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Matthew Welcome to our Child Web Page. It has been provided to keep people updated about our Child.
Journal
Sunday, August 10, 2008 9:05 AM CDT Hello Everyone,
Well at this point Matthew is done with the 2nd Round of his chemo. Lots of things happened in these 6 weeks.
When we first got back from Washington DC, Matthew did sleep quite a bit, but as they told me, he would get use to the Fentanyl patch and not sleep as much, and that is what has happened.
His appetite came back as well. At times he eats quite a bit, and at other times he eats little amounts but many. Most of the weight he lost, he has gained back.
Again, with his chemo schedule he is on an oral and IV chemo the first week, then he just has IV chemo the 2nd week, and the 3rd week he is off. Although, on that 3rd week he still needs blood drawn at clinic, right now twice (Mondays & Thursdays) to see where his levels are.
At first Matthew’s blood levels were just dropping, as though his body was not making any new blood cells on its own, BUT……..I am so happy to report that his levels are now fluctuating, like his body is starting to pitch in and make some of their own. He has not needed a platelet transfusion for almost 2 weeks now!!! His red and white blood cells keep jumping up and down, but….they too are maintaining. This is such a good sign.
Matthew continues to take quite a few meds by mouth along with his chemo at home, and the chemo at clinic in IV form, recently, we had to add another oral med. He has a bacteria growing in his belly, and the med he has to take for this is awful tasting. The worst part about this too, is he has to take this med, 4 times a day for 10 days. I keep telling him, that each time he takes it; we are getting closer and closer to the bottom of the bottle and the end of the 10th day. Last evening, he had 4 meds he had to take before bedtime. He turns his nose every time he has to take one, but….it always gets down, and without a fight. He is a good medicine taker.
On August 18th, Matthew will start his 3rd round of the chemo. We will plan to go back to Minneapolis for tests and scans in September. On August 18th, 2004, this was the day Matthew was first diagnosed with Neuroblastoma Cancer. 4 Years – HE IS A TROOPER and a SUPER BRAVE BOY!!!
On August 21st, Matthew is planning to start 2nd Grade. There are some details yet to figure out, but……he is determined to start.
The BIGGEST day of all is August 28th. Matthew will turn 8 YEARS OLD!!!!!
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Hospital Information: Fairview-University Children's Hospital
420 Delaware Street S.E.
Minneapolis, MN 55455
612-672-6000
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