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Danielle's Journal

My Birthday! May 14, 2009.
Welcome to Danielle's Patient Web Page. It has been provided to keep people updated on her condition.
I have been diagnosed with the following diseases/disorders. Some of my medical conditions are still a mystery. It is believed that much of this may be due to a mitochondrial or autoimmune disorder.
Chronic Pain, Autonomic Dysfunction, Small Fibre Neuropathy, Raynaud's Disease, Anemia, Hashimoto's Thyroiditis (Hypo), Chronic Epstein-Barr Virus (CAEBV), Major Depressive Disorder (Unipolar Depression), Panic Disorder. I also have 2 L-Spine Herniated discs(w/ spinal encroachment), 1 bulging disc. Most recently I was diagnosed with Anterior and Inferior Glenohumeral Instability for which I had surgey on 1/19/09.
I was born with Congenital Esotropia
*Did you know that Clinical Depression is a real medical illness?*
Information on Stigma Please read this before you leave!
 CB Family & Friends
...Sometimes He lets it rain He Lets the fierce winds blow Sometimes it takes a storm it lead a heart where it can grow He can move mountains of grief and oceans of pain But sometimes He lets it rain...
Thank you to all of my angels who visit! Big Hugs to my other ill buddies! You inspire me!

Journal
Saturday, July 4, 2009 11:18 PM CDT I hope you all had a fun and safe 4th of July! It's about midnight here and it has quieted down. I stayed home with Javert since he's afraid of firecrackers while my parents went to a barbeque at our neighbor's house. He slept in my bed for a while, cuddled against me.
I found out that my brother's first child will be a girl! I'll have a NIECE come November! I'm really excited! She doesn't read this, so I can tell you that I've already put together and "Mommy and Baby" gift basket with all Avon stuff for her shower gift. I think she'll like it.
My brother and sis-in-law are coming over tomorrow to celebrate his birthday (which was today) and have a little barbeque. I'm making s'mores =)
My physical therapist is being a pain and my insurance is waiting on him to report my progress to them before they can approve more visits. It's been weeks and I'm doing what I can at home, but it's still frustrating. My friend Valerie and I started taking a walk around our neighborhood and plan to do it every Wednesday evening this summer. I want to be as active as I possibly can. Sitting in my room gets old quick!
Thanks for your prayers. I've needed them lately. A lot of emotions to work through.
I am really hoping this summer will be a special one for all of us. I'll update you all again soon!
Always, Danielle
Read Journal History
Hospital Information: Patient Room: HOME! North Shore Long Island Jewish http://www.northshorelij.com/ New York
Links: http://www.rarediseases.org National Organization for Rare Disorders http://www.metanoia.org/suicide/whattodo.htm Are you or someone you know suicidal? Get Help! http://www.mentalhealth.samhsa.gov/publications/allpubs/OEL99-0004/default.asp About Stigma - I ask that all of my visitors to please read this. :) Thanks!
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