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It has been many, many years since we have spoken, but just wanted to let you know I was thinking about you!! I had tears of sadness and then tears of joy after reading about your amazing son's journey, what a long hard fight it has been for you and your family. He truly is a hero!!!! I will continue to keep Michael and your family in my prayers! I hope everything goes well with the surgeries! You're in the home stretch!!
Sue Grapentine (Byrnes) <grapentine@optonline.net>
Paramus, nj usa - Tuesday, November 16, 2010 2:33 PM CST
God Bless you on your journey
Holly Weigman <gwaw@verizon.net>
sarasota, fl us - Sunday, November 14, 2010 4:59 PM CST
i am so happy to hear your little boy is doing well. our 8 year old little girl is suffering from rhabdo. we are living the nightmare. i have questions if you ever can talk. it started in her face under her cheekbone in the pterygoid muscle and grew to almost 6 cm extending into her cranium and down to nasal cavity. there is no chance for surgery. she has completed 6 weeks of radiation and 19 weeks of chemo so far. you can visit talbertfamilyfoundation.org "team cecilia" to read her story. please contact me if you are willing. thank you and God bless.
wendy Bellissimo <wendy@wendybellissimo.com>
hidden hills, ca usa - Friday, October 8, 2010 2:25 AM CDT
It's so great to read that your boy is doing so well! I'm so happy to read that his scans are clear! It's scantastic! It does me good to read when some of these kids live thru this and live well.
Just checking in to see how you all are. Know that I think of you often and wish you all the best!
Take care,
Lynn
Elizabeth, forever 8 & forever my princess
www.carepages.com/elizabethslegacy
Lynn Doxey
- Thursday, November 12, 2009 7:27 AM CST
Hi Tyler
It is Macy have a great day
Macy Danner <dannerdancer@yahoo.com>
- Wednesday, May 28, 2008 9:47 PM CDT
Thanks for sharing your life. My 10 year old daughter Tyler began her fight with Alveolar Rhabdomyosarcoma of the right orbit on 2/22/07. I am inspired by your success and continued progress. Thank you. www.caringbridge.org/visit/tylerchristine
Colleen <backtobailey@yahoo.com>
Phoenix, AZ usa - Friday, June 22, 2007 10:00 AM CDT
COngratulations are all your anniversaries.What an accomplishment. Enjoy your Fright Fest!
Lynn Elizabeth's mom 5 dx 1/05 ARMS II primary foot tumors <pickwicknt@optonline.net>
Yorktown Heights,NY, New York usa - Friday, October 13, 2006 10:04 PM CDT
Glad to see that you are all doing well! Haven't checked in in awhile! God bless your family!
Suzi www.caringbridge.org/mi/cooper <photoartbysuzi@comcast.net>
Grand Blanc, MI USA - Wednesday, August 23, 2006 9:53 PM CDT
Thank you for sharing your story.
Kenneth H. Diss II <englishmen1066@yahoo.com>
England - Sunday, August 13, 2006 0:14 AM CDT
Dear Diss Family,
I am here from Ian Davideit's guest book. What a handsome little guy Michael is! I especially enjoyed seeing his First Communion picture and reading about how hard he worked to prepare for it.
I am glad that Mikey is doing well medically and able to be "a normal" seven year old boy. I have just paused, here, at my keyboard, to say a prayer that he will continue to be healthy, sweet, and "normal" in every way. God bless him!
I could not see the picture of Mikey with his sister, Olivia, but I am glad that you have her, and I am, of course, glad that Kellie and Brian Davideit, and their family, has the new baby girl. God bless you all!
Happy August Birthday To Michael! May he have many, many more.
Grace and peace,
~Colette~
Colette
Clifton Park, NY U.S.A. - Friday, August 4, 2006 11:24 PM CDT
Hoping this finds you all doing well. So sorry, Sprite who runs Smile Quilts has been out of commission for a while, so the site has been in limbo for months. Unsure whats going to happen with it, but we are thinking of you and wishing you all the best.
Chris from Smile Quilts mom to Gooch <chrisrusso_@hotmail.com>
- Monday, July 3, 2006 2:28 PM CDT
Denise, thank you for the note in Ian's guestbook about our little surprise. Your Olivia is beautiful and I'm sure Mikey is a very proud big brother! I am so happy that he continues to do well - Thank God!! All the best,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Friday, March 17, 2006 0:20 AM CST
Congratulations Micheal and family on your new addition!!
We are thinking of you! Love, your old card angel, Gina
Gina Carrara <gcarrara@optonline.net>
- Sunday, January 29, 2006 8:44 AM CST
Merry Christmas Mikey...I know Santa will be good to you because you are so good to others. I love you
Love,
Aunt Beth and Uncle Nick
Beth Diss
Wood Ridge, NJ USA - Sunday, December 11, 2005 4:44 PM CST
It is Halloween 2005. This is my first time signing the journal. I am Mikey's Grandmother. I cannot believe that it was 3 years ago today that my "little guy" started his ordeal. We all have come a long way since that day. Mikey has grown into a wonderful young boy who is so special to us in every way. He stole our hearts from the day he was born. He has given us strength that we never thought we had. My son and daughter-in-law are the most loving and caring parents. And we thank them for the joy they all bring into our lives. Mikey now has an adorable baby sister named Olivia Ann that he can teach all of his special traits to. I would like to thank all who have been so concerned for my grandson the past 3 years and to request that you please continue to pray for his continued good health. And I will pray for all of the special children that have to deal with similar circumstances. I believe in the "Power of Prayer". Sincerely, Mikey's Grandma.
margaret a. diss (Grandmother) <MDiss@HUMED.com>
Woodridge, NJ - Monday, October 31, 2005 11:11 AM CST
Hey Diss Family,
I have a very good understanding of what You guys went through and are still going through. My family and I went through that horrible process of oral cancer with my father when I was in High School. But I can only imagine how much more agonizing it must be as a parent to see your helpless little child have to suffer through that. I also as you may know have a child with some medical issues, and my heart aches everyday that I see him suffer because of it. I have never met your little Mikey but from this site and hearing Big Mike talk about him at work there is no question that he is a special young man and always will be.
I know that God has a plan for us and many times we would like to take His plan and tell Him to shove it. But God is always good. It is His grace and love that makes everything worth while. He really never will give us more than we can handle as long as we ask Him to help us.
Thank you for sharing your story. I will pray for Mikey's continued health and happiness often. God Bless You!
The Ciannello's
Jenny & Luke Ciannello <lukeciannello@potonline.net>
Basking Ridge , NJ USA - Saturday, October 29, 2005 11:41 AM CDT
Hey Diss Family,
I have a very good understanding of what You guys went through and are still going through. My family and I went through that horrible process of oral cancer with my father when I was in High School. But I can only imagine how much more agonizing it must be as a parent to see your helpless little child have to suffer through that. I also as you may know have a child with some medical issues, and my heart aches everyday that I see him suffer because of it. I have never met your little Mikey but from this site and hearing Big Mike talk about him at work there is no question that he is a special young man and always will be.
I know that God has a plan for us and many times we would like to take His plan and tell Him to shove it. But God is always good. It is His grace and love that makes everything worth while. He really never will give us more than we can handle as long as we ask Him to help us.
Thank you for sharing your story. I will pray for Mikey's continued health and happiness often. God Bless You!
The Ciannello's
Jenny & Luke Ciannello <lukeciannello@potonline.net>
Basking Ridge , NJ USA - Saturday, October 29, 2005 11:40 AM CDT
What a beautiful baby! And Mikey is cute too! I bet he is excited to have a baby sister. Congratulations!!!!!
Suzi www.caringbridge.org/mi/cooper <bellesbridal@comcast.net>
Grand Blanc, MI US - Wednesday, October 19, 2005 11:40 AM CDT
Congratulations Diss family!! What a beautiful picture of Mikey and baby Olivia, he looks like such a proud big brother. All the best...
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Wednesday, October 12, 2005 0:15 AM CDT
I am so glad that your scans were clear still! Cooper is doing great, growing hair, enjoying summertime! Thank you for your support and encouragement!
Suzi www.caringbridge.org/mi/cooper <bellesbridal@comcast.net>
Grand Blanc, mi USA - Wednesday, June 29, 2005 1:31 PM CDT
Hi, Mikey and Mom and Dad,
Just to introduce myself, I'm Kathleen, and my one and only Grandson, Killian, was diagnosed with Rhabdomyosarcoma on October 8, 2001, one week after his sixth birthday. Just like you he had a sudden mysterious illness that turned into a huge battle! He had every kind of treatment too (at Shands Hospital at the University of Florida) and is in remission now. He has to have the whole work-up - labs and CT scans - every six months for eight more years. I hope the doctors there in Hackensack realize what Warriors you guys are! We were living in a tiny little town here in Florida called Micanopy (Pronounced Mick-an-oh'-pee) and we said Killian was the Warrior Prince of Micanopy since it is named after a famous Seminole Indian Chief - very brave and determined! He decided he was going to kick that old Rhabdo's butt, and with the help of lots of prayers and lots of chemo and surgery and radiation, so far so good. This is his third, and sadly, final time at Camp Boggy Creek coming up in June. We'll miss everybody but it's time to give someone else a spot. :) Do you have a Hole in the Wall Gang Camp near you? I know there is one in Connecticut. Well, I will just add your name to my list of strong little ones who are fighting this stinker of a cancer. Question for Mom - Are the bracelets you mentioned the blue ones that say "I AM...?" We just got ours in January and everybody wants to know what they are for...
God Bless you and your family. Killian's Grammy
Kathleen Murff-Whiting <RKMURFFWHITING@aol.com>
Gainesville, FL USA - Wednesday, April 20, 2005 3:55 AM CDT
Angel Lady from Smile Quilts
- Sunday, March 27, 2005 4:58 PM CST
You have a great web site
Keep it up!
MAC Pharma Network
Margarete Smith <margaretesmith@hotmail.com>
- Friday, January 28, 2005 1:27 AM CST
Hi, I am glad to hear everything is going well for you. I have a 6 year old nephew who has orbital rhabdomyosarcoma. He was diagnosed at 6 months of age. He has since relapsed 2 times and has just relapsed again. This time the cancer has spread to his brain. He has gone through chemo and radiation, and quite a few major surgeries, including one to remove his eye. It is amazing how these children see the good in everything, never complaing or feeling sorry for themselves. He takes everything in stride, even explaining to us that everything happens for a reason and that he is an angel that god sent to us. He does what he can to keep himself busy and keep his life normal. They never expected him to make it to his 5th birthday, they told us it would be a miracle if he survived and the treatments that they were giving him were just buying him some time and keeping the cancer from spreading hoping that they would be able to find some new treatment. As luck and god would have it, he went into remission, but it was short lived. These childern are miracles and such heros. God bless you and your son.
Tanya <tvgurl12@pennswoods.net>
Effort, PA US - Wednesday, January 26, 2005 2:14 AM CST
Hi everyone, hope this finds you all doing well. We wish you a Healthy & happy Holiday!
Angel Chris {Gooch's mom} and all your friends at ~ Smile Quilts ~
- Thursday, December 23, 2004 8:01 PM CST
Hi Michael, just stopping in to say Hi and HAPPY HOLIDAYS!
It's your old card angel, Gina. Scott and Cory wanted to
say Hi. Cory started Kindergarten and loves it and Scott
turned 3. Glad to hear you like First Grade, i'm sure
you are one of the smartest in the class!!Keep up the good
work! Love, gina, cory and scott
Gina Carrara <gcarrara@optonline.net>
Oakdale, NY US - Thursday, December 2, 2004 7:44 AM CST
I just wanted to stop in and say Happy Thanksgiving! I am glad Halloween was exciting. Take care... www.caringbridge.org/va/maxie/
Christy (mom to superstar Maxie) <imaqt430@aol.com>
Amelia, VA - Thursday, November 25, 2004 4:37 PM CST
Hi Denice, Mike and Mikey,
I'm so happy to hear all is going well. I saw your photos and Mikey reminds me of Mark. We just celebrated Mark's 5 year anniversary off treatment last week. Hang in there! Have a wonderful and blessed holiday season. We have alot to be thankful for... Lots of love,
Karen, Michael, Michael and Mark Priscella (ERMS survivor) <priscellak@aol.com>
Wayland, MA USA - Sunday, November 21, 2004 9:41 PM CST
Happy Thanksgiving!
We hope this holiday is filled with many blessings.
We are blessed to have you as a member of the Smile Quilt family. You are in our prayers.
Warm Hugs,
Angel Gloria for Smile Quilts <SimplicityMD@comcast.net>
Owings Mills, MD USA - Thursday, November 18, 2004 9:44 AM CST
Thanks for sharing this. Praying for clear scans forever. :)
wata lamar <wata.lamar@tns-global.com>
manila, Philippines - Tuesday, November 16, 2004 8:34 PM CST
Hope this finds you doing well.
Am so glad to hear your scans were good!
We're keeping you in our prayers.
Angel Chris {Gooch's mom} and all your friends at ~ Smile Quilts ~
- Saturday, October 23, 2004 11:50 PM CDT
Way to go Mikey! My son Cooper is in week 11 of his treatment for rhabdo. His site is www.caringbridge.org/mi/cooper I love to read encouraging stories like yours!
Suzi <bellesbridal@comcast.net>
Grand Blanc, Mi USA - Sunday, September 26, 2004 12:04 AM CDT
Dear Mikey and Family,
I am here from Connor Hunley's website. Mikey, you are a handsome fellow!
I hope Mikey has a good year in first grade. It was one of my favorite grades. He will do and learn a lot.
God bless you all!
Grace and peace,
~Colette~
Colette
Clifton Park (near Albany), NY abc@aol.com - Saturday, September 4, 2004 12:17 AM CDT
Hello Mikey and Family:
My name is Jenna and I came across you website. Mikey, you are truly an inspiration and a Fighter in life. Now you are also a Warrior, and Champion. How was kindergarten this year? I bet you really enjoyed it. My little cousin, who is also my little buddy, just went to Kindergarten this year, and he just loved it. He is still in school, but it is almost out for the Summer. He will be in grade one in September. Boy doese he grow fast, or what! Anyways I hope that all is well with you.
Keep enjoying kindergarten, Loving life, and Living it to the fullest!
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Thursday, June 3, 2004 1:47 AM CDT
Hi, Denice and Mikey. Thanks for leaving a message in Ian's guestbook. Too bad I didn't know that you were at Sloan, I would have liked to meet you both. Ian only has 3 more days of radiation there. Hope all is well.
Kellie (mom to Ian) www.caringbridge.org/nj/ian <kelbri27@optonline.net>
Metuchen, NJ USA - Monday, March 22, 2004 7:52 AM CST
Hey little guy...
I love You!!!
Aunt Beth <bethdiss@yahoo.com>
- Friday, March 12, 2004 10:52 AM CST
Mikey and Denise, I came across your site and I have to say what a brave little boy! He is such a handsome boy. It is a shame that children have to undergo such horrible situations. I have two sons and one of them lost his sight in one eye when he was 18 due to a victim of crime so I know somewhat what you are going thru. God was looking after him and the Drs. are so fantastic these days. SO happy to hear that Mikey is doing well and enjoy your life to the fullest. I will say prayers for you all.
Sheri <mysharee@earthlink.net>
New Port Richey, FL USA - Tuesday, March 9, 2004 10:57 PM CST
It is so great to hear that Mikey is doing well. He is one tough boy, I knew it the first time I met him.
My prayers will always be with you. I hope to see you soon.
Love,
Josie
Josie <JInturrisi@aol.com>
Waldwick, NJ - Tuesday, March 9, 2004 6:57 PM CST
It is so great to hear that Mikey is doing well. He is one tough boy, I knew it the first time I met him.
My prayers will always be with you. I hope to see you soon.
Love, Josie <JInturrisi@aol.com>
Waldwick, NJ - Tuesday, March 9, 2004 6:56 PM CST
Mikey & Denice
I am glad to hear that Mikey has fought this battle so valiantly! He truly is a HERO!!! My heart and prayers are always with you!!!
Love,
Rosie
Rosie <RInturrisi1@aol.com>
Tampa, FL USA - Tuesday, March 9, 2004 3:15 PM CST
hello my name is Jenna and I came across Mikey's site. I was born with a rare bone disease and I currently fighting the illness, the constant chronic pain everyday and lots of operations. So I know for sure that Mikey, is deffinatly one Strong and couragous Fighter! He is also one amazing hero, and a big inspiration. Mikey is in my prayers, and I will be praying this week that all goese well. Keep smilen Mikey! Your one awesome Fighter!
My site: http://www.caringbridge.org/canada
Jenna <hockeys_life@hotmail.com>
Kamloops, BC Canada - Monday, February 9, 2004 2:36 AM CST
Happy Valentines Day Mikey! Glad you are doing so well. Sending you special Smile Quilts hugs and love. Angel Sprite
Angel Sprite and all your Smile Quilts friends. <smilequilts@smilequilts.com>
Eckert, Colorado USA - Friday, February 6, 2004 11:52 PM CST
Hi Denice and Mikey,
You guys are real troopers. It is a shock to hear of your trials. I will pray for you all and am so happy to see the pictures of Mikey over the holidays. We havn't talked much but you guys are in my thoughts. As a father of 2 boys, I can only imagine what you have been through. Continue to fight. I have a new favorite Super Hero!
Craig Palmer
Craig Palmer <craigapalmer@cox.net>
San Diego, CA USA - Monday, January 19, 2004 9:41 AM CST
Hi Denice!
I can't believe this is the first time I've seen Michael's page - he is SUCH a beautiful little boy and I'm so happy he is doing so well. One day at a time but one day you'll be where we are now - almost 5 yrs since diagnosis and healthy. Give Mikey a big hug from us!! Love from,
Karen, Michael, Michael and Mark Priscella (RH-KIDS) <priscellak@aol.com>
Wayland, MA USA - Thursday, January 15, 2004 9:50 PM CST
Hi Mikey, Denise and Family,
You all are in my prayers.. I'm glad to see that all is well. I wish you a bright and healthy future Mikey.
Christal Markowski
- Wednesday, January 14, 2004 10:53 AM CST
May God Bless every step you take & keep you in his thoughts.
Desiree Mavrostomos <desiree.mavrostomos@attws.com>
Ridgefield, NJ - Friday, January 9, 2004 10:08 AM CST
Hi Mikey & Denice! Glad you had a nice holiday!!
Best of luck with your scans this Friday.... I have a dentist appointment Friday myself, and I am scared of the dentist! But when I am in that chair I will think of how brave both of YOU guys are! Good luck & I'll check back soon! Say hi to all my Hackensack friends!!
~*~Heather~*~
~*~Heather~*~ <hlw822@optonline.net>
Parsippany, NJ 07054 - Monday, January 5, 2004 10:48 AM CST
Hello
Thank you for your post on Shane's site. I will def. pray for clear scans for Mikey!!!!!!! I'll be checking in to read your entry.
Cheryl Mom of lil Shane
http://www.caringbridge.com/ct/lilshane/
cheryl <frenchvanilla10@earthlink.net>
ct - Sunday, January 4, 2004 8:03 PM CST
~~~HAPPY HOLIDAYS!~~~
Thank you so much for visiting Connor's web page. That was my first time to hear of Mikie and his battle with the monster called rhabdo. We are currently inpatient without a computer in the room, so as soon as I can get time, I will read the history. We will be adding your family to our prayer list. I hope that you all can enjoy the Christmas season. I'll check back in with you soon...
I'm so sorry about Dana and I will be praying for her family.
Love, hugs and prayers,
Rhonda Hunley, Connor's Mommy
Connor's web page
<rshunley@comcast.net>
Hendersonville, TN
God bless America! - Friday, December 19, 2003 10:29 AM CST
Dear Denice,
How very touched I was to see that you wrote about Dana in YOUR journal. I am a friend of hers and throughout her struggle, I often jumped to your site to see how Michael was doing. The first time I read your journal I cried for an hour – I have a 5 year old boy myself and can’t even imagine what you and he and your family must be going through. It is so unfair – especially for a child to have to go through this.
I thank God he is doing good now and pray he will remain in good health and beat this beast. I’m sure it must be scary for you since Dana passed away from the same cancer but in talking to her and learning more and more about this cancer over the years – young kids have a better chance than adults. I see pictures of Michael and see how he is a strong boy, a fighter and I can see he is certainly going to beat this thing. And now he has a very special angel to watch over him and a few more people praying for him through friends of Dana. Wishing you all a very Happy Holiday and an especially Healthy New Year.
Amy King <aking@mdocpa.com>
Clark, NJ USA - Wednesday, December 17, 2003 9:22 PM CST
Hi Denice ~ It was sweet of you to remember Dana on Mikey's site. I knew her thru an organization called Chemo Angels, and she was truly an amazing & strong person. However, you have the link to her page wrong.... you wrote the link to Mikey's by accident! LOL It happens... especially during hectic & stressful times. I just wanted to let you know. Hope all is well with you & Mikey and your family. I just sent my resume to Hackensack UMed for a full time Child Life position, so keep your fingers crossed for me! All the Best, Heather
~*~Heather~*~ <hlw822@optonline.net>
Parsippany, NJ U*S*A - Sunday, December 14, 2003 6:51 PM CST
Denice - You don't know me but I am a co-worker/friend of Dana Pearson. I have seen your messages on her website and finally took the time out to read about your precious son. I never even heard of this hideous disease until I met Dana and I can't get over how many people are affected by it. I will continue to pray for your son and Dana. I just wanted you to know you have an extra fan supporting you and your family.
Best wishes, Lisa Crosta <lcrosta@mdocpa.com>
Colonia, NJ - Tuesday, December 9, 2003 1:46 PM CST
Hi there Michael, I'm praying your scans all come out great. Wishing you a great holiday season of celebrating your health improvements.
I would like to invite you to visit Smile Quilts and have mom fill out a request to have a virtual online Smile Quilt made just for you with all your favorite things on the quilt. We would be honored to make one just for you.
Smile Quilts Angel Sprite <sprite@tds.net>
Eckert, Colorado USA - Saturday, December 6, 2003 6:37 PM CST
Hi Denice,
Good luck for Michael's scans today. I will be thinking of you and hoping you get good results.
Love from
Louise (Tommy's Mum)
Nottingham, UK - Thursday, December 4, 2003 2:07 AM CST
Hello Mikey!
I enjoyed seeing your great pictures and reading your truly remarkable story. I think you looked great on halloween and it looks like you're getting excited about Christmas. My son, Robert, and his twin brother, Ryan, are getting excited too!! Keep up the great work in Kindergarden!!!
Happy Holidays, Nonie Hanson
Nonie Hanson <noniehanson301@aol.com>
Edmond, OK USA - Wednesday, December 3, 2003 8:36 AM CST
Hi there Mikey
Well little one you have come along way, and I think of you, mom and dad often. I pray that this part of your life is behind you now and that you can go on being a little boy, enough of the grown up stuff that you have had to do. I will keep you in my prayers and I will also keep the prayers for stregnth for mom and dad.
ALL MY LOVE FOR YOU AND YOUR FAMILY.....
Ida <snowbab0331@aol.com>
Rutherford, NJ - Tuesday, December 2, 2003 1:06 PM CST
Hi Mikey and family,
I am so exited that you are done with your treatment. My son Nick is getting close to finishing (mid January). When I read about your hair and eyelashes and your appetite I smiled so big. I am so happy for you, and you really made me happy because I can't wait till Nick can start gaining weight, growing hair....and just plain feeling better.
We will be praying for clear scans for you this week....please keep us posted, and visit Nick at www.nickrocks.us
Tammy Mendez <tmendez@cbnorcal.com>
Sunnyvale, CA Good Ole US of A - Sunday, November 30, 2003 1:55 PM CST
Hi Mikey! Nice to "meet" you! I made it here from my friend Dana's website that your mom visited. I did my Child Life internship at HUMED and it's a great hospital! I am now doing a Child Life internship at Morristown Memorial Hospital. I love working with kids like you ~ you are an inspiration to us all! By the way, have you ever visited www.hugsandhope.com or www.makeachildsmile.org ? I bet you would like them! I hope you continue to do well in the future! Tell all my old friends at Hackensack I said hi! If you ever want to come visit my website, its at www.angelfire.com/nj/wayheather/main.html
~*~Heather~*~ <hlw822@optonline.net>
Parsippany, NJ USA - Saturday, November 29, 2003 5:27 PM CST
Great to hear Mikey is doing so well. Love the photos.
Karen, Mammy to Ciara, Rhabdo List <fleming@bellsouth.net>
Atlanta, GA USA - Sunday, November 23, 2003 10:04 PM CST
Mikey, Denise and Mike
I am a friend of Dana Pearson's for over 10 years. I have seen your messages to her. Dana is such a special person and has fought valiantly for four years. She told me this summer all the good and happy things about her life, she savors every moment. On my list I can attest to the loving wife, mother and friend that she is.
I see the pictures of your handsome son, I am so happy that he has been able to attend kindergarten. How wonderful! And remission - that is the greatest news. It was so nice to read about his enthusiasm for Halloween. I hope that his strength improves so that he will enjoy all the holidays and even some sleigh riding this year. God Bless.
Mary Jane
Mary Jane Younghans
Flemington, NJ - Thursday, November 20, 2003 7:05 PM CST
Just checking on you guys to see how things are. Take care and have a great week! www.caringbridge.org/va/maxie/
Christy <IMAQT430@aol.com>
Amelia, VA USA - Monday, November 10, 2003 8:24 PM CST
Michael,
You are truly an amazing little boy. You have touched so many lives that you will never know. Your courage and strength remains and inspiration to all of us who have newly diagnosed children. To your parents, they are also remarkable. The postive support and caring words that your mother always finds to speak to all of us amaze me more each time. No matter what she is going through in her personal battles, she always finds a warm smile and positive reinforcement to all of us. You are truly blessed to have such a wonderful Mommy, may you all find happiness at the end of this road and may your journey finally be over. It is an honor and a pleasure to call all of you my friends.
Karen <kcby@yahoo.com>
Manasquan, NJ - Monday, November 10, 2003 5:24 PM CST
Hi I found your site off Suryan's. Wow that was a long surgery. We are also a Rhabdo Stage lll family. Please come by and see us sometime. www.caringbridge.org/va/maxie/
Christy, Max, and Robert <IMAQT430@aol.com>
Amelia, VA USA - Sunday, November 2, 2003 0:30 AM CST
Dear Michael, I'm sure Kindergarten is GREAT! We hope you
have a SPOOKY GREAT HALLOWEEN!!! Cory is going as Dora
the Explorer and Scott will be a fireman. We'll send
photos as soon as we get some. Love, Gina, Cory and Scott
(chemoangels)
Gina Carrara <gcarrara@optonline.net>
Oakdale, NY USA - Thursday, October 30, 2003 1:02 PM CST
Dear Denice
I keep meaning to call but before I know it it is 10 pm. Hope everything was good at San Marco. Talk to you soon. Good Luck and have a great time in kindergarten Mikey! Love. Debbie and Anthony
debbie Borsellino <debbie.deb3@verizon.net>
Stony Point, NY USA - Saturday, September 27, 2003 7:51 PM CDT
Hello my name is Jenna and i was born with a rare bone disease. I came accross Mikey's website, and I just thought I would stop and visit. Mikey is sure a real trooper and an inspiration. I will keep him in my prayers, that he will stay in remission
http://www.matmice.com/home/fighterandchampion
Jenna <hockeys_life@hotmail.com>
Kamloops, BC Canada - Saturday, September 20, 2003 3:20 AM CDT
Denice and Michael,
I am so pleased to read about the clear scans! You must be feeling wonderful!
Love from
Louise (Tommy's Mum)
Nottingham, UK - Tuesday, September 16, 2003 4:58 AM CDT
Hello my name is Michele. I happened upon Michael's journal while signing my friend Dana's guestbook. I am praying for your sweet Michael. God Bless your family.
Sincerely,
Michele
michele
Metuchen , nj usa - Sunday, September 14, 2003 8:59 PM CDT
Denice and Michael,
Good luck for the scans tomorrow. I will be thinking about you, and hoping to hear some good results!
Love from,
Louise Lloyd - Mum of Tommy (3) undifferentiated liver sarcoma
Nottingham, UK - Wednesday, September 10, 2003 3:50 PM CDT
Dear Michael, Happy Labor Day. Ours is a rainy one so we
are home drawing you some pictures!!! Hope you are doing
well, we are always thinking of you! Love, angel Gina, Cory
and Scott.
Gina Carrara
Oakdale, NY USA - Monday, September 1, 2003 4:53 PM CDT
CONGRATULATIONS!!!
I'm so happy to hear your GREAT news!!!We will be praying for clear scans.
Hugs and Prayers
Melissa
www.caringbridge.org/fl/jackie
Melissa <Cart30@cox.net>
Cantonment, Fl USA - Monday, August 25, 2003 8:47 AM CDT
Happy New Birthday to Michael.. my son also went through the rhabdo nightmare.. he is Ty-Michael.. our dx date was 11-11-99 off of tx date was 10-13-00.. and he remains in remmision..
As i read your journal today i cant help but remeber the last day of chemo.. our last stay in the hospital but mostly the thought that MY safty net had just been taken away and how was i going to take this boy home who spent an entire year in the hospital and know what to do.. somehow we figure that out. As we walked down the halls that last day ..with a strange fear happiness mixture .. i asked his doctor now what? his reply "see you in a month" a month oh god a whole month of no doctors touching him .. a whole month of not knowing if something was starting to grow.. a month of torture for us parents a month of fun in the florida sun for my little man. Mike fought so hard he had the VAC & T 54 week protocall .. it was far from an easy fight now My Mike is nine , strong healthy plays tackle football for the 3rd year in a row.. we are almost at our three year birthday. I wish i could say that the anxiety is gone... but its not..not for me ( a mom!)
Michael doesn't talk much about cancer, treatment or all the "fun" stuff that goes along with this..he remains a child a wild nine year old boy who was able by the grace of god to kick some rhabo butt~ he plays and lives and i mean lives ... he is so full of life.. when he does share with friends about his cancer .no one really believes this big healthy kid was ever sick. Every year we have a birthday party for mike one on his real birthday 2-2-94 and then again 10-13-... the second birthday is the real gift.. we call it his Un-Birthday party ( alice in wonderland) but we all know that we are celebrating his life... funny we all have a birthday but only our special kids have a day to really celebrate LIFE.
So again i wish your Michael a Happy Un-Birthday ..with many more to come!!
kicking rhabdo butt!
Audra and Ty-Michael
www.caringbridge.org/fl/tymichaelschmidt <grlwndr68@hotmail.com>
Hobe Sound , Fl - Saturday, August 23, 2003 9:40 AM CDT
Try to remain positive and enjoy what you have. Congrats, you made it through a tough year. Look forward to a brighter tomorrow !
Cynthia & Ronnie Dolinski <cynn4@aol.com>
N. Arlington, NJ 07031 - Friday, August 22, 2003 9:48 AM CDT
Happy Birthday Mikey! My son Ian turned 3 on 8/8 too! He got lots of Wiggles toys. But you are older than that so i bet you got some super-hero action figures or something cool like that. Glad to hear you were fever-free this week. Hang in there,
Kellie (mom to Ian, rhabdo of prostate)
Kellie Davideit <Kelbri27@optonline.net>
Metuchen, NJ US - Tuesday, August 12, 2003 10:47 PM CDT
Hi Denise and Mikey,
Louise (Tommy's Mum) from rhabdo list here.
I am so pleased to see you will have finished chemo' soon. Mikey is such a brave little boy!
Happy Birthday for tomorrow from all of us here in the UK. Hope you have a wonderful day, and you manage to stay out of hospital for it.
Louise Lloyd
Nottingham, UK - Thursday, August 7, 2003 7:28 AM CDT
Hi Denise and Michael,
Just read your latest journal entry. Congrats on your almost last chemo. Your trip to Marco Island sounds well deserved-it will be great!
Your in my prayers
Debbie and Anthony
Debbie Borsellino <debbie.deb3@verizon.net>
Stony Point, NY USA - Wednesday, August 6, 2003 9:29 AM CDT
Hi,
I just wanted to let you know you can count on some extra prayers from me.
Hugs,
Dana (http://www.caringbridge.com/nj/dana/) <dpjersey@aol.com>
Metuchen, NJ - Thursday, July 3, 2003 6:25 PM CDT
Hi Michael-- your mom left a message for my family on my daughters caring bridge web site. She was 4 years old when she went through her treatment for rhabdo too. Now she is 6 and a half and a spunky soon to be first grader! I looked at the pictures your mom posted and you are too cute! You are so close to being done-- before you know it mom and dad-- your focus will shift-- soon you won't be thinking about your little sweetie and his cancer 24 hours a day-- I know its hard to believe. But, I've been where you are-- he's gonna beat this and soon enough he will be getting on the school bus for the first time! Sending prayers your way.
Jennifer Knutson www.caringbridge.org/page/michaela <GoldRibbns@aol.com>
Wyoming, MN - Wednesday, June 25, 2003 9:26 PM CDT
Hi Michael
I just wanted to say I hope you enjoy the summer. I am a friend from the rhabdo list. I have a boy who is your age and he had rhabdo too. He was just a baby at the time and now he is a big guy like you.
Just wanted you to know Iam thinking of you.
Michele
Mommy to Cameron off treatment 9/00
Michele Rohelier <mrohelier2@comcast.net>
Warren, Mi USA - Monday, June 23, 2003 7:24 PM CDT
Hey Monkey!!! Aunt Beth loves you so so so much.
Beth Diss
Wood-Ridge, NJ USA - Saturday, June 21, 2003 6:33 PM CDT
Hi Michael, just a note to let you know we were thinking
of you and will send more pictures soon!
Angel, gina, Cory and Scott
Gina Carrara
Oakdale, NY USA - Thursday, June 5, 2003 7:41 AM CDT
Hi,
I just wanted to say hi and that Michael will be in my prayers. I'm a friend from the Rhabdo listserv. Hugs,
Dana (dx age 30 ARMS, still fighting) <dpjersey@aol.com>
Metuchen, NJ - Friday, May 23, 2003 9:28 PM CDT
Hi Michael,
Just dropping in to say "Hi" and let you know I am thinking of you. I hope you have a wonderful Memorial Day weekend.
Kathy Haws
Thousand Oaks, CA. - Friday, May 23, 2003 8:55 PM CDT
Mike & Denise
I wanted to tell you how brave I think you are.Keep kicken that rhabdo butt.I'm a friend from the rhabdo list.My prayers will continue.
Rachel mom to Sydney off treatment 1/02
Rachel Nickisher <Nicky94@webtv.net>
Lansdale , PA USA - Sunday, May 18, 2003 11:50 AM CDT
Mike and Denise, I was so very pleased to hear the great news from anthony yesterday. I have been praying for all three of new since I found out and I'm not going to stop now. If anything, I will pray even harder that he continues to get stronger every day. All my love and best wishes always. Marcia
Marcia Belotti <mebel52@aol.com>
Fairview, NJ Bergen - Monday, May 12, 2003 2:45 PM CDT
Hey Denise & Mikey,
I'm down here with Kathy in Brooklyn. Just writing to say hello from both of us; hope all is well.
Kay & Kathy
Brooklyn, NY - Saturday, May 3, 2003 6:13 PM CDT
Hi Denise and Michael!
Great web site! I really enjoyed seeing pictures of you and the Easter bunny.
Your in my thoughts.
Debbie Borsellino-mommy to Anthony-stage 3 embry.rhabdo of the neck and ear -rhabdo list
Debbie Borsellino <debbie.deb3@verizon.net>
Stony Point, ny USA - Wednesday, April 30, 2003 8:51 AM CDT
Hi Michael and Denise,
Love the website and Easter pictures.
Thinking of you all and wishing you the
best for treatment.
Karen, Mammy to Ciara 3 Rhabdo List <flemard@bellsouth.net /www.caringbridge.org/ga/ciarafleming>
Atlanta, GA USA - Tuesday, April 29, 2003 10:01 AM CDT
Hi
Great webpage and that bunny picture is really neat.Your one brave young man,so Keep on kicken that rhabdo butt.Many happy thoughts and prayers.
Rachel mom to Sydney dx Arms 3/01 OT 1/02
(rhabdo list)
Rachel Nickisher <Nicky94@webtv.net>
Lansdale, PA USA - Tuesday, April 29, 2003 9:54 AM CDT
Hi Mikey!
I LOVED your picture with the bunnies. You are SO handsome! Be sure to give your Mommy a hug from me for sending it. I hope you have a great weekend.
Love and Blessings,
Angel Jan
Jan Wilder (Chemo Angels) <KaseNme@aol.com>
Elkton, MD - Thursday, April 24, 2003 11:26 PM CDT
Hi Michael, HAPPY EASTER! Cory and Scott loved the picture
of you with the bunnies. I am sending your Mom a picture
of Cory with some bunnies too. Scott was too little to hold
them but he kept saying, HOP, HOP. Hope the Easter Bunny
is good to you! Angel, gina
Gina Carrara <gcarrara@optonline.net>
Oakdale, NY USA - Saturday, April 19, 2003 8:28 PM CDT
Dear Mikey,
I was just speaking with mommy and I'm so happy to hear you in the background jumping and laughing! You are a tough little angel and I know that God will make you all well soon! I miss you and can't wait to see you! Love always,
Danielle Stapleton
Rochelle Park, NJ USA - Friday, April 18, 2003 2:19 PM CDT
Hi Michael, i am one of your angels, Gina, from Chemoangels.
I am so happy to know about your website! You are a Great
Person! I will keep writing my cards to you! Cory and Scott
say Hello too! I will send you some new pictures of them!
Gina Carrara <gcarrara@optonline.net>
Oakdale, NY USA - Tuesday, April 15, 2003 8:18 PM CDT
Hi Mikey & Family,
You are all an inspiration. Be strong and no that you are in alot of people's thoughts and prays. Mikey I understand that you ran out of Scooby rollups anytime you need me to go to China to get more, you just let me no.
Your Easter pictures are great! You look like you were having a lot of fun. We would like to see more pictures of you having fun, so keep us updated with any new pictures(even if takes till 3:00am).
Your Friend,
Debbie :)
Debbie Hickman <debra.hickman@adeccona.com>
- Tuesday, April 15, 2003 10:53 AM CDT
hi mikey,
you are a very brave little boy who is going through
a lot for such a little boy...my prayers are with you
and your family
karel kidwell <kidwellk@dyncorp.com>
annandale, va usa - Saturday, March 22, 2003 12:10 AM CST
Hi guys. Nice web-site. Love ya Mikey Diss. From Mikey Patelli
Mikey Vitelli <kvitelli>
Stony Point, NY Rockland - Thursday, March 20, 2003 11:08 AM CST
Hi Michael,
You are a brave little boy!! I have just sent you out a package, I hope you like it!
ChemoAngel Jocelyn Forrester <jforrester@revenue.state.il.us>
Pompton Lakes, NJ USA - Sunday, February 23, 2003 12:45 AM CST
Hi Michael!
My name is Jan and I am the Chemo Angel who checks in on you each month. Thanks for letting us know about your web page. I just wanted to stop by and say hi and to let you know you and your family are in my prayers. Sounds like you are a real trooper...keep up the great work!
Love and Hugs!
Jan
Jan Wilder (Chemo Angels) <KaseNme@aol.com>
Elkton, MD - Friday, February 21, 2003 9:19 PM CST
Hello Michael and family,
We're thankful to know you and hopefully be able to encourage you; we've recently been the way you are traveling now and have come out the other side. Praise the Lord that we made it and you will too!
Keep your thoughts positive and you eye on the finish. Know that the treatment schedule is tough but there is help along the way. Low blood counts are expected with the chemo but the whole blood transfusions will give you new strength and energy. Don't forget to check on the decadron in combination with Zofran just before you go home following a round of chemo; I think you will feel better. We're praying for you and watching your page; good job Mom!
The Martin family sends our best/
James, Becky and Mitchell Martin <Jim_g_Martin@bmc.com>
Katy, TX USA - Saturday, January 11, 2003 at 10:56 AM (CST)
Hi Michael! Thanks for the email and the link to your site. You will always be in my thoughts and prayers!
Chemo Angel Cheryl <carlsonof4@aol.com>
- Saturday, January 04, 2003 at 03:46 PM (CST)
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