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Welcome to Austin the Builders (aka Austin Wall) web page. He is 3 and SUFFERED from Diamond Blackfan Anemia. He has an older brother and sister. He loves having his website, he thinks it is totally cool to read your messages, and it gets him out of bed. So keep posting your notes and checking on him daily. LOVE AUSTIN!! This picture was taken the day we left to start his transplant. This to me is what a normal life sorta looks like. Thanks to the doctors and nurses at Duke we can now all have a normal life all of the time. Thanks to all of you who have sent thoughts and prayers. That is worth just as much as the doctors. KeepPrayin.
Journal
Wednesday, June 22, 2005 3:42 PM CDT Hello all. I have been gone quite a while, and I apologize. We have all been sick doctors appt. for everybody. It's been a busy time around this house. I am ready for some quiet time. Austin is doing great. We went for our nine month studies yesterday. Everything that we got back yesterday was good. Our plan for the next six months is to start weaning off of the cyclosporine, and once we are off that start going off all the other meds, an get ready for immunizations. So we are finally over what seemed to be a very big hill. Although, I know to not get the horse before the cart. I know will still have a long way to go.
In all of my joy, my heart is still torn. There is a beautiful young girl in New Jersey, who not for the lack of fighting isn't haven't as easy a time getting rid of her DBA. So I'm asking you all to keep sending prayers to her, keep her in your thoughts. She is an extrodinary young girl. She has a heart as big as the world, an will fight her way through the toughest battle. Her name is Kylie Jae Monica. Don't forget that name, cause I have no doubt that one time she will make her mark on our entire world. She has more guts, and more courage than any adult I have ever met.
All of these kids are so special, an not in your ordinary way. I watched Austin go from one place to the other haveing different tests done yesterday. He layed on a table let them stick a needle in his chest to access his port, and never even flinched or cried. He use to hold up his little finger in the beginning when he was a baby like what are you waiting for, can we just get it over with. They take on so much, an they endure so much yet they never complain, at least not about that. My middle baby has been told that she has to have her tonsils removed. She is five years old, and she is not taking it well at all. These is a whole diffent experience for me because Austin has been having surgeries since he was two an it's just another day to him. It's little things like that that make you look at these kids so differently.
I will get off of my whatever you want to call it. Austin got to be in a wedding a couple of weekends ago. I will put the pictures on his picture page. Check him out, he was handsome.
Love you all.
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