Journal History

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Friday, November 30, 2007 6:23 PM CST

We are currently on a family vacation (weekend) in Mass. It is lovely here... All is decorated for Christmas!!! We can not wait!!! We are having fun in the pool,HOT TUB, movie theater and game room!!! Hope everyone is doing well.
Friends, Denise
PS Thanks Mom (for the time)

Thursday, November 1, 2007 6:21 AM CDT

Hey there I know I have not updated in a while. Wanted you all to know there are a few new photos.
We are keeping very busy as it has been a GREAT fall. Nice warm temps and wonderful weather.
Missa now plays the violin and Zach plays the dbl. bass (yup its bigger then he is)! They are both doing great in school. They are in several clubs and are busy most weeks.
Well need to run and get the kids off to school and me ready for the day.
Friends, Denise

Wednesday, July 18, 2007 7:54 AM CDT

Well we have been so busy I have not even had a chance to write...
Zach is busy with Cooking camp,soccer camp, and Camp good days!! He has hardly stopped!! I am not sure how he will take it when there is less for him to do!

Missa is away now at camp. She was excited to learn that she would be headed to Watkins Glen race way again this year!! They spoiled the kids last year. She will be home Friday and heads to horse camp Monday with a new friend(the week after is cooking for her).

Tori is staying busy too with friends to spend the night with and finishing math! Her new books are here for next year and she is excited about them!! Should be a VERY easy year for her.

Darren and I are busy (running kids to camp and back). We had a fishing derby here last weekend for the men (and families at church). It was great. The only ones that caught fish were the kids!! Jake (nephew) caught an 18" small mouth!!! You go boy!!!! I am excited to say we will be vacationing not once but TWICE this summer!!! Once to see my dads family and once to see moms side (a wedding).

All for now... Friends, Denise

Tuesday, June 26, 2007 3:26 PM CDT

Wow summer is HERE (HEAT and all)!!

We have started with soccer camp (to learn the basics). Missa and Zach wanted to get their bearing before soccer in the fall.

We spend as much time outisde (when the temp is not unbearable) and in the kiddie pool! Even the kids I sit for jump in and everyone plays nice!

Tori and Zach are headed to camp next week!! They are very excited... Can not wait to hear all the camp stories when they get back. Tori has her Jr year's books and is excited to look into colleges (take the PSAT next year too).

Missa is doing very well (has a check up tomorrow). She si doing great on her meds and is excited to head to camp in 2 weeks.

Need to run and get the kids some food before soccer.
Love and Friendship, Denise

Saturday, June 2, 2007 7:51 PM CDT

What can I say June 2nd is one of the best days of my life!!!
Zach and Missa turned 9 today and oh what a day it was!!

Love and Friendship, Denise

Friday, May 25, 2007 6:14 AM CDT

Hello there!!! How are things with you all??? Things are busy here!!

First off I had a wonderful Mothers day. I spent it with my mom and my mother in law. We had a wonderful dinner that Darren cooked for us. Darren had my wedding band (it had broken) fixed for me and bought me a Star gazer lily which is still opening! Darrens mom left for Japan just days after so we can not wait to see all the pictures!

Missa and Zach are enjoying the LAST month of school!!! So much stuff to get done before the end of 3rd grade. They have also recently joined a book club! So they (along with myshelf) are reading a Nancy Drew book which we will decuss on June 26th. They are also VERY excited to be almost (June 2nd) nine years old!!

Tori to is beating the books to finish before the end of June (she ahs till the end of Oct.). She only has 2 subjects left and her writting peices. She did take a break last week to get ready for PROM!! My baby at a prom WOW! Her friend asked her to go and as it turned out her best friend also went! So I drove them all. What a time they had... I will post photos ASAP.

I am still working from home and getting ready to lose out scouts for the year. I truley had a great bunch of girls this year and we are excited about moving on together (to JR scouts).

Darren is working so very hard. They have been asked (or shall I say told) to work Saturdays thru the end of June (at least). He is so busy he even is putting in 10 hour days Mon.- Fri. He has tried to fish in between lawn mower reapirs!! Fishing seems good this year.

Well all for now need to motivate the kids!!!

Love & Friendship, Denise

Monday, May 7, 2007 7:44 AM CDT

Hello again... So whats up here... Missa is doing well. I think we need to up her meds just a little bit. So we had some blood work last week to see hows its working for her. She also appeared to have a touch of food posioning last night!!! Oh she was not well. Even BEGGING to go to the hospital. It all passed in about 2 hours but YUCK! I talked with the school nurse and MANY people at school ate "tuna" dishes and are now sick.... HMMMMM.

Zach is enjoying spring with all he has in him.. I mean the boy is like a mud pie when he finally comes in!!! Nothing a little soap and water can not take care of I guess. I am just a "clean" kind of girl myself (guess he must have gotten some extra daddy genes).

Tori continues to prepare for prom. It would appear I will drive the kids (Tori/date & Maranda/date) to the prom in my stretch mini van (not easy to stretch that puppy hehe).

Darren can not wait for the lake to drop just a little bit more so he can get the dock in (and fish). They (neighbors) are catching fish from the shore line. Maybe a good year for fishing!!

I am back on the treadmill!! OK so this is what I know... After a VERY painful nerve block!! I can walk on the treadmill so when I am unable to walk on treadmill its time for another block!! It does feel good to be back on track again. I did 3/4 of a mile this morning! I am still working (have 4 kids I watch). They have all had rough time with the "bugs" going around but I think everyone is back on track! Just in time for a beutiful weeks weather!!!

Well have a wonderful day!! Enjoy the sun. I need to grade papers for Tori!

Love & friendship, Denise

Thursday, April 19, 2007 1:41 PM CDT

Its been a while I know... Lets see what have we done.

Missa was able to see my girl friend (under going breast cancaer treaments) at our Easter service. I do not think they wanted to let go iof one another.

Missa was able to deliver all her goodies (and 100 chicken nuggets and fries) to her old floor at the hospital. She was thirlled with the 9 BAGS!! The kids were so grateful for the chicken nuggets also!! What a day.

Zach and Missa did join drama again and we had a wonderful time at their play a few weeks ago now.

Darren is BUSY with work!! He can not wait to get out and get some fishing in!!!

I am busy with work and a "bad" leg (seems I BLOW a vein). How do I do this stuff.

Tori is busy with school (doing GREAT). Lots of extras in there too.

Well need to run... Will write again soon.
Denise

Friday, January 5, 2007 3:42 PM CST

UPDATE 1-12-07 Missa in Florida on her all expense paid trip (camp good days). She did call last night and seems to be having a BLAST!!! Zach is doing SOOO well (he has not complained once). He is excited about daddy Zach time tonight (as I am going camping eith my scouts). Tori is getting excited about coming home (as we are excoted to see her). Zach said we will have a celabration when she gets here (and we will).
PLEASE remember my friend (and Miss's) Beth in pray as she as chemo again.
Love, Denise


It is so hard for me to believe we are now in 2007!!! Seems just yesterday I was in high school (but its been 19 years). Oh well!

All is well here!!! We had a wonderful Christmas and hope you all did too. We have been missing Tori but she will be back in just 9 days now. Missa how ever leaves for her trip to Disney (and other parks) next Thursday!!! I know she will have a WONDERFUL time! We have a meeting tomorrow at the camp office and we will get to see all our friends. Then we will head to Strong museum with our friends. The kids love that place it has sooo much to do.

We enjoyed another day of bowling with Brian (Missa's favorite nurse). He had another fav. nurse meet us. What a surprise!!! We had a BLAST (as always).


We have lots to pray for... Missa is still talking with my girl friend Beth, my other girlfriends dad just had open heart surgery, and there is an unspoken reguest also!! Please pray for all our firends with us!!

Well need to run for now!! We love you all and wish each of you a blessed New Year.

LOve and friendship, Denise

Sunday, December 17, 2006 4:52 AM CST

So much going on around here. I am sure you all are very busy too. Thanks for stopping by.

Missa is so excited as this week Camp Good Days called and asked us if she could go with them to Disney World. Yeah just her!! NOT mom or dad... She will have 17 other kids with her and MANY adults!!! SHE IS THRILLED!!!! She leaves Jan. 11th and returns the 16th.

Tori is excited (and a little scared) to take her first trip out to her dads alone!! She is old enough and wants to be there for the first "family Christmas" with the boy her dad and step mom have been working so hard to adopt. She will return the Sunday Missa is away. Looks like I will spend LOTS of time at the airport that week but I get to go NO WHERE!!! HEHE

Zach was sick this week. BAD ear infection. Our nurse practitioner said she was sure he was not hearing anything in that ear (the canal and all were shut off). So he is on medicine and doing MUCH better.

Well I need to finish cooking (dinner with friends today). Not to metion I want a shower before church. Today is the Christmas program with the kids!!

We love you all, Denise and family
MERRY CHRISTMAS!!!

Friday, December 1, 2006 3:11 PM CST

Thanks to Brian for checking on us and leaving a message!! We love all of you on 7-H!

Missa is doing wonderful. I had a parent teacher meeting and we are all on the same page! She continues to enjoy school, scouts and Irsih dance. She is VERY excited about Christmas this year.

Zach well he is also doing well. He did end up with a stomach bug a few weeks ago and sometimes he still gets a little "off" but is doing much better. He to enjoys school and Irish dance. He has LOVED the mild end to November we have had.

Tori is doing AMAZING in "school". We still home school and her and I seem closer then ever. She is doing so well she never stops surprising me with her knowledge.

Darren and I are doing well. He had some time off last week and enjoyed it VERY much. Saw some wild life but all are still alive (NO DEER). We are looking into going to see Adam and Stacy in Febuary!! We are all very excited about that!

Well need to run!! Thanks for stopping!

Friends, Denise

Monday, November 6, 2006 8:11 AM CST

So much going on around here lately....

Missa's med is going so well. There have been NO problems since we started. She takes it like a champ!!! The "bumps" go away with in 24 hours. WOW hard to beleive that 5 years ago tommorow we started this "new life". We will be 5 years since Dx on Wednesday. So much has changed and so many new friends have been made. Thank you all for your continued support. We will spend this Wed. with friends and family at church. What a blessing they have been!
Missa had her first drama club play this passed Thursday. Grandma was glad to see it before she left on her trip.]

Zach was also in the play (he was a pirate AND a hot dog). He did great! He is enjoying Irish dance this year with Missa. I can not wait till that show! He is busy with school and loves to play with TJ (the little boy I watch). They get along very well.

Tori is doing WONDERFUL in "school". Yes I am homeschooling her. I have seem a change in her atitude (for the most part she is still a teen). She does great on test and is able to visit her grandparents during the week (she just takes school with her). So far so good!! Go Tori!

Darren and I are busy also. We are praying that his job will build the building they need so badly (have since he started 13 years ago). At least it is now in the "talking" phase. I stay busy with 3 (sometimes 4) little ones to watch (not counting mine). We all get along and I have found it easy enough to get the 3 youngest (1,2 & 3 years old) to nap at the same time!! No small thing (hehe). Missa and I still do Girls scouts on Thursdays. We are excited about all the new stuff we get to do this year.

Well I should run... Need to play.
Love & friendship, Denise

Wednesday, October 4, 2006 1:47 PM CDT

So how are you?? We are all doing well thanks for checking in with us!

Missa and Zach had drama yesterday and guess what they got their parts. Missa is a black cat (she loves her black outfir so this is PRRRRR fect for her). Zach is a pirate (ok what 8 year old boy does not want to be a pirate)!! So both are happy.

Missa's med went well again last night. I talked with her Dr. and we will meet with her next Tuesday!! JUST a check up to make sure things are good.

Work is good. everyone is adjusting well I think. Monica and I are tired but hey we are the moms so I guess thats to be expected right!

Darren is a tiny bit frustrated with his surgery as he feels the Dr. left a piece in there (yuck)! I told him he should start to "massage" it like thte Dr. said.

Looks like another great weekend to work on the house. We want to get the last side done!

My girlfriend Donna is coming to town for her reunion. So she will stay here. Its been 8 years since we have seen her!

Have a great day!
Denise

Thursday, September 28, 2006 8:40 AM CDT

Hi there!! I know I have not updated for a while.... You see as the children get better I get busier!!!!!!!!!!!

Missa is now on the weekly SubQ (no veins) med. So far so good. She likes it and I love it. No nurse for 4 hours (or more). Not that they were not nice I just want to live our lives! No veins means 1 stick and she is good to go. She loves that part.

Missa and Zach are both enjoying school and have both joined Drama club! They were so happy they got in as only the first 25 kids did! They switch classes this year so alot of the homework is the same (So much easier for me)!

I started a new job (still sitting). I now have 3 more (1 is in Kindergarden). They are friends from church and the best part is the oldest is a BOY (for Zach)!We just started this week and we seem to all get along GREAT!

Darren had surgery (on his lip). He had a "bump" just under the lip and the plastic surgern says he thinks it was "scar tissue". From a cut Darren had like a year ago and the cells went inside and regenerated (yuck). So its out now and Darren continues to heal nicely.

Tori is still very involved with church and all kinds of stuff. She is waiting for her school books but has started working on the first of 5 book reports. Tori wants you all to know she has a caringbridge site too. The url is www.caringbridge.org/visit/irishpenguin . Pay her a visit some time.

Well need to run! Today is a half day and there is TONS to do beofore I am invaded!!!
Friends, Denise

Tuesday, August 8, 2006 5:47 AM CDT

Missa did wonderful during her check up this passed week (1 week ago today). Even if it was the HOTTEST day of the year! Her onoc. thinks she looks great and said she will see us in a year (yeah). She also sugested a new med. Its just like the one she is on once a month BUT she will get it once a week and ONLY for 1 hour.AND we do not have to get into a vein (a VERY big deal for Missa as her veins tend to roll and blow). There is no drop off in week 3 either! YEAH!!! Her ID Dr. suggested it also so wee will start it in Sept (have to get the insurance people on board). All in all it was a good day. I will let you know how the new drug is working soon (in Sept).
Love and friendship, Denise

Saturday, July 15, 2006 8:30 AM CDT

So Missa had her medecine Thursday and all went well. I will talk to the Dr.'s Aug.1st about staying on it (at least thru flu season).

Missa leaves for camp Monday and she can not wait. This will be her first year at over night camp. She will come home Friday afternoon!!

Mommy,Zach and Tori will have lots to do... I am sure we will miss Missa all week. Who will clean with me??

Well need to run, Denise

Tuesday, July 4, 2006 2:06 PM CDT

So much going on. Darren and I spent yesterday scraping and power washing the house. We are getting it ready to paint. We were soooo dirty when we were done!!!

We went to the movies today with Mady (Missa's friend in the pics). On Tuesday and Wednesday they have some (old one) they replay for FREE!!! Its fun. Today we saw Veggi Tales.

We plan to BBQ tonight (even if it rains AGAIN). Our friends are coming out. The neighbor have palns for fireworks we shall see.

Well lots to do. Will be back soon.

Happy 4th!!!!, Denise

Tuesday, June 27, 2006 12:50 AM CDT

OK, OK... I am a "bad mommy". I am so sorry I have not updated but please understand its for the good. What I mean is we are so busy that I have not had the time and from where we were 4 years ago that is GOOD!

Thanks those of you that still check on us, we appreciate it! So whats been going on here. Let see... Missa had her all better party. It was HUGE!!!! Over 250 people were there! We had a wonderful time seeing so many we had not seen in a long time! We celebrtared my mother in laws birthday (I will not say which one). We had a lovely day with close friends and family. We surprised her at her own home! Then Missa and Zach turned 8 about 4 parties latter (all for them) I was BEAT! They finished second grade and loved it. Zach even got perfect attendance! He was very proud! All three kids have been helping with the hard task of scraping the house so Darren and I can paint it! I told you we were busy! Zach and Missa are also doing T-ball again. They BOTH can hit like pros this year!

Tori is doing well and is currently with her granparents. She has many adventure this summer (camp, Christ in Youth trip and many odd jobs). We are almost all set for home schooling. She is excited.

Darren and I are both busy with work and the house. Not to mention T-ball and all the other running around we do with the kids.

Missa's next check up is the begin of August. She will see all her. Dr.'s and have an echo (check her heart) & have blood work done. It will be a huge day.
Well I am going to try and up date the photos now. Heres hopping it works.
Friends, Denise

Wednesday, April 5, 2006 7:27 AM CDT

Sorry its been so long since I have updated! All is well here. The kids are looking forward to their break next week! We hope to get up to the horse camp Missa and Zach went to last summer to see their friends (the owners) and the horses!
We have a new addition to the family... I have a new van!! A total answer to so many prayers. My father in law bought a new van and sold us his for a great price. We are hopping to have Darren drive the old one back and forth to work the rest of the year.
I hope to get new pictures up soon. My in-laws computer went down so I have not gotten the chance to update lately (they just got it fixed).
Well thanks for checking in on us we do apppreciate it!
Friends, Denise

Thursday, March 16, 2006 6:36 AM CST

Well today is the BIG day!! Missa has her Irish dance proformance tonight!!! She will be at school ALL day (but she is excited). They will practice and then have a pizza and soda party!! My parents and Darren mom (not sure about Carl) will be there. I am video taping for those who can not attend (Adam& Stacy and Thea) anyone else that wants to can watch it latter too!! We will have dinner here with our parents then head to the school!!!

Can not wait till 9:40 PM tonight GO SU!!!! I can say I was not sure they were going to make it into the NCAA BUT they played SO HARD and deserve to be there!!!! GO G MAC!!!

Talk to you all latter!!!

Friends, Denise
PS anyone that wishes to hear Missa and Zach's school song for G MAC can go to www.9wsyr.com. You can listen to McNamara's band as song by Bridgeport ele. kids!!!

Thursday, March 9, 2006 3:43 PM CST

WELCOME LITTLE ONE:
CONNOR EDWARD JONES
21 3/4" LONG
8LB 13OZ
7:57 am
3/8/06
Lots of red hair!!!
Yes, I did get to see the baby, my sister and Chris (her husband) right after the birth!! I am a proud Nene (what all my neices and nephews call me).

We are glad to share this info with you all. Missa, Zach and Tori are thirlled to have their newest cousin here safe and sound.
Friends, Denise

Thursday, March 2, 2006 8:43 AM CST

We have all been staying busy!!! Missa, Zach and Tori are busy making crafts to sell for make a wish. They have earned a few dollers already!! You have to love these kids, always thinking of others.

Tori is getting ready for so much this weekend! She will have a girlfriend over for the night Friday. Then Saturday I will take both girls to get theeir nails done. Sunday she has a BIG concert (the whole school district). Then Monday day of days my "little" girl will be 14 years old. I can hardly belive it!!!
Happy Birthday Tori!!!!!!!!!!!!!!!

Missa and Zach are still loving school. Zach can not wait till spring so he can head outside more often. We are now 1 foot ABOVE normal for snow fall. I can not believe this after a January with temps. in the 60's!!! Missa to would like to get outside. She got a tropy at school for getting a turkey (3 strikes in a row in bowling). She is so proud of herself. She is also looking forward to her party May 7th. She has signed all her invites and I will be mailing them soon.

Darren's job has decided to build a new building for Syracuse. YES this is the same company that wanted to shut them down last year. Syracuse is a great branch and continues to do well. I guess they are "keepers". Please pray that the land they find will not be to far for Darren to travel.

I remain sick. They have done test and my sinus area is full. My NP thinks it is my allergies since I had to stop my shots (had to call 911 three times due to reactions). We will see what the Dr. (ENT) says when I see him in a few weeks. Till then I have a list of pills that I hope are working.

Well need to shut down so the computer can update itself. Have to let the thing do its job!!!!
Love and Friendship, Denise

Friday, February 10, 2006 8:14 AM CST

Hello again, Hows your day... Busy here. The kids are off to school and Darren and I are both working today but latter we will attend the calling hours for Jack. So sad...

Missa had her check ups. We were able to see so many of our old nurse friends. Some of which we had not seen in YEARS (really). Missa was happy to "reconnect" with them.
Her appointments went well. Her ONOC. Dr. was pleased with her and will see us in 6 months (Missa will have blood work and and Echo then and a sono one month earlier). Her ID Dr. had some suggestions so we will be trying them. I was glad no one mentioned taking her off the drug at this point.

Both Zach and Missa have been VERY spoiled by their "Aunt" (soon enough) Stacy lately (Tori has been too). They came home the other day to find their valentines!! They were so excited they wrote them out ASAP!!! Then yesterday came outfits for Valentines day (yeah they are wearing them today). Missa asked "if I wear this to school now will it be clean by Feb. 14th" I told her "yes" and she was thrilled to put them on and head off to school to show off her new outfit! Thanks Aunt Stacy. Tori has gotten lots of "teen girl" stuff.

Winter made it to central NY this week. I think its my in laws fault (he he). They were headed back and suddenly my 60 degree days are now only getting to a high of 20!!! That's not to mention the fact that they start at 4 degrees!!! Why could they not bring back the HI. sun is beyond me. We are happy they are home and had a great time on their trip. We got to have dinner together and look at my mother in laws scrapbook (yes she has several pages done already). What a beautiful place! They are home for several weeks and then its off to the south to visit Aunt Tobe!! We will have to see what the weather does when they leave!

Well I must go and get some stuff done. We shall talk again soon. Take care.

Friends, Denise

Monday, February 6, 2006 1:35 PM CST

Mr. Jack Lewis (our neighbor) passed away this morning. We are all sad. Please pray for strength for his wife and family.
Thanks, Denise

Monday, January 30, 2006 7:47 AM CST

Good morning. Missa is doing well. She had her IVIG on Friday before we zipped off to girl scout camp. She had a ball at camp. Her favorite thing was making soap.

I continue to feel better each day. Last week was rough. I am thinking I may be able to get back into working out a bit this week. I have lost another 6 pounds!!! I am pleased but do appreciate your prayers that I can continue to do well with my weight loss.

Many of you have gotten prayer request from me lately. I am asking for prayers for my neighbor (cancer and stroke) and one of my girl scouts (lost her mom this weekend). Please pray for these families if you can.

Thanks so much, Denise

Sunday, January 22, 2006 3:30 PM CST

Good afternoon. We are having a "sick" day around here. You all remember I was sick last week (still recovering) well Missa and Daddy seemed to wake yesterday with it! Tori says she is getting stuffy now too! Great only well one is Zach (and we all know how fast he can get sick). We all (Darren the kids and I) walked in the March for life yesterday. It hit me the other day... If they had been able to see Missa's tumor (as she had it in utero) then people would have told us this was an option for us!!! I have always been Pro life... I can not imagine my/our lives without her... Zach without his other half... WOW!!! As we started the walk yesterday it started to POUR!!! I mean harder then it has in some time! I am glad it was not snow (although we would have been a lot less wet with it as snow). My mom met us at the end and gave us a ride back to the van (thanks mom). Please take a minute and think of all those in your life that you love and then think what if they never were???? Sad huh... There are so many other options.. I am not saying if you have had an abortion your bad just that there are so many other ways to "deal with the situation".
I need to run and make dinner for all of us while the kids finish their movie. We have started the plans for our May 7,2006 party and trust me you don't want to miss it!!! Missa wants you ALL there!!
Love, Denise

Thursday, January 19, 2006 2:09 PM CST

OK so two updates this week...

Missa's sono was great. She is clear!!! I knew she was but now I have PROOF!!!

I went to the Dr.'s since I was not feeling good and they said just what I thought an infection in my chest that was headed for Pneumonia (yeah yeah same old thing with me this time of year). On lots of meds for now and I am feeling a bit better! Dinner at church went great last night. My girl friend (who is doing great on her diet said her husband was still talking about it today). I love pizza night!!!! Speaking of diets I am still working hard and have lost a few more pounds!! I was so pleased to see the number on the scale more DOWN the other day!!! Not that its been moving up it just has not been moving at all!

For those of you not on my email list I wanted you to know that Missa was in the Make A Wish calender this year and was just to cute... SO if you would like a copy (they are $5) just let me know!! I will send it to you ASAP!!

Thanks for everything, Denise Roberts

Tuesday, January 17, 2006 7:28 AM CST

Good morning!! COLD here today. Cold is not a word we have had to us much this winter!! It was 61 here on Friday and we did not make it above 12 Sunday (wind chill BELOW 0)!!

Missa has her "last" sono. I put last in quotes as you never know with her history. She was disappointed that she would not get perfect attendance this quarter. She loves school. I did promise her a Purple Hippo (a yummy bakery not far from here) bagel.

Zach enjoyed having yesterday off from school. He played with his cousins and our neighbor. He did have some homework but did a great job. He is learning to color better!!

Tori has mid-terms this week! She spent yesterday studying!! Today starts with her Global mid-term! We wish her our best GO TORI!!!

Darren spent part of his weekend putting together my new closet. We are both excited about having some real hanging space!! I am busy with the kids, Girl Scouts and church. Today I will be shopping for pizza fixings... I will cook to 85-100 people tomorrow night. I like doing it! My kids love it when I cook because they know whats for dinner before other people!
Before I go... Please take note Missa's Cured Party will be May 7, 2006!!!! My mom Bobbi and I will start making the BIG plans this Friday hope you can all make it!
Love and friendship, Denise

Thursday, December 29, 2005 2:33 PM CST

Today was Missa's favorite day of the year.. Bowling with her old nurse (7-H) Brian. She looks forward every year to seeing him and his grandkids. Well this year his grandaughter was not there (Tori was not either). So Zach was in all his glory with Brian's grandson!! The two of them hasd a ball. We could not have had more fun!! Thanks Brian!!

Missa's med went well. She slept alot this time (Benadryl). It did take two sticks to get her IV started. Good till next month!!!

Well need to run have tons to do (like get Darren from work).

Friends, Denise

Tuesday, December 27, 2005 7:10 AM CST

Hello again. I do so hope you had a Blessed Christmas. We did... We shared it with many friends and family. The kids got so many neat things. Zach thinks we need to play with them all (in one day!). I think that's a boy thing.

Zach lost another tooth last night!! He is now missing 3 (all in front). Daddy told him he would not be able to eat any more. Zach told him he would be able to (no worries).

Missa gets her medicine today (in a hour). She is doing well. We hope to bowl with her favorite nurse (Brian) on Thursday. We do this once or twice a year and its always Missa's favorite.

Tori was able to spend some time with her dad and his wifes family. She was excited to see how big the baby had gotten. After their visit she headed to her girlfriends house for a movie night. Darren will pick her up on the way home.

Darren headed back to work (in his new coat Satcy). We had a wonderful weekend. He is the best!! The kids were so upset that he had to leave this morning.

I am doing OK. Have lots to do. I need to start by getting ready for Missa's nurse!! So I must run. Will write again soon.
Friends, Denise

Tuesday, December 20, 2005 1:49 PM CST

Well thought it was time to update you all on what is happening in our house.
Zach is feeling fine (more then I can say for mommy hehe). He is back to being himself. He slept almost all day Saturday and by Sunday you could not tell he was sick.

Missa is doing OK. She got back from a field trip yesterday ate lunch and ended up in the nurses office. Nurse called and I said send her home. She was fine all day so back to school today!! She thinks it was the Mac and Cheese (it tasted funny she said).

Tori is doing well. She is working on a project for Global studies (Social studies for those my age). She loved the snow day last week and I think she is probably hopping for more!

Darren is busy with work and recovering from whatever it is that Zach gave him. He was very sick yesterday at work and thought he would not go in today but he woke up and felt fine so off he went.

AHH me!! Well I am not feeling at all well. I ache every where and I feel like I went 10 round with a wrold class boxer!! I only pray the kids do not feel like this (ever).My mother in law is picking up the rest of our family photos as I was not sure when I would get to it. I am praying to be better by Thursday. My makeover day!!! Well all for now.
Take care and Merry Christmas, Denise

Friday, December 16, 2005 7:50 AM CST

What a week for our family.... Grandma passed away Thursday (below) and Friday (a very bad weather day) my sister totaled her car with her kids (and she is 6 months pregnant) in it. I wanted to update so those who I did not yet call could read it here. The cops think she hit a patch of slush and then basically spun out of control and into a guard rail. She and the baby are fine. The kids did not even need to be checked at the hospital.
On a lighter note when my niece got home she said "are you going to be OK mommy" My sister responded "yes". Then Caitlyn (niece) said "Can I have a snack?" To cute!! Thanks for all the prayers this week guys you have kept me sane!
Missa went on her first sleepover ALONE last night. The torm passed by about 12PM yesterday so we went ahead with her sleepover. Mady had never had someone sleepover and Missa had never gone alone. Missa and Mady are great friends (they met at horse camp). We found out at the first horse camp picnic that Mady's dad and Darren knew each outer. Mady's mom works for Make A Wish and we love her (all of them realy). I think Zach and Missa think Holly (the mom) walks on water! When we got home with Zach he was sicker then a dog (ALL OVER MY BED)! So I am washing what did not get into the washer last night and waiting for Zach to wake to see how he feels. He is supposed to have a sleepover here tonight. I pray he feels better!!
Friends, Denise

My grandmother passed yesterday (Thursday) at 3:30PM. Thank you all for your thoughts and prayers.
Love, Denise and family

Monday, December 12, 2005 3:15 PM CST

9:30PM 12-14-05 Gram is still hanging in there. Wanted you all to know Missa had fun tonight at the Make a Wish event. Her picture was to cute!!! She WON a HUGE karaoke machine!! The thing weights over 40 lbs. She is to excited!! I will update later as I am BEAT!

11AM 12-13-05... Still no news. I am so glad that my mom had her birthday to herself and will forever be able to enjoy her day without sad memories. I will update when there is any more news to share.
Thanks for the prayers, Denise

It's been a long hard week....
I want to start by saying Happy Birthday to my mom. She is trying to stay strong for us during this time and I know that's not easy for her. Happy Birthday mom I love you!

OK by this time I mean the passing of my grandmother. She has not passed as of yet but it is only a short matter of time. Yesterday we were told maybe 24 hours. I have prayed that it would not be today (mom's day). I have had so many thoughts today of my Grandmother... When she drove down a one way street the wrong way (and was ticked off that other people were honking at her). It was not funny at the time (I was in her car!) but now I can LOL about it. My Grandma was always ready to help out. She loves Darren and the kids. She always would say to me "don't loose him"! I would promise not to! She loved her pets (maybe to much)!! I just wanted (or maybe needed) to write about her. I remember the day that Zach and Missa were born! The smile on her face as she held both of them. She said she had never seen a baby so young (they were only minutes old). I love her and I am grateful to have had her in my (and my family's lives).

I may need a day or two to get over things once she does pass so please bear with me. I will let you all know as soon as I can. Thanks in advance for any prayers.
Friends, Denise

Thursday, December 1, 2005 11:46 AM CST

UPDATE: So the day has come and gone
(not without 2 1/2 FEET of snow he he). I almost can not believe it came.
We had a wonderful dinner tonight with close family and friends.
Missa was so happy to have these people around her.
I also wanted to ask for prayers for my family. My mom's mom is passing. She is 90 and living in a nursing home.
They have her resting comfortably and my mom will make the 3 hour trip to see her again. I just ask that she be comfortable.
Thanks in advance for the prayers.
Friends, Denise


I can not believe that in less then 12 hours now I can say my daughter is a childhood cancer survivor. All kinds of memories flood my brain...
The good, the bad and of course the ugly!!! Her standing at the garbage can and just pulling out hair by the ton and Zach asking
why she was doing that. The poppa dance and her little laugh when it was done for her. The friends oh so many... Some who have
made it and some who did not. Our new "family" (parents, nurses, and other kids) one I never thought I would be part of
(none of us wants that) but I am ever so grateful for their love and support. I thanks so many of you for reading about Missa and
putting her on prayer list!! It means so much I can never thank you all.

My Missa,
Mommy is forever proud of you. I am so glad the Lord (and He alone) choose to spare your little life. You make mine so rich, so full.
I know you have many roads yet to travel but I know that you have a wonderful Guide!! Listen to Him and you will do no wrong.
I remember thinking (during your transplant) I wish you
would just talk again so I could hear your voice. I am sure the day you did I cried. You endured so much.
There was so much I wish I could have stopped. I was not able to my love but you with Gods help made it.
We all love you very much. I hope you can look back and be glad not for the cancer
but for where it has taken you. Your day is here. You are a SURVIVOR!!! No other words could be sweeter to my ears. Congratulations baby!!!
Love, Mommy

Saturday, November 26, 2005 6:42 AM CST

Well GREAT morning to you all!!!! Hope you had a wonderful holiday with family and friends. We did... We had dinner last Saturday with Darrens family then Thursday was us, my mom and dad and Darren's mom and step dad. It was a nice time we got to watch wild life on the lake and EAT (hehe)!!!

The kids went home with Ma and Pa (my parents). I am sure your wondering why I am mentioning this detail because (are you sitting down) Darren and I went to bed at 7:30 (NO that's not the news)then it was up at 12:30 AM to head to Best Buy in hopes (slim but hope was there) of getting one of their AWSOME $149 computers.... So do you think we got it?????? YUPPER we did!! They hand out "tickets" and we had #85 out of 90!!! So it was close. When we got to the mall there were 200-250 people ahead of us (Darren didn't have much hope at this point BUT he stuck it out with me). The mall was cold and dark till 3:30AM then lights came on and security was there. 4:30AM came tickets and then at 4:45 AM I got mine. I tell ya I felt like a kid in a candy store!!! By this time there were 2,500-3,000 people in line for Best Buy. At 5:00AM it was a mad rush (well sort of). Since we had a ticket we were guarenteed one!!! I still walked as fast as I could. There was ANOTHER line for those with computer tickets. We got our computer, paid for it (and added memory) and were out of the store by 5:30AM. We then stopped to get bagels and doughnuts (Aunt Stacy called our cell to see if we got one). By 6AM we were at my parents sneaking in like I was out too late (hehe). Zach and Tori woke almost right away. Missa took some work. We left soon after as it was 14 degrees outside. We got home set it up and were playing by noon (lots of things had to download). That said I am on line again YEAH!!!

Missa's "cure day" is fast approaching (this friday Dec.2) I can not belive that we are now counting in days and not weeks,months, or years!!! Missa is very excited and Daddy and I will come up with something just too fun to do!!! We have to wait because of the weather but I will let you know when we do it!! We are still planing her BIG, HUGE,MAMMOTH party for May 13,2006. So please start saving this date!!!!

Missa gets her meds this Monday. Her nurse called and said "are you sure it's Monday since we usually do her on Friday?" I explained that this would be her cure day and there will be NO IV's on her cure day!!! She agreed.

Well I have tons (OK 3) kids in my face ALL wanting the computer. SO I must go for now but I WILL be back and soon!!!
Friends, Denise

Saturday, November 19, 2005 4:05 PM CST

Well sorry for no update lately... We are very busy... Girl scouts, Irsih dance, School, church, yadda yadda.

Missa has been doing well in school (her teacher conf. was this week). Her meds will be done Monday after Thanksgiving. Then that Friday (Dec 2nd) is her survior day!!!! She is excited... I will let you know what we do when we do it.

Well should go... We are having Thanksgiving today with Darren's family. So its smelling yummy here.

Friends, Denise

Friday, November 11, 2005 2:11 PM CST

So another Nov. 8th has come and gone. NOt much happened this year. Darren and I felt MUCH more relaxed!! Missa went about her day as normal... We did have dinner with grandma and grandpa (Darren's family).

I have set the date for Missa's party May 13th 2006... I know this seems like its forever from now but her "cure" date is Dec. 2, 2005 and if you have been or are from CNY then you understand why we are waiting till May. Missa wants you ALL to know you are invited!!!!

Missa is loving Girl Scouts!!! Today (a day off from school) we took our first field trip. We had a great tim at Ma's (my mom) job. The girls took turns with a TTY machine.

We are looking forward to Aunt Micki's annual Thanksgiving visit (hey it means I get a hair cut)!!! Its fun for Micki and I as Darren takes the week off and we get some girl time (right honey)!!!

Well I should run and check my emails (still no computer at home).
Friends, Denise

Monday, October 31, 2005 5:30 PM CST

Well Darren and I were just talking (while riding to grandma's to show off) and it was four years ago today when Missa was REALLY starting to "act" sick. Tonight unlike four years ago Missa walked the whole way (only our neighbors houses). Darren had to carry her back then. She was diagnosed on Nov. 8th.

So much has happened in the last month (sorry for no update).... Darren and I attended the Make a Wish Ball (very formal) and LOVED it. Missa has had another treatment (went well). We all went to the Kevin Sharp concert (may have pictures soon). Missa's hearing has been checked and has only gotten slightly worse (thank you Lord). Missa and I went to the Miss Orange (for the SU basketball team) luncheon. Missa was able to "auction" 1 player for $1,000 the second highest amount!!! The highest went for $1,300 (but he was a very popular player and a Sr. this year).

We only have one month till we can say cured (Ok one month and two days but whos counting). Darren and I have talked and we will have a HUGE (I do mean HUGE) Party in the spring. Syracuse is not the type of place to have a party in December. We will have a few friends and family over on Dec. 3rd for dinner.

Well should run and play with the kids!!! Nice "talking"!
Friends, Denise

Saturday, October 8, 2005 1:33 AM CDT

So are you wondering why Iam up at 2:30 AM!!! We too!!! Well not really I think I know. You see its been a LONG day and I think my mind is in way to many spots. I will explane (hey I am up why not).

I have not been feeling great lately... Headaches, bruising Blah Blah Blah... So I went to the Dr (FNP). She "paniced" when she saw my "bad" (for those who do not know I am missing toes and have skin graft on my right foot LONG STORY).... SO she decides to order EVERY (ok maybe not every) blood test and sends me to my old surgen. Well he did see me and says he understands why she would worry but my foot is fine I just have a very rare thing happen to it and it will forever be "odd".
I always feel weird when I go to the Dr.'s and they do "everything" and nothing shows up. I mean I know how I feel but they can not find the reason... We shall see as i will have the blood work done today and then make ANOTHER appt.
Darren was the best. He encouraged me all day. He is to good to be true sometimes. I was pleased to have made one of my weight lose goals this AM. He says to me in the second Dr.'s office "do yourealize you have lost 10% of your starting weight?" to be honest I had not thought of it that way, he said he was proud of me and that felt so good.
So I/we (Darren was with me) race around to get everything together as he was leaving with Zach, Tori was headed to Rochester with youth group and Missa and I were staying with my mom. All went OK and we made it to my parents.
I guess when I got into bed (with Missa) thats when the mind went crazy... WOW I had never slept here with her... only Zach and Tori. She was sick and in the hospital whenever I was here (and daddy was with her). I looked at her for hours. Just watching her and wondering. Thinking of all her body has been through. Then she mumbled something in her sleep. I remember when she could not speak (because of her transplant). I think of how I will feel in 2 months to be able to call her a survior!! Proud, happy, sad for what she had to go through.... The feeling are to much I can not sleep. I hope this is does not sound weird. I laid inn bed for hours. I did not want to wake mom or Missa. I just wanted to write down whats in my head. I can hardly belive the journey our family has taken... So much time but yet it hapened so fast.
I want to try to sleep again. I am going to try now that I have written down some thoughts. Thanks for reading Missa's page. We do love each of you!
Love and friendship, Denise
PS Missa's hearing test is Wednesday please pray for good results
PPSThere are 2 prayer request One is for Alexis's grandma. She has been DX with lung cancer... The other is a neighbors granddaughter they are going to do a CT scan Monday as they are checking for Nueroblastoma
Thanks for the help guys

Monday, October 3, 2005 5:58 PM CDT

Only 2 months left!!!! Yup, We can say CURED in just 2 months. Dec. 2, 2005!!!

Missa is doing well she was able to get her med on a freak day off. We had to use a snow day because of a BAD wind and rain storm (power was out). She is getting involved in EVERYTHING!!! Girl Scouts and Irish dance for starters. I hope she can handle it.

Zach and daddy are headed away this weekend to a father son retreat. Zach could not be happier!!! Missa and I will do Pampered Chef at Ma's house and then spend the night. Tori will be at a youth rally in Rochester.

Well need to run as EVERYONE needs baths/showers... Will be back soon.

Friends, Denise

Tuesday, September 20, 2005 6:42 PM CDT

So its been a while huh... Well lets see there is lots to tell.

Missa, Zach and Tori will become cousins again this March (yupper that means I am an aunt again). My sister (Na) is pregnant!!!! I have known for a while but was not supposed to tell.

Missa will get her next treatment next week. This new dose seems to be holding her. She also will have a hearing test and a check up with the ENT Oct. 12. I will let you know how they both turn out.

I leave for Women of Faith this Thursday!!! YEAH!!!! I look forward to it every year. My mom is even getting to go (thanks Micki). I am sure I will get zero sleep and yet come back rested (haha).

Fall is in full swing around our house. Both girls have signed up for Girl Scouts... Yup, I will be a leader with 10 new brownies. We have done the pumpkin thing aready (with Uncle Adam & Aunt Stacy). Darren (and Adam) is gearing up for hunting season already!!!

Well that s about it for now... I will try not to be gone so long next time.
Friends, Denise

Thursday, September 8, 2005 10:11 AM CDT

New pic's in album...

Hello again. Zach is doing well and I have me sanity back!!! He was a little home sick yesterday and starting cryin at school. The nurse called mostly because she could not understand him (he sounds stuffy from surgery).

Missa LOVES school and her class. She can not wait to leave in the morning. She will still get her med at home it will just be in the afternoon (so she can go to school in the AM).

I am excited about getting away to women of faith again. Lots of girl friends going and we will have tons of fun!!

Darren is doing well... Yesterday was his birthday!!! The big 34!!! He still looks so young!!! He is an awsome husband and father and I would not trade him for anything.

Well should run need to get home and make lunch....
Much love, Denise

Thursday, September 1, 2005 5:22 PM CDT

NEW PICS ALL IN PHOTO ALBUM TOO!!!

Well here I am again. We did get a new monitor BUT now the tower is acting up!!! I hope we can get a new comp. so the kids will have it for school.

Zach surgery went well... Its his recovery that is draining the lifes blood out of me!!!!! He is STILL in TONS of pain and taking prescription meds every 4-6 hours!!! Please pray for him.

Missa had her med. today and it went well. They upped her dose so we shall see if this "holds" her any longer.

All of us are excited about the kids Rodeo on Saturday at horse camp. They have all (there are 7 kids that attend) worked so hard. Its is supposed to be a beautiful day.

Please pray for Thea (Missa's Best Friend and our pastors wife). She continues to recover from a "simple" surgery that alomost took her from us.

Thanks you all for checking in on us. I will update ASAP.
Love and friendship, Denise

Monday, August 22, 2005 4:16 PM CDT

Well its over... We renewed our vows Saturday in front of about 100 guest... It was a splended day. Darren and I enjoyed some time alone and now life is back to normal.


I did get the coolest gift..... I AM GETTING A SISTER-IN-LAW!!!! Hope she does not mind that I am telling you all. I am just so thrilled. Adam (Darrens brother) and Stacy got engaged while on vacation. We all LOVE Stacy (Adam too) and are happy uncle Adam has asked her to marry him.
HAPPY BIRTHDAY ADAM.... I know I will ALWAYS be OLDER the you.
Missa and Zach are doing well. Zachs surgery is Friday. I hoep it goes well and will update you ASAP.

Well I need to run (Tupperware party). I will write later!!!!
Love and friendship, Denise

Tuesday, August 16, 2005 11:24 AM CDT

Ahhhh we are home (well ok Grandma's house). First My computor is DEAD!!! So I will only get messages from here for now.

Missa is well!!! She had BOTH ID and ONC. check ups. The ID dr. says they will be "uping" her med. Darren and I just do not think it is working as well any more. We WILL stay on until spring (atleast)... Her Onc. dr. says all is well and she is PLEASED!!!

Please pray for Kayla again. There is so much going on in the family now.. She needs brain surgery and maybe she will able to go on study (the study closes in Oct.)

I need to get off line as they kids want me to open presents.... I am 36 today and so far so good!!!!!

Love and friendship, Denise

Sunday, August 7, 2005 12:25 AM CDT

I am back!!!! I know it's been forever... Let's see where to begin.. All is well. Tori heads to camp this week. She is excited to see old friends (and make new ones I am sure).

Missa got her med. this week. It went VERY WELL. She did not even cry when the needle went in. She was most proud of herself.

Zach goes for his pre-op appt.(tounsil's on the 27 of this month) this week. He is not sure he wants the surgery. But it will make him feel so much better. He is on meds now (he got sick again).

Darren is busy with work and home. We continue to plan our big day (with MUCH help thanks Bobbi and Mom)!!! We can not wait. It's been a long 10 years (not the marriage the years)! So much has happened both good (GREAT) and bad. We have made it TOGETHER only with God's help. There is nothing else that could have gotten us this far. Hope to see you on Aug. 20th!

School will start in one month!!! I am excited (ok ESTATIC)! We will have so much before then its not funny. Time willl fly!!!

Well need to run and get a nap!!! Hope all is well for you!!
xoxo, Denise

Friday, July 8, 2005 11:00 AM CDT

Missa is still dripping!!! This is driving me NUTS!!! I will have to talk with the Dr.'s next month! TORI IS HEADED HOME!!!! We can not wait to see her tommorow night (after T-ball). Work went well today!! It was a little weird to have all the kids together again. Well need to run and play with kids. I shall write again soon.

Hello again... Lets see what new at our house.... HHHMMMMM! Well Missa did have her med at home on Tuesday and all went well. She is now "not runny". We shall see how long this dose last. I think the other drug worked better for her. I will talk with the Dr. nest month. Zach has had 2 Dr.'s appt. this week. Yesterday we went to see the ENT and today he saw the FNP. Today he had blood drawn and he did pretty well with it. The ENT says it is a good idea to go ahead and have a T&A this summer (No more strep throat). The FNP thinks he needs to see a specialist. We shall keep working on that problem.
Tori will be home next week. She has tons of friends that can not wait for her to call (the teen years!)
I start back to work next week. Only 2 days a week until the end of August. then 5 days a week.
All are healing well from their "bumps and bruses". What a week. I do not think I mentioned that my dad even got in there with 4 stiches to his hand!!!
Well have a great week!!!
Friends, Denise

Saturday, July 2, 2005 9:14 AM CDT

Sorry its been so long.... My computer is still not working and my in laws went down the other night (but its up now)...

Things have been BUSY!!!!! I now have 2 second graders and a HIGH SCHOOLER!!!! I can not belive she is in high school. We are all VERY proud of her and hope she takes advantage of all high school has to offer.

The twins (Missa and Zach) headed straight to camp this past Monday till Thursday.... They LOVE camp Good Days!! They did sooo many cool things this year I can not wrtie about them all. Tori headed West (Kansas) on Thursday with her granparents. She is excited to see her dad & stepmom and their new pets!!! She will be back the middle of the month and can not wait to go to camp good days her self (in Aug.).

Well renewal plans are in full force!!! I am sure many of you have gotten your invites... I am having a BLAST getting the responses back in the mail.SO many people have be SOOOO very nice with helping us make our day come together (thanks to all of you).

We have a party today (its making me feel old). Sue was only 5 when I met her and now she is a high school graduate!!! WOW how time flies. I am going to pick up pointers for our party in 4 years (right Tori?)!!

Well should run need to get tons of stuff done today!!! Will write again soon.
Oh Yeah Missa gets her med on Tuesday!!!
Friends, Denise

Friday, June 17, 2005 9:18 AM CDT

We have seen the Dr. and she is refering Zach to an ENT as he has had way to many of these infections as of late. So July 7th will be his next "new" Dr. appt. He is on antibiotics and we will have to see how the night goes before I can decide if he is ready to go to Rochester for the wedding. Thanks for checking in on us!!
I should also mention tommrow is Aunt Micki's birthday!!! She will be a year older then me!!!! (ok so only on paper for 2 months butI get to have fun with it for a short time!). We love you Micki know matter your age!!! (hehe) She is going to KILL ME!!!

Well tommrow is Aunt Tobe's wedding and well we shall see.... Daddy's job is going NUTS!!!!! They thought they would get ahead of the game and have 1,500 pieces for a company ready by Monday(ish) WELL much to their surprise the company called yesterday (late is the day) and they want 5,000 ASAP!!!! So daddy may have to work this weekend. I told him I would take the kids and go to the wedding.... WELL Zach's little body decided to get a fever during the night so we shall see what happens at he Dr.'s today.

Missa is doing very well... Her and Zach got their new baseball gloves last night. Boy were they THRILLED!!! They had us stop by grandma's just so they could show off!!!

I am still busy with all kids of stuff! It also looks like the kids I was watching will be back with me soon. I am trying so hard to get things done for our renewal (Aug. 20th). I want it to be all Darren wished for.

Should run and get my little boy to the Dr.'s and I will try to update ASAP.
Friends, Denise

Friday, June 10, 2005 9:05 AM CDT

Ok I want you all to know I have not been MIA!!! i tried to update a few days ago and it would not take!!! My computer CRASHED!!!
So I will make this short and sweet. Missa and Zach had an AWSOME birthday!!!! So many frid family weere able to make it... If you were not here we did miss you (Kathi, Brian,...)
Missa and Zach are now counting down to the end of school. I will be on a trip wioth them Monday to the zoo!!! So many trips and things this time of year!! Both are attending cammps this year and can not wait till those times arrive!
Tori is working hard to get though this year. Its been a rough one but she can do it we know she can!! She to is looking forward to camp.
Darren is working a 50 hour weeks this week. Figures the weather has been unreal!!!!! 90'S EVERYDAY now!!! He is doing his best knowing he has an "early week" next week. Thismeans he will be done at 3pm.
I too am busy. With school visits an the like. We also had company here for a few days. We love having them!
Well I think the computer is abouut to CRASH so I will sign off for now.
Love and friendship, Denise

Friday, June 10, 2005 9:05 AM CDT

Ok I want you all to know I have not been MIA!!! i tried to update a few days ago and it would not take!!! My computer CRASHED!!!
So I will make this short and sweet. Missa and Zach had an AWSOME birthday!!!! So many frid family weere able to make it... If you were not here we did miss you (Kathi, Brian,...)
Missa and Zach are now counting down to the end of school. I will be on a trip wioth them Monday to the zoo!!! So many trips and things this time of year!! Both are attending cammps this year and can not wait till those times arrive!
Tori is working hard to get though this year. Its been a rough one but she can do it we know she can!! She to is looking forward to camp.
Darren is working a 50 hour weeks this week. Figures the weather has been unreal!!!!! 90'S EVERYDAY now!!! He is doing his best knowing he has an "early week" next week. Thismeans he will be done at 3pm.
I too am busy. With school visits an the like. We also had company here for a few days. We love having them!
Well I think the computer is abouut to CRASH so I will sign off for now.
Love and friendship, Denise

Sunday, May 29, 2005 2:37 AM CDT

Good morning (its 1/4 to 4AM). I know you all think i am crazy but I had to get up and write...

You see Missa (and Zach) have their birthday next Thursday (June 2) and we are having their party (for friends and family) today. I am so excited (hence the hour I am writing). 3 1/2 years ago they told us (Darren & I)that our little angel (Missa) only had a 30% chance of winning her battle with cancer. Now I watch her sleep next to her brother in such peace and I think of all she has been though!!! I can only imagine. I was not walking with the Lord at the time and am so happy He gave me Missa to show me His ways again and what He wanted from me. How dumb I was. Missa is a gift (as are ALL my children). I am so happy to be here at this point in my life. To know I am right with the Lord, to know my husband knows and loves the Lord and that we are raising our children to do the same.
I am very excited to see so many of you in just a few hours now!!! Those of you I will not see please know we think of ALL of you and you will be missed! I must crawl to bed now as its almost 4am and in a few hours I must teach JR church and those kids keep me on my toes!! We love you all.
Friends, Denise
PS as of June 2, 2005 there will only be 6 months till we can say Missa is CURED!!!!!!!

Monday, May 16, 2005 6:19 PM CDT

Good evening (or morning), We are all doing well. Daddy is working hard.... Mommy is enjoying retirment!!!!! Tori is working hard to finish 8th grade.... Missa is doing well and can not wait to attend the zoo function with her immune Dr next Saturday. Zach well he is STILL all BOY.... DIRT is his key word!!!

I am not so sure that the new immune drug works as well... I am hoping that with time (maybe this month)!!!! Its new so I will give it some time... It seems like her symptons are back (a weeks earlier then usual).

The Sunday of Memorial weekend (May 29) will be the PARTY (all are welcome) (Kathy this means YOU GUYS TOO)!!!!!! The kids passed out so many invites I do not have anymore to send out, so if you did not get one PLEASE still come!!! Missa and Zach will be turning SEVEN!! Seems so little to some but we were not sure she would even see 4 so SEVEN is GREAT!!! Also worth noting we will be able to say Missa is CURED in just over 6 months!!!! Praise the Lord He has let her live life to it fullest!

Love and friendship, Desise

PS Diet is going well!!!

Friday, May 6, 2005 2:51 PM CDT

FINALLY.... I am having SOOO much trouble with our computer. I am at grandma's house and thought I would update...

Missa DID get her med (LONGGGGGGGGG STORY). Short version she did great and THIS month we can do it at home!!!!

Zach is SICK!! I am at grandma's to return her car that I used to take him to the dr. Poor boy has a temp. of 102 and is not well. Daddy is getting his med as I wirte.

Tori is doing well. Trying to finish the year on a HIGH note!!! Next week I get to go to her school and reveiw her HIGH SCHOOL schedule!!! I can not believe that it is next year.

Mommy is doing GREAT.. I did start that "diet" again and I am 1/2 a pound away from a 10 pound weight loss in 2 weeks!!! I am very happy!!!!!

Daddy is working hard and has been a HUGE help to mommy. He helps with dishes and stuff so I can get on the tredmill. What a guy!!!!!

I hope you all enjoy mothers day!!! I know it has a whole new meaning to me since Missa was sick.
If I do not responed to your emails or any other commuication on the computer then you know our is STILL DEAD!!!
Love and friendship, Denise

Saturday, April 23, 2005 9:11 AM CDT

Ok so I am SOOSOOOOO glad vacation is over!!!! It just seems so long some times.... I guess I get used to the kids not being here all day!!!! We did have GREAT weather!!!! even a day at 80!!! So we did get to play outdoors EVERYDAY.

Update (on Dan)... He has been home and is doing great!!! This hip went much easier as he had a "good hip" from last years surgery.

Missa is due for her IVIG this coming Thursday and if you are thinking oh good she will be able to relaxe at home and do it well guess what WE'RE WRONG!!!! Yeah I said we're. It seems in the bright brains at the Dr.'s office NO ONE noticed (or cared) that the meds she got last month is NOT BEING MADE ANYMORE!!!!!! Yup they gave the kid a drug that HAS A REPLACMENT but they choose to give her the OLD med so now we have to spend ANOTHER day up there with the NEW MED to make sure she takes it well!!!! I am beyond fustrated!!!!! They say we can try at home next month (where have I heard that before).

The kids are all SUPPER excited about camp "season". Missa and Zach have 2 on tap and Tori has one (and an offer to "work" at the horse camp).

Well today is a busy day as we are going my nephew's birthday party!!! He turn 11 last Tuesday!!!! HAPPY BIRTHDAY JAKE!!!!! We got to spend some time with him and Caitlyn this week and that was fun!!!!

Love & friendship, Denise

Monday, April 4, 2005 9:37 AM CDT

Thanks be to God!!!!Missa's treatment went SOOOOO well., She was able to do it in just over 3 hours!!!! We used to take 4-6!!!!!! She was thrilled to learn that since all went well we will move her treatments to HOME!!!!! So 28 days from last Thursday we will have a nurse here to start her up!!! We have run SOOOO many drugs at home this will be a peice of cake.
We have had TONS of rain and the lake is a rising!!!! Darren will spend some time tonight moving the dock and boats. Not fun but it has to be done!!! Many schools in the area were closed but not ours and Tori was so happy as today was field trip day for her!!!! They even get lunch out.
All else is well. Hope you are enjoying Spring!!!
Friends, Denise
PS please pray for our friend Dan as he has surgery today. He will be having his hip replaced and needs it done badly. Thanks

Saturday, March 19, 2005 2:12 PM CST

3/23/05.... FINALLY!!!!! We have an answer. Missa WILL be starting her meds back up next week. Lots to work out, but at least she will be truly well again. She is ok with this. I will update again next week when we know how its goes. Pray that her reaction will be none or very little. Thanks

Well happy weekend!!!
Thanks to Stacy we have NEW PICTURES!!!!!! I know this is huge new around our page.
We are in Rochester for a visit and having a wonderful time. The kids have swam so much already and want to swim again when we get back to the hotel.
Missa's dr. had not called when it was time to leave yesterday. If they did not leave a message then I will call them Monday. Will update then.
Please enjoy this wonderful time of year as Spring starts and we remember what Jesus has done for those who believe.
Friends, Denise

Friday, March 11, 2005 2:23 PM CST

Good afternoon!! All is well here. Snowy, it is Snowy!!!
Just thought I would let you all know there is still know word on Missa's blood work. They said this week of next so I guess next huh!! The cough is back and driving her NUTS (not to mention us). So we will all be thriiled when they call and say she can go back on (as this is what the Dr. said she thought would happen).

Aunt Micki and I are headed out to get our hair done tommorrow... Makes us sound like little old ladies does'nt it. Well if your a girl you should try it. Grab a girlfriend and hit the salon!!! What a blast we have. Darren and I have Bible studay with friends so Micki will run her "syracuse erronds" and we will meet up in the evening for some video watching and sub eating!!!

Zach and Missa have been missing grandma something bad. So next Friday we will head to Rochester to spend some time with Uncle Adam and Stacy. The kids love them and hey its the next best thing to Grandma. All of us are looking forward to a dip in the hot tub!!! We will have an Easter dinner with Adam and Stacy Saturday and head back to Syracuse early Sunday morning for church.

Tonight is Jake's (my nephew) play... Just want you to know we love you and we will be the ones yelling "YEAH JAKE" at the end. We know you have worked hard on this and are glad we get to see it tonight!! GO JACOB!!!!!!!!!!!! Love, Nene

Friends, Denise

Saturday, March 5, 2005 5:36 AM CST

I know Missa would not mind if I took this entry and made it into a 13 year "journal"....

So 13 years ago today I was to have lunch with my two friends Micki (now Aunt Micki) and Terri (Micki's sister). I had to call them around 9:00 AM and say I could not make it. I never heard two people so excited NOT to be going out with me....
Soon after my call to the girls I had to call the Dr.'s office. I told them I thought it was time and the receptionist said "Does it hurt?" I said "no" well then just keep your appt. So I did.
I woke my husband so he could drive me to the Dr.'s and off we went (approx. 1 PM). We arrive and are sent to the back office to wait. Ahhh someone must know whats going on as she comes back to get me to see another Dr. faster.
Ok it is time she tells us. They hand us papers and send us on our way.
After a quick stop at Mickey D's (hey he was hungey and I was told not to eat!!!). We have made it to the building I would live at for the next few days.
Things are moving way to slow and I am fustrated! I am allowed visits from family which cheers me some.
All night we try everything. "this is going to hurt they tell me" but it doesn't... What is going on with me...
The next morning (with little or no sleep) the Dr. on call comes in (appx.11 AM). Well we will just wait he says. I tell him this has been going on for over 24 hours now and they promised they would not let it go past that. OH he says!!! We must start getting things done in a hurry!!!
Things happen fast. Rob makes calls... I am in a whirl wind of action but can not move. Everyone else does the work for me.
At 1:29 PM (March 6th) I finish the job (with help). It's a girl they tell us. Go and see her I tell Rob (Tori's dad). Everyone out side the OR is THRILLED!!!! I get to see them all in a few minutes.
ALL is done and everyone gets to see her!!!!
There have been so many ups and downs in the last 13 years but they have all been good or for the good. She is special and now she is 13!!
Tori, I know it is the prayer of all those close, (Popop, Shelly, Daddy and I) that you follow what God has for you in your teen years. If you do you will be blessed.
Love, Mom


Missa update... Dr.'s had to wait for more test to come back but it does look like she will be put back on the meds. Pray this happens soon. She will feel so much better back on them!!!

Monday, February 21, 2005 9:00 AM CST

Ok so its winter break and I may have LOST my mind. I have 7 kids today and tommorrow and well pretty much all week (Friday will be a blessing)!!!

My back is doing TONS BETTER. It was a week of rest but I was able to regain most movement. Darren was amazed (as was I) at how much better I am.

We were able to attend the Weekend To Rmember marriage conf. We had a wonderful time. Bumped into a few old friends and meet new people. Thanks to my sister (Thanks DJ) we had the weekend to relaze and enjoy each other. If you get the chance to attend it is SO worth the money. We had 8 couples including us!!

I also should update with the info I have on Missa. Well of course we did (drum roll please) BLOOD WORK... I do know this is the only way to really know whats up with her BUT I have been asking for weeks now for someone to just do it so it would be done. It was 6 tubs of blood and they are all "special" test so they can take up to 2 weeks. IF they come back and she needs IVIG (immune IV she was on before) then we will start in 2 weeks. I will update again soon.

Friends, Denise

PS May I say thanks to my husband for being my rock when I was down. You are a blessing in my life and I am so fortunate to have found you. No one will ever know how much you have done to help me. I love you.
Mom I am gratful for your help on Monday also. It made it so much easier to get to the Dr.'s

Friday, February 11, 2005 9:38 AM CST

Everyone is doing better around here. Well I should add that I slipped and fell Monday and they think I fractured my tail bone. They did not want to put more radiation into my back (as I have had lots of x-rays). If it was not fractured and just brused they would treat it just the same. So pain meds and off my feet LOTS!!! I can not believe how bad the stupid thing hurts.

Missa is still on for next Thursday so I will update ASAP. She knows she is going and is being so good about it. My gut says they will say "well we have to do blood work". You know how that goes.

Zach is doing well. He loves the snow!! He has been able to get out a few times this week. He is looking forward to break when he can play with his cousin Jake!!! He is also enjoying drawing pictures for his grandma every week. He makes sure he has at least one done before I mail her mail out to her.

Tori was able to pull her grades up a bit and she is happy for that. She is working on many projects this half of the year. She was able to attend her friends birthday party last Saturday as everyone was sick the week she was so the party was changed.

All three kids (ok mom and dad too) are enjoying the newest addtion to the Roberts/ Angle house. Yup we have 2 little guinea pigs. Zach and Missa (with help from Jared and Mari) were able to pick them up last weekend. One is Chocolate brown so his name is Chip (get it chocolate chip), the other is orangeish brown on the front and white in back. HWe were not sure of his name tillI pulled him out. His name is Mo (he had a mowhawk when he came home with us). They are both great pets!!!

Well I need to run as my back is now officialy killing me and I am having a party here tonight. Lots of friends are coming early to help me out.

Love to you all, Denise

Friday, January 28, 2005 3:23 PM CST

Oh my where do I start... Well lets start with weather.... even the snowmen have moved IN DOORS!!!! Today it was -24.7 NOT A WIND CHILL!!!! I do not even want to know what that made it feel like. Our schools (which had a 1/2 day anyways STAYED OPEN). I keep all 3 kids home (I will explain soon). It has been VERY COLD for a few weeks now. They say we are done with it but hey they are weather men!!!

So the kids well.... Tori has been sick since Sunday so we went to the Dr.'s today and she is on 3 meds. Zach to is now on meds and Missa ahhh my girl. Well I have thought (but not shared with most of you) for some time that her immune "issues" were not over. Seems I am right (shocked are we). It has been just like last time. Antibiotics for 3 weeks and her sinuses are WORSE!!! So now MORE and STRONGER antibiotics and prednizone for 2 weeks to try to keep her level till immune Dr. can see her... Will let you know how it turns out.

We have just heard my Great Aunt Marie (I am her name sake,middle name)is on her death bed. PLEASE pray for peace for allof our family and friends. I was able to see her last at my cousins wedding (almost 2 years ago). She looked great and we took many pictures together. She fought hard for my dad when he was born with MANY complications so she has and will always have a special part in our lives. If not for her I may not be... Thank the Lord for His plan!

Love and friendship, Denise

Friday, January 7, 2005 2:16 PM CST

Hello again, Wow what a busy time of year... So many things to do and see. Not to mention the kids were home from school (last week and yesterday because of an ice/snow storm). We had LOTS of things to do (Christmas gifts) so time went quick.

Tori remains a busy girl. Lots of homework to do. She wants to join drama this year and is working hard to that end. She was tuning her violin and the E string SNAPPED so we have not heard her play in a while. She says they have "loaners" for such occasions. She also wanted to learn guitar so Uncle Adam and Stacy bought her one for Christmas. She has tried a few time with it and I am sure as she becomes more comfortable with it there will be music once again.

Zach what can I say. He is ALL boy. Loves to make "silly" noises JUST to bother his sisters (or mom and dad). SO he has a harmonica now... A "music house". He was the only one to "venture" outside yesterday into to cold and ICE. He slid around for a while and got to grandma's car so grandma would not have to get out (she brought missa's med). By the time he came in he was SOAKED. He loves to "test" the ice out back (NOT the lake).I am sure from his clothes not one puddle was frozen!!!

Missa is a peach... She still loves to have that hair pulled back and show off her ears!!! She knows now when the batteries are dead... Its funny when she tells me. She is on antibiotics to keep her well. Our NP and I are not so sure her immune system was ready to drop that med but these drugs so at least keep her well. She has gotten VERY good at Air hockey. Beats MOST everyone she plays. She even has a few tricks up that little sleeve of hers.

All the kids will be headed to grandma's in the morning. Grandma and Grandpa leave in just over one week. So we felt lead (hehe) to let them see the kids while we "run out". As it turns out we will only have a few hours as my Secret Sister (pal) has invited our kids to her kids party. All the kids love each other so of course we will be there. Darren and I have plans to go to the marriage conference again this year DO NOT WORRY... This is not because of a troubled marriage but rather just to help strengthen our bond. We got so much out of it last time. It is a BLESSING!!! We even have MANY friends (and my parents) attending with us... If ANYONE wants to attend please let us know as we are putting things together and would love to have you. The dates are Feb. 18-20 2005 here is E. Syr., NY.

Darren has had a good few months at work. Inventory went VERY well again. We even will get a BONUS for it being PERFECT!!! Way to go daddy!!! Plus they (the Syr. branch) made their goal (for sales) so guess what another BONUS!!! Not that the bonuses are much but hey I can make a dime go a long way!!!

I wil go back to work (sitting) in a few weeks. Its been quiet here. The kids will come over later in the morning and may be staying later at night.

Well all for now, Denise

PS I wanted to say CONGRATS to Stacy (Uncle Adam's girlfriend) and the kids favorite person... She got a new job..... Forgive me if i word this wrong Stacy... She is a Nuclear Pharmaceutical Scientist.... It so cool my kids play with a SCIENTIST!!! We love you Stacy and are VERY proud and happy for you both!!!

Sunday, December 26, 2004 4:48 PM CST

NEW PHOTOS....

All is well at the Roberts/Angle house. The kids have had MANY Christmas gatherings and TONS of presents.

Tori is off to her grandparents for a few days.... Missa and Zach are visiting with grandma, grandpa, Uncle Adam and Stacy as I write.

Daddy is off tomorrow so we will spend lots of time together!!!! Wednesday the kids and I will go bowling with Brian (Missa's FAVORITE nurse). All three can not wait!!!

Geralyn is feeling better but is having test on Tuesday... Please continue to pray for her. I will update when possible.

I will go now and be back later... Pleas know we are thinking of you all and wishing you a safe and happy new year.

Friends, Denise

PS Missa and Zach played Mary and Joesph today and did a GREAT job again. They are getting to be pros!!

Wednesday, December 15, 2004 8:43 AM CST

So are you excited?? I know everyone in my house is!!! I love this timeof year. Not for the gifts... But to see the joy in my childrens eyes when they talk of Jesus and his birth!!! You should see it... They can light a room!!! All of them do love the Lord so much.

Missa will again be Mary this year only this year its a speaching part!!! Zach will be a shepherd (also a speaching part). They are both so excited. They LOVE working with Missa Jamie as they call her. Tori will watch with Darren and I as the group is only to 5th grade.

Well we have snow!! About 3 inches here this AM. And COLD let me talk about COLD. I watch the morning shows and all the NYC wether men are COLD!!!! 25 outside they say well I walked the kids to the bus this AM and it was 6 (no I did not forget a digit). The lake is lovely as it has a thin layer of ice on it and the sky (blue with a few clouds) is reflecting nicely.

Darren and I have a party Saturday night so the kids will be with grandma and grandpa (Crittenden). They (grandparents) leave soon so grandma ALWAYS trys to get as much of the kids before she goes. The kids miss them aomething awful when they are gone!!! I bet by the time they get back (mis April) the kids will have change big time (they are at that age).

Please remember my friend Geralyn in pray. She has been hit with several medical issues and I as well as my church are praying for healing in her body.

Well today is my first "free" day. The kids I watch are with mom till the end of January. So I shall CLEAN (nice knowing I am the only one here and I will not mess it up HEHE). I enjoy them but want to get the house ready for the holidays!!!

Love and friendship, Denise

PS This past Sunday was mom's (mine) birthday!!! I will not reveal her age but I will say we had a nice time Saturday just the two of us shoppng and eating lunch. Thanks for that memeory mom!!! We love ya

Monday, November 29, 2004 10:27 AM CST

Hearing check is done. We are all pleased with the results we have gotten with the aides. I wanted to update up on a "story" from a while ago... The little girl that was from our church with tumors... They were NOT cancer but they were using chemo to help (this I believe I wrote of about 1 year ago). Well her chemo is done and Her AND her little sister have been adopted by our friends. So the Jace family is 2 bigger and much happier!!! Congrates to all!!!


Missa has a "tummy tickle" (sono) tomorrow. I will just pick her up and take her to the place close to home. Thursday she will go to have her aids checked. Just to make sure things are well (and they are).

We did attend the memorial service for my uncle. Thanks go out to Micki, Adam and Stacy (bum leg and all) for all the wonderful help. Darren and I could not have done it without all your help. It was nice knowing the kids were being taken care of by friends and family. The service was lovely. Lots of great memories. Darren and I even laughed a time or two.
My gradnma was not able to attend so we stopped by to see her before heading home. She seemed happy to see us. We even gave her her Christmas prestent. Funny Dana and I got her the same thing!!!

Well all for now we (Darren and I) are back to work and the kids are off to school. Life is back to normal and that is nice.

Friends, Denise

Wednesday, November 17, 2004 9:19 AM CST

UPDATE!!!! Missa has her hearing aids and all is well. The kids is her class seemed VERY supportive. One of the boys even said... They are cool I want a pair!! Out of the mouths of babes.
Firday morning was bitter sweet. My mom called early as she knew I was leaving with Missa. While on the phone my mom got another call. It was her sister. This sister is near my grnadmother so we thought something had happened to gram as Erna (the sister) never calls this early (6:30 AM). My mom called bacj within minutes to say my uncle had 5 strokes Thursday and was on life support. The Dr.'s told m,y aunt without it he would die in 2 hours. Her daughter lives in PA. so I believe she wanted to give her the chance to "talk" with her dad one more time. Friday afternoon he was taken off life support and was left only on pain meds. He was totaly paralyzed. He passed on Saturday around noon. He was a nice man. Very involved and healthy. He loved cards, bike riding clubs. He did lots aorund the house. He did much for my grandma also. He lead a full life for 70 years. I am sad to think of my aunt on her own. We will attend the memorial service on Saturday. I think we will be making it a one day trip so the kids will stay back with friends and family.

Life is not ours to live. Only God knows when and where our lives will end. Only He has the power to make our lives whole and full. If you hear Him at your heart begging to be let Me in then PLEASE listen!!! Does He want a life change in "exchange" He sure does. You must think change my life to have ETERNAL life. Life in Heaven, where there is no pain and we are made anew. Please consider this. Do not hesitate to call...write.... come over. Darren and I are very serious about this. Also I must say if you have accepted His offer of salvation and you hear Him calling you. You to must answer. Be open know that He knows best. He is always there with you to help. What more can we ask. He gives us salvation then gives the Holy spirit to us AND promises to never leave us. Wow it still blows me away!!! I am glad that I and my family have this gift and that we try daily to live for Him, this gift giver.


Well this is the week. Missa will get her aids this Friday. I am excited to see how the hot pink and rainbow aids look on her!! She wants to go right to school when we are done. So thats what we will do. Grandma will stay here with the kids I babysit so Missa can get taken care of. I think we will meet Ma and Pa (my parents) that night for dinner. With dad on days we can do that.

I am also hoping to have Zach's new glasses. Yup he and Missa broke them last Friday and so we rushed right over Saturday morning to get new ones ordered. They were able to "fix" his old ones so he is not to bad off while we wait. The "new" frames they used to "fix" his do not have nose pads so he is not as comfy as he would like to be.

Tori is a busy girl (whats new right). She spent last Thur., Fri., and Satuday with her grandma. They had a harvest party at her grandma's church so Tori helped set it up. Then she was back (just for a ride) to meet my parents and head over for dinner and a concert. They met Darren at church Sunday morning. Sunday night she had a surprise party for her new youth leader. I told you she was busy!!

Darren and I are busy to. Darren has been working TONS of Over time!! I just try to keep everthing running smooth!!!

Well I need to run. Lots to do. I will try to upload new pictures soon!!
Friends, Denise

Monday, November 8, 2004 2:31 PM CST

Much love to you all on this cold November day. I am sorry I have not updated lately. Seems I am busy alot lately.

So why today you might be asking well today is "special". Three years ago today we were told Missa had a tumor and that it WOULD be cancer. We were to tired to take a breath and this was the news we had waited for!!! It could not be. We loved this child... It was to be and i will explain why...

You see God allows us times of "trouble" so we can lean on Him, run back to Him or simply find Him. I was a Christain but not living for Him the One who gave His life for one such as my self so this was a life changing lesson for me. Darren had not yet found Him. We had looked for a church we would both (and the kids) would be comfortable in but had not found one. Then with Missa's illness this church (ours now) found us or shall I said God showed them our needs. What a time of joy for me and exploration for Darren. They prayed for us, they fedd us, they LOVED us.

Missa continued to "defy" ALL the odds. Remember this is the child that was given only a 30% chance of LIVING!!! The Dr. was baffeled but we were not as God opened our eyes.

So now three years into this what have we learned. God has a plan and He WILL see it to pass. Missa was not done she was to turn her momma's heart back to her Lord and help her daddy find REAL peace in Christ Jesus. Missa herself needed Jesus. She now loves Him dearly. She sing worship music and memorizes scripture (better then mommy).

Thank you all for the support and prayers I want to include my pray for Missa as a gift to her. Some day she can read this (on her own) and know that her mommy and daddy Love the Lord and that we prayed for her.

Thank you Lord for allowing us to learn from your little one. We pray Your will be done in her life. Darren and I understand we were allowed this gift from You and we promise to respect it and to not interfere with You holy plan. I pray for Missa Lord that you will keep her safe in Your loving hand and guide her ever so gently as only you can do. In Jesus name I pray this, Amen

Tuesday, October 26, 2004 2:28 PM CDT

NEW NEWS!!!!! I got a call today from the hospital making Missa's hearing aids and the told me that if the insurance had approved them then the hospital had to except what they pay as payment in FULL. Is God not the BEST!!! I want to climb montains and YELL... God is so good!!!! Wow... I think sometimes that I could not ask for another thing from my Father since he has given me so many blessings. Then I get an answer to a pray and well He blows me away.... Praise His name!!!



Life is good!!! I am getting to know that better EVERY day. No matter the bad there is a purpose in your life. I know sometimes we can not see that but there is trust me. I have trying to make special time for me and my Lord everyday and it is such a blessing to read of Him. WOW

So if you have not heard Darren got a 3 point buck!!! Northern tier is open so he and Adam (his brother) spent some time up there this weekend. The kids and I spent time with Ma and Pa. Darren and I would like to thank Ma and Pa for the blessing they gave us this weekend. We are happy to be part of this family and even happier to know we have forever together.

Missa says to me Sunday "Mom I need those things to helpo me hear 'cuse I can not hear anything." Well we had just come off a HUGE hill and I assured her it would get better soon... Makes me wonder sometimes how it feels to have hearing loss and then have your ears "pluged". Missa and busy inviting kids to our Harvest party at church. She loves the Lord so much... She even told her teacher she would not be the witch or ghost in her program at school. Thats not what God wants she says. Out of the mouths of babes.

Zach is loving the thought of someday going hunting with daddy... He has picked out several things for Christmas!!! Its fun to have a boy!!! They keep ya busy!!! He is trying harder to do well in school (like coloring and writing).

Tori is doing great. She had a youth bomb fire Sunday night which was a nice time. I find it hard to believe she will be a HIGH SCHOOLER next year. Where has the time gone....

Ok well need to run and work on stuff here. Thanks for checking on us!!!
Friends, Denise

Tuesday, October 19, 2004 5:34 PM CDT

What a week (end of last week included). Thursday was rotten for me as the state called and said no go on Missa's aides. All this mean is she not fall in THEIR graph as needing them. Her speech therapist and everyone else who knows her well knows this is what she needs. Please pray for Darren and I as we need to find the money to pay for them somewhere in our budget. We can and will by the grace of our God. I also spoke with Missa's speech therapist today she will be adding her to some programs at school that will be helpful. Missa will go Thursday to make the molds of her ears (the insurance has appoved this).

Friday morning after putting the kids on the bus (3 out of 5) I walked into my home and heard one of the kids (afternoon kindergarden) say "Denise I think one of the guinea pigs is playing dead"!!! I about died... We were going to take them to the vets that week... So Darren ran home (ok so he drove) and I zipped off to the vet. Well we lost Emma on Friday to a stomach "virus" we belived. So Squeker came home on meds. He liked them BUT Monday morning I woke to find he had passed too. We are unsure what had happened. The vet said that these animals can "hide" things for better then a year!!! So Missa and Zach took both losses hard. They await the day they can pick out new ones.

Thats about it for now. All is going well in school and home. Thanks for stopping by to see us!!!

Friends, Denise

Friday, October 8, 2004 4:57 PM CDT

Good day at the Dr.'s Tori and Missa both did well. Tori had some more blood work (I am sure she would like everyone to know they took 5 tubs!!). Missa is having counts done and the best news of all was what the Dr. had to say. She told me that frankly if Missa had not relasped by now the odds were VERY SLIM!!!! Very Slim never sounded so good!!!! What a blessing. I told her we were planing a party for Dec. 2005 and she said we could probably move that up but I said we would wait. Hey its been 3 years (Nov. 8,2004) so why not one more year!!! Then we will have a wonderful time with friends and family.

I also bumped into another friend. Her son HAD relapsed and he looked great. Jorden was walking and talking!!! Not bad for a kid that has been through MANY rounds of Chemo 4 stem cell transplants AND radiation!!! What a little blessing he is.

Well I am going to eat with my husband and children (and neice). We love our family!!

Friends, Denise

Monday, September 27, 2004 3:53 PM CDT

I am back to write again!!! What busy weeks I have now. I love my "days off". Last week I went and had my wisdom tooth TORN from my mouth!!! Ok so TORN may be a harsh word but the thing was not hurting and I am STILL in PAIN from it!!! The Dr. called more drug into the pharmacy today for me... What was I thinking!!!

Missa and Tori both have Dr. appt. next Firday (Oct. 8). They will get all checked out and I am sure it will be months before we have to go back.

Zach is doing well with school. He is working hard on his letters right now. He has a tough time writing.

Thats about it from here for now. We love you all and can not wait to hear from you. Missa is missing all her "mail". So leave her a message please.
Friends, Denise

Sunday, September 19, 2004 6:45 AM CDT

I said I would update after Women of Faith so here I am (with a HUGE smile on my face).

So did you hear it, really did you!!! The Angels in Heaven thats what I am talking about.... You see this years Women of Faith was the BEST!!!! I got a new sister!!! A wonderful friend has accepted the Lord of the all as Her personal Savior. She has a Friend to walk with at ALL times now!!!! She NEVER has to be afraid again. Does this mean she will never fear anything again NOPE, BUT she has a place she can go for peace now!!!!! You see there is a differance in knowing there is a God and Knowing God!!! The Bible clearly say YOU must ASK Him to be your Lord and to forgive you (as only He can)and to come into your heart. Geralyn has been looking for something for some time and I belive she has found it. We had a wonderful time at the conference. Front row!!!! The hotel was grand and the time spent with the women I chose to sit with me priceless BUT to know that one more name was added to Heavens list that just can never be matched.

Mom, I thank you for being so giving. You see my mom gave her ticket to Geralyn so she could be with me "front and Center". I thank you Lynette for the time spent praying for Geralyn and for sharing with us so many time what God has put on your heart. Beth, I do hope you get the chance to read this, I thank you for being there in the front row with us and for not being afraid to share the truth of Gods word!!! You my friend have a story and a purpose!!! I do hope this is the start of another friendship!!! I pray God blesses all of you women truly... deeply.

Geralyn, You are and have been a wonderful mom, woman and friend. You now have so many people there hon to walk WITH you, TALK with you, Cry with you and Laugh WITH you. I my friend could not be happier (even as I cry writing this). Your life Geralyn was placed on my heart by the Lord. He asked me to share with you and now he has let me have the reward of seeing you come to him. I am here any time any day. I am just a call away. I know it will not be an "easy" walk for you as we live in a world of sin BUT my friend it will be "easier" because of the choice you made on Sept. 18, 2004!

Should ANYONE of you that read this have ANY questions about what I have said PLEASE call, write, email or snail mail me. This IS the decision that CAN and WILL change your life.
With Love, Denise

Thursday, September 9, 2004 6:09 AM CDT

As many of you know yesterday was the first day of school. All went well... Thats what the kids say any ways.

Missa had her hearing appt. It was not as bad as we had expected (based on the report from the school). After talking with the auidologist we decided that hearing aides were the right choice for her. So now we wait for approval from the insurance companies and then she will be fitted. We are hoping to have them by late Nov. (this is just our guess). She can not wait to pick out "her" color!!! And I was worried about them being "to visable". She has no fear and I hope that continues.

We are dealing with the remains of Fances now... NOT as bad a Florida but it has flooded the road between us and Darrens job (it had finally dried after last weeks rain) in less the 12 hours. They have closed it already. Darren must go around Robin Hoods barn now to get to work.

Todauy will be my first day of full day school (for my kids) with no one here. I am feeling a bit weird about not having kids here... I am sure I can find SOMETHING to get my mind off of it... HMMM a NAP sounds good (hehe).

Friends, Denise (home alone!)

Thursday, September 2, 2004 7:05 AM CDT

So we have survived the "flooding". So many people have been hit so hard around us... We had 3 days of HEAVY rain. we figured it out and if it had been sown in one day alon it would have been over 6 foot!!!! Our neightbors dock has been moved by the water and is covered!!! Hope they do not loose it!!

Missa continues to do well. I can not wait to get her hearing checked. Now I just want it done so we can continue with life!!! I also want her to be able to hear things in school.

Zach well he is still very much the little boy. Riding his bike through ALL and EVERY puddle (left by the rain)!!! He is excited to head back to school next week!

Tori is home and thrilled with her new pets... They get held alot. She has started getting her things together for school (there is still so much to buy). I know she can not wait to get back and see all her school friends. Her "party" is still on for Sunday she will have 5 (if they all make it) friends from church to spend the night.

Monday will be a day for celebrating!! Yes I knowits labor day and I am gratful for that to... But most of all its the day we will celebrate the love of my lifes birthday (yes , Darren)!! Darren will be 33 on Tuesday so the party is our house Monday (so pop by even if I forgot to call you!). This man is truely a gift from God and I am not saying that lightly. There is no one I would have rather been by my side through the last 10 years and several before that as just best friends. He has a heart of gold and a mind for the Lords truth!! So important now that my walk is back on track. We have never been so happy.. Even after all we have had to go through. The Lord has blessed me and for that I thank Him every day.

I am exctied to attend Women of Faith is 2 weeks!!! Remeber I won the Grand prize last year so this year did not cost me or 3 friends!!! Its been so nice to share God in this special way. To my mom I say thanks for giving your ticket so others might go and for STILL going!!!! It would not be the same for me if you were not there. I am sure Brooke and Bobbie will enjoy your company and spritual strengh!! I will update once I am back from the conference.

All for now I need to clean (with all the company this weekend), Denise

Thursday, August 26, 2004 7:46 AM CDT

Thanks to Geralyn I have NEW PICTURES UP!!!! What a great friend!!! Thanks again!!

I finally got every thing together for Missa's hearing test... Set for Sept. 8th!!! NOW FOR THE GREAT NEWS!!!! Missa's immune system is returning. Not perfect yet BUT she does not need drugs (IV'S) every month!! She is thrilled.

Tori will be home in a week (or so). We are all excited to see her. I am pretty sure she will head STRAIGHT to the front porch to see the new pets!!! I would also bet they get held LOTS for a week or so!!!

Babysitting is going well. The kids get along (like kids do). Having 5 kids all 6 or under is not easy but I am getting into grove with it!!! I will say that I am now looking forward to school!!!

I should run and clean up... Today is a day off!!!

Love and Friendship, Denise

Friday, August 20, 2004 1:37 PM CDT

Sorry its been so long (had troble with the the puttor).

Yes Aug. 16th was my birthday Kathie and it was nice thanks for the birthday wishes!!! Darren and the kids gave me my gifts last night (which was mine and Darrens 9th wedding ani). SO what you ask... Well I got a new watch, and new worship CD (2 disc set) AND and Heart necklace from my husband... It has a cross inside it... He said its because he know I have (and want to have) Jesus in my heart (is this guys the best or what)!!! Well let me tell you about what came next... As he put it around my neck he asked me if I would remarry him!!!!! YUPPER HE PROPOSED!!! My heart melted!!! So I have been on cloud 9!!!! Well most of the time...

You see Missa and Zach (Tori to but no info right now) ALL had Dr. appt today... Zach is FINE a normal child!!! Missa has taken ANOTHER BIG HIT!!! The school nurse (it was so nice of her) checked so I did not "waste" time with her Dr. Well as it turns out when I called to get her a appt at her audiologist they are book TILL NEXT YEAR!!! This was not fair to her I felt. SO being the mom I am I found a NEW ONE and she will be seen Sept. 8th (the first day of school). I am very sad with this news. I know people are thinking WHAT!!! SHE HAD CANCER AND SHE IS ALIVE!!! Well when faced with cancer there were to "roads" life and death and I WOULD NOT think Death!!! So really there was only one!!! With this I do not see her "recovering", I know it may sound wierd but these are MY feelings!!! Thanks for understanding...

So you want to know what else I did on my birthday... We adoptted guinne pigs (sorry about the spelling). Tori is excited to get home and meet them but in the mean time Missa and Zach keep them VERY BUSY!!! So now its the 2 of them and 2 fish and 1 bunny!!! I must be nuts!!!

I need to run so take care!!! All my love, Denise

Monday, August 9, 2004 7:38 AM CDT

We have had a nice week. We are all missing Tori like crazy... She has lots of stuff planed for this week. Zach and Missa will attend VBS (at a local church) this week with their friends. SO daddy and I have a few free hours each evening.

I am getting ready to turn 35 (1 week from today). I am not sure but I think it is bothering me... 30 did not but this year I just seem "off". Oh well. I am looking forward to August 19 no matter what. Darren and I will celebrate 9 happy years together. Next year is 10 and we are planing to renew our vows in our church with the kids standing by us!!

Darren and I are spending time looking for a new (used) van. YES Micki we are looking. We shall see where the hunt takes us. I signed the papers for my "new job". Three kids three times a week. Hope it works out!!!

Well I want to run... Need to clean out the Aunt Micki room for next week!!

Love and Friendship, Denise

PS A very happy birthday to our friend
Mari (she turn three today).

Thursday, July 29, 2004 8:52 AM CDT

Dad got the call yesterday and he is cancer free!!!!!! They will recheck him in 4 months!!! God has blessed this family.
Please pray for our friend Lin (and family) as she is dealing with health issues right now.



Still no news on my dad (no news is good news right?). I will let you know when I get some. (see above)!!!

Missa and Zach are doing well. They can not wait to get to grandma's today. I am going to visit a friend in the hospital and so they get grandma time!!! They could not be happier...

Tori has left for her BIG summer trip!!! Kansas bound... Well Ohio today Kansas tomorrow. If anyone needs her address (she LOVES the mail) just email me!!! She ran out of time to give it to everyone!!!

Well not long now and I will be 3 years older then my hubby (well thats what it will sound like). I will turn 35 in just a few weeks. Its a special time of year for me as this is the time that Missa finished her radiation (2 years ago). It is a nice way to remember my birthday!! August 16, 1969 (& 2002!!). Our aniversery is the 19th and we may leave town. With the kids. There was this AWSOME magician in DC when we were there and I past his name to Aunt Micki. She volunteers at a place to sick kids. Something she started doing JUST before Missa was diagnosed and took on new meaning after that. Well the director call this kid (YES he's a kid 16). So he could not make it last week BUT it looks like he will be there on Aug. 19. We hope to be able to make the trip!!! Wish of your best!!!
Friends, Denise
PS Tori we already miss you!! XOXOXOXOXOXOXOXOX (OOOOOO'SSSS from Chase)

Saturday, July 24, 2004 7:29 PM CDT

Well, Sorry it took so long to get back and update. Missa's test went well. Her CT was CLEAR OF ANY NEW DISEASE!!!!! Praise God!!! Her Echo went well (it sounds like there may be a few issue BUT NOTING LIFE THREATING!! So we will talk the next time iam in the office. Her blood work was also good and we get to STOP the one med she is still on!!!! So all in all a GREAT DAY!!

The kids have kept busy. They even slept in till 9AM!!! My kids!!! The ones that get up at 6:30AM!!! Darren and I were so happy as we were exhausted!!

Well all for now as I need to get the kids in the tub!!
Friends, Denise

PS Please remember my family in prayer as we are waiting on some news from the Dr. about my dad!! Thanks

Tuesday, July 20, 2004 3:41 PM CDT

Well I have been very vusy with VBS this week. Things are going well and the kids just LOVE it!!! We have had about 55-60 a night so far!!

I woke from a nap yesterdya to get a message from the hospital (Missa's dr is in the hospital). We are calling to confirm Missa appt. on Wednesday July 21 (the voice says). WHAT???? I take a minute to think and I KNOW she did not have a appt. that day as its my sisters birthday and I would remeber that day!!! So I call and sure enough she has a CT and Echo scheduled for that day. All I can think is God did not want me fretting (spell?)!! Missa's new ONCO also wants to see her so we will have a busy day!!

Before Missa's appt. tomorrow we will attend a funeral for our friends dad. He passed away Sunday morning. Please keep this family in your prayers. They have kids and they (the kids) are not dealing to well with it right now. Its not easy to loss your grandpa.

I need to go finsih feeding the kids and getting ready for VBS!!! I am teaching tonight!!!

Have a GREAT week!!
Denise

Wednesday, July 14, 2004 6:27 AM CDT

Another busy day!!! Missa and Zach are headed to gymnastics (their birthday gift from grandma). Tori and I will head to the Nurse practioner to drop off crutches (hurt my knee last week), pick up Tori's papers for camp (SHE IS THRILLED!!), and get my shots (me not so happy). Then we run back to get the little ones and head over to the zoo with Missa's ONCO. office. We thought we were not going to make it but they called and said just come late (so we will).
Tori heads off to camp Sunday till next Saturday morning when Uncle Adam and Stacey will pick her up and have her for the weekend. She can not wait to have them all to herself. Hey its tough sharing Uncle Adam when you have had him to yourelf for so long!!! She will return on Sunday ONLY to have me wash her clothes to head for Kansas. She leaves the 28th!!!

Missa wants to see Brian (so if 7H is reading give him a heads up please!). She wants to go bowling again. She had a great time with Brian and his granddaughter in the winter!!! I will have to call him soon (or else). We are STILL waiting for 5C (the Dr's office) to call with her CT/Echo schedule!! Should hear from them soon!!

Zach is doing great. He loves his gymnastics class!!! He's like a monkey . Everyone is excited about lunch today with Jared and Mari.

Darren is BUSY at work!!! This is GREAT for us. They are STILL pulling people FROM syracuse to go out to Rochester to work!!! Hey Syracuse is now doing DOUBLE DUTY and they wanted to shut us down!!!!! God has blessed us!!

Me I am doing good. Want to start walking again. Last weeks knee set me back again. Its better now (really). i am excited about VBS!! We start this Sunday night!!! I am co director this year so we have all been VERY involved!!!

Will updtae later...

Friends, Denise

Wednesday, July 7, 2004 7:34 AM CDT

Good morning. I wanted to up date but have been sooo busy.

We did make it out to our friends camp. We left Friday late afternoon and made it in time for dinner. We watched some fire works and had a bomb fire (yes and "some mores" too. We headed to bed around 10:30. I had a rough night with my back I think it was because I have been coughing SO MUCH with this cold. We got up around 8 and made breakfest for everyone. I went back to bed!!! This is not like me (I slept till 11:30AM when Darren woke me). We had some more time to visit (and eat) and then we left aorund 2PM. The kids were getting tired so it was time to go.

Sunday was church and we taught. The kids listened well. They knew we were headed out side and had ice pops!!! We headed up to Fulton so another friend could help us out by fixing our van. His wife and I scrap booked and the kids were in the pool!!! What a nice time.

Monday Tori became a "certified" babysitter. She is not ready yet to be on her own for to long but we all felt the cousre would do her good. Darren and I (M&Z too) left to go to Na's (my sisters) new house. We hung out... Darren helped Chris with the shed and I grabbed a paint brush after finishing off her kitchen (thats the room I always do for her when she moves). We took Jake home with us for the week. My sister emailed me a while ago and said she will stop to see him tonight as she will be in town. Caitlyn says to me "NENE, I do not want to stay... I go home with you". My heart melted. She just to cute.. She LOVES the new place BUT she hates it when Jake is gone so hey why not join him!!! Caitlyn turns 3 next week (July 18). We can not wait!!!
We (the kids and I) are headed to a birthday party for Xander today and tonight activities depend on the weather. It is supposed to STORM here tonight. I should run a few thing to do (like wrap the gift)!!
Friends, Denise
PS we would like to thank you all for your friendship!! It is such a blessing to us!!

Friday, July 2, 2004 4:50 AM CDT

What a week!!! The kids are done with camp. I am not sure how happy they will be about that but their done. Once again camp was way more then they had dreamed!!! Chrissa does an AWSOME job with that!!!

Missa did have one LITTLE thing that bugged her... she was unable to white water raft. I left the decision up to Chrssa and shedid the right thing. With Missa only having one kidney its not always easy to make good choices for her. So many people say "lots of people live with one kidney" to which my new responce is "Well did they have 5 rounds of HIGH DOSE chem, a Stem cell transplant and radiation". This stuff DOES take a toll on your organs. We have been told that Missa can NEVER have more chemo as her body has had all it can take. Darren was upset by the situation. Not because her thought Chrissa was wrong but because this will forever be a reminder of what Missa endured. I reminded him how wonderful God was with ALL the answered prayers to spare her little life and he did. What more can we ask for.

The day after this happened Darren returned to work (early sift this week). On his saw he found an obit for a friend. The guy was 31 and died from a massive heart attack. Darren was crushed and I could tell. What a week for my husband.

We will be trying to get out of town. Just for one night with some friends (at their camp). Should be fun if it all works out!!

I had a WOBERFUL time last night with the ladies from church. Thanks to Geralyn for coming (everyone was glad you made it). It just so nice to get out study God's word and enjoy the ladies. My husband met me at the door (I did nto get home till 10). He brushed my hair and rubbed my feet!!! Is this man to good to be true or what. He wanted me to make it last night so badly (you too Geralyn). I think he was just glad I went (so was I). I havethe BEST husband and kids a girl could have!!

Love and friendship, Denise

Monday, June 28, 2004 5:48 AM CDT

Lets start today with Zachs eye. He looks so much better and he has not said it hurts in a while so I think all is well.

Missa woke Saturday and JUMPED into bed with mom and dad... She grab her ear rings (a birthday gift from one of the kindergardners) and says "I want my ears pierced". WHAT!!! We have NEVER talked about this so the only thing this was based on was the ear rings. We talked with her a bit and sure enough she wanted to go through with it. So Ma and Caitlyn (DJ was moving)Tori, Missa and I headed to the mall. Missa told daddy and Zach to stay home this was a girl thing (where does she get this stuff). So she now has pierced ears and they look lovely!!

Shannon, Thanks to you (for writting it) I now have your moms cold (hehe). I feel just awful!!! I cough and my nose runs (or not and I can not breath take your pick). I did make it to everything we had planed this weekend BUT I had to cut some things short. I am headed out to drop the kids at camp good days and Tori is with her grandparents SO I will come home and go straight to bed!!! I have not felt this bad in a LONG time so I should eb counting my blessings (maybe tomorrow when I feel better).

Well as I just wrote I am headed off with the kids so they can go to camp!! They LOVE this time away from mom and dad and camp has LOTS of COOL plans for the week. I will let you know how they do later!!
Hugs (no kisses I have a cold), Denise

Monday, June 21, 2004 6:28 AM CDT

BIG NEWS......BIG NEWS!!!!!! Ok since my last update (hey things happen FAST around here!!). Darren took all three kids to sandy baach last night... YES there is a story... Well they were playing games jumping and running in this underwater beach.... Missa and Zach started a mud fight (we do allow this in the water)... Well I could hear Missa YELLING "I am sooo sorry" over and over... Now I am at home so I run out to the canoe and she is in histarics. Zach is screaming and holding his eye. I thought Missa had been stung and to be honest had no idea what had happened to Zach. Well as it turns out Missa had tosed some mud and Zach caught it IN HIS RIGHT EYE!!! It was SOOO very full. Darren and I tried to wash it out but there was MORE AND MORE each time. So off to the urgent care we ran. The girls stayed with Ma in the waiting room while Daddy and I were with Zach (he does NOT handle Dr.'s well at all). Thanks mom for covering for me with the girls. SO the numb Zachs eye then we wash it out some more. The next step was to color it and look at it with a blue light. Now mom had called my dad and he was praying for Zach (all of us I am sure but special prayers for Zach)... The Dr.'s see's no scratches on the cornia but says there may be some on the lid and white of the eye as these would not show. We were surprised to hear not one scratch!! There was just so much in his eye. Prayers work. Missa was all calm when we got her back and they were all just tired (it was 10:30 PM when we got home). So that was the fun for the night. Oh one thing.... Zach was WORRIED about how Taylor (his wife) would responed to him since he had sand in his eye. I asured him little girls LOVE little boys with boo boo's!!!
This AM I became the mom of 2 1st graders!!!!!! I was overjoyed. Ok so I cried... I am a wimp!!! Missa and Zach did so well with their parts (they had a short play). Then to see them in red and black caps just made my heart melt. Its a new door that I (we) have been allowed to pass thru... I am forever grateful to our Lord!! Monte, Thea and Hannah (our pastor his wife and daughter) Ma & Pa (my parents) and Grandma (Darrens mom) were all there to watch with us!! I could not have been happier!!!



SUMMER TIME!!!!! Ok the kids are EXCITED!!! They (Missa and Zach) graduate tomorrow morning. I are so excited. Then next week is CAMP so they get to play with Jared ALL week!!! These kids do not get much happier then that.

Tori is off for her last week of school. Hard to believe next year will be her last as a Jr higher!!! She has choosen to take spanish (anyone out there with good advice *books, tapes, ect PLEASE let me know). I never took a language, Darren did (spanish) so I am sure he can help (more then me any ways). Tori will head out to she her dad in August. She is thrilled as the rodeo will be in town while she is out there!! I think she will be able to head to 1 week of camp here before she leaves. She and I will take in a FREE movie next week after I drop Missa and Zcah off to camp (just mommy Tori time doesn't happen much)

Missa and Zach have lots of summer plans to... Birtdays... Baseball... camp... the zoo and so much more OH wait I have not mentioned the most important thing Gymnastics camp!! Their birthday present from grandma!!! Lots to do before they head out to 1st grade!!!

We had a wonderful weekend. We (Darren and I) spent Friday night out with my girlfriend (Aunt Micki). It was her birthday (you turned -- first Micki). Micki is 2 days shigh of 2 months older then me!!! So I can pick on her for that time. We had a nice visit with her. Saturday I made it Fathers day. I knew we had to head out early for church so the kids and I gave Darren his presents and I left (at 6 AM) to get FRESH HOT bagels. Darren was happy. Yesterday the kids cooked for daddy while mommy had Krispy Kremes with the girls upstairs (at church). We spent the afternoon with our families. Since Darrens mom raised him and hi brother by herself we like to honor her too on Fathers day. Hey its not easy playing both roles I am sure, and speaching form hte bottom of my heart she did an AWSOME job with both boys.

I need to run and FIND my neice!!! I have her ALL week so I will stay VERY BUSY!!! My sister and her husband close next week on their first house!!! YEAH!!!

Love and friendship, Denise

Monday, June 14, 2004 9:39 AM CDT

NEW PICTURE ON THE PICTURE PAGE!!! Thanks be to Geralyn (Jared's mom)!!!!
Also new since this AM. I went to get my allergy shots!!! OK so that does not thrill ya huh!!! Well when I go I weigh myself... I had resigned myself to the fact that hey we had 3 parties, my blood levels have been off (not walking as much) and so on. SO I figure if I gained a poud (or 2) I will not beat myself up. WELL IMAGINE MY SURPRISE!!!!! I have LOST 20 1/4 pounds!!!! I am pleased!!! I can feel it really. This is just me working on getting into better habits imagine when tge kids head back to school (hello they are not out yet but hey I have hope) and I can join the gym!!! Thanks for all the support!!!


Good morning!!! We had a wonderful weekend/late week. Missa's Dr. appt went great BOTH dr.'s think she is doing wonderful!!!! Her ONOC. was away so we saw a nurse practitioner (she has seen us before). She thinks Missa looked and felt (checked her tummy) GREAT. We will do a CT (chest, tummy and pelvis) and an echo (because of the chemo she can have heart problem at ANY point in her life). Zareina (sp?) did say that for a kid with the disease Missa had she is just amazing!! Her immune Dr. was pleased also we will do blood work in August and see them in Sept. So all in all not a bad time. Oh I should tell you they sang to Missa and gave her gifts. Missa and I did not realize they were singing to her!!! She loved the gifts and song!!!

I had a Pampered Chef party Saturday while the kids and daddy went to a birthday party for Missa and Zach's friend (all of ours really but he was the birthday boy). Everyone had a nice time. After the parties Geralyn, Jared and Mari came to PLAY and FISH!!! The boys caught plenty of fish and the ICE CREAM MAN came down our road.... He NEVR Does!!!! So this was Special!!! After dinner Missa and Zach opened cards from Jared and Mari. Geralyn had mentioned Jared picked something out for Missa. Well are you ready for this (SHANNON!!!)..... he gave her a ring... one BIG AWWWWWWHHHHH. These two are to cut together. Jared did give Zach a ring to (I guess he asked mom why he had too Hehe). Missa and Jared have a VERY SPECIAL bond and I hope it last a lifetime!!!! I gave some pictures to Geralyn from our trip so (maybe) she will be able to upload them to our site. You will be able to see (the future) Mr President and the First lady. The picture was taken (by me) outside the oval office!!! Missa and Zach can not wait till Camp (just 2 more weeks) so they can play with Jared ALL DAY!!!

Next Monday is Missa and Zach's play and picnic... and Tueday is a day I will never forget I am very sure as my babies walk acrossed the stage to get their diplomas!!! I am crying and not sorry to write that as they are such happy tears. A few years ago they told me my baby only had a 30 maybe 40Chance to live and now she is full of life and has finished her first school year with many to follow. You can not tell me there is no God or that He does not answer pray. We have been so blessed!!!!
Love and frienship, One proud mommy

Tuesday, June 8, 2004 1:26 PM CDT

Last week was filled with TONS of agians (they are like first only again)... Missa lost a tooth AGAIN, the tooth fairy came AGAIN, we party AGAIN AND AGAIN AND AGAIN!!! The kids were on TV (news) again. You can see how the week went right.

Missa is THRILLED to have 6 teeth gone (3 on the way back in). Both her and Zach had a WONDEFUL time at their party Friday night (this was their school friends). In all we had 23 kids running around (I am NOT nuts and I have had dr.'s tell me so). Every one was well behaved (ok so we did have a mishap or two). I could not belive the PILE of presents!!!! My in laws stoped by (not planed) and we had to load SEVERAL gifts into their van just to get home. It was crazy. People were VERY giving!!!! We felt very blessed once again. Saturdays party went as well too. We kept it a little smaller (yeah right Darren thinks it was hehe). It was a wondeful time with friends and family. Some new some old. Darren and I love to reflect on all the love that is given to us. We are so very blessed.

Sunday we had church. We did miss Sunday school as the kids were WIPED OUT. After church we headed to a frieds house to play (and scrap book). We had a nice time.

Yetsrday was the fundraiser for Camp Good Days and they invite the kids (Missa and Zach) and I every year. The kids only lasted about 1/2 hour last year this year I had to peal them away. They ate lunch and then rode the golf cart around for about 2 1/2 hours!!!!! UnREAL!!!!! They ended up on the news with an ex football player (Raven). The guy was HUGE!!! The funnest thing ... my son decides to "play" with this guy ( who could kill Zach by sneezing near him). I turn around and Zach is "boping" this guy on the head with a balloon. I said "sorry" and the guy was like "he's just playing its ok...." . This guy had to have his own golf cart!!!! HES THAT BIG!!!!

Missa and Zach both had chest Xrays and CT's of the sinus today to see whats up with them. Missa is getting sick every month then antibiotics and so on... Zach gets sich then he takes antibiotics then he is better for 3-4 weeks then BOOOOMMMM he hits 103-104. Hope we get somw answers. Missa sees all her specialist this Thursday too so who knows what we will find out this week.

Ok going to run!!! Lots to do!!! BUSY week!!!!
Love and friendship, Denise

Tuesday, June 1, 2004 9:15 AM CDT

Guess what!!! Missa went and lost ANOTHRER TOOTH today!!! That makes 6 now!!! She is VERY proud. She is missing the two middle top (the two middle bottoms are back in) and the two on either side of the new bottoms are missing!!! She loves it when we can update with this kind of news!! Have a nice weekend.

Tomorrow is now today... You guys blow me away!! I want to tell you all thanks for signing in. I about cried (ok so there was a tear of two) to know so many people still check on us and care so very much. I wanted to thank a few ladies who keep me together... Of course there is my mom a wonderful and beutiful Christian women who brought me up to know right from wrong. She is the one I learned how to share from (not my friends). Our house always had an opne door. Thanks for that mom (I would have to say my friends thank you too). To Micki WOW what do I say. You HAVE and WILL be there no matter what. You have proven that to me time and again. Thats a friend. Someone you can wake at 6AM to tell her your scared or you can call her to tell her you twins just started walking. It is my honor to call you friend and I want you to know I love you!!! To Shannon, Hon we have never met (but in our hearts we have time and again). You make me smile DAILY!!! You make Missa's (all my kids) world a better place and for that I am eternaly grateful. There are many more but these are the women who make me... A better daughter, better friend, a better person a better mom!!! All my love ladies!!


Tomorrow my babies turn 6... I can not belive it!!! Time has raced by us some times. Both of them are soo excited about their birthday this year!!! They have not asked for much, Just to be able to buy a gift for the other one (AWWWWWW) this year!!

Both little ones were sick Sunday. Zach looked like he had pink eye and Missa's imune system is dropping out again. So I stayed home with them and Darren and Tori went to church. They got to stay and finish left overs from the wedding (pastors daughter). Both kids were doing better Monday so we kept our plans to BBQ with friends. We had a nice day over all. It did rain about the time everyone started packing up to leave.

We do hope you all enjoy your week. We have so many things to do. Party with church tomorrow... Friday night school friends and Saturday friends and family!! I will update some time when I am not cooking (could be next week)!!

Tuesday, May 25, 2004 3:24 PM CDT

We had a lovely weekend. Aunt Micki got into town on Firday and we went to Sylvan Beach for dinner (thanks Micki). It was a beutiful day and we did not want to sit around at home. Oh yeah Micki Darren (and Tori tonight) ate your leftovers!!! Dinner was GREAT!!! Saturday I took the kids to the zoo with Missa's Dr.'s. They pay for us to go and they have private shows with animals, lunch and goodie bags!!! We had a nice time (even in the rain). OK who out there picked up on the fact that I took the kids and not Darren and I.... WELL Darren had OVERTIME!!!! YES!!! He worked for 6 1/2 hours. After the zoo we went to Na's to pick up Jake. We called Darren and grabed him to head to Shrek 2. Funny movie. It had sold out for the show we wanted to see so we had to wait an hour (but it was worth it). Then it was back home to play with aunt Micki some more. We had some HUGE storms (even sent the kids to the basiment one time). Sunday was chrurch and a NAP!! Zach slept for 3 1/2 hours and then we HAD to wake him. Tori had youth group so we went to Ma & Pa's (my parents) to eat and play. What a weekend now that I read it!!!!

Today was a GREAT day for Darren. I got a call this AM from a guy up the street. He is with a group that works to "preserve" the lake (Onedia lake). Well the guy calls me by Darrens moms name and I said no I am Denise his wife. Ok he says well Darren WON!!!! WON what??? I said. A GPS (can I just tell you how bad Darren has wanted one). SO I called Darren to tell him and walked up the street to pick it up. The guy told we its worth $200. SO COOL!!!

Well need to run Darren is home!!! Want to see him with his new toy!!!

Love and friendship, Denise

Monday, May 17, 2004 2:42 PM CDT

Wow how time flies!!!!!! Missa is now 2 years and 1 week out from transplant!!!! Can you believe it!! She looks and feels GREAT!!!

The kids had a BUSY weekend. Mommy had a party Saturday and Sunday we had Jake and Caitlyn all day (Na is trying to buy a house). We are looking forward to this weekend when we get to attend the ZOO!!! Missa's Dr.'s (both ID and ONO) have family zoo days and so we get to go!!! The kids love the zoo so hey why not go for FREE...

Unlce karl is better. He did not have any blood clots (a VERY good thing) but he has dbl. pneumonia. That stink huh!!! we pray that he will be better soon. My Aunt says this hospital has been just AWSOME with him and that is GREAT since he has had so many problem in the past!!!

OK well its a nice day and I want to get out and MOW AGAIN before the rain tomorrow!!! Thanks for stopping by and saying Hi... We do hope to see some (ok most) of you June 5th for the kids (Missa & Zach's) birthday party. I know I am behind with the invites but I am working on it and hey your all invited ANY time any ways!!

Love and friendship, Denise

Tuesday, May 11, 2004 10:06 AM CDT

FYI I am STILL trying to get the Washington pic's up... Our friends have theirs up so take a look (there are some with Missa and Zach and even Tori). My girlfriend is smart enough she gets SEVERAL pics on at a time so look around!!! The site is www.caringbridge.org/ny/jaredsaya
HURRY


I had to get my shots today and guess what I step up on that scale (this is the one I used when I started) and it said DRUM ROLL PLEASE.... 17 pounds GONE!!!! Thats like a whole baby!!!!

On not such a happy note my unlce Karl is not well at all. He is in critical condition in the ICU. Please pray for my aunts as they are running from here to there and back again. Not to mention what these sicknesses do to Uncle Karl. Last night was awful he was unconcious for a while, he turned blue, his O2 stat was at 80So you can see just a small part of how he is. Please pray for him and my aunts and for them to all have peace.
Thanks



Ok first off sorry about the yellow Missa picked it and so I felt I should leave it for a few days (I know it was very hard to read).

I had my last never block on Friday. Darren and I were at the office all morning!! I was hoping to get in and right out but not this time!!! I did get on the scale and I am down almost 15 pounds!!!!!! We are both pleased about that... The Dr. was glad to hear I was able to walk now to since I was feeling better to all things considered I think the blocks went well for me.

Mothers day was wonderful. We (Tori, my mom,my sister and my self) went to the dinner at my church Saturday night. It was nice to be waited on. Tori and I won the $10,000 pyramid game. She gave and I recieved!!! Was funny to watch I am sure!!! Darren and the kids had cards and flowers for me Sunday morning before we headed off to church!! After chruch several friends (including our pastor and his son as his wife is away) came over for dinner. We had a great time sharing stories about our kids!!! And boy did we eat!!!! All in all it was a splended day.

The kids are back to school and today they are extra excited as they took their invites to give out to the kids in their classes!!! We have never had to do this so here goes nothing!!! Zach can not wait till he gets to have his friends over Missa is excited but not the same as Zach is. May be more so in 3 weeks!!!

OK need to run and get stuff done!!!

Love and friendship, Denise

Tuesday, May 4, 2004 7:25 AM CDT

Zach contiued to be sick yesterday (he was home with mom). He got up to 103.7 in the late morning. So MORE drugs!!! They do seem to be able to bring him down. So we have not taken him to the Dr. as it is probebly viral and well I do not feel like paying someone to have them tell me that!! He has had his antibioctic just in case. Today he seems better. He did not 'spike' during the night like he has since Friday night. So I think we are on the wasy out of this yucky stuff. No one else seems to be getting it so all is well.

Missa, Zach, daddy and I ran over to Jakes game for just a few minutes last night (had to get out of the house). Jakes team lost but that does not matter as they had spirit!!! YEAH JAKIE!!!! Tori had rehersal for the play she is in so she did not go.

Tori will have another busy weekend. She is headed to a birthday party with Shelly (her dads wife). It is her nephews 1st (hope I got that right) and Tori could not be more thrilled to be invited. She is hoping to go shopping tomrrow (She has not had the time Shannon but she can not wait till tomorrow). She says she'll have a "new look". To cute!!! Then she will meet me, my mom & sister at church for our mother daughter dinner. We always have a great time. I even havea few surprises up my sleve (watch out mom).

I think Mothers day dinner will be here. We have invited my mom, dad and my sister and her family, Lin and Pierce and Noah too!! We always have a nice time together.

Well I want to run and cook dinner (so I have less to do later). Thanks for stopping by!!!

HAPPY MOTHERS DAY to all our "mom friends"!!

Love and friendship, Denise

Saturday, May 1, 2004 6:47 AM CDT

Zach hit 104.1 this AM. Please keep him in your prayers!!

I am trying to put up some new Pic's and its not going well...

You will not believe this... I WON!!!! They gave a way Flower pots (with flowers) at the conference I went to and I was the winner... Anyone who knows me wil think this is funny. I have been on a roll for years now!!!


Good Morning, Thanks for checking on us.

Missa has chosen to use her tooth fairy money to buy her and Zach a chocolate rose (school fund raiser). She is too sweet!!! She is doing great right now. She has even learned how to roller blade!!!!!! Our friends at church gave her a pair!

Zach well hes another story... He is running a temp (highest so far 103.4). We had a refill on his scrip so we refilled it (our kids seem to need two rounds of antibiotics). Hope he feels better soon. He too has taken up roller blading (thanks to Nane and Jake). Jakes had gotten small so down to Zach and he is going to wear them puppies out!!

I am headed out the door to a ladies conferance. I am excited to see what God has for me today!!! I am still dieting!!! AND its going WELL!!! I am walking! I will not get the chance today as I will be gone till 3:30 then I will get the kids ready for Grandma (Darrens mom). Then Darren & I will head out to a retirement party (I am eating ALL 3 meals OUT today). We have to teach tomorrow so our kids are thrilled!!!

OK well need to run so I am not late!!

Love and friendship, Denise

PS Mothers day is next Sunday!!!

Monday, April 26, 2004 6:26 AM CDT

As of last night Missa has lost 5 teeth!!! Yes, at last count she had lost 3 so here is the story (wish you could have seen it yourself). Missa and Zach had been chasing bubbles around the living room (in front of the TV). We (Darren, Tori and I) were watching TV, so after being told MANY times to MOVE they (Missa and Zach) started to wrestle. Well all the sudden Zach jumps "up" and grabs his knee (no crying) and Missa grabs her mouth and look ALL around her. I say "Missa did you loose a tooth?" (I knew one was loose). "NO"... Then I notice BLOOD coming frm her mouth!! Thats when she says "YES"!! OK daddy find the tooth Missa in the bathroom with mom to rinse and spit!!! Daddy finds the tooth in record time. As we are rinsing her mouth Missa is crying and holding her other top front tooth... I look and tell Darren he may need to help her (it was not being held in by much!!). She shakes her head NO and wiggles it 2-3 times and OUT IT POPS!!! RINSING AGAIN!!! I was LOL so hard. Missa, daddy, Zach and Tori laughed to. I get the phone (gotta call the grandmas) and sit down on the couch, Missa decides she needs a look. WAIT I need to tell you this ALL started because she bumpped Zachs knee with her mouth so he has a HOLE and BRUISE!!! OK so she decides to tak a look... Zach wanders into the bathroom (doors open) and look up at her and sighs... "I can not believe I am making you rich" he says!!! I about died. He knew this ment she was going to get $2 (and at 5 1/2 that my friends is RICH). They were to cute the rest of the night. Missa & I called grandmas and put her tooth under her pillow. I told you guys I was going to put in an express lane for the tooth fairy!!! I will try to get (and post) a picture of Missa NEW LOOK (its to die for really).

Other then this we had a pretty busy weekend. A wedding, I ended up teaching Sunday school as the kids teacher did not make it (what a busy group yesterday), Missa had a party, we had Jake and Caitlyn so DJ and Chris could look at houses, and the keys locked themselves in my father in laws van (don't ask). All in all a busy weekend Oh yeah and Aunt Micki made it over!!!! We always have fun with her!!!

All for now I need to get the kids ready and on the bus so I can take my morning walk!!
Friends, Denise

Monday, April 19, 2004 7:22 AM CDT

UPDATES....... UPDATES......
Miss Sammi is not feeling well so PLEASE pray for her and stop by her page www.caringbridge.org/ma/samanthatherese

My father in law was supposed to be headed home today but Linde still needs him (as of 12PM yesterday he was comeing home and then this change came). We (Darren and I) do not have alot of details but she does still need our prayers.

Jake had a great bithrday and got his PS2!!! He is thrilled!!!



First off!!!!! HAPPY 10TH BIRTHDAY JAKE!!!!!


Ok with that said... Lets see. Not much new to report. Missa has been under the weather part of last week so I did take her to the FNP Friday. They ordered a chest Xray just to be sure (she had an AWEFUL cough). The Xray was negative so we will just stay on the antibiotics and wait!!! She did feel well enough to head to school and the weather is GREAT today (80).
Both Jake and Caitlyn ( my nephew 10 and niece 2) spent Friday night here. This was not planed. Caitlyn REFUSED to leave my house. It was the funnest thing (I cracked up). My sister told her its time to go and she chimes in with NO I stay at NENE (what they call me). So DJ (sister) climbed into her car and "drove off". Caitlyn looks at the car leave and grabbed Missa and sadi Lets play Missa. I about died!!! So DJ drives back and Caitlyn STILL would not leave. MY sister just looks at me. I told Caitlyn ifshe wanted to stay she had to ask Darren. Now you must understand this child HATES Darren. She would not even go to the side of the room he was on 1/2 and hour ago. I think I've got her. She turns looks Darren in the eye and says Please i stay at nene's house Darren. WHAT you hate him!!!!! Now my sister is lol too. So she called her husband and hes like Well... until my sister reminds him its his night to get up with her WELL let her stay he says. So my sister leaves (for a night of peace and quiet). The kids played outside took baths and headed for bed. I should note that when my niece stays here she ALWAYS sleeps all night so we do not have to get up withg her!!! HEHE

I still have the same prayers need Karl, Linde, Jeff (recovery) and now my mom (MA) she is in LOTS of pain and had some Xrays done herself at the ER yesterday. Please pray that someone will get to the bottom of her pain soon. Thanks!!!
Love and Friendship, Denise
PS now that Jake has had his birthday Zach can not wiat for his!!! He wants to know how many days and I keep telling him 1 and 1/2 months buddy. He is so excited about be 6!!!!

Thursday, April 15, 2004 6:18 AM CDT

BAD MOMMY!!!! I forgot the most important thing to Missa..... She is now riding her bike with no training wheels!!!! She is VERY proud. She came in Friday after Darren brought me home from my nerve block and said its time and Darren said let me see andsure enough she did it. She starts alittle slow(remember we all did this and it does not work so well). We remind her to speed up (just alittle) and off she goes. Thanks for checking on us!!!

Thank you Ma for updating for me while i was gone.

We did have a wonderful time in DC!!! It RAINED the whole time. Sundays rain was "soft" so we headed out to some of the monuments. I saw the ones I really wanted to and I was able to stand the walking around!!! Monday morning we were unsure about the event as it was raining. They did still have it!! So we jumped into a taxi and headed over. Once on the lawn there was so much to do. Face painting (didn't let the kids do that as it was RAINING and we had a picture scheduled), all kinds of characters mostly from PBS (my kids loved them), they were supposed to read books but it was pouring so I do not think anyone wanted to sit outin the rain, and of course the egg roll. There was more stuff I am forgetting but those were the biggies for our kids. Missa loved the roll (OK theres a story). She took the slotted spoon they gave her and waiting for them tosay GO!! Then she gave the egg two gentle pushes (heres the story). On the third try she LUNCHES the egg into the crowd!!! It was so funny!!! We never did find the egg. We left the White House around 10:45AM and headed back to the hotel (we were drenched). we got everyone dry and made a few calls. Then we were off to the lunchion with all the other special guest (Childhood cancer surviors) Mrs Bush invited. What a nice time we had. I should also mention that our friends (Jari, Mari, Geralyn and Joe) made the trip too and Missa and Jared spent LOTS of time together!!! I took pictures of them on the White House lawn. Could this be a future president and his first lady???? Have to wait and see!!! Our local new (9) came out and did a story on Missa and the trip. It was very nice. Channel 9 is VERY involved with the new Childrens hospital and CMN soI thought they would like her story and they did. I did tape it to my DVR so anyone that makes it to my house can see it!!

So much to do today... Laundry and getting the kids OUTSIDE are on the top of my list. I also need to call grandma and see if she would like dinner with us tonight (grandpa is still gone). I will update again soon.

UPDATES!!!
JEFF is home!!!!! What a blessing!! All are thrilled... Now we just need prayers that his pain level will not get to high.

Uncle Karl... Will be having surgery today to "shut off" a shunt (I think thats how it was worded). Please pray for him.

Linde... Still needing those prayers. She is still having a rough time. Carl (my father in law and her dad) is there with her now so pray that all goes well.

Monday April 12, 2004

UPDATE FROM MA !!! The kids are in D.C.!!!

It is a pretty day here in Syracuse cool but sunny. Denise, Darren, Tori, Missa & Zach are having to deal with some drizzely/rainy weather in D.C. I spoke with Denise a little while ago & she said the weather is "yucky" but they are having a beautiful day !! She called me from the White House lawn. (I told her to see if she could borrow one of their phones like maybe ... the red one ... nah ha ha ) Last night they had dinner with the Saya's & I am sure the kids are having a lot of fun together. They were able to go to a few landmarks & I am sure she will update you when she gets home. Tonight they hope to hook up with Roland a family friend who lives in the area & may also see some friends on the way home. Just wanted to let you know they are having a great time.

Have a great day,
Ma

WE'RE OUT OF HERE!!!!! Have a wonderful Easter Day!!

NEW INFO:
We leave in the morning... Its suppose to rain Monday so I need EVERYONE to pray that it holds off long enough for these kids (all there) can enjoy their day.

I nerve block was well not as comfortable as last time, BUT I think I know why. I had taken a pain med BEFORE I left last time and not this time. So next time (and the last one) I will premedicate myself again. My husband is my hero and did EVERYTHING he could to make me comfy!!! Thanks my love!!!

Missa SHE IS RIDEING AND BIG GIRL BIKE!!!! She came is and told us it was time so daddy went out to check her and he let her go. She is starting slow (so its a little harder!!). We keep encourageing her to just "take off". She will be doing jumps like Zach in NO TIME I am sure.

Well everyone is still inbed here and I have LOTS to do before we can even THINK about leaving!!! We love you all and wish each of you a Very Happy Easter. Please take a moment to remeber the sacrifice Jesus made for YOU and Me. The choice is yours my friend!!! I can tell you knowing I have enteral life makes everyday a joy!!!!

PS To those that know I am dieting. There was a scale in the dressing room at my appt. yesterday. Drum roll please!!!!!! 11 pounds is under 3 weeks!!! I am so very happy and can not wait to watch the rest of the weight "fall off". Please pray that I stay determined.
Thanks



We leave in just 4 more days!!! We leave Sunday morning. Can not wait we have gone though the maps with my father in-law as he has family he sees down in that area. He was a big help and we got it all mapped out. The kids, they are BOUNCING off my roof!! They can not wait and I have not told them about all the things that will be there!!! I can not wait to call my mom and dad from the White House. Darren says I should ask to use their phone. I told him thats rude as they have already invited us we should use our cell. But maybe the President would let me use that nice red phone I have heard so much about hmmmmmmm......

Ok now Zahc news.... He is now riding his bike with his little bottom off the seat!!!!! Scares me half to death (Shannon you will know what I mean soon enough). Darren says he is doing "jumps" with the little boy acrossed the street to!!! I have not seen this if I had I would surely have had a STROKE!!! He also decided to surprise me lets see Tuesday when I laid him down for nap. He comes in (with his hand held OUT) and says "here mom". Silly me "whats that?" Zach, "my tooth I pulled it out". Just then Blood starts running over his lip!!!! It was funnier then it sounds. The tooth fairy came with a buck.... Not sure maybe Zach needed the money for something (hehe). Yesterday when I got home with Missa (I am wiped out) Zach went into the laundry room took the laundry out of the dryer (they all made it into the basket, then he took the laundry out of the front loader (told you ladies I love this thing). He then loaded the dryer AND turn it on to 60 min. He came out and says "mommy I set it for 60 because it was a big load!!!!" I noramly runit for 30-40 since thats all it takes now (with 10 mintues of cooling time). gotta love this little guy!!

Missa... She is thrilled to be "done" with (the trial) of her meds. She was spoiled at the Dr.'s yesterday. She got a bunny and tooth brush and a basket for her AND Zach just FULL of Easter goodies. When we got home see was trying to bite into a chunk of chocolate and her tooth became loose (do you see where this is headed). YUPPER 5 mintues later IT WAS OUT. I told them the fairy is going broke!! I told Darren we need an express lane over our house for the Fairy to drop in nightly!!! She was thrilled and call everyone right away!!!

Tori... She is busy studying to win a contest (the prize is a HUGE bucket of candy) in youth group. She was upset that we had to leave chruch last night. Right after churhc started Zachs teacher brought him down to me saying he was not well (he had toosed a few cookies earlier). He did it again so we left. He is fine this AM. No big deal we just could not leave him with someone else when he was not feeling good. We told Tori we would be back next week and she would have extra time (on the drive to Washington) to study. She already knows about 1/2 the stuff so she has a GREAT start.

Uncle Karl... They did get ALL of the infected shunt!! Praise God for answered prayers!!! Some people (ok Shannon we all know I am talking about you) sent cards. Well he was sent to a new hospital and I now have that info... Karl landherr C/O LIJ 270-05 76th ave New Hyde Park, NY 11040. He would so LOVE cards. If you want to use my address 1065 Lucas rd. Bridgport, NY 13030 as the RETURN then if he gets out I can forward to his new home. We are not sure where he will be placed as of yet!!! Thanks agian from all our family.

Linde... Continue to pray for her. My father in-law leaves Sunday morning to go to her. He will stay till the 20th (unless she needs him longer).

All for now. I need to clean as the kids have tomrrow off AND its nerve block day!!!

Love because I have been given New LIFE from Jesus though his decision to die for me, Denise

Monday, April 5, 2004 7:33 PM CDT

6 DAYS TILL WE LEAVE!!!! (7 till the EGG ROLL)!!! We are excited (bet you could not tell huh). The kids wake every morning and ask how long till we get to the White House???? Ought to be FUN ride!!!

This weekend was interesting.... Our van broke down (wait there is good news about that) So we borrowed dads car (thanks mom and dad for ALL your help). Well mom and dad dropped it off last night and our repair guy looked at it today. Was a simple problem and did not cost us a dime (YEAH). One part had "come apart" he said.

The kids had fun at the camp party this weekend. We did not get the chance to go to Jared's after (but we will be "partying" this Sunday right Jared??)

Ok well Darren is pacing the floor so must be bed time. Gotta run!!!

Love and Friendship, Denise

Friday, April 2, 2004 6:25 AM CST

UPDATES:
no new news on Linde so please continue to pray for her.

Jeffs surgery is now only 10 days away and I am sure everyone getting nervous. There is so much that can and may change (praying it will all be good).

Uncle Karl: Most info here. My aunts are trying to be with him as much as possible (round the clock I believe). He has undergone another "operation". They CAN NOT do open heart but found someone who was willing to try this other thing. They DID get PART of the infected shunt OUT!!! Praise God for answered pray (with the Dr. and some of it out). Continue to pray for Karls recovery and the possibilty that he may need of things done to him (he is not fond of this). I am not sure how longits been since I mentioned that he is like a LITTLE CHILD. His thoughts are not always those of a grown man. He is truly the sweetest man you could ever know. Thanks for ALL your prayers so far.

ANOTHER prayer: Kayla's biological sister is now going to be in the same foster home she is in. Her mom has been told that she (MOM) only has 6 months to live (cancer). Kayla's sister has been found to have like tumors as Kayla (these are NONCANCEROUS). But because of the location they may both (kayla is already) need chemo. Their foster family is glad to take care of the girls even though they are not theirs (another prayer).Please pray for Kayla and her family and the foster family that they might have the strength to support these little girls.

I will leave it at that for now. Thanks for all your prayers and concern (and he emails of support too).
Our kids are happy and healthy. They will be doing stuff with Camp Good Days tomorrow and can not wait to see their friends.

Because Christ has risen, Denise

Wednesday, March 31, 2004 8:54 AM CST

New pictures!!!!

Thanks Vicki for stopping by. It is ALWAYS so nice t hear from you.

PRAYERS PLEASE:
Linde... Darren step sister. Having a difficult time right now and really needs our prayers.

Uncle Karl... We have been told by his Dr. yesterday that the shunts have calcified to his heart and "brain". SO this mean unless a Dr. is found that will do heart surgery (this is the shunt thats infected) He will die from this infection.The Dr. (he has now) is trying to find another Dr that WILL do the surgery altough he has been turned down by the other Dr.'s so far. We should know more in the next few days. Also please remeber my Aunts Kathi and Janet in your prays as they are dealing with so much right now.

Jeff... Only 12 days till surgery. Pray the date does not change and this is a success. Pray also for Shannon and Sammi as they will not be able to be close to Jeff at the time of his hospital stay.



So many new things happening here daily. Zach is still doing GREAT on his bike. Missa made daddy take her wheels (training) last night but then decided she was not ready. She then had daddy put them back on but at the highest level. Darren figures a week or two and she will be ready too. My babies are getting so BIG!!!

Tori is still doing well in school and in hopping to land a part in the school play. She is excited about this.

Darren has good and bad days a work.... They keep hearing rumors that things are leaving and then when Corpate is called they say no. He does not know how to take this some times and is becoming more frustated as these things happen.

Me Iam busy with kids and house work. I am cooking again for church tonight. PIZZA!!! Tori is thrilled and can not wait to help cook!!! I have ladies fellowship tomorrow and a shower at church on Saturday... I will be ther alot this week. I do not mind.... We all love being there with all our friends!!! So should run and get the floors vacumed (yup have been able to do that since the nerve block). Miss and I both have appt. next week. Lots to do need to go.... Please remeber those at the top of this page in prayer!!!!!

Thanks!!!
Friends, Denise

Sunday, March 28, 2004 1:32 PM CST

FYI NEW PICTURES!!!!!!!!

Breaking News
Zach has started to ride his bike with just 2 wheels!!! He realy had no choice as his training wheels were falling off (hehe). He looks so big!!! It almost made me cry but insted I just smiled!!! He can not wait till Grandma can see him (be ready if you get the chance to read this grandma).




Took Tori to see the Passion of the Christ yesterday. She was very into seeing what she had heard so much about. Darren said this was the hardest time yet for him (he has been 3 times now). I found myself ANGRY as the men beat him. Its odd to me the emotions I have felt while watching.

We had a party to go to so thats where we headed after the movie. Had fun celebrating our friends birthdays. Jake was able to spend the night and go to church this morning with us. Grandma has called and said she will be home wednesday for a few days she need to leave for Denver soon after. Please pray for Darrens step sister as she is having a rough time right now.

Well Women of Faith tickets were paid for today. It seemed funny to me not to be paying to get in!!! My mom and 2 girlfriends will be able to attend this year and we are so happy!!! I can not wait till September.

I should run as Missa and Caitlyn took the bunny out!!!! I hoep this is ok!!!!

Friends, Denise

Thursday, March 25, 2004 9:50 AM CST

RAIN!!! YEAH... NOT SNOW!!!! We are happy to see it if its not white!!!

Missa and Zach went to their first play yesterday and LOVED it. They took a bus to the high school and went to the show. They loved telling me about it all. Missa had been a little upset as she had missed the book when the teacher read it to the class as she was in speach therapy. She is over that now.

Tori is excited to get to go to the zoo in the morning. They will be there about 2 hours then they get to go to the mall for lunch (her favorite part). She is taking my buy 1 get 1 coupons for Pizza to share with her friends.

Darren continues to work and they have hired a new secretary so it LOOKS like things are ok for now. We just pray and wait to see what God has planed for us.

Washington is coming along nicely. Our friends will join us on the trip!!!! That is so exciting for us. These kids have been so good when we had to make life saving decission for them and now they get "rewards". Jared is such a great boy and my kids love him and his litte sister Mari!!! We hope to be jumping on hotel beds with them this Easter and enjoying the egg roll on Monday. Trips like this make you feel several ways. Happy to see your child well... Sad to know what they went through to be called a cancer survivor... and then happy again because you are together.

Well lots to do around here before the little guys get home!!!

Friends, Denise

Saturday, March 20, 2004 4:03 PM CST

Tori did not "win" the bee. She was much happier this year as her friend and her were together. She gave her girlfriend a hug and said good job see ya Monday!! They were cute.

Rain here for today. YUCK!!!! Better then snow I guess. I went scrapbooking and had fun with the girls. It was at Dan (he had the surgery) and Deb's house. He is doing very well and thanks all for their prayers.

Have to run and get stuff done our friends are coming over tonight for dinner.
Friends, Denise

Wednesday, March 17, 2004 7:19 AM CST

Dan is doing well (family friend that had surgery). Darren took him dinner last night (during the snow storm). They had a nice time talking. Dan says his pain is already less and he is already got feeling in his foot that he has not had feeling in for years!!! He has been up walking and should be home today or tomorrow. By the way he had his hip replaced (if I forgot to mention that).

Tori is excited as we near Saturday!! The spelling bee is Saturday and we could not be more proud of her for making it this far. She will compete with about 100 other kids from CNY. She had said she was not going to do it this year but decided to give it a shot and we are proud of that!!! GO TORI!!!!

We got SNOW!!! About 10"!!!!!! It looks alot like Christmas here!!!! Its March!!!!! We had melted so much snow and now its like we have to start from the begining AGAIN!!!! Oh well. The kids are home for an extra hour this morning. Missa and Zach are finaly used to it and they do not get upste when there is a delay!!!

Need to switch the laundry over and get some other stuff done. Missa and Zachs neighbor friend will be here this afternoon for a little while as mom is taking her drivers test. Lots to do before they ALL come home!!!

Love and friendship, Denise

Saturday, March 13, 2004 3:55 PM CST

First we want to let Deb & Dan to all know our prayer are with them as Dan prepares for surgery Monday. Deb and Dan are close at home here. Shannon and Jeffs "ordeal" is on hold for now until April 12. Jeffs paper work has been approved but made it in to late for the OR to keep him on the schedule. Pray that they can work out all the last minute details as Jeff will need to stay in for 4 days post op.

I came through the nerve block well. The Dr. had to go into the nerve twice as the first one did not work like he wanted (they do it under Xray so he could tell). I have had minimal pain. Tori has been at a youth rally most of the time but both Missa and Zach have been BIG helps for mom AND dad. My next one is scheduled for April 9 (Good Friday). There will be 3 in total and I hear they last about a year or so. I must say it was easier then I thought or was even told (even by the nurses).

I am not going to sit much longer as this is not feeling great. I have spent time on the comfy couch with my feet up. They tell you your legs may give out with NO notice for up to 24 hours so be careful. They will not even let you go unless they know you have someone at home with you for the day!!! So I have good.

Love and friendship, Denise

PS Thanks for your prayers!!!

Thursday, March 11, 2004 7:36 AM CST

Good morning, Well Missa was disappointed yetsreday as her Oco Dr. was already gone (I had a feeling). So we mailed his card today. She will miss him. Her apppt. went well. She did great with her med (only a small reaction). We handled it fast and it was gone fast! Her hearing test well..... I do not know how to feel. You see she had bad hearing in her left ear (old news). Now she lost 20 decibels in her right ear this year. This we are told is a BIG drop. BUT she did tell me a few weeks ago she was not hearing the same. So as I am sad that she has his loss she in her own way prepaired me for this news. We will continue useing the things we use now with her. Speching to her face and useing the FM system in school. If she mentions to us another change we can call and they will see her again other wise another year will past. We do not know when this loss will stop. No one does. Its one of so many chances we took with her. God has a purpose I am sure of that!!

On a happier note Missa (and family) have been invited to the White House for the Easter Egg hunt/roll. OK you got me all children with/or that have had childhood cancer have been invited. WOW I am excited. Of course we have to ait and see how daddys job is going and so on. I would LOVE for Tori, Missa and Zach to have picture of themselves on the lawn of the White house to show their children!!! What an experiance!!!! So please pray that we will know Gods will. If he wants us to make this trip. The egg roll is April 12 this year which is during the kids break.

Daddy is still working (as is everyone is the Syracuse branch). Please contintue to pray for us.

Uncle Karl still needs prays and cards. His address is still on my last entry!!!!

Love from Bridgeport, Denise

Monday, March 8, 2004 2:24 PM CST

What a wonderful weekend of celebrating we had. My little girl is now 12!! She had her sleep over Friday. The food turned out great (my first time making chili). The girls had fun!!!!!! They were up till around midnight (then I said sleep and they did). My Tori spent her birtday (Saturday the 6th) at her friend Tori's party. Missa & Zach got to go to a birthday party to without mom or dad. I was alittle sad but I made it. Mom and dad had plenty to do since we were cooking for our family party Sunday. Our family party went well (Darren made the chesse cake WITHOUT THE RECIPE) and it was GREAT!!! Go HONEY!!! We seem to have lost our favorite cookbook.

We got "offical" notice from Missa's OCO (cancer dr) and he is leaving the practice. We are sad to see him leave, but feel bless by God that he was here when we needed him. We will stay with this practice as it is the only peds practice for MANY MANY miles. We will have a new Dr. next time she has a check up (but thats not for a while).

Darren job is still going. They are still shipping stuff out (almost daily). Darren and I (and many of our friends and family) are praying about our next steps. We would also like pray for Darrens aunt Rita as she will have surgery away from home on March 17th (they are in Florida for winter).

My Uncle Karl is back in the hospital again!!!! He is very sick and needs LOTS of pray. One heart valve is not working right (maybe at all)and the heart it self is infected so this is what I need you to do.... PRAY!!!!.... And if you could mail him just a short card.... He CAN NOT READ But he gets lonely and LOVES MAIL. I think he feels close to the rest of the world. So I will include his address Please mention that you know Denise Roberts (his Niece). It matters not is we know each other just on line he needs freinds... So here is his info...

Karl Landherr
C/O Brook Haven Memorial Hospital
101 Hospital rd.
Patchoque, NY 11772

Karls is a twin (he has a brother). They just had a birthdya last week. Karl is much like a small child in that he likes simple things like cats and dogs and the like (not that he doesn't like the ladies). He is the SWEETEST man you could meet and I wish I had the chance for you all to do just that meet him.

Tuesday, March 2, 2004 11:50 AM CST

The movie was well moving... Darren and I were so glad we saw it. Darren saw it at both times with church he said it was not any easier the second time around. It truely is moving and I do believe that if you have the chance (as it is not in all cities) do so you will not regret it. I did close my eyes and "regroup" some times. Its alot to take in but when you think of it so is what Jesus did for us. Mel Gibson gets 2 tumbs up from this house and if he ever decideds to make another Christain movie we will be there too.

OK now on to Prayer... We have gotten some news..... Darren is not sure how long he will have a job... Thats right the sole income in this house and we have no idea how long it will last. So PLEASE PRAY!!! Pray that WE will be OPEN to Gods plan for us. Darren is a hard worker and loves the people he works with. He has been with this company for 10 years now. Please just keep this in mind.

Tori is excited about being 12 (just 4 more days). I was thinking about it on my way home from shopping today. The weather is nice just like the week she was born. BUT the day she came home we had an ice storm (hope we do not replay that one). I still find it hard to believe she is turning 12!!! That makes me well OLD!!!!!!!! Good thing I have 2 5 1/2 year olds to make me feel some what young. (Who am I kidding).

Missa has her appt. next Wednesday and I have mine Friday (not looking forward to that). I will let youknow how they go. If hers goes well we may be able to fit her hearing test in to!!! That would save a trip into the city.

Well need to get the kids laid down.

Love and friendship, Denise

Thursday, February 26, 2004 3:06 PM CST

The Passion Our Passion


I wanted to update you all about this movie. We have not yet seen it but have tickets for a show Sunday. Our church has moved our service to the theater (yes with worship and communion too). We sold 400 tickets to one show so we got another guess what it sold out in 3 days!!!! A shorter time then the first one took!!! We (Darren and I) are thrilled to have the chance to see this movie. So many have asked us why???? I have to say I do know what scripture says about the last 12 hours of Christ life but as with any "good book" I want to "see it". We all love it when our favorite book is made into a movie well this is it for me. I am not about blood and guts but hello that what happened. I want to encourage you all to go and see this movie. I am not proud that it was my sin that nailed my Savior to that tree BUT I am so very proud to be saved by the blood He shed that day for all those that believe in him. If you have ANY questions PLEASE contact us. We would LOVE to answer them for you.

Here by the grace of God, Denise and family

PS Darren and I after prayer and talking have decided it is not the time for our children to see this movie. NOT that the story is not important just we want to be in the position to talk with our kids about it as we watch. Our church is having a time for the kids so they can hear the story at their level.

Tuesday, February 24, 2004 3:49 PM CST

First off Thanks to Ma for updating for me..... We did have a GREAT time and it is warm some where on this planet!!! We enjoyed mostly 65+. The kids were in the hot tub twice a day!!!! It was in the back yard so it was very convinent for them. We went to the aquariam 3 times. The place is HUGE!!! Its great for kids and adults alike!!! We took the kids to 3 differant parks in the area. One of them was a Dennis the Menace park. There was a TRAIN (REAL) in this one and LOTS of cool stuff to do. The kids liked it so much they took grandma on Thursday while mommy and daddy packed. We also saw the butterflies as Pacific Grove is where they go to well... (mate)... They are there by the thousands. They fly off to a place called Sea Side not to far away to lay their eggs. Zach has a loose tooth and could not be happier about it!! He can not wait till it falls OUT!!! We did take LOTS of pictures and I will be dropping the film off tonight so I hope to have them back Friday. We had to connect in Minni/St Paul (anyone ever been in that airport)???? Let me tell you the place must have 2 zip codes just for itself. ITS HUGE!!!! We were supposed to have 50 minutes for the transfer on the way home but ended up with 10!!!! 50 was not going to give us any extra time and now we had 10!!!! Well my sister in law RANNNNNNN with the kids and by now my legs (old DVT'S) are killing me not to mention I am having an asthma attack!!! Darren JUMPED off the moving sidewalk (my hero) to grab a car for me. We get to the boarding area and they are looking for us!!! We jump on and the shut the door behind us!! SO CLOSE!!! Our luggage did not make it (big surprise huh). I was able to pick it up Saturday moring at the airport. The twins car seats were in the luggage. To much fun.

I had a appt. with the pain clinic yesterday and we are going to try nerve blocks. I know it will not be easy but if it works it will be easier then now. My first will be March 12. Missa has a Dr. appt. on March 10th and I am hopping it goes well. If we are done by 2 PM we can run acrossed the street and get her hearing checked the same day!! Also FYI....... TORIS BIRTHDAY IS NEXT SATURDAY MARCH 6TH. SHE WILL BE 12!!!! I can not belive it was 12 years ago but thats what her birth certificate says!!! SO if you want to leave her a message feel free she would love to get them!!!

All for now I have ot run to a party tonight!!! I have not stopped since I have been home!!! YUCK!!!

Love and friendship, Denise

Tues. Feb.20, 2004 LAST UPDATE FROM MA

Hi it's Ma again..... just wanted to let you know the Roberts/Angle family have departed from California & will be back in NY tonight. They will stay in Rochester overnight & come home tomorrow. Sounds like they have had a wonderful time but it will be good to see all 5 of them again.

Hi again from Ma,

I spoke with Denise a little bit ago and they really seem to be enjoying themselves.
They have been to the aquarium, to see the monarch butterflys & to the ocean. Zach & Missa learned when the waves come in either run or get wet!
Zach has a loose tooth & another one is sort of loose... so I guess it is like a loose tooth and a half. He is a bit disappointed it hasn't come out yet... I wonder how generous California tooth fairies are??
Denise called yesterday & got to talk to Jake... he was thrilled. We are keeping Jake this week while he is off school so talking to his Nene just made his day.
Not a lot else to tell you but I may update later in the week. Oh yeah ... Denise said it was 66 degrees there this afternoon... we would call that a heat wave ha ha
Till next time, Ma


Update on the Roberts vacation,

First of all... Happy Valentines Day to everyone!

Hi this is Denise's mom (Ma)and I spoke to Denise a little while ago and they are in California & driving to where they will be spending their vacation. They sound tired but good. The children are anxious to see Grandma so I'm sure she will be smothered with hugs & kisses when they get there. I will talk to Denise from time to time so I will update when I have more info.
I am sure they will enjoy this much needed vacation & Denise will give you all the particulars when she gets home.


We leave tomorrow... YEAH!!! We can not wait. I am cleaning house now so I wil not have a MESS when we get back!!!

Lets see first I should let you know Missa got another clean bill froom her ono. Dr.!!!! We are thrilled!! He is letting her go every 4 months now... Her immune Dr. is also pleased with her. Because of the sicknesses around this year we have decided to keep her on the med though April. Darren and I would rather she be well then risk her being so ill. We also finished her med in record time this month!!!!! We were out of there by 1:30!!! We usally do not leave till 4 or later.

Ok now the fun stuff (NOT). You all know that we were sad to she Missa lose her hair and how happy we were to see it back (ANYONE SEE WHERE THIS IS GOING).... YUP she CUT IT HERSELF!!! I could have cried. She did!!!! Then I sent Darren to check on Zachs HEAD.. Alls well with his head!! It just took so long to get it back. Not to mention we were going to get pictures done for grandma (not happening NOW). In case you are thinking well take her to the beauty shop and get it fixed. THAT WOULD NOT WORK... The only way to describe it is MILITARY!!! Hope you have a god picture now (hehe)

Well I should run and get stuff done!!! We love you all and will update when we get back (2-21-04).

Love and friendship, Denise

Friday, February 6, 2004 1:44 PM CST

This will be short but I wanted to update......

God showed his mearcy on our friends this week. Joe and Mari (Jared's dad and sister) were in an accident and they are doing well. Mari is a little bumped up mom says but it is nice to know thats all. We are trying to hook up to play. Hope to see them soon.

Kayla seems to be doing VERY well for now with her treatments. We were taught last Sunday and she looked great.

We are still moving stuff around!! I am doing that now (well ok not this minute but I will be back to it soon). I am working on the kids new playroom.

Friends, Denise

Sunday, February 1, 2004 5:30 PM CST

ITS HERE!!!! My "baby" arrived yesterday at 2:45 PM!!! You thought I would not take note of the time??? I had to wait 2 hours before I used it (because it was soooo cold), BUT boy did I use it after 5:00 PM (had to make dinner for my parents and us). Laundry had to go slow last night as the dryer was not hooked up till after dinner. I LOVE THIS THING!!! Its like no thinking at all. I push a button (whites, hand washables...) and it tells the machine what it needs to do!!!! I even delayed a start for 5 AM so it would be done when I got up!!! Well Missa woke at 6 AM and ran in to our room and climbed into bed and said "come on mom lets go do laundry!!" And Darren thought I was going to be the laundry "junkie". We made it down here with 4 minutes (YES there is a counter on the machine) left. Missa (I am not kidding when I say this) stayed in the laundry room for an hour watching the thing run. She actually told us to quiet down as she was watching "her show"!!! She came down a while ago with the laundry (all 6 things) and said ok tim to do a load!!! I told her before bed since there was not enough there to wash (I think I hurt her feelings). Needless to say I love my washer and my new laundry room!!!
Thanks to mom, dad and Darren the love of my life for all their ahard work to make me happy!!

Missa is feeling alittle better. She did not have a ear infection, the pain is from sinus pressure we think... Her sore throat is from a yeast infection (of her mouth) from being on 2 weeks of a strong antibiotic. So we have a whole bunch of new meds we are doing. Plus we added some new creams for her rash (and Daddys to). They did not have all the meds in stock so I will pick them up tomorrow. She came home Firday and said to me "mom remeber when I had cancer!!!" I was FLOORED!!! Not that we ever hide that word from her but she has always just said she was sick. WOW blow my mind!!!

I ordered mew clothes last night. I bring this up as my dad thought I bought a $244 bathing suit!!! WHAT???? He must be crazy!!! My mom had to straighten him out on the way home. She told him I ordered several paints, 2 bathing suits (Tori and I), and several shirts... Then he said he was proud of me for being such a good shopper!!! What a trip!!

The kids are all with daddy as he is taking Jake home. Jake spent then day with us. He would have spent last night but it was snowing to hard!! I heard yeaterday that we are due for a storm Tuesday. I ask this ????? How bad is a storm if they are warning you 4 days in advance!!!!!!! If anyone has a clue please let me know. We also had a friend from church (a Cali. native) over for dinner and he shoveled the roof with Darren. We had SEVERAL leaks this morning as the snow is just to much on the roof right now.

OK want to go and do a few things before the kids get back, like start their tub. Hope yo enjoyed your weekend.

Friends, Denise

Thursday, January 29, 2004 2:19 PM CST

Hi there and thanks for stopping in!!! We have been busy (mostly shovling snow)!!!! The kids have had school every day and they are happy because none of them want to have to cut any vacation time short (some schools have already had to do this). The snow bank at the end of my drive way is over the roof of the car now!! Zach LOVES to climb it and then YELL all the way back down. It has been to cold to stay out so he makes a B LINE for it when he gets off the school bus...Missa HATES the cold so she usally comes right in!!

Well we bought my new washer!!! YEAH!!! Darren REALLY wanted a front loader (the energy savings is HUGE not to mention the water). I did not like the ones we saw as the doors were small. He finally asked me my opinion and I said I love the front loaders BUT I want a BIG one!!! So thats what he bought me!! I can now (well Saturday) wash 22 towels in 1 load!!!! It will be like a laundry mat washer!!! I am excited can you tell. We also figure it will save alot of wear on the septic tank as this washer uses 15-20 gallons verses 40-45 gallons a load!!! I will let you all know how I like it!! We will be making the kids play room (down here) into my laundry/ work room (a dream of mine). The kids will move their play room upstairs which is where it used to be. Lots of fun huh...

Not much else going on here. We are all getting VERY excited about our trip!!!!! Only a few weeks left now. We spoke to Grandma last night and they sound like they are enjoying their trip so far. I know she is excited to see us too.

Going to run now and get some stuff (like dinner made) done. Thanks again for all your messages and support. Oh I should mention Missa has a sore thoat and ear ache so Darren or I (him if its snowing)will take her to our FNP tomorrow. She has been on a VERY strong antibiotic for 14 days now so one would think she would be healthy as a horse!!! I will let you know how it goes!!

Always Friends, Denise

Friday, January 23, 2004 7:22 AM CST

Well even with ALL the SNOW we got school was on time (every other school in the area was closed or delayed). The kids are happy to go so I am OK with it (for those of you that worry that I may be bored I AM NOT!!! HEHE).

Missa did a wonderful job yesterday (during the storm) at Ma's job. They are looking at useing a picture of her and the center manager for a challenge other "branches". Missa's like my moms boss (he has made it to the last several birthday partys for the kids). Missa was excited to bring home cookies and juice for all the kids.

Zach had "fun" with mom and Pa. We did laundry and watched Tom and Jerry!! Fun huh???

Darren is still feeling crummy. They are busy at work so he continues to go in. Last night NEITHER one of us could get to sleep (must be Shannon wearing off on me). So I hope he makes it all day (I will 'cuse I will take a nap)!!

I am doing well. I went to the NFP yesterday and she told me what the Dr. wrote about me (the Neuro guy I saw about my back). Well he wrote that he did like 9 test and i was fine on ALL of them. OK CAN YOU SAY LIE!!!!! Darren was in the room does this guy not remeber that. That I would not make up things. ALL he did was TALK to us. There was NO exam or anything!!! So Pat (FNP) and I talked and we may go with a pain block so I will not have to take pills for ever. My mom and sister have done these so I do know something about them. I just was SHOCKED that he would make such a BOLD FACE LIE!!!! AHHHHHHH... I will not be doing PT any more as it was not really helping me and it cost $45 a WEEK!!!

OK enough babbling... we have a busy weekend planed. Aunt Micki is coming so we can stay home and watch movies withher and order PIZZA!!! Take care and have a WONDERFUL weekend. maybe even find a church you can go and worship (if you do not have one)!! We find it gives us such peace to go to church!!!
Love, Denise

Monday, January 19, 2004 8:27 AM CST

Kayla update....
Kayla got her port this past week and seems to be doing well. She will start her chemo tomorrow. They are saying 4 hours out patient... but we all know that you just have to do it (it may be shorter it may take longer). The family has been told the tumor is not cancerous but could cause Kayla to go blind so chemo is the best way to shrink the tumor and releive the pressure on her optic nerves. I will let you know when I have more info. I have passed on your thoughts and prayers to her family. They appreciate them, thanks.

We had a nice weekend...
Saturday we hung out here well until about 5PM thats when we left for my parents house for the SU game (they WON)!!!! I also did some laundry. My washer is dying FAST!! Anyone out there have a front loader???? Darren thinks that's the way we should go but I would LOVE to hear someone elses thoughts on it.
Yesterday we went to church (YEAH). Its so nice to go somewhere that you can relax and just worship. We had a wonderful sermon on "let our light shine". Yesterday was sanctity of life day. A day to regard life for what it is A gift form God and who are we to take that away. NO ONE has that right. Darren and I want to march for life next year with our kids. Would it have been fair... had we know about Missa, since they say she had this cancer while she was being created in me to have taken her life, I think not!!!!! I will encourage us all to fine a march next year and march... For your life for your childrens live and for all those who were not give a chance.
We went bowling after church with camp good days. Jari and Mari were unable to make it. We missed them ALOT. I will try to reach his mommy today. Just to check on them. Missa and Zach had a BALL (HEHE). They both bowled VERY well. Tori had a blast with the friends there too. Missa ate 4 slices of pizza and Zach ate 2 (I am not sure how much Tori had). We could not believe how Missa was eating. She LOVED it!!! The kids came home tired, full, and dirty. They played hard and it showed.
Today we are cleaning hte house as we did not spend much time on that this weekend. Lots to do!!!!!
I wanted to let you all know what Missa is doing this week. She will be at Ma's (my mom) job on Thursday for a few hours. You see they are having a blood drive and Missa is going to hand out cookies. She is excited. She used so much blood and even the med she get now is a "blood product". So it is still important to get out and give if you can. Its important to us and Missa too!!! Thanks for you gift of life in advance!!!
Ok well should go get things done. Would love to stay and talk but have to run...
Friends, Denise

Thursday, January 15, 2004 7:54 AM CST

UPDATE 1/17/04
Well the kids had Friday off too making this a 6 day weekend!!!!! Calgon take me away!!!!!! We are all staying well and warm. Missa's antibiotic seems to be working nicely. Thanks for checking on us...

Good morning (or afternoon or evening). Well we are day two of NO SCHOOL... TO COLD!!!! Wind chills at 40 BELOW today. BBBBBUUUUUUURRRRRRRRR... So the kids were with my mom yesterday (thanks again so much mom). Poor girl is not used to watching anyone but had said she would keep Zach for us when Missa a an appt. WELL surprise they were all off. SO she had Zach, Tori, Robby (the boy I watch), Jake (my nephew) as she could not see leaving him home alone. So today I have them all again (Jake called last night to get a "reservation") plus Missa too. My dad looked at the kids when my mom got home and said he needed an Excedrin and he went back to bed!!!! Mom also had dinner made so all I had to do was pop it in the oven. HUGE thanks mom!!!

As far as Missa went it took almost 2 hours (normaly a 20 minute drive) to get into the hospital!!! People were not using their heads and they were off the road all over the place. I had to take other routes and they were slowed by people getting off the high way. We drop the kids off to my mom as it took so long to get into the city anyways. So then we checked in (Missa is 46 1/2 pounds now). She is so funny about it when we chekc in. She "knows the drill". Then is was "pooky" time. Only 2 sticks this time. Not to bad considering who we are talking about... She only reacted a little bit. She got the shakes for a few minutes but we had just given her the med to stop that. So she went to sleep on daddy and the shakes stopped. This month it only took 5 hours!!!! Wonderful for us as the other months its been more like 8 hours!!!! Next month she will get her med just before we leave for Cali. That way she should feel gret awhile we are there. She is on an antibiotic now because she may have strep and she has a leg infection. The drug cost $126 dollers!!! Thanks God forthe blessing we have call insurance!! Its a 14 day antibiotic but she says it does not taste to bad.

I have not had the chance to talk with Kaylas family yet this week. I may call today. I know there were supposed to be a few appt. this week. I will update as soon as I have more info. They do appreciate your prayers for them and her!!! Thanks for that. They also have our web address so they will check I am sure and see all of your messages of suport for them.

OK time for me to go run this "ZOO"

Friends, Denise

Saturday, January 10, 2004 6:34 AM CST

~~~~~~~~~~VERY INPORTANT~~~~~~~~~~~~~~~

I did get to attend Ladies fellowship the other night and I was blessed with the Word but I did come home with a knot in my stomach. You see one of the prayer request was for a family in our church. They have been foster parents and addopted several of the children that have come into their home. They have had a little girl since maybe summer and have notice she was having some trouble with her eyes (they were crossing). They eye Dr. sent the for an MRI and she has an inoperable brain tumor. Its not removable because it sits where the optic nerves cross. This little ones name is Kayla and she is about 5 years old. The "good" news is she will need low dose chemo that will be once a week for 58 weeks. It will be out patient. They say she will not lose her hair. She is still "in the state" system. That mean more prayers for this family so that they can get ALL of what they need to make this "run" smoothly. Darren is headed to Mens Breakfest and may have new info that I can let you know later. SO many of you know what this is like and even if she is not theirs (yet they have been working on it) this family has embraced her with love and I have NO doubt that will change because of this. Please add Kayla to your prayers we would appreciate it and so would this family. I will let you know if they decide to set up a web page for updating. Thanks again.
Love because of Christ death and resurrection, Denise & Darren
PS We will be sure to pass along any messages you would like to leave for our friends!!!
I will update on us later as I want this to come first right now. Please know we are doing well!!!!

Thursday, January 8, 2004 11:36 AM CST

So hows it going???? Still busy here and COLD did I mention COLD!!!!!! I have been driving the kids to the bus stop (which I can see from my house so its not that far) just because Missa can not take the cold and its really to cold for anyone to be out in it. We ended up with 5 inches of snow (we just had a thin layer of ice on the lawn in the morning) in about 5 hours (3PM-8PM). Darren was thrilled to be able to get out and snow blow!!! Saturday our high is going to be 5 and a low of -15 (its like the arctic!!) Oh well enough about the weather...

Darren has been working hard. Inventory went well with his branch in the red for the second year in a row!!! They are so busy right now which is nice since this is usally their slow time.

Tori is still busy with all kinds of stuff. Her latest venture is Comedy Club. I do not think she has made it yet but will stay today. She has a birthday party for Miranda on Friday night. We like Miranda (even if we have not met her yet). She seems to be a very nice young lady and has wonderful manners. We hope to meet her soon. Tori was hurt becasue she was not going to be able to make the party since Darren and I have darts (we better). Miranda's parents said they would bring her home and we can drop her off since they are starting before darts. I must tell you what Tori did yesterday... The kid wore my pants to school (and never called me to see if I could bring her another pair). I cracked up when she got home and told me (as if I could not tell my pants come up to her chest!!!) I am not sure if this is as funny as the sugar and gravy story but I figured its good for a laugh!!!

Missa and Zach LOVE being back to school. They bring home a letter book every day to read. Zach was upste as i did not sign his sheet so he could not bring a new book home. I get TWICE the kindergarden stuff home and he can not cut me some slack...

I am looking forward to tonight... Its ladys fellowship at church. YEAH!!!! We have so much fun and tonight we pick our secret sister. Its like a secret santa but we have her for the year. We try to encourage each other (and sometimes give alittle gift).Its just nice to know your thought of. We have a party with the kids on Saturday and we are going to try and hook up with Alysa too. Mickey D's playland I think. The kids will love it!!! Sunday is church and I can not wait (we are off on Wednesday nights till Jan. 21). The kids hate not going and I must say I am with them. Hey you would love it to if you did not have to cook on Wednesday nights!!! HEHE

Ok I must go the kids REALLY need a nap. They seem EXTRA crabby!!! If I lay them down now then they will be up in time for Tori and Robby (the boy I watch) to get home from school.
Love and friendship, Denise

Monday, January 5, 2004 6:04 AM CST

Good morning.... OH YEAH.... The kids are back to school. ALL three wanted to go back and well I am willing to lert them go. I have had 6 kids 3 out of the 4 days I had other peoples kids so I am done and its time for them to go back and learn some more. HEHE!!

We had a busy weekend I took Tori and 2 of her girlfriends to the movies and then we came home to make our own pizzas. They loved it. Then they spent the nightadn we all went to church yesterday. It was interesting to get 3 preteen girls ready but I/We did manage too and ran early for church. After church we had friends over and had a ball watching football and eating (hey we do that well here).

On a sad note Tori's hamster died last night. She is doing just fine as she has lost others. This one live here for a long time!! She is already talking about what pet (type and color) she wants. If you want to leave her a note she would love to read it.

Ok well I want to go and call Darren as the roads here are covered in ice,sleet and snow. I also need to get Zach up and dressed.

Friends, Denise

Thursday, January 1, 2004 6:34 AM CST

Update...... Ok so I went to try to go to see a movie... WELL!!!! The movie would not work so after like 20 minutes we all walked out and they did give us back our tickets. Yes we can go again BUT I wanted to go today!!! THEN we could not decide where to go for lunch (since we had all this time on our hands). We finally decide we will go to Pizza Hut lunch buffet!!!! YEAH WELL NO!!! Get there and they do not have the buffet... Thats my day folks. Darren how ever took pity on me and goofed so bad tonight I HAD to LOL... He was making gravy and he made it with POWDERED SUGAR!!! He thought its was the corn starch. I lol so hard. I even called my mom. She got a kick out of it. Darren even went so far as to say "how bad could it be??" and THEN he tried it. Needless to say it was poured down the drain. Ok gotta run we have friends over and its almost time for pie and milk shakes!!!


HAPPY NEW YEAR 2004 Happy New Year


Sure hope you are all doing well this morning. We welcomed in the new year as I thought we would with our eyes CLOSED (hehe). We did attend the funeral and the kids were so beat. They are used to getting their nap and there was no time for one yesterday. I must tell you a story (I know here we go again)... I explained to the kids that we would go to the funeral home to say goodbye and that they would see Jeans body but she was already in Heaven. Well the whole way to the funeral home Missa and Zach kept asking "So is this the way to Heaven??" They were so sweet. We told them that Jean was there and we would only see her at the funeral home. They all dealt with it very well. There were lots of people (some I have not seen since my teens). We had a nice time remebering Jean.

Tori heads out today for her grandparents. They have spent new years eve (and a few days after) together for a long time now. So yesterday put a crimp in those plans but we worked it out. Saturday a friend from church will be here to spend the night with Tori before school starts up again.

Missa and Zach are busy "helping" daddy this morning make eggs!!! Sometimes it works but not always. Its fun to watch!!!! The kids always think they can do more then they should.

Darren heads back to work tomorrow for inventory. He hates this part of the year. Its a VERY dirty job!!! We will enjoy a movie together today (just he and I). Grandma and Grandpa leave I think tomorrow so she will stay with the kids one last time. We will not see them until Feb. so that will be a LONG time for us all. For those of you new to us grandma lives right around the corner. We get to see her pretty much any time the kids want to. The kids LOVE to pack into the car and drive to grandmas for a bath (I do not get it!!). So as you can see we are close and grandma will be missed!

I should go and see what the kids have daddy making for breakfest. Will update again soon.

Friends, Denise

Monday, December 29, 2003 7:46 AM CST

Well what can I say... It took me a while to get back. We have had a busy weekend. Firday (the day after Christmas) our friends called to let us know that their mom had passed away. Both families were very close. We met at church and spent lots of time together. Their dad passed many years ago and their mom (Jean) had live with Robin since. Mark (the son) lives up here while Robin and Jean had made home in N.J. We just had a funeral for Jeans mom 8 months ago. This was such a surprise. So we have been trying to help with what ever we can. The calling hours and funeral will be back to back on Wednesday. Please keep us all in your prayers as this will not be a easy day for any of us. Tori, Missa, and Zach is good friends with Jeans grandaughters so they will be keeping the girls company during this time. Marks girls will be here tomorrow for a while so thee adults can finish making plans.

Not much else is going on here. The kids (Missa and Zach) want school to start again. Tori LOVES the time off!!! She hoping to get to see her grandparents this week and she wants to spend Saturday with one of her church friends. All in all she has a busy week ahead of her.

I have SO much laundry to do!!!! My washer does not like the new way it has to pump since the new spetic was put in. We will be making some changes when we get our taxes in Feb. All is a go for our trip in Febuary. We will leave Feb.14 for Cal. The kids can not wait. Darren and I have been looking at web pages to see what we can do with them!!! SO much to do so little time. HEHE. I will call today and reserve the room in Rochester (NY) for the night before and the night we get back. We leave REALLY early and get beack late. Darren and I figure it would be safest to stay the night we get back. We do know our bodies will feel like its 6 PM but we want to start getting the kids bakc on our time and you can not do that in a van on an hour and a half drive home. We may even get to see Adam and Stacy before and after we leave as Adam has gotten a promotion and he will have Fridays and Saturdays OFF!!!

Oh well I am rambling now... I should go and get some work done as Wednesday will be here soon enough.

Love and Friendship, Denise

Friday, December 26, 2003 8:26 AM CST

Well Christmas day has come and gone!!! How was yours??? We had a wonderful time with Friends and family. Uncle Adam and Stacy are due in later today so we will have 1 more (on top of the 4 yesterday) "Christmas".

It is snowing here now. Its coming down pretty fast!!! It looks nice. I was just happy the roads were clear yesterday since last year we had a storm!!!

The kids got lots of games and clothes. Darren and I were treated to lots of goodies!! We are truly blessed by our family and friends. Just to know these people is nice then they treat you so wonderfully WOW!!! Thank you all for everything you have done this (and every other)year.

We are going now so we can play new games and watch DVD's with the kids. Enjoy your day!!

Friends, Denise & Darren

Wednesday, December 24, 2003 10:07 AM CST

Well Merry Christmas eve to you all!!!!! Darren is home and the kids and I are thrilled. We are busy cooking for tomorrow and getting things done before church tonight. The kids can not wait to get there (mom and daddy too). We have such a nice time with our church family!!!! What better time of year to worship the Most High!!!! I love to sing at church too. Not sure if the people that sit near us like it when I sing!!! HEHE. After church Aunt Micki will be here!! The kids are excited as they will open a gift from her!!

Missa ended up with a pretty big scratch on her face from the bunny... He got scared (by caitlyn) and JUMPED. Missa is doing fine now. She "grounded" the bunny so he was not allowed out again all day.

Now on with the STORY... Yesterday and Monday went pretty well. WELL up till about 4PM Tuesday. You see I had to deal with a woman that came to pick up some stuff from me. Once done with her I realized that I heard WATER... CAITLYN!!!!! I ran to the bathroom... There she was smiling at me with the Stuart Little ball shoved into my toilet!!!! Oh your lol now are you... THATS NOT THE BEST PART!!! This 2 year old had gotten my 8lb weight and was pile driving Stuart into the toilet!!! As I get her there is someone at the door. Robbys dad so I send them off and yell to Darren down the road to come and help me out!!! He did so I said you go and clean up the floor in the bathroom. He comes out and says do you realize what happened. I said I thought so. He shows me..... She shattered the TOILET!!!! AHHHHHHHHH!!!!!!!! I love my neice and nephew!!! This little one can get into EVERYTHING before you can get to her. My nephew was never this fast. So needless to say we have to fix (replace) the toilet!! I hope this gives those of you looking for a good laugh a break from all that shopping and wrapping.

Well have LOTS to do. Enjoy your family and friends. We are looking forward to our visits. Uncle Adam and Stacy called this AM and said they will be home Friday!!! I will update again soon!!
Love because Christ lives, Denise, Darren, Tori, Missa & Zach

Monday, December 22, 2003 7:22 AM CST

The play was so cute!! The kids looked greta well may not so great when Missa wiped her nose on her costume!! Hey I am sure Mary had a cold and no kleenex at some point!!! HEHE. Ma, Pa (my parents), Grandma Jennifer and Grandpa Carl, Na (my sister), Caitlyn (our neice), and Jake also made it. So we had a good chunk of family there. I/we did take lots of pictures. We will see how fast I get them printed!!!

I am sure Adam and Stacy would have loved to see it but they are to far. They will be back on this Friday and the kids CAN NOT wait. We have been seeing them about every 4 weeks or so and thats been nice. My kids would love to have them live next door to us but Adam would get NO sleep not to mention Stacy.

We came home to have Ma's birthday/anniversery dinner. It was AWSOME!!! If I can say that about my cooking!!! Darrn helped too. We made ham and potatoes. There was not much left of the 10lb. ham when we were done!!

Today I have 6 kids. My 3 and then Jake and Caitlyn and Robby (I wantch him). All of the older ones are out side in the snow. Caittlyn is in here and doing well. She has bangged on the bunny cage with a rolling pin!!! He did not like that in case your wondering!!!! Now she has safety siccors and is happy (for the minute). She is a VERY busy 2 year old little girl.

I am going to go chase my neice around the house for a while. That should be good for a 20lb weight lose today (hehe).

Merry Christmas, Denise, Darren, Tori, Missa, Zach

Monday, December 15, 2003 10:13 AM CST

Thanks again to you all for siging in!!! Missa has loved reading them.

We have LOTS of snow. Tori was "mad" because she had school and Missa and Zach had the day off. We have half day kindergarden so when you have a 2 hour delay there is just no point in sending these little ones in. So We have baked cookies and cleaned. I had Darren empty the bunny cage Saturday before the weather got to bad. Tori cleaned the hamster's cage last night and I cleaned the fish tank today. We have to many pets!!!!! I found out today that when the bunny has been "hiding" under my couch he has been eating my RUG!!! He is grounded now and is lucky I am not letting Darren cook him up.

The bay has fozen again. We had a warm and very windy day last week so it opened back up. I am not so sure it will again until Spring. The kids can not wait to go out there with daddy and "skate". They slide with their shoes on and they call it skating. Its fun to watch.

Darren and I will finish shopping next weekend. Mom and Dad have said they would stay with the kids so we can have some time alone. The kids are so excited about Christmas.

Next Sunday is the kids play and they are so happy!! Sounds like both my parents and Grandma Jennifer will be able to make it.
Well all for now!!!
Friends, Denise
Merry Christmas to you all!!!

Thursday, December 11, 2003 2:28 PM CST

Dec. 12,2003 AGAIN!! i am back from the Dr.'s and the big news is NO surgery. he has several ideas but because of my medical "disorder" (my blood over clots) there are many things I CAN NOT do. So he will share these ideas with my primary Dr. and they will decide from there. Thing will change in PT and he want some of my meds changed and oh yeah I need to lose weight. Anyone with a fool proof plain for that let me know (hehe). I want to say thanks again. I have just signed on to write this and I have a tear in my eye from all the wonderful support you are all giving to us!! Thanks so much. Maybe mommy needed it worse then Missa... and you ALL are coming through.
Friends, Denise


December 12, 2003 Thanks to you all for signing in!! Missa will be sooo happy when she gets home. I must wish my mom a happy birthday!!!! Yupper TODAY is her big day!!!! I will try to stay safe and maybe I will remind DJ too (things seem to "happen" on moms birthday). I knew you guys were out there I just was not sure for sure who you were. Well Thanks again we love you all and wish you a wonderful weekend. We are taking the kids to get the TREE tomorrow!!!! They are excited as we will be headed over to the Brownson farm to pick it out. Last year when we opened the door Darren said "Zach what is that noise??" Zach's response was "I think its a fire engine". NOPE it was a cow and Darren was so sad to think his son did not know what a real cow sounded like!! This year they all do...

Please pray for our friends little boy Joe. He got the flu yesterday and even had chest pains. We are praying this will be over fast for him and his family!!


I am not sure what to do??? Should I write this to Shannon???? Is it possible that she is the only one checking on us???? I do not think so... Please sign the guest book... Missa is waiting to hear from so many of you!!! Kathie she knows you have alot on your plate so please do not worry about this. We know so many of you love to check on us but, Missa LOVES to hear (and sometimes read) what you have written. The rest of us take comfort in what you have to say also. This page has been like a warm blanket for us. You know a place to go and feel warm and safe. Enough about this and we hope more of you will sign in.

I have my Dr.'s appt. tomorrow. Sure do hope he has a magic wand. Not that I believe in magic but it would feel good I am sure. I will let you know what he has to say.

Missa, Zach and Tori are excited about Christmas (thanks Shannon for the counter)! Last night we found out that Missa and Zach got the "leads" in their play. You guessed it they are Mary and Joesph. I AM THRILLED!! I was Mary when I was about Tori's age. We have called all grandparents and they are hopping to make it. The play will be on Dec. 21st at 9:30 at our church if anyone else wishes to attend.

The weather is odd today. It has rained and been in the 40's. OH not to worry we are dropping as I write and are due for lake effect snow by tomorrow. For those of you from the south lake effect means LOTS OF SNOW!!!!!! HEHE

Well I should run and get some stuff done. We would love to hear from you weather you are an old friend or a new one. I should also say thanks again to Shannon for her count down and almost daily sign in.

Thursday, December 4, 2003 9:33 AM CST

Sorry I have not updated lately. We have kept busy!!! I think its better now that the kids are back to school and daddy is back to work (hehe). The kids have a half day today so I have to make this quick.

Tori is doing very well. I say that as she brought in the mail yesterday and her teacher (one that she did not do so well with) sent a post card. It was a good one. He said she is working much harder and has become much more organized. She is now pulling a 97 1/2 (as she says!!)!!! She is soooo smart!!

Zach is also doing well. He was VERY upset last night as he was not able to attend class (Wed. church class). They rehersed for the Christmas play. He told us on the way home he did not want to sing if he had to miss class. We will see next week. I told him Ma, Pa and grandma would try to be there. Not sure that worked.

Missa is doing very well in school. She and I are making "pockets" for her FM system. Its a listening device to help her and they had her wearing a hardware pouch. The thing could go around her 4 times. SO I broke out the sewing stuff and grab some fabic and away we go. She loved it yesterday as we made her Christmas ones!! She is set up for another hearing test in March. We have our next immune drug in two weeks.

Daddy never did get a deer (but several of my lady friends have HAHA). He spent his last days of vacation with the kids and I. He let me get out and have a home party. Is this man the greatest or what!!! He is and I am so fortunatre to have him. I do not rent him out EVER so no need asking girls.

I am still doing PT but have an appt. with a Neuro Dr. next Friday. I am still having pain and numbness in my left leg. So pray that goes well. I got my hair cut again and everyone seems to like it. I had not had it done since last April so it was time.

Oh ok well I think thats about it from here. Hope you all stay warm. Tori is home so I want to go see how her day was!!

Love and Friendship, Denise

Friday, November 28, 2003 3:26 PM CST

We had a wondeful Thanksgiving and we hope you all did too. Aunt Micki made it last night and we are having lots of fun with her. I was able to speak to ALOT of my family as they gathered together at Aunt Janets!! I am thrilled to be able to say that!!!!! They all sounded GREAT. Uncle Karl (we prayed for him last year) even invited me out to lunch the next time I am down there and I plan to take him up on it!!!!

Tori is feeling much better thank you all for asking. She is now with her Grandparents (Angle). She will come home Saturday night and I will make sure she reads your entries.

We have so much to do today as I am hosting a party at 2 PM tomorrow, thanks to my husband I was still able to get it done and make it out with my girl friends (Micki, Terri, and Sammey). We had pizza and went to the movies. We have made LOTS of food. I hope to have a great time with even more friends tomorrow!!!

I hope you were all able to take in this lovely holiday and were able to give thanks for ALL the Lord has given you and your families. Our Pastor even went through the church directory and wrote something he is thankful for about each of us. It truly was special to listen to all wonderful things he had to say about so many of us... So take a moment and SHOUT your praise for... rain, family, friends, time, sun and rain whatever you are thankful for just tell the Lord THANKS!!!

Love and friendship, Denise and Darren

PS NO DEER YET... It would help if Darren was in the woods more. He is kind with his time and has chosen to spend it with me and the kids!!

Tuesday, November 25, 2003 5:53 AM CST

Happy Tuesday!!! I have a few quite minutes before the kids are up. Well that is unless Tori gets sick again!! Poor kid was sick Sunday morning and then was fine so she went with us and did what we did all day. She made it to school and preformed in the concert last night then around 3AM she got sick again. So she will be home today on the couch. The other two are still in bed but will be getting up soon for school. Today is their Thanksgiving "party" at school and daddy and I will attend. They are very excited.

Just wanted to say thank you to you all for all the support and encouragement you all are to us. We have relied on you all so much during our many "test" the past 2 years. I also want to wish you all a very Happy Thanksgiving!!! Remeber what you are thankful for and then think abot what we SHOULD be thankful for. Its so important to remeber even the little things and to thank God every day for thoses. We only wish that we could have you all over for dinner to thank you. We are thinking that in 2 more years when we can finally say "Missa is cured!!!" we will have a huge dinner and invite everyone of you. Funny that time will come around Thanksgiving.

Please still remeber Jeff and Shannon in pray. Their link (Sammi's page) is at the bottom of our page. They have said that Jeff will need surgery and there are so many things for these wonderful people to work through. Thanks to all our prayer warriors!!
Love because of Christ, Denise Roberts

PS Daddy is on vacation but no deer yet!!

Wednesday, November 19, 2003 6:51 AM CST

So sorry I have not written lately. We have been busy. Bet you guessed that!! Lets see... Thursday night at 7:45PM we had a "brown out". You know just enough power to run a ceiling light like a night light and not enough to run the furnace. SO at 7 AM we left as the power was still not back on and we needed to get warm. Our district canceled school so I took my kids to my sisters as her house had heat. We went bowling (this was planed but for after school) with one of Missas favorite nurses and his grandaughter. The kids had a ball. Tori was gald to get to go too. We did get power back at noon and then it went back out around 4 and back on around 4:30PM Friday. We got home around 5:30 in a snow storm so I did not go out again (I was supposed to go into my moms). Saturday was Noahs birthday party at Chuck E Cheese. The kids had a ball and dad (mine) picked Tori up for a night out. We left Chuckie and came home to get dinner ready for our company. We had a yummy dnner and the bread was still so warm (I had to stop and pick it up at the store). I even had baked a cheese cake that morning for a snack. After our company left we all (Missa, Zach, mom and dad) crashed!!! Oh yeah I forgot to mention we picked up a bunny!!! The kids had wanted to get one of the teacher but they were all gone. I bumpped into a friend at the hardware store and BUNNIES came up... SO daddy said lets do it. We still had uncle Adam's cage from when Tori had a bunny. The kids are on cloud ninty nine!!!
Sunday was church and my parents were there with Tori. Then they left for dinner and we took the kids to get bunny food. We got to visit with Darrens Aunt Rita, Aunt Naomi and Uncle Tom!! We have not seen them for years and were so glad they had the chance to stop down and see the kids. After everyone had left we painted Zachs room. We had promised this to him back when they switched rooms. We told him if he was a big boy then we could paint it with HIS colors. So now his room is green (sage) and has a nice deer border (he picked). He loves it now all I have to do is fine some cammo fabric to make a curtain.

Monday was teacher conferences. All the kids are doing well. We also went to Chuckies agian to meet some old room mates from 7H. They found out their tumor was not cancer, but still have to make the drive for check ups. The kids had fun and the place was just about all ours!!!

Last night I was able to attend the Twilla Paris concert (thanks to a friend)!!!! It was wonderful to worship with all the other people. We had a wonderful time and I will not soon forget it.

Tonight is church and My back is already aching. Darren made me promise I would lie down so that is where I am headed now. I do want to make it to church tonight.

Please know the kids and Darren and I rmember all of you in prayers. Sometimes just beacuse you hasve been so kind to us and some times because you need it too. PLEASE remeber our friends Shannon and Jeff in your prayers. Jeff will see the Dr. this week and we are praying that they get answers to his numbness. I will include their link below if you can leave a message of support please do. The page is for Sammi, she is Shannon's daughter. Thanks!!
Love and Friendship, Denise

Wednesday, November 12, 2003 4:17 PM CST

Thank you so much for the notes of encouragement today!!! I do get on line at the Dr.'s and check the web page so I got to see them. I want to make this short and sweet so I can make it to church.

We have agreed (daddy wants it this way) to go up to the Dr.'s for the next 3 infusions. IF she is a hard stick (today it took only 1 time thanks for the prayers) then we will go with the port. Now the Dr. and I agree that this will most likely be long term SO after the 6 month trial (only 3 more left) then we will make that call and put a port in so we do not make her veins worse. She did have a pretty big reaction today and we had to cut the rate (how much she is getting an hour) in half. SO much else I could say but do not have the time. But I know so many will be checking on us tonight. Her platelet count is up to 228 (normal is 150-400) so this was a BONUS month!!! Darren and I were both VERY happy since we have not been normal in 2 years!!!! Missa's Ono. Dr. did check her sono and said she was clear so he says we can just do sonos insted of a CT (which is very hard on her) in Feb.

Also I wanted to tell you when we got home my father in law (Carl) was here with the kids. He mentioned that Zach was in the playroom watching or in (because of how close he was sitting) the TV. So I went to look as Darren was seeing Carl out. I called the guys back!!! Zach appears to have been watching TV and passed out in his chair which in turn tipped over. He is passed out on the floor. Its just to cute...

Lots of love and Thanks for the prayers, Darren, Denise and Missa Roberts

Tuesday, November 11, 2003 7:37 AM CST

Good morning... We had a nice time with our families on Saturday. The only one missing was Uncle Adam. With im being so far away we have to expect that. We know he love us and would have been here if he was closer. It did not even snow (what do the weather men know any ways). It was COLD, but Darren insisted on BBQ. We did it and there was not much left over!!! We were both happy that we could get together and be happy about it this year.

Missa is not looking forward to her appt. in the morning. She is happy daddy is going with us. She wants to show him the new games they have on 5-C. We may even have time to stop up to 7-H and say hi. All Missa wants is to know she can go to church in the evening. Its so sweet to hear our kids talk about church.

I will try to update the end of this week and let you know if we were able to reach any middle ground with the Dr.'s.

Friends, Denise

Friday, November 7, 2003 4:45 PM CST

Wow hard to believe that 2 years ago at this time we were headed to the ER with one very sick little girl. We were DX on Nov. 8th. So we will spend the day together (after daddy is back from church). Then in the evening our parents will be here for dinner with us. Darren has chosen to BBQ... Do not ask me why (we are supposed to have 1-3 inches of snow and he wants to BBQ). SO we have all the stuff. Chips, Burgers, Dogs, Salt potatoes and REAL butter and even cole slaw. We are set and it shall be a happy celebration of Missa's life and so many answers to prayer.

That said PLEASE check out the new pics on the page. Mamar if you see Karl could you share it with him again?? They are fall pictures.

We love you all and thank you all for your support over the last 2 years and some of you for all of our lives!!!

Love and Friendship, Denise and Darren

Tuesday, November 4, 2003 10:16 AM CST

Good morning. I just wanted to send a great big HUG to Uncle Karl. We love you too and think of you often. I am so happy Kathi was able to share this page with you. I almost cried when you all signed in. I know we are far apart but you are ALWAYS in our hearts!!!

Ok now, We got Missa's appt. for next Wednesday. It will be a busy one as we will have her sono, she her onoc, and get her med (immune). She is getting very "snotty" for lack of a better term. She is again full in the head and when she sneezes WATCH OUT!! I am thinking we are just days away from a snius infection. We have not had one for some time so I suppose its that time. The IVIG (immune med) is wearing off and this is her bodies response. Daddy will head up with us as we want to make sure things go well and if they do not then we will need to make decisions.

I have new pictures and will try to get them up ASAP. I may even make one into a game, Where are the kids???? You jusy have to see it.

My back has been killing me lately . I love PT because I feel great in the water. I will see my NP at the end of the month.

Well I need to go and get things done before the kids come home.

Love and friendship, Denise

Monday, October 27, 2003 9:57 AM CST

Update: 10-28-03 Oh, I just had to tell you all this one. Zach informed me yesterday that he got married on the bus. Yes, my little man is married. Well I told him he had to move out and he said well its just pretend so I told him I was calling daddy (who got a good laugh out of it) to tell him. Well daddy said he could stay, BUT Missa (she was next to me) says "Well he can stay but he has to live outside". Does that not kill you. I thought I would share with you all. Hope it makes you lol!!


Good morning. So are you all refreshed because of the extra hour sleep (me neither hehe). Well we stayed VERY busy this weekend. We went to Ma and Pa's house and helped clean up leaves and daddy, Missa and Zach also help Pa widen his drive way. All three kids also spent time in a HUGE leaf pile. Ma took a picture so we will just have to see how it turns out. Saturday night we also got to see Aunt Micki. The kids love her. We watched a movie and hung out. Nice not to have to run when she is here. We just hang out and talk (oh yeah and chekc on the world series). Sunday we dropped her off and picked Jake up for church. We had cookies after church as one of our couples is leaving to pastor at another church. Its so nice to see our church sending people out to share Gods word. OH YEAH I should mention that Ma thought Missa how to spell God this weekend and Missa could nt be prouder. Ok so we spent the afternoon with my sister and Jake and Caitlyn. I had to return the videos down by Ma and Pa's so Zach talked daddy into calling and seeing if Ma was up for another visit and she was. So back to ma and pa's we went. I finnaly said we had to go. I had gotten nothing done at home and it was bugging me. We got lots done and were in bed by 8:30PM. That part I do like about day light savings!! Sure hope you all had a fun weekend. I am STILL trying to get an appt. for Missa. Will have to update later when I get one!!!
Friends, Denise

Wednesday, October 22, 2003 10:26 AM CDT

Update 10-24-03
Thanks Shannon for reminding me to update everyone on my MRI. Lets see I have a bulging disc, arthritis, and inflamation of my lower back. I will continue PT for November and then go bck to the Dr. to talk about it and see howI am doing. Thanks so much for thinking of me.



UPDATE 10-23-03
Missa will be getting her next dose of the immune med up at the Dr. The reason they gave is they are not sure if we just had a bad nurse. I said "he stuck her 3 times with a blood return each time, You guys stuck her another 8 times before you even got a return!!!". I reminded the Dr of Missa's poor veins and all she had to say is "we do not know her". Well DUH ask any of the nurses she has had for 2 years (they use the same ones as ONC.). It was all a little to much for me. I have not mentioned this to Missa as she will be upset because she will miss school (and the Dr had NO sympathy there). So pray that I can keep my "frustration" in check. They did say if she has a bad time again we can schedule a port or something along those lines.
Thanks, Denise


Thank you all for the encouraging thoughts and prayers. I left a message for the Dr. who in turn left one for me. I wanted to talk over oppoins and she wanted me to take Missa into the hospital for the next infussion. Well I am not sure that is whats best for Missa. She hates being up there and "nailed" down. We would have to go at night again as to not interfere with school. Last timw we were up there for 7 hours and they happened to have a bed. Not that Missa spent to much time in it but there is nothing else to do on that floor at night!!! The computer would not work right and the adults were watching the play offs (Missa is not into baseball). So I am going to try once again to get this done at home. Darren and I agree that we would let them put the IV in (up on 5-c) then come home for the infussion. So pray that we can work this out with the Dr.'s. I am also trying hard to get her Nov. appt. scheduled. Seems her regular ONC. will only be in part time and since we saw the NP last time I want to see him. SO PLEASE pray that all this will work out for the best. The med is working so well for her truley.

Darren seems to be getting a cold and Zach is recovering nicely from being sick last week. Poor little man even had to miss his first field trip. Mommy and Grandma took him to a farm where he was able to get a pumpkin (his class was headed to a differant farm). Uncle Adam and Stacy made the trip back to see us. This weekend Aunt Micki is coming up!! Zach will love that as he gets to sleep on our floor!!!

My PT is going well. My back loves the water. Hope it continues to love it. I still do not have results from my MRI. I am planing on calling today.

Friends, Denise

Thursday, October 16, 2003 1:34 PM CDT

Ok, I have been putting off writing... So here we go.
PT went well for me. The water was nice (I am doing water theropy). The MRI on the other hand was not so nice. I went in thinking ok I can stand 20 minutes on my back if we can get to the bottom of this WELL... It was 45 minutes AND the thing is in a trailer and the heat was BROKEN!!!! I could not have made this one up if I tried. So I picked up the kids from school as I needed to premedicate Missa. The nurse got here and Missa lost it. Now remember I said my back hurt so I can not pick this child up and she is a mess. So we called daddy and his supervisor drove him home. OK so now we are ready right???? Don't you guys read this page its never that easy here!!!! The nurse tries 3 times to get an IV in Missa and he hit the vein but could not flush (have fluid pass thru) the vein. SO he calls the office and they call the Dr and they call us back and say bring her up to the hospital and they will do it... NOPE not even close to done with this story. We get up there and the try another 8 times before hitting a vein. YUP 11 sticks and they ended up in the poor kids foot. She rode in the wagon all night as we did not get home till 10:30 PM. We got up there at 2:30!!!! It was very frustrating so we may talk to the Dr. about a port. It is like the tubies she had but not the same "up keep". We can not allow her poor veins to take such a beating every month. So please pray that Darren and I make the right choices for her. Our pastor and his wife and daughter spent time with her and us while we were up there. Missa asked for Thea (pastor's wife) as they were trying to hit her in the foot. She was so happy to have Thea with her. They painted nails and Hannah and Missa played games. It allowed her to play with people and not get board with Darren and I. She was sad to see them leave as they were headed to church and she wanted to go too. Everyone is napping now and I think I will bake some cookies for the kids (Tori should be home soon). Lots to do as we get Jake and Caitlyn tonight because mommy (my sister) and daddy are headed to a concert that mommy WON tickets to. She won dinner to go with it today. She said she would buy pizza for us so we do not have to cook. Well I think thats it for now. Love and friendship to you all!!
Friends, Denise

Monday, October 13, 2003 9:48 AM CDT

Quick update. I forgot to mention that Missa will get her new med at home tomorrow (Wed). She is excited as her old nurse will be doing the infussion. I had to... OK call and complain that they were going to send the public nurse when we always used their nurses and Missa likes them. The nurse that did the schedule said "Oh you have had our nurses before??" I said "yes and thats why I am coming back, so please send Howard out". I called yesteray and they said he would be the one. YEAH MOMMY. Missa can not wait till he sees her with hair and no tubies!!!!

I am also starting PT today. Was supposed to start last week but I was not feeling well. Oh well. Today should be good (I hope any ways).

Will update again later. Denise



Well today being a day off (and the first vacation day for Missa and Zach) they are THRILLED!!! We have the septic guy here putting in the new tank and field. My kids are LOVING watching this poor guy dig up our yard. I do not even think I will ge tthem to nap today they are just to excitd. The guys says the job should only take 3 days.

The party at church yesterday went SO well. We had almost dbl. the numbe rof people stay then normal. We even ran out of food. Darrn and I added up the soup we madde and it was 25 lbs. how do you run out with 25 lbs and 14 cans of chicken noddle. You have a great time thats how. we usally have so much left over but not yesterday!! Our pasters enjoyed themselves very much. It was just so nice to be together and honor these men and their families.

After the party at church Ma and Pa (my mom and dad) and Nana (my sister), Chris (her husband), Jake and Caitlyn (my nephew and neice) all came out for an early birthday party. We bought dad tickets to an SU football game but its a few weeks before his birthday so we had to give them to him now. Jake spent the night since there is no school. The kids always love to have him and he likes to be here too.

Well should go out and check on the kids.

love and friendship, Denise

Monday, October 6, 2003 5:06 PM CDT

Wow last week went by pretty face. Zach had a bug and is doeing much better now (just glad Missa did not get it). I have mailed some of the pictures but have run out of stamps so if you have not gotten feel free to remind me.I should have more soon, really.

Tori got to attend her family reunion this weekend with her father. Lots of food I hear but she says she had to much to eat at breakfest (they went to one of her favorites for the buffet).

I will start PT this week for my back. I will be able to get water and land PT. My back has been bugging me for a while but I finally went to my dr and said HELP!! SO we will start with this and a MRI ASAP. I am just hopeing I can lay flat for 20 minutes for the MRI.

All the kids got their 5 week reports and all is well at school. We all went today for our flu shots. We still need them for Missa's sake and most of our friends now get them for their children too. Its so nice not to have them getting sick during flu season. Zach was so good (last 2 year have been a nightmare with him). He sat there on daddys lap and only cried for a minute.

Well I can not sit to long so I should get up for a while. Thanks for checking on us!!!

Friends, Denise

Sunday, September 28, 2003 7:54 AM CDT

What kind of mother am I... I forgot the biggest update... Missa FINALLY lost the second of her loose teeth!!! She lost it Firday night in the van as we drove home from the party. She was excited and then she choose to put her money in the offering at church. She ran upstairs before we left and said she had money for her and Zach. She is so sweet. So now my little girl has a little gap on the bottom of her little mouth!!

Good morning!! We are headed out the door to church but I thought I would drop a HI to you all. Things have been busy here all week. We have had fun... We cooked for church Wed., a surprise party Fri., Our youth pastor and his family to dinner Sat., and today we are headed over to see some of our friends that we have not gotten together with in a while (Mark and Bobbi and their girls). Aunt Micki says she will be up next weekend and Zach has his first invite to a school friends party (did not sit well with Missa lol). Tori will be headed to a family reunion. So I guess we do not slow down any time soon.

Well need to run for now. Want to make it to Sunday school (on time). Hugs to you all.

Friends, Denise

Sunday, September 21, 2003 6:35 AM CDT

I will be getting the photo copied next week and am willing to share with you all just let me know if you want a copy.

Sorry Kathie I had thought I told everyone. Missa finnaly lost 1 of her 2 lose teeth. She lost it while in line for dinner at church last Wednesday night. She was thrilled and yes she could not wait to get CASH!!! Thansk for reminding me Kathie I really did thinkI had put it on.


Good morning. I would like to start by thanking you all again for your support!! You all have truly made a differance in my/our lives.

Now on to how my wekend went. Well mom and I lefta little later then we had planed (Isabel). Lots of WIND here knocking stuff around. We got to go to the bakery (yummy eating some now). Then mom was dieing for a hot weiner so we wnet to that shop (its kind of like a chili dog). Then we headed over the bridge to see my grandma. It was a nice visit. She knew who we were right away and where we were from. She did have some "funny" moments too. It was nice to see her since I have been unable to travel with Missa having been so sick and all. Then we shot back up to Albany. The hotel was splended (or maybe I just needed the break hehe nah it was very nice). We unpack and ran down stairs to grab a bite. The food was great and we were just about the only ones in the places so we got to talk and enjoy each others company. The waitress asked when she heard us talking if we were going to that "women conferance" YUP!!!! I said. She said she had heard of it on the news. SOunds like fun she said. I told her it was my first year but I WAS planing on having fun!!! We ran back up stairs and showered then headed to the Pepsi Arena. It was amazzzzzing. Here I was with my little group of 47 of the best girl friends and we are surrounded by 13,000 women JUST WOMEN!!!!!!! What an awsome and humbling experiance. We were all there to worship God!!! Wow... The conferance started with a 3 hour "intro". Like getting to know all the speakers and singers. It was great (oh yeah and they gave out prizes too, but know one I knew won yet your happy for those that did). Mom and I headed back to the room and our friend Lin made it back 2 hours later (LONG story). We were up till like 1AM. We were back up at 6AM since we needed to be at the arena at 8AM. We made it with a minute to spare. We shopped (oh yes girls we shopped!!!). We found our seats and sat down to worship. Again it blew my mind to be with all these "women of faith" (also the name of the conferance and their web page check it out). We were treated to some wondeful lessons and MANY laughs. I could relate to these women they were like new girlfriends I was getting to know. What a grand time. Towards the end of the conferance the announce it prize time again. OHHHH so we all hurry to turn in our "cards". After the afternoon break they say its time to hand out the prizes. Ok I think if just one person in our group could win like a t-shirt that would be sooooo cool. First girl was from I think Mass. Then two from the Albany area. Ok last prize before the Grand prize come on girls just one of yo with I pray. I could not tell you who won that one but it was not one of us. Ok time for the GRAND prize (to be honest I think I had shut off the hearing) The it came "Denise Roberts from Bridgeport, NY You are the GRAND PRIZE WINNER!!! I could not have heard it right???? I turn to my 47 girl friends and they are screaming it was me!!! 13,000 wondeful women and they picked MY card. Why??? I have to beleive God knows my heart and he wants me there (in July 2004) to be encouraged again by thes wonderful women. Our group made the "big screens" (we had not been on them before). We were just hugging and yelling. Some handed me tissues and some handed me their cells so I could call Darren (gotta love these girls). I did call Darren, Dad and Peirce Lins husband). They were all like know way. After the conferance when I went to claim my prize they surprised me with MORE. Oh no I forgot to tell you what I won... 4 tickets, on the floor for July 9-10 and 2 hotel rooms. Blows my mind just thinking of it. Then they added the $89 (sold at a discount for $60) "gift pack". It has it all 2 books, a coffee mug, CD, T shirt and on and on. I told the girls a short versoin of my story, How I had wanted to go last year but because Missa still needed so much care was unable to go adnd how now she is doing so well and How PRAY and Gods Church brougth us thru. These are the tools he gives us churchs, pray, and Friends. All of which are his gifts to us and we should think of then as such and treat them as such and new gift because you never want to put the new gift down do you. Thats how we should feel about Pray do not stop and the church is like opening a presant every week ( we like to open twice a week!!), and your friends they are a gift to be used (and I do mean that in a nice way). They are a wondeful resouce. So next July 9-10 you will know where I am. I wiil be with 13,000 of my closes and dearest girlfriends. Not that they will ever see it but I must add one detail to this story. You see as we (13,000 women) entered the building their were men (and children) hold these signs "go moms", "You are doing the family good", "we love Women of faith" and so many others and they stood there and clapped and just made you feel all "warm" for being there. Knowing that the husband woud be ok for the 2 days and God was in this place and about to bless you. How powerful. I am crying as I write this. Should you EVER get the chance to go then do not stop GO!!! They travel the country. They have a web page at www.womenoffaith.com You should check it out. It is a wonderful, powerful experiance. NO women should miss.

I need to close and go shower before Sunday school. I can not wait to go for God has great things for me there I know.

I love you all, Denise Roebrts Just one of so many Women of Faith

Tuesday, September 16, 2003 6:39 AM CDT

New info: We are home (finaly!!) The infussion took so long. Me made it half way and Missa did have a reaction. The headache was just awful you could tell. All she wanted was Daddy. So he came (thanks Willy). They snuggled in the chair and she seemed to be better. I say seemed because I decided to go for a walk (anyone that has spent any time on 5-c knows you need to get away some times) and she decided to go potty so daddy said he would take her. Well she took maybe 5 steps and threw up all over!! Poor kid. When they got back to the chair she slept on daddy again. She was so much better after she woke up this time. One good thing happend while we were up there. I got the video and still shot!!!!!!!! Yeah the picture is gorgeous... I can not wait to share it. I do need to resize it and I will be leaving Firday so it may take till next week (sorry). Trust me it is worth the wait. The video is great to. For those of you who have NO idea what I am talking about MIssa and Zach were in the promo video for the new Children hospital of Syracuse. We are thrilled that they had a part in this as Darren and I see a great need for this in Syracuse.
Thanks for checking on us.
Denise



Good morning. We have been so busy (in a nice way). Tori and I had a great time at the game (even if they lost :>( Then we had company for diner Saturday and Sunday. We had so much fun with both couples. The kids would say Suanday was better because we had pizza and their friends were here. They had a blast. Katie and Tori even got the chance to go to Jr high youth group and guess what the other kids (both girls have a sister and brother)did not even care that they were gone. They just kept on playing and enjoying the evening. Thanks so much Dave and Carolyn for a great day.

Please keep us in your prays as tomorrow is the start of IVIG. We would love it if the IV went in easy and if she would have NO reactions to it. That would make the 3-4 hours go much better I am sure!!! Missa is upset about missing school. I have told her that if all goes well then we can do it at home next time and she will not miss school.

I am leaving Friday with my mom (can not wait!!) We are headed to Women of Faith. We have 47 ladies from church going. I know that God will bless us and that we will have a great time. This year its in Albany so mom and I will make a trip down to Kingston (her hometown and they have the BEST bakery!!) then we will ehad back up to Rhinebeck to see Grandma (moms mom). She is in a lovely home and I have not had teh chance to see her since Missa was Diagnosed. Then back up to Albany (Kingston is only about an hour from Alany). I am exctied to know that I will be around thousands of my sisters. What an awsome thought huh.
Daddy will be with the kids (grandma will get them on the bus for me thanks mom). Its nice that she lives so close. She will come down and put them on and Daddy will be home around 11 to get Missa and Zach off the bus. They can not wait. Daddy has only been here once (the first day) since they have started school. They have started giving up a little more info on their day so it should be fun for dad to know something BEFORE mommy does. Darren is pleased that I am going too. I am hoping to meet up with Carolyn there too.

Well time to go and get the kids ready for the bus (they have been beggin to go outside but it is SOOO wet. i am going to the store ,BY MYSELF for the first time today. I do not know if I can shop without having to pull all kinds of stuff OUT of my basket!!! I will try.

Have a blessed day, Denise

Thursday, September 11, 2003 2:13 PM CDT

While your here check out our new photos. They are great!!! The last one even includes our friends Jared and Mari!!

OK I have an update!!!! We went to the Dr.'s and the first Dr. we saw told me "things look good, she should not need IVIG (immune therapy)". Ok but I am still wondering why she can not kick this sinus stuff then. Well the first Dr. "primes" you for the second and in our case that is the head of the department. So I finally see him and guess what... He says "she is no where near where she should be". Not that the first Dr. was "lying" but she had not looked at all the numbers. Yes Missa numbers doubled BUT going from 1 to 2 is no good if you need to be at 20. So we start therapy next Wedsday at the dr.'s office. If all goes well then the following doses (once a month for 6 months) will be done at home. The infussion will take 3-4 hours and it will be much nicer for us and Missa to have that done here. After the 6 months we will check her blood to see if this was the "kick in the pants" her body needed. Some people start to make antibodies on their own and some NEVER do. I did not put that in bold becasue I want that but so that we can pray that she will not have to do this the rest of her life. There are so many "risk" with chemo and transplant. This was just one of so many that could have happened. She is still here with us and that was our goal. She loves life and I would not change a thing. I am sure she would agree withme if she understood what had happened to her. So I have been on the phone with oh EVERYONE to get things rolling!! We should be all set. I have spoke to the home care people the insurance company (gotta love them) dr.'s offices and am waiting to hear back from grandma so I can set up care for Zach, other then that we are all set. thank you for your prayers for Missa and all of us. We still need them and appreciate them all. My biggest concern now is that they can get a good IV site as Missa is a VERY HARD stick.

Please remeber to take a moment on this day (9/11) to pray for our country and what it stands for. I have been fairly emotional today. Which surprised me in some ways, not that I had forgotten but I thought I had "delt" with me feelings. Guess not!! I have so many concerns as I watch my children live and grow here. I do find peace in knowing that we are raising them to know God is in controll and they can FULLY rely on Him and Him alone. They love Him so and I take peace in that.

So I will let you know hoe things go next week. Ok so I will update before then and you know it!!!

Friends, Denise

Tuesday, September 9, 2003 7:23 AM CDT

Hello again. Just wanted to share about our weekend (and this week too). We had a great party for daddy. His Alfredo sauce (thats what he wanted me to make for diner) turned out great from what I hear. I do not like it so I never tried it. Everyone was pleased with it. My dad says I could open a resturant!!! He loves my cooking. Darren was so happy to have so many friends and family here with us. we also had ice cream cakes that were just yummy.

The kids are loving school this week. They even told me about their specials. Missa had library and Zach had Gym. They both were trilled and can not wait to get back today and find out what they get to do today. Missa also took her Camp Good Days paper for show and tell. Her picture was in it twice so she can not wait till everyone sees her and her family and friends. Oh while we are talking about Camp I should mention I got season tickets to SU'S football home opener!!!! I can hardly wait. Tori will go with me. I heard last night that they will be handing out the basketball teams Championship rings during half time. Tori will be excited so I am going to let that be a surprise for her. Camp Good Days has been so good to us. We have a grand time with them and have made so many new friends at the events we go too.

Well the weather is so nice here this week. the kids have to wear jackets to the bus but then can change into shorts whenthey get home. I think they will be able to wear shorts the rest of the week since it will be in the 80's.

I am slowly getting things done that have been waiting forever to be done. It is nice having 3 hours to my slef everyday.

Miss still has an appointment on Thursday so I will let you know how it goes!!! Thanks for the prayers in advance.
Friends, Denise

Friday, September 5, 2003 7:50 AM CDT

So sorry Kathie (and others). I have been so busy this is the first time I have been on in days. So how did school go you may be asking??? Well I will tell you what I was told... "did you have fun?" I asked "yup" was the answer... "did you like school?" I asked "yup" was the answer!!!!! I am begining to think they are plotting against me. I mean I work (and hard I might add) for 5 years to get to Sept. 3, 2003 and I got a YUP!!! Oh well I guess. They do seem happy. Zach even wears his glasses for me (not at home only at school) but hey its a start.

So I have been busy all week running errands. OK someone could have told me how cool it was to get into a car with out having to say "buckle up" and "your sister/brother was there first". Its just all together to cool!!!! I love only buckling ME!!! I mean I love my kids and I want them to buckle but its so nice to run in and out of somewhere again. I like this part. I have also steam clean the living room and Kitchen this week. The rugs look great (not that you guys care but hey).

I should run and do somehting else while the kids are at school. But do know that we are all doing well and loving school (all of us!).

Friends, Denise

PS Missa has a Dr. appt. next Thurs. at 11AM so we will get the rest of her results then!!

PSS Sunday Sept. 7 is Darrens birthday (don't tell him I told you but he will be 32)!!! So I just wanted to let you all know. I love birthday wishes as does Missa. They are excited we got to order ice cream cakes for (yes Kathie) a birthday party. Yeah Daddy!! We all love you so very much!! XOXOXOXOXOXOXOX

Sunday, August 31, 2003 5:01 PM CDT

Missa is happy to report that she has TWO loose teeth!!!! She is thrilled!! I keep joking with Darren that the speech therapist will hate us (she and Zach will both recieve speech when they start school). Missa wanted to call everyone Friday night when she discovered her tooth (yes tooth, we did nt know she had 2 loose till Saturday morning).

We have aunt Micki for the weekend and the kids are loving it. They are also waiting to see Uncle Adam and Stacy too. We are all headed to the field days (to see the fireworks tonight) and Adam and Stacy said they would go to the NY state fair labor day with us. So should be fun for all.

Hope you all enjoy your long weekend (if you had one!!). We are!! The kids are very excited that Robby will be back with us on Tuesday. I was watching him until Missa was DX. So now that things have calmed down I feel I can have him back. He and his parents seemed happy to be back with us. Then Wednesday is the BIG day. School starts and my house will have JUST me from 8:15 till 11:45. I think I will be just fine for those of you that are worried about me (haha).

I will update once we have "school news".

Friends, Denise

Tuesday, August 26, 2003 1:46 PM CDT

I just had to update and let you all know what a grand time the kids had last night. Missa and Zach (Tori too sometimes) played with Jared and Mari all night (OK till 8:30). The kids had a blast. They will be getting together to play soon. They just loved being together. Jareds mom and I were just in awe of how good the two kids (Jared and Missa)looked. They (Camp Good Days) spoiled the kids. Last year we went to the ball game with our Dr.'s office. I thought it was nice to get dinner. Well last night the kids got dinner, 2 baseballs, cotten candy and several visits from the palyers and mascot. I was blown away. We also got to stay on the "Patio" as they called it. SO we were not trying to get teh kids to sit and stay if you know what I mean. Any ways it was a great evening out. Camp will be starting what they call Fun Club soon. Missa and Zach were not so into it last year but I think now that they have more friends it will go smoothly. They take the kids like once a month and do some kind of fun activity. Darren and I may just have some extra time on our hands. HMMMMMM whaty could I have him fix????? Just kidding.

Missa is doing well. The noise still runs 24/7 but hey whats new. We see the Dr. in the morning so we will talk over what to do for her.

All for now I guess. Would love to write all day but the kids are sleeping and I should get something done.

Friends, Denise

Sunday, August 24, 2003 5:19 PM CDT

Hello again. Well we are at the end of our vacation (Who am I kidding its Darrens vacation haha). I was still calling to make arrangments for Missa's next office visit (immune this time). SO much to do so little time. We did enjoy being together most of all.

Did I mention the kids switched bedrooms. Well they did and its working out well. Zach is handling it like such a BIG boy. Jake is here for a few days (and nights) this coming week so Zach is THRILLED!! NOw when boys come there is a boys room and the same for girls. Darren was a little worried about how Zach would respond, but he has done so well. Now we have to find race car border for his room. That was a promise we made if he handled it well he could decorate his room. Tori's was just done last year so no need to redo it.

The kids are very excited about school. I am not so sure they realize what will happen in a week and a half when I put them on the big yellow bus but thats ok (I think they are ready).

We are headed to the ball game tomorrow night. Camp Good Days is having a night and dinner is included. The kids loved it when we went last year with 5-C. We missed that night this year as we were in Ohio. SO when we got this invite we said yes right away. Hope its a good game. Missa and Zach still do not sit during the whole thing so we will not stay till the end, but they do enjoy being with all their friends (Tori has many in this group also).

Well should go. All four kids (Jake too) are yelling about dinner. Guess I should cook something huh.

Friends, Denise

Monday, August 18, 2003 8:23 AM CDT

Let me start by thanking so many of you for your birthday wishes... Thanks to Shelly for helping Tori (I know she could not have done it alone), Shara I got your card too, Micki thanks for researching what I want for my birthday (shes put more work into it then I have & I will let you know more later), Darren thanks for the flowers,Mamar and Aunt Rita thanks for the emails and thanks to all of you that left me messages on this page.

I had a fun day (all be it very busy!!). Tori and her father made it in right on time so we ran on a pretty good schedule all day. I was a little concerned they may be held up by the weather (or a blackout hehe) but all went well. We did go to Lisa's party (T & F's daughter) since my Thursday night experience did not go well. The kids got home sick and were hoome by 10:30. Good thing grandma is right around the corner. SO we decided not to have them stay at my folks house ( they live about 20 or 25 minutes from here). We did see my folks and sister & my NEICE AND NEPHEW!!!!!! I really wanted to see them. Jake had been away and caitlyn well you never know what she will do. DJ (my sister) called me to wish me a happy birthday and Caitlyn got on and talked her head off (even got a happy birthday out of her). When I saw her at my parents she would not talk to me UNLESS she was being tickled OR SPRAYING ME WITH THEIR HOSE!!!! The kid is strong!!!!

We did spend yesterday at Sea Brezze. YES we made the trip without any major failures!!!!!!! We are pleased (and I am BURNT!!). The kids (including Jake) had a blast!!! We did get to see Uncle Adam but we made it a short visit because the kids were grumpy (we thought they were tired) BUT they stayed awake the whole way home (about an hour and a half).

So today we go into cleaning mode for Wednesday ( OK I am using that as an excuse to get them all to help me clean). We are still planning our trip for Friday too so please keep us in your prayers for another safe trip.

Friends, Denise

Thursday, August 14, 2003 8:41 AM CDT

YEAH!! Darren is only hours for vacation. Ok so Friday is a bonus. He is headed out on a fishing charter (like he would not have gone!!!). He is excited. He and his supervisor Jim get to go!! He say he may even be able to replace his old picture (for the last charter the guys took). His hair was sholder length then and the kids always say "dad you look like a girl" (hehe). SO I am hopping he get "the BIG one".

I am looking forward to this weekend. Thanks to Pam for the lovely card!!! I love getting mail!!! Tonight Grandma J (Darren's mom) is taking the little one for an over night at her place!!! The kids can not wait till she calls and says it time!! Ok so maybe I am excited to. Darren and i had hoped to get away but with all the things going wrong (electric, van...) we have dercided to stay in. I did find out that the 49er's are playing so hey might prove to be fun... Darren has to be up at 3 AM to meet the guys so I will have the house to myself till the little ones get home.

Tomorrow we will be having some friends and their children over (and Aunt Micki too). We will play and EAT!!! We love to have company. Well I do anyways Darren is alittle more shy. We are hoping to take a trip to Rochester on Sunday and see Unlce Adam and Stacy. We have passes for Sea brezze. Who knows this may be the trip that works.... Then we will be home. On Wednesday we head to the zoo with 5-C (our ono. Dr's office). We should have a blast. Then its home to prepare dinner for about 80+ people (hey I love to have company). Our church has this realy cool dinner deal on Wednesday and in teh summer we BBQ at someones house every other week. I asked Darren way back what he wanted to do for 8 year annversary!!!!! he said "have the church over for dinner!!!I was thrilled!!!! Then we will leave next Friday for Old Forge (uncle Adam is supposed to go) and then up to some friends camp. Should be a great time lots of church friends will be there.

Tori is back on Staurday!!! For good. She has had such a busy summer. She may makea trip to see her grandparents (all of them are fairly close). She sounds happy to be getting back... She wants to "remodel" her room. We will have to see what happens with that!!!

Ok all for now. Think I have rambled long enough.

Love you all, Denise

Sunday, August 10, 2003 3:25 PM CDT

Ok so MANY of you already know how things work in our house right... Well then we did not make it to Sesame st. place. We were just over 1/2 way when our van started acting up. So we pulled over called our mechanic and he said we could drive it at 50 mph for the rest of the trip. Darren did not like that idea BUT Aunt Micki called and said well you are only 2 hours from me so on we went and guess what THE VAN RAN FINE!!!! Well we thanked God for that (we had prayed while stopped and I am sure dad said a prayer for us too). So we made it to Micki's and the kids could not have been better about it. We loaded up Friday night so we would be ready for the trip back up to NY on Saturday. Well again the van ran fine UNTIL we were almost to Micki's new apt. SO we let it rest again (no second trip with the van). We did get a chance to play in the new pool at the apt. The kids loved it. They started it with a 1 foot fenced in area. Ok so I loved it to. Ment they could play all by themselves. Much nicer then mom in your way. We left this morning at 5:30 so we could make it to church for Sunday school and we made it but not without ONE more incident with the van. So needless to say we need to have it checked out. Darren will try to drop it off in the morning.

Mom and Dad should be on their way out to finish the electric. YEAH no more dark bathrooms at night. They will grab a bite to eat with us here too. It is so nice to have our a/c's on and be able to cook and KNOW that the box is not melting!!!!! Yeah dad!!!!

So thats the story from here. I am hoping for a nice weekend next weekend as I will be home (ok you got me its my birthday too). SO next Saturday on my 34 birthday I will be the proud mom of a little girl who has been done with radiation for 1 year. Yupper Missa's 1 year is that close!!! And we can not wait.

Love, Darren, Denise, Missa and Zach

PS a BIG, HUGE, MAMMOTH, HI to Tori. She will be here for my birthday!!! SO happy. Hey Tori, Missa and Zach loved hearing that you wrote to them. Have a great week.

Monday, August 4, 2003 10:16 PM CDT

Well this update is for my mom. She has been bugging me all night to get on and update but I have not had power (dad is working on the new panel). So come to find out my computer is on same breaker as the basiment so I have a computer again since this was the first breaker as dad needed lights.

First lets wish Janice a HAPPY BIRTHDAY!!!! I think at this time of night it must be morning there. So happy birthday and best wishes to our "Aussi" friend.

Missa appt. went well. Dr. D is on vacation so we saw the nurse practitioner. Had a ball. Missa even gave her a sticker for such a great check up. It was really cute. Vicki if you pop by we saw Wendy and she looked great. She loves her job (on 8). Missa loved Wendy when she worked on 7 so we just had to see her. Missa used to call her Dr. Wendy (she was one of our nurses). Wendy thought Missa looked great and tall... Can not wait in a few weeks we will see or radiation Dr and I will hear how he feels her height is (we all think its good).

We are planing a trip to see Elmo on Friday. Yes we will attemp the trip again and we are praying that all stay well. We will also be helping Aunt Micki move. The kids love her and can not wait to spend the night at her house Friday and Saturday.

Well have to run I have two OVER tired 5 year olds crying in the living room. They need sleep (so do we). It is so hot and dad just got the "big" A/C hooked up so it should cool off soon.

Friends, Denise

Wednesday, July 30, 2003 12:03 AM CDT

Yeah the video shoot happened and I could not be more proud. They were so cute (and funny too). When they asked Missa who she missed the most when in the hospital so much she said Tori (not really a surprise the girls love each other so). When they asked what "scared" her when she was in she did surprise me. She said she was worried that Zach was alone. She knew that grandma was with him but it still worried her, funny how that worked out. She talked about drawing her own blood and lots of other stuff. They say theywill get us a copy ASAP. They also shot stills of teh kids and they say they will get them to me too. I can not wait to see them.

We head out Saturday to meet Toris dad. She will be with him for 2 weeks this summer. I can not wait till she gets home to tell me all about camp and then we are out the door first thing Saturday morning so she can hook up. Please pray that we will ALL have a safe trip. Its actually longer for her dad but he is a trucker and seem to know his way around pretty well (I hope so 'cuze I am lost with out mapquets hehe). Tori loves the rodeo so she is hoping to see one (or more) with her dad and his wife.

Well my dad is headed out to look at eletrical stuff again. We will be doing some work very soon on that too.

Please pray for our friend Alexis. She has just started her second Stem Cell transplant yesterday. We were supposed to do two but could not due to Missa kidneys and all the other problems she had. Well Alexis's mom and I talked for a few minutes after the shoot and she say Alexis did great the first time. She says she had just a few sores in her mouth and throat. Wow what a differance child to child. I will be checking to see if their site is up and then I will put a link on ours for you all.

Thanks again for your support and caring, Denise

The link to Lexi's page is Caringbridge.org/ny/alexisrachel

Thursday, July 24, 2003 9:15 AM CDT

Tori can get MAIL at
Tori Angle
C/O Camp Good Days
58 West Lake rd.
Brachport, NY 14418

She loves mail so lets load her up!!!!

Guess I should have updated sooner sorry. I had to cancel the video shoot since we were all still sick. SO it has been rescheduled for next Wednesday at 9 am.

Tori is leaving Monday for Camp Good Days and is trilled. She has so many friends and is hoping to "bump into" some of tehm. I will try to post her mailing address ASAP so we can get a jump start on her mail. She loved all the mail she got the last week she was at camp!!!

Missa, Zach and Jake have VBS next week so they will be busy. Next Saturday we leave to take Tori to Ohio to meet her dad. The kids (all 3) are trilled because we have passes to do some more free stuff out there. Should be a nice time. When we get back Missa goes to see Dr. D We can not wait to hear what he thinks of Missa. She has a sono that day too so it will be busy. Zach will stay with ma and pa (I think she said that was OK...). He love to help Pa out around the house or bake with Ma.

All for now I guess. I will post the Address at the top ASAP. I want to mail something Saturday so she gets it Monday (hehe).

Friends, Denise

Monday, July 21, 2003 10:10 AM CDT

Below I have included a link to our friend Jared's page. Jared was treated here and in Rochester and lives in the area. The kids (Jared, Missa and Zach) all went to camp Good Days together. Jareds mom has and amsume picture of all 3 kids at the bottom of their picture page. I have also added a new photo to our page (I love it thanks Stacy!) Take a look!!!

SICK!!!!! Thats the word of the day(s) here. We are all sick. Darren did not want to miss church yesterday so he headed over (he says he felt ok). During church he felt worse again. Zach was miserable. He had a head ache and a fever. Missa "seems" better but we have and are keeping her extra immune med upped. Darren is back to work and the kids and I will spend the day at home in our jammies.

Hope you all had a nice weekend. Caitlyn turned 2 on Friday so we did see her for a little while Saturday. She is "two" funny.

Ok all for now I need a break... Will write later.
Friends, Denise

PS I have postponed the video shoot for the morning...

Thursday, July 17, 2003 6:48 PM CDT

Hello again. Well I promised an update and here it is. Zach's Dr. is no longer with the practice AND no one called to tell us this so he and I wasted the trip yesterday and we have to reschedule next week.

Missa was a different story... Talked with ID (infectious disease). They seem to think she will need Immune therapy (like a blood transfusion) now we are just narrowing down which parts of the system need a boast. So how do we do that... You guessed it MORE TEST (blood). So I took her down to the lab, I tell them she is a HARD stick. Well 3 sticks latter I think (not sure) they belived me. So they sent us back upstairs only to have 2 more sticks and FINALLY some blood (6 tubes). Poor kid 5 sticks for these test YUCK!!! Then to add to the misery she had to get a vaccine. So total of 6 "pokies" today. She did LOL when I got my shots tonight. She said "you do not get cool stickers" and you know what shes right. SO at least 10 more days before we know anything and the end of Aug. before we can test (yes blood) to see if the vaccine took.

Uncle Adam is headed to town now so the kids are so excited. They can not wait till he gets here. Daddy and he are headed up north to our property to hike in the morning. Think the kids can tucker him out before that?? I bet YES!!

Ok all for now, Oh can you all pray for our pastor. He fell a few weeks ago and only this week did they do the right test to see he has 7 broken ribs in front and 4 in back!! So needless to say he is in alot of pain. Thanks

Friends, Denise

Saturday, July 12, 2003 9:55 AM CDT

New News... I just got the call and Missa and Zach will be in the video to promote the new childrens hospital in Syracuse. Long story short a women saw their picture and thought thwy were cute and asked the person (whos desk it was on) if she would get in touch with Darren and I and ask if we would like to help out. Darren and I both feel that a childrens hospital would be a HUGE asset to Syracuse. So we will go up next Tuesday to tape. The tape will be shown at the fair and to potential donners. I will let you all know how the "shoot" goes!!!



Well I FINALLY got Missa an appointment with her "new" Dr. Not like they have not dealt with a million of her other problems. We see them on Thursday and Zachs Dr. Wednesday. Lots of fun for mom this week!!!!

Tori had a blast at camp (and has all the bug bites to prove it)!! The bugs love her and mom. She has new friends and can not wait to go back next year. She even "swamped" the canoe (you will have to ask her about that...).

We are headed out for the day (ok, the weekend). We have a party today and another tomorrow (you would think we were the life of a party, NOT!! hehe). Just lots of friends with lots to do. Next weekend we will have Caitlyns 2nd birthday party!!!! This summer is so busy.

Lots to do (camp laundry {SNIFF SBIFF} and all)!!

Will write again soon, Denise

Monday, July 7, 2003 12:36 AM CDT

Dad and Zach are both doing well. Zach still says he has a "thoat ache" but its nothing a little Tylenol will not take care of!!! Dad has been outside watering the lawn so I guess hes cured (hehe).

Tori has left for camp again. So if anyone wants her address to send her mail its... Tori Angle c/o Camp Lookout 2112 Wheler dr. Eaton, NY 13334 She loves to get mail. She will be attending 3 camps and her dads this summer so I will keep you up to date on what her "address" is for each week. She was trilled to be going. Grandma and I have already sent her stuf... If you wish you can use our address at the bottom as the return address. That way if its late it will come back to her here. I have talked to Grandma Angle and will be trying to "hook up" Firday when I pick Tori up. Tori made jam and I will take some down for her to give to Grandma Angle. CAmp is only about 15 miles give or take from the Angle's so it should not be a problem. Then I think it will be home for some Chinese!! YEAH after 2 plus hours of driveing I do not think I willl want to cook. Popa and Ma may even make it out...

Well have to run its almost nap time (yeah again!). I need to do a few things before nap.

Love and friendship, Denise

Wednesday, July 2, 2003 4:19 PM CDT

Just a quick note... Looks like dad will make it home in the morning!!! YEAH!! The kids (M&Z) talked to him today on the phone. Well Zach did Missa just kind of LOL alot while holding the phone. We did not leave on vacation as Zach was worse :>( Poor kid tossed his cookies TWICE last night. Do these kids not know what that does to mommies beauty sleep (YUCK do not look!!). So we are home and may go to Ma and Pa's tomorrow for a BBQ. Hope Zach is up to it.
PS Best wishes Vicki and family (she gets married on the 4th)!!!



Thanks for checking on us. Dad seems to be doing a little better. His leg is turning dark brown (were told this is a good sign that the infectionis leaving). I asked if he knew when he might get out of the hospital and he was not sure. So please continue to pray.

After nap today Zach woke up happy then out of the blue he started yelling that his head hurt him. I took his temp and he was at 101.7 so I called the Dr and he is back on Z pack. They feel he may have a sinus infection and those you need to treat with 2 rounds of Z. So here we go again only this time we are supposed to leave in the morning fot a vacation with the kids. So pray that God will show us what to do with Zach.

Still know word from Missa's Dr. I have an appoinment for Dr. D but not for the immune Dr. I will call them again SOON!!!

The kids had a blast at camp!!! They got to see so many friends (like Jared and he looks GREAT!). They were wiped out by the time they got home at night, but I think they are already excited about next year.

Ok all for now I want to get some stuff done so that when God lets me know whats right I am ready!!! I want to go to church for prayer night too!!

Love and Friendship, Denise

Saturday, June 28, 2003 8:16 PM CDT

Good evening!!! I can say that as it has been one in this house.

Girl Scouts is offically over as we finished our year end trip at 6 PM tonight. We had lotsof fun, Stayed at a hotel (with pool), went to a play, ate out, saw a movie and played putt-putt with ICE CREAM TOO!!! What fun it was. We had some great girls this year!!

I ZIPPED home at 6 to help Darren as we were haveing a small party in Missa's honor. Well let me rephrase that in honor of the work God had done this year with our Missa and the blessing He has allowed her to be. We invited our Pastor and his family and my family (Carl and Jennifer are on the other side of the country) to dinner. You see today is one year since Missa was discharged from the hospital for her last time. We have been one whole year!!!! Missa was thrilled to have everyone here. She got to show Monte and Thea and their kids Zach and her "birthday" video (yes tears were shed again, but my mom did well). We had a time to pray and thank God for all He's done for us. There was lots of timeto share stories too as Monte and 2 of his children just returned from the Ukraine.

Time for bed now. We have all 5 kids again as Dana and Chris are moveing this weekend. We will meet them tomorrow to "return" their kids!!! Hope you had a blessed weekend.

Love because of Christ, Denise and Darren Roebrts
proud parents to Missa, Zach and Tori!!!!!

PS Hey could I ask a favor!! Could you guys send some prayers up for my dad. Seems he has a "skin infection" on his leg. His fever was up there and he was sleeping alot so mom called the DR. and he said take him to the ER. They have admitted him. They say any where between 2-4 days. Looks like their (mom and dads) trip will have to wait. Thanks for the prayers!!!
Love, Denise

Sunday, June 22, 2003 12:06 AM CDT

Good afternoon. We are all doing better today.

Zach has been sick almost all week. Fevers hit 105.7 at one point. He finaly broke the fever yesterday. So now he just wants to RUN and JUMP!!!! He wants to go and play with his buddy Noah today but we have to wait till after nap to see how hes doing.

Missa is absolutly trilled as we learned this week that Chrissa will be her "counselor" at camp (Jr good days). I am excited and a little nervous. This will be the first time they are "away" from me. I mean we go out but they are leaving me this time!!!

Daddy worked alot last week so we are headed to take a nap. I will update again soon. I promise!!

Love and friendship, Denise

PS Do you just love the new picture or what!!!!!!

Monday, June 16, 2003 2:56 PM CDT

Missa is doing good and can not wait till Camp Good Days. Both her and Zach will go together on 4 day trips. This will be their first time away without mom or dad:>( Well maybe :>) We will have to see how much fun mom and Tori can have without the little guys. We do leave for our girl scout trip while they are gone.

Hope you all had a nice Fathers day. We did!!! We started the day at church haveing breakfest with my dad and Darren (the kids cooked). It was great. Mom and dad came to our house. The guys went fishing and took the kids for boat rides (in dads new boat). I was so glad it did not rain. Anyone for the east coast know what I mean. We have been thinking of building an ark for days now HAHA.

I had a new Picture to put on line but forgot to give it to my sister to upload for me. I may see her tonight so keep checking!!

LOve and friendship, Denise

Thursday, June 12, 2003 7:46 AM CDT

First let me say I have no news from Missa's dr.'s YET. I have left several messages and have not heard back yet. She seems to be holding her own with the antibiotics shes on. Its very fustrating to sit and wait. Next week all three kids go for physicals so if nothing has happened I will get some help from my nurse practitioner.

Ok now on to nicer stuff to talk about. So far this week I have attened 2 awards ceremonies for Tori. She graduated from DARE and even got a 100% on her final for DARE!!! Last night Darren, Grandma Jennifer and I attened Gold and Silver night. Its an awards night for honor roll kids. Tori recieved Gold honors. We were all very proud. The evening was VERY warm and HUMID!!! Yucky in a nut shell. So they let the parents and their children from 6th grade leave so that the room would cool off and so that the other paents could sit down. It did rain during the awards but it only had time to cool off the outside. So off to Wal mart I go to buy several more certificate holders. Yeah Tori!!!!!!!

I want to wish all the dads out there a wonderful fathers day. I know we will have fun. Daddy has several invites (from Jake, Missa and Zach) to have breakfest with them during Sunday school on Sunday morning. He is excited. Should be fun. Wehave asked my dad to attend church with us on Sunday and he said sure so we will spend most of teh day together. Not sure if we will come back here for dins or head out (but somewhere close to here). I think the guys want to head out fishing.

Please pray for our pastor Monte as he is in the Ukraine with a missions team. They are there for about 2 weeks. So I would appreciate the prays for him and the whole team as they do God work and spend Gods word. So much is happening over there daily. We are proud to share Monte with them as he is such a wonderful man of God.

Well should go and get a few things done before the kids, grandma and I head to Library. Lots to do and see!!! Enjoy your day!!
Love and friendship, Denise

Sunday, June 8, 2003 2:40 PM CDT

Good afternoon!!! What a glorious day yesterday was. No not the weather but WOW the family and friends that showed up were just great. We partied in and out doors. So much food!!!! You guys should have eatten more!!! We had folks here till around 8 or 9 PM and we would not have had it any other way.

To start the day Aunt Micki and I went to get the cake (on the way I remembered it was OZ fest. WHOOPPSS!!! I made it through Chittenango before the parade started and came home the back way. We made it home in time to meet Kathie, Wyatt & Myanna. What a blast it was to meet them (finally). Kathie has been such a wonderful source of laughter for us (read some of her sign ins). We are hopeing this will be the beginning to a beautiful friendship filled with long trips to see one another (haha). Thanks for the gifts for Darren, Tori & I too Kathie you really did not have too!!

12 PM came and went with only a few people here. OH NO was the weather holding people off??? NOPE soon after there was a mad dash for parking on Lucas rd. I just love LOTS of company and Darren thinks I am nuts. We had a great time visiting with all kinds of friends. Some new some old some back from Australia!!! What a wonderful blend. SO many of the folks here knew each other some how. School, churches, work... Small world. We got the chance to talk with some people that we had only met briefly at Missas benefit. What nice people to have around and surround you. God has blessed us so much.

Ok so I made my mom cry (and many others too I might add). Well I should say Micki, Darren and I made them cry. We all worked on picking out pictures of the kids (through the years) includeding Missa's sick times. OH how people cried. "look at her now" and "you would never know that she had been so sick to see her now" were just two of the comments over heard MANY times. The videos was beutiful and I will be sending copies to L.I., NY ASAP (or right after I figure out how to hook up the 2 VCR's).

Missa and Zach send their love and thanks to all of you that were here, sent cards and just plain made there day by signing in during the last week. They love all of you and I love knowing they have so many people to rely on. Again thanks be to God for giveing you to us.

We had JAke and Caitlyn today for church. We had a BBQ after church to dedicate the new park. Was a nice (alittle warm for me but)time. Then we stopped to see our friends from Camp Good Days at their picnic. A full day. DJ and Chris are on their way home now and will be here to get the kids soon I am sure. SO I must go and get their things together.

OH yeah and MOM Tori is already 11 and yes I am thinking on to next years 12th and 6th birthdays!!!
Love and Thanksgiving, Denise & Darren

Friday, June 6, 2003 7:22 AM CDT

Ok we have decided to NOT get the bouncer. There is a strong chance for rain not to mention if the wind blows just right there could be down pours!!! We WILL have FUN!! thats for sure. We will set up in doors with the hope that we can go out side to eat and play. My mom and girlfriend (Aunt Micki) will be here helping me get ready today. Lots to do so I will keep this short.

I wanted to ask that we pray for little Jalens family as he passed on to be with God this week. They will need strength to carry on I am sure. Jalen has a page www.caringbridge.org/fl/jalen I would also like to pray for Rachael (I think thats the spelling). She was diagnosed with cancer not to long ago and I am sure needs much pray during her long road ahead. I do not know of and other info for Rachael but I will pass any news along as we get it.

I had to call Dr's office and have the test results faxed to Dr. D the other day. They sent a letter but NOT the results. Missa is back to sneezing and haveing a sore throat. We are keeping an eye on her to make sure it does not get any worse. What I really want is to get this "train" a moving!!! The sooner the better literally!!!

Ok I will update ASAP after all is done this weekend. We will be extra busy but are hoping to see most of you in the morning!!
Friends, Denise

Monday, June 2, 2003 8:18 AM CDT

Well in just under 1 hour and a half my babies will officaly be 5!!!!!! They were born at 10:51 and 10:53AM. Would have been closer but Zach had "wedged" himslef up into my lungs (haha). They are happy about turning 5 but, Missa was crying this moring saying "NO I can not have this day I want a summer birthday". I just have to lol at some of the stuff they say lately.

Well the party is still on for Saturday and we hope you all still come. I have been watching the weather and it does not look good. I am going to wait till Wedsday to make final "moon bouncer" decisions. No point in rentinit if we can nt use it. BUT we have a big house with lots of room so PLEASE come and share this day with us. Its all about our family and friends when it comes down to it for us.

My sisters wedding was nice. The baby (Caytlyn) fell asleppon me during the wedding (to cute it was!!!!). The reception was out side (COLD AND WET for all those not from here). But we made the best of it and had good food and got to see lots of family and old friends. Jake and Caytlyn stayed here Saturday night (first time for her) and both did super. We still made it to Sunday school and church. I laughed and said to Darren yesterday "I could have ha 5 (kids)." We took the kids to see Finding Nemo" beofre taking them to Dana and Chris last night. The movie is GREAT. If you have kids its a MUST SEE!!!

Well have to run and get things done for Saturday and tonight to as Tori has her final concert of the year. We have a BUSY week again. Now that Missa is better it makes all of the running around easier for me. Thanks for checking and don't forget to sign in (right Cindy haha).

Friends, Denise

Tuesday, May 27, 2003 8:27 AM CDT

Update... Well the weather held out and the kids got to go fishing with DAD!!! They caught 7!!! They only kept 3. I have to tell you this was the funniest thing. Missa and Zach held the stringer and the fish were still alive BUT once daddy put the fish on the counter to "gut" them and they started to move Missa started "screaming", like she was under attack. As a good mommy should I called from the living room and told her she could come out there with me. But she stayed and screamed. Then Darren has this "fish skinner" well Missa is watching and I hear her say "Oh thats gotta hurt!!!" I was laughing so hard. To top it off she decides to tell EVERYONE else why THEY should eat the fish. She tells Zach "it will give you muscles" to which he replied "I have big enough muscles". They were SOOOO funny I just had to share.

Now as for the hair up date. Well lets just say I am forgetful. I never remeber to have my mother in law take a picture and hey its another reason to come to our party (hehe). I will try Kathie really I will!!

Zach and Missa have new quilt suqares if you care to look!!! Thanks again Twiggs!!!


Good morning, Well I know most (if not all of you) either do not know or do not remeber BUT we have been home from our transplant 1 year and 1 week today!!! Ok so things are not where they are supposed to be BUT anyone that has followed us knows Missa's body LOVES to keep us guessing!!! So we continue to work with her body and continue to be grateful for the chance to live a "normal" life BUT to have met so many of you through our hardship.

The kids and I baked cookies the AM. They are so yummy!! Not so good for watching the waist line but OHHHHH they are so good.

We had a nice weekend (despite the rain). Got to see my girlfriend. We are working on a surprise for all at the kids party. So do not feel left out grab your lawn chair and swing by!!! The kids rode their new "big kid" bike as much as possible this weeekend. They are having fun on them. Learning to use the brakes is fun to watch!!!!

I am hoping to hear form Dr. D soon. Missa's ENT called last week to get his address. So he should have results soon and be able to get us the help she needs. We have LOTS of plans for the next 2 weeks so please forgive me if I do not update as much as I would like to.

My sisters wedding is this weekend and the kids are all helping out. Then of course its their birthday Monday and the party is the next weekend. LOTSSS to do.

Hope you all had a blessed weekend.

Love and friendship, Denise

Thursday, May 22, 2003 11:53 AM CDT

Hello to all. If you did not get the chances to read the last update please feel free to look at the past entry. i will say that we have "the answer" they think and Missa is not making enough of certain antibodies.

Miss is LOVEING the pictures left by Janice. Zach keeps saying they are for me to right mom!!! (lol) Janice we can not wait till the kids party. We get to see some friends that have just moved back from Australia!! They left right after the kids FIRST birthday. We have missed them so much. We meet through my dad as the guys worked together. Any ways I keep tell teh kids that you live where they (the couple and their kids) used to. We love haveing you check on us and only wish you were closer so we could meet!!

I wanted to mention that if you are planingto come to the party if you would please bring your lawn chairs. I have several and some blankets, but its alway nice to have "your spot". The kids are so very excited to see ALL of you. This will be a birthday not soon forgoten I am sure.

Another busy weekend. Tori has plans, daddy is working Saturday and mom and the "twins" will have to fend for themselves I guess. We always find something to do. Maybe we can go in and bug MA and Pa??? OR maybe theycoudl come out here!!!!! That would be fun huh!!!

Next Saturday is NANA's aka Dana, DJ,etc... wedding. Tori is very excited as she is in the wedding. She and NA bounded since I was so sick after Tori was born and Na took care of her. The weather does not look to bad. We are all hopping to see some of dads family there. Then the next weekend it PARTY AT THE ROBERTS HOUSE!!! Tori loves that part to. Every year she gets more excited. She has so many friends that come that we do not get to see very often. She would love to do some face painting again this year and we may just have to let her. Her and Sarah did a great job last year and the kids LOVED it too.

Ok well time for mommys nap!! Zach got up at 4:30AM looking for a tape he had wanted to listen to!!!! YUCK!!!! So a I am wipped out and to be frank I am not sure how Darren is doing it at work. It was funny now thatI think about it. When you son wakes yelling "Cinderella". Who would have thought.
Good bye for now my friends, Denise

Sunday, May 18, 2003 6:43 PM CDT

Update!!! Ok we saw the Dr. and here is what he had to say... Missa has several IG's that are low. Translated to lack of some of her IMMUNE antibodies!! Shocker huh. We knew this would be the problem. Call it parents (ok moms)intuition. So now we head to an "immune dr". Funny they are in the same office as Dr. D. Come full circle I guess. We do not know if we can just "jump start" her OR if she will need this FOREVER!!! have to wait and see (and PRAY!!!). Love you all and its nice out so I am going to go and play and BBQ for Dins with Nana, Jake and Caytlyn tonight!!
Bye for now, Denise


WOW what a nice week and weekend we had!!! We stayed busy. The kids had their last pre kindergarden class!! They were so happy while they were in class (I do not think the fall will be too hard).

Daddy and I got to use our gift cert from grandma on Friday night. We have a great sitter (thanks Sue) and she has back up (right Lisa). The kids LOVE them both so much. Lisa waits here in the morning to get on the bus and now that the weather has broken the kids can not wait to walk her to the bus in teh morning. Darren and I went to Garys in sylvan Beach for dins. Then he took me out for a milk shake at our favorite ice cream shop. They were so generous to us while Missa was sick. When she first started to eat this couple that owns the shop let her eat there 3 x's a day!!! All she wanted to eat was soft chocolate ice cream. They said they loved the Christmas card we sent with a Huge Thanks for their support and we included a picture (the one in her Minnie outfit) as this was from her Make a Wish trip. These folks support Make a Wish. They thank us for the card and said thats why we are business, to help those in the community. So long story short it was a nice night out.

Yesterday was a play day at Noahs again as the daddys had mens breakfast. The kids (and mommys) have a nice time while the guys study Gods word. Darren enjoys this time so much now. He is SOOOO happy after he goes. He gains somthing each time. After the guys were back we headed to ma and pa's house. We helped with some yard work. plantting trees and bushes. I think Ma and I did more picking on the guys then any thing else. We got to eat dinner together which was nice!!!! We did not leave ma and pas till 9:30PM. The kids were all wasked up and I think they left they left a ring of dirt in my parents tub!! When we got home we found MAIL from Kathie. Ok we need to get something staight my MOM LOVES fun fetti. I only like it (haha). You see Kathie sent us a nice card with what appeared to be 2 bags of the stuff inside!!!! Darren died laughing.He said we should send it onto my mom... HUM????? Did I mention that there is sometime silly string at the party for the kids Kathie??? (hehe)

Today was church and the kids had a ball. It was our Pastor and his wifes anniversery this week (25). So we had a lunch together after church. Monte (our pastor) looked at me and said did you know about this? I said I brought a salad does that count?? It was a nice time. They are such and inspiration to us all. We took a short nap and then it was off to grandmas to play for a bit. Then to Putt Putt at the same ice cream shop as above. Zach got a hole in one on the last hole and won a free game. He was so happy. He said "Dad the lady says I am a good golfer and can come again to play" 'I love my ticket" (he said about the card for a free game). He was just to cute this weekend. at my parents (yesterday Tracey hehe) my mom asked himto line up all the shoes as she was tripping over them all. Well he did just as she asked.... Right acrossed the doorway!!! I laughed so hard. My poor mom.

Oh well shoud go and eat some leftover salad. There is stil lots to do and Jake has a game I want to make it to Monday night. Tuesday is Missa's ENT appointment. I will update you all then.

Love and Friendship through and beacuse of Christ, Denise

Saturday, May 10, 2003 8:59 PM CDT

Just a quick note to you all. First and for most Happy Mothers day!! I just returned from a dinner with my mom and Tori at church we had lots of fun ans laughs. Dinner was at church and served by the men. We had a great time of fellowship and worship. I was reminded today when Darren said to me "Its so nice to see Missa's running around and playing" how I spent last Mothers day, in the hospital during a stem ceel transplant. She could not talk or play she felt just awful. I thought look silly God has given you SOOOO much in 1 year. I had been in a (little) mood until I thought of that. So please enjoy your mom and if for some reason you are unable to then remeber her in a nice way.

Kathi we just love you so much. Once again Missa was TRILLED to hear she had mail. She was so proud of herself for still being in remission!!! Zach to was happy to read along with her. They are so funny, we can not wait for you to meet them.

Mamar hope you enjoyed your trip YEAH SCOTT!!!!! For those who do not have a clue to whom I am refering I am talking to my aunt and cousin. He graduated this weekend from W & M collage, but better yet Mamar said she was GOING!! I hope you had a wondeful trip. Send and Email with all the info.

Do not forget to check out Zach at www.campgooddays.org. He is in the Syracuse area then in the FM fundraiser. He's just to handsome.

We are going to get pictures taken next weekend (talked to the girl today that I like to do them). So hope to have one of Missa on our home page in a few weeks. I have still been camara shy sorry. Maybe I can have someone take a pic tomorrow with their digital. We have 12 people coming to dins and DJ and family say they will be by later. Lots to do.

Love in Christ, Denise

Thursday, May 8, 2003 2:12 PM CDT

Busy day again. Lots to do. We have so much on the calender this weekend. We do enjoy it all so its not trouble.

Wanted to let you all know you can see Mr. Zach on the WWW at www.campgooddays.org Click on Syracuse and then click on the Fayetteville fundraiser. We attended this annual event for the camp. The kids from FM raise $60,000 I believe!! My kids were glad to stop by. We even bumpped into Dr. D there. All three kids will be "doing" camp good days this year. The little ones will be doing day trips and Tori is thrilled to be going away with her friends for a week. The kid will be gone 5 weeks (I think all in a row) from home 3 weeks of camp and 2 weeks with her Popop and Shelly.

Ok lots to do. Have to get ready for my shots (allergies). The kids can not wait to see Pat's new office. Sad my kids get a kick out of our NUrse Practitioner getting a new office.

Friends, Denise

Tuesday, April 29, 2003 5:07 PM CDT

PRAISE God, FROM WHOM ALL BLESSINGS FLOW!!!! MISSA REMAINS IN REMISSION!!!!!!!! I am alitte (ok, alot) excited to get to write that to you all. Wow what a day today has been fast yet slow, hard yet somehow easy. We know it is because of all of you p[raying for all of us that we made it though today. I have to make this short (Missa wants to play online). We also found out that we do not have to see Dr. D (ongologist) for 3 months (we have seen him for at least 1 a month most of the time more often for so long what will I do). Well now the little ones are yelling for the computor. Thanks for checking on us.
Love and Friendship, Denise

Ok I can check back in now. I have started to mail invites. If by some chance I do not send one to you PLEASE know you are invited!! I do not have everyones address so I can not be sure you each recieve one. Kathi I did save your envelopes but can I find them now to get the address NO!! So if anyone wants to they can email me thier address or you can just put June 7, 2003 on your calenders. We will start around noon and as so many of you know you are welcome at any time. So if you have something else to do but want to come later please feel free. Thanks for undersanding.

We are all so very happy about Missa. Monte (our pastor) announced on Wedsday night Missa was still cancer free!! The room "rocked" from cheers and clapping. I got a tear in my eye just knowing ALL these people were there for us. It still amazes me that there are so many of you that love us so.

Well should go Missa just got up (9 AM) not like her at all but thats ok we have to go shopping later with MA and so she will only get a cat nap later. Bye for now, Denise

Friday, April 25, 2003 3:58 PM CDT

Good afternoon. I want to thank you Vicki and Kathie for the encouragement (boy do I need it). I will try to put the "new do" on soon. i am a bit camara shy.

I did want to give a update "sortta". We saw the Dr. today (ENT). He agrred she should have tubes (hope he tells his partner). We are doing some blood work to make sure that Missa's CONTINUED sinus trouble is not do to bad or overactive antibodies. What does this mean well in a nut shell we have to wait TWO MORE WEEKS. Why no one say WEEKS ago. I am just a bit frustrated (I am sure you got that part already). I just want her to feel good WITHOUT DRUGS for a change. So we sit and wait and Pray.

I would appreciate it if you all could look at our guestbook. Kathie has asked for us to pray for a little guy in Florida and has included his Caringbridge site. Please lets let this mom and son know we care and are holding tehm up in pray. Pray is such a blessing isn't it. So easy to do yet does so much!!! Please keep this in mind. I will be stopping by their site ASAP.

All else is good here Busy with better weather. Enjoy it while we have it. Soon it will be winter again (in CNY HAHA).

Love and Friendship, Denise

PS Will update after Tuesdays CT (10AM if yo want to pray hard then).

Tuesday, April 22, 2003 9:36 AM CDT

Good morning!! Rainy and foggy here. Hope its nicer where you are.

We had a glorious Easter. We attended church (what a blessing that was). Here I am during worship feeling so moved by an old song (Because He lives)I end up crying my eyes out. Not that its a bad thing it was just so moving. Missa and Zach loved their class as did Tori. We had our families (those that could attend) over for dinner. Mom (Roberts) made the ham (yummy again). The kids were able to play outside as the weather was wonderful. We did some yard work after everyone left too, it was just a great day.

I love my new hair. It took a bit to get used to it but Iam now and am very happy. Darren to has gotten used to it. I think he must be getting more sleep now that I am not wakeing himup every five minutes for being on my hair (hehe).

Uncle Karl seems to be hoilding his own. He still has a fever on and off. They found that he had a infection in his PIC line so that was removed but he still has a temp. So thime will tell and I will let you all know how he is doing.

The kids start their "bridge to kindergarden" program tomorrow. I am excited to see them react and interact. They can not wait either. The program runs three weeks and is supported by the PTA. They use it to give the kids a feel for school.

Missa starts her week of Dr. runs tomorrow also. We have the CT od sinus then ENT Friday and Dr. Dubansky on Tuesday, which will include a CT of her abdomen and her echo of her heart to make sure things are ok and that her murmur is not worse. Lots to do so please keep us in yor prayers.

i am trying to work out and eat better so please keep me in yor thoughts. I want to look and feel better. The kids are haveing fun "working out" with me. I just hope I do not step on one of them. Please feel free to encourage me (I need it)!!!!

Thanks again for all your help, Denise

Friday, April 18, 2003 9:35 AM CDT

Good monring. Just wanted to update all of you that are praying for Uncle Karl. I do know how I like to pray for specific things. Well he did have a few "set backs" as were written in mammar's guest book entry. Well as of this AM it is our understanding that they will be trying to "wean" him for the respirator. This is a very big step. He slept during my parents visit yesterday. So I am hopping for a better update tomorrow morning. Thanks you all for the prayers I know they are working. If he can sleep alittle and be comfortable then thats important. Please remeber my parents as they will be on the busy holiday roads Friday (to Kingston to see Grandma Summers) and Saturday to come home and be with us for Jakes party and Easter Sunday.

I want to send a BIG HAPPY BIRTHDAY to Jake. He knows he is my favorite nephew (ok my only but whos counting). We had a ball making and decorating cookies yesterday. He will be 9 years old (makes me feel old). I can remember being there when DJ found out she was pregant with him!! WoW now I feel really old. Anyways We love you Jake and are very glad you are part of this family!!!

Jake asked me the other day "NeNe, Whats your favorite part of Easter?" I answered quickly with "church". When I had a chance to think about it I realized how much it is Church for me. I love to fellowship with our friends and the sermons are so dead on for us. Darren and I just love where we are. We have learned so much. Even about each other, just when you think you know it all (haha). I hope that each of you can find a church family that you can celebrate each day with!! Tori to enjoys church. She had the chance to stay on Wedsday night and paint. I am not sure how much sleepng she did, but she did say she had lots of fun. Its good for church to be fun sometimes.

Missa is doing well. Still on med (antibiotcis). She has a CT of sinus this Wedsday. She is excited for Wedsday because they get to go to school. They have a "bridge" to Kindergarden program that will last 2x's a week for three weeks. They are trilled. i am excited to see them react as I get to stay with them during this adventure.

Missa's other CT is April 29th. Darren and I need your prayers for this time. We are concered, trying not to worry as we know that would not be God like. This is the first CT off theropy. As many of you knw and mnost can understand there is no "saftey net". We can not say well we are on Chemo. So if tehy were to find something we would be starting all over again. So please pray that God will give us the stength to cope.


We just wanted you all to know we are planning on June 7 for the kids (Missa and Zach's) birthday party. We would be so happy if you felt you could make it. We have big house and yard so please let us know if the trip would be to much for one day we can open our house. We are planning (ok I am planning) a Hawaiian theme. I and the kids are so excited. So Kathie (lowville) and everyone else too PLEASE put us on your list of thing to do that day. We want to meet new (I say meet as I feel we know so many of you) friends. Thanks for keeping us and the Party in mind!!


I wish you all the best Easter ever. What do I mean well I do not mean gain 5 pounds (hehe). I mean I want you to feel Gods peace within you. Let him work in you. Each of you is special to us I hope you remember that.

Love and friendship through Christ, Denise

PS Just finisihed Easter Basket with the kids. They had a ball. Such a differance to last year. Missa was still sick and waiting for her transplant. Mom and dad made it to Jake's party yesterday (they were exhusted). We will see them later today. I went for my "day away". Got my hair cut. Darren and I think it looks alot like Aunt Janets. Big differance!! Kathie from Lowville, I do not know how to get rid of BIG spiders (but there are so many cool people that read this page someone must). You made our Easter. I just got on to read our guestbook and there it was YOU GUYS CAN COME!!! Missa and Zach were also thrilled to hear of another June birthday and that your son is so close in age!! We are so excited to meet you and your family. You have been so wonderful to us (people you only know by this page). I can hardly wait till June 7th!!

Monday, April 14, 2003 7:33 PM CDT

Happy Spring!!! Lovely weather today!! Tomorrow is supposed to be 81!!!! Can not wait.

Kathy, thanks for teh cards. The kids went NUTS when they got the mail Saturday. They were so happy and I do not think Tori found any errors (haha). We so appreciate all you do to make us laugh and just feel good. Sorry the weather has not agreed with you all. Its that time of year.

Vicki, Thank youso much for taking the time to "stop" and check on us. You must be so busy with wedding plans and all. Missa is feeling pretty good lately and its due to all the prayers that everyone has offered up I just know it. we think of you often. Best wishes.

Now for everyone else, We are all doing ok. We all have colds. Zach has a bad "bark" with his but nothing thats holding him down to bad. There are so many new babies around I can not wait for all to be well so I can hold them. I have a special request, You see I have a very special person I need you to pray for. He is my Uncle Karl. He is the sweetest man you would every want to meet. He has a heart of gold. he is very ill right now. He is in a hospital in NYC and they are doing all they can for him. They are running all kinds of test so lots of poking going on. Karl has been sick most (if not all) of his life. He had a brain tumor when he was young which was removed but he has had many other "illnesses" over time. He can not read so I hope that (I know that) Aunt Kathy will relay to him that I have asked you all for your help (again). I come to you because I know we can do it. I want rest for him. He has had so much pain lately. I want him well of course. I wish everyone had the chance to meet him. He has attended both my weddings even though he could not read a bus schedule to make it. He was in the hospital so I did not see him while down for my cousins wedding a few weeks ago. With the kids having just been sick it would not have been good for him. We love him dearly and hope you will keep him in your prayers.

Karl, To you we send our love, I am truly sorry you have had to go through this for so long. We know you have been praying for Missa and now we are praying for you. We think about you all the time and I look at the picture of you and me everyday (it one of my favorites). Missa is doing better so now I need you too OK. Dad will be there soon with hugs and kisses from me and Darren and the kids. take them as if we were there to give them to you. Keep fighting many people are praying and prayer works. We love you.
Love, Denise

Thursday, April 10, 2003 2:33 PM CDT

Hello again. I have made arrangements to get new photos up. My scanner broke so I will have grandma put them up (she is in Rochester today) but, soon I promise. I even have a great one of daddy and Missa I want up.

Missa had her blood draw yesterday morning. What a nightmare. They had to stick her three times. The results came in and they were not bad. 179 platlets (normal range yeah), hemogloben 11 (good), Whites 6 (also good), thn the corasol/immune level 5 (was 6.8 two weeks ago). I was not expectig tem to be high really. I know this kid and it was not going to be high enough to come off the meds. She also contiues to be on the antibiotic (think she is handling it beeter then Tori or Aunt Micki hehe).

Mommy went to the dr's today as she has not been well (yes me). I have been "dragging" for about a month now so I decided it was time to try to figure out what was up. I saw Pat FNP andwe ran some blood work OK LOTS of blood work you would think I was donating. I can not because of my blood disorder but I remeber what it feels like again. Pat say do not expect any results till next week. I feel so bad for my husband I am so wipped out. He ends up putting the kids to bed and I am already asleep. Hope we get some answers next week. Darren joked today that it is MONO. I am not so sure of that but I do know the man gave me his COLD!! So as if I did not feel well enough now I am blowing my noise ever 5 minutes.

The kids are off from school next week and the following Monday (after Easter) as we did not use all our snow days. Yeah 6 days with the little darlings (just kidding I love them to death Jake included). I am going out Tuesday afternoon to play with make up ( Mary-Kay). Grandma was nice enough to say she would step in for me that afternoon.

I think that covers it for now. If i have anything to add I will do it in a PS.

GO SU!!! Pep rally tonight I will be asleep I am sure but this house is proud.


Love to you all, Denise

PS New pictures are up Kathie (and everyone else). Thanks for staying on me. I need that!!

Saturday, April 5, 2003 5:23 PM CST

Good evening!! Let me start by saying GO ORANGE!!! Its a Syracuse thing for those of you not from here.

Well Zach's glasses are ordered and the Dr. says he need them all the time. Poor kid could only read the top line. He is excited they have ducks and sailboats on them. He tried them on and the man at the desk said "Oh he has wore glasses before". I say nope. He just did such a good job putting them on.

Missa went for a CT scan of teh sinuses and they said tehy were worse them in Jan. So we are going to try 21 days of Biaxin. Its an awful tasting med (right Micki). Tori hated it big time when she was younger. After the 21 days she will have ANOTHER CT. We have an appointment with the ENT so we can say look we have done EVERYTHING!! I think 8 rounds + of antibiotics counts as EVERYTHING. Missa is dealing with it (for now at least) like a champ.

Did get pictures from the wedding. They turned out beautiful. I hope to post some on here real soon.

Ice storm hit us pretty hard. Kathi (Lowville) I feel for you guys, but you are so funny when you write, Darren and I both lol. We did get our fair share but once again we fair up well as we did not lose power for to long BUT they are saying the middle of next week for some people in the Syr. area. Please pray for all those with trouble from this storm.

Please also remeber our troops. They are doing a beautiful job. They need our prayers as do our leaders.

Enough for now, Denise

Monday, March 31, 2003 2:39 PM CST

Good afternoon. Well we made it home (and in one piece might I add!!) NYC driving is not my favorite but the people there are nice (the Island people too!!). The trip took about 7 hours down (LOTS traffic jams) not that I did not know about them you just hope that once you could make it threw the tunnels and acrossed the bridges with out stopping. Ok so I am a dreamer. My dad (sorry have to mention this one dad) got lost!!!! Darren and i did not!!! Dad gave us directions so they must have been ok. He wanted the upper deck to the GW but there was an accident right at the on ramp so we had to make some quick changes and to be honest that is where I think we lost him. We had a great time at the hotel (the rooms were right across the hall from each other hehe). My kids had a ball running back and forth between our room and my parents. Thanks again mom and dad for all the help!! They were great to us at the hotel, wedding, reception and so on.

The wedding was a dream the bride was gorgeous (the groom looked good too). Missa slept during the wedding Zach watched but could not wait for it to be over (it only lasted 1/2 hour or so but he wanted cake). My cousin Kristi (the bride) thought of everything. She had a group photo taken after the wedding with all the guest in it. The reception just blew Darrens mind (ok mine alittle too). I can not even begin to describe it so beutiful will have to do. Missa danced with Kristi and even got to hold her hand as she threw her bouquet. We all made it to the end of the reception 5 hours later.It was back to the hotel to change and bathe the kids (they were so very sweaty). Then off to Aunt Janets (mother of the bride and also looking lovely that day) for a visit. The kids had a ball with my dads cousins daughter Alara (might have killed the spelling, sorry). They were all about the same age and just had a blast. We stayed there until the kids could almost not stand any more. Then we slept until it was time to leave Sunday morn (ok so I let them get a bite to eat but they had to be quick). We were back home around 3:30 PM.

Well now back in the real world. Zach threw up twice last night so we did not get to bed to early (Miss went right out). Well this morning we found out why she was misserable. She had a low temp 100.6 so we gave her some Tylenol. Darren decided since he was only working a short day that he would call in so he could give me a hand. I was so blessed to have him because things went from bad to worse. I call our FNP and she said bring her over. Missa was 103.7 when we got there, and that was 3 hours after the Tylenol. Poor kid was in bad shape so we did not take her to the ENT this afternoon. We have been home with lots of meds. She has only been off antibiotics since Saturday night. Man when will this stop.

All for now, Denise

Thursday, March 27, 2003 4:19 PM CST

I want to thank you Kathie (Lowville)!!! Yo made my Tori's day. She was feeling alittle down and when she got home today she got your card. You are SOOOO sweet to have sent that to her. She loves it. She loves knowing that people are proud of her accomplishments even if they have never met her. She is a awsome kid and says she would love to meet you some day. Thanks again from the bottom of our hearts.

We are leaving in the morning for the wedding!! Yeah i am excited. Can not wait to see everone and for them to meet my husband and kids. Looks like we will head back to Syracuse (Bridgeport) just in time for the COLD weather to hit AGAIN!! Oh well thats the price I pay for alittle vacation (hehe).

On the Missa & Zach front, we did go to kindergarden registration yesterday and they say Zcah needs glasses. Came as a bit of a shock but when we started to peice things together (sitting close to TV, no real intrest in reading, etc) it did make sense. So I will make an appointment for next week I hope for him to get glasses. Missa was "hurt" that she does not need them (I think she is over that now). We saw Dr. Dubansky today and talked about Missa and all these infections. He has some input that I will talk to the ENT's about on Monday. Her platletts were down to 128 but the immune was up to 6.8 what a trade off huh. They have both gone up and dropped so many times I am not sure what to say or think about these results. We will wait till next draw and then maybe I will have a better feel for whats up with my girl.

I will see my "elbow" dr. on Monday too. I hoep he has some good news on the pain control end of this. I have alot more movement tehn I did last time I saw him but I still can not extend my arm all the way out. He did say this would happen so this may be as good as it gets. As long as the pain stops I am ok with that.

Daddy is getting a hair cut and then home to help pack (mommy needs to get started)!!! The kids can not wait to leave and are counting down the hours. So I will sign off for now. See some of you soon and to the rest of you well we miss you all.
Love and Friendship, Densie

PS Please remeber to pray for the troops and our President. These are the people God has given us to lead and protevct us and I feel the least we can do is pray for them. Thanks

Friday, March 21, 2003 7:18 AM CST

Ok, I am back. Seems like forever since I wrote last, even though I know its only been days.

We have been very busy around here. Lots to do. Tori is preparing for the spelling bee tomorrow (I am not sure where her ability to spell comes from. She is just a wiz). If she does not make the top 35 (out of 200) we will be going to my cousins wedding next weekend. Tori is excited either way. I had to rent a van (due to the little trip I took in Feb.) and the company I am renting from has a TV/VCR in every minivan. Not to mention she can not wait to see Kristin and Mam mar. The babies are also excited about seeing everyone and their pets too!!

Lots of "medical" news yesterday. I think I mentioned that my MRI saw that I was anemic and there was some concern about my factor 5 (my clotting diorder). Well turns out there is no need for concern I am just plain old anemic and BUSY!! On the Missa front her ENT called the other day and says well.... Her adnoids are "normal" size so I want to talk to my partner about what to do (sinus surgery). After he spoke with his partner he called me back and suggested that he call her onogologist to see if she has been tested for a certain anitbody. This antibody would help her get less infections. So we are working on that front now. I truely hope this works since it would mean no surgery. Zach and Tori both had the BUG this week but both seem to be doing better today.

Jake (my nephew) is here for the day as the kids are off from school. We may try to make it to the movies to see Piglet's big movie. I am not sure how it will all work out since Tori has plans with grandma to scrapbook. Then this evening we get me niece Caitlyn for the evening as Dana and Chris are gettting out for a while. This should be fun as Caitlyn does not "like" Darren. She closes her eyes and pretends he is not there most of the time. Its very funny I should video tape it. Last time she was here she closed herself in the playroom and Darren heard her knocking on the door and got her out. She did seem alittle more receptive to him after that (haha).

We will be very busy this Saturday with the Bee and another birthday for a friend. Lots to do. I will add a PS after I get home with Tori tomorrow to let you all know if she made it or if we will be road tripping it next weekend. I am sure she will make us proud no matter what.

Still proud to live in this FREE country, Denise

P.S. Tori did not make the final cut. She took it very well. She is ready to try again next year and is MORE then thrilled to know that she now has Friday off to travel. We have not seen most of my family for some time (Darren has only met my 2 aunts and 1 uncle,but not his twin). I am so excited as I will get to meet some of my family that I have not met before but they have connected to this site (yes, you Tracey)!! So get ready for lots of hugs and kisses and maybe even some tears (of JOY!!).

Tuesday, March 18, 2003 7:20 AM CST

Good morning from the Roberts/Angle house. All is well here. Everyone seems to be doing well. My arm, Missa's sinuses and ears and Zachy's ears are doing much better too.

That said I want to talk about our Country. This glorious land that we live, work & play in. So if you do not want to hear my thoughts on things then please do not read on as I will be sharing my thoughts.

First I am not a "fan" of war BUT, I do support the war and our President. I do believe God wants our President to "take care" of this land and its people. We need to remeber God has his hand on this. Our President says he prays daily for God to lead him. Please join our family in DAILY prayer for our President. The man God gave to lead us. What a rough job. Never being able to leave his work "at the office". We have also written an email to both the President and the Vice President stating how we feel and letting them know we would be asking you to help pray for them. I know for a fact that there are so many of you that are prayer warriors. They need our support and prays. So please take a minute (or an hour) and PRAY for them. Pray that they will feel Gods hand leading them and comforting them. You to can email them at www.whitehouse.gov. I also like the site www.go-george.com, this site just let you log in as a supporter of our/your leader. Hope these sites help you out. I also want to add that I do pray that this war will be swift and have little or no casulties.

Well thanks for listening to what I had to say. I must go now as there are many things to be done.

Friends, Denise Roberts, Proud to live in the USA!!!

Thursday, March 13, 2003 2:35 PM CST

Well we have had our appointments. Missa did great. Her dr. said no tubes for the ears. He suggested she have her tosils and adnodes out (sorry Tori is not here to correct my spelling).So he will look at Missa's CT but with the info I gave him he felt pretty sure a T&A was in order, says it will help her drain and therefore not get so many infections. Her platlets are good back up a bit to 133 but the inmune level dropped again (who knows)!!. So she would be ok to undergo surgery.
Mommy is tolerating elbow. Well I say that because I had to stop pain meds as they were giving me a BAD headache. I have had this happen before so now I am trying to make it on lots of tylenol. I am moving it daily but I am not sure I am making much progress. I am trying so please continue to pray that I do the right things for and to my elbow.
We have started Zach back on his Zantac. He puked all over poor daddy last night and had complained of a tummy ache the day before. So back on we go. Mu st be it was doing more then we thought.
All for now (I think), Denise

Tuesday, March 11, 2003 3:06 PM CST

Hello again firends,

Well another busy week under our belts. We had a wonderful time Staurday at Tori's party. Missa now runs around our house yelling " look I am a rate (karate) girl". Tori's party was at her DoJo and they gave each of the kids a tee shirt. Missa and Zach wear theirs as often as possible. Tori had a ball with several friends (even one I surprised her with) there. The kids were sonked after the party was over. We headed home to meet Papa and Ma. They came out to give us (mostly daddy) a hand getting ready for the party on Sunday. Everything was done before bed Saturday night. Sunday was another grand day at church, I tell you it is truely a blessing to have somewhere to go during all the storms life has for us. Darren feels it too. We are just at home and I wish this for each of you. That you might find this peace in some place that you may have some time with God. Sunday afternoon we had 21 people here. we were blessed to see several friends that we do not often see due to busy schedules. We are working to change that and join together more often.

Monday was a trip!! Zach had a 9AM Dr.'s appt. I thought I would drop my friends daughter off to school and then keep going but the weather was awful. Yes more snow!! The roads were bad. Darren looked at me and said do you want me here to drive. I said yes please. I am still working with one arm. So he went with us and I was so glad he did. At the office the Dr. was late and Zach had a major ear ache. The Dr. was glad to hear about how good Zach was doing with his new meds. She also looked and said he did have an ear infection. So we stopped at the drug store to get some more meds (as if this house needed more right). I had called my Dr. to explain that I was not doing any better. In fact I was still waking at night to take pain meds, Well i saw an orthopedic dr. this morning and he said (after he looked me over) I have a fracture in the elbow head (ok so there is a better temr but the mind draws a blank right now). He says they can not do anything for me. I need to move it 3-5 times a day and use ice. I have been doing both of these. So guess I am on the right track. The pain is bad and he says it will be for a while as the blood has pooled and thats not going to help. He suggested Advil but I can not take it as I am on blood thinners. The Advil would help with Pain and swelling (oh well at least I have pain meds). He said to keep takeing them and do the best I can and that its ok to "push" the elbow. I will not do any more damage to it. He did add that I will not straighten the elbow all the way every again. Darren will just be happy if I can do my own hair (he does a great job). The dr. did also say to expect this all to take 6-8 more weeks.I will still wear my sling during this time as I am busy with the kids and so many others are around that do not know what has happened.
I got all my questions answered just not sure I like the answers. I am sure there are many of you that can relate to that.

Missa has a appt. with the new ENT on Thursday so I will try to update again then and let you know what is going on. Thanks Kathie (lowville) for all the info. It is such a help ot go through this WITH others that have done it before. It really can make me feel better about the whole situation. I also want to thank Vicki again for stopping by. Your thoughts and words of support and wisdom are always welcomed. I have said it many times I need all of you out there. So if there is something you want to tell me or anyone in this house please feel free to sign into the guestbook. We love reading them. Sometimes we even get a laugh out of it.

Well thanks for reading and for praying for us, Denise

Wednesday, March 5, 2003 3:35 PM CST

Hello. Let me start this by saying I am typing with one hand so please bear with me. Seems the ice in Bridgeport is REALLY slick!!! Yes I went down. No fractures so on the film yesterday so they say I have a hyperextended elbow (pain for short!). The thing is killing me. i do not take pain meds unless Darren is home with us (I changed that rule in a hurry). I am in a sling (at least for a week or better) if the pain continues they will rexray then. i feel so silly.I can roll my van and no one gets hurt but I can not walk down my driveway. Go figure. enough about me.

Tracey & Ben,Dan thanks so much for Toris cards!!! She loved them. She shared the book marks with Missa & Zach. She also loved the cards from Stacey,great grandma (Landherr)& George and Mona. Thanks you all made her day!!!!

Missa went to our FNP today. She has another ear infection starting on top of the middle ear fluid. So she (FNP) suggested that we see an ENT. So we are doing 14 days worth of antibiotics then we will see him. We hope he may help with some of our questions.

Zach has had a cold and the croup cough for days now. Hoping he is on the upswing. Our FNP gave us some meds for him too.

I also wanted to thank Kathi (lowville) for her continued support. The things you write really hit home and just make us feel good. Thanks!! To our parents Mom thanks for the help yesterday and the rides today. We would belost without you. To my mom and dad thanks for the offer of help this weekend. We are looking forward to the "cooking" party Saturday night!

Looking forward to church tonight. I feel such "relief" when we are at church.

Love and friendship, Denise

PS While I was out with the girl scouts last night my husband went for a walk in the swamp. Yes the very one i rolled my van into 3 weeks ago. He said on his way home from work he thought he saw my Bible (remember this is the one thing that was lost that hurt me). Well seems he did see it and now its back home 9along with the 2 new CDS I lost). This Bible is the one my parents gave me when I graduated high school, but it has had even more meaning to me as this is the first Bible Darren & I shared. We were both so happy to have it back. The binding does not hold as it was in the snow for 3 weeks, but we plan on keeping it in side the house from now on and I will have to get a new one for church. Just thought I would share how God is good. I would also like to thank my husband for looking (again) and for taking awsome care of me this week.

Monday, March 3, 2003 10:16 AM CST

Well angels sang in heaven yesterday as my wonderful husband and beutiful daughter were baptised. What a wonderful day for me. Zach and Missa were thrilled to watch. My parents made it so the kids got to play with them while I helped Tori out (she had a concert at 1:30PM). Nothing like the Roberts/Angle house to be busy.

Zach woke this AM with an awful cough. He has a low grade temp too. YUCK!! Poor guy even sounds horse. Missa still has a bit of a runny noise so I made her an appt. for Wed. with Pat ( I will be there anyways for shots). Dr. Dubansky said if the noise kept up she should see Pat and so far it has, So I made the appt. (can always cancell or give it to someone else in the family HEHE). They also said the other day she had fluid in her inner ear. So some more meds might be in order.

Thanks you all. For all the notes to support me while I struggle to understand "why" things have been this way for Missa. Yesterdays sermon was awsome to. Monte talked of how we can be sad, not blame God but we can have sad times. So its nice to hear from all of you that I am not NUTS. Special thanks to you Vicki for showing your support. We all miss your little boy and think of him often. Thanks for checking in on us.

Today its VERY cold. Schools were delayed some even closed by the weather. The wind chill was -25 to -30 this AM. The temp was -6 when we got up. I can not wait till spring. When is that again JULY????

Ok enough of my bad humor. Love you all very much, Denise

Friday, February 28, 2003 7:21 AM CST

Good morning. Long day yesterday was!!!! Was so glad Darren took the day off. Missa did well raceing from one Dr. to another. Her hearing test did say she has permanent. We knew this was a possibility but yesterday was the first timeI heard the word permanent. That was HARD for me. Very hard. There are a few opptions hearing aides would be one but they would only help alittle. There are other options so we will explore them. Unless her hearing gets worse which it still can. Her blood work is falling again. Why you ask well that seems to be the million doller question. We are cutting the med to every other day and will see what effect it has on her. If the med is not doing much for her then there is no point in staying on it. We took a trip up to our old floor (7H). This almost killed me. One of our friends was up on the floor. Back as a patient!!! Relapse its so ugly. This is the first "friend"/ family (becuse thats what we are those of us in these situations) to relapse. Now I had seen many relapsed kid some back but none that had finished treatments with us. I just wanted to be sick. I know that sounds awful to many of you but it made me ill to see this child (they sound as if tehy are useing our old protical. So I know what she is in for. Please keep praying for these children and their families. They need us!! You can all make a differance with prayer. Darren was here when I got home and I jsut sat and cried with him. Over Missa and the fact that we have 3 more years to wait to hear she is clear. Not that she is not in remission but that she is clear. It is hard to think about 3 more years to have this in the back of ones head (all the time).

Well Darren and Tori will be baptised Suanday. We are all very excited. Big steps. They will unite this family even more. We are a pretty tight bunch!! But with God at the center of this house I dare Satan to TRY just TRY to break us!!! HE can not....

That said I/we love you all. Each of you hold a specila place in our hearts. We think of you all daily.

Love and friendship, Denise

PS please pray for Tori as she is in the final weeks before the spelling bee. She is studying hard. I know she will do well. Oh yeah and her 11th birthday is next Thursday. I know she would love a card or postcard from ANY of you, she loves to read the guestbook too. She feels the connection we have!! Our Address is on this page if you need it!

Monday, February 24, 2003 10:58 AM CST

Had a wonderfull weekend with my husband AWAY at a marriage conference. What a blessing it was to hear what the speachers had to say. Darren and I have dedicated/rededicated our lives and our home (yes, even the kids) to Christ. It is such a joy to know that together we are this HUGE "force" that God can use to change this home this neighborhood and this world. We even had to write a love letter to one another. Yes girls, he made me cry!!! It was so great and if ANY of you get the chance to go to a Family Life conference then go. Many thanks to ALL the people that made Daren & I getting away a reality!!

Missa is doing well lately and all three kids LOVED not having mom and dad home for two nights. Well maybe they just liked having Adam and Stacy here (thanks guys). We go to ALL Missa's appt. on Thursday. I will update then.

I am still achey from the accident and am not sure how long it will take to feel 100% but am still gratful for Gods hand in making sure we were all safe. I drove home yesterday. I have drive pelenty since the accident but this time the roads were BAD. I was nervous but looked ove rat my soul mate and said "You, PRAY". he said he was. He was praying he was driving. I said you know God knew the kid were not with me and that I would be nervous. So he gave me you to do this with me. We made it home fine, but I did make him take Stacy to the bus station.

Well thansk for letting me share with you. I bety some of you think you know us pretty well and you know what you do and I could not be any happier then to know I have you ALL as our friends.
Denise

Tuesday, February 18, 2003 9:50 AM CST

Good morning. Sorry I have not written but I have not felt upto it. Still a bit stiff. I did finally give in and went to the r.'s yesterday. My left sholder and knee are both bothering me. Pain that is not taken care of by the meds I have. She sent me for X rays (since the insurance company will want them) but feels I will end up with aan MRI to make sure all is well. As long as it is I will do some physical theapy. Its funny my right leg is this HUGE bruise but its my left knee and sholder that hurt the worst. We had a nice time with Adam and Stacy. We made for alot of fun as Adam had a sore mouth (gum infection he thinks), Stacey also a sore mouth (4 wisdom teeth pulled last week) and me with aches and pains. Missa and Zach had a BLAST in the pool!! They love to go to Rochester as they know we will stay at the hotel they love nice pool & great breakfest.
Stacy will be coming in this weekend to watch tyhe kids for us as we are going to a our conferrance this weekend. We are very excited to see what God has in store for us, when I told our pastor about the accident he asked if this would mean would could not go. I told him nothing would get in the way. We are blessed with such a caring church family.

Missa has her Dr.'s appt. next Thursday. So I will let you all know how it goes. We will be doing a hearing test to see what is there. This will helpo determine what help she may need.
Well love you all and thanks for all the guestbook sign in's. I am staring to ache again so I will get off line an take a break for a few.
Friends, Denise

Thursday, February 13, 2003 4:48 PM CST

Good evening. Many of you already know that the twins and I were in an accident today. We are ALL ok. The roads were slick and my van slide and then rolled several times into rattle snake gulch. We ended up on our roof. Again we are all ok. God has soon us so MANY MANY miricles in the last few years (I am sure many that I did not "see" them). The van is totaled (per tow truck But insurance girl seems to think hes right). Roof gaved in, a few window, oil in engine and they could smell gas. So we will wait for them to call us. We would love prayers for mommy head ache and stiff body, but most of all we want PRAISE!! Praise to God for his mercy and guiding hand. I had just fixed the kids car seats (made them snug). There was an "angel". He came to our rescuse and got the kids out. Thats all I wanted. he walked into the culch to check on us and I said we are fine. He did and got them into his car WARM then was comeing back for me when I was on my way out. He kept the kids calm while i took care of teh paper work. My mom got his info so i will be calling to thank him again. For those of you that are wondering about Missa i did speach to her Dr. he says watch her like we do Zach (good news). Her platletts are great (163). He was concerned more for me. Kids are doing great. I am stiffening up so am going to get going . Thanks for you thoughts.
Denise

Wednesday, February 12, 2003 6:06 AM CST

Good morning. Due to weather problems (AKA SNOW!!!) I will be cancelling Zachs appointment for today. We were just going to talk his reports over anyways so I do not feel to bad. We are due for 12+ today and another 12+ over night. The winds right now are 28 miles an hour. They say they could get over 50 miles an hour this afternoon. It seems funny to look out this AM and say wow its nasty and know that this afternoon is supposed to be WORSE!

So Most (if not all) schools have shut down (our first this year). Tori is excited and Jake will be here for the day. I will be cleaning and getting ready to go away this Friday. Darren and I are taking the twins to Rochester. Tori will be at grandma and grandpa Angles for the weekend. So I want to get everything done. Before the power goes out (hey you know how things go around here).

Zachis doing very well on these new meds. he has not puked since his first dose and I am begin to think that was more of a gag reflex. I will reschedule his appointment.

Darren just called and said he made it to work ok. I am glad but it would not surprise me if places closed early today. YUCK, this weather.

Ok well time to go get stuff done for the day (week). Will talk (write) to you all later.

Friends, Denise

Sunday, February 9, 2003 5:17 PM CST

Sorry I have not written lately. Been so busy!!! Lets see where to start. Well letsstart with a big thanks to Tracy for reminding me of Grandpa Landherr (thats why I love this guest book.)
Ok that said I should fill you all in on Zach. He had his test and was a trooper. Darren and I were there while the tube went in. It does not seem as if it would be very comfortable. My nurse says it feels like a red hot poker into the brain (yes, she has started to have it done but could not do it). They decided that he should have it done again as the first test the wire broke off. Well after plenty of mommy "yelling" they have decided that they will give hime some meds to help. So he has been taking them as best he can (yesterday he puked them up). We will keep our appt. on this Thursday. So will let you know if there are any changes.

Missa is doing great having a BALL this weekend. She got to use her "credit card" for Build A Bear this Saturday. We took jake and the 3 kids to the mall and built bears. For those that are not sure what I mean, the kids pick a UNstuffed animal and then take it through the stuffing, brushing and dressing stages. They had a BLAST even the older two. Missa made one that the company has to promote childhood cancer awareness. She's adorable (purple). She even came with a gold ribbon (these are like the pink for breast cancer). So I will add a BIG (HUGE) thanks to Kelly (blood dr.) and her daughter for the gift certificate for Missa. She sure did love going and we are so sorry we missed you. Kelly we will bring the bear in Thursday!!

Tori has her new glasses and love them. One pair needs alittle adjusting. She had a blast today (as we all did) with our friends from Camp Good Days. We went swimming. The place was so BIG!!! They had 4 pools and 1 hot tub. Each pool served as a seperate play area. There was one just for the little ones (1 1/2 to 3 foot), one had a huge slide, one was for laps, diving, and basketball and the last was for vollyball. We stayed for hours.

I see we are approaching 12000 visits to our site. We would love to know who #12000 is. Just for fun. If you would sign the book and tell us that would be great.

For those of you that know me I should mention that this week was very rough on me. Seems everything came to a head. I know people mean well but if I heard one more person tell me how strong I was I was going to scream!!! Darren remains my true support. I know I mention on this site how much we have been blessed. Well today I was again. You see Monte's (our pastor) sermon was so about ME!! I did tell him. I needed to hear what he had to say and it was SO simple. Faith, Hope, Love... Have faith (felt I lost that one), Hope in things to come (am focused again), and Love and the greatest of these is love. Love for family and those around us. So I will take this moment to say I love you! I do I love each of you even those I have not met. I love you for different reasons but thanks to Monte I am reminded of that. Thanks again Monte and Thea for all your continued support.
Love, Denise

PS Yeah!!! 12,000!! We are so happy. Thanks for signing in Katie (Lowville).
I have also included our NEW email thanks to Aunt Kathi (Mam mar Long Island).
Will update after Zach sees Dr. Wedsday

Wednesday, February 5, 2003 6:53 AM CST

Good morning. Just wanted to update quick before I leave. Sunday night dad came back out as Darren was not comfortable with the way the breakers felt again. Sure enough there were a few "rough" spots on the metal (dad found them when he burned himself). So they (Darren and Dad) "sanded" them down and rehooked us. They have decided that we can not use the dryer and stove at the same time (just in case). These two draw the most power so better safe then sorry. The guys are looking into putting in a 200amp service. Darren and I had talked about it but not done it so now is the time it seems. We a fortunate to have dad to help with this, being and electrican and all.

Zach, Missa and I are leaving soon to get Zachs "tube" out. He did better then we had expected. Not that he did not get upset!! He did but with the help of some meds he was a little calmer then I had hoped. But when the med wore off he was MAD!! Begged me to "take it out". funny he NEVER asked Darren to do that. Well after we calmed him down he seemed ok. He was upset that he was not allowed to eat or drink when he wanted (only even 4 hours). So we should have the results next week and I will share them then. We are pleased that this may bring an end to Zachs vomiting.

Hope you all have a plesant day.
Friends, Densie
PS Darren says we are due for a snow "storm". Seems it is north of us and is going to be moving south. Have to wait and see. They are predicting 5-10 Darren says. Funny with yesterdays high temp of 44 and some wind the lake opened a little in front of our house. Guess that will not last long!!

Sunday, February 2, 2003 8:47 AM CST

Good morning. Just thought I would share my thoughts on this beautiful Sunday morn. My first thought is how lucky I am to have such a caring and loving spouse. Yes there is a story.
You see yesterday mornig we woke and played in our room with the kids for a few hours then Darren came down stairs to get things going I left for a hair appointment. Well I decided to take advantage of the time alone and run a few errands. When I got home Darren brought up some laundry (told you he's great). He says call your sister, I said "why did she call". Darren said no but we are having a small electrical emergency. My sisters boyfriend is an electrican. Well no one was home so I said I was going to call dad. Darren says nah we can wait, I told him NO we were calling dad ( mind you I have no idea whats up.) SO Darren takes the phone and heads downstairs. When he returned I asked whats up. He says dad will be out and the dryer and stove breakers are off because they are hot. I called mom and dad and they stopped and got the breakers and picked up Darrens car so we did not have to run out (Thanks mom and dad). So mom gets here first and drops off dads tools. She and I run out to shop!! yes two times in one day with no kids. When we returned Darren says to me I am so glad your dad came, I am so glad your dads here. I said why???? He took me down stairs to show me our MAIN breaker was melting!!! Darren could not see it earlier since the cover was on. So the guys made another trip to Home Depot to pick up a main breaker and then home to put it in. While putting it in dad check all the connections and it seems there were SEVERAL wires loose. Dad says if we had not caught it then we would have come home from church today to ashes. NOW what I really want you all to know is how God works, you see Darren was going to go into work, But decided not to. He was doing laundry and smelled the burning. I am not sure that if he had been working I would have been doing laundry and so this could have gone the one more day and we would have not had a place to call home. Darren has a very good sense about him. He wants to protect us. So he is always aware of things around us and for that I am greatful.
We are headed to church now. PLEASE if you can lift your voice in praise to God for all of the things he does for you. You may think they are "little" but he has a bigger plan in mind. Trust me!!!!!
We send our love to you all, Denise & Darren
Home sweet Home
PS Tori's paper work came, She is 1 of 200 kids to make it into the Post Standard spelling bee ( I know I would never make it, you can see how I spell). She will have another written test March 22 with the other contestants. Then only 35 kids go onto the oral test which is ( I can not beleive this) March 29. That is my cousins wedding day. We hope Tori makes it and if she does we will miss the wedding BUT we will make a special trip down to see EVERYONE!!!!

Friday, January 31, 2003 at 08:16 AM (CST)

PRAISE GOD!!!! Missa platlets are at 174 (I wanted 150 as 150-400 are "normal"). She seems to be doing it on her own the Dr. says. She is still on the med for her immune system since that level is now at 4.8 and needs to be around 10. So we will check her immune level every other week and do a CBC with platlets every month. We have schedule a hearing test for her as her spech is not clear. She has a great vocab but the way she says it is not what it should be and of course since they are twins and she has alwys been the leader Zach is following her speach. Dr. says he would bet we did her speach in with the chemo. Small praice to pay. Missa can not wait to go snowmobiling again. You would not belive the fun she has.
Zach has his test Tuesday. We are talking to him alittle each day to get him ready. I feel with 4 year old this is the best way. Just give them a little info at a time.
Tori has half a day today and is excited. She loves to get out early, means she get to nap wit us. YES, I do still get my naps. Today was crazy hair day at school, Tori has hers done like Ciny Lou from the Grinch. She also got to oder her new glasses this week and is exicted aboout them coming in. Next week she will go camping with scouts. I am not going as I am "booked" all week and feel I need some time at home.
So now do you want to hear "The Story"... you guys that know me know I have so many (since the twins were born). Well its Monday morning and I feel awful becuse I sent Darren to work without lunch, we had been out to eat all weekend and worked at church Sunday. So I decide to cook enough food for him to have lunch all week. Well I hear the kids say something about a hamster. I say is he down here. They say YEAH. I tell them to take him back up to Tori's room and put him back. They are good with him but, I like to be withthem while hes out. SO I am cooking and thinking they are not back down here yet. SO I drop the beef into the chili and head to the stairs "Zach, Missa I yell". Zach comes to the top and I say what are you guys doing?? He says blah, blah, blah, SHAMPOO!! WHAT? and he repeats blah... SO I call Missa again. She come to the top with YES the hamster!!!! I BLOT up stairs (knowing that hamsters and shampoo do not go together). So there I am holding a shampoo cover hamster. NOW WHAT?? You see most hamsters die from getting wet and not dried fast enough. They "catch cold". So I call Darren (big help he was, he laughed so hard and could not wait to get off the phone and tell the guys at work I had to shower a hamster). SO I head to the shower with this little guy. FYI hamsters do not like showers!!! He kept trying to climb the wall (funny to watch). I get all the shampoo off and decide to only way to get him dry fast enough is to bnow him dry!! SO I do it (he did not like that any more then the shower)!! He climb all over me. Thinking back now I could have made millions form ABC, NBC, or CBS as a half hour comedy show. Well the hamster is still alive and seem to be doeing well after all his trauma. We have also explained to the kids Never wash a pet no matter how bad they smell!!
Well I should let you go and laugh now. My mom say this is sill not as good as the story wher my 2 year old babies lock my in the basment leaving me to yell into the phone to get Darren to come home and get me out!! I for one am not sure, but I am now considering taking this act on the road.
Friends, Denise
PS for those of you that want to know. We have now been at 31 degrees (not often) or less (below zero most often) for 21 days straight. If we get snow before midnight (we will get it but no ones is sure if we will before midnight) that will make snow EVERY day this month. They say we will break this freezzzzzz today will see....

Saturday, January 25, 2003 at 05:55 PM (CST)

Hello. Heat wave here today we hit 30 and the sun was out!!! Tori was in all county today. It was a great concert. Mom and dad came and we had dinner after with them. Thanks to Missa's platlets being up and Dad winning the "bet". The concert was very nice. It was standing room only. Tori has also just told us (as we did not see her much this weekend due to all county) that she made the spelling bee. Only 4 kids from her WHOLE SCHOOL and 2 alternates made it!! We will let you all know what kind of spelling bee it is when we get more info.

Missa has a new sport... Snowmobiling!!! While Tori was at practice last night we visited a friend (T and F). We were loading up to leave when Jeff (F) came in the drive. So we stayed and daddy went to get Tori (she was dying to see their dogs!!). Missa played hard with F. He told her next time she came over to bring her snow suit and he would take her for a ride. He went outside (in the cold) to show her his sled. She was in awe! Tammy (T) said why wait. She told Jeff they would ride then and proceeded to get Missa dressed head to toe in Sleding gear. She looked so cute. We took pictures and may get them up here soon for you all to see. any ways Daddy joined the fun and took her himself. T & F have all kinds of gear and shared. So here I am at 11:15PM watching my 4 year old zip off with dad. When he came back he lifted her shield only to have her slam it down and tell him to GO!! She came in and let Zach take a turn. He took about 2 loops and came in. He said he liked it but not the dark woods. Missa did not waste a minute getting geared back up. Back she went and again the shield was to be left DOWN. We finally left T & F's around midnight and it was under protest by Missa. She can not wait to get back out there. She was asleep before we got home. We only live about 12 miles apart.

Zach's test is scheduled for Febuary 4th. Darren will be taking the day off to help with Zach and Missa. We figure Zach will be miserable. Please pray that he does well and is not to uncomfortable. His follow up will be Feb 12th.

PLEASE check out our new links below. They will take you to Missa and Zach's quilts. They are lovely and I want to share them with you all. The ladies on this site I found do a wonderful job.

Well Thanks for letting me ramble on, Denise

Thursday, January 23, 2003 at 08:10 AM (CST)

Well hello again friends!! Let me start by saying HUGE thanks to my best friend Micki, she let me vent the other day and even reminded me that I have had worse days.

Now let get started I have alot to write. Missa and Tori were both running temps the other day. Darren and I had decided to waiton taking Tori to the Dr.'s as we thought it could be just a cold, but when Missa was sick too I decided to tkae them both (group rate haha).

So we started with Tori. Seems she has an ear infection. Not to bad but needs antibiotics and since she just finished a round 2 weeks ago now she needs the "good" ones. So she is now on the Zpac and doing better.

Missa was next... Ears looked good, lungs clear!!... chest well now Pats face changed... seems Missa's heart murmur sounds much worse then 2 weeks ago so we will have an echo (can you belive it Sharon!!), Sinus area may be "clogged"... so a CAT is in order for today. Pat also feels Miss needs to be evaluated for "needs" she may have such as Speach, PT, OT.

Now Zach. Hes my fav... You see since we were there Pat said let me check him. Gotta love her. SO his tonsils are swollen and so we cultured him (both girls were). Well a few minutes after the culter he got quiet and YACKED!!! Everywhere. I was stunned (not that he did it just that it happen then). Zach has seen a specialist since he has done this forever. They wanted to do a few test. We did all the easy ones and decided to wait on the "rough" one. A tube will be placed down his noise and into his stomach (like an NG tube). There will be a computer set for 24 hrs so they can see what his stomach does and doesn't do. They can then get meds to help him, thats what we have been told any ways.

So as you can see never a dull moment in this house. Everyone is feeling alittle better today. Zach has been sick again last night so I am glad we are having the test done. Will let you all know the date when I find out.

Thanks for listening to all our "stuff" good and bad. We love knowing what a wonderful support system we have.

Love, Denise
P.S. Tracey, I spoke with Janet Latuso (cousin) and she said you were invited and she hoped you would realze it was her daughters wedding. Well I hoep you all can make it, would so love to finally meet you. I think a hug is in order.

P.S.S. Thanks to Carolyn I remebered I have not mentioned Missa's murmur before. I guess I just figured it was such a small problem. So now that its acting up I thought I would mention it. Also the Dr.'s office called. Seems Tori did have strep!! Glad she has been on the med. Thanks for the prayers it is such a blessing!!

Monday, January 20, 2003 at 03:40 PM (CST)

Hi again. Sorry but you know the drill... do not hear from Dr.'s office... get frustrated... Well the "unoffical" platlet countis 139 (highest yet)!! Today being a holiday and our Dr.'s office being in a state run hospital well they are not open. Tori seems alittle sick today but Missa is doing great (so far. Zach is well... Zach!! Snow here again today about 5". Always a storm the day the kids are off lately. Cold and snow seem to be the words this winter. So much for "warmer then normal". Jake spent the day with us too they all love to hang out on days off.
For those of you that remember Sarah I spoke to her mom today. She is doing great. Walking, loves her new hair, doing go in school.Seems she has been doing lots of baking lately We are hoping to see them in March when we go to a birthday party down that way.
Well all for now I guess. Will update later. Missa has her appt. on this Thur.
Denise

Saturday, January 11, 2003 at 10:32 AM (CST)

So grandma and grandpa are away... Tori has been sick (as I mentioned days ago) and now Missa has an ear infection. Six weeks this kid has complained of ear pain and NOW she has an infection (and our nurse prac. says its a doosy). She woke yesterday screaming in pain. She took some Tylenol and it only helped for about an hour. Now we are on antibiotics every 12 hours. Darren and I were glad it was an infection becuse after 6 weeks of "its nothing" we were begining to worry that it could be worse. Other then that there is not much new here. Still snowing (has every day since the grandparents have been gone). Daddy came home today from work as Missa was nt handling him being gone well. She was not comfortable and she wanted her daddy. Glad he loves them so much.
We will have a blood draw next Friday. So I will update then or maybe before who knows.
Friends, Denise

Tuesday, January 07, 2003 at 08:18 AM (CST)

Hi there. Wow another day. What a blessing!! They are saying another 2-4" of snow tonight (yes Scott and Kathi MORE).

Missa continues to do well, but is staying away from and asking constanly "Is Toir/Zach sick?". She is a trip. She keeps saying how she does not want to get"it". I set up her appt. with the Dr. for Jan. 30. Darren will either go with us (and we will take Zach) or he will stay with Zach as this is a long appt (sono time again). This sono will be important as we have dropped her fungal med.

Daddy went to the Dr.'s yesterday and got some meds for himself. He says he is feeling better. I can not tell. He is to good at "hiding" when he is sick. He hates to take sick days.

Tori is home today as she was sick to her stomach again this AM. What to do. I tell ya its a rough year with this bug. She hopes to be back to school Wednesday as this is the night of her concert. Scouts starts beck Thursday. Oh yeah did I mention COOKIES!!! Let me know if you need Girl Scout cookies as it is that time of year AGAIN!!

Zach and Missa had a ball playing in the snow with daddy on Sunday. We went to church then to lunch (Zebbs yummy), and then to a movie with the kids (Wild Thornberrys). We all had a nice time. I do think the best was watching the 2 little ones chase daddy in teh snow it came up to their waist some time!! They keep trying.

Well I should go laundry calls. As everyone is sick the laundry keeps growning.

Love and Friendship, Denise

PS. To any of you that are able. Please, Please give blood. They are saying we are low again. This should not happen. Donated blood and platlets are what kept Missa alive. So please honor her and donate!!

Friday, January 03, 2003 at 10:02 AM (CST)

Wow so much to write. To start we are now SIX MONTHS POST TRANSPLANT!!!!!!!!! That is a MAJOR step in the right direction. We have dropped Missa's monthly antibiotic. This alone made yesterdays appt. a joy (I did not have to wait for the drugs to come up which has taking up to 4 hours!!). Missa was a trooper while her blood was drawn again to check her "immune levels". They are still low ( not a big surprise). Darren and I knew this would happen. The hope is that now that 6 months has past she can start making her own again. Her platlets dropped. From 138 to 116. The Dr. still says anything above 50 is OK by him. Missa has a cold but still has not gotten "the CNY BUG". Its bad this year!! So we will see the Dr. again in a month and have her levels checked in 2 weeks. We started a new med (off the PRED!!). This one is a pill. I know what your thinking but I can crush it. This kid would not even take Tylenol liquid for the last year and now all these new meds. She did great this AM. I think she thinks its "neat" to take pills. She came right home and told everyone "I have to take pills now". It was funny.

Tori and Zach continue to cough. Missa has started to also, but the Dr. says she is OK just a cold.

SNOW...... Yes lots of it today. Yesterday was ICE... Gotta love CNY. Grandma and Grandpa headed south this AM hoe they are safe. Waiting to see "what can go wrong" while they are gone. For those of you that do not know our history when they leave town... Kids break arms, get sick, Missa was diagnosed and oh so much more. They are gone for 8 weeks. We laugh about what can go wrong during that time ( yes we do still laugh about it).

To Mrs Virgina I can not seem to e mail you but we would love a picture, so I am including our address on the bottom of this page. Thanks

Hope you all stay happy and well this new year. Please remember to pray for all the sick people. I know I mentioned above CNY has been hit hard. My sister (nane) and Tori's grandma are among the sick right now.

Thanks for the prayers, Denise.

Its Saturday now and Tori is sick. Daddy says he thinks he has a sinus infection. If this does not slow us down nothing will.

Monday, December 30, 2002 at 10:46 AM (CST)

I did update the other day but my computer "fliped out" and did not allow it to go. So sorry. We were busy with friends and family this weekend so I just waited until today.

First I should thank Tracy for her lovely sign in. Now as for Missa. We are staying on 1 med. The Prednazone will stay BUT (always a but) not for platlets as she seems to be making them now. Her levels (immune system levels) are not where they need to be so the pred will help "protect" her. She will have these levels checked but not weekly like the platlets have been. We see the Dr. on Thursday so I will let you know what he has to say.

Zach and Tori have both been ill. Tori has a AWFUL cough and Zach han Croup. YUCK!! One may wonder if this house will ever be healthy again (HAHA). We will and at this point are grateful that Missa is STILL well.

Sorry for the typing job today I am not feeling like my self today. I had heard from people that many had signed in and wanted to update you all.

Best wishes for a WONDERFUL new year, Denise, Darren, Tori, Zach and Missa

Thursday, December 26, 2002 at 03:49 PM (CST)

I ment to update yesterday but did not get to it. Sorry!! We all hope you had a blessed holiday. We did we attended church with mom and dad Christmas eve (we did this last year and this is the church Darren and I like to attend so it was like an "anniversery"). We also had dinner with all my family that night. That was fun. Christmas morn we spent with Darrens mom and Carl (after we let the kids open at home). They had a blast not becuase of the gifts so much but I think they all know how much better Missa is this year. My family made it out after the storm let up. We had a blast!! DJ ( my sister) even got her RING!!! So I guess we WILL be having a wedding in May. The kids all went to bed fairly easy last night as it had been a long day.

Tomorrow is THE day. We will not know until afternoon what is up with all her levels as some test have to be sent to Utica (about an hour from us). You can check it out in the evening and I hope to have this page updated by then.

I should say thanks to all for MY gifts this year. Your friendships have ment the world to me/us, your prayers are next too have been a blessing, the chance to hear from those I have not heard from in a while has been nice to (Mom Brown)!!

While I am on the gift topic I should say thanks to my husband for the new blender and jucier, Mom (Jennifer) for my sewing boxs (and goodies), and mom and dad for my Food Saver (YES!!) and the tea pot, DJ thanks for the book and other gifts. As you may be able to tell I got alot of gists this year and love them all.

I am a blessed women!! Thank you all for stopping by to visit us on our page. Feel free to sign in as we LOVE to read them.

Love and Friendship, Denise

Friday, December 20, 2002 at 07:07 AM (CST)

Today is blood draw day but I am not sure when I will get to get it done. I am waiting to hear from my NP to see what I am doing this AM. Darren took me for test yesterday and seems all is OK. My blood levels are off a bit and it seems after a week of taking few sips here and there I am dehydrated!! Go figure... SO I may go to our "urgent care" and have a IV drink today to help the head ache and joints pains. I am trying to drink but in the last 24 hours only managed to get 50oz down (and that is pushing it). I think it would be best to get caught up and then just have to work to keep it up then it would be forme to try to catch up on my own. I am still tired (Darren too) and weak but I know I can beat this virus!!

I will update when we know what Missa's counts are (may not be till Monday).

Love you all and thanks for the prayers, Denise

PS Please pray for our friend Stacys mom. Seems she had some "Grand mal" seizures the other day. They are running lots of test to figure out why and she is hoping to be home this weekend to be with family.
PSS This just in Missa is up to 125!!!! Just wanted to add that. Darren and I are TRILLED!! The Dr. says he will check some of her levels next Friday and if they are ok then we can stop the meds. Please pray for our Christmas miracle

Tuesday, December 17, 2002 at 06:36 AM (CST)

Just so you know I DID try to update yesterday... BUT I was still feeling sick and did not "add" it. Sorry. I have all the info now, Missa's platlets dropped slightly. They went from 110 to 103. Her Dr. ad I talked yesterday and he says this happens often with kids in Missa's situation. SO what we will do is keep dropping her "Pred" dose and WAIT!! You all know I do not like to wait (and not at all when it has to do with Missa's health), but I do feel this is best. We (Darren and I) knew when we stated this "journey" a year ago that Missa may not have "normal" counts till she was 20 years old or so. So as long as she can keep her platlets above 50 on her own then we will not use drugs.

I sit here wraped in a blanket as I am not feeling the best yet. I was so very sick this weekend and like the hero he is Darren took care of everything. He did stay home yesterday with us as I was just to weak to take care of the kids. I stayed in bed (not by choice!!) and Darren took the kids to the Christmas party at my dads (poppas) job Saturday. The kids had a ball. I just kept hopping all weekend that Missa would not get what I had. I could not imagine her being that sick to her stomach again. I told her Dr. and he said her whites are in great shape BUT you know she could and will get sick some time... maybe I just wanted to be well and not the one who gave it to her!! So today I am back on my own and lifting the milk jug this AM almost killed me. Daddy is calling every so often to make sure we are ok (am I lucky or what this man loves me so much!!).

Still have a bit of shopping to do. This is not like me at all. I like to have it done and wrapped by now, But I will finish and be ready for the holidays. Hope you are all ready to have a blessed time with all your familys and friends. Please keep in mind the reason for the season!!!!

Love and friendship, Denise

Tuesday, December 10, 2002 at 11:32 AM (CST)

Hi another good day in CNY!! Missa and Zach had fun baking with Grandma this AM. Mommy had to go to a meeting so grandma watched them for me. Daddy just surprised us by coming home early!!! Today is the last day of hunting so he will spend so time with us and then go hunting for a while. Tori is off to school and staying very busy with the food drive the student council is holding.

Please do not forget to sign in and look at our new pictures. They are from Oct. When we went to Florida on our make a wish trip. Thanks Nane for getting them on for us. Some of you have already seen them as they are the photo from our Christmas cards.

Love to you all, Denise
PS will update Friday when I have results. Pray for 150 (I know it would be a leap). 150-400 is normal for platlets

Thursday, December 05, 2002 at 03:31 PM (CST)

Can you hear us singing??? Yes, we have counts and they are awsome. Missa now has........ Drum roll please...... 110 platlets!!!!!!!!!!! I am not sure but in the past year I know we have not had many days over 100!!! Darren and I are TRILLED (as if you can not tell). I wish they made "glad your platlets are on the rise cards or glad they are over 100 now would work. I know this sounds silly to most of you but once you have been in our shoes (and i know some of you have) you can not understand the magnatude of this.

Missa is feeling great and can not wait till Saturday for the Christmas party. What a differance from this time last year. She played outside with Jake and Tori today (they had a 1/2 day) for a while. Its still snowy here and she LOVES it. Zach and Missa can not wait till the lake is frozen so they can go out on it and play with daddy. By the way for those of you that "skip" winter in CNY the lake is trying hard to freeze and our bay is frozen!!

Well lots to do. Some friends are coming over on Sunday to help finish my dining room. Darren did not have the tools he needed to cut the wood. It should be nice as they have 2 girls around our kids ages. We have not gotten together for a while.

I should go. Need to cook dinner and that kind of stuff before girl scouts. Thansk again for all of teh support.

Denise
PS hoping to post new pics really soon!!

Tuesday, December 03, 2002 at 05:19 PM (CST)

EXTRA, EXTRA read all about it. Missa's counts are in the 80's!!!!! 21 "points"!!!!! We are trilled. Missa is doing so well. She loved the Chrismas party last Sunday and cannot wait for teh next 2 Saturdays to get here. She danced and played. We all had a nice time. We will have counts done on Thursday when she has blood work and gets her meds. I hope you all get the chance to "stop" and enjoy this Glorious season.

Friends, Denise

PS There is NO chesse cake in this house and I made 2 this weekend!!!!!

Saturday, November 30, 2002 at 10:08 AM (CST)

Hi there!! I was trying not to write till I had blood results. All I know is that they are up (YEAH). The Dr. was closed so thats all I know. I am sure he will call Monday. Missa is eating less and her mood swing are a LITTLE less often. She is down to 45 pounds or so. She hit 53 at one point.

We hope you all enjoyed the holiday. We did. I got to see my uncle Karl on our web cam (thanks Kathi). I have not seen him since Darren and I got married (7 years ago). I do miss my family in NYC so much (oh yeah and you guys on the island too)! We will have a BIG party at Kristi's wedding in March.

Tori went to her grandparents (Rob's family) this weekend). She will be home tonight for Poppa's birthday party. Poppa turns 54 today (Happy Birthday dad!!). We are getting together for dinner and dessert tonight. I made cheese cake and peanut butter balls for dessert and Sauce for dinner (dad does not seem to care as long as I make sauce).

Zachary seems to have a cold but still enjoys playing with his sisters. Missa is busy playing computer games. We went to Toys-R-us the other day and let her use her "credit card" (gift certificate). The radiologist bought it for her as a gift when she finished radiation.

Well all for now. Will update with counts ASAP.

Love to you all, Denise

Friday, November 22, 2002 at 12:09 PM (CST)

Ok lets start with a correction. The deer "lucky" IS on the wall. sorry thats what happens when I type sometimes.

Ok now a question for you all. Do you know what would happen if something happened to your best friend?? Well my best friend (Darren my husband) and I had some scary moments yesterday. All is fine now. We have a GREAT nurse practitioner and she did ALL the right things to help us. What I really want to say is NEVER EVER take your spouse, friends, kids or anyone on this planet for granted. Not that Darren and I do , but for a while I had to picture our lives changed. So many question raced through my mind. I have made extra sure to say I love you, give extra kisses and hugs and the like to all those around me yesterday and today. I only hope this will not become forgoten by me and that i can keep it up and never forget that awful feeling in my gut yesterday.

Now on to Missa. Guess what YUP they are up to 67!! I would have to check but I know that her highest since stem cells has only been 67 or 69 so we are doing SO well right now with platlets. We did a "dip stick" on her today as she seemed to be in the restroom ALOT. I called the nurse practitioners office and some of the readings are off so we are going to run a urine test today but will not have results till Monday. Please keep praying for these matters.

Again I want to thank you all for signing in. It ment alot to me to get on line this morning and read all the new entries. Thanks to Mam mar for signing in and leting us know there is still life on Long Island (haha)! We miss you and Kristin so very much and can not wait to see you again. Missa picked up the web cam and tried to talk to you as I read the letter to her. So to all of you I hope you can see how much YOUR incouragement means to us all of us. Missa loves to read them with me.

Ok I should go now, Denise

Wednesday, November 20, 2002 at 09:02 AM (CST)

Hi again. I am doing good this week I guess. Things are going good here so far. I had to call our Nurse practitioner today for Missa. Seems she has an ear ache. Better to get it now I guess then next week when people are not in the office. She seems fine still up and playing no fever just an ache.

Darren is still looking forward to hunting next week even though he did not see a thing on Monday (opening day). His mom gives him almost daily "deer reports". Seems the deer like to come out and play when Darren's not around!! They probebly heard about Lucky (Darren's deer from 2 years ago that is not a mount on our wall)!

Missa and Zach are already going stir crazy inside as the weather has not been good enough to play outdoors. Its been MUD, the whole yard. As it starts to snow it should make it easier to get out and play.

Tori is busy as ever. Lots to do and see. She has a karate test Friday. This test is for a tip. She is and orange belt now. It takes two test for tips before you can test for teh next belt. She enjoys karate. Her teachers and staff are so great with the kids.

Missa was excited yesterday to get mail. Her Dr. sent a thank you to her for the gift she gave him. She had a grin on all night even though she would not tell anyone who sent her mail.

Well should go and get ready for the trip to see "dr" Pat as the kids call her. They just love Pat.

Friends, Denise
PS I just wanted to say Thanks for signing in. Sometime I just read them for the support and love I feel coming to us through them. Missa loves them too!!

Monday, November 18, 2002 at 02:52 PM (CST)

Hey again. What do you know I made it back to my page in just a few days. We have been busy again (one would think I liked it or something). Yesterday we went to church and then it was off to bowling. Missa had fun (well except for her hunger fit! Gotta love her meds...). We also spent Saturday night at a hotel. It was so nice and the kids love the whirlpool!! Snow here today!!! Cold to!! YUCK. Well now we have officaly set off the Holiday season. We have one party a week for a few wekks now. The kis are excited as we will get to see old friends again.
Well I should go. Please sign our guestbook. I know you are checking on us becuse I see the numbers rise, but I can not tell who you are and we just love hearing from you ALL.

Love and friendship, Denise

PS keep praying. We have another blood draw Friday

Saturday, November 16, 2002 at 06:53 AM (CST)

Well the battle is not won BUT we are making head way!! Missa's platlets went up again. Now we are at 55. Dr. D seems pleased. I know we are. Darren said yesterday when I called him that he felt like it was Christmas. I know what he means. For so long we have faught with Dr's, meds, nurses, Missa's own body... its been so long... enough to drive one crazy if you know what I mean. So any ways Missa is feeling great. She is so disappointed in the weather. She just wants to run and play. We will enjoy this season more then ever I am sure. Last year we were so woren out from all the running and this year we can "rest" and enjoy.

Tori made honor roll. We are very proud and she is shooting for High honor next time. She loves her teacher and is enjoying Jr high. She has been taking a craft class for the last few weeks and has made some great gifts for folks this Christmas.

Zach well he is busy too. He is starting to write his own name on paper and the calk board. I am so proud. He is also starting to enjoy computer games again with Missa.

Mom and dad well you know how we are BUSY!! Daddy is working over time as much as possible to help out and mommy is running little people here and there. I have also taking up sewing (thanks Tam for the machine!!)I am having a ball making all kinds of things. Darren is getting very excites about Thanksgiving week. NO not for the food, he gets to go hunting (another thing he could not do last year). He has taken Mon-Weds off and already has Thur-Fri (little trick we learned a few years ago) he then ends up with a whole week but only uses 3 days. Well I need to go hem Tori's pants! Yeah, I get to sew!!!

Thanks for the support, Denise

Saturday, November 09, 2002 at 04:34 PM (CST)

Wow November 9!!! 1 year 1 day. Missa did well yesterday. She played with daddy at the Dr.'s. She was not so happy about the flu shot. She gave her Dr. his gift from Florida (a Mickey Mouse tie). He seemed to really like it and the picture of her. Her counts were up again only this time even better. Last week platlets went up 6 in a week this time it was 13 in 4 days. He said "I am not sure how to explain this". We are its PRAYER becuase PRAYER works AMEN!!! He says we should not do any dances yet but wait another week or two to see if they keep rising. I was glad Darren went with me because it was all good news and its nice to get that together.

We have been enjoying our weather. Darren and I raked for almost 2 hours yesterday and the kids palyed outside today while Tori and mommy went to a sewing class. Darren even took them for a canoe ride.

Well Aunt Micki is coming over in a few and I should make sure things are together for church in the morning. Thanks for all the prayers!!

Friends, Denise

Wednesday, November 06, 2002 at 09:22 AM (CST)

Hi there. Well its been another busy week. Missa's counts loked good this week. The platlets came up and we moved the med down... This could be a very good sign.

I would like you all to pray for Tori. As you all know she has loved school and is very involved. Well last night her advisor for Student Council was killed ina car accident. Shewas the niece to one of the candidates. She was headed to his election night celebration when this happened. Tori has had sch a rough year. She loved working with this lady. She stayed yesterday to work on some things. I have not spoken to Tori since I got word of this but I have called the school to make sure they had extra staff to handle this and they did. I will make sure that I ahve some extra time with her tonight.

Friday marks 1 year from missa's diagnoses (another reason this could be extra hard for Tori with all the emotion). We have a Dr' appointment and Darren will be going with us to this one. We have a sono, flu shot and her monthly anitbiotic this time. Should be a busy day.

Well thans for all the thoughts and prayers, Denise

Thursday, October 31, 2002 at 03:03 PM (CST)

Sorry!!! Back from vacatoin and busier then ever. I have wanted to update!

Missa's platletts continue to drop, But we are taking her off the Prenazone. Why well its just been to long and she needs to get off it, not to mention she weights a ton (HAHA). It is nice to see her with alittle meat on the bone. We will probebly be starting the new med next week. I pray it works. Otherwise she is happy and healthy.

The kids continue to talk of florida and all the things about our trip. They just had the best time. Darren and I will pick up the rest of the pictures in the morning. Hey I only "spent" 15 rolls of film 8 were developed before we got home.

Tori is busy as usual. Run here... do this... try that...
Zach is doing great. He is working on writing his name.

We will put new photos up soon I promise we just want to see the new pictures.

Love & Friendship, Denise

Monday, October 21, 2002 at 06:38 AM (CDT)

WOW!!! Thats all I can think to say. Our time away was a blast!!! Tuesday was VERY hot and humid and Missa swelled up. So we left Sea World early (grandma and grandpa kept Tori). Missa wanted to stay at the village so thats what we did. She liked the village as it was nice and quiet. They have 97 villas but you would not know it. People are gone alot durring the day so we had use of most things to our selves. Thursday we saw Mickey and Minnie at the village and then it was off to the Magic Kingdom. Missa made it for 5 hours or so and then wanted to go back "home" Zach and Tori agreed. So we went back and swam again (swam ALOT). we check with Missa and she said stay "home" Friday too. So we gave our tickets to Grandma and Grandpa and they took Tori for the day to park hop. Missa, Zach, daddy and I had fun. We shopped alitte and picked up 8 packages of pictures (still have 6 to develope). Then we took a nap and swam again. The kids went fishing with daddy and won a prize just for trying. Some of the highlights of the trip were. Horseback riding, Snow, Santa, Minnie and Mickey, Barney and friends, games, ice cream when ever we wanted, and just being away from blood draws and Dr's appt. Missa had a blast. She could not have been happier. We enjoyed it so much. Well I did not like a the little lizzards!!! Darren and the kids think its funny. I wish I had time to write about every little thing we did and saw but there is not enough time in the day, so you will have to keep in touch and look at our pictures and video. So call us and we can get together and show you all.

Today its bakc to blood draws. We are hoping to decrease Missa's med again. I pray it does not drop as bad this time. We need your prays here to. Missa's platletts took some big hits lst time we decreased her. We also have to get the mail, see some people, and mommy has a sewing class tonight. Busy already!!

Love to you all, Denise

Friday, October 11, 2002 at 01:40 PM (CDT)

Hi!! Just thought I would write now as I feel like I wil be to busy this weekend. Zachs appointment went well. He had an upper GI today to see if this will give us any answers. He did SOOOO well. The stuff is nasty (speaching from expirience). My mom has beeen such a trooper and kept the kids for me 3 days in a row. Thanks mom. She is not used to having the kids and has not had Missa alone except in teh hospital. Ramma also kept Zach this week during Missa's appt. Thanks Ramma.

All is set for Monday morning. We are being picked up by limo at 5 AM and will return by limo Saturday at 4:30 PM. I have not even left yet and I already feel special!! I will not update while away, but watch out when I get back!!!

Well will go now so I can get some more done around here.

Love ya all, Densie

Tuesday, October 08, 2002 at 03:05 PM (CDT)

Hello again. Missa did well today with the "neddle". I feel so bad that she has to go thru this but she only has one more month on this med, so that will be a blessing. Her platelets dropped again. Now we are at 16!!! So back to the begining dose (which worked). We will recheck her after we get back for Florida. Darren and I are disappointed, but trust god will show us the way.

Zach and I still have appointments this week not to mention packing and laundry. I am VERY excited about the trip. We all are. It seems like a dream now. I have joked with Darren about picking the right week as this is the first "cool" week ion Syracuse.

Gotta go for now, Denise

Monday, October 07, 2002 at 06:00 AM (CDT)

Good morning. We were very busy this weekend. Lots to do!! Make a wish has dropped off our stuff so in 1 week we will be on a plane out of here. The kids are SOOO excited. Missa still seems to be bruising, we will have a blood draw Tuesday morning. I was hoping this would be under control before we left. Oh well...

Thank you to all my girlfriends that made it out Friday night. I was telling my Tupperware lady no one was coming and then several more people arrived. We had fun. Nice to see them all again and dessert was great!!

Well hope all is well for you all. I have alot to do this week Zach and Missa have Dr's appt. and I have 2 dr's appt. so we will keep running.

By the way Tori and I are back in Jr Girl Scouts. We are working on 2 projects and maybe you could help. We will be collecting pet supplies for local settlers and soda can tabs for dialysis patients. if you can help with either let me know. I can pick up things from you if need be. Tori and I feel strongly about both projects. Thanks for your help in advance. Yes we will be selling cookies but not till latter.

Ok all for now, Denise

Wednesday, October 02, 2002 at 08:42 AM (CDT)

Sorry I have not updated lately. I wanted to wait until we had the blood work done so I would know what to say. Now i know... platelets are down again. They went from 67 to 24 during the week that we cut her meds in half. So now we are trying a new way somewhere in the middle every other day. We will have blood work done next Tuesday during her Dr.'s visit. We could not use her hand to draw blood because she is so "puffy" now they could not find a vein!! Poor kid was ready for the stick to (we had used our magic med). So many ups and downs. The dr. has mentioned that if this does not start working some (antibodies start to die) then we will change the way we are going about this.

Hope to see some of you Friday night (Tupperware party). I sure hope a bunch of you can come as it has been so long since we all got together.

Have to run, Denise

PS Tori made student councel and will be joining Liabray club Thrusday!!! Fun

Friday, September 27, 2002 at 07:54 AM (CDT)

Nice weather huh?? I guess I can say that since this storm will hit so many of us at one point or another. I have spent the morning dong dishes and laundry as I am not sure if the basiment will be able to take all the water. We are preety sure the pump works BUT you just never know. The lake is very rough this morning so even though we do not have the heavy rain YET I know its comeing. Not sure how this may affect Tori's belt test tonight. The school sits low so they may have to reschedule.

We spent yesterday morning with Ramma (Darren's mom). We went to the park (Minoa), then to watch the trains (got there just in time to see one and have it go under us) on the foot bridge, and then it was off to the diner for food (Missa's loves food) the folks at the diner loved seeing her, then to story time. Once home Missa wanted lunch (hello its only been an hour since she ate). I made her a TV dinner (adult size) and she ate almost all of it before deciding she REALLY wanted mac & chesse... WHAT??? So I told her she could have it after a nap. As soon as she was up she found the box and asked me to make it. Between her and Zach they ate almost a whole box. This med will be the death of me. Even on a half dose she eats and eats...

All of us are excited about our make a wish trip. We leave in just over two weeks now. I can not wait to swim. Hope they have the sun out down there for us. I will post new picture when we get back and I can pick the best ones.

Need to go and check my emails not to mention clean the house some more.

Friends, Denise

Wednesday, September 25, 2002 at 07:45 AM (CDT)

Morning!! We have been keeping busy. Missa had to have her blood drawn 6 times in two days. We try to use finger sticks but the first 4 times it clotted. So then it was the good old fashion "stick" ( but not till I called daddy for help, he works right down the street from the lab). It took two sticks before we got good blood. Poor kid. She handled it so well. Platelets hit 67 yestreday (highest since stem cell transplant) so we have back off the Prednazone to see it the antibodies are gone yet. She is also back on the drug that will help any Neuroblastoma cells that could be left. So back to 3 meds (for now) she is tring to be so good through this.

Zach has an appointment with the "stomach" Dr. in a few weeks as his sono was fine. I hope we can get to the bottom of his throwing up problem.

Tori will test for a orange belt this Friday. Her teacher said evenn though she missed some classes this summer (becuse of the arm) he felt she had a good attitude and deserved to test. We are all proud of her. She contiues to do good in school and seems to be ajusting well to the new building.

Daddy leaves for a father son retreat next weekend with my dad. They had a good time last year and Darren LOVED the chicken dinner.I believe he told me he ate 1 1/2 chickens last year. I am having Tupperware party while he is away. Just a chance to get together with the girls. Call or e mail me if you want to come and I forgot to invite you or if you just need something.

Well time to go play with the kids, Denise

Thursday, September 19, 2002 at 06:50 AM (CDT)

Good morning. Missa is still doing very well. Darren loves what the prednazone has done for her. The energy is unreal.

Today is a half day of school so there will be 6 kids here for part of the day. Hope they can all paly together!! It is supposed to be a nice day so they should be able to play outdoors.

Please take a look at the new pictures on the site. They are from the kids 4th birthday!!!

Denise

Tuesday, September 17, 2002 at 03:23 PM (CDT)

Cook & EAT!!!!! Seems thats all we do around here these days. Missa continues to eat and gain weoght. Four pounds as of yesterday. Her platelets are up. 40's!!! YEAH!!! Seems like months (although its not). She also has ALL KINDS of energy. Darren tokk her and Zach to the park last night while Tori was at karate and Missa climbed the rock wall THREE times. Zach tried but could not make it up. We will recheck Missa's blood next week and are hoping to cut the med in half. Well I should go and COOK dinner, Missa should be hungry any minute now!!
Denise

Thursday, September 12, 2002 at 05:45 PM (CDT)

Good evening!! Well we have had a BUSY week. As I mentioned the other day Missa and I spent Monday att her Dr.'s getting all the meds she needs and makeing a new plan to get control of the platlets. Zach AND daddy were at the Dr.'s Tuesday. Zachs tonsils were touching (yuck!! but it did explain his "sore mouth") and Daddy well I think the man was on his death bed. He insisted on going to work Tuesday morning just so that he would not be near Missa until he got some meds. All seem to be feeling better. Daddy needs to change his med as his throat is not doing any better. Missa and Zach are each on 2 meds. I tell ya I should be able to run a drug store when I am done. Why not I fell like I have one here. Tori and I seem to be doing ok for the time being. I seem to be getting my yearly chest infection but its really slow in coming this year so may be it will just pass. Some of you know we were supposed to get sono of Zach's tummy just to rule out any thing and that was done today. I do not have the results but I did not get a panic call either so I think every thing is fine.

Missa new drug that was supposed to help her platlets seems to be doing well. We are now up to 20 (from 13 Monday). Another 130 and she will hit the low end of normal. A nice side effect of the drug is it can also raise the whites and it did for her. Nice since the guys were so sick!!

Well i should get out doors to play with the kids since it will be dark soon. Thanks for the prayer and let them keep coming.

Love, Denise & Darren

Monday, September 09, 2002 at 04:31 PM (CDT)

Here we are!!! What a day. Missa and I spent a good chunk of the day at the Dr.'s.

She handled the IV like I expected (YELLING but sat still). We played games and waited for her meds to finish. The Dr. and I talked and decided that the best way to handle the platlets (now at 13!!) is to go ahead and start the steroid. It is his belief that the cause is antibodies to her platlets. Anitibodies can be checked thru a blood test BUT they may not show up at all. He would have started this new med in 5 days whne the results were back any ways. I guess we can think of it as a "jump on things". Yes this means med changes again, but we think this is the best thing for her. He says we should still plan on our trip and we will just keep making sure that she is responding well to this treatment.

Zach will go to the Dr. in the morning to be checked out. He has not been felling up to par latly. i do not beleiev it is anything majojr but we need to get to the bottom of this.

Tori seems to like middle school. She loves having violin every other day.

Love and freindship, Denise

Friday, September 06, 2002 at 04:09 PM (CDT)

First let me take a minute to thank you all. I can hardly believe that we have had over 7,000 hits.

Missa is doing good. Still eating EVERY chance she gets. I spoke with the Dr. today and her reds are the same as they were on Monday, is this good WELL... one has to wonder if she is making them (and the blood work says she is) then where are they?? Her whites are hanging in there to which is good becuse this new med can mess with them. So I guess thats good. Platlets are LOW!! 20 (out of 150-400 for the norm). We will wait the weekend just in case she starts to make some. If she starts to bleed we take her right to the hospital for a transfussion. He has some new ideas but we are still waiting for the biopsy results. So we sit and wait praying for the best. Please contiune to pray for all of us as it does not get much easier. It seems that we are always waiting for this test or having that test. I am forever calling Darren with results from test (you get the picture).

All our love, Denise and Darren

PS if you happen to see Darren this weekend Saturday is his birthday!!! Love ya honey.

Friday, September 06, 2002 at 04:09 PM (CDT)

First let me take a minute to thank you all. I can hardly believe that we have had over 7,000 hits.

Missa is doing good. Still eating EVERY chance she gets. I spoke with the Dr. today and her reds are the same as they were on Monday, is this good WELL... one has to wonder if she is making them (and the blood work says she is) then where are they?? Her whites are hanging in there to which is good becuse this new med can mess with them. So I guess thats good. Platlets are LOW!! 20 (out of 150-400 for the norm). We will wait the weekend just in case she starts to make some. If she starts to bleed we take her right to the hospital for a transfussion. He has some new ideas but we are still waiting for the biopsy results. So we sit and wait praying for the best. Please contiune to pray for all of us as it does not get much easier. It seems that we are always waiting for this test or having that test. I am forever calling Darren with results from test (you get the picture).

All our love, Denise and Darren

PS if you happen to see Darren this weekend Saturday is his birthday!!! Love ya honey.

Monday, September 02, 2002 at 06:04 PM (CDT)

Wow what a weekend!!! In a good way. Daddy did make it to the party with us. we had fun (except for the Bees!!). Shelby and Matt are getting so big. Zach and jake even went swimming Missa tried but the water was to cold. We got to see aunt Micki yesterday and what a good time we had. Mommy and her went to the movies. We did get to see the fireworks to and then we went to T & F's for pizza Missa was so excited she stayed up til 12:30 AM. We do not do this often (ok never) but she and Zach seemed to have a blast. Tori is off to the State fair with Nana and the family. Daddy and I had dinner with grandma Jennifer and papa. Now we are cleaning out the window sills, yippy!!! Guess who has not life. I figure the kids will crash early tonight so I should go and finish.
Love ya all, Denise

Friday, August 30, 2002 at 10:23 AM (CDT)

Just wanted to say thanks to all of you that have called or written (e-mails and e-cards). Missa is so happy that everyone is so proud of her. She still does not want the band aid off the site but we have been able to at least change it. She is taking her meds like a champ. We are so pleased this is going easier then we hoped.

We have another busy weekend planed. Daddy plans on working we think, and mommy, Zach and Missa will go to Shelby's birthday party!!! Tori will be with her grandparents till Sunday. We will go to church Sunday and then we get to see Aunt Micki (Mommys girlfriend from high school). The kids have not seen her in a while so I am sure she will get a big welcome. Sunday night we are going to see the fireworks at the Bridgeport field days (a tradition with Aunt Micki). I sure hope the kids tucker out Sunday night. T & F (our friends Tammy and Jeff) might join us this year for the fire works and Tori and Lisa (their daughter) are planning on riding a few rides!!

Next week starts school and story hour again not to mention karate. Busy all week again. I guess i missed it a little. We will also start the next drug (the 6 month program) Monday.

Please cotinue to pray for us and all the sick kids and adults out there.

Friends, Denise and Darren

Wednesday, August 28, 2002 at 06:46 PM (CDT)

Its a done deal. The Hickman is GONE. Missa is so proud!! She rushed home with daddy to show off her new look. Mommy had to go to the drug store for the new "bag of drugs". This should only last for 5 days. We will not have results for the biopsy for about 10 days. So please continue to pray. We already have an appointment for a sono in a week. Missa received reds and platlets today. The reds really help perk her up. She was running all over when we got home. Her platlets took a nice jump from 28 to 130 (almonst normal). The only really bad part of the day was Missa was NPO (nothing by mouth) for 4 hours before the procedure. YES people they told Missa not to eat ad she told them she was MAD!!! I felt so bad telling this little girl she could not eat but trust me she has made up for it since. When she woke the first words (no joke these were her words) "I want a snack". She ate 2 crackers, a HOHO, and a bowl of cereal BEFORE we left the hospital and it did not take long to leave. All seems well tonight so I will go. Need sleep...

Friends, Denise

Tuesday, August 27, 2002 at 11:03 AM (CDT)

Ok, wanted to wait to see what would come about and here is the latest. I spoke with our Dr. yesterday and we are pulling the hickman tomorrow afternoon. I did a CBC today and found out that her platlets are really low and she will also need reds before we can pull the line. Her whites and reds ony dropped a bit since Friday but the platlets took a big hit again (they are only at 28 and should be 150-400). Sooo we will also do a bone biopsy to make sure things have not changed. She will be out when they pull the line so best to do it all at once. I would have to say we are alittle concerned but not to worried about all this. We need to get to the bottom of her counts issues. Darren will be at the hospital with us for the time see will be in the OR recovery room (everything will be done in there). So thats about it for now. I will let you know how things are in a few days as we will not have any quick answers. Thanks for the prayers. We all need them. Please also remeber to gove blood or platlets. I feel bad as we have used so many and both of us are unable to give.

Love and friendship, Denise

Sunday, August 25, 2002 at 06:53 PM (CDT)

Well figured I should update. I did call the hospital and there was growth in the red line today. So back to the drawing board... Dr. Dubansky will be back tomorrow so we can hit him up for ideas. Who knows what the week has in store now. I will update ASAP, but please bear in mind that Darren and I will be staying very busy. Thanks for all those prayers. We sure do need them.

Thanks, Denise

PS I did update earlier today but this is the Latest.

Sunday, August 25, 2002 at 07:05 AM (CDT)

Well here we are. Just wanted to update you all on how things are going. Meds ran fine. Missa was nausea through her first med. I called the hospital to check on the cultures and there was 3 no growths. That mean no growth has started in the blood from her red or white line (hickman), or from her vein (draw from hand). This is VERY good news to us. There is a chance it may start growing something but the longer we go with nothing the bettter her chances are to be free of this awful infection. She is still tiring easily due to her reds being low. So we are taking it slower these days.

Daddy goes back to work tomorrow. Boy will we miss him. Tori will be starting school in a few weeks. She will also be back to karate as her arm has healed. Looks like I will stay busy for at least a little bit while we figure out what is going on with Missa.

Need to go get things done for the day and get ready for church. Please remeber to hug your kids today and remeber that they are a gift.

Denise & Darren

Friday, August 23, 2002 at 08:11 PM (CDT)

Well had I mentioned that my in-laws were going out of town?? Bet you know what coming. Yupper Missa's has a bad infection (remember I mentioned the cultures on Wedsday). She is acting as though she feels fine and has not had another fever. When we got back from the zoo there was a message to get her to the Dr.'s office and have her admitted ASAP!! I lost it. My poor husband. He called and spoke with the Dr. (she was such a huge help and very understanding). We wanted to treat Missa at home. They had already tossed that around and once we talked she spoke with Sue (all you 7-H'ers know who I mean) again a HUGE help in getting me what I needed to take care of Missa at home. I am comfortable doing it but it has to be ok with them first. So we will have to wait till Monday to decide what to do from here. We will be using 2 meds until then. They are running all kinds of test to see what is up & if there is still this infection. I tell you I was so scared I said to Darren "What do we do now?" he responed with "trust god he has done a great job so far!!" Indeed he has and we have been blessed. So my in laws must NEVER leave their house again without us. I will update again with ANY new news.

Denise
PS we were to be out of town with my in laws but decided not to leave Missa with anyone. Guess God knows what he is doing huh!!!

Thursday, August 22, 2002 at 06:52 PM (CDT)

Well we are back. have been since yesterday BUT!!! yes there is a but, Missa ended up with a fever yesterday morning. It seemed to go away and then it was back around 4 last night. So off we went to 7-H (our floor at the hospital). They did blood work and sent us home. Seems to be a virus. She has been better today. We are planning on a trip to the zoo in the morning. Missa has not been since last year.

The kids loved A-Bay!!! Our hotel was beautiful. Mrs. Ridley has a lovely piece of property. She was so kind to let us relax at her place. What a huge room. We will go back up some day when the kids are bigger and can enjoy more "sight seeing".

All for now as I need to go and enjoy my vacation. Hope you are all well.

Friends, Denise and Darren

Sunday, August 18, 2002 at 05:30 PM (CDT)

Just wanted to drop you all a quick note to say Hi!! Darren and I got out to dinner Firday for my birthday (thanks Lin & Pierce). Last night we went to see the cutest movie. "My big fat greek wedding". If you have it in your area I suggest you see it. Darren & I loved it. It was so very funny. It was only playing in the art house in Syracuse until the theaters saw how well it was doing. We had a blast (thanks Mom and Carl).

SO in the morning we leave. we can not wait. We love being home but there is just something about "getting away".
I will let you all know how it goes when we get back.

Love to you all, Denise & Darren Roberts (7 years tommorow!)

Friday, August 16, 2002 at 03:06 PM (CDT)

DONE!!!!!!! Yes done with radiation. We are all very happy not to mention very proud of Missa. Even her counts were not to bad today for someone that has just been through what she has. So we willbe off Monday morning.

Hot one here AGAIN. I can not remember a hotter summer. Maybe hot summers are like labor you just forget (haha). We had some fun today at the garage sale and even made a buck or two. My mom made me a cake but she was feeling "yucky" so I told her it was ok with me to do it tomorrow as dad and Darren will both be there too.

So thats about it from here hope things are well for all of you.

Friends, Denise

Wednesday, August 14, 2002 at 03:09 PM (CDT)

Thanks to all of you that are signing in to our guest book we just love reading them!!

Now onto the good stuff. guess what I was wrong (I know can you believe it!!) Radiation will END in 2 days. On my birthday. I was excited to find out that they had written for 14 days and not 15 (which is what we had been told). So we will just jump out of bed on Monday and leave for our vacation. Missa is trilled she is telling everyone she sees how long she has left.

Zach is as wild as ever. He is loving his time with grandma and now with Tori too. Missa is usally wiped out by the time we get home so he gets his play time in while we are gone.

Have to go and finish getting things together for the garage sale with mom.

Miss you all, Denise

Tuesday, August 13, 2002 at 07:16 AM (CDT)

Morning, Only 5 days left of radiation. She is doing so well she keeps surprising everyone. She does get alittle nausea but we have been able to control that. She continues to eat up a storm (but has lost a little weight). We have told her that for her last day we will ALL (mom, dad, Tori and Zach) be there. We will leave as soon as she is done. She is excited to get away. We did not need to be transfussed yesterday. Her counts came up. Reds only a tiny bit but thats enough to say we did not have to give her reds. Her whites came up to and her platletts took a nice jump. We will do labs again Friday as we will be leaving town Monday.

The kids are excited to see Uncle Adam again today. Missa hung off him for a long time Sunday. It had been a while since they had seen him so seeing him twice in one week is a big deal.

Well have plenty to do to keep me busy so I should go!!!

Friends, Denise

Sunday, August 11, 2002 at 08:02 AM (CDT)

Good morning!!! We had so much fun yesterday with Sarah and Sharon (said hi from Morgan and Vicki and gave hugs from Ma). We took the kids to the new Chuckie Chesse near their house. It was a blast. They have made LOTS of improvments. Missa and Zach loved all the "rides" for them. We also so went to a park and rode a carousel. It is alway nice just seeing them but we always have a blast together. We got to see "grandma and grandpa" (Sharons parents) too. It was an all around gret day.

Today we will be off to church soon then home to see Uncle Adam and then off again to take Tori to grandma Angles.I will pick her up on Tuesday after radiation. I think the rest of the week I just have radiation. Well at least till Friday. Tori and I have shots scheduled, bet you all want to get shots on your birthdya to huh. Oh well I can not think of a better way to spend my 33 birthday then shots, but if any of you have any better idea let me know as there is still time to change my plans (haha). I will also be helping my mom with a garage sale on Friday so atleast I will be with my mom on this special day. Next Monday (the 19th) we leave fro our trip to A Bay. Can not wait shouyld be fun.

All for now. We will be runing blood work on Missa in the morning to see if she needs reds. Please remeber to give blood as this is what helps kids like Missa not to mention all the others it helps. Will up date again soon.

Friends, Denise

Friday, August 09, 2002 at 12:28 PM (CDT)

Time to update you all I guess. We had blood work yesterday and here is the scoop. Missa whites are at 2.8 which is ok for someone that is doing radiation. Her plattletts went up 2 so they are 53 also good for someone in her condition. Her whites are not in the best shape. They are at 7 1/2 so we may need to tranfuse her Monday. I will draw her early so we can get the blood right after radiation. The Dr. thinks she may have a virus that "eats" reds. So we are pluging along.

Tori is enjoying her last day at camp I am sure. They were headed to a water park. Missa and Zach are hanging with mom. We are runing lots of erronds these days.

Well should go and get ready to pick up Tori and run MORE erronds before our trip to see Sarah in the morning.

Love and friendship, Denise

Wednesday, August 07, 2002 at 01:20 PM (CDT)

I am back!!! Wow what a day yesterday was!!! Tori's day camp gave her/us some many wonderful things. She had a blast (not like she has not already been having fun). She was aloud to "pie" to counselers. Missa and Zach loved that!! She was given a $200 shopping spree at Media Play, an art store spree, dinner out for daddy and I, Two 1 night get aways (love those one has a jacuzzi!!), a family dinner out in Sylvan beach... There is much more and they are making friends with her. It has been so nice. The kids and counselers at camp were so generous.

I continue to run here and there. No Tracey we do not have a slow mode. Well maybe 1 day a week!! We enjoy keeping things a "normal" as possible and running is what we do. All our friend could tell anyone that.


Missa will be 1/2 way through her radiation as of tommorow. This makes me happy. We have a Dr. appt. before it to get our monthly antibioctic.


Well Grandma and Grandpa leave Thursday for 4 days. Nothing happened last time they left so maybe i will be ok. We will see.

Planing to go and see some friends Saturday. We have so much fun with them, and Sunday we should see Uncle Adam.

All for now have to get Tori, Denise

Monday, August 05, 2002 at 03:21 PM (CDT)

I am so glad we have this web site. I NEED all the encouragement I get from it. Not to mention it is a greta release for me. Miss IS taking the oral med much to my surprise. Ok I will not say its nice to do but she is doing it. We went up to her Dr. today to tell them take its ok she can stay on this med. Todays dose of radiation went ok. The computer/machine acted up. Missa handled much better today.

Tori is having a blast at day camp. I think I had mentioned that they "adopted" her. Tommorrow they are presenting her with "stuff". I will let you know about it when it happens as the camp supervisor is keeping it a secret, but he did say daddy should come. SO daddy, Missa, Zach and Grandma J. and (great)Grandma Ruth (grandpa Carl's mom) will all be0 there. Tori is burnt from her trip to the water park yesterday. SHe spent the whole day in the water which was a good idea up here yesterday.

The kids had a ball at the ball game the other night. The picnic was fun and then we had great seats for the game. Sunday we went to church and then to Grandma J's for a Crittenden family reunion. Grandma and Grandpa had rented a moon bouncer and the kids did not let that go to waste. So it was indeed a nice weekend.

I should go now as I am going shopping with my mom and Tori tonight. A great big thenk to all of you that sign our book and let us know you are there for us. When I read it its like getting a hug each time. I need hugs.

Friends, Denise

Friday, August 02, 2002 at 07:47 PM (CDT)

Hi. Missa is still doing great with her radiation. I spoke with the Dr. today about it and he sats we can expect her nausea to continue for about 1-2 weeks after she is done but that it should not get any worse.
When I got home there was a message from her other Dr. I returned his call to learn that my gut was right the other day. They have found another "spot" on her spleen. He must assume it is fungal since that is how we are going to treat it. We will try an oral drug over the weekend and then it all else fails we will go back on IV drugs. I know this does not make me happy but I am not sure how to feel. Has this been there and they missed it???? Is it fungal????? My stomach head are upset. I do not know what else I can do except to give her the meds daily and pray that in 4 more weeks it looks better. This should seem like nothing but now is not a good time to be "finding things". I guess never is but this.... Sorry I have to stop now.
We love you all, Denise

Thursday, August 01, 2002 at 03:01 PM (CDT)

Hello to you all. Missa seems to be tolerating the radiation good so far. Today was day 3 out of 15!! A ways to go but nice to know she is ok so far. They have worked out their problems with Missa's med but now they have to get her "enrolled" so it will take another week or so. Darren has been very busy at work. Today was inventory... noones favorite, but it must be done. HOT here today too so not a nice day at all to be doing inventory. It sure has been nice having the second car. I can get ALL the erronds done now and grandma has a car when she watches Zach for me. Well it for now I guess. Oh yeah Tori is so excited as she gets her cast off in the morning. 7 weeks (not sure I could do it)!!!
Love ya all, Denise

Tuesday, July 30, 2002 at 02:18 PM (CDT)

WOW what a day. We had our sono at 7:45 (give or take a few minutes, they were running late). Then we ran to 5C (Missa's Dr.) we told him they wanted us in radiation do remark her so he said go he would see her latter. SO we did. She got her new marks and we rushed back up to see him. We saw him and guess what she hit 51!!!! So back down stairs to start radiation. Darren and I were told we would not start today so I think I was taken a little back. Oh well nothing like November 8th right? SO every day for 3 weeks Missa will get radiation. We are also starting the home med. Don't ask thats a mess right now. I am letting the Dr. and the guys a Kinney Drugs go at it over this one. SO all in all Missa is doing well. Her weight is now 33.6 lbs. NOt bad for someone eating on their own for the first time in months. We bumped into a few of our old residents (doing time in radiation). They seemed to think she looked good to them to. Tori should be home soon and we can not wait. Missa told everyone today that she was coming home. They really have missed her. Have to go figure out what is for dinner tonight.
Friends, Denise

Monday, July 29, 2002 at 02:46 PM (CDT)

Well its Monday. I am missing Tori like crazy now. we did talk last night. She wants to get home to. I could not write this earlier but we redid her room. She will not be near a computer till she is home so now I can tell you all. She had chossen a moon & stars set a long time ago so now its done and she has no idea. It looks so nice Darren was a huge help. Missa and Zach painted to. She loved it. We had to remind her when she talked to Tori not to tell her. Tomorrow morning we go in for all the check ups and to she how the counts are doing now. Hope they are up!!! Missa surprised us by begging to go to the toddler room during church. She did not stay the whole time but she made it like 45 minutes or so. One more step towards being the old Missa.
Love seeing new people sign in, Denise

Friday, July 26, 2002 at 07:37 PM (CDT)

Ok here we go. Platelets are at 46 YEAH 46!! This kid does not want to start radiation. Whites are at 6 so thats good. Thats is probably why the cold she has is not much worse. Things are good other wise. We are tyring to keep busy (as if that was a problem). Missa and I will be at the Dr.'s most of Tuesday morning. We will see 3 different departments while there... So we will be busy. Tori is due home by Wedsday. We can not wait. We are all excited about her cast coming off. She has a busy August but we are very happy for her. She gets to go to 3 water parks in the span of 2 weeks and then we are going to Marine land the end of August for a family vacation. Will up date soon. Please sign in to the guest book. Missa (well all of us ) love to read or hear what you all have written.
Firends, Denise

Wednesday, July 24, 2002 at 01:48 PM (CDT)

Just a quick note. Looks like we will draw Missa's blood Firday morning and drop it off. This will decide if we can start radiation next week or not. They can not fit us in until 7:45 Tuesday morn for a sono, so Missa and I will be getting up bright and early. I think the Dr. wants to check the liver to make sure its still good. So thats about all for now. She continues to amaze us with her strength. Today we did the park and movies.
Friends, Denise

Missing Tori a bunch and can not wait till she is back home. The kids are already planning next weeks theater trip and a trip to get the cast OFF!! We love you Tori. Hope you are having fun.
Love, Mom, Missa, Zach, Daddy and Jake too

Tuesday, July 23, 2002 at 07:38 AM (CDT)

Not much has changed here. Missa is still eating every thing in sight (and some stuff she has to look for). We will go into the Dr.'s Friday to get counts and have a sono. He wants a sono before we start radiation. Missa has bruise almost every where. She has been so busy and her platletts could not keep up. But the Dr. said its ok as long as she is not getting head injurys. We are staying busy. taking her to the duck pond, going to the libary and boat rides just to mention a few. Well I will up date in a day or so unless there is something to write.
Denise
PS Tori left this AM for her dads wedding in Kansas. Please pray for her and her grandparents safe travel.

Friday, July 19, 2002 at 06:22 PM (CDT)

Well!! You guys do not quit do you. Thats a good thing beacuse your prayers are being answered. Missa took a good jump this week in her counts. Her platletts up to 39 that up by 11 and the whites are at 4.6!!! The Dr. sounded happy. We might acttualy get to do radiation in another week. That would mean we finish on my birthday (Aug 16) and would start the next week radiation free which happens to be our annivesry (Aug 19) and the begin of Darrens vacation. May be God wanted to give us these "gifts".

She had a ball yesterday. We took the kids to Fort Rickey. A small game farm about 1/2 hour away. Little Jake would have a ball so we will have to try it with him so time. Caitlyn have a BALL in the water.

Tonight Jake is spending the night and the kids BEGGED Darren to to take them to sandy beach. They LOVE it when he takes the boat out.

So another good week. Oh yeah no one was injured today. Good thing too beacuse Grandma did not have her cell phone on. I tried to call with blood results.

Love you all and have a great weekend, Denise

Tuesday, July 16, 2002 at 04:51 PM (CDT)

Wow Tuesday already. We have still been busy. Missa seems to want to enjoy her summer. May be thats why God is letting her counts take so long???? Not for me to question, but I do think its working for her.

We ran errands yesterday (love having a second van again!!). Today was Jakes first day back with us for the summer. We went to the park and to the ball pit for lunch (Micky D's). Lots of playing at home afterwards too. The kids love being close to their cousins.

We have a blood draw on Friday. But Thursday is a BIG day too as it is Caitlyns First birthday!! Nana and Mommy have special plans. Can not tell you now but I will later the kids may read this.

So things are going well right now. My in-laws have warned us they are leaving town Friday. This means someone WILL be injured!! Happens EVERY time. We tell them they can not leave but they keep going. last time they left Tori broke her arm. What next, tune in Saturday to find out.

Thanks for checking on us, Denise and Darrren

Sunday, July 14, 2002 at 04:35 PM (CDT)

Hi again. We have been sooo busy this weekend. We picked up Tori from camp she had a blast. Thanks you Shara for the card and money. From camp it was to grandmas but not before the battery dies on the new van (we jumped it and it worked so we are waiting to decide what to do). Made it to Grandmas dougnuts in hand. Then it was off to Norms party. Always lots of fun Missa loved it and Zach would not get out of the pool!!! back to Ma adn Poppas for dinner and more swiming. Then home. Today we attended church for the first time since stem cells (remember Missa could not be that close to that many people). Church was great. Such a warm place to be. we then ran though a couple of stores and then home for NAP. So thats about it for the day as we woke about 45 minutes ago. Will have to see what I can get done.As you can see Missa is doing well. She loves keeping busy and EATING!!!!! Our food bill is going to double!!!!! It is nice however to watch. Thanks for the prays and thoughts.
Denise

Thursday, July 11, 2002 at 12:46 PM (CDT)

Well back from Missa's appt. She is still rising just VERY SLOW. In the last week we only made 2 plattlets!! 2 I can not believe it. The Dr. and I agree that at least it is on her own but we have no idea why its so slow. So radiation is off again. She needs between 55-75 plattlets and we have 28 so you can see how long this could take. She is however in GREAT spirits. She love sot run and play ALL day!! So for now we sit and wait. Will get counts done at home next week and see if they are any better. Keep praying. Please also remeber the other children and their families as there are so many out there dealing with these problems.
Thanks, Denise

Tuesday, July 09, 2002 at 01:17 PM (CDT)

Well things are back to normal here. YES another trip to the Dr.'s (they must love us). Zach just did not seem right today and the cough never left. Seems the antibiotic worked on the ear but not on the sinus infection. Poor little guy. he did not even eat this AM, he would ask for things and then try them but he can not eat much beacuse he is so stuffed up. So we have a new antibiotic for him now. Missa however sounded great our NP said. She and her staff were so pleased to see Missa doing so well.

I must ask a favor of all of you. Tori is at summer camp for the week ( we get her Saturday morning). Well at camp the more mail you get the more silly things you have to do to get it. So if you would not mind sending out a big hello to my "baby" I would appreciate it. She LOVES mail at home. Last year I sent her enough she had to kiss a plastic pig. She was sooo red in the face she said. Thanks for the help. Here is the address... BaYouCa box 204 Marathon, NY 13803 for Tori Angle... Thanks again.
Densie

Sunday, July 07, 2002 at 01:58 PM (CDT)

WOW!! Thats all I can say. Yesterday was awesome. We had such a great turn out. About 100 people over the whole day. We are so grateful to be able to talk to you all ( although I missed some of you again sorry). The kids love all thier gift but most of all they loved seeing you all. Missa was giving Kisses out all over the place. We had such a nice mix of friends some new and some old. Thanks you all so much for your support we are not sure how we could have made it through the last 8 months (tommorrow)with out you all. We have such a strong support group.
Love you ALL, Denise & Darren

Saturday, July 06, 2002 at 05:58 AM (CDT)

Well the kids are UP!!! They are so very excited about today. Can not wait to see all their friends and make new ones. Daddy and I have cooked alot so we hope you guys a hungry!!
Missa is now in "Big Girl" panties again. No more diaper. She has made such a HUGE turn around. She keeps Darren and I busy cooking!! Our company laughed the other day to hear her asking/ demanding food!! Its a good demand.
Tori has a new cast. This one is bright orange!! She wanted it beacuse she like her girl friends at school. She will get it off July 31ish.
Well I need to get a move on if I want to be prepared for all our guest today. We have a glorous day. Low 80's!! Should be a blast. We will think of you all that could not travel to be with us.
Love, Denise

Thursday, July 04, 2002 at 09:07 AM (CDT)

HAPPY FOURTH!!!!! Let me start by reminding each of you what a wonderful country we live in. Every step you take today please remember that someone somewhere is living with out a memeber of their family becuse they gave their life to protect OURS!! Please also remeber that it is only beacuse of God that we live in this glorous place called the United States!! We are United. Please take a moment a pray today for those still fighting for us as we are here celebrating.

Ok now on to my family. Missa is THRILLED to not be hooked up. She is a totally different kid then the one that was in the hospital just a week ago. I can not wait for our friends from 7-H to see her. She washed her head by her self last night and said "Cheryl would be proud of me". Cheryl is one of Missa's favorite nurses.

Zach continues to improve. He can not wait till Little Jake gets here to play tonight. Little Jake is my dads second cousin. He and Zach hit it off so well. Jake is 3!! Tori also continues to get better. At using her casted arm that is. We have a check up tommorrow.
Love and Friendship, Denise and Darren

Wednesday, July 03, 2002 at 07:58 AM (CDT)

Well Missa is unhooked!! I hope its for good. They say the radiation may do her appetite in but we hope it doesn't. She is eating so well! She LOVES the frosting off apple strudel. She got a package out yesterday and hide in the dinning room eating it. I had to laugh when I found her. She ate pancakes, ham, frosting, OJ, peanut butter, spaghetti, pretzle & a OJ popsicale yesterday. Does not sound good to me at all but I guess i should just be gald she ate it.
Zach seems better. Jake spent the night so the kids had loads of fun. The four of them ran around the house. Yes Missa ran. Missa lovesJakes new hair cut. She says he has a "fussy head" like her.
Well should go. Thanks again for all the prayers.
Denise & Darren

Tuesday, July 02, 2002 at 10:13 AM (CDT)

Hi there. We are making progress. Missa drank some OJ this AM and even tried some ham. She seems to be coming back fast. She talks often of seeing her friends at her party.

Well, in true Roberts household fashion we spent last night at urgent care with Zach. He had an appointment for today but when his temp went to 103.4 we decided to take him then. He has a dbl. ear infection and possible strep. Since they are treated with the same med it really does not make a difference. He should be feeling fine by Saturday.

Staying busy here. Lots to do this week. Darren is taking a vacation day friday to help watch the kids while I run around town. Tori has her check up. Maybe she will get a smaller cast on the arm!!

See you all soon we hope, Denise, Darren, Tori, Missa & Zach

Monday, July 01, 2002 at 11:28 AM (CDT)

GOOD MORNING!!!!!!!!! Just back from Missa's check up. Her counts ARE coming up by them shelfs. They are slow but they are moving. The Dr. told me Missa "amazed" him. The way she came through this. She hasa lot of strong people praying for her. We have also decided to STOP her TPN. She ate 2 1/2 pancakes this AM. His jaw hit the floor when he heard that. So we will have a blood draw on Friday. He and I think we should be able to start radiation 7/15/02. Three weeks of that and we will be done with "hospital time". There is the 6 months worth of home meds but who cares they are HOME meds. So glad I could come home and write this. Daddy and I are very pleased. Oh Missa's hair is coming back. She got upset with daddy last night (he was not making her food fast enough) and all these little hairs popped out of her head. I had to laugh. Well have to go get busy. Zach is not feeling well so I need to see if I can get him into the Dr. Busy house!!
Denise

Sunday, June 30, 2002 at 10:54 AM (CDT)

Well so far another great day. Last night Missa went into my parents pool. She loved it. She even got poppa to do the poppa dance in the pool. Once again we had to make TWO stops for ice cream for her. The local ice cream store did not even charge us for hers since it is all she eats, but this morning we got her to eat a half a bowl of "talking cereal" (Rice Crispies). Darren and I were thrilled. WAIT right this minute I just saw her eat mac and cheese!!! What a moment. We told her the sooner she eats the sooner she can stop the TPN. TPN does not bother her but since we now run it over 24 hours it does resrict her movements some. Its a HOT one here so we plan on taking the kids to see a movie later. Jake will go with us so that Nana can finish putting the new house together. I think you will all be impressed with our little miriacle next weekend.
Denise
PS I would not have forgotten your birthday Tracey!! But I did not know when it was.... Hope Karl still talks to me next weekend!!

Saturday, June 29, 2002 at 08:20 AM (CDT)

YEAH!!! We had to stop twice last night to get chocolate ice cream for Missa. She ate half the first cone and some of the second. Darren put the second one in the fridge so Missa is eating that one for breakfest. What you wil not do for a kid that has not eaten in 8 weeks!! I forgot to let you all know she has put on a little weight since we made the changes in her TPN (nutrition) and she is no longer nausea from it. I think the Dr. will be pleased Monday when he sees her. She is walking on her own again although she is shaky. Daddy is working today and Missa is not happy with that at all which is also a good sign she is feeling better. Well I should go lots to do today... we may even go to poppa and ma's for a little swim latter. See ya all soon.
Denise

Friday, June 28, 2002 at 07:33 AM (CDT)

Good Morning. Missa seems to be doing well. Breathing does not seem to labored. She is doing her treatments well. I think she is just enjoying being home.
Now to the other stuff. We are looking to borrow some tables (card or outdoor). Maybe you could think about bring a chair to sit in to. We have several but I am not sure how many of you are planing to come to the party. We can always throw blankets on the ground and call it a picnic. We are all very excited about next weekend. We need the break. Just some time to say thanks and give hugs. We did rent the bouncer again so bring socks (adults may bounce to). Swim suits if its warm may be a good idea too. I think Tori and our friend Sarah might do some face painting since neither girl can be in teh bouncer. This is the low down oh one more thing COME HUNGRY!!!! Ok thats it.
See you soon, Denise

Thursday, June 27, 2002 at 11:40 AM (CDT)

HELLO!!! Yes WE are home!!!!!! I was so very home sick yesterday. Not that I wanted to be at home but that I wanted ALL of us here. Darren picked Missa and I up this AM. Tori and Zach should be home soon. They went out with Grandma.
Our Dr. was quick to remind me that Missa is not better yet and he wants her to take it easy. I think he knows us and trusts that we will call at the first sign of distress. It also helps that we are only 20 minutes from the hospital.
Thank you all for keeping in touch it is so nice to hear from you. Please do not forget that you are all invited to our house next weekend July 6th. The kids can not wait. They love to play.
Well TONS to do here. New meds and cleaning. Will update later.
Denise

Wednesday, June 26, 2002 at 03:54 PM (CDT)

Still here. Dr. thinks we may get out Thursday. I hope so we are ready to get out. Missa is feeling better even joking with daddy. Will up date in the morning.
Denise

Tuesday, June 25, 2002 at 11:32 AM (CDT)

Good Afternoon....
Missa's whites are down to 4.1today. They were 12 something yesterday. We stopped the white cell med and BAM... I knew it was the med all along.
She is trying to walk a little each day but of course she tuckers out quick. We do not need her lungs to collapse beacuse she is lieing around. She did receive a playdoh gift from Mamar and LOVES it. This also helps her want to sit up and play. We also got a party bag from a friend at story hour and it had a "blower" in it. As an adult they get you a machine to blow in but the kids do not o as well with that so this is working well.
Santa stopped by today (Leon day which mean exactly 6 months till Christmas!!) Missa screamed thru the whole visit. She had just woke guess she is not a morning person.
Tori finished school today and is officially a 6th grader. Zach is just enjoying being 4 and keeping grandma VERY busy!!!
Thanks again fot the thoughts.
Denise
PS we did run another test and should have results 6/26/02.

Sunday, June 23, 2002 at 06:43 PM (CDT)

Hey, sorry we did not update sooner the computer was down.
Missa is holding her own. still needs oxygen. we have a chest Xray in th morning. Hope that gives us a better idea on how long this will go on.
Please keep praying for us as this is starting to wear on ALL of us.
Love and friendship, Denise
PS Please also remember our friends Justin & Tyler (and families) in your prayers. Thanks!!

Friday, June 21, 2002 at 10:27 AM (CDT)

Not much has changed here. She is about the same would love to hear she is better but I guess its better that she is not worse. We are stopping another med today.
Darren is trying to keep wrking but its hard. he misses Missa and wishes she was at home . Ramma is watching the kids again this week (sorry Mom). We did not think this would happen. Once again my mother in-law has been there so we can take care of Missa. My brother in- law is headed back today adn my parents have also said they will watch Zach this weekend. Thank goodness for these people. I know many others have offered but w edo like the kids to be with family whenever possible.
Well i should go back and check on Missa she was asleep and her blood had started to run when I came out here.
Love and friendship, Densie

Thursday, June 20, 2002 at 03:34 PM (CDT)

Hello again to you all. First let me start by saying THANKS to you all that have given blood. As it is Missa is receiving "reds" now. Even Lin gave (big pat on the back Lin!!!).
So Missa is still holding her own. We did get rid of one med today and the "quick' RSV test was neg. So thats a start. We added so pain meds as her tummy was getting sore from the weeks of coughing and puking. Its all a matter of keeping her comfortable now. It will be a few days possibly before we have all the results back.
Tori is HOT with her cast but seems to be handling it well. She will be gone this weekend with Girl Scouts. They are headed to a water park of all places, but Tor wants to go and be with her friends.
Zach is also dealing better then we thought he would. He likes seeing all his "girlfriends" on 7H.
All for now and thank you all for your thoughts and prayers.
Denise

Wednesday, June 19, 2002 at 12:25 PM (CDT)

Just a short note. Missa looks a little better today. She is still having a time of it breathing. Several test have been done to see exactly what we are up against. What we need to fight this is T cells. Guess what those are in the marrow and well we all know about Missa's marrow. So for now we will try to use the best meds available (5 antibiotics now). What a wild ride this has been. She is handling it very well as are Tori and Zach. Will write when I have more news.
Densieand Darren

Tuesday, June 18, 2002 at 06:05 PM (CDT)

Hi everyone, Denise has asked me (Ma) to update you on what is happening with Missa. This morning Denise took Missa to the Dr's and found that Missa has pneumonia, so she has been admitted to the hospital & again on 7H. Missa loves the staff on that floor & even named her new bear Brian after one of her favorite nurses. Denise & Darren seem to be holding up well, all things considered. I know they are glad that Missa is where she is so this can be treated & resolved quickly. When I left the hospital this afternoon Missa was wanting Gramma (Darrens Mom) to come & read to her. Missa loves that so much & it helps her feel comfortable & Gramma seems to really enjoy it too. I know they will covet your prayers to continue for Missa & the entire family. Prayer is what has brought our Little Princess along with her beautiful smile intact.

Sunday, June 16, 2002 at 10:24 AM (CDT)

Happy Fathers day to you all (or your dad)!! Not much new. Miss continues not to do much and her fever is still around. We hope to speach with the Dr. tommorrow. Will let you know how it goes. Her counts went ok this week end but will need platlets again soon.
Anyone that wanted to do something for us could consisder giving blood or platlets. Platlets take longer but it would be so nice to know we were trying to help replace them. Our kids are to young, Darren lived in England at a bad time and I am on a blood thinner which makes us unable to qualify. So many of you have asked what you could do and this would be a blessing to all of us. We have been fortunate and not had to hard a time finding matches for Missa but we must also remeber the many tragic things that happen daily in this great country. Blood adn platlets are in such demand. Enough of my rambling.
Thanks for the thoughts, Denise & Darren

Friday, June 14, 2002 at 12:07 PM (CDT)

Well you will not believe this one!! Tori has been casted! No not on Broadway. She broke her left wrist. Can you believe it. I was on the phone trying to reach all of our parents when Tori's school called to say she had fallen during the skating party and they were pretty sure her wrist was broken. So off I ran ( after making arrangments for the twins). She was splinted last night and we saw a orthopedist today. They say 6 weeks!! Poor kid she had all of July planned out. She picked a purple cast and it goes from just below her shoulder to her fingers.
As for our other daughter her results are back. NO more antifungal meds. The sono looked ok so we have stopped that med. She has 40% of what she shuld have for marrow. So we do not have to run out and find a donor BUT we will be watching her and the counts CLOSE!! If she does not start to rise in 4 weeks we will do this test again. Her platlet making cells are also low so I will be asking the Dr. what that means for her long term. Her temp continues to rise slowly. When she hits 102 he said he will give her an antibiotic and check her lines for infection. NO over night stay he says.
Darren and I are hoping to get some sleep soon as we are Tired!
Will update on both kids again soon.
Denise

Wednesday, June 12, 2002 at 04:35 PM (CDT)

Hello, I know lots of you are checking on us daily so I figured I would write.
We stayed very busy at the hospital today. Chest Xray as he did not like the sound in her lungs but looks like just a cold (good news), Blood work (looked ok), OR for bone marrow (will not know for a few days), radiation as it looked like her lines were faiding, sono (not so hot looks like fungus on spleen). Then up to 7H to visist with our friends. Sarah finished to day (SOOO proud of her. she has come a long way). Got to see some of our favorite nurses and staff.
We finally left and you would not believe the traffic!!!!! We also saw 4 limo's Darren says well it is prom season. I said "Not on Wedsday its not". Who knows what was up but we are home and staying in. Thanks for looking us up!!
Densie

Tuesday, June 11, 2002 at 03:02 PM (CDT)

Sorry I have not updated for a few days. Been so very busy!! Well counts still seem to be dropping. Altough whites are going up. Please remember that we give her meds to make her do this so its good becuse she can fight off illness but we are not sure it means any thing except that she now gets her med!!
Today we went in and recieved reds and platlets. LONG day!! Tommorrow will will be checking the marrow so we should ahev answers soon.
Missa seems morre alert today then yesterday but that is what reds are there for.
Tonight is Tori's program so we wil try to make it. Busy week for her too. Lots going on with the end of the school year in sight.
Thanks again for reading our sight we love knowing so many people care.
Oh yeah Ty and Vicki.. Hugs have been passed on and both girls were happy to get them. Also to the friend of Tracey's whose son had Neuroblastoma I lost all your info as someone had sent a virus and my computer caught it but I have not found a way to get rid of it but to delete EVERYTHING in the in box. Would not mind getting in touch but need the info again.
Ok enough for now, Denise

Saturday, June 08, 2002 at 03:35 PM (CDT)

Today was encouraging. We are not out of the woods yet BUT... Missa's counts (whites) went up today YES UP!!! Her reds dropped but not to bad and her platlets were at 18 not bad since they were at 27 TWO days ago!!!!! The Dr. was pleased. Again this may just be the meds kicking in for the whites but it is about time. So we did not have to transfuse her this weekend!! NICE. We will have another draw Monday morning. The reds and plalets could be promising as they are not dropping as fast as they were. We will not really know any thing until we recheck her next week. Darren and I are very happy but also reserved. It would hurt to much now if we "put all the eggs in that basket". So keep praying as that is what Darren and I are attributing this latest news too.
Love and friendship, Denise

Friday, June 07, 2002 at 07:34 AM (CDT)

By now most of you have seen your e mails. I wanted to update teh site for those that I do not have emails for.
MIssa's counts are NOT coming up at all. They contiue to fall. So Wedsday we will put her to sleep and aspirate so of her bone marrow to see why. There are a few reasons this could happen. Virus, Stem Cells did not take or bone marrow is dead. Two out of three would be a crisis to say the least. I mean they do have ideas on how to fix any of them just two of them would mean so major hunting for matches to Missa. Darren and I are tierd (physicaly and mental). All the time you keep thinking she is on the way and she is not. We will wait till Wedsday becuse that will mean we gave her 5 weeks to do it on her own. At the 5 week mark we have no choice but to look and find out why this is happening. She still needs those prayers so keep 'um coming. I am still hoping to go forward with their party but will keep you up to date on that as it may need to be changed once again. Thanks for all the help and support. I will draw her blood tommorrow to see if she needs platlets (she was at 27 yesterday) or she may need red blood as that is falling now. Will write and email again soon.
Denise

Wednesday, June 05, 2002 at 01:51 PM (CDT)

June 5, 2002 shall forever be remebered as the day Missa ATE!!! Big deal in this house I'll tell you. Mommy cried and daddy said he wanted to, but he was at work and did not want to do it in front of the guys.
Darren and I both hope this means the counts are moveing upwards. She has always waited to eat until her counts were back before. This makes waiting for tommorrows blood work harder. when she changes at all I want to know what is going on in that little body if hers.
She did not eat much jsut a little bit of Cherrios so she will need the TPN (nutrition) for a while but it seems to be a move in the right direction.
What a long journey this has been. I was thinking today that I am so gratefull that we are not doing this twice!! I do not think MY body could take it much less hers.
We (the kids and I) are going to Ma's house tmmorrow after the appt. I am going to drop Darren off at work. He has been working long days and it seems silly to loss those "OT" hours. So he will go with Missa and I in the morning and work the evening. The kids love going to my moms as there is a duck pond very close!! You all know Missa loves those ducks!! I will update at some point tommorrow altough it may well be in the late evening.
Thanks for reading and Praying, Denise

Tuesday, June 04, 2002 at 07:53 AM (CDT)

Very odd. I updated yesterday but it does not look like it took.
Well we did get platlets yesterday. WE also talked with the Dr. Missa even talked to him. She is usally very quiet when we are there. The Dr. is some what concerned about Missa's counts. Reds droped to 9.2 (not to bad), Whites are still only at 2.8 (not so bad) and Platlets were at 10 (BAD). Nothing seems to be headed up yet and that makes him wonder. He says he will give her 1 more week and if they do not look like they are makeing progress then he will have to look at the bone marrow. Yes that means knocking her out and doing a "biopisy" type procedure. This would upset Missa for sure. We do have some counts so it is not all bad. They should have been moving up alot faster by now. We will check her counts again tommorrow before we simulate radiation. Please pray that we see some kind of change.
Kids are doing great!! They love being 4!!! Last night we signed the final papers for our trip to Disney. We can not wait. After talking to people at the Dr.'s yesterday they say that kids that go with Make A Wish think that the vilage they stay in is Disney becuse it is so nice. We hear the vilage holds 200 make a wish kids and their guest and there is an ice cream shop in the vilage. We think we will be shareing our place with Ramma and poppa (Jennifer and Carl). We are hoping to have final plan within the month.
I will update you soon!!! Thanks for checking on us.
Denise & Darren

Saturday, June 01, 2002 at 07:26 PM (CDT)

What a day. Missa got up firtst this AM. 7:30 but it was a good nights sleep for all. We went into the hospital like I had mentioned yesterday. As we were walking in our Dr. was also. He paniced thought some thing ahd happened to Missa. We told him no we were just there to see our friend Sarah. He could not believe we would come back just to visit. We figure we made good friends and we must keep that friendship growning. So we stayed for a while and ALL the nurses said how GREAT Missa looked. Some even said how they think she does better at home. Glad to hear that as it must mean they think Darren and I do good job takeing care of her.
After the visit we stoped by my parents house. Missa loved seeing Popa, Ma and big cousin Jake.
We came home next where Missa went out for a ... You know a canoe ride with daddy. Tori got home after a long day in the sunny (parade) and daddy and the kids walked up to Ram Ma's (grandma Jennifer) house. Mommy had some shopping to do with Ma.
So as you can all see our little girl is on a good track towards recovery!! She is also trying to eat more each day. She has not eaten yet but she is trying more!!
Denise

Friday, May 31, 2002 at 01:52 PM (CDT)

Afternoon!! Counts are in and they say this is one tough little girl. Her whites are at 2.8 yes that means they dropped but it also means she has held on by herself. Her reds look good. The platlets clotted before they could get a good count but they said she has 33. So we will have another blood test at home Monday morning. Busy, busy,busy....
Darren is working hard. Tori is staying busy with school and friends. She is marching in the OZ fest parade this weekend. That means she get to go to the OZ party with grandma. She loves that!! Missa and Zach are busy keeping me busy!!! Missa needs a med and Zach needs to be rescued almost all the time. He has turned out to be a bit of a monkey.
Missa started running (ok trotting) last night. She was try to catch Zach so grandma could tickle him. Every day she makes a little more progress.
We are going to try to make it up to the hospital this weekend as one of the friends we made is in for her second to last chemo. GO SARAH!!! We have made several friends up there and hope to keep intouch with them. We have plans to travel to see some and some will come to see us too. It will be nice for Missa to stay in touch with these friends.
Well all for now. Must go chase Zach!
Denise

Wednesday, May 29, 2002 at 03:27 PM (CDT)

I was right (again)!! Missa ws not getting ANY of her white cell meds!! To much. We went to the Dr.'s today because Missa's Platlets were at 7 (yes 7). We got LOTS of Platlets today (524cc). Missa went from less then 7 to 177. Nice going girl!!! We talked about radiation and the home med. We will probably start both in the next week or two.
It is starting to thunder here. weather must be about to turn on us. Tori has her spring program tonight. Missa will stay home with dad. Not so sure I want to be the one running in the rain, but Tori has worked hard for tonight.
We will have a blood draw at home on Friday. We should see a rise in the whites by then.
Hope all is well with you all!!
Denise & Darren

Tuesday, May 28, 2002 at 10:43 AM (CDT)

Sorry I did not write yesterday. What canI say we had fun. We did go to my parents house for a BBQ. Some of our friend were there. My girlfriend said Missa looks so weak. I said she is weak but she is so much better then she was. makes me realize just how far she has come in the last few days.

Our blood draw was this AM. We just wait for the results now. We have an appt. Thursday and I am sure the Dr. will think she is doing wonderful.

Daddy started working the early shift today. We will see what time he gets out since they are so very busy at work. I know no matter what time he gets home he will be headed out in the canoe. Missa can not wait to go out again.

I spoke with our make a wish people today. Things have been approved so we can go!!! Grandma and Grandpa (Crittenden) are going twith us. We can not wait. Missa says she does not want to ride a plain. When I told her grandma could bring her books Missa changed her mind.

Love you all. We continue to plain for
July 6. The kids can not wait and mommy and daddy are pretty excited to. We ahve so much to be thanful for includeing all of you!!
Friends, Denise

Sunday, May 26, 2002 at 07:52 PM (CDT)

Would have updated sooner but have been sooo busy.
Missa had a wonderful weekend!! after the update yesterday she BEGGED to be taken out in the canoe. So daddy did so and guess what she was mad this morning. Not because he did take her out but because he could not take her out this morning as it was raining. After nap Tori and Missa headed out with dad and she went out again tonight this time with Zach too.
What a difference a day makes. The Dr. had told me that if Missa was not getting around better by this Thursday he would get her some physical therapy. Guess Missa got him!!! The cough is hanging on but seems looser today.
Tommorrow we will go to Grandma and Grandpa's house for a while ( the rain held us off today).
We all hope that you have all enjoyed your holiday weekend and remember the meaning behind it.
Friends, Denise & Darren

Saturday, May 25, 2002 at 09:26 AM (CDT)

AHHHHHH a beutiful day on the lake. So glad to be home to enjoy it.
Mommy went to the grocery store this morning and daddy stayed with the kids. Grandma Jennifer came down to play (and count burgers for their picnic!!).
Today seems to be going well. Missa came to the door to meet me when I got home. First time she has done that. She does getting around a little more each day.
Grandma Landherr (Ma) came yesterday and gave me a hand cleaning. I told Darren she was the only reason he got a home cooked meal. Thanks mom for all the help and for the circle cakes with cream in them.
Darren and I plan on taking it easy this weekend. Maybe even make up for some lost sleep. I feel better each day she does.
Thanks again for all the thoughts and prayers!!
Denise and Darren

Friday, May 24, 2002 at 07:13 AM (CDT)

Missa is doing GREAT!! She went out to the dock with daddy and mommy took her for a tractor ride. She is still getting a little tummy ache now and then but this is not a surprise. She is up more and more every day. My mom is headed out today to five me a hand around the house.
Darren and his friends from work (Jim, Willy and Bob) got our 2 new dock sections in last night. Darren is trilled. He works so hard around the house it is nice to see something come together for him. Well we all know the kids are the reason we need the dock. They all need places to sit with dad and fish!! Any ways Thanks for the help guys.
We are hoping to get my flowers in the ground this weekend. Missa says she wants to help. I am sure that she will only watch but that will be nice.
More company this weekend as my girlfriend Micki is coming up to see us. we always have a nice time together. The kids just love her to death.
Well guess I should get some stuff done before it is time to run Missa's meds again.
Thanks again for all the prayers and friendship.
Denise & Darren

Thursday, May 23, 2002 at 02:00 PM (CDT)

Finally home!!! I never thought we would make it. We got into the office and did not get home till 2ish. They drew blood and checked her weight (35lbs 7oz). Our Dr. was availble so he saw us. He was some what concerned about Missa's cough. I told him its been like this for a while. He listened nothing in front... AHH there its is a little wessing in the back. So he suggested an oral antibioctic. Then he remembered who he was talking about. I said he might just as well dump it over my head himself 'cuse thats what she is going to do with it. He then suggested a chest X-ray to rule out phenmonua. No problem. SO we do that and bakc up stairs we go. Her counts were whites 8.8 and platlets 15. He says lets recheck them Saturday. I said lets transfuse them now. Guess who won. I did!! He said well I was going to let you decide. I just do nt see the point in running up there again and she is at 15!!! I do know that there are risk invovled with transfussing but there are in letting her go also. So we had our platlets which by the way they ran in slow becuse of the size of the bag. Missa was so fustrated. Well home now. We will havea home draw Tuesday and back to the Dr.'s Thursday. I will update sometime tommorrow.
Denise
PS last night went so much better. We got some sleep!!!!

Wednesday, May 22, 2002 at 08:56 AM (CDT)

How quickly we forget how to run on a little bit of sleep. We are up every 2 hours (sometimes every hour) with Missa. She needs to be changed. Bottom looks better but it will take alot of really good care to keep it where it is.
She talks more every day. She has asked me several times to go buy her some more money for her bank. Darren's hair dresser put a bank in his shop for us and we have given it to Missa (bought one for Zach too). She LOVES it!! Sits up and smiles the whole time she puts money in. SO nice to see her smile.
we have gotten alot done in the last few days but it seems that when you are not homefor a few weeks everything gets a mind of its own or maybe you just do not notice it when you are runningin and out of the house.
We (Missa and I) will go to the Dr.'s tommorrow morn to get platlets. I called yesterday just to make sure they would have them as the Dr. said he would have them held. Guess what NO PLATLETS!! The receptionist called me back and said. " you know this place well" and I do . She also told the blood bank they had better make sure they have some because I am on top of things. You can not afford not to be when it is for your kids right??
All for now.
Denise

Tuesday, May 21, 2002 at 10:09 AM (CDT)

Good morning. What a busy night. We thought we were doing so good and changed the kids sheets and ours. Felt nice too until we had to chenge htem all again during the night. Needless to say we have LOTS of laundry!! It did feel nice for us all to be in clean beds and under 1 roof.
Missa is becoming more like her old self daily. She is now upset to have to use a diaper. They had told us at the begining not to expect her to remain potty trained. She did until this last round. She is amazing. I am sure in a weeek or two she will be out of them totaly. She does not seem to be in to much pain at all. This was a concern for the Dr.'s but as in the past she came through with flying colors.
It was nice to see my family this past weekend. We all hope to se tehm again SOON. Maybe July 6th would be a good time (PARTY!!). Missa & Zach are looking forward to their birthday ( mommy and daddy are too).
Well all for now. I have to finish the laundry and get dinner ready. Not to mention the nap I need. I am so grateful they both still nap.
Love, Denise

Monday, May 20, 2002 at 05:50 PM (CDT)

Sunday, May 19, 2002 at 06:07 PM (CDT)

A sore throat tonight. Both the Dr. and Darren and I feel that will be better in a few days. Thank you all for checking up on us. I may be able to slow down on my updates once we are home. We will be in the Dr. office about twice a week for a few weeks.That will keep us busy.
Friends, Denise

Sunday, May 19, 2002 at 10:00 AM (CDT)

Happy Sunday. We are going home tommorrow. May need red blood cells (Dr. told me I can decide HAHA). We will definitely need platelets. Missa's mouth is so much better today.
We are visiting with a lot of my family today. Kris, Scott, Kathi are here now and Karl Landherr his wife and son will be here in a little while. Not to mention my immediate family.
Glory to God!!!
Denise & Darren

Saturday, May 18, 2002 at 09:17 PM (CDT)

Kathi made it!!!!!!!!!!!!!!!!!! we made it out to dinner together. My mm and dad watched the kids so we could go (thanks guys). We are so happy that we have supportive people in our lives. It has made the last 6 months easier to know that the kids were taken care of. We have called on them many a weekend and that is not to mention that we took over Grandmas retirement. But these people continue to step up to the bat. Ok so Missa looked great when we got back from dinner SO far so good tonight... We even got to see Paster Monte's wife as she was up he to see another child from the church. Will update you later.
Denise

Saturday, May 18, 2002 at 09:03 AM (CDT)

Morning. I hear my Aunt has gotten on the train. We'll see.
Missa conmtiunes to do good. Everyone says how good she has done. We have not had a fever so it still looks good for Monday. I/We can not wait to be home. The roughest part of her day seems to be waking up. Her lips are raw and they get a lot of build up on them. Daddy is very good at getting it off. Other then that she seems to do good. We need some Pee pee meds today. Her whites are at 4.5 this AM. Platletts have alrady run.
Friends, Denise, Darren& Missa

Friday, May 17, 2002 at 04:56 PM (CDT)

Missa is playing with MA ( Denise's mom). She is also drinking. They are not sure when she will start to eat again. She has started talking again.
What a long 3 weeks. We are slowly getting more time in between Missa's needs. She is throwing up less and less and the temp has been down. So they will take her off the antibioctics tommorrow and watch her Sunday to see how she is. If she is good we should be able to leave.
All for now, Denise

Friday, May 17, 2002 at 12:27 PM (CDT)

Good afternoon. Missa's counts are doing fine. 1.5 this AM. They even think we may be able to leave without being on our white cell medecine (AKA "pokey"). Her liver is doing GREAT!!!! Levels were almost normal this morning.
She is awake more & more!!!! She is smiling and laughing to.
Looks like we need to not have the birthday party on June 2. The Dr. wants us to be "protective" of her for a while. No malls or restaurants. We are looking at July 6 as a new date. Hope you all will be available.
Love and Friendship, Denise
Ps Still looks like Monday is THE day.

Thursday, May 16, 2002 at 05:32 PM (CDT)

Missa is doing ok. Has had a fever all day but no one is real worried becuse everything (counts) is going up. She has needed more anti nausea today. She is sleeping comfortably now so all is well for now. Tori and Zach are soooo very excited about seeing their cousins and Mam Mar. Will update tommorrow.
Denise

Thursday, May 16, 2002 at 07:09 AM (CDT)

It is funny how sometimes when we start to doubt God he comes right back at us as if to say "see I am here and in charge". My favorite poem is Footprints in the sand so I should have remembered. Well this AM we have .5 whites up from .1 yesterday (yes we fell back to .1 yesterday). This is the level that they tell us will mean her whites should start going up faster. now for the good news..... Missa billi DROPPED to 1.1 from 2.8 yesterday. So I think (as I have not seen the Dr.) we can start to be more optomistic about the liver. A few levels are off but nothing that we can not add to her.
Hope all is well with you all. Please keep signing in the guest book. Its is so nice to see who has been checking ( although we knnow from the numbers lots of you are).
Friends, Denise

Wednesday, May 15, 2002 at 09:31 PM (CDT)

Tonight was not to bad. Missa looks a little better. Even the staff sees it. Our family is very excited as my Aunt (MAM MAR) and Kristen and Scott are comeing to see us this weekend. We need this so much. Just some fresh faces will be nice. I have not seen Scott in like 9 years. Will update in morning.
Denise

Wednesday, May 15, 2002 at 02:15 PM (CDT)

Missa is nauses again. Poor kid. But she is handleing it well. She slept alot today. My mom, Darrens mom and the kids are all do up later sure hope she feels better. Thats really about it for now. I will try to write later.
Denise

Wednesday, May 15, 2002 at 08:29 AM (CDT)

Update time. Ok lets start with the liver as I know you are all wondering after last night posting. The billi is at 2.8 today. This is higher then yesterday BUT it did not double. The Dr. was pleased. He just finished her exam and says that the liver is 1/2 the size of yesterday!!!!!!!! He was thrilled. His eyes actually got BIG. He says he is not sure what did it.... I do PRAYER & GOD. We will most likely not start back on TPN when we leave as this may have been the problem. Will update later.
Denise

Tuesday, May 14, 2002 at 01:58 PM (CDT)

Just got back from talking with the Dr. We have discontinued any meds we could that affect her liver. Heres the deal.... With d/cing the meds we should no in 1-2 days if the liver just could not handle all the meds or if the High dose chemo damaged it. If its the chemo we are in a whole new ballgame. It would be very dangerous and he will not even tell me now what it may mean for her future... I think we all know what that means. I even asked if it would mean a transplant and he avoided talking about that all together. he is scared and so are we. I know God is mighty and I am begining to find it harder to just trust him. I know that does not sound like I want it to. I guess I am scared and being VERY honest. If the liver levels stay the same or go down tomorrow we will know it is some thing this Dr. can handle. He has already call a liver specialist. Thank you all for the prayers and PLEASE DO NOT STOP!
Love and frienship, Denise

Tuesday, May 14, 2002 at 04:18 AM (CDT)

Good morning and yes I know what time it is.
Not much slepp last night. We are turning the conor. Missa is awake more but in more pain. The resident on call does not want to up her dose so he is just giveing her some "boluses". Her temp has been good and she only trough up one time. I told our nurse we were doing better and that I thought we would have mmore whites. Sure enough we do .2. The creatin went down again and thats good news to. platletts are atill at 50 this AM. Thats great. The Biliruben contiunes to double. We will have to get a plain together to stop that. She laays here wimppering and I feel so bad for her. She has been so strong. Only a few more days and she should start to feel better. I just do not have the heart to tell her it could be that long. I will make sure her pain meds are moved up ASAP. I will update aagin later.
Denise

Monday, May 13, 2002 at 07:10 PM (CDT)

Hi again!! Just us again. Missa had a o evening. My parents stoped up after they got back into town. My mom asked Missa if she wanted to see a "poppa dance" (my dad does a silly little dance) and she said yes. She smiled. Then when my dad leaned over to play with her she kicked him. Playfully but it was a kick. We were all happy to see her happy. Can not wait till morning to see how the counts look. Will write again in the morning.
Denise

Monday, May 13, 2002 at 02:25 PM (CDT)

God is answering your prayers!!! As I write this the gal from sono is with us and she can not find any spots on Missa's liver or spleen!!!!! You can imagine how we feel. Still raining in Syracuse but SUNNY in 7602 (our room #)!!!
Love and fiendship, Denise, Darren & Missa

Monday, May 13, 2002 at 12:13 PM (CDT)

Ok finally got a minute to write. Missa's liver appears to be the next victim of chemo. it is getting to big and her Bilirubim is high ( all you moms rember that one right). We will be doing several blood test today to help us monitor this. We also have a sono in the works. She is now throwing up blood, they were trying to wait on giveing us platlets but when this started this AM they decided not to wait so they are running now. The other half of her blood will run tomorrow.
The Dr. says we should only have another couple of days of this bad stuff and then we should start to see improvement. Can not wait! They say once these "stem cell" kids hit .5 their counts start to "rocket" back up.
Will up date again later!!
Denise

Monday, May 13, 2002 at 08:30 AM (CDT)

Ok first the bad news. Missa "looks" worse. Mouth is VERY sore and bloody. She also has a sore behind her right ear. This is our first break down this stay and probably our last..... GOOD NEWS We Have MONOS!!!!!!!!!!!!! For those of you that do not know what a mono is it is the first step to whites. Normal monos are 0-10 and we have 20!! So we should have Neuts in the morning (they are the second step to whites!!).
Platlets are low again. The one chemo we used is a platlet "muncher" and also fevers eat them. Since the nasty med we use gives us a temp.... You can figure it out from there.
Sorry the pictures are not up yet but we will get them up ASAP!!
I will update later. Need to go talk to Dr. and see what the plan is for the day.
Denise

Sunday, May 12, 2002 at 04:39 PM (CDT)

Almost done with the nasty med. Fever did not get to bad today (stayed 103 plus). Missa is doing ok. She is sleeping almost nonstop. She woke enough to be changed and have 2 stories read to her.
Darren ordered me lunch today (luna pizza YUMMY!!). He promised to make chicken and mushrooms for me when we get home (yes mom you can come). Can not wait to get home and see the other 2 kids. Zach still had the sniffles so he was not aloud up.
We love haveing the web site and only wish we had started it sooner!!
Denise & Darren
PS Just thought I would let you all know that when we lay Missa down to sleep she folds her hands as if she is praying... Think she knows???? I know he knows!!!!

Sunday, May 12, 2002 at 08:00 AM (CDT)

Happy Mothers Day!! I did get my mothers day wish. We still have .1 this AM. They are still working on what is called "diff's". That will truely tell us if she is moveing up. I will let you know later.
Please continue to pray. She is still sick to her stomach and the mouth sores are much worse. We will go up on her pain meds today and stop the mouth wash as that hurts to much to do.
I do hope that all the Moms have a wonderful day with their kids and if that is not possible then just remember that they are a gift to be treasured.
We are still working on the twins birthday party. We would like to have it on their birthday (June 2) but it will depend on Missa and how she is feeling. We may need some time at home to finish getting better.
Thanks again for checking on us.
Denise
Ps I have included our hospital info in case any one wanted it.

Saturday, May 11, 2002 at 05:19 PM (CDT)

Evening. Well the "nasty" med is done. Boy was that a "ride" today. After the blood (last update) we started the "nasty" one. Missa's temp hit 104.4 . To warm for me even on a good day. We had to give her a med because she ended up with the shakes again. The med worked and the temp is on the way back down. Praise God! This kid tolerates all this by His Glory and Grace. Most meds we have used today have worked. Thank you all so much for writing in the guest book. All of us so enjoy hearing from you. I check every so often just to see who has been checking on us. Our nurses are so happy that we have all of you checking up on us. They are amazed by the 700 plus hits we have had since Wednesday!! Thanks again. Will update in morning unless some thing major happens (and I hope it doesn't).
Denise

Saturday, May 11, 2002 at 12:55 PM (CDT)

Well Missa is still sick to her stomach but we are going to give her a dose of another med to see if it helps. Being sick did not stop her from playing with daddy. She played play-doh again and did a new puzzle (sent up by a girls scout troop).
She is getting blood now. During this her temp, blood pressure & heart rate have gone up. They are monitoring her carefully. May be a reaction to the blood or could be nothing. Out tech just checked and her temp is back down. God is working!!!
Friends, Denise, Darren, Missa, Tori & Zach
Again Happy Mothers day to you all!!!

Saturday, May 11, 2002 at 09:09 AM (CDT)

Another rough night. Diahrea all night. Still sick also. Counts are starting to come together. Her creatin (kidney function) is at .6 which is low. Low is good!!!! I know that sounds wierd but trust me after 6 months and 3 days I know what is good low and what is bad low.
Our nurse just stopped in. They have ordered Another med for the diahrea. I think this one is a good idea. Poor kid. We will also run a split of blood today and tommorrow.
Once again the white blood count says .1 but who knows. When I see .2 we will know we are headed in the right direction.
Everyone is still happy and mostly healthy. Zach was sneezing this AM so he will not be up today.
Please countinue to pray for us we do so need it.
Friends, Denise and Darren

Friday, May 10, 2002 at 06:56 PM (CDT)

Evening. STILL sick to our stomach. One would hope this would stop soon. The Dr. thought we had the drugs for nausea right only to walk in and see her throw up. We have all ready talked to the resident for the night and let them know that we may need another change!! I am staying tonight so that Darren can visit with Uncle Adam. Will update in the morning.
Love & friendship, Denise

Friday, May 10, 2002 at 01:56 PM (CDT)

Missa's out put was not matching up (she is reatining water). So we just gave her a med to help with that. We should start running any time now.
I can not get over how fast things change. I guess I knew it would be this way but now it is here and it seems odd.
The "nasty" fungal med is now running. we hope this will help with the fever but it also will deplete her potasium. What one drug does another undoes.....
Uncle Adam is due home soon so we hope to get some pictures up on this site. Actually I am taking my mom to pick up 3 rolls of Missa pictures in a while (before we pick her car up from the shop). Who knows maybe there will be some good ones in there.
Zach is trilled to be with "ramma" (Darren's mom). He gave ramma her Mothers day gift this morning. He told her what it was before she could open it!!! Silly boy. All he wanted when Darren was talking to mom was to be tickled on the floor. Tori is also doing well. Her poster was chosen as a winner from her school. The school promotes good character traits in the kids. So they each had to make a poster. Her class has also been wonderful. Each kid has made Missa several cards!! We love this school.
Thanks again for checking on us!!
Denise, Darren, Missa, Tori & Zach

Friday, May 10, 2002 at 10:50 AM (CDT)

What a change a minute can make. We have changed 3 of MIssa's meds just this AM. She is still sick to her stomach but the new anti-nausea med just finished running.
Infectious disease people are now working with us and have suggested some med changes also. All this with the kidney in mind.
I forgot to mention this AM that our whites are less then .1 this AM. I do not know if the one yesterday was wrong or if someone in the lab is not doing their job.
Platelets are dripping now. Temp is still 102 plus so the platlets will be eatin up. But we knew this would happen. We will be getting red blood tomorrow and Sunday (they split the bag).
Thanks for checking on us, Denise & Darren & Missa

Friday, May 10, 2002 at 08:13 AM (CDT)

Good morning. Missa had a rough night. She was sick to her stomach every time she woke last night. We still have a temp so we will probebly switch back to the nasty med today. Becuse of the fungal infection we must be VERY careful.
I hope she does as well with the meds as she did last time. I also hope it helps rid us of the temp.
He kidneys seem alittle better this AM. Her creatin level is lower today. The old med is very rough on the kidney so we will watch it even closer if that is possible.
They just took her temp and it is 102.4. Highest yet!!! YUCK....
We love seeing that so many of you have checked out this site. We read the messages to her so keep them comeing. She even lol at some of them.
Thanks again for all the support. We need it. You should also know that we love you all very much.
Friends, Denise
PS Happy Mothers day to all our Mom friends. Enjoy your kids they are a gift from God.

Thursday, May 09, 2002 at 10:37 AM (CDT)

Hello again. We are done with Missa's AM care. Her weight was ok & bath is done. Made it back to the room just in time. She got sich to her stomach. Poor thing. I do thinkg that it helps though. Seems to relieve some congestion.

She is now playing with daddy and play-doh. Even though she has the shakes from the temp. We are pleased with today so far.

Thanks again for keeping us in your thoughts and prayers.
Denise, Darren & Missa

Thursday, May 09, 2002 at 07:47 AM (CDT)

Morning!! No Good Morning. We had a fever last night so we are back on antibiotics. They have to use a new one because of the kidney damage. Darren and I feel the fever is probably just the fungal infection flaring up. Have to wait and see what happens. Fever was 101.4 at last check.

Good news this AM. I had told Da