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This website has been created to
keep family friends and visitors
updated and informed on Orion's progress



Orion And His Sister Kymlan












Orion was only five years old on May 5th, 2004 when he was diagnosed with ALL, Ph+, and CSN leukemia. For two months prior to his diagnosis he had been consistently sick with ear infections,severe headaches,vomiting,and Bells Palsy. This eight week period began with many doctor appointments and several different diagnosis', and ended after seeing a doctor about Orion's eyes. The doctor found bleeding behind one of his eyes and he was immediately sent to Lebonheur Children's Hospital for testing. After arriving at the hospital, Orion began to get worse and was admitted into the ICU. The very next morning the doctors told the family that he needed to be transferred to St. Jude Children's Research Hospital because they belived Orion has lekeumia. Within twenty-four hours Orion and the family found ourselves in the ICU at St. Jude facing a very rare and high risk form of cancer. Because of the nature of his leukemia, Orion would need to undergo chemotherapy to prepare his body for a bone marrow transplant. By the end of September Orion was ready for the next phase of his battle,total body irradiation and a high dose Chemotherapy, and on October 12th, (my birthday)
Orion received his little sister Kymlan's bone marrow.
She is the perfect match that he needs.

At this time I would like everyone to know that Thanks to St. Jude Children's Research Hospital,the doctors, and the amazing research we not only have hope and a second chance, but an extended family that consist of staff and friends from St. Jude.


To Find Out More About St Jude
Click Here


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The Chosen Mothers
By Erma Bombeck

Most women become a mother by accident,
some by choice and a few by habit.

Did you ever wonder how mothers of children with
life threatening illnesses are chosen? Somehow,
I visualize God hovering over earth selecting his instruments for
propagation with great care and deliberation.
As He observes he instructs His angels to
make notes in a giant ledger“ Armstrong,
Beth, son, patron saint Matthew. “
Forrest, Majorie, daughter, patron saint
Cecilia. “ Rutledge, Carrie, twins, patron saint Greard.
”Finally, He passes a name to an angel and says,
“ Give her a child with cancer.” The angel is curious.
“why this one God? She’s so happy” “ Exactly,” smiles God,
Could I give a child with cancer a mother who does not know laughter? That would be cruel.”
“But does she have patience?” ask the angel, “ I don’t want her to have to much patience or she will drown in a sea of self pity and despair. Once the shock and resentment wears off, she will handle it.” I watched her today, “said God, She has that feeling of self-independent that is so rare and necessary in a mother. You see, the child I’m going to give her have it’s own world. She has to make it live in her world and that’s not going to be easy. “But Lord, I don’t think she believes in you,” said the angel. “ no matter, I can fix that. This one is perfect. She has just enough selfishness.”
The angel gasps, “ Selfishness? Is that a virtue?”
God nods. “ If she can’t separate herself from the child occasionally she’ll never survive. Yes, here is the woman I will bless with a child less than perfect. She doesn’t realize yet, but she will be envied. She will never take anything her child does for granted. She will never consider a single step ordinary. I will permit her to see clearly the things I see…… ignorance, cruelty, prejudice…..
and allow her to rise above them. And what about her patron saint. ask the angel, his pen poised in mid-air.
God smiles and says… “ A mirror will suffice.”

Orion I love you so much and
Iam so blessed that God choose
me to be your mother.



Orion's Photo Slideshow !
Great Pics !
Tinkerbell says
'Come See Everyone'!
Click Here



Some Of Our Special Friends that
we would like you to pray for too.
*beside their name has the same diagnosis as Orion

* Macauley www.caringbridge.org/tn/macauley
Matt www.caringbridge.org/wa/matt
Parker www.caringbridge.org/tn/parkerdeason
Tyler www.caringbridge.org/tn/tyleremert
Jonathan www.caringbridge.org/tn/jonathansumers
Rachael www.caringbridge.org/tn/rachaeljames
Kyle www.caringbridge.org/tx/kyle
*meredith www.caringbridge.org/nc/meredith
Stormy www.caringbridge.org/tn/stormyrlott
Anne Raegan www.caringbridge.org/ms/anneraegan

Abbi www.caringbridge.org/ms/abigail














*HUGS* TOTAL!
give Orion more *HUGS*

Get hugs of your own





Gramma Mimi
Click Here




Click Here













THE CROCODILE SONG

COURTESY
OF
DISNEY MUSIC






Thank You, Joe Gibbs Raceing for supporting us at St. Jude



BR>
My dear friend Kelly whose son Macauley diagnosis was the same as Orion, shared this with me whom received it from Jake owen's page. I would now like to share it with you.

What its like to have a child with cancer...

Picture your child sitting in the middle of the street.
Picture yourself in your home watching your child from the window.
Everything inside you wants to reach out and save them.
But you can’t get out, all you can do is watch and pray that God is watching over them
You see them fall and cry for you to make it all better.
But you can’t get to them, they can see you and see your tears.
And maybe hear your voice through all their tears.
You pray God will keep them safe.
You hear a car in the distance, but never know how far away it is,
some days it seems really close other days even closer.
You know that at an moment that car may come and change your world all over again,
in a split second you can be back to were you were when this all started or worse yet, the fight may be over.
Some days you start to feel a little more “safe” and back up from that window,
walk over to the couch and sit down, when just then you hear that car again
and in a second you are one with that window again, all those fears you tried so hard to put aside are back,
more intense this time, feeling guilty for having let your guard down.
It makes leaving that window the next time that much harder.
We want to keep them close at all times for fear of the unthinkable.
At night when you leave their side to go to bed, you take one more quick peek at them to make sure all is well.
You lay in your bed hoping to see them tomorrow, not wanting that day to end,
for as hard as it was that day they are here with you, and tomorrow is filled with the unknown,
every day, night after night these are our fears. We are exhausted in every way.
Our prayers from one night would fill God’s book a million times over.
All you can do is pray to God to spare them, let them be safe.
From that window you see the fear in their eyes, their hopes of the future,
such a small child sitting their all alone, surrounded by love, but alone ,fighting so hard,
not wanting to let you down, for they are very smart, they know our sorrows.
Seeing your child sit there ,wanting to help with all your might,
But knowing in the end its them and their bodies that must do all the work,
so much to ask of such a little person.
You’d never let your child sit there in the street, knowing that they could be taken from you at any moment,
you would not just sit there and stare at them and pray to God to save them,
you’d pick them up, wrap your arms around them and hold them forever, keeping them safe.
Yet that is what us parents of children with cancer are asked to do every day.
Let them sit there and watch and wait and pray, pray hard.
Yes, I believe in God, but that doesn’t stop my mother instincts to want to do something to help them.
How do we put everything we learned as parents aside, and simply hand it all over to God?
How is it decided which child shall live and which child will pass on?
Why is it that some children struggle so very hard and win their battle
only to have it return with much more vengeance?
Why do some children sail right through their treatment and then die suddenly?
How are we to make sense of any of this? With each clinic appt. brings the possibility of a relapse,
no matter how great they look or how wonderful they feel.
If only we could judge their health by the way they look on the outside.
We are suppose to protect them, to keep them safe from harm, who said cancer could make all the calls?
I never agreed to that, I am their mother and I will fight for them, with every ounce of my being.
Cancer may be calling the shots, but it will not win this game, not with my children, not with any of our children, we are so very weak, but so very strong, this bravery we have we get from our children,
our little heroes, fighting every day with all their might…
Pray for them…………


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Journal

Thursday, August 23, 2007 5:20 PM CDT

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Hospital Information:

Home
6551 Hickory Crest
Walls, MS 38680

Links:

Give Kids The World   Creating Magical Memories For
Children With Life Threatening Illnesses
Desoto Darlings   organization headed by a mother's love for her daughter and Miracles that happen at St. Jude.
Make A Wish Foundaton   where sick children's wishes come true


 
 

E-mail Author: mother2orionankymlan@yahoo.com

 
 

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