It is our attitude at the beginning of a difficult undertaking which more than anything else, will determine its outcome. To honor the life of our sweet Haley, please live by this quote. Haley Lynette Mathis April 10, 1993-June 21, 2005

Forever & ForAlways special sisters you will be!!!






"Dance as if no one were watching, Sing as if no one were listening, and Live everyday as if it were your last."



Welcome to Haley's Web Page. It has been provided to keep people updated on her progress. Haley is now 12 years old, her birthdate is April 10, 1993 and she was diagnosed with Stage IV Favorable Wilm's Tumor on Tuesday August 19th, 2003. Shortly after starting Chemo to fight the cancer(September), Haley had trouble with her legs hurting & was admitted for the formation of blood clots in both legs(the left one all the way to her ankle). She has since than taken 2 daily shots to control the thickness of her blood. After undergoing Chemo treatment & receiving scan results we were told that the Chemo was not working & the cancer was still growing. She next started a stronger round of Chemo and was finally able to have surgery(10+ hours long) to remove her right kidney & clear her Vena Cava from tumor & blood clot on Monday March 15th(her cancer at original diagnosis was found in her right kidney, both lungs, liver, lymph nodes & vena cava). On Friday July 23, 2004-Haley had a CT & MRI's of her brain(after stating that she had a headache & continued to vomit several times in the morning) she underwent brain surgery on Monday July 26th to remove the golf ball size tumor located in her Cerebellum. There are 2 other spots located out there that they will watch through scans & possibly treat seperate with Gamma Knife radiation.

November 5th 2004, follow up scans showed that there is still a spot on Haley's brain that they will need to remove as well they have now found a spot located on her spine. Scans on December 1st will give the Doctors the understanding of what direction we head in next.

Well it happened again on December 1st...another Relapse!! Haley's scans showed that there are new spots on both lungs and Lymph nodes that are enlarged, as well there is a spot located in the area where they removed her right kidney. As for the brain spots(they look as if they are getting smaller-they will leave alone for now). The spot on her spine seems to have maybe spread to the bone, we will be doing a biopsy of this soon. Haley started the next chapter of her fight with cancer by being treated at St Jude in Memphis TN in February 2005. Haley's treatment & Miracle in Memphis was ended short when one of the tumors in her brain bled, leading her to lose control of the use of her right hand(she did prove them wrong & regained the use of her hand-by continuing to work hard at this). Treatment was no longer to happen at St. Jude, we are now back in Omaha receiving full brain radiation again, since the most recent MRI showed several(as many as 12)new spots. As of April 28th Haley began treatment in Mexico. Came home in May for the last day of school and won her battle with this terrible disease on Tuesday June 21st, 2005. We LOVE you babygirl



Thanks for visiting our page and don't forget to sign her guestbook!!



Thanks for coming to Celebrate with us for Haleys Celebration of Life on Sunday January 16th(a day 4-ever remembered) at the Norris School !!!!! Thanks to all who made this event happen~we know that you poured your heart and soul into this day:)



Let the world stop turning,
let the sun stop burning,
let them tell me love's not worth going through.
If is all falls apart, I will know deep in my heart,
the only dream that mattered had come true;
in this life I WAS LOVED BY YOU!!!!

Journal

Thursday, June 20, 2013 1:31 PM CDT

I never really know what to say or how to say it, but somehow I always pull something out of my hat. This year marks 10 years ago that sweet Haleygirl was diagnosed (August 19, 2003), she also earned her Angel wings on June 21, 2005. As the days, weeks, months come and go-so many things bring that pretty girls smile right back to my eyes , voice/laugh right back to my ears, smell right back to my nose and touch to my fingertips…….

Haley Lynette may you know just how very much you are missed and loved. We go through the motions everyday pretending that everything is good and try our best to put a smile on, but within our hearts it will never be the same. I still to this day get very angry and question our Lord as to “why, why you, why me, why us……why”. It is not fair, you had so much to give and so far to go, but I sit back and realize that he called you home way too soon for a reason, you will catch me up when I come home with you!

Hanna is at a point in life where everything is changing and moving forward so fast and yet things are really just starting to sink in with her too. She loves and misses you, needs you more than anyone can imagine. Loves on your baby “Haley’s Comet” every day and spoils her just a little !!!

To the rest of you, look for the beautiful butterflies, chase the lightning bugs, go fishing, swimming, play softball, make mud pies, plant a big garden, play with your dogs, lay on a trampoline watching the stars, play eye spy with my little eye while sitting in the Doctor’s office for hours, laugh so much, have fun with the life you have been given on earth, make a difference in someone else’s life, believe and follow your dreams, give smiles to those who need it and say Thanks as much as you can.
You may have met her in person, you may have followed us online, you may only know about Haley by Hanna or I talking and sharing stories, but mark June 21st as a day to remember this special Angel-know that she is looking down singing a song, asking for each of us to make a difference just like she did !!
Love you Forever and For Always Haley Lynette

Hospital Information:

Patient Room: The Heavens Above

The Heavens Above

Links:

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