Haley Pilar Vana

Haley spent a day at fashion camp this summer. Here she is in an "after" photo.




Welcome to Haley's Web Page. After undergoing a biopsy, Haley was diagnosed in April 2002 with an inoperable anaplastic astrocytoma, an aggressive brain tumor for which there is no cure. She underwent 18 months of antineoplaston therapy with Dr. Burzynski and 8 months of Protocel. For over two years her tumor remained stable. In July 2004 Haley underwent a temporal lobectomy (craniotomy) to remove some of the tumor and to help relieve her many focal seizures. Over 1/2 of the tumor was removed, the seizures were stopped, and the tumor was rediagnosed as a ganglioglioma, a low-grade brain tumor. In January 2005 it was determined that the remaining tumor had experienced some growth. On January 26, 2005 Haley underwent a second surgery to remove some of the growth and as much tumor as possible. On Feb 18, 2005 she began 10-12 cycles of Temodar, an oral chemotherapy. On September 7, 2005 Haley underwent a third surgery to remove a cyst and more tumor, and remained on the Temodar protocol, but an MRI in November showed new tumor activity. On January 18, 2006 she began six weeks of intensity modulation radiation at Stanford, finishing up the treatment on March 1st. Thanks for visiting her website; please leave a message in the guestbook while you are here.





Haley's tag (above) is compliments of the TAWC taggers. If you would like to receive your own set, please send an email to Kristy (kristyday@gmail.com) and let her know!

Journal

Tuesday, July 13, 2010 10:13 PM CDT

Hi Everybody,

Sorry it's been so long since I've last updated. My MRI was stable and we are all very thankful. I had testing and it went very well. The doctor that did it said that I did a phenomenal job and while we were in California we went to San Francisco and saw Wicked.

I'm starting seventh grade and I'm going to have six different classes. I am going to Camp Okizu in less than a month. Camp Okizu is a camp close to Chico, California for kids who have cancer (and their siblings).

Thanks for visiting,
Haley

Links:

http://www.caringbridge.org/nv/baileyaustinjohnson   Check out Bailey's website. He's a little boy who lives near Haley who is fighting neuroblastoma.
  
  

E-mail Author: sciencegirl92@yahoo.com

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