WYATT AT THE BILL SIGNING

WYATT WAS BORN WITH A CONGENITAL GROWTH RELATED DISORDER CALLED BECKWITH-WIEDEMANN SYNDROME. BECKWITH -WIEDEMANN SYNDROME AFFECTS 1 IN 15,000 BIRTHS. THIS SYNDROME PUT WYATT AT RISK FOR CHILDHOOD CANCERS. NAMELY WILMS TUMOR AND HEPATOBLASTOMA. MOST CHILDREN WITH BWS DO NOT DEVELOP CANCER, APPROXIMATELY 1 IN 10 DO. WYATT HAS BEEN SCREENED SINCE HE WAS 3 MONTHS OLD FOR THESE CANCERS. THE SCREENINGS CONSISTED OF AN ULTRASOUND EVERY 3 MONTHS TO LOOK FOR ABDOMINAL MASSES AND AN AFP TEST EVERY 6 WEEKS TO CHECK FOR LIVER CANCER. ON TUESDAY, FEB. 3, 2004 DURING A REGULAR 3 MONTH ULTRASOUND SCREENING A MASS WAS FOUND ON WYATT'S RIGHT KIDNEY. IT WAS CONFIRMED BY CT LATER THAT DAY. WYATT UNDERWENT SURGERY ON TUESDAY FEB. 10TH TO HAVE HIS TONSILS, AND ADNOIDS OUT, HIS EAR TUBES REINSERTED AND A BRONCHIAL SCOPE DONE TO CHECK HIS AIRWAY. THIS SURGERY WAS MOVED UP A WEEK TO COINCIDE WITH A PARTIAL NEPHRECTOMY TO REMOVE THE MASS ON WYATTS RIGHT KIDNEY. DURING SURGERY 2 MORE SMALLER MASSES WERE FOUND ON HIS KIDNEYS. ANOTHER ON THE RIGHT AND ONE ON THE LEFT. WYATT WAS DIAGNOSED WITH WILMS TUMOR ON TUESDAY, FEB. 17TH AND HAD SURGERY ON WEDNESDAY, FEB 18TH TO HAVE A PORT-A-CATH PUT IN HIS CHEST TO ADMINISTER CHEMOTHERAPY AND ACCESS HIM.

AFTER 20 WEEKS OF CHEMOTHERAPY WYATT'S MRI, CT, AND ULTRASOUND WERE CLEAR ON JULY 15TH, 2004 AND WE WILL CONTINUE THE ORGINAL SCREENINGS FOR CANCER THAT INCLUDE AN ULTRASOUND EVERY 3 MONTHS AND AN AFP TEST DONE EVERY 6 WEEKS ALONG WITH HIS CANCER SCREENING PROTOCOL.

PLEASE SIGN WYATT'S GUEST BOOK! YOU WILL SEE ENTRIES FROM ALL OVER THE WORLD. MANY OF WHOM BELONG TO OUR BECKWITH WIEDEMANN SUPPORT GROUP.

THANK YOU FOR ALL OF YOUR POSITIVE WISHES. WE LOOK FORWARD TO ALL OF THE MESSAGES FROM EVERYONE. PEOPLE HAVE BEEN SO GENEROUS AND WE ARE OVERWHELMED BY THEIR THOUGHTFULNESS.LOVE JIM, KRIS, WYATT AND FAMILY

Journal

Monday, August 25, 2008 7:26 AM CDT

MRI this morning. No sleep for Mom last night, and I have knots in my stomach.

We have to be at Childrens, St. Paul this morning at 9:30 for a history and physical with Dr. Messinger. Then we will be downstairs at 10:15 to get ready for the MRI and for sedation.

Kris

Read Journal History

Hospital Information:

Patient Room: outpatient

Children's Hospitals and Clinics (Mpls and St. Paul)

St. Paul
651-220-6000

Links:

E-mail Author: kmrech@hotmail.com

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