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Welcome to Timmy’s Web Page. Our lives were completely changed when our son Timmy was diagnosed with a brain tumor on November 27, 2004. He was admitted to the Pediatric Intensive Care Unit of Children’s Hospital of Philadelphia for seven days. Timmy had a biopsy of the tumor which revealed a Grade 2 Thalamic Astrocytoma. Because it was diffused, infiltrative and located deep in the brain, it was and still is considered inoperable.
Timmy has undergone six weeks of IMRT (radiation) at the Hospital University of Pennsylvannia. He is currently undergoing ten rounds of oral chemotherapy (Temador) as an outpatient at Children’s Hospital of Philadelphia.
Timmy’s journey has been filled with many ups and downs. I have created Timmy’s Journal to keep our family and friends updated along the way.
Thank you everyone for the love and support you have shown Timmy and our family during this difficult time. We could not do this without all of you.
As of May 18, 2005, Timmy’s tumor has shrunk 35 percent!
On August 21, after a routine MRI, we get the heartbreaking news that Timmy's tumor has regrown about 20 percent. After much research, we chose to place Timmy in a clinical trial with a phase 2 drug called Lapatinib. The night before we were to start, the trial was closed due to a severe toxic reaction caused by the drug. We decide our next best course of treatment is a protocol of Vincristine and Carboplatin. For many years these drugs have been shown to be effective in shrinking or stabilizing some tumors.
On September 9th, the new protocol begins.
On September 16th, Timmy has a port put in his chest to help better deliver his chemotherapy and draw blood. After ten weeks of this protocol, another MRI will be done to see how effective these drugs have been.
On November 11th, we once again get the heartbreaking news that the chemotherapy has failed and the tumor has progressed.
We once again decide to enter the re-opened Lapatinib clinical trial. Timmy starts oral Lapatinib on November 28th.
We hope and pray that this tumor will again shrink and someday die. Our brave, beautiful son deserves the chance to grow up and live his life. He dreams of becoming a policeman or an army man. I know he can make a good difference in this world someday.
Please sign our guestbook. We love reading your messages and gain strength and encouragement from them.
On January 19, 2006 after two months in the Lapatinib clinical trial, Timmy's MRI shows aggressive tumor progression. Timmy is admitted to Children's Hospital for one week on a high dose of steroids. The steroids fail to help Timmy become strong enough to start more chemotherapy. The decision is made to bring Timmy home under the care of hospice.
 
*HUGS* TOTAL!
Give Timmy Some Hugs!
Timmy's "Song of Love"
A favorite picture; when I would ask Timmy, "are you okay?"
He would always say, "I'm fine, Mom, I'm fine."
Me and my beautiful boy.
Somewhere Over The Rainbow
Timmy's "My Life" Video
Journal
Sunday, January 2, 2011 7:24 PM CST Sunday, April 11, 2010
TIMOTHY PAUXTIS
2-29-96 to 4-11-06
Hello Everyone,
I am not sure there is anyone still reading out there. I wanted to write today because it is Timmy's 4th anniversary that he went to Heaven. It is the most beautiful, warm day here in New Jersey. The skies are Timmy blue!!! Thank you baby.
Our family is doing well. I am going to start work as a nanny to a wonderful family with 3 children, and one more on the way! They are lovely and I think that this will be good for me. I have so much love to give. I am also still volunteering at The Ronald McDonald House. I continue to enjoy giving back to an organization that was so good to our family in our time of need.
Andrew is engaged to a beautiful girl Kristen. Their wedding is October 22, 2010. They have a happy life together, and so much good to look forward to. I would never mention it to Andrew...but I think about grandchildren all the time!
Jason is finishing up his 3rd year at The Florida Institute of Technology. He has achieved so much this year! A major accomplishment is his CFI (Certified Flight Instructor). He will be working at Monmouth Excecutive Airport in New Jersey this summer teaching others how to fly. He's only 21 years old!
Jay and I are so proud of both our boys and look forward to all the joy their lives will bring us.
My heart continues to hold onto memories of Timmy. There are days I smile when I think of him. There are days I cry when I think of all he went through and all he will never get to do. I feel so separated from him, but the love between us remains as strong as ever. I know that Timmy lives on in Heaven, and forever in my heart... and so many of his friends hearts.
With Love & Missing Timmy,
Susan.
Read Journal History
Hospital Information: Patient Room: Angel in Heaven
Links: http://www.timothypauxtisfoundation.org
http://www.tourdeshore.org
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