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to MJ's Update Web Page. It has been provided to keep people updated about MJ and her travels and health. MJ has Spinal Muscular Atrophy, Type 1. To learn more about SMA please visit SMA Support
If you want to support fundraising for SMA, please visit Marshall's Miles , Payton's Pals, FightSMA, SMA Foundation , Miracle for Madison and Friends , SMA Support, or Connecticut Chapter of FSMA !! Thanks!
MJ also received a beautiful cross stitched quilt from Cole's quilts ! If you know how to cross stitch or know someone who does, and have time, please volunteer to do a quilt square for one or more of the kids!
Want to view more pictures of MJ??
Visit MJ's Picture Page
MJ's other webpages are
MJ's page at Our-SMA-Angels
Check it out!
MJ has started her own organization. It is for children who have been diagnosed with SMA. Please visit B4SMA or the B4SMA Journal if you wish to know more about the organization! Thank you!
Check out MJ's friends page to visit MJ's friends!
Please check out Our-SMA-Angels to see more MJ's friends with SMA!
My Wish
Rascal Flatts
I hope that days come easy and moments pass slow,
And each road leads you where you want to go,
And if you're faced with a choice, and you have to choose,
I hope you choose the one that means the most to you.
And if one door opens to another door closed,
I hope you keep on walkin' till you find the window,
If it's cold outside, show the world the warmth of your smile,
More than anything, more than anything,
My wish, for you, is that this life becomes all that you want it,
To your dreams stay big, and your worries stay small,
You never need to carry more than you can hold,
And while you're out there getting where you're getting to,
I hope you know somebody loves you, and wants the same things too,
Yeah, this, is my wish.
I hope you never look back, but ya never forget,
All the ones who love you, in the place you left,
I hope you always forgive, and you never regret,
And you help somebody every chance you get,
Oh, you find God's grace, in every mistake,
And you always give more than you take.
Oh More than anything, Yeah, and more than anything,
My wish, for you, is that this life becomes all that you want it,
To your dreams stay big, and your worries stay small,
You never need to carry more than you can hold,
And while you're out there getting where you're getting to,
I hope you know somebody loves you, and wants the same things too,
Yeah, this, is my wish.
I dedicate the following song to Emma Clare, Forever 3 years old! Love you!
If Heaven
By: Andy Griggs
If heaven was an hour, it would be twilight
When the fireflies start dancin on the lawn
And suppers on the stove and mammas laughin
And everybody’s workin day is done
If heaven was a town it would be my town
Oh…on a summer day in 1985
And everything I wanted is out there waiting
And everyone I loved is still alive
Chorus:
Don’t cry a tear for me now baby
There comes a time we all must say goodbye
And if that’s what heavens made of
You know I, I ain’t afraid to die
If heaven was a pie it would be cherry
So, Cool and sweet and heavy on the tongue
And just one bite would satisfy your hunger
And there’d always be enough for everyone
If heaven was a train it sure would be a fast one
that could take this weary traveler round the bend
if heaven was a tear it'd be my last one
And you’d be in my arms again
Chorus:
Don’t cry a tear for me now baby
There comes a time we must all say goodbye
And if that’s what heavens made of
You know I, I ain’t afraid to die
Yea, if that’s what heavens made of
You know I, I ain’t afraid to die…
give MJ more *HUGS*
Get hugs of your own
The first song playing goes with the current update.
Each week, I will dedicate the song to someone or something,
This week it is dedicated to living life to the fullest
Don't Forget to
 
Journal
Tuesday, July 1, 2008 6:38 PM CDT Hi Everyone
I wasn’t planning on updating so soon but I couldn’t resist after the day I had. Let’s back up though…yesterday I had my appointment with the pulmonologist that Jeff, director of Disability Services, recommended. He, Dr. Goyal, is a great addition to my medical team. He didn’t question any of medications, equipment, or settings. I am really looking forward to working with him on perfecting my health…well as “perfect” as things can get. LOL
I’m up to my eyeballs in reading but I don’t mind if it means I’ll be done with psychology in 3 weeks and 3 days. I got my first exam back in Abnormal Psychology, I got an A! Woohoo! I got my first exam assigned in Forensic Psychology, it’s due Monday. Needless to say, I’m less than thrilled with the topics we can choose from but oh well. I also have another Abnormal Psychology test on Monday. Guess I won’t be partying much this weekend. L
Now for today’s excitement! I had lunch with my friend Angle. Angie is also a Rehabilitation Services major and currently working on her practicum. She invited me to come see what she was working on with my other friend, Sara. So I said that I would come after another meeting. Anyway, I got to see Sara using Brainfingers. Brainfingers is a mouse that is controlled with facial tension, eye movement, and brain waves. J, who is helping Angie with her practicum, offered to let me try it. Wow!!! What an experience! I thought that it would require a great deal of muscle tension for me to activate, boy was I wrong. The slightest twitch of my eyes or a muscle (I’m not up to the brain wave control, yet) and I was shooting around the computer screen. Brenda took a couple videos of me “playing” with Brainfingers, check it out if you are interested. http://www.onetruemedia.com/shared?p=6478c079b53871da9521a7&skin_id=1603&pid=624&utm_source=otm&utm_medium=text_url
It’s currently very expensive ($2,250) but they are working on a new, more sensitive, version that is supposed to cheaper. I’m hoping to get the opportunity to play with it more. It is definitely a great device for anyone with limited mobility.
That is all for now!
MJ
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