Welcome to Kaitlyn's Page. Please wash your hands before entering! Kaitlyn is eight years old she was diagnosed with Neuroblastoma Stage IV (At Age 3 and a half) on June the 21st 2003, N-MYC Non-Amplified, unfavourable shimada. With a tumour filling her abdomen, which had spread to her neck, knees, hips and cells in her bone marrow lining, she was placed on a tough treatment protocol (COG ANBL00P1), which consisted of 5 rounds of high dose chemo, surgery to remove as much remaining tumour as possible, two rounds of mega chemo, with Double Stem cell Transplants/rescues, followed by 10 rounds of radiation and six months of Accutane (Biotherapy). At diagnosis we were given the terrible odds of less than 20%.
Kaitlyn's current condition - Kaitlyn was believed to have relapsed on her 4th year anniversary. Recent scans show an improvement and she will not return to Oncology for 6 months.
Kaitlyn is the youngest of four children. She has a big sister named Rikki-Lea (17) and two brothers Brad (15) and Travis (11), and a baby sister Chloe who watches her from heaven. She loves them all dearly and she is their princess. We are a successful step family living in a small country town in Western Australia
Many people come by this page and leave without signing the guestbook. I do appreciate those that sign and I of course understand those that don't (I visit plenty of sites and sometimes just can't find the time to sign) but if you feel you just don't know what to say or you don't want to say the wrong thing, I assure you just knowing you dropped by and are praying for Kaitlyn is so heartwarming and uplifting. So, when you do have the chance to sign, just let me know you dropped by:) You can't say the wrong thing.
Artist/Band: Austin Sherrie Lyrics for Song: Streets of Heaven Lyrics for Album: Streets of Heaven (Sherrie Austin/Paul Duncan/Al Kasha)
Hello God, it's me again. 2:00 a.m., Room 304. Visiting hours are over, time for our bedside tug of war. This sleeping child between us may not make it through the night. I'm fighting back the tears as she fights for her life. Well, it must be kind of crowded, On the streets of Heaven. So tell me: what do you need her for? Don't you know one day she'll be your little girl forever. But right now I need her so much more. She's much too young to be on her own: Barely just turned seven. So who will hold her hand when she crosses the streets of Heaven?
Tell me God, do you remember the wishes that she made, As she blew out the candles on her last birthday cake? She wants to ride a pony when she's big enough. She wants to marry her Daddy when she's all grown up.
Well, it must be kind of crowded, On the streets of Heaven. So tell me: what do you need her for? Don't you know one day she'll be your little girl forever. But right now I need her so much more. She's much too young to be on her own: Barely just turned seven. So who will hold her hand when she crosses the streets of Heaven?
Lord, don't you know she's my angel You got plenty of your own And I know you hold a place for her But she's already got a home Well I don't know if you're listenin' But praying is all that's left to do So I ask you Lord have mercy, you lost a son once too
And it must be kind of crowded, On the streets of Heaven. So tell me: what do you need her for? Don't you know one day she'll be your little girl forever. But right now I need her so much more. Lord, I know once you've made up your mind, There's no use in beggin'. So if you take her with you today, will you make sure she looks both ways, And would you hold her hand when she crosses the streets of Heaven.
The streets of Heaven.
Kaity and Grizzly
Thankyou Jamie for Kaitlyn's ribbon, you can visit Jamie Here
If anyone would like to link Kaitlyn's page please use this banner.
I'm in the middle of putting together a photo/music montage of some of Kaity's best photo's.
Just a little hint (dial up users), click on pause while it loads up then watch the whole clip at once.
Don't forget to watch the video Brad made for his little sister
- Childhood cancer is the number one disease killer in children.
- Neuroblastoma is the most common cancer in infancy.
- Neuroblastoma is the most common extra cranial solid tumor cancer in children.
- Every 16 hours a child with neuroblastoma dies.
- There is no known cure for neuroblastoma.
- Nearly 70% of those children first diagnosed, have disease that has already metastasized or spread to other parts of the body. When disease has spread at diagnosis and a child is over the age of 2 there is less than a 30% chance of survival.
- Childhood cancer is the leading cause of death by disease in the US and it kills more children per year than cystic fibrosis, muscular dystrophy, asthma and AIDS combined.
Journal
Thursday, May 8, 2008
Tonight I ask of our wonderful prayer warriors to pray. Not for us, but for friends of a very dear friend of ours.
T @ A are young parents, with a baby boy aged 6 months. For over a month they have been taking their precious boy to doctors with concerns over his well being. They were given pretty much the same answers as we were back in 2003. So they did what we did, the only option available and took their baby to PMH.
He has now been diagnosed with Neuroblastoma, at this stage I am not sure on the staging of little "C's" neuroblastoma, but it's been mentioned their little man may only have a few weeks left in him.
I'm not sure if close friends and family of ours remember Kaitlyn at diagnosis, but she would only have lived another few weeks had we not got her onto chemo.
So here I am, asking you all to pray hard for little C and his young parents. It tears me to the core that another little person is fighting for life from Neuroblastoma.
I am praying that the doctors work out some treatment plan for little C quickly and without fuss.
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