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Hi Pat, I wanted to stop by and let you know that i still think of Justin all the time. Hoping all is well with you and the family and thinking of you guys. I couldnt find a way all of these years to get in touch with you, my mom still had justins page saved to favorites. Thinking of you guys.
Rebecca Rekczis (Decker) <RRekczis@yahoo.com>
Cayuta, ny USA - Thursday, December 13, 2012 6:52 PM CST

ZACK you are the bravest kid on Earth and you rock.
Drew Salmen <beckie.l.salmen@healthpartners.com>
Stillwater, minnesota usa - Wednesday, May 6, 2009 9:06 PM CDT

Remembering Justin and wishing you a season full of love and happy memories.

Hugs,
Heather, mom to Brianna www.caringbridge.com/ny/mylittlesunshine - Daughter to Pete, www.caringbridge.org/visit/petek
Syracuse, NY - Sunday, December 23, 2007 9:31 PM CST

Just stopping by to say we were thinking of you guys on this day. Many Hugs!!!
Michele and Clarissa Hyde <MHyde67@twcny.rr.com>
Bridgeport, New York - Tuesday, July 10, 2007 11:20 PM CDT

Hi Pat,
Justin is still Very much in our hearts as we are still going through school, another year, dealing with the fact that he is not there. Im sure Senior Year will be the hardest on those of us who were close to him, but for our Junior year, we will remember him. We talk about him all of the time, and about all the fun time we had with Justin, back in grade school. I just wanted to let you know that your Son has changed many peoples lives, even years after he has passed on. I miss him very much, and hope that you are doing well!
Rebecca Decker <Sportsangel4u12@aol.com>
Van etten, Ny USA - Monday, June 26, 2006 1:11 PM CDT

You HAVE such an incredible boy. I hope the
pain has become manageable for your sake and
for mine for I can't imagine having to spend
more time on this earth with the pain I carry
all day & night.

Deborah
Forever Vanessa's Mommy
Deborah Martinez www.caringbridge.org/ca/vanessamartinez <debra126@comcast.net>
Madera, CA United States - Thursday, December 22, 2005 10:51 AM CST

I haven't stopped by in a while. I've been seeing your posts on the rhabdo list. Thinking about our boys today, and wondering what they are up to?:) Can't wait for our grand reunion with them!

Love and prayers,
Rhonda Hunley, Forever Connor's Mommy <rshunley@comcast.net>
Hendersonville, TN God Bless America! - Tuesday, September 27, 2005 10:42 AM CDT

Just stopping by to say Hi. Thinking of you and Justin and I'm so sorry for your loss as we have just gone through this, too.

Jason's mom www.caringbridge.org/tn/jasona/ - 12/16/85-8/25/05 -- rhabdomyosarcoma in left foot and bone marrow
Pam Archer <davidandpam.archer@comcast.net>
Hendersonville, TN USA - Monday, September 5, 2005 3:34 AM CDT

Sending a Tinkerbell kiss to you all,

Love Viks

viks <viks@postpals.co.uk>
- Friday, August 19, 2005 5:14 PM CDT

Pat,

Just wanted to stop by Justin's page and see his sweet smile. Hope you are doing O.K.

Love and hugs,
Rhonda , Forever Connor's Mommy

<rshunley@comcast.net>
Hendersonville, TN God Bless America and our Troops and Leaders! - Wednesday, May 11, 2005 3:33 PM CDT

Dear Pat, Just wanted to stop by and let you know I still think of you and pray for peace and comfort. Jared is well and we are so thankful. So many people touched our hearts that we will never forget. You were one of them. Thanks! love to you and the family, Geralyn Saya
geralyn Saya <www.gerandjar@yahoo.com>
syracuse, ny - Monday, February 28, 2005 8:46 PM CST

hey Pat.

Just thinking of you and justin alot lately and came to check in and see if you had posted anymore. Ill be thinking of you.
Rebecca Decker <Sportsangel4u12@aol.com>
Van Etten, Ny USA - Saturday, November 27, 2004 2:43 PM CST

Pat,

I just sat here and re-read alot of your journal history. Oh, how so many things are so similar to Connor. I pray for you often. Your heartfelt entries from 2002 just break my heart. May you be blessed with wonderful dreams of Justin as I am typing this.....

Love, hugs and prayers,
Rhonda Hunley, Connor's Mom

**Connor's page**
<rshunley@comcast.net>
Hendersonville, TN God Bless America and our Troops and Leaders! - Thursday, September 23, 2004 3:33 AM CDT

Pat,

I stopped by to check on you and to look at Justin's pictures. I continue to pray for you....

Love, hugs and prayers,
Rhonda Hunley, Connor's Mom

**Connor's page**
<rshunley@comcast.net>
Hendersonville, TN God Bless America and our Troops and Leaders! - Monday, August 9, 2004 10:10 AM CDT

Thinking of you.....
Hugs,
Heather and Brianna www.caringbridge.com/ny/mylittlesunshine
syracuse, NY USA - Friday, July 23, 2004 10:03 AM CDT

Hi Pat, I was just checking in to see how you are doing. Also to tell you that we have a new little friend that vists every day at evening time- and I bet you can guess what it is.... Yes a DRAGON FLY! It is a realy pretty one.
Many Hugs....

Michele and Clarissa Hyde <poohmh1@twcny.rr.com>
Bridgeport, NY - Sunday, July 4, 2004 9:23 PM CDT

Pat--I miss "seeing" and talking with you. The connection we all had was very special to me. You are with me always, sister, and your online friendship, with all the ups and downs, was and always will hold a special place in my heart.

Hugs and wishes.....
Cheryl <c1216@aol.com>
Redwood City, ca - Saturday, June 19, 2004 6:08 PM CDT

Hi Pat. I've been thinking of you and keeping you and your family in prayer. I had lost track of this site and your e-mail address when we changed computers and e-mail providers. But it was fairly easy to find again. I hope you and Roland and Justin and Jill are well.

Margaret <mkaminsk@rochester.rr.com>
Rochester, NY USA - Tuesday, June 15, 2004 5:54 PM CDT

Hello Pat,
I just wanted to let you know that i ment justin's Famous "Aunt Peggy" we talked for a while about justin, dang do i miss him... i was being fallowed by a dragonfly today and thought about him.. well have a good day!! bye!!
Rebecca Decker <Sportsagel4u12@aol.com>
Van Etten, Ny USA - Saturday, May 22, 2004 3:18 PM CDT

I only visited a few times in 2001, and thought I'd check in today. Sorry to hear about Justin. You are so blessed to have had such a brave son. God be with you always.
kathy ritter
tx - Saturday, May 15, 2004 12:06 AM CDT

Dear Pat and family, wanted you to know we still think of you and pray for your healing. We have checkups with 5C every three months but have not had contact with 7H. Don't want to be reminded of any of it. Our heart aches for all those we met and lost the fight. We'll never forget you, Our love to you The Saya's
geralyn Saya <gerandjar@yahoo.com www.caringbridge.com/ny/jaredsaya>
syracuse, ny - Tuesday, May 4, 2004 8:38 PM CDT

Hi- I am just checking in to see how everyone is doing. Also to let you know I got 2 new Dragon Fly wind chims today. I can't wait to hang them outside to hear them. Every time I see a special one I have to get it,as I think of our special friend Justin.
Many HUgs comeing your way.
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, NY - Saturday, April 24, 2004 9:00 PM CDT

I plan to dedicate my bicycle ride as a member of the Trek 100 Century Club for 100 miles on June 5th, 2004 in Milwaukee, Wisconsin to the memory of Justin, and two others. My cousin, a child with brain cancer, and my wife's cousin, an adult who survived childhood leukemia.
David C. Schirmer DDS <dcschirmer@aol.com>
Corning, NY USA - Wednesday, April 7, 2004 9:28 AM CDT

Hi!

I pray for your family.please try to be strong.I send you prayers.
laura
www.caringbridge.org/europe/laura
laura <laurasarkadi@hotmail.com>
budapest, Hungary - Monday, March 22, 2004 8:41 AM CST

Pat,
Thinking of you AND thinking of Justin and what he meant and still means to so many people! I hope you are doing O.K. I still pray for you......

Love, hugs and prayers,
Rhonda Hunley, Connor's Mom

**Connor's page**
<rshunley@comcast.net>
Hendersonville, TN God Bless America! - Tuesday, March 16, 2004 2:54 PM CST

I miss justin more and more everyday..... Im glad to keep reading this page and see how many people still care after over a year of him passing away.. we all miss justin in our school and talk about different things 4m the forth grade still.. i have a picture of me and him on my ceiling so i go to sleep every night with him looking down on me... man do i miss him
Rebecca Decker <Sportsangel4u12@aol.com>
Van Etten, Ny USA - Friday, February 13, 2004 8:31 PM CST

Please Justin's Family Be Happy Justin Would Want You To Be.
Amber Duncan <Magicanber@aol.com>
St. Paul, MN USA - Wednesday, February 4, 2004 1:07 PM CST

Blessings during what I'm quite sure is a very difficult time of year. I wanted you to know that you're not forgotten. I'm continuing to think of you and lift you up in prayer.
Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org>
Lexington, NC - Tuesday, December 30, 2003 12:11 AM CST

Justin really did touch so many lives, and still does from Heaven. Thinking of you....

Love, hugs and prayers,
Rhonda, Eddie and Connor
**Connor's page**
<rshunley@comcast.net>
Hendersonville, TN God bless America! - Wednesday, December 24, 2003 10:47 AM CST

Pat,

Thinking about you, I know this is a most difficult month with Justin's birthday AND Christmas. Just know that I am praying for peace for you until you get to meet back up with Justin.

Love, hugs and prayers,
Rhonda Hunley <rshunley@comcast.net>
Hendersonville, TN God Bless America - Friday, December 19, 2003 3:58 PM CST

Sorry I missed the date of Justin's b-day. Please know that you are on my heart and I continue to keep you in my thoughts and prayers. Blessings and love to you in Christ.
Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org>
Lexington, NC - Sunday, December 14, 2003 3:14 PM CST

We were just thinking about you guys and wanted to say hi.

We also our sending our special friend a Happy Birthday!!
Many Hugs....
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, NY - Wednesday, December 10, 2003 7:35 PM CST

The Invisible Letter

Sally jumped up as soon as she saw the surgeon come out of the operating room. She said: "How is my little boy? Is he going to be all right? When can I see him?"

The surgeon said, "I'm sorry. We did all we could, but your boy didn't make it."

Sally said, "Why do little children get cancer? Doesn't God care anymore? Where were you, God, when my son needed you?"

The surgeon asked, "Would you like some time alone with your son? One of the nurses will be out in a few minutes, before he's transported to the University."

Sally asked the nurse to stay with her while she said goodbye to her son. She ran her fingers lovingly through his thick red curly hair.

"Would you like a lock of his hair?" the nurse asked.

Sally nodded yes. The nurse cut a lock of the boy's hair, put it in a plastic bag and handed it to Sally.

The mother said, "It was Jimmy's idea to donate his body to the University for Study. He said it might help somebody else. I said no at first, but Jimmy said, 'Mom, I won't be using it after I die. Maybe it will help some
other little boy spend one more day with his Mom.'" She went on, "My Jimmy had a heart of gold. Always thinking of someone else. Always wanting to help others if he could."

Sally walked out of Children's Mercy Hospital for the last time, after spending most of the last six months there. She put the bag with Jimmy's belongings on the seat beside her in the car. The drive home was difficult. It was even harder to enter the empty house.

She carried Jimmy's belongings, and the plastic bag with the lock of his hair to her son's room. She started placing the model cars and other personal things, back in his room exactly where he had always kept them. She laid down across his bed and, hugging his pillow, cried herself to sleep.

It was around midnight when Sally awoke. Lying beside her on the bed was a folded letter.. The letter said:

Dear Mom,

I know you're going to miss me; but don't think that I will ever forget you, or stop loving you, just 'cause I'm not around to say I LOVE YOU. I will always love you, Mom, even more with each day. Someday we will see each other again. Until then, if you want to adopt a little boy so you won't be so lonely, that's okay with me. He can have my room, and old stuff to play with. But, if you decide to get a girl instead, she probably wouldn't like the same things us boys do. You'll have to buy her dolls and stuff girls like, y'know.

Don't be sad thinking about me. This really is a neat place. Grandma and Grandpa met me as soon as I got here and showed me around some, but it will take a long time to see everything. The angels are so cool. I love to watch
them fly. And, you know what? Jesus doesn't look like any of his pictures.
Yet, when I saw Him, I knew it was Him.

Jesus himself took me to see GOD! And guess what, Mom? I got to sit on God's knee and talk to Him, like I was somebody important. That's when I told Him that I wanted to write you a letter, to tell you goodbye and everything. But I already knew that wasn't allowed. Well, y'know what Mom? God handed me some paper and His own personal pen to write you this letter.

I think Gabriel is the name of the angel who is going to drop this letter off to you. God said for me to give you the answer to one of the questionsyou asked Him - 'Where was He when I needed him?'

God said, He was in the same place with me, as when His son Jesus was on the cross. He was right there, as He always is with all His children.

Oh, by the way, Mom, no one else can see what I've written except you. To everyone else this is just a blank piece of paper. Isn't that cool? I have to give God His pen back now. He needs it to write some more names in the Book of Life.

Tonight I get to sit at the table with Jesus for supper. I'm sure the food will be great. Oh, I almost forgot to tell you, I don't hurt anymore. The cancer is all gone. I'm glad because I couldn't stand that pain anymore...and God couldn't stand to see me hurt so much, either.

That's when He sent The Angel of Mercy to come get me. The Angel said I was Special Delivery! How about that?

Signed with Love from:

God, Jesus & Me.

Heather Kline www.caringbridge.com/ny/mylittlesunshine
Syracuse, NY USA - Monday, December 1, 2003 10:02 AM CST

Pat, I was walking through the halls ways of the new elemantary school one night aftera volleyball game, i happpend to run in our 4th grade teacher, she took me into her room to look at some past pictures, there were quit a few of me and justin it really about made me cry.. I miss Him alot jus wanted to tell u that!!
Rebecca Decker <Sportsangel4u12@aol.com>
Van Etten, NY U.S.A. - Friday, November 21, 2003 8:42 PM CST

Pat, Please know we think of you often. Hope you areall doing well.
Denise Roberts (caringbridge.org/ny/missaroberts) <dndtwins1@usadatanet.net>
Bridgeport, NY USA - Thursday, October 30, 2003 9:42 AM CST

Pat,

Thinking of you today, hope you are making it O.K. Take gentle care...

Love, hugs, and prayers,
Rhonda Hunley, Connor's Mommy
Connor's web page

**Hugs and Hope** Rhabdomyosarcoma relapse

<rshunley@comcast.net>
Hendersonville, TN **God Bless the USA and our Leaders and Troops!** - Sunday, September 28, 2003 10:20 PM CDT

Just wanted to send you all some cyber hugs!
Heather and Brianna Kline
www.caringbridge.com/ny/mylittlesunshine
- Sunday, September 28, 2003 9:10 AM CDT

Dear Pat,

I just got finished reading through your journal of experiences with Justin. What incredible warriors you both are. I can't tell you how much I have been moved by your extreme caring for your Son.

I wish that I could have been there for you and your family and we could have been there as a group (BCCNS LSN) while you were going through this horrific period.

Your Strength and perspective are inspirational to many people. Your message and Justin's struggle will carry forward in numerous ways. We (You and I) will see to it!

Hugs and Prayers to your family.

Warmest regards,

Bud Caruso
Director
BCCNS Life Support Network
www.bccns.org
gorlinadvocate@comcast.net

Bud Caruso <gorlinadvocate@comcast.net>
Steger, Il USA - Wednesday, September 17, 2003 0:18 AM CDT

the first day of school is always hard... i miss 4th grade w/ justin.. we had a blast.... he named our exsperimental crayfish *burtha* i think that was its name... man all the good memories.... he will live 4 ever!!
Rebecca Decker <Sportsangel4u12@aol.com>
Van etten, ny usa - Monday, September 8, 2003 6:44 PM CDT

Dear Pat and family, Wanted to stop in and say hello and let you know I'm always thinking of you. Hoping you have found comfort in this past year. It's been a long year for all of us. Jared just walked in and so I told him who I'm writing to. He knows Justin's in Heaven with his other friends. He wanted me to tell you he sees all of them and they are playing. He wants to know if you can see them too. ( I almost have to believe him.) These kids stick together. Take care, love Geralyn
geralyn saya <www.caringbridge.com.ny/jaredsaya>
syracuse, ny us - Saturday, August 23, 2003 8:07 PM CDT

just stopped by to visit Justin's site and offer a cyber hug. Such a sweet boy!
deb <sheasnip@aol.com>
hugs from, Ohio - Friday, August 22, 2003 10:05 PM CDT

*Pat*

I think of you often. You are always in my prayers.

Sending lots of love to you!

Shannon -- http://www.caringbridge.org/ma/samanthatherese/ <humphity319@aol.com>
Haverhill, MA <3 Samantha's Mommy <3 - Wednesday, July 23, 2003 4:32 PM CDT

Thinking of you and sending you cyber hugs. We too, saw dragon flies this weekend when we were camping in Watkins Glen. They always make me think of Justin.
Hugs,
Heather and Brianna Kline
www.caringbridge.com/ny/mylittlesunshine
Syracuse, NY USA - Monday, July 14, 2003 7:15 PM CDT

Pat, We just got back from camping at Shelkirk and quess what was visting us at our camp site? Yes, a Dragon Fly.
First thing out of Clarissa's mouth was justin came to vist us. I just wanted to let you know. Many Hugs
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, NY - Sunday, July 13, 2003 11:50 AM CDT

Pat, Thinking of you often. Watching for dragon flies always.
Denise Roberts (caringbridge.org/ny/missaroberts) <dndtwins1@usadatanet.net>
Bridgeport, NY USA - Saturday, July 12, 2003 9:48 AM CDT

^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^

Thinking of you today and every day. I know that yesterday was a tough day for you, although I know that no day is an "easy" day. Praying that God grants you peace.....

Love, hugs, and prayers,
Rhonda Hunley, Connor's Mommy
Connor's web page

<rshunley@comcast.net>
Hendersonville, TN **God Bless the USA!** - Friday, July 11, 2003 8:47 AM CDT

Just wanted to let you know we are thinking of our Special Friend Justin on this day. Not a day goes by that I don't tink of him, specaily the day that he talked Clarissa into going to Camp Good Days. She looks forward to it every year just as Justin did. When you get a chance please email me your home address because I found something little for you. Many Hugs.
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, NY - Thursday, July 10, 2003 5:33 PM CDT

I just wanted to apologize for my double entries. I've been having problems signing guest books today and I wasn't sure if my first entry had gone through, so I tried entering another.

Oops!

Sorry again.

Shannon -- http://www.caringbridge.org/ma/samanthatherese/ <humphity319@aol.com>
Haverhill, MA USA - Thursday, July 10, 2003 1:24 PM CDT

*Justin*

Not a day goes by when you're I don't think of you in some way. You were (excuse me, ARE) a strong boy who taught a lof of lessons to a lot of people. You inspired many people as well. I remember the day you earned those angel wings of yours and the entry your Mom posted on your site. As soon as I read that you had passed on, my heart was filled with bitter sweet emotions. I was so very happy for you; you are finally cancer free. No more needles, no more drugs, no more worrying. Your spirit was free to soar pain free. But I also felt bad for what your family was going through. They love and miss you and they never wanted you to leave them. How do you deal with that? Not only is your family courageous, they're the strongest people I know. Of course they've never forgotten you and they never will. But they knew they didn't have a choice but to continue to live their lives and by doing so they would be reunited with you again someday.

Justin, I can't believe a year has passed since you've left this world. I'm so very happy for you; you're finally cancer free! But you will forever be loved and missed by the people you left behind.

And you will never, EVER be forgotten.

Shannon -- http://www.caringbridge.org/ma/samanthatherese/ <humphity319@aol.com>
Haverhill, MA USA - Thursday, July 10, 2003 8:59 AM CDT

*Justin*

Not a day goes by that I don't think of you in some way. I can't believe it's been a year since you earned your wings. The day you left is still so clear. I remember reading the entry your Mom posted that day and I couldn't believe it was true. My feelings were bittersweet that day. I was happy for you because I knew you were finally living without pain. Without needles, without drugs, without the worry of what would happen next. But I also felt bad for the family you left and how much they would miss you. Despite finally being cancer free, they would forever miss you and wish you were still with them.

So on your one year anniversary away from us, I just want to express how deeply you are missed and loved. Please keep a close eye on your family and friends. Please, also, keep an eye on the rest of the Caring Bridge kids who are battling cancer at this time. And, God forbid, should they too earn their wings, would you please welcome them to your world?

You'll forever be loved and missed, Justin, but NEVER forgotten.

Shannon -- http://www.caringbridge.org/ma/samanthatherese/ <humphity319@aol.com>
Haverhill, MA USA - Thursday, July 10, 2003 7:45 AM CDT

Hi- Just checking in on you Guys letting you know I am thinking of you. I also wanted to let you know I got a Dragon Fly bird house and put it in my Rose garden to remind me of our buddy Justin. Take care
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport , NY - Sunday, June 29, 2003 9:43 AM CDT

hey pat, all my thoughts r still w/ u!! i still think bout justin everyday... miss him tons... now my room is aroudn the dragonfly theme. and every time i c a dragonfly im am mesmerized... i hope you r doing good, and c many dragonflys....
Rebecca Decker <sportsangel4u12@aol.com>
Van etten, ny USA - Saturday, June 28, 2003 7:17 PM CDT

Pat & family, Still think of you guys all the time. Miss those long talks in the hall. Hope all is going well for you all.
Denise Roberts (caringbridge.org/ny/missaroberts) <dndtwins1@usadatanet.net>
Bridgeport, NY USA - Monday, June 23, 2003 8:58 AM CDT

Pat, Thinking of you all often. Now that the weather has changed I am awaiting my first drangon fly "encouter" of the year. I saw so many last year and each one had a new sense of wonder for me. Thanks for sharing this love with me.
Denise Roberts (caringbridge.org/ny/missaroberts) <Dndtwins1@usadatanet.net>
Bridgeport , NY This blessed country the USA - Monday, May 19, 2003 6:53 AM CDT

Pat,

Just wanted you to know that I am thinking of you tonight, and the wonderful Mom that you were to Justin. Just remember that no matter what, you will forever and always be his Mommy. I'll just bet that he is sending you lots of Angel kisses and hugs down to you today, in honor of his most wonderful Mom! Take care, you continue to be in my prayers.

Love,
Rhonda Hunley, Connor's Mommy
Connor's web page

<rshunley@comcast.net>
Goodlettsville, TN **God Bless the USA and our Leaders and Troops!** - Sunday, May 11, 2003 10:50 PM CDT

Just wanted to send you a quick hello and a cyber hug to let you know we are thinking of you.
Hugs,
Heather and Brianna Kline
www.caringbridge.com/ny/mylittlesunshine
Syracuse, NY USA - Wednesday, April 30, 2003 11:35 AM CDT

I like that its nice of u you to do that
irene bell <blondiegirl6077@aol.com>
newfield, Ny United States - Friday, April 25, 2003 9:07 PM CDT

Hi...
Just recently found out that Justin had passed away and then found out about this website. Wish I had known sooner. I am so sorry. Justin was such a great kid... I hope you know how fond I was of him (I hope he knew). Your journal entries were very difficult to read, but its nice to be able to feel apart of his/your life. Thank you for sharing that. I hope that you and your family continue to stay strong and know that Justin will always be a part of you. I will always love and miss him.
With love always,
~ Samantha (former 7H Child Life Specialist)
Samantha Cattaneo <samantha.cattaneo@excellus.com>
Syracuse, NY - Monday, April 21, 2003 10:28 AM CDT

Hey Pat and the family...I knew Justin back in the 3rd and 4th grade...He was a very good hearted person, and he was my very special friend..I don't know if u know my family or not Like Alan White we use to live there, and i miss it so much there..We had to moved cuz my moms mom had a stroke and we had to go cause we didn't want to take the chance of her dieng on us..She has been some rough times but go through them...Like Justin and she lives life through the fullest and never stops giving up...She kind of resmembles my grandmother both good hearted persons and she is living on and on and she is doin very well...Well i just want to say that ur prayers are with me, and Justin is in a very special place where everybody loves him..Much love Zack White
Zack White <xxmemezackyxx@aol.com>
Kent, Wa United States - Thursday, April 3, 2003 5:39 PM CST

I came across your website in loving memory of Tyler and wanted to stop and tell you how very sorry I am for your loss. I wish so much that I had some magical words to help ease your pain, but I dont. Nobody does...but I will be keeping your family in my thoughts and prayers. I have a childrens memorial for children who have passed away from childhood disease and if you would like a star in memory of Tyler I would be honored. You can take a look at the website and let me know. Again...I am so very sorry for your loss....Praying that God's love will be a source of comfort and strength to you - now and in the days ahead�
God Bless
Laura
Heavenly Lights Childrens Memorial
http://www.heavenlylights.homestead.com
Laura/Heavenly Lights Childrens Memorial <heavenlylights@charter.net>
Mn - Sunday, March 23, 2003 1:24 AM CST

pat all my thoughts are w/ u... i miss justin very much... i am very sorry for your loss...... my heart is w/ u..
Rebecca Decker <Sportsangel4u12@aol.com>
Van Etten, ny usa - Friday, March 21, 2003 9:43 PM CST

Pat, Just stopping by to say Hi. Hoping you are doing well.
Denise Roberts (caringbridge.org/ny/missaroberts) <dndtwins1@usadatanet.net>
Bridgeport, NY USA - Tuesday, March 11, 2003 3:52 PM CST

You are in my thoughts and prayers. I just read your entire journal history again. What a fighter Justin was! We are in the midst of the rhabdo battle once again.....Connor relapsed on February 25. Take care, Pat.

Love, hugs, and prayers,
Rhonda Hunley <rshunley@comcast.net>
Goodlettsville, TN USA - Sunday, March 9, 2003 5:16 AM CST

Pat, Saw Jerilyn yesterday she spoke of you so fondly. You are such a help to many of us. Thanks for being there for us all. Sorry for your loss. Neat how things "just work" some times.
Denise Roberts (caringbridge.org/ny/missaroberts) <dndtwins1@usadatanet.net>
Bridgeport, NY USA - Friday, February 28, 2003 7:42 AM CST

So sorry for yet another loss to this horrible beast! Yet, Justin and his grandfather are having a grand old time in Heaven. And what a story about the microwave clock!!!
hugs,
Heather and Brianna
www.caringbridge.com/ny/mylittlesunshine
- Wednesday, February 26, 2003 11:59 AM CST

Thinking of you all and sending you hugs!
love,
Heather and Brianna Kline
www.caringbridge.com/ny/mylittlesunshine
syr, ny usa - Thursday, February 20, 2003 1:19 PM CST

Pat, Just a little note to say "HI" and that you and Justin are thought of often.
Alexis is doing well (so far).

Jerilyn and Alexis Miller <jmiller864@aol.com>
Binghamton, NY - Tueday, February 4, 2003 7:04 PM CST

I just wanted to let you know that I think of you often.
Vicki (Tyler McGraths mom) tj4ever@northnet.org
- Saturday, January 11, 2003 at 06:59 AM (CST)

Pat, I think Bout Justin Every Day and More So About The Field trip we went on in 4th grade to the erie canal!! im starting to think about him more then my aunt that just died. Justin was one of my best friends, Thank god, He Helped Me through so much!! I Just wanted to say most of my thoughts are with u and we r building Scrap books And my Scrap book has A special Page Just for Justin!! Thank u!!
Rebecca Decker <Sportsangel4u12@aol.com!!>
Van Etten, Ny United States - Wednesday, January 08, 2003 at 08:21 PM (CST)

Pat, Still tinking of you all often. Hoping all is well for you in this new year
Denise Roberts <dndtwins1@prodigy.net>
Bridgeport, NY USA - Friday, January 03, 2003 at 10:02 AM (CST)

***********************************
And I heard a loud voice from the throne saying, "Behold, the dwelling of God is with men. He will dwell with them, and they shall be His people, and God himself will be with them; He will wipe every tear from their eyes, death shall be no more, neither shall there be mourning nor crying nor pain anymore, for the former things have passed away."

Revelation 21:3-4
******************************************************
Hoping that 2003 can bring you Peace.................

Love and hugs,
Rhonda Hunley
Connor's page
<rshunley@comcast.net>
Goodlettsville, TN **GOD BLESS AMERICA!** - Wednesday, January 01, 2003 at 01:06 PM (CST)

*****Pat*****

I just wanted to tell you that I said a prayer for you today. I know this is an extremely difficult time of the year. Just know that Justin will never be forgotten, but always remembered for the brave young man that he was. I'm so sorry, Pat, I wish there was something I could think of to make it better. But there will come a day when you will see him again, what a day, glorious day, that will be. Take care, one day at a time.

Love and hugs,
Rhonda Hunley, Connor's Mommy Connor's page
<rshunley@comcast.net>
Goodlettsville, TN **God Bless the U.S.A.!** - Thursday, December 26, 2002 at 06:26 PM (CST)

Dear family,
I know that you don't know who I am, but my friend Megan had done a hero report on Justin. I was very touched by what I heard. I am very sorry to hear about your loss, and I really hope that you've gotten past the breaking point. I understand fully your hurt and your pain. I just wanted to tell you this, for I would be depressed if, when I have kids, my son or daughter was dx with any sort of problem also. I care very much about others, and when I heard about Justin, I was sad. Just recently, a friend of mine died of lung disease. I cried at his wake, as I would have at Justin's. Even though I didn't know Justin, I would still also be as hurt as you were. Thank you. You always have my love and care for Justin and yourself.
Emily
- Friday, December 20, 2002 at 03:47 PM (CST)

Pat--just know you are always in my thoughts. Justin will NEVER be forgotten...I remember different stories you used to tell about him...and I just smile. He is and always will be, my hero.

cheryl jagannathan <c1216@aol.com>
redwood city, ca - Thursday, December 19, 2002 at 07:35 PM (CST)

Hi Pat and family,
My heart breaks afresh thinking of you all missing your baby Justin (yes I know, he's not really a baby, but will always be your baby) and this first birthday and holiday season without him. You are always in my heart and prayers and I pray that God is with you and brings you many happy memories of Justin to comfort you.
Much love,
Heather and Brianna Kline
www.caringbridge.com/ny/mylittlesunshine <Queen1472@aol.com>
Syracuse, NY USA - Thursday, December 19, 2002 at 11:58 AM (CST)

Hi Pat, Just wanted you to know that I'm thinking about you and hoping that God will grant you peace during this holiday season. Justin will always be remembered Pat as a hero and warrior. He was the toughest little guy I knew.
Love and HUGS,

Cathy (mom to Sabrina 19, dx rhabdo 8/98, 9/00, 11/01 & 10/02
- Tuesday, December 17, 2002 at 07:41 AM (CST)

I am sorry that your son lost his battle with cancer. He WON the WAR! That means he is no more suffering from cancer when he went to Heaven. I know how you feel when he was first diagnosed with cancer. My second cousin (my mom's cousin's son) was diagnosed with retinoblastoma, an eye cancer somewhere in March 2002. Please say a prayer for him. I'll keep praying for Justin and your family. Justin, keep smiling!
Vaishnavi Bhatt <Vaishub99@netscape.net>
Scarsdale, NY U.S.A - Saturday, December 14, 2002 at 01:56 PM (CST)

I just thought I check and see how you and your family are doing. I love what you have done with his page. It looks Great. Justin is all always in out thoughts and prayers. We also wish him a very Happy Birthday.I bet he had a supper one in Heaven. Many Hugs.
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, NY - Wednesday, December 11, 2002 at 08:43 AM (CST)

I just stopped by to let you know that the Lord put you on my heart today. I am thinking of you and praying for you as you continue to battle through this difficult time. Blessings to you and I will be checking back to see how you are.
Khalita www.caringbridge.com/nc/khalita Duke Peds BMT aplastic anemia <khalita@hecaresonline.org>
Lexington, NC - Monday, December 09, 2002 at 09:17 PM (CST)

I think about Justin and your family every day. Justin was such a courageous little boy and made such a huge impact on my life in the short time that I knew him. I take great comfort in knowing that he isn't suffering anymore.
Debbie Jaynes <doobie42470@aol.com>
Horseheads, NY USA - Thursday, December 05, 2002 at 08:18 PM (CST)

Pat, Thanks for checking on us. I think of you so very often. I have seen so many dragon flies this year and ever time I think of you and your family.
Denise <dndtwins1@prodigy.net (caringbridge.org/ny/missaroberts>
Bridgeort , NY USA - Thursday, November 14, 2002 at 02:29 PM (CST)

THinking of you guys and sending cyber hugs your way. Justin was with me in Marine Corps- no doubt that he was there helping me out cause I couldnt have done it alone!!! Miss his smiling face and laughter and so glad to hear that he checks in on you from time to time- even if he must be disguised as a dragonfly.
much love,
Heather and Brianna kline
www.caringbridge.com/ny/mylittlesunshine
Syracuse, NY USA - Tuesday, November 05, 2002 at 12:52 PM (CST)

~~~~~PAT~~~~~

Thinking about you today and hoping this is a good day for you. I know that you dread each new day without Justin here, but there WILL come a day when you will be rejoined FOREVER! Keep that thought with you..........

Love and hugs,
Rhonda Hunley, Connor's Mommy~~caringBridge.org/tn/connorhunley <rshunley@comcast.net>
Goodlettsville, TN **GOD BLESS AMERICA!** - Wednesday, October 23, 2002 at 05:28 PM (CDT)

Hi Pat, as I sit here with eyes full of tears after reading your loving words for Justin, I am amazed once again by the strength of a grieving mother and am humbled as I read the words that flow from your heart. God Bless you and your family.
deb <shearsnip@aol.com>
cleveland, oh - Sunday, October 20, 2002 at 05:54 PM (CDT)

Hello- Just wanted to let you know we are thinking of you guys. Many Hugs coming your way.
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, NY - Thursday, October 10, 2002 at 08:09 PM (CDT)

Hi Pat,
I just read your email. I think of you so often and wonder how you and your family are doing. You certainly know how to put your feelings into words. That was a beautiful email. I too think about "putting the baby shoes on Marissa"--I was in the room with you at the time. I hope the happy memories of Justin continue to give you strength. That is amazing about the dragonfly. It's Justin checking in to see how you're doing.
Take care and write when you have a spare moment. Better yet if you are in the Syracuse area, please call, I would love to see you.
Sandy
Sandy Demaline (7H) <sandydemaline414@hotmail.com>
Syracuse, NY USA - Tuesday, October 08, 2002 at 07:20 PM (CDT)

Aunt Patty, Uncle Roland, and Josh and Jill,

My mom just sent me your website info. It's good to see that you're all doing well, despite Justins untimely departure. I think of and pray for you all often. Hope to see you next summer.
Elaine Siglin <Blundesblitz@yahoo.com>
Orem, UT USA - Saturday, October 05, 2002 at 06:30 PM (CDT)

Hi Pat, Roland, Josh and Jill. It seems like just yesterday that I said good by to Justin in the hospital. He was IS a special spirit who came here to teach each of us how to live, laugh and care for each other. Truly an angel who gave so much because that is all he wanted, to make others happy. Even when he was in so much pain, all he thought of was how others were suffering and how he could help them. Now is our time to prove our worthiness to be where he is and we will. He will never be far from our thoughts as we live for him each day, month, year....... Hour, by hour we will get through, as we continue to think of the good memories. Of course you who lived it everyday will have more to remember and overcome. Love to each of you,
Aunt Kathy
- Saturday, October 05, 2002 at 01:44 PM (CDT)

I happened upon this site by chance..or maybe by fate I'm not sure. I read the history about your amazing son and the amazing family he came from..and it inspired me. To see his strength and courage to the very end has given me strength for my own fight..and to see the strength of the family gives me courage...this is not an endless fight..the stories of dragonflies gives me hope..there are miracle..things will be ok..even if at the time we didn't know they would end up ok..they do..Thank your for the inspiration
me
- Thursday, October 03, 2002 at 01:13 AM (CDT)

Hi, Pat, roland, josh and jill

It has been a long time since I have last seen all of you. I remember asking you how Justin was doing until I heard about his tragic ending that meant I no longer had to ask. I even heard this would go on for five years and it did. I also realize that Ted must miss him a lot, too!
I hope to see you again someday.

Zeb!

Zebulin Lehman <zlehman@stny.rr.com>
Elmira, NY US - Wednesday, October 02, 2002 at 03:54 PM (CDT)

Pat and family,
I think of you all often and wanted to send you a hug! I saw a dragon fly the other day when I was training for the marathon. I was not having a good run, my knee was aching bad and I was thinking "why am I doing this to myself?" Then I saw the dragon fly- I am convinced it was Justin. He made me think about why I am doing this- and my knee didnt ache so bad anymore. He is always close to my heart and will be one of the children who get me to the finish line in Marine Corps.
lots of love,
Heather and Brianna Kline
www.caringbridge.com/ny/mylittlesunshine
Syracuse, NY USA - Tuesday, September 24, 2002 at 02:54 PM (CDT)

To Justin's family, I just got this carringbridge address off of jared saga's site. She wanted us to know about your connection with dragonflies. I am so sorry about your loss. It amazes me the strenth that each and everyone of you have that has created a web page on behalf of their children. I have also lost a grandson "Tyler McGrath" age 9. His mom has a thing with butterflies. How similar. I know that they are in a place free of pain. I have just read a book titled "Closer to the light", which was written by a doctor that wanted to find out about a child that drowned in a pool and made a remarkable recovery. She was in a coma for three days. He had actually given up on her. He wanted to know what had happened when she was in the pool. His medical background wanted to know if she had a siezure or what. Then he asked her where she was. She told him that she followed the light to a happy place but when asked if she wanted to stay or go home, she choose home. This sparked his interest in the afterlife. He researched over 100 children and is convinced that there is a divine place after death.

Please take care.

Jean A McGrath <jambeans@northnet.org>
Lowville, NY USA - Wednesday, September 18, 2002 at 08:55 AM (CDT)

Thank you Pat, for sharing more of your son with us. He is suh a sweetie, and GOD is so luky to have him up in Heaven with HIM. I bet he is making people smile up there all the time. Just as we all smile when we remember him. Many hugs to you and the family,
Heather and Brianna
www.caringbridge.om/ny/mylittlesunshine
Syrause, NY USA - Tuesday, September 17, 2002 at 06:52 PM (CDT)

No words to say, just know that I am thinking of you and your family, and praying for the strength that all of you need, and that your angel is looking over and protecting and comforting all of you.
Eileen
Dallas, Tx - Saturday, September 14, 2002 at 06:42 AM (CDT)

Praying for peace for you, Pat. Your courage amazes me. But then again, your Justin's mom so I really shouldn't be so surprised, should I?
Debbie, Lexi's Aunt (www.caringbridge.com/il/alexis) <debbieslinc@yahoo.com>
Bolingbrook, - Wednesday, September 11, 2002 at 09:52 PM (CDT)

If tomorrow starts without me
And I'm not there to see
If the sun should rise and find your eyes
All filled with tears for me.

I wish so much you wouldn't cry
The way you did today
While thinking of the many things
We didn't get to say.

I know how much you love me,
As much as I love you,
And each time that you think of me
I know you'll miss me too

But when tomorrow starts without me
Please try to understand
That an angel came and called my name
And took me by the hand

And said my place was ready
In heaven far above
And that I'd have to leave behind
All those I dearly love

But when I walked through heaven's gates
I felt so much at home
When God looked d! own and smiled at me
From His great golden throne

He said, "This is eternity
And all I've promised you
Today for life on earth is past
But here it starts anew.

I promise no tomorrow
For today will always last,
And since each day's the same way
There's no longing for the past.

So if tomorrow starts without me
Don't think we're far apart,
For every time you think of me
I'm right here in your heart.
Michelle <JDLynGraphics1@juno.com>
Watkins Glen, - Wednesday, September 11, 2002 at 08:42 AM (CDT)

Hi Pat- You did a Great job with your note. I was glad to talk with you the other night. Many Hugs to you and your family. Oh Ya I can just see Justin locking you out of the house. If was a kid that love to joke around.
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, ny - Tuesday, September 10, 2002 at 11:10 PM (CDT)

Hi Pat still thinking of you all daily. Hope things are starting to get easier to handle.
Friends, Denise <dndtwins1@prodigy.net>
Bridgeport , NY USA - Tuesday, September 10, 2002 at 09:36 AM (CDT)

that is very beautiful Pat! Thanks for sharing it.
Hugs,

Cathy (Sabrina's mom)
- Thursday, September 05, 2002 at 09:05 AM (CDT)

No more heavy boulders to carry, no more tears to
Cry, I wish that I didn�t have to be buried. So
Please dry your eyes. I wish to see your face again, I
Wish to make you smile, but there's still another lonely
Day, to sit and be in sorrow. I know you wish to see me again,
I do wish to see you, If I could have just one last day, I would
Want to be with you. I see the pain in your eyes, it makes me
Shiver . I wish I could sit and watch a rainbow glow
Just for one last day. I wish I could see the
Rain fall and sparkle as it hits. I wish to see the horses running
So freely in the fields. I wish to sit on the dew filled grass
And watch the stars with you. And if I had just one last day I
would want to be with you.
Rebecca Decker <sportsangel4u12@aol.com>
Van etten, ny usa - Tuesday, September 03, 2002 at 01:47 PM (CDT)

Hi Pat-I am crushed by your loss. What a beautiful child. May you feel the comfort of God.
Pat Green <Pgreen828@aol.com -www.caringbridge.com/fl/pdsprogress>
Jacksonville, Fla USA - Sunday, September 01, 2002 at 05:00 AM (CDT)

justin will dance his heart out.. i miss him very much!!! i wish we could have just one more day.. or just time to change what happend.... they say time heals but it truely doesnt its love that heals.... all my thoughts are with u..and i have a yard full of dragon flys and every time i c one i think of u!!
Rebecca Decker <Sportsangel4u12@aol.com>
van etten, ny usa - Friday, August 30, 2002 at 08:10 PM (CDT)

Hello- What a beautiful poem. For Justin will Dance forever in Gods hands. Also in our thoughts .
Michele and Clarissa Hyde
Bridgeport, Ny - Wednesday, August 28, 2002 at 06:45 PM (CDT)

Yes, Justin, DANCE!
Debbie (Lexi's Aunt) <debbieslinc@yahoo.com>
- Tuesday, August 27, 2002 at 09:24 PM (CDT)

Dear Pat and Roland. I have been trying to find some words to write that would be more then just words. Well I havent found any. All can say is I do understand. Yesterday was 11 months since my own Justin left us. I am sure that he is showing your Justin around up there and telling him lots of bad jokes. hugs to you both
Robyn Beardsley <beards34@aol.com>
- Saturday, August 17, 2002 at 10:50 PM (CDT)

Love...bears all things, believes all things, hopes all things, endures all things. Love never fails. 1 corinthians 13:7,8 Know that your love for your family is felt by many and I am truly sorry for your loss. My heart aches with you. I have been reading your site since I saw it on Connor Hunley's site, whom we have met and grown to love cause my son, Joey also has cancer. We all have been blessed with our own angels. We will put you in our prayers and thoughts for strength to carry on.
Donna Housley <dph@aol.com>
Nashville, TN - Saturday, August 17, 2002 at 09:30 AM (CDT)

hye pat u know my thoughts are with u.. we all miss justin! i have a facanation with dragonflys too. so when i found out about the fact that u are too i didnt feel like a freak.. lol.. well my thoughts are whith you and i check your page daily for updates!! and we all miss justin!! very sorry for your loss!!!
Rebecca Lynn Decker <Sportsangel4u12@aol.com>
Van Etten, Ny usa - Thursday, August 15, 2002 at 10:05 PM (CDT)

Pat & Roland. Thank you for the update. I go barefoot, too! I just heard about the movie Dragonfly from my mother-in-law in FL about 4 days ago. She loved it. She had never before discussed any movie with me in 18 years. She told my son and I the whole story and it brought tears to my eyes. I had never heard anything about dragonflies before. Then I come home and check my sites, get to your site and find this!! Justin, you keep very close, you hear? Your mom needs your strength. What a wonder you were and you are! So so so brave and very handsome! Pat, I hope our prayers help this slow, painful healing process. Your family is loved by many.
Debbie Zaborowski
- Wednesday, August 14, 2002 at 11:15 PM (CDT)

To the Family of Justin my thoughts and prayers are with you. I know this comes a little late to you but I just found out about Justins passing. I know Justins grandma and grandpa Loretta and Jack Tryon. They were customers of mine at the pharmacy I worked at. I felt like a part of me knew Justin. I was there at the time he was diagnosed and each of his surgeries. They always came in and gave us updates on how he was doing. I sincerely prayed that the outcome would have been different, from what i have heard he was a very amazing young man who was loved by all!!! He is also very missed. I will add your family to my list of prayers for you to gain strength in this healing time for you. I will be looking at dragonflys a whole knew way. P.S. I looked at your photo album, no wonder the dragonfly was big and beautiful your son was a handsome young man. Also if you ever receive any more of his signature pins I would like to buy one, Loretta said there were no more.
Stephanie A. Saxon <Saxon4@infoblvd.net>
Waverly , Ny tioga - Sunday, August 11, 2002 at 09:20 PM (CDT)

Pat, I have shivers up my spine reading about Justin's dragonfly! WOW I hope you have many many visits from dragonflies. I too will look at them differently now and think of Justin each time - I think of Kathy's (daydoc)Alex each time I see ladybugs, and Kate's best friend Dana (had rhabdo same time kate did)each time I see rainbows (she told kate that she would send her rainbows and she does). It was just the 4 yr anniversary of Dana's death and right smack in front of me on my commute that day were two HUGE rainbows!!!
Praying your family finds the strength to cope with the ache of missing your terrific boy.
Wendy <wpz888@aol.com>
Cape Cod, MA - Thursday, August 08, 2002 at 08:41 AM (CDT)

Pat, Bless you for taking the time to offer your support to us in times of your sorrow. I was deeply saddened to learn of Justin's passing. This has been one hell of a year for everyone I have met up at University. I wish it wasn't so. I pray for your families healing of the body, mind and spirit. Peace be with you, Geralyn
geralyn Saya <www.caringbridge.com/ny/jaredsaya>
syr, ny u.s. - Wednesday, August 07, 2002 at 07:46 PM (CDT)

{{{{{{Pat and family}}}}}}
I am so glad that Justin was able to visit you and comfort you during his service and as I am sure he will in many more times to come. It amazes and comforts me so when I hear of experiences such as this at a child's service. I think of you all often and wish you peace in the days/months etc to come. I can only imagine how tough it will be even though Justin is now cancer and pain free forever. I will remember him always and will be honored to wear his name on my singlet on September 1st- the first day of childhood cancer awareness month- in the Virginia Beach 1/2 marathon. He touched so many hearts in his life and will never be forgotten.
Many hugs,
Heather and Brianna Kline
www.caringbridge.com/ny/mylittlesunshine <Queen1472@aol.com>
Syracuse, NY USA - Tuesday, August 06, 2002 at 10:55 AM (CDT)

Hello Pat,
I'm so sorry to hear about your loss. �� These Caringbridge pages are full of wonderful, yet heartbraking stories. I wish I could post to all of them. Here, on the coast of NC, when we see dragonflies on the west side of buildings, we know that it will rain soon. Hopefully, we'll see Justin flying around here soon, since we desperately need some rain ;-) I picked up your link off Tyler's page, as I have many others. May the Good Lord be with you in the days ahead. �
Sincerely,
Tom Mann <WerbeRacing@aol.com>
Kill Devil Hills, NC Where Tyler swims with the porpoises - Monday, August 05, 2002 at 12:06 PM (CDT)

Hi Pat;
I am so sorry about your loss, but yet when I heard, I had a sigh of relief because he suffered so much in the past months. It is so hard to open your eyes in the morning, and have the reality set in...but somehow I have tremendous strength. Must be from our boys. I know they are happy, and would want us to be happy also. I remember Marissa also, Tyler also had experiences with her before he left us. He was home, in bed and near a como. He woke up and told me that he just had a nap with Marissa. He said she brought a blanket and they napped on a cloud. When she woke up....she turned into a butterfly. How incredible. This little girl, one year of age sure was a busy little one. He had so many amazing experiences with angels....too many to recount. Now I know our boys are together, healthy and pain free. That was all we wanted. It is so hard, yet gives me peace knowing they are together.
Vicki
Lowville, NY - Monday, August 05, 2002 at 07:44 AM (CDT)

^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^ ^|^

Wow, I will be looking at dragonflies in a different light now. I'm so glad to read your journal entry, and know that in some way, Justin is reaching out to you, letting you know he is O.K. I check on you every single day, you have lots of people praying for you. Just know that I, as well as many others, will never forget Justin and his courage....he left quite a legacy. Hang in there, Pat, you are doing great, God is with you, as is Justin, you are never ALONE!!! Take care!

Love and hugs,
Rhonda Hunley, Mommy to Connor~~caringBridge.com/tn/connorhunley <rshunley@comcast.net>
Goodlettsville, TN **GOD BLESS AMERICA!!** - Sunday, August 04, 2002 at 07:33 PM (CDT)

Hi- I just had a feeling to check on you guys. I think of you and Justin alot. You know whats weird is last week we went camping to Shelkirk Shores and we went to leave and there was a Dragon Fly in our van. You never know. I will always think of him when I see a Dragon Fly. Many Hugs coming your way.
Michele and Clarissa Hyde <poohmh1@twcny.rr.com>
Brideport , NY - Saturday, August 03, 2002 at 10:26 PM (CDT)

Pat,
I think of you daily. Knowing how hard it must be for you all. I do still check the site regulary just to see how you are. You are such a strong women. Justin is so proud I am sure.
Denise Roberts (Missa's mom) caringbridge.org/ny/missaroberts <dndtwins1@prodigy.net>
Bridgeport, NY USA - Friday, August 02, 2002 at 03:20 PM (CDT)

JUSTIN
INQUISITIVE SPIRIT, BIKE RIDER, KART DRIVER, FRIENDLY, ENERGETIC, BIRD LOVER, FISHERMAN, MOTIVATED, THINKER, POKEMON COLLECTOR, BEANIE CONNOISSEUR, HOPEFUL, FAITHFUL, MECHANICAL, AN INSPIRATION TO BEHOLD. TEACHING US, CHANGING US, SHOWING US THE WAY, WE WILL NEVER BE THE SAME.
JOAN
SODUS POINT, NY USA - Saturday, July 27, 2002 at 11:53 PM (CDT)

^|^ ^|^ ^|^ ^|^ Pat and Family ^|^ ^|^ ^|^ ^|^

On the wings of death and sorrow,
~~~God sends us new hope for tomorrow,
And in His mercy and His grace
~~~He gives us strength to bravely face
The lonely days that stretch ahead
~~~And know our loved one is not dead
But only sleeping and out of sight
~~~Until we meet in the land that is always bright.
*********************************************************

Still praying for you and your family, Pat. May God grant you peace........

Love, hugs, and prayers,
Rhonda Hunley, Connor's Mommy~~caringBridge.com/tn/connorhunley
Goodlettsville, TN **GOD BLESS AMERICA** - Friday, July 26, 2002 at 10:52 AM (CDT)

Dear Pat and family and Justin in spirit,

Thank you for touching us and making us better people. Thank you for reminding us of the truly important things in life. Thank you for sharing your story, which so blessed us. We wont forget Justin and we wont forget you. You are in our prayers and in our hearts. God bless you as you walk this new road. May many hands reach out to support you and many hearts reach out to love you. Big hugs to you.

Beth McQuin, mom to Bobby, dx ALL 12/87, CNS relapse 12/90, testicular relapse 2/93, allo BMT 9/93, www.onevoiceusa.org
Mt Airy, MD USA - Friday, July 26, 2002 at 10:15 AM (CDT)

To Justin's Family
My heart goes out to your family. There will always be a part of you that is missing, and maybe in time it will get better. I am Dylan's Nana. He is in Heaven with your precious Justin. My prayers are with you and your family. I have so much respect for the caregivers of these precious children. I just can't tell you the hurt I know you must be going through right now. Until we meet these precious children in Heaven, GOD BE WITH US AND GIVE US STRENGTH EACH AND EVERY DAY. Love and Prayers, Dylan's Nana

NanaFay4285@msn.com
- Thursday, July 25, 2002 at 12:14 PM (CDT)

Hello Pat,
Just wanted to let you know I'm thinking of you. Take care of yourself!

Amy (Sisile's cousin)
Billings, MT USA - Monday, July 22, 2002 at 09:33 AM (CDT)

Dear Pat & family,
I'm so very sorry for your loss. My prayers and thoughts are with you.
Blessings,
Becky
San Jose, CA - Friday, July 19, 2002 at 02:24 AM (CDT)

Pat and family....please know that my thoughts and wishes are still with you every day. Please know if you ever want to have someone to talk with, I'll be there for you. You are an incredibly wonderful mom...and my heart aches along with you. HUGS>>>>>>>
cheryl
redwood city, ca - Wednesday, July 17, 2002 at 07:17 PM (CDT)

I want you to know pat That I love you and miss you. I'm sorry for the loss in your family. I meet justin once and fell in love with him. God Bless His Hudge Heart and streanght that he had.
Norma Erickson <abbynormax@aol.com>
loudonville, ny usa - Tuesday, July 16, 2002 at 09:40 PM (CDT)

Dear Pat & Family,
Please feel the hugs of sympathy I am sending your way. I haven't been too good at keeping up with Ped-onc...because of all the pain...so I thought I'd come to Justin's site to tell you how sorry I am. I hate this disease...
Your poem is so lovely...I hope peace finds its way to your family soon. I can only imagine the torture and pain.
Many prayers from Chicago, The Olsons (www.caringbridge.com/il/savannah)
Amy & Savannah Olson <amyolson11@yahoo.com>
Woodridge, IL USA - Tuesday, July 16, 2002 at 09:30 AM (CDT)

Pat, Please know that your family is in my thoughts, and prayers right now. I hope you will find some peace in the coming days, and to just take each day minute by minute. I know there isn't much comfort in it now, but your son is in capable hands, and is playing with some other great kids including my daughter Sydney. I'm so saddened that another great child is gone.
Tami Hall <Tami@jamdata.net>
Highland, MI USA - Tuesday, July 16, 2002 at 12:49 AM (CDT)

Dear Pat and family,
Please know my heart goes out to you. I was introduced to your family by Beth McQuin to pray for Justin and my heart aches that another beautiful soul has been lost to cancer. I know he is safe in God's arms now...that isn't always the automatic comfort....
I pray that God will wrap you in his loving arms.
Please know you have many who are sending out their love for your family and mourn for your loss.
Christy Fitzpatrick <Ourangeljordyn@aol.com>
Ft. Riley, KS USA - Tuesday, July 16, 2002 at 12:36 AM (CDT)

Pat and family,

I read an email from you in Ped-Onc and came to take a look at Justin's website. He was a courageous young man. And handsome, too! I am so sorry for your loss. I also have an angel in heaven, Delaney, age 5 1/2, from AML Leukemia.
I have found great help in an online email group: DaybyDay@yahoo.com (I think that's the right address. If not, email me and I will let you know.)

www.caringbridge.com/ca/delaney
Amy Wright, Mom to Angel Delaney <Wright_Amy@hotmail.com>
San Diego, CA USA - Monday, July 15, 2002 at 10:33 PM (CDT)

Pat and family, Just wanted to let you know you are in my thoughts and prayers now and forever. The door is always open if you want to talk, vent, scream, cry, laugh or just chat.
Love and Hugs
Cathy <mrsstan@aol.com>
bernie, mo - Monday, July 15, 2002 at 09:34 PM (CDT)

{{{pat & family}}}
we are so sorry for your loss and know that justin is watching over all of us -
dena (pnkinmom) and family <pnkinmom@aol.com>
glenview, il usa - Monday, July 15, 2002 at 02:05 PM (CDT)

Although I moved from New York when i was in 4th Justin was one of my good friends i had...He was nice and caring and a good friend to have...I am sorry what happened to Justin...Hes in a good place now...But justin left this world as a good person..I am so sorry Pat that u lost your son...May GOd be with u both and to your family.. God BLess
Zack White <XxwEiRdOcHiLdxX@aol.com>
Kent, WA USA - Monday, July 15, 2002 at 12:25 PM (CDT)

I've heard so much about Justin.. it's a sad thing.. but I really hope that he rests in peace.. Love to him..
Emily <XoXHoTtLiPsXoX@aol.com>
- Sunday, July 14, 2002 at 05:18 PM (CDT)

I am so sorry for your loss. A part of Justin will live on with all of us.
wanda clancey <kidclan@linkny.com >
- Sunday, July 14, 2002 at 12:35 PM (CDT)

Pat, I am so sorry to hear that Justin is no longer physically with you. He will, of course, always be with you and your family, and will live on, pain-free, with those of us who have followed his, and your, struggles against a foe who doesn't fight fair. You remain in my thoughts and prayers.
Sue <majormd@aol.com>
El Paso, TX USA - Saturday, July 13, 2002 at 01:56 PM (CDT)

"I've learned that goodbyes will always hurt, pictures never replace having
being there, memories- good or bad- will always bring tears, and words can
never replace feelings."
Justin will be with all of us for our lifes... he was a hero to fight cancer like he did!
Rebecca Decker <Sportsangel4u12@aol.com>
Van Etten, Ny United States Of America - Saturday, July 13, 2002 at 09:49 AM (CDT)

Pat, Roland, Josh, & Jill

Tears in my heart for your loss - I know it isn't easy - I pray you'll find comfort that Justin is in heaven, and that someday you'll see him again.

Hugs and Prayers.
Kym Du Pont <Prchus1iam@aol.com>
East Bay, CA - Friday, July 12, 2002 at 11:06 PM (CDT)

^i^ ^i^ ^i^ ^i^ ^i^ Heavenly Greeting ^i^ ^i^ ^i^ ^i^ ^i^

Dear God,
For a long time
I have wondered about
How You will meet me
When I die and come to
Live with You in Heaven.

I know You reach out
Your hand to welcome
Your people into Your home,
But I never knew if You
Reached out Your right hand
Or if You
Reached out Your left hand.

But now I don't have to
Wonder about that anymore.
I asked my Mommy and
She told me that You
Reached out both of Your hands,
And welcome us with
A great big GIANT hug!

WOW!
I can't wait for my hug, God.
Thank You,
and Amen.

Written by Mattie J.T. Stepanek--March 1996
~~from Journey Through Heartsongs

To Justin's remarkable family:
Our thoughts and prayers are with you. I can't even imagine what you must be going through right now. I have followed your journal for so long now, praying for a miracle. Now we know that God was ready for your "borrowed" Angel to come home. Just rejoice in the fact that you will be reunited someday, he'll be waiting for you with arms wide open. In the days ahead, please know that there are countless numbers of people who care and are praying for God to grant you peace and serenity. I'm an email away if you ever need an 'ear'. Our son is going through the rhabdo battle right now. Take care and May God Bless You!

Love, hugs, and prayers,
Rhonda Hunley, Mommy to Connor~~caringBridge.com/tn/connorhunley <rshunley@comcast.net>
Goodlettsville, TN **GOD BLESS AMERICA** - Friday, July 12, 2002 at 04:16 PM (CDT)

Justins Family:
Our sympathy goes out to you, but we know Justin is happy to be with Jesus, and to be able to play, free of pain, with the other children. God Bless all of you.
Rose and Lew
Rose and Lew Reas <lreas@stny.rr.com>
Big Flats, NY USA - Friday, July 12, 2002 at 09:11 AM (CDT)

Dear Pat (and Family)... I am soooo very sorry :(** I Know You are Very Proud of your wonderful brave son. I wish there were a way to guide you through this journey, but you all must travel it alone at your own pace... Just know there are so many willing to help you along the way.. I will keep you all in my prayers.....
Sending Love,
GayLynn
GayLynn <Nursgl@aol.com>
Pearland, Tx U.S.A. - Thursday, July 11, 2002 at 09:57 PM (CDT)

I Want You To Know
by Angela

A brief moment of darkness
was all that I knew,
before Heaven's Gate
came into my view.

Loved ones and friends
I had missed for many years,
welcomed me with open arms
and many happy tears.

All the hurt, fear and pain
that I have ever known,
is gone from my life,
I am finally home.

I gazed upon the Lord's
sweet smiling face,
and for the first time in my life
I knew and felt His grace.

I know that you miss me,
but please dry your eyes.
I will always be watching and loving you
from my home in the sky.

A cool breeze on your face,
a touch of light rain,
I will send as a reminder
that we will be reunited again.

Life on earth is but one
brief moment in time,
I am finally home,
Eternity is mine.

Megan <megrit623@aol.com>
- Thursday, July 11, 2002 at 07:55 PM (CDT)

I just hope that Justin lives in peace and i hope nothing will disturb him from his peace. God Bless you Justin...
You will be remembered by many.
Krysten <LacrosseWoRkS117@aol.com>
NY - Thursday, July 11, 2002 at 09:58 AM (CDT)

May God grant you his peace during this time of loss and readjustment. Though the emptiness caused by Justin's going to another life will never be completely filled, may the promise and power of the resurrection give you comfort. Watch for the butterflies flying free - a sign of souls set free.
Life is finite. Like a candle, it burns, it glows, it is radiant with warmth and beauty; then it fades; its substance is consumed, and it is no more.
In light we see; in light we are seen. The flames dance and our lives are full. But as night follows day; the candle of our life burns down and gutters. There is an end to the flames. We see no more and are no more seen. Yet we do not despair, for we are more than a memory slowly fading into the darkness. With our lives we give life. Something of us can never die; we move in the eternal cycle of darkness and death, of light and life.
Anne
Rev. Anne Mowery <annemowery@aol.com>
North Chemung, NY USA - Thursday, July 11, 2002 at 07:21 AM (CDT)

Oh no! As the parent of another CancerKid with Rhabdo (Melissa), I had been hoping and praying that Justin's condition would turn around. May God bless you and your family through this difficult time.
David Loor <dloor@tstonramp.com>
Los Angeles, CA USA - Thursday, July 11, 2002 at 02:10 AM (CDT)

Pat,
Keeping you and your family close in thoughts and prayers. Praying for the strength for you to move forward. We know where Justin is and know that it is a much better place, even though it is soooo hard to let him go without you.
Hugs,
Karen Brown <mbrown5507@aol.com>
Bend, OR USA - Thursday, July 11, 2002 at 12:42 AM (CDT)

I just read from a friend... I am sorry... I am so sorry...
Lisa Adams <ferelwing@hotmail.com>
Houston, TX USA - Wednesday, July 10, 2002 at 11:56 PM (CDT)

*hugs*Your son Justin is a brave boy and your families story makes my heart ache. I wish there was something I could do... *HUG* I can only imagine what you must be going through. I hope your son finds peace and I hope the pain ends soon.
Lisa Adams <ferelwing@hotmail.com>
Houston, TX USA - Wednesday, July 10, 2002 at 11:44 PM (CDT)

Pat, Everyone has said all the things I am thinking and feeling right now. There just are no really good words. We've been through alot together. You've helped me so many times (maybe more than you know) and I wish there were something I could do to help you right now. You know I am here anytime you need me (don't hesitate to call or email me). I feel like from talking to you lately that you had made your peace with this long before today. I admire you for that. You are a very special person and Justin was one of the bravest kids that I have ever known! You were lucky to have each other.
Love, Hugs, and Prayers,

Cathy <mrsstan@aol.com>
bernie, mo - Wednesday, July 10, 2002 at 11:20 PM (CDT)

Pat - As I told you on the phone this morning, our hearts, thoughts and prayers are with you, Roland, Josh and Jill, and we are here if you need us. We love you guys and we are grieving the loss of Justin with you and at the same time, thanking God for his life, his specialness and the many ways he touched our lives. We can just picture him with no pain, no tumors and no tears running and exploring Heaven with all the curiosity and spunk that was so much a part of him! May God's arms enfold you and hold you close.
Love, Lonnie and Norma
Lonnie and Norma <nojoloho@juno.com>
Palmyra, NY USA - Wednesday, July 10, 2002 at 11:15 PM (CDT)

You will be in my prayers, that you wil have the strength for the times ahead, that you will have Justin's happy memories always.
Ann Falconer <falcccl@aol.com>
Derry, NH USA - Wednesday, July 10, 2002 at 09:21 PM (CDT)

Pat and Family,

My thoughts and prayers are with you and your family. I know what you are going through, I am so sorry for your loss, Justin is very special. If you ever need to talk I am there just email me and I will give you my phone number. Know that there are people that are there for you and want to help. Justin is in heaven out of pain now. I will be thinking of you guys!
Elizabeth <angeltravsmom@aol.com>
tx - Wednesday, July 10, 2002 at 08:48 PM (CDT)

Pat and family,
Know that I am thinking and praying for each of you. I know how diffucult it is. My heart breaks because I know how heart wrenching it is, but I also know what it is like to see a child suffer (as did my Dylan). I know that you get to a point where you love that person sooooo much that it hurts more to watch them suffer and that's when you ask God to spare them from the pain and to take them to a place where they are free from it all.

Pat, it's going to be hard and believe me when I say you will need someone to talk to and someone who will listen and most of all.....someone who understands what you are going through. Please call upon me anytime. If you don't have my phone number, just e-mail me. There are days that I feel like I need someone to talk to....someone who has walked in similar shoes.

Dylan and Justin.....playing together in heaven!!

Love and Hugs to you and the rest of the family.
Traci <Traci1175@aol.com>
- Wednesday, July 10, 2002 at 08:33 PM (CDT)

Sending many prayers your way. I truly wish that your journey had had a different outcome, but we all know that that is out of our control. Justin touched my heart in so many ways. I feel sad for you and happy that he is no longer suffering. {{{{{}}}})
Amy Heidt <suzyhsmows@aol.com>
Billings, MT USA - Wednesday, July 10, 2002 at 07:59 PM (CDT)

May you feel the Lord's presence and may He hold you and give you some comfort in knowing that your little boy is with Him.

With love,

Karen <karenslinc@aol.com>
- Wednesday, July 10, 2002 at 07:05 PM (CDT)

Dear Pat & Roland,
I wish I knew the right words to say at a time like this. I feel so badly for the four of you and the loss you have suffered. Every day I walked onto the floor and every night I left to go home, I wanted to say good morning and good night to Justin. Sometimes it was hard because I felt I was intruding on a time and a place where I didn't belong. But just as you did, my heart ached for that little boy that lay there in so much pain and I wanted him to know he was always in my thoughts and prayers. I can't even begin to imagine how hard this must be for your family. But I also know that you know he is in a better place. One that is more peaceful and without pain.

At a time like this an email just seems so impersonal. But please know that I am sincere in saying you are in my thoughts and prayers.

Love,
Sandy (7H)
Sandy Demaline <sandydemaline414@hotmail.com>
Cicero, NY USA - Wednesday, July 10, 2002 at 06:32 PM (CDT)

My deepest and most heartfelt sorry is being poured out to you now. I can't imagine the emotions of the loss and yet the relief that the suffering is over. My family will pray for you to find comfort in our Lord. I hope I never have to experience your loss first hand but if there is anything I can do or say to help you grieve this loss I will.

My little boy is 4 years old and six months into remission from Rhabdo; I tremble. James, Becky and Mitchell Martin
James, Becky and Mitchell Martin <Jim_g_martin@bmc.com>
Katy, TX USA - Wednesday, July 10, 2002 at 05:59 PM (CDT)

My prayers and tears are with all of you.
Becky Jo Guthrie <becky54@zlink.net>
Clyde, NY - Wednesday, July 10, 2002 at 05:24 PM (CDT)

Pain free...at last! I wish I could say the same for you and the family. I will continue always to pray for you and the family. Justin couldn't have had a better mother. He will always be remembered with so much love. His (and your) battle was an extreme show of strength, courage and perserverence beyond human capabilities. You are loved little guy!!
Debbie (Lexi's Aunt) <debbieslinc@yahoo.com>
Bolin, IL - Wednesday, July 10, 2002 at 05:21 PM (CDT)

Oh ((((((Pat)))))) I'm am so sorry to hear that "The hard part" has come. I'm sorry. I will pray for you & yours to have the strenght to go on, so that someday you can have "peaceful" days.

love, Barbara
Barbara Kist <lovmyjimo@aol.com>
Pgh, Pa. U S of A - Wednesday, July 10, 2002 at 05:10 PM (CDT)

Pat and family - Patrick and Justin are now together in that wonderful place we call heaven. They both fought rhabdo with such courage and spirit. My thoughts are with you as you begin a new life without Justin. Justin will give you many signs as time goes on that will make you smile and remember that very special boy of yours.....
Jane Cole <jcole2@twcny.rr.com>
Manlius, NY USA - Wednesday, July 10, 2002 at 05:05 PM (CDT)

I am so sorry for your loss. May God watch over you through this time.
Kathy Z (mom to Morgan with ALL ) <Zalewskiz@aol.com>
- Wednesday, July 10, 2002 at 04:15 PM (CDT)

I'm sorry, I hope you find peace soon and delight in the memories you have of Justin
julie <jlkm@aol.com>
- Wednesday, July 10, 2002 at 01:53 PM (CDT)

Oh, Pat...honey. :-<

I'm so, so sorry.

I checked your page about 3 am and saw no update...Kym told me about it this morning.

I know you are just shredded by this.

I wish there was something that could be said to make it easier.

We are all here for you.
Diana <dwelborn@texas.net>
Dallas, TX 75243-2211 - Wednesday, July 10, 2002 at 01:41 PM (CDT)

May God bless You and your family during your difficult loss. I know God is Holding your son in his arms today and eveyday. I will keep you in our prayers thru your difficult time. May God Bless you and your faimly.
Tammy <pavom15@aol.com>
Niles, OH USA - Wednesday, July 10, 2002 at 01:26 PM (CDT)

Pat,
All my prayers are with you and your family.

All our love,

Char & Lance <LanceMom@aol.com>
Aptos, Ca - Wednesday, July 10, 2002 at 01:25 PM (CDT)

Pat,
We are so sorry to hear of Justin's passing. You fought such a brave battle. You must be so proud of Justin.
We are thinking and praying for you at this lonely time.
Karen, Mammy to Ciara Rabdo List <flemard@bellsouth.net>
Atlanta, GA USA - Wednesday, July 10, 2002 at 12:13 PM (CDT)

I just checked Justin's website and saw that he passed away. I know your hearts are breaking and the only consolation is that he is now out of pain and in the arms of the one who gave him his freedom from this horrible cancer. Know that God is with you and your family and remember it is alright to be angry. You are in our prayers.
Linda (Dylan's Grandmother)
Linda Harris <cpi1981@aol.com>
Boonville, IN USA - Wednesday, July 10, 2002 at 11:01 AM (CDT)

I am so sorry- it breaks my hear to know that Justin is no longer with us. :*( He will be a very special angel in Heaven. His pain and suffering is finally over and now he can run and play again. Please know that he is always in our hearts and will be remembered always! May God keep you in his arms and surround you with love nad strength to get through this most difficult time until you can be with Justin again.
Much love and hugs,

Heather and Brianna Kline

www.caringbridge.com/ny/mylittlesunshine <Queen1472@aol.com>
Sryacuse , NY USA - Wednesday, July 10, 2002 at 10:48 AM (CDT)

Pat and Family, Please know we care. Feel free to call any time.

Denise and Darren Roberts <dndtwins1@prodigy.net>
Bridgeport , NY USA - Wednesday, July 10, 2002 at 10:46 AM (CDT)

I can't tell you how my heart breaks that your arms have lost your darling boy... He'll forever be your special angel tossing pennies to the earth to let you know he's there. Hugs and tears for you.
Stephanie <stephanie.masonbrink@eds.com>
Dayton, OH USA - Wednesday, July 10, 2002 at 09:39 AM (CDT)

Pat, I am so sorry. I am thinking of you. Sending love, hugs, and prayers.
Lisa Chua <LisaGC59@aol.com>
Spfld, Il USA - Wednesday, July 10, 2002 at 09:32 AM (CDT)

Are prayers are with you all of you. He is watching over you guys now. He is everyones special angel.
Michele and Clarissa Hyde <poohmh1@twcny.rr.com>
Bridgeport , NY - Wednesday, July 10, 2002 at 09:19 AM (CDT)

Hi Justin and family,
We're praying for you guys and for God to give man a cure for this disease. It tears me up to see or read of another kid going through this battle. It really tocuhes me and tests my faith as our little boy is in the battle also.

I have an idea what you're going through but like your front page reads I hope and pray I never have to go there. God bless you and yours.

James
James, Becky and Mitchell Martin <Jim_g_martin@bmc.com>
Katy, TX USA - Tuesday, July 09, 2002 at 04:50 PM (CDT)

hi, i am very sad it was nice that justin got to come back to school for 4th grade! i really miss him and hope he will get better.. your poem and jurnal made me see how bad life can be.. i have a good friend and an aunt with cancer... i hope neather give up.. justin has put up a good fight and if he puts his mind to it i hope he can recover.. i am sorry that u have to see such a bad thing happening to your son!! god bless you and my thoughts are with u!
Rebecca Decker <Sportsangel4u12@aol.com>
Van Etten, Ny U.S. - Monday, July 08, 2002 at 09:00 PM (CDT)

Hi my name is Elizabeth, my son Travis suffered from the same cancer that your child has, I lost my son in October last year. It amazes me the strength and courage these kids have. My prayers are with your son and all of the family. If I can be of any help email me.
Elizabeth <angeltravsmom@aol.com>
tx - Monday, July 08, 2002 at 08:24 PM (CDT)

My daughter-in-law, Traci Harris, sent me your website and I just finished reading it. I wish there was something I could say that would make some of your pain go away, but I know from experience there isn't. Our grandson, Dylan, suffered so much, and he also fought to the end. You and your family are now in our prayers. Don't be afraid to lean on others during this time. May God bless all of your family and friends.
Linda Harris
Linda Harris <cpi1981@aol.com>
Boonville, IN USA - Monday, July 08, 2002 at 01:27 PM (CDT)

Just checking in, again and again. Sending love and compassion and sympathy and hope and prayers.
Debbie, Lexi's Aunt <debbieslinc@yahoo.com>
IL - Monday, July 08, 2002 at 01:48 AM (CDT)

Just checking in, again and again. Sending love and compassion and sympathy and hope and prayers.
Debbie, Lexi's Aunt <debbieslinc@yahoo.com>
IL - Monday, July 08, 2002 at 01:46 AM (CDT)

Hello-
We received your names from Traci (Dylan's mom) and wanted to say hello and let you know that your family and son are in our prayers and thoughts. We had a son who was friends to Dylan (met in the hospital) except our son had AML (Leukemia). We LOVE the pictures of the fishing trips you have on your website (our extended family lives near Miami and we go deep sea fishing down there also)!!!
Again, our thoughts and prayers are with your family.
Regards, The Pierces
Kris Pierce <claybirdone@aol.com>
- Sunday, July 07, 2002 at 10:38 PM (CDT)

Hugs and prayers to you all!
Heather and Brianna <queen1472@aol.com>
syracuse, ny usa - Sunday, July 07, 2002 at 08:32 PM (CDT)

To the whole family...I know that you have a strong willed family and loads of support from them, plus many, many more people. My thoughts and prayers are with you all.
Becky Jo Guthrie <becky54@zlink.net>
Clyde, NY - Sunday, July 07, 2002 at 05:34 PM (CDT)

Hi Justin,
You are a great guy and I will keep you in my prayers daily. God is so BIG and GOOD he can and will keep you from all your pain. I Love You and So Does God. Little Dylan is free from pain now, and God took him to his heavenly home in heaven, he loved firemen and wanted to be one someday, not, he is the GREATEST of all firemen. Keep your faith, alot of us are praying for that miracle. Give all your family my love too.
Faye Hufnagel <ghufnagel@psci.net>
Dale, IN U.S.A. - Sunday, July 07, 2002 at 09:18 AM (CDT)

Dear Justin, Pat and Family,
I cannot help but cry while reading about what Justin and you all are going though. It sounds so familiar to what Dylan Harris and his family went through. Your poem just pierced my heart. It is so hard to understand why these things happen. God can bring good things out of horrible situations. He really did with Dylan. Dylan is still touching lives today, even though he is in heaven with Jesus. My prayers are with you. May God give you all strength and comfort. Love in Christ, Lisa
Lisa Foley <MikeLisaSP@aol.com>
Boonville, IN USA - Saturday, July 06, 2002 at 10:06 PM (CDT)

Pat,
I am so sorry to hear of Justin's continuing suffering. He is one tough son of a gun isn't he!!
Thinking of you all.
Renee Curkendall
www.caringbridge.com/ny/my2angels <RCurk@aol.com>
Liverpool, NY - Saturday, July 06, 2002 at 09:54 PM (CDT)

Justin, Pat and family
My niece, Traci Harris, emailed your address. I just wanted to let you know what an inspiration you are! Just know that your lives touch so many others (just as our precious Dylan's did) Your struggles are not yours alone, God is with you always and we will continue prayering for your family!
Kathy Nieten <kjn@evansville.net>
Evansville, IN - Saturday, July 06, 2002 at 03:49 PM (CDT)

Pat, you must be in some kind of autopilot mode or something. I didn't know it was possible to go through so much at one time and still be coherent. But you are. Now I know where Justin gets his strength and perserverence. But, sincerely, I'm so sorry for your family. I wish Roland a speedy recovery. He'll have to take it slow and be careful. How could all this be happening? It's just unbelievable! If this is how my prayers are answered, I think I should just stop for a day or two or pray differently or something. You are amazing, as is Justin, and poor Roland. He has to be in his darkest moments, too! His dad, his son, his back, his poor wife. Oh my
God! I'm sending love, hope, positive thoughts and pleading prayers. Justin......please know you're the bravest and the best!!!

Debbie <debbieslinc@yahoo.com>
Bolingbrook, IL - Saturday, July 06, 2002 at 04:39 AM (CDT)

Pat and Roland,
I enjoyed your update today, it explains the two beds in the room. God bless the nurse who thought of that (I have a feeling it was Sally but that's just a hunch). I remember last 4th of July, not only did Justin have a bad case of hives he had the WORST case of hives any of us had ever seen. He always did have a knack for keeping us on our toes!!!!! I'm glad that his pain and vomiting are under control and I hope you all have an uneventful, peaceful weekend. As always, let me know if there is anything you need.
Zarina Smith <smithz@upstate.edu>
baldwinsville, ny baldwinsville - Friday, July 05, 2002 at 06:51 PM (CDT)

Oh Pat we feel so for you all. ANY thing we can do please call.
Denise Roberts <DNdtwins1@prodigy.net>
Bridgeport, NY USA - Friday, July 05, 2002 at 06:43 PM (CDT)

There are no words to ease your breaking heart.... only prayers for you all that God will comfort you and hold you Close. Sending many prayers...
Love,
GayLynn
GayLynn Myers < Nursgl@aol.com>
Pearland, Tx - Friday, July 05, 2002 at 01:20 PM (CDT)

Words from a stranger really mean nothing but I hope my continued prayers for Justin, you and your husband will in some small way help to relieve the pain you are going through.
Bonnie Pixley <Grma2Three@yahoo.com>
Templeton, CA USA - Friday, July 05, 2002 at 01:16 PM (CDT)

Pat,
I'm so sorry you have to go through this. My heart is breaking for you. Praying for peace and comfort for Justin.
Hugs,
Karen Brown <mbrown5507@aol.com>
Bend, OR USA - Friday, July 05, 2002 at 12:36 PM (CDT)

Pat,
I'm so sorry you and your family are going thru all this pain and suffering - I pray for an end to Justin's pain and for you and Roland to have the strength to cope with everything. You are doing a great job for your wonderful, brave son. I wish I understood WHY its happening - I just dont get it and probably never will...
Wendy <wpz888@aol.com>
Cape Cod, MA - Friday, July 05, 2002 at 11:08 AM (CDT)

Hi Pat,

I check Justin's Web page first thing everyday when I come to work and pray for a miracle. So sorry to hear you had a lousy 4th (to say the least!). Take care. Praying for your family to find some peace.
Nancy (wife to Mark, dx'd rhabdo 4/00) <nlauzier@nylbsi.com>
Mansfield, MA USA - Friday, July 05, 2002 at 08:26 AM (CDT)

{{{{{{{{{{oh Pat}}}}}}}}}}}}}
My heart is breaking too! I wish there was something I could do to make Justin all better and take away your pain and heartache. No one deserves to suffer like this! I am so sorry! And now poor Roland is hurting (physically) too. I hope his back feels better soon!
Justin's strength to hang on is amazing. As hard as it is to watch him suffer, know he is hanging on because he loves you, the family, and life so much! His strength is a testament to his love for you all, and for being so great to him. He is very blessed to have such a wonderful family, and you are blessed as well to have such a great child for a son! I am glad Dr D is there to care for you all and help with his pain- I hope it stays under control so he can be as comfortable as possible. I pray as always, for that miracle, and for God to hold you all in His arms and comfort you. When my time comes, we are going to have a long chat on the topic of WHY!!!!!???
much love and prayers,
Heather and Brianna <Queen1472@aol.com>
Syarcuse, NY USA - Friday, July 05, 2002 at 07:10 AM (CDT)

Pat--my heart is breaking, too. Justin has fought so long and hard....he is simply....simply...incredible. All of you are.

cheryl <c1216@aol.com>
redwood city, ca - Friday, July 05, 2002 at 12:30 AM (CDT)

Pat what a busy lady.Hang in there your doing a great job.
If there is anything we can do, please let us know.
Give Justin a BIG HUG from us. We are very glad that we got to meet a very special young man.
Michele and Clarissa Hyde <ppohmh1@twcny.rr.com>
Bridgeport, NY - Thursday, July 04, 2002 at 09:45 PM (CDT)

Thank you for the update. It helps us feel closer, and then maybe we can be a tiny bit more supportive. It seems as though he is finding some relief, which is a small blessing. I hope you feel the love, prayers, and support for your little boy. Justin, you are the BRAVEST GUY EVER!! In heaven you're gonna be the leader of the BRAVE. Then you can teach us! WE LOVE YOU, Honey.
Debbie <debbieslinc@yahoo.com>
- Thursday, July 04, 2002 at 11:52 AM (CDT)

Justin, Pat and family...please know that your family continue to be in my prayers...I do believe there is a beautiful place free of pain and fear...waiting for all of us. If only words could take away our pain...Thinking of you! Sincerely, Agnes Reynolds, (MerBenzRN@aol.com) Mom of Jon diagnosed with ALL at age 4)
Agnes Reynolds <MerBenzRN@aol.com>
Wethersfield, CT USA - Thursday, July 04, 2002 at 08:35 AM (CDT)

Hi Justin,
We don't know who you are but the reason we are writing is because our cousin Dylan Harris had cancer but now he is in a better place now. Don't let that bother you though because many many people even people you don't know are praying.A whole bunch of people sent out chaine letter for Dylan asking them to pray and hope for Dylan to survive.I'm sure people are for you too.I don't know how old you are but Dylan was only 4 when he died.I'm only 10 my sister whois with me helping me think of words is only 5 only 5! Our advice to you is never stop hoping and praying never give up never.We will keep you in our prayers.
This Letter Is From Alyssa And Ashlyn McMurtry
Alyssa is the one writing I'm 10
Ashlyn is five
Good luck Justin.
Alyssa and Ashlyn McMurtry <DRMc1970@aol.com>
- Wednesday, July 03, 2002 at 10:36 PM (CDT)

*************************Justin***************************

We are still stormin' the Heavens for you. Praying that you are getting total relief from all of the pain you have been going through. We think of you each and every day.......you are such an inspiration to so many, did you know that?

Little children, you are of God, and have overcome them; for he who is in you is greater than he who is in the world.

1 John 4:4 RSV

Remember that Jesus is right there beside you, holding your hand, Justin. Give your Mom a big hug from us.

Love, hugs and prayers,
Rhonda Hunley, Connor's Mommy~~caringBridge.com/tn/connorhunley <rshunley@comcast.net>
Goodlettsville, TN **GOD BLESS THE USA!** - Wednesday, July 03, 2002 at 01:41 PM (CDT)

My thoughts and prayers are with you, Justin, during this hard time. Hang in there, buddy!
Christina <christina_berry@msn.com>
Anderson, IN - Wednesday, July 03, 2002 at 10:07 AM (CDT)

Aunt Pat, Roland and kids ~

We love you so much and wish you every blessing through this painful time. I wish that we could be there, but Justin and the family is always in our prayers. Please let us know if there is ever anything that we can do, even from across the country. We love you and miss you all.

Love always,
~ Catrina and Ben
Catrina Siglin Poulson <catrina_poulson@modusmedia.com>
Orem, UT USA - Wednesday, July 03, 2002 at 09:12 AM (CDT)

I am so very sorry for this horrific pain that your son endures and the pain of watching him slip away from your life on earth. There is no words that can be said to comfort a mother who must watch helplessly as her child leaves this world. My daughter,Kylie, died after a bone marrow translpant for leukemia three years ago after tremendous suffering. I still cannot fathom all that she suffered and that we now somehow live without her in this life. I am holding your family in my heart and feeling the enormous sense of sadness that is unimaginable for anyone who has not gone through this.
Sincerely...Gina Rosset <gina@kylie.org>
Rumson, NJ 07760 - Wednesday, July 03, 2002 at 06:46 AM (CDT)

Prayers and Love sent to your family...
Halley <halleys32@aol.com>
Indianapolis, IN USA - Wednesday, July 03, 2002 at 12:59 AM (CDT)

Praying for your family.
Jehanne <bobandjehanne@aol.com>
cv, az usa - Wednesday, July 03, 2002 at 12:22 AM (CDT)

Beth McQuin asked for prayers for Justin and your family. I lost my daughter to AML leukemia at the age of 2. She fought cancer for 14 months. We were "lucky" that we were able to keep Jordyn's pain under control. I pray that they are able to keep Justin's pain under control. As you know it is not easy to watch your baby slip away from you...
I think the best advice I got was to take LOTS of pictures and if possible make the MOST of the time you have left together. Go places that Justin enjoys, that you will have special memories of.
I pray that your last days with your beautiful son are full of smiles and love and happiness.
Sending you all prayers of painless days and lots of beautiful memories.
http://www.geocities.com/ourangeljordyn/Welcome.html
Christy Fitzpatrick...Mommy to Angel Jordyn <Ourangeljordyn@aol.com>
Ft. Riley, KS USA - Wednesday, July 03, 2002 at 12:22 AM (CDT)

Diana told me about this. I'm so sorry that your family has to go through this.

Be as well as possible.
Melissa <asciident@livejournal.com>
Seattle, WA USA - Tuesday, July 02, 2002 at 11:29 PM (CDT)

What a relief that his pain is being managed properly now.

I understand about the moaning.

I understand about the toughness, too.

You are loved, and many people are thinking of you and praying for you.
Diana <dwelborn@texas.net>
Dallas, TX USA - Tuesday, July 02, 2002 at 11:14 PM (CDT)

We are glad to hear that the pain control is working. He is just a very strong hearted young man. Many HUGS coming your way.
Michele and Clarissa Hyde <poohmh1@twcny.rr.com>
Brdgeport , NY - Tuesday, July 02, 2002 at 10:52 PM (CDT)

Breathing a small sigh of relief to read that Justin is a bit more comfortable today. Praying for you and sending good thoughts and big hugs every day. You are important to us.
Beth McQuin & crew www.onevoiceusa.org <CancrRider@aol.com>
Mt Airy, MD USA - Tuesday, July 02, 2002 at 10:07 PM (CDT)

Glad to hear the pain is somewhat under control. Sending hugs to you and Justin. You are right he is one tough cookie...
In my thoughts always,
Love,
Patty
Mom to Sean - 12/12/97 Rhabdomyosarcoma Relapse, Relapse ...
Patty B <Battypatti@aol.com>
Towaco, NJ USA - Tuesday, July 02, 2002 at 07:55 PM (CDT)

Pat still checking daily on you. Thinking of you often. I do so hope they can make Justin comfortable. It seems so important at this time for all of you. What a brave boy he is and the world is a better place beacuse of him. You all have touched so many lives. Feel free to call day or night. We are not far.
Denise Roberts <dndtwins1@prodgy.net>
Bridgeport, NY USA - Tuesday, July 02, 2002 at 07:38 PM (CDT)

Thinking of your whole family with pray
Donna-Lyn and Becky Decker <FingerLakesLady@aol.com>
Van Etten, NY - Tuesday, July 02, 2002 at 07:18 PM (CDT)

Praying for your peace.

Mother in Illinois <add@pd.com>
Chicago, IL USA - Tuesday, July 02, 2002 at 12:21 PM (CDT)

Pat, Roland, and Justin, Just wanted to let you know that I'm thinking about all of you every day. I wish I was closer so I could visit. Please give Justin a big kiss from me. If I could, I would take away all of the pain that he has to go through every day. It just doesn't seem fair that someone should have to go through what he has been through. I still call the hospital for updates but I don't want to bother you every day with phone calls. I know you all have enough to deal with. Justin has made a great impact on my life in the little time that I have known him. He's a very special little boy.(and a very smart one). My thoughts are with you always. Debbie
Debbie Jaynes <doobie42470@aol.com>
Horseheads, NY USA - Monday, July 01, 2002 at 10:07 PM (CDT)

Pat, I'm wondering WHAT the doctors are saying to you and Justin at this point. WHY can't they make his last days pain free? This shouldn't be happening to him and your family. It's just unimaginable. I don't know what this human race is sometimes. God, PLEASE stop this torture to this little boy. PLEASE, PLEASE, PLEASE!!
Debbie <debbieslinc@home.com>
- Monday, July 01, 2002 at 08:45 PM (CDT)

Aunt Pat, Justin and Family
We are thinking of you EVERY MINUTE OF THE DAY! Love and Hugs to you!!!!!!!!!!

Shelley, Lance, Sarah and Ryan! <JDLynGraphics1@juno.com>
Watkins Glen, NY - Monday, July 01, 2002 at 03:56 PM (CDT)

Pat was up today but door was closed. I am thinking of you all. Prays for you all.
Denise
Denise Roberts <dndtwins1@prodigy.net>
Bridgeport , NY USA - Monday, July 01, 2002 at 11:40 AM (CDT)

Patti, Roland and Family, Just a quick note to let you know that you are loved and in our prayers continually. May God give you all Peace!!!
Kolleen <kolleen51@hotmail.com>
Forsyth, MO U.S.A. - Monday, July 01, 2002 at 07:11 AM (CDT)

Sending MORE Prayers for Justin and your family,
Love,
Patty
Mom to Sean
Rhabdomyosarcoma dx'd 12/12/97 - 11/30/00 - 2/4/02
Patty B <Battypatti@aol.com>
Towaco, NJ USA - Sunday, June 30, 2002 at 10:53 PM (CDT)

We are thinking of you often. I wish there was some way I can confort your pain. Our thoughts and prayers are with you every day . Many Hugs.
Michele and Clarissa Hyde <poohmh1@twcny.rr.com>
Bridgeport , NY - Sunday, June 30, 2002 at 05:06 PM (CDT)

Pat and family---I think about you every hour of every day. I really don't understand why they can't keep him more comfortable.... :*(

Doesn't seem right to me.
Cheryl <c1216@aol.com>
redwood city, ca - Sunday, June 30, 2002 at 02:40 PM (CDT)

Dear Justin, Pat and family,
What wonderful and brave fighters you are.
You are an inspiration to us.
Thinking and praying for you.

Karen, Rabdo List Mammy to Ciara 2 1/2 ERMS dx 9/01 on tx <flemard@bellsouth.net>
Atlanta, GA USA - Sunday, June 30, 2002 at 09:11 AM (CDT)

Hugs and prayers to you little buddy, and to you Pat and family. I can only imagine how hard this must be. I check everyday, always afraid of what I might read-but praying that God will comfort you all and help ease you pain. I wish I knew what to do to help you through all this. Please call me if you think of anything at all. Justin you are in my heart forever! Many hugs,
Heather and Brianna Kline <Queen1472@aol.com>
Syracuse, NY USA - Saturday, June 29, 2002 at 09:51 AM (CDT)

My thoughts and prayers are with Justin and all of you for strength, peace and guidance.
susan <yellowdog1@aol.com>
- Friday, June 28, 2002 at 09:07 PM (CDT)

Pat, This is a poem that gave a bit of comfort to a mommy who has very recently lost her son to brain cancer, after a terrible painful battle. He was only 4. I pray and I pray.

God, make me brave for life,
Oh, braver than this!
Let me staighten after pain
As a tree straightens after the rain.
Shining and lovely again.

God make me brave for life,
Much braver than this!
As the blown grass lifts let me rise
From sorrow with quiet eyes
Knowing Thy way is wise.

God make me brave-Life brings
Such blinding things.
Help me to keep my sight,
Help me to see aright
That out of the dark-comes light.

-Grace Noll Crowell, Songs for Courage

Debbie <debbieslinc@yahoo.com>
IL - Friday, June 28, 2002 at 12:27 AM (CDT)

Pat and family, So sorry we left without saying good bye today. If you should need anything we are only a call any. We will keep praying and please know you are in our thoughts. Denise
Denise Roberts <dndtwins1@prodigy.net>
Bridgeport, NY USA - Thursday, June 27, 2002 at 06:48 PM (CDT)

Justin, I cannot begin to know what your journey has been like, and I am so very sorry you have had such pain! As I read your web page I see you are LOVED by your family and friends. That, Justin, is a gift that is given SPECIAL for you. I am saddened by the pain and pray that you can find some comfort knowing that soon you will be in the loving arms of your Heavenly Father, free from pain. GOD BLESS AND KEEP YOU JUSTIN, AND MAY HE STRENGTHEN AND COMFORT YOUR LOVING FAMILY.
Bonnie Pixley <Grma2Three@yahoo.com>
Templeton, CA USA - Thursday, June 27, 2002 at 06:15 AM (CDT)

I write with saddened heart for your pain and the sorrow of your family son,but I am substained in the knowledge that you will soon dwell in the house of the lord, sitting at the right hand of God.
Rick and Joan Bouknight <RickB813@aol.com>
Bradenton, Fl. USA - Thursday, June 27, 2002 at 02:39 AM (CDT)

Heard about your website via the Ebay Giving Board and wanted to let you know that I am praying for you and your family. Justin, you have fought courgeously and greatly deserve the reward awaiting you. May God bless you all with the comfort of knowing He is holding you all close.
Donna Anacker <azdka@cox.net>
Phoenix, AZ USA - Thursday, June 27, 2002 at 01:36 AM (CDT)

Thank you so much for sharing your thoughts! Your strength is overwhelming to someone reading your journal! Our thoughts and prayers are with you in your hardest days to come!
Debi, Andrea and Zachary <debi0115@aol.com>
Westland, MI USA - Wednesday, June 26, 2002 at 10:50 PM (CDT)

I found your page through a search I did for rhabdo. My 20 year old cousin passed away in March from this terrible disease. My thoughts and prayers are with you through this extremely difficult time.
Shannon <shannon_reeves@hotmail.com>
TX - Wednesday, June 26, 2002 at 11:26 AM (CDT)

Always thinking of you guys. Much love and prayers,

Heather and Brianna <queen12472@aol.com>
syracuse, ny usa - Wednesday, June 26, 2002 at 07:06 AM (CDT)

Thank you for the update. Don't know how you're doing any of this, Pat. Justin, you are AMAZING. Through the mouth, huh? I'll bet that would be better. Whatever helps you, Honey. There are so many people who are thinking about and praying for you all day and night. We love you. You are a hero and have fought the hardest battle that anyone could ever ever fight. This world can surely be hell. You'll be in a much better place soon, Sweetheart. Watch over us and maybe you can use your ANGEL POWER to help straighten out the mess we've made of things here on Earth. Please know that you are so so so loved and admired by so many.
Debbie <debbieslinc@yahoo.com>
IL - Tuesday, June 25, 2002 at 11:51 PM (CDT)

My sister, Traci, emailed me your website. We have been down the same road. My nephew Dylan Harris (Traci's son)just passed away in November from cancer, and the pain is still so fresh. It's difficult to watch a child suffer and even worse when it's your own, and "the hard part is yet to come",as your poem says. I pray that God will be with you as you travel down the road we have also travelled. Dylan's website is still open as his life is still a ministry in and of itself. If you care to visit:
www.caringbridge.com/in/dylan
Take care and God bless!
Darla (Aunt to Dylan Harris--Heaven's little firefighter since 11/14/02) <DRMc1970@aol.com>
Boonville, IN 47601 - Tuesday, June 25, 2002 at 10:55 PM (CDT)

Pat, I wish they could at least take care of Justin's pain. What good is it to be in the hospital, if they can't make Justin more comfortable. Thinking of you all the time.
Jane <jesl@exotrope.net>
- Monday, June 24, 2002 at 08:42 PM (CDT)

Can't even imagine! PRAYING, PRAYING, PRAYING for relief. I hope they can put him in an induced coma for his pain if need be. NO ONE, especially an innocent little child, should have to endure this unbearable pain at the end of their brave, heroic battle against this monstrosity called cancer. There has to be SOMETHING MORE they can give him for COMPLETE pain relief. He's in the HOSPITAL, for goodness sake. For him to be in any pain what so ever is just not right at this point!! This has got to be tearing you to pieces. I am so sorry, Justin. I am so sorry, Pat. My heart is so heavy.
Debbie <debbieslinc@yahoo.com>
- Monday, June 24, 2002 at 08:07 PM (CDT)

Pat--just wanted you to know I am thinking about you constantly....I SO wish there would be no pain for our little hero. Hugs and wishes and cyber kisses coming your way.
cheryl <c1216@aol.com>
redwood city, ca - Monday, June 24, 2002 at 08:04 PM (CDT)

Keeping you and your family close in thoughts and prayers.
Hugs,
Karen Brown <mbrown5507@aol.com>
Bend, OR USA - Monday, June 24, 2002 at 02:28 PM (CDT)

Are thoughts and prayers are with you. He is just a strong young man with a very BIG heart. Many Hugs.......
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridegport, NY - Monday, June 24, 2002 at 08:26 AM (CDT)

*~*~*~Humble yourselves, therefore, under God's mighty hand, that he may lift you up in due time. Cast all your anxiety on him because he cares for you.

1 Peter 5:6-7*~*~*~*~*~

Still praying.......
Praying.............
And praying.........

Love and hugs,
Rhonda Hunley, Mommy to Connor~~caringBridge.com/tn/connorhunley <rshunley@comcast.net>
Goodlettsville, TN USA - Sunday, June 23, 2002 at 02:54 PM (CDT)

Sending prayers, love, and thoughts your way.

Char & Lance <LanceMom@aol.com>
Aptos, Ca - Saturday, June 22, 2002 at 01:19 AM (CDT)

Thinking of you and Justin and your family and praying for you all. I've spoken to my Ricky and I know he'll be waiting with angels in tow to escort Justin to his heavenly playground. God Bless you all...
Carole <cigi3@aol.com>
Deerfield,, MA - Friday, June 21, 2002 at 05:02 PM (CDT)

Praying for peace for Justin and strength for your family.
Eileen <pitr99@aol.com>
tx - Friday, June 21, 2002 at 12:14 PM (CDT)

Still praying hard for you little man, you are in our thoughts always.
John Wyckoff <John.Wyckoff@rc.patrick.af.mil>
Titusville, Florida - Friday, June 21, 2002 at 06:57 AM (CDT)

Hi Pat and Roland, I think you may be right about Justin feeling more at home in Syracuse, since he has spent the better part of the past four years there. You are in our prayers and hearts. Wish there was more we could do..... we love you! Please give him a kiss from us or blow it to him, and tell him we will see him again in heaven. Kathy and Tom
Kathy and Tom Siglin <ksiglin@yahoo.com>
- Thursday, June 20, 2002 at 07:42 PM (CDT)

Roland, Pat, Josh, Jill and Justin, We want you all to know what an inspiration Justin has been to us. From here on in, whenever we think of courage and bravery, we will think of Justin. What a beautiful, special young man! We know he will soon be running, flying kites and laughing in the presence of the Lord, and with NO MORE PAIN! Our hearts are breaking and have been for all of you and our prayers have been continuous. We do believe our precious Father knows what's best for each of us, even tho' we don't always understand, and He will comfort all of you at this most painful time. Lean hard on Him! Our thoughts and prayers remain with you all. We love you!

Lonnie and Norma <nojoloho@juno.com>
Palmyra, NY USA - Thursday, June 20, 2002 at 07:24 PM (CDT)

Pat & Justin,
You have been in my thoughts and prayers and will continue to.
{{{Pat & Justin}}}
Andrea <madgejr@aol.com>
- Thursday, June 20, 2002 at 04:59 PM (CDT)

Pat, Justin, ( The Man!!) Praying for strenght to help you all through this most difficult & painful time for you. I don't know what to say. This is so sad. Peace..........
Barbara Kist <lovmyjimo@aol.com>
Pgh, Pa U S of A - Thursday, June 20, 2002 at 03:48 PM (CDT)

Pat,
I sit here crying as I read your update and I know exactly how you feel. I also know the pain you are feeling. May God be with you today and the days that follow! Thinking of you always! Please let me know if you need to talk.....I'm a good listener.

Traci Harris (Dylan's mom....POKWC....2-21-97 --- 11-14-01) <Traci1175@aol.com>
- Thursday, June 20, 2002 at 09:21 AM (CDT)

~*~*~GOD IS IN EVERY TOMORROW*~*~

(AN EXERPT FROM 'HOPE FOR A WOMAN'S SOUL')

GOD IS IN EVERY TOMORROW
THEREFORE I LIVE FOR TODAY
CERTAIN OF FINDING AT SUNRISE
GUIDANCE AND STRENGTH FOR THE DAY.

POWER FOR EACH MOMENT OF WEAKNESS
HOPE FOR EACH MOMENT OF PAIN
COMFORT FOR EVERY SORROW
SUNSHINE AND JOY AFTER RAIN.

GOD IS IN EVERY TOMORROW
PLANNING FOR YOU AND FOR ME
E'EN IN THE DARK I WILL FOLLOW
TRUST WHERE MY EYES CANNOT SEE.

STILLED BY HIS PROMISE OF BLESSING
SOOTHED BY THE TOUCH OF HIS HAND
CONFIDENT IN HIS PROTECTION
KNOWING MY LIFE-PATH IS PLANNED.

GOD IS IN EVERY TOMORROW
LIFE WITH IT'S CHANGES MAY COME
HE IS BEHIND AND BEFORE ME
WHILE IN THE DISTANCE SHINES HOME.

HOME~~~WHERE NO THOUGHTS OS TOMORROW
EVER CAN SHADOW MY BROW
HOME IN THE PRESENCE OF JESUS
THROUGH ALL ETERNITY NOW.
~~~AUTHOR UNKNOWN

Thinking of you and praying for you all the time.......May God grant you comfort and peace.

Love, hugs, and prayers,
Rhonda Hunley~~Connor's Mommy--caring Bridge.com/tn/connorhunley <rshunley@comcast.net>
Goodlettsville, TN USA - Thursday, June 20, 2002 at 09:11 AM (CDT)

May you feel God's love during this most difficult time in your life. Know that He will be with you always. We send our love and prayers to you and your family.
Karen <karenslinc@aol.com>
Steger, IL - Thursday, June 20, 2002 at 08:41 AM (CDT)

{{{{{{{{{{{{{OH Justin and family}}}}}}}}}
I am so sad and angry that you are feeling so much pain. May God and His angels wrap their arms around you and comfort you throughout this time. The Heavens will welcome you with open arms when you come to them. We love you.Pat, I am only a phone call away if you need anything at all.
Hugs, Heather and Brianna <Queen1472@aol.com>
Syracuse, NY USA - Thursday, June 20, 2002 at 08:15 AM (CDT)

I'm new at this computer business and just got into your web site. want to send my love. I know your Grandma Alice and Grandpa Victor. luv u Justin. Mpersonius @aol.com
Mzry Personius <Mpersonius @aol.com>
Watkins Glen , ny schuyler - Thursday, June 20, 2002 at 07:25 AM (CDT)

Pat, I hope YOU have family and friends to help you at this devastating time. You have been a wonderful mother to your little boy. I know he feels your love. Please know that mentally so many people are with you out here. MAY GOD BLESS YOU AND HOLD YOU and TAKE JUSTIN PAINLESSLY, PEACEFULLY AND TENDERLY away from this world that can truly be hell. Our hearts are so heavy for you.
Debbie, Lexi's Aunt (www.caringbridge.com/il/alexis) <debbieslinc@yahoo.com>
- Wednesday, June 19, 2002 at 11:57 PM (CDT)

Justin
I'm keeping you in my thoughts and prayers. We all know what a great fight you have been putting on.
Pat I just don't know what to say this hurts so much. If you need to talk just email me. I just hate this so so much.
Ilene L <milevine@aol.com>
Ca - Wednesday, June 19, 2002 at 11:57 PM (CDT)

Hello- We just ready about Justin. Our thoughts and prayers are with you. I wish the pain and suffering would stop for him. God must have a very special job for him. For he has become a very special angel to us. Justin is a very strong young man that has shown alot of people how special life really is. Many hugs coming your way Justin. We love you.
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, NY - Wednesday, June 19, 2002 at 09:07 PM (CDT)

Justin, you are one of the bravest people I have ever had the pleasure to read about. You truly are the quintessence of courage. Reading your story has given me the strength to continue on with my battle, because you have yet to give up. At 12 no child should have to go through what you have, but you showed true bravery. There should be a metal of honor given to those who fight cancer, but instead all I can offer is my prayer. And to the family you to are courageous it's not easy having to watch someone with cancer and be completely helpless but you are there for him and that is wonderful. My heart breaks for you that you must endure this...but my prayers go out to you too. May god bless you all.

Lisa <thelkid@aol.com>
CA - Tuesday, June 18, 2002 at 11:41 PM (CDT)

Justin, you amaze and inspire me. I'm thinking of you again and of the difference you have made in the lives of others; you're one in a million.
Parent in Illinois <add@pd.com>
Chicago, IL USA - Tuesday, June 18, 2002 at 10:21 PM (CDT)

Thinking of you all each and every day and holding you in my hearts and prayers :*(
hugs, Heather and Brianna-www.caringbridge.com/ny/mylittlesunshine <queen1472@aol.com>
syracuse, ny usa - Tuesday, June 18, 2002 at 01:49 PM (CDT)

Thinking of you every day and night. Praying all the time that God is carrying you and holding you.
Debbie Zaborowski <debbieslinc@yahoo.com>
- Tuesday, June 18, 2002 at 12:04 AM (CDT)

Thinking of you today, as we do everyday. You are not alone in this.....always remember that. Lots of prayers are storming the Heavens!

Love and hugs,
Rhonda Hunley, Connor's Mommy~~rhabdo~~caringBridge.com/tn/connorhunley <rshunley@comcast.net>
Goodlettsville, TN USA - Monday, June 17, 2002 at 08:06 AM (CDT)

Hi Pat,
I just don't know what to say. My heart goes out to you and Justin. I will have a few words with the man upstairs and hope that it helps you out. God bless you both.
Brian 7H <blangdo3@twcny.rr.com>
syracuse, ny onon - Sunday, June 16, 2002 at 04:59 PM (CDT)

:**(

Hoping and praying (yeah force of habit)! for a miracle or at least some peaceful days for you all. You give me strength... I often think of you as I sit on a bench outside of Sloan Kettering having my own personal meltdown. Hang tight honey and know I am STILL holding your hand.
"It is only possible to live happily ever after on a day to day basis." Margaret Bonnano
Love,
Patty
Mom To Sean 12/12/97 Rhabdomyosarcoma, etc., etc.
Patty <Battypatti@aol.com>
Towaco, NJ USA - Saturday, June 15, 2002 at 01:30 PM (CDT)

We were thinking of you guys today. Sending our prayers and thoughts your way. Many Hugs coming your way.
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, NY - Friday, June 14, 2002 at 04:28 PM (CDT)

Pat and Justin,
Sending HUGS and LOVE....Not a day passes without thoughts of you both...
Lisa Chua <Lisagc59@aol.com>
Spfld, Il USA - Friday, June 14, 2002 at 10:03 AM (CDT)

My heart goes out to you, may God be with you.
John Wyckoff <John.Wyckoff@rc.patrick.af.mil>
Titusville, Fl - Friday, June 14, 2002 at 05:45 AM (CDT)

Still in the rhabdo fight with you. I check on Justin daily and please know that we are fervently sending prayers up for him daily. God has a plan, even if we don't understand it. As Connor says, "The cancer Monster stinks!" I agree wholeheartedly!Still praying...................

Lots of love and hugs,
Rhonda Hunley, Connor's Mommy~~caringBridge.com/tn/connorhunley <rshunley@comcast.net>
Goodlettsville--just outside of Nashville, TN USA - Thursday, June 13, 2002 at 11:24 AM (CDT)

I'm so sorry to hear of what your little angel is going through, my daughter also had rhabdo and lost her battle on july 26,2001. She was only 9 years old. i read your page and cried through the whole thing. I felt i needed to write and tell you that my prayers are with you. I know that God will always be there with you and your family to help you through this.
God Bless
Kathy <mally@nqi.net>
Topsham,me, - Thursday, June 13, 2002 at 09:48 AM (CDT)

Dear Pat & Justin, I think about you so often and pray God will give you comfort. I had a dream about you the other night, Pat. I was just sitting with you and trying to comfort you and giving you a hug. I only know you a little from the message board, but Justin's struggle has really touched my heart. Bless you all.
Becky <becarooh@aol.com>
San Jose, CA - Thursday, June 13, 2002 at 01:28 AM (CDT)

Thinking of you every day, call me if you need me.
Diana <dwelborn@texas.net>
Dallas, TX USA - Thursday, June 13, 2002 at 01:23 AM (CDT)

I have always prayed for Justin, and I will continue to pray. I had hoped for a miracle for him. My love is with you all. May God Bless you & keep you...
Vicki Mckenney <vicki_mckenney@hotmail.com>
APO, AP Okinawa, Japan - Wednesday, June 12, 2002 at 06:38 PM (CDT)

Dear Pat and Justin,
There are not enough words in the world that can take away your physical and emotional pain. I have followed Justin through here and the POKWC board. May the angels and Spirit wrap their arms around Justin and let him transition in peace and light. My thoughts and prayers are with you always.
Maire <Irishlyrics@aol.com>
Fulton, MD USA - Wednesday, June 12, 2002 at 05:12 PM (CDT)

Oh, what a relentless horrible monster he is fighting. We are so helpless...we can only pray. Pat, please don't feel alone. Lean on your helpers and family and friends and us. We pray and pray for anything that will help you and Justin through this time that no one should EVER EVER EVER have to go through with their child. At this time may God carry you and may he wrap his arms around Justin in His heavenly embrace and let his suffering and pain end. Our hearts are breaking for you.
Debbie, Lexi's Aunt (www.caringbridge.com/il/alexis) <debbieslinc@yahoo.com>
Bolin, IL - Wednesday, June 12, 2002 at 02:57 AM (CDT)

Justin, Pat and Family- Many more Hugs and Prayers are coming your way to add to your collection.
Justin, your doing a great job. Your just a very tough and strong young man.:-)
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, NY - Monday, June 10, 2002 at 05:26 PM (CDT)

Justin, Pat and family,
Sending you lots of hugs and prayers! Although our hugs are nothing close to what you are getting from Justin, I hope it helps a little to know that we are all here for you. Hope the meds are doing their job effectively. No matter how many tumors grow, they can never disguise Justin's true beauty!
lots of hugs and prayers for peace,

Heather and Brianna <queen1472@aol.com>
Syracuse, NY USA - Monday, June 10, 2002 at 10:36 AM (CDT)

Pat so glad to see the update. Have been wondering how you all were holding up. So happy the Hospice nurse is being a help. They are a wonderful org. I took a course they offered when I was in home care and loved it as I love how they treat people and their families. Prayers are with you all. Please do not hesitate to call or write.

Denise Roberts <Dndtwins1@prodigy.net>
Bridgeport , NY USA - Monday, June 10, 2002 at 09:33 AM (CDT)

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~Pat, Justin, and Family~~~~~~~~~~~~~~~~~~

Just wanted you to know that we are praying for you. Justin, you are such a brave young man. No words can begin to express what we are feeling for you. Just know that we are praying, and praying, and praying...........

Love and hugs,
Rhonda Hunley, Mommy to Connor~~caringbridge.com/tn/connorhunley <rshunley@comcast.net>
Goodlettsville, TN 37072 - Monday, June 10, 2002 at 08:26 AM (CDT)

Pat, Justin, and all,

Just wanted to let you know that you're in my thoughts and prayers. Don't have much to say, but I think of all of you often.
Kym <Prchus1iam@aol.com>
East Bay, CA USA - Monday, June 10, 2002 at 02:03 AM (CDT)

Pat, Justin and Family,

Please know that you are all in my thoughts and prayers. Justin, you are such a fighter and are such an inspiration to all of us. May God Bless All of You. Please know that you are so very special to all of us on the POKWC Board and that we are all praying for you.

Love,
Cindy (CRoot80832@aol.com)
Cindy <CRoot80832@aol.com>
Marshfield, MA USA - Sunday, June 09, 2002 at 10:24 PM (CDT)

Justin & Pat,

I pray that Justin could be out of pain. It is heartbreaking to hear what he is going through. May God grant you your prayers.

Karen <karenslinc@aol.com>
Steger, IL USA - Sunday, June 09, 2002 at 09:44 PM (CDT)

Dear Pat, Justin and family,
Your aunt Peggy e-mailed me this address and I have been sitting here reading all of these wonderful messages that you have recieved literally from all over the country, I am completely overwhelmed at the amount of caring people out there. This is truely a wonderful service and I hope that you find a certain sense of comfort in knowing that there are so many people supporting your fight. I cannot even begin to imagine what your family has endured in the past four years, you are all a true inspiration (especially you Justin). Please know that you are constantly in our thoughts and prayers and that we send our love.
JD and Tina Albee <jalbee@citlink.net>
Dundee, NY USA - Saturday, June 08, 2002 at 08:33 AM (CDT)

Hi Justin: We hear things are going a little better for you. Keep up the good work. We know it takes a lot of effort, but you can do it. There are a lot of people joining us in prayers for you and your family. Your Grandparents, Alice and Vic keep us up to date. Much love. Rose and Lew Reas
lew reas <lreas@stny.rr.com>
Big Flats, ny usa - Thursday, June 06, 2002 at 09:01 PM (CDT)

My heart goes out to you, Pat. You stay in my thoughts.
Elizabeth Bain from the PEDS-Hospice list.
Elizabeth Bain <nutfarm2@snowcrest.net>
Chico, CA USA - Wednesday, June 05, 2002 at 05:11 PM (CDT)

To Justin and family--- Just wanted to let you know that me, Audrey and Dakota Allen are thinking and praying for you. I hope you remember us. We will remember you always Love and prayers Audrey and Dakota and the Beast haha Dylan!!!
Audrey Caputo <audreymatt@webtv.net>
Poland, ny usa - Tuesday, June 04, 2002 at 08:57 AM (CDT)

Justin & Family, Our prayers and thoughts are always with you. Thanks for the update. At least he must be feeling a little better? We love you. Stay strong! YOU ARE BRAVE BEYOND WORDS. Keep talking, Justin. Keep eating and talking. Your words are gold and the minutes and seconds so precious. We pray for more and more relief for you, Honey.
Debbie Zaborowski <debbieslinc@yahoo.com>
- Tuesday, June 04, 2002 at 02:56 AM (CDT)

: )

Justin:

You're a true teacher, and we can all learn from you. Wishing you sunshine and laughter.
Parent in Illinois <add@pd.com>
Chicago, IL USA - Monday, June 03, 2002 at 12:49 PM (CDT)

Pat, How nice it must be to see Justin do these things for himself. It must be hard to see you child like this but at the same time a joy to see him doing these things. Nothing is to small for you to take pride or joy in now. Enjoy one another. Please remember I am a call away.

Denise Roberts < dndtwins1@prodigy.net>
Bridgeport, NY USA - Monday, June 03, 2002 at 10:40 AM (CDT)

Justin - I am glad to hear that you are feeling better. I'm adding my postitive thoughts and prayers to all the good wishes here for you and your family.
Sue <majormd@aol.com>
El Paso, TX USA - Monday, June 03, 2002 at 12:15 AM (CDT)

Hello- I just read your guestbook. You're doing great Justin. You are a very brave young man. You are in our thoughts and prayers. Many hugs sending your way.. :-)
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, NY - Sunday, June 02, 2002 at 08:50 PM (CDT)

Pat and Justin and Family,
You are in my thoughts and prayers every day - Hold each other close as you deal with this tough tough time. Please give your incredibly brave son a big hug from us.
Wendy <wpz888@aol.com>
- Sunday, June 02, 2002 at 11:59 AM (CDT)

Pat and family---As I sit here reading all of the wonderful messages on your guestbook, I wonder what I can add...you are so loved by so many people!!! I just wanted you to know that I am thinking of you all and sending lots of mental hugs your way. As tears stream down my face, I dream of a place where Justin is no longer in pain, though I know your pain, Pat, will never be gone.

Hugs and wishes, Cheryl
cheryl--POKWC mom <c1216@aol.com>
redwood city, ca - Saturday, June 01, 2002 at 06:01 PM (CDT)

Hi Justin,
Just wanted to let you know that I am thinking of you. I hope you are comfortable and relaxing. Say hi to your mom and dad. Feel free to e-mail me if you are up to it. Talk to you soon, Brian
Brian Langdon 7H <blangdo3@TWCNY.RR.COM>
syracuse, ny usa - Saturday, June 01, 2002 at 04:13 PM (CDT)

Hi- Just thinking of you guys and wanting to let you know you are in our thoughts and prayers.
Michele and Clarissa Hyde <poohmh1@twcny.rr.com>
Bridgeport, NY - Saturday, June 01, 2002 at 08:10 AM (CDT)

Thinking of you guys this morning; thought I'd drop by and say "hi", and offer everyone a round of their favourite food, on me.
Diana <dwelborn@texas.net>
Dallas, TX USA - Saturday, June 01, 2002 at 05:56 AM (CDT)

Pat and Family,
Wanted you all to know that we care for you all. If you need anything Pat please e mail me and I will get in touch with you. I will continue to check your site daily.
Friendship, Denise Roberts
Denise Roberts <dndtwins1@prodigy.net>
Bridgeport , NY USA - Friday, May 31, 2002 at 02:12 PM (CDT)

Pat and family,
Wanted to drop a line to let you know that even though I'm not online much, I think of you everyday! My thoughts and prayers are with you and if there is anything I can do or if you just need someone to talk to.....I'm here! Sending love and hugs to you at this time! I've been down the same road that you are currently going...please if you need to talk, I'm here!

Traci <Traci1175@aol.com>
- Friday, May 31, 2002 at 09:56 AM (CDT)

Thinking of you all during this. Although nothing can make this easier for any of you, I pray that you be surrounded by God's love and that His angels help guide you through this. Justin, you are going to see so many friends that made this journey before you, and they will all greet you with open arms. I hope someday that we can find some meaning to this and a cause so we can cure it all! It is comforting to know that soon you will be cancer/pain free and able to run and play forever. You are going to have a great time! We are going to miss you so much! But when the sun shines down on us we will know it is you saying hi with your warm, beautiful smile.
Love you lots buddie!
Heather and Brianna Kline- caringbridge.com/ny/mylittlesunshine <Queen1472@aol.com>
Syracuse, NY USA - Friday, May 31, 2002 at 08:27 AM (CDT)

Pat, I don't want to bother you with telephone calls now, but wanted to let you know that I am thinking of you. Please let me know if there is anything I can do (even though I know there really is nothing to do). Words cannot express what I feel for you.
Jane <jesl@infoblvd.net>
- Friday, May 31, 2002 at 06:56 AM (CDT)

Pat, Again...no words. Just hugs, tears and support.
Justin is a HERO by every definition of the word! I've been closing with a quote on Sabrina's webpage. I think it is very powerful but can't say that I completely understand how it works. It says: "If GOD leads you to it, HE will lead you through it". Maybe someday we'll both figure it out but for now I just pray that it the case for you that GOD leads you through this and that you let him.
You know where I am if you need anything....anything at all! Please give Justin a hug and kiss for me.
Cathy <mrsstan@aol.com>
- Thursday, May 30, 2002 at 11:25 AM (CDT)

To Justin and all the family...

This is not the first time I have signed this guestbook.

I want you all to know that I am behind you *all the way*, my thoughts and prayers are with you, and you can call me if you need me.
Diana <dwelborn@texas.net>
Dallas, TX USA - Wednesday, May 29, 2002 at 11:29 PM (CDT)

You are in my thoughts and prayers! Justin - you are such a hero & a true inspiration!

Lots of hugs & prayers,
Maren
Mom to CJ (POKWC)
Maren <mar6732@aol.com>
Frederick, MD USA - Wednesday, May 29, 2002 at 09:24 PM (CDT)

Hi Justin, I wanted to pass along a 'fond' memory I recalled: When we came over to visit one day, you wanted to show me how agile you were. I watched as you twirled and whirled around on the monkey bars in your house upstairs. You scared the wits out of me!!

Tom Siglin (Uncle Tom) <tsiglin@yahoo.com>
Vestal, NY USA - Wednesday, May 29, 2002 at 08:46 PM (CDT)

Justin, as a mom from POKWC my heart aches for all "our kids". Pain is NO FUN, so I wish you no more pain. I wish for you to run wild and laugh until you can't laugh no more. I wish for you to be free from cancer and always know the love of those around you. You are loved! God bless!
deb :-) <shearsnip@aol.com>
Cleveland, OH - Wednesday, May 29, 2002 at 08:02 PM (CDT)

Justin, Honey, I have followed your heroic battle for a long time now. Maybe it's because you and my son share the same name that I've held so closely to knowing how you were doing. You are a very special young man, and I want you to know how much you have touched my life and what a difference you have made to so many. I will not get to meet you here on this earth, but in Heaven, I will look for you. Love in Christ, Tammy
Tammy L Healy <najusamom@yahoo.com>
Lampasas, TX USA - Wednesday, May 29, 2002 at 03:40 PM (CDT)

Roland, Pat, Josh, Jill and Justin,
our prayers and love are with you.
God give you strength and peace and
Justin may you find joy in the presence of Jesus.
Love, Uncle Bob & Aunt kolleen
Bob Howard <kolleen51@hotmail.com>
forsyth, Mo USA - Wednesday, May 29, 2002 at 02:22 PM (CDT)

There are no words that we can express that can console you. Know that you all,especially Justin, that amazing child, are in our thoughts and prayers each moment. -- Your friends at the CNY Ronald McDonald House
Beth Trunfio <btrunfio@cnyronaldmcdonaldhouse.org>
Syracuse, NY USA - Wednesday, May 29, 2002 at 01:54 PM (CDT)

Hi Pat, Justin, Roland, Jillian, Joshua and you are all in our prayers.
Carolyn and Les Haller <LongtimeM@aol.com>
Odessa, NY USA - Wednesday, May 29, 2002 at 12:01 PM (CDT)

Hi Justin and Family...What a journey you are all on. Bless you all for your courage and strength and thank you for sharing your story. I am inspired (and, of course hold a whole lot of other emotions) and will hold all of you in His light. So know someone in Los Angeles is also praying and thinking of you all.
Joyce Stember <jstem333@aol.com>
Los Angeles, CA LA - Wednesday, May 29, 2002 at 10:52 AM (CDT)

My heart aches for all of you. My son Brett died in November of ALL. Please know that all of you are in our hearts, thoughts and prayers. Keep your faith strong. The Lord will make things right for these beautiful children. It is only those of us remaining that will suffer. His Love has been good to us and will be to you as well.
Be kind and gentle to yourselves.
Kathryn Freeman-Jones <kfreemanjo@aol.com>
Midlothian, Va USA - Wednesday, May 29, 2002 at 07:44 AM (CDT)

Justin and Family, We know there isn't anything to say to help you, but please know we love you and are praying so hard for you. There is another little boy, Eion Riley, age 4, who made a beeline to heaven after an amazing battle with Medulloepithelioma (highly malignant brain tumor), on May 2, just a few short weeks ago. If you need support, maybe you could find some with his wonderful family as they have JUST been through this. Their pain and loss are raw, as yours is. www.caringbridge.com/page/eion.riley I think of them because I doubt there are many people who could actually KNOW or even IMAGINE the excrutiaing pain and suffering you are enduring. From across many states and miles, with our hearts aching and breaking for you, we send our deepest concern, our prayers and our love. Justin, you STRONG, WONDERFUL, BRAVE LITTLE WARRIOR, we LOVE YOU, HONEY and we are SO SORRY you had to hurt so very much.

Debbie Zaborowski <debbieslinc@yahoo.com>
Bolingbrook, IL - Wednesday, May 29, 2002 at 02:47 AM (CDT)

Dear Justin:

I do not know you or your family; I happened upon your site quite by accident while doing some research. I wanted you to know that I am in awe of your strength, courage and spirit. You have the kind of honesty, sensitivity and strength of character that all parents hope for in their children. You are an example and an inspiration for both children and adults alike. I am so sorry that you are ill and that you have had to endure so much suffering. Please know that people all over the nation, including strangers like me, are inspired by you, are thinking of you and are praying for and sending positive thoughts to you. The story of your journey has been a gift. Thank you (and your family) for sharing it. All my very best wishes to you.
Parent in Illinois <add@pd.com>
Chicago, IL USA - Tuesday, May 28, 2002 at 09:51 PM (CDT)

Dear Justin, Pat and Family,
I am a former 5C volunteer and wanted to let you know that Justin is in my thoughts and prayers. May peace be with you and your family in the time to come.
Sarah Eastman <Sew87@aol.com>
Minoa, NY Onondaga - Tuesday, May 28, 2002 at 08:44 PM (CDT)

Justin, you are a very brave and special young man. You are going to make a very special angel. We will always remember your big smile and your way you can make everyone smile. You have showed us how precious life can be.

Pat, are thoughts and prayers are with you and your family. I wish there was something we can do.

Many of HUGS and prayers are coming your way.

Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport , NY USA - Tuesday, May 28, 2002 at 08:44 PM (CDT)

Dear Justin, Pat and Family,
I am so sorry for your pain. I wish there was something I could do to ease it and make it all better. NO one deserves to go through this :*( Justin you have been so brave for so long and put up such a fight! I am proud of you and very blessed to have met you. When the time comes, you will be met by some very special angels I am sure. They will take such good care of you until we can all see you again. Your smile and laughter has left a special place in my heart. Many hugs,
Heather and Brianna Kline <Queen1472@aol.com>
Syracuse, NY USA - Tuesday, May 28, 2002 at 07:38 PM (CDT)

Pat, Our prayers are with you as you prepare to say "until we meet again" to Justin. Though you know the inevitable, it will still be a shock to you when it happens. Our prayers are for you and your family to be wrapped in God's arms as you go through the toughest time of your lives. Please know that even though I have not met you, I feel so very close to you. That's how it is with God's kids.
I'll be keeping in close contact with Vic and Alice. May God bless and keep you...remember God gave us tears to wash the windows our souls and in time turns our mourning into dancing...
Pastor Anne Mowery <mowerya@onlineimage.com>
North Chemung, NY USA - Tuesday, May 28, 2002 at 07:23 PM (CDT)

Praying and thinking of you all the time. God bless you and help you and hold you ever so tight. We love you.
Debbie Zaborowski <debbieslinc@yahoo.com>
Bolingbrook, IL - Sunday, May 26, 2002 at 11:51 PM (CDT)

Pat--just checking in to let you know we are thinking of you guys...

Here is a knock-knoch joke from Zach...he is 5

knock, knock
who's there?
Ya
Ya Who?
Why are you so happy?

I did say he was 5....so his jokes are pretty lame...sorry.
cheryl <c1216@aol.com>
redwood city, ca - Friday, May 24, 2002 at 10:48 PM (CDT)

Hi to you all. Wish things could always go good for you. Hope today is as sunny inside as it is outside.
Friends, Denise, Darren, Missa, Zach and Tori
Denise Roberts <dndtwins1@prodigy.net>
Bridgeport , ny USA - Wednesday, May 22, 2002 at 08:54 AM (CDT)

Our thoughts and prayers are with all of you. If there is anything we can do to help, please let us know.
Justin, you hold a special place in our hearts.
Many HUGS coming your way.
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport , NY USA - Sunday, May 12, 2002 at 08:23 PM (CDT)

Dear (((Pat & Justin)))
Sending hugs and Prayers as always.
Please don't be afraid to email me when you can, and let me know how things are going. I miss your updates.
You guys are always on my mind and in my heart.
Love,
Patty
Mom to Sean dx Rhabdomyosarcoma,12/12/97, 11/20/00, 02/04/02
Patty B <Battypatti@aol.com>
Towaco, NJ God BLess America! - Saturday, May 11, 2002 at 12:33 AM (CDT)

{{{{{{{{Justin , Pat and family,}}}}}}}}}

I wish there was something I could do to ease your pain. This is so unfair and it makes me so angry!!! Please know that I think of you guys often and you are forever in my hearts and prayers. Justin, I have your pic on my fridge and look at it daily. You are an AWESOME kid and very loved! I am so glad to have met you and would do anything to make things easier for you. Good thoughts and prayers are coming your way!
Hugs, Heather and Brianna Kline <Queen1472@aol.com>
Syracuse, NY USA - Friday, May 10, 2002 at 08:42 AM (CDT)

~~~~Justin and Pat~~~~

I just happened upon your website through cancerkids and wanted to let you know that our prayers will be with you daily. Our 7 year old son, Connor, was diagnosed on 10-12-01 with rhabdomyosarcoma. He just finished 6 weeks of everyday radiation and is on the same chemo drugs that Justin was on with his first bout. We still have about 18 weeks of chemo left. We leave in two weeks for Disney for Connor's Make-A-Wish trip. Pat, I know how exhausting this is, although not to the point where you are. It is just SO UNFAIR for our children to have to go through this. Just know that there are people out here whom you've never even met, who are thinking of you and pulling for you. Justin, you are braver than any Superhero that ever existed! We are awe-struck by your courage. Just know that you are not in this alone! Take care and May God Bless YOu All!!!

Love and hugs,

Rhonda Hunley, Mommy to Connor~~caringBridge.com/tn/connorhunley <rshunley@comcast.net>
Goodlettsville, TN USA - Friday, May 10, 2002 at 08:19 AM (CDT)

Hi Pat and Justin, Pat, I couldn't agree with you more that no one should have to go through what Justin is going through (or what you are going through). It just breaks my heart. Feeling very helpless......
Cathy <mrsstan@aol.com>
bernie, mo - Thursday, May 09, 2002 at 10:31 PM (CDT)

Lots of people are praying out here. I wish you strength, love, and most of all, peace for Justin and yourself. May God wrap his arms around you and Justin and hold you tight in His everlasting love and bring you to a better place. Tell your wonderful little boy that he is braver and stronger than most of the world. We are so sorry he has to fight this fight, but he is so special and looked at in awed astonishment for doing it so bravely. And, tell him we love him.
Debbie Zaborowski <debbieslinc@yahoo.com>
- Thursday, May 09, 2002 at 12:23 AM (CDT)

Tell Justin we love him. Thank you for the update. I wish there were a pain pump for the parents and loved ones. Hold him tight. He will ALWAYS BE A HERO. FOREVER!
Debbie Zaborowski <debbieslinc@yahoo.com>
- Wednesday, May 01, 2002 at 11:25 PM (CDT)

(((Pat & Justin)))
Just wondering how things are going? Are you home or inpatient?
Praying for you guys as always,
Love,
Patty
Mom to Sean dx Rhabdo 12/12/97 etc., etc, etc.
Patty <Battypatti@aol.com>
Towaco, NJ USA - Tuesday, April 30, 2002 at 11:14 PM (CDT)

Just thinking of you guys. Lots of hugs sending your way.
Michele and Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, NY USA - Monday, April 29, 2002 at 06:24 PM (CDT)

Justin,

I check in on you every day and pray for you. May God be with you and ease your pain.
Karen <karenslinc@aol.com>
Steger, IL USA - Monday, April 29, 2002 at 09:58 AM (CDT)

Dear Justin, Try and be strong, we will be praying for you. I also have a son with Rhabdomyosarcoma, his name is Andrew. His web site is www.caringbridge.com/canada/andrewmizzoni.com
God Bless you & your family.
Len Mizzoni <lmizzoni@citynationalleasing.com>
Toronto, Canada - Sunday, April 28, 2002 at 04:45 PM (CDT)

We're still with you and praying so hard. Please update when you can. Justin's care is probably taking every bit of your mental, emotional, and physical strength. I wish there was some way to ease your and his pain. I pray that that God holds you up through this unspeakably horrible time. No one should ever, ever, ever have to go through this excrutiating pain. Again, I am typing through tears and praying for peace for Justin. We send our love, prayers and support.
Debbie Zaborowski <debbieslinc@yahoo.com>
Bolingbrook, IL - Friday, April 26, 2002 at 09:56 PM (CDT)

Hello again Justin...This is Mark Kelley (Broken Arrow, Ok) a friend of your Dads's through work...I wish there was some way to relieve your pain...It sounds to me like your one of the toughest hombres' on the face of the Earth...Arnold Schwarzenagger could learn a thing or two from you about being a hero...Hang in there, and know that me and my family pray for you and your family daily...God Bless...
Mark Kelley <mrmeg@geotec.net>
Broken Arrow, OK USA - Tuesday, April 23, 2002 at 07:11 PM (CDT)

Justin & Pat,

You remain in my thoughts and prayers. My heart just breaks for you.
Karen Matrenec <karenslinc@aol.com>
Steger, IL USA - Tuesday, April 23, 2002 at 03:04 PM (CDT)

(((Pat & Justin)))
Just wondering how things are going? You guys are always in my thoughts.....
Love,
Patty
Mom to Sean dx rhabdo 12/12/97 -11/30/00 - 2/4/02
"If you're falling off a cliff, you may as well try to fly. You have nothing to lose."
Patty <Battypatti@aol.com>
Towaco, NJ USA - Monday, April 22, 2002 at 03:24 PM (CDT)

We are with you and you can scream at us. We feel so helpless... but, WITH ALL OUR HEARTS and MINDS, we send MORE LOVE, and MORE PRAYERS for STRENGTH for you and Justin. His COURAGE is...simply UNBELIEVABLE.
Debbie Zaborowski <debbieslinc@yahoo.com>
Bolingbrook, IL - Thursday, April 18, 2002 at 01:40 AM (CDT)

Justin--when Robby had radiation, he said everything tasted funny, too. The only thing that sounded good to him was hot fudge sundaes....so HE WOULD EAT 3 HOT FUDGE SUNDAES EACH DAY....now what I want to know, is how did he stay so skinny eating hot fudge sundaes, and all I did was WATCH him eat them, and I gained weight?

Hold on tight little buddy...your mom has been a long time computer friend of mine, and she is pretty special...she has told us all about you and how wonderfully brave you are...I am proud to "know" you...
cheryl <c1216@aol.com>
redwood city, ca - Wednesday, April 17, 2002 at 10:51 PM (CDT)

Justin,
I think your Mom is so lucky to have a kid like you...You remain in my thoughts and prayers. I am sending you HUGS!!
Lisa Chua <LisaGC59@aol.com>
Spfld, Il USA - Wednesday, April 17, 2002 at 09:16 AM (CDT)

Justin, you are a very strong young man. Are prayers and toughts are with all of you. Many hugs are coming your way.
Michele & Clarissa Hyde <Poohmh1@twcny.rr.com>
Bridgeport, NY - Wednesday, April 17, 2002 at 08:33 AM (CDT)

Pat, My heart breaks with you for what you are going through. No twelve year old (or any other age) should be faced with this harsh a reality. There's just no figuring it out. You are such a great Mom to him and I know you'll figure out just what to "let slide" and what not to. Still praying for you guys. I know I've said this over and over but I'm always here for you!!
Hugs,

Cathy <mrsstan@aol.com>
Bernie, Mo - Tuesday, April 16, 2002 at 09:14 PM (CDT)

May you treasure each day with your precious little boy. I pray that God gives him relief from his pain and suffering and grants you continued strength to continue fighting this terrible disease. May God's Everlasting Love Be With You And Your Family Always,

Karen Matrenec <karenslinc@aol.com>
Steger, IL USA - Tuesday, April 16, 2002 at 10:04 AM (CDT)

We pray for you Justin and Pat. Keep your spirits up.
Russ and Loretta Cook <gmamai927@aol.com>
Van Etten, NY - Saturday, April 13, 2002 at 08:53 PM (CDT)

Pat and Justin, Thinking of you again (and again, and again, and again.....). Wondering how things are today.
Hugs,

Cathy <mrsstan@aol.com>
Bernie, Mo - Saturday, April 13, 2002 at 10:32 AM (CDT)

Thinking of you both and sending you many hugs and prayers to help you through this.
Hugs,
Heather and Brianna Kline <queen1472@aol.com>
Syracuse, NY USA - Saturday, April 13, 2002 at 10:29 AM (CDT)

Pat and Justin,
Just wanted to let you know I am thinking of you....HUGS!
Lisa Chua <LisaGC59@aol.com>
Spfld, Il USA - Saturday, April 13, 2002 at 08:51 AM (CDT)

Dear Pat
My prayers will go with Justin and you and your family daily, every step of this path.

I will pray that God will send healing into your lives, that you all will feel the calming of the Holy Spirit within you and that God will grant you peace in your souls.

"Now there was a great wind, so strong that it was splitting mountains and breaking rocks in pieces before the Lord, but the Lord was not in the wind; and after the wind an earthquake, but the Lord was not in the earthquake; and after the earthquake, a fire, but the Lord was not in the fire; and after the fire a sound of sheer silence.
(Kings 18: 11-13)
May you feel God's presence in the magical silence of your loving glances.
God bless you, beautiful child.
pokwc love,

missie <design4fl@aol.com>
- Saturday, April 13, 2002 at 08:20 AM (CDT)

Your poem says it all! Catastrophic, Devastating, Horrific are words not even strong enough!! My little 3 yr. old niece has Wilms Tumor. Dx'd 1 day before her 2nd b-day, surgery, radiation, chemo till 2003. I pray, pray, pray for Justin and your family to be released from pain & torture. I pray that my family never gets to "THE HARD PART". So many people are with you mentally. I wonder if you can feel the support and prayers and love out here for you. I pray you can. JUSTIN, YOU ARE WONDERFUL & BRAVER THAN COMPREHENSION. YOU'LL ALWAYS BE A HERO AND YOU'LL ALWAYS BE SO LOVED!
Debbie Zaborowski <debbieslinc@yahoo.com>
- Friday, April 12, 2002 at 11:44 AM (CDT)

Dear Justin - You are a very brave and strong young man. Are thoughts and prayers are with you and your family. You have shown all of us what life is truely about by taking one day at a time. Lots of hungs sending your way.
Michele and Clarissa Hyde <poohmh1@twcny.rr.com>
Bridgeport , NY USA - Thursday, April 11, 2002 at 07:06 AM (CDT)

Justin, You hang in there, sweetie. We have an awesome God who can give you the peace you need. I'll be praying for you!
Crystal <servant1125@yahoo.com>
Boonville, NY USA - Wednesday, April 10, 2002 at 08:07 AM (CDT)

Justin and family, you don't know me but I just want you to know that your life has brought your family and others so much joy, keep the faith, God is Good. You are in my prayers. God Bless you and your family.
Debra Fisher <buckshotnf@earthlink.net>
Watertown, NY USA - Tuesday, April 09, 2002 at 03:24 PM (CDT)

Dear Justin, Thinking of you and thanking God for your life! You are precious in His sight. My daughter Emma and I were viewing your fish photos. I have two boys too, they would sure love to catch what you got! Looks like it was an awesome time. Remember, God will NEVER leave nor forsake you! I pray you and your family may have God's peace. I will add you to our prayer list at my church (Earlville-Poolville UMC)
Shelley & Emma Kate Wyman <eumcshelley@citlink.net>
Earlville, NY USA - Tuesday, April 09, 2002 at 07:43 AM (CDT)

May God hold you in the palm of His hand and surround you with His love. Know that God is always with you. You are in my prayers.
Alice Sherman <ABS37@aol.com>
Elbridge, NY US - Monday, April 08, 2002 at 10:11 PM (CDT)

Justin, We will keep you in our prayers. You are a very brave young man. In Christ's love, Alan & Deb Dickerman
Deb Dickerman <DJD2693@aol.com>
Pine City, NY USA - Monday, April 08, 2002 at 09:32 PM (CDT)

Dear Justin, Pat and family,
Our prayers are with you, and with Sean and all the others who signed in with mention of family members who are suffering catastophic illness. I know God is with you in all of this, but it is so hard for us to understand.
Rev. Janet Lee <jkitchen@sg23.com>
Cortland, NY - Monday, April 08, 2002 at 06:19 PM (CDT)

WOW! Those are some great fish in the photos. We will add you and your family to our prayer list Sending you love and prayers
Jean and David Roy <dlr@capital.net>
Cherry Valley, N.Y. USA - Monday, April 08, 2002 at 05:28 PM (CDT)

May today bring you peace that only God can give.
becky guthrie <blg41@hotmail.com>
waterville, ny usa - Monday, April 08, 2002 at 04:04 PM (CDT)

We pray that Justin can be kept as comfortaable as possible. We also pray the God will lay His healing hands on Justin and keep him in the palm of His hands. All this we ask in the precious name of Jesus our Lord and Saviour
Emerson & Lorraine Tanner <etanner@twcny.rr.com>
Fulton, NY USA - Monday, April 08, 2002 at 03:32 PM (CDT)

Justin and Pat,
Thinking of you both..sending HUGS.

Lisa Chua <LisaGC59@aol.com>
Spfld, Il USA - Monday, April 08, 2002 at 08:15 AM (CDT)

Dear Justin and Pat,
You don't know us, but we are new in North Chemung Church. I wanted you to know that we think of you everyday and you are in our prayers.
Diane Marousek <dmarousek@stny.rr.com>
Breesport, NY USA - Monday, April 08, 2002 at 07:25 AM (CDT)

Pat, Justin and family,
Please know that you are surrounded by God's love and grace and that we are thinking of you each and everyday. YOu are not in this alone- your friends share your pain and walk beside you throughout this. Many hugs to you all.
Heather and Brianna Kline <Queen1472@aol.com>
Syracuse, Ny USA - Saturday, April 06, 2002 at 11:16 AM (CST)

Justin, Pat, and Family,

Please know that you are being continually lifted up in prayer.
Amy Heidt (Sisile's Cousin) <suzyhsmows@aol.com>
Billings, MT USA - Saturday, April 06, 2002 at 11:02 AM (CST)

Justin, May the God of Peace be present with you and your family during this difficult time. Know that you are being held in prayer by a gazillion folks! May your pain be lifted from you, and may the Presence of the Holy Spirit indwell in you. We keep you in prayer.
Tom & Betty Bement <bsbement@stny.rr.com>
Corning, NY USA - Friday, April 05, 2002 at 11:44 PM (CST)

Justin and family, We don't know you but are thoughts and prayers are with you.
John and JoAnn Doane <n2akg@juno.com>
Breesport, N.Y. - Friday, April 05, 2002 at 10:49 PM (CST)

Hi Justin, Pat and family.Although we have never met, we have been kept up to date with your condition through your Gramma and Grampa Ford. We want you to know we are keeping you in our prayers and through prayer only good things can happen. Hang in there Justin, you have a lot of people on your side.
Jean @ Ted Swan <tcajswan@localnet.com>
Elmira, NY Chemung - Friday, April 05, 2002 at 08:36 PM (CST)

Hi Pat and Justin,
The prayers are still going up to God from the people at North Chemung. Through all of the pain and suffering, remember the butterfly...it fights as larva to get free of the cocoon and when the time is right it is free and becomes a beautiful butterfly...some like you, Justin, must fight this body like the cocoon fights the larva...but when the time is right your soul will become free like the butterfly...whenever I see a butterfly I wonder whose soul it is that has been set free.
I've never met you, but I feel that I know you. We're watching over your Grandma and Grandpa Ford. Keep the faith. Shalom, Pastor Anne
Rev. Anne L. Mowery <mowerya@onlineimage.com>
Horseheads, NY 14845 - Friday, April 05, 2002 at 06:01 PM (CST)

Dear Pat & Justin,
Know that you are in my thoughts and prayers every day. I hope the chemo will start working soon and help with Justin's pain.
I Love you guys,
Patty
Mom to Sean dx'd 12/12/97 Rhabdomyosarcoma -
Relapse 11/30/00 Relapse 2/4/02
"If you're falling off a cliff, you may as well try to fly. You have nothing to lose."
Patty <Battypatti@aol.com>
Towaco, NJ God Bless America - Thursday, April 04, 2002 at 08:58 PM (CST)

Hello to Justin, - I am a friend of your Aunt Peg. She and I went to school together a long time ago and now sometimes we get together for dinner. You sure are lucky to have such a nice aunt. I teach Sunday school to kids about your age in Millerton, Penna. and we are all praying for you. You are very special to us.

Karen Packard <Dklpack@aol.com>
Pine City, NY USA - Thursday, April 04, 2002 at 01:57 PM (CST)

Pat and Justin, Just checking in to see if there is any new news. You guys are constantly in my thoughts and prayers and like our own situation I feel so very helpless! Just know that I'm here today, tomorrow and every day after that whenever you need me.
Hugs and Prayers

Cathy (mom to Sabrina dx rhabdo 8/98, 9/00, 11/01). www.caringbridge.com/mo/sabrina <mrsstan@aol.com>
Bernie, MO - Thursday, April 04, 2002 at 08:07 AM (CST)

Dear Justin, Pat, & Family, Sorry to hear things have been so rough. I Work with your Aunt Peg & have learned alot about you and your family from her. She is very proud of all of you and couldn't wait to show us your picture in the Woman's Day magazine. Just remember her love is unconditional - NO MATTER WHAT!!! Love & Prayers to All.
Debbie
Debbie Spear <dspear@stny.rr.com>
Corning, NY USA - Wednesday, April 03, 2002 at 09:36 PM (CST)

My heart goes out for all of you. Keep praying. love to you all, especially you Justin for being such a brave little man. I am your Aunt Peg's friend, and I hear about you through her. Hugs and Kisses to you.
van and sandy strong <vansan@linkny.com>
dundee, ny usa - Wednesday, April 03, 2002 at 08:01 PM (CST)

Justin,
You are such a brave young man. Keep on fighting!!!!!!

Kathy Zalewski from the POKWC Board <Thpcasey@aol.com>
- Wednesday, April 03, 2002 at 09:10 AM (CST)

Sigh,,what to say.... so hard to understand.... :(
Eileen <Pitr99@aol.com>
Dallas, Tx - Monday, April 01, 2002 at 07:37 PM (CST)

Hello-We are very sorry about the news. Our thoughts and prayers are with all of you. Justin you are a very special young man who has left a a great mark on all of our lifes. Lots of hugs sending your way.
Michele and Clarissa Hyde <poohnh1@twcny.rr.com>
Bridgeport, N.Y. USA - Saturday, March 30, 2002 at 07:29 PM (CST)

Hi Pat,
I am so sorry to hear the latest news. My heart hurts for Justin. Remember, there is always HOPE,we just have to be prepared to change what we have hope for. My prayers are with you and your family, and especially Justin.
Renee
Renee Curkendall <RCurk@aol.com>
- Saturday, March 30, 2002 at 04:46 PM (CST)

Oh Pat! I am so so sorry that Justin has to go through so much pain, and that hope is fading of ridding his body of this monster. Little buddy, still has hope though and isn't giving up- God Bless him! I am still praying for that miracle to come for him.I wish I could do more for you and your family! I just dont' know what to offer. I am so sorry I just don't know how to help. Please know that I am here if you need anything. Give Justin a big hug for me.
Heather <Queen1472@aol.com>
Syracuse, NY USA - Friday, March 29, 2002 at 08:53 PM (CST)

sending much love and prayers to Justin and family. He is such a braveheart!
Deb (from POKWC) <shearsnip@aol.ocm>
Cleveland, OH - Friday, March 29, 2002 at 08:00 PM (CST)

Pat,
I just read your latest post and wanted to let you know that you and Justin are in my prayers.
I am so very sorry that he is going through this.
http://www.caringbridge.com/page/amanda6
Andrea <madgejr@aol.com>
- Friday, March 29, 2002 at 06:58 PM (CST)

Pat - Now I feel studpid because my message went on twice. Oh well, at least you know I'm thinking about you and Justin.
Jane <jesl@exotrope.net>
- Sunday, March 24, 2002 at 07:57 PM (CST)

Pat, I which I could take this burden from you. All I can do is pray. Jane
Jane Lehman <jesl@exotrope.net>
Erin, NY USA - Sunday, March 24, 2002 at 07:51 PM (CST)

Pat, Justin & family, Hoping all goes GREAT at the NIH. Sending prayers.
Love & Hugs,
Barbara
Barbara Kist <Lovmyjimo@aol.com>
Pgh., Pa U S of A!!! - Saturday, March 16, 2002 at 08:59 AM (CST)

Sending hugs and prayers that the NIH will have "THE" treatment that does the trick. I am so glad to hear they finally have his pain under control. Keep us posted.
Love,
Patty
Mom to Sean
Dx'x 12/12/97 Rhabdomyosarcoma
Relapse 11/20/00
Relapse... Aww you know the rest. In the same boat as you...
Patty B <Battypatti@aol.com>
Towaco, NJ USA - Saturday, March 16, 2002 at 12:48 AM (CST)

THinking of you guys and sending lots of prayers and cyber hugs!
Heather and Brianna
Syracuse, NY USA - Monday, March 11, 2002 at 09:21 AM (CST)

Justin and Family- Are thoughts anfd prayers are with all of you. Let us know if there is anything we can do. Lots of Hugs sending your way! :-)
MIchele and Clarissa Hyde <poohmh1@twcny.rr.com>
Bridgeport , New york - Wednesday, March 06, 2002 at 10:54 PM (CST)

Justin and family,
Hey buddy. I am sorry you are in so much pain! I hope they can find you something to make you feel better. You shouldnt have to hurt like that. Please let us know if there is anything we can do for you. Many hugs and prayers,
Heather and Brianna Kline <www.caringbridge.com/ny/mylittlesunshine>
Syracuse, Ny USA - Wednesday, March 06, 2002 at 06:09 PM (CST)

Justin,
Just thinking of you makes me smile. I am looking forward to our next story. Rest easy.
Pat & family: My thoughts & prayers are with you. Please call if you need anything.

Kate Quinn <Kquinn@cnyronaldmcdonaldhouse.org>
Syracuse, NY USA - Monday, March 04, 2002 at 09:10 AM (CST)

Pat, Justin and family. You are in our thoughts and prayers daily w/ the hope that Justin's pain will be eased. We smile when we think of him and his wonderful ability to tell stories to us!

Fondly,
Beth
Beth Trunfio <btrunfio@cnyronaldmcdonaldhouse.org>
Syracuse, NY USA - Monday, March 04, 2002 at 08:40 AM (CST)

We think of all of you very often and have you constantly in our prayers. We only moved two years ago but when close friends have sickness it seems so long since we have seen you or talked to you. Know that we love and pray for you.
Art & Marie Belt <mariebelt@aol.com>
Sevierville, TN Sevier - Sunday, March 03, 2002 at 09:00 PM (CST)

Hi Pat & Justin, I'm so sorry to hear that Justin is suffering so much {my heart is breaking for you and your family}. I was hoping we would have been able to see you, but we missed you by 1 day. Alexis went up for chemo on Fri. You are always in our thoughts and prayersssssssss.
Jerilyn and Alexis Miller <Jmiller864@aol.com>
Binghamton, NY - Sunday, March 03, 2002 at 11:12 AM (CST)

Justin, I was GREAT talking to you on the phone. You have a very sweet voice. You hang in there and don't forget....if there's anything you WANT or NEED you tell your mom to let me know.
Hugs to you and mom
Cathy
mom to Sabrina dx rhabdo 8/98 - 9/00 - 11/01 - in treatment <www.caringbridge.com/mo/sabrina>
Bernie, MO - Wednesday, February 27, 2002 at 07:22 AM (CST)

I'm very tired too Pat but somehow when it comes time to fight I find the energy (I'm sure God's in on that somehow). It's amazing how mirrored our kids treatments are and how mirrored our feelings and emotions are.
Hang in there sweety. Take a long calgon bath and make somebody come and wash you back for you. You'll still be tired but you'll smell better ~hee hee~ (and feel better).
Keep us posted.
Cathy
mom to Sabrina 18 - dx rhabdo 8/98 - 9/00 - 11/01 - still in treatment <www.caringbridge.com/mo/sabrina>
Bernie, - Monday, February 25, 2002 at 10:23 PM (CST)

Roland, Pat, Josh, Jill and most of all Justin ~ this disease is so CRUEL with no thought for age, race or station in life. It attacks all alike. Your suffering has become the suffering of so many of us who care and love you all. We feel so helpless, which sometimes makes us angry, and then we see you, and you comfort our missery, care for our needs as we visit to comfort you. We come away humbled and edified to have known and loved you, who seem to be wise beyond your years. You are Heavenly Father's chosen one to bring us back to him. I pray that we may all learn from your suffering, that we too have more compation towares others while going through our own suffering. May we never be cruel to others, but think of them above oursselves, as you have been in your short but long in example years. May we have the courage and humility to face our own adversity with dignity as you have. We love you, Honor you, and wish we could take away this awful pain from your torn body, spirit and soul. Thank you for teaching us how to be more Christ like. Thank you for being here to show us the way, in which we may all meet together in Heavenly Father"s kingdom on high, when we cross over the veil which seems so thin at times, as we view one of his angels...... you. May each of you feel Gods loving presence so that you don't have to suffer anymore is my prayer for all of you at this most diffiult time.
Aunt Kathy <ksiglin@yahoo.com>
Vestal, NY USA - Monday, February 25, 2002 at 12:36 AM (CST)

Justin,
I know things are really tough right now, but just know you have sooo many people who love you and are praying so very hard for you... Keep holding on and keep fighting...
Love,
Nursgl
GayLynn <Nursgl@aol.com>
Pearland, TX USA - Sunday, February 24, 2002 at 10:26 PM (CST)

Justin- Hang in there. Are thoughts and Prays are with you and your family. Let us know if you need anything. :-)
Michele and Clarissa Hyde <poohmh1@twcny.rr.com>
Bridgeport, New York Ononadaga - Sunday, February 24, 2002 at 06:32 PM (CST)

justin
with many prayers for you ,god will take all the pain and discomfort from you .my love and blessings have been with you throughout your illness.
love ,

jean dieterle

jean dieterle <mw95413@aol.com>
elmira , ny - Sunday, February 24, 2002 at 02:46 PM (CST)

Roland, Pat, Justin, Jill and Josh, Just a quick note to let you all know that you have been and will continue to be in our prayers, thoughts and minds. We love you! Wish we could be there to be more of a help! Love, From Bob & Kolleen
Kolleen <kolleen51@hotmail.com>
- Saturday February 23, 2002 6:03 PM CST

Hi Pat and Justin. Just checking in to see if there was any new news. Thinking about you guys and hoping things are going ok.
Hugs,

Cathy (mom to Sabrina 18, dx rhabdo 8/98, 9/00 & 11/01 - back in treatment) <mrsstan@aol.com>
Bernie MO or Bethseda MD :-), - Sunday February 17, 2002 9:22 PM CST

Hi Pat and Justin, We are so sorry.......... Our thoughts and prayers are with you. Your friends Jerilyn and Alexis Miller
Jerilyn Miller <jmiller864A0L.COM>
Binghamton, NY - Sunday February 17, 2002 9:21 PM CST

Sending prayers and love to your family. I can't believe this is happening to the 3 of us again.... Know I am still holding your hand. Rhabdomyosarcoma SUCKS!!!!
Love,
Patty
Mom to Sean
Rhabdomyosarcoma
dx 12/12/97
Relapse 11/17/00
Relapse 2/4/02
Patty <Battypatti@aol.com>
Towaco, NJ USA - Thursday February 14, 2002 5:22 PM CST

Thinking of you Justin. Hang tough! Pat, please let me know if there is anything I can do to help out. I am only 15 minutes away from the hospital if you need anything, just call me. Hugs and prayers
Heather Kline <Queen1472@aol.com>
Syracuse, NY USA - Thursday February 14, 2002 9:21 AM CST

I am always here for you Pat (and Justin). It's so strange how this happening so close together with our kids. You know how to reach me anytime, day or night! don't ever hesitate to call on me.

Cathy (Sabrina's mom) <mrsstan@aol.com>
Bernie, MO - Tuesday February 12, 2002 1:02 PM CST

I am so sorry.....I don't know what to say. My prayers and thoughts are with you all. Keep up the fight Justin!
Hugs, Heather and Brianna <www.caringbridge.com/ny/mylittlesunshine>
Syracuse, NY USA - Saturday February 9, 2002 5:53 PM CST

YAY YAY YAY!!!! Doing the happy dance for you!! :-) Perhaps we will see you at the GLobtroters? (funclub)
Hope so!

Hug, Heather & Brianna Kline <www.caringbridge.com/ny/mylittlesunshine>
Syracuse, NY USA - Wednesday January 30, 2002 4:03 PM CST

Hi guys. It's been a while that we have seen you guys. We keep up dates on you with your page. Justin your doing great. Hang in there and keep smiling!(You got a great smile):-)
Clarissa and Michele Hyde <poohmh1@twcny.rr.com>
Bridgeport , NY Ononadaga - Friday January 25, 2002 8:29 AM CST

Hi Justin, Your Aunt Grace told me you are in the hospital right now, but I had to tell you about a wonderfull surprise I found!! I had gone to Wegmans today and I bought a copy of Woman's Day.When I opened it up guess who was looking back at me with the most beautiful smile--you!! You are famous, Justin. I sure hope you will be home soon. I think about you all often.I see you have caught some nice fish,it won't be long and it will be time to fish again this summer,I think you could catch even bigger fish this year!! Please say hi to your family for me.I say a prayer for all of you everyday.Your "old" friend Loretta

- Thursday January 24, 2002 2:50 PM CST

Hi Pat and Justin,
Just checking in to see how you guys are doing. Glad you were able to be home for the holidays. Hope they were all you wanted them to be.Let me know if there is ever anything I can do to help when you have to come to Syracuse (although those times will be fewer now I am sure!) Remember I am just a few minutes away from the hospital. Can't wait to hear the words "Clean Scans and cancer free!" Oh, and by the way- I completed my first marathon!!!! It was incredible!
Perhaps we will see you at the next fun club event?
Hugs, Heather and Brianna Kline <www.caringbridge.com/ny/mylittlesunshine>
Syracuse, NY ***USA*** - Wednesday January 16, 2002 4:07 PM CST

Hi Pat and Justin. Just dropping in to read the latest update. I pray that 2002 is a better year for all of us. Least we know we can always go get some KFC and make it all better :-).
With POKWC Hugs
Cathy (mom to Sabrina arms 98, 00, and 01) <mrsstan@aol.com>
Bernie, MO -

Hi Pat and Justin, Just stopped by your page to say HI and hope everthing is going OK. Pat, I was reading your past journals, they were wonderful.......... Justin remember you will always be in our prayers.......... Will keep in touch.........
Jerilyn and Alexis Miller <jmiller864@aol.com>
Binghamton, ny - Tuesday, January 01, 2002 at 09:47 PM (CST)

Dear Justin,
I hope your fishing in the year 2002 is even better than last year. Am sending you all of our prayers for good health.
Diane <jiljar221@aol.com>
Chestnut Ridge, NY USA - Sunday, December 30, 2001 at 07:29 PM (CST)

Hi Justin and family. Congratulations on your 12th b-day! I hope and pray that your chemo run goes well and that you have a good Christmas and a great new year.
Margaret <MIKaminsky@AOL.com>
Rochester, NY USA - Monday, December 17, 2001 at 10:20 AM (CST)

HI Justin and Family!!! Happy belated birthday! Wow- 12 years old, an official "preteen"! I hope your birthday was lots of fun-thats great news about the clean scans! Love to hear that. I hope this next chemo isn't as rough as expected and that you are able to be home and fever free for Christmas. God Bless you and your family! Here's praying the New Year will bring only good things to come!
Hugs, Heather & Brianna Kline (5c/7h friends) <www.caringbridge.com/ny/mylittlesunshine>
Syracuse , NY **USA** - Friday, December 14, 2001 at 02:44 PM (CST)

Hello Justin,
You won't know me but I feel like I know you. I've got a son who's fighting the same disease that you are. He's pulling for your full recovery and I'm praying for you and your family too. You sure are a brave young fella, with a big fella's fight! We're following your site from Houston where we get our treatment. Tkae care and we wish you a Happy Birthday and a Merry Christmas. James, Dad to Mitchell 3, dx 1/15/01 Rhabdo Alveolar
James, Becky and Mitchell Martin <Jim_g_Martin@bmc.com>
Katy, TX USA - Thursday, December 06, 2001 at 04:56 PM (CST)

Now those are some huge fish you caught, Justin! My son, Jarrett, dx with childhood leukemia @ age 4 is a fisherman, too. He wants to get a boat for his Make-a-wish. He caught a shark on a deep sea fishing trip, and wants to go back to catch a bigger one...hope you have a Happy Thanksgiving. Hooray for clean scans!
Jill <TheMacPac@aol.com>
GA USA - Tuesday, November 20, 2001 at 11:30 PM (CST)

Hello Justin...My name is Mark Kelley...I live in Broken Arrow, Oklahoma..I know your Dad through work...He is a great guy and from what he tells me you are an even greater guy...I just wanted to sign your guestbook and tell you that me and my family (wife and 15 year old daughter)are thinking about and hoping for the best for you and your family...I hope you have a Happy Thanksgiving and the good news that I saw on your last journal entry (11/13) continues to get even better...I wish you well...
Mark Kelley <mrmeg@geotec.net>
Broken Arrow, OK USA - Monday, November 19, 2001 at 12:38 PM (CST)

WOW!!! Clean scans.........Great.....GREAT NEWS!!!
debbie <spclmom1@aol.com>
- Thursday, November 15, 2001 at 06:23 PM (CST)

"Clean scans" Those are wonderful words sent from Heaven!!!!
Susan Potter <yellowdog1@aol.com>
Salem, Oregon - Thursday, November 15, 2001 at 01:53 PM (CST)

Hi Pat and Justin,

I am thrilled for the clean scans! Way to go, Justin--you are and always will be my hero.
Cindy <CRoot80832@aol.com>
Marshfield, MA - Wednesday, November 14, 2001 at 07:36 PM (CST)

YAHOO!!!! LOVE THOSE WORDS!!!
Karen Brown <mbrown5507@aol.com>
Bend, OR USA - Wednesday, November 14, 2001 at 12:51 PM (CST)

Pat and Justin,
Love the words, "Clean Scans"!!!
Hope you all have a wonderful Thanksgiving!

Anne, mom to Erin dx Leukemia 10/99 <ob828@aol.com>
- Wednesday, November 14, 2001 at 08:15 AM (CST)

To a brave young man with a caring family from a friend of Grandma and Grandpa.
Joyce Van Vleet <JVV28@aol.com>
Montour Falls, NY USA - Monday, November 12, 2001 at 09:27 PM (CST)

Pat,

Thank you for sharing this wonderful page with me. You and your son are in my thoughts and prayers. I know the value of the small things, the good days, and yes, quality of life is the most important thing at any stage of treatment.
Kristi Chapman <Mazarbul@AOL.com>
Chicago, IL USA - Friday, November 02, 2001 at 08:47 PM (CST)

Hi Justin,
Just thought I'd surf in and say HI. It is cold here in Odessa. Had a few snow flurries today. Your Grandma and Grandpa Ford are our friends and keep us posted on how you're doing. You're in our thoughts and prayers.

Carolyn, Les, Josh, Anthony and Tomeesha Haller <LongtimeM@aol.com>
Odessa, NY - Friday, October 26, 2001 at 09:28 PM (CDT)

Hi, I'm sure that you may not remember me. But years ago when you lived in Pine Valley at the park I was Peggy's friend( and still am). Back then I was Becky Thomas . Peggy has always kept me informed about how Justin is doing and I was glad to find your site and read your journal. We have a boy at the school were I work who also if having a battle with tumors on the brain. Right now he is doing good. His mother also works with me and I've heard how hard it is on everyone. You have a strong family and many friends who think of you I'm sure. I'll try to visit you again. I hope this find you all doing o.k. Becky
Becky Jo Guthrie <bguthrie@nrwcs.org>
Clyde, ny Wayne - Thursday, September 27, 2001 at 07:08 PM (CDT)

Dear Family from a partner in your pain.
We are in LA and have all treatment at UCLA. Daughter Ellen has GBM brain tumor. I pray this for you:
May God continue to have Mercy and reveal His plan for your lives. The hardest part is yet perhaps to come. And I pray that it may not come. Please deliver our children from cancer Lord. Bless this family. Be the strength in their marraige. And an extra measure of faith for them all.
teine "dana" rebane <teine1@aol.com>
Newbury Park, CA USA - Monday, September 24, 2001 at 09:32 PM (CDT)

may god bless you justin.
wanda <kidclan@linkny.com>
dundee, ny usa - Tuesday, September 11, 2001 at 04:58 PM (CDT)

Hi Justin and Family!!! Just stopped in to say hi and see how things were going. Great news on the scans and the improvements in the counts. Did you guys have fun at the zoo? It was great to see you there. Also, glad you had fun at camp. Brianna did too. I am very jealous about the hot air balloon! That is sooo cool that you guys got to do that.
Well I hope the rest of your summer goes well. Take care and keep in touch!
Hugs, Heather and Brianna Kline (5c/7h friends) <www.caringbridge.com/ny/mylittlesunshine>
Syracuse, NY USA - Friday, August 31, 2001 at 11:52 AM (CDT)

Just wanted to let you know I'm thinking of you and hope you had a good day!
Doreen Decker <DDECKER99@AOL>
Van Etten , NY USA - Sunday, July 01, 2001 at 07:43 PM (CDT)

Pat - Somehow, I only just found this! What a great way to keep folks updated. I was just thinking of Justin - my favorite radio station here is having a fundraiser for Candlelighters.
Sue (Majormd) <majormd@aol.com>
El Paso, TX USA - Saturday, June 30, 2001 at 05:36 PM (CDT)

those are great picutres, I thought it looked a little warm for Lake Ontario!!!! Congrats fishermen!!
Susan Potter <yellowdog1>
rochester, ny monroe - Tuesday, June 12, 2001 at 09:34 AM (CDT)

Hi Justin. Just wanted to tell you that you are in my prayers. I talked to your mom on e-mail a few times so that is how I heard about you. My husband Tony, is doing battle against the same thing as you. You guys are the strongest people around. Your fishing trip was awesome!
Kathy Beck <kamsbc@yahoo.com>
Marquette, MI 49855 - Thursday, May 24, 2001 at 01:09 PM (CDT)

Hi Justin just checking in. We all get busy but never to busy to pray and think about you. Your picture is on our refrigerator. Ryan(he's three) thimks you are big. God Bless You, Uncle Bob
Bob Howard <kolleen51@msn.com>
Forsyth, Mo USA - Thursday, May 10, 2001 at 10:44 PM (CDT)

Hi Justin. This is Michelle your cousin. Aunt Peg gave me your web address..... now we can keep tabs on you!!!!
Michelle Albee-VanAlstine <m@unitedwaysoutherntier.org>
Watkins Glen, NY - Friday, April 06, 2001 at 09:45 AM (CDT)

Joyce Van Vleet <JVV28@aol.com>
Montour Falls, NY USA - Sunday, April 01, 2001 at 09:10 PM (CDT)

- Sunday, April 01, 2001 at 09:08 PM (CDT)

Dear Justin,

You probably don't know me. I am Edna Klock's son. She was your grandmother's sister. I just looked at the photographs of all the great big fish you caught. I have been fishing for nearly sixty years and I haven't caught any that were near the size of those. That must have been great fun. Maybe we can go together sometime. I am praying for you. Love! Cousin (?) Jon
JON MCNEAL <jonmcneal@aol.com>
SilverSpring Maryland, MD 20910 - Sunday, April 01, 2001 at 11:04 AM (CDT)

Jon McNeal <jonmcneal@aol.com>
SilverSpring, MD 20910 - Sunday, April 01, 2001 at 10:42 AM (CDT)

Justin, What an incredible feat you did with that tree! Hope you can carve that spoon. I'd like to see that one. We have people in our church and extended family that are keeping you in their prayers. How very powerful God has made you, that people all over the World are getting to know you and are praying and wishing you well. We love you! Aunt Kolleen. PS tell your family "Hi". Next time you get a chance to be on e-mail, send us a note. Of course being out in the woods sounds like a lot more fun. I love to be out, too.
Aunt Kolleen <Kolleen51@hotmail.com>
Forsyth, MO Taney - Monday, March 26, 2001 at 11:20 PM (CST)

Hi Justin,
This Uncle Bob we have you in our prayers and on our prayer list here and around the country. I hope things are going well. I am amazed by your courage. God Bless You, Love Uncle Bob & Aunt Kolleen
Bob Howard <Kolleen51@msn.com>
Forsyth, Mo USA - Monday, March 05, 2001 at 09:35 AM (CST)

Hi Justin, this is Aunt Kathy. I am happy that the surgary went well, but sad that you still have to be on chemo. Grama said that you were very sick. I hope that you can gain strength to keep up with all of this and be better, so we can get together soon. Your Mom has my e-mail address. I'd like to hear from you if you are up to it. We are still praying that The Lord will bless you with renewed strength and full recovery. Also, you name is being placed on the prayer rolls of LDS Temples around the world, so there are many prayers everyday in your behalf. Keep up your faith and all will be as God wills it. Love you very much, Aunt Kathy

Vestal, NY USA - Sunday, February 04, 2001 at 08:27 PM (CST)

HI Pat and Justin! This is Heather, Brianna's mom from 5c/7h. Glad to hear you are doing well! That is wonderful news! Like your web page too. Please take care and keep in touch. B's web site is caringbridge.com/ny/mylittlesunshine
Heather Kline <Queen1472@aol.com>
Syracuse, NY USA - Wednesday, January 31, 2001 at 10:05 PM (CST)

Hi Justin! You don�t know me, but I "met" your mother because we have almost the same e-mail address. Isn�t that amazing? I have enjoyed chatting with your mother from time to time and also hearing about you. I have a brother named Justin too :) Anyway, this is a great Website. I appreciated getting to hear more about you and you are deffinately in my prayers! Love in Christ, Lori
PS - I loved those pictures. Aren�t Baracudas dangerous? I was in Canc�n in November and I was following what I thought was a dolphin or something in the water which I foolishly found out later to be a Baracuda. I was told that it could have bitten me!
Lorraine Berm�dez <stonyecho@aol.com>
Mexico City, Mexico - Tuesday, January 30, 2001 at 01:19 PM (CST)

You're some fisherman,Justin. . Your Aunt Grace keeps us informed of your progress.You and your family are in our prayers daily.

.
Ruth & Reino Koster <koster@fltg.net>
Clifton Springs, N.Y. Ontario - Sunday, January 21, 2001 at 09:11 AM (CST)

Hi Justin,
I am glad you are home. Hope all goes well with you.
My little guy, Joshua just celebrated his 11th birthday, too. I am friend of your Grampa Vic and Gramma Alice,

Carolyn Haller <LongtimeM@aol.com>
Odessa, Ny - Sunday, January 14, 2001 at 09:24 AM (CST)

Dear Justin, I talk too your mom for a long time and sure glad you are hanging in there. You will have too ask her about my son Mike, but I'm glad you are doing good. God Bless all of you. Prayers and hugs, Diane
Diane <qvc435868@aol.com>
toldeo, ohio lucas - Friday, January 12, 2001 at 08:18 PM (CST)

We're glad to hear everything went well in Boston. We've been thinking about you & your Mom. We can't wait to see you on the 18th to hear all about your trip to Boston. And by the way...why didn't we get a taste of that grouper?? It's Jennifers favorite! See you soon.
Jennifer, Kate, Beth - Ronald McDonald House <HOUSE@CNYRONALDMCDONALDHOUSE.COM>
Syracuse, NY USA - Thursday, January 11, 2001 at 10:52 AM (CST)

We are praying for Justin
Connie Ciappa <giraffeonahill@aol.com>
Spencer, NY Tioga - Saturday, January 06, 2001 at 08:49 AM (CST)

Hi Justin, I signed the guest book last week, but I just clicked on again to see if your mom added anything more, and I noticed that my entry isn't here, so I'll try again. I am very impressed with those fish-wow! We are happy to hear the tumors have been removed, and we are keeping you in our prayers every single day. This is the toughest battle you'll probably ever have to fight, but, with God's help, you can do it! We love you! Lonnie and Norma

Lonnie and Norma
- Friday, January 05, 2001 at 06:38 PM (CST)

Hi Justin! Kendra likes your fish. I like your website. I especially like the pictures. Best wishes for your surgery. We (all) are thinking about you and your family.
love, the Radins
Bethany Radin <Bethanylyn7@aol.com>
lockwood, NY usa - Tuesday, January 02, 2001 at 07:45 PM (CST)

HI Justin and Family. I am a friend of your moms from the POKWC board. I love the pics of your fishing trip - wow! I'm so happy to see how well your are doing - glad that tumor's gone. Hope to see you in Boston - my daughter Kate had rhabdo too and went to most of your docs in Boston. She's doing great now. keep on kicking rhabdo butt!!!!!
Wendy Pearson Zona <wpz888@aol.com>
Cape Cod, MA - Sunday, December 17, 2000 at 10:32 PM (CST)

Justin,
Happy Birthday! Aunt Kolleen and I really enjoyed the visit with your Dad. Have a Merry Christmas! You are in our prayers!
Love,
Uncle Bob & Aunt kolleen
Bob Howard <forsythumc@inter-linc.net>
Forsyth, Mo USA - Saturday, December 16, 2000 at 07:07 PM (CST)

HAPPY BIRTHDAY, JUSTIN! We think of you often and are so happy that your scans show that you are fighting this thing.
Hang in there! We are praying for you everyday !
Your Cousins - Glorie, Brian, Erica, Rianna, and Kayla <gemma57@aol.com>
- Sunday, December 10, 2000 at 07:48 PM (CST)

Hi Justin. You're in my prayers. I met your mom on the Jean AOL message board, but this is the first time I follwed the link to this page. I love the pictures with the fish! Maybe I'll see you at Seabreeze or Sodus or Eastview Mall sometime.
Margaret <MIKaminsky@AOL.com>
Rochester, NY USA - Friday, December 01, 2000 at 10:47 AM (CST)

Hi Justin, I didn't realize that you were on the web. I don't get on the web often. Its not my thing. How are you feeling? We love you.
Jeff/Betty Poole <bbpoole5@juno.com>
Canandaigua, NY USA - Tuesday, November 28, 2000 at 01:49 PM (CST)

Hi Justin, What a great adventure! I'm glad you could catch such a great fish. Grandma and Grandpa tell us they are going to mount it for you. I'm looking forward to seeing it one of these days. Love, Aunt Kolleen
Kolleen <Kolleen51@ Hotmail.com>
Forsyth, MO U.S.A. - Wednesday, November 22, 2000 at 08:35 PM (CST)

Wow! What great fish! We've been fishing tons of times and have never caught fish like that! Scottie and Adam want to know what it was like reeling them in. You keep fighting and we'll keep praying.
Mary Ann (your mom's cousin) and family <SmsajG@aol.com>
Fairport, NY USA - Sunday, November 19, 2000 at 07:42 PM (CST)

Justin, just got on your web page again, I'm so glad to see some of your fishing pictures, I had not seen those!!! I have been showing everybody the pictures that I received from MAW and they are like " I wish I could catch a fish like that". Hope everything is going well with you. Maybe you and your family could come to the Sparkle of Christmas in Corning the first weekend in December and see our booth if you are feeling well. Thinking of you always, Lori and Nadine Glass, MAW of Western NY.

Lori Glass,MAW of Western NY
Corning, - Tuesday, November 14, 2000 at 05:43 PM (CST)

Justin, WHAT a catch!! We are so glad to hear that you had a great trip and caught some great fish! That one in the photo looks like a fighter, just like you. Hope that all is going well. As always you are in our thoughts and prayers.
Shelly, Andrew, and Hunter Randt <shelly73@twcny.r.com>
Rome, NY USA - Thursday, November 09, 2000 at 07:41 PM (CST)

Dear Justin and your mom, Thanks for the updates. I am glad to hear of your awesome trip. My little kids were very impressed with the size of your fish! Mom, I appreciate you letting me on to all of these great resources. I would like to chat with you more about the choices for surgery. When are you scheduled to go back to the clinic? We will be there on Friday. Maybe we will see you then. God bless you Justin and your family. Love, The Hennessey Family
Kathy Hennessey (Baby Anna's Mom, from 5C) <HHenn43@aol.com>
Boonville, NY USA - Monday, November 06, 2000 at 07:24 AM (CST)

Justin, I just received 3 of your pictures from Make a Wish today, WHAT A CATCH!!!! I am so glad you had a good time in Florida. Nadine and I think of you every day!! Hang in there and keep up the good fight.
Lori Glass,MAW of Western New York
Corning, NY - Saturday, November 04, 2000 at 02:55 PM (CST)

Just checking in on you today, Have you given your angel buddy a name? I`m a friend of Grammoo Brown. she`s the best. I haven`t met Hunter yet but maybe one day soon. when is your birthday? Hope you`re having a good day. LGod bless
Diana Roda
Diana Roda <therodas@juno.com>
Garrison, NY USA - Friday, November 03, 2000 at 08:39 AM (CST)

My prayers are with you all and especially Justin !!
Stephanie Nordstrom <Steffi319@aol.com>
Staten Island, NY USA - Thursday, November 02, 2000 at 02:08 PM (CST)

Hi Justin, My name is Joan and I am a mom on the POKWC board. I have been reading about how good you are doing and the involvement with Dana-Farber and Boston Children's Hospital. You are in good hands. My daughter was treated there. When you come to Boston, I can meet you and your mom. We have a POKWC trip to Boston planned already.

my prayers are with you!
POKWC Love
Joan Dextraze <jpobd@aol.com>
South of Boston, MA - Tuesday, October 31, 2000 at 08:45 AM (CST)

Hi Jason from Bob in Denver. Wishing you wellness frOM Colorado. You are in my paryers every night.
Bob Kurka <J79Q29 @ AOL.COM>
Denver, CO USA - Tuesday, October 31, 2000 at 02:56 AM (CST)

Hi, Justin. You don't know me, but I'm married to Kim Hight of the Ford St. clan, the only son of Harold and Carmen (Ford)Hight. I just learned about your battle with cancer via email and will lift you and your family up in prayer and will also get many others at church, etc. praying for you. May God bless you and may you feel His love during these hard times.
Diane Hight <khight@prodigy.net>
Wilmington, DE New Castle - Monday, October 30, 2000 at 05:50 PM (CST)

Justin I have been praying for you and will continue to do so. I am married to Leilani Napp (Hight) who is the daughter of Harold and Carmen Hight. Your name was brought up at the Ford Street Reunion to remember in prayer. Glad you got to go deep sea fishing and caught some big ones. Your web page is great.

Larry A. Napp <lanapp2330@aOL.COM>
Portage, MI USA - Sunday, October 29, 2000 at 11:31 AM (CST)

Our prayers are with Justin and his family.
May God bless you!
Rose and Lew Reas <lreas@stny.rr.com>
Big Flats, NY USA - Saturday, October 28, 2000 at 07:40 PM (CDT)

Justin, I`m sending you one of my angels. He`s a great buddy but you`ll have to give him a name. He`s real good at making people smile secretely. Whenever you feel a breeze or find a penny you`ll know he`s really there. He brings all my prayers directly to God,so I`ll pray for you often.

Diana Roda <therodas@juno.com>
Garrison, NY USA - Friday, October 27, 2000 at 05:43 PM (CDT)

Hi Justin. My minister just told me about your webpage. AWESOME. I hear you just got back from a fishing trip. I have been fishing about 8 times this year and it sound like you caught more fish than all my trips combined, but that ok. I am glad to hear that you are doing better. If you get some goofed up messages from me it's because I am new to the computer world. Good luck and God bless you and your family. A friend, Bob Blanchard
Robert Blanchard <rbrjbs@exotrope.net>
Corning, Ny USA - Thursday, October 26, 2000 at 03:47 PM (CDT)

Justin: You don't know me, but that's ok. I heard about your cancer from your Grandma and Grandpa Ford (I used to be their pastor), and I want you to know that I am lifting you in prayer. Also, my present Church has sponsored a blood drive in your name.
I am so glad that you were able to go to Florida for the fishing trip. What an awesome thing it is to be on the mighty ocean that our God created! He created you, too, Justin, and cares for you more than you can ever know. So, keep on keepin' on, Justin. We love you,
Betty Bement <bsbement@stny.rr.com>
Corning, NY USA - Thursday, October 26, 2000 at 02:32 PM (CDT)

Good luck again. Card playing partner of grammoo.
Arlene Smith
San Francisco, CA USA - Sunday, October 22, 2000 at 07:16 PM (CDT)

Justin, Way To Go on the Fishing!!! ;o) I am so glad your cancer is still shrinking...pretty soon it will be gone, I just know it. You have so many people praying for you, I know this cancer can't win with all of us rooting for you! I pray for you everyday and I will continue to until you are in remission! You have a friend in Mohawk,NY Buddy! Best wishes and God's speed! Michelle Brown(friend of Shelly and Hunter Randt)
Michelle Brown <shellylovebug@yahoo.com>
Mohawk, NY US - Sunday, October 22, 2000 at 04:53 PM (CDT)

HI Justin, It sounds like you had a great time in Florida. I don't have to know you to know how brave you are. I do know that I am less of a wuss because of you !!! My thoughts and prayers are with you and your family.
Sue Froio <suellenf@webtv.net>
Chittenango, NY USA - Sunday, October 22, 2000 at 05:46 AM (CDT)

Hi Justin and family. Glad to hear you had a nice vacation. Now its back to fighting that bad cancer site! Give it all you've got and know we are all praying for you to beat this thing. All our love and Prayers are with you all.
Jean and Tony Maneen <MissJeanie@aol.com>
Ilion, NY USA - Saturday, October 21, 2000 at 09:18 PM (CDT)

Wel-cow-me back Ford family, have checked in many, many times to hear of an update of the fishing expedition and any news from the last scans, we can all only pray that these damn tumors are inactive and only scar tissue remaining, my heart goes out to all of you. I check daily to see how you are all doing, you are in my daily prayers and constant thoughts, may God bless you all, Love, MOO
Grammoo <grammoo@telenet.net>
Jordanville, NY USA - Saturday, October 21, 2000 at 08:10 PM (CDT)

Hi Justin,
I am Hunter's uncle.
Good luck with everything. Hope you go out to Calgary and have some fun.
Brian Brown <BrianBrown1200@cs.com>
Covington, GA - Tuesday, October 17, 2000 at 08:38 PM (CDT)

Hi there, Justin! I'm a friend of Grammoo Brown's family, and although I don't know you, I figure you sure must be special to have so many people praying for you and sending you well wishes. Here are some special wishes to you from someone in Beantown. Take good care, Justin!
Annie Ho <akho23@yahoo.com>
Lexington, MA - Monday, October 16, 2000 at 04:39 PM (CDT)

Hi Justin! This is Lori Monett writing to you.
Marion Kinney is my mother. I can see that I just missed
you on your big trip to Florida. I hope all the marlin
were hungry. Even if you did not catch one, just the experience of being on the water is quite the rush.
As soon as you are able to, Jeff (my husband) and I would
love to have you out to Calgary for a visit. We have something out here called the Calgary Stampede which is a whole lotta fun! We can go horseback riding and we can take you on some rides. So, get healthy for us! We guarantee a fun visit! Looking forward to seeing you
soon. Do you know how to ride??
Lori Monett <monettj@cadvision.com>
Calgary, AB Canada - Sunday, October 15, 2000 at 06:37 PM (CDT)

Good luck on your scans tomorrow, and then catch a really, really big fish for Hunter, ok?? My thoughts and prayers are with you , kiddo!!
Grammoo <grammoo@telenet.net>
Jordanville, NY USA - Thursday, October 12, 2000 at 09:19 PM (CDT)

Hi! Justin
I am a friend of Hunter and Shelly Randt. You are a very brave boy. Hang in there and fight this thing! We are all praying for you.
Jodi Montalbano
< fuzzy5600@webtv.net>
Rome, N.Y. U.S.A. - Thursday, October 12, 2000 at 11:33 AM (CDT)

Wishing you all the best from Canada!!
I hope you have an exellent time in Florida!!!
All of your family are thinking of you.

mark kinney <aka_57@hotmail.com>
ab canada - Tuesday, October 10, 2000 at 04:41 PM (CDT)

Hang in there little man, we're thinking good thoughts for you.
Dan , Billie Jo and Hunter Kinville <kyan99@ktn.net>
Ketchikan, AK USA - Tuesday, October 10, 2000 at 12:22 AM (CDT)

Best of Luck to you Justin. You look like a strong kid, and I know you will beat this thing! You are in my thoughts and prayers! have fun in Florida. Sincerely, Michelle Brown(friend of Hunter Randt)
Michelle Brown <shellylovebug@yahoo.com>
Mohawk, NY USA - Sunday, October 08, 2000 at 08:36 PM (CDT)

Hello and good luck. I am Hunter Randts grandmother and my prayers and good wishes go out with you.
Sharon Randt <sjr69@earthlink.net>
Ilion, NY US - Sunday, October 08, 2000 at 03:17 PM (CDT)

Hi Justin,
Well you have had a tough road along the way but it sounds to me like you yourself are one tough guy and can and will bet this.
Just know you are not alone in this fight. Many firends,family and yes even some strangers like me are pulling for you.

Take Care,
Joanne Heinze

Joanne Heinze <culater213@aol.com>
Panama City, Fl. USA - Sunday, October 08, 2000 at 09:07 AM (CDT)

Hi Justin! I too am a friend of Grammoo Brown. I know that you had met her grandson Hunter when he was sick too. You are sure a very brave boy. Keep being brave, and you need to know you have alot of people out there pulling for you, saying prayers for you. Stay strong, we pray for you too become healthy again soon.

Ann Fical <shuladi@mvip.net>
ilion, ny USA - Saturday, October 07, 2000 at 10:16 PM (CDT)

Arlene Smith
San Francisco, CA USA - Saturday, October 07, 2000 at 08:23 PM (CDT)

Hi Justin: In the past I have played scrabble on the internet with Hunter's mom. She has kept me informed about
Hunter's progress. I hope that you will soon be finished with your chemo and back in first class, A-one condition.
Hang in there, boy, and bless your parents and all the friends who are out there rooting for you. You now have a
friend here in Mesa, AZ. who is also rooting for your return to good health!
Pat Pyle <PATTYDEAR@att.net>
Mesa, AZ USA - Saturday, October 07, 2000 at 07:31 PM (CDT)

Hi Justin, I am a friend of Hunter's Grammoo. I sure hope
you catch a huge marlin. Have a wonderful trip and enjoy
the sunshine, I will be thinking of you and sending you
healing prayers. Love and blessings, Carol
Carol Robinson <carol11@cs.com>
Fairfield,, NY USA - Saturday, October 07, 2000 at 06:06 PM (CDT)

Hi Justin! I'm another of Grammoo Brown's friends (she's got a lot of them!) We're all sending you a lot of love and prayers that you can beat this terrible thing! God bless you and your family! Barb G.
Barbara Griffin <BarbiLink@aol.com>
Ilion, NY USA - Saturday, October 07, 2000 at 12:14 PM (CDT)

Hi Justin, I am a friend of Grammoo Brown. And of all the things I have been reading in your guest book, I can see you are a brave little boy. Glad to hear about the grass stains, that's most encouraging coming from a mom, too! I have two boys, also, and know how special you are to everyone in your family. Keep smiling and may the sun always shine on you! God Bless!
Jill Dodge & Jim Harrer <grammoo@telenet.net>
Jordanville, NY USA - Saturday, October 07, 2000 at 10:22 AM (CDT)

Justin, you are the bravest, most curagious little "man" ever. As you and your mom know Hunter had Rhabdo, so far so good, but it is a long way til they say it is gone forever. All our thoughts and prayers are with you. Keep kicking Rhabdo butt!!
Shelly, Andrew, and Hunter Randt <shelly73@twcny.rr.com>
Rome, NY USA - Saturday, October 07, 2000 at 09:37 AM (CDT)

Hi Justin, We are friends of Grammo Brown and will keep you in our thoughts and prayers for a full recovery! You're a brave little boy, keep up the fight. We go to University Hospital alot ourselves, as my husband is battling a Kidney disease and is waiting for a transplant. Enjoy your trip and know we will all be in your corner. MissJeanie
Jean Maneen <Missjeanie@aol.com>
Ilion, NY USA - Saturday, October 07, 2000 at 07:12 AM (CDT)

Hi Justin, I hope everything continues to go good for you. You sound like one brave kid. I will think about you everyday and you and your family will be in my prayers. Sue Froio
Sue Froio <suellenf@webtv.net>
Chittenango, NY US - Saturday, October 07, 2000 at 05:26 AM (CDT)

Justin, you and your family have been in our thoughts and prayers since we met at the hospital with my grandson, Hunter. I am so relieved to hear that the tumors are shrinking. You are one brave little boy for going through all that this damn cancer has to offer. I know you can beat it, so GO TO IT, kiddo. Will send your website to all my friends so that they, too, will send lots and lots of prayers your way. And, oh yes, I can't believe the hair in the pictures!!! Love, Blessings and TONS of prayers to you and your family. Love, Grammoo Brown
Jo-Ann Brown <grammoo@telente.net>
Jordanville, NY USA - Friday, October 06, 2000 at 10:02 PM (CDT)

Hi Justin, You may not know us but we are friends of Gramma and Grandpa Ford. Just want you to know we are behind you 100% and with your determination and Gods help you will beat this thing.May God Bless.
Ted & Jean Swan <tswan2@exotrope.net>
Elmira, NY USA - Friday, September 29, 2000 at 09:28 AM (CDT)

Hey Justin
So glad to hear that nasty tumor is shrinking away! Keep up the good work and continue to be as brave as you already are!
Deb, from pokwc
Cleveland, OH - Thursday, September 21, 2000 at 02:28 PM (CDT)

Hi Justin. You dont know us, but I know your Mom from POKWC. My daughter Kaleigh also has cancer. Just wanted you to know we are thinking of you. I know your gonna win this battle.......your one tough kid! Hang in there.
Laurie
Indianapolis, In - Thursday, September 14, 2000 at 09:24 PM (CDT)

Justin, Pat, and family:

I'm so glad you got this page up. And glad to hear Justin's tumours are shrinking! Let me know if there is *anything* I can do. (That vein's still yours, baby, if you need platelets!)

Since I already circulated the small page I did for y'all, I'll go ahead and put the link to this page on it.
Diana
Dallas, TX USA - Thursday, September 14, 2000 at 11:00 AM (CDT)

Hi Justin,We are glad to hear that you are doing better.
Gramma and Grampa Ford
Lowman, NY USA - Wednesday, September 13, 2000 at 12:52 PM (CDT)

Thanks Pat for sharing all your thoughts with us about Justin.
Susan
Burleson, Tx USA - Monday, September 04, 2000 at 09:19 PM (CDT)

Hi All,

Our prayers and thoughts are with you....

Uncle Tom & Aunt Kathy
Uncle Tom and Aunt Kathy
Vestal, NY USA - Monday, September 04, 2000 at 02:25 AM (CDT)

Justin,
My son Dylan has the same illness you have. He too is a relapse and winning his battle (no sign of tumor or cells!) Hang in there buddy--I know the treatments are awful!! God Bless!
Traci and Dylan
Boonville, In US - Saturday, September 02, 2000 at 07:53 AM (CDT)

Dear Justin, This is Anthony. I hope you get well soon.
I am 9 years old. I am praying for you.
Anthony Haller
Odessa, NY USA - Thursday, August 31, 2000 at 06:31 PM (CDT)

All our love and PRAYERS are with you
Gramma & Grampa Ford
Lowman,, NY U.S.A. - Thursday, August 31, 2000 at 06:24 AM (CDT)

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