Welcome to Little Ethan's web page. Ethan is the 3 year old boy with a rare form of Muscular Dystrophy known as NEMALINE ROD MYOPATHY. He was diagnosed September 24, 2003 at age 6 months. With very little known about the disease and less than 200 hundred cases known about world wide he was given but 6 months to live. 9 out of 10 infants are trached or die at birth. Only 10% live to first birthday. Ethan has truly come along ways. To GOD be all the GLORY, THANKS, and PRAISE!!!!Thanks for all your love, support, and prayers.

ETHAN SCOTT MYERS

Born: MARCH 24 2003

Weight: 5lb and 11 oz Length: 19

GOD'S SPECIAL CHILD

I may not walk and talk like you;
or maybe I'm a little slow to
you, But in God's eyes...
I'm just right, I'm His Special Child.

Sometimes people
Stop and Stare, Some just act
like They don't care. No matter what They do or say, I know
His love is always there. God
made us all different.... Each
in our own special way.

Maybe I can't See or
hear. Maybe I can't Walk or
think to clear. Some call me disabled; Others handicapped,
But in God's eyes... I'm special. Not because I am different,
But because I'm Me!!


Little Ethan Scott Myers



ETHAN'S WISHLIST/NEEDS!!!!!!

13 gallon trash bags, white vinager, lysol or clorox wipes, Puffs tissues, Huggies Wipes and Diapers size (5), Germx, Anti-Soap, Papertowels, Walmart gift cards for supplies or gas

Journal

Tuesday, June 17, 2008 9:53 PM CDT

Wow! I know you guys that still check our site of having to take a double take. Yes this is an update. Your not just seeing things. First of all let me say that no news has been good news. God has been great to Ethan and our family since the last update in 2006. I really don't know where to begin. In May of 2006 we went to Disney with Make a wish. Ethan truly had the time of his life. He left the hospital on Thursday with a collapsed lung and we flew out for 7 days aganist what I think all the doctors at UNC thought was a crazy decision Ronnie and I made. Since May of 06 we haven't been back in UNC for anything other than a one night visit in Sept 06 with RSV. He hasn't been back in the hospital in 07 or 08 so far. We have been blessed beyond measure. Ethan has come along way. He is driving his self around everywhere. If you haven't seen him in his chair he drives better than all adults that drive powerchairs. He completed his 2nd year at preschool. He is talking, writing, reading. He is to start Kindergarten this fall which I'm not looking forward to at all. He loves being with other kids so he is excited. His lungs have been doing great. The only real problem we have to face is the scolosis. It is really progressed fast. He curve is at 150 degrees. He is in a vest/jacket about 22 hours a day. He actually likes wearing it which is a surpises to the Dr. Most patient fight and don't wear it. He tells you to put his turtle shell on if we forget. We are going in to UNC for sleep study sometime next month and a bronch. I really could go on and on but what I really would like to say for all who are reading this and having problems. Just don't give up. Nothing is to hard for the LORD. He has given us a miracle that so many doctors thought would never happen and that may not agree but that have to see God's hand is on Ethan. Thanks for your prayers and keeping up with our family.

The Myers Gang

Links:

E-mail Author: ronchristymyers@yahoo.com

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