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Welcome to Tuckers Journey - Tucker Adair Reamy 
Tucker's Journey on earth
December 21, 1992 - March 9, 2003
Tucker was a wonderful, delightfully funny 9 year old boy when he was diagnosed in November 2002 with a rare genetic disease, called Adrenoleukodystrophy, that causes degeneration of the white matter in the brain. He underwent a stem cell transplant using donated umbilical cord blood at the University of Minnesota on February 20, 2003. He died of complications from the transplant just 16 days later in spite of being 100% engrafted. If you are visiting this page for the first time you can read about his transplant journey and what a great kid he was by clicking on "look at past journal entries" below.
We miss him so.
"The mention of my childs name may bring tears to my eyes, but it never fails to bring music to my ears. If you are really my friend, let me hear the music of his name! It soothes my broken heart and sings to my soul." Taken from another childs caringbridge page.
"Grief is not a sign of weakness, nor a lack of faith. It is the price of love." Anonymous
Journal
Saturday, October 1, 2005 9:17 AM CDT Good Morning. Wow, where has the time gone? Summer is officially over and here we are on the first day of October. Life at our house seems to be incredibly busy. Allyson, as many of you know, has started high school. She is having a blast, and we are really enjoying it too. The only thing that makes me a bit sad about it is to think how quickly the next four years will fly by and off she'll go. But we won't dwell on that now. We're living each day and loving all that comes our way.
To that end, as we once again knock on autumns door we are reminded of all the dates that have marked our lives forever. It will soon be three years since Tucker was diagnosed. How can that be? How is it that three years have passed, and our lives have gone on? Oh, there are days when my heart is still so broken, but we continue to heal. I love the poem that was last on the page and how it likened a death to a sugery and in the end you are left with the scar as a reminder forever that it happened. It sums up how we feel so well. I think, and this may sound a bit envious, but it really is just me trying to understand the big scheme of things, I will always question why treatment works and is successful for some, and it just wasn't for Tucker. I have said this before and will say it again, we will never regret our decision for treatment, but we will forever regret the outcome. It is the lack of much new to report that has brought me to the decision that this will be my last journal entry. This page has been a true gift for the three years that we have used it. I suppose we will continue to come here to read, and to remember, but it no longer offers the link to all of you it once did. Entries in the guest book are getting fewer and fewer. This part of Tuckers journey has ended. It is now a journey we will continue to carry on privately. Thank you for supporting us as you have. There were days when this was a real bright spot. I would also like to ask you to continue to support us with thoughts and prayers. You can never have enough of those on your side. And lastly, I would ask you to always keep a place in your heart for a memory of Tucker. He was such a beautiful kid. Hopefully, his journey, and the part it played in your life has changed you somehow. It was our hope from the very beginning that no matter what the outcome, someone would be benefited. I hope that has been the case.
Thank you for allowing us into your lives, and thank you for sharing "Tuckers Journey".
Fondly, Rod, Tracy and Allyson
Read Journal History
Hospital Information: Home Address
4002 Walnut Street
Grand Forks, ND 58201
701-795-5697
Links: http://www.marrow.org Information on how to become a bone marrow donor
http://www.ninds.nih.gov/health_and_medical/disorders/adrenolu_doc.htm Information about Adrenoleukodystrophy
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