Haley Pilar Vana

Haley snowshoeing near our house in Carson City.




Welcome to Haley's Web Page. After undergoing a biopsy, Haley was diagnosed in April 2002 with an inoperable anaplastic astrocytoma, an aggressive brain tumor for which there is no cure. She underwent 18 months of antineoplaston therapy with Dr. Burzynski and 8 months of Protocel. For over two years her tumor remained stable. In July 2004 Haley underwent a temporal lobectomy (craniotomy) to remove some of the tumor and to help relieve her many focal seizures. Over 1/2 of the tumor was removed, the seizures were stopped, and the tumor was rediagnosed as a ganglioglioma, a low-grade brain tumor. In January 2005 it was determined that the remaining tumor had experienced some growth. On January 26, 2005 Haley underwent a second surgery to remove some of the growth and as much tumor as possible. On Feb 18, 2005 she began 10-12 cycles of Temodar, an oral chemotherapy. On September 7, 2005 Haley underwent a third surgery to remove a cyst and more tumor, and remained on the Temodar protocol, but an MRI in November showed new tumor activity. On January 18, 2006 she began six weeks of intensity modulation radiation at Stanford, finishing up the treatment on March 1st. Thanks for visiting her website; please leave a message in the guestbook while you are here.





Haley's tag (above) is compliments of the TAWC taggers. If you would like to receive your own set, please send an email to Kristy (kristyday@gmail.com) and let her know!

Journal

Wednesday, February 4, 2009 9:15 PM CST

Hi my name is Haley and I'm 10 years old. My tumor has been stable for 3 years now. My last M.R.I in July of 2008 was stable. My next M.R.I. will be in June of 2009 and I hope it will be stable. There's a good chance it will stay stable but it will always show up on scans.

Read Journal History

Links:

http://www.caringbridge.org/nv/baileyaustinjohnson   Check out Bailey's website. He's a little boy who lives near Haley who is fighting neuroblastoma.
  
  

E-mail Author: sciencegirl92@yahoo.com

---

 

Your gift will help millions of people stay connected with friends and loved ones during challenging times.

---

 

This page has been viewed 49816 times.

Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.