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Welcome to Little Ethan's web page. Ethan is the 3 year old boy with a rare form of Muscular Dystrophy known as NEMALINE ROD MYOPATHY. He was diagnosed September 24, 2003 at age 6 months. With very little known about the disease and less than 200 hundred cases known about world wide he was given but 6 months to live. 9 out of 10 infants are trached or die at birth. Only 10% live to first birthday. Ethan has truly come along ways. To GOD be all the GLORY, THANKS, and PRAISE!!!!Thanks for all your love, support, and prayers. 
ETHAN SCOTT MYERS
Born: MARCH 24 2003 Weight: 5lb and 11 oz Length: 19 GOD'S SPECIAL CHILD
I may not walk and talk like you;
or maybe I'm a little slow to
you, But in God's eyes...
I'm just right, I'm His Special Child.
Sometimes people
Stop and Stare, Some just act
like They don't care. No matter what They do or say, I know
His love is always there. God
made us all different.... Each
in our own special way.
Maybe I can't See or
hear. Maybe I can't Walk or
think to clear. Some call me disabled; Others handicapped,
But in God's eyes... I'm special. Not because I am different,
But because I'm Me!!
Little Ethan Scott Myers
ETHAN'S WISHLIST/NEEDS!!!!!!
13 gallon trash bags, white vinager, lysol or clorox wipes, Puffs tissues, Huggies Wipes and Diapers size (5), Germx, Anti-Soap, Papertowels, Walmart gift cards for supplies or gas
Journal
Sunday, October 8, 2006 9:04 PM CDT Hello Everyone!
Sorry for such a long update and leaving you all hanging on how things are going since the hosptial trip. We are home and things are going really well we think. He seems to be clearing up from the RSV and other infections he had. Things have been really busy with him going to the doctor and school. He is going to preschool at Divine Street in Dunn. It is for 3 hours 2 days a week. He loves it so far. He enjoys watching the other kids run around. They do so many cute things with them. He just got his powerchair last thursday and all I can say is it is nothing but GOD's answered prayers to see him drive it around. He is so amazing. God has truly blessed him so much. Even though it hasn't been easy it is amazing to see how God has and is working in his life. Hopefully he will be able to stay in school. If he starts having alot of infections we will have to pull him out. He is really talking alot more and saying everything. I don't think I talked about our last trip to Disney. He had a ball. I really think he enjoyed it more this time because he knew what to expect. He love riding Dumbo. We didn't put him on it during the Make a wish trip but did this time. We went to Mickey Halloween Party which was Awesome. He had the best time there ever. They put on a huge party. The fireworks were great. He dance and sang his heart out until 12 am. YES 12 am. We stayed til the park closed. He didn't won't to leave then. Someone took my camcorder. I still haven't gotten over losing the memories. I could careless about the camera but the cd is something I can't replace. Emily is going up so fast too. She is busy and bossing us all around. She is so funny. She loves to kiss Ethan and be alittle nurse. She want to wipe his nose and try to listen to his heart with the toys doctor kit. He really lets he do whatever she wants. Andrew is busy with all the school work, scouts and just being my big boy. He is growing up to fast. I can't believe he is already in the 4th grade. He will be having surgery on Nov 20 to have his tonsil removed. I hope and pray we can make it til then. He is having alot of problems with it. We will try to do it on thanksgiving break. Emily needs hers out but they feel she is still to little to try to remove them. They told us children under 2 don't do well with it. Well keep up the prayers and we love you all!
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