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Amelia Joy Marohn

Welcome to Amelia Joy's web page.
It has been provided to keep people updated about our little angel.
Amelia Joy was diagnosed with

a serious heart condition called 'Hypoplasic Left Heart Syndrome' when mom (Nikole)
was 18 weeks pregnant through a
regular sonogram. Basically, the left side of the heart
was not functioning. Our family (Jeryl, Nikole, and our
four daughters Hannah, Emma,
Julia, and Isabela)
left Buffalo for delivery at
Cleveland Clinic on
June 21, 2004. Amelia
was safely delivered at
the Cleveland Clinic
on June 23. On June 29th,
Amelia had the

first of three surgeries to repair
her
heart. It was called the Norwood
procedure.
Her second surgery, the Glenn,
was done March
9th, 2005. Recovery has
been amazing and fast.
Amelia had a third
open heart surgery called the Fontan at Boston
Childrens on March 20th ,2008. She has done
very well and she is finally home and we are together as a family. Her recovery from the Fontan was pretty smooth.Thank you for your prayers. Everyday with Amelia is a miracle. Amelia is a survivor because God promised she would be...


Amelia Joy (Jesus's Lil Miracle Girl)

Born: June 23 2004 @ 8:00pm

"We shall also rejoice in our sufferings, because we know that suffering produces perseverance, perseverance, character, and character, hope." Romans 5: 3-4

Journal

Wednesday, August 27, 2008 7:54 AM CDT

Do you like the new pictures? Today I am going to take the kids to Niagara Falls so I will have more soon. The Falls is amazing! Amelia cannot wait to go. She thinks she is going to be able to play in the waterfalls...have a wonderful day.

Blessings. Nikole-mommy to my little "Joy"

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Hospital Information:

Patient Room: Upstairs, the bottom bunk!

HOME !!
274 Miller Street
NT, NY, 14120

Links:

http://clevelandclinic.org   #1 ranked heart hospital 12 years in a row according to World News Report
http://www.tchin.org  
http://www.aphfund.org  


 
 

E-mail Author: eightisenough@mac.com

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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