Devon Marie Lam - forever 5

Welcome to our Child Web Page. It has been provided to keep people updated about our Child. Born on January 24, 2003. Diagnosed on Oct 12, 2004 with an Anaplastic Ependymoma brain tumor. Suffered from post-surgery Posterior Fossa Mutism. As an inpatient, she was treated at Columbia Presbyterian in NYC from Oct 2004 to June 2005. Treatment: 6 months of high dose chemotherapy followed by a Stem Cell Transplant/Rescue...a 6 month remission resulted but only to reoccur in Nov 2005. Treated w/ 6 weeks of conformal and IMRT radiation to the entire brain and spine. Her tumor remained stable for almost 3 years with the help of complimentary and alternative protocols until November 16, 2008 when a new inoperable aggressive tumor was found. Currently there is no conventional treatment plan available. We have elected to keep Devon comfortable until it is her time. Devon earned her wings at 4:55 am on Friday December 5, 2008.

Journal

Thursday, June 25, 2009 7:58 PM CDT

Happy belated Father's Day to all the very cool Dad's out there. I know Devon was with her Dad that day. She absolutely adored him and he absolutely adored his princess.

Missing Devon which goes without saying is now becoming a tad more difficult for some reason. But we were fortunate enough to share her story as part of an HBO special spotlighting the "Friends Of Jaclyn" Foundation. FOJ will be covered on a Bryant Gumbel's "Real Sports" segment initially airing on Tuesday, July 21 at 10PM and then replayed a dozen times or so throughout the summer. It was a great opportunity to talk about our bunny and the amazing impact FOJ had on her and all of us. On a lighter note, I have to mention how fascinating it was to watch the crew take 2 hours to set up another 1 hour or so for the actual filming of the interview and then another hour for breakdown. All this for maybe a few minutes or less of "Devon time" but we were grateful and honored to be part of the "Friends of Jaclyn" story. And what an amazing story it is.

Speaking of FOJ, they need all the support and exposure they can get. You can help raise the level of awareness so that they can grow as a foundation and in return help give other families dealing with pediatric brain tumors the opportunity to experience the love of Friends of Jaclyn. Jaclyn Murphy is featured as CNN's "Young People Who Rock" Blog. We have a great opportunity to show CNN how much we care about pediatric brain tumor awareness and the mission of FOJ. Please go to http://ypwr.blogs.cnn.com/ and post a comment or question for Jaclyn. She will be answering questions live this upcoming weekend.

"Live in the Moment. Play in the Moment"

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In memory of Devon, please light a virtual candle at: http://www.gratefulness.org/candles/candles.cfm?l=eng&gi=devon

YouTube videos of Devon can be found on:
http://www.youtube.com/user/moorelaxer13

Also, a beautiful video tribute to Devon created by our dear friend Dave Kasuga has been posted on FACEBOOK if you join the group called, "In Loving Memory of Devon Lam"...thank you, Jess, for forming this group on Facebook.

Read Journal History

Hospital Information:

WE'RE HOME
74-18 58th Avenue
Middle Village, NY 11379
718.898.0717

Links:

E-mail Author: angelasantarsiero@yahoo.com

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