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- your browser may not have loaded the new page. Click here to sign the guestbook. Click here to go back to the main page. Click here to view older guestbook entries. my prayers are with you Tayyaba and Zarrar elaine mckhann <mcinc5@aol.com> wood ridge, nj usa - Saturday, May 4, 2019 9:13 AM CDT Morgan is a garrulous, bubbly and welcoming lady who disregarding her young appearance, is to some degree experienced in life all things considered. So knows how to impact some individual to sit back and relax, about dating, how to have a talk et cetera. Making her a truly amazing lady to pick as your sidekick. You will love the way captivating and she is. 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From the time it started just a few years within the past, penis expansion is now one principal supply of earnings for plenty plastic surgeons and urologists. This has moreover benefited many guys who get frustrated and humiliated due to a small intercourse organ. Aside from http://www.skinsephora.com/xtend-xr/ Alex debor <deborahclanton3@gmail.com> California, CA United States - Sunday, March 26, 2017 6:47 AM CDT Hello Tayyaba. I love that you have updated Caringbridge. If not for the extreme sadness of your update , it would feel like years ago. I know the difficulty of taking care of one girl, but cannot imagine three. Your strength, poise, dignity and graciousness truly is a thing of beauty. Kathie Stephens <kathie12@sympatico.ca> Dresden, ON Canada - Saturday, January 16, 2016 6:37 PM CST Oh my dear friend :'( Prayers for you all. You are the strongest person I have ever known...living the life that you have been given with such grace and love. My prayers will continue. Know that you and your family are loved...so much. xoxoxo Debbie Vanderpool <debbievreliv@gmail.com> Rochester, NY United States - Friday, January 15, 2016 12:52 AM CST Oh Tayyaba as I read your blog about the girls my heart was breaking for you and your family. I am in tears. I don't know what to say or do for you and your family but know you are all in my prayers. I don't understand the "pain part" either, it makes me so very angry when any one of "our" children are suffering. I don't have your grace about such things . You are amazing !Please remember that Sheryl Hall Westville, NJ USA - Friday, January 15, 2016 10:50 AM CST assalamalikum Tayyaba and family, I have been reading Tayyaba's updates on facebook and now here since yesterday and I can't even fathom how difficult the whole situation must be for all of them, the 3 angels afflicted with MPS, and Ammar who is really so very cute looking that it is hard to believe he can be so destructive due to his autism, and Bilal whom I wish I could take to sightseeing and visiting the museums that he misses going to with his family.. You all are such great people specially Tayyaba. I don't know where you get this degree of patience and acceptance from. I have lots of respect and admiration for you. You and your children will be in my prayers and thoughts Insha Allah! Nuzhat Mirza <NUZHATMIRZA@HOTMAIL.COM> Plainfield, NJ USA - Friday, November 15, 2013 8:07 AM CST website that you create a very interesting and adds to the information and knowledge I as a reader, continued success and develop back all the information and knowledge http://www.kios-pulsa.com Abu Lailana <ummusayidmuhamadhusein@gmail.com> Bandung, - Thursday, August 29, 2013 0:40 AM CDT May Allah bless your daughters and both parents for the extreme level of patience and hardship u have to ensure through such a tremendous test subhan Allah only Allah knows how difficult it is for you all and Allah will reward you duly. May your children be your doors to enter Jannah as a whole family ameen. Thamina <thamina1@gmail.com> Manchester, UK - Monday, December 24, 2012 5:32 PM CST You and your husband are such astoundingly patient people. Mashallah, your patience and love for your children is exemplary. May Allah swt bring you ease and shower his mercy upon you. May Allah swt raise you and your children to the highest level of Jannah. Ameen Sadia <younassa@gmail.com> Meriden, CT USA - Wednesday, December 12, 2012 8:41 AM CST Salam Alaikum Tayyaba, I hope you know me by now. I visited your website for the first time though i had you on my facebook from last 3yrs. I have no words to say here but you are a very strong lady mashaALLAH. ALLAH will reward you for your patience inshaALLAH. You are really very lucky, mashaALLAH. May ALLAH be with you and your family always. Ameen. Any help you need, you can count on me. Anytime. I will try my level best to be there for you. inshaALLAH. I recently moved to hattiesburg, MS from englewood, NJ. Will inbox you my landline at facebook. Nida Izhar <nidaarslan@Live.com> Hattiesburg, MS USA - Wednesday, August 15, 2012 1:04 AM CDT Insallah allah make things easy for the sisters Ali dar London, - Tuesday, August 14, 2012 7:16 AM CDT salaam, wow so proud of you for keeping strong. Inshallah your hard work and patience pays off. Lots of love, duas, hugs and kisses xxxxx Anmol Birmingham , England - Monday, August 13, 2012 7:42 PM CDT Asalamwalikum, i just want to say, mashallah you have been so strong in looking after your beautiful girls. Inshallah you will be rewarded jannat. We will all do dua for you and your girls. anjum begum cardiff, wales - Monday, August 13, 2012 5:01 PM CDT Asalaamoalykum, I hope you are in good health, and your little girls are ok, i just want to say you are amazing parents, Mashallah! Allah has blessed you with patience, surely after hardship comes ease. You may be rewarded in this life, or maybe Allah is saving your reward for the akhira! May Allah heal your beautiful girls,i cant imagine how hard it must be for you guys, but you are coping, mashallah.I pray that Allah makes it easy for you. i read about this and my heart just melted - i have one son who is 9 months and i thought how would i cope with this.You are pulling through this with the permission of Allah. May Allahs blessings be with you and your family. i pray that Allah cures your girls. My duas are with you and your family. keep strong sis xx Munaza rochdale, UK - Monday, August 13, 2012 4:30 PM CDT ALLAH apko sabr par qaym rakhey..aameen salman <syed.salman.ali1@gmail.com> - Monday, August 13, 2012 3:16 PM CDT I pray that Allah continue to give you strength and courage to get through this difficult time, and may Allah grant you the parents, and your three girls Janatul Firdous. I will remember your beautiful girls in my dua, InshaAllah. Sheereen <reeneskh@gmail.com> SYRACUSE, NY USA - Monday, August 13, 2012 2:50 PM CDT blessings to all of you tayyaba elaine mckhann <mcinc5@aol.com> wood ridge, nj usa - Wednesday, July 25, 2012 2:21 AM CDT Assalamu Alaikum, Your courage and grace shines through your entries. Inshallah Allah will continue to help you and give you the strength you need to overcome your difficulties. You are enduring extreme hardship in this duniya, may your akhira be full of ease and beauty. Haania East Brunswick, NJ USA - Sunday, July 15, 2012 12:19 AM CDT May the goddess bless these girls. Jai Mata Di a Hindu Friend Nitin <blissfoursoul@gmail.com> Boston, MA USA - Friday, July 13, 2012 10:24 PM CDT As Salaamu Alaikum, I'm praying for your beautiful girls, you are such strong parents. Karim - Friday, July 6, 2012 8:49 PM CDT Ma'Shallah your family is beautiful! May Allah give you and your family the highest jannah. Your daughters are so cute! I'm sorry that they have to go through that.. Praying for them :) Bissaya Abdella Clearwater, Fl USA - Tuesday, June 5, 2012 9:57 AM CDT Prayer for you and your girls. Allah knows best. These beautiful children are without sin. In this way, they are the best and most blessed human beings on this Earth. You wrote it hurts to know that they don't know who their mother is; but they grew in your womb and heard your voice and you carried them for nine months, and no matter what science says, when they look and hear and touch your warmth, surely they find no better happiness than with you and their daddy, for God has created a special bond between parents and their children. Never despair. Allah is watching over all of you. Bina - Sunday, May 27, 2012 9:10 PM CDT As Salaamu Alaikum Allah swt is with the believers so continue to stand firm and enjoy your beautiful family. I shall keep you in my duaas and heart, insha Allah. Inna Ma'al Yusri Yusra May Allah swt bless you all with happiness, peace and firm faith in Him swt ameen. <3 Kalimah Yusuf <kalimah945@yahoo.com> Baltimore, MD USA - Thursday, May 24, 2012 11:27 PM CDT AssalamuAlikum Wr Wb, deeply saddened, May Allah cure your precious kids. May He (SWT) give your kids a long, happy life full of blessings, laughter and Iman! Ameen. May the parents see the happiness of their kids Ameen. Everything is done by the hukum of our creator, Allah (SWT). Despair not, don't become impatient, everyone goes through tests in many different ways. Recently someone very dear to me went through something similar... her first child was many complications and could not survive more than 3 weeks. She and her husband kept patient, for Allah promises Jannah, paradise for those who are patient...and Alhamdulillah she and her husband are also happy to know that their child is at a better place, he is in Jannah InshaAllah, since all children go to Jannah. Also, the doctors may say there is no cure... but Allah has down no disease without it's cure (Hadith). There is a cure for every disease! and the cure can be found in the Quran, Allah says in the Quran that He has made Quran Shifa (cure) and Rahma (Mercy) for the believers! I deeply pray for your family, May Allah SWT make this difficulty easy for you by curing your kids <3! H.A. Markham, ON Canada - Tuesday, May 22, 2012 9:55 AM CDT Saima in Dubai mentioned your family to me, and my heart goes out to you. I have one child with special needs, but you have three, and while I do not envy the challenges that Allah has placed before you, I am fairly sure that I will be very envious of your place in Jannah. May Allah make it easy for you in this life, and in the next may you sit in Jannah in eternal shade with all of your children. With love and duas, Umm Khalid in Dubai Abez Dubai, Select United Arab Emirates - Wednesday, May 16, 2012 11:26 AM CDT Aslamualikum wr wb may Allah swt grand Shifa to the kids mashAllah your doing an Amazing job just hang in there. Afreen Usa - Monday, May 14, 2012 1:47 PM CDT As salaam alaikum, I felt so bad to hear about the situations your girls are in. It must have been very painful to handle three grils all suffering at the same time, with difficulties swallowing , eating and sitting and even laying.-- I hope things gets better for all of you. I hope Dr found a cure pretty soon to save your son. It takes great courage to handle so much for so long--you are both such loving parents. I pray to God that things get better for you and your family and that Allah Blessed you all with the Best of Best rewards ....That Allah gives you all what is best for you all.Ameen! Tahira Taj <tahira_taj@hotmail.com> Marietta, Georgia United States - Monday, May 14, 2012 10:12 AM CDT May Allah swt blessings come showering down on you all, and May He reward you for all your struggles. Umm Musa Riyadh, Saudi Arabia - Monday, May 14, 2012 1:53 AM CDT Asalaamualaikum, We pray that Allah grants you and your children patience and a mighty reward during this trial. May He bless you with healthy children who will be an asset for you in this life and the hereafter. Wasalaam Abu Maryam Abu Maryam Abu Dhabi, UAE - Monday, May 14, 2012 0:08 AM CDT As salamualykum, May Allaah swt grant you all good in this life and good in the hereafter may He cure your children, ameen. I wonder if there is a way to detoxify? i have been reading about how different illnesses including autism can be helped through the GAPS diet. www.Gaps.me Allah swt knows best if there is a cure for this illness. It is known that food can make us ill or make an illness worse and for some people different foods can cause death, so perhaps it would be worth looking into. I mean no disrespect or offence and i am sure you are very busy, but i am just mentioning it as an idea. Allaah swt knows what is best for each of us and i pray He gives you all what is best for you all and enters you all into jannah ameen. wasalam umm Sualiman - Monday, May 14, 2012 0:00 AM CDT Assalamualaikum my sister Tayyaba and my brother Zarrar and your beautiful children. May Allah make your trials easy for you. `And remember Ayyub, when he cried to his Lord, "Truly distress has seized me, but You are the Most Merciful of those that are Merciful. So We listened to him: We removed the distress that was on him, and We restored his people to him, and doubled their number - as a Grace from Ourselves, and a thing for commemoration, for all who serve Us.' (Al-Anbiya 83-84). Noor Fort Worth, TX United States - Friday, May 11, 2012 7:59 PM CDT This has truly brought tears to my eyes and deep hurt for what you are going through. I have three daughters and I commend your bravery. May allah always keep you strong and give you all health and happiness. I am trying to donate from the uk but i am experiencing problems with your paypal link. I would appreciate some advise. Sofia bradford , uk - Thursday, May 10, 2012 5:53 PM CDT You must be so beloved to Allah (swt) for him to test you with such a huge test. The stories of your little girls brings tears to the eyes and sadness to the heart. May Allah make this trial easy for you and May allah reward you both with the highest of rewards and reunite you and your family in janatul firdous. Saba Sacramento, CA 95624 - Tuesday, May 8, 2012 4:18 PM CDT May Allah subhahnatallah provide you the strength and will to provide for your children. Inshallah all is for the best Maqsood Sheikh Dubai , UAE - Saturday, May 5, 2012 7:33 AM CDT May Allah give your daughters shifa, and complete recovery, may Allah strengthen you and your family, and make a halal means out of the situation you are in, may Allah grant you and your family the best in deen, dunya and akhira, ameen. Love you all for the sake of Allah Rabbia Aurora, co USA - Saturday, May 5, 2012 3:26 AM CDT May Allah SWT grant shiff'ah and mercy to your children and patience & courage for you, your family and loved ones. Ameen Saaema Alavi Chicago, Illinois United States - Friday, May 4, 2012 10:07 PM CDT May God help you through these times of hardship! Aamna Malik CA - Friday, May 4, 2012 4:40 PM CDT May Allah swt cure these beautiful girls and help them to lead a healthy and happy life. May Allah also make it easy for the parents to overcome this difficult time with patience and love. My duas are with the Beg family. itara <a.r.ahmed@dundee.ac.uk> dundee, Scotland - Friday, May 4, 2012 4:23 PM CDT InshaALLAH they are blessed with the highest level of jannah! InshaALLAH they receive many blessings from ALLAH in this world and the hereafter! Oh ALLAH may you help them and everyone suffering to overcome the trials, problems, and any sufferings we go through! Melinda Mak <lindamak67@yahoo.com> New York, NY America - Friday, May 4, 2012 11:49 AM CDT May Allah Help them recover. InshaAllah! Taiyaba Ahmed Colombo, Sri-Lanka - Friday, May 4, 2012 10:53 AM CDT Subhanallah, I pray for fast recovery and may Allah increase your Iman and make this easy for you. Zeinab Aden Columbus, OH United States - Friday, May 4, 2012 8:53 AM CDT I Specially pray to ALLAH for your situation to become easy and I am sure GOD wiLL Bless your daughters and family... Navid Greensboro, NC USA - Friday, May 4, 2012 8:42 AM CDT Thummas Sebilla Yasarahu,may Allah meet you at all points of your needs insha Allah,may Allah bless the wonderful girls and grant them better health insha Allah. Rilwanulai <kunzo4real@yahoo.com> Barking, UK - Friday, May 4, 2012 8:13 AM CDT Its heart breaking to hear this may Allah protect everyone. Mrs Shaikh Riyadh, Riyadh Saudi Arabia - Friday, May 4, 2012 7:58 AM CDT May Allah help you and bless the kids. Ishrat Sydney, NSW Australia - Friday, May 4, 2012 6:30 AM CDT May Allah Ta'allah always BE with you and your family. F Cph, - Friday, May 4, 2012 4:21 AM CDT May Allah reward you with the highest of na'mats in this duniya and hereafter. I will continue to remember you and the kids in my prayers. sameer <sameeraslam@gmail.com> stafford, va usa - Friday, May 4, 2012 4:10 AM CDT In the Name of Allah, O Beg Family, it truly breaks my heart to hear of what has happened to to your three daughters! I just want you to know that everything that you ever hoped for would all make it easy for your family one day INSHALLAH and that your daughters would soon revive once again. Mashallah Sister Tayyaba, you are such a strong woman, with a good heart and most importantly, patience. May Allah (SWT) grant you Jannitul Ferdous for your amazing deeds! I cannot imagine what you are going through. In the Name of Allah, Ameen Samya <samya_y_1991@yahoo.com> USVI, - Friday, May 4, 2012 2:43 AM CDT May Allah (swt) bestow many many blessings upon you and your family, ameen. My dua's are with you all. Ariba chicago, il usa - Friday, May 4, 2012 2:13 AM CDT Your story was touchy. Mashallah you are a very strong woman. I could only imagine of your patience and perseverance! May Allah reward you immensely for that. And surely as Allah has said in the Quran : 'إن الله مع ألصابرين' Verily, Allah is with the patient. And if Allah is with you, if the Lord of the heavens and the Earth is with ,WHAT do you have to fear and worry?! Verily, Allah's help is always near. I pray and hope He grants quick and easy recovery to your dear children and solve all your difficulties. May He give you and your family the best in the duniya and aakhirah! Ameen. Ansari Tuba India - Friday, May 4, 2012 2:08 AM CDT Salaam. I am nursing a 4 month old baby that only has a cold and I am finding it so difficult! Your story put things into perspective for me and made me realise just how fortunate I am. The gift of good health is so precious. You guys are doing an AMAZING job looking after your 3 beautiful girls, mashallah (as well as your 2 boys too!). Only Allah knows how you manage and inshallah He will grant you all an eternity in Jannah. Rubina Docrat <rubinadocrat@hotmail.co.uk> Leicester, UK - Friday, May 4, 2012 2:07 AM CDT Asalamu alaikum, May Allah SWT continue to bless you all. My duas and best of wishes to you all. Ramzan Brisbane, QLD Australia - Friday, May 4, 2012 1:24 AM CDT Asalamu alaykum Zarrar and Tayyaba. I just saw your story and want you to know that my duas are with your family during this difficult time. May Allah bless your children with the shifaa and may Allah grant you patience through this hardship. InshaAllah Ameen Your brother, Haroun haroun hamilton, on canada - Friday, May 4, 2012 0:33 AM CDT Asslam-o-alaikum!Dear Beg family...it saddens my heart to see you in pain.But then,we all must remember that Allah(SWT)tests the best amongst His creation and let me tell you that you are one best family!May you remain united and all of your problems be solved.Ameen!May Allah(SWT)keeps on showering His blessings and love on you!Ameen! Zahra Nawaz <sabrinamalik09@gmail.com> Lahore, PAKISTAN - Friday, May 4, 2012 0:18 AM CDT My heart goes out to you. May Allah swt grant your family health, strength and all the happiness in this world and in the hereafter, aameen faryal toronto, - Thursday, May 3, 2012 3:37 PM CDT Asalam alaikum waramatullah wabarakatu dearest Beg family, may Allah continue to strengthen you all with patience and grant you all jannah al firdaus. Amin. My heart is with you all and I appreciate your couarage in sharing your story. Jazakhallahu khairan. InchaAllah I may have the honour of meeting you all in jannah amongst the best of people. Do take good care of each other. Your sister in Islam. Nafisa uk - Thursday, May 3, 2012 2:09 PM CDT Assalamoalikum warahmatullah, Dearest sister Tayyaba,you are one of the most beloved slaves of Allah(s.w.t),Allah(s.w.t)only tests those whom He loves,and so the slave bears the trials patiently and his stature increases.I make dua with deepest feelings of love for the three angels that may Allah(s.w.t)grant them complete shifa and may they grow up to become the coolness of your and your husband's eyes and become true Muslimaahs.Aameeen,remember sister Allah is Qaadir!He will bless them very soon InshaAllah,stay strong without losing faith in His mercy Munazzah Annas Karachi, Sindh Pakistan - Thursday, May 3, 2012 11:03 AM CDT You and your family are in my ad'iya May Allah swt increase you in patience and strength and reunite you with your entire family, in jannah, where there is no fear and no grief Miriam Bhutta Brooklyn, NY United States - Thursday, May 3, 2012 5:17 AM CDT May Allah bless you abundantly and give you strength to take care of these kids. Thank you for sharing your turmoil and I have picked a great lesson to say Alhamdulillah more and complain less... my heart is so heavy... You will remain in my dua, insha Allah. Amina Sambo <aminamagaji@yahoo.com> Aberdeen, Aberdeen United Kingdom - Thursday, May 3, 2012 4:27 AM CDT May Allah SWT bless you for taking such wonderful care of your beautiful children :) Maria B. - Wednesday, May 2, 2012 11:09 PM CDT Assalamalaikum wa rehmatullahi wa barkatahu, May ALLAH swt always keep you and your family under his mercy and protection and make this journey of life easier for you. I dont have appropriate words to describe how i am feeling for you my dear sister.May ALLAH reward you for your patience and courage aameen. I believe that ALLAH swt is able to do all things nothing is beyond our creator I pray to our rab that HE bless your beautiful children with good health always aameen Parveen fatima Union city, Ca USA - Wednesday, May 2, 2012 8:11 PM CDT Salaams .......It's heartbreaking indeed. We as muslims should always believe and we do of course that whatever happens in our lives is all what Allah SWT had intended and there is no denying the fact that Allah SWT is the one who brings us solace and a favourable outcome. I myself lost a beautiful and very bright son of mine in England way back in 1981 in a matter of months and myself and my family accepted that as the Will of Almighty Allah.And again in 1998, after arrivng in the US, all of a sudden I lost my dear wife, a healthy robust person, in a matter of couple of weeks.Again, it is the Will of Almighty Allah and we have to bow down and accept. This is all part of our lives and therefore hard and difficult and tragic it may be we have to be patient and seek Allah SWT's forgiveness and his choicest blessings. May Allah SWT grant you 'sabr and tahammul' and He is the only one who can turn around and bring you and relieve you of your difficulties. May Allah SWT bless your family and I offer my warmest best wishes to you Zarrar and your wife Tayyaba and pray that Allah SWT grant you peace. farhatullah sharif <rinnomammo@hotmail.com> Houston, TX USA - Wednesday, May 2, 2012 6:27 PM CDT As-salaamu alaikum wa rahmatullaahi wa barakaatuh. May Allaah bless your family and increase you in eemaan and sabr through your trials. May He allow you to see the benefit in your situation and to have hope for His Pleasure and for Jannah. May He accept it from you and be well pleased with you. I want to remind you of the hadith that the Messenger of Allaah, salallaahu alaihi wa salam, affirms for us that the affair of the believer is always good. On the authority of Abu Yahya Suhaib bin Sinan (May Allah be pleased with him) it is related that the Prophet (Peace be upon him) said, "“How amazing is the affair of the believer. There is good for him in everything and that is for no one but the believer. If good times come his way, he expresses gratitude to Allah and that is good for him, and if hardship comes his way, he endures it patiently and that is better for him.” I pray that this trial, seeing your beloved children in hardship, finds you all in Jannatil-Firdawsil-A'laa together happy with no trace of sadness or hardship. Aameen Your sister, Umm Aasiyah Inshirah Abdur-Rauf MA USA - Wednesday, May 2, 2012 3:04 PM CDT Salam sister, My prayers are with you and your family - May Allah ease your burden and your childrens. All the test and trials will only make us closer to Allah. Be steadfast in your imaan,there'll be a reward.Insya Allah. Anisha Raffid Malaysia - Wednesday, May 2, 2012 7:07 AM CDT Asalamu alaikum, May Allah SWT continue to bless you all. My duas and best of wishes to you all. Farwah Rathor <farwahrathor@hotmail.com> London, - Wednesday, May 2, 2012 4:03 AM CDT Wishing the children much happiness and continued little steps of success in every little thing that they do. You both are awesome parents, Mashallah! Be strong...keeping you all in my Duas, Mariam. Mariam Zehra Ali <zehraazher@yahoo.com> Fremont, California United States - Tuesday, May 1, 2012 11:45 PM CDT Fasbir sabran jameelan -- therefore, do hold a patience, a beautiful patience. May Allah (swt) grant you and your family patience and Jannah Firdaws for your struggles in this world. Your little girls are in my du'as, may Allah (swt) ease your situation and give you comfort and peace in all your days Nasrin Shakib Arcadia, California United States - Tuesday, May 1, 2012 7:08 PM CDT As salaamu Alaykum, there is every cure for disease except for death! jummuah - Tuesday, May 1, 2012 6:42 PM CDT Assalamualaikum May Allah accept your prayers and gives you the strength,patience and reward for the trials you and your family are going through. Turn to Him for your solace. "The ones who are guided the most are amongst the most pious." Humairah Musa London, U.K - Tuesday, May 1, 2012 5:47 PM CDT Assalamualikum, your family is a great inspiration to me. Allah tests those whom He (swt) loves the most! How close your Family must be to our Creator! I pray that only the best happens for your beautiful family. Ameen Sameen Kinza Chicago, IL United States - Tuesday, May 1, 2012 5:07 PM CDT Can you make an online page where we can donate via credit card ? None - Tuesday, May 1, 2012 4:16 PM CDT Our duas and prayers for your beautiful children and your wonderful family. Shahana Malik <sejmalik@gmail.com> SOUTH GLASTONBURY, Connecticut United States - Tuesday, May 1, 2012 12:13 AM CDT If I had a jannat in this world, I would hav given it to you. You have inspired me by your strength. Samreen <samreensiddique@live.com> Islamabad, Pakistan - Tuesday, May 1, 2012 9:40 AM CDT I ask Allah to cure your beautiful daughters (and your autistic son), to continue to give you and your family strength, to increase you all in tranquility and contentness and inner peace, to elevate you all in higher stations w/ Allah in this life and the next. Barak Allahu feekom. You all are in my duas and heart. Miriam <sistahmimo@hotmail.com> VA USA - Tuesday, May 1, 2012 9:15 AM CDT Our doa always to you and your family. May Allah gives you and your family strength...Amin SAJEETHA SALAHUDEEN <DEEN4041@AOL.COM> RICHARDSON, TX USA - Tuesday, May 1, 2012 9:07 AM CDT ASAK Tayyaba, You are so strong lady. MA!! I Salute you my dear with going through so though time and still smiling. I couldn't stop crying while reading your Journal. May Allah S.W.T help you in every difficult time, we cannot say anything as no word is there to express. Today when reading your journal I got more strong. Thanks to my good friend who posted this link on facebook. I'll share with all my friend and if I can be any help to you, Don't hesitate to give me a call. Distance can come closer just by supporting you & helping you. May Allah S.W.T help you in every step. Ameen Reshma Khan 214-801-6601 Reshma Khan <reshmaakrama07@yahoo.com> Dallas, TX USA - Tuesday, May 1, 2012 8:21 AM CDT Your girls are just beautiful and when reading the news articles I see that their parents are so strong and so kind and patient. What a wonderful family. I will keep you all in my prayers. Inshallah this reaches you in happiness. Sarah Birmingham, England - Tuesday, May 1, 2012 8:16 AM CDT Assalamualykum, Please be patient and expect best from Allah. May Allah SWT make it easy upon your family and children. May Allah SWT cure their diseases and make them healthy. Ameen. Imtiaz Hyderabad, AP India - Tuesday, May 1, 2012 5:03 AM CDT I will keep these three lovely children in my prayers and that allah (SWT) will grant them & their parents the strength and power to overcome all. Tariq El-shiekh <tariqdj17@hotmail.com> Khartoum, KH Sudan - Tuesday, May 1, 2012 4:50 AM CDT You are truly an inspiration. It is the way of the Prophets to be tested thus. I hope you come out of this strong in faith, love and beauty. May Allah bless your family again, and again and again. miskeena UK, UK - Tuesday, May 1, 2012 4:36 AM CDT May Allah bless you all with the best in this life and the next. May he grant you Firdaus ul Aala! Ya Rab! I think I am going to cry, you must have such strong imaan that Allah test you this way. THe prophet was asked saws who will suffer the most afflictions in this life and he answered: The prophets. and then the ones most like them and then the ones most like them. May Baby is also tube fed, and deaf blind wtih lots of other issues as well. May Allah give us strenghts and Sabr and Imaan and reunite us with our healthy happy children in Jannah, Ameen. Marzia <m_c_AZAM@YAHOO.DE> - Tuesday, May 1, 2012 4:16 AM CDT there is no disease that Allah has not send a cure ! in sha Allah May Allah cure them ! never give up hope in Allah ,He is always there for us ! ill remember you and your family in duas ! May Allah send his blessings and cure the three children Muhmammad Faraj <farajkhan594823@gmail.com> dubai, dubai U.A.E - Tuesday, May 1, 2012 3:17 AM CDT May Allah SWT give the girls a complete cure from this affliction, and give their loved ones the strength and iman to go through this trial successfully. Please stay steadfast in your faith. Inshallah, things will get better soon. Farhat Fremont, CA USA - Tuesday, May 1, 2012 1:22 AM CDT Assalaamu alaikum, your story is so touching and is definitely a lesson to all of us! May Allah continue to grant your family patience, strength and faith. I pray that you are all granted the best in this world and the best in the Hereafter. May Allah grant your children a complete cure and may your sacrifice and love for your children be your means for entering Jannah. ameen! ameen! ameen! You are both exemplars for parents everywhere. Keep your trust in Allah, for certainly only He is the Reliever. I will remember you all in my du'aa inshaAllah. S.Ali Trinidad & Tobago - Tuesday, May 1, 2012 1:18 AM CDT Assalamualaikum. May Allah cure them with His cure and treat them with His medicine and keep them safe from His calamity. May Allah grant you jannah. Amin. Nur Azrin Abu Bakar <stellarotica27@yahoo.com> bandar baru bangi., Selangor Malaysia - Tuesday, May 1, 2012 0:29 AM CDT May Allah bless your family with all the courage to succeed through this test. my duas are for these three precious angels Ameen. Sumayyah Naperville, Il Usa - Tuesday, May 1, 2012 0:17 AM CDT Duas for your beautiful family. May Allah swt give your children shifaa and ease, and give you patience and all the rewards in this life and the next. Rabia Chaudry Greenbelt, MD USA - Tuesday, May 1, 2012 0:04 AM CDT Salaam aleikum! May Allah(swt) bless your family greatly. You have my support. You are great parents. -Treasured Memories Photography Rhode Amira Aamoumour Orlando, FL USA - Monday, April 30, 2012 11:55 PM CDT Inshallah ya rabb they will be your vehicle to Jannah-- May Allah grant you patience and strength and ajir for what you've done for your beautiful little girls. Your family is in my duaas. M Alqasir Parker, Colorado USA - Monday, April 30, 2012 11:37 PM CDT Salaam, may Allah swt. grant you patience and good health for your daughters insha'Allah & may he grant you and your family the best in this world and the hereafter. Ayesh B. - Monday, April 30, 2012 11:29 PM CDT Assalamu alaykum, We have your girls and you in our duas... Mehreen kadri <Mehreenkadri@gmail.com> Corona, CA - Monday, April 30, 2012 11:29 PM CDT Salam, You are in my duas. Be strong, parenthood is a challenge in itself so don't be hard on yourself just keep faith in Allah. Nathalie <nathaliechica@yahoo.com> Hackensack, New Jersey United States - Monday, April 30, 2012 11:23 PM CDT SubhanAllah, I really don't know what to say, except make Dua for you. Allah see's and hears everything....may you be rewarded for you patience. I just don't know what to say..... whbet Beyan <whbetbeyan@gmail.com> Hoppers Crossing, Victoria Australia - Monday, April 30, 2012 11:05 PM CDT May Allah grant you patience and perseverance throughout this trial. May Allah grant your family jannatul firdaus Hafiyyah Othman Coventry, West Midlands United Kingdom - Monday, April 30, 2012 11:00 PM CDT Asalaamu Alaikum, MashaAllah, may Allah grant you more patience and increase you in rizq, and make your matters easy for you! Patience dear family! May Allah shower his blessings on you ameen Sister I. - Monday, April 30, 2012 10:54 PM CDT Insha'Allah you will meet your daughters in Jannah and be there together..this life is only a test! Mashallah you are an amazing mother may Allah swt ease your task for you and reward you and your family! Ameeeeen Yasmin - Monday, April 30, 2012 10:48 PM CDT Assalamu Alaikum, May ALLAH(sbw) give you strength and patience in these difficult times and may ALLAH(sbw) give your daughters remedy by HIS mercy.I sincerely pray to ALLAH(sbw) for you and your family. Wassalam Nafiz Dhaka, Bangladesh - Monday, April 30, 2012 10:42 PM CDT Salaam, I want you and your little girls to know that you all have my blessing. I will keeping think of your girls through my pray. May Allah bless and place protection for you and three beautiful daughters. Ameen. The lovely girls deserves a good chair to meet their needs and comfortable too. They have my vote. Krysten Charlotte, NC USA - Monday, April 30, 2012 10:43 PM CDT Hey Salaam, Even through these conditions, may your children be able to continue to seek and find peace and happiness in the small things, because that's where the true beauty lies - iA. I read on this website that you need a ramp. I am a student, therefore I cannot give you the money, but you can try contacting the local mosque or college and see if a student-run organization would be willing to build one for you. I will still wish you the best of luck. Ferdous <noshin.ferdous@gmail.com> Austin, Texas United States - Monday, April 30, 2012 10:18 PM CDT May ALLAH s.w.t bless you and your daughters. You seem like such strong parents who are going above and beyond for your daughters, may ALLAH s.w.t bless you and your children and shower his mercy on you all! Ameen! You guys truly are an inspiration to all parents out there. Nasreen <nazk007@sbcglobal.net> Chicago, IL USA - Monday, April 30, 2012 9:21 PM CDT assalamu alaikum, may Allah SWT reward you for your patience and give a cure for your girls. As a mother, the strength in dealing with not just one but three girls with a rare disorder shows me the strength that Allah SWT places in parents and the love and mercy for their offspring. Fatima Australia - Monday, April 30, 2012 9:19 PM CDT May God be with them all. Mariam Bouillon <Christina_bouillon@yahoo.com> Fort Worth, Tx USA - Monday, April 30, 2012 8:45 PM CDT Im in tears ALLAH SUBHANAHU WA TA'ALA bless you all, give u more strength & saber Ameen... Its so painful for the parents to see there kids in pain & that also every day :( Be strong Mom & Dad . Tayyaba Yousaf <Tulip_t@hotmail.com> Dubai, U.A.E - Tuesday, March 6, 2012 0:08 AM CST God Bless you all!! Our thoughts and prayers are with you, Mum and Dad, and your adorable kids!! Inclusive Society Pakistan <admin@inclusivesociety.org> Karachi, Pakistan - Monday, March 5, 2012 10:57 PM CST I heard about your daughters from a friend. I have kids myself and I can imagine what you're going through. Your patience and strength has amazed me mashAllah! You are truly a great example for all of us. May Allah shower all his blessings on you and your family in this world and the hereafter, Ameen! Sundus <sundus_kakakhel@yahoo.com> Essex UK - Thursday, March 1, 2012 3:51 AM CST I also have 2 adult children with Sanfilippo Syndrome and can definitley sympathize with you and your family. My children are both in a care facility and have been there since they were 5 & 6 years old. I have a lot of respect for you to care for your 3 girls at home. My children are 43 & 42 years old this year, and with modern technology and tube feeding will probably live much longer than originally thought. I wish you strength in your long and difficult road ahead, and my heartfelt best wishes. Annette J. Corriveau Annette Corriveau <anneke86@rogers.com> Mississauga, Ont. Canada - Tuesday, January 31, 2012 6:59 PM CST im just crying after going thru this website. no words! speechless............just one pray may allah give u strength beenish <beenaeem@hotmail.com> uk - Saturday, January 21, 2012 9:06 AM CST HAPPY NEW YEAR!!!!!!!! STILL WAITING FOR REPLY TO NY DRS. HOPE IT COMES SOON.....LOVE YOU ALL....ELAINE ELAINE MCKHANN <MCINC5@AOL.COM> WOOD RIDGE, NJ USA - Sunday, January 1, 2012 8:22 PM CST i just came across this page and just had to let you know how i feel. subhanAllah you're such an amazingly blessed woman, i'll look up to you now as an inspiration :)never have i come across someone who's as patient as you are. inshaAllah the smiles of your children will always brighten you life. never lose hope, Allah the Amazing Planner has something great in store for you. Saniya Rashid Islamabad, Pakistan - Thursday, December 22, 2011 9:38 AM CST May Allah give you strength and patience to endure these trying times and fill you life with prosperity and happiness!! Badhriya <badhriya@gmail.com> Trivandrum, Kerala India - Wednesday, December 21, 2011 8:46 PM CST May Allah (swt) bless your family and children. May your children become healthy. May He give you ease and blessings in your endeavors. Ameen. I will keep you in my duas, inshaAllah. Your strength is inspiring mashaAllah. Sister in Islam <lookendearing@gmail.com> - Tuesday, December 20, 2011 2:33 AM CST Bless you and your family and give you strength.... Linda Dabak (Elaine Mc Khann's sister in law) charlotte, NC USA - Tuesday, December 13, 2011 4:53 AM CST READING YOUR JOURNAL NOW. WILL SEE YOU TOMORROW. ELAINE <MCINC5@AOL.COM> WOOD RIDGE, - Monday, December 12, 2011 9:23 PM CST Thank you for letting me know about your update. You have certainly had an eventful year! I am glad you are getting a new handicap accessible home. I hope that makes you life a bit easier. Give your precious children a hug from me! Annette Mccabe Marshfield, WI USA - Friday, December 9, 2011 6:45 PM CST My dear you are a trooper, soldier....believer and a example to follow. LOVE U so much. Thanks for teaching us patience! Amber Malik Sheikh <ambersheikh@gmail.com> Teaneck, NJ USA - Friday, December 9, 2011 9:13 AM CST Hugs and prayers to you all! I knew most of what had been going on with your girls and the house, but not all. Best wishes for this new house. Your family is always in my prayers. Robin Piefer - Thursday, December 8, 2011 7:22 PM CST LOVE ALL OF YOU AND PRAY FOR ALL OF YOU ELAINE <MCINC5@AOL.COM> WOOD RIDGE, NJ USA - Sunday, October 23, 2011 1:38 PM CDT السلام علیکم We all pray for you and your family. you and family are always remembered as someone ***SPECIAL *** Waqas, Hafsa, Abdul Hadee, Areeba , Ayesha Siddiqua Abdul Rehman and Khala Jan Waqas & Family <sure4edu@gmail.com> lahore, Pakistan - Tuesday, October 18, 2011 8:26 AM CDT SubhanaAllah! May Allah (swt) increase your sabr & reward you with hassanat for all you're going through. Ifrah Minneapolis, MN USA - Tuesday, October 11, 2011 12:34 AM CDT I ask Almighty Allah, Lord of the Magnificent Throne, to make your children well. Khadija - Tuesday, August 30, 2011 8:32 AM CDT InshaAllah you all are finding peace during such a challenging time. As parents, I am amazed by your sabr and faith. Abdul Qadeer Ahmad Sacramento, CA United States - Monday, August 22, 2011 9:20 PM CDT ****TO A SPECIAL FAMILY**** Dear All - Asslamu Alikum We all pray for you.Holy month Ramzan is coming. Do remember in your prayers and good Wishes. Waqas, Hafsa, Abdul Hadee, Areeba, Ayesha Siddiqua, Abdul Reman Waqas <arshad.waqas@gmail.com> Lahore, Pakistan - Saturday, July 23, 2011 4:05 AM CDT i work with disabled children one who has san fillipo syndrome hope u 3 girls are well at the moment helen cocker <helenvarley_1963@hotmail.com> england, - Thursday, July 7, 2011 4:32 AM CDT May Allah swt give u all strength. And may He (swt) make this trial a means of entering jannah insha'Allah. Ameen Asim United Kingdom - Thursday, June 23, 2011 4:41 PM CDT Salaams Tayyaba and your lovely family. You sound like such a generous and loving person. I am totally humbled by reading about you. May Allah SWT make this test easy on you. I had not heard of this disorder up until now. Wishing you all the best and du'as xx Rifat <ree786@msn.com> Birmingham , UK - Thursday, June 23, 2011 4:01 AM CDT Assalam-o-Alaikum, I am so humbled and awed reading about Abeerah, Khansa and Zahra, and even more awed by Tayybah and Zarrar. Allah SWT has chosen this task of caring for three beautiful angels for you, and you are fulfilling His duty so well. May He continue to give you strength and patience, and may He shower His blessings on all of you, now and always, Ameen Mussurut Blackburn, UK - Thursday, June 23, 2011 2:23 AM CDT May Allah relieve your problems and give you girls the best lives! Ishrat <ishratg93@yahoo.com> Jamaica, NY USA - Thursday, June 23, 2011 1:27 AM CDT Assalamualaikum Allahu musta'an. My love goes to your beautiful daughters & sons, and the wonderful parents. Thank you very much for making me realize that I should never complaint about anything anymore. atty kuala lumpur, Selangor malaysia - Thursday, June 23, 2011 1:25 AM CDT Salam... May Allah be with you girls Insyallah.... Hayaty <hayatykhamsi@yahoo.com.sg> Singapore, Singapore Singapore - Thursday, June 23, 2011 1:04 AM CDT Your beautiful girls show a power hard to explain or ignore...they are precious for every day they live, every breath they share with us and every heart that they open when we see these pictures. I can only pray for them, yet you have already been blessed: their presence and love will never be forgotten, you have that in your lives always...and I can see that I have merely touched just a wisp of the hem of their unique & angelic lives. A kiss on the forehead from me for each of your wonderful girls! S.L."Koba" Kay <koba.binx@yahoo.com> San Diego, CA USA - Tuesday, June 14, 2011 10:24 PM CDT Salam to all, I just found out this site and then i started looking through it.I have a sister who is deaf and i often think that the disease she have is the worst of all.Now that i seen this page, I am shocked.My sister just can't hear other wise she is perfectly normal.After seeing this site, I am thankful to Allah and I hope that your family doesn't let go of hope.Being hopeless is a sin, so please don't forget about that.Keep praying to Allah, HE helps everyone and He will help your kids as well.Inshallah Tania <teray_leyea@hotmail.com> N.J u.s.a - Saturday, June 4, 2011 4:22 PM CDT Just found this site, may Allah swt give all of you the strength to keep going. nuran - Monday, May 23, 2011 0:45 AM CDT Salams all! Mashalllah your girls smiles brightened my night... Our kids are a gift and a test, may Allah swt grant us parents the patience and desire to do our best.. Much love(and duas) kareema Atlanta, - Sunday, May 22, 2011 9:02 PM CDT Asalamualekum! I just came across this page and felt so strongly to write some words of admiration and awe at these very brave little girls and their wonderful parents/caress. I pray God gives you all beautiful patience and comfort in knowing His mercy will always be on your beautiful family. May He give you ease and peace. In my thoughts and prayers. Nagena Quraishi KY USA - Sunday, May 22, 2011 7:53 PM CDT Assalam Aleikum! May Allah bless and keep your beautiful babies and you close to Him. With all my heart, Parvati Kaur Covarrubias <warajahuira@hotmail.com> Enid, OK USA - Monday, April 25, 2011 6:06 PM CDT Assalaam alaikum wa rahmati wa Barakatohu Sister. Alhamdulillah, all praise is for Allah who has created life and death to test us. I admire your strength and patience and your iman to keep going. Indeed Allah loves the Assabirun and you will receive your reward from the Almighty. You have a beautiful family masahallah and I pray the Almighty keeps you together and happy and grants ashifa for the ailments. Allah azzawjal states that No burden is placed on a soul greater than it can bear. The Prophet also stated no pain even as minute as the pricking of a thorn is ordained for anyone except to purify them. My son was diagnosed with Sanfillipo type A last year so I am aware of what you are going through to some extent. We have enrolled for a study which is testing an enzyme to try and slow the disease progression so there is some hope inshallah. Please get in touch if you would like some fourther information on this. Your family is in my prayers and I humbly request you also make a prayer for my son Hashim. May Allah grant Shifah on your family and increase you in sabr and taqwa! Asif Hussain <asif_hsn@yahoo.co.uk> Birmingham, UK - Sunday, April 17, 2011 6:32 PM CDT I don't know how to give all those beautiful blessings like your other guests, but I didn't want that to stop me from writing something no matter how humble my comments would be in comparison. I don't know how you keep going with such challenges and it is obvious you are a loving couple and care deeply for your family....I can only offer my prayers. I am an Orthodox (Christian) monastic (nun). Be assured of my daily prayers for your family from now on and forever. Sister Genevieve <orthodox.handmaid@gmail.com> TN USA - Saturday, April 9, 2011 11:37 AM CDT Assalamoalekum, The world may see these beautiful young ladies as helpless but I see them to be full of life and communicating a greater meaning than any of us. They have each other and a loving family that has helped them live such a powerfully influencing span of life. Life is decided by Allah the Most Powerful, but it is the person and the people around him or her who decide the meaning they make of it. Abeerah, Khansa, and Zahra convey a meaning. And all of us are with them in their quest for awareness of the syndrome they suffer. Associated with them are great stories of people who believe that life has a meaning and above all, they know how to devote and live for others. The doctors, friends, family, and the charitable hearts who are with this beautiful trio are all part of a bigger picture they may not realize they are a part of. Anum Ali <numallie@hotmail.com> Bowie, MD USA - Thursday, April 7, 2011 10:54 AM CDT Sending warm thoughts to your family. My cousin's step son lost his battle with the disease this morning. His mother is donating his body to a research hospital in hopes of learning more about it's damaging effects and ultimately help find a cure. Regards and hugs. Kris Evans <kevans3100@wowway.com> Detroit, MI USA - Friday, March 25, 2011 3:41 PM CDT As-salamu alaikum. I'm so sorry about your children,may Allah give you patience, and reward you for your hard work. A colleague of mine just lost his 24-year old sister to the same illness this week. I think she is the longest survivor of this illness. May Allah make it easy for your sweet children and your family. Ameen. Fariba Beg Manassas, VA USA - Thursday, March 24, 2011 2:59 PM CDT Assalaamu Alaikum waRamatullahi waBarakatuh I am humbled by your trials. I will inshaAllah keep your family in my adeyah. May Allah subhanahu wa ta'ala reward you with Jannatul Firdous for your sabr. May He grant peace and a cure to your daughters. Ameen! Peace and Blessings be upon Rasool Allah salAllahu aleyhi waSalaam, his family, and his companions. Ameen! Basma Abdullah Indianapolis, IN USA - Monday, March 21, 2011 11:28 AM CDT Beautiful family. I pray that your lovely daughter is returned to her original state, freed from all harm, physical, spiritual and back into the loving being she truly is, protected and healed by countless angels, repairing and returning her to you and into the "now". Hopefully the nightmare is over, praise be to God {Allah}. Barbara <urubalight@msn.com> Los Banos, Ca usa - Thursday, March 10, 2011 2:37 AM CST Assalaum Alaikum; Your story has touched my heart in a deep and compassionate way. With your permission, I wish to send healing prayers tonight at midnight {california time} for your youngest daughter. Thank you, Peace to all our world. Barbara <urubalight@msn.com> Los Banos, Ca. USA - Wednesday, March 9, 2011 4:12 PM CST hi taiyabba your strength is unbelievable-i do not know what to say after reading your story. All my little complaints seem so silly, and i want to bow down in front of Allah and say shukar, and pray for your family. Your little girls suffering brought tears to my eyes. I hope very soon I can contribute to zahras operation. my prayers will always be with you, you are a very special person and family mashaallah nisha - Saturday, February 26, 2011 3:12 PM CST HI ZARRAR AND TAYABBA...... PRAYING AND THINKING OF ALL OF YOU.... ELAINE ELAINE <MCINC5@AOL.COM> WOOD RIDGE, NJ USA - Monday, February 14, 2011 2:24 AM CST ASLAM O ALEKUM.....INSHAALAH ALLAH HELPS U AND GOD IS WITH U THROUGH THICK AND THIN...SO DONT LOSE HOPE MUHAMMAD NIAZ <niazgujjar@ymail.com> FAISALABAD, PUNJAB PAKISTAN - Saturday, November 27, 2010 12:16 AM CST PRAYERS AND THOUGHTS ARE ALWAYS WITH YOU, ZARRAR AND THE CHILDREN......LOVE TO ALL...AND HUGS TO ALL... ELAINE <MCINC5@AOL.COM> WOOD RIDGE, NJ USA - Sunday, November 7, 2010 8:54 PM CST O you who are healthy, say "Shikaralhamdulillah" for Allah has given you health. Health is the greatest wealth. May God bless these children and make them better and able to do what you and I are able to do. May Allah give them a place in Jennah where they may wait for their parents to welcome them into Jennah when they become deceased. May God Bless!! Rimsha Malik - Saturday, October 30, 2010 12:22 AM CDT I pray Allah increases you in patience and strength . I am deeply touched by your experiences and have certainty that Allah will provide Divine aid for you and your blessed family. "Verily with difficulty there is ease." You will be in our du'as... Saimah Knoxville, TN USA - Monday, October 18, 2010 9:41 PM CDT السلام عليكم It was truly an eye opener to read your story as it serves to remind us of the many bounties that Allah has blessed us with and how we are truly ungrateful. After reading your story, the story of Prophet Yusuf (peace be upon him) comes to mind. Throughout the story, the father of Yusuf remains patience and only seeks assistance/help in Allah and he alone honors him and reunites him with his son. Similarly, as you have strove with the condition/situation that Allah has brought forth, he indeed will find a way for you. "Allah is with those who patiently persevere" 2:153 May Allah bless and reward you and your family during this trying time and turn your difficulty into ease, ameen. You and your family are in my prayers. Qamar <qahmed786@gmail.com> Knoxville, TN USA - Monday, October 18, 2010 1:32 PM CDT May Allah SWT make this trial easy on you and your beautiful children iA. I will remember you in my prayers. Shahab <sayeedi2000@yahoo.com> - Monday, October 18, 2010 10:30 AM CDT Assalamualaykum, May Allah grant you patience and ease with this very difficult test you all are going through. I am sure there is a special reward for people like you who are such great persevering parents. May Allah make it easy for you and bless your family in this life and the next, ameen. We will keep you in our duas. ilham <hajira_ilham@yahoo.com> Dallas, tx usa - Monday, October 18, 2010 5:33 AM CDT May Allah (SWT) make this easier on all of you. May He cure your daughters, and give them Shifa'a. You are a great mother, and they seem like great kids with great personalities. Praying for you! Amna - Wednesday, October 13, 2010 1:50 AM CDT May Allah Grant you the patience and strength. I will pray for you and your family. Mohammed Siddiqui - Tuesday, October 12, 2010 10:14 PM CDT assalamualaikum warahmattullah. dear zarrar and beg family.i read about your three beautiful daughters and it greives me much even though i dont know you and your family.truely,my tears,heart felt love and prayers all go out to them,to you and the rest of your family.may allah azza wa jal cure and give shifaah to all your 3 lovely princesses.may allah not try them and you any more.ameen.may allah help see you through this great trial in your life.ameen.you all are in my duwas (prayers)always inshallah.your brother izet.wassalaams izet.cekic <izzartny@yahoo.com> brooklyn, ny kings - Sunday, September 19, 2010 11:33 PM CDT Assalamu Alaikum I see you or not, you and your family are always in my prayers. Riffat Chaudhry <riffatac@yahoo.com> Bogota, NJ USA - Thursday, September 9, 2010 2:09 AM CDT Asalam wailaikum, Admire your courage. May Allah bless you and your family. bushra ozair fairlawn, nj usa - Tuesday, September 7, 2010 2:42 PM CDT Ramadan Kareem. Sr. Tayyaba, Br. Zarrar and children...You are in our prayers as always. Hope Abeerah, Khansa, Zahra, Ammar and Bilal are doing well. Ferial, Iffaaz, Atif, Amani and Grandma Ferial Salahudeen <fsalahudeen@yahoo.com> Plainsboro, NJ USA - Friday, September 3, 2010 5:49 AM CDT Assalmu alikum Dear Tayyab Baji & Zarrar Bhaee + Bacha party Ramdan Karim Mubarak Pls remember us in your prayers and good wishes in the precious moments of Ramdan Kareem. Waqas, Hafsa, Abdul Hadee, Areeba & Ayesha Siddiqua ++++Muzzi <arshad.waqas@gmail.com> Lahore, Punjab Pakistan - Wednesday, August 25, 2010 9:05 PM CDT Your girls are in my thoughts. John Gillespie <johngill200@earthlink.net> - Thursday, August 19, 2010 6:16 PM CDT Assalamu Alikum Tayyaba Baji & Zarrar Bhaee We all do pray 4 u and ur family. May ALMIGHTY help you in this Imtihan - AMeen ********************************************** Waqas, Hafsa, Abdul Hadee, Areeba & Ayesha Siddiqua <arshad.waqas@gmail.com> Lahore, Punjab Pakistan - Sunday, August 1, 2010 0:11 AM CDT Nothing is difficult when it comes to the power of Allah. He is The Powerful and also The Merciful. Just keep making dua and we will too. May Allah reward you for all the care you give to your children and for your patience. May Allah heal your duaghters and give them a quick recovery.....ameen Rasha Brooklyn, NY USA - Thursday, July 15, 2010 2:28 AM CDT May Allah give the Baig family sabr, and may Allah give these three beautiful girl shif'a inshaAllah. Zukhraf Shafi <lihub_bullah7@yahoo.com> - Sunday, June 27, 2010 3:09 AM CDT Thinking & praying for you and your family Lisa Marion, IN USA - Monday, May 17, 2010 12:44 AM CDT PRAYING FOR YOU TAYYABA....LOVE YOU, ELAINE ELAINE - Wednesday, May 5, 2010 9:30 PM CDT Salam =] Tayyaba, you're girls are very beautiful. Insha'Allah God will protect them. Good luck with everything. S. A. - Sunday, April 4, 2010 5:24 PM CDT As salaamu alaykum wa rahmatullahi wa barakatu SubhanaAllah I just read your blog and my heart goes out to you and your family. You have beautiful daughters MashaAllah. I will make du'a for your family, InshaAllah. Fee Aman Allah, Aminah Aminah UmmTaulib Columbus, OH USA - Monday, March 22, 2010 4:08 PM CDT My best wishes are with you and your family. My heart breaks to read your journal and see what yor family is going through. You are such strong parents and I am in awe of your strength. It also makes me ashamed of myself when I think of the times I have not appreciated my own children or feel sorry for myself when they are'nt listening to me. You have given me a great gift and I only wish I could do something for you and your beautiful children. Again all my best wishes are with you, I cannot say how greatly I think of you. I maybe on the other side of the world (Australia) but I will always keep thoughts of your family with me here. You are inspirational and amazing. Thankyou for sharing with the world. Julia Wallace Gold Coast, QLD Australia - Sunday, March 21, 2010 5:01 AM CDT Zahra, we miss you at Shaler. Miss Robyn, speech therapist Robyn Merkel Walsh <robynslp95@aol.com> ridgefield, nj usa - Friday, March 19, 2010 11:40 PM CDT AOL....I pray that Allah gives you the strength and patience to pass this difficuilt and painful test InshAllah...this life is only a test and great things await u in the next life. I hope Allah makes it easy for you and your beautiful kids and grants u the highest rank in heaven InshAllah. I pray Allah makes things easy for u in this life as well Ameen. Ammara Toronto, on Canada - Friday, March 12, 2010 10:50 AM CST i just read about you and your three girls from a link my daughter posted on facebook. Wow, what beautiful wee girls they are! so sad to hear about their terrible illness and i wish you all the strength and love you need <3 it sounds like they all have wonderful personalities, too, though also sounds like hard work (physical and emotional) for you, their parents. They are lucky little girls to have such dedicated, loving parents. <3<3 Pam Mace <shaarn75@hotmail.com> Hamilton, Waikato NewZealand - Friday, March 12, 2010 3:29 AM CST informative, calurosoinvierno@yahoo.com Blanca <calurosoinvierno@yahoo.com> The Woodlands, TX USA - Tuesday, March 9, 2010 0:56 AM CST Asalaam alaiqum! Always thinking of you guys, you're all in our prayers. Suzanne Brahmia - Saturday, March 6, 2010 7:28 AM CST Hope all is as well as can be with the girls .I have missed seeing updates.I tell myself that no news is good news.Take care and good wishes for the entire family Claire Hall Seaboard, NC USA - Tuesday, March 2, 2010 1:40 PM CST Asalaam Alaikum, I had the pleasure to meet you today. I just wanted to let you know when you see the doors of heaven all this will be a dream. I know the nights are long and the days are hectic but Allah said we are here for only a test. Our purpose is to pass the test. Inshallah may Allah make it easy for you. Your family will be in my duas always. If there is anything I can do let me know. Please keep doing zikr so you can have the strength you need. Your children are very lucky masha'allah to have a loving mother. iffat naser <alhikmah.math@gmail.com> paterson, nj usa - Monday, February 22, 2010 5:02 PM CST Hello Mrs. Beg! Hope all is well with you and your family. I had the pleasure of meeting you & your other two beautiful daughters, for Zahra's birthday. You are such an inspiration to numerous people for your strength and determination, especially with your daughters. You're always so supportive and helpful with any and everything that involves your daughters in and out of the class. Zahra is such a pleasure to have in class. She dances with her friends almost everyday and loves to walk around the class and just hold their hands. She is adorable. My aides and I pray for you & your family and admire you for all that you've done and continue to do for your daughters. God Bless. ***Beautiful Site! Adorable photos. Ms. Nancy Del Toro Clifton, NJ USA - Wednesday, January 13, 2010 1:56 PM CST Tayyabba, It has been a while since I visited your website. I enjoyed reading the update you posted back in June, but it bothers me that there are not more recent entires. Becuase of the lack of recent entires, I am worried....I hope and pray that things are going well for you and your family. Deb Wood Hershey, PA - Saturday, November 28, 2009 3:35 PM CST MashAllah your kids are amazing, and i am inspoired by your strength and patience, may ALLAH swt make it easier for you. I will definetly pray for your whole fmaily insh'ALLAH! Yasmin Abdu <xxyazz93xx@aol.com> Orlando, - Sunday, October 25, 2009 7:57 AM CDT ASalamu alaykum wr wb. Inaa lilaahi wa inaa ileyhi raajiunn! From Allah we came from, and to Allah we will return. May Allah ease the difficulties for you and give you much Patient and Imaan(faith). Truly, in this life time those Allah loves the most will be tested. This is your test, I pray that Allah will give the power to go throught this time (amiin!). I keep you and your family in my dua as I ask you to me and my family in your dua. Dua is indeed the most powerful weapon of the believer, never to neglect that insh'Allah. May Allah always be with you. WA salam wr wb Amina - Saturday, October 17, 2009 8:17 AM CDT Assalamu Alykum Sister, I'm overflowing with duas for you...may Allah SWT open His doors of Mercy for you and may He reserve for you and your family a house in al-Firdaus near Him. Ameen! Amatullah <someone@someone.com> khi, pk - Wednesday, October 7, 2009 9:05 PM CDT Great graphics and easy to use. Thank you; you've made my job as a primary school teacher a little easier. Janet Gallinger Syracuse, NY USA - Tuesday, October 6, 2009 1:01 AM CDT AOA..............I WAS JUST ON FACEBOOK AND ON RIGHT SIDE WERE HIGHLIGHTS...........ONE OF MY FRIENDS HAD PASSED COMMENTS ON UR PICTURE OF 3 GIRLS N WAS SHOCKED. I VISITED THIS WEBSITE OF URS N IM AMAZED...............SUCH A WONDERFUL SITE...........I DONT HAVE WORDS TO EXPRESS HOW I FELT SEEING UR STRENGTH UR PATIENTCE ALLAH ALWAYS TESTS THOSE PEOPLE WHO HE KNOWS CAN PASS HIS TEST. NO DOUBT U R PASSING THROUGH DIFFICULT TIME BUT UR CHILDREN HAVE OPENED DOORS FOR JANNAH....MAY ALLAH BLESS UR CHILDREN WITH HEALTH N LIFE...........BEFPRE THAT I NEVER KNEW ABT THIS SYNDROME....... TAYYABA U R REALLY GREAT BN <BEENAEEM@HOTMAIL.COM> - Monday, October 5, 2009 7:46 AM CDT I came across this website and your strength and faith has given me this whole new perspective on my life. I hope and pray Allahsubhanwatallah showers his blessings and mercy on you and your family. Lalarukh Wajahat Karachi, Pakistan - Saturday, September 26, 2009 4:20 AM CDT i am praying for your family. You are a very strong woman and very blessed with such a beautiful family. Karla <karla.anng@hotmail.com> Huron, SD USA - Tuesday, September 22, 2009 12:36 AM CDT Tayyaba, I pray that all is well and that you had a wonderful Eid with your family and loved ones. Mrs. Shakoor - Monday, September 21, 2009 8:48 PM CDT MashAllah you have a tremendous heart and tremendous strength to deal with this everyday. I ask Allah(SWT) to grant you Jannatul Firdos for your efforts. May He Azowjal make this life easier for you and for your beautiful children. May Allah (SWT) ease their pain and in turn cool your eyes. May He accept your prayers and may He bless you in this life and in the hereafter, InshAllah, Ameen. Ameen! Aysha K Kitchener, on canada - Friday, September 18, 2009 6:25 PM CDT hy my sweet sister , i saw ur we site , my feeling really rally hurt .. so sorry for that .. i saw ur web site 1st time .. sister u r soo brave girl ...allah app ko sader day amen ..i love u tayyaba apa , YOU ARE always in my prayers ... app ki himat ki dat dati hoon ..I LOVE U . I LOVE U .. U feel naver alon i m always with u .. your's sister maliha zahir abbas .. maliha zahir <malli_zeezee@yahoo.com> Indianapolis, IN U .state - Saturday, September 12, 2009 11:31 PM CDT Assalaamu alaikum. Your family is beautiful, and may Allah make it easy for all of you in dealing with the condition your children have been born with. May the blessings of this Ramadan ease your hearts, ameen. Amina Teal <aspenzmama@yahoo.com> Worcester, MA USA - Thursday, September 10, 2009 0:25 AM CDT Hi Tayyaba ,I hope you are doing well,I am sorry that things did not work out for you to come see Diana,but I will bring pictures to show you.I am planning to visit you Saturday,I hope that it is ok.please let me know.My prayers and good thoughts for your family. Isabella rodrigues <isa900@yahoo.com> naugatuck, ct - Monday, August 10, 2009 10:32 PM CDT Thinking of you and praying all is well with your family. I am still amazed at how you manage all that you have to do. Martha Davis Garland, Tx - Thursday, August 6, 2009 1:24 PM CDT Tayyaba, i hope and pray that all is well at your end. We have not seen an update in a long time - so hopefully no news is good news. I hope you and the family are enjoying whats left of summer. With all our prayers always, Mrs. Shakoor Mrs. Shakoor - Wednesday, August 5, 2009 0:01 AM CDT Dear Tayaba, Always thinking of you and the girls. Sorry I haven't visit you guys in a long time, but you are always in our hearts. I wish and pray that Allah continues to give you the strength and make a miracle for the girls.We'll see you soon Inshallah. Nouri, Bibi, & Sarah <nourdogzrock98@aol.com> Berganfield, NJ USA - Wednesday, July 29, 2009 10:38 PM CDT Tayyaba, I will continue to pray for comfort, strength, peace and joy for your entire family. Your strength has always been an inspiration to me and for that I thank you. We had our garage sale to raise money and awareness for the girls. The check is on it's way. It's not as much as I was hoping but I hope it will help with some of the costs. laurie nj - Sunday, July 12, 2009 8:53 AM CDT It makes me angry to read the school threatens to call DYFS knowing the situation your in! Is that the best they can do? They can't offer you constructive help around the house?! The nerve of some people! Absolutely callous! Anyways, many prayers as always: Allahumma yashfîhum wa yashfî mardî l-muslimîn ijma`în al-Shifâ min `andak ya Rabb Amîn Our website Yahya (dad to Kariem) The Netherlands - Friday, June 19, 2009 4:51 AM CDT Hello, I am from Pakistan, and my daughter Javaria nick named "Goshoo" has been diagnosed with MPS-I, Her mother name is too tayyaba. We request to kindly be in touch with us and share u expereince and information to help us , thanks Goshoo Dad <goshoomps@yahoo.com> - Friday, June 12, 2009 7:16 AM CDT Tayyaba, Just wanted to let you know that we checked in and are keeping you in our prayers. I'm sorry to hear about all the escapades Ammar is getting up to. Looks like there's a lot of attention seeking there, which shows he is a very intelligent little boy (as well as athletic!) I pray that you will be able to find activities and therapies for him and not criticism from the school. Praying too for your self as well as the family, Elizabeth http://www.caringbridge.org/visit/danielschuepbach Elizabeth Schuepbach Meikirch, Switzerland - Monday, June 8, 2009 1:47 AM CDT Tayyaba, You are one of the strongest women I know!! I am so sorry you are dealing with so much from Ammar. It's hard enough tenidng to the needs of the MPS girls. I pray you can get additional help and therapies for your son. It's just not right that people threaten in things in hard times, yet offer no help!!!! It makes me angry when the state and agencies won't give support, but are in a hurry to condemn. I pray that you get additional services and find ways to keep him from the girls when he is not busy with something else. Love to you all, Patty and Jesse Pattyt <wordinedge@aol.com> Balto, MD USA - Sunday, June 7, 2009 8:35 AM CDT Hey Tayyaba, I'm so sorry for all the chaos in your house and for the pain that your babies are in. I'm glad to hear that Princess Zahra is doing so well. You are such an incredible person and I'm praying for you daily. Much love to you all. Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC - Friday, June 5, 2009 6:43 PM CDT Tayyaba, you have the strenght of 1,000 women. I do not know how you do it! Your updates are so full of love and compassion but it saddens me so that you have so many troubles in your life. I pray for your house to be one of calm and peace. Bless your sweet soul for enduring all that you do. If I ever feel troubled, I feel ashamed because my burden is so much less than yours. You are in my thoughts and prayers, Misty www.miracle4will.com Misty Luthcke <mluthcke@netzero.com> - Thursday, June 4, 2009 6:37 PM CDT Tayyaba, Our thoughts and good wishes are with you and your entire family. Cindy Balsam Martz Teaneck, NJ - Tuesday, June 2, 2009 7:25 AM CDT To the entire Beg family, my thoughts and prayers. You have a beautiful family and your kids must be very very proud of you for all that you endure just by loving them dearly. God bless you all! Mark Rooth Cincinnati, OH USA - Sunday, May 24, 2009 10:39 PM CDT Assalam alikum how are you now Tayyaba? and how is everyone else there. did you get some rest and help? May Allah give you lot of strenght and energy and lot of health to your whole family. Aisha & Asim <refresh56@hotmail.com> Lebanon, NH USA - Tuesday, May 12, 2009 9:58 AM CDT Hi Tayyaba, Just wanted to wish you a happy Mother's Day. You've been in my thoughts and prayers. You are a model of strength, love and faith. Love, Julliana Julliana <jkang0626@yahoo.com> NJ - Sunday, May 10, 2009 1:19 PM CDT Tayyaba, I am amazed at your abilities as a mother! What a role model you are - Happy Mothers Day! Ammar is truly a cutie, and while I could not believe what you were writing, just seeing that innocent face brought a huge smile to mine! May Allah give you health and strength always and bless all of you. Ameen. Mrs. Shakoor - Saturday, May 9, 2009 10:16 PM CDT Tayyaba, I look at the pictures of Ammar posted on your page. I cannot believe a child can do what he does. He is truly amazing. I do hope your girls will all start to feel better and things won't be as hurried as they are now. I feel so sorry for Bilal but he is a strong boy and a good boy at that! You really are blessed, Tayyaba, and things will calm down...soon I hope! :) Big hugs! Linda from Tallahassee - Saturday, May 9, 2009 4:46 PM CDT Oh my, Tayyaba, you do have a very busy and challenging life, and yet you are able to remain a wonderful, loving. caring mother who tries so hard to do the best for your kids. I admire you very much. Sending your whole family hugs and good wishes from Wisconsin! Annette Mccabe <annette_lynn_mccabe@yahoo.com> Marshfield, WI USA - Saturday, May 9, 2009 3:18 PM CDT May God bless you and your family. May He give you energy to face each day with your precious family. Ruth - Thursday, May 7, 2009 3:39 AM CDT Assalam Alikum May Allah Give You Strength. you are really a brave Mother. Aisha, Asim & Family <refresh56@hotmail.com> Lebanon, NH USA - Wednesday, May 6, 2009 12:40 AM CDT DONNA BEVERLY MCQUARY <BMCQUARY@BELLSOUTH.NET> MADISON, AL USA - Tuesday, May 5, 2009 10:40 AM CDT I would like to join rita anil patel <ptlvikyrosy@yahoo.com> mosheim , tn usa - Friday, April 24, 2009 9:57 AM CDT Asalamu Alaikom dear sister Tayyabah, My heart goes to you and family. You all, have a special place in my heart. SubhanAllah, it's so hard for you, but Allah knows better; You must be collecting a lot of rewards for next life. May Allah make yoru children the guardians of Jannah, where they can welcome you and your husband there, with a lot of joy and endless happiness. May Allah give you strength to move on and on. Thank you for leting me know for the update. I read it all, and watch the pictures. MashaAllah Girls are getting so beautiful; They all have different personality. And Amar mashaAllah, he is such a handsome boy. I couldnt get to see any pic of Bilal, inshaAllah I'm gonna look to find any new pic of him. I am so proud of him getting good grades in school. May Allah make him a cooling of your eyes. May Allah give him health and smartness. Sending you many many hugs and love Fitesa Fitesa <fitesa@yahoo.com> - Thursday, April 23, 2009 2:18 AM CDT We're thinking of you. Hang in there. Doug, Audrey and Family <dcoburn_1@msn.com> Eastville, Va. US - Sunday, April 19, 2009 11:00 AM CDT Tayyaba, I had been waiting for an update on the girls and praying to Allah that all was well. I am really glad that you finally were able to update. The girls look gorgeous in their outfits MashAllah, and I pray that God gives them a long, and happy life - Amen. The same for the boys of course. I wish there was something I could do for all of you, but please know that you are all in our prayers and thoughts. Mrs. Shakoor Edison, NJ USA - Sunday, April 19, 2009 0:42 AM CDT Salaams Tayyaba, Zarrar, Bilal, Abeerah, Khansa, Zahra and Ammar! We miss you guys so much. Our prayers are always with you. Thanks so much for updating. Here's to a warm spring. Let's get together soon, we'll come play in your yard. May Allah give you strength. Suzanne Brahmia <sbrahmia@yahoo.com> Milltown, NJ - Friday, April 17, 2009 11:57 PM CDT Tayyaba, Thank you for updating. Ihave been concerned. It sounds like you have been extra busy. We are all praying for warmer weather. I am so pleased for you that Bilal is straightening out. Always in my prayers, Misty www.miracle4will.com Misty Luthcke <mluthcke@netzero.com> - Friday, April 17, 2009 5:14 PM CDT Thank you for letting me know that you have updated your journal. I have been very worried about your family! I hope things will start to improve and your life will get a little easier. Your children are very lucky to have such a loving, caring, and hard working mother. I admire you very much! Annette Mccabe <annette_lynn_mccabe@yahoo.com> Marshfield, WI USA - Friday, April 17, 2009 2:57 PM CDT Tayyaba, I am so relieved that you've updated. I really have been worrying about you and your family. No wonder you haven't posted! I don't know how you keep up with things as well as you do, but I think that God has a lot to do with it. You are very loved. I will continue praying for your sweet family. I love the new pictures. Jennifer <jenwales@yahoo.com> Silver Spring, MD USA - Friday, April 17, 2009 2:40 PM CDT It is so good to read about what your family has been doing since December. I will continue to pray for all of you, for health, strength and the ability to deal with all that you have to do. It sounds so overwhelming. God be with you all. Terry Dunkin <dunkin27@comcast.net> Wheeling, WV 26003 - Friday, April 17, 2009 2:31 PM CDT Kim & Scotty MPS II <cottons@earthlink.net> Modesto, ca - Saturday, April 11, 2009 6:17 PM CDT Praying that you all are doing well, Misty www.miracle4will.com Misty Luthcke <mluthcke@netzero.com> - Tuesday, April 7, 2009 3:38 PM CDT checkingin on your beautiful family! Update!!! Prayers for you all, Misty www.miracle4will.com Misty Luthcke <mluthcke@netzero.com> - Thursday, March 26, 2009 10:23 PM CDT Hope all is well with your family. I have been praying for you and your precious children for a long time. Martha Davis Garland, Tx USA - Thursday, March 26, 2009 12:14 AM CDT To The Beg Family, My prayers are with your family, especially all of your children. Thank you for joining my facebook group, "Let's All Stop Using The "R" Word As Slang". You are a remarkable family...I have heard such wonderful things about you! Cindi Addesso Hawthorne, NJ USA - Friday, March 20, 2009 10:09 AM CDT Ever since we got back from Egypt I'm just so behind in checking in on my friends. No updates here either! Okay... so now I'm getting worried. What's going on? Nothing but good things, In sha Allah... Our website Yahya The Netherlands - Thursday, March 19, 2009 1:17 AM CDT Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com > - Tuesday, March 17, 2009 7:50 PM CDT Hi Tayyaba, I hope that everything is going OK for you and your family. I haven't seen any updates in a long time. Lots of hugs and prayers to you all, Joanne (Mom to Sasha) Joanne Huff <joannehff@yahoo.com> Warren, NH USA - Sunday, March 15, 2009 8:07 PM CDT Assalamualaikum Tayyaba - Hoping and praying that you and your family are doing well, insha'Allah. I hope you will be able to update us soon. Shaesta Teaneck, NJ - Thursday, March 12, 2009 9:13 PM CDT I'm praying also that everything is OK with all of you..Always in my prayers Therese, Danielle, & ^^Sara^^ <trid2b4@sbcglobal.net> Morris, IL USA - Wednesday, March 11, 2009 9:13 AM CDT I'm sad that you aren't updating anymore, but please know that your family will remain in my prayers. Jennifer <jenwales@yahoo.com> Silver Spring, MD USA - Wednesday, March 11, 2009 7:21 AM CDT I hope you and your family are OK. I miss your updates. Annette Mccabe <annette_lynn_mccabe@yahoo.com> Marshfield, WI USA - Saturday, March 7, 2009 9:49 PM CST Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, February 28, 2009 8:58 PM CST Still praying for you. Jennifer <jenwales@yahoo.com> Silver Spring, MD USA - Thursday, February 19, 2009 2:43 PM CST Happy Belated Valentine Day! Love, Patty and Jesse Pattyt <wordinedge@aol.com> Balto, MD USA - Sunday, February 15, 2009 6:03 AM CST Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, February 14, 2009 3:27 AM CST Kim & Scotty MPS II <cottons@earthlink.net> Modesto, ca - Friday, February 13, 2009 10:10 PM CST Tabbaya, I hope everything is well with you and your children. It certainly has been a long time since you updated. Thinking of you Beth Leonard <bcaters@btes.tv> Bristol, TN USA - Wednesday, February 11, 2009 6:33 PM CST Praying that no news is good news!! Misty www.miracle4will.com Misty Luthcke <mluthcke@netzero.com> - Monday, February 9, 2009 5:37 PM CST Excellent guest book. I like it. www.futuresway.com jb <workathom08@rediffmail.com> india, tn india - Monday, February 9, 2009 2:38 AM CST Hello Tayyaba, I continue to hold your family in prayer and hope that all is well with you all. Your courage and strength, and especially your unfailing love for your precious children is always an inspiration to me. Teresa Dunkin <dunkin27@comcast.net> Wheeling, WV USA - Saturday, January 24, 2009 1:05 PM CST I've been worried about all of you. Hope you are well! Jennifer <jenwales@yahoo.com> Silver Spring, MD USA - Friday, January 23, 2009 6:42 AM CST I've been following your family for quite a long time. I hope the lack of posts does not indicate bad news. Prayers. Lisa Marion, IN 46952 - Thursday, January 22, 2009 11:11 AM CST HI, I keep stopping by to see how your family is doing but haven't seen any updates. I hope everything is ok. Mary Anne <maklein55@comcast.net> Pittsburgh, PA - Thursday, January 22, 2009 8:26 AM CST Happy New Year sweet Beg Family! Misty Luthcke <mluthcke@netzero.com> - Saturday, January 10, 2009 5:54 PM CST Assalamu Alaikom dear sister Tayyabah and Peace to all mothers with Sanfilippo Syndrome children, It is beyond everything seeing mothers all together here, sharing their pain, their strength, praying for each other- no matter what religion they belong to. I am amazed. Being in pain really brings you near our Creator more then ever. I wish we all could be this way even in happy moments. Dear all mothers who have children with Sanfilippo Syndrome, I pray that God gives you strength and yoru children healthy life. I pray that there will be discovered any cure for this syndrome and your Babies will be saved. I pray that God sends you a lot of patience and a lot of nice people around who can help you, who can support you. I so wish I was closer to you to give you all a huge hug and be there when you need someone to help you, when you need someone to talk to.. I so wish there will be discovered a cure for this illness.. Please continue being strong and having faith and trust in God. He is Merciful and he is the best of Planners. May He bless our families with happiness and health Fitesa <fitesa@yahoo.com> Prishtina, Republic of Kosova - Wednesday, January 7, 2009 4:51 PM CST salaamu aleikum dear sister i just came across your story from a sisters blog i am here to say i wish you and your lovely familly all the best inshallah and i am here to wish you a happy new year islamic and otherwise 1430/2009 and may this year bring you nothing but joy,happiness and good health for you and ur familly and may allah reward u with jannatul firdaus ameen salaamu aleikum ur sis in islam naz nasira London, UK - Friday, January 2, 2009 6:46 AM CST Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Wednesday, December 31, 2008 8:45 PM CST May Allah swt grant you the highest form of Jannah for you and your family, alhamdulillah your patience through this test Allah swt has given you and your infallible love for your children and strength to make it through each day is truly amazing subhanallah. I wish that Allah swt makes your life easier and grants everything you need for you and your family. Your story is alhamdulillah an inspiring one. Amin Sabrina <dancingwithsweaters@yahoo.com> CA USA - Saturday, December 27, 2008 2:16 AM CST Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Thursday, December 25, 2008 1:39 AM CST Kim, Tom & Scotty MPS II <cottons@earthlink.net> Modesto, CA - Wednesday, December 24, 2008 5:06 PM CST As Salaam Alaikum, i just came across your story today from another sisters blog. I pray that Allah will keep you and your husband strong and that Allah SWT will keep you patient. I will try to help as I am able and I will always keep you and your children in my dua's. UmZakariah Sharjah, UAE - Monday, December 22, 2008 6:34 AM CST I hope Zahra had a great birthday. I love the video. She is so happy and cute. Love to your family. Catherine Abernathy <cabernat@truvista.net> Chester, SC - Sunday, December 21, 2008 6:17 AM CST assalaamu alaikum wa rrahmatullah wa barakatu sister I got the link from another sister and have been reading your journal entries. I cannot even imagine how hard it must be for you, your husband and your little ones. May Allah keep you strong, healthy and faithful and may He reward you immensely for your struggles. May Allah cure your girls and little Ammar. Ameen. Zainab, ummu Fatmah - Saturday, December 20, 2008 12:52 AM CST As salam alaikum wa rahmatullah wa barakatu ukhti fi islam. inshAllah this reaches you in the best of health, well being and iman. I found ur site thanks to a sis in islam sharing the link. MashAllah sister, ur a strong woman and an inspiration to many women world wide. Barak Allah feeki ameen. Im wondering sis if u have tried having a sheikh read quran over ur children in order to help with seizuers, there is islamic info about people with epililepse, that the person who have such fits is because they have been touched by jinn and a sheikh who is knowledgeable will be able to help read quran over the person in order inshAllah to give them relief inshAllah from their suffering. kul khair inshAllah, feel free to contact me to talk more. hiyyach Allah. Mariam Abu dhabi, UAE - Tuesday, December 16, 2008 2:36 AM CST Tayyaba, You have the strength and courage of 10 women. I do not see how you endure all that you do.I only have one child affected with Sanfilippo and feel that my world is tough. I think of you and your situation when I feel weak and you give me strength. Thank you. I pray for your husbands safe return and for Abeerah to get the seizures under control. I know that is a horrifying situation. I am so very sorry for her. With Love, Misty Mom to Will www.miracle4will.com Misty Luthcke <mluthcke@netzero.com> - Monday, December 15, 2008 4:58 PM CST Tayabba, I enjoyed our phone time this past week. You are loved and dear friend. I pray you can get those seizure settled down with a different med. I know you will be happy when your husband returns. What a blessing it is to have both mom and dad for the kids! I love you and pray for your family each day! Patty and Jesse Pattyt <wordinedge@aol.com> Balto, MD USA - Saturday, December 13, 2008 7:46 PM CST Dear Dear Tayya,,BIG GIANT((hugs))to you, I'm so sorry to hear about Abeerah still having seizures.Many prayers for her and All of you..Your words are always heartfelt and touching..I do stop by and keep up with all of you when I can, I don't always leave a message..sorry..But please know I always pray for you all and for your continued strength.. Therese, ^^Sara^^ & Danielle <trid2b4@sbcglobal.net> Morris, IL USA - Wednesday, December 10, 2008 9:08 AM CST Tayyaba, I am so sorry to read that your daughter has been having more seizures. It makes me so sad to read that. I think of you and your children often and wish your husband a safe return. I hope the holidays bring some good news and health your childrens way! ~Joanne, Mom to Sasha Joanne Huff <joannehff@yahoo.com> Warren, NH 03279 - Tuesday, December 9, 2008 1:24 PM CST Tayabba, I so wish I could be there to give you a big hug right now. I know your heart aches to see Abeerah go through those seizures. It hurts me to think of her having to endure this. You are so right about your suffering teaching you how to reach out and comfort others. You are a role model for courage for so many others facing trials in this life. Even though we know in our hearts that the next life will be perfect, it is sometimes hard to think of that in the face of such a difficult and heartwrenching situation. I love your family and pray for you daily. You are one of the bravest women I have ever met. Cathy Abernathy <cabernat@truvista.net> Chester, SC - Tuesday, December 9, 2008 9:36 AM CST Never a dull moment at your house! May Allah accept your husbands Hajj. I hope he's able to bring lots of Zamzam water. Eid Mubarak! Our website Yahya the Netherlands - Sunday, December 7, 2008 11:36 PM CST I am so sorry to know Abeerah's seizure. I know how difficult that must be. Ammaris really trying you right now. I am so sorry he seems to be losing skills, I am praying that he receives some help. You are so courages to travel alone to be with family. You are truly incredible. Your true strength makes me feel so very weak! Praying for you daily, Misty www.miracle4will.com Misty Luthcke <mluthcke@netzero.com> - Wednesday, December 3, 2008 10:01 PM CST Hi Tayyaba, I just wanted to say hello. I've been thinking about you and your girls today and hope everyone is doing OK. I am so sorry to hear about more seizures, I know how horrible they can be. I hope they get better very soon! Joanne~Mom to Sasha, MPS IIIA Joanne Huff <joannehff@yahoo.com> Warren, NH USA - Wednesday, December 3, 2008 5:10 PM CST Just popping in to say hello. Have a wonderful week! Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Wednesday, December 3, 2008 9:26 AM CST Thinking of you and your family often. Praying that you will have a peaceful and blessed holiday season. Lisa Marion, In USA - Tuesday, December 2, 2008 12:54 AM CST Wanted you to know you were on mind today and to let you know you're always in our prayers. Love, The Haggett's, John, Brenda and Zachie Brenda Haggett ML mom <jhrufus@aol.com or www.caringbridge.org/visit/zachie> Syracsue, NY usa - Tuesday, November 25, 2008 11:47 AM CST We continue to pray for all of you. The girls are so wonderful and loving. I hope the boys are doing well. You are all such a fountain of strength, specially Tayyaba. May Allah swt make it easy for all of you - Numair, Rehma Asghar & Family. Durriyah Lawrenceville, NJ USA - Sunday, November 23, 2008 10:40 AM CST Hi Tayyaba, I am so sorry about the seizures, I know that it is truly painful to see your baby gow through this. I pray for your continues strength in dealing with all that you have to i a day. You are a true inspiration. Misty mother of Will, MPS lllA. Misty Luthcke <mluthcke@netzero.com> - Monday, November 17, 2008 4:47 PM CST Wish you the best and continue to stay stong! Adriana Acevedo Chino, CA USA - Friday, November 14, 2008 11:02 AM CST Tayabba, I love the new pictures!! I pray you get your back ordered formula quickly. No sleep is no fun at all, it makes the rest of the day so hard. Much prayer for your strength! I think of you nearly everyday, you are an amazing woman of Faith and Strength! Love to you all, Patty and Jesse Pattyt <wordinedge@aol.com> Balto, MD USA - Wednesday, November 12, 2008 5:13 AM CST Tayyaba, You have the strength of an army. With all that you have on you still keeping your faith and having the strength to carry on. You are truly an amazing person with a beautiful spirit. I pray for healing for all of you. I pray for the boys so that they may have a better chance at schooling. I pray that somebody will come into your life that cares enough to make a difference for you, Misty Misty Luthcke <mluthcke@netzero.com> Indian Springs, Alabama United States - Sunday, November 2, 2008 5:13 PM CST Kim & Scotty MPS II <cottons@earthlink.net> Modesto, CA - Friday, October 31, 2008 6:42 PM CDT Hello Tayyaba, You've been in my thoughts a lot recently and I wanted to check in and see how everyone was doing. I wish the day was here already with a treatment and a cure for our babies but until that day, our kids still prove to be the strongest little fighters on the planet! You always inspire me with your strength with all you face and I pray you know how many people actually pray for you and your children. Always!!! The children are all getting so big and boys, the older they get, the more that gets broken! LOL I am sending you many hugs and prayers things will be quiet for just a little bit!! Much Love, The Haggett's, Brenda, John and Zachie Brenda Haggett, I-Cell/ML mom to Zachie <jhrufus@aol.com or www.caringbridge.org/visit/zachie> Syracuse, NY usa - Thursday, October 30, 2008 9:34 AM CDT Tayyaba, I just wanted to stop in and let you know that I am checking on you and on your family. I hope things are improving bit by bit. Big hugs and lots of prayers for all of you! Much love, Leslie Leslie Phillips <philla5@wfu.edu> Winston-Salem, NC USA - Wednesday, October 29, 2008 9:26 PM CDT Salaams to all and we hope and pray that all are well; Happy Birthday to Ammar- the 5 year old big boy. Hope to see you all sometime soon. The Salahudeen family (Iffaaz and Ferial) Plainsboro, NJ USA - Tuesday, October 28, 2008 11:20 AM CDT Happy Birthday to Ammar. I pray that things get better soon and that Allah keeps you in His mercies always. Mrs. Shakoor - Monday, October 27, 2008 10:53 PM CDT I am trying to find some old friends. Chuck and CLeta Lorenz. Just wanted to say Hi and Dave and I are praying for you. Janet Koch <dkchevy@comcast.com> Oak grove , mo usa - Saturday, October 25, 2008 11:40 AM CDT I am trying tom contact and old friend. Janet Koch <dkchevy@comcast.com> Oak grove , mo usa - Saturday, October 25, 2008 11:38 AM CDT Please know that your family and you are in our thoughts and prayers. Mrs. Shakoor - Thursday, October 23, 2008 3:01 PM CDT We dont know why these things happen. However god places angels on earth to teach us lessons. Your 3 beautiful children are angels on earth as they will be in heaven. God Bless you and may you always remember you are loved. Tara Gibson <tara.gibson@elocallisting.com> temecula, ca us - Monday, October 20, 2008 1:42 PM CDT That must have been so scary! Having a phone call from the police like that! I'm so sorry. Your family is in our thoughts and prayers like always. http://levenmethunter.web-log.nl Sjon (dad to Kariem) The Netherlands - Monday, October 20, 2008 3:27 AM CDT Dear Tayyaba, So sorry to hear of Abeerah's seizures. You and your family continue in my prayers. I pray also for your health to be able to continue in your loving care for your family. Terry Dunkin <dunkin27@comcast.net> Wheeling, WV USA - Thursday, October 9, 2008 7:14 PM CDT Tayyaba, I am so sorry for the recent seizures. I am praying for all of you. You are such a strong woman, I admire your strength. I hope that things get better for your family, Misty Misty Luthcke <mluthcke@netzero.com> - Thursday, October 9, 2008 6:14 PM CDT Oh my...I am so sorry that Abeerah had such a terrible night. Prayers for a better day today. Deb Wood Hershey, PA - Thursday, October 9, 2008 6:27 AM CDT Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Wednesday, October 8, 2008 12:52 AM CDT Prayers and love from Kathie and Sarah Kathie <kathie12@sympatico.ca> Canada - Saturday, October 4, 2008 2:52 PM CDT Eid Mubarak. May Allah bless you all! Our website Sjon and Kariem The Netherlands - Wednesday, October 1, 2008 4:32 AM CDT Eid mubarak to your family and you! May Allah bless us all - Ameen. Mrs. Shakoor - Wednesday, October 1, 2008 0:19 AM CDT Tayyaba, our prayers are with you and your kids. May Allah (swt) help you and bless your family. Ameen. Eid Mubarak!! lots of love to you all. Shireen, Sameera & Shabaaz Baig <luvshireen1@yahoo.com> Teaneck, NJ USA - Tuesday, September 30, 2008 6:35 PM CDT I'm so happy that everyone is feeling better, and I'm SO THANKFUL for Lilly! What a blessing! I'll be praying for Ammar and for all of you. Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC USA - Tuesday, September 30, 2008 2:41 PM CDT Tayabba, I am sending prayers as well!! It has to be horrible with everyone sick at one time, including you and your husband. Hopefully this will pass quickly! Many prayers going up for the whole family! Much love, Patty and Jesse Pattyt <wordinedge@aol.com> Balto, MD USA - Monday, September 29, 2008 8:38 AM CDT I'm praying for all of you. I hope you have a restful night. Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC USA - Sunday, September 28, 2008 9:21 PM CDT In this blessed month of Ramzan, your family and you are in my prayers. May Allah shower His mercies on all of you -Ameen. Mrs. Shakoor - Sunday, September 21, 2008 6:41 PM CDT So proud for you that Bilal got into the private school. You are a dutiful Mother and have taught him well! I cannot believe that the basement flooded like that you are so strong. I hope that you were able to get the clothes up. I will be praying for all of you. I hope that your beautiful girls are spared from suffering, Misty Misty Luthcke <mluthcke@netzero.com> - Wednesday, September 17, 2008 4:19 PM CDT Just wanted to let you know that I am thinking of you today. :) Linda from Tallahassee - Tuesday, September 16, 2008 10:40 AM CDT Tayabba, It's so exciting that Bilal got accepted into the new school! I am so happy for him! You did a wonderful job of home schooling! I will be praying that you get all you need for Ammar and the girls as well! Much love to you all! Patty and Jesse Pattyt <wordinedge@aol.com> Balto, MD USA - Saturday, September 13, 2008 8:20 PM CDT Hi Tayyaba I hope everything went well with the first day of school and your new bus driver. Happy to hear you were able to get your plumbing fixed! Many Hugs, Kim & Scotty <cottons@earthlink.net> Modesto, CA - Saturday, September 6, 2008 6:00 AM CDT My hope for all of us is that our Ramadan prayers do come true. I will be praying daily this month and always for you and your family. Misty Misty Luthcke <mluthcke@netzero.com> - Wednesday, September 3, 2008 10:15 PM CDT Ramadan Mubarak to all of you! May Allah SWT accept your fasting and bestow many blessings upon your family. Our website Yahya (dad to Kariem) the Netherlands - Wednesday, September 3, 2008 7:09 AM CDT Dear Tayyaba My heart just breaks reading your entry. I do not understand why your family must endure so much. I know that I am only human and cennot begin to understand God's plan but I just want to scream "Enough!" "Please no more trials for this family." I am praying for God to continue to give you enough strength daily to endure and find joy. I am praying for some more good respite help to come your way to help with the kids and laundry and housework, etc, etc. Your words about being in the USA where everyone travels to find treatments for their childran and here you are with your American children watching them deteriorate due to this disease that not even the BEST AMERICAN doctors can stop, really hit home. You and your precious children are always in my prayers sweet Tayyaba. I wish that we were not so far away. Leslie Jurado <ijf@comporium.net> Rock Hill, SC - Monday, September 1, 2008 8:45 PM CDT My prayers and hugs are coming your way. Paulina and Andrew Paulina Jump <jumpboysmom@yahoo.com> Sparta, Ky USA - Sunday, August 31, 2008 3:29 AM CDT Many prayers from Ontario. Kathie <kathie12@sympatico.ca> Canada - Saturday, August 30, 2008 6:25 PM CDT I just wanted to sop in send my support and prayers your way! I certainly hope the water issue is resolved by now, and th ekids showing improvement. Hopefully the lead pipes have not caused any additional problems for the children or anyone else. :-( Your strength and faith always gives me encouragement, Thank You for being such a wonderful example of a wife, mom and friend! You are loved much! ((HUGS)) and Prayers Patty and Jesse Pattyt <wordinedge@aol.com> Baltimore, MD USA - Friday, August 29, 2008 7:33 PM CDT Hello, Sorry I haven't stopped by much but I have been without a computer for over a month so I can only get online once in a while when John isn't using his laptop. Sounds like you are VERY BUSY these days, wow! I hope the kids are doing well and I love you all, hugs! Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Thursday, August 28, 2008 7:00 PM CDT Tayyaba, just wanted to let you know you are in my thoughts and prayers. I am so sorry to hear about the water problem. As if you need anything more on your plate, to have to deal with an additional burdon is not fair. I hope it can get taken care of. You continue to amaze me with your strength and unending faith. Never forget how completely AMAZING you are. Prayers for the children-especially Ammar and Abberah (no more seizures!). Sending a hug your way, Liz Liz Hindson <lizcon@yahoo.com> - Wednesday, August 27, 2008 2:12 PM CDT Hey "Z"...Dan Leiter and me were chatting...I am very sorry for you and your families hardships...you were always a "stand-up" guy, and I wish the best for you and your family. Mike Kleid <michael.kleid@mac.com> St. Paul, MN United States - Wednesday, August 20, 2008 4:01 PM CDT Happy Anniversary!! Kathie <kathie12@sympatico.ca> Canada - Monday, August 18, 2008 9:29 PM CDT Happy Anniversary! :) Linda from Tallahassee tallahassee, FL - Monday, August 18, 2008 12:24 AM CDT Hi Tayya, Sounds like you've been very busy, loved your pic's. Your kids are beautiful. Praying you all stay healthy and happy..Happy Anniversary..& Happy Birthday to Bilal..xoxox ..Therese ^Sara^ & Danielle...MPS forum Therese <TRID2B4@SBCGLOBAL.NET> Morris, Il USA - Monday, August 18, 2008 9:38 AM CDT I am so glad that Abeerah has recovered from the seizure. I love the pictures, my favorites... Jesse taking Zahra's hand, and the haircut!! The good thing is that hair grows back!! Many prayers going up for you all! Love, Patty and Jesse PattyT <wordinedge@aol.com> Balto, MD USA - Sunday, August 17, 2008 9:29 PM CDT Hey Tayyaba, Just wanted to let you know that we are thinking about all of you. You are such a wonderful mother. Happy Anniversary! Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC - Sunday, August 17, 2008 4:19 PM CDT Tayabba, I was so saddened to hear that Abeerah had a seizure this week. (((PRAYERS and HUGS))) for her and you! I was so nice to see you and the kids and hubby too last weekend! I only wish the time go be longer. I still long for our own MPS community so we can be close to help each other out when needed and fight our school systems in large numbers. It would be so nice to be able to do that. Love and prayers, Patty and Jesse Pattyt <wordinedge@aol.com> Balto, MD USA - Thursday, August 14, 2008 6:38 AM CDT Assalamu Alaikum- All May Almighty Help you in all your efforts and reward you Jaza here and there after Amin. We do remember all of you.... Waqas, Hafsa, Abdul Hadee, Areeba, Ayesha Sddiqua Lahore, Pakistan - Monday, August 11, 2008 12:00 AM CDT mama,papa,hanan,hiba,wish,manan hanan <a.hannan@live.com> karachi, - Monday, August 11, 2008 11:22 AM CDT I am so glad that you were able to get away for a day. So sorry to hear that you lost your help, I will be praying that the right person comes along. Glad the tooth issue is o.kay. Please know that we are thinking about you, Misty and Will Misty Luthcke <mluthcke@netzero.com> - Sunday, August 3, 2008 0:12 AM CDT Dear Tayyaba & Family Your trip sounded wonderful! Sorry your camera broke I would of love to seen pictures. Give everyone hugs and kisses for us. Love, Kim & Scotty MPS II <cottons@earthlink.net> Modesto, CA - Friday, August 1, 2008 9:38 PM CDT Hi Tayabba, I was so happy to hear that your family had an enjoyable getaway in Pennsylvania. It sounds like you made lots of happy memories on that trip. Hope that you all continue to be well and healthy. Hugs to you. Cathy Abernathy <cabernat@truvista.net> Chester, SC - Friday, August 1, 2008 1:19 PM CDT Assalam-o-alaikum! We are all praying for you and your daughters. I hope we will be able to visit them soon Inshallah :) I wish you the best of luck...and you are always in mines and my family's prayers :) Take Care! Hiba :) <hibarox@gmail.com> Paramus, NJ America - Wednesday, July 23, 2008 4:57 PM CDT Thinking of your family and checking back to see how everything is. May God keep giving all of you strength, help, full health to the girls. It's been an incredible tale of endurance. Salaam and duas. Muhammad Akram CA - Monday, July 21, 2008 6:46 PM CDT Hi Tayyaba, You and your family have been in my prayers. May God give you strength to continue to care for your family. You are truly an inspiration to me. Your words about God's creation having a purpose in every single thing really touched my heart. So often people tend to take it all for granted or complain constantly, and I have been guilty of this too. Your words reminded me of God's love and care for us all. Teresa Dunkin <dunkin27@comcast.net> Wheeling, WV USA - Sunday, July 20, 2008 12:26 AM CDT Hey Tayyaba, Just wanted to stop by and say hello. I've been thinking about all of you alot. I'm praying you find someone to come and help your sweet family. Love to you all. Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC USA - Saturday, July 19, 2008 8:22 PM CDT Hi Tayyaba I am so glad to read that the girls are doing well but so sad to read that Carol is no longer helping you with respite. I am praying for the right person to come along to be able to help you. Sending many hugs. Leslie Jurado <ijf@comporium.net> Rock Hill , SC - Saturday, July 19, 2008 3:40 PM CDT Tayabba, I am so glad to read that things are going well this week! Lots of Praise for that! I know how you feel about gettng outside and enjoying all that is created. Everything is so beautiful this time year! I'll be praying that you are able to find a new helper soon since Caroll is leaving. Love to you all, Patty and Jesse PattyT <wordinedge@aol.com> Balto, MD USA - Friday, July 18, 2008 6:10 PM CDT It's good to hear that things are going well with your family. Prayers said for you and your family, always. :) Linda from Tallahassee Tallahassee, FL - Friday, July 18, 2008 3:53 PM CDT Dropped by to check for an update on your family and let you know I have been thinking about you! Kathie <kathie12@sympatico.ca> Canada - Tuesday, July 15, 2008 9:06 PM CDT so good so good mugu magwu <mugwu_g@gmail.com> lome, lome togo - Tuesday, July 15, 2008 3:56 PM CDT Assalaam-o-alaikum I hope your girls get better inshallah!! :) Yusra Shaikh <yusra.shaikh101@gmail.com> Paramus, NJ U.S.A - Friday, July 11, 2008 4:21 PM CDT Thinking of your family and keeping all of you in our prayers. Hope all remains "boring" and well. Ameen. Mrs. Shakoor USA - Monday, July 7, 2008 2:19 PM CDT I am hoping and praying that everything is going well with you. Lisa - Tuesday, July 1, 2008 7:27 AM CDT Tayyaba, I am so happy to hear that the surgery went well and recovery period has been smooth. Happy belated birthday! You are an incredible AMAZING mom! Hugs and kisses to your sweet girls and boys! Liz Hindson <lizcon@yahoo.com> - Monday, June 30, 2008 2:26 PM CDT I am so glad that the surgery went well. I am also so glad that Zarra learned the medicine scheduele, that has to be difficult. Congratulations for the great help you had. So happy to know that you all were able to go camping, I can't believe you made it happen. You are incredible! I hope the boys get the help they need from the school. Thinking of you often and my prayers are with you, Misty Misty Luthcke <Mluthcke@netzero.com> - Saturday, June 28, 2008 7:11 PM CDT I had dinner with Scotty and his parents last night. He is a sweet boy and it made me realize I had not visited your site in a while. I am happy to read all is going fairly well and that you were able to enjoy your birthday with your family. Thinking of you in CA, Marey, Cali Ali"s Mom Marey <kteachermom@hotmail.com> - Wednesday, June 25, 2008 12:09 AM CDT Thank you for keeping your website up to date! It has been awhile since I have spoken with you vie email or web. Our Taylor, MPS IIIB, is now 11 and doing well. My prayers are with you; your sweet girls are precious. Rachel Wojnarowski <mwojnaro@columbus.rr.com> Hilliard, OH USA - Wednesday, June 25, 2008 1:59 AM CDT Tayyaba, I'm so glad Khansa did well. I've been praying for all of you. Give those sweet girls and boys a big hug for me! Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC USA - Monday, June 23, 2008 11:36 AM CDT Tayyaba, I am praying that the surgery went well and that sweet Khansa will have a good recovery. Your family remains in my thoughts and prayers. Much love, Liz Liz Hindson <lizcon@yahoo.com> - Thursday, June 19, 2008 5:54 PM CDT My prayers are truely with the children. God has them in the palms of his hands. Peace and Blessings Ivis Burris <ivisburris@yahoo.com> Baltimore, MD. United States - Thursday, June 19, 2008 5:48 PM CDT Praying all goes well with Khansa's surgery this morning. Hugs and Much Love, Kim & Scotty MPS II <cottons@earthlink.net> Modesto, ca - Tuesday, June 17, 2008 1:15 PM CDT Please know that you are all in our prayers!I pray that the surgery goes off without a hitch and that you return home with your girl as scheduled. Amen. Mrs. Shakoor - Tuesday, June 17, 2008 12:53 AM CDT Please know that you are all in our prayers!I pray that the surgery goes off without a hitch and that you return home with your girl as scheduled. Amen. Mrs. Shakoor - Tuesday, June 17, 2008 12:53 AM CDT Tayabba, As a teacher, have had to share uncomfortable information with parents at IEP meetings and had a hard time not shedding a tear myself. I am sure that the hearts of your daughters' teachers were breaking,too, as they related the changes that have taken place in the girls over the last year... You and your family continue to be in my prayers. I still check on you frequently, but do not always sign the guestbook. Please know that many people are following your story and praying for you all. Debbie Wood <debbietw4@verizon.net> Hershey, PA USA - Monday, June 9, 2008 9:41 PM CDT Dear Tayabba, it was wonderful to finally meet you and Zarrar and to get to know those beautiful children in person. I really enjoyed spending time with them at Leslie's on Saturday night. They are all so precious. I learned from conversing with Bilal that he is a very intelligent young man, and that he likes animal science alot. Ammar made me laugh. He is just so cute and funny. I think that Zahra could have jumped on Izzy's trampoline all night. As Leslie said in her guestbook entry, you are even more beautiful in person, and your children are so blessed to have you for their mother. I am so sorry that Abeerah got sick when you returned home and that Khansa is not doing well. Hopefully, getting the tube will bring her back to better health. I do hope you soon have a working washer. That is certainly not a good situation with everything else you must do each day. I cherish the beautiful shawl that you gave me. when I wear it I will think of you. Love, Cathy Catherine Abernathy <cabernat@truvista.net> Chester, SC - Monday, June 9, 2008 8:31 PM CDT I continue to keep you all in my prayers. If there is anything I can do to help please let me know. I am still doing my study and would love to met with Zarrar again. Please let me know. John Burke Baltimore, MD USA - Saturday, June 7, 2008 11:17 PM CDT Thanks for your update Tayyaba! I was heartbroken to read about Khansa :( I hope you start seeing her smiles again soon. So you are still doing laundry by hand for all of you! I hope you get yours repaired soon... Many Many hugs for all of you. Kim & Scotty MPS II <cottons@earthlink.net> Modesto, ca - Saturday, June 7, 2008 6:20 PM CDT Assalamu Alaikum We all sincerely pray for you and your family. Payar to all Abeera, Khansa, Zara and Ammar Waqas, Hafsa, Abdul Hadee, Areeba and Ayesha Siddiqua All <pkqms@yahoo.com> Lahore, Pakistan - Saturday, May 31, 2008 9:42 AM CDT Tayyaba, I cannot even begin to express how happy I am that all of you got to come to SC. It was such a great day for everyone, and you made it extra special. You are a beautiful person inside and out, and your love and dedication to your children is breathtaking. Thank you for all that you do. You will continue to be in my thoughts and prayers daily. I hope you all have a great week. Love, Kelly Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC - Tuesday, May 27, 2008 9:54 PM CDT Tayyaba, You are an incredible woman who serves her family with great beauty and grace. Your quiet vigilence over your children is felt by all in your presence. I do not see how you are able to manage all that you do but you do it with a great inner strength. I am so grateful to be able to meet you and your beautiful family. Bilal is a great artist and I feel privledge to own a t-shirt with his artwork. I hope to see you again soon. Misty mother to Will MPS111A Misty Luthcke <Mluthcke@netzero.com> - Tuesday, May 27, 2008 7:03 PM CDT Tayyaba, It was great meeting you and your family at the race this weekend! Your kids are precious! Bilal makes me laugh. We had a good time hanging out and getting ice cream. Zara is so sweet too! I wish I had more time to get to know all of them! I hope to see you all again! You and your family are in my prayers! Have a blessed week!!! Jesse Schlicher <jesse@eternal.gs> Fort Mill, SC US - Monday, May 26, 2008 9:35 AM CDT It was great being with you in Rock Hill at Izzy's run/walk. I hope you got home safely. I visited with your children at Leslie's Saturday night. They were so precious. I am in awe of all you do. You are truly amazing. Nita Porter (Leslie Jurado's Aunt) Rock Hill, SC USA - Sunday, May 25, 2008 9:15 PM CDT Dear Tayyaba I am so grateful for the time we were able to spend with your family this weekend. You are so amazing to travel this far with three girls with Sanfilippo to be with us for the race. It was such a blessing to be able to have your children in our home even for a short time. My sister loved cuddling with Abeerah last night, my mom had so much fun talking with Bilal and interacting with Amar, and we all enjoyed loving on sweet delicate Khansa. My favorite was watching Zahra make the rounds walking the house while swinging her arms from side to side and jumping over and over and over again on the mini-trampoline. They are such precious angels. I think everyone was in awe of your physical beauty especially knowing that your life leaves no time for pampering yourself- they already knew how beautiful your spirit is from following your journal. Thank you for sharing your babies with us this weekend. Thank you for enriching my life by being witness to yours, you are a selfless treasure. All my love. Leslie Jurado <ijf@comporium.net> Rock Hill, SC - Sunday, May 25, 2008 8:22 PM CDT It was so nice meeting your family at Izzy's run/walk. I am glad you got home safely. I know you have to be exhausted from traveling so many miles . Bilel did such a great job designing the t-shirt. I am keeping you and your children in my prayers. Kathy Kathy Blackwelder <jkmm@comporium.net> Rock Hill, SC - Sunday, May 25, 2008 7:09 PM CDT Tayyaba, I am so thrilled that I finally got to meet you and your family. The children are all so beautiful. You are an incredible and amazing mother with so much strength and courage. Thank you so much for making the long trip to South Carolina with your children. We so enjoyed having you all and hope to see you again soon. Love, Liz Liz Hindson <lizcon@yahoo.com> SC - Sunday, May 25, 2008 6:07 PM CDT Please know that we are praying for your family and you. Hope things improve soon and everyone is healed and healthy!. Ameen. Mrs. Shakoor Edison, NJ - Thursday, May 22, 2008 9:44 AM CDT Tayyaba ASK, I pray to god that he gives you strength to take care of your children.Ameen mirza rahil beg new delhi, delhi india - Thursday, May 22, 2008 3:50 AM CDT Hi Tayyaba Just stopping by to say I am always thinking of you all. Many hugs and kisses Love, Kim & Scotty MPS II <cottons@earthlink.net> Modesto, ca - Saturday, May 17, 2008 11:09 PM CDT Stopping in to say hello. :) www.caringbridge.org/ca/coltonmeyer ca - Saturday, May 17, 2008 8:46 PM CDT Tayabba, I hope you MPS Awareness Day went smoothly. (and Mother's Day too!) I am so looking forward to seeing everyone in SC soon! Hopefully I do not forget anything, I am so unorganized! Much love and prayers for you and your family! You are a wondeful mom! Love, Patty and Jesse PattyT <wordinedge@aol.com> Balto, MD USA - Saturday, May 17, 2008 4:08 PM CDT love to you all! Happy belated mothers day to one of the BEST Mum's I know Hugs Laura and Will xxxx Laura Brodie <labro4will@yahoo.co.uk> Birmingham, - Friday, May 16, 2008 1:09 PM CDT You are always in my prayers, Tayyaba. I pray for God to give you strength to face each day and to keep you healthy. We are all looking forward to seeing all of you next week at the run walk. Catherine Abernathy <cabernat@truvista.net> Chester, SC - Friday, May 16, 2008 10:39 AM CDT Hi Tayyaba, My family will be at the walk for the Isabel Jurado Foundation in SC. I cannot wait to meet you and the girls. Our son Will also has Sanfilippo. Misty Misty Luthcke <Mluthcke@netzero.com> - Thursday, May 15, 2008 8:58 PM CDT All the best for you. Remember, only God knows their ways and only He knows how is the real meaning of this short life for every human. I will pray for you. Please receive my love and all my energy Jorge Serrano <jserrano@greeninvestment.org> La Paz, Bolivia - Thursday, May 15, 2008 6:42 PM CDT Hi, Thinking of your beautiful girls today for MPS awareness day and praying for you guys. Love. Elison NJ - Thursday, May 15, 2008 12:32 AM CDT Tayyaba - It was so good to see you and the kids on Sunday! The girls seemed like they were doing well, and Ammar seems to have made an improvement since we last saw him. At least he knows what he wants - "More, more, more!" He sure loves that swing. :) Please let us know if your computer is still having problems. We can swing by and James can take a look. Hope you're having a good week and happy early Mother's day! Rachel - Thursday, May 8, 2008 11:20 AM CDT Assalamualikum Tayyaba, I cannot believe there are so patient and strong muslims existing in this era today who readily accept the Divine Decree of Allah SwT So sportingly without complaining May Allah grant you the patience to handle the struggles HE HAs destined for you two and MAY You see miracles happening at your home and quick recovery of your beautiful daughters Ameen. We are all praying for them.Take care, Your friend/sister, Ayesha Feroze Ayesha B. Feroze <@yahoo.co.uk> lawrenceville, Nj USA - Saturday, May 3, 2008 5:39 PM CDT Tayyaba, I'm so glad that you got to eat a meal at the table at the same time as your girls. What a blessing those kind people are! I wish you many more days filled with kindness and love from others. I am praying for all of you, and your neighbor as well. Hope all of you have a blessed day! Love, Kelly Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC USA - Wednesday, April 30, 2008 6:57 AM CDT Great site brantcmartin@gmail.com B. Martin <brantcmartin@gmail.com> - Friday, April 25, 2008 8:30 PM CDT May god be with you Willy <kind_hearted_soul@fastermail.com> - Thursday, April 24, 2008 5:15 AM CDT As Salamu Alaikum I will keep your girls and your family in my prayers. May a cure be found. InshaAllah Shana <ofthefairies@yahoo.com> - Wednesday, April 23, 2008 12:04 AM CDT As Salamu Alaikum I will keep your girls and your family in my prayers. May a cure be found. InshaAllah Shana <ofthefairies@yahoo.com> - Wednesday, April 23, 2008 12:04 AM CDT HAPPY LATE BIRTHDAY!!!!!!! www.caringridge.org/visit/hannahtheriot kristen theriot <kristheriot@cox.net> - Wednesday, April 23, 2008 7:16 AM CDT Helpful site, thank you! C. Montgomery Burns <cmburns.springfieldnuclear@yahoo.com> - Tuesday, April 22, 2008 4:25 PM CDT www.caringbridge.org/hi/jasminmay <riaheap@aol.com> UK - Tuesday, April 22, 2008 1:39 PM CDT Happy belated Birthday sweet Khansa. You are truly an angel on Earth. I am so glad to hear that Abeerah is doing well but of course sad to think about Zahra being confused and agitated. Everytime I think of spending time with Zahra last summer a big smile comes to my face. I hate what this disease does to our children's minds and body. I am praying that I will see you all again in May. Leslie Jurado <ijf@comporium.net> Rock Hill, SC - Tuesday, April 22, 2008 5:25 AM CDT Happy belated birthday Khansa! Praying for you! Love, Sami Sami - Sunday, April 20, 2008 11:00 AM CDT great site harry <heywardjoblome@swissmail.com> - Friday, April 18, 2008 6:21 PM CDT HAPPY BIRTHDAY KHANSA! Love, Kim & Scotty MPS II <cottons@earthlink.net> Modesto, ca - Friday, April 18, 2008 5:05 AM CDT Happy birthday, precious Khansa. I hope the day has been a good one for you and that you could feel the love that so many people have for you. My birthday wish for you is that you will have lots of pain free days to love and laugh and play with your mommy, daddy, brothers and sisters. I am looking forward to meeting all of you in May. Catherine Abernathy <cabernat@truvista.net> Chester, SC - Thursday, April 17, 2008 9:09 PM CDT Happy Birthday, wishing you lots and lots of fun today. Brenda NE - Thursday, April 17, 2008 4:37 PM CDT Tayyaba, You continue to be an inspiration to all of us. I know you are exhausted and how much pain you are constantly in, yet you still give 150% to all of your kids every day. I wish I could be there to help you. I will continue to pray for strength and good health for everyone. You are an angel for your kids! Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC - Thursday, April 10, 2008 9:56 PM CDT Dear Tayyaba I really do wish I was geographically closer to you so I could help you. You are a GREAT mommy don't beat yourself up for not hearing Abeerah. There may of not of been anything to hear. You are a superwoman and a hero in my eyes. I'm happy to hear that Abeerah is feeling better. Hugs, Kim & Scotty MPS II <cottons@earthlink.net> Modesto, ca - Tuesday, April 8, 2008 4:34 PM CDT Hi Tayabba, I am so sorry that your back continues to give you pain, but I am happy to hear that Abeerah is better. I so agree that your kids are beautiful. You have been entrusted with these very special little ones, and they are in the right place. You are such a wonderful and devoted mother. I look forward to meeting you in May at the run/walk. Catherine Abernathy <cabernat@truvista.net> Chester, SC - Tuesday, April 8, 2008 8:56 AM CDT Praying that Spring will bring better health to your precious children and to you. I am sorry that you are having trouble with your back. You may want to look into getting one of those back braces like the employees at Lowes wear to support your back when lifting. Keeping your family in my prayers . Love, Kathy Blackwelder ( a friend of Izzy Jurado) Kathy <jkmm@comporium.net> Rock Hill, SC - Sunday, April 6, 2008 5:47 PM CDT Tayabba, My heart truly does ache for you and the pain your back is in so badly. Many prayers are continued for you and your health as well as the children. (((HUGS))) This just makes more wanting to have our own MPS community. Just think if we have a large piece of land and many of the families could build their own houses there.. (all rancher style homes for handicap accessibility) and be in the same neighborhood to help each other out. What a blessing that would be. (I don't play lottery often, but that is a dream of mine if I should ever win the lottery) Buy a large piece of land and subdivide into 1 acre lots for many of our families to build and live together. I keep dreaming!!! Lots of love and prayers for you and your family.. (hugs too) Love, Patty and Jesse Pattyt <wordinedge@aol.com> Balto, MD USA - Saturday, April 5, 2008 7:45 AM CDT As I look at the pictures you so kindly post for us, I see pure innocence in the faces of your girls. I am so sorry to read about all your struggles, and pray to Allah to shower His mercies on you and your family. May this pass quickly and may the girls be happy and healthy for a long time to come. ameen! Mrs. Shakoor - Friday, April 4, 2008 7:43 PM CDT Oh Tayyaba, I am so sorry that you are struggling so much and that Abeerah is having such a difficult time. Although I don't know you in real life, I can honestly say I've never met anyone who sacrificed so much, so willingly for her children as you do. Your love shines through every post you write, and I think your children are lucky to be surrounded by that love every day. Jennifer <jenwales@yahoo.com> Silver Spring, MD USA - Thursday, April 3, 2008 12:05 AM CDT Tayyaba, My heart aches for you...I am so sorry about Abeerah's apparent seizures. I know it is very painful for you to see your lovely daughter go through them on top of you experiencing back pain! My prayers go out to you. Deb Wood <debbietw4@verizon.net> - Thursday, April 3, 2008 3:13 AM CDT Visiting this family has completely changed the way that i and many others look at life. We take the smallest gifts for advantage when the reality is that not everybody has the pleasure of enjoying these gifts.INSHAA ALLAH, with Allah's will, they will live happy lives. Layla Azzam Bordentown, NJ United States - Wednesday, April 2, 2008 7:40 PM CDT Tayyaba, You and your family continue to be in my prayers, especially for your health, healing and strength. I have had back pain over the years which has made me so sympathetic for anyone with chronic pain. There isn't a whole lot worse, especially when one is as busy as you are. I pray that God will give you the strength and health to take care of your precious children. Teresa Dunkin <dunkin27@comcast.net> Wheeling, WV USA - Monday, March 31, 2008 6:32 PM CDT I'm glad that everyone is on the mend. It has to be so hard for you when all your children are sick (that includes your husband LOL) and you have to tend to everyone. I just don't know how you do it. I came across this article on CNN online about autism. I immediately thought of you. :) http://www.cnn.com/2008/HEALTH/conditions/03/31/autism.main/index.html Linda from Tallahassee <lindabf19@embarqmail.com> Tallahassee, FL - Monday, March 31, 2008 5:06 PM CDT Thinking of you...hope everyone is feeling better!! Stacey and Lucas http://www.caringbridge.org/visit/hopeforlucas Cedar Rapids, IA - Saturday, March 29, 2008 9:17 AM CDT I'm praying that all of you feel better! Jennifer <jenwales@yahoo.com> Silver Spring, MD USA - Thursday, March 27, 2008 2:06 PM CDT I'm so sorry to hear about all the sickness! I really hope everyone feels better really soon, and that you can get some rest. Praying for you all. Love, Kelly Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC USA - Wednesday, March 26, 2008 3:28 PM CDT HAPPY EASTER!!!!!!! www.caringbridge.org/visit/hannahtheriot kristen theriot <kristheriot@cox.net> - Monday, March 24, 2008 1:12 AM CDT Prayers for many blessings to come your way this Easter holiday! Have a Blessed Easter! Love, Patty and Jesse Pattyt <wordinedge@aol.com> Balto, MD USA - Saturday, March 22, 2008 4:43 PM CDT Hi Tayyaba So happy to hear that Abeerah stopped crying. 30 hours is a long time to watch your child in pain and it must feel like forever not knowing what is causing the pain. Sorry to hear about Fancy but nice of her to be there Friday night so you could go to wedding. Many Hugs, Kim & Scotty MPS II <cottons@earthlink.net> Modesto, ca - Friday, March 21, 2008 4:49 PM CDT HAPPY EASTER TO YOU ALL With lots of Love Ria & Jazzy xxxxxx caringbridge.org/hi/jasminmay <riaheap@aol.com> England - Friday, March 21, 2008 3:38 AM CDT Just wanted to drop by and let you know that your family and you are in our prayers. May God give you peace, health and happiness. Ameen. Mrs. Shakoor Edison, nj - Wednesday, March 19, 2008 9:51 AM CDT Tayabba, I am praying that Abeerah is feeling somewhat better today! Is she still shaking and shivering? I was thinking about this, and I realized back was Jesse was having frquent seizures, he would be shaking in the morning when he first got up even though it was plenty warm in the house. Since we changed and upped some his supplements, he isn't shaking any more. (he never did seem agitated though, just shivering) I'm not for sure which vitamin may have helped for this, because we changed several over that time. If I come to any conlcusions I will definitely let you know. I wish we all had strong backs.. it certainly would help in the care of kids! Love, Patty and Jesse PattyT <wordinedge@aol.com> Balto, MD USA - Monday, March 17, 2008 6:27 PM CDT Tayyaba, I'm so sorry that Abeerah is not doing well. I hope that you didn't end up in the ER and that she had a restful night. I'm praying for all of you. Love, Kelly Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hll, SC USA - Monday, March 17, 2008 7:02 AM CDT Hi Tayyaba I'm sorry Abeerah is not doing well today. I pray that you she/you did not end up in the ER today. You are one amazing mom! Hugs, Kim & Scotty MPS II <cottons@earthlink.net> Modesto, CA - Sunday, March 16, 2008 11:59 PM CDT DEAR DEAR TAYYABA, THINKING OF YOU..SO GLAD TO HERE THAT KHANSA IS OK, GOD HOW SCARY FOR YOU((HUGS)) WONDERFUL NEWS TO HEAR THAT AMMAR IS TALKING, WILL DEFINATLY PRAY THAT IT CONTINUES, PRAYING FOR YOU ALL, AND PRAYING YOUR BACK FEELS BETTER SOON..MORE ((HUGS)) THERESE, ^^SARA^^ & DANIELLE..MPS FORUM MORRIS, IL - Saturday, March 15, 2008 11:55 PM CDT Hi, Tayyaba- Just checking in. I can't imagine how scary Khansa's choking episode must have been for you. It sounds as though every day you are faced with a new set of challenges. Sounds like Bilal is quite the little man taking care of Ammar. We continue to pray for you and your family every night. Alison Crane <cacrane@comcast.net> Charleston, SC USA - Saturday, March 15, 2008 7:25 PM CDT Tayyaba, My heart aches for you and for all other parents who are experiencing the same things that you are. I wish that these precious children never had to suffer and only had happy days full of laughter and smiles. Just like Izzy, your girls have amazing parents. The girls may not be able to thank you for how great you are, how you have devoted your life to loving and cherishing them, or how you take care of them, but let me just tell you that you are an incredible and inspirational person. I will be praying for you, and your sweet girls and boys. Thinking of you, Kelly Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC USA - Wednesday, March 12, 2008 7:24 AM CDT Tayyaba, What a time you have been going through! Thank God that Khansa is okay after the choking episode. How frightening that must have been for you. That is wonderful news that Ammar is speaking and responding to you. What a gift, I will pray that it continues and moves on and that the girls continue to do well. You have my admiration for your love and dedication, and my prayers, always. Teresa Dunkin <dunkin27@comcast.net> Wheeling, WV 26003 - Tuesday, March 11, 2008 4:59 PM CDT I pray for your family and you are always in my mind. May God make things easier for you and give your family and you health and happiness. Ameen! Mrs. Shakoor Edison, NJ USA - Tuesday, March 11, 2008 1:20 PM CDT May Allah give you Strength and hapiness in your life(INSHALLAH).Live long...... Abdul Rauf <kingrauf@hotmail.com> manchester, UK - Monday, March 10, 2008 8:50 PM CDT Hope all is going well... Laura www.caringbridge.org/ca/coltonmeyer bakersfield, ca - Sunday, March 9, 2008 8:28 PM CDT Tayyaba, Just checked in on you and the kids and was very happy to read that you have help several times during the week now. What a relief! Hopefully this will help make life more enjoyable/easier for all of you. Glad that the girls are doing well - I'll continue to pray for Ammar. With the weather beginning to improve, hopefully getting outside more will help him burn off some energy. :-) Hang in there, Tayyaba. You are a true inspiration to not only your close family and fiends, but to all of us who follow your journey through your website. Debbie Wood - Sunday, March 9, 2008 9:29 AM CDT Just stopping by to say Hello!!! Big Hugs to your beautiful girls.. Angela Saldana Clearlake, CA - Saturday, March 8, 2008 3:57 PM CST I'm so glad you're having better days. I've been praying for all of you. Give the kids my love! Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC - Wednesday, March 5, 2008 7:50 AM CST Trisha Offenbacker <trishaoffenbacker@yahoo.com> Travis AFB, Ca USA - Monday, March 3, 2008 11:20 AM CST Your words are always so positive and encourage Tayyaba. I am so happy to see Abeerah smiling once again. I will be praying for progress for Ammar. Leslie Jurado <ijf@comporium.net> Rock Hill, SC - Monday, March 3, 2008 4:59 AM CST I have been keeping Abeerah in prayer. I hope she is doing better than earlier than in the week. Much love and hugs to you all! It was so nice chatting with you also! I love our phone conversations! (((HUGS)) Love, Patty and Jesse PattyT <wordinedge@aol.com> Balto, MD USA - Saturday, March 1, 2008 3:55 PM CST I pray for strength and health for all in your home. May Allah keep you all safe, happy and above all healthy Ameen. Mrs. Shakoor Edison, nj - Thursday, February 28, 2008 10:33 PM CST Hey Tayyaba, I'm so sorry to hear about Abeerah's seizure. I can't even imagine how you must feel watching that! I know that you have a lot to deal with right now, but just know that you are in my prayers daily. You are amazing! Love, Kelly Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC - Thursday, February 28, 2008 11:02 AM CST I am so sorry to hear about Abeerah's seizure and how poorly everyone is feeling right now at your house. I pray your new respite is still coming and helping as much as possible on those days. I will call you later Tayyaba. Hugs to you, super-mom. Leslie Jurado <ijf@comporium.net> - Wednesday, February 27, 2008 8:20 AM CST Hello from Karen, I felt so bad to hear about the terrible seizure Abeerah suffered. It must have been very painful to handle such a frightening thing-- I hope things are better. It takes great courage to handle so much for so long--you are both such loving parents. I'll be seeing you in a couple of days-- did you get the geography book you needed? let me know! Karen Ness <karissa49@hotmail.com > U. Saddle River, NJ USA - Tuesday, February 26, 2008 12:12 AM CST Hi Tayyaba, I was so sorry to hear about Abeerah's seizure. I know that must have been so scary for you. You all are always in my thoughts and prayers. Alison Crane <cacrane@comcast.net> Charleston, SC 29412 - Tuesday, February 26, 2008 7:15 AM CST Assalamu alaikum visited your site after quite a while. May ALMIGHTY spread HIS blessings on you and Family. Slam to bhaee and payar to BAcha Party. Hopefully you will also remember us in your Dua's. Waqas & Hafsa +Abdul Hadee + Areeba + Ayesha Siddiqua <pkqms@yahoo.com> Lahore, Pakistan - Sunday, February 24, 2008 7:52 PM CST Many Many Hugs, Love, Kim & Scotty MPS II <cottons@earthlink.net> Modesto, CA - Sunday, February 24, 2008 5:02 PM CST Hello from Karen- I hope you are doing well. I am looking forward to spending time with you all--especially Bilal. Today we saw dolphin and caught a bonnet head shark and a puffer fish among others-- we will look them up on the internet -- I hope to see a very large snow man when I return! Thinking of you and hoping that all is okay, Karen Karen Ness <karissa49@hotmail.com> Upper Saddle River, NJ usa - Friday, February 22, 2008 9:43 PM CST Hi I just found your website. My sister was Dx with the same and now I'm doing my own research to see what the internet holds on the information. Thanks for having your website! Ryan T. - Friday, February 22, 2008 9:30 AM CST Hello. This is Monica. I use to be Abeerah's teacher. I no longer work at the CP Center. I work at a public school now. I miss Abeerah. i just wanted to stop by and say hello and let you know that your family is always in my thoughts. May God Bless You!! Kiss Abeerah for me. =) Monica <kennedy63@aol.com> - Thursday, February 21, 2008 8:16 PM CST I just realized that it was awhile since I signed your guestbook. I wanted you to know that I'm thinking of you today, and always. Love from Vibeke Vibeke <vibekehovd@hotmail.com> Skaun, Norway - Monday, February 18, 2008 5:02 PM CST Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL<mps3mom@hotmail.com> - Thursday, February 14, 2008 9:54 AM CST Hi, Tayyaba. Just checking in. I'm glad Abeerah is feeling better. Your strength continues to amaze me. You are a WONDERFUL mother. Alison Crane <cacrane@comcast.net> Charleston, SC USA - Monday, February 11, 2008 7:05 PM CST I pray to God that things get better for you and your family Ameen! Mrs. Shakoor - Monday, February 11, 2008 10:12 AM CST Tayaba, I am so sorry to hear of additional seizures with Abeerah. :-( I will saying extra prayers for her all week long this week! Feel free to call me if you have time to talk and want to talk to someone! (or email me and I will call you.. I have the free long distance) Love and hugs to you all! Patty and Jesse PattyT <wordinedge@aol.com> Balto, MD USA - Monday, February 11, 2008 6:56 AM CST Tayyaba I am so sorry that you have been crying...please please know that you always are in my thoughts and prayers. Email me any time if you feel like talking. Many Many Hugs, Kim & Scotty MPS II <cottons@earthlink.net> Modesto, CA - Sunday, February 10, 2008 5:57 PM CST Dear Tayyaba, I will be praying especially for sweet Abeerah that she will get better. And, I continue to pray for all of you, for health and strength. You are such an inspiration with your love for your family. Every family should have so much love in their mother. God be with you and your family. Terrry Dunkin <dunkin27@comcast.net> Wheeling, WV USA - Sunday, February 10, 2008 4:28 PM CST This is the first time I have been to your site for your family. We have 2 boys ages 4 and 2 that were just recently diagnosed with MPS III-Type A. I will be praying for your family. Sheri and Josh Sowden Sheri Sowden <sherisowden@yahoo.com> Auburn, MI USA - Friday, February 8, 2008 10:56 PM CST Just dropped in to let you know I am thinking of you...and ALWAYS praying for your family!! Take care. Stacey and Lucas MPS IIIB http://www.caringbridge.org/visit/hopeforlucas <lewnstacey@yahoo.com> Cedar Rapids, IA - Wednesday, February 6, 2008 5:30 PM CST Tayyaba, I admire you more and more each day. Your commitment and love for your family is amazing. I totally understand how precious those few moments alone in peace with our children can be, I have them once in a while also. Keeping you in our thoughts and prayers, Donna Kay and Tyler Langan www.caringbridge.org/visit/tylerlangan Donna Kay Langan <langandk@hotmail.com> Hershey, PA Us - Wednesday, February 6, 2008 12:12 AM CST Thank you Tayyaba, for sharing the details of each of the children. They are in our prayers and so are you both. Hope we can get to see you all before too long. Salaams Ferial Plainsboro , NJ - Monday, February 4, 2008 11:48 AM CST Hello Tayyaba, I join those who wish we were nearby and could help you with all you have to do. For now, please know that my prayers are with you and your family. Teresa Dunkin <dunkin27@comcast.net> Wheeling, WV USA - Saturday, February 2, 2008 2:59 PM CST Hi, Tayyaba! It burns me up to think of those kids being mean to Bilal and the way they have been taking Khansa off the bus! As a mother, I know how much that must hurt you. My heart is aching for you right now. I am going to get a package of warm clothes off to you today. I wish I were there and could do more. I would love to take Bilal and Ammar for a while to play with my 2 boys. I will pray that you get some help and also that you get some more smiles from Zahra next week. I know it makes you happy when your children are happy. I think of you often. Alison Crane <cacrane@comcast.net> Charleston, SC USA - Saturday, February 2, 2008 1:42 PM CST Tayabba, I am so glad that everyone is recovered from the flu. ALso happy that the seizure was a not a bad one, so to speak. I certainly am praying that some help will come for you around the house and with the children. I know you are worn out every day, and my heart aches for you. I wish we all lived nearer to each other just we cold be of physical help when needed! I love you, and will keep prayers going for you and your family! Love and hugs, Patty and Jesse PattyT <wordinedge@aol.com> Balto, MD USA - Saturday, February 2, 2008 7:51 AM CST How I wish I could be with you and help you. Just know that I say prayers for you and your family and hope that one day things will be a little quieter in the Beg household. :) Linda Friedlander Tallahassee, FL - Friday, February 1, 2008 7:51 PM CST HUGE hugs from England to the wonderful BEGG family Love Ria & Jasmin xxxxx www.caringbridge.org/hi/jasminmay Ria & Jasmin <riaheap@aol.com> England - Wednesday, January 30, 2008 10:27 AM CST Hi Tayyaba, I am so sorry to hear that your family has had the flu. You are all in my prayers that everyone will soon be feeling well. I've said this before, but I admire your strength and dedication to your family so much. I know that doesn't give any concrete help to you, but please know that your example helps me deal with setbacks in my life. God bless you and your family every day with strength to cope and get through! Terry Dunkin <dunkin27@comcast.net> Wheeling, WV USA - Sunday, January 27, 2008 1:40 PM CST I have one kid wih the flu and I am exhausted. Hang in there. you are amazing. www.caringbridge.org/visit/hannahtheriot kristen <kristheriot@cox.net> - Saturday, January 26, 2008 0:29 AM CST I love the new pics of the children Tayabba, they are always so beautiful! I am praying that you can find help soon! I know it is God who gives you strength through each day, but you deifnitely deserve more help! Praying that dependable help comes soon! Much love and prayers, Patty and Jesse PattyT <wordinedge@aol.com> Balto, MD USA - Saturday, January 19, 2008 6:26 PM CST Hi Tayyaba-I'm a friend of Leslie Jurado's. I just got off the phone with her and we talked a lot about you. I wish I lived close to you so I could help you with the endless list of chores that take up your day. You are a true inspiration to mothers everywhere. Your strength amazes me. I will pray for you and your family. Alison Crane <cacrane@comcast.net> Charleston, SC USA - Saturday, January 19, 2008 2:18 PM CST Hi Tayyaba I know I always say it as does everyone else....I don't know where you find your energy! I guess it is love and determination. You're an awesome mommy! I pray and pray that you find help soon. And I really pray that someone built that higher gate for you. Many Hugs and Much Love, Kim & Scotty MPS II <cottons@earthlink.net> Modesto, CA - Friday, January 18, 2008 9:42 PM CST HI TAYYABA, JUST WANTED YOU TO KNOW THAT I'M THINKING OF ALL OF YOU AND THAT I PRAY DAILY FOR ALL OF YOU ALSO, GLAD TO HEAR THE KIDS ARE DOING WELL..PRAYING YOU GET SOME HELP SOON...LOVE THERESE, DANIELLE AND ^^SARA^^ THERESE...MPS.SOC... <TRID2B4@SBCGLOBAL.NET> MORRIS, IL - Thursday, January 17, 2008 10:34 PM CST Dear Tayyaba, I'm so happy to hear how well the girls have been doing!! You and your children are always in our prayers, I don't get much time on the computer these days but you're always in our prayers each night! I always feel so guilty for the complaining I do and I only have one child with ML, you are so strong and such a wonderful mother, I wish I had a third of the strength you have on a daily basis, you inspire me so much. I wish there were other avenues for you to get more help with the girls and Ammar, I will pray that those things will find you. It is truly a wonderful blessing that you are no longer needing Hospice for the time being though, little miracles go a long way in this life of sadness! It was nice reading about the trip you all were able to take, I'm glad you got the chance to go, I'm sure it was wonderful while it lasted! Please remember how very strong a woman you are and what a huge inspiration you are to so many other moms coping with much less, you are amazing and I can only pray that you really know that, that you are such a blessing to not only your children but to all who know you. GOD BLESS and know you remain in our prayers. Sincerely, Zachiesmom, www.caringbridge.org/visit/zachie Brenda Haggett, mom to Zachie, Mucolipidosis/-I-Cell <Jhrufus@aol.com> Syracuse, NY usa - Tuesday, January 15, 2008 9:17 AM CST Tayyaba, I just wanted to stop in and check on everybody. I'm glad to hear that Abeerah is doing so much better. I wish that I could be there to help you and Zarrar. I know that you both are exhausted! I am praying for strength, energy and good days for all of you. Give the kids a big hug from me! Love, Kelly Kelly Hollingsworth <kellyholly03@yahoo.com> Rock Hill, SC USA - Sunday, January 13, 2008 9:25 PM CST Tayyaba, I pray for you every single day. Jennifer <jenwales@yahoo.com> Silver Spring, MD USA - Thursday, January 10, 2008 11:20 AM CST This the first time I have come across your page and my heart goes out to your family and you. May Allah give your family a lot of health, wealth and happiness always. Your family and you will always be in my prayers now. God bless you. It is mothers like you who truly have heaven under their feet! Mrs. Shakoor Edison, nj usa - Wednesday, January 9, 2008 7:35 PM CST Tayyaba, I check in on your family regularly, but haven't signed the guestbook in quite a while. Every time I visit your site, I am in awe of your faith and determination to provide for your children. Your energy and spirit inspire me. I feel as though I know your family because of your willingness to share your life with us through this website. Thank you for that, Tayyaba. I wish you and your family health and happiness in 2008. Deb Wood Hershey , PA USA - Tuesday, January 8, 2008 6:42 PM CST hay nadia,,,main ap ki bhot bhot bari fan hoon plz plz mujhay e,mail ka jewab zeroor dena maria <mariarajput@msn.com> lahore, pakistan - Monday, January 7, 2008 5:18 PM CST Best Wishes for the new year for your family. Tayyaba, you are an inspiration to me with your strength and love for your family. It was wonderful to read about your having time to spend with the children during the break from school. You have so much love and faith, I pray that God will bless all of you in your life together. Teresa Dunkin <dunkin27@comcast.net> Wheeling, WV USA - Saturday, January 5, 2008 2:25 PM CST Best wishes to your family!!!! Happy New Year!!!!! www.caringbridge.org/visit/hannahtheriot kristen <kristheriot@cox.net> - Friday, January 4, 2008 1:39 AM CST I wish for you a very happy and healthy New Year. You are strong in your faith and your love and your family and friends benefit from your courage. Keeping you in our thoughts and prayers. Donna Kay and Tyler Langan, MPS III A www.caringbridge.org/visit/tylerlangan Donna Kay Langan <langandk@hotmail.com> Hershey, PA USA - Wednesday, January 2, 2008 12:47 AM CST Click here to sign the guestbook. | |||||||||||
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