Megan Grace

Made by My Cool Signs



Faith Makes Things Possible, Not Easy!


Welcome to Megan's Web Page. It has been provided to keep people updated about Megan. She was born with hydrocephalus due to aqueductal stenosis. We found this out during our first ultrasound. At 7 days old, she got her first shunt... it's been a roller coaster since. Two shunt infections, one failed ETV (endoscopic third ventriculostomy), a diagnosis of epilepsy, poor vision and crossing eyes, and a new diagnosis of cerebal palsey she is doing really well. We hope you stop back to keep up with her progress, medical "stuff", and just everyday life. To view the video of Megan walking, just click on it. I suggest pausing it until it fully loads to view the whole thing />






Megan walking


Megs 18-step & the mommy interview!

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Megan loving on Dane!




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"Me"
From the "Blink" CD by Plumb
I haven’t had
A chance to sleep
And when I wake
I wake with your dreams
I guess my pillow
Holds some kind of key
To your peace
Your peace

Me
I wouldn’t trade your love for all the candy
In this great big world
Me
I feel so crazy blessed and oh so lucky
To be the place you go
When you need to feel safe
When you need a kiss
It’s me

I haven’t showered
And I tried to eat
But all your fears
Oh they needed me
I need some time, some time to think
But then I hear you
And what you need is…

Me
I wouldn’t trade your love for all the candy
In this great big world
Me
I feel so crazy blessed and oh so lucky
To be the place you go
When you need to feel safe
When you need a kiss
It’s me

I wash your face
To make room for
All the kisses
Of tomorrow
And every day
That I get to
Be here with you
Is sweet

Oh don’t be afraid
Cause what you’ll have is…
Me

Tiffany Arbuckle Lee, Christa Wells

Journal

Sunday, January 4, 2009 3:08 PM CST

Hello all. I pray this finds you well.

I have to tell you all something... I have started a project and I am hoping that since now other people know, I will complete it! I made books for my parents and my in-laws this year for Christmas. I loved doing it so much that I decided that as a Christmas present next year (how is that for planning ahead?) I would make Jack and Megan their own books. It is basically a series (or will be) of letters to them, what they have accomplished, what they are doing, what they are interested in now, etc. along with a picture from each month. Do you all suppose I can do it? The software I used to make the books is pretty awesome. And, it will "slurp" from a blog... just not CaringBridge, so I started a blog for each kid. So, here's to my one "resolution" for the year... I have never bought into "resolutions" as my goal for life is to be a better person everyday. Whatever, that is what I just got started.

Last night Jack had a sleepover with his cousin Hayley at my parents' house. They love to do this, and he was all a twitter to go. (funny wording!) He had been sick the day before, but was much much better. Anyway, Megan missed him A LOT! She had a heck of a time going to sleep without him here last night. She hasn't really asked where he is, but I know that when we go get him in a bit she will be very excited to see him... and then she'll probably hurt him. That always happens when they have been seperated.

I also did some hotel shopping for our trip to MN in March. I think I found a great deal, so we'll have to get that booked ASAP to get that good price. Last time we stayed in a motel that was pretty ghetto, and was quite a drive to the Mall of America as well as to Megan's doc. So this time I have learned my lesson, so I am having better luck finding something in the right area, and with names I have heard of!

I had better go get somethings done before Megan wakes up and we head over to get Jack.

Love and hugs,
Heather

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Home sweet Home

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E-mail Author: megnjaxmom@yahoo.com