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Welcome to Alex's Page. This page was created to keep friends and family up to date.
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Alex was born April 1, 2002 to Craig and Barb who had waited for him a long time. What a blessing!
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On December 7, 2004 Alex was dianoged with stage 4 neuroblastoma. The tumor was found in his abdomenal area and was attached to the main artery that supplies the lower body with blood flow.
Two years ago Alex endured 6 rounds of high-dose chemo; 7 1/2 hours of surgery to remove the bulk of the tumor; 96 hours of continuous chemo followed by a bone marrow transplant; 15 rounds of radiation and six rounds of Accutane. We are still waiting for Alex's bone marrow to recover.
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Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes, I will help you. I will uphold you with My righteous right hand.
Isaiah 41:10
Journal
Wednesday, July 1, 2009 7:43 AM CDT Hi Again Everyone,
Alex is feeling better, but still has a bad cough. We have been sleeping on the sofas in the family room for 2 weeks because everytime he lays down flat, he coughs without stopping. He still needs to have a breathing treatment in the middle of the night -- at least the sinus infection has cleared up.
Monday was such a big day for us as a family. Monday, June 29 marked Alex being four years out from his bone marrow transplant! That is a huge milestone. Craig took the day off of work so that we could celebrate Alex's anniversary and our 13th wedding anniversary. We have a lot to be thankful for.
I have mentioned Alex being honored at a fundraising kickball game. Some of you may have received an email from me to come out and watch the game, or be on a team. You can even make up your own team! Below, I have included an explanation of this fundraiser.
We are so excited to be part of this event. Craig's brother and his family are coming to play on Alex's team. Alex's team is called "Alex's Jedi Warriors". We have had t-shirts made up with lightsabers on them. Alex is a BIG Star Wars fan and that is why he named his team the Jedi Warriors.
Check out the website at www.kick-it.org. The story is amazing. The kids are amazing! Please think about donating, or better yet, put together a team and come and play with us!
Kick It: Facing Cancer, Finding Cures is a national grassroots fundraising effort with a simple concept: play kickball to unite communities in the fight against pediatric cancer.
The idea originated with a very special nine-year-old cancer patient, Quinn Clarke. He wanted to turn his favorite game of kickball into a fundraiser, so he asked his friend, Ava Harb who was also battling a cancerous tumor, to be a team captain. Together, Quinn and Ava inspired an entire community to get involved. In just five days, more than 500 people were brought together and raised thousands of dollars. Within weeks, games were held in backyards, parks and playgrounds all over the country, proving that everyone - kids, adults, friends, and families - can all make a difference. Thus, Kick It was born.
Kick It is made possible through Flashes of Hope, a national nonprofit organization that changes the way children with cancer see themselves through the gift of photography. We work with award-winning photographers all across the country and create free portraits of these amazing children and their families. More than 4,500 children will be given portrait packages this year alone; this represents 35% of the children diagnosed with cancer in the United States.
We can all accelerate a cure and celebrate these brave children by just playing kickball. So organize a game, join a team, or support a event. You can help Kick It for Quinn, Ava and the thousands of other children fighting cancer!
Your funds will directly help children with cancer and their doctors:
•50% will be donated to the Children's Tumor Foundation and CureSearch, to fund research at the Children's Oncology Group (COG). The COG is world's largest cooperative research organization with a network of more than 5000 physicians, nurses and scientists.
◦10% of revenue will be directed to research at local hospitals when community events raise over $2,000. To be eligible for funding, hospitals must be one of 200 Children's Oncology Group (COG) member institutions worldwide.
•50% will be donated to Flashes of Hope in support of our mission to provide free portraits to children with cancer. Photo shoots are held in 39 hospitals and at 8 summer camps across the country. Thanks to the efforts of more than 1500 volunteers, 86 cents of every dollar is dedicated to program services.
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