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MY RAY OF SUNSHINE!
HEMOPHAGOCYTIC LYMPHOHISTIOCYTOSIS What a BIG name of a disease for such a little girl. Kristan, at 7 mo. of age, was diagnosed on June 14, 2002 with this rare but life threatening disease. One that affects only 1 in 1.2 million births at which only 30 percent are caught in enough time to try to treat. She was given four months of chemo and on Sept. 26, 2002 after an intense conditioning regimen of chemo(knocking out her entire immune system)she received her life saving marrow from her brother, the donor. At an age of 4 years old, the little soldier went into the hospital and let them take what cells they needed from him, hours later he is running and playing; we should all be so unselfish.
Because of one special doctor, who found her diagnosis, because of one brave, unselfish, loving brother, because of one GOD we received this precious gift of a second chance at life.
Thank you for signing the guestbook, it really shows your support. Please continue to pray!
Journal
Friday, January 30, 2009 9:27 PM CST hi it is Kristan. I went sledding in the snow one day. It was fun. i love you............................................................................................................................................................................................................................................................................................................................................
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