History

Journal History

HAPPY 4TH BIRTHDAY BRANDON!!!

Fly, fly little wing
Fly beyond imagining
The softest cloud, the whitest dove
Upon the wind of heaven's love
Past the planets and the stars
Leave this lonely world of ours
Escape the sorrow and the pain
And fly again

Fly, fly precious one
Your endless journey has begun
Take your gentle happiness
Far too beautiful for this
Cross over to the other shore
There is peace forevermore
But hold this memory bittersweet
Until we meet

Fly, fly do not fear
Don't waste a breath, don't shed a tear
Your heart is pure, your soul is free
Be on your way, don't wait for me
Above the universe you'll climb
On beyond the hands of time
The moon will rise, the sun will set
But I won't forget

Fly, fly little wing
Fly where only angels sing
Fly away, the time is right
Go now, find the light

This song is by Celine Dion…….

Happy 4th Birthday to my little man…….Mommy and Daddy is sending you balloons today I hope you can see them. Marcus has a special balloon for his big brother I hope you can see what he drew..Love you and miss you Raisin Bran.

Love Mommy and Daddy

Tuesday, September 27, 2005 3:44 PM CDT

Today is my birthday and I am thinking of my little angel Brandon I wrote a poem for him I wanted to post it for you guys.
A Poem for my Brandon (written by me Cindy):

I waited for you to come
after you I was done
Motions left me tired
Doctors, nurses I should have had fired

Distraught uneasy
the word cancer
didn't please me

You were oh so strong
Diagnosis must be wrong
Your smile gave me joy
my beautiful baby boy

From the moment you arrived here
We knew you were beyond your years
Holidays came and went
All the days in the cancer ward we spent

Sisters made you cards
Til this day they receive my rewards
always there to protect
they gave you your respect

A champ you went out fighting
this poem I am writing
to honor a brave little man
to lose you wasn't planned

My favorite memory handy
the twizlers was your candy
one in each hand
you surely would demand

Faith sure made you laugh
you were focused when she was in your path

The day you left was bad
you knew that I was sad
I laid right by your side
and then I quietly cried

I whispered in your ear
'it's okay don't have no fear'
Mommy & Daddy will be fine
we'll see you in a short time

Heaven is waiting
Jesus is too
I was sad to see you go
but knew all you went through

I miss you everyday
remember mommy loves you okay
Thank you for leaving a little gift behind
He has your laugh he has your mind
He points to your pictures as if he's seen you before
Do you visit him to play when I lay him down and walk out the door

Protect him always and us as well
my little guardian angel
I wont say farewell
See you later is better soon I'll make my trip
I'll pick you up like I used to and carry you on my hip

Tell Granddad I love him
and kiss him for me
he's another I can't wait to see
I see you walking and running up there
my heart feels a tear

Kisses and hugs I send to my Raisin Bran (xoxoxoxo)
I still can't eat my favorite cereal
I try but it's like reading
'Footprints in the Sand'

Monday, May 23, 2005 7:32 AM CDT

I can't believe it's been 2 years already... It feels like Brandon was just here. We all miss him alot yesterday we released some balloons for him. Though today is also Alyssa's birthday I wish this never happened the way it did. We are supposed to be celebrating Alyssa's birthday and Brandon's anniversary in heaven it is very hard especially for Alyssa, please continue to pray for us as we continue our journey forward always remembering My baby Brandon..... WE LOVE YOU RAISIN BRAN!!!!

Monday, November 22, 2004 12:16 AM CST

I haven't updated this page in a long while everything seems to be going good. We are adjusting to Florida now. Marcus is 8 months old tomorrow and the girls got a puppy named Harley he is a Llhasa Apso. I hope that all is good with everyone else. Thanks for signing in and updating Brandon's guestbook.

Monday, May 23, 2004 5:17 PM CDT

To my Baby Brandon: It has been a year since you went to be with the Lord...I still miss your beautiful smile my pain is no less but everytime I cry and feel pain I will think of how brave you were and try to be as strong as you were when the cancer monster tried to consume you. Still you lived like a man never complained and always smiled. I love you and will always remember how much you taught us!!! Mommy loves you!!!

Wednesday April 8, 2004

To my Baby Brandon..watch over your new little baby brother Marcus....we love you always and are thinking of you everyday....

Wednesday, January 21, 2004 11:53 PM CST

Long time no hear....All is well here in Florida.....The girls are getting adjusted and Brandon is still around us....I just pray that all the children affected by cancer will be healed the pain of losing a child is horrible, my comfort is that I will see my baby again....Love to all that have prayed for us and even for those who don't......

October 29,2003

Well here we are again. We are doing o.k. I am working with Mary Kay to make ends meet so I've been spending alot of my time doing that. Everyone is doing good the girls are in school and loving it. We have our moments still but overall everyone has been holding on. I just wanted to update you on our daily lives so far so good. Please visit my site. www.marykay.com/cflores74 . God Bless All of you guys.

Saturday, June 28, 2003 10:29 PM CDT

Dear Friends and Family: Tomorrow I am singing in church "I know who holds tomorrow" The Brandon Carr Memorial Foundation is still moving on I am still urging everyone to donate toys, magazines for parents in hospital and money to this cause. Anything you can think of that will make the children and parents stay more comfortable please send it to us. Our local congresswoman is getting involved also her name is Nydia Velasquez thank you to all for helping this cause. Please help keep Brandon's memory alive. And help other children make it through these horrible treatments.

THE BRANDON CARR MEMORIAL FOUNDATION
Cynthia Flores
101 Centre mall #1B
Brooklyn, NY 11231

Wednesday, June 11, 2003 4:14 PM CDT

Tuesday, June 3, 2003 10:35 PM CDT

My mistake the foundation we are starting the name is as follows:

THE BRANDON CARR MEMORIAL FOUNDATION
c/o
Cynthia Flores
101 Centre mall #1B
Brooklyn, NY 11231

Tuesday, June 3, 2003 10:32 AM CDT

I have decided to start "The Brandon Carr Foundation" to help other families like ours who have to endure this difficult situation. Please spread the word and send donations to:

THE BRANDON CARR FOUNDATION
c/o Cynthia Flores
101 Centre Mall #1B
Brooklyn, NY 11231

Sunday, June 1, 2003 9:44 PM CDT

Dear friends and family, I am sorry that I have not been able to write in the journal recently. I just been having a hard time these days missing Brandon. I know he is in heaven but I miss him so much I can't function some days it's hard to understand I forget little things that I shouldn't I'm less motivated and not all days are like this but some days are. Please pray for me and my family. I really appreciate the love and prayers I've been geeting thank you.

Saturday, May 24, 2003 6:58 PM CDT

Brandon passed away May 23,2003 at 4:23 p.m. He's with God now...Thank you to all for your prayers and support.

Friday, May 16, 2003 9:17 PM CDT

Today was neither sad or happy I guess. Brandon had his bone marrow test done yesterday and the medicine that he took worked on the CD52 (ALL) cells he had but they have to see whether or not they are all gone for real and if so he still has the CD33 (AML) cells do we treat it or not. Please pray for him the Pathologists are saying they have never seen a case like his before they are not sure what to make of it.

Monday, May 5, 2003 7:55 PM CDT

Today Brandon started a new drug Campath. It targets the CD 52 marker he has 85% of. But more exciting than that the drug FLT3-inhibitor is available in boston they want me to take Brandon there if this doesn't work but thank God anyway He is making a way of no way.

Saturday, April 26, 2003 11:50 PM CDT

Sad News.... Brandon's leukemia is still there but we still have faith that God will do his work.....we are home now. We are now planning to bring him to florida hopefully we will get a wish from an organization. They have told me he is too young for a wish. Neverthless God is still in control I still ask you to pray for him it's not over yet.

Friday, April 25, 2003 0:03 AM CDT

Brandon had a rough day,,,,but of course he came out like a champ we still don't know the results yet but the spinal fluid I was told looked fine. Please continue to pray these next few hours are very hard but I'm still holding on to the true fact that God is in control.

Tuesday, April 22, 2003 10:13 PM CDT

UPDATE ON BRANDON...

Today Brandon had a catscan done which found he has a blood clot in his superior vena cava (the main vein into the heart). Brandon will go to the O.R. on thursday to have his broviac rewired which is probably the cause of it. Then they will do a bone marrow aspiration to determine his status. In a remission they are considering a mini-transplant with antibody treatment. If no remission then Brandon will be sent home to be comfortable because the drugs needed to be used would make him more sick and they are considering his quality of life. Please pray because I still believe that God is in control and He has a plan for Brandon miracles are always possible. Brandon is a miracle himself so I know. Please continue to pray for his healing and that the doctors will be shocked and we can tell them the real reason why Brandon is still here. GOD.

Friday, April 18, 2003 6:17 PM CDT

They repeated his blood work and it is again up I guess they made a mistake the first time. All is well.

I am walking this year at the AIDS WALK NY please support me in this walk.

CUT AND PASTE
https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=19764&supId=4516193

Friday, April 18, 2003 8:19 AM CDT

Yesterday I reported Brandon's counts are up... this morning his counts are back down so I asked them to repeat them I'll check back in later this didn't make sense to me.

I'll be walking in this year's AIDS WALK NY please support this cause:

CUT AND PASTE
https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=19764&supId=4516193

Thursday, April 17, 2003 10:29 PM CDT

PRAISE REPORT!!!!! BRANDON'S WHITE CELL COUNTS WENT UP TODAY FROM ZERO TO 0.8AND HIS NEUTROPHILS ARE AT 36% AND LYMPHOCITES AT 40% HIS BANDS ARE 4, SO HIS ANC IS 288. GOD IS GOOD ALL THE TIME AND HE IS DEFINITELY AN ONTIME GOD. PLEASE CONTINUE TO PRAY FOR BRANDON PRAYERS DO WORK!!!!!! JUST IN TIME FOR GOOD FRIDAY LETTING US KNOW HOW GOOD GOD IS TO US.... PLEASE PRAY FOR HIS LEUKEMIA TO BE GONE FOR GOOD AND NEVER RETURN I BELIEVE THAT GOD HAS TOUCHED BRANDON IN A MIGHTY WAY AND HAS SHOWED ALL OF US HOW GREAT HE IS ALWAYS GOOD AND BAD TIMES.

ON ANOTHER NOTE ON MAY 18, 2003 I WILL BE WALKING IN THE AIDS WALK OF NEW YORK I HAVE MY OWN SITE WHERE YOU CAN HELP ME REACH MY GOAL OF $1,000. I KNOW IT DOESN'T SOUND LIKE MUCH BUT TO THE CAUSE IT IS. IF YOU CAN PLEASE VISIT THIS SITE AND DONATE.

CUT AND PASTE:
https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=19764&supId=4516193

Wednesday, April 16, 2003 5:50 PM CDT

Today Brandon got his MRI done yesterday his heart echo showed that Brandons heart is functioning normally. So far everything is as it should be. Brandon is fighting the fight and God is right beside him. Thank you for your emails and prayers it has meant alot to me you don't quite know thank you for all the cards and little things that has been sent the kids and myself. Please continue to pray because prayer does work. Look at Brandon isn't he a miracle??

Saturday, April 12, 2003 8:55 PM CDT

Today was a little crazy Last night Brandons broviac ripped a little so it had to be repaired in the meantime they gad to place a temporary I.V. line so he was upset most of today. It will come out tonight at around 1 a.m. but still he was so annoyed with it. His breathing is still not 100% better but it's way better then the past days. Please continue to pray as they started planning MRI's and bone marrow tests especially because his counts are still at zero. Thanks to all.

Thursday, April 10, 2003 4:06 PM CDT

Brandon is doing alot better, he went to the playroom and he was enjoying himself even though he wasnt supposed to go to the play room but I bought the filter and he was alone it was like a private session. Check for new pictures today as he played.

Thursday, April 3, 2003 1:28 AM CST

Dear friends and family... Once again God has pulled him through this scary breathing problem. Brandon has proven them wrong once and again. I just wanted to update you that Brandon has begun on his journey I believe to a remarkable healing. Continue to pray for him please.

Tuesday, April 1, 2003 5:31 PM CST

By the time the Lord made women, he was into his sixth day of working
overtime.

An Angel appeared and said, "Why are you spending so much time on this
one?" And the Lord answered: "Have you seen the spec sheet on her? She
has to be completely washable, but not plastic, have 200 movable parts,
all replaceable, run on black coffee and leftovers, have a lap that can hold
three children at one time, have a kiss that can cure anything from a
scraped knee to a broken heart, and have six pairs of hands."

The Angel was astounded at the requirements for this one. "Six pairs of
hands?! No Way!" -- and that's just on the STANDARD model?" the Angel
asked. The Angel tried to stop the Lord. "This is too much work for one
day. Wait until tomorrow to finish."

But I can't!", the Lord protested, "I am so close to finishing this
creation that is so close to my own heart. She already heals herself
when she is sick AND can work 18 hour days.

The Angel moved closer and touched the woman, "but you have made her so
soft, Lord." "She is soft," the Lord agreed, "but I have also made her
tough. You have no idea what she can endure or accomplish." "Will she be
able to think?", asked the Angel. The Lord replied, "Not only will she
be able to think, she will be able to reason and negotiate."

The Angel then noticed something and reached out and touched the
woman's cheek. "Oops, it looks like you have a leak with this model. I
told you that you were trying to put too much into this one." "That's
not a leak," the Lord objected, "that's a tear!" "What's the tear for?"
the Angel asked. The Lord said, "The tear is her way of expressing her
joy, her sorrow, her pain, her disappointment, her loneliness, her
grief, and her pride."

The Angel was impressed. "You are a genius, Lord. You thought of
everything, for women are truly amazing."

Women have strengths that amaze men. They carry hardships, they carry
burdens, but they hold happiness, love and joy. They smile when they want
to scream. They sing when they want to cry. They cry when they are happy
and laugh when they are nervous. They fight for what they believe in.
They stand up for injustice. They don't take "no" for an answer when
they believe there is a better solution. They go without -- so their family
can have. They go to the doctor with a frightened friend. They love
unconditionally. They cry when their children excel and cheer when their
friends get awards. They are happy when they hear about a birth or a new
marriage. Their hearts break when a friend dies. They have sorrow at the
loss of a family member, yet they are strong when they think there is no
strength left. They know that a hug and a kiss can heal a broken heart.

Women come in all sizes, in all colors and shapes. They'll drive, fly,
walk, run or e-mail you to show how much they care about you. The heart
of a woman is what makes the world spin! They bring joy and hope. They
give compassion and ideals. They give moral support to their family and
friends. Women have a lot to say and a lot to give.

Pass this along to your women friends to remind them how amazing they
are.

Tuesday, April 1, 2003 4:48 AM CST

As you can tell Ican't sleep Brandon's breathing has been a little off they put off the machine instead gave him Decadron (a steroid) to help what they found was swelling. I continue to believe that Brandon will be completely healed but find myself feeling helpless as I watch a baby fight so much for his life not knowing anything else but a hospital room because even the time we spend at home is also isolated. "God help him I pray hear me please give him this healing you have promised" Maybe I sound desperate but it is written. I have to continue to believe that God has made these promises to us that believe in him and his plan.

Friday, March 28, 2003 11:54 PM CST

Brandon is very sick they want to put him on thr C-PAP his breathing is irregular and his saturation is going up and down they say he will eventually tire out if not put on this machine. Please pray for his lungs.

Thursday, March 27, 2003 10:31 PM CST

Today was alot better. Brandon is so much better than he was a few days ago. THe only thing concerning me mainly is that his white counts havent come up yet. He's getting GCSF shots and I know that God has His hands on Brandon so I guess then maybe I shouldnt worry as much. But still I thank every one who has been praying and continues to pray for him. God is good all the time. Please continue to lift Brandon up in prayers and hope to hear from you guys soon. Cindy

Monday, March 24, 2003 0:11 AM CST

Sunday was uneasy.... Brandon was throwing up and I think I just lost it. I finally have begun to break down. I cried and cried and cried.....Brandon has always been so strong through this whole thing I think I just wanted a chance to release some of my anguish for him. And it's not that I'm tired just tired of seeing him so sick like this. I know I can not allow myself to totally lose sight of what Brandon has already accomplished but I sometimes feel like God please when is this going to be enough or say why me but then I know God will answer me and say WHY NOT....

Saturday, March 22, 2003 3:23 AM CST

Brandon is throwing up he is still sick from the chemo I guess its not alot but its still bad. Please pray for us again. We are still waiting for his counts to come back up. Tomorrow he will start GCSF shots to help boost his white cells up. Then he will have a bone marrow test to see if hes in remission once again. I know God did it before and he'll do it again.
Thank you to everyone for your constant prayers for those of you who have prayed for the forty days and continue to pray for him.

Monday, March 17, 2003 4:36 PM CST

Today was Brandon's last day of this chemo phase. Now we wait til his counts recover I'm still praying that his appetite come back to normal. He got mitaxantrone which is blue chemo they said to watch his urine but he hasn't had blue urine yet. Any way please continue to keep us in prayer. God Bless all of you and your family.

Saturday, March 15, 2003 10:36 PM CST

Today was a little better than the past couple of days. Yesterday Brandon had a new line out in after one of his nurses pulled on his line while putting up new ones and Brandon bled alot we had to apply pressure to his neck because the CVL was in the main vein and it bled for a long time. After applying pressure to it and putting on a pressure gauze we gave him platelets cause they were so loe his blood wouldnt clot without help. He received emergency platelets. I dont ever want to go through that ever again it was horrible. Tonight is Brandon's last Ara-C then he will get Mitaxantrone tomorrow and Monday morning thenwe wait til his counts come back up. REMISSION REMISSION thats the special word and what I pray for Brandon will happen.

Thursday, March 6, 2003 8:04 PM CST

Dear Friends and Family,
I figured since I have insomnia I would update you on the things going on with Brandon he is doing o.k. although he is not in the best condition I thank God that he is doing alot better than he was this past week. He just finished four days of intensive chemo and next week he will get four more then we have to wait til his counts come up. We are praying for remission so we can move on and God has never let us down yet. Brandon has a fighting spirit and continues to prove to these doctors and nurses and all around him that God is in control and medicine isn't everything. God is working!!!!! Please continue to pray for him.... Brandon is on bi-carbs to help his breathing and is on several antibiotics though the infections he had are no longer present they keep them there as precaution. I guess what I am most worried about right now is his appetite if he loses more weight they will put him on TPN which is food by vein this increases his risk of infection but whatever happens I will continue to trust that God is in control and knows what to do. Thank you to you all who are praying for him and please keep in touch your cards and letters make him very happy.

Cindy

Tuesday, March 4, 2003 10:20 PM CST

The past couple of days have been very hard. Brandon went from being extremely sick almost on a Bi-Pap machine to being fine. A roller coaster its actually what it feels like. Yesterday his oxygen went down to 90% so they decided to put him on a breathing machine to apply pressure. Suddenly Brandon fell asleep after being exhausted from his struggle to breath and his sats came back up. I knew people were praying for him even though I was too stressed out to pray. God has worked yet another miracle with Brandon. His infections still haven't cleared I pray the cultures they will draw tonight will be, they are discussing removing his line. Tomorrow he will get another MRI to see if the leukemia is still in his extramedullary please pray it gone Lord only knows. I trust that HE will do it. Brandon is a fighter in pain he still tries to keep his spirits up if that's possible I don't know how he does it. But he stays strong. Cindy

Sunday, March 2, 2003 10:34 AM CST

We are in the hospital already we were supposed to come back Wednesday but Brandon had other plans. He has an infection and they are giving him antibiotics. From last night to this morning he went from 9 kilos to 10 kilos which is about 2.2 pounds gain of weight they are concerned they are going to give him lasix to get rid of the extra fluid. Please pray for him. My number here is (212) 305-8854 case anyone wants to call me.
Love to you all Cindy

Wednesday, February 26, 2003 5:07 PM CST

Today was Brandon's bone marrow test....and spinal tap.. We are waiting for the results but the choices we have to make are as follows:
If the bone marrow and spinal fluid are both negative for leukemia they want to transplant, even though Brandon is at risk for death.
If the tests are positive they want to try anti metabolic (body) drugs.
We have to make this decision but I'm asking this of all who visit this site. Please pray about this and visit our guestbook and let us know what your opinion is as if Brandon were your son, please we are asking this as help from all who love him. Help us make this decision,we beleive the God has a purpose for Brandon and putting all those obstacles in the way of him getting the transplant means something to us but we know that prayer is key to this decision. Thank you to all and I hope to hear from you soon.

Wednesday, February 25, 2003 6:42 PM CST

Today was Brandon's last day of radiation!!!! Tomorrow he will get another bone marrow test and spinal tap then we'll see what to do from there. He has been having trouble with his appetite I ask you all to pray for his tests to be clear from leukemia and that his appetite will come back before he loses alot of weight then they'll have to put a tube down his nose to his stomach. Thank you all for your support.
Cindy

Monday, February 17, 2003 10:36 PM CST

Subj: Brandon Carr Morales
Brandon is currently getting radiation and now is getting chemo on top of that every Friday untill they figure out what to do as far as his care. Brandon is a unique case is what they are saying already being an infant with ALL he has withstood all the chemo and treatments. Even though he relapsed he went back into remission only after one course of chemo then right when he was going to get a BMT he had a MRI done of his head and spine and the left side of his face lit up they biopsied and founf he had leukemia in his medullary muscle and nerve which causes his face to stay drooped on his left side. Radiation should help him they say but they still don't know where to take it next I read an article from St. Judes that BMT is not a good option for infants with ALL. Please pray for Brandon he is very cranky from all this and he's not like this usually. Please update his info he is featured in February on the hugs and hope site (www.hugsandhope.com).

Thank you and God Bless you
Cynthia

Tueday, February 11, 2003 7:56 PM CST

Dear Friends and Family.. Tomorrow Brandon will have his tests on his blood done to check for the monster we call "leukemia" I am trusting God to clean Brandon's blood. The reason for this test is because his white blood cell count went from 1.1 last Wednesday to 5.2 yesterday also his young cells are at 14% please continue to pray for him because only God knows what will happen and what HE has planned for Brandon.

Thursday, February 6, 2003 10:07 AM CST

Dear Friends,

Please pray this prayer for Brandon for 40 days. I trust that you love him and will do this for him. Thank you.

Dear Lord Jesus Christ, I petition You, the Creator of the Universe and the Great Physician, to hear our prayer for personal healing for Brandon. I believe that You want him to regain his health and strength, and I request that You touch him with Your grace and power, forgiving us of any sin, removing all obstacles from our life which could prevent his healing. I forgive any who I have held something against. Now, I take authority by Your Name over his leukemia and rebuke it. I speak to his illness and command it's departure in the Name of Jesus Christ. Lord, I also recommit my life to Your service and I will glorify Your Name as a part of his testimony. Thank you for hearing my prayer. Amen."

Wednesday, February 5, 2003 1:23 PM CST

I just got back from the hospital. The transplant is a no go. Brandon's tissue was positive for the leukemia so they won't do the transplant because they consider it another relapse. But Dr. Ify says we can still try (arsenic trioxide) which attacks only the bad cells. Call me for more info for now he'll continue the radiation he's been getting daily since this is the way to get rid of the leukemia in his tissue.

Monday, February 3, 2003 10:11 PM CST

Today is Brandon's first birthday ..Yesterday we had family over it was very nice. Brandon played with my brother Willie and he was so happy all day, he slept and ate cake it was beautiful.. This morning he had radiation this morning Chris had to take him because I felt very sick please pray for Brandon and pray that I get over this cold quickly and Brandon doesn't get it..

Friday, January 31, 2003 at 09:00 PM (CST)

We are in ICU only for observation we will be home tomorrow Brandon is doing well. They inserted tubes into both of his ears and they biopsied his gland they went through his cheek and also a spinal tap. Please continue to pray and Brandon will be enjoying his birthday on Sunday and Monday and every other day I get I love him dearly and get alot of strength just by watching him laugh the devil off. Praise God.

Thursday, January 30, 2003 at 10:03 PM (CST)

Today was a bad day.. Brandon's facial episode they say might be leukemia in the glands under his ear pressing on a nerve causing his face on the left sid enot to move. They it might not have shown up on any of his last tests that says that he is remission because it might be a mass. Tomorrow he might have a biopsy to tell and I think he might be admitted. Please pray for him I feel like I can't take it pray for me too please.

Monday, January 27, 2003 at 03:34 PM (CST)

Hello everyone.... No results yet but they are going on like the transplant is still an option.... The big meeting is Wednesday for the IRB to renew his protocol so pray on that and his counts are still good.. Let's continue to pray for total healing and strength for the next few weeks will be very hard. Brandon will be one years old on Monday.....Happy Birthday Brandon!!!!!!!!!!

Saturday, January 25, 2003 at 04:20 PM (CST)

Brandon is home for the weekend he will go back to the hospital on Monday morning.. So far his CSF is clear we are still waiting for the final results of his bone marrow this will determine whether or not he is in remission and his transplant. He has to be in remission in order to get the transplant. Please pray for this to happen and for the transplant to be successful also for Brandon not suffer all the side effects they tell me about.

Thursday, January 23, 2003 at 01:51 PM (CST)

Dear friends and family... tomorrow Brandon will be receiving a bone marrow and spinal tap if the bone marrow shows any leukemia present the transplant is not possible please pray for us they are also talking about sendin him home if this is the case.

Saturday, January 18, 2003 at 11:33 AM (CST)

Anyone know where I can get a laptop so I won't go crazy in that small room....... Any ideas I would appreciate it.

Wednesday, January 15, 2003 at 11:18 AM (CST)

New news please call us at 212 305 8855....

Monday, January 06, 2003 at 01:32 PM (CST)

It has begun.... Brandon starts his testing today .... They are pushing to do the transplant next week instead of the week after please keep him in your prayers always..... Today he'll get a heart echo and EKG and wednesday he'll get a kidney test...Cindy

Sunday, December 29, 2002 at 10:19 PM (CST)

Hello everyone!!! Brandon has no cells in his spinal fluid and his bone marrow looks empty as well Thank GOD He is the one doing all this!! Today was ok Brandon got RSV-IGGIV again so it was rough a little but you know Brandon he's like a little warrior... Hope to talk again soon thank you to everyone praying for my little guy...

Monday, December 23, 2002 at 09:34 PM (CST)

Dear Friends,
Brandon is back in the hospital same room same number. He had 103 fever and is bleeding through his stool. Please pray for him these next days we will be here throughout the transplant and whatever is causing this bleeding his counts are 0 and he can not fight alone.

Friday, December 20, 2002 at 09:11 PM (CST)

We are home!!!! Thank God!!!! For one week....

Wednesday, December 18, 2002 at 09:58 PM (CST)

Brandon's CSF count (spinal fluid) is now 10!! No mistake that's really the number it went from 2350 last week to 10.. Wow Thank God and only Him!!! We might be going home for a week Friday because they want to give him a break before the transplant..... Thanks for all your prayers.. Cindy

Saturday, December 14, 2002 at 10:01 PM (CST)

Dear Friends... Brandon is well today he is getting four weeks of chemo already his spinal fluid has dropped from 2350 to 400 in leukemic cells please contiune to pray for him right when he's in remission again he will recieve his cord blood transplant I am nervous but not afraid God still has the upper hand and whoever does not believe will. God Bless You and I am still in the same room (1014) and my # is 212 305-8842

Cindy

Tuesday, December 10, 2002 at 11:22 PM (CST)

Dear Friends, I'm sorry to let you know that Brandon has relapsed we will be in the hospital for a while he will have a bone marrow transplant please pray for him. 212 305 8842 Any one sending things to me someone will be at home to receive them. Thanks.

Sunday, December 08, 2002 at 05:54 PM (CST)

Tomorrow is a long day. Brandon is getting a new line put in and a bone marrow aspiration and a spinal tap. Please pray for Brandon he will be getting alot of things done and I get so nervous for him. I'll e-mail everyone when it's done to let you know how he's doing.

Saturday, December 07, 2002 at 12:37 PM (CST)

Please pray for Baby Brandon.... Last night he scared us!!! His face looked like it was crooked and his right eye was closed.This happened while he slept he woke for a bottle and I was so nervous. But with prayer everything went back to normal. Another miracle from Him. I guess it was a reminder because yesterday I was in a bad mood so I guess I shouldn't have been.

Thursday, December 05, 2002 at 11:14 PM (CST)

SNOW SNOW SNOW SNOW..............
I can't say it enough too much too fast. Too bad Brandon can't enjoy it though.Next year he'll be running out there.Good night to all.

Wednesday, December 04, 2002 at 11:33 PM (CST)

Home Home Home is all I can say. Brandon is so happy to be home and so are the girls. Go to www.kidsneedprayer.net to see Brandon on his other site. Thank you for all your prayers and calls. Hope to hear from you soon.

Monday, December 02, 2002 at 08:46 PM (CST)

We hope to go home tomorrow or wednesday please pray for his counts to go up!!! Thank you to everyone that has been calling me here. Hi Jackie and Elsa..... To my extended family I say thank you and God Bless You and your families for all your support please keep in touch with me.....

Monday, December 02, 2002 at 08:46 PM (CST)

Sunday, December 01, 2002 at 09:45 AM (CST)

Brandon is RSV positive to you and I a regular cold but not to him. We are now in recovery in ICU they had to take his broviac line out for infection. He didn't handle the anesthesia too well so I don't have long to write he is now asleep finally we'll be home in a couple of days please keep us in your prayers. Our room number is (212) 305-8837 in case anyone wants to call.

Thursday, November 28, 2002 at 11:36 AM (CST)

On my way to the hospital Brandon's blood came back positive for bacteria. Happy Thanksgiving gope to be home soon....

Thursday, November 28, 2002 at 12:22 AM (CST)

Wednesday was hospital day..Brandon has a cough.... The only reason we didn't miss thanksgiving is because he doesn't have a fever. Please pray for him. I don't want to go back before I have to.....He'll be back to the hospital on Monday for his RSV-IGG. Cynthia

Tuesday, November 26, 2002 at 05:45 PM (CST)

Tomorrow another day at the hospital. Brandon is going for his counts. I hope it doesn't rain I heard something about snow. Well Happy Thanksgiving!!! Wish you all well!!!!

Monday, November 25, 2002 at 06:35 PM (CST)

Today we went for a walk while the girls were in school. Brandon and I spoke. I talked and he babbled. I love spending time with him when he's so happy. I wish he could be like that always but I'll take my good days. Thanksgiving is almost here and I'm not really looking forward to it the way I thought I would be. The girls are so I guess I'll make the best out of it. We'll see, I'd just like to thank all my new friends that I've met over the past two months, Gina, Jackie, Noreen, Ellen, Jenn, Lisa, Laura, Kenny Ray and Georgia. If I didn't mention you it's not because I think any less of you guys but I know that from kindness comes reward in the kingdom and God will bless all that are pure at heart. Thank you for all your help or even your kind words it's making alot of difference. Thanks for the chats and e-mails of support and love.

Sunday, November 24, 2002 at 06:05 PM (CST)

Hello everyone!! Brandon is feeling much better thank you to everyone that prayed for him. I stood home today. The girls watched movies and I'm trying to keep Brandon busy.
Talk to you later!!!!

Friday, November 22, 2002 at 07:45 PM (CST)

Hello everyone, today was o.k. Brandon is still not himself. I hope this wears out soon. I didn't do much today it's cold outside and Brandon's counts are down so I stood home except to walk back and forth to and from school for the girls. Thanksgiving is coming I hope everything pans out. Brandon is awake now so I'll have ti go all my time and attention goes to him if I'm not paying attention to him he pretends like he's coughing. It's really funny and then when I do look at him he laughs. It's cute really. Well that's all for now see ya next time.

Wednesday, November 20, 2002 at 11:25 PM (CST)

Today was long Brandon received his cytoxin he doesn't feel well at all. He's sleeping alot. He has to get something called RSV-IGG which is to protect his lungs because he was intubated before and he had lung disease whe he was first diagnosed. The infusion takes 4 hours and costs $20,000 so hopefully his medical coverage covers it. I'm not worried I just want to get through the holidays so far nothing is sure yet for the kids but I have faith that God will provide just what they need. He has been doing this already.
Thank you God. Brandon is so strong he's stronger than any little baby I've ever seen but the kids at the hospital when they get their chemo they're amazing. The older kids ride on their I.V. poles and make a fun game out of it. They are brave and should be an inspiration to us when we complain about the silly things in life. Some with no hair or little of it. Ports in their chests and blood drawn. Knowing more then the doctors and nurses who care for them. They inspire me and even though Brandon can't talk words yet the way he handles himself through this makes me believe that everything will be o.k. It has to be for everyone I've seen alot of things this past five months but the most amazing are these kids the have and illness that can take their lives. But they act like no way I just got here and enjoy their lives even more than the rest of us who are healthy and breathing and don't know what it's like not to be able to hold anything down and feel weak and nauseous and not have any hair and have to have a permanent I.V. attached at all times. We take for granted simple things like a fever. We take tylenol or motrin. They can have a life threatening or fatal infection. God Bless these kids and open our eyes to learn what they contribute to our lives. Showing us how to live even if we don't know how long we'll be here. I guess no one knows, but that's the point no one knows.

Tuesday, November 19, 2002 at 10:30 PM (CST)

Tomorrow is chemo.... This one makes him very irritated so he'll be in a bad mood for sure. Though last time his mood only lasted two nights. Pray for Brandon and I that tomorrow go o.k. It's very cold outside I pray that he doesn't get sick. Today was kind of boring... except that we recieved three boxes of food for thanksgiving next week. Thank you for coming to the site everyone.

Monday, November 18, 2002 at 03:11 PM (CST)

Today was a long day.... they put off Brandon's tests until Wednesday. he'll get the chemo (cytoxin) and RSV-IG(V). So Wednesday will be hectic for sure. Thank God for today Brandon is still feverless, and we all know that prayers work and it would be very hard to get through the day except for all the support I have from my new friends. Talk to you tomorrow.

Sunday, November 17, 2002 at 05:58 PM (CST)

Today we went to church, it was fantastic a real refreshment for a frustrating week. Of course the start of the show Brandon was making so much noise and jumping up and down. It is still raining and tomorrow we have to go to the hospital Brandon is getting RSV-IG and I guess his counts also tomorrow is open school day so I get to talk to the girls' teachers and make sure everything is ok. Talk again tomorrow.

Saturday, November 16, 2002 at 09:02 PM (CST)

Brandon is asleep, his nurse came tonight to give him chemo (ARA-C). He'll sleep all night most likely. It was rainy outside so we stood indoors. We made Banana Bread from scratch it was something amazing, the girls were so excited. I guess we don't get out much so their excitement level is minimal. All the less I had fun making the bread with them. And it tasted good too. Brandon even had some before he went to bed. Tomorrow is church so I should get to bed but I just received a e-mail from Jackie a christmas elf for Jamara and Brandon, she is amazing all in herself, I was very emotional reading her e-mail. I pray that God will Bless her and her family and we will be life long buddies. Good Night.

Friday, November 15, 2002 at 11:52 AM (CST)

Today is great Brandon is a little weak because of all the chemo and his counts are down. But you know Brandon he fights everything. Strong little boy that's what he is and he makes me strong just watching him. Thank God for him, he opened our eyes and showed us what life is really about. Thank the Lord that he's still in remission.

Thursday, November 14, 2002 at 12:12 AM (CST)

Wednesday was hospital day!! We went to Columbia-Presbyterian Hospital Oncology Building to check Brandon's counts. His white blood count was low and his ANC is 228 meaning no outside for him. He was happy all day except when we had to change the dressing on his broviac, because he doesn't like it when you hold his arm down. But overall he was fine. Thank God for another day!!!!

Tuesday, November 12, 2002 at 08:44 PM (CST)

Today Brandon slept alot. It was rainy so we stood indoors. He's still active and alert. Playing around a little too much I can't keep up. Thank God he's still doing fine. Thanks for you prayers.

Sunday, November 10, 2002 at 01:31 PM (CST)

We just came back from church. Brandon is watching football. I guess he likes the movement. He is very active today. Later on tonight Leandra his nurse will come by to give him chemo again then he'll have a break til thursday.

Saturday, November 09, 2002 at 11:01 PM (CST)

It's already November we are just trying to prepare for the holidays. Brandon hasn't had a fever in three months. he's in remission and is under going his second half of his re-induction phase. Praise God.

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