Journal

Wednesday, May 13, 2009 11:55 PM EDT

Hi guys. First I wanted to apologize for being late getting back to you. I certainly haven't forgotten. But, as an example of how I've been feeling too "yuck" to get anything done, yesterday's most important counts were:

HGB 5.2 (no, this is not a typo)
PLT 9
WBC 2.2
ANC 970

Thank goodness they agreed to see me once again as Dr. K works her magic. I love that woman...she loves me too, I know. Most importantly, God knows me best and I am quite sure that since He has never forsaken me, He will not do so now. I really needed help medically and have been passing out as of lately. I don't know if you remember my last fall but it's in the archives. This time, I fell and hit my left side bruising up my shoulder and upper thigh. It could have been anything but there are some new things going on so we trying to determine the cause of that while I go for regular appointments because I can't go in for anything "normal". Falling is considered a "fluke", not an emergency. We all just stare at those making this decision (NOT my medical team) and ask ourselves "falling in a patient who just had major hip surgery with severe marrow failure ISN'T an emergency in itself? Anyways, yesterday, they said that if it happens just once more, I'm going to need an EEG and some other tests as falling is extremely dangerous for someone in my situation. Not enough blood volume, no platelets to stop bleeding; the list goes on. So, anyways, peaking of help, I really wanted to send a detailed message but just couldn't get the energy to do it. So, I'm going to post "general info" on this page and you can always email me with questions. So, here comes the basic and you will find details in your email.

The letters should be addressed to NCBSBC, re: Khalita C. Jones and state the following points somewhere in the body:

I worked and worked to pay COBRA and could not work past October 7th, 2008 due to a surgery (FVFG) that could not be postponed per doctor's orders. At that time, there was no accurate estimate as to when I'd be back. It would depend on how I was progressing. Without an income, it was impossible for me to continue to pay bills so I paid as much as I could and then my insurance was terminated. Before I went into the hospital for surgery, I had been informed that if I could prove that I was disabled before the date that I had to go on COBRA, then I would qualify for 10-12 more months of insurance. (see detailed email)

As for the money, please find all the details for that in the email sent to everyone. I appreciate you all SO MUCH and continue to think of you daily even though I may not get to sign into everyone's page. I'm proud of the things we've accomplished together as a cyber/real family (as some of us actually know each other face to face as we go to the same facility--I'm a Duke network person, for example. I hated to ask for this help and still don't like it, but what else can we do to help each other in times of need in MANY ways unless we make our needs known. God says "you have not for you ask not and when you ask, you do not receive because you do not ask with a sincere heart. This is the value system I was taught and I truly believe my heart is in the right place for asking, so (and by your guestbook entries/email) I know prayers are already being answered and am overwhelmed with God's goodness to me when I totally do not deserve it.

I appreciate calls, cards, balloons, flowers and prayers that many of you have offered to do for me. I am forever grateful. Let me know of anything specific you need from me and if I can, I certainly will. Love to all & shalom...until tomorrow, or whenever God gives me strength to get back for an update, or if there's a HUGE emergency outside my normal, I'll have someone update to keep you guys informed. I PROMISE. So don't worry all my "moms & friends" out there :)