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I just adore my Baby Girl's smile! My daughter's life has continued with the decision of 2 selflish families making the decision to donate their child's organs. Thank You... Welcome to my daughter Savannah’s web site. Savannah was born with a rare metabolic disorder called citrullinemia. It is unknowingly passed on from generation to generation. She was missing 1 of 6 enzymes that is located on chromosome 7 that helps breakdown and remove nitrogen from your body. This process is known as the Urea Cycle. The result of missing this enzyme causes excessive accumulation of nitrogen, in the form of ammonia, in your blood stream. Excessive amounts of ammonia can cause anorexia, lethargy, projectile vomiting, rapid breathing, irritability, brain damage, coma and death (if treatment is not quick or effective). When left untreated, brain damage, coma, and death will occur. That is what happened with Savannah’s twin brother’s Zack & Luke. We knew they were sick but metabolic testing at birth wasn’t state required at the time. When we finally did find out what was wrong it was to late to save them. With the next pregnancy we had pre-natal testing, CVS & Amnio Synthesis, to confirm Savannah’s diagnosis. Within 5 minutes of her birth she was whisked away to the NICU to begin her life saving treatment. In April of 2004 we decided it was time for a liver transplant. Savannah was having more and more hyperammonemia episodes, coming out of each one leaving us wondering if brain damage had been done and will surface later in her life. It was taking her longer to respond to the life saving medicines. We knew she was becoming more at risk with each episode. December 9, 2004 Savannah received her gift of life from a wonderful family who lost their Baby Girl but wanted to give life to others through her. We are forever grateful to them. Amazingly, January 24th 2006, Savannah recieved her second gift of life. What a miracle's we have witness. Thank you to all donors and their families. Use this "make a donation" link to make a donation via Paypal with a credit card or transfer funds from your bank account securely. To make an automatic tax deductible donation you can go through Eblen Charities. You must indicate that it is for the Savannah Loftis Fund. Otherwise it will go into the organization and not benefit Savannah. You can mail or drop off these deductions at: Eblen Charities To view our 1st transplant photo journal click on this link: Journal IT'S ABOUT TIME! Links: |
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E-mail Author: reneeloftis@verizon.net; |
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 Your gift will help millions of people stay connected with friends and loved ones during challenging times. This page has been viewed 135182 times. Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent. This information does not confirm that anyone is or was actually a patient at any facility. |
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