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THANKYOU FOR VISITING OUR WEB PAGE IT IS SET UP TO KEEP FAMILY AND FRIENDS UPDATED ABOUT OUR 2YR OLD DAUGHTER EMMALEE.HERE IS OUR STORY FROM THE BEGINING.......
ABOUT A WEEK BEFORE EMMA'S 2ND BIRTHDAY PARTY I WAS PLAYING WITH HER AND(BY THE GRACE OF GOD)I FELT A HARD LUMP ON THE LOWER LEFT SIDE OF HER STOMACH.NOT WANTING TO THINK THE WORST OR OVERREACT I TOLD MYSELF THAT SHE JUST HAD TO GO TO THE BATHROOM OR SOMTHING LIKE THAT. I MADE A MENTAL NOTE TO CHECK IT AGAIN IN A FEW DAYS.A WEEK OR TWOLATER, WHEN I THOUGHT OF IT AGAIN,AND I CHECKED FOR IT, IT WAS STILL THERE. THE FIRST TINY PANG OF FEAR ENTERED MY MIND.
I CALLED OUR PEDIATRICIAN DR.KLEIN AND MADE AN APPNT FOR A FEW DAYS FROM THEN. SHAWN CAME HOME EARLY THAT DAY AND WE WENT OVER TO THE DR.'S OFFICE WITH EMMA. AS SOON AS DR.KLEIN FELT THE LUMP HE SAID HE DIDN'T KNOW WHAT IT WAS AND THAT EMMA WOULD NEED SOOM TEST'S DONE. TWO DAYS LATER WE WERE IN COOPER FORCE FEEDING EMMA THIS TERRIBLE TASTING STUFF MIXED WITH JUICE.WE WERE TOLD TO MAKE AN APNT WITH DR.KLEIN FOR TWO WEEKS LATERTO REVIEW THE RESUTS,BUT HE CALLED THE NEXT DAY.WHEN THE PHONE RANG AND THE DR.S OFFICE CAME UP ON CALLER I.D. MY HEART JUST SANK, I KNEW IT WAS BAD. I CALLED SHAWN AND AS SOON AS HE CAME HOME WE WENT TO SEE THE DR. HE TOLD US THERE WAS A MASS IN EMMAS STOMACH,THAT THEY DIDN'T KNOW WHAT IT WAS AND THAT HE WAS SENDING US TO CHOP.THE GIRLS AT THE OFFICE WERE WONDERFULL(AS ALWAYS) AND THEY GOT EVERYTHING READY FOR US TO GO.
WE CAME TO SEE THE ONCOLOGIST HERE AT CHOP WHO TOLD US THAT EMMA WAS GOING TO HAVE SURGERY TO BIOPSY SOME OR ONLY PART OF THIS MASS, THAT WAS THE SIZE OF A LRG ORANGE,AND TAKING UP MOST OF THE ROOM IN THERE.1 WEEK TO THE DAY LATER,WE WERE IN A SURGERY WAITING AREA AND DR.MATTEI(SURGEON) CAME OUT AND TOLD US THAT THEY WERE ABLE TO REMOVE THE WHOLE MASS.WE MADE THE FOLLOW UP APNT 2 DAYS SHY OF TWO WEEKS LATER. I HAVE TO ADMIT THAT I LET MYSELF BE WAY TO OPTAMISTIC.SHAWN AND I BOTH THOUGHT THAT WE WERE OUT OF THE WOODS WITH THIS. WE THOUHGT THAT THE REMOVAL WOULD BE THE ONLY THING THAT WE HAD TO DEAL WITH. EVEN THE REPORTS FROM OUR DR.S WERE GOOD(VERY HOPEFULL) THAT EMMA WOULD NEED NO CHEMO,OR ADDITIONAL TREATMENT,BUT WE WERE STILL WAITING FOR A FEW (3) REPORTS TO COME BACK FROM THE PATHOLOGY LAB.(IN THE MEAN TIME WE MADE SHAWN CRAZY WITH TRIPS TO THE BEACH!)AT OUR FOLLOW UP WITH THE SURGEON WE HAD A SUPRISE VISIT FROM DR. Z-MACKAY(A WONDERFULL AND KIND DR. THAT HAS TAKEN REALLY GOOD CARE OF EMMA AND OUR FAMILY THROUGH THIS WHOLE THING)HE TOLD SHAWN AND I THAT WE SHOULD SIT DOWN.THAT WAS A DAY I WILL NEVER IN MY LIFE FORGET.HE TOLD US THAT ALL THREE OF THE TEST THAT WE HAD BEEN WAITING FOR CAME BACK POSSITIVE FOR A VERY HIGH RISK TYPE OF CANCER.NEUROBLASTOMA. HE SAID THAT EM WAS GOING TO NEED CHEMO AND POSS RADIATION.HE TOLD US THAT CHILDREN WITH THIS KIND OF CANCER HAVE ABOUT A 50/50 CHANCE OF SERVIVAL, BUT THAT EMMAS CASE WAS VERY HOPEFULL.AFTER THAT EMMA HAD ANOTHER SCAN TO FIND ANYMORE CANCER THAT WAS MORE THAN LIKELY GOING TO BE THROUGHOUT HER BODY- THERE WAS NONE.SO OUR LITTLE EMMA HAS A REALLY GOOD CHANCE OF BEATING THIS THING. WE ARE NOT GOING TO EVER GIVE UP ON HER . SHES OUR CHAMP! SHE HAS BEEN BRAVE AND BEAUTIFULL THROUGH IT ALL. SHE WILL HAVE 7 SESSIONS OF CHEMOTHEREPY OVER THE NEXT 7 OR 8 MONTHS,SHE WILL HAVE STEM CELL TRANSPLANTS AND T-CELL TRANSPLANTS AND POSS RADIATION.ITS GOING TO BE LONG HARD BATTLE,BUT WE HAVE GOD ON OUR SIDE,AND SO WE CAST OUR CARES ON HIM,AND PUT LITTLE EM IN HIS HANDS.
Journal
Tuesday, June 26, 2007 3:15 PM CDT Wow its been that long already. Everything has been great. Emma just had her 5th birthday.(cant believe it)and they are all getting so big. the baby is almost a yaer old already. We are having another baby in oct. Yup im pregnant again. it a boy though, so its worth it . now we have two girls two boys. or we will in oct. anyway thats it love you all, keep praying that Emma will stay healthy. we have a few more years untill we get the all clear. have a great summer, love jenn
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