|
Justin Wyatt 

Hi!!! We are setting this up so that people can know that I'm a kid with a bad heart.
When I go to a new child w/ congenital heart defects site, I like be able to see right away what CHD they have, it FINALLY occured to me that maybe people would like to know what Justin's were too and a little of the background history, SOOO... Justin was born 4/12/88, when he was one day old, they took him to the nursery to check him and it was a while before they came back, they said he turned blue while feeding so they wanted to do some tests, It was one of the worst days of my life. Justin was DXd w/ Transposition of the great vessels (aorta and pulmonary artery were switched)ventricular septal defects (holes in the wall between his ventricle) pulmonary stenosis /atresia (his pulmonary artery was so narrow blood could not get out of his right ventricle)and a few minor things. I was told he needed to be transferred to either CHOP or st Chris and would need heart surgery.I knew of Dr.Norwood at CHOP so had Justin transferred there. the short version is because of his pulmonary stenosis and where it was located, Justin was not a canidate for the switch so would need to have a BT shunt at 10 days,this would help him until he was big enough for the big surgery, when he started feeding after he got off the vent he had projectile vomitting so at 17 days old he had surgery for pyloric stenosis. when he was 18 months old he had a repair called the Rastelli. part of the repair included having a conduit (tube) go from his right ventricle to his pulmonary artery, normally the conduit would be out grown and need replaced all thru the childs life, Justin was lucky because Dr. Norwood did a modified version, using Justin's own heart tissue and part of his pericardium (the sack around the heart) in hopes the conduit would grow w/ Justin so he could avoid numerous surgeries, he also didn't get a pulmonary valve so he wouldn't keep needing that replaced as he was growing. When Justin was 10 he had a surgery to cut out a blocked part of his conduit, he also got a pacemaker. when he was 11, he got bacterial endocarditis (an infection in his heart) that required a pic line and 6 weeks of IV antibiotics. for the next few years he had a few caths and stents, to keep opening his conduit,that would get blocked w/ scar tissue and calcification. Which brings us to where this page was started.
Justin's banner made with love by THE HEROES BANNER SITE
Please, Visit my caringbridge brothers and sisters. I always wanted some, now I have tons!!!
 Kylies Page Jordans Page Rebecca Lynns Page Serenas Page

 MARTY LYONS FOUNDATION The MLF has granted me my wish to go to Disney with my parents. I plan on going as SOON as I recover enough from surgery to go on the "TOWER OF TERROR". I wonder if they let you skateboard in the park?
 GIVE KIDS THE WORLD This is the cool place we are going to stay when I go to Disney- Do you think if we put hats and t-shirts on Comet and Zero anyone will notice!?
 TUMBLEWEED FOUNDATION I am a featured child this month on Tumbleweeds! Check them out and share your good thoughts and prayers with other kids like me that need some extra blessing.


Journal
Wednesday, September 24, 2008 11:13 PM CDT WOW, I can't believe it has been a year since I updated. Things are going really well, Justin turned 20 in April, and life is good. He is still going to Camden County College and working part time as a stage hand in philly and the shore, so is pretty happy. I'll do a better update soon, I just was afraid they would close this page, if I didn't write something soon. Love The Wyatts, Lyn, Don Justin and of course Comet, Zero and Roxy the new puppy (yes we ARE nuts)
Read Journal History
Hospital Information: CHOP home address 117 Columbia Ave Stratford, NJ 08084
Links: http://www.heartstrides.kintera.org/mybadheart Justin's walk for CHD page http://tchin.org/portraits/justin-2.htm Justin's story/CHD info and support group http://www.kristineryan.com/ Wondeful Photographer in South Jersey
|
|