It is our attitude at the beginning of a difficult undertaking which more than anything else, will determine its outcome. To honor the life of our sweet Haley, please live by this quote. Haley Lynette Mathis April 10, 1993-June 21, 2005

Group picture of Haley's Helping Hands-Thanks for all you do!!!


Haley-we love & miss you SO much Haleygirl, continue to work your magic & reach out to others!!!



"Dance as if no one were watching, Sing as if no one were listening, and Live everyday as if it were your last."



Welcome to Haley's Web Page. It has been provided to keep people updated on her progress. Haley is now 12 years old, her birthdate is April 10, 1993 and she was diagnosed with Stage IV Favorable Wilm's Tumor on Tuesday August 19th, 2003. Shortly after starting Chemo to fight the cancer(September), Haley had trouble with her legs hurting & was admitted for the formation of blood clots in both legs(the left one all the way to her ankle). She has since than taken 2 daily shots to control the thickness of her blood. After undergoing Chemo treatment & receiving scan results we were told that the Chemo was not working & the cancer was still growing. She next started a stronger round of Chemo and was finally able to have surgery(10+ hours long) to remove her right kidney & clear her Vena Cava from tumor & blood clot on Monday March 15th(her cancer at original diagnosis was found in her right kidney, both lungs, liver, lymph nodes & vena cava). On Friday July 23, 2004-Haley had a CT & MRI's of her brain(after stating that she had a headache & continued to vomit several times in the morning) she underwent brain surgery on Monday July 26th to remove the golf ball size tumor located in her Cerebellum. There are 2 other spots located out there that they will watch through scans & possibly treat seperate with Gamma Knife radiation.

November 5th 2004, follow up scans showed that there is still a spot on Haley's brain that they will need to remove as well they have now found a spot located on her spine. Scans on December 1st will give the Doctors the understanding of what direction we head in next.

Well it happened again on December 1st...another Relapse!! Haley's scans showed that there are new spots on both lungs and Lymph nodes that are enlarged, as well there is a spot located in the area where they removed her right kidney. As for the brain spots(they look as if they are getting smaller-they will leave alone for now). The spot on her spine seems to have maybe spread to the bone, we will be doing a biopsy of this soon. Haley started the next chapter of her fight with cancer by being treated at St Jude in Memphis TN in February 2005. Haley's treatment & Miracle in Memphis was ended short when one of the tumors in her brain bled, leading her to lose control of the use of her right hand(she did prove them wrong & regained the use of her hand-by continuing to work hard at this). Treatment was no longer to happen at St. Jude, we are now back in Omaha receiving full brain radiation again, since the most recent MRI showed several(as many as 12)new spots. As of April 28th Haley began treatment in Mexico. Came home in May for the last day of school and won her battle with this terrible disease on Tuesday June 21st, 2005. We LOVE you babygirl



Thanks for visiting our page and don't forget to sign her guestbook!!



Thanks for coming to Celebrate with us for Haleys Celebration of Life on Sunday January 16th(a day 4-ever remembered) at the Norris School !!!!! Thanks to all who made this event happen~we know that you poured your heart and soul into this day:)



Let the world stop turning,
let the sun stop burning,
let them tell me love's not worth going through.
If is all falls apart, I will know deep in my heart,
the only dream that mattered had come true;
in this life I WAS LOVED BY YOU!!!!

Journal

Thursday, April 10, 2008 3:01 PM CDT

Happy Birthday to YOU....Happy Birthday to YOU...Happy Birthday dear Haleygirl...Happy Birthday to YOU !!! 15 years ago, our lives were blessed beyond words, this special sweet little girl came into our lives & we will never be the same. Happy 15th birthday sweetie

It is a very rainy day here in Nebraska, with snow on the way, so I must say there is something crazy taking place upstairs-what a party!!! I remember when we moved to our house that we are in almost 12 years ago, Haley's 4th birthday we had over 11 inches of snow & we loved being at home together!!!

The past 15 years have been full of so much happiness, love, learning, growing, heartache etc. It is hard to imagine the next 15 years without Haley here with us. 3 years ago she was Celebrating her Magical 12th birthday, with friends & family-fighting so hard to live her life. Everyday she was faced with so many struggles, but she faced it with such GRACE. I can't begin to tell you how much strength and love this young lady had/has-always thinking of others, which is why Haley's Helping Hands is so Haley-giving baskets full of fun treats to give so many children going through the same struggles that she faced & fought. I'm so thankful for the connections that we have made through having our girls, the people we have met through school, church and cancer has been so overwhelming.

As for our family, we are doing okay-missing our daughter, friend/sister more than anything. Still trying our best each day to face it with a portion of strength that Haley has passed along. The girl with the BIG heart & BIG smile-pretty much says it all. I miss the moments that all mothers & daughters share, I miss her laugh, smile, touch, voice, hair, clothes, eyes, ears, fingers, toes-this list goes on. Please learn from families like ours that life is way to short and there is no better time than now to let the little things go. Siblings-share, laugh, talk, walk, sing, play, tell secrets.....do all the things that Hanna & Haley are not able to do anymore!!!! Take what we have went through & change....be aware that there is no guarantee. Don't be scared to love, face each day with the I can attitude. Enjoy your days of being kids, grow in your FAITH and don't judge others-this is very hateful. This is something that Haley didn't do, she was good to all and she never wanted anyones feelings to be hurt.

I pray that this next year brings more healing & signs from our girl. God has such a Great helper up there-she continues to walk with each family that is facing this battle, in remission and those going through additional treatments.

Hanna is doing good, we are in the last quarter of 7th grade-can you believe that? She is so grown up, so beautiful, so caring and funny. Not a day goes by that she doesn't make me laugh-she is her sisters shining star!!! Track is going okay and motocross is rocking for her. With the help of someone-don't know who yet, I will at some point get a little video of her racing, so you can see how crazy she is-sometimes I forget that is our daughter out there!!! Amazing is what it is. We continue to pray that God & Haleygirl keep her safe when she is going so fast, so high and so far!!!

We may be in for a new arrival in our household.......yep, we are the proud owners of a new black lab(1 year old) and remember our sweet BIG yellow lab "Daisy Mae", well we will know in 2 weeks, if our Daisygirl is going to be a mama!!!

Thanks for all the birthday wishes for Haley-you don't know how much it means to have you swing by and leave a note. It helps the healing process to know that others are thinking of her-she is looking over YOU!!!

Happy Heavenly 15th birthday sweet girl

Kevin, Patti, Angel Haley & Hanna

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Hospital Information:

Patient Room: The Heavens Above

Home
PO Box 27
Panama NE 68419

Links:

E-mail Author: haleym10@windstream.net

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