Way to go, Jakieboy!!!

Jake saying his name in the survivor roll call at last year's Milestones Walk for Childhood Cancer. Julie Cornell is our emcee again this year! The walk is coming up June 7th from 8-10 am at Village Pointe in Omaha.


Welcome to Jacob's Web Page! Jacob is 10 years old and was diagnosed with Ewings Sarcoma of his skull (temporal bone)on Feb 1, 2003. In January of 2003, Jake started having mild headaches 2-3 times a week. We made an appointment with our pediatrician and he sent us for an MRI (thanks Dr. Harrison!). The MRI showed a lemon size tumor in his head, smashing his cerebellum. Jake's tumor was hypervascular - there was no way to biopsy it and there were doubts that it could be removed surgically without Jake bleeding to death. With the work of our neurosurgeon, Dr. Hellbusch, consulting docs around the country, it was decided to do an Embolization Surgery and then try and remove the tumor. At that time the consensus was that his tumor was probably a benign brain tumor with the small possiblity of it being a sarcoma. After the Embolization surgery done at the University of Iowa by Dr. Chaloupka, we were ambulanced back to Omaha Children's Hospital where Jake's tumor was almost completely removed in a miracle surgery in which he lost 8 units of blood (about 3 times his total blood volume) on January 28th. Once the tumor was removed, our greatest fear was realized when pathology showed the tumor to be Ewing's Sarcoma - a highly malignant bone tumor that rarely occurs in the skull. Jake completed 14 rounds of chemotherapy (at Children's) and 5 and a half weeks of radiation (IMRT - at the Univ. Of Nebraska Medical Center) in which he suffered a 3rd degree burn. His treatment ended in December of 2003. During his routine scans done on Sept 22nd, 2005 evidence of new tumor was seen, and Jake had a mastoidectomy to determine what the abnormality was. Thankfully, pathology reports showed it to be scar tissue from radiation! Scans done in December 2007 showed no evidence of disease and expected post surgical and radiation abnormalities. We will do scans again in June of 2008. Jake has permanent hair loss from radiation and some trouble with walking and running from the chemo, but overall he is doing great! We have received such unbelievable help and support from so many - thank you - you are a huge part of why Jake is doing so well!
Love, Steve (Dad), Kellie (Mom), Brandon (8 year old brother), Benny (3 year old Brother) and the amazing
Jacob Beresh! :~)

Other children dear to our hearts (More site listed below under links):

Angel Lizzie (1992-2006) Hepatablastoma

Joshua Larson (7) with relapsed Pleuropulmonary Blastoma-now back in remission!!!


Angel Tanner(1998-2007)Ewing's Sarcoma

Angel Brant (1998-2005) Ependymoma.

Angel Benjamin (1997-2005) Medulloblastoma

Journal

Monday, April 14, 2008 11:13 AM CDT

Yet another sweet child treated at Children's was lost this weekend. Lily was just 4 years old and such a dollbaby. Please keep her family in your prayers - www.caringbridge.org/visit/lilyleyden.



Hello! Thanks for stopping in to check on us! There are new photos in "view photos". All is well here. The boys' baseball seasons are just starting and they are excited. Games were rained/snowed out this weekend, so hopefully the games will start this weekend. It will be a busy spring with both boys in baseball. Yikes! Ben is doing great. He is still such a shy boy, but coming out of his shell a little here and there. He is at least now talking some to his preschool teachers - big accomplishment there! Jake starts all of the middle school orientation stuff this week. It's hard to imagine him being old enough for middle school, but he is ready.

We are busy, busy, busy around here getting ready for the Milestones Walk for Childhood Cancer coming up June 7th. Our team name is G.I. Jake and we would love to have you join us on the team and/or help our fundraising efforts. If you want to be on Jake's team, please e-mail me (e-mail link below).

If you want to help us reach our $7000 goal with a tax deductible donation, you can click here Jake's Fundraising Page

Jake loves watching his total rise, and we need all the help we can get to reach our goal. All donations are tax deductible. The 40,000 kids currently in treatment here in the U.S need everyone's help. Due to major cuts in funding half of the clinical trials scheduled for last year did not happen. We have lost so many little friends in the 5 years since Jake's diagnosis and have been to over a dozen funerals. We have so many friends that are fighting too. They need our help as there are so many promising treatments out there waiting for funding. Real treatments that can help real kids right now are just sitting there needing funding to start a clinical trial! No matter how big or small your donation, it all can make a difference. If you don't want to donate online, you can send a check made out to CureSearch to our address at 17264 Washington Street, Omaha, NE 68135.

This year's walk will be the great inspirational, fun family event it always has been. If you would like to form your own team, you can go to www.curesearch.org/events for more information. Just click on the Milestones Walk link and the Omaha walk. Forming a team is easy and it's a great way to help out some kids that are in great need. You can get your school, church, work or scout troop involved! Kids helping kids - what a great lesson to teach!

We have people from all over the midwest coming to join in our walk. CureSearch is also looking for people to organize walks in their area. It's fun and easy! You can go to www.curesearch.org to find out about organizing a walk in your area or you can e-mail me (e-mail link below). The past two years there has only been 2 MIlestones Walks in the country - ours and one in Michigan. This year there are 5 or 6! It's growing, but CureSearch needs your help. Research is the only way to find cures for these kids and having a walk in your area is a great way to channel money to that cause!

Thank you so, so much for your donation and support!!!!

Love up those kiddos and make it a great day,
Kellie, Steve, Jake, Brandon and Benny :~)

Read Journal History

Hospital Information:

Home!!!
Omaha, Nebraska

Links:

E-mail Author: scbkab@cox.net

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.