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Saturday, November 11, 2006 12:33 AM CST
Michael's new website is
www.michaelstanleychildlife.com
Please follow us!
Thanks,
Tony
Friday, November 10, 2006 11:04 PM CST
Cindy got a call tonight that Abby was in the ER at Vanderbilt tonight. We are sad that Abby was there, but felt blessed that we talked to her mom BJ and we were able to go see Abby tonight. In fact, we all went. They let Michael, Caroline, William, Cindy and me in to see her. Abby kept asking about Michael, not concerned about herself.
Michael and Abby have magic(miracle) written on their faces when they are together. Michael gave Abby a couple of kisses and "high fives". It was painful, but fulfilling to watch.
Pray for her family tonight.
Tony
Monday, November 6, 2006 9:20 PM CST
Michael's eye surgery went well. Both eyes are VERY red(bloody), but I think the pain is manageable. He will sleep with me tonight to be sure no rubbing his eyes. Critical since he has stitches in his eyes.
I know it's sounds wierd, but Sunday a blood vessel popped in my eye and I have a VERY red eye(bloody ugly). I think the fact that Dad's eye looked red soothed him.
Tony
Friday, November 3, 2006 9:12 PM CST
Michael has some minor eye surgery scheduled for Monday. This was originally scheduled for early 2005 before we discovered Michael's Cancer. Since he is doing well, they want to proceed. It's outpatient, and seems so minor compared to what he has been through. However, we'll continue to take prayers that Michael continues to be so strong with everything he faces.
Tony
Tuesday, October 31, 2006 9:32 PM CST
We had a great time tonight. I want to say it was my best Halloween ever, and I felt it was. However, I look back on my comments from a year ago and thought I would share those comments from a year ago.
-----Oct 31, 2005 - I had the best Halloween I've ever had! We started at our neighbors. They had this "Pumpkin Man" that Michael insisted on taking with us the rest of the night. Fortunately, the neighbors let us take it. Their daughters were dressed very appropriately for the occasion.
Then we went to a few other houses that were expecting us. All 3 children had a great time, but what a treat for MICHAEL. Tonight was their night. We took pictures and I will get them on the website ASAP.
Tony-----
Ditto that again as far as fun tonight.
Tony
Sunday, October 29, 2006 8:39 PM CST
I took Caroline to the Titans game today. The boys stayed with Mom. Caroline and I had a wonderful time today together. Yes, I paid too much for a few things!
William has a bad ear infection. He rarely complains. He went to the doctor. He is burning(fever) up as we speak. So I have to go. However, things are going well for us. Please pray for Abby and Barret.
Tony
Tuesday, October 17, 2006 7:20 PM CDT
NEW PICTURES ON THIS SITE. I can only place three on this website. So here are a few memorable photos since he has completed his treatments.
Not complete yet, but we are in the final stages of establising the "Michael Stanley Child Life Fund" at Vanderbilt. I do think we are far along enough to at least mention it. More news on how you can help coming soon. If you cannot wait to understand how important Child Life is to patients and to Michael, you can visit Vanderbilt Childrens Website at Vanderbiltchildrens.com and go to Family Resources, and then Child Life. It significanly impacted our lives during difficult times.
Tuesday, October 10, 2006 12:29 AM CDT
Michael's CT Scan was clear. YEA! He'll have another one in 3 months.
Monday, October 9, 2006 8:31 PM CDT
No news tonight on Michael's CT Scan, other than they did not have to put him to sleep for the scan(good).
Per MD, I will be off crutches by the end of the week, and I cannot wait to help Cindy more around the house. "She made me say that!".
Tony
Sunday, October 8, 2006 9:15 PM CDT
We had a great weekend in Atlanta together with all of my family. I'm one of five children. All five were there, along with my 80 year old Dad(he looked great and drove there from Myrtle Beach), and my Mom(She looked great, but I'll never reveal age). There were also seven grandchildren there. What a special weekend for Michael, ME, and the rest.
Michael has his CT Scan tomorrow. We expect the best news, but will always have to be prepared for other.
Please continue to pray for Abby and Barret and visit their websites below.
Tony
Tuesday, October 3, 2006 8:52 PM CDT
I was a little distracted last night because of my concerns for Barret and Abby. I told you Oct 7th for Michael's CT scan. It will actually be Monday, Oct 9th.
Michael wants you to check Barret and Abby's website tonight. Please leave them a nice message.
Tony
Monday, October 2, 2006 9:44 PM CDT
Michael is doing well. He has a periodic CT Scan scheduled for 10/07. Please pray for him, but more importantly Abby and Barret. Please visit their websites listed below. They need your prayers.
Tony
Wednesday, September 27, 2006 8:56 PM CDT
Cindy and I meet with Vanderbilt Children's in the morning. I'm really excited to see how we can help families in need when their child is sick. I know first hand the need is there.
The children in my house are doing great tonight.!
Tony
Sunday, September 24, 2006 8:51 PM CDT
Michael is much better. William has had bronchitis and some other things this week also. All are better tonight. Nine weeks and counting on crutches for me.
Cindy and I are meeting with Vanderbilt this week to see how we can help other people in Michael's honor. Stay tuned. I hope all of you folks that read this website will be a part of it.
Tony
Monday, September 18, 2006 9:40 PM CDT
Michael has a fever and is on antibiotics tonight. I know(hope) it’s just a normal infection(cold), but it hurts to see him feeling poorly after what he has been through. He is missing school.
Tony
Monday, September 11, 2006 7:30 PM CDT
I went to my doctor after 7 weeks and told him my plan for the crutches as mentioned in my last journal. He said, "It would not be a good idea to run them over with your car. You need them for at least another 4 weeks."
Although a little disappointed, I'll keep my crutches for now and my doctor better be glad he was on the 10th floor and not in the car garage I left.
On September 11, 2001 I easily remember where I was when our country was "ATTACKED". I also know where I immediately went once I heard the news. I headed home to be with my family. The reality is there was nothing I could do to protect them, but I had to be near them.
I have deep pain for the folks who lost loved ones on that day, and for the ones who continue to lose family to protect this great country we live in. I appreciate those serving to protect it. It's not perfect but if you have doubts of how fortunate you are, go experiment outside its borders. Isn't it great that you are free to leave, and free to return? "My Home Sweet Home".
Michael is doing great. We elected to keep him out of school today because of a cold and we did not want him to get too exhausted and make it worse. He seems fine and rested tonight.
Tony
Tuesday, September 5, 2006 6:39 PM CDT
For the first time since April 2005, ALL THREE children were back in school today. What a miracle! Michael did great! He woke up this morning at 6:00AM, well ahead of when I really wanted to get up. He went into the den while I was getting dressed. I could hear him all the way across the house chanting, "I'm going to school today...I'm going to school today" over and over again. Based on his teachers and the fact that he is already talking about tomorrow, he had a great day.
I've been on crutches for 6 weeks and I hope to be done with them in a week or two. My current plan is to run over them again and again with my car.
Tony
Saturday, August 26, 2006 10:19 PM CDT
So many days in the past 18 months, I've had no trouble telling you the difficult times we were going through. It's kind of odd that I have difficulty finding the time to share with you the great times we are having with Michael right now. We are so blessed right now. He's doing great.
I know you folks that have followed this website and been through our pain deserve to hear good news. Please just be assured we are enjoying every moment right now.
Michael’s smile will still steal your heart. I need to post some new pictures. I was reminded tonight that it is because of your prayers that Michael is still with us.
Tony!
Sunday, August 20, 2006 6:21 PM CDT
Michael is still doing great. He is playing with the other two children, and also getting into trouble with the other two children. The only thing we(me) can complain about right not is that he is an early riser(sp).
I've been on cruthches for 4 weeks and been unable to place weight on my leg. I have at least 3 more weeks to go with no weight on leg. Cindy is still here, yea.
I say once again to hang in with us on the website for a few more weeks. I have plans for us to develop a way to help other folks in Michael's honor and to share these plans with you, but I need to focus on learning to walk again after my surgery right now.
Be sure to check Abby's website, and Barett's website.
Tony
Thursday, August 10, 2006 6:35 PM CDT
Michael is still doing really well. It will not be long before all three are back in school.
Cindy has been driving me everywhere I need to go since I cannot drive, and I sense she is getting tired of me being the 4th child. I have only worked 1/2 days this week, but hope to be back to 90 to 100 percent by next week as far as work is concerned.
Tony
Monday, August 7, 2006 7:27 PM CDT
Michael is doing great and all three children a being very helpful in assisting Cindy and taking care of me while I am recovering from my surgery. It's been two weeks and I am now feeling somewhat better. It took some time and still a long recovery ahead. I cannot drive.
Back to Michael. Many of you may not have realized it because of his age. However, Michael was not "potty" trained, and we did not force it during his illness. He is now going to the potty. Also as far a sleeping at night, he is out of oure room and sleeping in a room with William. This is huge! He handled both of these challenges with ease.
Pray for Abby and the rest!
Tony
Sunday, July 30, 2006 7:32 PM CDT
Michael has had a good week.
My surgery was Monday, and I underestimated the pain expectations of the knee repair(OATS) and the Osteotomy(metal wedge placed in Tibia)
Gotta go.
Tony
Thursday, July 20, 2006 8:59 PM CDT
Michael's "port" is out. He did great during surgery. MANY friends/MDs/nurses from all over the hospital dropped by to see Michael.
We brought the "port" home in a cup. Michael's played with it OUTSIDE his body all day.
Tony
Wednesday, July 19, 2006 10:35 PM CDT
It's very easy to forget the difficult times when things are going so well. Sort of. Please pray for Abby, Barret, and the rest.
We will enjoy our times right now, and we will go to bed praying for others.
Please stay tuned a little longer.
Tony
Tuesday, July 18, 2006 7:29 PM CDT
Michael's port gets removed on Thursday. I will report afterwards. He is doing great otherwise.
Pray for Abby!
Tony
Sunday, July 16, 2006 8:02 AM CDT
Cindy and I head home today at 12:15. We can't wait to see Michael, William, and Caroline.
The babysitter locked everyone out of the house yesterday, and had to call a locksmith to get back in. If I had not done it before myself, I'd be naming names. Ha Ha.
Tony
Friday, July 14, 2006 1:09 PM CDT
Cindy and I are in Ft. Lauderdale. We are enjoying the relaxation. In fact, I just had a massage, facial, and a pedicure. I may have to change the spelling of my name to Toni from Tony.
Michael and the other kids are doing great we hear. We sure miss them.
TonY
Monday, July 10, 2006 7:19 PM CDT
I’ll have major anxiety attacks before every test going forward for Michael, but today his CT Scan came back ALL CLEAR.
Cindy and I are going to Florida alone on Thursday!
Michael’s gets his “port” taken out on the 20th of July (Almost exactly one year after his surgery July 21st, 2005)
Since we are in the clear for now, I’m proceeding with major knee surgery on July 24th. I will be on crutches for 8 weeks and unable to drive.
How do I keep from going crazy?
“I raise my hands, bow my head
I’m finding more and more truth in
The words written in red
They tell me that there’s more to
Life than just what I can see
Oh, I believe”
(Chorus in a song by Ronnie Dunn.)
Tony
Tuesday, July 4, 2006 7:54 AM CDT
Happy July 4th. Special thanks to those serving in our armed forces.
Michael is doing really well.
CT Scan is scheduled for July 10th.
If all goes well, Cindy and I are going to get away together and go to Ft. Lauderdale alone July 13th.
They will remove the "port" in Michael's chest on July 20th.
Have a great day.
Tony
Wednesday, June 28, 2006 9:29 PM CDT
Michael went to his normal pediatrician today and got his 5 year old shots so he would be up to date should he be able to go to school this fall.
It was good to have a normal MD visit.
Please check Abby, Barret, and other children's websites we have been following.
Tony
Monday, June 26, 2006 8:50 PM CDT
It's my birthday today. I'm 41 AND MICHAEL IS HERE! YEA! I AM HERE! YEA!
My wife has cooked me dinner including lima beans(Butter Beans if you are from South Carolina), Squash, Corn, Cucumber salad, and Fried Chicken(purchased, not cooked). We are eating late, but that is OK.
Michael is feeling great. He has a little cold and/or allergy. Otherwise, stay with us through July. There are more updates to come.
Tony
Thursday, June 22, 2006 8:37 PM CDT
Michael wants you to pray for Abby tonight. She has surgery in New York tomorrow. Please visit her website below and read the last few journal entries in her website!!!
If God brings you to it, He will bring you through it.
Happy moments, praise God.
Difficult moments, seek God.
Quiet moments, worship God.
Painful moments, trust God.
Every moment, thank God.
Tony
Thursday, June 22, 2006 3:41 AM CDT
Michael continues to do very well! Not having to fight Chemo and Radiation gives him lots of energy.
Tony
Monday, June 19, 2006 6:15 PM CDT
Michael is doing well. We had a great Father's Day weekend. He will be getting his "port" surgically removed the next couple of weeks. This is the thing they placed in his chest last year so he could handle the Chemo medicine entering into his system.
All of the sores on his stomach from Radiation have healed. We had a couple of bad weeks with the sores and his Urostomy(spelling?).
Tony
Wednesday, June 14, 2006 7:15 PM CDT
Michael has a CT Scan scheduled for July 10th. This will provide our baseline for future comparisons.
Tuesday, June 13, 2006 8:40 PM CDT
NO MATTER THE OUTCOME, I AM BLESSED, PLEASE PRAY FOR THESE FOLKS TONIGHT AND THIS WEEK!
http://www.caringbridge.org/visit/abbycummings http://www.caringbridge.org/visit/jackwoods
http://www.caringbridge.org/md/ccs
http://www.caringbridge.org/visit/barretcarter
TONY
Sunday, June 11, 2006 9:40 PM CDT
Michael's sores on his tummy are doing much better.
We went fishing again this weekend at a friend's lakehouse here in Nashville. We caught some fish, and had a relaxing time.
Seeing the three children playing together all weekend was great, and moments I will never forget.
Stay in touch this week.
Tony
Wednesday, June 7, 2006 9:22 PM CDT
Other than some serious skin and hygiene issues around Michael’s tummy area, we are OK. I think we slept until 6:40 this morning. Yea!!
For us, please stay tuned here on this website for a few more weeks.
Tony
Monday, June 5, 2006 8:57 PM CDT
Just a quick note to say we did not find out much today. No news is good news I guess.
The Head Cancer MD did not even know Michael had completed his Radiation. A little strange you think?
Michael has radiation burns on his stomach and they make him very uncomfortable, but otherwise, he is REALLY doing great!!
Based on what I could decipher from the lack of communication today, they will do a CT scan within the next couple of weeks to provide a base comparison for scans in the future.
Thanks,
Tony
Friday, June 2, 2006 3:57 PM CDT
DONE!!!!!!
We took all of the children out to eat last night to celebrate. We then came home and ate cake. Michael thought is was for a birthday. Anyway, Cindy and I are going out tonight alone.
I'll repeat what some of you have heard.
As you know, Michael has endured 14+ hour surgery, 48 weeks of chemotherapy, and completed 6 weeks of brutal radiation. Cindy and I are enormously tired and I know it shows. At the same time we are filled with energy because of this monumental event in our lives. Michael's spirit is stronger than ever and his prognosis is very good, given his situation.
This is a happy occasion for my family.
Cindy and I meet with the MDs at 9:30AM Monday. I'll update you on the news afterwards.
Have a great weekend. I will.
Tony
Tuesday, May 30, 2006 7:50 PM CDT
TWO MORE RADIATION TREATMENTS!!
I can't explain the feeling or the anxiety I am experiencing. It's not the end of many MD visits for Michael, but what a milestone for us.
Tony
Monday, May 29, 2006 9:21 PM CDT
To All,
We all consider it a day off from work, but we need to be proud of all of those who have served our flag, in honor or in memory (Kirk, hurry up and get home!).
Michael and family had a great weekend. I repeat this, but we are blessed and I wake up each day with Michael and his brother and sister and mom smiling at me.
The fun news is Michael’s hair is growing. He has some fuzz. We had a great weekend.
Michael is done with radiation on Thursday. We meet for consultation with MDs next Monday.
Please follow Abby and Barret, and others we follow.
Stay tuned.
THANKS!
Tony
Wednesday, May 24, 2006 9:04 PM CDT
A guy with silver hair and a little age actually had some luck tonight. It's about time. He won American Idol.
Michael is doing great.
For those that are standing by because I said this website is soon to close, stay tuned. I've convinced Cindy to place her notes on this website soon.
Tony
Tuesday, May 23, 2006 7:22 PM CDT
We go back and forth on what Cindy is hearing, but it appears Michael will be done June 1, instead of May 31. I can handle the difference I guess.
I can only place three "links" on the bottom of the website. So, I'm placing one here I would like you to visit.
www.caringbridge.org/visit/barretcarter
Pray for his family as they go through radiation. I have not met his Mom, but Cindy says she is very strong.
Tony
Monday, May 22, 2006 9:17 PM CDT
I took the time away from work today to play in a golf tournament by "Amanda Young Memorial Fund", and also the "Amanda Young Sunday School Class". Proceeds go to charity in memory of Amanda. Last year, they contributed over $50,000.
I've met her father Brent and other family members, and I am in awe of the effort they continue to produce in helping others in need.
We had fun today. I spoke briefly about Michael, etc. I got a little choked up, but otherwise all went well.
One of the many things provided by the foundation is the "Champ" dolls given to all children going through Chemo at Vanderbilt. In fact, the Champ Mascot was there today.
PS. I won the "Long Drive" Contest. :)
Tony
Friday, May 19, 2006 8:31 PM CDT
To all devoted to reading this website routinely:
So that we are not all in “SHOCK” when it happens, I must forewarn you that I feel the need to stop updating this website soon after Michael’s treatments end May 31st 2006(exact date unknown). This pains me more than you. The comments and prayers have literally gotten me through the past 13 months. It’s been sort of a personal open diary for me. However, I must move on and allow others to use Caringbridge.org.
We will be studying how to begin charitable giving in Michael’s honor. If you have any ideas on how to make this happen or if you just want to be sure we stay in touch with you concerning Michael, then send me an e-mail or post on this website the next few weeks.
“Whatever you ask for in prayer, believe that you have received it, and it will be yours.” Mark 11:24
Whatever happens, this is my continued favorite verse. It worked!!
So, stay tuned the next couple of weeks.
Tony
Thursday, May 18, 2006 7:35 PM CDT
Michael is doing OK. He has a small infection or something for which they have given him some medicine. Otherwise, we are cautiously awaiting May 31.
Tony
Tuesday, May 16, 2006 9:04 PM CDT
We've confirmed Michael's last treatment for now is May 31st. He is "on fire" he is so happy right now. It's almost unexplainable. I know we will see bad times, but he is so happy. From the beginning, his smile has been unexplainable, except through prayer.
Pray for Abby.
Tony
Monday, May 15, 2006 6:47 PM CDT
I think we are around 19 of 31 treatments. Based on that estimate, if he goes for treatment on Memorial Day, it looks like we will be finished the 31st of May. It will take all summer for his counts to recover based on what I know and have heard from others. I'm sure there are many things I do not know, possible complications, etc. However, I do know August will be "MY FAMILY" month for me. By that I mean we will have some FUN time together, not necessarily MORE time. I'm not sure how to improve on MORE time.
Tony
Friday, May 12, 2006 7:50 PM CDT
Michael's doing well.
Cindy went to get her mom and bring her to Nashville for Mother's Day.
Have a great weekend.
Tony
Thursday, May 11, 2006 8:23 PM CDT
Michael is doing great. We have struggles(sp), but we are blessed! He is HAPPY every morning!
Pray for Abby! See her website below.
Tony
Tuesday, May 9, 2006 7:48 PM CDT
Michael did OK with his blood transfusion today. Mom and Michael did not get home until 3:00PM plus today. So it was a long day for them, and a little shuffle for watching the other two children.
For the remainder of treatment, they have increased the area of radiation which is scary, but not as much since they were successful with his stem cell removal last week. So, we expect more visible side effects going forward. After all, radiation is not normal.
Tony
Monday, May 8, 2006 7:36 PM CDT
Michael had a good weekend with family. He does need to get blood tomorrow, but otherwise things are going smoothly. 14 of 31 treatments.
Tony
Friday, May 5, 2006 9:58 PM CDT
Nana, Papa, Aunt Lori, and Cousin Eric(spelling) came to see Michael(and all) this weekend from Myrtle(sp) Beach. We are having a great time. My Dad turned 80 on Wednesday of this past week. What an amazing thing!! Michael struggled to get to 5, and I am blessed to make it to 40, soon to be 41. Can we imagine 80?
Michael’s doing great. Pray for Abby this weekend. She is in NYC this weekend. See her link.
Tony
Thursday, May 4, 2006 6:36 PM CDT
It has been confirmed. They got 8 million good Stem Cells for Michael's later use if needed. Who can count that high? Ha Ha. They only needed and were only expecting 2M. This is a blessing today. It significantly reduces the risk of some of the difficulties Michael could have with Radiation.
He is a little sore today, but he is doesn't complain. He's just walking a little funny, but very happy.
Tony
Wednesday, May 3, 2006 8:06 PM CDT
Michael is HOME! I made it to the hospital about 4:00PM today. His Stem Cell removal went very well. They said he may be really sore and also have some trouble walking until the medicine wore off. Well he's walking around all over the house tonight.
Preliminary test show that they removed around 9 million cells from Michael. Now if they can get 2 million from the 9 that qualify as Stem Cell, they will be very pleased and have more than enough. What I just said made no sense to me either. Just know that things went well, and we will no more tomorrow.
It sure is nice to be home. Thanks to all the prayers for Michael today. Many new friends were praying with me at AGE in St Louis.
Tony
Friday, April 28, 2006 7:25 PM CDT
9 out of 31 radiation treatments complete (i.e. - plus or minus 29 percent complete for radiation)!! Yea! Last night was tiring for me at the Emergency Room with Michael. He had no fever this morning however. Another…Yea!!!
I can't wait until Michael is well enough for us to focus on how we can help other people. More specifically, how we can help Vanderbilt help other people.
Michael misses the nurses on Vanderbilt 6B, for those of you who are watching. However, he does not miss it(you) enough to spend the night there yet, nor do I. :)..:)
If all goes well with Michael, I will be out of town for work from Sunday morning until Wednesday night. Michael’s Stem Cell Removal is Wednesday. I will not be here. So, I will update this website again the night of May 3rd if all goes well.
Pray for Michael.
P.S. We appreciate people writing journal entries on the website. Keep in mind that one day in Michael's future, he will read this journal and it will add strength and "purpose" for him.
Tony
Thursday, April 27, 2006 11:17 PM CDT
At 7:45 tonight, Michael's fever was 102.5. We were advised to take him to the emergency room for blood work. Although late, we are fortunately sleeping at home tonight. He will continue treatment in the morning.
Tony
Thursday, April 27, 2006 7:56 AM CDT
Radiation is still going fine. Michael needed a blood tranfusion yesterday because of his blood counts.
Tony
Tuesday, April 25, 2006 5:49 PM CDT
I went with Cindy to take Michael for radiation this morning. The folks were very nice and entertaining to Michael. We discussed Michael's treatments with them, and then went to the clinic to discuss the stem cell removal with the other MDs. The procedure is scheduled for May 3. The bad news is I am scheduled to be out of town. The good news is that Michael should not have to stay over night and I will be home that night. The pain depends on the individual, but I expect Michael to handle it well based on what he has been through to date.
Michael has completed 6 of 31 radiation treatments.
Tony
Monday, April 24, 2006 6:36 PM CDT
Michael and I took Grandmother Perritt home to Alabama this weekend after an Easter stay. Michael had a great time. Michael is doing well and we meet with his MDs tomorrow concerning his Stem Cell removal.
We/I am getting many nice notes both US Mail and e-mail from all who are concerned. It was actually on Monday a year ago, but tomorrow/Tuesday the 25th of 2005, we found out Michael had cancer. We celebrate birthdays because we made it another year...so this date is a celebration for Michael.
One e-mail pointed out to us that Michael has been on TV recently. It has been seen in Denver and Nashville. If your computer is up-to-date enough, you can view it by going to
http://www.transformationnation.com/TV/tvshow.aspx
and watching "Katie's Helping Hand". The person that spotted it saw Michael's smile and knew it had to be him. SHe was right.
I'll update you after our visit with the MDs tomorrow.
Tony
Friday, April 21, 2006 7:44 PM CDT
I'm beginning to think I need some of whatever they are placing in Michael's IV every morning. Just kidding, but he has been happier and had more energy this week than anytime in the past year.
We look forward to the weekend. No radiation again until Monday. Cindy and I meet with the MDs Tuesday concerning Stem Cell removal.
Tony
Thursday, April 20, 2006 8:45 PM CDT
Just a note to say things are going well for Michael so far. He was back home by 9:05 this morning after radiation. Talking about having a FULL day before 9:00AM......
Next week will be more interesting/challenging. Stem Cells will hopefully be removed. More to come there.
Tony
Wednesday, April 19, 2006 7:06 PM CDT
Michael made it thorough day 2 of radiation. Michael, Cindy and I went to lunch together today. He had lots of energy and ate well.
I think that extra mandatory nap he is getting during radiation is really giving him a lot of energy the last two days.
Thanks for the prayers...for all of us...
Tony
Tuesday, April 18, 2006 7:36 PM CDT
Michael is at home, and he had his first Radiation Treatment this morning. He handled being put to sleep for the treatment very well. We are moving forward. Yea....
Tony
Monday, April 17, 2006 7:36 PM CDT
Well, Michael's radiation has been delayed at least a day. He got sick on the way to the hospital this early morning. They were concerned it might be from his injuries from his fall yesterday(see previous journal entries). So, they wanted to do a CT scan to be sure he did not have any head injuries. The good news is he did not.
Mom getting up this morning and taking a shower before me really help throw things even more off any kind of normal schedule we may have had…...
I feel really badly(bad?) Michael hurt himself because I insisted he be a good boy and take his plate to the kitchen to be cleaned up once he finished his lunch (stringy noodles). His clumsiness made him fall as he was taking his plate to the kitchen.
It’s not the start I had envisioned for radiation, but he is in the hospital for precautions tonight and we hope to avoid a “false start” tomorrow.
Tony
Sunday, April 16, 2006 7:43 PM CDT
We had a great weekend, mostly spent outside. Michael did have one minor accident on our driveway. A few minor scratches on his knees, hands and forehead. The children played with our neighbors and had a great time. We also finally celebrated William's birthday.
Radiation starts in the morning. Six weeks of "Radiation Camp" here we come.
Tony
Thursday, April 13, 2006 8:39 PM CDT
Someone read my journal from last night and reminded me to keep in mind something I have repeated often on this website. Chin Up!!
So we are going to have a great Easter weekend, and go into Monday strong. I'm actually going to play golf tomorrow. Something that's happened once in the past 12 months.
Michael's feeling well. Have a great weekend.
Tony
Wednesday, April 12, 2006 8:33 PM CDT
I'm so thankful we've made it this far in the battle. Chemo is over.
Now, we've learned that Michael starts Radiation this Monday. It will last six weeks. As mentioned before, he will have to be at the hospital every morning at 7:00AM, and he will be put to sleep for the procedure so that he does not move.
As we face this challenge, I can't express to you how scared I am and how it has dominated my thoughts. It’s on my mind every minute of every day and I know people feel like they are sometimes talking to a wall when speaking to me. This is deeper than just worrying about your child falling off a swing and breaking their arm, or not getting along with people at school, or not being competitive academically or athletically, or all the other normal worries. Hug your children each day and tell them you love them. Show them and teach them how to smile.
Please continue to pray for Michael and do not be shy about telling other people to do the same.
Tony
Tuesday, April 11, 2006 7:16 PM CDT
Still at home...Yea....More to come on the future treatments for Michael. I just really don't have anything new to report tonight other than what a joy it is to see all three children watching Charlie Brown Easter Story together..
Tony
Monday, April 10, 2006 9:01 PM CDT
We are still at home. Michael and I have a little more energy today. After three nights together in the hospital, I was getting on his nerves.
He met a new friend named Faith(I believe). She was a very sweet little girl on Michael's floor. They danced together from far apart because of their counts, etc...
They will check his counts here at home in the morning. I'll keep you posted.
Tony
Sunday, April 9, 2006 7:44 PM CDT
We are home!
Tony
Saturday, April 8, 2006 3:31 PM CDT
I don't think we've found the source for Michael's fever yet. It was over 103 this morning around 7:00AM. They gave him some medicine, I jumped in the bed with him and he kept me warm. We stayed there until 10:00AM. About that time, he felt better. Mom came and relieved me about 11:30AM.
I have attempted to nap...Caroline has gone to a birthday party and I am spending some time with William. He turned 4 today and we are not even celebrating his birthday. In fact, we have not even told him he is 4 today. We will make up for it later. As I take a break and write this e-mail, William comes over to me and say's "I miss Michael and I wish he could come home and play."
I'll stay with Michael for night number 3 tonight.
Tony
Friday, April 7, 2006 8:42 PM CDT
Michael is still in the hospital waiting for his counts to go up, and his fever to stay down. Cindy and I were scheduled to go to a Black Tie event tonight that was focused on the Junior League of Nashville, which donates SO MUCH to charity, including Vanderbilt. Fortunately, Cindy was still able to go with a friend.
My tuxedo rental went to waste. It's my fault because I OWN a tuxedo....It just does not fit ME...
Bad weather in Tennessee tonight. Lots of nurses working overtime here at Vanderbilt.
By the way, we were treated very nicely on 6A at Vanderbilt, but they knew how much Michael loved the nurses on 6B, and maybe they loved and knew him... We got a new room on 6B. All the nurses have to love their job....
Tony
Thursday, April 6, 2006 11:36 PM CDT
Well, I updated the site earlier this evening saying Michael will be getting blood and platelets on Friday. Since that update, his fever went way up and we have been admitted after going through the process of the ER. We just got in our room and we are on 6A, instead of 6B because of space. However, there are still many familiar faces.
Most likely, they will go ahead with the transfusion, etc tonight since he is here now. He is also on antibiotics.
Good night!
Tony
Thursday, April 6, 2006 5:43 PM CDT
I was a couple of days off. Michael will be getting blood and platelets on Friday. So, maybe he'll have a nice weekend watching the Master's Golf tournament with Dad.
Tony
Wednesday, April 5, 2006 7:51 PM CDT
Michael did not need blood today. He does have a minor cold, and is having trouble breathing at night. These are minor issues. I just hope he sleeps better tonight, since it directly impacts Cindy and me.
Tony
Tuesday, April 4, 2006 8:30 PM CDT
Sometimes I hesitate trying to keep all of you in touch with what is going on because even I have trouble keeping up with it. However, I appreciate your efforts in keeping informed about Michael, and I know you read this website.
If I had to guess, Michael will get blood tomorrow or the next day. This is a normal event in our lives, but not really so normal. He is sleeping restlessly right now, and that is my clue.
On April 25th 2005, I was called to come home from AG Edwards Corporate Office in St. Louis because of Michael and his diagnosis of Cancer and....that anniversary is soon approaching…The worst day of my life...However, another anniversary to celebrate…Michael is still here…
“Whatever you ask for in prayer, believe that you have received it, and it will be yours.” Mark 11:24
Tony
Monday, April 3, 2006 9:41 PM CDT
Michael just got his shot. He's doing well.
More to come on this, but they are most likely going to extract some of Michael's Stem Cells before his radiation. We have a consultation on this, but I'm not sure when yet.
This is precautionary in case there are complications down the road. Although retrieving his stem cells to save is not fun, it provides a cushion for down the road troubles.
As for Cindy and I/me, it looks like our marriage will make it 13 years and 1 day. :)
Tony
Sunday, April 2, 2006 6:38 PM CDT
Michael's had a nice weekend. He is getting shots each day for his counts, but otherwise doing well.
On Monday, Cindy and I will have been married for 13 years.
Tony
Wednesday, March 29, 2006 8:19 PM CST
Michael has a huge "Congrats" sign on his door at the hospital tonight. It's his last night. He gets his Chemo at 4:00AM in the morning.
I saw Abby when I went down to Vandy on the way home tonight. She looked great. She has a great optimistic smile as always. She and Michael played in his room for a while.
Below is the prayer I placed on this website back on July 19th, 2005. We can add another verse to the blessings/miracles as we venture through our remaining challenges.
It will always be my special prayer.
Tony
--------
Dear Lord,
When there were questions concerning his breathing, you taught him to breathe.
When there were questions concerning his eating, you taught him to eat.
When there were questions concerning his vision, you taught him to see.
When there were questions concerning his hearing, you taught him to hear.
When there were questions concerning his walking, you taught him to walk.
When there were questions concerning his speech, you taught him to speak.
Michael has been challenged many times and won, and we’ve been blessed by his successes, strength and your miracles through him.
We realize that there will be difficult and painful times ahead for Michael and our family. We ask that all other situations in our life go smoothly during this time, and that you provide Michael and our family courage, endurance and health. More importantly we pray for the opportunity to continue seeing miracles through Michael’s life, if it is your will and purpose.
Watch over Michael, the Doctors and my family during his surgery this week.
Amen.
______
Tuesday, March 28, 2006 8:39 PM CST
Michael and Cindy are doing well at the hospital. I saw them for a few minutes tonight. If I heard correctly from Cindy, radiation will start 2 weeks from yesterday. In other words, a break next week and then radiation. He has lots of energy. I was trying to push his IV pole behind him this afternoon and he really was going at a fast pace.
One of his very first teachers at Westminster, Alice, came to see him this afternoon. She brought lots of goodies. Alice will always be special to Michael and family.
I also think I heard Cindy say he may get to come home Thursday instead of Friday. I could have dreamed it.
Tony
Monday, March 27, 2006 7:36 PM CST
Michael is in the hospital tonight and will be there until Friday. However, this is his last Chemo treatment as I had mentioned before. We'll see them again for other things going forward, but I'm going to miss the “scheduled” accommodations every third week of our lives the last 11 months on 6B Vanderbilt. OK, not really.
I’ll just miss the wonderful people that have treated Michael like he was an angel. I knew he was, but I think they might just think he is also. They have been very tolerant of his many noisy toys, and his sometimes very demanding personality. We’ve had many ups and downs, and I know many more to come. However this is a huge milestone.
So let’s enjoy it!!!!
Now at the same time, please read Addy's website tonight and hear her mother's plea for continued prayer. Abby is a special little girl with lots of people following her purpose.
Tony
Saturday, March 25, 2006 10:11 PM CST
Michael's having a great weekend. Aunt Sharon came to see us from Atlanta. We went to eat at a restaurant called the Aquarium tonight. We waited 1.5 hours to get in, but Michael loved it. Once we were IN, I settled down. I was a little un-nerved by the wait....
They had many big fish in the restaurant.
Tony
Wednesday, March 22, 2006 8:00 PM CST
Nothing real eventful happened today with Michael. In this business, that's a good thing. We hope for a nice weekend before his last CHEMO treatment next week.
Tony
Tuesday, March 21, 2006 7:09 PM CST
Cindy is back!!! I'm still talking like a five year old, but Cindy is still able to communicate with me at this point. This is a JOKE!!!!
It's nice to have all the family at home!
Tony
Monday, March 20, 2006 7:24 PM CST
Michael is doing well. Cindy is still in Florence. She's been there since Thursday! I guess she thinks it's spring break for her. I'm going a little stir crazy. I did take the Michael and Caroline out to eat three times this weekend. We had a nice time. Some adult conversation at home would be nice however....Cindy is expected back tomorrow.
Tony
Friday, March 17, 2006 8:57 PM CST
William and Mom went to see Grandmama Perritt yesterday. They will come home tomorrow. It's been nice because Caroline and Michael have done some re-bonding without William here. If they both feel well, I'm going to take them out to lunch tomorrow.
Have a great weekend with your family.
Tony
Thursday, March 16, 2006 7:37 PM CST
Well, we've had an interesting 48 hours. Michael went in Wednesday morning to get a CT scan so they could "mark" him for radiation treatment. They had difficulty waking him up. The CT scan showed a large spot on his lungs. Yikes! Our hearts dropped! This is not a place that is uncommon for the type of cancer he has had. Anyway, they first concluded that it might be pneumonia. This would not be a great diagnosis, but better than “you know what”. Anyway, he was admitted to the hospital last night. I stayed with him. After a few more X-rays last night and EARLY!! this morning, it was concluded that it really was just a “deflated (minor collapsed) lung” during CT Scan caused by weakness. OK!!!, well whatever it is/was is better than the alternative. We are home tonight.
The water line broke outside our yard this morning. Water everywhere!!! We just got it fixed.
Other folks in our family are having health problems, but I'm not going into that. Please pray for Michael and all family.
Tony
Tuesday, March 14, 2006 6:15 PM CST
Michael is feeling well. He is keeping me busy going back and forth to the kitchen to get him more food. Unfortunately, I grab a bite or two for me each time also.
He has started asking when he is going back to school, and he seems anxious to do so. We told him next year, and now he asks every day. We have him registered for the fall. There are many obstacles to overcome, but I pray it happens.
I know you have, but keep telling other people about the miracles of Michael.
Tony
Monday, March 13, 2006 7:14 PM CST
Michael had a good weekend and was able to go outside because it was so warm. He is still getting shots each night.
Michael goes Wednesday to be "marked" for radiation. It's hard to believe the time is so near for that.....
Caroline and William went to the dentist today to have their teeth cleaned. They apparently did very well.
Keep praying for Michael and our family.....
Tony
Saturday, March 11, 2006 12:38 AM CST
Michael is feeling much better the last few days. They placed him on an antibiotic. He had been coughing pretty hard, and I think the medicine is helping. In other words, it appears he did have some tytpe of infection and needed help fighting it.
I took William to a birthday party this morning, then took him for a haircut, and then took him to lunch. We had a great time together. We are both wearing shorts because it is so warm here today.
Have a great weekend!!
Tony
Thursday, March 9, 2006 9:37 PM CST
Michael is doing well at home. He is eating and resting well. Thanks for all of the support. Can you tell I'm tired? :)
Tony
Tuesday, March 7, 2006 7:05 PM CST
What a day! Anyway, Cindy and I met with Radiation Oncology. I guess our skin has grown too thick over the last year because they did not break us. I do not underestimate the realistic possibilities of long and short term effects of radiation. The short term effects seemed manageable to me and the long term effects, well let’s worry about them 20-30 years from now??? I never want problems, but wow, problems 20-30 years from now? I pray I'm still here to help. It's more complicated than this, but we were not frazzled today.
Dr. Hallahan was who we met with today. It was a very good first impression of him. We had a few issues finding his office, and really could not find anyone that pointed us in the right direction, BUT he was impressive.
Michael is getting Chemo tonight and should be home tomorrow.
I'll explain the radiation process in more detail once we get closer to that time.
Tony
Monday, March 6, 2006 7:57 PM CST
Michael is in the hospital after being in the clinic all day long. The nurses in the clinic provided Michael a BIG bag of belated birthday gifts. I think they all made noise. So, as a favor I'm going to donate many MORE toys back to the clinic at some point for them to listen to with the other children. Ha! Really, we were very appreciative and Michael was too.
Michael is getting blood tonight, and then Chemo we hope. It was decided no CT Scan today since he was getting Chemo. Cindy and I meet with the radiation doctors in the morning. Cindy was warned that not many people come out of that meeting with dry eyes. Cindy was quick to remind them of the difficulty of the meeting we had in July when the decision was made to operate on Michael. It was basically the only option, with extreme risks and unknown prognosis. Look how that step turned out. So, we go into this with positive attitudes. I can't count how many times I've seen Michael smile since the surgery in July. We have a few more weeks of Chemo, and then the radiation. When that's done, "WE ARE GOING TO DISNEY WORLD!!!!!"
PS. We just found out he will not get Chemo tonight. He had some fever tonight and they were afraid to start Chemo. So, the hope is they will start tomorrow. The unpopular choice is to send him home. Minor issue, but this may lengthen his stay this week.
Tony
Saturday, March 4, 2006 4:39 PM CST
Michael has had a nice Saturday. The last few days he did not feel well ,or sleep well. However, today he has felt better and we are ready for Chemo Monday. Cindy and I have an appointment Tuesday to learn more about the radiation process we face soon.
Tony
Wednesday, March 1, 2006 7:04 PM CST
I hesitate to share some of Michael’s good news tonight for two reasons. I’ll share them in a minute.
It appears Michael’s last Chemo treatments will be the week of March 27th. I’ve been counting Chemo weeks since his surgery in July, but it appears his MDs have been counting the weeks since he was diagnosed and really started Chemo. In other words, Michael has been getting Chemo since the last week in April 2005. They counted the weeks from the start. So this is a milestone. We are far from done. Once Chemo is done, he will get 6 weeks of intensive radiation everyday. From what they are saying, it is far more brutal. I’m ready!
Now for the two reasons I hesitated sharing this tonight. First, I usually have a communication gap between Cindy, me and the MDs. So, I’m afraid to get my hopes up that we have come this far before I speak personally to an MD. SECOND, Abby did not get the greatest news today. Please read the journal on her website. I know she and her family remain positive. Pray for her family, and send her a message to let her know you are praying for her. Michael is a testament to prayer!
Tony
Tuesday, February 28, 2006 7:54 PM CST
My company’s fiscal year ended today. I managed to go out and celebrate with my co-workers. I enjoyed it. Everyone in my office has been so considerate of what my family has gone through the last twelve months. I cannot express how much I appreciate it.
Speaking of the last twelve months, we’ve lost Gilligan and Barney Fife. These were fictional characters, but were so simple and made me laugh so many times in my life. They were my favorite characters. I forgot everything while watching their shows. Laughter has gotten me through these times, many in the past, and in the future.
Michael is doing well. We gave him his OWN birhtday party last night since he was at home.
Tony
Monday, February 27, 2006 5:53 PM CST
Michael is home tonight. His platelets were too low for Chemo. The MDs feel like they are coming up on their own. So, no transfusion and we go back next Monday. We were a little disappointed, but he goes in for a CT next Monday anyway.
Tony
Saturday, February 25, 2006 7:29 PM CST
Michael and I went to lunch together today alone. We had a great time. It meant so much to me. The restaurant we went to has a picture of Michael(and William and Caroline) on the wall!!!
Before that, I had to unclog a minor plumbing problem in our front yard. Yuk! I'm not sure what the problem was, but I did not count the "singing fish" that might be missing. :)
After that, I had to fix a broken pipe that froze during our bad weather last week. I had paid a plumber $$ to tell me there was no leak last Monday. There WAS a leak. Surprise, I was right.
We had visitors today. Jack and Julia(William's Godparents) and David and Kathy(Great friends) came over. They all loved the company and all are very tired tonight.
Have a blessed Sunday and pray for Michael's Chemo this Monday and the CT Scan next Monday. We pray for no new issues.
PS. Visit Abby. Her website is listed below.
Tony
Friday, February 24, 2006 11:03 PM CST
Michael's doing great tonight. So, the attention needs to go to my Mom first. Her birthday was the 23rd of February. Happy Birthday Mom.
I've expressed before, but my parents are the best.
As I sit here, Michael is yelling for me to come to bed…He says…”are you coming to bed?...I reply to him …”in a minute..”…he says how about a “skinny minute?”….So, I’ve got to go. He needs a “Soft” kiss.
Tony
Friday, February 24, 2006 7:47 AM CST
Michael is sleeping well at night, and we hope for a nice weekend before Michael is admitted on Monday for Chemo. It should only be a one night stay.
Tony
Wednesday, February 22, 2006 9:00 PM CST
So now that American Idol is over,
Michael and Caroline had a very nice birthday. I had a dinner meeting canceled tonight that I had set a few days ago(WHY DID I SET IT FOR TONIGHT?). So, I was saved from a cold shoulder upon my return home.
William adores his older brother and sister. It really is like having triplets.
Tony
Tuesday, February 21, 2006 6:59 PM CST
I’m back!!,,,,and I’m pretty sure Jennifer Frith, our babysitter, is glad we are back. Cindy and I took a quick trip to Las Vegas. The trip was delayed by about 12 hours on Friday. It was not because of Michael, but actually William. He had a pretty bad stomach virus, and did not start feeling better until about 4:00PM Friday. Cindy was not going to leave him, and I GUESS it was best for me not to leave for Las Vegas without Cindy. :)
We left at 9:00PM Friday night and acted like 20 year olds for the rest of the trip. So, I’m not sure we came back with energy and rest as I stated we would in my last journal entry. Anyway, we saw Elton John in concert. Wow, is all I can say about the performance. It was much better than I suspected. I guess you do not have to be a big fan of the messenger to enjoy the message. All of his songs were great. However, his last song (“Your Song”) really hit home. Both of us were thinking of Michael, especially when Elton sang the phrase “How wonderful life is while you’re in the world”.
Michael has a cold, but is doing well.
Tony
Thursday, February 16, 2006 7:25 PM CST
Michael has gained some strength from his blood transfusion.
SOOOO, Cindy and I are getting away for the weekend. I feel like I have not seen Cindy since December of 2004. I'm not really sure I've really looked in the mirror at myself either. I hate to leave the children, but wife comes first and I feel we need to get away and re-group so we can make it through the rest of Michael's treatments, etc. Some may not agree, but those who have been here probably will.
The children will be taken care of by some very qualified(but nervous) friends, and we have lots of backups lined up.
If all goes well, I will not update this website again until Monday night and with much energy and rest.
PS. Check out the new pictures if you have not already.
Tony
Wednesday, February 15, 2006 8:23 PM CST
Michael got a blood tranfusion today. He had some minor reactions to the blood, but nothing that wasn't managed. We've had so many, we forget what a major process this can be. After all, you are placing someone's blood that does not belong to you in your body.
I had a meeting in Louisville, KY today. It went well, and of course I thought about Abby and all of the KY support Michael and Abby receive as I drove through Bowling Green. I almost stopped at the Corvette Museum, but was short on time.
Michael is tired tonight, but I expect the new blood will provide needed energy.
Tony
Tuesday, February 14, 2006 6:37 PM CST
Michael's sleeping a lot by the time I get home each day right now. I did just bath him in the tub for Valentines. Mom might be next! Ha. Ha. Sorry, I had to say that.
Yes, Michael and Caroline turn 5 next Wednesday(22nd). It's hard to believe.
Michael gets blood tomorrow. We'll update you tomorrow night.
Tony
Monday, February 13, 2006 7:34 PM CST
Looks like Michael will need blood by Wednesday. He did have a good day. We have a new fish. Well, actually it's a singing catfish. He heard it over the phone from some friends(Godparents) in Birmingham Friday night. They sent it to him. We've been eagerly awaiting its arrival since Friday night:). Michael did not understand mail delivery timeframe, and he nearly came out of his skin when the mailman delivered it today.
The children also opened a gift received at the same time from Nana and Papa today. It was a pair of singing dogs. They all LOVED it. I'm listening the the catfish sing with the twin dogs as I write this e-mail.
So much for hearing what Bill O'Reilly is actually saying on Fox.
Sunday, February 12, 2006 5:43 PM CST
Michael's had a good weekend. I've posted some NEW PICTURES!
Friday, February 10, 2006 7:20 PM CST
As I traveled home this Friday, I was in a pretty good mood until I realized I had only made eleven dollars this week. No profession is easy, including mine. And be assured, you can pray but you better be willing to help out with what you pray for. Anyway, I did work hard this week given the fact that Michael was in the hospital, but I felt like sharing my opinion. The relationships I created this week will build and be fruitful down the road. It’s just a good thing Michael’s “stringy” noodles are eight for a dollar. :)
Enough about me….Michael is home tonight and we are expecting 2-4 inches of snow. It is actually the first time in my life that I can remember I actually want a big snow so we can all be stuck in the house together.
He’s doing well. I’ve been with him the last two nights in the hospital and I can’t wait for my pillow. He got sick this morning right before I left, but I think he has been fine since. Mom had to care for him and the other two children AT THE HOSPITAL (because of continued babysitting issues) the last two days. Her hair looks a little messy tonight (it’s standing straight up!), but she’s as beautiful as ever.
Pray for Abby and visit her website. She is old enough to read your messages.
If nothing happens eventful, I need a break from this website and will not update until Monday. Thanks for all the support and prayers!!!!!!
Tony
Thursday, February 9, 2006 7:58 PM CST
Michael had a good night last night and a busy day today. William and Caroline were here all day with mom because of some continued babysitter issues that I hope will soon be resolved. We have gotten some help from a nice nurse named Emily.
Our expectations were that we were getting discharged today. After last round, Michael's MD reduced his dosage of Chemo back by 20 nd said that should get him home one day earlier. In other words, instead of 5 treatments, reduce 20 o 4 treatments and 4 days. Well, some of his fellow MDs apparently misunderstood and cut the amount by 20 nd kept it at 5 treatments at a 20 ess dosage instead. SO, they should pay me for tomorrow I think. I'm sure you agree. Perhaps even explain that to the healthcare company.
I am with him tonight and we went to watch Charlie Brown Valentines with Abby.
Tony
Wednesday, February 8, 2006 6:10 PM CST
OUCH, what a wake up call to be back on "the couch" at Vanderbilt.
Michael has actually gotten sick today, which is ahead of his normal schedule. However, he is sleeping well right now and we will see if it last through the night.
I just saw Abby checking in. What a pretty little young lady from KY. Be sure to visit her website listed below.
I also saw Joshua and Christopher and their mom for the first time in person and please visit their website below.
Continue to pray for strength for the children and all the parents!!!!
Tony
Tuesday, February 7, 2006 6:26 PM CST
Mom had a bad night in the hospital with Michael last night. Not sure why. I do not think Michael felt bad. Just restless, and MOM was sleeping on our famous couch. She's on duty again tonight, and I'll take Wednesday night.
Michael weighed 45.5 LBs when he checked in yesterday. Of course we get nervous if he gains weight too quickly because of the obvious fear. However, things seem normal. His cheeks are thick. He gets another CT Scan done the week of the 27th.
One of the nurses was asking questions tonight about Michael and the last few months because she is writing a paper on something. Most of the questions were asked before my arrival, but a couple of questions she asked I could not answer because I could not remember. i.e. It made me realize how things have become so blurry about the past because I'm so focused on today and the future....for Michael. I did refer her to this website however. Maybe there are some answers in past journals.
Tony
Monday, February 6, 2006 6:57 PM CST
Michael just got into a room. It's been a long day for Mom and Michael. This is the longest it has taken to get a room. His counts are very good and he will start his Chemo. Hopefully, he will be home late Thursday.
Yes, I bought him a NEW singing fish today!!! I had to go to two Walgreens to find it. I bought three just in case they run out. So, I have two in my trunk.
Tony
Sunday, February 5, 2006 3:25 PM CST
Michael came back strong today. He is napping now, but he has a lot of energy and is eating well again. I hope it was just a little tummy bug. I feel strongly his Chemo will start tomorrow and he will see his many Vanderbilt nurses, and other friends including Abby from KY. I must confess that I can't wait to see Abby too.
My "MICHAEL" goal this week is to update some pictures on the website. It's difficult to choose because I can only post 3 pictures at a time, resize them, etc.
Tony
Saturday, February 4, 2006 10:32 PM CST
Michael's had a couple of unusual days. We could tell he was not himself. He got sick tonight, but has since come alive. I hope it was just a normal problem. He has no fever and we hope Chemo starts Monday.
Thanks for all of the support. Pray for us to stay strong.
Tony
Thursday, February 2, 2006 7:44 PM CST
Michael's cheeks looked so full tonight when I got home. He's eating well. He gets on one particular item and will not quit eating it until he is tired of it. Right now, he is on corn dogs. Last Chemo round it was Cheese Toast.
I know I repeat myself on this website, but at least SOMETIMES, I remember I have said it. Today while eating lunch, I remembered a quote I had posted and wanted to go back and read it. Here it is. Author unknown:
"Watching your child is like watching your heart walk around outside your body."
Wow. I love that quote! It's so true and gives me chills. However, right now I have three hearts running around like crazy before bedtime.
Let your light shine!
Tony
Wednesday, February 1, 2006 6:34 PM CST
Michael is feeling well. We are crossing our fingers that he will stay well until Monday so he can be admitted for Chemo. If so, he would be in the hospital for 4 nights. I've been "short-winded" lately. I'll either blame that I'm very tired or I OPENED my HEATING bill..:)It took my breath away.
We still need your support and prayers and pass it on.
Thanks, Tony
Tuesday, January 31, 2006 7:36 AM CST
Michael had a pretty good day Monday and a good night sleep. They checked his blood count yesterday, and are coming again this morning. Hopefully they are up.
Tony
Sunday, January 29, 2006 9:05 PM CST
Michal and the rest played outside today. He probably did not need to be outside, but how do you keep him inside and let the other two go play on the swingset? Anyway, it was quite warm today for January. Michael played with his neighbors today. They of course own "The Pumpkin Boy" Toy from Halloween. Michael insisted on having it today. We could not convince him it came out once a year. SO,,,, Our neighbors were nice enough to go searching in their attic for it and found it. Unfortunately for them, they will have a difficult time getting it back in one piece.
I am getting a cold, and Michael has gotten his cough back that he had gotten rid of...No fever however. We just hope he can get his Chemo, not tomorrow, but next Monday.
Tony.
Saturday, January 28, 2006 8:43 PM CST
Mr. Tom Frith, Jennifer Frith's Dad brought Michael a new special SINGING toy tonight. I KNOW the folks down at Vanderbilt can't wait to see what it is. He was so excited, and he still is. I'm not going to tell you what it is. It's a surprise for the nurses. Jennifer babysits for us often and the children love her.
I'm very happy with my life. So, I wanted to say that before I share with you what I read on a church sign this week. I often read them. As I passed by a church here in town, the sign said, "Tired of your life?,,,,God takes trade ins....."..
Michael had a very good day.
Tony
Friday, January 27, 2006 10:17 PM CST
Michael sits on my lap as I write this e-mail. He says hello and thanks for all of the nice messages and help at Vanderbilt. He baked a cake with mom today for Valentines. As he glances at the computer screen, he says he wants to see himself at the hospital(pictures). He says he wants to see Leslie Ann, Tara, and Rebecca in the clinic. He names many more, but he is killing my legs and I've got to get him off my lap.
Love, Dad and Michael.
Thursday, January 26, 2006 7:34 PM CST
Michael was restless last night. He tossed and turned. So we tossed and turned waiting for a fever. Mom said Michael had a pretty good day, however. The blood tranfusion helped. He does have a runny nose, but no fever yet.
Tony
Wednesday, January 25, 2006 5:59 PM CST
Michael went to the clinic and got blood and platelets(sp) today. Hopefully, this will help him have some energy for the weekend and next week so he can continue Chemo the week of February 6th. He weighed 44 pounds. This was good. He is eating well.
P.S. Dad got a ticket from Mr. Policeman today while driving Michael home for an expired License Plate. Mr. Policemen had no hair and I almost tried to bribe him by using Michael in the back seat by saying look what you two have in common. I did not do it. I got the ticket anyway. :)
Tony
Tuesday, January 24, 2006 6:56 PM CST
I received this message about Jack tonight. Althouh I have not met him personally, I pray for him and his family.
"Shannon Woods called me yesterday, and she is asking that we pray for Jack right now. His leukemia had been MUCH better lately until last week. His numbers did not look good last week or yesterday. The doctors have now scheduled a bone marrow test that was not scheduled until his numbers changed. They told Shannon not to worry until they see what the test shows next week. Understandably, she is his mother and she is worried. So, please pray for him."
His website is listed below. Please visit and leave him a caring thought.
Tony
Monday, January 23, 2006 7:09 PM CST
Michael's counts are low enough to continue shots, but we do not need a blood tranfusion yet. He had a pretty good day, but he is usually very tired by the time I get home.
Tony
Sunday, January 22, 2006 9:26 AM CST
Michael had a good night. He's going to watch football with me today They will come by to check his blood counts tomorrow.
Tony
Saturday, January 21, 2006 10:06 PM CST
When Michael's Chemo and Radiation is over, I'm going to have a party so big, it will close our street down.
Tony
Friday, January 20, 2006 6:02 PM CST
Michael was in a very good mood when I got home tonight. However, his energy level does not last long. He has crashed in my chair and is sound asleep at the moment. Shots have resumed and they will check his counts on Monday. Have a great weekend.
Tony
Wednesday, January 18, 2006 5:53 PM CST
Michael enjoyed the minor snow that Nashville received last night. He had a good day. We start the shots tomorrow night.
Cindy and I want to be even more diligent in keeping germs away from him. So, if you plan on seeing him, buy yourself some of the hand sanitizer. We have some, but please use it before you arrive or see him. It's not obsessive, it's necessary.
Please visit Abby’s website listed below. She goes into the hospital tomorrow for her second treatment.
Tony
Tuesday, January 17, 2006 6:44 PM CST
Well, Michael got his Chemo treatment and is home tonight. "Anticipation" is just another thing you have to deal with in this situation. He was delayed last week twice, and we finally go him checked in yesterday. To some degree, it plays more on your nerves than just being admitted. In other words, it’s just an additional factor in the unknown game.
We are around 28(plus or minus) weeks into his Chemo. The existing plan is for 48 weeks. After that is over, he will have 6 weeks of everyday radiation treatment, and it is supposedly much worse. Then, we have to worry about reconstructive surgery for his bladder, etc. Anyway, we can't worry about that right now.
When this is all done, I'm going to do something much crazier than buying a two seated convertible. Right now, jumping into a frozen lake seems plausible to wake me up!
Tony
Monday, January 16, 2006 8:49 PM CST
Michael is in the hosptial and we(Caroline, Willima and me) went to see him tonight. Mom is staying with him.
I've been cleaning the house, but it still looks like a train wreck.
I had the day off, if you can call it that....
Tony
Monday, January 16, 2006 12:44 AM CST
Michael's counts are high enough for Chemo Treatment today. Yea.
Tony
Sunday, January 15, 2006 9:00 PM CST
Having my family here helped so much this weekend. We were able to get out and run a few tasks we desparately(sp)needed to get done. They were a great help.
I also know it is a moment I will never forget in my life, and the children will never forget also.
If I could only be to my children, as my parents have been to me. They are the best!!!
Tony
Saturday, January 14, 2006 9:54 PM CST
Michael and the other two are having a great time with their Nana and Papa and Aunt Sharon. Since they do not live here, we do not see them as often. Michael was going so strong, he did not even have a nap today, which is unusual for him.
They even watched the children and Cindy and I had some time alone together tonight with some freinds. It was nice.
They are here until Monday. Hopefully, Michael goes into the hospital on Monday for Chemo Treatment.
Dad.
Thursday, January 12, 2006 6:14 PM CST
Cindy's exceptional organizational skills are unheard of.!!! I'm not sure how she manages schedules for William and Caroline, Michael's schedule, and then somehow manages to allow me to go to work. As we witnessed Monday, we scheduled everything for Michael to be in the hospital, and things changed quickly because of his counts. Well, guess what?! All of the diligent effort she put into getting everything scheduled today for Michael to go to the hospital came falling down again when we discovered his counts are still too low.
So, the good news is he will be feeling pretty good when my mom and dad and sister visit this weekend. The bad news is Monday's schedule and the rest of next week must now be re-constructed so they can check his counts again for a hopeful admission for Chemo.
Chin up :)
Tony
Wednesday, January 11, 2006 6:09 PM CST
If all goes well, Michael will go into the hospital tomorrow for Chemo treatment, and be there for a short stay. Watch out Vanderbilt 6B and clinic. I'm sure he will be caring new noisy toys with lots of smiles.
He ate very well today for increased energy..
Tony
Tuesday, January 10, 2006 7:37 PM CST
I just asked Michael what he did today. He said, "We went to Walgreens to pick up medicine. We had to go to two stores to get the medicine. Ella brought me the singing Christmas Tree back, because Christmas is not over in my mind, and we took Caroline to school."
Nana and Papa from South Carolina and Aunt Sharon from Georgia are coming this weekend to see us. We are excited.
Tony
Monday, January 9, 2006 6:34 PM CST
There must be many nice people in Kentucky. Have you seen all the nice notes in the guestbook from Abby's friends? Please visit her website. It's listed at the bottom of this page. I'll probably be adding some more of his friend's websites soon.
Michael was scheduled to be in the hospital tonight for normal treatment. However, when he got to the clinic they tested and his platelets were too low. They sent him home. So, we were actually disappointed(sp) that we were not able to stay on schedule. We'll shift our schedules again. However, it's not unusual. He goes back Thursday and hopefully we can get the Chemo done then.
Tony
Sunday, January 8, 2006 6:26 PM CST
We had a great time with Max and Margaret this weekend!! Maybe next time Fran and Little Max can come see Michael. As mentioned previously, they are Caroline and Michael's Godparents. I've known Max since the 8th grade. I think that equates to 27+ years. I can't believe I've put up with him that long, Ha Ha. I really can't imagine someone putting up with me that long.
Michael goes into the hospital tomorrow for treatment.
Tony
Saturday, January 7, 2006 8:30 AM CST
Michael is feeling really well the last couple of days. His "Godparent" Max is coming to see Michael today from Charlotte, North Carolina. Max is bringing his daughter, Margaret. We expect a fun time the next 24 hours.
Tony
Thursday, January 5, 2006 7:37 PM CST
Still at home! Michael had a nice day, and is eating well. Two more nights of shots. He goes into the hospital on Monday for a Chemo treatment, and if we are lucky he will only be there one night.
Did I mention that they had increased his Chemo last visit? What I mean by that is it was scheduled to happen and expected to happen, and they told us that it would happen. We just did not hear them or remember them telling us. So, this last recovery seemed a little tough, and they were not surprised.
If all goes well, I THINK I have a date with Cindy tomorrow(Friday) night. It will seem awkward, like a first date. Ha Ha
Tony
Wednesday, January 4, 2006 7:23 PM CST
Michael had a great day at home, so I'm told. This charged me and I set 5 lunch appointments for January and it's only the 4th. Anyone want to go to lunch, my treat?
Tony
Tuesday, January 3, 2006 6:22 PM CST
Michael is home tonight!!! We appreciate all of the thoughts and prayers from Abby's friends in Kentucky.
Tony
Monday, January 2, 2006 5:21 PM CST
Michael is still in the hospital. His counts are still too low for discharge.
I spent the last three nights with him. Cindy is on duty tonight. We are hoping to get him home soon. Caroline starts back to school tomorrow.
Tony
Saturday, December 31, 2005 8:24 PM CST
I refuse to spend any more nights in the hospital this year!!! Ha. Ha.
Michael and I will watch the 2006 New Year arrive together in the hospital. Actually I suspect we will both be having wonderful dreams by that time. Yes, there are other places I’d rather be, but not without Michael. I did really want to be in church on January 01, 2006. I don’t see that happening. So if you go, be sure to say a special prayer for Michael and me.
He’s really having a tough time recovering from his last Chemo Treatment. Though not unusual, we fear it could delay or decrease his dosage. He’s done so well.
I’ve said it many times, but you can’t beat the staff at Vanderbilt Children’s. (All Staff). Sorry goes to “Anthony”, but I have to explain to Michael and tell him that someone is to blame for his isolation to his room. So, the next time he sees you, he may be a little upset.
If you have read my previous entries, you know we were here plus or minus 79 nights in 2005. I suspect more in 2006. Tomorrow is just another day, but I’m beginning it with a positive force on all fronts, both personally and professionally. So, watch out! I have so much to be thankful for, and the more I work to make positive things happen, the more they will fall into place for us.
I love you Cindy.
Tony
Friday, December 30, 2005 11:05 PM CST
Michael has some new friends at Vanderbilt tonight. It's actually Abby, to be more direct. Based on such quick response that we have received from some of her friends on our website, I know she is special and I will pray for her each night as I pray for Michael. There is plenty of room. Please visit her website and let her know she is on your list.
caringbridge.org/visit/abbycummings
Tony
Thursday, December 29, 2005 7:46 PM CST
Michael seemed to be feeling better tonight when I saw him. His counts are still too low to come home, but I can tell he feels better because he’s flirting with the nurses. When we checked him in on Tuesday, they were afraid he had pneumonia (sp). Lung MDs came in and felt like it was most likely asthma(sp, again), or possibly reflux causing the cough. He is getting breathing treatments, and I should have listened to his pediatrician a few weeks ago when she recommended we mention this to the other MDs.
There was only one person with enough courage to tell me that I spelled Michael’s name wrong on my last journal entry (Jack, a friend for 23 years). I guess it’s especially bad since my son is named after me! :). Technically, I did not spell it wrong. It’s just not how we spell it.
Tony
Tuesday, December 27, 2005 9:16 PM CST
We had a GREAT Christmas, but he is sick tonight, and in the hospital again.
Happy New Year is something to place very carefully in your minds. In other words, the beginning of a new year and the end of another...does not change what is happening in your lives. It's just another day. It is up to you to change what you do and do not like..
I will be more positive in 2006.
As I look back to the end of 2005, Michael has been in the hospital for more than 75 nights since April 2005. It's not the whole year and I will not do the math for you, but that is a lot of time my whole family could have been together.
I'm not looking for sympathy, but continued prayer. I continue this website for MICHEAL.
Tony
Monday, December 26, 2005 11:00 AM CST
NEW PICTURES!
We had a very special Christmas. One I will never forget. Michael felt great the whole day, and all three children played with all the toys. Of course, Michael focused in on the NEW Vacumm Cleaner.
It was exciting to see them try and go to bed Christmas Eve, and see them awake VERY early Christmas morning.
We placed raindeer food out, and also some cookies for Santa. The cookies for Santa were gone when we woke up, perhaps even before we went to bed.:)
It surprised me coming from him, but at 4 3/4 years old, Michael is the only one of the three children who asked me,,,"Is Santa Real Dad?"
We have an interesting 2006 ahead of us!!
Tony
Friday, December 23, 2005 2:04 PM CST
Michael is home for Christmas!!! I will update everyone on Monday, and with some new pictures!
We are going to have a great time and appreicate it. We will not forget ALL of those who are not home this Christmas.
Tony
Thursday, December 22, 2005 8:45 PM CST
If there are no unforeseen instances, Michael will have Chemo treatment tonight/morning about 5:00Am, and we should be out of here by noon.
Tony
Wednesday, December 21, 2005 8:57 PM CST
William and Mom took care of Michael at the hospital today. William had a good time, because when I picked him up after work, he was asleep before I was out of the parking garage.
Grandmama took care of Caroline.
I'll solicit again. We are in serious need for a new babysitter! Any ideas welcomed.
Tony
Tuesday, December 20, 2005 5:53 PM CST
They still need to review the CT Scan in more detail, but preliminary results look good for Michael. This is a nice Christmas gift. Thanks for the prayers. We now want to get home by Friday.
Tony
Monday, December 19, 2005 8:36 PM CST
We had a great weekend and we are looking forward to getting Michael home Friday for Christmas.
Although William has Bronchitis, and Caroline has a bad ear infection (I think she had some ear drum leakage, but the MD felt it minor compared to other things in our life), we had a great time. Michael and I went to get Grandmamma on Sunday. It was a great 2.5 hours with him going to get her, and a great 2.5 hours coming back with them.
Tonight when I left, Michael was having a great time in the hospital with the many great staff on/in Radiology, Clinic and 06B Vanderbilt.
The surgeon that performed the surgery on Michael dropped by to see him tonight while I was there. I know this Doctor realizes his hands are blessed, but I also know he gets caught up in the day to day performance of his job as all of us do. That is why I know he came by tonight and mentioned that all of the holiday parties he has gone to this year, someone has come up to him and mentioned Michael, and his miracle to date
We do not have results back from the CT Scan as I write this note. I will let you know something as soon as I know.
Tony
Friday, December 16, 2005 6:11 PM CST
Cindy and I are headed to my A.G. Edwards Christmas Party in a few minutes. We had planned on spending the night in a hotel and taking a break, but William went to the Doctor today and he has Bronchitis. So, we figured overnight with the Babysitter might be too much with two sick.
I will head to Florence, Alabama on Sunday and bring Cindy’s Mom back to Nashville for the Holidays.
Michael has a CT Scan scheduled for Monday, and will be in the hospital Monday to Friday.
Tony
Wednesday, December 14, 2005 9:50 PM CST
In non-MD terms, we were waiting for some results on Michael's heart test(EKG?). It appeared somewhat enlarged on some X-rays and raised some concerns. Although this would not be abnormal for CHEMO, it could significantly impact how we could continue treatment and what drugs they could give him, and thus impact outcomes. So, good news tonight for now.
Tony
Tuesday, December 13, 2005 9:07 PM CST
I praise folks when they are responsive. I will also point out when they do not respond. We had a very important test done(in our minds) today at Vanderbilt. We did not get a response tonight. No news is good news as they say, but that does not help me sleep tonight!
Tony
Monday, December 12, 2005 8:04 PM CST
Michael seemed to have a pretty good day based on what I heard. He was in a good mood when I left this morning and in a good mood when I returned. He also does not need a shot tonight.
As I placed him in bed, he pointed out to me that the neighbors had a Snowman out and many reindeer out with lights on them. They were strategically placed so Michael could see them out our window. So, whether it was on purpose or not, it was meant to be.
More news to come before we get more Chemo next week.
Tony
Sunday, December 11, 2005 6:56 PM CST
Michael is home tonight after spending all weekend in the hospital. He made it home for his Mom's birthday. He has much more energy and feels much less isolated. Since it was an unscheduled visit to the hospital, we were basically stuck in the room to avoid germs, etc. This did not go over well with Michael. His blood pressure was too low at some points, and mine rose each moment. After two nights on a couch, I'm looking forward to my bed tonight and work tomorrow.
Tony
Saturday, December 10, 2005 6:31 PM CST
Michael is in the hospital tonight. I am with him. Hopefully, we'll get home tomorrow.
Caroline, Michael, and William wish their Mom a very Happy Birthday on Sunday.
I hope Caroline and William get up LATE and THEN give Mom a big kiss.
Tony
Friday, December 9, 2005 2:39 PM CST
Well, we've hit our first "unscheduled" stay in the hospital since Michael's surgery. And that's actually pretty good since surgery was in July. Michael ran high fever today, and he is at the clinic as I speak and waiting for check in to a room. They want him to go 24 hours without fever before he can come home. So, I am watching the other two at the moment, and then I will go switch places with Cindy around 4:00PM and I will stay with him tonight. The message a friend(David Key(Donkey)) left on this website/guestbook this morning got me through the first half of today. For the remainder, another friend just sent this via e-mail and it helped motivate me for the weekend.
If God brings you to it, He will bring you through it. Happy moments, praise God.
Difficult moments, seek God.
Quiet moments, worship God.
Painful moments, trust God.
Every moment, thank God.
Tony
Thursday, December 8, 2005 9:06 PM CST
Michael is well tonight.
Wednesday, December 7, 2005 9:17 PM CST
At one point today, we had Michael in Vanderbilt getting a blood transfusion, Caroline having special testing done at a school here in Nashville regarding her educational progress and what is next for her, and we also had William at the third location going to school as normal for a 3 year old.
I think once we get to soccer/football/cheerleading practice, etc, it's going to be a much easier experience for us.
Michael had blood today and is already responding much better tonight.
Tony
Tuesday, December 6, 2005 7:01 PM CST
It comes as no surprise, but Michael will need a blood tranfusion on Wednesday. I know!!!!.....I sound like a broken/scratched record/CD.
He is still all smiles.
MAX, you better make it here to visit this month!
Tony
Monday, December 5, 2005 6:27 PM CST
Michael's doing well. I should say, GREAT, given his situation. Dad FINALLY has a cold(i.e., not feeling well and tired). I am amazed I've made it this distance.
Tony
Saturday, December 3, 2005 10:00 PM CST
Nobody awakened in our house this morning before 8:15AM. It felt like NOON!,,, and it felt nice.
Michael is doing well. Mom, Dad, Caroline, and William went to see an ICE show today. It was too risky to take Michael OUT, but the rest of us had a great time, and Caroline and William got some deserved personal attention. Once we got home, we watched home movies with Michael and the rest.
Tony
Thursday, December 1, 2005 9:13 PM CST
Michael had a good day. We will be losing our baby sitter(Nanny) that we have had for 5 years this month. She was in the NICU when the twins were born. She knows them well. She's been great the whole time, but especially this past year. They all are so close to her, but especially Michael. SO, any suggestions are welcomed as far as replacements.
Tony
Wednesday, November 30, 2005 7:51 PM CST
Michael was in a very good mood today, and still is at this time. He ate very well also. Back to the shots tonight. CT Scan scheduled for December 19th. He will also be in the hospital that week for Chemo, which is right before Christmas. We just want him to be home and we need good news on the CT scan.
Tony
Tuesday, November 29, 2005 10:42 PM CST
Michael came home tonight. He was quite ill(irritable), but understandably(?) so after Chemo. What a trooper. Forgive my spelling. Just got home from a late work meeting. Time to sleep.
T
Monday, November 28, 2005 8:38 PM CST
Michael is getting Chemo tonight in the hospital. Mom is with him, and we hope it will be a short stay.
I took Caroline to the Titans game on Sunday. Normally, I would have expected William to want to go with me, but he wanted to help out Mom at the house with the Christmas Tree. I'll straighten him out later. Caroline had a great time. "WE" were seated very near the Cheerleaders. I think the Titans won! :)
Tony
Sunday, November 27, 2005 9:07 AM CST
I'm back!
We had a great Thanksgiving. We went to Florence, Alabama on Wednesday evening and stayed until Saturday night. Although the children were a little selective once the turkey dinner was placed in front of them, it was nice to have all of them and Grandma around the dinner table.
Michael has done well the last few days and has not needed his daily shots. He goes back into the hospital on Monday. The good news is it is a short stay. The bad news is that this one makes him a little sick.
Anyway, we are home and William, Caroline, and me(I) are waiting to see what the weather does. We may go to the Titans game if weather permits, while Mom and Michael decorate the Christmas Tree.
I hope you had a Happy Thanksgiving. Let's finish 2005 on a Happy Note.
Tony
Tuesday, November 22, 2005 6:11 PM CST
Michael's blood counts have gone up since he had a transfusion on Friday. He has had some nausea, etc. However, he seems to be sleeping well, and eating OK. He is still getting shots each night. I was out of town last night. I'm not sure how Mom managed the shot(Thanks Jennifer). If all goes well, we will go to Florence, Alabama for Thanksgiving. I had wanted to go see my family in South Carolina, but did not see how I/we could manage that given the situation.
Everyday is special, but this will be a "Special Thanksgiving Day", and I am SO excited about Christmas with the children and Cindy this year.
I hope you all have a great Thanksgiving.
Tony
Saturday, November 19, 2005 7:52 AM CST
Michael handled the blood transfusion and platelets(?) well. It did take most of the day, but he did come home on Friday. He slept well last night. Hopefully, the blood, etc will give him strength for Thanksgiving. He goes back in for another chemo treatment the Monday after Thanksgiving. After that round, they will do another CT Scan.
Vanderbilt Medical Center has a newsletter they publish weekly. Michael's picture was in it recently. Go to
www.mc.vanderbilt.edu/reporter/index.html?ID=4389
Article titled "Gaining Strenth"
Cindy and I went out to eat together last night. It was fun. We were home early.
Tony
Thursday, November 17, 2005 8:55 PM CST
Michael will be getting some new blood on Friday. Although this has become a normal occurence in our lives, there are risks with blood transfusions. If everything goes well, Michael will have a great weekend.
I appreciate all the support.
Tony
Tuesday, November 15, 2005 7:54 PM CST
Michael's appetite (?) has picked up a bit. The next week will be when his counts can go down, and most likely they will go down. We are in the "shots" phase. I've got to wake him up in a few minutes to give him the shot. Anyway, the hope is for a quick rebound for Thanksgiving. He is sleeping very well at night, and as you can imagine this helps Mom and Dad.
I want to be here with the children all the time, but somehow Cindy and I will need to get away for at least a weekend very soon if we can work it out. I know we are on the same team, but I feel like we are in a "hurry up offense, rushing to the line of scrimmage without a huddle" mode. We need a timeout to regroup!
Tony
Monday, November 14, 2005 10:05 PM CST
Aunt Sharon came by tonight. She is moving from Kansas City to Atlanta and stopped by on her way. She will be much closer to all of her family now, and we are all excited. I hope her friends in Kansas City will continue to keep up with Michael through his website, and follow his progress. My sister Sharon, shares with me in the vision that the glass is half full versus half empty.
Tony
Sunday, November 13, 2005 6:38 PM CST
Nice weekend. We spent a good bit of time outside. We had great weather. Michael's not eating much, but has not gotten sick since Friday.
Tony
Friday, November 11, 2005 7:33 PM CST
We are home tonight. Again, given the fact that Michael is here, I can't think of a better place to be tonight.
Michael got a little sick tonight, but did eat a little, and more importantly did drink fluids.
Once things settle down, I suspect we'll have some great pictures of Michael's recent visit to Vanderbilt to place on the website.
I think almost everyone at Vanderbilt knows Michael. I was with him for a good bit of time from Thursday night until Friday morning. Michael had to "tour" the hospital(very early in the morning!!). Everywhere we went, someone would say "Hey Michael". I should "team up" with him in my profession.
Tony
Thursday, November 10, 2005 8:38 PM CST
For those of you that do not know, my Mom and Dad are the best parents,,,EVER!! I think of them everyday, and I use them as a great model.
For those of you that can, hug your children today, or call them. Also, call your parents.
I picked up this brochure tonight at Vanderbilt and it had a great quote on it. Author unknown, but "Watching your child is like watching your heart walk around outside your body."
Michael had a great day. I'm in the hospital with him tonight, and given the fact that he is here, I cannot imagine any place I would rather be.
Tony
Wednesday, November 9, 2005 6:41 PM CST
Michael had another good night last night when I was with him. Mom's been with him today, and says he has had a great time. He went to see a band play music. He got up on stage with them. I believe Mom got pictures.
Looks like he will be in the hospital until Friday. I think he will get another CT Scan in about 4 weeks. I've been wrong once or twice on timing and dates.
Good to hear from buddy in Iraq on the website. Hope all is well with him, and think of all of them every day to come home safely.
Tony
Tuesday, November 8, 2005 8:45 PM CST
Michael had a great night Monday night. Today, he had a little problem with the area his IV goes in, which is in his chest. However, once that problem was resolved, he has been in a great mood since. It's 8:45PM, and I hope it is one of those crash and burn deals, meaning I hope he goes straight from serious energy, to SLEEP.
He has not had anything much to eat today, but that is not unusual during this phase of Chemo. He rebounds by the end of the week.
Overall, he is handling this round very well, which is a good sign for us to continue and avoid delays or extended stays in the hospital.
Michael loves all the help on 6B. He got to ride the BIG vacumm again tonight. Ms. Erin, Ms. Megan, and Ms Kathy came to see him tonight. He had been asking for Erin for 48 hours. So, I was glad to see her before bedtime.
Thanks to all for reading this website. Please share Michael's story for continued prayer. Let them know how powerful it has been so far.
Tony
Monday, November 7, 2005 6:07 PM CST
Sorry I have not updated in a couple of days. We had a bad storm that knocked out our cable and internet connection. We had a great weekend. We went out to the farm and we all had a great time. Caroline rode a pony, and Michael rode a tractor(?), or scoop truck as William calls it.. PICTURE ON THIS SITE. Although William loves to look at them, he did not get on the tractor or the pony. We were very impressed at Michael's courage to ride the tractor.
Michael is in the hospital tonight. I went by to see him and he was a little tired because of the long "check in", but he looked well. Chemo begins tonight. Mom is with him tonight, and I will take my turn tomorrow night.
Take care and check out the pictures.
Tony
Saturday, November 5, 2005 7:52 AM CST
A COUPLE OF HALLOWEEN PICTURES.
The weather here is great and we hope to get Michael and the rest out on a friend's farm today to see their animals.
Thursday, November 3, 2005 7:41 PM CST
Michael is doing great this week. I think his strength will help him through next week when he gets more Chemo.
All 3 children and Cindy have minor colds/coughs,etc. I'm not sure why or how I've avoided it. It's been a little more than 6 months since this all started. I'm VERY tired. More importantly, I can see Cindy is tired. We need your thoughts and prayers for strength.
The children love "home movies". So, tonight we watched our wedding tape from 13 years ago with the children. The best explanation I could give when they asked "where are we Dad" was "in Mommy's tummy". They bought it, and even better is the fact that Caroline wants to marry me. How could she do better?
Tony
Tuesday, November 1, 2005 6:20 PM CST
Michael had a good day and continues to get stronger in preparation for the chemo next week. Cindy said the children were a little WILD this afternoon. I think it was a combination of Cindy being sick, and the children having a little too much sugar from Halloween.
People continue to be very generous and provide us meals. This is so appreciated.
The continued prayers and thoughts mean so much and they are helping so much.
Tony
Monday, October 31, 2005 8:17 PM CST
I had the best Halloween I've ever had! We started at our neighbors. They had this "Pumpkin Man" that Michael insisted on taking with us the rest of the night. Fortunately, the neighbors let us take it. Their daughters were dressed very appropriately for the occasion.
Then we went to a few other houses that were expecting us. All 3 children had a great time, but what a treat for MICHAEL. Tonight was their night. We took pictures and I will get them on the website ASAP.
Tony
Sunday, October 30, 2005 5:56 PM CST
We had a really good weekend. The blood transfusion Michael had Friday helped him with energy this weekend. They are all exited about Halloween tomorrow. Grandmama Perritt headed back to Florence, Alabama today.
Tony
Friday, October 28, 2005 5:44 PM CDT
Michael had a blood transfusion today. So, we hope this adds energy for the weekend. They also did and X-Ray on his chest. It was clear. They did give him some medicine.
Caroline and William both stayed home from school today. They also both have deep coughs. No fever, and they probably could have gone to school, but maybe a 3 day weekend for them will help clear the air.
Cindy's mom's knee is much better. However, Grandmama did walk outside yesterday and got lost, forgot where she was, and we could not find her until this morning. She was a little cold, but.... JUST KIDDING!!!! Making sure you are paying attention. She has been very active shopping and helping take care of the children!
Have a great weekend.
Tony
Thursday, October 27, 2005 9:20 PM CDT
OK, I did not buy new pants. I DID BUY A LOCK FOR THE LOCKER! :)
Michael was again a little sick tonight. They came and checked his blood today. I suspect he will need new blood tomorrow. They also will be doing an X-Ray on his chest tomorrow to check his lungs. He has had the cough for some time, and right now he is at his lowest point as far as immune system. In between feeling sick, he still manages to smile, and make us smile. I have no question he wants to beat this and will fight the Chemo mentally.
I will update tomorrow after we know more.
Tony
Tuesday, October 25, 2005 8:32 PM CDT
Michael coughed all night last night. Given the fact that he sleeps beside me, I had plenty of time to worry about work, life, mortgage, etc. When I woke up very tired, I showered and reached for the LARGEST work pants I could find, since I have gained 15 pounds since April and I refuse to buy larger pants. The pair I found was still very tight.
Around lunch, I had a potential client meeting and had about 30 minutes to spare. So, I decided to go the YMCA to work out really quick. Maybe that would relieve some stress, if not my pants. I’ve been limping on a VERY bad knee for about a week. So, I decided to lift some weights instead of run. Once done,