'll be praying for you.

Holly
www.caringbridge.org/mi/mayam
Delafield, WI United States - Thursday, April 22, 2010 8:55 AM CDT

will be keeping sergio and all in prayer glad to hear the others are doing ok xo
sandra buck <sanjeanbu@yahoo.com>
central square, ny usa - Thursday, April 22, 2010 7:18 AM CDT

Renee, Matthew is on Peptamin Jr. 1.5 at 70ml an hour. His caloric intake goal is 1500 calories. 4 cans run over night give him his calories and fluids. He does also drink about 8-16oz of water or powerade a day. Thanks for checking in on us today. Your kids sound like a blessing and sound like they keep you very busy.
Heather Friedhoff <heatherheis@hotmail.com>
Waynesville, OH USA - Monday, April 12, 2010 5:25 PM CDT

Hi Renee,
Has Sergio been evaluated for mitochondrial disease? His inability to eat and global delays might be a sign... Or Joshua and Cody's GI trouble, the seizures and other issues could.
Just an unformed thought. and btw you're a strong lady.
Love to the Curkengang,
Miri and Matt

www.caringbridge.org/visit/mirib
Miri <ittamiriam@yahoo.com>
Detroit, MI - Friday, April 9, 2010 3:52 AM CDT

I've been reading your journal and while it will take me some time to catch up, I wanted to let you know that you can also call me anytime. Although we are still at the very beginning with Sami, I've also gotten a lot of comments and judgements from people who just have no clue as to what we are actually dealing with and going through. While I know how hurtful it is to hear those things, I try to remember that nobody can truly understand until they've walked in these shoes and that helps some. You are doing great and wonderful things for all of your angels so don't let anyone tell you otherwise! I continue to pray for all of you.
Julie Cooepr <julzcoop@twcny.rr.com>
- Thursday, April 1, 2010 8:53 AM CDT

Happy Birthday Annette Valerie Curkendall. 20 years old? How can it be? You are such a beautiful young lady and you amaze me with everything that you do. I love you so much. Hope you had a wonderful day!!!!

Love, Aunt Brenda
Brenda Munger <lawrencemunger@yahoo.com>
Liverpool , ny Onondaga - Monday, March 29, 2010 7:16 PM CDT

Happy birthday nettie
Jessica
Hazleton, - Monday, March 29, 2010 4:22 PM CDT

You and Peter are wonderful parents. I would bop anyone who disagreed. With a 300lb powerchair and 25lb vent. Quite a bop, actually. INCREDIBLE parents.
I am so sorry about Ethel. She looks like an angel. Prayers are with you always. I hope the issues with Josh and Mariella have some easier times and (prayers) solutions, Trayvon has a smooth road to transplant, Sergio keeps defying the odds and Cody stays sweet and no lasting problem with everything and Nettie realizes she's BEAUTIFUL, and a fighter for life who has defied all the odds. Your nephew sounds like a sweet boy. He's lucky to be with the Curkengang. I was reading when it was...two kids. Amazing.
Love to every member of the gang,
Miri and Matt

www.caringbridge.com/visit/mirib
Miri Braunstein
Detroit, MI USA - Sunday, March 28, 2010 5:49 AM CDT

Hi Renee,
My name is Danny Lam and I got your caringbridge webpage from Heidi. I also volunteer for the Friends of Jalcyn Foundation. After reading your journey, I am in complete admiration for both you and your husband. When I thought that I was doing enough, I realized that I can do more for all the children who desperately need help after reading your journey.
I am sure we will find a team for you so I would like to welcome you to the FOJ family.
My daughter, Devon Lam, was adopted by the Temple University Women's Lacrosse team back in Feb 2008. The team gave her so much love, support, and friendship. They gave her back her childhood that was taken away when she was diagnosed with a brain tumor. She earned her wings in Dec 5, 2008. The FOJ experience was incredible and this is the reason why I now volunteer for the foundation.
I hope that we can meet each other at some point.

Danny Lam
www.caringbridge.org/ny/devonlam

Danny Lam <dnalam0@yahoo.com>
Middle Village, NY USA - Tuesday, March 2, 2010 12:48 AM CST

Renee,
Heidi here from the Friends of Jaclyn Foundation (http://www.friendsofjaclyn.org).
It was a true pleasure speaking with you today. I enjoyed learning all about Joshua and also enjoyed reading about all of your beautiful children on the caringbridge website. I was sad to read about little Ethel but so thankful that she spent her final days with such a special family.
The Friends of Jaclyn Foundation(FOJ) is helping to raise awareness of pediatric brain tumors and improving the quality of life of the children and their families. We are doing this by connecting the children with college sports teams for love, support and friendship.
We are so pleased that you reached out to us and look forward to welcomming Joshua and your entire family into the FOJ family.
Live in the Moment....Play in the Moment!

Heidi W. Fountain <heidi@friendsofjaclyn.org>
Hopewell Junction, NY USA - Tuesday, March 2, 2010 11:14 AM CST

Renee - deeply saddened to hear your news. Praying God will continue to hold you all safely in his arms.
Sonie LaRose <sonielarose@hotmail.com>
Glens Falls, NY USA - Tuesday, February 16, 2010 7:16 PM CST

I am so sorry to hear about Ethel. But always remember she had a home and was very loved by the best family I know. Thank God she had you all xoxo
sandra buck <sanjeanbu@wmconnect.com>
central square, ny us - Tuesday, February 16, 2010 1:43 PM CST

I am so sorry to hear the news about Ethel. I wish you and your family peace.
lb
- Tuesday, February 16, 2010 12:17 AM CST

I'm so glad she had a home and a family for her last days here. I"m glad you were able to be with her to the end. To say I'm sorry for your loss is an understatement, but I am sorry. You answer the call to care so selflessly and do it whole heartedly. Sending hugs over the miles.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Tuesday, February 16, 2010 12:05 AM CST

Renee- my heart bleeds for you and your beautiful family right now. I cant imagine your pain, but know the gift you were to Ethel in her short time here. You are a gift to so many, and we love you dearly. My prayers are with you...
Jill <jillianssweeney@aim.com>
Syracuse, NY USA - Tuesday, February 16, 2010 11:57 AM CST

God knows who holds his children closest, who gives them love, who cares for them. You and Pete have the servant's heart. Thank you for being there for Ethel. She will be remembered. And is right now showing Jesus her nails.
Nancy Fasoldt <nfasoldt@gmail.com>
From South Padre Island, Texas - Tuesday, February 16, 2010 0:07 AM CST

I am so sorry to hear about your little Ethel. Our thoughts and prayers are with all of you at this time.
For I know someone very specail that will be looking after Ethel which is my Dad,for he passed away today also.

Michele Hyde and Family <MHyde67@twcny.rr.com>
Bridgeport, NY - Monday, February 15, 2010 10:36 PM CST

hey Renee - we are off to Cincinnati tomorrow - get to read your update...I know you'll stay busy...be good. Miss you, Lisa
Lisa Witkin
Syracuse, NY USA - Monday, January 25, 2010 6:49 PM CST

I knew that prayer would help you decide with ethel and i know that she is going to be in the best place possible as she is going to have fantastic parents and brothers and sisters. there couldnt be a more loving home and caring family as she is going to have GOD BLESS YOU ALL XOXO
sandra buck <sanjeanbu@wmconnect.com>
central square, ny usa - Wednesday, January 13, 2010 9:12 PM CST

Renee, My first born, Chase, was premature (6 1/2 wks)but, thanks to the grace of god, has not shown one side effect. I was so afraid that he'd have a list of issues to deal with and count myself blessed that he does not. You seem to handle all the chaos with grace and humor and have the love to not only handle it - but to help others who so desperately need it. You inspire me.
Sonie LaRose
Glens Falls, NY USA - Saturday, January 9, 2010 7:07 PM CST

i am glad you all had great holidays

hope your new year brings you all great health and prosperity
sandra buck <sanjeanbu@wmconnect.com>
central square, ny usa - Saturday, January 2, 2010 8:52 AM CST

We want to wiah all of you a Merry Christmas and congradulations on your new member of your family.
Michele Hyde <MHyde67@twcny.rr.com>
Bridgeport, NY - Saturday, December 26, 2009 8:53 AM CST

You and Peter never cease to amaze me. Your wonderful outpouring of love for all your children. I think they should do a reality TV show about your family. Your family is what love and life is all about.
Mary Anne <maklein55@comcast.net>
Pittsburgh, PA - Friday, November 13, 2009 5:25 AM CST

hi Renee

I am new to your site and i just wanted to you have a beautiful family Each one of your children is a special gift ftom God. your family will be in my prayers.
http://www.caringbridge.org/visit/angelonwheels
Jennifer
- Wednesday, November 11, 2009 5:29 PM CST

I'd been eagerly awaiting a halloween picture so was happy to come and see one today. They all look great. I love your crew no matter how they look! Hope everyone can get through this yuck with no visits to the ER. Maybe you could set up a room with continuous nebs and then just rotate the kids through there?! Ha!Ha! Take care, at least you have the extra sugar and chocolate to keep you going through it all! (I know I'm enjoying OUR stash)

Holly
www.caringbridge.org/mi/mayam <mom2maya@centurytel.net>
Holmen, WI United States - Tuesday, November 3, 2009 10:40 AM CST

sorry to hear about joshua but glad to hear things are going better for all monica says hello also take care and hope to see you all soon
sandra buck <sanjeanbu@wmconnect.com>
central square, ny usa - Sunday, October 25, 2009 8:16 AM CDT

You are amazing!! I always knew you were special!! I wish you and your beautiful family only the best!!!! So glad we reconected!
Sue Sheehan Jowly <ricksuej@roadrunner.com>
Queensbury, ny usa - Friday, October 23, 2009 6:51 AM CDT

Hi Renee, What a beautiful family you have!!! My best wishes.
Laura Kirkpatrick <laurakirkpatrick@mac.com>
WA - Thursday, October 22, 2009 10:52 AM CDT

Just stopping in to say Hello and hugs to all will be in contact soon xo
sandra buck <sanjeanbu@wmconnect.com>
central square, ny oswego - Saturday, October 3, 2009 6:41 AM CDT

sending some hugs your way.
Heather and Brianna www.caringbridge.com/ny/mylittlesunshine www.caringbridge.org/visit/petek
syracuse, NY USA - Thursday, October 1, 2009 7:56 PM CDT

So glad you are home and back together as a family. Hope you are settled in by now and there hasn't been too much new excitement. Glad to hear you are seeing such great changes with the reduction and med changes.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Saturday, September 26, 2009 3:19 PM CDT

hugs to you guys....can't they just discharge him and readmitt him in the computer once he gets towards the end of his stay? THen he doesn't really leave the hospital but everyone gets paid...
Heather, mom to Brianna www.caringbridge.com/ny/mylittlesunshine daughter to Pete, www.caringbridge.org/visit/petek
syracuse, ny USA - Saturday, September 19, 2009 8:23 AM CDT

Glad to see an update. Have been thinking about you guys sitting there and praying you were getting the information you needed. I pray things work out with the GI stuff and they are able to get both things done at once. Hope the kids at home are doing well and you are getting some rest on one of those very comfortable hospital "parent beds" :)

TAke care,
holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Friday, September 18, 2009 5:00 PM CDT

Thinking of you and hoping all goes as smoothly as possible!
Patty Searle <ssearle@twcny.rr.com>
Camillus, NY - Thursday, September 17, 2009 6:50 AM CDT

my prayers are with you all always
sandra buck <sanjeanbu@wmconnect.com>
central square, ny usa - Friday, September 4, 2009 7:06 PM CDT

Your website is wonderful, and all of your children are beautiful! You are truly blessed! You will all be in my daily prayers. God bless you!
Shellie (Roberts) Rowlands <mrowlands@epix.net>
Dallas, PA USA - Tuesday, September 1, 2009 6:37 PM CDT

Wow ~ what a wonderful website! You and Peter are such a blessing to these children and to all who know you! You are all in my prayers!
Sandy Mietz <sandymietz@yahoo.com>
Liverpool, NY USA - Saturday, August 29, 2009 8:59 PM CDT

i am so thrilled that wayne mahar was including myself and my family in this party when i nominated all of you i didnt know we would be included and i feel so honored that i will be able to meet the rest of your family i have helped many but your family has really touched my heart GOD BLESS YOU ALL and see you next week
sandra buck <sanjeanbu@wmconnect.com>
central square, ny usa - Thursday, August 6, 2009 9:06 PM CDT

Just springing by to wish you a wonderful day.

God bless,love & hugs,Linn,Daniel,Michael & Ariel
The Marrero's <gillinn7@msn.com>
- Tuesday, July 7, 2009 10:00 AM CDT

You are an amazing mother.
lisa
- Wednesday, June 17, 2009 11:37 PM CDT

I just wanted to make sure I got you-all added into my email-notifications, as well (at least I hope this'll do it... I'm kinda new at the CB side of things, & your page is a bit different?).

We're keeping you all in our prayers!

www.carepages.com/carepages/ZaksAngels
Carrie with ZaksAngels
- Wednesday, June 17, 2009 5:49 AM CDT

oh Renee- my heart and prayers are with you. I can be your venting buddy too... please call me anytime. I love you, friend.
Jill <jillianssweeney@aim.com>
syracus, ny usa - Monday, June 15, 2009 8:55 PM CDT

What a heartbreaking post. Oh Renee, I can't wait to see you so I can give you a great big HUG!
Elizabeth
- Monday, June 15, 2009 8:42 AM CDT

Saw your entry in Zak's Angels, so I decided to stop by and see you and what your prayer needs are. You seem like a wonderful family, and I pray that God continues to bless each and every one of you!
Dorothy Kowalczyk
Turnersville, NJ - Monday, June 15, 2009 8:27 AM CDT

Here by way of Zaks Angels to tell i will be praying for you and your family!
Gayle McKinley <mckinley.gayle@yahoo.com>
Thomaston, Georgia USA - Sunday, June 14, 2009 11:47 AM CDT

Renee, I'm so glad you keep this blog! I enjoy reading it and getting updates on your wonderful family...and afterwards, I always adjust my prayer intentions accordingly. :) I definitely want to hear how you make out with CSE so please LMK...
Elizabeth
- Monday, May 25, 2009 11:27 PM CDT

Sorry you have landed once again in the hospital, I have been here since last Tues with Nick and god only knows how tiring it gets!!
Amy Grosso <amygrosso38@yahoo.com>
Marcellus, - Monday, May 11, 2009 1:35 PM CDT

Man, it never ends for you! Hoping Sergio gets well soon and you get home. Thinking of you and praying for you.
Judy
Judy Walsh <walshmws95@aol.com>
- Monday, May 11, 2009 12:54 AM CDT

Happy Mother's Day to one of the most amazing mom's I know. I hope this week is better than the last and the kids get back to a happy medium.

Holly
www.caringbridge.org/mi/mayam
HOlmen, WI United States - Sunday, May 10, 2009 8:17 AM CDT

I found your site through the ependymoma group; what a wonderful family you are! So strong, so loving....may God bless and keep you!
Jeanie Preston <jpreston@mbe.com>
Independence, MO Jackson - Friday, May 1, 2009 4:00 PM CDT

I love the picture it is great i am so happy for you and sergio you are the most amazing family i have ever met keep up the good work and the inspiration for all of us.
sandra
caringcrocheters
sandra buck <sanjeanbu@wmconnect.com>
central square, ny usa - Thursday, April 23, 2009 6:37 AM CDT

Renee

I hope you are just busy with the kids and the Easter Holiday that you haven't updated. Praying the kids are all doing good.

Terry
- Monday, April 13, 2009 10:06 PM CDT

I'm so sorry things continue to be so rough. Poor baby with no sleep. I feel so sorry for the little guy. Hope the clonidine helps. Not sure if he's too young, but mirapex did wonders for us and sleep for a long time before we entered the current issues we are dealing with. I would be concerned that his lack of sleep is actually due to his not tolerating his feeds and distress from that and this is how is body is showing it. I know feeding intolerance can do some strange things. I would wonder if pain isn't causing him not to sleep. here's hoping you can all catch some winks and some answers for the week little guy.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Friday, March 27, 2009 9:10 AM CDT

Your family is a real inspiration! It is great that you have the strength to help these kids through all of their challenges.
I also have a child with sleep issues. Whew... I cant imagine combining that with the multiple other issues your kids have. Sleep is so important.. If he isnt sleeping neither are you. It is so taxing on both ... Our saving grace was / is ( he is 14 now..yes still has his sleepless moments :) ) Hydroxyzine Hydrochloride ( atterax ) dont know if this is a possibility for you with his other issues. It is a once a day, evening med that has antihistamine, antianxiety and sleepy effects. Its pretty common and you've probably already tried it but ..just in case. I wish you all the best. I hope that old sand man visits soon! Please kiss Annette for me. She is just beautiful!
judy belrose
plattsburgh, ny usa - Friday, March 27, 2009 8:39 AM CDT

I will be prayiing that your son can get some much needed sleep. I will keep you all in my prayers.
Melanie Disney (www.Caringbridge.org/ne/shawndisney) <dizkidz2001@yahoo.com>
Alexandria, , NE - Thursday, March 26, 2009 1:58 PM CDT

Hope things get better soon...poor little guy. My thoughts and prayers are with you. Let me know if you need anything. Love you guys
Brenda Munger <lawrencemunger@yahoo.com>
Liverpool, NY USA - Wednesday, March 25, 2009 3:28 PM CDT

So good to see an update although it's not necessarily the kind I like to read. I'm sorry you have been stuck in the hospital for so long, but hope with these issues sorted out you can come home and stay for awhile. We are thinking of you and your amazing family. I'm sure they all miss you.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Saturday, March 21, 2009 8:58 AM CDT

My heart and prayers go out to sergio. and for all the family. He is such a lil doll. I know u really dont know me but if there is anything I can do call me (u have my number on the business card i left)

Sandra (caring crocheters) <sanjeanbu@wmconnect.com>
central square, ny usa - Thursday, March 19, 2009 6:56 AM CDT

Thanks Stacey. Wow, poor Sergio! He is such a cutie. I hope he can come home soon, and that Renee is at least okay, worrying about him, and the rest of the kids at home. Tell her we're praying for recovery and for strength for her, Peter and ALL the kids.

Miri B.
www.caringbridge.org/visit/mirib

Miriam B.
MI USA - Wednesday, March 18, 2009 1:41 AM CDT

Hi Renee,
My goodness I'm tired just reading that update. How completely inept and selfish I feel for my small life when you have so much going on in yours!!
You are one amazing lady and I'm so glad to have met you!!
I am hoping to actually make moms night next week, I really need it!! Not as much as you though!!
Your beautiful children are soooo lucky to have you as their mom!!! :-)
PS, did you know Kathy and I live down the street from each other!! We love Mrs. Spicer!!
Brenda Haggett mom to Zachie, ML II/III <jhrufus@aol.com or www.caringbridge.org/visit/zachie>
Syracuse, NY usa - Thursday, March 5, 2009 11:49 AM CST

Hi,

I am Ginny and my daughter Ashley, a 12 year old girl, is sitting her with me and we will add you our prayers. She started Nana's Cancer Miracles to help children and adults with cancer. You can visit my website at www.nanascancermiracles.com Ashley would like to be your new friend and you could email her and let us know how you are doing. Ashley would also like to send you cards that she make. She visits cancer centers where we live and takes them gifts. Ashley would love to have you as her new friend and to help you in any way she can. You can email me her at ashley@nanascancermiracles.com

My prayers our with you,
Ginny and Ashley

Ginny Slayton <ashley@nanascancermiracles.com>
- Sunday, February 22, 2009 10:15 AM CST

I just wanted to say thank you so much for letting me meet cody and sergio. You dont know how much it meant to me to meet them. They are so beautiful. GOD BLESS YOU ALL
sandra buck <sanjeanbu@wmconnect.com>
central square`, ny oswego - Tuesday, February 17, 2009 11:23 AM CST

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, February 14, 2009 3:26 AM CST

I am totally exhausted now....... I love the part about Mariella, that's my Abigayle!!
Amy Grosso <amygrosso38@yahoo.com>
Marcellus, - Friday, February 6, 2009 1:36 PM CST

You are one amazing women with a truly amazing group of children!!
Amy Grosso <amygrosso38@yahoo.com>
Marcellus, - Wednesday, February 4, 2009 9:10 AM CST

Hey Renee! While viewing Zach Hagget's guestbook I stumbled on to yours. Imagine my surprise. Now I'll be able to keep track of you and yours. I miss you. Did you get my message about White Eagle? Brende and I are going and have room for 1 more. Sounds like you could use a weekend away!!!! You sound busy. What was I bitching about again? You are an insperation. Peter could use some work though! lol Love you!

kathy spicer <MBMRM5@AOL.COM>
syracuse, ny USA - Tuesday, February 3, 2009 8:38 PM CST

Thinking of you!
Donna Kay and Tyler
www.caringbridge.org/visit/tylerlangan
Donna Kay Langan <langandk@hotmail.com>
Hershey, pa us - Friday, January 30, 2009 10:20 PM CST

Keeping my fingers crossed that you are all home sleeping in your own bed tomorrow night!!! You must be exhausted and I'm sure Peter is too! Let us know if we can help!! We missed you last weekend but we hope to do another one in the summer!!
Patty Searle <ssearle@twcny.rr.com>
Camillus, NY - Wednesday, January 21, 2009 7:25 PM CST

HI Renee,
Just wanted you to know I am sending you prayers that things calm down and you can get home. We'll keep you all in our prayers!!
Sincerely, Brenda Haggett (Zachie'smom) (5C moms)
www.caringbridge.org/visit/zachie
Brenda Haggett <jhrufus@aol.com>
Syracuse, NY usa - Wednesday, January 21, 2009 1:04 PM CST

Well Renee, with all that is going on up there you still somehow find it in your heart to add some humor!Oh the waiting game, how I vividly remember that! Good luck with everything, however now with the inauguration going on it might feel like another holiday up there.Payers sent your way, Geralyn
g. saya <gerandjar@yahoo.com>
- Tuesday, January 20, 2009 4:12 PM CST

Hi Renee. Keep your chin up and give them hell. I hope things are getting a little bit better as we speak.
Thoughts and prayers.

Stacy www.caringbridge.org/visit/noahmartin

Stacy L. Martin <slmartin@twcny.rr.com>
Liverpool, ny usa - Tuesday, January 20, 2009 3:04 PM CST

Happy New year! Praying things resolve and the kids feel better. Hope to see you this weekend!
hugs,
Heather, mom to Brianna www.caringbridge.com/ny/mylittlesunshine daughter to Pete, www.caringbridge.org/visit/petek
Syracuse, ny USA - Tuesday, January 13, 2009 8:03 AM CST

Hello Renee, Pete and family!! I'm a rookie to your page and just have to say, that yes, you do have a wonderful family!!! Not sure how you are able to keep everything straight but it sounds like you are definitely a woman who knows how to multitask!!! I look forward to getting to know the family much better!! You are all in my thoughts and prayers....
Kelli M. (Hollenbeck) Ripley <shamrock1913@yahoo.com>
Batavia, Ny - Monday, January 12, 2009 11:43 PM CST

I hope you got some rest last night. Sorry to hear about the seizures, like you needed one more thing to add to the plate. Glad it was diagnosed though and hopefully one medication will be all he needs and things will stabilize from there.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Saturday, January 10, 2009 10:21 AM CST

Renee,
I have just stumbled upon yr site for the first time. You sound like an angel yourself. Have you adopted all these angels of yours? They are blessed to have you as are you to have them. Keep your chin up albeit hard.
Sending hugs and tickles
Theresa Johnston
Theresa Johnston <theresaowtramjohnston@yahoo.com>
Belmont, MA USA - Wednesday, January 7, 2009 1:34 PM CST

Renee, I just wanted to send a Happy New Year wish and prayer for your wonderful family this coming year. I really believe that meeting Pete was a gift from God, as it has introduced me to the incredible Curkendall family, and given me so much in return in how I look at my own little blessings at home. You and Pete are such inspirations to myself as well as well as so many others that you touch. Again, meeting you and your family was a true blessing in my life, and I truly believe that God brought you guys into my life to afford me invaluable lessons about what really matters and what true happiness and wealth are all about!

I have to admit that game day on Jan 1 was a tough day, but it was still a great year for my "BearMonkeys". We all watched the PSU game also and cheered the Lions on although it didn't pan out.

You and Pete are great friends, and even greater inspirations in my life, and I can't thank you enough for the things that you have taught me that you are not even aware of. I greatly value our friendship, even though Peter tried to hurt me physically the first time we ever met. Obviously he needs to hear the story of the mean Lion and the sweet BearMonkey, who just wanted a friend to play with, one more time.

Give a hug to all the kids from the Graham family, and all the best in 2009!

Your friends in Cincinnati,

Jeff, Elizabeth, Galen, Sudy, Larson and Bo!
BearMonkey <gci1@fuse.net>
Cincinnati, OH USA - Saturday, January 3, 2009 7:45 AM CST

Wow! How can I complain? You are an inspiration. I know God is with you and your family. May God's continuous peace be with you!
Sheree Whitby <shereemk4me@yahoo.com>
Jessup , MD USA - Monday, December 29, 2008 12:49 AM CST

We wish you a Merry Christmas!
We wish you a Merry Christmas!
We wish you a Merry Christmas…
And a Happy New Year!
Cheers!
Hugs and Kisses from Hershey,
The Langan Family, Tyler ~ MPS III A
http://www.caringbridge.org/visit/tylerlangan

Donna Kay Langan <langandk@hotmail.com>
Hershey, pa USA - Thursday, December 25, 2008 11:38 PM CST

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, December 25, 2008 1:38 AM CST

Merry Christmas!!!! Hope you enjoy and have a healthy holiday!!! Enjoy all of those Angels you have :-)

Angie, Chris, Owen, Tyler and Jake www.caringbridge.org/wa/owen <awawrzaszek@hughes.net>
auburn, ny usa - Wednesday, December 24, 2008 8:45 AM CST

Hoping you have a very merry christmas and everyone stays healthy so you can be home and enjoy the holiday.

Hope you can figure out the issue with the line. Not sure if you've tried just using a steri strip to hold it in place, but sometimes they are easier to get off then tape and they are sterile so they can go under the dressing. Hopefully you can just switch to a port. So much nicer. I miss ours, but we infuse 24/7 so it's not an option anymore.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Wednesday, December 24, 2008 7:33 AM CST

You might have angels in your lives, but you have been an angel to so many thru your big hearts!!!
You motivate me to do more, more often.
God Bless you all, and happy holidays!

Sue Peters-Davidson <sjdson@aol.com>
Columbia, sc richland - Monday, December 22, 2008 9:57 AM CST

Renee,
Praying that you have a good nights sleep which means all the kids are doing ok. I hope you get to go out with your friends and get to have a great time you deserve it.

Terri
- Thursday, December 11, 2008 0:21 AM CST

You all remain in my prayers.
I've finally reached trach, with luck. I'm hoping for simple procedure, easy recovery.
Happy holidays to all eight Super Curkendalls!
Miri B.
www.caringbridge.org/visit/mirib
Miri B.
MI - Monday, December 8, 2008 11:46 PM CST

Thinking of you and hoping things are back on the right track. Looking forward to hearing things are ok with all the kids!
Patty Searle <ssearle@twcny.rr.com>
Camillus, NY - Wednesday, December 3, 2008 5:38 AM CST

Hi Renee,
Just wanted to wish you a Happy Thanksgiving!! I know you know what blessings you have but I thought I'd remind you what blessings you two are to your beautiful family and friends too!! Love and prayers,
The Haggett's, Brenda, John and Zachie
Brenda Haggett ML mom <jhrufus@aol.com or www.caringbridge.org/visit/zachie>
Syracuse, NY USA - Tuesday, November 25, 2008 7:23 PM CST

visiting mallory lloyds site
sarahCoulombe
augusta, me. kennebec - Thursday, November 20, 2008 10:42 AM CST

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, November 15, 2008 11:42 PM CST

Just found your site. I hope your family is doing well. My brother has neurogenic bladder/bowel and seizures.
Beth
Seattle, WA - Friday, November 7, 2008 9:26 PM CST

Wish all of you the very best
Michael Hurwitz
Tampa, FL USA - Tuesday, November 4, 2008 9:52 AM CST

Hi Renea,
Glad to hear it was only an infection, you know you've seen a lot in life when you can say, ONLY an infection! Yipeee. Glad to see all the kids doing so well. Sergio is so cute!!! Hope to catch up at the next moms night. Zach's finally on the way back to "normal" so I can get out for a night without feeling too bad. Have a fun Halloween with the bunch! Prayers always coming your way!!
Brenda & Zachie
Brenda Haggett, I-Cell/ML mom to Zachie <jhrufus@aol.com or www.caringbridge.org/visit/zachie>
Syracuse, NY usa - Thursday, October 30, 2008 8:30 AM CDT

OMG Renee....holding my breath and sending positive thoughts and prayers that there is some other explaination for this. Whose knows....maybe its just those crazy teenage hormones kicking in strong???
big hugs,
Heather
Heather, mom to Brianna www.caringbridge.com/ny/mylittlesunshine daughter to Pete, www.caringbridge.org/visit/petek
Syracuse, ny USA - Sunday, October 19, 2008 9:22 AM CDT

How was date night? Fun I hope. It is hard to find the time with little kids.

Hope Trayvon is having a better day. I'd be mad at the transplant doctor too. I think I have a chip on my shoulder for stupid doctors, though. Not all doctors, just those with no common sense. My best friend needed a heart/lung transplant due to pulmonary hypertension and a congenital heart defect. She was willing to be listed as long as she could wait at home. They lived close enough to the hospital that this was not an unreasonable request. The doctors wanted her to stay in the hospital until organs became available. She did not want to potentially spend the rest of her life in a hospital. She died 5 years ago at the age of 35 without ever being listed. To this day I wonder if things would have been different if her doctors had showed more compassion and common sense.

Hopefully Trayvon's doctors will get him listed soon so he can live a LONG, healthy, happy life.
Lori <lorij6@aol.com>
Pittsburgh, PA USA - Saturday, October 11, 2008 2:00 PM CDT

Praise God for His faithfulness! I'm thrilled for you all Renee. Finally- a bit (a HUGE bit) of good news! Love and prayers! Hope the fam choked down the macncheese!
Jill
Baldwinsville, NY - Thursday, October 9, 2008 12:40 AM CDT

What great news! So good to hear. Praying things continue to improve and things settle down for you a bit.

holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Wednesday, October 8, 2008 9:38 PM CDT

Thinking of you always and hoping things go well in NYC!!
Patty Searle <ssearle@twcny.rr.com>
Camillus, NY - Tuesday, October 7, 2008 6:10 PM CDT

Just wanted to let you know I am always thinking and praying for you all.........Stay strong!
Amy & Isabella Isabella's Page <amygrosso38@yahoo.com>
Syracuse, - Tuesday, September 30, 2008 5:50 AM CDT

Hello. My second born, Emma, had Hypoplastic Left Heart Syndrome and died 2 months ago when she was 3 months old, and I was interested in reading about your heart child, and surprised to read about the other 5 blessings in your life! Congratulations! You are such a strong and blessed family! This website is a great way to share your testimony with many other people. Thank you!
Sonia Lopez <foureyes@cox.net>
Tulsa, OK USA - Saturday, September 27, 2008 11:18 PM CDT

Renee,
I'm Maja from the HTX list. Sending positive thoughts your way!

Maja
Woodbridge, VA USA - Monday, September 22, 2008 11:49 AM CDT

Renee, I am so sorry about your dad. May you find comfort.
I'm also sorry that Trayvon is facing another medical ordeal. He is such a tough little superhero! I hope a new, healthy heart will make him feel better ultimately than he EVER has.
Sergio is a cutie! Any word on when/if to trach?
Congratulations Nettie, you're getting so independent.
Much love to Josh, Cody, Mariella, Trayvon, Nettie and Sergio. And you and Peter.
Miri B.
www.caringbridge.org/visit/mirib

Miri B.
- Sunday, September 21, 2008 3:38 PM CDT

Ooh...I'm jealous. I went to the last game Penn State/Syracuse played in the Dome. Peter wouldn't have been in that one because I was a junior or senior at Penn State and he is 2 years older than me. Penn State won that day too. I remember my brother and I were in a section with a bunch of Penn State fans and had a great time.

I came out of lurker mode and posted a sympathy message a few days ago. Now I guess I'll tell you why I started reading your blog. I am originally from Athens, PA which is about 20 miles from Elmira. My dad taught in Elmira schools. Peter might have known him but I don't think he ever had him. Mr. Johnson who taught Social Studies. In any case, we always followed Peter's football career because of the local connection.

I was at Penn State 2 years behind Peter. I was a freshman when they won the national championship. I did not know Peter personally, but he had a friend or girlfriend (not sure which)that lived on my floor sophomore year. Ask him if he remembers Donna that was diagnosed with MS.

I found the Caringbridge community years ago when my boss's daughter had leukemia. Eventually someone posted a link to your page. I knew a bit of the story of Annette and Joshua from stories in the Elmira paper. I've been lurking since around the time Trayvon came to live with you.

Now that I've written a book...I'll continue praying for your family. Special prayers for Trayvon as he begins the jouney to a new heart.
Lori <lorij6@aol.com>
Pittsburgh, PA - Sunday, September 14, 2008 11:36 AM CDT

Wow...how do you keep it all straight. You are such a great mom to all your angels. Praying the right decisions are made for Tray and all the details work out as you plan for these changes. Glad school seems to be going well for everyone.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Friday, September 12, 2008 9:28 PM CDT

I am so very sorry for all you are going through. Please know we are all here for whatever you may need!! My heart breaks for you and this news. New we "heart moms" don't ever want to hear! You are in my thoughts and prayer for all your prayer request. You have all this and mourning your dad. May you find some peace!
Love, Judy
mom to Maggie HLHS
Judy Walsh <walshmws95@aol.com>
- Friday, September 12, 2008 1:57 PM CDT

Thanks for listing out the specifics of how to pray for your family. Wow, you are really juggling and spinning around in so many directions. Keep up your strength and faith. God Bless - Love, Natalie
Natalie Rivard <nrivard@twcny.rr.com>
- Friday, September 12, 2008 12:34 AM CDT

{{{{{{{{{{{oh Renee.....}}}}}}}}}}}}

big hugs and prayers!!!!
Heather, mom to Brianna www.caringbridge.com/ny/mylittlesunshine daughter to Pete, www.caringbridge.org/visit/petek
Syracuse, ny USA - Thursday, September 11, 2008 8:13 PM CDT

You got it Renee - prayers for all of the above and you too - for strength and resolve to see your kids through these trials. Love, Lisa
Lisa Witkin <lpennell@twcny.rr.com>
Syracuse, NY USA - Thursday, September 11, 2008 5:16 PM CDT

It is my special prayer day where I just pay attention to HIM and make my special requests. God is so great. He is really my father and well you know how that goes... Daddies just love when you rely on them.

So, today I tell my Father that I am asking for special prayers just for you and the other special children in this Caring Bridge site. I also ask my Father for special prayers for all the Head Injury Survivors, their family and friends too.

I know that my Father hears me today. I can feel it. He makes me feel like a child all over again... just to ask Him over and over again for things that make me feel special. I feel special when I know that the child I am praying for has wonderful news to share. My happiness comes in sharing Glory for His sake. God, the Father is wonderful.

Praying for you in the precious name of sweet Jesus.

YOU must be so very special too in the eyes of the Heavenly Father. To be Blessed with all that you endure, I am positive that God has a very unique plan for you here today and in the future.
God Bless you all.
So sorry for the Loss of your earthly father. He sounds like a wonderful man. Gods garden is beautiful as He always picks the BEST.
Anne Marie Willett <Awillett@world-electronics.com>
Muhlenberg, PA USA - Tuesday, September 9, 2008 4:22 PM CDT

I'm so sorry about your father. I'm a long time lurker of your blog. Maybe someday I'll come back and introduce myself, but for now, just know I'll be praying for you to get through this.
Lori
Pittsburgh, PA - Sunday, September 7, 2008 9:36 PM CDT

Renee, with tears in my eyes,I sit here and think of the pain in losing someone so close. Your father seemed just like my mom which makes losing them so much harder. AS i've said, I will not "move on" but rather "carry on." I pray that you will be comforted by God's love. I will be there to dry your tears. geralyn
gsaya <gerandjar@yahoo.com>
syracuse, ny - Sunday, September 7, 2008 9:57 AM CDT

Renee, your Dad seems like he was one heckuva guy. I know this is tough, but try to remember how blessed he was and how wonderful his life was to be able to see his daughter grow, be happily married, and raise one of the most incredible families ever. He was very fortunate to have been given the gifts that you and your kids have given him. Celebrate his life, and make sure that all those great kids grow up knowing the caliber of man their grandfather was. I know he is in heaven now, probably bragging to everyone about what a fantastic family he has.

God bless your father, his family and all who knew him. I wish I had had the chance to meet him!

All our love to you and your family during this time and always!!

The BearMonkey's from Cincinnati
Jeff BearMonkey Graham <gci1@fuse.net>
Cincinnati, OH - Sunday, September 7, 2008 5:54 AM CDT

I am so sorry. Sometimes we can't explain the why's and it seems that much harder. I'm sure you heart is broken. Know you are in my prayers. Your dad sounds like an awesome dad/grandfather and your children are blessed to have had him in their lives. My thoughts are with you.
Holly <mom2maya@centurytel.net>
HOlmen, WI - Saturday, September 6, 2008 11:50 PM CDT

SO very sorry for you loss and all that continue to fall on your plate. You are all in my thoughts and prayers.
Love, Judy
Judy Walsh <Walshmws95@aol.com>
- Saturday, September 6, 2008 3:59 PM CDT

Renee,
I am so sorry for the loss of your dad. You are so blessed to have had a father that loved you and your family unconditionally. I just wish there was a way I could help mend your broken heart. May God Bless you with happy memories of you dad
Terri
- Saturday, September 6, 2008 0:08 AM CDT

Wow, where do you get the energy? Maybe if you could get each of the kids scheduled for a sleep study each month that would be several good nights of uninterrupted sleep a month! LOL! You are such a dedicated mom to your kids you are all so blessed to have each other. God really knows what mommy's to pick out for which kids and vice versa. So glad to hear how well Sergio is doing and praying for some direction for your dear Tray.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Tuesday, September 2, 2008 11:40 PM CDT

You are such an amazing mom, Renee!! You are all in our prayers as you continue to do the best for your children. I don't know how you do it but you do a great job of it!! Please let us know if we can do anything. Hope to see you Thursday at our mom's night out!
Patty Searle <ssearle@twcny.rr.com>
Camillus, NY - Tuesday, September 2, 2008 5:44 AM CDT

You continually amaze me at how organized you are with your children and all their health problems. Just keeping the meds straight!!! I am glad to hear that things are going well.
I would like the caringbridge community to pray for a young women that was just diagnosised with cancer. I am sure she and her family can use all the support because they are devastated. http://www.caringbridge.org/vist/vincenzatolomeo.
Mary Anne <maklein55@comcast.net>
Pittsburgh, PA - Monday, September 1, 2008 7:11 AM CDT

Another busy week, should I be surprised? I can understand how it is to have something suddenly hit you as you described. i went through something similar this past spring and it took a few months to really get past and back in my groove of just dealing with what comes my way. it is really hard when suddenly you're faced with such reality. Continue to talk/vent if you need to. Feel free to email. I can't really put it in words, but I know what you are saying. Hope your week goes well.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Tuesday, August 26, 2008 8:50 PM CDT

Hey Renee! I am so glad you're finally having a "good day" after a summer filled with so many tough ones. I bet you're counting down the days to school starting. :) I continue to keep you and your beautiful family in my prayers!
Elizabeth
- Wednesday, August 20, 2008 6:15 PM CDT

Hi Renee - just getting caught up - sorry the kids are struggling so...I'm thinking about you. Take care, Lisa
Lisa Witkin <lpennell@twcny.rr.com>
- Sunday, August 17, 2008 8:35 AM CDT

Hoping things are improving with Joshua and you avoided the ER. You guys really need a break. Hope you have some rain free, healthy days in the near future.

Holly
www.caringbridge.org/mi/mayam
HOlmen, WI - Thursday, August 14, 2008 7:56 AM CDT

So sorry. I hope Joshua starts turning around soon. You really have had such a crummy summer. We'll pray the weather clears and the viruses clear so you guys can catch a break.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Wednesday, August 13, 2008 8:37 PM CDT

Happy Birthday Marriella! What an amazing little life you've led.

Hope the trip to New York goes well. Will be thinking of you.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Friday, August 8, 2008 6:56 PM CDT

HAPPY 6TH BIRTHDAY Marriela. HOPE YOU HAVE A GREAT DAY SWEETIE.
lOVE, AUNT BRENDA, UNCLE LARRY, KALI,SAMMIE AND COURTNEY

Brenda Munger <lawrencemunger@yahoo.com>
Liverpool, ny usa - Thursday, August 7, 2008 9:01 AM CDT

Renee - hope that you will update from home soon. Sorry you all are going through this scary time and praying for his heart to strengthen and pump out all that extra fluid. God Bless that little sweetie
Natalie Rivard <nrivard@twcny.rr.com>
- Saturday, August 2, 2008 11:23 PM CDT

Thinking of you guys. Keeping you in our thoughts and prayers. Clarissa is around to babysit if you need her!
Many Hugs....

Michele and Clarissa Hyde <MHyde67@twcny.rr.com>
Bridgeport, NY - Saturday, August 2, 2008 10:32 AM CDT

big hugs and prayers...I am so glad to hear that Tray has turned a corner and feeling a bit better. Hopefully the days to come will bring more answers and home sweet home
:-)

Heather, mom to Brianna www.caringbridge.com/ny/mylittlesunshine
syr, ny usa - Friday, August 1, 2008 7:13 PM CDT

Praying for your sweet boy. Hoping they can get things under control without the need for the OR. Praying your situation at home remains covered and under control.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Wednesday, July 30, 2008 9:59 AM CDT

Sending you a bunch of prayers and hugs! Hope they are able to get his heatbeat down with out the OR. The PICU is a great team there as I am sure you know so you are in good hands.

Angie, Chris, Owen, Tyler and Jake (www.caringbridge.org/wa/owen) <awawrzaszek@hughes.net>
auburn, NY usa - Tuesday, July 29, 2008 5:43 AM CDT

Big hugs and prayers surrounding your family and the medical staff that takes care of them.
Peacful and healthy days ahead....
hugs,
Heather, mom to Brianna www.caringbridge.com/ny/mylittlesunshine
syr, ny usa - Monday, July 28, 2008 3:11 PM CDT

Renee - you are a marvel! What a blessing you are to those kids and they as well to you! I miss you!
Elizabeth
- Saturday, July 19, 2008 5:07 PM CDT

hope everyone feels better and stays feeling better and you can relax and get some good sleep. Don't you love it when kids are miraculously cured after you make an appointment. lol. See you at Amy's an dmom's night?
hugs
Heather, mom to Brianna www.caringbridge.com/ny/mylittlesunshine
syr, ny usa - Saturday, July 19, 2008 9:43 AM CDT

OK, your list of funny things made me laugh so hard...and that isn't an easy thing some days! Praying for endurance and strength as you continue to nurture and raise those wonderful children.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Friday, July 18, 2008 12:25 AM CDT

I love watching your family grow! Wish it was a little easier on you though! Hope things settle down at your household and give you a break to get in the rhythm of a new routine.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Sunday, July 13, 2008 5:22 PM CDT

HOpe things settle down and everyone feels better soon! Big hugs,

Heather, mom to Brianna www.caringbridge.com/ny/mylittlesunshine
syr, ny usa - Saturday, July 12, 2008 9:34 AM CDT

Can't wait to see pictures! Sorry things have been so rough with the tummy's in your family. Hope you have some time smooth sailing as your new member adjusts.

Holly
www.caringbridge.org/mi/mayam
holmen, WI United States - Tuesday, July 8, 2008 9:37 PM CDT

Wow! Always so busy at your place. Sounds like everyone is doing well overall and the new addition fits right in. I'm so excited for you guys. Can't wait to hear more updates. Glad to see you were able to get the modifications to the house done that you needed too.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Thursday, June 5, 2008 6:45 AM CDT

Hi guys!!! You know that pony I kept telling everybody I wanted and never got? Well...I have three and I think I can fill up some boring summer days, if you are all interested!!!
Joanne Haney
Clay, ny 13041 - Monday, June 2, 2008 6:51 PM CDT

HAPPY 40TH BIRTHDAY RENEE!!!!!! TO THE BEST SISTER IN LAW. HOPE YOU HAD A GREAT DAY.
LOVE,

BRENDA
bRENDA mUNGER <LAWRENCEMUNGER@YAHOO.COM>
LIVERPOOL, NY USA - Thursday, May 15, 2008 6:31 AM CDT

I pray that every thing is going great their for you. Please pray for LaKota's Grandma, my mom, she was diagnosed with a tumor on her lung,and the doctor said it looks like cancer. I did set up a web page for her on the caring bridge, it is.....shirleysizer

Thank you again for your prayers. LaKota's check up is on May 19th, please keep her in your prayers, Thank you.

Love LaKota, and her mom Debbie.

http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Tuesday, May 13, 2008 12:37 AM CDT

Renee..

Love and hugs,
Eva and Rodney <kwfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Sunday, May 11, 2008 0:49 AM CDT

HAPPY BIRTHDAY SERGIO!!!!!!! We can't wait to meet you. I can't believe I have another nephew :0 I say a prayer for you guys all the time because you need it with your house full of love. Renne, Joshua is a gift from God and he is very special in so many ways. He makes me smile every time I spend a minute with him. And I feel lucky to have him in my life as I do all of the kids.
We love you guys, and tell Nettie I will be there Thursday as I feel fortunate to be a support for her.
Brenda Munger <lawrencemunger@yahoo.com>
Liverpool, NY USA - Tuesday, May 6, 2008 11:32 AM CDT

Hi
My name is Jenna and I came across your site. Your kids are all inspirations, and brave, courageous fighters. They will all be in my thoughts and prayers.
caringbridge.org/visit/champ291
Jenna <nevergiveup301@aol.com>
Kamloops, BC Canada - Monday, May 5, 2008 7:22 PM CDT

I am so excited for you! What a blessing to have a new addition to the family. Maya told me today, "Mama, we should get a baby...can we?" So excited to hear more about your little addition.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Tuesday, April 15, 2008 10:11 PM CDT

!!!!!!!! a baby !!!!!! Sergio !!!!!!!!!!
He is adorable. Congratulations on your sixth angel.
Nettie, you've got another little brother to look out for. Good thing you're a young woman of 18. Happy birthday!
I am checking the site twice a day for Sergio's arrival date.

God Bless all EIGHT Curkendalls.

Miri B.
www.caringbridge.org/visit/mirib
Miri B.
MI USA - Sunday, April 6, 2008 7:43 AM CDT

Congratulations to your family - wow! That's exciting! You never cease to amaze me, what a kind and warm family you are - you are all blessed to have each other. I was just joking (but not really) the other night with the Moms, that I don't know how people handle more than 2 kids. Take care, God Bless - Love, Natalie
Natalie <nrivard@twcny.rr.com>
- Saturday, April 5, 2008 10:56 PM CDT

[Glitterfy.com - *Glitter Photos*]
WOW You are 18....What an inspiration!!!
HAPPY BIRTHDAY ANNETTE!!!!!

Hi Renee
I am Julie. I am a member or pedPID Chat. I love when you leave answers. You are such an excellent mom & encourager.
I have been her to visit before, but lighten cam ethrough my computer when a Tornado decided to visit us her in our home!!!
I plan on visiting more often now tha we have "found" you all again!!!
Tkae care & know that in SC youhave a prayer Warrior in Blake & myself!!!

Blakester & Mom

julie
Greenwood, South Carolina USA..............IN GOD WE TRUST................ALWAYS!!!! - Sunday, March 30, 2008 11:37 PM CDT

Wow-18! Hope it is a very Happy Birthday! And Wow 10 years cancer free! So many good things happening!

I hope you are able to get everything done in one trip on Monday and maybe even a few minutes for yourself!

Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Sunday, March 30, 2008 8:45 PM CDT

Sounds like the kids had a great Easter!! It's always so much fun watching the kids, no matter what holiday it is.
I hope the flu has left you all. It's been a rough year for it!
I sure can relate to your Cody's "commands". My 3 year old granddaughter lives with me, and we are doing the potty training(pretty successful, if I may say). However, she does have her "accidents". She lets me know..and whomever else is within earshot! lol Then she'll tell me that I need to wash her clothes so she doesn't stinky!
Oh out of the mouths of babes..huh!
I hope it warms up for you. We got 8.8 inches of totally unexpected snow on Friday! So much for Spring!

Love and hugs to you all...
Eva and Rodney <kwfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Sunday, March 23, 2008 9:37 PM CDT

Hope the flu is through!

Have a blessed Easter.
Holly and Maya, www.caringbridge.org/mi/mayam
Holmen, WI - Saturday, March 22, 2008 9:23 PM CDT

Flu, yuck. Hope it leaves without taking another Curkendall down. Poor Mariella, those fever nights are scary.
Nettie, I hope your chair is fixed SOON. When mine is broken, I have to use my old one, which has my vent all balanced on it like a Dr. Seuss picture, until my new one is fixed.
When you get another one when you are older, you can keep one for a backup too. I HATE being in my manual (a Rodeo Tilt, so I feel like I'm a foot off the ground.) I know how you feel.
Take care and get well, all.
Miri
www.caringbridge.org/visit/mirib
Miri B.
- Sunday, March 16, 2008 10:55 PM CDT

Hi Nettie,
I was so happy to read about your family. Hope everyone gets better quick and I sure hope your chair is fixed. I miss not seeing you. How's school? I messed up on 2 entries...oh well.
Mrs. C...... your sister
Annette Chairvolotti <cchevy3156@yahoo.com>
Liverpool, NY - Saturday, March 15, 2008 6:13 PM CDT

Annette's sister
Annette Chairvolotti <cchevy3156@yahoo.com>
liverpool, ny - Saturday, March 15, 2008 6:07 PM CDT

Annette's sister
Annette Chairvolotti <cchevy3156@yahoo.com>
liverpool, ny - Saturday, March 15, 2008 6:06 PM CDT

WAY TO GO, JOSHUA!
You are tougher than every single wrestler in the WWE.

Love from Miri and Matt
Miri B.
MI USA - Saturday, March 8, 2008 6:40 PM CST

Nettie, Miri B. wishes she had perfect teeth and beautiful skin, just like you.
Someday, we have to get together so I can see that perfect smile in person!
And Miri B.'s husband adds that slim legs like yours and mine are the prettiest. Hugs from Miri and Matt and Miri's nurse, Gail.

We're thinking of you, and keeping you and your family in our prayers.

Miri and Matt
www.caringbridge.org/visit/mirib
Miri B.
MI USA - Saturday, March 8, 2008 6:32 PM CST

Praying for Nettie. I'm so sorry she is going through this.

Congrats on the 10 years! How wonderful!

Holly
www.caringbridge.org/mi/mayam
Holly Owens
Holmen, WI - Saturday, March 8, 2008 9:11 AM CST

Hi Renee - first, I was so happy to read about Josh's 10 year anniversary - what a milestone! I'm also looking forward to 10/28/2014 when I can write that, but will be soaking up every minute until then. I cringed when Ethan had all his re-vaccinations, it is amazing how many they give at once and I had wondered if this was safe. Of course, they say yes - but you never know...I'll be looking forward to your section in the American Journal of Medicine for the answers one day. Do you have a crazy lab behind a secret door in your home somewhere? Because I can picture you with your eye shields, wearing a lab coat and gloves, holding vaporizing test tubes for some reason. Just kidding :) Hope to see you soon - Love, Natalie
Natalie <nrivard@twcny.rr.com>
- Wednesday, March 5, 2008 4:42 PM CST

Hi Renee!
As of now (everybody has a "definitive reason" that someone treated for congenital immunodeficiency for 31 years was not properly screened. The reasons change by the day.)it seems that I HAVE had twice-yearly immunoglobulin panels, but I've been transfused so much that on a basic screen, I have "ghost G." I've got so many remnants of antibodies and such that unless more than a cursory panel is done, I show up WITH IgG, and the only ones they did test in more depth were IgA/complements-- the ones they knew about. They had their reason for infection, and that was enough for them. Shame it was wrong.
Because of the vasculitis and blood production probs, I HAVE (thank G-d)been checked on T cells, B cells and helper/suppressor ratio properly.
Wow. All these years thinking IVIG couldn't help and it COULD HAVE. How many infections could have been avoided? Judging by Nettie and Joshua, lots.
We are expecting a visit today from my immunologist at Children's to evaluate me for transfer, and will ask about having sub-q IVIG.
I need the folks who have treated me all my life to sort out the mess of liver/vasculitis/infection/hereditary immunoglobulin deficiency. The people here are great, but they don't have an MDA clinic or a ped. immunology clinic. I want to be at CHOM, where they know me.
Well, I can't change the past, so we go forward. Maybe with IVIG to keep trach buggies away!
Thanks, thanks, thanks for your advice, thoughts and prayers. You are all in our prayers too.

Love,
Miri
www.caringbridge.org/visit/mirib
Miri B.
- Saturday, March 1, 2008 1:36 AM CST

Hi Renee! I'm excited about the article too. Lyida's Closet is such a wonderful outreach! BTW, Peter's post absolutely cracked me up. :) See you Sunday at bile, I mean, bible study.
Elizabeth
- Friday, February 29, 2008 8:41 PM CST

Renee- I have never seen God's hands in action like I do in both your and Peter's lives, and the lives of your children. You have more love to give than I have ever imagined myself giving. It is a blessing to know you and your family, and every time we interact, I am witness to Christ with us. Thank you for your gift to not only your beautiful children, but to all of us so lucky to know you.
Love, Jill S
Baldwinsville, NY USA - Monday, February 25, 2008 7:22 PM CST

Renee',
Could you get me a Big Mac #1 Meal with a large Diet Coke and 6 Chocolate Chip cookies and um.......... oh wrong chat sorry -please disregard (not you Renee')
Love ya,
Pete
Pete <pcurk@aol.com>
- Saturday, February 23, 2008 7:20 PM CST

God Bless each and every one of you! I was touched reading your stories. What a very inspiring family you all are! Keep the faith and good heart! And thanks for sharing your story and giving us all hope faith and strength through our God!
Blessings!
Diane

diane ackerman ~ www.caringbridge.org/ne/jaden <cd_ackerman@yahoo.com>
buckeye, az - Monday, February 18, 2008 3:24 AM CST

Hi guys.
Great work in school. You all must make your Mom and Dad soooo proud.
Renee, thanks for the guestbook note. I definitely have my moments, but my family and friends make it clear that I am lucky in so many ways and if necessary, declare a five-minute whining limit. You of all people know that prognosis is way affected by will to live. Your little ones have jumped the odds so many times, because they are determined to live and thrive.
But thanks for such a sweet message. I'd love to meet you all too. We're two degrees of separation in so many things-- I took the same Wish trip as Trayvon, and I see an MDA pulmonologist in NJ once a year (but will stick with the one at my home MDA clinic after my trach.) There has to be someplace we will both be at the same time.
Oh, BTW-- Nettie is the only other person I have known of who has had xanthomonas hemosepsis (how I, or Nettie, got a bug that should only infect PLANTS is a mystery. I must be part fern.) If she has also had globratta toriolopsis or cepacia, we may be blood sisters-- in our way.) We're currently growing MRSA and klebsiella, again. I'm sure you remember the fever-call-pack-admit-minimum two week stay shuffle. We have had a few extra steps this time.
Anyway, thanks. I was really happy to see your name in the guestbook. I hope everybody is okay, and that it isn't as cold there as it is here.

Take care,
Miri B.
www.caringbridge.org/visit/mirib

Miriam B.
MI USA - Friday, February 15, 2008 3:14 PM CST

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, February 14, 2008 9:47 PM CST

I'm so glad you are getting some much needed help at home with the things you need. I hope it will make things easier all around for everyone. Glad to you are making time for a Bible Study, sounds like fun.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Thursday, February 7, 2008 10:36 PM CST

Renee,

What a beautiful family! And I love how you just "roll with the punches," plus how you see so much of God's gifts in each child. Thanks for sharing!
Pat Lee (Ped-Onc Survivors)
Orlando, FL - Wednesday, February 6, 2008 8:24 AM CST

Girl, I gotta know more about that Bile study - I am sure I could qualify if they are still looking for volunteers...just kidding
Lisa Witkin
- Tuesday, February 5, 2008 7:15 PM CST

Renee, my fiance thought he had it hard taking care of me on 26 meds (only 21 at home, five are received here at the hospital every 48 hours in short stay) and he has me doing the scheduling/supervising and full-time CNAs and R.N.s to help do my care.
I showed him your entry. Now he knows how easy he has it.
You are...a force of nature. Remember to take care of the caregiver.

Best to all you guys (well, four guys and three gorgeous ladies),

Miri and Matt (and Denny, Gail, Sandy, Tania and Lydia, poor Matt only has five helpers.)
Miri
- Friday, January 25, 2008 8:35 AM CST

Renee - after reading that med list, I would add:

MOM: wine, wine, wine...maybe more wine
I don't know how you do it; but I guess I'll go do some chores and quit asking how, why, etc. Lisa
Lisa Witkin <lpennell@twcny.rr.com>
Syracuse, NY United States - Thursday, January 24, 2008 4:57 PM CST

Hi there. Glad to read things are a bit more under control than last entry - WOW! You are truley an inspiration to so many people...how you have so many responsibilities, activities, appointments, medications, emergencies and worries to try to balance - and yet you manage to keep your head above water and swim on. It kills me when I listen to people "complain" about things that mean nothing - I want to send them right here. Thank you for writing in this journal so frequently, I read each entry and am amazed at what you can do. I know that has to be such a tearing feeling to make the helmet decision and I will repeatedly pray that he won't need it as his seizures will be controlled. These words have been in my direction the last couple of weeks and I will pass them on - Ephesians 3:20 "He can do exceedingly abundantly above all that we ask or think, according to the power that works in us"
Natalie Rivard www.caringbridge.org/visit/ethanrivard <nrivard@twcny.rr.com>
- Wednesday, January 23, 2008 9:40 AM CST

big hugs to you and family, Renne. Somehow you will all get thru this...even if it seems so daunting now....

hugs, prayers and hope...
Heather and Brianna www.caringbridge.com/ny/mylittlesunshine - Daughter to Pete, www.caringbridge.org/visit/petek
Syracuse, NY USA - Friday, January 18, 2008 7:37 AM CST

Hello to you all. I know that God's Holy Angels are constantly with you all. May God continue to stregthen and bless you!
monica david
Meadville, Ms U.S.A. - Friday, January 4, 2008 8:05 PM CST

hello to you and your wonderful family. I linked to your web site from another caringbridge site. I am just fasinated and overwhelmed with your family!! You all are truely AMAZING!! thank you for sharing your story and teaching people like myself the courage and strength in life. I will definately bookmark your site and will check in with you often. Blessings for the New Year.
Wendy B
Milwaukee, WI usa - Friday, January 4, 2008 6:49 PM CST

Happy new year. I have followed since it was just Joshua and Nettie. You have a beautiful, big family. What a lovely young woman Nettie is!
I am looking at the possibility of a VNS. I'm limited in the meds I can take, because I cannot eat and all my nutrition and meds have to go through my Hickman. I'm taking IV Dilantin and IV phenobarbital every 12 hours, Klonopin fastmelt wafers every six hours and Ativan IV push once a day. The combo makes concentration hard, and still doesn't cover all my seizures. Joshua, you are one brave kid to go to school and have fun even through those seizures.
I would like very much if you stopped at my page sometime, www.caringbridge.org/visit/mirib. Any advice from your experience with Joshua's VNS is most welcome.

Miri B.
- Friday, January 4, 2008 9:55 AM CST

That is so funny that Cody found his favorite present, a stick. Ethan has been spending a lot of fun with the cardboard gift wrapping tube behind a chair. It has been a sword, a microphone, a tunnel for his matchbox cars...and now a wilted piece of trash. I hope you are enjoying your new wheels - yeah for you! Boo for us, who won't be (hopefully!) getting your animated vehicle crap out stories to read (just kidding). Have a happy, healthy New Year! Hope to see you soon
natalie <nrivard@twcny.rr.com>
- Friday, December 28, 2007 9:39 PM CST

Merry Christmas!

Kisses from Hershey

Donna Kay and Tyler

http://www.caringbridge.org/visit/tylerlangan

Donna Kay Langan <langandk@hotmail.com>
Hershey, PA USA - Tuesday, December 25, 2007 8:34 PM CST

We want to wish you guys a very Merry Christmas and A Happy New Year!!!

(Glad to hear about your new van)
Michele and Clarissa Hyde and Family <MHyde67@twcny.rr.com>
Bridgeport, NY - Monday, December 24, 2007 11:30 AM CST

A very Merry Christmas to you all!!!!! Enjoy the new ride :-D

Hugs,
Heather and Brianna www.caringbridge.com/ny/mylittlesunshine - Daughter to Pete, www.caringbridge.org/visit/petek
Syracuse, NY USA - Sunday, December 23, 2007 6:29 PM CST

Love and prayers always,
Eva and Rodney <kwfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Sunday, December 23, 2007 7:38 AM CST

I'm so glad to hear about your new ride - I pray that it will last for a long, long time without much aggravation. Sorry to read about Josh's seizures, I will continue to pray for them to disappear, or at least to subside. That has to be so scary - Ethan had a few partial seizures a couple years ago and this was terrifying to me. I hope you and your family have such a wonderful, happy and healthy Christmas and New Year.
Natalie <nrivard@twcny.rr.com>
- Friday, December 21, 2007 10:05 PM CST

Wishing all the Curks a happy Christmas - tell Joshua that Andrew wants a snow board for Christmas - can you say traction?? So happy about your new wheels - take care, Lisa
Lisa Witkin <lpennell@twcny.rr.com>
Syracuse, NY United States - Friday, December 21, 2007 5:34 PM CST

Have a wonderful Holiday and a happy new year.
Terri Servello <Tian@twncy.rr.com>
- Friday, December 21, 2007 3:55 PM CST

Renee, Merry Christmas to you and your family and our prayers are with you, Peter and those amazing kids!! Have a great Christmas and good luck with the new car. I would have loved to have seen you guys riding home with no muffler!!

Take care!!
BearMonkey <gci@cinci.rr.com>
Cincinnati, OH - Monday, December 17, 2007 12:01 AM CST

It was great sharing a hospital room - Tessa is starting stage two today - doing well and loving the scrambled eggs she is having for breakfast... if all goes well - hopefully we will be home by the end of the week -we are on day 34 right now - hope we don't make 40!!
Lori and Tessa Kilian <fkilian@rochester.rr.com>
Webster, NY - Monday, December 10, 2007 7:42 AM CST

So glad surgery went well and she is recovering like a champ! hope you can move forward with all your Christmas plans and appointments.

Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Sunday, December 9, 2007 8:36 PM CST

Go Marriela! What a trooper she is! So glad that you are home and with your family. I hope you get to do all the things that you had planned on missing this week! Enjoy!
Patty Searle <ssearle@twcny.rr.com>
Camillus, NY - Sunday, December 9, 2007 7:58 PM CST

HI!

Its wonderful to see that everyone is dong well. Give everyone a great big HUG from us Flynn's
Merry Almost Christmas!!!!
www.caringbridge.org/visit/emilydflynn
Suzanne, Keith and Emily Flynn <suzanne.flynn@gmail.com>
Clay, NY - Sunday, December 9, 2007 10:43 AM CST

Hey Renee! I was thinking about you and Marriela all day today and hoping that all went well. We missed you at playgroup, but I'll keep her in my prayers for a smooth and speedy recovery.
Elizabeth <zagler@twcny.rr.com>
- Friday, December 7, 2007 7:40 PM CST

Glad to hear all went well with the surgery and Mariella is doing well. I hope it continues that way and you are home soon. We missed you last night. Safe travels home and we'll continue to pray all goes well...
Judy
www.caringbridge.org/visit/maggiewalsh

judy walsh <walshmws95@aol.com>
- Friday, December 7, 2007 3:13 PM CST

Look at all that water and sunshine in that picture! The kids look fantastic !
Terri Servello www.caringbridge.org/ny/tony <Tian@twcny.rr.com>
- Sunday, December 2, 2007 2:13 PM CST

Thinking of you all,
Eva and Rodney <kwfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Wednesday, November 21, 2007 6:02 AM CST

Hi Renee,

I just read your journal. Would it be helpful for parents like us and Rivards to get together and cry out to God? Not just for the healing of our children but for our sanity sake? We are facing some new challenges with Beth. There has to be a way around the dread and cold fear. AFTER ALL, WE BELIEVE IN GOD! Perhaps we could fight the anger and anxiety together? I don't know. Vicki and I are just sick of the worry--especially when we don't think we have to go there.

Wes & Vicki Fleming
Wes & Vicki Fleming <flemingfarm@juno.com>
Manlius, NY USA - Tuesday, November 20, 2007 5:34 PM CST

Not long to go! Are you getting excited? We are!

Love Everyone at Post Pals

viks <viks@postpals.co.uk>
- Tuesday, November 20, 2007 1:22 PM CST

God bless you all this Thanksgiving!
Terri Servello www.caringbridge.org/ny/tony <Tian@twcny.rr.com>
- Tuesday, November 20, 2007 6:58 AM CST

Hi Renee! I can't believe all that you had going on with Joshua and you still made it to playgroup on Friday. You are amazing! Your strengths and struggles as a mom are simply awe-inspiring. Thank you for having the courage to share them with all of us. Great to see you in church today!
Elizabeth
- Sunday, November 18, 2007 10:00 PM CST

Renee - I heard your heart breaking as you struggle with the latest events. It is so hard to balance that line between allowing our children to be normal and how to keep them safe. You have made the right choice and somehow Joshua will get through this - kids deal so much better than us moms. Keeping him safe is the most important thing. Sending you a hug ((())) to get you through!

Angie, Chris, Owen, Tyler, and Jake Wawrzaszek (www.caringbridge.org/wa/owen) <awawrzaszek@hughes.net>
auburn, ny usa - Saturday, November 17, 2007 6:51 AM CST

Renee,
I've been out of the loop for a few weeks and finally had an opportunity to check in. I'm sorry to hear all that has been going on, esp with Josh...
Big hugs to you...Natalie had all the right words....Josh is so resilient...He will get thru this...
hugs and prayers
Heather, mom to Brianna, www.caringbridge.com/ny/mylittlesunshine, daughter to Pete www.caringbridge.org/visit/petek
Syracuse, NY USA - Friday, November 16, 2007 10:15 PM CST

Renee - I'm glad that you were able to blow off some steam on your latest journal. You are such a strong person and great role model for everyone, yet you are only human. It breaks my heart to know how other people are feeling when they go through something like this, as I am going through something similiar. I hate these feelings and wouldn't wish them on my worst enemy. As our kids have to go through so much, we are also going through it even more with the guilt and empathy for them. None of it makes sense right now, I wish I had answers to why our sweet children can't have it any easier. I know Josh has had so many obstacles to deal with, that many of your dreams for him have been shut down. I think that some part of us - no matter how small - will always grieve over the loss of these dreams. I am praying very hard for you tonight that God will lead you in the perfect path towards figuring out your latest dilema. No matter the decision, it will be the right one. I am thinking that even if he did have to wear the helmet, it would probably be harder on you than Josh, that he would perservere no matter the circumstance. With your precious love and parenting - nothing can't be handeled. Thanks for being there.... Love, Natalie
Natalie Rivard <nrivard@twcny.rr.com>
- Thursday, November 15, 2007 7:19 PM CST

Renee and Family,
I found your site through some family friends (the Sleeth Family) and have been following for sometime. You both are amazing parents. When I found your sight I was surpised to see that I already "knew" your family. We are also a Longbranch Family and I have seen your family at many school functions. Our youngest child will be finishing at LBE this year. Your lasted journal entry broke my heart. I hope only the best for all of your children and I know that Josh will be amazing at handling this lastest challange. I understand how your heart breaks everytime a new challenge is given to Josh. My daughter started to lose her eyesight 3 years ago and is legally blind...everyday I wish I could "fix" things for her. I to remember how things used to be...the old Emilee. Not that she has changed much but we are still getting used to the new "normal". You inspire me. Thank you for sharing your amazing children with everyone.
Kelly Patchett <kellypatchett@verizon.net>
Liverpool, NY USA - Thursday, November 15, 2007 11:13 AM CST

Hi everyone,
I was in shock as I read your introduction. What a wonderful, brave family you have. I am a member of the heart transplant list serve and I saw one of your emails and saw a link to a caringbridge site and decided to check it out. I didn't realize you had so many children. The pictures are adorable, thank you for sharing them. My son's name is Riley and he just turned three, he had a heart transplant when he was 18 months old due to Restrictive Cardiomyopathy. He is the love, light, and joy of our lives. We are so thankful to have him. I wish you the best with you and your family.
Brandi Speck <brandi.speck@gmail.com>
Lexington, KY United States - Tuesday, November 6, 2007 4:41 PM CST

I am SO glad that Cody got that dreaded test done and that your ultimate fears are relieved...I feel so much better, I can imagine how you must feel too. Crazy steroid boy is really keeping you on your toes, why does he have to display those symptoms and make you so worried (and me)!!! Well, I'm sure you can put up with screaming Cody for a while, comforted in knowing his CT scan was clear. Hope to see you soon - Love, Natalie
Natalie Rivard <nrivard@twcny.rr.com>
- Sunday, November 4, 2007 5:30 PM CST

I hope your children are all feeling better and on the mend! It was nice seeing you and getting out!! I hope you had a nice weekend~
Judy
Judy Walsh <walshmws95@aol.com>
- Sunday, November 4, 2007 1:27 PM CST

love and hugs,
Eva and Rodney <kwfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Wednesday, October 31, 2007 6:04 AM CDT

Sending up prayers that today's appointment went well for Cody and you guys are enjoying your evening (wow! Only 2 kids). I can't believe you even have time to make costumes.

holly
www.caringbridge.org/mi/mayam
Holmen, WI - Thursday, October 25, 2007 11:11 PM CDT

Wishing your family a real fun and happy halloween!
Kathy H.
T.O., CA - Wednesday, October 24, 2007 11:35 PM CDT

I am sending you lots of prayers that everything is fine with Cody - these kids are going to send us into an early grave! I hope that you got some good answers at the pediatrician and there is a simple, non-cancerous reason behind the eye pain. Happy to hear about the Risperdol working so well, I know it is so nice to see such positive changes and realizing the potentials our children do have with the right treatments. I hope to see you soon and I'll be looking for your next update. Love, Natalie
Natalie Rivard <nrivard@twcny.rr.com>
- Wednesday, October 24, 2007 8:27 AM CDT

Hi Renee, we met at the summer cancer bash at the Grosso's. I am not sure if I met all your children the ones I did were awesome! You have an inspirational family and I complain that I have one child in remission from cancer! I think you may have met my son,Tony that day. Take care and God Bless.
Terri Servello www.caringbridge.org/ny/tony <Tian@twcny.rr.com>
- Saturday, October 20, 2007 8:07 PM CDT

So glad you guys are having a better week. Praying Cody's eye turns out to be nothing more than a scratch. Enjoy those pumpkin farms!

holly
www.caringbridge.org/mi/mayam
Holmen, WI - Thursday, October 18, 2007 10:49 PM CDT

Sending you guys lots of hugs!!!! Hope you get some answers (w/ easy solutions) today at the docs. And YAY for the van being fixed! Happy pumpkin hunting.
hugs,
Heather and Brianna, dx ALL in remission, www.caringbridge.com/ny/mylittlesunshine, daughter to Pete, dx CLL. SCT 8/3/06 www.caringbridge.org/visit/petek
Syracuse, ny USA - Thursday, October 18, 2007 9:30 AM CDT

I hope all the sick bugs are gone and you are all feeling better. How miserable that had to have been! I do not envy you at all. Having one puker around is enough for me! It never ceases to amaze me how calm you stay in the midst of everything. Hope you all had a nice relaxing HEALTHY weekend!

Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Sunday, October 14, 2007 10:44 PM CDT

Hi Renee - writing to you in hopes the bugs are out of your home, it is only nice sometimes that everyone shares. I wanted to let you know that we LOVED Rochester and I got a lot of great information, especially from the neurologist. She suspects that the episodes are a form of a migraine...check my site to see the details - but I am so happy to finally get some answers that make sense and that treatments are hopeful. Thanks for giving me the encouragement to pursue my options in Rochester, as we know that Syracuse is really limited with specialized docs with brain tumors. I love that you are such a good advocate for your kids, knowing that you really do know best for them and not stopping when you hit a dead end. You are a great role model for me and I want to say "thanks" for being there - God Bless...Love, Natalie
Natalie Rivard <nrivard@twcny.rr.com>
- Saturday, October 13, 2007 7:36 PM CDT

Hi Renee. You sight is amazing. This is the first one I have looked at. You're right, I might need help. LOL. I will keep you posted. Keep smiling. Your children are beautiful and handsome.
Stacy L. Martin <slmartin@twcny.rr.com>
Liverpool, NY USA - Friday, October 12, 2007 10:09 AM CDT

Hi Renee & your whole family! It is Angie (from Mom's night out). I scanned the guestbook entries on Alexia's sight thinking maybe you had signed... so now I can add you to my morning caringbridge checkup! Course I could have asked for your sight.... I have Bella's, Andrews, and yours I will need to get everyone elses. I had alot of fun and laughs at the dinner and am looking forward to many more Mom's nights out!

Angie, Chris, Owen, Tyler, and Jake Wawrzaszek (www.caringbridge.org/wa/owen) <awawrzaszek@hughes.net>
auburn, NY usa - Thursday, October 11, 2007 5:31 AM CDT

Hi Renee & Family

I was just thinking of you wondering how you all were doing. I am so sorry that everyone seems to have the flu bug! I guess the only good thing about it is...that they all have/had it at the same time but on the other hand it's very hard on you. I bet you feel like that smell is just following you every where! lol I hope & pray that everyone gets over it soon. Glad every thing went well with the infusion and accessing the port. I don't know if he was in pain when they removed the tape but..there is a trick and it works great...BABYOIL! So much easier than those little orange smelling wipes. Love your new pictures.
Hugs,
Kim & Scotty MPS II

<cottons@earthlink.net>
Modesto, CA - Thursday, October 11, 2007 4:10 AM CDT

Stopping in to say hello and hoping hard, that everyone is starting to feel better!

Love and hugs,
Eva and Rodne <kwfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Wednesday, October 10, 2007 11:03 PM CDT

Feel better Curkendales!
hugs,
Heather and Brianna, dx ALL in remission, www.caringbridge.com/ny/mylittlesunshine, daughter to Pete, dx CLL. SCT 8/3/06 www.caringbridge.org/visit/petek
Syracuse, ny USA - Tuesday, October 9, 2007 5:41 PM CDT

Always happy to come here and read the excitement that is your family :)

Really though, glad to hear things are going relatively well and the kids are staying busy. Hope you are getting some rest in the midst of it all!

holly
www.caringbridge.org/mi/mayam
Holmen, WI - Saturday, October 6, 2007 11:06 PM CDT

Renee- whenever I think I have my plate as full as it can get and I have had about all I can take, I read your journals and you give me a better sense of things. I admire all you do and blessings to your family. I wish that I was independently wealthy, or had a big inheritance, or something - because the first thing I would do is buy you a reliable, BIG, vehicle...I'll pray that God will find a way - Love, Natalie
Natalie <nrivard@twcny.rr.com>
- Sunday, September 30, 2007 9:42 AM CDT

Hi Renee,

I just left you a note on the PBT list. Thanks so much for writing. I'll pass your website on to the little boy Caleb who has the same dx as your son.

I know this was a God thing!

Blessing to you and your beautiful family!

Susan
Jordan <Susan2956@yahoo.com>
Baton Rouge, LA - Tuesday, September 25, 2007 11:08 PM CDT

Happy Birthday Josh!!!

Renee, hope to see you at mom's night :-D

hugs,
Heather and Brianna dx ALL , www.caringbridge.com/ny/mylittlesunshine, daughter to Pete, dx CLL. SCT 8/3/06 www.caringbridge.org/visit/petek
Syracuse, NY USA - Sunday, September 23, 2007 11:50 AM CDT

Wow! What a story you have to tell! Your children are so brave and beautiful. I have a little girl named Raina who has intractable seizures and I came accross you on the epilepsytalk site. May God bless you all!
Andrea <violastrings@yahoo.com>
Sparta, nj usa - Friday, September 21, 2007 11:18 AM CDT

Hi Renee, Wow! What a "BEAUTIFUL" family! Sounds like you are very busy and I know all about that having had five of my own. Wouldn't trade those busy days for anything! Happy Birthday to those September kids. Hope your weekend is great. Hugs from Ohio, Barb (Mom to Heidi)
Barb <babogner@earthlink.net>
Mansfield, OHIO USA - Saturday, September 15, 2007 8:56 AM CDT

Hope the appointment's went well and you maintained your sanity, LOL. Glad to hear school is going well this year and pray it continues to do so.

holly

www.caringbridge.org/mi/mayam
Holmen, WI - Thursday, September 13, 2007 10:29 PM CDT

Hi Renee - I'm glad that things are going well for you (minus the transportation). I now know what you mean when you will have some time when the kids are in school... it is nice not to be a constant entertainer. I'm sure you are thrilled at the neurology dismissal for Cody - yeah! Hope to see and talk to you soon - Love, Natalie
natalie rivard <nrivard@twcny.rr.com>
- Wednesday, September 12, 2007 8:42 PM CDT

Your family is an inspiration to me. Wow what you have gone through and with such grace. Thank you for your wonderful advice on the PEDPID page. I will definatly keep ya'll in my prayers. Laura
www.caringbridge.org/visit/alexsmith
Laura Smith <Iamlaurasmith@hotmail.com>
Montgomery, Al 36109 - Tuesday, September 11, 2007 11:31 AM CDT

Sorry I missed you on Thursday.. Hope you all had fun.. It's great to read about your kids.. I met you at the Grosso's and they were all so kind and generous.
Terri Servello www.caringbridge.org/ny/tony <tian@twcny.rr.com>
- Monday, September 10, 2007 8:16 PM CDT

Hi Renee

Wow what a story...what a family! You're children are so

prescious and you are such an awesome mommy. I got

exhausted just reading your journal...I don't know where

you get your energy. I hope you've seen the last of a BK

parking lot for a while. lol

Have a great weekend.
Hugs,
Kim & Scotty MPS II

<cottons@earthlink.net>
Modesto, CA - Friday, August 31, 2007 11:50 PM CDT

Hi Renee,

Thank you so much for signing our guestbook and the emails. Usually by the time I read them it is late and I am too tired to even respond LOL. I would love any info that might help, I am just so tired of having to fight for everything. HUGS!

PRAYER BEARS WEBSITE

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, August 30, 2007 6:52 PM CDT

I haven't been to your website before, but found it on share the love. My daughter Zoey had an ependymoma. She is now 4 years cancer free. Just thought I would let you and your family know we will be praying for you here in Tennessee.
Zoey's Mom <gilliamfam3@yahoo.com>
Limestone, TN USA - Friday, August 24, 2007 8:22 PM CDT

I love the update's, the pictures, and rest assured will always read them start to finish for it makes my life feel sane, LOL. Plus...when I grow up I want to be like you! I can't wait until it's my turn to wait for my next adoption although everytime I mention it I get looks of insanity from those around me. I hope you found a way to get Nettie to camp. Wish I could have been close enough to take her. We have to cram Maya's chair into the van, but then it is just her and I. Can't imagine having the troops to take places.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Wednesday, August 22, 2007 8:46 PM CDT

Hi guys - I'm glad to be able to read someone else's short novels for a change...ha, ha. You make my head go round and round with all you have to do - my 2 kids are enough for me at this point. I'm afraid if I had any more, I may forget to pick them up, or bring them somewhere, or whatever. I can only imagine how you must be able to balance so many things... I hope to meet up with you tomorrow. Take care and God Bless - Love, Natalie
natalie rivard <nrivard@twcny.rr.com>
- Wednesday, August 22, 2007 5:28 PM CDT

HAPPY BIRTHDAY LA LA......YOU ARE GETTING TO BE SUCH A big girl. 5 years old already. WE LOVE YOU. HAVE A WONDERFUL DAY WE WILL SEE YOU ON SAT. FOR YOUR PARTY.
AUNT BRENDA, UNCLE LARRY
KALI, SAMMIE AND COURTNEY
BRENDA MUNGER <LAWRENCEMUNGER@YAHOO.COM>
LIVERPOOL, NY USA - Tuesday, August 7, 2007 12:36 AM CDT

Thank you so much for the message you left on my daughterâ€™s CaringBridge web site about how we bereaved parents still have value. Although (like I have felt) we sometimes feel like we are not useful or welcome because we are a sad reminder that, yes, children do die.

Your perspective is helping me in my search to find another one, a better one. I NEVER thought of myself as an inspiration to anyone.

I think what you are doing on this Caringbridge is fantastic. God Bless you.
Mommy Suzanne
http://www.caringbridge.org/va/abbyallies/

Just dropping in to say "HI"
Celeste, Kaylee and Philip <kayleephiljr@aol.com>
Scott, AR USA - Friday, July 20, 2007 7:53 PM CDT

Followed a link to your website from caringbridge, and I had to tell you what a beautiful family you have.
Thank you for sharing your story. It is because of your strength and love, I feel like I could go on.
Fondly,
Donna Kay
www.caringbridge.org/visit/tylerlangan
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA USA - Friday, July 20, 2007 3:20 PM CDT

Hey Renee, Missa gets 23 every week!! I bet you could do it sub-Q. There has got to be a way... All else is well here... I heard the kids headed to camp together and I am sure they are having a BALST!!! Zach and Tori loved alumni "week". Missa headed off with a LIST of pranks to pull this week (hehe). Hope to see you guys again soon!!!
PS does Trevon have an extra pair of shorts Zach is missing one (but came home with counselors clothes!!
Denise Roberts (mom to Missa, Zach and Tori) www.caringbridge.org/ny/missaroberts <dndtwins1@verizon.net>
Bridgeport, NY USA - Wednesday, July 18, 2007 7:54 AM CDT

Dear Renee,
Thank you so much for your kind words and prayers. Life can sometimes be so complicated especially for children who are unique in their own way, its heartwarming to know that others understand what I am feeling. You have a beautiful family. Again thank you.

*HUGS*
www2.caringbridge.org/canada/crystal_lee
Cheryl <cheryl_rondeau@hotmail.com>
Winnipeg , MB Canada - Wednesday, July 18, 2007 0:00 AM CDT

I followed a link to read about Joshua and was blown away while reading about your beautiful family. What an awesome family, each of you are truly blessed to have each other.

God Bless!
Eddie <bluesuede@webtv.net>
Hernando, MS - Friday, July 6, 2007 5:00 PM CDT

Celeste, Kaylee and Philip <kayleephiljr@aol.com>
Scott, AR USA - Saturday, June 30, 2007 8:15 PM CDT

nice website!! My 8 yr old daughter also has Ivemark Syndrome. She is homeschooled.We live on a farm/ranch and she enjoys it.
vikki Gavin <hamr4ir@hotmail.com>
fouke, ar USA - Friday, June 29, 2007 10:58 AM CDT

Celeste, Kaylee and Philip <kayleephiljr@aol.com>
Scott, AR USA - Sunday, June 17, 2007 10:48 AM CDT

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, June 17, 2007 3:12 AM CDT

feel better Cody!!!

Which week is Josh going to CGD? Brianna is going the last week of july/first week aug...
hugs,
Heather and Brianna, dx ALL in remission, www.caringbridge.com/ny/mylittlesunshine, daughter to Pete, dx CLL. SCT 8/3/06 www.caringbridge.org/visit/petek
syracuse, ny USA - Friday, June 8, 2007 6:13 PM CDT

I found your site through another Caring Bridge site. I just wanted to let you know that you are strong and loving people. I only read part of the story. My daughter to had a brain tumor and the age of 6 months when we found it. Her site is www.caringbridge.org/visit/karliespurlin. We have doctored in Duluth, MN and in Rochester, MN we go back down on the 19th of this month for another MRI. You are in my thoughts
Theresa Spurlin <tlsgrs15@msn.com>
Eveleth, mn USA - Thursday, June 7, 2007 2:03 PM CDT

Hello,
I found your site from a link on another Caring Bridge guestboook. Your family amazes me as does your strength. I pray that God continues to bless you all.

Olivia May
Tuscaloosa, AL USA - Thursday, June 7, 2007 9:43 AM CDT

CaringBridge test
CaringBridge
- Tuesday, June 5, 2007 3:00 PM CDT

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