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I am not sure if anyone is still checking in on this caringbridge page anymore, but I am having trouble getting logged in to post any updates on how I continue to carry on Riley's memory... So a quick update- I have been working at Spare Key now for just over a year and LOVE IT! I have a job that honors my beautiful daughter, I get to meet amazing families, and work with the hospitals to help reach more families facing a medical crisis. It is a great job!

For Christmas and Riley's birthday (Dec 20th- should would have been 9 years old), with the help of Spare Key, Hosanna! Lutheran Church/Pat & Dewey Moe, and my family, I was able to bring BAGS AND BAGS of toys, stuffed animals, comfy pajamas and slippers, and many other goodies to the kids at St. Paul Children's Hospital! I had more than 7 huge boxes and bags of things for the kids to open for Christmas while in the hospital this year. It feels so good to do those things.

Well, that is just a quick update- I will work on getting my account figured out so that I can give a true update.

I hope you all are doing well and that 2014 has wonderful things in store for each and every one of you!
All my love,

Nikki
Riley's Proud Mom Forever
(12/20/04-03/25/11)
Nikki
Farmington, MN US - Thursday, January 16, 2014 10:33 AM CST

Hi
This is Scott Tatum's dad I was so touched by your entry on her caring bridge site Thank You so much she reads it daily and it always brings her a smile :). Thanks for your kind words and you are also in our prayers!!!

God Bless and Take Care!
The Libbesmeier
Scott Libbesmeier <32libby@frontiernet.net>
Herman, MN USA - Monday, January 21, 2013 8:41 PM CST

Hi Nikki,
It has been a while since I checked on you. Although we have never met, I feel blessed to know you through your words of wisdom and strength! You are an inspiration. May God bless you and continue to heal others through you.
Sincerely,
Nellie

Nellie Glover <naglover50@yahoo.com>
Round Rock, Texas U.S.A. - Wednesday, January 9, 2013 9:55 PM CST

Nikki- I think of you often.... Hope all is going well for you as you venture on in life and have your angel fly right by your side.
Jessica Waara
- Tuesday, July 3, 2012 2:46 PM CDT

Nikki, Thank you for the updates on your life, I really appreciate hearing about you. I think about you and Riley so often and it is wonderful to hear about the positive things you are doing for others. You are a great example for all of us.
Bev
Bev Olson <beverlyrolson@msn.com>
Prior Lake , MN - Sunday, June 17, 2012 8:38 PM CDT

Nikki,
I've been thinking about you a lot lately and keeping you in my prayers. Riley is a special and precious angel. I am so blessed to have been a part of her life- and to have you as a friend. I hold memories of the dear ones that are in heaven close in my heart. And I know you do the same. We are so blessed and have precious memories!! Even though I met Riley once, she made a lasting impression on my life. I am a better person for having known her.
Sending all my love and hugs,
Sami
Sami <slloydmiller@hotmail.com>
Fairmotn, MN USA - Friday, April 6, 2012 0:32 AM CDT

Nikki -
Thinking of you and our Angel girl Riley in an extra special way today!
Love you tons,
Theresa
Theresa Gorbach
Farmington, MN USA - Sunday, March 25, 2012 1:20 PM CDT

Nicolle- Today, I was sitting at work and thought I would glance through the caring bridge sites I had bookmarked for the the various children that have touched my life in some manner. I clicked on Riley's site and was so sad to hear of her passing. My heart goes out to you and your family.

I am honored to have been able to meet you, Aaron and Riley all be it for a short time. I was immediately inspressed with your love and dedication for Riley. She was a very special child and I am honored to have met her.

I wish you well and hope you find comfort in your wonderful memories of Riley.

Janeen Coyan
Janeen Coyan <janeen.coyan@co.dakota.mn.us>
W St Paul, MN USE - Friday, February 3, 2012 10:15 AM CST

hi.Nikki you know sometimes i lose a tear or more than one.
but i don't cry because its sad i cry because Riley Nicolle showed everyone that having a disability isn't that bad
i have a disability two for a fact,and there not huge ones but people tell me i made changes in there life i looked at them funny
almost like there crazy but then i think and i get it but
i ask why anyway they say u have a problem with your
body but you use it like a regular hand and leg.and that what made my life change just by a ten year old. and then i go home and think well Riley taught me that too.ill keep
her in my heart. but i know that ill hold her again soon. might not be today not tomorrow.SOON.i love her thinking of her makes me happy but then sad the things she did everyday all day was smile and that's what she'll do everyday all day.ohh Riley i love her i cant think one day that shes nothing.Well i love you Nikki i hope you have a great life
byee. ill write soon
danielle nicole guglielmetti <cutiepie_daniellee@yahoo.com>
abilene , texas u.s.a - Tuesday, September 20, 2011 7:12 PM CDT

I haven't talked to you lately and wanted to leave you a little note on here, Nikki. I still think of you often and hope you are doing as well as can be expected. I pray for you every day and I hope we can catch up soon. Maybe sometime we can visit in person. Anyway, I just wanted to let you know I stopped by. I'm sending all my love and hugs.
Sami <slloydmiller@hotmail.com>
Fairmont, Minnesota USA - Saturday, September 10, 2011 11:18 PM CDT

Nikki, I've been thinking about you and while at my desk today happened to glance up to see the 2 b-day pictures of Riley that you gave me a while back. What an angel!! Thank you for continuing to write on Riley's page. I pray for God's blessings to come your way.
Fran
- Wednesday, August 24, 2011 7:09 PM CDT

Nikki,

Riley will always be in my heart and mind. I knew her for a short time but fell in love the first day I met her! She was definately an amazing little girl who taught us SO much more than we taught her. It is hard, and things will often hit you when you least expect them to. Breathe and pray through it and talk it out where ever and whenever you can.
Erica Triebenbach <etriebenbach@farmington.k12.mn.us>
Rosemount, MN - Tuesday, August 2, 2011 12:53 AM CDT

As I was scanning my favorite pages, this hit my eyes today and so I checked it and saw a new entry! Way to go on writing cuz that will help you heal--if that's possible! We still pray for you all the time! We saw a WHOLE rainbow (no breaks in it) before a rainstorm the other day and I said thanks RILEY! She was playing in it! May the LORD bless you every single day! Continue to bring light onto others and inspiring words to others! You are a beautiful woman!
Jennifer Myre <innermarie@hotmail.com>
Tucson, AZ - Saturday, July 23, 2011 1:53 PM CDT

Nikki, I keep looking to see if you have updated, and today when I checked there was a beautiful new entry. I know you have bad days, because I do too, and Cheryl has been go ne 6-1/2 years. The pain will never go away, altho it will get a little easier to bear. We are still waiting for your visit when you are in town. Think about you often - and don't ever worry that we will forget Riley. She was part of all our lives for those years she was with us - and she was so lucky to have you for a Mom. You were truly her advocate! Love you Nikki. Judie & Tom

Judie Arnold <tomjudie@mchsi.com>
Hibbing, MN USA - Saturday, July 9, 2011 4:10 PM CDT

Hi Nikki,
Thank you for your updates. I know that in time you will find your purpose and you will grow stronger. Hang in there--lean on family and friends to help see you through. Riley was blessed to have such a courageous mom!
Thinking of you,
Nellie
Nellie Glover <naglover50@yahoo.com>
Round Rock, TX USA - Monday, June 27, 2011 9:58 PM CDT

Nikki, thank you for connecting with me today! I love the pics of beautiful Riley! Wishing you a restful, peaceful night!
Nicole Newfield
Mahtomedi, MN - Monday, May 16, 2011 10:19 PM CDT

Nikki-
Thinking of Riley and you today. I heard you stopped by the picu and was very touched you remembered me. It was an honor to take care of Riley and she one special lady. I am so sorry for your loss- take care
Bre
bre blaskey
- Saturday, May 14, 2011 5:44 PM CDT

Hi Nikki, I was glad to hear about you. You're like one of my daughters and I think of you so often. You just keep going to work and one day you will find that the
cloud is lifting. It just takes time and it's something that will happen. Just get out on nice days or nights and go for a walk and enjoy some nature. That will get your heart started again. I wish you were closer so I could give you a hug. Take out your band rifle and throw a few and it will get you laughing. J. applied for a summer job coaching a rifle squad. Once you learn that you are good to go! Take care and know that our thoughts and prayers go with you. Riley is just smiling and knows that you love her every hour of every day of every week, of every year and she is a happy girl! Bless you, you are an angel too! Love, Sue
Sue Atkinson <tsatkin@prtel.com>
Fergus Falls, MN USA - Friday, May 13, 2011 10:35 PM CDT

Hi Nikki,
Thank you so much for the beautiful picture of your angel. It will be treasured!
I think it is wonderful that you plan to turn your grief into a meaningful way to assist others in their time of need. God can certainly use more "angels on earth" and it sounds like you are perfect for the job.
God bless you as you heal.
With love,
Nellie
Nellie Glover <naglover50@yahoo.com>
Round Rock, TX USA - Thursday, May 12, 2011 11:22 AM CDT

Nikki,
The privilege is all mine, really. Riley captured the hearts of many in her time here on earth, I just happened to be one of those lucky individuals. Grief is a difficult journey to embark on, and those of us who have done so understand that "punched in the stomach" feeling well. It's a horrible feeling to have. It's an honor to be able to visit the page of such a courageous family. Riley is a precious angel who was sent to us for a time, but she remains in our hearts FOREVER, though she is gone from our sight. Someday we will all be together in Heaven and I can only imagine what a wonderful reunion that will be. I think of you often, wondering how your days are going, wishing I could be closer to offer you more support. The distance is difficult, as I know if I were closer I could be there even to just give you a hug when you need it. Riley is never far from my thoughts. I think of the courageous and inspiring way she overcame so many obstacles in her life. She truly gave us all a unique perspective on God's special children. Of course, ALL children are special, but children with special needs teach us more than we could ever imagine. I thank you for keeping this website up, I trust that Riley and God will lead the way for you. There is a greater purpose here, that much is certain. Don't worry too much about finding out what that is or how it's going to happen. It will all happen in God's time according to His will. I understand all too well how difficult it is to put those words into practice, as I'm struggling with it myself. But I am keeping you close in my thoughts and in my prayers. Sending my love and my hugs from a distance.
Sami <slloydmiller@hotmail.com>
Fairmont, MN United States - Thursday, May 5, 2011 4:55 AM CDT

Nikki, I'm still thinking about you and imagining all the things Riley is now able to do. I imagine her playing with all the other little angels up there and know that she is in good hands. It will get easier but you are right it takes a long time. Praying with all my heart -- Erica T
Erica Triebenbach <etriebenbach@farmington.k12.mn.us>
Lakeville, MN USA - Friday, April 29, 2011 2:55 PM CDT

Dear Nikki & Aaron,
Please accept my most heartfelt sympathy. I just read the news about your precious angel and my tears began to flow. May God comfort you and bring you peace through all of the sweet memories you have of Riley. I will keep you in my prayers as you struggle through this most difficult time.
With love and sympathy,
Nellie
Nellie Glover <naglover50@yahoo.com>
Round Rock, Tx USA - Thursday, April 14, 2011 8:58 PM CDT

Dear Nikki
I am so sorry to hear about Riley. I was totally shocked when I heard. It has now been almost 3 year since Ulrike passed away. There is not one thing that anyone can say to you to make you feel better. This is something you have to work through on your own time. Please invite me on your facebook page (Mariska van Heerden) I would really like to talk with you more. It gets better but the hurt never goes away. She was part of your life for 6 years where you had to care and provide for her. Now she is is with Ulrike andd they are playing like the twins they were. Ulrike will take good care of her she has been waiting for her twin sister to join her. Lots of love to you and Aaron and know that we are thinking of you and keeping you in our haerts through this tough time.
Mariska van Heerden <mariska.vanheerden@gmail.com>
Brits, NW South Africa - Sunday, April 10, 2011 7:01 AM CDT

Dearest Nikki,

I truly hope you are doing well through your loss. I am very glad to see that the love and sympathy of those around you is helping you piece yourself back together. It must of been a remarkable journey through the up and downs and uncertainties of this unique condition your dearest daughter had. Though the pain of the loss of a child is almost unbearable, but I would venture to guess, you would not trade the experience or time you had with your daughter for the world. I too have had to accept I will out live my son Drew, but because of his condition, I have truly learned what it is to live and cherish life-both its highs and lows. God bless you and your mother and father. My deepest sympathy goes to your parents as well. Not only do they have to endure the loss of a grandchild, but they also have endure having their child face such a loss. However, they are good and strong people. If you ever need someone to converse with or need to step outside of the house, you are always more than welcome to contact me or come to my home in Woodbury where one child is ram rodding around wide open in a 300 plus pound electric wheel chair and two other kids are bouncing off the walls like a racketball-yes we put the FUN in disfunctional-but I wouldn't have it any other way.

Sincerely,

Jay D.
Jay Drazenovich <jjdrazenovich@gmail.com>
Woodbury, MN United States - Friday, April 1, 2011 11:36 PM CDT

Nikki:..... I don't know where to begin, but first.. I want to express my sincere sympathy for your sweet little angel.....You must be totally exhausted, but like you said... she is now running, eating, playing upstairs. Now she find many friends to play with. You must have no regrets... Go on with your life and hope God brings you much happiness!!!!!
Marge Frider, Secretary/HHS <margfrid@hibbing.k12.mn.us>
Hibbing, MN St. Louis County - Friday, April 1, 2011 7:21 AM CDT

Nikki - I just heard the news about Riley...I am so sorry for your loss but I know that Riley is up in heaven with her Angels. If you need anything you know how to get ahold of me. My thoughts and prayers are with you and your family.
Christie Doe <ChristieD@Roundbank.com>
Hampton, MN Dakota - Tuesday, March 29, 2011 11:41 AM CDT

Nikki,
I heard the news today and am so incredibly sorry. I know that words cannot take away any of the pain but please know that people are praying for you.
Jill Cufley
Chino, CA USA - Monday, March 28, 2011 11:21 PM CDT

Nikki - I am so sorry to hear of the passing of sweet little Riley and so honored that I was brought into your lives if only for a couple hours. I can't imagine your pain and I sit here with my heart pouring out to you. God bless you and your family, I wish you peace in your heart in this so difficult time.
Angela Boone <anglea@angelaboonephotography.com>
- Monday, March 28, 2011 5:52 PM CDT

I am so proud to have a cousin like you. You have been such a model of what a mother should be. You truly are the most amazing mother that I have ever met. You stood by Riley side and fought hard for her. Almost as hard as she fought and we all know she was a fighter. I can not imagine your heartbreak right now but hold on to the fact that she is in such peace right now, running and playing up in heaven. I love you so much and I am so sorry for your loss.
Rachael Newman
- Monday, March 28, 2011 3:37 PM CDT

im so sorry about ur loss but i know that we all had faith in her but she made it till five but she still in your arms ill pray and pray in till i will know she is in a better place know i love u nikki im 10 know and i love yall all and be happy!!!!!
danielle nicole guglielmetti <cutiepie_daniellee@yahoo.com>
abilene , texas u.s.a - Sunday, March 27, 2011 11:03 PM CDT

Dear Nikki, it has been so long since I have checked in on caring bridge and I heard through face book today about Ms. Riley. I have no words and I am so very sorry. She reminded me so much of my Sara, my heart breaks with you.
Barbara Hoffman (Sara's Hoff'man's Mom) <tooie724@yahoo.com>
Califon, NJ - Sunday, March 27, 2011 3:17 PM CDT

Lignells, All of you are in my thoughts and prayers. I think Riley helped Nikki see her true potential as much as Nikki helped Riley reach hers. I know Laura and Buzzy have been there for both of you throughout. Lots of prayers for everyone. Linda
Linda Sibell <glsibell@mchsi.com>
Hibbing, MN USA - Sunday, March 27, 2011 2:32 PM CDT

Our love and prayers go out to you all right now. We are so very sorry for your loss.
Courtney and Patrick Arbour
Austin, TX - Sunday, March 27, 2011 6:54 AM CDT

Nikki and Family,
Please know that you and your family are in our constant prayers. I can only imagine your pain, but know that Riley is at her most joyous now and that she lived the life she had because you made it the best it could be for her and were beside her every step of the way. I will pray for peace for you and your family. Please know we will keep you in our thoughts and prayers, Mary and Julianna White
Mary and Julianna White <misstampamom@comcast.net>
Venice, FL USA - Saturday, March 26, 2011 7:56 PM CDT

Nikki and family,
You all fought the valiant fight, and you had her for a time. A gift from heaven. Riley was blessed to be loved and cared for by you. God chose you special when He sent her to you. He knew you were the best for Riley. She is with the Lord now, dancing in front of His throne.

In the most beautiful of gardens, even those tended by the most skilful of botanists, there is an occasional rose that buds, but never opens. In all respects the rose is like all the others, but something keeps it from blooming. It fades away - or disappears - without having reached maturity.
What happens in nature's garden happens once in a while also in the garden of God's human family. A baby is born, beautiful, precious, but fails to come to its rightful unfolding. This child, like the bud that never fully opens, is gathered back into God's heavenly garden of souls - where all imperfections are made perfect; all injustices made right; all mysteries are explained; and all sorrows turned to happiness.

We continue to pray for peace comfort and joy for you and the family.
Pastor Mike and Laurie Anderson
Mike and Laurie Anderson <manderson55765@frontiernet.net>
Toivola, MN US - Saturday, March 26, 2011 1:20 PM CDT

Nikki, There aren't words to express how we feel here. It is a terrible loss, and I know nothing will ever make this bearable except faith that God has her now, and she can walk, talk, eat, laugh, see, and be totally safe. You and Aaron will see her again some day, at least you got to be with her, in this transition, I regret her daddy couldn't. I know how this feels, when I lost my own baby many years ago...it is not easy to bear, but you go on, and make their lives worth sometHing here. She left a true impact on many people, and you can be proud of all she did do, in her short time. Bless God and Praise Him , in all things.
charla Fowler <charla.fowler@yahoo.com>
Abilene, Texas US - Friday, March 25, 2011 11:18 PM CDT

Nikki & Riley, I just received a message from Laura on Facebook, explaining the current situation. We just wanted to let you know that we are praying continuously for you both. It is an inspiration to us to see how you two pull through the hard spots. Not necessarily without tears, and hurting hearts, but you have pulled through. Not many people would walk the walk that you and Riley have walked. God bless you for that. I pray for a good outcome in this trial, and I pray for peace and comfort for both of you. May the Lord hold your hand and guide you through this. May you know that he loves you both dearly, even though you do not always understand why things happen as they do. He does not bring us to any situation that He cannot or will not get us through. You have both touched many people's lives, and let them see true faith and love in action. Blessings to you both.
Pastor Mike and Laurie Anderson
Mike and Laurie Anderson <manderson55765@frontiernet.net>
Toivola, MN United States - Friday, March 25, 2011 4:44 PM CDT

I was not prepared to read this particular entry. It is my sincere hope and prayer that things are going as well as possible with Miss Riley. I sure miss her and you guys, hopefully when the weather is better I can either come to the cities to visit or you can come down here. Praying all is well.
Love, Sami
Samantha Lloyd Miller <slloydmiller@hotmail.com>
Fairmont, MN US - Monday, March 14, 2011 7:57 PM CDT

Hi Nikki and Riley,

Thinking about you both! hope you are doing well! I am glad that Ms. Riley is doing good! Keep me posted!!!

I would love to see you guys so when you get home and settled in, I will have to stop over!

God Bless,

Anna
Anna Sheridan <agsheri313@yahoo.com>
Farmington, mn USA - Friday, March 11, 2011 9:20 PM CST

Dear Nikki and sweet Riley, I check the site weekly, to keep up on her progress. I was so frightened when this last hospital visit happened, prayed with Aaron and trusted God to do the right thing for all of you. I hope she continues to pull that inner will , when she needs it most, it seems she has a supply of it that never ends, and I am so happy that you and she have that strength. I am so sorry you both have to go thru these things, it drains a Mommy and Daddy, but God was good, and kept her safe. Just know this, tho I can not come to Minnesota, my thoughts and love are there, even tho you may not feel it, or think so. Stay strong, rest, and know this: family in Texas speaks her name, and prays for her, and you, Nikki. Always...Charla
charla Fowler <charla.fowler@yahoo.com>
Abilene, texas US - Sunday, March 6, 2011 7:55 AM CST

So sorry to hear Riley is in the hospital. She is so amazing and a real fighter. You and Riley are in my prayers and thoughts.
Bev Olson
Bev Olson
Prior Lake , MN USA - Monday, February 28, 2011 8:34 AM CST

Nikki, I check every week and have been so thankful to not see Riley's name on Cbridge. God bless you both for all you have gone through. That child has 19 lives, I am sure! Take care of Riley and you and we hope all is well quickly. Love, Sue
Sue Atkinson <tsatkin@prtel.com>
Fergus Falls, MN USA - Sunday, February 27, 2011 9:01 PM CST

Just checking in for an update. Hope everything is going well. Happy belated Birthday Miss Riley bug! I hope 2011 brings many blessings and wonderful things for all of you. Keeping you close in my heart and in prayer. Sending lots of love!
Sami
Samantha Lloyd Miller <slloydmiller@hotmail.com>
Fairmont, MN USA - Monday, January 10, 2011 1:02 PM CST

Happy birthday Riley!

www.caringbridge.org/al/mamieadams
Mamie's Daddy
- Monday, December 20, 2010 8:36 PM CST

Hey, Nikki and Riley! Been thinking about you guys, especially this (often difficult) time of year. I know it's mixed for you, with riley's 6th birthday coming up SOON, too! I heard she's been under the weather lately. Here's hoping and praying for the best for her (and you!) Miss you guys!
Marcia Borka <mborka@farmington.k12.mn.us>
Farmington, mn - Friday, December 10, 2010 11:09 AM CST

Hi Nikki, Aaron, and Sweet Riley,
It's been a long time since I checked in with you and so much has happened. I would love to visit with you sometime via email. You are a wonderful mom, Nikki! Aaron, please drop me a line!
Take care,
Nellie

Nellie Glover <naglover50@yahoo.com>
Round Rock, TX USA - Sunday, November 14, 2010 7:36 PM CST

Riley -
I'm so glad that you are home and feeling better!! You are so blessed to have such an awesome mom who takes such incredible care of you. We all miss you here at school. We know you want to get strong and healthy before you come back, but just know that we talk about you each day and look at your picture! We are all excited for the day you come join us again here at Riverview.
Hugs!!!
~Miss Theresa and class :-)
Theresa
- Tuesday, November 2, 2010 5:00 PM CDT

Nikki, Just read your latest entry and was sorry to read things have not been going well for Riley. Please know that we keep Riley and you in our prayers. You are the mother every child should have. Stay strong and keep fighting for that little girl.
Linda Sibell <glsibell@mchsi.com>
Hibbing, MN USA - Saturday, October 23, 2010 7:43 PM CDT

I never stop praying for you & Riley. Stay strong.
Annetta Kokkinen
Pengilly, MN United States - Saturday, October 23, 2010 9:28 AM CDT

Nikki, Little Miss Riley is so precious! She is a wonderful little girl. You stay strong and keep fighting for your daughter. You KNOW your daughter better than the doctors or anyone else. Thoughts and prayers are with you! Let me know if there is anything I can do. **HUGS**
Karen Stepp (Shepersky) <karen_1975@hotmail.com>
North Branch, MN US - Thursday, October 21, 2010 8:05 AM CDT

Thoughts & Prayers are with you everyday!!!
You are right- you know YOUR daughter so
you stand up for what u believe girl!! Hugs!!!
Jenny Hilde Davidson <Raydavid412@yahoo.com>
Hibbing, MN - Wednesday, October 20, 2010 7:34 PM CDT

You are all in our thoughts and prayers! Please, Please, Please, let me know if there is any way I can help! God be with you!
Jessica Dexheimer
Maple Grove, MN 55311 - Wednesday, October 20, 2010 4:58 PM CDT

Nikki and Little Miss Riley,
Thinking of you and praying for some answers... Will keep you both in my prayers.
Susie Cencich <scencich@q.com>
Chisholm, MN US - Monday, October 18, 2010 2:03 PM CDT

She's on my prayer list!
Erica Triebenbach <etriebenbach@farmington.k12.mn.us>
Farmington, MN USA - Monday, October 18, 2010 11:05 AM CDT

Miss Riley Nicolle is just absolutely beautiful and blessed in every way. I will keep her in my prayers. I'm glad to see that she has family and friends here to support her.
Shawnte J. <braydensma@aol.com>
Chicago, IL - Wednesday, October 13, 2010 5:59 PM CDT

Nikki!
It's been WAY too long since we have seen each other! I miss you and Aaron and Riley. Riley is so precious and such a beautiful girl. I can't believe she is already going to begin school. It just doesn't seem possible. I think of you often. Please give Riley kisses for me.
Love, Sami
barryandsami.blogspot.com
Sami <slloydmiller@hotmail.com>
Mankato, Minnesota USA - Sunday, July 25, 2010 10:43 AM CDT

I think it's such a healing process for you Nikki to write in this journal--we hear you and are with you praying for guidance! Your thoughts are VERY normal and we pray for peace for all of you to function on a daily basis!! May life always bring you the very best!
Jennifer Myre <innermarie@hotmail.com>
Tucson, AZ - Wednesday, June 30, 2010 1:23 PM CDT

Hope y'all are able to get out and have a bit of summer fun with your beautiful little girl,I sincerely wish the best for your family.
Lisa Hunter <thelahuntress@yahoo.com>
Mobile, AL USA - Thursday, June 17, 2010 7:33 PM CDT

Nice to meet you at the lab today. Your daughter is very special.
Sheila Scheele
Prescott, WI - Thursday, June 17, 2010 12:37 AM CDT

WOW, Riley looks amazying!! I showed Ethan the picture and he mentioned how big she is getting! Like always, you guys continue to be in our prayers. I hope you are able to enjoy the summer! Remember, one step at a time~even if you have to do baby steps, it is better than not trying at all:) Love and Miss you~
Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN - Friday, June 4, 2010 5:32 PM CDT

Nikki, I just checked to see how you 3 were doing and there you were, all freshly updated! I figure no news is good news! I understand all that you wrote and what you were saying. Even if you can get out and go for a quick 10 minute walk on a beautiful day, you'll feel better! You don't have to suntan until you BURN like you did in Hawaii, but just getting some sunshine will help your mood and stress level. Give Riley a big hug form Mrs. A and know that I think of you often and hope you have a wonderful summer. Just love Riley and God will take care of her. Love, Sue
Susan Atkinson <tsatkin@prtel.com>
FERGUS FALLS, MN USA - Tuesday, June 1, 2010 10:23 PM CDT

hey i miss yall so much and i hope yall and riley get better i pray each night non stop to pray for my own cousin i looked at your pictures and you are so cute i hope you get better love danielle guglielmetti danis kid
danielle nicole guglielmetti <cutiepie_daniellee@yahoo.com>
abilene, texas usa - Tuesday, April 13, 2010 7:04 PM CDT

Awww what a beautiful angel.. I will keep her in my prayers. My baby was born with HLHS hypoplastic left heart,(half a heart) So I can kinda understand what it's like to have a child who is so sick and every breath you take is for your child in hopes it will make them better. God Bless Riley and your family
Sheree Gallegos <sheree_gallegos@yahoo.o>
Houston, tx us - Tuesday, March 30, 2010 0:22 AM CDT

Good evening. This is Rylie Crenshaw's Grammy and I just wanted to let you know that your post on her fan page was touching. I help her mom administer it to give her time to take care of Rylie. I do not worry about Rylie because I know she is in God's hands; however, I do worry about my daughter, Dina. She has had such a sheltered life and was so naive and unknowing prior to this. Her life is in total chaos and she is coping much better than I would have ever thought her capable of doing. Your kind words and advice came at such the right time, as she was severly frustrated. Thank you for being an angel on earth and helping her trust in God to get her through this. I am quite sure she will contact you personally. She and Rylie are back in the step down unit at the hospital which keeps her away from her 2-year old son which just adds to the frustration. But when we give control to God...it all will follow. Your daughter is amazing and blessed to have you as parents.
Marlene White <ballamama@windstream.net>
Iola, TX USA - Monday, March 29, 2010 11:08 PM CDT

Hi my name is Michelle and i too have a daughter that was born of these same conditions and was also hydro cephalus and i was these same things and even worse, the doctors tried to get me to abort her..My Amanda is now 17 and goes to school and is in the 10th grade she has some disabilities, but lives a mostly normal life, soo don't give up hope..
Michelle Nida
Lindside, WV US - Monday, March 29, 2010 5:58 PM CDT

Hello Riley, Nikki and Aaron!
I've been thinking a lot about you guys since July, but haven't been able to check up on you since we just got hi-speed yesterday (!). Sorry to hear the you're in the hospital yet again, but she's such a fighter that you'll be home again soon. We'll keep you in our prayers - Vincenzo's looking down on her fondly as well...
Suzanne and gang
Suzanne Coviello <mncoviello@gmail.com>
East Bethel, MN USA - Wednesday, January 27, 2010 12:25 AM CST

Hey Miss Riley, Nik and Aaron,
I talked with mom lastnight and it sounds like Riley is feeling a little better. I am so glad they figured out how to get her IV in alot easier. Since Kendall was out to lunch with you Auntie Icky all she does is asks "Is my Riley feeling better today?" She keeps telling me she is going to go and see her and paint her nails so she feels better. She had a blast with you and can not wait for Riley to get out of the hospital so we can come over and have a play date. Riley, you stay strong little girl. We love you and miss you so much. Call us if you guys need anything.
Jerry, Hayley, Blake and Kendall <h_towngirls@yahoo.com>
Montgomery, MN - Sunday, January 24, 2010 8:15 AM CST

We continue to pray for Ms. Riley! Hope you get out of the hospital soon!! Let me know if you need anything! Miss you!

Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN USA - Saturday, January 23, 2010 11:46 AM CST

Thinking of all of you and continue to say a prayer for "Miss Riley" every day. Hope your hospital stay is a short one and that you will soon have your little angel home with you again.
Judie Arnold <tomjudie@mchsi.com>
Hibbing, MN - Friday, January 22, 2010 8:40 PM CST

Hi Riley et all-
Sorry to hear you guys are at the Hospital again. I am hoping and praying for you that all will be ok soon.
Miss you and love you all very much,
Lee
Leanne Barker <lmbarker@charter.net>
Superior, WI - Thursday, January 21, 2010 9:15 PM CST

I have not visited the website in roughly a year (for reasons unknown, as I think about it!), I found myself clicking on to this link, with two very extreme emotions: the first was absolute FEAR that when I clicked, there was a chance that Riley had earned her Aicardi Wings, and how awful I would feel for having never acknowledged it. My next emotion was sheer HAPPINESS and AWE (ok, 3 emotions!) for what Riley has been through and the battle she has waged! Not to mention the courage and strength you and Aaron face each day. I have never met you, however the three of you have held a special little spot in my heart since the day Riley was born, and Gramma Laura called to brag about her new princess! Never, has one family had such a strong presence in my heart, without having never met. I just read through a year of journal postings, with tears streaming down my face, my heart aching terribly for you all. And at the same time, I'm SURE I had a smile on my face from witnessing the truest, most honest love I think I've ever had the pleasure of seeing. I will not pretend to have any idea how this journey has been for your family, highs or lows, but I will say that as a mom of young children, you have beautifully expressed the extreme emotions we, as parents, feel in regards to our children. There is no love as pure, no pain as raw, and no pride as great than that of a parent. You have truly shown me, as you have with many, an amazing example of this. THANK YOU. Thank you for allowing to see into your world. Thank you for the numerous lessons you've taught. Because of Riley, I will smile. Because of you and Aaron, I will smile. And I will continue to pray. God bless you all, each and every day.

P.S. Everytime you spoke of Dr. Awful, I could feel my chest tighten and my "mother bear" instinct kick in. Don't EVER let a "professional" tell you what is best for YOUR child; let your child tell you.
Shannon Nordby <shannon.nordby@state.mn.us>
Virginia, MN USA - Thursday, January 21, 2010 1:48 PM CST

How's my girl?! It's BreeAnna the Rt that has put you through heck and back. I've been thinking about you guys since I have been in the NICU and not in the PICU, but last I heard you were checking out Gillette. I hope all is well and Riley I forgot to mention we share a birthday lovey!! That's why you stole a place in my heart! Hope all of you are well. Happy holidays.

BreeAnna <long792@msn.com>
- Friday, December 25, 2009 2:37 AM CST

I had the honor of speaking with Riley's father when he called into Verizon Wireless customer care one morning and her story touched me so. May God bless you and your family and continue to keep Riley each and every day.

Sindy Gaillard-Britt
Saint George , SC Dorchester - Monday, December 21, 2009 8:41 PM CST

Dear friends,
Happy Birthday Riley!!!!!! Wow, 5 years old already and such a beautiful little girl you are.
Congratulations to you all in your loving efforts to remain a family and I'm praying for you to have a wonderful Christmas and a blessed New Year 2010.
love,
Pat Schwartz
Patricia Schwartz <schwja@ndsupernet.com>
Mott, ND - Monday, December 21, 2009 8:31 AM CST

HAPPY BIRTHDAY, RILEY!! May God bless you and keep you healthy and happy at 5 years Old!!
Merry Christmas and Happy New Year!

Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN USA - Sunday, December 20, 2009 4:52 PM CST

Happy birthday Riley!

I'm praying for you and your family and wishing all of you a blessed Christmas season.

www.caringbridge.org/al/mamieadams
Mamie's Daddy
Huntsville, AL USA - Sunday, December 20, 2009 12:17 AM CST

Good to hear Riley is doing so well:) And the pictures turned out beautiful!
Bre-riley's U nurse
- Tuesday, December 15, 2009 4:53 PM CST

Glad to hear she is doing so much better! Hope you all have a Happy and Healthy Holiday season. I think of you and your family often Nikki! God Bless!
Jessica Waara <waara008@umn.edu>
- Thursday, December 10, 2009 1:24 PM CST

Your pictures are beautiful, thank you for sharing them! I was checking in to say Happy Thanksgiving. And, Nikki, Happy (belated) Birthday to you :) Wishing you all a wonderful day and much love.
Lori Larson <ljsteichen@hotmail.com>
Glenville, NY - Thursday, November 26, 2009 9:59 PM CST

Beautiful pictures. I am so proud to hear that Riley has come so far in these few short months. Please know that I am keeping you in my thoughts and prayers.
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Tuesday, November 17, 2009 9:51 PM CST

Dear Nikki, Aaron, and Riley, Thank you for sharing the beautiful pictures of your family. Riley is loved, that we can tell! When we didn't hear from you since early Oct. I figured no news was GOOD NEWS and I was right! So glad everything is on an even keel. Keep up the great work!
Love to you all, Sue Atkinson
Sue Atkinson <tsatkin@prtel.com>
Fergus Falls, MN USA - Friday, November 13, 2009 1:38 PM CST

Oh My Goodness! The pictures are so beautiful! I thought I was strong enough to look at them but I had tears of JOY with knowing how far she has come. I can only imagine how hard it was for you to look at them. She is such a precious and amazing girl! Hard to believe she will be 5 soon! Thank you for sharing the pictures. We continue to pray for you all! May God bless you with good health and happy memories!

Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN - Thursday, November 12, 2009 4:12 PM CST

Beautiful picture of sweet Riley! Thank you for sharing this page with me so that I can see your darling girl and learn more about Aicardi syndrome. Hope you are well.
Stacey Klempnauer <sklempnauer@hotmail.com>
Northfield, MN USA - Thursday, November 5, 2009 2:35 PM CST

I LOOK FOR YOUR UPDATES EACH DAY, AND HOPE ALL IS WELL FOR YOU, AARON AND RILEY. JUST KNOW THAT EVERY DAY, YOU 3 ARE IN MY THOUGHTS AND PRAYERS. LOVE YOU SO MUCH.....MOM
CHARLA FOWLER <imacharla@yahoo.com>
Abilene, Texas United States - Monday, October 26, 2009 2:35 AM CDT

Continued prayers and love! We do check the site still often to make sure all is "happy" and "healthy"
in your home!
Jennifer Myre <innermarie@hotmail.com>
Tucson, AZ U.S. - Thursday, October 22, 2009 3:19 PM CDT

this is sad i hope she is ok i love yall so much i havent saw yall in a long time
danielle guglielmetti-dani brown <cutiepie_daniellee@yahoo.com>
abilene, texas u.s.a - Saturday, October 17, 2009 9:53 PM CDT

We continue to keep Riley in our prayers for good health over the winter! Always thinking about you guys. God Bless you and keep you all healthy, happy and stress-free!
Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN - Tuesday, October 6, 2009 10:53 AM CDT

Continued prayers for your little angel as well as for you both & your whole family.
Annetta Kokkinen <annekokk@hibbing.k12.mn.us>
PENGILLY, mN United States - Tuesday, October 6, 2009 10:37 AM CDT

Dear friends,
O I am so sorry to learn that Riley has been so sick again-it was good when you were at home and happy. I'll continue to keep you in my thoughts and prayers.
love,
Pat Schwartz
Patricia Schwartz <schwja@ndsupernet.com>
- Friday, October 2, 2009 12:41 AM CDT

Nikki, Aaron, and Dear Riley, Our thoughts and prayers are with you all. You're in the right spot for her care because they know what they are doing for Riley. Just know we are thinking of all of you and praying that her problems will be solved quickly. Love, Sue A.
Sue Atkinson <tsatkin@prtel.com>
Fergus Falls, MN USA - Friday, October 2, 2009 9:07 AM CDT

WOW///// How enlightening..... That is all I can say... Keep up the good work!!!!
When is the party????
Marge Frider <margfrid@hibbing.k12.mn.ua>
Hibbing, MN USA - Monday, September 21, 2009 11:38 AM CDT

Nikki - I just read your update and you sound SO HAPPY. You and Aaron certainly deserve to enjoy happy days with sweet Riley. Although I haven't been in touch...you guys have been in my prayers. Things are always CRAZY here, but Madeline is healthy which we are so grateful for.
Love & Hugs to Riley...and you too! Lv, Patty
Patty McKimmey
Anaheim Hills, CA USA - Thursday, September 17, 2009 0:17 AM CDT

So happy to hear that Riley is continuing to be so active and talkative! You all remain in my prayers to keep up the good and ward off any bad!!
Kristy (Murray) Van Den Broeke <krisvanden@yahoo.com>
Waconia, MN - Wednesday, September 16, 2009 12:48 AM CDT

Hi Nikki! I am so glad to hear that things are going so well and your little girl is home! I will swing by the hotel sometime in the next few weeks and say hi:)
Holly Smith <holly_iverson@yahoo.com>
Minneapolis, MN USA - Wednesday, September 16, 2009 8:48 AM CDT

WOW WOW WOW WOW!!! Just read your page and it is so uplifting. Keep up the good work little Riley - we are so happy for all of you. Clyda P
Clyda Prosen <bobclyda@aol.com>
Eveleth, MN - Monday, September 14, 2009 12:48 AM CDT

SOOOO happy to hear that Riley is doing so well. I know it must be very hard leaving her for work Nikki, but I'm sure in time you will grow more comfortable with that also. Continued prayers for all of you. Love, Judie
Judie Arnold <tomjudie@mchsi.com>
Hibbing, MN - Sunday, September 13, 2009 11:13 AM CDT

Nikki--you guys are in my thoughts a lot! I am glad to hear that Riley is doing so much better. Give her a big hug from us!!
Carrie
Corvallis, OR - Saturday, September 12, 2009 10:52 PM CDT

I am so glad that Riley is home and you guys are doing good.Getting a little more rest for the parents should be a priority now but that is easier said than done.
Hang in there!!!!! Riley's pictures show that she is really growing-thank you for sharing.
love,
Pat Schwartz
love, Pat
Patricia Schwartz <schwja@ndsupernet.com>
Mott, ND - Thursday, September 3, 2009 6:12 PM CDT

Thanks for the pictures Nikki - you both look great!! So happy to hear things are going well and you are enjoying time with Riley at HOME! See you soon!
Carla <carlaannebarker@hotmail.com>
St. Anthony, MN - Tuesday, September 1, 2009 12:25 AM CDT

Just had to "stop by" and check in to see how Riley is doing since discharge. You look great Nikki...but more importantly, I can tell you are such a fabulous mom to Riley. She's such a lucky girl to have you! Thank you for reminding me how important it is to do and enjoy the "little things" in life... Some days they just seem to pass by... I will try to remember to enjoy each and every one of them!
Continued thoughts and prayers for Riley to continue doing well!

Gina Marinucci Maki <ginanandy@msn.com>
- Monday, August 31, 2009 9:55 PM CDT

Hi you all.
I am so glad that Riley is doing so much better and that everything is fine and she is at home. I really miss talking to you and keeping up to date with you all. I have been really busy the last few months. I just want to tel you that Ulrike's sister just turned 1 on the 11th of August 2009 and that I am pregnant again. Everything with baby looks fine at the moment. Please give a huge hug and lots of kisses to Riley from us. Miss you lots and lots.
Lots of Love Mariska van Heerden (Mommy to Aicardi Angel Ulrike van Heerden)
Mariska van Heerden <debiteure@lantic.net>
Elandsrand, South Africa - Monday, August 31, 2009 5:00 AM CDT

LOVE LOVE LOVE THE PHOTO'S PRINCESS RILEY IS SUCH A STAR
LOVE AND HUGS
XXXX
Mary <baabaa2867@yahoo.co.uk>
- Saturday, August 29, 2009 6:10 PM CDT

God is truly great!! You go, Girl. What a fighter. She will continue to be in my prayers. Best to all of you.
Annetta Kokkinen <annekokk@hibbing.k12.mn.us>
Pengilly, mN United States - Friday, August 28, 2009 9:05 AM CDT

Go Riley Go!!!!!!
HOw great to have some good news. Prayers continued for all of you.
love, Pat Schwartz
Pat Schwartz <schwja@ndsupernet.com>
Mott, ND - Wednesday, August 26, 2009 9:24 PM CDT

It's great to hear that Riley is doing so well. Also, exciting news that was posted on the Aicardi listserv - Vigabitrin has gotten FDA approval and will soon be available in the US!! I figured you were too busy to be following the listserv, and I knew you would be happy to hear this!! Here's the link: http://www.fda.gov/newsevents/newsroom/pressannouncements/ucm179855.htm
Michele <michele.rosner@gmail.com>
Slinger, WI - Wednesday, August 26, 2009 2:22 PM CDT

What a wonderful miracle!!!!! You and AAron are two of the most amazing people I know....she is so darling... Hi to Gma and Gpa Lignell. Let me know when the party up here is for Riley

Margie Frider <isd701@hibbing.k12.mn.us>
Hibbing, MN United States - Tuesday, August 25, 2009 7:35 AM CDT

What beautiful pictures of your Warrior Princess! Glad to hear she's talking and giggling, too. Will keep you all in my prayers. Please keep updating as you find time to do so. I couldn't imagine being at work full time with a child in the hospital. Maybe someone will win the lottery and gift you some money so that you don't have to have that burden?!?!? One can only hope. Stay strong!
Kristy (Murray) Van Den Broeke <krisvanden@yahoo.com>
Waconia, MN - Monday, August 24, 2009 11:59 PM CDT

What a beautiful angel you have!! Continued prayers for a quick recovery & her return to her home. Glad to hear she is laughing & playing.
Annetta Kokkinen <kokkinen@scicable.com>
Pengilly, MN United States - Monday, August 24, 2009 9:18 PM CDT

I am glad Riley is going home soon. She is such a fighter. I am praying for all three of you.
Jenny Carlson
Farmington, MN - Monday, August 24, 2009 7:04 PM CDT

I am so glad to hear that things are going well at Children's. She looks absolutely great in the pictures!!! She is quite a little trooper. I hope that you and Aaron are holding up well. The best of luck to you all and continued prayers for your little sweetie!!!
Amy Casavant <acasavant@min.midco.net>
Rugby, ND USA - Monday, August 24, 2009 6:50 PM CDT

Keeping you on our prayers. Looking forward to that entry when she gets a ride home and the wheels are turning smoothly at home too.
clyda <bobclyda@aol.com>
Eveleth, MN - Sunday, August 23, 2009 4:42 PM CDT

Nikki, Aaron & Riley,
I see Riley is back in the hospital and I hope everything is going ok.
We are back at U of M Children's Hospital. After going home, Braden has almost completely recovered from his illness, but it had damaged his stem cells. He now has Aplastic Anemia and is getting chemotherapy, and will probably need a bone-marrow transplant.
Everytime I go to the lounge, I think of you guys, and how nice it was to have met you two.
Please email me. I would like to get in touch with you outside of caringbridge and see how you guys are holding up. We need to keep each other strong!
Take care and hope to hear from you soon.
Paula & Shannon Brown
Paula Brown <brown253@hotmail.com>
Baldwin, ND USA - Sunday, August 23, 2009 12:46 AM CDT

So glad to see the update. Can't wait to see the pictures!
Thoughts and prayers to all of you.
Sandy Raiche <sraiche@umphysicians.umn.edu>
- Sunday, August 23, 2009 12:03 AM CDT

THANK YOU SO MUCH FOR THE UPDATE
POSITIVE WISHES THAT RILEY GETS HER RIDE WITH MUMMY AND DADDY ON WEDNESDAY
LOVE TO YOU ALL
Mary
- Sunday, August 23, 2009 6:48 AM CDT

Dear Kids,
I am so sorry Riley is back in the hospital. I think of her, talk about her, send people to her page and pray for you all every day. the ups and downs of sadness, fear and then hope and happiness is exhausting, I feel so bad for you , and know you are going thru the trial of your lives. I watch the webpage constantly, and will be waiting for the prayer's answer..that you will be heading home with Riley soon, all better! I love you so...call sometime, my new number is (325) 672-3388...I love you all!...Mom
CHARLA FOWLER <birdylegs11@hotmail.com>
Abilene, Texas United States - Wednesday, August 19, 2009 7:39 AM CDT

So sorry Riley is back in hospital
Hope she is getting stronger
Love and Best wishes
Mary
- Tuesday, August 18, 2009 9:31 PM CDT

Hoping for a quick recovery this time! Always in our nightly prayers! Keep your head up and high, Riley is in God's hands and DO NOT let one man ruin your mood and motivation! He DOES not deserve your time or energy!
Jennifer Berklich Myre <innermarie@hotmail.com>
Tucson, AZ - Tuesday, August 18, 2009 9:27 AM CDT

I keep praying for all of you and checking out this web site. Hang in there, and be positive. I know what you mean about the sleeping arrangements at the U. I think I still have a neck ache from sleeping in a chair.( 4 years ago) I can't believe it has been that long since Brodey was there. We just go now for check ups! The rooms at Children's sound wonderful. Take some time for yourself and get the much needed rest.
KRISTI SKALSKY-LAMERE <kllamere@yahoo.com>
HIBBING, MN USA - Saturday, August 15, 2009 9:01 PM CDT

Dear Nikki, Aaron and Riley, It was a wonderful choice you made when you decided to go to Children's. I'm sorry Riley has to be in the hospital again, but we all know she is in good hands. And may you never run into another negative dr. After all, God is in charge, along with Riley, and her life is precious to Him and us. You take care and our thoughts and prayers are with you all. Jill sends her best to you too. Love, Sue
Sue Atkinson <tsatkin@prtel.com>
Fergus Falls, MN USA - Saturday, August 15, 2009 7:40 PM CDT

OMG !!!
I am so excited to hear that Riley got to go home. I bet words cannot express the joy. I am so happy for you guys.
You take care and gush all over that little girl and forget about the laundry :).
Love & Prayers do work!!!!!
Please call or email me anytime.
Love, Paula

Paula Brown <brown253@hotmail.com>
Baldwin, ND USA - Friday, August 14, 2009 9:59 PM CDT

Hi Nikki, Aaron and Riley,and grandma Laura if she's there,
I was so happy when Riley got to go home and now you are back at Childrens. My grandson Spencer is back in 5B this week for more chemo-I told Paityn's parents I wish I was there to hug all you guys again.
And boy I remember those 9 nights I spent in the family lounge so I;m really glad you have better sleeping arrangements. But if we hadn't been there I would not have met you. I am still amazed at your strength and some of it has rubbed off on Riley-who is just a doll. Thank you for sharing . I will be thinking of you and praying.
much love, Pat Schwartz
Patricia Schwartz <schwja@ndsupernet.com>
Mott, ND - Thursday, August 13, 2009 8:44 PM CDT

AAAHHHH!!!! What a kick in the stomach this all must be for you. More prayers for a quick return home with your little family intact. God bless you & keep you strong.
Annetta Kokkinen <kokkinen@scicable.com>
Pengilly, MN United States - Thursday, August 13, 2009 8:36 AM CDT

Sounds like I spoke too soon. Saying tons of prayers for you guys, and I have heard that Children's is an amazing place. You are for sure in the right place! Stay strong, but cry if you have to. It's good to have a cry once in a while, especially if you are very stressed out.
Sending all of my love and hugs!
Love, Sami
Sami <samlloydmiller@frontiernet.net>
Mankato, MN USA - Wednesday, August 12, 2009 11:42 PM CDT

WOOOOOO HOOOOOO!
I am soo glad that you guys are home where you belong! OUr prayers have worked again! God is good! I hope to be able to make it to the party, but I have to know a certain amount ahead of time just in case it falls on a day or weekend when I have to work. I will do my absolute best to be there, I haven't been able to see Riley for a long time, and I miss her. You guys too, of course. Sounds like things are really busy and you have some adjustments to make. But I know you can do it! I am so glad that you are home and that Riley is happy. What more can we ask for right?
Love and hugs,
Sami
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Wednesday, August 12, 2009 12:11 AM CDT

So happy to hear your little one is back home. I just read your sisters fb page and caught up on everything. My thoughts and prayers will be with you guys....
Take care!
Jacki Kubena McCue <Jfkubena@hotmail.com>
Hibbing, MN United States - Tuesday, August 11, 2009 10:35 PM CDT

Hi Riley,
I met your Daddy at CVS today while he was working. He was telling me all about you. I am glad to hear that you are okay, and are finally home. I have been in FUMC myself and know the doctors can be nasty sometimes! As I have read about you today, you are an extremely strong little girl and have a great will to live. Keep it up, prove all those doctors wrong!!

Love Always,
Anne, Terry, & Montanna (6 yrs)
Anne Rasmussen <aemr911@msn.com>
Shoreview, MN USA - Tuesday, August 11, 2009 7:37 PM CDT

I"m so excited to hear the good news! It was such a pleasure taking care of ms. riley and i'm so happy for her that she is home. I'll be checkin in to hear all the updates! Take care!
Bre <bblake1@fairview.org>
- Tuesday, August 11, 2009 2:19 PM CDT

I am so happy to hear that Riley is home! What a miracle! God is great! You're absolutely right that Doctors don't know- but God does and he obviously has a great plan for Riley in healing her at this time. I'll continue to pray for you all. I've been following her progress and am amazed. My family got to know your family a little when Caleb was in the hospital there and they too have been asking me how Riley has been doing! I too am learning what a blessing kids are and to enjoy each day and moment because we don't know how many we have left with them.
Lindsy Johnson <lindsy_jcl@yahoo.com>
Milaca, MN - Tuesday, August 11, 2009 10:21 AM CDT

Have been gone for a few days & was ECSTATIC to read the great news that you are now home. I will continue with my prayers for all of you. You have all shown great strength through all of this, & I know you will continue to be strong with all of the work you will need to do for Miss Riley. What a fantastic way to begin a week. God bless you all.
Annetta Kokkinen <kokkinen@scicable.com>
Pengilly, MN United States - Tuesday, August 11, 2009 7:30 AM CDT

YAY YAY FOR RILEY WHAT FANTASTIC NEWS "i'm sure you'll get into a meds routine fine we all do" LOL!!! I'm just so happy for you all and the AMAZING PRINCESS RILEY xxx
Just told Chloe that you are all home she gave a big smile and said HA HA (I THINK THAT'S GOOD)
LOVE TO ALL
AND LOTS OF GOOD WISHES XXXX
Mary Bunting <baabaa2867@yahoo.co.uk>
- Tuesday, August 11, 2009 0:57 AM CDT

Hi Nikki and Aaron,
So great that Riley is able to be at home! She certainly is an extrordinary little girl. The support from all your family and friends has certainly helped Riley be the superstar she is!
The teachers and in the ECSE programs and myself at 192 are following her progress and hoping for the best for Riley.

Carla Schulz <cschulz@farmington.k12.mn.us>
Farmington, MN - Monday, August 10, 2009 7:20 PM CDT

Yay!!!!!! So so happy for all of you. What a strong little girl you have!
Diane Hallila Passero <jojolo88@hotmail.com>
Edgewater, MD - Monday, August 10, 2009 7:04 PM CDT

What great news! Do we believe in miracles? Yes. Little Miss Riley is a living, breathing miracle. We are so happy for all of you. May you share much love and happiness in the days ahead.
Bob and Judy Steichen
Hibbing, MN - Monday, August 10, 2009 3:55 PM CDT

I CAN'T BELIEVE IT!!! I am soooo happy to hear that you are home and so happy that you were able to take her home. She truly is a miracle!!
Amy Jo Casavant <acasavant@min.midco.net>
Rugby, ND - Monday, August 10, 2009 1:25 PM CDT

I am so happy Riley is feeling better and at home. I am amazed at her recovery. She is a strong little angel. The pictures you posted are wonderful.
Jenny Carlson
Farmington, MN - Monday, August 10, 2009 12:36 AM CDT

Yay! Soo glad to come and see an update like this :) I am glad she is feeling better, what a little fighter. I hope you guys get some much needed rest in your own bed and home.

My thoughts are with you,
XOXO
Jill Cufley
Chino, CA USA - Monday, August 10, 2009 0:12 AM CDT

Riley, you are such an amazing little girl. You are such a fighter. Keep up the hard work.

Sara Liebaert <sel28@hotmail.com>
Superior, WI 54880 - Sunday, August 9, 2009 10:55 PM CDT

What a great day for you guys!!!! Thanks for posting all of the pictures. I'm excited to see more!
Carla Barker <carlaannebarker@hotmail.com>
- Sunday, August 9, 2009 10:48 PM CDT

Nikki--I am so thrilled for you guys that you are HOME! Such great news!! I am going to call you this week & check in on you guys. I bet it feels so good to be home as a family again!
Carrie
Corvallis, OR - Sunday, August 9, 2009 10:00 PM CDT

Whoo-hoo! That is the best news ever! You will all recover quicker at home, I'm sure. She reallu looks ready to go home in the pics! Congrats to all--I am so happy for you and grateful for Riley's miracle!
Marcia Borka <mborka@farmington.k12.mn.us>
Faribault, MN US - Sunday, August 9, 2009 9:43 PM CDT

I am so glad to hear that you guys finally made it home. Your Miss Riley is definately a fighter!
Stacy (Schloesser) Chartier <stacymarie8@charter.net>
Rosemount, MN - Sunday, August 9, 2009 9:08 PM CDT

God is Good!
I am so glad you guys are going to be headed home very soon. Our prayers are always with you, and I can not tell you how awesome it will be to finally hear that Miss Riley is home where she belongs!
Sending all of my love, always!
Love, Sami
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Sunday, August 9, 2009 7:28 PM CDT

YEAH!!!!! We can not wait till we get the phone call from you guys saying she is home. That call is going to be within days we just know it. Miss Riley you have amazed us all. You are such a fighter and you amaze us all everyday. We Love You All!!!
Auntie Hayley, Uncle Jerry, Blake and Kendall <h_towngirls@yahoo.com>
Montgomery, MN - Sunday, August 9, 2009 10:44 AM CDT

Thank you for sharing your wonderful news!! Riley is one tough cookie and I'm so happy to hear that she has been doing so well. Sending love and prayers to you all:)
Lori Larson <ljsteichen@hotmail.com>
Glenville, NY USA - Saturday, August 8, 2009 7:54 AM CDT

YEAH! Praising the Lord that you no longer are in NICU! As always, continued prayers and deep loving thoughts for you all! She is such a warrior princess! You and Aaron and warriors too!
Jennifer Berklich Myre <innermarie@hotmail.com>
Tucson, AZ - Friday, August 7, 2009 6:09 PM CDT

It is so wonderful to know some good news-never doubt the power of prayer. I am so very happy for you all.
Pat Schwartz <schwja@ndsupernet.com>
Mott, ND - Thursday, August 6, 2009 8:16 PM CDT

Awesome news
Barbara Hoffman (Sara's mom) <jbashoffman@embarqmail.com>
Califon, NJ United States - Thursday, August 6, 2009 6:10 PM CDT

Nikki and Aaron,
Teachers and staff in District 917 are celebrating the news that Riley is improving and things are looking much better for all of you now. Thanks so much for the detailed updates, and for being the cheerleaders that you are-- nurturing and supporting Riley with so much love, passion, and commitment. We think of her (and of you) every day.
Take care,
Terri
Terri Trexler <terri.trexler@isd917.k12.mn.us>
Rosemount, MN USA - Thursday, August 6, 2009 10:10 AM CDT

What wonderful news!! Little "miss Riley" is quite the fighter and there was definately someone up above watching over her! Thinking of you always and continued prayers that you will have your little angel home with you soon.
Love Judie & Tom
Judie Arnold <tomjudie@mchsi.com>
Hibbing, MN - Thursday, August 6, 2009 9:48 AM CDT

Yeah, Woohoo! That is awesome news that she graduated to a regular room!! Riley continues to amaze us in every way!! Please give her a big HUG for us!
Continued prayers

Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN USA - Thursday, August 6, 2009 9:22 AM CDT

What awesome news that Riley has been downgraded out of PICU! That in and of itself is amazing. And to hear that discharge may be imminent is glorious! Continued prayers and support always.
Kristy (Murray) Van Den Broeke <krisvanden@yahoo.com>
Waconia, MN - Thursday, August 6, 2009 0:25 AM CDT

I am so excited for Riley having been able to go for walks! That's amazing!! And even better is that she not only has been downgraded to regular oxygen, but that she tolerates it better the longer she's on it! So happy for all of you for the wonderful and amazing successes through the past few days. Continued prayers and support to all of you!
Kristy (Murray) Van Den Broeke <krisvanden@yahoo.com>
Waconia, MN - Tuesday, August 4, 2009 10:24 PM CDT

Wow fantastic news keep up the great work Miss Riley
Love and Best wishes to you all
xxx
Mary Bunting <baabaa2867@yahoo.co.uk>
- Tuesday, August 4, 2009 3:04 PM CDT

It is so nice to hear that Miss Riley has been having good days. I will keep praying that she will get even stronger and that you'll soon be able to take her home. Thanks for keeping us posted.

Stacy (Schloesser) Chartier <stacymarie8@charter.net>
Rosemount, MN - Tuesday, August 4, 2009 2:05 PM CDT

PRAISE GOD FOR HE IS GOOD. I will continue to pray even harder so that Princess Riley will be home with you very soon continuing to make your life a joy.
Annetta Kokkinen <annekokk@hibbing.k12.mn.us>
Pengilly, MN United States - Tuesday, August 4, 2009 10:26 AM CDT

YEAH!!!!!!! I am so proud of you little girl! I am sorry we have not been up there lately, but with us both having surgery it has been crazy around our house. I love you very much and you keept fighting everyday. Hugs and Kisses!
Auntie Hayley <h_towngirls@yahoo.com>
Montgomery, mn - Tuesday, August 4, 2009 9:51 AM CDT

Nikki/Aaron... There is a GOD!!!!! Prayer sooooo helps!! I am thrilled, as I know you all are..... Please let me know when the party is in Hibbing. We will keep praying.
Hi to gma and gpa.

Margie Frider <isd701@hibbing.k12.mn.us>
Hibbing, MN United States - Tuesday, August 4, 2009 7:57 AM CDT

Hi Nikki, Aaron and Riley,
What a wonderful way to start my day, reading such an upbeat super report on Riley! I'm smiling with tears of joy in my eyes for all of you! Your Mom was telling us at the quilt shop about Riley's walks around the ward, she was beaming, as were the rest of us. Best news ever!!
Keep it up Miss Riley.....you are incredible!
Thinking of you...
Bev

Bev DeGrugillier <beverlee50@hotmail.com>
Chisholm, MN - Tuesday, August 4, 2009 7:28 AM CDT

Praise the LORD!! and Riley, nurses,doctors, parents, grandparents, and all!! May the Lord continue to bless all of you! Riley is an act of God! Tears of happiness as I read your last entry!
Jennifer Berklich Myre <innermarie@hotmail.com>
Tucson, AZ - Monday, August 3, 2009 10:09 PM CDT

I am so happy to hear your good news! I can't stop thinking about Riley and your family. All the best to you and I will continue to pray for recovery!
Andrea (Dilley) Barker <andrea.barker@gmail.com>
Hastings, MN - Monday, August 3, 2009 9:22 PM CDT

I am smiling from ear to ear. It's wonderful to hear that Riley is doing so much better. We will keep all of you in our prayers and hope for a speedy recovery and for things to soon be back to 'normal'.
Keep it up, Riley!
Hugs from Michele and Julia(AS)
Michele Ertl-Rosner <michele.rosner@gmail.com>
Slinger, WI - Monday, August 3, 2009 9:05 PM CDT

That is absolutely wonderful. I have been praying that I would open your page and hear good news!!! You guys have been on a terrible emotional roller coaster!! Hope things continue to improve and that you get to take her home soon.
Amy Jo Casavant <acasavant@min.midco.net>
Rugby, ND USA - Monday, August 3, 2009 6:44 PM CDT

Dear Nikki, Aaron and Riley, May G-d give strength, wisdom and compassion to all of you and to all of Riley's care givers at this most vulnerable time of need. You remain in my thoughts and prayers daily.
Sandy Raiche <sraiche@umphysicians.umn.edu>
- Monday, August 3, 2009 11:40 AM CDT

How wonderful to hear that Riley has had some good days! I told my mom about her and my mom said she is amazed by the will and the strength children have, even more so by the ones who are faced with health challenges at such a young age. I told her, "Nikki calls her a Warrior Princess." Mom laughed and said, "I can definitely see why!" Know that we are all keeping your family in our thoughts and prayers always. And don't feel "bad" about venting the way you've been feeling through all of this! It has to be extremely difficult for you to have to hear not-so-positive news from the doctors, and you have to be able to get the emotions out somewhere! Where better than here? Everyone who reads the journal is not only checking in to find out how Riley is doing, but also checking on how YOU are doing! Stay strong and rejoice in the fact that you truly are witnessing God's miracles each and every day of your Warrior Princess's life.
Kristy (Murray) Van Den Broeke <krisvanden@yahoo.com>
Waconia, MN - Sunday, August 2, 2009 11:33 AM CDT

Fear is an emotion too and it's good to experience that too. So glad that you have this website to express what you are going through also. It's OK to be afraid, your allowed!! Love, sleep well, and peace to you all--

Jennifer Berklich Myre <innermarie@hotmail.com>
Tucson, AZ - Friday, July 31, 2009 12:18 AM CDT

I pray that God will continue to take care of Riley but of you & Aaron, as well. You need to be comforted. My heart goes out to you.
Annetta Kokkinen <kokkinen@scicable.com>
Pengilly, MN United States - Thursday, July 30, 2009 5:24 PM CDT

I am so happy to hear that things are looking brighter! Sending hugs and prayers to you and your whole family.
Jessica <waara008@umn.edu>
- Thursday, July 30, 2009 10:18 AM CDT

JUST READ YOUR JOURNAL AND EVERYTHING YOU'VE SAID IS SO A MUM THING U ARE ALL AMAZING
Chloe had her feeding tube done in may it was the most scariest thing in the world but I'm so pleased she's had it done she is pump fed through the night and then during the day if she's upto it she eats orally and most days she does It's less stress for me now cos even if she doesn't feed i know that she's had all the nutriants she needed in her night feed
Love hugs and best wishes to u all
xxxx
Mary Bunting <baabaa2867@yahoo.co.uk>
- Thursday, July 30, 2009 8:13 AM CDT

Hi guys, I keep checking the web to see how things are going and praying everyday for you. It is great that she is having good days. Stay positive!
Kristi Skalsky Lamere <kllamere@yahoo.com>
Hibbing, mn usa - Wednesday, July 29, 2009 8:34 PM CDT

We continue to send a million good thoughts and prayers your way. We're keeping our fingers crossed that things continue to look up for Riley!
Gina Marinucci Maki <ginanandy@msn.com>
Rochester, MN - Wednesday, July 29, 2009 7:35 PM CDT

I am so glad Riley is getting better. She is a fighter. :) You are in my prayers.
Jenny Carlson
- Tuesday, July 28, 2009 3:34 PM CDT

Hugs to All of you!! Thanks Nikki for letting us share in Little Miss Riley's life. Every morning I go to the website to see if there is an update. I have never met you, and yet I feel a part of Precious Little Miss Riley's life. You are incredible parents. Just wanted you to know how much I appreciate the updates. I pray for God's continual guidance & peace for you as parents, and for your precious little gift from God, Riley.
Susie Cencich <scencich@uslink.net>
Chisholm , MN - Tuesday, July 28, 2009 1:46 PM CDT

Nikki and Aaron,
I loved seeing the pictures. Riley is just beautiful! You guys hang in there and Miss Riley, keep fighting! Nikki, always remember, you and Aaron know your child best. The doctors know medicine but you know Riley! I know it's hard but stay strong. I am checking everyday for updates and will continue praying hard. Aicardi girls are the toughest, little people I know!

Maryellen Costa <MEC4ME@AOL.com>
Pelham, NH - Tuesday, July 28, 2009 11:24 AM CDT

Oh we gotta love these girls they are all such remarkable fighters and Riley is a shining example "keep fighting Girl"
I read your posts everyday just to check for updates and always read them to Chloe (2 days younger than Riley) and we always have an extra hug
So today we are sending you our extra hugs with lots of Great wishes for you all
xxxxxxxxxxxxxxxx
Mary Bunting <baabaa2867@yahoo.co.uk>
- Tuesday, July 28, 2009 8:52 AM CDT

Hello to all.... you people are amazing!!!! as is Riley.... Such and little"fighter", The love you have shown to this child is the strength to pull her through. Stay strong and life will go on for you guys and Riley.....Abide by God's plan for strength and encouragement.. Keep the faith. I think of you guys and pray for all of you every day.... you are on my prayer list. Again, hi to Gma Laura and Gpa Buzzy from the Friders!!!
Margie Frider <isd701@hibbing.k12.mn.us>
Hibbing, MN United States - Tuesday, July 28, 2009 8:36 AM CDT

DEAR KIDS
WHEN I GOT TO THE SITE AND READ THE ENTRY, MY THROAT CHOKED AND I FOUGHT BACK TEARS..I THOUGHT.."YES! YES!..THIS IS THE GOD I KNOW AND TRUST!"..AND THEN DECIDED WHY HOLD BACK TEARS, JUST CRIED AND CRIED AND THANKED OUR FATHER, WHO HAS HEARD ALL THOSE PRAYERS AND SEEN ALL THE AGONY OF HIS CHILDREN. I BELIEVE SHE WILL CONTINUE TO RALLY AND STRENGTHEN , AND THEN ON THAT WONDERFUL DAY, OPEN THOSE BEAUTIFUL EYES AND SMILE. I AM SO GLAD TO READ EVERY WORD, IT ALL IS A WONDERFUL NITE NOW, AND I CAN SLEEP A BIT BETTER, KNOWING HOW FAR SHE HAS COME AND HOW FAR YOU AND AARON WILL GO TO KEEP YOUR PRECIOUS LITTLE GIRL! I AM SO PROUD TONITE....NOW TO CONTINUE WITH THE PRAYERS, AS WE AREN'T OUT OF THE WOODS YET, BUT YOU CAN SEE SUNSHINE FOR THE FIRST TIME ,IN A LONG TIME! I SEND ALL MY LOVE...MOM
CHARLA FOWLER <birdylegs11@hotmail.com>
Abilene, Texas United States - Tuesday, July 28, 2009 1:30 AM CDT

I just don't think she is ready to leave you yet - & that doesn't surprise me because you two are just awesome. How exciting to be witness to a real life miracle! Keep the faith. God will handle this.
Annetta Kokkinen <kokkinen@scicable.com>
Pengilly, MN United States - Monday, July 27, 2009 9:07 PM CDT

OUR THOUGHTS AND PRAYERS ARE WITH RILEY AND YOUR FAMILY. GRANT & I WILL MAKE SURE WE LIGHT A CANDLE FOR ALL OF YOU. WE LOVE YOU VERY MUCH & WILL ALWAYS BE HERE IF YOU NEED ANYTHING. GRANT & I LOVE YOU VERY MUCH.
BETH STEICHEN MONSRUD <eamonsrud@hotmail.com>
HIBBING, MN ST LOUIS - Monday, July 27, 2009 9:07 PM CDT

I was so happy to read your entry today----the pictures are wonderful. She is quite the miracle....God's perfect little miracle!!! Praise Jesus!!!!
Rachael Newman <rachm1357@yahoo.com>
North Branch, mn - Monday, July 27, 2009 8:37 PM CDT

I know where Riley gets her strength--from her parents! Doesn's surprise me that she is fighting so hard-she has you two as examples! I'm so happy to read your last entry-you all deserve to have some good news for a change! Be blessed!
Marcia <mborka@farmington.k12.mn.us>
Farmington, MN 55024 - Monday, July 27, 2009 8:28 PM CDT

continuing to pray for all of you.
Barbara Hoffman (Sara's mom) <jbashoffman@embarqmail.com>
califon, nj United States - Monday, July 27, 2009 12:28 AM CDT

I can't believe how long Miss Riley's hair is getting! She is obviously fighting really hard right now, she's showing you that she's trying her hardest to beat this! Wow! She has amazed me, as you have, with the strength you have. I have been checking the site every day, and saying prayers for Riley and you guys. I am so glad she is fighting back. She is so beautiful! Once again, let me know if you need anything please let me know.
Love, Sami
Sami <samlloydmiller@frontiernet.net>
Fairmont, Minnesota United States - Sunday, July 26, 2009 10:18 AM CDT

Riley continues to amaze us! She is such a strong little girl. I love her hair in the last picture!! Such a precious girl! Continued prayers!
Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN USA - Saturday, July 25, 2009 10:21 AM CDT

We ahve so many people here in Florida saying prayers for Riley. Zack and Kate must ask me about every 10 mins how she is doing. You are all in our prayers. Please let me know if you need anything. Give Riley Kisses from her family in Florida
Elizabeth Shipley <mshipley7@cfl.rr.com>
- Saturday, July 25, 2009 0:22 AM CDT

Riley is obviously continuing to fight. She wants to keep soaking in all the love & care you two are giving her. NO ONE but God knows how long she has to be on this earth, but he will take her in his loving arms when it is time for her to return to Him. Keep up the fight that she wants you to engage in on her behalf. I can't believe a PLAN has been put in place without your knowledge. UNBELIEVABLE!!!!!!!!!! Stay strong, & may the peace of Christ be with you.
Annetta Kokkinen <kokkinen@scicable.com>
Pengilly, MN United States - Friday, July 24, 2009 4:23 PM CDT

Hi Nikki
just read your post and i think you should print it off and give a copy to each of the Docs and ask them to take it home and read when they are out of Doctor mode, it makes me so angry to be overuled by professionals who think they are doing things for our best interest "what a load of rubbish"
Anyway my love to Princess Riley and tell the girl to keep fighting Thinking of you all always x
Best wishes
Mary Bunting <baabaa2867@yahoo.co.uk>
- Friday, July 24, 2009 4:23 PM CDT

Riley is not on their time or your time, she is on God's time!!! He is taking care of her right now as he is giving you hope and strength and the knowledge to do what you think and feel is right at this point!!! They need to listen to Mom and Dad!!!! I love Dr. Rimmel!!!! He is a saint. I am praying for you guys!! Obviously it is not Riley's time to leave this earth because when it is time Riley and God will let you know....I am sure of that!! God Bless you all.
Amy Jo Casavant <acasavant@min.midco.net>
Rugby, ND USA - Friday, July 24, 2009 4:13 PM CDT

I am so upset and frustrated reading your last post. I can't imagine the horror you are going through right now. I wish I was there to give you a big hug! But, YOU ARE DOING THE RIGHT THING FOR RILEY! You have ALWAYS done the right things for her! I wonder how these "specialists" would feel if they had a child with Aicardi Syndrome.......hopefully they will never have to know what we go through. Love and Kisses to you guys!

Jessica and Sam Ihrig
Jessica Ihrig <jaybirdy22@msn.com>
Akron, OH USA - Friday, July 24, 2009 4:09 PM CDT

Every step she's taking and your taking with her seems to be in the right direction! She is so amazing and really a GIFT from God! May you have the power and will each and every single second, minute and day! Love and prayers always--
Jennifer Berklich Myre <innermarie@hotmail.com>
Tucson, AZ - Friday, July 24, 2009 10:34 AM CDT

Dear Nikki, Aaron and Miss Riley, You are all constantly in my thoughts and prayers. We are all walking by your side.
Sandy Raiche <sraiche@umphysicians.umn.edu>
- Friday, July 24, 2009 9:21 AM CDT

continuing to lift all of you in our prayers. anxiously waiting to hear how she is.
Barbara Hoffman (Sara's mom) <jbashoffman@embarqmail.com>
Califon, NJ United States - Friday, July 24, 2009 6:56 AM CDT

Nikki and Aaron....we are not always able to make some decisions, like doctors want us to make, but in Riley's case, I have one opinion..that SHE will make the decision. If she had no brain activity, then it would be obvious, but Riley is still here, with us all, and it isn't time to pull the help away from her that God allowed us to invent and use. Nikki, that would be MY criteria to the doctors, that when they see no Riley in her, when she herself has taken God's hand, and walked away, the you will know to let her body go...I hope that isn't blunt or tasteless to talk about , but it seems right to me. I love you all so much, and the prayers my friends have begun here in Texas still go up hourly, I think God is well aware of your's and Aaron's struggles, of your hopes and fears, and I know He will make the best decision for you all. Please give Riley a big kiss and caress for me..with love from us all here....MOM
CHARLA FOWLER <birdylegs11@hotmail.com>
Abilene, Texas United States - Friday, July 24, 2009 6:46 AM CDT

My fingers are crossed that all goes well she is such a fighter x stay strong
Always in my thoughts
Love and Best wishes
from
Princess Chloe and Family in UK xx
Mary Bunting <baabaa2867@yahoo.co.uk>
- Friday, July 24, 2009 1:16 AM CDT

i am so happy to see that riley got extubated. you go girl! i hope that she doesn't need a trach, but know that you are in the best place for her if that is the case. you have all been through so much and have come so far. it was so wonderful to work with your amazing family and be one of riley's doctors. i'll stop by when i'm back on your side of the river next week.
katie durrwachter
- Thursday, July 23, 2009 11:06 PM CDT

Hi there-
just checking in on our sweet little Riley. Hope she is getting stronger and able to be more comfortable without so many tubes. Love you guys!
Jessica Ihrig <jaybirdy22@yahoo.com>
Akron, OH USA - Thursday, July 23, 2009 5:41 PM CDT

I don't know what I can say to you right now except to hang in there and give it all over to God as He is the One in control. It sounds like you and Aaron are suffering as much as Riley is working hard.Please know I am thinking of you always.
Pat Schwartz
Pat Schwartz <schwja@ndsupernet.com>
mott,, nd - Thursday, July 23, 2009 3:33 PM CDT

Thank you so much for keeping us posted. I love you all and am thinking of you guys lots. It was great to see you (Nikki) and Riley and I will be sending good thoughts and prayers your way during this difficult time.
Leanne Barker <lmbarker@charter.net>
Superior, WI - Thursday, July 23, 2009 9:00 AM CDT

I am thinking and praying for you guys tonight....
Rachael Newman <rachm1357@yahoo.com>
North Branch, mn - Wednesday, July 22, 2009 9:16 PM CDT

Hey there, I can't imagine the roller coaster that you guys are on right now. She is such a little trooper!!! We will keep you in our prayers that Riley has a good night. Miss seeing you and visiting with you. I hope you saw Dr. Rimmel for ENT. He is awesome!!! I hope he gives you good news. Take care and God Bless
Amy Casavant <acasavant@hamc.com>
Rugby, ND USA - Wednesday, July 22, 2009 7:26 PM CDT

Nikki--

Riley is such a little fighter--I am so thrilled that she is breathing on her own! I am praying that you & Aaron are able to get some rest and also that the ENT is a great doctor who will be able to give you some good, reassuring news about her trach surgery. Please call me anytime if you need to talk.
Carrie Paup <maceysmommy@aol.com>
Corvallis, OR - Wednesday, July 22, 2009 5:05 PM CDT

What can I say. You go girl Riley! We are pulling for you! My daughter Emma, who has Aicardi Syndrome, was on a breathing tube for 5 days in Fall 2008 and it was very nerve-wracking removing the breathing tube (extubation). For Emma, she did get a little worse before she got better. We will keep you all in our thoughts.
Matt Boerner
Bloomington, MN USA - Wednesday, July 22, 2009 4:56 PM CDT

Yeah Riley! Baby steps are hard sometimes, but you are doing great Nikki! I check Riley's page all the time and was so happy to read about her breathing! We are still praying hard, hard for you all. Love and kisses from us!!

Jessica and Samantha Ihrig
Jessica Ihrig <jaybirdy22@yahoo.com>
Akron, OH USA - Wednesday, July 22, 2009 4:38 PM CDT

Nikki -
Please know your family is in my prayers, stay strong and know that many are sending positive thoughts to you and your family.
Kamie Clark Moen <clarkkamiej@hotmail.com>
Minneapolis, MN - Wednesday, July 22, 2009 3:11 PM CDT

Miranda and I will say a prayer for Riley right this minute. For you and Aaron too. God bless.

Linda and Miranda Sibell
Hibbing, Mn USA - Wednesday, July 22, 2009 1:59 PM CDT

Nikki--Just got your message & I will be praying!! I am here whenever you need to talk.
Carrie
Corvallis, OR - Wednesday, July 22, 2009 11:42 AM CDT

It hurts me to know all you and Riley are going through right now. But remember that God is the source of your courage. He hears every small whisper of your hearts and will answer you. He holds you safely while you sleep and is right by your sides when you wake up, giving you strength for your day. Even though your own strength is challenged right now, when you are at your weakest, His strength is the strongest. You are not in this alone--God is always there and so are the thoughts and prayers of MANY people. I hope you continue to find strength in that. Feel free to call my work cell: 651-470-2004. We can cry together!
Marcia Borka <mborka@farmington.k12.mn.us>
Farmington, mn - Wednesday, July 22, 2009 10:38 AM CDT

Thinking of you today, and praying you all find the strength to pull through this really difficult time. Kisses to Miss Riley, we love her so much!!
Love,
Jessica and Samantha Ihrig
Jessica Ihrig <jaybirdy22@yahoo.com>
AKron, oh usa - Wednesday, July 22, 2009 9:49 AM CDT

Nikki:
I'm so sorry to hear that Riley is struggling. She has always been special to us because she and Sara share Aicardi Syndrome. Please know that we are storming heaven for you. Your in our thoughts and hearts.
Barbara Hoffman (Sara's mom) <jbashoffman@embarqmail.com>
Califon, NJ United States - Tuesday, July 21, 2009 5:16 PM CDT

Hi Nikki & Aaron, I just recently heard things are getting really tough with Riley. I had no idea that she has been in the hospital for so long. I am so sorry to hear this. I will keep your whole family in my thoughts & prayers. You know I live very close to your home in Farmington, so please let me know if I can help you out in ANY way!
Kate Aspenwall <aspenwalkm09@crown.edu>
Farmington, MN - Tuesday, July 21, 2009 11:00 AM CDT

Keep strong, you are in my prayers and thoughts.I know Riley will pull through this and we'll see you at the aicardi conference next year.
maryann - taylors' grandma (AS 4.5 yrs.)
maryann johnson <johnsonmaryann@yahoo.com >
dahlonega, ga - Monday, July 20, 2009 4:29 PM CDT

Nikki
I pray that you and your husband will have peace with the decisions you have to make. You are obviously only trying to fight for your baby, so I am confident which ever choices you make they will be what is right for Riley.
We have not met before, but my daughter Lauren was born just after Riley with AS. We have the deepest compassion for you and your family and pray for peace for all of you.

With Love
Lisa Bourdeau <lisajbourdeau@comcast.net>
Sammamish, WA - Monday, July 20, 2009 12:36 AM CDT

Nikki,Aaron,and Litle Riley,What a precious family yuo all are to God. Aaron,I am an old friend,you and my son Joe were best friends.Just remember all tne times your mom prayed for things and miracle upon miracle happened.Dont limit God,He is the same yesterday today and foreverI will be liviting up ypur precious baby to the Father and know He will answer,Love in Jesus Rose
rose davis <rosemary1930@live.com>
ada , ok ponatoc - Sunday, July 19, 2009 6:17 PM CDT

I have had riley put on the pray list at my church.
Essie geis <essiegeis@att.net>
Abilene, TX. us - Saturday, July 18, 2009 2:42 PM CDT

Nikki i've just read your journal and once i stopped crying I read it to my hubby and we both agreed with everything you and Arron have done and know that in your heart you will know when it's time and at this moment Princess Riley wants to stay a little long, even though I've never met you all i know that you are amazing all our Aicardi families are xxx
and as for some Doc's we need to start saying to them to put their hands on their hearts and if it was there chiild what would they do and i'm sure if there honest they would do the same as you
so stay strong Love and Hugs to you all
from your Aicardi family in England
xxxxxxxxxxxx
Mary Bunting <baabaa2867@yahoo.co.uk>
- Saturday, July 18, 2009 12:22 AM CDT

Nikki I check this website daily because I really can't stop praying for all of you! I love when you update and DO NOT ever apologize!! I want you to LISTEN to your heart, doctors are NOT GOD. I think you are doing a wonderful job as Riley's parents and protecting her and doing what's best for HER! Yes docs. are very helpful but not GOD! From the time that child is placed in the womb she has told you what "she" wants and you have listened. Riley feels you and is a part of you. You and Aaron do know what's best! I feel angels every time you write and I even saw a smile and look of hope in your eyes in your last entry. Riley feels that too MOM!! You, Aaron and the endless love she has are her best medicine!
Jennifer Berklich Myre <innermarie@hotmail.com>
Tucson, AZ - Friday, July 17, 2009 11:59 PM CDT

Nikki and Aaron, I just read your entry that you just finished minutes ago. I just want you to know that you won't ever have to wish you had done something differently. You have been the best Mom and Dad to Riley and you need to know that she knows it. Cherish every day that you have. We'll keep you in our prayers. God Bless you all, Sue Atkinson

Sue Atkinson <tsatkin@prtel.com>
Fergus Falls, MN USA - Friday, July 17, 2009 10:43 PM CDT

Hi Nikki girl,
Another Hug to you and Aaron and Riley.
I can't stop thinking of you all. You are so strong, and wise, and kind. Please know that if I can do anything for you, ANYTHING, even come and sit with you, or bring you anything, please ask. I know you are sooo strong and don't like to ask anyone for anything, but I want to help in anyway I can. My body is back home here, but my heart is right there with you.
lots of Love,
hugs,hugs,hugs,hugs
Annie and Mike
Annie Mike McFarlane <mmcfarlane33@comcast.net>
Andover, Mn usa - Friday, July 17, 2009 10:09 PM CDT

Little Miss Riley
We are sending lots of love and many prayers that you get better soon. You are a beautiful little girl and we are so lucky to have you in our Aicardi Family. All our Love sent your way--The Annable's(Dan, Kathy, Makenzie, Jaycie, Kaylie(AS) and Gavin
Kathy Annable <kannable@twcny.rr.com>
Marcellus, NY USA - Friday, July 17, 2009 6:57 AM CDT

Dear Nikki, Aaron and sweet Riley, I continue to check in on your guestbook, and we continue to think about you soo often... I wish I had some magic words, but words don't suffice, we love you, and we hope for better days for you all! I know you face some very difficult desicions, I'm soo glad you have people to confide in, people to discuss with, people who love you... Like we do... Stay strong - you're amazing!!
Anne Haugerud
Algarheim, Norway - Friday, July 17, 2009 2:39 AM CDT

my prayers are with you and your family!! i had no idea you were going through this
dawn slosson <dmariesloss@yahoo.com>
fargo , nd us - Thursday, July 16, 2009 10:52 PM CDT

Dear friends,
I continue to check this site so often and wish there were magic words to say to make it all better.Riley has purpose in this life until she has fulfilled her mission and none of us knows just when that will be-today, tomorrow next week or next year or in years to come.
Know that you have my deepest respect as loving parents and whatever happens have no regrets.
love,
Pat Schwartz
Patricia Schwartz <schwja@ndsupernet.com>
Mott, ND - Thursday, July 16, 2009 10:09 PM CDT

Aaron, Nikki and Beautiful Riley,
You are all in our thoughts and prayers. May God give you strength, peace and grace for this tough journey. You all deserve a miracle.
Hugs to you all,
Michele, mom to Julia - one of Riley's Aicardi sisters
Michele <michele.rosner@gmail.com>
Slinger, WI - Thursday, July 16, 2009 9:32 PM CDT

Hey Nikki and Aaron,
A huge hug I am sending you. Hailey, Mike and I Love you. I think of you and Dear Riley everyday. I miss you guys sooooo much and think back fondly of you. You both helped us immensely through our hard journey. I can never thank you enough for that. If we can help you with anything please let us know.
Give that BEAUTIFUL girl a kiss for us.
Love, Love, Love,
Mike and Annie McFarlane
Annie McFarlane <mmcfarlane33@comcast.net>
Andover, mn usa - Thursday, July 16, 2009 8:55 PM CDT

Nikki & Aaron, Jill emailed and updated me on Riley. I'm so sorry that your home has been the hospital for the past 5 weeks. You are in my prayers and please know that so many other people care about you and Riley. She's a little sweetheart. Know that God will take care of all of you. Love to Riley's grandparents too.
Sue Atkinson <tsatkin@prtel.com>
Fergus Falls, MN USA - Thursday, July 16, 2009 8:50 PM CDT

Nikki and family--I got work of Riley's illness from Kari through Hayley on Facebook. I just want to tell you that my thoughts and prayers are with you all. Good bless you.
JoAnn Fiori
Hibbing, MN - Thursday, July 16, 2009 8:34 PM CDT

I am so sorry little Riley is going through this terrible time. Your family is in my prayers
Renee Bupp <kjcbupp@comcast.net>
York, PA USA - Thursday, July 16, 2009 5:29 PM CDT

Nikki, Aaron, and Riley-
I am so so sorry for all the pain you are experiencing. I wish there were something I can do to help. My heart aches for you and I realize how very strong you are for having the strength to get up and continue living. I don't know the current status but I imagine you are reaching your limit and need an angel to go on. If Riley is that angel, what a special guardian you will have. If she fights this and defies what the doctors fear, you are still being protected by that special little girl.

Nikki, time has been such a miracle because when I think of you, I still see the 15-18 year old Nikki I did everything with. I hear your laugh, see your smile, and suddenly my tears dry up and I feel such happiness. I hope you are able to find that part of you (even if it is only a glimpse...once per day). Our childhoods give us strength for our adult lives so find a quiet place, pull out your "Hemitite" and laugh at our stupidity. I love you so much and will be thinking of all of you.
Diane Hallila Passero <jojolo88@hotmail.com>
Edgewater, MD - Thursday, July 16, 2009 4:25 PM CDT

My prayers go out to you and your family. I pray that God gives you the strength that you need to make the decisions that you have to .I know that he will be with you and Riley always and we need to rely on Him for everything. Our girls are a gift from God and are our angels while on earth but we hand them over to Him. Lots of love and you are in my thoughts and prayers. Taylors' grandma 4.5 yrs
maryann
maryann johnson <johnsonmaryann@yahoo.com>
dahlonega, ga usa - Thursday, July 16, 2009 3:20 PM CDT

One of the hardest decisions I ever had to make with my brothers was to take our father off life support after they told us us he was brain dead and would not live off life support. I cannot imagine doing this for our child, but we know that one day we may be faced with this difficult decision. So do I have any answers or advice for you? No. What I do have is love, empathy, and tears to let you know we hope whatever decision you two make will bring you peace. Prayers coming your way.
Maryalicia <pegasusrdr@hotmail.com>
- Thursday, July 16, 2009 2:56 PM CDT

A special prayer that special angels are always watching over all of you and caring for you. The Lord is carrying you in his hands.
Jennifer Berklich Myre <innermarie@hotmail.com>
Tucson, AZ - Wednesday, July 15, 2009 10:33 PM CDT

You continue to be in my prayers
Jenny Carlson
- Wednesday, July 15, 2009 9:35 PM CDT

Nikki & Aaron, Our hearts go out to you both and Little Miss Riley, along with our Prayers. The only thing I can share with you is that the Lord, God is still in charge. He has a plan. He had a plan clear back when he gave that beautiful baby girl. Continue to call on Him for His comfort and guidance. Continue to thank him for the wonderful gift of little Riley. The Lord blessed her with the most wonderful parents! You all are in our prayers daily. We send you all of our love & God's blessings. Mike & Laurie Anderson
Laurie Anderson <mumwrites@frontiernet.net>
Toivola, Mn United States - Wednesday, July 15, 2009 7:45 PM CDT

Nikki: I am so sad.....I have said a prayer for Riley, and everyone else down there. As you know, God is completely in control of all of this.... and he will lead you the way... She is a beautiful child, and God will come down and take care of her in a peaceful way. Say hi to great grandma, grandma and grandpa....
Margie Frider <isd701@hibbing.k12.mn.us>
Hibbing, MN United States - Wednesday, July 15, 2009 2:49 PM CDT

Hi guys-
Sorry it took me so long to write.
First, I want to say how wonderful you two are. Not just wonderful people, but wonderful friends and wonderful parents.
It was so nice to meet you two. You both have so much caring and compassion. Not just for your daughter Riley, but for everyone around you.
I am so blessed to have met you while we were there with our son Braden.
Humor can definetly have a place in some of the worst situations to keep our sanity. Thank you so much for making me laugh that day I was down. I just hope I did the same to brighten some of your moments.
Second- One thing I really wished I could have done while there, was to meet Riley. She is such a pretty girl in all of the pictures I saw, but I'm sure she is even more beautiful in person.
I was just reading a little bit on Riley's condition.
Just know that we think and pray for her everyday!!!!!!

And remember - The one thing your little girl is not lacking - is the love of her parents, family, and friends. Even though she is sedated - she can still feel that!!!

Please keep in touch.
LOL
Paula & Shannon Brown
Paula Brown <brown253@hotmail.com>
Baldwin, ND USA - Wednesday, July 15, 2009 1:46 PM CDT

Hey Miss Riley,
you are such a little trooper. Blake and Kendall want you to know how much they love you. They miss you so very much and want to come and see you, but with your Uncle Jerry and his surgery things have been crazy around here. I think we are going to try and come up to visit with you and your parents in the next day or two.
Nikki and Aaron,
I want to let you guys know that we love both of you so much. You two have been so strong through this very hard time in your lives. Nikki- you are such am amazing mom I wish that I could be that amazing of a mom and have the strength and patience that you do daily. I love you so much and I am so luck to have a sister like you and Riley is so lucky to have you as her mom. If you need anything you let me know. Anything you need please just ask.
Love and kisses,
Jerry, Hayley, Blake and Kendall
The Prchal's <h_towngirls@yahoo.com>
Montgomery, MN - Wednesday, July 15, 2009 1:26 PM CDT

Nikki and family, I cannot imagine the difficulty that you and Riley and your family are facing right now. I am inspired by your openness and sharing spirit but I am saddened by Riley's terrible illness and recent new challenges.

But I do know this, that whether Riley lives for 5 years, 15 years, or 50 years, I know that she lives a charmed life, a special, unique "life of Riley".

May God bless your entire family (including your great grandmother).
Matt Boerner
Bloomington, MN USA - Wednesday, July 15, 2009 12:45 AM CDT

Just wanted to say we are still thinking about you and Princess Riley Love and Best wishes heading your way
xxxxxxxxxxxxxxxxxxxxxx
Mary Bunting <baabaa2867@yahoo.co.uk>
- Wednesday, July 15, 2009 12:21 AM CDT

Just wanted you all to know we are still praying for Riley and for your whole family. We think about her everyday and just wanted you to know how much we want her to get better!
It breaks our hearts to know how sick she is and the struggles you are all going through.

Sending our love,
Jessica and Samantha Ihrig (AS sister)
Jessica Ihrig <jaybirdy22@msn.com>
Akron, OH USA - Wednesday, July 15, 2009 7:53 AM CDT

Continued prayers for you little miss Riley! I'm
so sorry you and your family are going through such a difficult time. I've never met you, but you seem like an absolute angel!
Tiffani Apel
Mn, - Tuesday, July 14, 2009 10:48 PM CDT

Nikki and family,
I also do not know what to say at this moment. You are such an amazing and strong woman. You have been so brave in just the few times that we have talked. Thanks for chatting in the lounge with me tonight and showing me the beautiful pictures of your little girl. I know this isn't easy so lean on Him to take the burdens of your heart away. He loves you and Miss Riley so very much! Thanks for sharing this website with me.
Hugs!

Heather Corley
Rosemount, MN - Tuesday, July 14, 2009 10:39 PM CDT

I wish there was more we could do. I truly beleive in the power of prayer but I feel I should do more to help you guys. You are amazing parents of a beautiful and strong little girl. PLEASE, PLEASE, PLEASE let me know if you need ANYTHING. Continued Prayers! God Bless
Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN USA - Tuesday, July 14, 2009 4:01 PM CDT

Hi Nikki, Aaron and Miss Riley,

You guys are in our thoughts in prayers daily. I know you are going through a really hard time and need to make some decisions no parent ever wants too. I would not be able to stay strong during these times but you guys are. Just let us know if you need anything. Buster misses you guys terribly but I am trying to give him as much attention as possible. Please do not hesitate to call if there is anything we can do.

God Bless you guys,

Anna, Erik, and Connor
Anna Sheridan
Farmington, MN - Tuesday, July 14, 2009 3:18 PM CDT

Nikki,
I just want you to know that I keep Riley and you guys in my prayers all the time, that when I see Veronica's face I think of Riley, I just keep thinking of her and pray that God gives you guys strenght in this difficult situation and gives Riley health, comfort and peace, no more pain, no more needles, God knows her tiny body deserves a break.
I wish I could be there.
Love
Ana
Ana <ana.padron@mustangeng.com>
Houston, TX USA - Tuesday, July 14, 2009 1:23 PM CDT

I hope for continued strength for you as continue to make these difficult decisions and for Riley as her body continues it's fight. You're in my thoughts and prayers and I hope that peace may come. May the love that surrounds you bring some comfort.
Jessalyn <jessalynhines@hotmail.com>
- Tuesday, July 14, 2009 1:17 PM CDT

Sending love and support your way as so many others have. You have so much love around you with your great parents, family and friends and I hope you gain strength from us all.
Lots of love, Ros
Ros Barker <perchlakers@aol.com>
Side Lake, MN USA - Tuesday, July 14, 2009 11:41 AM CDT

I really wish I knew the right thing to write to you guys. I pray that you guys are given guidance from the Lord up above. I am thinking of you guys daily and praying for you too. If you need anything, I really mean anything please call me- 651-278-7330. I miss not having family around. All I have is mom and dad and Shaundrea millions of miles away and little contact with all the family from Hibbing. I love you all and want to be there for you...Love you guys and will keep praying very hard!!!
Rachael Newman <rachm1357@yahoo.com>
North Branch, MN - Tuesday, July 14, 2009 7:49 AM CDT

I don't know your family personally--I learned of your story through a friend of an old friend. I've been reading your most recent updates and my heart goes out to your family. I can't imagine having to make the decisions for my child that you are being asked to make for your precious little girl. She is so lucky to have you for parents, and it's easy to see where she gets her strength and fighting spirit. Your family is in my prayers, as well as the medical team caring for little Riley, that God's wisdom will come through in each decision that needs to be made.
Becky <bjw_2603@yahoo.com>
- Tuesday, July 14, 2009 1:40 AM CDT

I felt that tonight I needed to write about this precious little girl. I have only met her in person once, but she has captured my heart in many ways. I met her when she was just a baby...but she was very very precious and I couldn't help but love her. My friends Rhonda and Aleia and I saw her a Shining Stars meeting.

Riley has something called Aicardi Syndrome, and has had it for her whole life. She has recently been hospitalized repeatedly for issues with her lungs, and this time she was admitted to intensive care. She has not been doing well and now her family has to make the decision about when to take away the life support and allow her to pass away. I can't believe it. Riley is ONLY FOUR! My heart is breaking, I can't believe it, WHY do bad things happen to precious little children and good people?!

Please...pray for comfort for Riley, and her parents, Nikki and Aaron. I am just sick about it.

That was my blog post dedicated to Miss Riley and both of you, Nikki and Aaron. I can't tell you how to feel right now...or what to do...I don't have any special words of wisdom...I can't tell you that everything is going to be OK. I wish so much that I could. I know that watching Riley fight is the hardest thing you have ever had to do. Over the past few years, I have read through this website as you have shared your journey with us all. I adore you and your little girl sooo much. She is a precious Angel on Loan from God...and if she is called home, yes I will be sad but I know that she will be in heaven with no more pain. I am sick for you....I want everything to be OK. I am so worried...know that I am praying for all of you! If you need ANYTHING TELL ME!!!!!! I will do anything I can.

I love you.
Sami

Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Tuesday, July 14, 2009 0:49 AM CDT

I have been checking on Riley's progress every day but am having a horrible time knowing what to say to you. It brings back horrible memories for me when my Aleia fought for her life but won the earthly battle. I didn't have to say good bye to her yet. That was 6 years ago and she is still here with me. She is my Angel on Loan from God and I cherish every second of every day I have with her! I don't know what I would do in your situation. As in outsider looking in many may be saying just let her go....but as a parent, I know it isn't that easy. Our little girls are special, we were picked as special parents to care for God's most fragile children, to be their voice, their everything! It is draining physically, emotionally and mentally to take care of our children, especially the special ones. It is hard work, you need to be strong, alert and in control all the time. When it gets to a point that our children are so sick and in the hospital, we feel like the control is being taken away or getting lost. How do we deal with that? NOT EASY! My heart is very heavy for you right now....I shed tears for you....tears of happiness because you got to spend a couple years with such an amazing and beautiful little girl, but also tears of sadness for what you are going through right now. God loves you very much, he is always with you even when you think he isn't. Please know that no matter what happens to precious little Riley, you made the right decision, and she knows with every cell of her body that you....Her Parents LOVE her more then anything else in this whole world. I am praying for her to be pain free, and I am praying for you....Her Mommy and Daddy to have peace in your hearts and minds. I am sending my love and hugs!
Rhonda Shoen <rshoen6@frontiernet.net>
Fairmont, MN - Tuesday, July 14, 2009 0:01 AM CDT

Nikki
Thank you for the updates i know it is so hard for you at this time, Please know that we are thinking about you and sending Love and Best wishes
"BE STRONG PRINCESS RILEY"
Mary Bunting <baabaa2867@yahoo.co.uk>
- Monday, July 13, 2009 11:53 PM CDT

My thoughts and prayers are with you and your family
pat bolden <ptbold@hotmail.com>
hibbing, mn - Monday, July 13, 2009 10:52 PM CDT

Nikki- I think about Riley everyday and continue to pray for her health and well being that she so greatly deserves. I have never actually met Riley but I feel like I know her. She is such a trooper. I love her and wish you and Aaron all of the strength in the world. I can't imagine what you are going through. Thank you for letting us be a part of her life (and yours) with this website. I wish you all the best and I will pray really hard for Riley. She deserves it. I think there is a miracle out there with her name on it. Keep your chin up and all my love. P.S. I'm pretty sure it has only been a few years since high school!
Tania Broten-Dutcher <trentsbiggestfan@hotmail.com>
Neenah, WI - Monday, July 13, 2009 10:11 PM CDT

Nikki - I've been thinking about you all day since finding out what Riley has been going through the past few weeks. I can't even fathom what you are going through - but I pray you find strength and peace in whatever comes next.
Continued thoughts and prayers being sent your way...
Gina Marinucci Maki <ginanandy@msn.com>
Rochester, MN - Monday, July 13, 2009 10:03 PM CDT

My thoughts and prayers are with you and your family during this difficult time. I pray for strength and peace for you and your family.
Laura Voss <lauravoss@gmail.com>
Raleigh , NC - Monday, July 13, 2009 7:50 PM CDT

Nikki--We are continuing to pray for Riley & also for you and Aaron to have the strength to make these very difficult decisions. I wish there was something I could say to make this easier, but I know I can't, so please just know that you are in our thoughts and prayers constantly.
Carrie
Corvallis, OR - Monday, July 13, 2009 6:02 PM CDT

We've been praying for Riley and your family that God would give you the strength you need in the coming days. God is faithful. You're strength is an inspiration to me. Just yesterday I asked our church family to pray for Riley and then I checked the updates and heard that she isn't doing well. We're praying for a miracle. Either way you are absolutely right in saying that she is worth it all! Kids are truley a blessing from God.
Lindsy Johnson <lindsy_jcl@yahoo.com>
Milaca, MN Mille Lacs - Monday, July 13, 2009 4:07 PM CDT

I plan on publishing a blog post tonight dedicated to Riley and you guys to ask for prayers and etc. My schedule may not allow it, but I am going to try my hardest. I will attach it to the guestbook if and when I write it.

I love you all. Please give Riley a big hug and kiss for me.

Love, Sami
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Monday, July 13, 2009 1:42 PM CDT

I know this is such a difficult time for you. Know that we think of you every day and pray that you find the peace and strength that you need. Love, Bob and Judy
Judy Steichen <robert.steichen@mchsi>
Hibbing , MN St. Louis - Monday, July 13, 2009 11:40 AM CDT

Nikki- you and your family are in my thoughts and prayers.
Kristi Skalsky-Lamere <kllamere@yahoo.com>
Hibbing, MN USA - Monday, July 13, 2009 10:39 AM CDT

Hope that you managed to somehow find an ounce of enjoyment out of picture time yesterday. My heart is with you every minute. Much love and prayers..
Kerri <kerrbearr@hotmail.com>
NYC, NY USA - Monday, July 13, 2009 9:13 AM CDT

Nikki, I will be praying for Riley and your family during this difficult time.
Mike Moberg <mdmoberg@yahoo.com>
Cambridge, MN - Monday, July 13, 2009 8:35 AM CDT

Riley and Family--

You are all in our prayers. Such a special, sweet little girl--we love you!

Jessica and Samantha Ihrig (AS sister)
Jessica Ihrig <jaybirdy22@yahoo.com>
Akron, OH USA - Monday, July 13, 2009 7:52 AM CDT

Nikki, Aaron and Riley,

You are in the prayers of my family. Godspeed and know you have many to support you.
Joline "Robnik" Walker <jmwalker@travelers.com>
Saint Paul, MN USA - Monday, July 13, 2009 7:36 AM CDT

Dear Nikki, Aaron and Miss Riley,

The biggest of hugs to all of you. I pray that God will grant Miss Riley another miracle and allow her to come back to you again. I pray that if He feels that miracle is not the right one for her, that He makes certain she does not have to feel any pain or discomfort before welcoming her in to His arms. And I pray that God grant you peace, Aaron and Nikki, in coping with any and all things that are to come.

Nikki, you are many things, most of them were brought to the forefront of your character because of being blessed with Riley. You are a fighter for what you believe in. You have a strength in your soul that many can only wish to have. And you have a huge, caring heart that has always been part of you that has only been made bigger through the experience of being Riley's mom. I can only wish that I had a quarter of your strength within me. Keep praying. Stay strong.
Kristy (Murray) Van Den Broeke <krisvanden@yahoo.com>
Waconia, MN - Monday, July 13, 2009 4:07 AM CDT

Nikki and Arron
My heart aches cos i no one day i will have to make the decisions you have to make, Be strong and no that we are thinking of you all and sending lots of love
Mary Bunting
- Sunday, July 12, 2009 11:23 PM CDT

We will keep Riley and you all in our prayers.
Gutierrez Family <ben_gutierrez@hotmail.com>
Farmington, MN - Sunday, July 12, 2009 8:42 PM CDT

Riley, Aaron and Nikki:
You are all in my prayers for God to hold you close. I have no words of wisdom, only words of knowing that God IS THERE with you each second of the way during this journey.
Fran <flwood@frontiernet.net>
- Sunday, July 12, 2009 7:55 PM CDT

Though I'm not on-service anymore, I've continued to follow along via caringbridge. I'm so sorry for all you've had to go through. Know you are in my prayers. In the quiet moments may you find peace.
Brooke Moore
- Sunday, July 12, 2009 5:31 PM CDT

Aaron and Nikki,
I am so sorry to read this and I am sorry you have to make a decision like this for her. I will pray for Riley and pray for strength for the both of you.
XOXO
Jill Cufley
Chino, CA USA - Sunday, July 12, 2009 4:46 PM CDT

Our whole congregation at Hope Presbyterian in Virginia prayed for all of you today and will continue to pray. You are also on Heather's prayer chain at her church. What you are going through none of us can understand and we can't comprehend fully your grief, but know there are so many lives you have touched and inspired. You have been amazing parents and grandparents for this sweet little girls. Keeping you in our prayers.
Bob and Clyda Prosen <bobclyda@aol.com>
Eveleth, MN USA - Sunday, July 12, 2009 12:33 AM CDT

Nikki, Aaron & Riley, There is something very special about the three of you. Your bond represents all that is good in this world. That will never change. I pray for G-d's blessings upon all of you now and forever.
With deep and heartfelt respect,
Sandy
Remember, the turtle ladies are only a phone call away.
Sandy Raiche <sraiche@umphysicians.umn.edu>
- Sunday, July 12, 2009 8:42 AM CDT

God Bless all of you! May you find peace in your days and feel the Lords hands on you and Riley. Keep writing, venting, crying in words we are listening and will continue to give you strength and prayers!
Jennifer Berklich Myre <innermarie@hotmail.com>
Tucson, AZ United States - Sunday, July 12, 2009 2:41 AM CDT

Thinking about each of you everyday and saying prayers for our peanut and also for you. Love you lots
Leanne Barker <lmbarker@charter.net>
Superior, WI - Saturday, July 11, 2009 11:41 PM CDT

I am so sad. I will be saying tons of prayers for little Riley girl. She is a precious girl and you are such good parents to her. Take heart, PLEASE give her a squeeze and a kiss for me. My heart is breaking...I love you guys and your little girl so much. Praying for a miracle...if the miracle doesn't come...I pray for strength, for support...for comfort. Please keep us posted and let me know if you need ANYTHING!
I love you always.
Sami
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Saturday, July 11, 2009 11:35 PM CDT

Nikki, Aaron and Riley, I just wanted you to know that I was thinking about you and praying that God will be with you in this tough time. Stay strong, with love.
Sara Liebaert <sel28@hotmail.com>
Superior, WI USA - Saturday, July 11, 2009 9:09 PM CDT

Nikki, I can't help but think back to the day I met you for your ultrasound. I was amazed at how strong you were in taking the not-so-great news and making the best of it. I knew then that you'd be a fabulous mom and you more than exceeded my expectations over the last few years. Riley is so lucky to have such an amazing family, and especially such an amazing mom. I know that we often let our kids define who we are, but it's important to remember that we are individuals too. While you wouldn't be who you are today without Riley, she wouldn't be who she is without you either. If Riley could, I'm sure she would tell you how much she loves and appreciates you. Stay strong. Thinking of and praying for you all.
Tracy Prosen
Roseville, MN USA - Saturday, July 11, 2009 8:43 PM CDT

NIKKI, PLEASE KNOW THAT JUDIE AND I HAVE BEEN THROUGH THE PROCESS OF RETURNING OUR DAUGHTER TO A LOVING AND CARING GOD. WE ALSO WATCHED HELPLESLY AS OUR WONDERFULL LOVING DAUGHTER RETURNED TO HER LORD AND SAVIOR IN SPITE OF OUR TEARS AND PRAYERS. THERE IS A TIME WHEN WE REALIZED THAT THINGS WOULD NEVER GET BETTER AND THAT THERE WOULD BE NO HEALING AND WE ASKED OUR LORD TO TAKE CHERYL HOME AND END HER SUFFERING, IN SPITE OF OUR LOVE AND OUR DESIRE TO KEEP HER WITH US , WE DID SUFFER KNOWING OUR LOSS WOULD BE FELT IN OUR HEARTS FOREVER. THE LORD MOVES IN MYSTERIOUS WAYS, HIS LOVE NEVER WAIVERS AND WE CANNOT BLAME HIM FOR THE PAIN AND SUFFERING OF OUR LITTLE GIRLS. WE INSTEAD, THANK HIM FOR PREPARING A HOUSE IN HEAVEN FOR THE BEAUTIFUL GIFT WE HAVE RECEIVED FROM HIM. OUR PRAYERS WILL CONTINUE UNTIL THIS LITTLE ONE IS FREE OF PAIN AND SAFELY HOME WITH OUR LORD IN HEAVEN, NEVER TO BE FORGOTTEN AND LOVED BY US FOREVER. HIS WILL BE DONE, ON EARTH AS IT IS IN HEAVEN. LOVE AND PRAYERS UNCLE TOM
TOM AND JUDIE ARNOLD <tomjudie@mchsi.com>
Hibbing, MN USA - Saturday, July 11, 2009 8:39 PM CDT

Dear friends,
I am so sad for you-remember when we talked that night? About praying that God will intervene in some way and you will not have to make a decision. You have fought the good fight and it is against human nature to give up hope-that is why you are still fighting for your girl.Riley certainly knows she is loved and she loves you in return-unconditionally.
My love and prayers for you all,
Pat Schwartz

Patricia Schwartz <schwja@ndsupernet.com>
Mott, ND - Saturday, July 11, 2009 6:49 PM CDT

Just want you to know you are all in our thoughts and prayers. Miranda is praying for Riley to get better but if she can't she is praying that God will send Grandma Mary to take Riley to Heaven and she knows Grandma Mary would take really good care of her. Nikki, I really feel Riley has defined who you are. You have always been a great kid but who would have ever known all you could be? Did you ever see yourself talking to a room full of doctors? Did you ever see yourself having a job, a partner, and running a home all at the time you are fighting for your little girl? Riley has made you who you are...maybe that was her job. Hang on to what she has made you be. You are a fighter. You have fought the great fight and can find peace in knowing you did your best. Trust God will know what is best for Riley. Our prayers are with you all.
Linda and Miranda Sibell
Hibbing, MN USA - Saturday, July 11, 2009 5:33 PM CDT

STAY STRONG PRINCESS RILEY KEEP FIGHTING
LOVE FROM
YOUR AS SISTER CHLOE AND HER FAMILY IN THE UK
XXXXX
MARY BUNTING
- Saturday, July 11, 2009 11:52 AM CDT

Hi My Dear Friends,
I think of Riley and you two often since we left the U. I just think you are all great people. I loved meeting beautiful Riley. She is precious....
I hope your meeting went OK.
Many hugs, And truly, if you need anything, please,please call Mike or I.
I feel blessed to know you.
Love, Love,Love, Love, Love......
May you be surrounded in Love,
Annie and Mike McFarlane
Annie McFarlane <mmcfarlane33@comcast.net>
Andover, MN usa - Saturday, July 11, 2009 0:59 AM CDT

I'm nearly in tears...Saying TONS AND TONS of prayers for all of you and especially Miss Riley girl. May God give you the strength, peace, and knowledge to make these difficult decisions. May He guide the hands of the doctors and nurses that care for sweet Riley.
Love, Sami
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Saturday, July 11, 2009 0:18 AM CDT

After reading your journal from yesterday, I just have to say--DON'T STOP FIGHTING FOR YOUR LITTLE GIRL!!! You have lived out the warrior mom that is within all of us who have kids. We are the ones that have to stand up for our babies when they aren't able to. If you want a nurse with her at all times, don't feel ashamed of it, you have every reason to want that service for Riley. Keep it up!
Anita (Schumacher) Mendonsa <ajmend@paulbunyan.net>
Cohasset, MN USA - Friday, July 10, 2009 9:31 AM CDT

Good morning Nikki and Riley and Aaron,
I'm so sad to hear all the wrenching news of decision making but in the few times I spoke with you Nikki and your mom Laura I just know that you guys will do what is best for Riley and whatever decision you make will be correct.
I will be thinking and praying for you today.
love,
Pat Schwartz
Patricia Schwartz <schwja@ndsupernet.com>
Mott, ND - Friday, July 10, 2009 9:03 AM CDT

Hi guys! I'll be thinking of you tomorrow and hoping your meeting brings some good news. Let me know if you need anything!
Carla <carlaannebarker@hotmail.com>
- Thursday, July 9, 2009 11:21 PM CDT

Aaron and Nikki,
I am sorry Riley is feeling so bad :( I would like to send something to you but I would rather send it to your (or your Mom's?) house so I can be sure it gets to you. Is that okay? Email me and let me know where I can send it.
Love,
Jill
Jill Cufley <jcufley32@hotmail.com>
Chino, CA USA - Thursday, July 9, 2009 4:53 PM CDT

Still thinking and praying for you guys! Thank you so much for keeping us all updated. Stay strong - she needs that. Love ya!!!
Rachael Newman <rachm1357@yahoo.com>
North Branch, mn - Thursday, July 9, 2009 4:50 PM CDT

My heart is heavy with everything you all have been through. I pray that your rollercoaster ride will come to a STOP and all three of you will be on your merry way home together! There is never a minute that goes by where you guys aren't on our mind. Many prayers are being said for all of you! GOD BLESS
Jessica Dexheimer & Family <jrdexheimer@yahoo.com>
Maple Grove, MN USA - Thursday, July 9, 2009 3:51 PM CDT

Stay strong little Riley,
We are praying for you everyday.
Nikki, I sent out a prayer request for Riley and you guys too. Hope that is okay (I know it is).
We love you!
Devan (4 AS), Michele, Alexis, and Donroy
Michele
Denville, nj usa - Thursday, July 9, 2009 12:26 AM CDT

Nikki,
I've been checking your journal entries regularly for updates. All of you are in my thoughts as you go through this life-changing process. I pray for Riley's recovery and your continued strength.
Susan
Susan Zemke
- Thursday, July 9, 2009 10:53 AM CDT

Hi Nikki and Family
I've been checking in everyday for your updates on Princess Riley and I'm saddened to hear she's had a bad couple of days again
LOVE AND BEST WISHES COMING YOUR WAY
FROM YOUR AICARDI FRIEND Chloe and her Family in England
xxxx
MARY BUNTING
- Thursday, July 9, 2009 5:20 AM CDT

Sorry to hear that things have started taking a downturn. Take heart...things will be OK. Saying tons of prayers for you guys!
Love, Sami
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Wednesday, July 8, 2009 11:45 PM CDT

Nikki:
I just wanted to let you know that I am still reading your journal entries. Your little munchkin and your story has captured my heart. I pray that little Riley gets well soon. I can only imagine the emotions you are feeling.
Best wishes.
Andrea Dilley Barker (from Hibbing - long long ago)
Andrea Dilley Barker <andrea.barker@gmail.com>
Hastings, MN USA - Wednesday, July 8, 2009 9:46 PM CDT

Nikki, Aaron, & Riley - I will say my daily rosary for Miss Riley until she is out of the woods & back home. She is a lucky little girl to have such a strong, supportive family. I know your mom is heartbroken through all of this, Nikki.
Annetta Kokkinen <kokkinen@scicable.com>
Pengilly, MN United States - Wednesday, July 8, 2009 4:50 PM CDT

Hi Nikki it's Gemma Millies mum from the UK. I'm so sorry Riley has been so ill, and we r all hoping and praying for u all so much. Millie was ventilated on a oscilator for 2 wks Easter 08 and it was horrendous. I just wanted to let u know we r thinking of u all..
Gemma Crocombe <a.crocombe@blueyonder.co.uk>
England, Uk - Wednesday, July 8, 2009 4:23 PM CDT

Dear Nikki and Aaron, It was such a pleasure to spend time with both of you on July 4th. I really enjoyed meeting you Aaron. What a loving soul you nuture within you. I talked to my son last night from Afghanistan and told him how we shared part of our Independance Day celebration to honor his service to our country and to fulfill his wish to be involved in the message of caring and compassion for Riley. He continues to keep her in his thoughts and prayers.

It really makes me reflect on what bravery can mean at any given time in our lives. Although worlds apart, our children continue to show us the very essence of what it means to be brave. I continue to be humbled by the bravery that both of you show as parents. I read the updates and know that several times a day you take in more and more information and knowledge. I am certain that taking in all of this knowledge requires very brave souls. We expand ourselves far beyond any previously imagined level to be able to meet the challenges put before us. May you always find the strength you need to be brave enough to continue to learn.

Your are the heros that make me proud to work for UMPhysicians. You remain in my thoughts and prayers.

Sandy Raiche <sraiche@umphysicians.umn.edu>
- Wednesday, July 8, 2009 3:32 PM CDT

So Pleased Princess Riley is on the mend
Love and Hugs to you all from
All in England

Mary Bunting
- Wednesday, July 8, 2009 5:34 AM CDT

Nikki---We have been thinking of you guys alot. I am so glad to hear that Riley is making some improvements. We will keep her in our prayers!
Carrie
- Tuesday, July 7, 2009 8:57 PM CDT

I am so relieved to learn that Little Miss Riley is making a bit of a comeback! I have to admit that with the lack of updates for several days I was fearing the worst. But I am giddy to learn that my morbid inclinations were completely unfounded! In fact, I actually started bouncing in my chair and clapping when I read that she's off the nitric AND was down to 30% oxygen!! That is PHENOMENAL! So happy for all of you that you've been given a reprieve from the sadness and fear. (Not that it's completely gone, but not quite so pressing as it had been.) Know that my family continues to keep all of your family in our thoughts and prayers. Please keep updating when you can. I promise not to think negative thoughts again, no matter how long it takes for you to be able to take a break and update!!!! Much love to you!
Kristy (Murray) Van Den Broeke <krisvanden@yahoo.com>
Waconia, MN - Tuesday, July 7, 2009 1:13 PM CDT

I am so happy to here more positive things are happening for Riley and your family! Dont give up God will see you through this! I will keep praying!
Jessica Waara
Hibbing, - Tuesday, July 7, 2009 10:24 AM CDT

Nikki, My thoughts and prayers go out to you every day. You are amazingly strong and Riley is blessed to have you beside her.
Jeff Rieck <jeff.rieck@transinns.com>
Berkley, MI USA - Tuesday, July 7, 2009 8:54 AM CDT

Hi Nikki,
I just want you to know that Riley and your family are in my prayers. I'm so glad that she is doing a little better. Hang in there I'm sure she will pull through. We all are here for you.
Love,
Shaz & Mariam
Shazia Noor <Shaznoor33@Yahoo.com>
Ft.Lauderdale, FL 33319 - Monday, July 6, 2009 9:50 AM CDT

Thank you for the awesome update. So happy to hear Riley is getting a little better. I have been so worried about her. I have been praying every chance I get. She is a true fighter and a huge inspiration to me. She is so blessed to have amazing parents like you! Sending hugs your way!
Rhonda Shoen <rshoen6@frontiernet.net>
Fairmont, MN - Monday, July 6, 2009 9:43 AM CDT

Hi Nikki
I Just posted a message on Facebook and spoke to Gemma Millie's mum she was very upset to hear about Riley and said she will pray as have my friends on face book
xxx
Mary Bunting
- Monday, July 6, 2009 6:28 AM CDT

So glad Princess Riley as turned the corner,
I think about you everyday and send you best wishes
STAY STRONG
xxxxx
Mary Bunting
- Monday, July 6, 2009 0:02 AM CDT

Sending tons of prayers and good vibes. I am thrilled that things seem to be going in the right direction..hopefully they will stay that way. The story about the "turtle ladies" is truly amazing. It sounds like they are angels on earth.
Give Riley girl a kiss and a snuggly hug!
Love, Sami
samisjourney.blogspot.com
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Sunday, July 5, 2009 11:41 PM CDT

We feel very happy for you that Riley is getting better. We will continue to pray for her. The "Turtle ladies" were very nice to do what they did for you. Get some rest...
Linda and Miranda Sibell
Hibbing, MN USA - Sunday, July 5, 2009 8:58 PM CDT

Nikki it was great talking to you today and hearing about her improvment! I will stop by again so I can visit Riley and you. Those days are long and if I can't help medically I can at least help by being someone to talk to.

janel
- Friday, July 3, 2009 3:35 PM CDT

Dear Riley, our little sister from the conference! We think of you so often, and we hope for better days very soon!! We wish we lived closer - and look forward to your mom winning the lottery and building a special Aicardi city!!!! Lots of love and best wishes for healing from Norway, Anci, Anders, Kaia and Alexander
Anne Haugerud
Algarheim, Norway - Friday, July 3, 2009 10:07 AM CDT

Love and prayers to you all--peace and comfort always
Jennifer Berklich Myre <innermarie@hotmail.com>
Tucson, AZ - Friday, July 3, 2009 9:00 AM CDT

Hi Nikki and Family
Best wishes come your way we are thinking of you and Princess Riley stay strong
xxx
Mary Bunting <baabaa2867@yahoo.co.uk>
- Friday, July 3, 2009 5:58 AM CDT

Nikki, we also have a daughter with Aicardi. Our thoughts and prayers are with you and your family for your very precious little girl. Hope you can take some time to take care of you.
Phyllis Siu <phyllis.siu@gmail.com>
Coquitlam, BC Canada - Friday, July 3, 2009 2:43 AM CDT

We are praying for your angel. I am g-ma to Elisa AS-6. And I really believe that riley will just wake up one day soon and just give you the biggest smile. Until then, just take care of yourself. you need all the energy you can get to support her. May God watch over your family day and night, and hold you in his arms. Praying for peace and healing.
Carma Veil
Walton, IN USA - Thursday, July 2, 2009 10:28 PM CDT

Continuing my prayers for all of you. Give Riley a kiss and a squeeze from Sami! Love you all!
Sami
samisjourney.blogspot.com
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Thursday, July 2, 2009 10:15 PM CDT

We're thinking about you guys and wanted to send our love!
Lori Larson (and family:) <ljsteichen@hotmail.com>
Glenville, NY - Thursday, July 2, 2009 8:52 PM CDT

contiuned prayers to you all.....
Rachael Newman <rachm1357@yahoo.com>
North Branch, MN USA - Thursday, July 2, 2009 7:45 PM CDT

Nikki, Keep taking it hour by hour. That little girl of yours is a characteristically tough Aicardi darling and I hope she keeps fighting. We will lift her up in prayer in NH and as you know, your extended Aicardi family is here for you! Give that precious baby a kiss from Amy and the Costas.

Maryellen Costa <MEC4ME@AOL.com>
Pelham, NH 03076 - Thursday, July 2, 2009 7:20 PM CDT

Riley you are a beautiful little girl and we love all of our aicardi sisters! I hope you can feel our love and prayers coming your way. Nikki, I'm sending you a big -Hug- too! Katelyn has been like this several times and she too had the same thing as Riley and pulled through it. Please call me anytime, I don't care what time it is, if you just need to vent or whatever you need! My cell 317-753-8226. God Bless you all.
Love,
Melissa and Katelyn
Melissa Bickel <kbickel4@sbcglobal.net>
Indianapolis, IN - Thursday, July 2, 2009 6:33 PM CDT

Riley, I know we have never met you, but we love you so much! We now how hard it is to live with Aicardi Syndrome, and how many struggles you have, even to do the most simplest things. Please get better soon, you are a little angel.
Love,
Jessica and Samantha Ihrig
Jessica and Samantha Ihrig <jaybirdy22@yahoo.com>
Akron, OH USA - Thursday, July 2, 2009 6:25 PM CDT

Riley and all of you are in my thoughts and prayers during this scary time. Looking at the pictures took me back several years to when Astrid spent a month in the ICU, very very sick, and we weren't sure she would make it. I remember how hard those days were -- how hard it was to sit and watch and not be able to really do anything. So I hope for some peace and comfort for all of you as you ride this out. Take care, and know that we're all pulling for and praying for Riley and her awesome parents!
Ande
- Thursday, July 2, 2009 3:05 PM CDT

Keep saying, "One Day At A Time" - this will get you through. There are so many prayers being said for little Riley and your family. You are a strong family! Your internal strength will get you through. I also pray you & Riley receive physical strength to get through each of your days. Much love and prayers! Lissa, mom to Ava Shaye (5)
Lissa & Adam Gumson <gumson@bellsouth.net>
Jupiter, FL USA - Thursday, July 2, 2009 12:02 AM CDT

Dear Riley. You are in our thoughts and hearts. We are praying for your healing sweet angel.Get better soon so we can meet you in the next conference. Many warm and gentle hugs and kisses to you.
Love,
Ana and your little AS sister, Veronica!
Ana <ana.padron@mustangeng.com>
Houston, TX USA - Thursday, July 2, 2009 11:43 AM CDT

Dear Friends,
Thank you for sharing the pictures and your soul to us who are following daily Riley's journey-and yours too.Nikki, when I met you I was impressed with your ability to talk openly all the while you heart is breaking. I have such great respect for you as parents even though i have not met Aaron. WE will all keep on praying for you.
love, Pat Schwartz
Patrcia Schwartz <schwja@ndsupernet.com>
Mott, ND - Thursday, July 2, 2009 11:09 AM CDT

Your daughter Riley is so adorable. My half-sister is Michele Gounaud and Devan is my niece. I learned a lot about Aicardi Syndrome from them. I heard about your little girl and wanted to let you know that I will pray for her and for all of you. God Bless. Michele Melick
Michele Melick
VA - Thursday, July 2, 2009 10:57 AM CDT

Nikki & Aaron & OF COURSE "Miss Riley",
Thinking of you and keeping you in our prayers. Talked to your Mom last night and it sounded like things have leveled off some. Take care of yourself Nikki - you have been so strong through all of this - how lucky Riley is to have a Mom, Dad, and family like all of you. Judie
Judie Arnold <tomjudie@mchsi.com>
Hibbing, MN USA - Thursday, July 2, 2009 10:49 AM CDT

Nikki, I'm sorry to hear your beautiful princess is having such a tough time. You are so very strong and such a great mom!!!! Give Riley a big hug and kiss from us! Your extended Aicardi Family,Tracy & Caitlin Hoel
Tracy Hoel <FiveHoels@charter.net>
Wildwood, MO. USA - Thursday, July 2, 2009 10:41 AM CDT

Nikki, I am so sorry you have to go through this. Praying for you.
Kim Barry Mom to Charlene AS 10yrs <kimelas2000@yahoo.com>
Manton, MI USA - Thursday, July 2, 2009 10:13 AM CDT

Your in my prayers. I am amazed and impressed with how strong you are. Try to take care of yourself too, so you can keep being strong for your angel girl.
Renee Bupp <kjcbupp@comcast.net>
York, PA USA - Thursday, July 2, 2009 10:11 AM CDT

Praying for you, Riley, and your family! You are so strong...and your family is right there with you every step of the way!
Jennifer <jjholyoak@bokf.com>
Scottsdale, AZ - Thursday, July 2, 2009 10:07 AM CDT

Oh Nikki, I totally see you in Riley's face no matter what meds. are in her! Very strong and very beautiful! Prayers and willpower! Believe and feel! Sending love---
Jennifer Berklich Myre <innermarie@hotmail.com>
Tucson, AZ - Thursday, July 2, 2009 0:50 AM CDT

I am so sorry to see that you all are going through such a difficult situation. I can see how much you love Riley. How blessed she is to have two parents that care for her so much. You all will be in my thoughts and prayers. Take care of yourselves.
Liz (Cavanaugh) Weide
Colorado Springs, CO United States - Wednesday, July 1, 2009 8:09 PM CDT

I am SO, SO, SO glad to hear you switched Pulminologists. Riley needed the positive change!
We ask God every day to grant you all the strength to overcome the hurdles that lie ahead of you! Riley is a very special girl who has blessed everyone that knows her. Nikki, you are an amazing mom with so much strength, love and courage. It's no wonder Riley is such a strong little girl. God Bless~

Jessica Dexheimer & Family <jrdexheimer@yahoo.com>
Maple Grove, MN USA - Wednesday, July 1, 2009 3:56 PM CDT

Dearest Nikki and Aaron,
When your heart is overwhelmed and you need a place to hide, run to Me. I am your refuge, your place of safety where healing and mercy abound. When you feel that you cannot stand on your own for a moment longer, fall back on Me. Just beneath your deepest despair, My arms are waiting to catch you. My love is waiting to provide shelter. In this quiet place, you are fee to be yourself-to cry or to sleep, to remember or to forget, or simply to get away for a time.

You are free to get away from the complications of your life, away from the eyes and the questions of those who do not understand the tender wounds you hold within. What a comfort to come to a place where you don't have to explain! Where you are fully known and fully accepted as you are. You can say whatever is on your heart. I'm here to listen. You can ask whatever is on your mind. My love is strong enough to handle your questions and your doubts. You can show Me your wounds. My mercy is strong enough to heal you.

Riley is my child, and I am on her side. I will not allow the flame of her spirit to be snuffed out. I will stand between her and the wind. I will hold her in My love until she is strong again. Do not be troubled or afraid. Do not strive in your own strength, but lean into My love. Be strengthened by My Spirit. Run to Me. Fall back on Me. My arms are waiting.
Your Rest and Your Refuge,
God
Marcia <mborka@farmington.k12.mn.us>
Farmington, mn - Wednesday, July 1, 2009 1:39 PM CDT

Nikki, Aaron, and Riley, Just wanted to you know that I am thinking about guys. Be strong.
ERIN LAMPTON <elampton@hotmail.com>
SUPERIOR, WI - Wednesday, July 1, 2009 1:19 PM CDT

Hi Nikki,
I only met you and your family for a short time, yet I've been following Riley's stay everyday. I check the website for updates and my husband and I have been faithfully praying. My heart aches for you and I can't even imagine how you are feeling. Just know that many are praying. We had many many people praying for Caleb before his surgery and I was so thankful for that. No matter what God is faithful and we can depend on Him. Riley has wonderful parents who love her wholeheartedly and even though I hardly know you, I can tell through your entries and I could tell from talking with you those times in the family lounge in PICU and even in the hallway, how much you love her. A verse someone shared with me recently was John 14:16 "I will ask the Father and He will give you another Helper, that He may be with you forever." God is always there for us! How comforting. Hang in there! Lindsy
Lindsy Johnson <lindsy_jcl@yahoo.com>
Milaca, MN Mille Lacs - Wednesday, July 1, 2009 1:01 PM CDT

Dear Nikki and Aaron and my dear sweet Riley,
I am so sorry you are fighting right now. Our family is saying prayers for you every day and my heart is breaking just knowing you are sick.
Nikki - Please know we are thinking of you guys, tears are streaming down my face because you know how special Riley is to me, & Devan too. God bless you guys right now and always.
Call us anytime you need to talk okay. Donroy is very good at listening (me I just cry).
Love, love and more love - Michele, Devan (4 AS), Donroy and Alexis
Michele Gounaud <mamakitty26@yahoo.com>
Denville, NJ USA - Wednesday, July 1, 2009 10:51 AM CDT

My wife said it well just "love her, love her, love her". Riley is such a precious angel. And you and Aaron are the parents of an angel, so that makes you all special. :->

And here's some old Irish wisdom for you and your girl to help in her battle:

May the road rise to meet you,
May the wind be always at your back,
May the sun shine warm upon your face,
The rains fall soft upon your fields and,
Until we meet again, May God hold you in the palm of His hand.

Matt Boerner
Bloomington, MN - Wednesday, July 1, 2009 0:23 AM CDT

Sending you all tons of good vibes and prayers. It's sad to hear of how tough Riley girl has it right now, but I'm glad you have a good doctor on board who is trying to prevent any more setbacks. Please know that if I can do absolutely anything for you, I will do it in a heartbeat.
All my love,
Sami
samisjourney.blogspot.com
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Tuesday, June 30, 2009 11:46 PM CDT

Hi Nikki! It's been so nice stopping in and seeing you and Miss Riley!! I'm looking forward to stopping by again. Let me know if you need anything - even if it's just someone to sit with your Princess so you can rest! See you soon!

Love, Carla
Carla Barker <carlaannebarker@hotmail.com>
- Tuesday, June 30, 2009 10:06 PM CDT

You all have touched so many hearts with the deep love you obviously have for little Riley. You are warriors in a war where there are no winners and loosers and we admire you all. We are keeping you all in our prayers as you go through this impossible time. Words don't come easy and don't seem like enough. I know Riley has the best Mom she could have and I know Grandma and Grandpa love her deeply too. Your family has really been blessed with love that is shared freely and Riley understands and feels that love.
clyda prosen <bobclyda@aol.com>
eveleth, MN USA - Tuesday, June 30, 2009 10:05 PM CDT

Nikki, Just heard that Riley is having a tough go of things and checked the site for the updates. Hang in there. I'll try to swing to the other side of the river after work tomorrow. Thinking of you all and keeping you in my prayers. Tracy
Tracy Prosen <prosen@umn.edu>
Roseville, MN USA - Tuesday, June 30, 2009 9:26 PM CDT

Hey Hon, got your messages, as you can tell my throat is real sore, sorry I promise I'll call you back tomorrow! All doped up on pain meds today. I'm SO excited to hear the excitement in your voice that you had this consult with the new Pulmunary Doc woohoo, fresh perspective! I read the note from the mom who met you last week in the hospital while her child was having heart surgery, that is incredible that you were able to have such an impact on someone else while you were both going through such times. (To that mom if you read this, hope your child is recovering well!) See how strong you are :)! That's where Riles gets it from! Hugs to the fam! LOVE YOU! xoxo
Kerri <kerrbearr@hotmail.com>
New York, NY USA - Tuesday, June 30, 2009 6:19 PM CDT

Hi Nikki, I am one of the women you met last week at the Turtle Derby. I just want you to know that you've been in my thoughts. Don't hesitate to call if you need anything.
Melissa Prusi <mprusi@umphysicians.umn.edu>
St. Louis Park, MN - Tuesday, June 30, 2009 4:03 PM CDT

Just stopping by to send you more and more and more love, my sweet sister! I'm so glad your mom and dad are back with you! Hug them tight, wish I could give you all more than a cyber hug. My heart is with you every moment! I love you so much honey!!!! Praying for strength and guidance, you are a true warrior Nikki! Kiss the angel princess and Aaron for me and call again when you can. xoxo
Kerri <kerrbearr@hotmail.com>
New York, NY USA - Tuesday, June 30, 2009 11:41 AM CDT

I read another entry, and saw that someone pointed out what a gift Riley is to you. I want you to know that she is a gift to all of us, whether we know you from childhood, met on cyberspace or were drawn together by similar challenges, we all have been able to share Riley. We have all received a gift in watching your family, seeing the strength and vulnerability, the love and the fear, the self determination and the trust in God. You have let us in to your family, and blessed us with lessons we could not learn if we did not know Riley. Thank you for sharing your sweet baby girl with all of us!
Anita (Schumacher) Mendonsa <ajmend@paulbunyan.net>
cohasset, mn us - Monday, June 29, 2009 10:53 PM CDT

Dear friends,
I am so sorry to read of Riley's distress and yours too. I am continuing to pray for all of you. I have been back home now for a week. I am honored to have met you and your mother, Laura and will keep in touch.
Pat Schwartz <schwja@ndsupernet.com>
mott,, ND - Monday, June 29, 2009 5:31 PM CDT

I believe that you have been the strength that has helped Riley all of this time. It is because of your love and caring that Riley has had the all of her good times. It is because of your realationship that you have such a caring and loving heart. That is your gift to one another.
Adam
Mpls, mn henn. - Monday, June 29, 2009 4:55 PM CDT

Nikki, just want to let you know I'm thinking and praying for Riley and your family. I stay at the lake and I don't have computer service there. Today I am in town and read your latest update. I think of your family often and will
continue to keep you in my thoughts and prayers.
Judy Zaitz <tzaitz@mchsi.com>
Hibbing, MN - Monday, June 29, 2009 2:32 PM CDT

Hi Nikki, I am one of the group you met at the Trutle Derby last week. You and your little angel Riley have been on my mind ever since. We are just a few steps away any time you need someone to listen...you tocuhed us all deeply.
Nancy Martin <nmartin@umphysicians.umn.edu>
Stillwater, MN USA - Monday, June 29, 2009 2:06 PM CDT

"My precious child, I love you and I would never, never leave you during your times of trial and suffering. When you saw only one set of footprints, it was then that I carried you." HE will carry you through, look to the LORD! Wishing we were there to hug and hold you! We do not remember the days, we remember the moments!
Jennifer Myre <innermarie@hotmail.com>
Tucson, AZ - Monday, June 29, 2009 1:42 PM CDT

Nikki, I want you to know that I am thinking of you. Riley, you and your family are in my thoughts and prayers. I figured I would just be 1 less person coming up to you at work asking how things are going, because I can only imagine. But please know that I am here for you if you need anything, to talk, to listen, a shoulder to cry on, whatever it may be. I'd say help out it pay roll, but that could cost more money, with all the mistakes I'd probably make! Hahaha! I had to throw that in, to make you smile! Also, I came across this poem online and wanted to share it with you.

'Only Believe'
Has that trial in your life been going on so long
That everything in you screams, "This is so wrong."
You can't understand, it seems God is far away
As with tears you cry out to Him everyday
If you read God's Word His truth you will see
That He has a job for you and a job for me
ONLY BELIEVE is what He has to say
At His feet this problem you must lay
In His time and in His way
An answer to your problem will be there one day
Keep on believing, don't lose hope
He'll give you His grace enabling you to cope
Keep your eyes on Him as to Him you cleave
He has promised He will never forsake you or leave
Give Him time to work it all out
The devil just wants you to worry and doubt
Praising Him is one thing He's looking for
To bless you is what He has in store
So no matter what, even when you don't understand
ONLY BELIEVE that's what moves His hand.

Continue to stay strong Nikki.

Always,
Brandy

Brandy <stclairbrandy@gmail.com>
Minneapolis, MN - Monday, June 29, 2009 1:41 PM CDT

I am praying for you guys, I hope Riley gets better really soon.
Jessica Waara <waara008@umn.edu>
- Monday, June 29, 2009 1:15 PM CDT

You all continue to be in our prayers. Riley is an amazing little girl who is an inspiration to all of us.
Jessica Dexheimer & Family <jrdexheimer@yahoo.com>
Maple Grove, MN USA - Monday, June 29, 2009 12:48 AM CDT

Hi Nikki,
I met you while my son Caleb was in ICU two weeks ago after having open heart surgery. I have not stopped thinking about you or Riley since we left the hospital. My husband and I have been praying for her. God loves her so much! She is a beautiful little girl. You are very strong. You were an inspiration to me when we were there with how strong you were. I enjoyed talking with you. I'll keep praying that God will give you peace and rest (which I'm sure you need) and that He will surround you and your family with his love. Sincerely, Lindsy
Lindsy Johnson <lindsy_jcl@yahoo.com>
Milaca, MN Mille Lacs - Monday, June 29, 2009 11:47 AM CDT

May Angels be over you, little precious Riley, and your Mommy and Daddy! We love you!
Cindy, Rick, Ellie and Claire Scheer <rcesch@fidnet.com>
- Monday, June 29, 2009 10:55 AM CDT

Dear little Riley and Parents,
Until I was informed about the CaringBridge website this morning, I had no idea of the tremendous challenges that all of you have been facing in recent months. My heart and prayers go out to all of you. Riley, you are a strong little fighter and you always amaze us with your sweet disposition and steadfast determination--keep it up and get over this hurdle! Your teachers and friends from school are pulling for you and praying for your recovery. You and your family have taught all of us a great deal!
Terri Trexler <terri.trexler@isd917.k12.mn.us>
Rosemount, MN USA - Monday, June 29, 2009 9:39 AM CDT

Nikki, Aaron,and Riley,My name is Erin Lampton,I am Sara's sister,I've heard alot about Riley, and just wanted to let you know that I am thinking about you, and praying for Riley. Sending hug and kisses from Superior.
ERIN LAMPTON <elampton@hotmail.com>
SUPERIOR, WI USA - Sunday, June 28, 2009 6:48 PM CDT

I am checking your site every day hoping to hear of the miracle I have been praying for. Know that you are always in my thoughts and prayers! Sending love and hugs!

Rhonda Shoen <rshoen6@frontiernet.net>
Fairmont, MN 56031 - Sunday, June 28, 2009 2:16 PM CDT

Nikki, We only recently met at the Turtle Derby last Thursday. You touched me deeply as you told Riley's story. I am continuing to read your updates and I see the messages of love and support you receive from all those around you. The tapestry woven by your lives is filled with more beauty and love than most would find in many lifetimes. Your passion is a gift to all who have the privilege of being touched by your family.

May you be blessed with wisdom, love, strength and joy.
Sandy Raiche <sandyraiche@gmail.com>
Minnetonka, MN - Sunday, June 28, 2009 12:00 AM CDT

I am a friend of Erin Liebaert's, and heard about your situation through her. Know that we in Superior are praying hard for you and for Riley. God bless you all.
Kristi Matushak
Superior, WI - Sunday, June 28, 2009 11:18 AM CDT

Your entire family is in our thoughts and prayers.
Keith and Linda Saralampi <lindasaralampi@aol.com>
Toivola, MN USA - Sunday, June 28, 2009 7:23 AM CDT

Nikki, Aaron and Riley,
Throughout each day a Loving God looks down and seeks to comfort you in your ordeal. From the Hope Lutheran family and this pastor our prayers to Him are continually lifted for you. Lyle
Lyle W. Northey <northeys@frontiernet.net>
Two Harbors, MN USA - Sunday, June 28, 2009 6:37 AM CDT

Precious Riley girl and her awesome family,
My heart breaks for you. Know that I am sending tons of prayers. Don't worry about the unanswered questions right now; just keep loving on your little girl as long as you can. I wish I could be there to help you guys and see my little Riley, but I have been working for the past six days and I work tomorrow too. I have been thinking about you guys all the time, please let me know if there is ANYTHING I can do for you guys!
Love and hope always,
Sami
samisjourney.blogspot.com
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Sunday, June 28, 2009 2:35 AM CDT

I don't know you guys, just through Lee, through Sara L. But I read about Riley's fight, and I just want you to know that you're in my thoughts and prayers. I wish you all the best.
Jackie Bull <jbull05@hotmail.com>
Maplewood, MN USA - Saturday, June 27, 2009 11:31 PM CDT

Thanks for the updates again. Please try and get some rest, you both need to be as strong as possible for Riley. Please let us know if you need anything.
Sara <sel28@hotmail.com>
Superior, WI USA - Saturday, June 27, 2009 10:35 PM CDT

Nikki, Aaron, and Riley, Miranda and I have just finsihed reading your latest entry. We want you to know we will include a special prayer tonight for Riley when we say Miranda's prayers, Miranda remembers singing to Riley when you brought Riley to your parents house for the shower. We know she is your sunshine, your special sunshine...and we will pray she stays with you for a long time to come. She could never have had better parents. Hope the new medication works for Riley.

Linda and Miranda Sibell
Hibbing, MN USA - Saturday, June 27, 2009 9:08 PM CDT

Nikki, Thank you for sharing Riley's amazing life with all of us. She is a gift to all of you. And it's okay not to be strong; sometimes we need to lean on others and let them be our strength. You are all in my prayers.
Susy (Ralph's Sister)
Sue Barker <suebrkr@yahoo.com>
Elizabeth City, NC USA - Saturday, June 27, 2009 6:52 PM CDT

Nikki, Aaron and Riley Nicole
There are a whole lot of Lutherans praying for you up here in Toivola. God answers prayer. We love you, and will continue praying.
Mike and Laurie Anderson <manderson55765@frontiernet.net>
Toivola, MN USA - Saturday, June 27, 2009 2:36 PM CDT

Okay so on a lighter note, I've been on here for like three hours looking over all these incredible entries that I've missed and I come to the one where Aaron is supporting Riley just a little, allowing her to do the work and Nikki is filming and they are both coaching. We are witnessing this incredible moment where Riley is showing us, that against the odds, she's got total neck control for moments of time. I'm amazed, she's incredible!! On the forth take, I notice big fat Buster the cat in the background cleaning his butt! LOL!!! (Okay, some of you might think this is inappropriate for me to mention right now, but trust me, Nikki and I were roomates, Buster and I have history, she will laugh, even for half a second) I'm sure at the time of posting others may have already commented. This is just such a great example of your incredible accomplishments as a family, thought you should be reminded. Love you guys so much! (Oh and Hayley, the kids are beautiful and look just like you :))
Kerri <kerrbearr@hotmail.com>
New York, NY USA - Saturday, June 27, 2009 9:26 AM CDT

Hi my love! You are correct, she is the bravest little girl in the world, but you run a VERY close second Nikki,you are the strongest woman I know. My heart is with you. I wish I could grab you and hug you. Please try and keep finding a little time to rest. Love to mom, dad and Aaron. I love you SO much, so glad to hear you have your friends there for support too. xoxo
Kerri <kerrbearr@hotmail.com>
New York, NY USA - Saturday, June 27, 2009 7:48 AM CDT

Hey Miss Riley,
Just want to check in on you peanut. I love you and you keep fighting. Nikki and AAron I hope the two of you have gotten some sleep after the meeting yesterday. I love both of you and will see you soon. I will try to get up there after work today or tomorrow. Let me know if you need anything or if you need me to bring anything.
Love always, Hayley
Hayley Prchal <h_towngirls@yahoo.com>
Montgomery, mn - Saturday, June 27, 2009 6:00 AM CDT

Sending you our love and prayers!
Lori Larson <ljsteichen@hotmail.com>
Glenville, NY - Friday, June 26, 2009 7:52 PM CDT

Dear Riley, Nikki and Aaron, I remember when you were at the Stroll for Epilepsy here in Duluth and have a darling picture of all of you with Leanne holding Riley close. You are an amazing family and we all can learn some of 'life's lessons' from little Miss Riley! I pray for hope and peace for you.
Mary Giese, EFM Duluth <marygefm@charter.net>
Duluth, MN USA - Friday, June 26, 2009 1:31 PM CDT

Just cheocking in--she is an fighter....my contiuned prayers are with you guys...love ya
Rachael Newman <rachm1357@yahoo.com>
North Branch, mn 55056 - Friday, June 26, 2009 12:41 AM CDT

I am thinking of you guys and hoping the meeting is going ok. Love you all. Stay strong. Lots of hugs to you all and our peanut.
Love you
Leanne Barker <lmbarker@charter.net>
Superior, WI - Friday, June 26, 2009 12:01 AM CDT

Nikki, know that we are all thinking of you and Riley and the rest of your family. Your strength and the strength of Riley are amazing. Take care.
Matt Boerner
Bloomington, MN USA - Friday, June 26, 2009 11:59 AM CDT

Our thoughts and prayers are with you and your family.
Kim Hollund
Montgomery, MN - Friday, June 26, 2009 10:59 AM CDT

Hi Nikki-I know we havent spoken in years, but I have lots of childhood memories with you and have been praying for Riley. She sure is a beautiful, strong, little girl. I will continue to pray for her, and for strength for you and your family.
Shannon Wilke (Sellars)
AZ - Friday, June 26, 2009 10:33 AM CDT

Riley, Nikki and Aaron:

I am thinking of you and praying for Riley and your whole family.

Elizabeth (Kelly) Johnson - Carla's friend
Elizabeth
Blaine, MN - Friday, June 26, 2009 10:31 AM CDT

Riley, I know your mommy from our growing up days in Hibbing and I just want you to know that I am praying for you and your family and stay strong little one. Nikki, I think of you often and know that there are so many prayers coming your way. God Bless you and stay strong in your faith.
Shannon (Keppel) Olson <shannonolson@cableone.net>
Fargo, ND USA - Friday, June 26, 2009 9:15 AM CDT

Nikki, Aaron & Riley,
We continue to keep the 3 of you in our prayers. We love you!
Jen, Rocky, Thomas, Vivian, & Connor Barden
Jen Barden
Montgomery, MN usa - Friday, June 26, 2009 5:58 AM CDT

Dear Miss Riley,

You've never met me, but I went to school with your mommy. She has been so fantastic about taking the time to keep all of us out here updated as to what a strong, brave little girl you are being. Keep fighting, beautiful girl, so that you can get well enough to go home with mommy and daddy and snuggle with them again!

Nikki - My heart is aching for you. I cannot begin to imagine what these past few days have taken from you emotionally. Please know that there is a huge group of us saying prayers for Riley's lungs to heal, for her to be able to get off the Nitric Oxide, and for her to be able to snuggle with you, smile and touch your face again. Stay strong, Nikki. Believe in the power of prayer, because Riley's got a lot of prayer power surrounding her.

Kristy (Murray) Van Den Broeke <krisvanden@yahoo.com>
Chaska, MN - Thursday, June 25, 2009 11:24 PM CDT

I was so saddened to see the notes about Riley's struggles when I came into work today. Wishing strength for you Nikki and Aaron as you go through these days and the care conference tomorrow. And wishing strength for Riley as she continues to fight the nasty pneumonias. Hoping for better days ahead and saying a little prayer. Stay strong. We're thinking of all you over on 5A. She is quite a little fighter.
Jessalyn
- Thursday, June 25, 2009 10:15 PM CDT

I am Hayley and Jerry's neighbor and heard about your sweet Riley from her. Just sending thoughts and prayers for Riley and family...stay strong little girl and keep fighting.
Megan Denzer
Montgomery, MN - Thursday, June 25, 2009 9:38 PM CDT

Nikki: You, your family & especially your beautiful little girl are all in my thoughts a lot lately. We are sending positive energy your direction. Hang in there, you are such a brave & strong Mama - your baby needs your positive energy around her, we will be following your story & continue to think of you daily.
Alita (Russ) Bergan
Minneapolis, MN USA - Thursday, June 25, 2009 9:12 PM CDT

My thoughts and prayers are with you and your family.
Brittany Cedar <brittany001@hotmail.com>
Chishom, MN - Thursday, June 25, 2009 8:24 PM CDT

Nikki, All of us here at the quilt shop of chisholm are thinking about you and praying for Miss Riley. Riley is lucky to have such a strong mother and so are you. Your mother is the best, but I'm sure you know that.
Mary Olson <qsochisholm1001@qwestoffice.net>
Chisholm, MN USA - Thursday, June 25, 2009 8:19 PM CDT

you are in my prayers, have heard so much about you from Leah and Sara
support each other and know that the DR & nurses are caring for you child so you need to take care of each other
Liz Martinson <lizmartinson@yahoo.com>
Superior, WI USA - Thursday, June 25, 2009 8:09 PM CDT

Your in my thoughts and prayers!
Rita Stenzel <ritz_bitz03@hotmail.com>
Montgomery, MN LeSueur - Thursday, June 25, 2009 7:50 PM CDT

Nikki and family--the Lord will SHINE! Feel the Lord, the prayers and the love! He will get you all through this and you WILL rise above it! Look to him and only him. I hate feeling helpless but prayers do help and the love you all have and will continue to have! Keep updates
Jennifer Berklich Myre <innermarie@hotmail.com>
Tucson, AZ United States - Thursday, June 25, 2009 3:21 PM CDT

Nikki-
I check in on you guys every once in awhile, & my heart aches to read all that you are going through. Lots of positive prayers are being sent your way.
Dawn (Tomatz) Spaniol
St. Michael, MN - Thursday, June 25, 2009 3:06 PM CDT

Nikki - I just read about Riley and I am sending huge prayers your way. I cannot even begin to imagine everything you guys have been through these past couple years and want you to know I admire your strength and your love. I hope and pray for the best.
Trista Vucetich
Duluth, mn - Thursday, June 25, 2009 1:58 PM CDT

just wanted to let you know that all of you are in my thoughts and prayers.
lorraine klobuchar
eveleth, mn usa - Thursday, June 25, 2009 12:30 AM CDT

You are all in my thoughts and prayers today and in the days ahead. I know that you will have many difficult decisions to make but you are amazing parents and God will help to guide you. Sometimes "we are visited by angels unaware"---
Love, Lynn
Lynn Gigliotti <gigman09@hotmail.com>
Britt, Mn USA - Thursday, June 25, 2009 11:47 AM CDT

Thanks for the updates Nikki. Be strong. Sending good thoughts and prayers to each of you. Let me know if you need anything or need to talk. Love you all lots.
Leanne Barker <lmbarker@charter.net>
Superior, WI - Thursday, June 25, 2009 10:45 AM CDT

Checking in to see how Riley, Mom & Dad are all doing! Praying for you everyday and asking Yahweh to bless Riley with healthy lungs, no infection, and for that pretty little smile to come back. Hold tight to all your memories and know that you are amazing parents. Yahweh blessed you the day he chose you to be Riley's parents. She is a very luckey little girl to be loved sooo much!!
Rhonda Shoen <rshoen6@frontiernet.net>
Fairmont, MN - Thursday, June 25, 2009 9:32 AM CDT

Thinking of you guys and praying for little Miss Riley!!
Carrie Paup
Corvallis, OR - Thursday, June 25, 2009 0:11 AM CDT

I will be praying for all of these things for you and precious Riley. I hope you guys are getting enough rest for yourselves. Just take it one day at a time and keep loving on your little girl.
Sending all of my love.
Sami
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Wednesday, June 24, 2009 11:38 PM CDT

Thanks for updating again Nikki and keeping us posted. Please let me know if you need anything!! I'm so close and can stop by anytime. Sending lots of love and prayers!
Carla Barker <carlaannebarker@hotmail.com>
St. Anthony, MN - Wednesday, June 24, 2009 11:21 PM CDT

I am coming here from Joey K's site to let you know that you are in my thoughts & prayers. God bless you all!

Marilyn Long
Burlington, CO USA - Wednesday, June 24, 2009 10:29 PM CDT

Dear Nikki, Aaron and Riley,
Lots of love, prayers and strength being sent to you from us. Our love and thoughts are always with you.
Ros and Ralph <perchlakers@aol.com>
Side Lake, MN - Wednesday, June 24, 2009 9:45 PM CDT

Will be praying for each of the requests....My prayers for you guys too...Stay strong....love you
Rachael Newman <rachm1357@yahoo.com>
North Branch, mn - Wednesday, June 24, 2009 9:18 PM CDT

Caringbridge helps so many people stay connected.
Sarah Nixdorf <srnixdorf@yahoo.com>
Naperville, IL UnitedStates - Wednesday, June 24, 2009 6:38 PM CDT

Nikki, Aaron, and Miss Riley,

You all are in my thoughts and prayers....
Your Mom is a friend of mine from the quilt shop in Chisholm.
Bev DeGrugillier <beverlee50@hotmail.com>
Chisholm, MN - Wednesday, June 24, 2009 7:46 AM CDT

Keeping you in our thoughts

Nikki, I was able to visit with your mom and dad for a bit and meet Tess yesterday. I also had a peek at Riley. What a beautiful child!!!! Her spirit and fight through all of this must make you so proud. You and your family's strength is also an inspiration to everyone. Hold on to that hope and know that many, many prayers are with you all.

Hugs, Patty
Patty Schroetter <pschroetter@hotmail.com>
Mt. Iron, MN USA - Tuesday, June 23, 2009 9:57 PM CDT

Hi Aaron and Nikki,
So sorry to hear that Riley is battling so. Keep yourselves strong. You family is on my HOPE class prayer list. We're all sending up prayers. Much love to you.

Aunt Barb <blcook153@hotmail.com>
Cross Plains, TX - Tuesday, June 23, 2009 9:04 PM CDT

Hi All-
I appretiate the updates here and through mom and Laura. Just know how tough Riley is. I can only feel for you for all the weekend and so far this week has brought to you. Know that I am thinking of you all lots and hope to see you soon. Lots and lots of hugs. Love you all and keep strong!!!
Leanne Barker <lmbarker@charter.net>
Superior, WI - Tuesday, June 23, 2009 8:42 PM CDT

Dear Nikki and Aaron...I know this is such a tough time for
all of you. I want you to know that you are all in our thoughts and prayers.
When Riley comes out of this, she is going to need you to be healthy and strong so take care of yourself. Sending lots of love...Bob and Judy
Judy Steichen <robert.steichen@mchsi.com>
Hibbing Hibbing , MN St. Louis - Tuesday, June 23, 2009 7:05 PM CDT

Thinking of you all again all day..."He will sheild you with his wings. He will shelter you with his feathers. His faithful promises are your armor and protection" Psalms 91:4. "Do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand". Isaiah 41:10.
I can not imagine at all what you are going through right now but I am sending you all my strength through prayer. You are an amazing mom. You all keep fighting...love you...
Rachael Newman <rachm1357@yahoo.com>
North Branch, MN - Tuesday, June 23, 2009 6:54 PM CDT

Hey Nik--I am praying for you guys, and here is something that will maybe bring a little smile to your face. I was thinking of you, and I remember all of the code words you had for people on a trip you took to the Cities, I think with Mr. Mucjei (sp) for art. I remember sitting in study hall and trying to figure out who you were talking about! Oh, junior high days! I hope you get a little smile out of my recollection-Love to all of you! Anita
Anita Schumacher Mendonsa <ajmend@paulbunyan.net>
Cohasset, MN 55721 - Tuesday, June 23, 2009 4:42 PM CDT

Praying for your little girl and your entire family... praying for a prompt recovery. God bless you all...

Jennifer Pascual
New york , ny usa - Tuesday, June 23, 2009 4:00 PM CDT

Nikki - I have been so out of touch that I haven't checked Riley's site forever. I had no idea that when I did check it, I was going to read what I did. I am at work and doing my best to hide my tears from everyone. Know that with all the passion in my heart I am with you in thought and prayer! I love you and little Riley and miss you sooo much! Please tell Riley that Rhonda and Aleia love her, tell her that when God calls her name that it will be the most beautiful place she will ever see. I can't even begin to understand how you feel right now but I do know from Aleia getting very sick it is horrible to have a child in the hospital. Our children were born very fragile and because of that we cherish every second we have with them....Cherish these moments...even though they aren't the best ones.
Rhonda Shoen <rshoen6@frontiernet.net>
Fairmont, MN - Tuesday, June 23, 2009 3:23 PM CDT

I just want you all to know that I am thinking about all of you and praying for God to give you PEACE and Comfort in these difficult times. Grandma Laura knows me from the Quilt Shop.
Thinking of you, Susie Cencich

Susan Cencich <scencich@nesc.kk12.mn.us>
Chisholm, MN U.S. - Tuesday, June 23, 2009 2:36 PM CDT

Nikki,
I get updates from your Mom at the Quilt Shop. Please know that I am keeping all of you in my prayers...
Jackie Shuster <jackieshuster@hotmail.com>
Chisholm, MN US - Tuesday, June 23, 2009 2:29 PM CDT

Hi Nikki - I'm so sorry you're going through such difficult times...keep your chin up - and just love her, love her, love her. Like another signer said, one day at a time..in fact, I'd recommend one hour..or minute..at a time during those painful stretches. I will pray for Riley's recovery and think of you all.
Lisa Boerner
Bloomington, mn USA - Tuesday, June 23, 2009 2:00 PM CDT

Hi Nikki I remember you all in my prayers every day. Be strong for your little "Princess" but take care of yourself, too......one day at a time!! Love Marion
Marion May <maym@co.st-louis. mn.us>
Hibbing, MN - Tuesday, June 23, 2009 1:23 PM CDT

Hi Nikki, I saw Haley's posts on FB about your little girl and am familiar with caringbride from my brother Nathan's wifes illness. So I had to check the website. It's a wonderful tool to keep people informed and I know how much the support is needed. Please know I am praying and thinking of you and your family. What an awful thing to see your child go through, you are a strong, inspiring woman. Hang tough and don't forget to take care of yourself too
Alyssa (Pusateri) Manchester <alyssa.manchester@usoncology.com>
Las Vegas, NV USA - Tuesday, June 23, 2009 12:22 AM CDT

Hi Spauldings--
Just wanted you to know that we are saying lots and lots of prayers for Riley! SHe is such a special little girl, and we think about her all of the time.

Love,
Jessica and Samantha Ihrig
(aicardi girls too)
Jessica Ihrig <jaybirdy22@msn.com>
Akron, OH - Tuesday, June 23, 2009 11:29 AM CDT

Hey little peanut!! I wanted to tell you that you are a fighter and you are gonna be just fine. I will try to come back up there to give you hugs and kisses on wed. We all love you Miss Riley!!You take care and tell that mommy and daddy if they need anything call Auntie Hayley! Love you lots,
Auntie Hayley
Jerry, Hayley, Blake and Kendall Prchal <h_towngirls@yhaoo.com>
Montgomery, MN - Tuesday, June 23, 2009 10:04 AM CDT

I have has that talk, with my Dad...and then later my brother, but I can't even begin to imagine when I will have to do that for my child. My heart is aching for you and your family and know there are many people thiking and praying for you. /BIG HUG
Maryalicia <pegasusrdr@hotmail.com>
- Tuesday, June 23, 2009 7:33 AM CDT

Nikki--I just wanted you to know that I am thinking Riley & your family. I know how hard this is--we have been exactly where you are now. Please know we are here for you anytime you need to talk!
Carrie Paup
Corvallis, OR - Tuesday, June 23, 2009 1:22 AM CDT

DEAR KIDS,
I AM WITH YOU IN SPIRIT, BUT WISH SO BADLY I COULD GET THERE TO BE A COMFORT IN SOME SMALL WAY. I READ THE WEBPAGE EVERY DAY, AND I UNDERSTAND SO CLEARLY HOW MUCH YOU ARE GOING THRU, IT IS SO SCAREY. I ONCE HAD A VERY TINY BABY, ALL 3 LBS.5OZ. OF HIM. HE CONSTANTLY STOPPED BREATHING, AND WE SPENT SO MANY NITES AND DAYS AT THE HOSPITAL. I NEVER PRAYED SO MUCH FOR ONE PERSON IN MY WHOLE LIFE. YOU KNOW HIM..HE IS AARON....LOL...RILEY'S DAD! I HOPE THINGS TURN AROUND FOR YOU ALL IN A MIRACULOUS WAY...IT'S MY PRAYER FOR YA'LL EVERY SECOND. I LOVE YOU ALL, AND WILL BE WAITING FOR THE GOOD NEWS OF HER RECOVERY!!...ALWAYS LOVING YOU....MOM
CHARLA FOWLER <imacharla@yahoo.com>
Abilene, Texas United States - Tuesday, June 23, 2009 0:56 AM CDT

Trying to write through heavy emotions and the beginnings of tears. I literally had to re-read the entry. Poor, Poor Riley, and POOR YOU! Please, know that I hold you all in prayer. I love you all and I am so sorry that you are going through all of this. Don't hesitate to call me or e-mail me if you need anything! I mean it! I miss you so much and I love you. Give the precious Princess Riley a kiss and a squeeze for me.
Love, Sami
Sami <samlloydmiller@frontiernet.net>
Fairmont, MN USA - Tuesday, June 23, 2009 0:51 AM CDT

Nikki, please try to get as much rest as you can. You are truly amazing the way you are handling everything with Riley. Was nice to hear from your Mom last night, and wish I were closer so I could give you both hugs. Your Mom has been there for me so many times! I truly know how you are feeling Nikki, and my heart goes out to you. Remember our letters back and forth and what we told each other - one day at a time. My prayers are with you all. Take care and thank you for the updates. You are all on our minds constantly. Love you!

Judie Arnold <tomjudie@mchsi.com>
Hibbing, MN USA - Monday, June 22, 2009 10:33 PM CDT

I want you to know that you all are in my prayers. Even if I never see you guys know that we will always be family and I love you. If you need anything please let me know...Honestly anything....
Rachael Newman <rachm1357@yahoo.com>
North Branch, mn - Monday, June 22, 2009 7:03 PM CDT

Nikki I want to let you that our family is doing alot of praying for miss riley. If you ever need to talk or want me to come by it is no problem please call me I'm here for you. Keep your head up and try to get some rest. Please just know I'm here for you.
Anita Sanchez <mizasanchez@yahoo.com>
West. St. Paul, MN USA - Monday, June 22, 2009 5:24 PM CDT

Nikki:
I saw this link on Hayley's site on facebook, so I came to visit. I used to live down the street from you in Hibbing. I am so sorry that your little girl has to deal with this awful illness! Thinking of you!
Andrea (Dilley) Barker
Hastings, MN 55033 - Monday, June 22, 2009 5:19 PM CDT

I had seen the updates of Riley on Hayley's facebook so I came to visit the site. Our thoughts and prayers go out to Riley, you and your family. You have all been through a lot!!

Sara (Zak) and Shane Maki <sarnshane@yahoo.com>
Hibbing, MN - Monday, June 22, 2009 5:06 PM CDT

Nikki - I've just been reading Hayley's posts on facebook and wanted to let you know that I am praying for Riley, you and the whole family.
Corrie Saban <corriesaban@hotmail.com>
Robins, IA - Monday, June 22, 2009 4:45 PM CDT

Nikki & family,

I see Haley's posts on facebook and wanted to stop by your site. I will be praying for little Riley and your family. I am not sure that you remember me, but you were in my older brother Leighs class. God Bless you all and I will be back and visit again soon.
Elissa (Martinson) Schley <babyschley@yahoo.com>
Mora, MN US - Monday, June 22, 2009 4:08 PM CDT

Thinking of your little angel and your family. Sending prayers for you all.
Tiffani Aprl <Jazzmapel@aol.com>
Hibbing , Mn - Monday, June 22, 2009 3:55 PM CDT

We are all praying for you in Phoenix, AZ! All our love and support
Jennifer H <jjholyoak@bokf.com>
- Monday, June 22, 2009 2:42 PM CDT

Hi Nikki. I am praying for little miss Riley and hope that she gets well soon. I try and go to the caringbridge site about once a week to check on you and your family. Please let me know if you need anything. I am still working at the clinic where Riley's pediatrician is, but I am in OB/GYN. I would love to see you next time your in.
Stacy (Schloesser) Chartier
Rosemount, MN - Monday, June 22, 2009 11:26 AM CDT

Riley,I sure hope you feel better soon princess.We were just in ICU a eek ago.Try and get some sleep.It's very hard to.They didn't even have beds for the parents when we were there.

God bless,love & hugs,Linn,Michael,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
Port Orchard, WA USA - Monday, June 22, 2009 10:57 AM CDT

Nikki, I sure hope Riley gets better soon. Emma and I just got home from the hospital on Friday for pneumonia (she was in for 5 days). Take care of yourself and let me know if I can do anything at all. I work close by in downtown Minneapolis.
Matt Boerner
Bloomington, MN Hennepin - Monday, June 22, 2009 10:22 AM CDT

Nicki-I thought I'd check in on Riley, while I'm waiting for Marisa's surgery to be completed. Just wanted to say that we are thinking of you and keeping your family in our prayers. Much Love.
Marcie
Warsaw, IN United States - Monday, June 22, 2009 8:19 AM CDT

Nikki
cant belive how big Riley has gotten, she is as beautiful as ever. we are praying for her to feel better soon. just know that there alot of people out there that love you guys and your in our thoughts. Its so hard when the kids are sick, please take care of yourself cause ya know how stress can wear you down. please keep us up to date on how she is doing. Sandy Hartman, Megan almost 15, and Family
Sandy Hartman <rnshartman@aol.com>
Burlington , IA - Sunday, June 21, 2009 6:16 PM CDT

Nikki and Riley,

We are praying for you and sending positive thoughts your way.... Riley looks so cute---What is the purple thing she is lying on...

Love and Hugs from Michigan,
Nicole and Cecelia~AS Sister

Nicole Babinec <NBabinec@yahoo.com>
Grand Rapids, MI US - Sunday, June 21, 2009 5:35 PM CDT

Nikki,

We are thinking of you, Riley and your family, and hoping she starts perking up soon. Hang in there, and remember to take care of yourself when you can. If you need to talk just email me - Evelyn was in the hosp. recently and I know how overwhelming it can feel. You are not alone!
Kim Forester (Evelyn's mom) <kimberly.forester@gmail.com>
- Sunday, June 21, 2009 5:22 PM CDT

Dear Nikki, Jenna a aicardi sister and I are keeping you all in our thoughts and prayers for a speedy recovery!!! You are so strong and have had to endure more than your fair share. Riley is a beautiful peanut and we pray for her to get well. Blessings from Wisconsin
Tamara Friar
Soldiers Grove, Wi USA - Sunday, June 21, 2009 3:31 PM CDT

Nikki--I am praying for Riley & for you & Aaron during this tough time. I am glad you called today and hope that you know you can call anytime! Take care of yourselves!
Carrie Paup
Corvallis, OR - Sunday, June 21, 2009 1:30 PM CDT

Hey Nikki- Thank you for the updates. You and Riley are in my thoughts and prayers. Give her my love, and just know that she is a tough little girl. All my love, Sara
Sara Liebaert <sel28@hotmail.com>
Superior, WI USA - Sunday, June 21, 2009 11:39 AM CDT

Just wanted you to know we are thinking and praying for you. Just remember what a fighter Riley has been. Keep us posted. We love you all!!
Leanne Barker <lmbarker@charter.net>
Superior, WI - Sunday, June 21, 2009 9:58 AM CDT

Nikki, Aaron, and Riley,

I wanted to let you know you are in my prayers. I hope Riley is feeling better soon.

Jenny Carlson
- Saturday, June 20, 2009 10:11 PM CDT

Nikki-
You are truly an amazing person- handling everything and staying as positive as you do. You, Aaron and Riley are always in my thoughts and prayers. We miss you and can�t wait to have you back soon. Remember to let me know if there is anything- no matter how small- that I can do for you! Hugs to everyone- Becky
Becky Driscoll <rlyndriscoll@yahoo.com>
Farmington, MN US - Friday, June 19, 2009 1:59 PM CDT

I know we haven't seen each other for a long time, but I check Riley's caringbridge site every week. She and your family are always in my thoughts and prayers. She is the toughest little girl in the world and you are so strong. All of this would crush some people but you are always so optimistic, even when it's difficult. Keep your chin up, Riley will be better soon. Thanks for keeping those of us who are far away updated.
Tania Dutcher <trentsbiggestfan@hotmail.com>
Neenah, WI USA - Friday, June 19, 2009 11:33 AM CDT

Hugs to all of you!!!

Nikki, thank you for updating Riley's site so religiously. Everyone (including me) has been so worried about her and have been keeping her in their thoughts and prayers. The pics are darling even though she has to be surrounded by all that hospital equipment! What a precious child! I am so glad that your mom has been able to be with you - I know that must be comforting for both you and Riley. Give her a big hello from me! I hope that you, too, get well - make sure to take care of youself - Riley will really need you when she returns home. Keep us posted!

Hugs, Patty
Patty Schroetter <pschroetter@hotmail.com>
Mt. Iron, MN USA - Thursday, June 18, 2009 10:04 PM CDT

Hi Riley and family,
I'm your new friend on Caringbridge. I met your mom and grandma in the family lounge here at the Childrens Hospital. Your grandma Laura and I know some mutual friends.
I also looked at your beautiful pictures and I just love your hair!!!!!!!
I will pray for you and hope you get well and go home soon.
Your new friend,
Pat Schwartz
Pat Schwartz <schwja@ndsupernet.com>
Mott, ND USA - Thursday, June 18, 2009 3:39 PM CDT

WE JUST WANTED TO LET YOU KNOW YOU ARE IN OUR PRAYERS AND WE APPRECIATE YOUR UPDATES ON RILEY YOU ARE ALWAYS IN OUR THOUGHTS AND PRAYERS AND WE ARE HAPPY MOM AND DAD LIGNELL ABLE TO BE OF HELP TO YOU. WE WISH WE WERE CLOSER TO YOU SO THAT WE COULD BE OF MORE HELP. TILL THEN OUR PRAYERS ARE WITH YOU ALL. LOVE UNCLE TOM AND JUDIE ARNOLD
TOM AND JUDIE ARNOLD <tomjudie@mchsi.com>
HIBBING, MN USA - Thursday, June 18, 2009 1:09 PM CDT

Hi guys,
I was just stopping by to say hello and noticed your recent updates. I am sorry Riley has been sick. I will keep you all in my prayers.
Jill
Chino, CA USA - Sunday, June 7, 2009 5:50 PM CDT

Nikki, Aaron and Riley
Grandma Laura was teaching a class at the Quilt Shop that I was at today and had updated me on Riley. I checked the Caringbridge site to find how sick she has been. Just want you to know you are in my thoughts and I always keep you all and especially that "little one" in my prayers. Hang in there - you are doing such an awesome job!
Patty Schroetter <pschroetter@hotmail.com>
Mt. Iron, MN - Thursday, May 28, 2009 7:15 PM CDT

JUST READ YOUR UPDATE AND FEEL SO BAD TO HEAR THAT RILEY IS HAVING SUCH A HARD TIME. YOU ARE ALL ALWAYS IN OUR PRAYERS AND THERE WILL BE SOME EXTRA ONES BESIDES FOR RILEY. WE'LL BE THINKING ABOUT YOU. GIVE RILEY HUGS FOR US.

TOM & JUDIE ARNOLD <tomjudie@mchsi.com>
HIBBING, MN ST.LOUIS - Thursday, May 21, 2009 12:38 AM CDT

Hi Nikki. It has been way too long since we've caught up and chatted. You have been in my thoughts lately, I see you guys have been back at the hospital. I pray you, Aaron & Miss Riley are staying strong. Call me soon or drop me a line. Love you. xoxo
Candace Rindels <candace.rindels@ecolab.com>
Forest Lake, MN - Tuesday, May 19, 2009 2:03 PM CDT

Oh my, no good that you're in the hospital again. I sure hope Riley gets out soon so that you guys can enjoy some time home. I can't believe how big she is getting! Please know I will keep you in my thoughts and prayers always, especially now.
Love, Sami
Sami <samlloydmiller@frontiernet.net>
Minnesota USA - Monday, May 11, 2009 10:03 AM CDT

I seem to be on the same timeline as you Nikki - I seem to check in to the site just bout hte time you're putting up new posts. Riley is growing into a beautiful little girl. I hope you get to do "pretty hair" with her soon!
Toni Peck
Fort Myers, FL - Thursday, April 16, 2009 8:36 PM CDT

Dear Spauldings! I finally got on here to leave a note, sorry it's taken me so long. I hope all has been well for you three since I last saw you on 5A and you have been enjoying your time together at home. Thinking of you often and praying for you always.
Liz <emscherbel@hotmail.com>
- Tuesday, March 31, 2009 4:22 PM CDT

Hi guys! I think about you often and wanted to let you know that you're always in my prayers. Sending many hugs your way! Take care:)
Lori Larson <ljsteichen@hotmail.com>
- Saturday, March 21, 2009 5:57 PM CDT

I can't believe you guys were in the hospital! I really need to try to keep up better, I feel terrible. I am so glad Miss Riley is back at home and taking in her feeds normally. Praying you guys are doing OK and that you are enjoying the nice weather.
Love, Sami
Sami
Fairmont, MN USA - Thursday, March 19, 2009 10:37 AM CDT

I was so excited to see that when I came back to work on Monday, you guys were already gone. I don't want to see you there for a very, very long time :) Glad everyone is recovering well.
Jessalyn
- Wednesday, March 18, 2009 12:53 AM CDT

OMG...Please give Riley a BIG hug for us and let her know she continues to be in our prayers. Is there anything you need? I just feel I should be doing something more for you guys. God bless you all and keep you sane! Keep us posted!
Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN - Monday, March 16, 2009 1:52 PM CDT

My name is Diana Johnson and we spoke a long time ago. We live in Farmington and my daughter has epilepsy. I heard thru a former neighbor- karla hooper- that Riley was in the hospital. My heart goes out to you and your daughter. I hope she is well soon and your family is in my thoughts.
Diana Johnson <davidj.johnson@charter.net>
Farmington, MN USA - Wednesday, March 11, 2009 3:43 PM CDT

Hi Nikki & Aaron,
I'm just getting caught up via your last few journal entries. It is such good news that Riley is back at home. All of you are in my thoughts during this challenging time.
Susan Z
- Wednesday, March 11, 2009 3:09 PM CDT

I am so glad Riley is doing better. I hope things are calmer for you now.
Jenny Carlson
- Wednesday, March 11, 2009 1:54 PM CDT

WE STAY IN PRAYER FOR YOU ALL, AND IN THIS CASE, FOR RAPID HEALING FOR AARON, AND A GREAT DEAL OF GRACE AND HEALING FOR OUR SWEETHEART RILEY. WE LOVE YOU VERY MUCH..AND WISH WE COULD BE THERE WITH YOU . LOVE TO YOU ALL...MOM AND DANI.
CHARLA FOWLER <imacharla@yahoo.com>
Abilene, Texas United States - Tuesday, March 10, 2009 2:18 PM CDT

Riley, You truly are an inspiration to all of us. You are the strongest little girl we know! May your Guardian Angels watch over you and keep you safe and healthy and may God guide you through life with strong lungs and a big smile!! We will continue to keep you in our prayers. God Bless you, your mom and dad!
Jessica, Craig, Ethan and William Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN - Wednesday, March 4, 2009 10:07 AM CST

Riley, Nikki, and Aaron,
Just so you know Riley has been and will continue to be in my prayers. Such a brave little girl and such wonderful parents. Stay strong all of you.
Linda
Linda Sibell
Hibbing, , MN USA - Friday, February 27, 2009 3:45 PM CST

Hey, Riley! Just want you to know that your former school team misses you, is thinking about you, and is praying for you and your mom and dad! Please get better soon--we hate to hear about how hard it has been for you and your parents. Be blessed, Marcia (and Tae, and Jenny and Kathleen)
Marcia <mborka@farmington.k12.mn.us>
Farmington, MN US - Thursday, February 26, 2009 9:03 AM CST

Hey Nikki-
Just wanted you to know that we are thinking of you and even though we don't get to stay in touch...you are still one of my favorite "peeps."

xxoo
Diane Hallila Passero <jojolo88@hotmail.com>
Edgewater, Md - Wednesday, February 25, 2009 8:14 PM CST

May God bless all of you! Feel his spirit and know he will take care of all of you! Our love and comfort!
Jennifer Myre and Family <innermarie@hotmail.com>
Tucson, AZ - Tuesday, February 24, 2009 10:22 AM CST

Hi Nikki and family,
Jessica sent me your link and I just wanted to let you know that you have 5 more people sending prayers Riley's way. May you continue to stay strong, she is beautiful and I, too have a 4 year old daughter and know how precious little girls are. God Bless your family and I will continue to check this site for updates.
Love,

A long lost classmate,
Shannon (Keppel) Olson and family
Shannon Olson <shannonolson@cableone.net>
Fargo, ND - Tuesday, February 24, 2009 8:56 AM CST

We continue to keep you all in our prayers. My heart goes out to Riley and both you and Aaron. God Bless.
Jessica, Craig, Ethan and William Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN - Monday, February 23, 2009 8:34 PM CST

Little Miss Riley,
I hope you are feeling better soon. I miss you and love you lots. I will try to come up to the hospital in the next day or two to hang out with you. You are a tough little girl!! Love Auntie Hayley
Hayley Prchal <h_towngirls@yahool.com>
Montgomery, MN - Monday, February 23, 2009 8:32 AM CST

OH MY GOSH I AM SOOO SORRY!

I have been terrible about signing the guestbook lately. My bad! But yeah..I need to go to bed soon. Sorry to hear that Princess Riley was sick, but I'm glad you got her to the ER in time. An oxygen sat of 76 is bad news and I'm so glad she's feeling better. Also, I am hoping to get to the cities sometime soon hopefully...so do you want to exchange phone numbers just in case? E-mail me. I miss you guys so much and I can't believe how big Riley must be getting! Not only that, but you need to give me your address so I can send you an invite to my graduation. I updated my site tonight so you can keep up with me. Saying prayers and sending all my love!
Sami
Sami
Fairmont, MN USA - Friday, January 23, 2009 0:46 AM CST

Sorry guys, I gave you the wrong e-mail in my last entry
Jennifer <Jen.bussey@yahoo.com>
- Monday, January 12, 2009 1:02 PM CST

Happy belated Birthday you beautiful little girl! I just want you to know that the pictures that I got in my Christmas card made my whole season. It reminded me of the time that I was going to babysit you and your mom and dad tod me that you really didn't smile much, and you looked right at me and gave me the biggest smile ever, and it just warmed my heart rght up! I am so proud of you for being in school, how exciting is that! I feel so blessed to have you in my life Riley, even if we don't see each other very often, I think about you all of the time! You are a true inspiration to us all. We miss you and send you a million kisses and hugs. We send your mom and dad kisses and hugs too. We love you bunches, and we hope to be able to see you very soon. Keep on showing off that beautiful smile, ok? Love, Jen, Maddie, Abbie, Harry, and Frank
Jennifer Bussey <Jenb@yahoo.com>
HIBBING, MN United States - Monday, January 12, 2009 12:36 AM CST

Hello Nikki,Aaron,& Riley-
We wanted to thank you for the basket of goodies you left for us in the NICU over Christmas. Our daughter was born on 12/20/08 and had to be readmitted for jaundice to the NICU for 4 days during the holiday. Your generosity is appreciated, our 3 year old was thrilled with the fun gifts. We will continue to think and pray for Riley, and will always remember your kindness. Thank you and Happy New Year. Carla Schwartz, Rick Seifert, Sophia & Jane
Carla Schwartz <seifert123@msn.com>
Falcon Heights, mn usa - Sunday, January 4, 2009 9:03 AM CST

Hi Aaron, Nikki and Riley, Hope you had a very merry Christmas. We are sending our best wishes for the new year. It has been a while since I have checked Riley's page. I was just adding Anna into the Aicardi site "Meet Some of Us" when I saw Riley's name as I was looking through the entries. It's hard to believe she is already four years old. Isn't it amazing how they grow so fast. Anna is going to be nine in February. God bless you all. Hope you have a great 2009.
Tammy, Neil and Anna Aadsen <antaads3@hotmail.com>
Kiester, MN USA - Saturday, January 3, 2009 8:03 PM CST

Thanks so much Nikki for sending the letter and the pictures of "Miss Riley". I can't believe how big she is getting, but then she is 4 so I guess she is growing up! By the way a belated Happy Birthday to Riley. Heard that you had a great Christmas celebration with your Mom & Dad and that you all went swimming. Sounds like such a relaxing time. Of course you must remember how crazy our house was at Christmas. Sure miss those big Christmas morning breakfasts our families used to share. Thinking of you all - keep us posted on Riley - miss your updates, but know you are now so busy with your job and all. By the way Aaron - you did a great job on the update you did! Happy New Year to all of you and give Riley big hugs from this "Grandma"
Judie
Judie Arnold <tomjudie@mchsi.com>
Hibbing, MN St. Louis - Thursday, January 1, 2009 10:56 AM CST

Happy birthday Riley!

I'll bet everyone in your school is excited to have you there!

www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Friday, December 19, 2008 10:58 PM CST

Hello there! Nikki, I feel like a horse's behind, I just dug out Christmas cards from last year and found this site address. Riley is such an angel! In reading your journals, I cannot fathom what your days consist of and the energy you must have to make it through. I have always admired your strength and your 'nothing's going to get me down' attitude, which obviously has been shining through for you in the past 4 years. I think of you and your family often. Merry Christmas to you all & Happy 4th Birthday Riley! (yep, I know I'm a week early)
Julie Pulsifer <juliepulsifer@yahoo.com>
Spicer, MN - Sunday, December 14, 2008 2:03 PM CST

Wishing you a very happy holiday season

Happy Thanksgiving from the
Quilts Of Love Angels

Thanksgiving Blessings

Chris
Quilts Of Love Angels
Chris <tuesdays.child@earthlink.net>
Los Angeles, CA USA - Monday, November 24, 2008 10:57 PM CST

I would like to take this time to personally thank all of you for taking precious time out of your lives to write to my family with such wonderful words of encouragement and support for Riley and us. All of you are the reason why we can continue to go through life even in the face of adversity and chaos. It is because of all of you that my family is capable of maintaining our sanity. You are all very kind and considerate people that we need in our lives. Thank you so much for being our friends and our extended family. If we ever win the lottery, you will definately be a recipient in the Riley Spaulding share the wealth program.(lol!!!) I don't write much, because I tend to be an emotional sap. Normally Nikki does all the updating and I offer my support. In closing, I would just like to thank all of you for your continuing support and prayers (prayers work!!!) I took Riley to shriners to have her checkup. We were told at her last checkup that she had a large curve (scoliosis) and to prepare for it to progress. I prayed diligently, and at the next appt., the nurse came in after the xray and said "I can't explain it Mr. Spaulding, but the scoliosis in her neck is completely gone!" I told her I had been praying everyday, several times a day for the lord to heal her, and he did it!! I believe in prayer, it just depends on how you pray....I finally got it down, and it seems that the more I pray, the better things get. If anyone needs any specific prayers, lets have an experiment. Email me at aaronandnikki@charter.net and I will be more than happy to pray for you and your family. Then, contact me and tell me how things are going. Make sure to believe, because god says "when two or more people agree, in christ name, it shall be done" Thank you so much for being wonderful. We love you.
Aaron Spaulding <aaronandnikki@charter.net>
Farmington, mn usa - Tuesday, November 4, 2008 7:45 AM CST

I'm so glad you updated and that Riley is doing well after her surgery. Guess it was a higher power that her previous appt was cancelled--now she has the smaller VNS! That's awesome! Hoping you notice a difference already! Sure miss you guys!
Marcia <mborka@farmington.k12.mn.us>
Farmington, mn us - Tuesday, October 14, 2008 1:54 PM CDT

I am so glad the surgery went well. She is truly one of the strongest people I know! May God bless you all and keep you happy and healthy! Continued prayers!
Jessica Dexheimer
Maple Grove, MN - Monday, October 13, 2008 10:11 AM CDT

Praying for Riley tomorrow!
Love you!
Sami
Sami
Fairmont, MN United States - Friday, August 22, 2008 7:30 PM CDT

Hey all,
Just thought I would let you know I'm praying for your little girl as she has her VNS surgery this weekend. Hope all goes well. So sorry to hear about precious Ulrike, she was a beautiful and very special girl, just like Riley. Continuing to keep you and your family in my thoughts and prayers.
Love,
Sami
Sami
Fairmont, MN United States - Wednesday, August 20, 2008 6:48 PM CDT

Wow, talk about timing! I can't believe I checked on the ACTUAL day you updated. haha. Anyway, I've been doing OK, still dealing with some medical issues. I recently attended a youth camp and had a great time. I met lots of amazing people and had a good time just being away. I also decided to hang out in town a few extra days (where my grandparents and Rhonda and Shawn live), and was able to spend a couple hours with Aleia each day. She is doing really well. Knock on wood, she's had few seizures, June has been a very good month for her. She hasn't had one since the sixth. Other than that, she is getting big. She's a whopping 65 pounds and she'll be passing me up soon. She isn't even a foot shorter than me! I can't believe the big girl she's becoming! I am SO glad Riley and your entire family are doing well. You guys are so great. I hope we can get together soon. Know that you are always in my thoughts and prayers.
Sami
Sami
- Sunday, June 22, 2008 8:59 PM CDT

Hi Riley
My name is Jenna and I came across your site. You are an inspiration and a such a brave, courageous fighter. She is a hero and will be in my thoughts and prayers.
caringbridge.org/visit/champ291
Jenna <nevergiveup301@aol.com>
Kamloops, BC Canada - Friday, May 2, 2008 1:53 PM CDT

Nikki and Family
I am hoping no news is good news. I check this sight quite often and you havent written in a long time. Hope all is well.
Jessica Waara <waara008@umn.edu>
- Wednesday, April 16, 2008 7:51 AM CDT

Nikki, been too long since I have heard from you. Found this by accident, from the two years ago. Please let me know how you are doing. I can't believe Riley is three now. Wow!!!!
Eydie <eydiedianne@yahoo.com>
Winter Springs, Fl USA - Friday, April 11, 2008 8:24 AM CDT

Riley,Just stopped by to say hi and to let you all know we're thinking of you.

God bless,Love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
Port Orchard, wa usa - Sunday, March 30, 2008 11:13 AM CDT

Hi guys,
I keep checking in for an update, hopefully no news is good news! I hope you had a great Easter :)
Jill Cufley
- Monday, March 24, 2008 1:17 PM CDT

just the long lost girls from Buca, stopping by to say hello and wishing you all much laughter.
Rachel and Karen Swan-Mattison <rmswanny@gmail.com>
Minneapolis, MN US - Wednesday, February 20, 2008 12:40 AM CST

What a beautiful little girl! We hope all is well with your family. Thanks for the awesome Christmas card, it was so great to hear from you and hope to have more contact with you guys!
Jen and Dale Lecy <nej4e@hotmail.com>
Farmington, MN USA - Friday, February 1, 2008 6:06 AM CST

We are happy to hear that "Miss Riley" is home and doing better - what a little trouper! Think about you often and send our love and prayers to you.
Judie <tomjudie@mchsi.com>
Hibbing, MN USA - Sunday, January 13, 2008 2:24 PM CST

Dear Aaron and Nicolle,

Thank you for sharing Riley's page with me. Wotta doll!

Jeff Ellis <jeffreyellis1@msn.com>
- Friday, January 4, 2008 3:59 PM CST

I'm so sorry to hear that you are in the hospital, I'm praying that you are home now. How scary for all of you. Big hugs and we'll be back to check in on you.
Barbara Hoffman (www.caringbridge.org/nj/saraswalk) <jbashoffman@embarqmail.com>
- Thursday, January 3, 2008 7:54 PM CST

Hope your 3rd birthday was wonderful Miss Riley!!!! I can't wait to see photos! XOXO
Auntie Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Friday, December 21, 2007 10:48 AM CST

Hi Aaron. Nikki and Riley
Firstly HAPPY BIRTHDAY RILEY. I hope you were spoilt on your 3rd birthday. I know your mother gave you a party to remember. May you be blessed with lots and lots of wonderful healthy year to come.
Nikki we have talked so long ago. I miss talking to you and I hope everything is going well with you and the family. I read that Riley has been having severe seizures lately. Don't feel alone Ulrike has been in hospital about 2 months ago with severe seizures. Still having about 3 a day but luckily not that bad. Ulrike had her scoliosis repair in August everything went well. She is not having so many problems with her lungs anymore I am so glad. The lungs have more space to expand and that helps with the infections. I was pregnant again in June but had a miscarraige because I would have had a daughter again and she would also have been mentally and physically disabled so my body rejected her on 9 weeks. It was a terrible time but we survived. I hope everything is going well with you. Send our love to Aaron and give Riley a big kiss from het twin sister Ulrike.

Lots of love you and we miss you alot
Mariska and Ulrike <fransmariska@telkomsa.net>
Fochville, South Africa - Friday, December 21, 2007 5:32 AM CST

HAPPY BIRTHDAY , RILEY!!!..I HOPE I CAN HOLD YOU AND SEE YOU SOON. MERRY CHRISTMAS TO YOU AND MOMMY AND DADDY!
LOVE ALWAYS....MOMO
CHARLA FOWLER <birdylegs11@hotmail.com>
abilene, TEX. USA - Thursday, December 20, 2007 10:56 PM CST

Happy Birthday to Riley!

Love,
Jessica and Samantha Ihrig

p.s. We can't believe you are THREE!!!
Jessica Ihrig <jaybirdy22@msn.com>
Medina, OH USA - Thursday, December 20, 2007 3:31 PM CST

Happy birthday Riley!

I'm leaving in a few minutes on a business trip and I'm not sure how much internet access I'll have, so I thought I'd better check in with you early.

Jesus has a birthday coming up, too, so I'll wish you a merry Christmas while I'm here.

www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, aL USA - Monday, December 17, 2007 7:34 AM CST

HELLO DARLINGS...I CHECK THE PAGE EACH DAY, I KNOW THINGS HAVE BEEN HECTIC AND HARD, BUT HANG IN THERE. I PRAY YOU GET SOME GOOD BREAKS IN YOUR LIVES SOON, AND THAT THIS CHRISTMAS HAS A MIRACLE IN IT FOR YOU. I WISH FOR THE DAY I CAN SEE YOU ALL. AND I LOVE YOU SO MUCH.
CHARLA FOWLER <birdylegs11@hotmail.com>
ABILENE, TEX. USA - Thursday, December 13, 2007 11:06 PM CST

Nikki, I don't know how its going with Riley, I hope its going better. She must be getting alot bigger now. Hope you and your family have a great Christmas and a Happy New Year. I was blessed with a little girl on Sept 18 of this year, Her name is Sydnee. Your still in my prayers my dear
Cory Moellering (aka Schmalz) <aaroncorymoellering@msn.com>
grand rapids, MN Itasca - Saturday, December 8, 2007 1:31 PM CST

Nikki,
Thought I would stop by to see how Riley is doing. I'm sorry to hear she has been struggling with seizures. She doesn't deserve it..then again, neither do any of the kids that have them. I hope you have a wonderful christmas filled with joys and blessings. Remember, it you want to talk I am never far away.
Love and hugs,
Sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Tuesday, December 4, 2007 12:13 AM CST

Nikki-
Hi! I stop in often to see how you are all doing. I noticed you havent written in here in awhile. Hoping every thing is going well for your family. You are all in my thoughts and pryers
Jessica Waara <waara@umn.edu.com>
Hibbing, - Wednesday, November 28, 2007 1:27 PM CST

Stopping by to see how the beautiful little one is doing. So sorry to hear that her seizures are getting harder on her. Sara has the VNS and we have been happy with it. If you have any questions or would like to talk email me and I'll give you my number. Sending you all big hugs.
Barbara Hoffman (www.caringbridge.org/nj/saraswalk) <jbashoffman@embarqmail.com>
- Wednesday, October 31, 2007 9:38 AM CDT

Stopping by to check-in! Loved seeing how well Riley is doing holding her head up! We missed you at my housewarming! Let's put something on the calendar. Do you have plans for your birthday? Love and miss you!
Miriam <MJHolmquist@hotmail.com>
Mpls, MN - Sunday, October 28, 2007 9:10 PM CDT

Hi guys,
Sorry to hear Riley's seizures have been bad. The VNS is an amazing thing. Aleia has one. It's just amazing what modern medical science can do! I hope you are doing well. I miss you all!
Love,
Sami
Sami <samlloydmiller@gmail.com; samibabi@hickorytech.net>
Minnesota United States - Tuesday, October 23, 2007 12:24 AM CDT

Hi guys,
Thought I would stop by to read the latest update. I hope you have a great week!
Love and hugs,
Sami
Sami <samlloydmiller@gmail.com; samibabi@hickorytech.net>
Minnesota United States - Monday, October 8, 2007 12:05 AM CDT

So sorry to hear that Riley was sick . I know how that is when Maggie gets sick she gets SICK and we end up in the hospital for something . I'm glad you didn't have to go and that she is feeling better.
Way to go for holding up her head well ! That is alot of hard work !

www.caringbridge.org/visit/margaretreed1
Tracy Reed <sonlightuzer4ever@yahoo.com >
Corry, PA USA - Sunday, September 16, 2007 6:56 PM CDT

Great job Reilly
Kim mom to Charlene
MI USA - Tuesday, September 11, 2007 10:43 AM CDT

I'm sorry to hear that Riley has been so sick. Thank God you didn't have to go to the ER. We are praying for her. Thank you so much for sending me an e-mail the other day. Your journal touched me and I wanted you to know that you are an amazing mom. Riley is lucky to have you. I couldn't agree with you more. Sara sits by me now and she has half a smile on her face and she's just so content. I cherish these little moments as I know you do. Love the pictures of her. I just want to reach out and give her a squeeze. Do that for me ok. Big hugs and love.
Barbara Hoffman (www.caringbridge.org/nj/saraswalk) <jbashoffman@earthlink.net>
Califon, NJ United States - Thursday, August 16, 2007 6:34 PM CDT

I am so sorry to hear she is sick. Ugh, I swear when our girls get a cold they really GET A COLD. I would have kept her home too. When Makily had pneumonia on Easter they offered to admit her if we wanted. I just said "what for, we can do everything at home that you can do here?" The doctor was nice and agreed. Sometimes them being admitted is more trauma then if you stay home ya know?

I have to say your last paragraph gave me chills and brought tears to my eyes. I could have written it myself. There are times I wonder what life would be like if Makily was "normal". Of course like you said I would do ANYTHING to take her struggles from her and make her life easier but I wouldnt trade her for the world. She IS my purpose in life and my hero...much like Riley is yours.

Oh and rest assured, I know I will see you post a great video of Riley taking her first steps, what a wonderful day that will be, I will cry like the big baby I am.

HUGS!!!

Makily's Mommy
www.caringbridge.com/fl/makilyangel

Trish <patyrish237@aol.com>
Ocala, FL USA - Saturday, August 11, 2007 11:02 PM CDT

Hi Spaulding Family--

We hope that Riley is feeling a lot better! Your email scared us. Sorry we haven't visited the website lately, we have been really tired because Samantha doesn't sleep very well through the night anymore. Please give princess Riley a big kiss from us!

Jessica and Samantha Ihrig
Jessica Ihrig <jaybirdy22@yahoo.com>
Medina, OH USA - Friday, August 10, 2007 6:32 PM CDT

How lucky we are to have you with us. Your beautiful smiles light up the bank!
Kate <katej@roundbank.com>
Farmington, MN US - Friday, August 10, 2007 3:23 PM CDT

Just thought I would stop by to see how you all were doing. I'm sorry that you havent been feeling well Nikki that's just the pits. I hope to see you really soon maybe you can e-mail me or something or I can talk to Rhonda. Just let me know! Hope you're doing well and Miss Riley has fewer seizures.
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Friday, July 27, 2007 5:47 PM CDT

Just stopping by to say hello. Sara has a VNS and she's had it for 2 years now. She still has seizures daily but I can tell you that it has cut our Diastat use down to next to nothing. She used to average anwhere up to 20-30 doses in a month now she down to 2-3. That in itself has been a blessing to us. If you ever want to talk about it give me a shout through e-mail. Love the new pictures, I just want to reach through the screen and squeeze her. Big hugs.
Barbara Hoffman (www.caringbridge.org/nj/saraswalk) <jbashoffman@earthlink.net>
califon, nj United States - Wednesday, July 11, 2007 6:24 PM CDT

Hello , great to meet you . What a lovely family you have. I was just floating around on the Caringbridge site to meet other families and came upon your page.
What an amazing little girl you have. My daughter Maggie also has something rare ,,VACTERL Association. But not as rare as what your daughter has . I know I learn something new everyday .

www.caringbridge.org/visit/margaretreed1
Tracy <spongebobswim76@verizon.net>
Corry , PA USA - Tuesday, June 26, 2007 12:32 AM CDT

Just stopping by to say hello and that we are thinking of you. We'll be praying for you. I've come to hate that old saying "when it rains it pours..." It's been pouring at our house as well. Give Riley a big hug from Sara. Tell your husband to hang in there. I know it's hard but God's timing is perfect. I find the hardest thing is sitting and just being patient. As always we're praying for seizure relief. We know all too well that they just plain suck. Lots of love to you all.
Barbara Hoffman (www.caringbridge.org/nj/saraswalk) <jbashoffman@earthlink.net>
Califon, NJ - Thursday, June 21, 2007 6:24 PM CDT

Hi guys,
Thanks for signing my guestbook! I appreciate it a lot. Guess what? I passed my Nurse's Aide test!!!!! Yep, that's right...I'm now a Certified Nursing Assistant! Woo hoo! I am so happy. Thought I would stop by and see how my little Princess is doing. I hope she gets better soon and that the ickies stay away!
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Tuesday, June 12, 2007 8:22 PM CDT

A girl after my own heart YOU ARE EATING CHOCOLATE! I love to see you eating like a little piggy. Messes make the very best pictures! I really enjoyed the video of you giggling and talking with Mom and Dad. You are doing so well!

We have a super busy summer with 2 kids in band, 3 going to wrestling camp, 2 going to football camp, 1 taking swimming lessons, 1 going to 3 (yes I said 3) camps, etc... not sure I am going to survive. My fear is leaving one of them someplace for too long of forgetting them all together. You should see our calender. Anyway, between all the hectic run around, I am also hoping we get a chance to get together. Even for an afternoon, it would be great!

Nicole, do you remember the last entry you entered for Aleia, you told me to take care of myself, sounds like you need to do a little of that yourself. Hope you start feeling better soon. Riley too!

Sending all our love!
Rhonda, Shawn, Lee, Kelvin, Corey, Drew, Ian & Aleia <rshoen6@frontiernet.net>
Fairmont, MN - Wednesday, June 6, 2007 3:06 PM CDT

Hey there:
Your journal touched my heart. I just love the snickers picture. Daddy is a smart man. Our girls are so special and I understand when you say the things you said. I too am thankful that Sara is unaware that she is differen't. I was in school with her the other day for about an hour and was just so thrilled to see her in that enviroment. Meaning how the other children respond to her. I know she will never be main streamed in and I'm ok with that. When she gets wheeled through the halls to go to therapy the other children talk to her and smile and wave and it just fills my heart with joy. I pray that these children always treat others who are different with the love they show Sara. Our girls are touching lives and changing lives in ways that we could never imagine. Thank you for sharing your familes journey with all of us. I'm so grateful that we have met. We're praying that she's feeling better. Big hugs to her and all of you.
Barbara Hoffman (www.caringbridge.org/nj/saraswalk) <jbashoffman@earthlink.net>
Califon, NJ United States - Sunday, May 27, 2007 7:05 AM CDT

we love you!!!
Amy Gasswint <rugby5@charter.net>
Mankato, mn 56001 - Sunday, May 27, 2007 4:35 AM CDT

Hi Guys--
Riley eating a Snickers bar----PRICELESS!
I liked the one that looks like she is actually licking the wrapper--a girl after my own heart!! LOL
We love all the photos and videos of Riley--she is so cute!
I really enjoyed reading your story about the special mothers club--it brought tears to my eyes. How true it is, huh?? Well, hope you are all well--keep us posted on Riley--WE LOVE HER!

Love,
Jessica and Samantha Ihrig

Jessica Ihrig <jaybirdy22@msn.com>
Akron, OH USA - Saturday, May 26, 2007 12:49 AM CDT

Preeeeecious!!!!! OMG she is just as cute as ever and getting so big. I hope you had a happy Mom's day, Andrew and I went to Sea World...you know, every mother's dream day-crowds and crazy people!

I hope you guys are doing well, I think of you all the time and check your page almost daily looking for an update. I love the videos and the new pictures, they are a great way to see her progress. Give me a call sometime, we are always around to chat :)
Jill Cufley
Chino, CA - Sunday, May 13, 2007 10:35 PM CDT

I LOVE ALL THE VIDEOS! I think it is so awesome that we CAN put videos of our kids up on their sites. It really gives a glimpse into our lives and shows people what SWEET AMAZING kids we have! I had to giggle at Riley talking, she gets such a cute look on her face like she is really telling ya something VERY important!
Thank you so much for all the awesome, kind messages on Makily's site. Riley WILL walk one day. I believe it with all my heart. I know for me sometimes when I am not seeing HUGE leaps of progress I get discouraged. Her therapists quickly remind me and say "think of what she was doing six months ago, Trish" and then I see how far she is coming. I know you understand. There was a time I really didnt think Makily was EVER going to stand up or weight bear...part of me was looosing hope she would ever walk. Then the little booger stands up and tries taking steps. I have learned to NEVER give up, this kid does things when she wants to. Our girls are hard headed, they have to be though to deal with all the things they go through!

Anyway just wanted to stop in and check on your sweet baby girl. I love watching her and hearing her sweet little SQUEALS....SOOO FREAKING CUTE! I just want to squeeze her!

Loe and Prayers to you and your family.
Let me know the next time you guys come to Florida, our girls really need to meet up!

Trish
Mommy to Makily
Emanuel Syndrome
www.caringbridge.com/fl/makilyangel

Trish <patyrish237@aol.com>
Ocala, FL USA - Sunday, May 13, 2007 7:43 PM CDT

I just love the videos... she is just too cute. Sara was sitting next to me asleep and when she started laughing Sara woke up and started making noise. It was so sweet. Happy Mothers Day. Big hugs from Sara (www.caringbridge.org/nj/saraswalk)
Barbara Hoffman <jbashoffman@earthlink.net>
Califon, NJ United States - Sunday, May 13, 2007 2:22 PM CDT

Oh I love the videos of Riley! They really show how far she has come! Wow! I hope you are all doing really well. I miss you guys and hope you have a great day. I am so glad to hear that Riley is a happy girl!
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Saturday, May 12, 2007 10:54 AM CDT

Hi,
We've never met but I checked out your site after reading your post to little Makily & her family in Florida. You really inspired me and I just wanted to send a word of encouragement today. God is SO GOOD and has abundant blessings in store for you!! May your precious little girl know she is loved and may she continue to impact the lives around her for good.
Wishing you all the best from a fellow Minnesotan,
Sharon (mom to Bethany www.caringbridge.org/visit/bethanyp)
Sharon Pearson
Wyoming, MN - Tuesday, May 8, 2007 12:41 AM CDT

Riley,
You are getting so big!!! We are always thinking about you and checking up on how everything is going.We can't wait to see you soon.Give your mom lots of hugs and kisses from us, as we are sending them to you!!! Your friends, carson,taylor and mya
Amy Gasswint <rugby5@charter.net>
Mankato, - Friday, May 4, 2007 0:02 AM CDT

Hello, this is Kim Michlik mom to Hannah. I just found out you had a website and I think it is beautiful. The pictures of Riley sitting up are awesome...I think she looks great!!! You are a great form of support on the AS website and I just wanted to say Hello from Hannah. I look forward to checking in to see how you all are doing. Lots of love, Kim Michlik
Kim Michlik <tkmic@msn.com>
East Brunswick, NJ USA - Monday, April 30, 2007 9:10 AM CDT

Hi guys!
We have not written in a while, it has been crazy--but, we have been keeping tabs on Riley and we were so excited to see her sitting up so well! She is getting stronger--that is so wonderful. We still think about her all of the time, she is so special to us. Give her big hugs and kisses from Samantha!

Love,
Jessica and Samantha Ihrig
Jessica Ihrig <jaybirdy22@msn.com>
Akron, OH USA - Sunday, April 29, 2007 5:02 PM CDT

WOW she is so dang cute and getting SO BIG! She looks so great. Isnt it awesome seeing our girls do new things?! Such a wonderful feeling. I know there are big things to come for Riley!

www.caringbridge.com/fl/makilyangel
Trish <patyrish237@aol.com>
Ocala, FL USA - Saturday, April 21, 2007 4:47 PM CDT

Hi Guys!!! How is everyone doing? We are all good here. I am soooo glad Riley got over her cold. It was nice to see you all at Easter. We need to set up a play date with the kids. I know Blake and Kendall would love that. Love you all!! Hayley, Jerry, Blake and Kendall

The Prchal's <h_towngirls@yahoo.com>
Montgomery, mn - Wednesday, April 18, 2007 3:33 PM CDT

Hey guys,
Nikki, I was so glad to see your update! I am glad Riley seems to be doing better. I miss her very much, as I do all of you! Anyways, things are going okay here. I took yesterday as a "me day" which I probably should not have done but deserved. I have been working really hard trying to get things in order. I started a new job on April 7 at a nursing home, it is really great. I love to help the residents. I am so sorry about what Buca did to you guys. Aaron should not have to look for a job in the midst of all of this chaos. At least things are settling down now. The DASH program sounds interesting...I hope it will be a good thing for Riley. Well....I would love to help out with the benifit, just let me know when it is and I would be glad to take the weekend off to help you out. Riley is such a beautiful angel.
Love and hugs to all of you,
Sami
Sami Philippians 4:13 <samlloydmiller@gmail.com>
Minnesota United States - Wednesday, April 11, 2007 2:28 PM CDT

Wow, is it possible that it was TWO years ago that Rachel & I wrote y'all a note here!? So glad to see the pics & catch up on news (even though the Buca part definitely stinks--but people are dumb, so don't let their bad behavior affect yours). Keep thinking healthy & positive. We're thinking of you and sending good energy for all 3 of you!
Karen Mattison & Rachel Swan <Ratchetta9@yahoo.com>
Minneapolis, MN 55407 - Tuesday, April 10, 2007 4:13 PM CDT

Hi guys! I'm excited to see you all this weekend. Thanks for the "congrats" on the site - I can't wait for you to see the new place. Bella is very excited about making the photo page - she loved sitting with Riley! See you Saturday!
Auntie Carla (and Bella too) <carlaannebarker@hotmail.com>
Minneapolis, MN - Thursday, April 5, 2007 12:20 AM CDT

You know we are praying for your beautiful little girl. She is getting so big! I think of you guys all the time. Still hoping we can get together and hang out. Maybe this summer will be that perfect time.

I hope you aren't going to let BUCA get away with treating you like that. There are laws protecting peoples jobs when they have sick children that need their attention. You may want to contact an Attorney and run it past them. At the least, apply for unemployment. God will guide you, trust in that.

Sending all our love, hugs and prayers.
Rhonda, Shawn, Lee, Kelvin, Corey, Drew, Ian & Aleia <rshoen6@frontiernet.net>
Fairmont, MN - Thursday, April 5, 2007 10:36 AM CDT

Sometimes I think God piles it all on at once to get it all over with, like ripping a band-aid off really fast. This shall pass and I am certain things are going to go up from here!
Toni <antoinette.peck@courts.state.mn.us>
Hibbing, MN - Wednesday, April 4, 2007 10:50 AM CDT

Laura, thank you for the website. Our prayers go up for little Riley AND all her family.
Cindy Alesch <cindyalesch@yahoo.com>
Meadowlands, MN USA - Wednesday, April 4, 2007 9:10 AM CDT

I wanted you to know that we're still praying. My heart is with you. Big hugs to all of you. (www.caringbridge.org/nj/saraswalk)
Barbara Hoffman <jbashoffman@earthlink.net>
Califon, NJ United States - Sunday, April 1, 2007 8:15 PM CDT

Seriously, Buca stinks! It isn't what it used to be that's for sure, what ever happened to "family"? I guess that concept went out the window with the rest of it right? I am mad for you! Something will turn up, it's hard to see it now but it will. You have lots of people pulling and praying for you guys.

I hope Riley is feeling better soon, Andrew just had another bout of bronchitis so I feel for you guys there. Love and thoughts...
Jill Cufley
Chino, CA usa - Saturday, March 31, 2007 0:02 AM CDT

Oh my!
I know things are hard for you right now...I understand how you feel. I just pray that you will have strength during this time and that you will overcome these obstacles. As for Riley, she is a strong little girl...she will be okay. Many kids have fought this terrible illness. I pray that you will have the peace that surpasses all understanding. If you need to vent or anything just e-mail me...I'm here for you guys!
Love and hugs,
Sami
Sami Philippians 4:13 <samlloydmiller@gmail.com>
Minnesota United States - Friday, March 30, 2007 4:55 PM CDT

Nik, Aaron and Precious Riley,
God be with you and give you all the strength to over come this bad cold. We�ll continue to keep you all in our prayers. It is never easy watching over your little one while they are sick. The best medicine is TLC and I know she is getting lots of it! Hang in there!
God bless,
Jessica

Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN USA - Tuesday, March 27, 2007 1:57 PM CDT

Hi Nikki
I'm sorry to hear that Riley is having such a hard time. It's so tough when they can't tell us what's bothering them. We have to play the guessing game. I just wanted you to know that we have been thinking about you guys and that we are continuing to lift all of you in our prayers. Sending you lots of love and big hugs. (www.caringbridge.org/nj/saraswalk)
Barbara Hoffman <jbashoffman@earthlink.net>
Califon, NJ United States - Monday, March 26, 2007 6:40 AM CDT

Dear Riley and Nikki (of course Aaron too!),
Sorry it has been so long again. Things have been crazy busy around here. I have been really having some hard times lately. I'm getting a cold but maybe it won't be so bad. I'm so glad to hear that Riley is doing okay. I know those feedings can be horrible, especially the pumps. Well..time to get going.
Love and hugs,
Sami
Sami Philippians 4:13 <samlloydmiller@gmail.com>
Minnesota United States - Thursday, March 22, 2007 2:12 PM CDT

Dear Nikki, Aaron, and Riley,
My heart welled up with pride when I read the letter from your geneticist. Although you have had many ups and downs, one thing has never waivered-that being your love for my little granddaughter. Nikki, your father and I are so very proud of you-in all you have accomplished over the past few years.

Love Mom
Laura <lignell@uslink.net>
Hibbing, MN USA - Wednesday, March 21, 2007 8:27 AM CDT

I sooo feel for you! Makily had an NJ tube for a while and was on 24 hours feeds. I HATED IT and so did she! We carried the pump EVERYWHERE WE WENT and it just was NO FUN! Hopefully once they find what's causing Riley's issues it can be resolved with something simple. I LOVE THE VIDEOS! SHE IS SUCH A SWEET GIRL! She is really "talking" so much! I love it when Makily gets like that!

www.caringbridge.com/fl/makilyangel
Trish <patyrish237@aol.com>
Ocala, FL - Wednesday, March 21, 2007 8:08 AM CDT

Hi Nikki:
I just love the video clips. My oldest was standing next to me and we were both getting such a kick out of her. She smacks her lips abit in the first one just like Sara does. So cute. The new pcitures are adorable. Sara has fallen asleep in her stander as well. Like you said I guess that's a good thing because they must be comfortable in them.
I fixed the problem on Sara's page. I was missing a L in Nicolle. Now people can access her.
So sorry to hear that she is struggling. I can only imagine how hard it is to have her hooked up to the pump that many hours of the day. We'll continue to keep all of you in our prayers.
Big hugs from Sara (www.caringbridge.org/nj/saraswalk)
Barbara Hoffman <jbashoffman@earthlink.net>
Califon, NJ United States - Tuesday, March 20, 2007 6:20 PM CDT

Hi Spauldings--
Just wanted to say "hi" and to tell Riley we have been thinking about her. She is so cute in her ducky pajamas!
Sending her hugs and kisses from her AS sister, Samantha!!

Love,
Jessica and Samantha Ihrig
Jessica Ihrig <jaybirdy22@msn.com>
Medina, OH USA - Monday, March 12, 2007 3:11 PM CDT

Hey Nikki
There is a great crafters website called "etsy" (www.etsy.com) that you might want to look into for your craft selling. They have everything and it is very cheap to list it...just a thought. Check it out if you have time!
Jill Cufley
Chino, CA usa - Sunday, March 11, 2007 0:31 AM CST

Checking in... It's been forever since we've talked. I miss you! I'd love to see you and Riley soon! I'm excited about your new business venture! Your passion will sell your jewelry and blankets... GO FOR IT! Maybe we should have house party's... like they do with 'purse party's' and get girls together and sell sell sell?? Let me know if I can help you with ideas. I think you would do great and I know I would buy from you! XOXO
Miriam <Miriam.Holmquist@biworldwide.com>
Mound, MN 55364 - Friday, March 9, 2007 10:03 AM CST

OH I LOVE THE UPDATES AND PICTURES!!..SHE IS SO PRETTY AND SMILING, SHE'S COME SO FAR, I'M PROUD TO SAVE EACH AND EVERY PICTURE. I SHOW MY PEOPLE AT WORK, THEY KEEP UP WITH HER TOO!..NIKKI, I HOPE THEY GET TO THE PROBLEM ON YOUR BACK SOON AND FIX IT ONCE AND FOR ALL!!ALL OF YOU HAVE BEEN THRU ENOUGH.!! LOVE TO YOU ALL, HUGS AND KISSES TO RILEY. MOM
CHARLA FOWLER <birdylegs11@hotmail.com>
ABILENE, TX USA - Tuesday, February 20, 2007 10:52 PM CST

Hi Nikki!
Sorry it's taken me so long to visit Riley's site...I just love it! She is absolutely BEAUTIFUL. I'm so proud of all of her accomplishments. Maybe she can be little Ava's role model :) Let me know when you post more pictures!
Paige Harris (mom to Ava - 9 months- AS) <pharris1001@yahoo.com>
Ovett, MS USA - Friday, February 16, 2007 4:46 PM CST

I feel bad that I haven't been by your page in awhile.Lots going on here.But that does not mean that I don't think of you for I always do.I do stop by your page to see and read the updates just haven't had time to sign your guestbook.
**~

BRENDA~**MY LOVING DAD'S SITE WITH A NEW YEAR ANOTHER ANGEL <brurka@shaw.ca>
****Edmonton~Alberta~Canada****, - Tuesday, February 13, 2007 11:49 PM CST

Happy Valentine's Day!

I sure hope Rambling River Auto appreciates the free advertisement, although I doubt if I will pull in there if I ever make it to Minnesota.

I'm praying for health and rest for your whole family. That includes the car, because I know the stress of that situation is not helping you any.

www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Tuesday, February 13, 2007 10:02 PM CST

Hello Everyone:
Thank you so much for signing Sara's notebook. Your words are very kind and I appreciate them. This journey has been hard but these girls are so worth it. Riley is just precious. I love the little pig tails. Sara is becoming famous for hers. I'm so glad to have been connected with the Aicardi site and the list serv. We've already gotten some information that we were unaware of so it's proving to be very useful.
Thank you for the comments on Sara's site. I'm learning. I've had some wonderful help from a group called Tuesdays Child. If you are interested you can go to tuesdayschild.homestead.com and they will design a page for you. They are wonderful. It's free and they will do whatever you want. If that address does not work you can access them through Sara's page near the bottom.
We'll be back again to check on Riley. If it's ok I'll add her site to our page as a new one of Sara's little friends. That way our friends and family can get to meet her.
Squeeze those little cheeks for me. Big hugs from Sara. (www.caringbridge.org/nj/saraswalk)
Barbara Hoffman <jbashoffman@earthlink.net>
Califon, NJ - Saturday, February 10, 2007 6:44 AM CST

My darling Riley,

Every day, I wake up and thank God that you are in our lives. I thank Him for giving you to us. You have taught me so many things in such a short amount of time. Things that have made life so much more clear. You have taught me to be patient, to never give up, and you have taught me just how important even the smallest of things can be. You are truly a blessing to me and your dad, and a blessing to eveyone that you meet. You have made me a better person... I love you so much my little monkey...and I am so proud of you!

You are my angel here on earth...
I love you honey!
Love,
Mommy
Mommy <aaronandnikki@charter.net>
Farmington, MN - Wednesday, February 7, 2007 9:00 PM CST

Hi guys,
My blog has been updated a lot lately. Lots of new things happening. Aleia was in the hospital but is now doing a lot better. She had four seizures in one day! It was very bad, but they changed her med and now she's better. I will be seeing her tonight so I will be sure to give her some love for you. Hope you are all doing well. Miss you and see you soon, hopefully!
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Minnesota United States - Friday, January 26, 2007 6:23 PM CST

Hiya Riley baby... this is aunty Dani in Texas... I heard u say hi and dada!!! very good!! I love you soo much and how can I not u share the same b-day as me!!! Marina..Beth..and Danielle
Dani <nikki_dncr@yahoo.com>
Abilene, tx usa - Friday, January 19, 2007 10:22 PM CST

Hi Riley-
We were just thinking about you--hope you are still being a smiley girl!
We love you tons!

Jessica and Samantha Ihrig (14 months/AS)
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Wednesday, January 17, 2007 3:05 PM CST

Sending Big HUGS your way. You are getting so big, and I just love the curley hair! Keep smiling, it looks awesome on you! Miss you tons and hope to see you soon.
Rhonda, Shawn, Lee, Kelvin, Corey, Drew, Ian & Aleia <rshoen6@frontiernet.net>
Fairmont, MN - Wednesday, January 17, 2007 2:07 PM CST

This should work better! Click these to view.

Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Tuesday, January 16, 2007 5:08 PM CST

HAD TO STOP BY AND LET YOU KNOW THAT I'M THINKING OF YOU.
LOVE BRENDAMY LOVING DAD'S SITE A NEW YEAR ANOTHER ANGEL <brurka@shaw.ca>
*EDMONTON~ALBERTA~CANADA*, - Friday, January 12, 2007 1:43 AM CST

Hi Nikki, Aaron and of course, the superstar Riley!

We were really sorry to read about Riley's not feeling well on the Aicardi site. I know that you know how special she is to us, and we will be praying that she gets better quickly! I hope she gets back to her smiling, giggling self she was in her Xmas pics!
: )
Please take care of her and of yourselves--you guys go through so much all of the time. We love you all---and Happy Belated New Years!

Love,
Jessica and Samantha--14 months/AS
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Monday, January 8, 2007 12:03 AM CST

I wish I lived there Nikki, I would work for you guys! I just finished school and am on the hunt for a job and it would be great to take care of that precious little girl. Do you want to move to Southern California? ;) haha

Sorry to hear you are feeling upset, you have a lot to deal with and I can't imagine the stress you are under. Hopefully you will find someone soon who can help lighten the load a bit.

You guys are always in my thoughts!
Jill Cufley
Chino, CA usa - Saturday, January 6, 2007 10:37 AM CST

Best wishes for a wonderful

Love all of us!!!!
www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, January 2, 2007 8:00 PM CST

Happy New Year!
We loved Riley' smiley, giggly pictures! That must have been so special, she still looks so much like Samantha.
I read all the postings from the families and people from the hospital that were commenting on your trip and 'goodies' you took to the NICU. That must have made you feel so good---it made me feel good reading about it!
Well, give that girl a Happy New Year kiss from me and Samantha--we love her!

Jessica and Samantha (1 yr old/AS)
Jessica Ihrig <Jaybirdy22@yahoo.com>
Medina, OH USA - Sunday, December 31, 2006 5:56 PM CST

Hi Nikki, Aaron, and Riley,
I hope you all have a great New Year. Those pictures are just too precious! I love the way Riley was smiling so big in that picture and laughing! What a great Christmas gift!
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Sunday, December 31, 2006 2:51 PM CST

HEY RILEY I LOVE LOTS OF KISSES AND HUGS

LOVE MARINA
Marina <mina_leigh1995@yahoo.com>
Abilene, Tx USA - Friday, December 29, 2006 5:18 PM CST

This is the best picture ever! I hope you made it home safely!!
Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Tuesday, December 26, 2006 12:18 AM CST

Riley and family -
Merry Christmas from Emelia Jean, a NICU baby at the U-M Fairview. We were blessed by your generosity this Christmas and I wanted to make sure to write and say thank you. We received your adorable hats and bracelets for our daughter (and a matching "big girl" hat for her big sister too) and we are so thankful. It was so sweet to have a surprise from a stranger at this blessed time of the year...
Riley is absolutely beautiful. I read a few of your journal entries to learn about her journey. My grandmother always says "every baby has a story." How true. I'm glad that my baby's story is now joined to yours!
Emelia Jean was born just a few weeks early, but with a mass inside her lung area that needed to be removed. She had surgery after being just a few days old, but she is doing great now and is probably just a few days away from going home (Bismarck, ND).
As a mother too, I know hard it is not to have some kind of magic potion to just make your child better instantly. I'm sure you'd trade places with her if you could - I know I would and I know that feeling all too well. And I know there are days that are much harder than others. I hope you can draw on the strength of others during those times. Thank you for choosing to extend your goodness to other NICU families that are spending their holiday in the hospital this year. What an incredible gift!
Please know that we will be keeping Riley and your entire family in our prayers and will check in from time to time to see her progress. If you'd like to "meet" Emelia, check out her website at caringbridge.org/visit/emeliajean.

Again, thank you for your kindness.
From the Koch family -
Kevin, Lisa, Hannah & Emelia (Emma)
Lisa Koch <klhkoch@hotmail.com>
Bismarck,, ND 58504 - Monday, December 25, 2006 5:49 PM CST

We received a blankie today(christmas eve) for our baby Ean at the NICU. Your thoughfulness was not lost on us and my wife Victoria and I would like to thank you from the bottom of our hearts...Ean was born on thursday dec 21st at 250 pm by c-section 2 months before his due date because of a low amniotic fluid problem that persisted from about the 28th week. We had a little scare the day before he was born as vic couldnt get the baby to move in the morning when she got up...we went to the Wyoming mn hospital and had him monitored until about noon when they took them by ambulance to riverside to plan the next move...He came out crying which was a relief, he was on oxygen then a cpap machine for about 24 hours. His lungs cleared up quickly and now he just has his feeding tube. Although he is a bit small (5 pounds 7 ounces) he is otherwise very healthy....Again thank you!!!! Christmas was a bit jumbled this year for us but you will not hear us complain...we will be giving the parents in the nicu a gift next year at Christmas time because your's touched us so very much....have a merry christmas

Craig and Victoria Severson
Craig Severson <mnboy26@yahoo.com>
Stacy, mn united states - Monday, December 25, 2006 0:25 AM CST

Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Sunday, December 24, 2006 11:54 AM CST

Wishing you and your family a very Merry Christmas!
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, December 22, 2006 7:50 PM CST

Happy Birthday Riley! I love you.

Bonnie <cash2003123@yahoo.com>
Tehama, ca - Friday, December 22, 2006 2:18 PM CST

HAPPY BELATED BIRTHDAY PRINCESS!
I miss you guys! Nikki, I want you to do what you have to do for yourself...you are such a good advocate for Riley and she needs you but you also need to take care of yourself. I know, I've been there done that and I know for a fact that it's hard. I'm glad Riley is doing well and that she has turned TWO years old! What a big girl!!! She isn't the baby I remember is she? Lol. I hope you have a great Christmas. I will stop by and check again soon.
Aleia is doing well...she has had lots of seizures but she is holding her own right now. She's such a great kid.
Love and hugs,
Sami

Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Thursday, December 21, 2006 2:38 PM CST

Quilts of Love stopping by to wish RILEY a very Happy 2nd Birthday!!
Sending lots of love, hugs and Prayers!!
Have a Merry Christmas and a Happy New Year!!
Quilts of Love Angel
Trista

Trista Long <Chris-Trista@att.net>
Fairmont, WV 26554 - Wednesday, December 20, 2006 5:06 PM CST

Happy Birthday pretty little girl!!!! I was just looking at the pictures from your first birthday and can't believe how big you've gotten this year - and all of the progress you've made! I am looking forward to seeing you and celebrating your birthday up north!!
Auntie Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Wednesday, December 20, 2006 12:05 AM CST

HAPPY BIRTHDAY TO SWEET RILEY!, IT'S YOUR AUNT DANI'S BIRTHDAY TOO!.BLESSINGS TO THE FAMILY AND HOPES TO SEE YOU IN PERSON SOME DAY SOON...LOVE, MOMO
CHARLA FOWLER <birdylegs11@hotmail.com>
ABILENE, TX. USA - Wednesday, December 20, 2006 10:01 AM CST

A great big Happy Birthday to the sweetest little grandaughter. We are so looking forward to seeing you on Christmas Eve. Your mommy and daddy say you are a rolling machine-I can hardly wait to see.

All our love
Grandma and Grandpa <lignell@uslink.net>
Toivola, MN USA - Wednesday, December 20, 2006 9:37 AM CST

Happy 2nd Birthday Miss Riley Nicole!!!
What a big girl you are getting to be!
WE LOVE YOU!

Jessica and Samantha Ihrig
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Wednesday, December 20, 2006 8:13 AM CST

Hi Riley
You are an awesome little girl, such an inspiration and a cutie. You are in my thoughts and prayers. I hope you all have a good Christmas.
You are in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Saturday, December 16, 2006 0:22 AM CST

Hi guys,
I know you have been busy but I'm SO glad you signed Aleia's guestbook. I e-mailed you a while back so whenever you can get back to me that would be cool, however I completely understand if time does not permit. Please know I think of you always and pray every day.
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, December 13, 2006 11:41 AM CST

hi i come accross your web site from another caringbridge web site a couple years ago and i also have it on my bookmarks.i think i have about 20 diff caringbridge's that i'm following and try to check on them once or twice a week

angie kiefer <kieferhome@yahoo.com>
fargo, nd - Tuesday, December 12, 2006 11:59 AM CST

Hi Guys-

Riley is almost two! We are thinking about her and wishing her a good birthday! She's a cutie!

Love,
Jessica and Samantha Ihrig
Jessica Ihrig <Jaybirdy22@yahoo.com>
Medina, Oh USA - Tuesday, December 12, 2006 9:24 AM CST

RachelJoy and I are stopping by to catch up on the latest news, and to pray that you and your family will enjoy a very blessed Christmas season.

Stephanie and RachelJoy <mom2rj@comcast.net>
- Thursday, December 7, 2006 8:15 PM CST

Hi guys! I had fun playing with Riley on Sunday!! Here's a picture of her gabbing away...
Look at her cute hair too!

Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Thursday, December 7, 2006 7:54 PM CST

Happy belated Birthday Nikki!
I'm so glad Riley is doing well...and that she's vocal. That's great to hear! I've been doing pretty good today, some pain but that happens all the time...it's just the way life is. I know that you may be a little scared about going to the rheumatologist but they are very helpful. My aunt has rhuematoid arthritis and she had treatments done that were very successful for her and her pain. She can do a lot more than she was at first able to when she was diagnosed. I'm going to e-mail you sometime soon, I know you're busy but I would like to catch up!
Love and big hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, November 29, 2006 2:52 PM CST

Happy Belated Birthday Nikki!
Give Riley a kiss and hug from me and Sam!

Jessica Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Wednesday, November 29, 2006 1:05 PM CST

Nikki,
Just stopped in to check on you guys. Sounds like everyone is still having a bit of a rough time. I will be praying that things get better soon. I will especially pray for Riley and her seizures to get under control. I know that has to be so frustrating for you and Riley. HANG IN THERE!

www.caringbridge.com/fl/makilyangel
Tirsh <patyrish237@aol.com>
Ocala, FL USA - Tuesday, November 28, 2006 1:46 PM CST

Hi guys,
Seems like you've been through quite a bit...again! Wow. You guys are soo tough. I've learned so much from you already! I was able to update Aleia's page so if you wanted to check it out that would be cool, and Rhonda updated the pictures so it's pretty great. I was able to see her yesterday she is doing pretty good but has had lots of seizures lately. She is smiling SO much more though! I am so thrilled to see her happy! The house is just beautiful! Sometime when you guys are feeling better you have to come and see them and the house. I know they miss you and are worried. Rhonda is so busy, she really doesn't have much time to write to CB pages so I try to keep her as updated as possible. Hoping and praying you ALL have a good week!
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Monday, November 27, 2006 7:53 AM CST

Love The Shipleys & Spauldings
Elizabeth <michael_shipley@bellsouth.net>
- Wednesday, November 22, 2006 8:15 PM CST

Hi Guys!
I hope you all have a good Thanksgiving! And, if Riley is still allowed to have tastes of stuff, you should give her a little bit of pumpkin pie with cool whip! She would like it, I am sure!
: )
Talk to you soon, (I am going to try and call you this weekend Nikki!)

Love,
Jessica and Samantha/1 year old AS
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Tuesday, November 21, 2006 4:46 PM CST

Hello Spaulding Family!
Riley looks like such a big girl in her new pictures.
I can't believe she is going to be two years old pretty soon! I have been thinking about her, she is very special to us. And, Nikki, I hope you are loving your new look, I bet you have been able to wear a lot of shirts that were out of the question beforehand! I am jealous! Talk to you all soon!!

Jessica and Samantha 1 year old
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, OH - Thursday, November 16, 2006 6:07 AM CST

Glad to hear you guys are getting better!
E-mail me sometime
Love you lots!
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, November 10, 2006 9:31 PM CST

Riley,

You are so cute! I love your Mermaid coustume. You are only 10 days older than my Jayden and he was born with a rare syndrome also. I will have to do some research on Aicardi syndrome. That's a new one for me. Keep in touch!

Love,

Vicki Fields (Jayden's Mommy)

www.caringbridge.org/visit/jayden
Vicki Fields <jarjaysmom@aol.com>
Louisville, KY US - Monday, November 6, 2006 9:48 PM CST

Hi Riley,
I'm glad to read that you are doing well. My prayers continue for you and your family.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Saturday, November 4, 2006 5:53 PM CST

I love the mermaid pictures! She is such a cutie! That costume was PERFECT!

Update when you can! Thinking and praying for your family!

Trish
www.caringbridge.com/fl/makilyangel

Trish <patyrish237@aol.com>
Ocala, FL USa - Friday, November 3, 2006 9:48 AM CST

Hi Guys-
I LOVED the mermaid pictures--what a punkin! Sammy was a leopard, but our weather was the pits! Sorry I have not been on lately, but I have a broken arm. It was just my good luck happening again (I know you can relate!!)
I hope Riley is feeling better after her G-Tube surgery.
I think about her all the time!

Love,
Jessica and Samantha (1 year old!!)
Jessica and Samantha Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Wednesday, November 1, 2006 10:03 PM CST

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Monday, October 30, 2006 10:56 AM CST

hi guys! It is Allison Kohaut (Joe' wife) It is as if God put us in each others paths last night at Buca, because sometimes time takes a toll and we forget to ask or think or pray for people that have touched our lives. I was so excited to get on the computer and catch up on Riley...oh my Gosh, she is beautiful! I am soooo jealous of those beautiful, golden silky curls that encircle her head like a halo! And those cherubic cheeks! What a journey you have been on since I last read your journal! You must fall on your knees daily begging for stregnth and thanking Him for the gifts and the trials He puts before you. You must also, realistically, ask for relief occassionaly! What incredible people you are, you probably never knew you could be so strong. I am in awe!!! You are heroes!
I plan to visit your sight alot, and I will probably ramble off messages to you on occassion, and we will keep Riley on our daily prayer list, as well as you two. You are an inspiration to all who meet you!!
Allison Kohaut <mnalleykat@msn.com>
Burnsville, Mn Dakota - Monday, October 30, 2006 10:11 AM CST

I have been following along with Riley for a short time and tonight had the time to sit down and read through some of your journal. You remind me so much of myself...your words, your thoughts, your love for your daughter, it's all so familiar.

I too went to a conference for children with Emanuel Syndrome like my daughter. It too is rare, we were told we would be hardpressed to find another child like her. When we went to the conference it was eye opening and I too was forced to face reality for the future... and it was very hard. I will never forget that experience though because like you I met so many amazing families and children.

Tears streamed down my face when I read about the girl with braces that held and fed little Riley at Shriners. What a beautiful and touching site that must have been. When so many people look at our kids and only their disabilities it's heartbreaking....but to see this little girl disabled herself and knowing all she saw was a beautiful baby that she want to love and hold....oh how amazing.

Riley's tummy looks great! I think it's awesome they put a button in and didnt make you mess with that nasty long tube....for some reason when they have done Makily's g tube (3 times) they always start out with this long annoying tube that she tries to swing like a baseball bat and that gets caught on everything. The button is so much easier and before you know it, you won't even think twice about it.

I am sorry to hear that Aaron has had so many problems lately. Hopefully that will get better soon.

Praying that your surgery went off without a hitch and you are eating bon bons with your feet up and relaxing. You sure do DESERVE that right now.

Trish
www.caringbridge.com/fl/makilyangel

Trish <patyrish237@aol.com>
Ocala, FL USA - Tuesday, October 24, 2006 8:11 PM CDT

Hi Guys--
Sorry I haven't written in a while--I broke my arm!!!
I can't even pick up Samantha! I was sorry to hear about Aaron's kidney stones! Don't his kidney's know that they aren't allowed to act up right now! LOL
I am glad Riley made it through the G-tube surgery. She is a tough cookie. We are praying for fast healing for you all! Please give the princess a kiss from us!
Love,
Jessica and Samantha (turning one on Monday!!!)
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Thursday, October 19, 2006 11:03 PM CDT

Hi Nikki, Aaron and Riley,
I think of you all everyday. I wish we lived closer so I could babysit Riley for you while BOTH of you recover!!!This is so very amazing!Things are bound to change, storms never last forever (easy for me to say huh.) I love you all and cant wait for things to change for the better.
Bonnie from Northern California
Bonnie <cash2003123@yahoo.com>
Tehama, Ca - Thursday, October 19, 2006 10:37 AM CDT

Aaron, Nikki, and Riley,
As I type this Riley is probably recovering from her surgery. I can't believe all of this has happened! I guess the saying is true, when it rains it POURS. You are always in my thoughts and prayers, I hope you know that. I will be sure to check on you guys throughout the week. I forget it's Wednesday I don't have school for the next few days because it's MEA. That will be good. It'll be nice to have a break from school! I hope and pray that you guys are doing better and that the surgeries all go well for you. Riley is a trooper and so are you two so you'll all be just fine! Aaron, I've kicked out some gravel myself...EEEK painful! Yucky stuff let me tell you! Please know that you'll be in my thoughts and prayers throughout the week and the weekend.
Love,
Sami
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, October 18, 2006 3:23 PM CDT

I'm sorry to hear about the kidney stones OUCH and what a week with all three of you in surgery!! You will be in my thoughts and prayers!
Miriam <MJHolmquist@hotmail.com>
Mound, MN` USA - Tuesday, October 17, 2006 9:22 PM CDT

OUGH! When it rains it pours! I am sorry to hear about Aaron and his kidney stones, Riley and her feeding tube and your surgery. Please know that we are keeping your entire family in our prayers, with lots of special prayers this week! PLEASE let me know if there is anything I can do! One thing I have learned form our past experience is to take all the help offered! We will be in your area this Sunday and I could bring dinner or something....PLEASE LET ME KNOW!
God bless you all and keep you safe and healthy!
Jessica

Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN USA - Tuesday, October 17, 2006 4:33 PM CDT

Hi guys,
I'm SO sorry you're having such a hard time. Right now I am hoping to get to the cities sometime soon so could you please e-mail me so I could possibly see you guys? I've missed you lots. Aleia is doing well as far as I know. She did wonderful in the wedding and looked so pretty. Rhonda was a beautiful bride and her and Shawn are very happy together. I'm so happy things are working out for them. Please don't hesitate to e-mail me and I will give you my number if you need to talk or you can let me know if you need some help with Riley or what ever. I'm here for you and I hope you know that. I was watching the Discovery Health channel and saw a story about a girl with Aicardi Syndrome and had uncontrollable seizures. She had surgery and it helped her immensly. I'm not sure what all happened because I'm still watching it right now! Lol. I have some research to do. So I better get going but please know I'm praying for you a lot and hoping yours and Riley's surgeries go well.
I love you all!
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Saturday, October 14, 2006 12:28 AM CDT

I am so sorry that Riley will have to have surgery. As you know Joseph just had surgery number 6 so he is becoming a little pro at it. I will pray very hard that Riley does wonderful through surgey and that she has a noneventful recovery. We think of you all daily and wish that we lived closer so that we could help you all out. Please kiss her from all of us here in Florida and know that we have so many people in prayer circles praying for your little girl.

Much love The Shipley's and Spaulding's

www.caringbridge.org/fl/joseph
Elizabeth Shipley <michael_shipley@bellsouth.net>
Deltona, fl usa - Monday, October 9, 2006 8:20 AM CDT

Hope things are going better today.....you are all in my thoughts and prayers.
Cece Boyum <nboyum@yahoo.com>
Hibbing, MN USA - Friday, October 6, 2006 10:25 AM CDT

I love the smiling picture. She sure seems to love the beaded light box. I can hardly wait to spend some time with my little pumpkin-see you in a couple of weeks.
All my love,
Grandma
Grandma Lignell <lignell@uslink.net>
Toivola, MN - Thursday, October 5, 2006 11:24 AM CDT

I am sorry to hear about Riley's increase in seizures. I say a prayer everyday for dear, sweet little Riley.
Let's hope that an adjustment with her medication dosage will do the trick. I hope that Riley will keep rolling for you. That is a big milestone.
P.S. I am rooting for The Twins to win the World Series!

Cyndy Barnett (grandmom to Samantha, 9mos) <cyncerlee@msn.com>
Medina, OH - Wednesday, October 4, 2006 10:47 AM CDT

Hi Guys-
Me and Sam are praying really hard for Riley. We want her to get well, and for those seizures to stop. We know how hard it is, and wish for a miracle for her. She is such a sweet baby, and we love her so much. And, we are saying prayers for you too (Nikki and Aaron), we know that your heart breaks every time something else bad happens. Our hearts are breaking for you too. But, you will get through this and be stronger. Please give Riley the biggest hug and kiss from me and Sam.

Jessica and Samantha (11 months/Aicardi Syndrome)
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Monday, October 2, 2006 4:17 PM CDT

Way to go lil Ms. Riley!! :) :) All that hard work is paying off! Hope to see you soon. I miss you all! Love you lots~
Miriam <MJHolmquist@hotmail.com>
Mound, MN USA - Sunday, October 1, 2006 5:36 PM CDT

To the ROLLING RILEY!
Way to go!! Keep it up!

Love,
Jessica and Samantha
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Friday, September 29, 2006 2:23 PM CDT

My little granddaughter sure knows how to make us stand up, take notice and put a huge smile on her parents' face. We are so excited about the rolling news.
Grandma <lignell@uslink.net>
Toivola, MN US - Friday, September 29, 2006 9:26 AM CDT

Hi There love hearing about Riley rolling over that is fabulous!!! Miss you all and lets get together soon!!!
Jodi Lucast <jodilucast@edinarealty.com>
Elko, mn usa - Thursday, September 28, 2006 8:14 PM CDT

Hey there. This is my first time to see Riley's web page. It looks great.
Brenda Caldwell (Meagan's mom) <nutmegsmother@yohoo.com>
Tifton, GA United States - Thursday, September 28, 2006 3:17 PM CDT

Nikki- i hope this finds you doing well. Hang in there things will get better. i will say a prayer for you guys for Riley's up coming surgery. God Bless
jessica <jjwaara@yahoo.com>
hibbing, mn usa - Thursday, September 28, 2006 9:34 AM CDT

Nikki, I know that at times it can be so difficult having a child with a disability. Joseph and I spend most of our mornings at Dr's and therapies sometimes I wonder will it ever get any easier for us. I know that when I am having a down day that it helps me to go and visit your page and Joseph's and then I realize that it is so worth it. Joseph and riley are such a gift from GOD what a learning journey we are both on. We both have such beautiful children that are so deeply loved and cared for. You are a wonderful mom and I love knowing that you are such a big part of my family. Please know that I think of you often and you are always in my thoughts and prayers. If you ever need to talk I am here. Just a phone call away.

Zack has his first soccer game this Saturday. I will be sure to take lots of pics and send them your way. Caitlin always talks about Riley and wishes she lived closer so she could kiss her face. We love all of you!!!

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, September 26, 2006 11:36 PM CDT

Hello Spaulding Family! This is Brittany from Charter Communications, after talking with Aaron about little Riley I just broke down in tears. I was so sad to hear that something so heartbreaking could happen to such an innocent little one. She is a beauty though and I know that your testimony of God's love for your family continues to grow with each passing day as does mine. If you every need anything, please email me. It was nice to talk to you all and I'll be keeping you in my prayers.
Brittany Hayes <brittanyanddanielhayes@yahoo.com>
Rochester, MN USA - Sunday, September 24, 2006 0:32 AM CDT

Hi guys,
I miss you! Have to get up to the cities soon. I have lots of people to see up there. Anyway, I am SO sorry to hear about Riley. The scoliosis is horrible. I have a slight curvature and they havent measured the degree of the curve. And, about seizures. Aleia is now on Lamictal and she has the VNS. It's really awesome. I know it's hard for you guys with the seizures but with Aleia she seems to recover from the seizures faster with the VNS. It's a very minor surgery. Well..better get going.
Love and hugs!
Miss you guys!
Sami
Sami <samlloydmiller@gmail.com>
Mankato, MN USA - Saturday, September 23, 2006 9:37 PM CDT

Hi Nikki-
I know you don't feel like talking right now, and I completely understand. I felt the same way when I found out about Sam's corpus callosum (oh, if that were our only problem!!). Can you please send me your address, I would like to send something to you guys for Riley. You can email it to me at Jaybirdy22@msn.com or call me (if you want to) 330-242-2007. Please take care of yourself--I worry about you and Riley all of the time! And Sam still looks like Riley!!!

Love,
Jessica and Sam (11 months on Saturday)
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Wednesday, September 20, 2006 1:04 PM CDT

Hi Nikki - I check your website almost daily and think of you many times a day. Sorry I haven't seen you in ages. Miss you. Thanks for keeping us updated on Riley......she is growwing up so fast! p.s. we moved to our new house now! we'd love to have the three of you out. could you come some day?
Sherre & Lisa <bhappyhlts@yahoo.com>
Prior Lake, MN - Tuesday, September 12, 2006 9:39 PM CDT

Hi Guys-
We were glad to read an update on Princess Riley. I will be sending prayers to her, so that cold finally goes away!
Can't wait to see new pictures of her, she is a sweetie!

Love,
Jessica and Sammy/10 months
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Monday, September 11, 2006 4:33 PM CDT

Hey there my little princess!
Wow, mama sure has been busy! Lol I hope you get over those infections soon. I don't really know what to say...except that I miss you and love you all. Hope you're well and that we can see each other very soon. Rhonda and Shawn are going to be getting married on the 30th. So that's going to be awesome. But anyway...I need to get going.
Sending you lots of love and hugs!
Sami
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Sunday, September 10, 2006 8:41 PM CDT

saw the page and love it! she is beautiful and you two are so amazing!!!
sean b <dunka@z.net>
hibbing, mn us - Monday, September 4, 2006 11:10 PM CDT

Hi guys ... Just stopped in on Riley's page to see how everyone was doing. The pictures of her smiling melt my heart! So cute! Miss you.
Candace
Forest Lake, MN US - Tuesday, August 29, 2006 12:12 AM CDT

Hi guys,
I hope you and the little Princess are doing well. I miss you guys and love you much! Please e-mail me so we can talk soon. I'll be back to check on you guys soon.
Love,
Sami
Sami; Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Thursday, August 24, 2006 9:36 PM CDT

Hi Nikki, Aaron and Riley-
I hope you are all doing well. We think about princess Riley all of the time. She is so special, we love her to pieces. Sam's cold is gone--thank goodness! Talk to you soon!

Love,
Jessica and Samantha
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, Oh USA - Wednesday, August 23, 2006 3:12 PM CDT

Hi Riley,
I'm stopping by to pray for you today. I know that you and mommy and daddy work very hard every day, and it shows.
Go Riley!!
Stephanie and RachelJoy <mom2rj@comcast.net>
- Wednesday, August 16, 2006 8:46 PM CDT

I just had to check in and see new pictures of Riley. What a head of hair. This is going to "date me", but she is Shirley Temple all over! Hugs!
Gail Carlson <gacpchef@hotmail.com>
Hibbing, MN USA - Tuesday, August 15, 2006 3:26 PM CDT

Riley is such a pretty little girl, she is like a movie star, even with a cold.
Cyndy Barnett (grandmom to Samantha, 9mos) <cyncerlee@msn.com>
Medina, OH 44256 - Monday, August 14, 2006 2:02 PM CDT

Hi Nikki, Aaron and Princess Riley-
OH MY GOSH!!! LOVE HER!!!!!
She is so cute and I am hoping her and Sam both beat these nasty colds fast! We love the new pictures, she has Shirley Temple curls!
Jessica and Samantha Ihrig <Jaybirdy22@msn.com>
Medina, OH 44256 - Monday, August 14, 2006 12:50 AM CDT

AJ AND NIKKI,
RILEY IS SOOO BEAUTIFUL! I CAN'T GET OVER HOW MUCH SHE LOOKS LIKE YOU, AARON. I HOPE HER COLD GETS BETTER QUICKLY.
MY THOUGHTS AND PRAYERS ARE WITH YOU ALL, ALWAYS.

AUNT BARB <cooky153@comcast.net>
PUYALLUP, WA USA - Sunday, August 13, 2006 3:08 PM CDT

Nikki--
Please put a picture on of Riley's new doo--we can't wait to see it!
Love,
Jessica and Samantha in Ohio
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Wednesday, August 9, 2006 2:42 PM CDT

Hi,
I just love looking at pictures of Riley, she is very cute. I wish that I could hold her and give her a big hug.
Cyndy Barnett (grandmom to Samantha, 9mos) <cyncerlee@msn.com>
Medina, OH USA - Wednesday, August 9, 2006 8:11 AM CDT

Hi there..
I never knew this was on the site, its FANTASTIC, and Riley is so so gorgeous she really is a beauty.
Hope you are all well.
Love you lots xx
Gemma, Millies mummy from the UK.. <a.crocombe@btinternet.com>
England - Tuesday, August 8, 2006 1:52 AM CDT

We were sorry to hear Riley is under the weather. Poor little girl--we hope you feel better soon!
Jessica and Samantha Ihrig <Jaybirdy22@msn.com>
Medina, OH USA - Tuesday, August 1, 2006 8:14 AM CDT

Yeah Riley!!! Good job on your head control, and no seizures and learning to roll! The good news keeps coming and coming!!! We love hearing about you! Your parents love you so much, you are a very lucky little baby!
We love you too!

Jessica Ihrig and Samantha (9 months A/S)
Jessica Ihrig <Jaybirdy22@msn.com>
Medina, Ohio USA - Monday, July 24, 2006 9:41 AM CDT

Way to go Riely holding your head up that long. Praying for you all.
www.caringbridge.org/visit/lynzeecullum
Dorothy <mom2all9106@yahoo.com>
- Saturday, July 22, 2006 4:44 PM CDT

OOOOPS!
I forgot...here's my other e-mail
Sami Lloyd-Miller; Philippians 4:13 <samlloydmiller@gmail.com>
Mankato, Minnesota United States - Friday, July 21, 2006 11:20 PM CDT

Nikki Aaron and Riley,
I would absolutely LOVE to join you in the Stroll for Epilepsy! Please send me the information and I am trying to get in touch with a friend so we can get up there and I can see you guys and the cutie pie Riley! E-mail me...I am giving you my main e-mail address so you can contact me easier that way. It's easier to send e-mail to this one. I can send you my donation by mail but I would like to know a bit more and try to find a place to stay and all that stuff.
Love hugs and kisses to the lil princess!
Sami
PS: Can't wait to see the pictures!
Sami Lloyd-Miller; Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, July 21, 2006 11:18 PM CDT

Dear Family,
I am so sorry for you. I kind of know what you are going through althrough my daughter doesn't have the same disorder she has a rare disorder called Neurofibromatosis. There is no cure for her disorder and I just want to let you know that You all will be in my thoughts and prayers.
www.caringbridge.org/visit/lynzeecullum
Dorothy <mom2all9106@yahoo.com>
- Friday, July 21, 2006 1:48 PM CDT

Oh Nikki!
I am so sorry. I know this is so hard for you. So many beautiful girls are affected by this horrible disability. Please know that my thoughts and prayers are with you as is my love and hugs. You are a wonderful mother, and Aaron is a great father. Riley is lucky to have parents like you. Just from meeting you I can tell you are awesome people. Please know that I love you very much and I hope you can regain some strength over the next few days.
Love you and miss you tons,
Sami
Sami Lloyd-Miller; Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, July 19, 2006 7:29 PM CDT

I UNDERSTAND SO WELL WHAT YOU'RE TALKING ABOUT..I KNOW YOU HAD TO FACE SOME TERRIBLE REALITIES..I PRAY YOU REGAIN SOME OF THE STRENGTH YOU HAD, I PRAY FOR YOUR HEARTS, AND I PRAY FOR BEAUTIFUL RILEY. I LOVE YOU SO....MOM
CHARLA FOWLER <imacharla@yahoo.com>
ABILENE, TX USA - Wednesday, July 19, 2006 5:28 PM CDT

Hi Guys!
I miss you so very much! I miss holding Riley and talking to her, she smiled so much! I think Im her favorite!!!!
Love,
Bonnie and Family

Bonnie <cash2003123@yahoo.com>
Tehama, Ca - Tuesday, July 18, 2006 1:09 PM CDT

Another fun pic I took of Aleia when we were hanging out...she's learning SO much!

Hey guys!
I miss you soo much! Glad you got to Louisville okay. You are such a cool mom, you got Riley all the way there and stuff. I feel bad for Aaron that he can't help out with her but that will come with time.

I'm so glad you guys were able to go to the Aicardi Conference. You will meet soo many awesome families there. It's really awesome that you guys are able to go. I hope you have a GREAT time!
Love and many HUGS and KISSES to you and Riley!
Sami
Sami Lloyd-Miller; Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, July 14, 2006 9:09 PM CDT

Thought I would send you a picture of Aleia's sweet lil smile. Keeping you in my thoughts and prayers always.
Miss you and love you!
Sami
Sami Lloyd-Miller; Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Thursday, July 13, 2006 2:17 PM CDT

Riley and family-
I have been a silent reader for quite awhile. I just got my own caring bridge site, so I thought I would pop in and say hello. I hope this finds you in high spirits and good health!
<3 Sarah

http://www.caringbridge.org/visit/sarahmae
Sarah Nelson <sarah_mae_@hotmail.com>
Brookings, SD USA - Wednesday, July 12, 2006 4:55 PM CDT

Hi Nikki, Aaron, and Riley,
I was reading the Carlsen's page and saw your link. I was very taken with Riley's story, particularily the photo of her with her PCA. I worked thru college (in MN) as a PCA for kids with special needs, and loved it. I now work with kids with autism. I often think how weird it must be for parents to have me come into their home and work with their child. But I feel so lucky to have the opportunity to be a part of the lives of all of my kids, I'm sure your PCA feels the same. Keep up the good work with Riley, she is such a cute peanut! Wishing your family a great summer! best, Braden
Braden Schmitt <magnumopus23@yahoo.com>
Los Angeles, CA - Wednesday, July 12, 2006 0:07 AM CDT

Hi Riley!
I miss you sweetheart. Aleia's doing okay. She's at the hospital right now...I miss her too! Hope you're doing really well
Love,
Sami
SENDING BIG HUGS YOUR WAY!

Sami Lloyd-Miller; Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Tuesday, July 11, 2006 11:05 AM CDT

Hi Friends!
Oh my gosh I can't believe how big she has gotten. I didn't think it was possible for her to get any cuter, but these pictures are proof! The pig tails are flawless, just like her mommies always were. I love you guys and miss you. It's been a while since we talked, please email me and let me know what the heck happened to Aaron, what's the neck brace all about?
Big Hugs and Love,
"Finkel"
Kerri <kerrbearr@hotmail.com>
Orlando, FL USA - Tuesday, July 11, 2006 10:20 AM CDT

Nikki & Aaron,
I just love those cute piggy tails,and tiny bows. I hate that I will miss the conference, and meeting yall. Have a great time.

Hugs from Carrie mom to Sarah 27 months
Carrie Smith <angel_sarah_ann@yahoo.com>
Mt Vernon, TX USA - Tuesday, July 11, 2006 0:10 AM CDT

Hey Guys,
Have an awesome time at the conference!! We will be thinking of you this weekend! We will keep you in our prayers for a safe and easy trip and most of all a FUN time! I look forward to reading all about when you get back!
By the way, the picture of Mom and Riley is very precious!
God Bless and Contiued Prayers,
Jessica
Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN USA - Monday, July 10, 2006 12:03 AM CDT

YOU ARE SUCH A SWEET LITTLE GIRL, HOPE EVERYTHING IS GOING GOOD, KEEP PRAYING, AND GOD CAN DO MIRCLES
SHARON BOLIN <sbolin@fiser.com>
SCOTT, AR USA - Monday, July 10, 2006 11:39 AM CDT

Hey!!! Noticed you signed the Carlsen's guestbook and I decided to see who your family is because after I signed theirs I was curious. I am keeping you in my thoughts and prayers. Hope all is well. (I have Hydrocephalus) if you know what that is. Anyway have a great day. Catherine
Catherine
- Saturday, July 8, 2006 10:01 PM CDT

Well, just thought I would see how you guys were holding up. I'm soo glad the baptism went well and that Riley is doing good as well. She's just an angel. I love the pictures you have of her. She takes my breath away with her cuteness! Lol. I am going to try to visit Aleia at the hosptial so I hope that we can see each other then. I miss you guys verrry much!
Love and HUGS to you!
Sami
angelsamibabi.blogspot.com
Sami Lloyd-Miller; Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, July 7, 2006 10:27 PM CDT

Hi Nik, Riley & Aaron! I'm sorry it's been so long since I've posted!! The pictures of Riley in her dress are ADORABLE! She is beautiful and gotten so big since the last time we visted! Sounds like you had a terrific weekend!! I love and pray for you every day. I hope Aaron's shoulder is feeling better as well. :o) Love you guys.
Candace <RCRindels1@msn.com>
Forest Lake , MN - Friday, July 7, 2006 10:56 AM CDT

These new pictures of Riley brings tears to my eyes! She is so very beautiful, she is smiling and wearing such a gorgeous dress!
See you next week!
Bonnie
Bonnie <cash2003123@yahoo.com>
Tehama, ca - Thursday, July 6, 2006 11:35 PM CDT

Riley is just adorable. I think I have seen that unhappy look on my girl once or twice.
Love Kim and Charlene Barry <kimelas2000@yahoo.com>
Manton, MI USA - Thursday, July 6, 2006 8:38 PM CDT

Oh you are getting so big, and your hair is growing like crazy. I love the pony tails. You are as precious as an angel!! I'm glad the vacation and Baptism went good!

Aleia and I will be in St. Paul on 7940 to see Dr. Ritter for an EEG to catch a seizure. She is getting admitted on the 10th of July. I am expecting to be there at least a week. We haven't caught a seizure on tape since 2002 so now is about time. They want to do some medication changes. She is also haveing other complications so she will also be seen by Endocrinology. That could make our stay a little longer. Who knows.

If your around maybe you could stop up and see us. Monday will be busy with getting admitted but any day after that would be wonderful.

You guys are the best! Hope to see you soon.

Love always

Rhonda, Shawn, Lee, Kelvin, Corey, Drew, Aleia, & Ian <rhondadettmer@charter.net>
Fairmont, MN - Thursday, July 6, 2006 4:11 PM CDT

Riley you are getting to be such a big girl! Taylor and I love your hair! You look good girl. We can't wait to see you soon
We love you so much!!
Amy gasswint <rugby5@charter.net>
mankato, mn - Thursday, July 6, 2006 2:04 PM CDT

Both mother and daughter look absolutely beautiful!
Riley is a very special little girl and we love hearing about her!

Jessica and Samantha Ihrig <Jaybirdy22@msn.com>
- Thursday, July 6, 2006 11:00 AM CDT

Riley and mom are very pretty.
Cyndy Barnett, grandmom to Samantha (AS 8 mos) <cyncerlee@msn.com>
Medina, OH USA - Thursday, July 6, 2006 10:52 AM CDT

How gorgous Riley looks it's lovely to see the face behind a letter Hope the baptism went ok i no it as been a struggle for you to be honest we are going through the same thing with Elizabeth But we have to be strong for our little ones and remember you don't always have to put a brave face on things you can be the blubbering wreck sometimes it's GOOD FOR YOU HONEST I ALWAYS FEEL BETTER AFTER A GOOD CRY
Love to you all
Mary
Elizabeth 18 months
Mary Bunting <buntingsat103@yahoo.co.uk>
England, - Sunday, July 2, 2006 4:33 PM CDT

Hi guys!
14 days until Kentucky! I love the picture of big Riley girl, she has come such a long way! See you soon!
Love
Bonnie and Sunny =)
Bonnie <cash2003123@yahoo.com>
Tehama, ca usa - Saturday, July 1, 2006 3:53 PM CDT

Hey sweetie!
I thought I would see how you were doing. I have been thinking about you lots in the past few days. Hope you received my e-mail.
love you all!
Sami
Sami Lloyd-Miller, Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, June 30, 2006 3:57 PM CDT

Dear Riley, we are so excited to spend the weekend with you. We are so pleased to have the honor of being your Godparents. You mean the world to us. We all love you to pieces!!!!! See you soon.
Love,
Auntie Hayley, Uncle Jerry, and your cousins, Blake and Kendall
The Prchal's <h_towngirls@yahoo.com>
Montgomery, MN - Thursday, June 29, 2006 2:01 PM CDT

Hey guys,
I hope you're all doing really well. Things have been going alright around here. Hope you have some time to check out Aleia's page...they finally updated it...lol. As far as I know everyone there is doing okay. I hope to see you guys REALLY soon!!! I miss you guys sooo much! Hope you're doing well and I'm glad Aaron is on the road to recovery.
Love you all!
LOTS of HUGS AND KISSES to you and the lil Princess!
Sami

Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Saturday, June 24, 2006 11:33 PM CDT

Thank you so much for visiting Sundays sight! I also cant wait to meet you at the conference. I know I will recognize Riley right away, Love the ponytails! I just read about Alea and her pictures being removed, maybe you can email and let me know if everything is ok.
It seems like our girls both did not like the Keppra, Im glad were almost done, on Monday is the last dose, I also wonder if the reduction is keppra is causing these withdrawel seizures.
Im glad to hear that Aaron is on the road to recovery! It might not be good now but its the long term benefit that will make all the difference.
Thinking of you,
Bonnie and Sunday girl 1 year.

Bonnie <cash2003123@yahoo.com>
Teham, ca usa - Saturday, June 24, 2006 10:52 PM CDT

Hello to my lil princess and her family!
WAY TO GO RILEY! You are such a lil fighter! Thanks for the pictures. They are so awesome, she's getting to be such a big girl! I understand about the carseat/car situation. It's so hard to get Aleia out of the van sometimes. Especially if she's sleepy and lazy, I have to have her work with me now because she's getting so heavy! I'm so glad Aaron is getting better after his surgery. That picture of Riley with her PCA is just precious! Riley really seems to like her. I hope to see you guys soon, I've been missing you! E-mail me sometime so we can have a chat!
Love you all!
Sami
PS: I took all of my pages off, if you want more information, e-mail me.
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Sunday, June 18, 2006 8:35 PM CDT

Hi little Princess!
It's Sami.
I am going to try and be with my Aleia for a while during the time she's at the hospital for her EEG. I am soo sorry she's still having lots of seizures! Poor Baby! I sincerely hope you get some relief from these icky seizures! I hate them so much! uggg..Anyway, I am doing okay. Right now I'm in Fairmont and I was able to spend some time with Aleia the other day. She is getting SO big SO fast! I love spending time with her, she's really one of the most AMAZING friends I've ever had. SO much to update you on with me and the crew down here! I'm always thinking of you and praying for you! Hope you have a SPECTACULAR weekend!
Love you and I miss you!
Sami
Sami www.freewebs.com/samimiller <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, June 9, 2006 6:33 PM CDT

Hi, I am one of Dani's friend. She had just told me about this and I want to send my prayers and good feelings to you, family and of course the baby. On behalf of Dani and her girls, please accept my good thaughts and wishes.
Bob <bob_home@comcast.net>
- Thursday, June 8, 2006 10:40 AM CDT

I want you to know - you, Aaron and Riley are ALWAYS in our prayers. You have done such a wonderful job keeping us posted on everything. Please know we are asking God to give Riley the strength to overcome the seizures, watch over Aaron in preparation for his surgery and to grant you the energy to get through each day with ease.
If there is anything I can do please let me know. I am here for you day or night.
You are an amazing family,
God bless,
Jessica

Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN USA - Wednesday, June 7, 2006 3:03 PM CDT

Hey there little Princess, It's Rhonda. Been a while but we have been so busy around Fairmont.

Sorry to hear about the increase in seizures. Do the Doctors know why? It�s a real bummer when it starts to affect sleep patterns for our little children. When Aleia was 10 months old she was on Felbamate and only slept 2 hours in a 24 hour period. It was horrible. That�s when I finally got an LPN to come into my home for 2 hours per day. I soon realized 2 hours wasn�t enough. I needed sleep time and time to clean AND TIME TO SPEND WITH MY OTHER TWO CHILDREN.

We had a review of Aleia�s Nursing hours just last week. I requested Monday � Friday 6:30 am (because I go into work at 7am) until 7pm. I also requested Saturday and Sunday 8-5. Aleia needs constant supervision for her own safety, I can�t do it all by myself. Aaron and Nikki, don�t feel like you need to do it all by yourselves, ask for help! It doesn�t show weakness, it only allows you to do the things you need to do to become stronger and make yourselves the best parents you can be!! It took me a long time to realize that.

We will be in St.Paul July 7th. Aleia is going to be in St.Paul Children�s getting re-evaluated. Hooked up to the EEG�s and everything waiting for the seizures to come. Hopefully it won�t take long and we can go home again. Maybe if you get a chance you can stop over and see us. My Fiancee Shawn will be with me so you will get to meet him then. Got lots to tell you about. Lots of changes have been going on in our lives.

Sending you all our love, hugs and kisses. I am praying for healthy days, and I will pray for no seizures and a quick recovery from surgury for Aaron.

Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Wednesday, June 7, 2006 10:37 AM CDT

Nikki- Just thought i would let you know i check in on you guys at least once a week. you are in my thoughts and prayers. Hope Aarons surgery goes well and little Riley's seizures become less.
Jessica Waara <jjwaara@yahoo.com>
Hibbing, mn 55746 - Wednesday, June 7, 2006 9:13 AM CDT

Hi- I checked your website periodically last year after a nice gentleman came through our neighborhood collecting pledges for the Walk for Epilepsy. He shared your story with me and showed me the flier with Riley's photo. From then on, I was hooked. Your little girl is beautfiul and you are truly amazing parents. And, then, a few weeks later, I received a thank you note from your family for our donation! It was not expected, but it sure was thoughtful of you to think of those who helped, if but in a small way. Then, unfortunately, I lost your website for about 6 months, but luckily I discovered it in your guestbook entry on Drew and McKenna Olson's website! I've been checking in with you ever since. May God bless Riley and help these horrible seizures go away. Know that prayers are sent your way each and every day.
Teresa <temthorn@visi.com>
Farmington, MN USA - Wednesday, June 7, 2006 7:28 AM CDT

RachelJoy is continuing her recovery here at home. I'm so very, very thankful to the Lord.
I'm praying that your family will also enjoy special blessings this week, and that Riley will continue to gain new skills.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Tuesday, June 6, 2006 8:10 PM CDT

I think of you and check on you daily. I have such admiration for your family. Give Riley a big hug and smooch from me and tell her I'm pulling for all of you.
Love,
Judy Olson
Judy Olson <juga@rangebroadband.com>
Hibbing, MN 55746 - Tuesday, June 6, 2006 7:19 PM CDT

Nikki - My heart is going out to all three of you. What an incredibly stressful time you are having and what a wonderful mother you are. I'm praying for you to get rested and rejuvenated, Aaron's shoulder to heal, and Riley's seizures to settle down so she can adjust to the new meds.
Sherre <bhappyhlts@yahoo.com>
Burnsville, mn - Tuesday, June 6, 2006 3:28 PM CDT

Praying that you get some relief from these bad seizures! I can't believe one little girl can go through so much!
Love,
Sami
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Tuesday, June 6, 2006 2:11 PM CDT

Hi Nikki, Aaron & Riley,
I came across your site from Drew & McKenna Olson's caringbridge site. Riley is absolutely beautiful and it is obvious she has a great network of support on her side. I pray that the new medication will prove to be beneficial and I also pray for strength and some much needed rest for your family.
God Bless you all!
Debbie Freetly-Green & family <debbieiam143@qwest.net>
Farmington, MN - Monday, June 5, 2006 4:08 PM CDT

Aaron and Nikki, as much as I'm sure you've heard it before, take some time for yourselves too. Riley is becoming a beautiful young lady!
Toni Peck <antoinette.peck@courts.state.mn.us>
Hibbing, MN USA - Monday, June 5, 2006 9:59 AM CDT

Nikki,
Im so very sorry about this, I think about Riley and your family often, I just love her, your family has been on my heart for about a year now. Im praying for you and am hoping these darn seizures subside.
Love and Warm thoughts,
Bonnie
Bonnie Nelson <cash2003123@yahoo.com>
Tehama, ca usa - Sunday, June 4, 2006 11:04 AM CDT

Oh no no no Riley!
No scary seizures. I am so sorry that she is having these horrible seizures. Please know I'm praying for you guys lots. Hope we can get together very soon.
Lots of love and hugs,
Sami
Sami www.caringbridge.org/visit/samimiller, www.freewebs.com/samimiller <samibabi@hickorytech.net>
Mankato, Minnesota United States - Thursday, June 1, 2006 11:30 AM CDT

HI Nikki!
Summer is finally here! Let's get together soon. It's been way too long. I love all new pictures you've added. Riley is adorable! I hope this new medication works. Did they give you a timeframe that they think you'll start seeing a difference in her seizures? I'm only home for 3 days in June but July I'm home for 3 weeks. Looking forward to seeing you and catching up. Love you!
Miriam <MJHolmquist@hotmail.com>
Mound, MN - Sunday, May 28, 2006 10:49 AM CDT

I saw your post on the Carlsen's caringbridge site and thought I'd visit. Your daughter's story touched me and I would like you to know she is in my family's prayers. She is so beautiful.
Lia N.
Okemos, MI US - Friday, May 26, 2006 7:23 PM CDT

Hi Nikki Aaron and Riley,
I'm sorry to hear that Riley is having Complex Partial Seizures. That is Aleia's second most frequent type of seizure. Most of the time she has GTCs. I hope you guys are doing well and I'm glad she's getting a PCA. I'll be praying for you lots.
Love you and miss you!
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, May 24, 2006 6:43 PM CDT

Hi Nikki,
I will try not to post this twice ;).
I just posted a message on the Aicardi listerv. Sunday is on the same two drugs as Riley and at first we get a decrease, then they come back.
Anyhoot, I think Riley is so very beautiful. I think about her and pray that she is bringing you joy. Its rough watching this seizure disorder. I like the rolling picture thing.

Bonnie <cash2003123@yahoo.com>
Tehama, ca usa - Sunday, May 21, 2006 10:54 PM CDT

Nikki,
Thanks for visiting our caringbridge site and leaving such a nice message. Your daughter is beautiful. I love the picture of her sleeping. So pretty and peaceful. I know how hard it can be dealing with a child affected with a chronic disorder. But keep the faith. Know that God has a plan for our daughters and we're just along for the ride...to make the trip as comfortable and fun as we can.
Blessings on you and yours.
Nichole
www.caringbridge.org/visit/sophiaekstrom

Nichole Heidl-Ekstrom <nicholehe@yahoo.com>
Eagle Lake, MN usa - Monday, May 15, 2006 4:29 PM CDT

Hi Nik! I hope you had a truely GREAT Mother's Day! Happy Happy Mother's Day honey!!!!!
Candace <RCRindels1@msn.com>
Forest Lake, MN - Monday, May 15, 2006 11:33 AM CDT

Nikki, Even thought we don't know each other I had to write to wish you a happy mother's day. I found this site on a different Caring Bridge site. Your daughter is beautiful. I will keep her in my prayers.
Sara Cox <scox78@hotmail.com>
Mpls, MN - Sunday, May 14, 2006 6:26 PM CDT

Once again, love all of the new pictures of Miss Riley!!

Happy Mothers Day Nikki!

Carla
Minneapolis, MN - Sunday, May 14, 2006 1:25 PM CDT

Riley is so very cute. Look how she moves her little leg. Shes keeping her foot braces on longer I see. Her little friend seems to just adore her.
Bonnie <cash2003123@yahoo.com>
Tehama, ca usa - Thursday, May 4, 2006 6:54 PM CDT

Hosted at YourSpaceNow.com

Hi Miss Riley!! Hope you're having a good day today. I love the new pictures - you are getting so big! See you soon!
Auntie Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Thursday, May 4, 2006 2:34 PM CDT

Hi guys!
I must be just like your mom, I'm so happy you added new pictures! THANK YOU! Riley is getting so big. I have to see her soon! I really do miss seeing you. I'm sorry to hear that Riley's seizures have increased. That breaks my heart. We keep Riley & both of you in our prayers.

Just wanted you to know we were thinking of you.
Love you!!!
Candace <RCRindels1@msn.com>
Forest Lake, MN 55025 - Thursday, May 4, 2006 7:42 AM CDT

Elizabeth <michael_shipley@bellsouth.net>
- Wednesday, May 3, 2006 12:18 AM CDT

Hey Nikki-
Although I haven't written, I check Riley's page at least once a week. I'm happy to hear she's getting better. I hope you and Aaron are hanging in there! Remember that Riley needs you to take care of yourselves as well, so try to find some time!

hope to see you soon!
(June 2nd?? Hibbing??)

Diane Hallila <jojolo88@hotmail.com>
Edgewater, Md 21037 - Tuesday, May 2, 2006 11:09 AM CDT

dearest Nikki, Aaron, and sweet Riley,
None of you really know me.. but Aaron has met dick and i several times through Buca. I follow your journal and if it at helps, my thoughts and good will are sent to you daily. ( I made what is trying to pass as the pink knit "baby" blanket for Riley).. once I saw her current pictures,after the blanket was delivered, i thought that it might just be big enough to keep her lap warm. Riley is much taller than I thought.. at least her pics make her look like a beautiful tall little girl.. I think I had forgotten how old she really is when I started the blanket. I am literate, just a lousy/crippled typist.. So, here is sending you warm giant hugs and kisses.

Nicolle and Aaron, Be kind to yourselves and each other .. it is the best possible thing you can do for Riley outside of the the love she sees and receives from you every day.
The two of you need to be cared for and about and loved so that your wells never run dry.
peggy (with the bloodhounds)
peggy e <peggye@frontiernet.net>
burnsville, mn usa - Monday, May 1, 2006 10:49 PM CDT

Dearest Nikki, mother of Riley,
This is Grandma Lignell putting in her order for some new pics of her beautiful little grandaughter. I know you are very busy-so I will try to be patient.
As you know that is not very easy for me.

Love Grandma
Laura <lignell@uslink.net>
MN USA - Monday, May 1, 2006 9:36 PM CDT

I am so glad to hear that your little sweetheart is doing better! I'll keep you in my prayers.
Abby
MN USA - Monday, May 1, 2006 3:47 PM CDT

Nikki, Aaron, & Riley -
We checked in today to see how things were going, and are obviously saddened to learn of Riley's struggles. You contuinue to be in our thoughts and prayers, and lil'Emily sends a "BIG HUG" Riley's way.
Hang in there!
Love, Mark, Teresa, & Emily
The Wilson's
Savage, MN USA - Saturday, April 29, 2006 6:17 PM CDT

Poor baby! Icky Icky seizures..no fun!!!!
Anyway, I just wanted to let you know that my prayers are with you always...I miss you guys and hope to see you again real soon! Call me or e-mail me sometime, I may be in the cities sometime soon and would love to see you and your little princess. Prayers will be coming from me for all of you!
Love, hugs, and blessings,
Sami
Sami www.caringbridge.org/visit/samimiller <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, April 28, 2006 9:09 PM CDT

Hey guys,
Sorry to hear about Miss Riley's seizure increase. I think about you guys all the time and keep you in my prayers. I hope you got the card :)

Jill
Chino, ca usa - Friday, April 28, 2006 1:37 AM CDT

Dear Nikki, Aaron and Riley,
I will keep you all in my prayers.
Sue Barker
Riverside, CA USA - Thursday, April 27, 2006 5:59 PM CDT

My heart aches with all that you have been going through. I can't even imagine how difficult it is for you. Please know that your family is in our continued prayers! Thank you so very much for keeping us posted!!
God bless,

Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN - Thursday, April 27, 2006 1:56 PM CDT

Nikki & Aaron, I am so sorry to hear that your precious little girl is having so many seizures and such hard ones. I am sure it breaks your heart, but she is so very lucky to have the most caring loving parents that any little girl could have. You guys are two very special people and I hope you both realize that. Little Riley is so lucky to have you. I sure hope the seizures quit soon. I know its hard Nikki, for you to write when things are not going good, but I, like so many, look forward to your emails. Its the first thing I do when I get to work. I go to your site and read your entries. Please hang in there both of you and please know that my prayers are with you all.
Dionilla <dionilla@rangebroad.com>
Hibbing, MN USA - Thursday, April 27, 2006 9:54 AM CDT

Nikki, Aaron, & Riley -

Thanks so much for the update! I check frequently and was getting a little concerned. Now I know how to direct our thoughts and prayers. Thnking of you and missing you!

Sherre & Lisa <Bhappyhlts@yahoo.com>
- Thursday, April 27, 2006 8:25 AM CDT

My Dear Nikki and Aaron and of course LIttle Riley,

Stay strong-hopefully those seizures will subside. I also remind you that your instincts as parents far out weigh anything else. Believe in them and follow through. Our Little Pumpkin has been blessed with two wonderful parents whose love is boundless.
Take care,
Love Mom (aka Grandma)
Laura <lignell@uslink.net>
Hibbing, MN US - Thursday, April 27, 2006 8:22 AM CDT

Hi Nikki, Aaron & Riley,
We just met Aaron tonight at Bucca's and he is the nicest, most friendly person we've come across in a long time. You see he noticed us because of our disabled son Tristan. He came and chatted with us, Tristan and his little sister. Our hearts go out to you both and your baby girl. She is so precious. We would love to stay in contact and possibly see you at the Epilepsy Walk. Take Care, Danette, Jeff, Tristan and Peyton Rodriquez
Danette Rodriquez <Dlrodriq71@aol.com>
Shakopee, MN USA - Tuesday, April 25, 2006 9:43 PM CDT

Hosted by Sparkle Tags
Hey guys!
I miss you...I was wondering when the Epilepsy Stroll was because I am trying to volunteer for the Epilepsy Foundation, and I wanted to join you in the Stroll because all kids with Epilepsy, and of course all kids in general are special! I'm sorry to hear about your cat...that just isn't fun... And I am praying that Riley's artery problem will be okay. She's a fighter! I hope you're doing well.
Love, hugs, and blessings,
Sami www.caringbridge.org/visit/samimiller <samibabi@hickorytech.net>
Mankato, Minnesota United States - Monday, April 24, 2006 4:19 PM CDT

Hosted by Sparkle Tags
Hey guys,
I miss you!!! Seeing Riley's page always makes me happy. Hope you have a wonderful and blessed Easter.
Love, hugs, and blessings,
Sami
CHRIST IS RISEN!
CHRIST IS RISEN, INDEED!
ALLELUIA!
Sami www.caringbridge.org/visit/samimiller, "I can do all things through Christ who strengthens me"-Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, April 14, 2006 4:37 PM CDT

I found your site on another site. Riley looks like such a wonderful gorgeous girl!! You are both great parents!! I will keep you on my prayer list
Abby
- Wednesday, April 12, 2006 3:54 PM CDT

I love the new pictures!! Riley looks so cute in that swing - I bet she loved it! See you guys soon!
Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Tuesday, April 11, 2006 8:17 AM CDT

You look so big in your stander. I'm so proud of you. It will take some getting used to but I think you will come to like it.

Things in the Dettmer household are changing so quickly I can hardly keep up. I will send Mom and Dad an e-mail one of these days really soon. We are hoping to join you this year in the MN Epilepsy Stroll. It will be worth the drive, and the walk. Why? Because Riley & Aleia and all children with Epilepsy are oh so very special!!!

Love and hugs to you forever and always!!

Rhonda, Kelvin, Drew & Aleia<rhondadettmer@charter.net>
Fairmont, MN - Thursday, March 23, 2006 10:17 AM CST

Hi Nikki, I know it has been years since we have spoken, but Miriam just let me know that you had a daughter, and guided me to your web page. Riley is beautuful, and just so sweet. I admire you for your strength. I also have a child, a boy named Brayden, that was born 10/14/2004, so very close to Riley's age. I just wanted to say hello, and let you know that I will keep your family in my thoughts and prayers. Email me if you ever get time. It was so good to see your beautiful face in the pictures!

XOXOX Heather Heimkes
Heather Heimkes <heimkes@hotmail.com>
Scottsdale, AZ USA - Wednesday, March 22, 2006 2:54 PM CST

Hi Nikki!! I'm sorry it's been so long since I've checked in. I'll be home for 2 weeks in April and I'd love to come down and see you guys again. Maybe we should plan a girls night and see if Amy and Candie can make it down? I miss you!!! I love you lots, my thoughts and prayers are always with you.
Miriam
Minneapolis, MN USA - Wednesday, March 22, 2006 2:16 PM CST

Hi Nikki- your little one is just so cute i cant even stand it. hope all is well i think of you guys often. You are in my thouhghts and prayers.
Jessica Waara <jjwaara@yahoo.com>
hibbing, mn usa - Wednesday, March 22, 2006 10:55 AM CST

Nikki, Aaron and Precious Riley,
I wanted to tell you that Riley is sooooo beautiful. You three are truly an inspiration to all of us with your strength, love and patience. You are in our continued prayers and we have put in many request to the BIG GUY for warmer weather so we all can outside.
God Bless you with a healthy family and many smiles!
Jessica, Craig, Ethan & William
Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN - Tuesday, March 21, 2006 8:52 PM CST

Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Friday, March 17, 2006 7:41 AM CST

Love the new pictures! She is very cute!
I can see this joy in her face even though its not in a smile, Sunday does the same thing, she talks with her eyes.
Love,
Bonnie and Sunday
Bonnie <cash2003123@yahoo.com>
Tehama, ca - Tuesday, March 14, 2006 0:05 AM CST

What a precious little love you have there! I check your website several times a week and love reading your notes. Thanks for keeping us all updated.
Sherre <bhappyhlts@yahoo.com>
Burnsville, mn - Monday, March 13, 2006 7:30 PM CST

Hi!
Riley you are such a cutie pie! I can't believe how big you've gotten since I've seen you. Could you get any more beautiful? Anyway, I'm glad things are getting better with Riley's AFOs. I know they work wonders. Too bad she cries when they are on, must take some getting used to I suppose. I hope you are doing well, and I hope to see you soon!
Sami
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Saturday, March 11, 2006 6:59 PM CST

It was great to see you guys today. Riley looks great.
Jennifer Barden <jbarden@waytekwire.com>
Montgomery, MN usa - Friday, March 10, 2006 3:12 PM CST

Hi!
Just stopped by to say hi!
Love,
Bonnie and Sunday
Bonnie <cash2003123@yahoo.com>
Tehama, ca usa - Monday, March 6, 2006 2:58 PM CST

Hi Riley just coming by to tell you that we all love you SO MUCH!!!!!

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Saturday, March 4, 2006 10:59 PM CST

You just get cutier everytime I look at your page. You are getting big too. I am so proud of all your accomplishments! Aleia went through a month of really bad frequent seizures. Come to find out it was an ear infection that wasn't controlled with the ear drops they gave us to use. After only a couple days on Antibiotic the seizures stopped and are back to normal. Yeah! Amazing how cutting teeth, ear infections and seizures go hand in hand. Do you notice changes in Riley's seizures during teething?

Sending our love to you always and forever.

Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Wednesday, March 1, 2006 2:03 PM CST

OK, could she be any cuter!!!? She is getting a ton of hair, how cute! I love her sweater, she's so stylish, the joy of shopping for a girl!
Just wanted to say hey and tell you I stop by at least once a day to check on that precious little girl of yours. Hopefully one day I will get to actually meet her! Come to Cali, it was 70 today (raining, but 70) ;) Talk to you soon
Jill
Chino, Ca usa - Monday, February 27, 2006 8:53 PM CST

Riley Smiley,
Those are the cutest pics ever!!! We miss you and love you lots.

Love Auntie Moe & Uncle Lan
Monique <mnguyen0618@hotmail.com>
- Monday, February 27, 2006 5:22 PM CST

Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Sunday, February 26, 2006 10:39 PM CST

Hi Nikki!
I usually read your emails from the Aicardi listerv. I for some reason,think of you and Riley all the time. I think she is so very beautiful, I love her full lips and blue eyes. My daughter is Sunday, you probably have read a post or two on the listerv. I love the picture of Aaron holding her by the coats in the entryway.
You are such a good mom and an inspiration to me.
Love and Hugs!
Bonnie Nelson
Sunday 9 months.
PS. I read that you werent sure about having another baby, I think you should, I just know he or she would be just awesome!
Bonnie Nelson <cash2003123@yahoo.com>
Tehama, Ca USA - Saturday, February 25, 2006 7:16 PM CST

Hi Guys .... Just wanted to let you know that Nikki, Aaron, you both are in my prayers. Of course Riley-bear too. I can't imagine what pain you both as parents must go through when you watch someone close to you - close to your situation - lose their angel, their miracle. My hurt hearts for you both. We pray for you, and for your strength. Love - Candie & Ryan
Candie <RCRindels1@msn.com>
Forest Lake, MN 55025 - Wednesday, February 22, 2006 12:20 AM CST

Hello from Lebanon, i saw your pic on Joseph webpage. what a beautiful and sweet lil girl you are hope everything will be ok. have a nice and blessed day
Guardian Angel <angegardienangegardien@hotmail.com>
www.caringbridge.org/visit/kaitlyns, Lebanon - Wednesday, February 22, 2006 12:04 AM CST

Hello Riley Girl!
It's been a long time since we've been on here. You are getting so big! Oh, and I love those curls of yours. We think of you often!
Greg, Danielle & Cameron <dmerseth11@hotmail.com>
Apple Valley, MN - Monday, February 20, 2006 3:51 PM CST

Hi Nikki, Aaron & "Miss Riley", We do remember you in our prayers each day and will continue to do so. We will also remember Meagan and her family. No one knows better than us what it means to lose a daughter - and we were lucky to have ours for so many years. Friday will be the one year anniversary of Cheryl's death. Think about all of you often and check out this page almost daily. Love the pictures and can't believe how big Riley is getting. Sending all of you love and hugs (lots of hugs). Hope to see you all soon. Keep your chin up! Love, Tom & Judie
Judie Arnold <tomjudie@rangebroadband.com>
Hibbing, MN St. Louis - Monday, February 20, 2006 10:20 AM CST

Hi Punkin'
I am glad you're doing good. Such good news really makes me happy when things are hard. Things are okay right now though, tomorrow is my birthday..actually it will be my b-day in about 32 minutes. But anyway, just wanted to let you know that you are always in my thoughts and prayers, also that I hope to see you guys soon. I miss you!
Hugs and kisses,
Sami
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Saturday, February 18, 2006 11:30 PM CST

Happy Valentine's Day from Side Lake,
sending our love and hugs.

Ros and Ralph <perchlakers@aol.com>
Side Lake, MN - Tuesday, February 14, 2006 10:40 PM CST

Happy Valentines Day Everyone!! Miss you guys!
Jodi Lucast <jodilucast@edinarealty.com>
Elko, mn usa - Tuesday, February 14, 2006 11:35 AM CST

Happy Valentines Day Miss Riley!!!

Auntie Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Tuesday, February 14, 2006 8:35 AM CST

Hey Riley Smiley!!
Uncle Lan and Auntie Moe just wanted you to know we think of you often and love you lots. You are getting so big and so pretty(just like your auntie moe).
Love ya.
Monique <mnguyen0618@hotmail.com>
- Thursday, February 9, 2006 10:24 PM CST

Love Zachary, Caitlin & Joseph
Elizabeth <michael_shipley@bellsouth.net>
- Wednesday, February 8, 2006 11:48 PM CST

Hello again,
It has been awhile since I checked in to catch up on Riley. But Bazel keeps us quite busy. We find it so easy to relate to what you are going through as Lowe's Syndrome is so much the same and equally as rare (only Lowe's is boys only). We have been so lucky to find a Lowe's Syndrome reseach doctor at the University of Minnesota. We were just there on Monday and he says Bazel is doing good. Our prayers are with you.
Karen Denne <kdenne2@netzero.com>
Keewatin, MN USA - Wednesday, February 8, 2006 1:09 PM CST

Hi,
I am so glad to hear that you are doing well. That is so awesome about your talking about Riley. You must be so excited. Hope Aaron gets something figured out with his shoulder. It's no fun to have something like that floating around. Hope we can see you soon!
Love, hugs, and blessings,
Sami <samibabi@hickorytech.net>
Mankato, Minnesota United States - Sunday, February 5, 2006 7:40 AM CST

I finally updated Aleia's page. Hope you have time to stop by and see it. Hope Aaron gets something figured out with his arm, that stinks. If I can help in any way please let me know. Maybe we could organize a fund raiser for your family, then you could use the money when he has surgery and can't work? If interested have your Mom, Sister, Best friend call me so we can get something figured out. I would LOVE to help. Tomorrow we find out about our Habitat for Humanities home. I am so excited. I will let you know what I find out. Oh, I also was hoping you could e-mail me your phone number. I can't seem to find it any where! Sorry!

Sending you tons of hugs and kisses and I want you to know I pray for you and your Beautiful Girl Friends every day.

Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmontq, MN - Wednesday, February 1, 2006 10:12 PM CST

Always thinking about you!!!!
Elizabeth <michael_shipley@bellsouth.net>
- Wednesday, February 1, 2006 8:38 PM CST

WE LOVE YOU!!!!!

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Monday, January 30, 2006 11:04 PM CST
Hey guys,
Thanks for the guestbook message. I'm doing okay and feeling better. Praying for you always.
Love, hugs, and blessings,
Sami
Sami www.caringbridge.org/visit/samibabi <sweetgirl4419@yahoo.com>
Mankato, Minnesota United States - Friday, January 27, 2006 12:20 AM CST
Hi Nikki- well it has sure been a while since i have seen or talked to you. I talked to Brit last night and she told me about your little girl Riley. I am very sorry but from the sounds of it you guys are in very good spirits and i am glad to hear that. Just wanted to say hello and i will keep you all in my thoughts and prayers. Continue to stay strong. She is a very beutiful little girl.
Jessica Waara <jjwaara@yahoo.com>
hibbing, mn usa - Friday, January 27, 2006 12:16 AM CST
Riley just coming by to tell you that you have so many people that Love and care for you in Florida!!!!!

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Thursday, January 26, 2006 10:55 PM CST
Dear Nik, Aaron and Miss Riley,
Your story brought tears to my eyes, but the pictures brought a smile to my face. My little granddaughter is the cutest little pumpkin in the world-sorry to all you other grandmas out there-but she is!!!!

All our love-Grandma and Grandpa

Grandma Laura <lignell@uslink.net>
Hibbing, MN USA - Wednesday, January 25, 2006 10:10 AM CST
Hi everyone!
Wow, things are getting really hard for me right now...I'll e-mail you to let you know why after a bit. It might be a while. Anyway, I am so happy for that sweet girl Kim..she seems like a wonderful girl. I miss Riley..didn't get to hold her very much the time I saw her. We definitley need to get together soon! Last time I saw Aleia she was doing really good. Hope to hear from you guys soon!
Love you guys!
Hugs, and blessings,
Sami
Sami www.caringbridge.org/visit/samibabi <samibabi@hickorytech.net>
Mankato, Minnesota United States - Monday, January 23, 2006 4:34 PM CST
Hi guys!
Riley you are such a little cutie!!!! I can't wait to see you again, hopefully soon! That's awesome that you almost smiled. I am so happy for you sweetie. Nikki, e-mail me sometime. Hope to talk to you later.
Love, hugs, and blessings,
Sami
Sami www.caringbridge.org/visit/samibabi <samibabi@hickorytech.net>
Mankato, Minnesota United States - Friday, January 20, 2006 11:28 AM CST
Aaron, Nikki and Riley: What an awesome website. I am sorry it took me so long to finally get to it. It was great to be a part of the visit today to see, once again, the adorable young lady! I hope tomorrow goes as well too.
Fran <flwood@frontiernet.net>
Lakeville, MN USA - Thursday, January 19, 2006 7:24 PM CST

Hi everyone,
I hope you are doing well. I am doing as well as can be expected. Praying for you and Riley, also Hannah's family. Nothing in the world is worse than losing a child. I have seen too many people go through it. Thanks for visiting my page. I miss you guys and hope to see you soon!
Sami<samibabi@hickorytech.net>
Mankato, Minnesota United States - Sunday, January 15, 2006 4:52 PM CST

Sorry to hear you are feeling so terrible. I hope the Doctors can get you something to clear up your cough, sore throat and yucky feeling. No fun being sick!

I am sorry to hear about your friend Hanna. We will pray for her family. It must be so hard to lose a child. No words in the world could ever describe the feeling. If you talk to the family please let them know there are people praying for them!

I promise to update Aleia's page soon. Sorry I am so sluggish at it lately. Love and hugs to you all.

Rhonda, Kelvin, Drew & Aleia<rhondadettmer@charter.net>
Fairmont, MN - Thursday, January 12, 2006 9:13 AM CST
Hi Sweetie!
I am praying for you so much. I can't believe you are so sick. God will heal you as he sees fit. Sorry also to hear about your dear Aicardi sister. It is so hard to see that a friend earned their angel wings. Please pray for my friend Skye, I have a feeling she will be earning her wings soon as well. I miss you guys so much and I wish I could be there for you to help with Riley. Hope to see you soon, or hear from you. Call if you need me, I am only a phone call away. I love you guys!
Love, hugs, and blessings,
Sami<samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, January 11, 2006 3:26 PM CST
Dearest Riley I come by your page at least once a day. I do not always sign your book but I wanted to let you know that we think of you all the time. Everytime that we talk to your daddy on the phone we always ask him how you are doing. We all love you very much and pray everyday for you. You have such a great mommy and daddy. We love all the pictures that Mommy puts on your site. I will check in again real soon for an update. Tell mommy and daddy to give you a kiss from your big brother Zachary and big sister Caitlin.

Elizabeth <michael_shipley@bellsouth.net>
- Monday, January 9, 2006 9:03 PM CST
HI!
I am sooo happy that Riley is not having so many seizures! Praise the Lord!!! E-mail me soon, I miss you guys. Hope to see you soon!
Love you,
Sami
Sami www.caringbridge.org/visit/samibabi <samibabi@hickorytech.net>
Mankato, Minnesota United States - Monday, January 9, 2006 4:28 PM CST
I am so sorry Riley has had a rough day, stay strong (easy for me to say huh?) and know that you have thoughts and prayers coming your way.
Jill Cufley
Chino, Ca usa - Thursday, January 5, 2006 9:45 PM CST

Hi Everyone!
I hope you have a wonderful 2006!!! I have seen so many parents go through all of the ups and downs of having a child with special needs. There are also many when it comes to being a friend of these children too. However, I thank God every day that I have Riley, Aleia, Ashley, Joe Joe, and Callaway in my life. Speaking of which, guess what? On the cover of the Epilepsy Foundation Newsletter I saw a picture of Chris and Callaway! It's pretty neat. Anyway, I hope you have a wonderful and blessed 2006. Hope to see you soon.

Love, hugs, and blessings,
Sami<samibabi@hickorytech.net>
Mankato, Minnesota United States - Tuesday, January 3, 2006 6:10 PM CST

Happy New Year you Little cutie!! Oh, almost for got Mom and Dad too. Happy New Year.

We made it another year through the ups and downs of having a child with Special Needs. I know you can understand how I feel sometimes. When things are down and out I feel like the Planet is sitting on my shoulders. I am trying to carry it uphill in a strong wind. Then when things are going oh so good, the weight is lifted off, I look into Aleia's eyes, cry outloud and thank God for giving me such an angel to share my life with. I would carry the planet everyday of my life for her.

The bad days are getting fewer and fewer for Aleia and I couldn't be happier. Her quality of life is also getting better. She climbed up to the table last week and grabbed some crackers and started feeding them to herself. She hasn't fed herself since December 2002. It was so amazing that my older kids called me at work to tell me and I told them to video tape it just in case it was a one time deal.

Sorry I haven't signed your guestbook for so long. Everything just seems so busy. I don't have much computer time outside of work. I promise to update Aleia's page and try to sign your guestbook EVERY time I visit.

Love and hugs to you all.

Rhonda, Kelvin, Drew & Aleia<rhondadettmer@charter.net>
Fairmont, MN - Monday, January 2, 2006 4:03 PM CST
HAPPY 2006 EVERYONE!!!
I am very blessed by God to call you my friends. Hoping to see you soon! I miss you guys! Please call or e-mail me sometime. Thanks for your support and signing my guestbook! Love you guys!
Love, hugs, and blessings,
Sami<samibabi@hickorytech.net>
Mankato, Minnesota United States - Monday, January 2, 2006 1:27 PM CST
Hi Guys! Wanted to wish you Happy New Year, I hope you had a fantastic Christmas. I wish I could have made it down for Riley's big birthday party - I can't believe she has turned ONE already! HAPPY BIRTHDAY HONEY!!!!! Riley, we have a little gift for you and one for mom too, so let's get together soon! I miss you, miss you, miss you. You 3 are always in my thoughts. Love you.
Candie <candace.rindels@ecolab.com>
Forest Lake, MN 55025 - Thursday, December 29, 2005 8:32 AM CST
I'm so proud of you Riley! 1 year old!! You're holding your head up and doing therapy so well!! It's great to see. Hopefully we can all get together after the holidays, I'm bringing my camera next time! Can't believe I forgot it! AHH Anyway, Merry Christmas.

Love, hugs, and blessings,
Sami<samibabi@hickorytech.net>
Mankato, Minneosta United States - Saturday, December 24, 2005 12:30 AM CST
Hello there guys.. Wishing everyone a very Merry Christmas and a great New Year.. of course you know that Riley is beautiful as ever!! and Happy Happy Birthday to you!! We both got a year older together that day baby.. I cant wait till the time I see you.. I love you baby girl.. your aunty in Texas.. Dani
Dani <nikki_dncr@yahoo.com>
Abilene, Tx USA - Saturday, December 24, 2005 9:10 AM CST

I love the picturez! Just can't get enough of that beautiful face!!! Hope we can get together soon. Have a MERRY CHRISTMAS!!!
Love, hugs, and blessings,
Sami<samibabi@hickorytech.net>
Mankato, Minneosta United States - Friday, December 23, 2005 5:03 PM CST
What a beautiful baby! You two are doing such a great job with that little one. It's amazing that this year has passed so quickly and Riley has grown so much through all your love and care. I have so enjoyed visiting Riley's page this past year and watching her grow. (Nikki, you have a wonderful gift in your ability to put your thoughts into words.) Glad to hear her birthday was so happy. Have a blessed Christmas and a great New Year! Hug Riley for us.
Patty Schroetter <pschroetter@hotmail.com>
- Wednesday, December 21, 2005 10:57 PM CST

Sami<samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, December 21, 2005 10:06 PM CST
Looks like a dream birthday party. I am so happy it all turned out for the better. Riley is such a precious girl! Hope to see you all soon! Happy holidays!
Love, hugs, and blessings,
Sami
www.caringbridge.org/visit/samibabi <samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, December 21, 2005 8:04 AM CST
HAPPY BIRTHDAY TO PRECIOUS RILEY. I WILL BE SO GLAD TO HOLD HER SOME DAY, BUT UNTIL THEN, I SEND LOVE AND PRAYERS. MERRY CHRISTMAS, AND A GLORIOUS NEW YEAR!...MOM
CHARLA FOWLER <imacharla@yahoo.com>
ABILENE, TX 79603 - Wednesday, December 21, 2005 1:47 AM CST
HAPPY BIRTHDAY RILEY!! Wow, 1 year old already. You sure are a beautiful little girl. I'm sure Grandma Laura has her fingers in the cake already. Hello to Nikki and Aaron, what wonderful parents you are! Have a Merry Christmas and a Happy New Year. I'm looking forward to the birthday pictures. Peace and love be with you. Judy Zaitz

Judy Zaitz <tzaitz@rangebroadband.com>
Hibbing, MN USA - Tuesday, December 20, 2005 5:54 PM CST

Sorry I haven't signed in so long. I have been dealing with the death of my Father-In-Law. It has been hard but I have comfort knowing I could be with him during his transition from his physical body to his Spirit/Soul Body. He struggled with cancer for two years. Christmas will be hard especially for the kids but we have lots of love that will help heal our broken hearts.

I am so proud of you and want to wish you a HAPPY HAPPY FIRST BIRTHDAY. Any first Birthday is a milestone but it is an especially SPECIAL one for you. You go girl!!

I really love the new pictures Mom posted. You are getting so big! Hoping we can get together sometime soon. We are all sending you lots of love and hugs.

Rhonda, Kelvin, Drew & Aleia<Rhondadettmer@charter.net>
Fairmont, MN - Tuesday, December 20, 2005 9:11 AM CST

Auntie Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Tuesday, December 20, 2005 9:09 AM CST

Love, hugs, and blessings,

Sami<samibabi@hickorytech.net>
Mankato, Minnesota United States - Monday, December 19, 2005 9:35 PM CST
Dear Riley,
I am sending you a BIG HAPPY BIRTHDAY. You are a beautiful little girl. Enjoy your day. XOXOXO. Mom and Dad you have done a wonderful job taking care of Riley this first of many years for Riley. You are to be commended.
Love to all! Judy Olson
Judy Olson <juga@rangebroadband.com>
Hibbing, MN 55746 - Sunday, December 18, 2005 9:02 PM CST

Happy Birthday Riley! I can't beleive how big you're getting..didn't I just see you about a month ago? lol I hope you have a great birthday and a great holiday Riley, Nikki, and Aaron!
Love, hugs, and blessings to you all!
Sami<samibabi@hickorytech.net>
Mankato, Minnesota United States - Saturday, December 17, 2005 9:46 PM CST
Hey guys...this is Allison Kohaut (Joe Kohauts' wife, from Buca)I have finally made it to your website! What a great job you are doing. Riley is so beautiful, its hard to even imagine such a pretty girl is going through so much. She has the most gorgeous eye color and the greatest lips!! I don't know what I was expecting, but certainly not her sweet little face! As I had told Aaron, my goddaughter, Kristina, was born with DandyWalker syndrome, and in reading Rileys' symptoms, the two sounded alot alike. But not even close. Your daughter is doing much better than my little Kristina ever could do. In the grand scheme of blessings, count yourself lucky! It brings me back years, to life with Kristina, when I see all your wonderful photos. The turn your life takes with a special needs child is scary and wonderful at the same time. You can never know how many awesome people will be put in your life now. Maybe its not the life you wanted, but its the gift you got! My goddaughter gave us so much, she'll just never know, and I felt her touch me, she woke me from a sound sleep,to say 'good-bye', when she went. That's when I truly knew heaven was there. Anyway, I just wanted to say hello and tell you how beautiful little Riley is!! You are such awesome parents, the love coming from your pages is so strong!! Keep up the good work and remember you are never alone. There will be days....trust me, I know, I have 4 kids!...but there is nothing you can't do!!
Take care and thank you for this website...to meet Riley and to remember my little Kristina.
Allison Kohaut and family (from Buca)
The Kohaut Family <mnalleykat@msn.com>
Burnsville, Mn - Wednesday, December 14, 2005 8:46 AM CST
Hi guys!
Nikki, I can understand how you feel. please remember that even though she may not be able to show it..riley loves you. you are the best parents she could ask for. please..if u need anything e-mail me. ok?
Love, hugs, and blesssings,
Sami www.caringbridge.org/visit/samibabi <samibabi@hickorytech.net>
Mankato, Minnesota United States - Tuesday, December 13, 2005 5:41 PM CST
Hi Guys hope all is well at your home!! We should start marketing the blankets again!! take care and give Riley a big hug from me.
Jodi Lucast <jodilucast@edinarealty.com>
Elko, MN USA - Monday, December 12, 2005 6:01 PM CST
Nikki and Aaron, Riley is cute as a button!
Toni Peck <antoinette.peck@courts.state.mn.us>
- Thursday, December 8, 2005 10:36 AM CST

Hi guys!
I'm soo happy to hear that Riley is feeling better! Yeah! E-mail me if you feel like it... Praying for you always!
Love, hugs, and blessings
Sami<samibabi@hickorytech.net>
Mankato, MN United States - Wednesday, December 7, 2005 4:45 PM CST

Hope all you have is just a cold. It is going around and Aleia has been sick too. Last Friday I took her to the ER because she had this gooey green pussy stuff coming out of her left ear, she has an outer ear infection. YUCK!! Actually last week I was into the ER three times within 5 days. First Aleia for her ear infection, then Drew fell on the wet floor Kelvin was moping and ended up with 4 stitches. Then Kelvin came home Monday from wrestling in tears because he hurt his foot. No broken bones but he sprained the arch of his foot really bad. OUCH! I joked with Dr. Toso in ER. "Three kids, Three visits to ER in one week. Good thing I only have three kids!" He just laughed at me. I will pray for you to get better. Love and hugs to you and Mom and Dad.

Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Sunday, December 4, 2005 9:30 PM CST

Hi guys,
Sorry to hear that Miss Riley has been sick, that's just no fun! You don't think she got it from me do you? I would feel sooo bad if she did. Thanks for the information on Aicardi Syndrome, it's really interesting. But to me, the disorder seems mysterious. There are so many things we don't know yet. Wow...Anyway, glad to hear that Riley is enjoying her time with her aunties. And, don't worry about Riley, she's a fighter and a tough little girl. Praying for you always!

Love, hugs, and blessings
Sami

Sami <samibabi@hickorytech.net>
Mankato, MN United States - Saturday, December 3, 2005 10:36 AM CST
The pictures from the holiday and birthday are great. Your mom and dad win the prize I think - well, maybe Hayley and Jerry are a close second! It was great to see you at Thanksgiving, just sorry that Riley was sleeping - I would love to cuddle her again. She is getting so big, and just think - almose 1 year old. Take good care of that little princess and give her hugs and kisses from me.
Grandma Judie
Judie <tomjudie@rangebroadband.com>
Hibbing, MN USA - Wednesday, November 30, 2005 8:35 PM CST
I hope all is well with you? It was very nice to meet you. If you don't remember us we are the one who had the little boy you were holding. (At the Shining star day at the Mall Of America) He was the one who was born at 28 weeks at 1lb. 15oz. his name is Joe Joe Bee. I hope all is well with Riley Nicolle she is such a Sweetheart. It was nice to meet another mother who is going thru some of the same things that we are. I look forward to keeping in touch with you and if you ever need some one to talk to or just vent you feel free to call day or night at (320) 202-0726 or e-mail. I look forward to the next time we meet. Take Care of yourself. Talk to you soon. Your Friend,
Jennifer
Chris,Jennifer,Callaway,Joesph,Michael/Venne <candjauto@astound.net>
St. Cloud, MN U.S.A. - Tuesday, November 29, 2005 6:02 PM CST
The pictues are so nice to look at... Almost a year old now. Big First Birthday party.... Take lots of pictures so we can all see. Love and Prayers from my family to yours
Cory <blushing@uslink.net>
Grand Rapids, MN - Monday, November 28, 2005 8:16 PM CST
we love all the pictures!! we are so glad you had a great Thanksgiving and are ok after the deer!!I hope you had a great birthday!! 30!! we only get better with time!! we can't wait to see you all soon!!Taylor wants riley to know she is "my friend" and I love her!!! We love you all and will talk to you soon!!!Sorry I missed the party I would have loved to been there. It looked like a great time!!
Amy Gasswint <rugby5@charter.net>
- Monday, November 28, 2005 2:05 PM CST
You are so cute!! We hope to meet you sometime. Your family is so proud of you and you are a very blessed girl to have such wonderful grandparents, aunties, cousins and friends!! HAPPY 30th Nikki!! Your one of the early ones to turn 30. Take care and HAPPY HOLIDAYS!! Never take life for granted!!
Jennifer, Jon, and Jake Myre <innermarie@hotmail.com>
Tucson, AZ United States - Monday, November 28, 2005 10:43 AM CST
Wonderful pictures! At least your daughter doesn't get "stuck" in your camera like my kids do! I still think she looks like Mama! I am happy to hear of your safety in the accident, and I will continue praying for all of you!
Anita Mendonsa (Schumacher) <ajmend@paulbunyan.net>
Cohasset, MN USA - Monday, November 28, 2005 10:35 AM CST
Wow, That deer really did a number on your car. I could hardly breath when you said the glass shattered. That can be really dangerous. Thank the Good Lord above it didn't get into Riley's eyes and mouth. Bad enough for it to happen to you but horrible to happen to a child. Especially since she wouldn't know better not to rub her face and eyes. Sorry to hear you got cut up but thanking God no one was seriously hurt.

The party looks like a blast! Happy Birthday Nikki!

Your friends and family really pulled off a good one. Would be fun to see how high I could still rat my bangs. Whip out the ole curling iron and duck tail the back of my hair, get out the leg warmers, blue eye shadow and eye liner and my little mini skirt and sweatshirt that I cut the neck bigger and cut off the sleeves. YEAH! I was an 80's child. Still have the blood in me to. Nothing better then cruising with your friends in your suped up 69 Camero with your bangs hitting the roof.

Glad to hear you had a nice Thanksgiving. We did too. Visited my sister on Thursday and went back to the VA hospital on Friday to visit Grandpa Derry. Got stuck behind a huge accident so traffic was stopped or less then 5mph for almost an hour but we got there safe. Saw about 20-30 cars in the ditch. Yikes, amazes me how people forget how to drive each year when we get our first couple snowfalls.

Hope to hear from you soon and have a wonderful week free of seizures, (and DEER).

HUGS

Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Sunday, November 27, 2005 11:29 PM CST
Sleeping Beauty!!

Auntie Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Sunday, November 27, 2005 10:31 PM CST
Hi guys!
Great to hear you had such a wonderful holiday! But, your story about the car accident scares me to death!!! I hope you guys are alright. I'm glad you weren't hurt worse. My Thanksgiving was pretty good. I hope yours was as well. No scary seizures Riley!
Love, hugs, and blessings,
Sami
Sami <samibabi@hickorytech.net>
Mankato, MN United States - Sunday, November 27, 2005 6:43 PM CST

Hi guys!
Sorry for the lack of text in the last entry, I was in a real big hurry and forgot a lot of things! It was great meeting you last week, from just talking to you I can tell that you are great people and you really love Riley.

Riley,
You are such a cutie! Chubby too, but that's a good thing. I was so happy to meet you, but sorry I couldn't have talked with you longer! And, sorry I had a cold because then I could have held you and played with you more. I can tell we're going to be really good friends! Thanks for your support and remember, if you ever need someone, I'm here! Please continue e-mailing and hopefully we'll see each other soon! Praying for you guys, and no SCARY SEIZURES Riley!
Love, hugs, and blessings,
Sami
Sami <samibabi@hickorytech.net>
Mankato, Mn United States - Saturday, November 26, 2005 3:55 PM CST

Aaron Nikki and Riley...... Have a wonderful Holiday!!!!!
Elizabeth, keith, Zachary, Caitlin, & Joseph <michael_shipley@bellsouth.net>
- Wednesday, November 23, 2005 11:41 PM CST

Hi
Praying for no seizures.
Nice to have met you guys. Hope to see you soon. Praying for you as well. I will write another message soon.
Love and blessings,
Sami
Sami <samibabi@hickortyech.net>
Mankato, MN United States - Wednesday, November 23, 2005 4:26 PM CST
This graphic is for Mom and Me. Only a woman with a child/children can appreciate it!

Riley, you have the BEST PARENTS! Mom and Dad love you soooo much. We had the opportunity to meet for only a few short hours but I can tell your parents would do anything for you. They are funny, happy, loving, caring, and optomistic.

There is nothing better in the world then having family and good friends. I know that I will continue to be a good friend to your family. Even if we only talk once in a while and see each other once a year, sometimes those can be the best friends. We have so much in common and I know if I had a bad day I could call your Mom and Dad and they would give me a shoulder to cry on or an ear to just listen. And I hope they know I will do the same. Thats what good friends do.

I am proud of you for talking about Riley's syndrome to others. The knowledge you can give others can be priceless.

I hope you have a wonderful Thanksgiving. Even if it goes to our thighs, eat lots of turkey, stuffing, potatoes, corn and pie. YUMMY!!!
Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Wednesday, November 23, 2005 8:11 AM CST
HI KIDS:
OF COURSE YOU KNOW I COME TO THIS PAGE EVERY DAY AND OOH AND AHH OVER ALL THE PICTURES. SHE IS A WONDERFUL BABY, AND YOU ARE THE BEST PARENTS AND FAMILY IN THE WORLD. LOVE YOU ALL SO MUCH...MOM
MAMMA CHARLA <imacharla@yahoo.com>
ABILENE, TEXAS USA - Tuesday, November 22, 2005 11:58 PM CST
Happy Thanksgiving!
I hope you are all strong and well. Riley is getting prettier everyday!
Brandon is spending Thanksgiving in Eden with Heather, Brian, and his Mimi. I hope to see him at Christmas.
Take care! Love, Nellie

Nellie Glover <nglover@austinisd.org>
Round Rock, TX USA - Tuesday, November 22, 2005 3:02 PM CST
Hey, Looks like Mom is getting really good at making your site really pretty. YEAH MOM! Love the new pictures!! Riley you are soooo DARN cute!! Not sure if Mom got my e-mail that we are going to be at Camp Snoopy tomorrow Sunday November 20th from Noon - 7pm. We are celebrating with the other special Shining Stars in the area with epilepsy. We are hoping to have a really good time. If you aren't busy, maybe you could come on over we can finally meet. It would be great! Hope to see you, if not, we will figure it out another time. Love and hugs to you all!

Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Saturday, November 19, 2005 9:47 PM CST

Hope you have a Wonderful Thanksgiving. Sending Prayers for all our new friends on Caring Bridge, enjoy family, friends, good health, love, good food and safe travel for the Holiday Season.

Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Tuesday, November 15, 2005 12:36 AM CST
I hopr you get better and we all hope you are going to be okay.
Tarah <nikki_dncr@yahoo.com>
abilene, Texas USA - Saturday, November 12, 2005 7:07 PM CST
Riley I love you with all my heart.I hope you get better,and we all pray for you everyday!Everyday we come to your site and look at your butifull Pictures each morning,and as I said we hope you get better.
Marina(niece) <nikki_dncr@yahoo.com>
Abilene, TX USA - Wednesday, November 9, 2005 8:01 PM CST
Dearest Riley we came by to see how you are doing. Zack and Kate talk about you all the time. I hope one day you will all get to meet one another. We all think of you often and pray for you everyday. We love the pics you are such a beautiful little girl.
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, November 8, 2005 11:43 PM CST
Hi all! I didn't know Riley had her own HUGE website! I love the lion costume! SO cute!
I enjoyed reading and viewing the pictures.
Take care,
Stephanie, mom to Leah, AS, 10.5 months
Stephanie Hagedorn <andysteph1@fuse.net>
- Monday, November 7, 2005 9:52 PM CST
Hello to all from the frozen tundra.Riley you are the most beautiful pumpkin i have ever seen.I received your beautiful card today.I love you lots and lots.hope to see you soon.
grandpa Tom <mahf@2z.net>
Hibbing, MN. U.S.A. - Friday, November 4, 2005 7:04 PM CST
Riley,
Your Grandma Laura is so proud of you! I barely said the words "baby pictures" and she had them for me to see! You are so beautiful! Grandma Laura filled me in on your life. You are so lucky to have Nikki for a mom (and I'm sure your daddy is wonderful too!), just as they are lucky to have someone so precious in their life too.
Gail Carlson <gacpchef@hotmail.com>
Hibbing, MN - Sunday, October 30, 2005 6:56 PM CST
Have a safe and wonderful Halloween!!!!!

Elizabeth <michael_shipley@bellsouth.net>
- Saturday, October 29, 2005 10:50 PM CDT
Riley,
Your dad and I are so absolutely proud of all that you have accomplished! You are the strongest little girl that we know and each day you amaze us even more. You are the light in our lives and we are so thankful to have you with us each and every minute of each and every day...

Mommy and Daddy <aaronandnikki@charter.net>
- Friday, October 28, 2005 2:07 PM CDT
Dear Riley,
I finally had to get after your mom to post a few of the millions of pictures your parents have taken of you. It was a tough job, but I had to do it for my little grandaughter. When anyone asks about you they automatically get a presentation with pictures-so you can see why I needed new ones. Take care my little munchkin!!!
Love Grandma Laura
Grandma Lignell <lignell@uslink.net>
Hibbing, MN - Thursday, October 27, 2005 8:55 PM CDT
Dear Riley,
I finally had to get after your mom to post a few of the millions of pictures your parents have taken of you. It was a tough job, but I had to do it for my little grandaughter. When anyone asks about you they automatically get a presentation with pictures-so you can see why I needed new ones. Take care my little munchkin!!!
Love Grandma Laura
Grandma Lignell <lignell@uslink.net>
Hibbing, MN - Thursday, October 27, 2005 8:54 PM CDT
Dear Riley, Nik and Aaron,
The last set of pictures were so great!!! Why, we(Grandpa and I) even had to take a trip down to see that little munchkin. She is progressing so beautifully----and that has a lot to do with wonderful, attentive and caring parents!!! I am so proud of you both---I couldn't have chosen two better people to take care of my granddaughter-You make me proud!
Love Grandma Laura
Grandma Lignell <lignell@uslink.net>
- Tuesday, October 25, 2005 4:08 PM CDT
I just read the e-mail your Mom sent me about how much you had to chatter about today. I am so proud of you!! She also tells me you sat in your chair like a big girl for 15 minutes, wow, those Therapist must be giving you quit the workout. Before long you'll be cruizin the hallways. You go girl!! I also know that your Mom is pretty excited about how happy and chattery you were today. You keep it up, it is nice when Mom's can get so excited about the progress our children are making. Much better to have a wonderful day to talk about then a bad day.

I see your Mom is also busy making blankets. They look very nice. I don't think I could sew a straight line if my life depended on it. How does Mom find time to be so crafty? Nikki, you should decide on some sizes and prices and offer them for sale and use the money you make for medical expenses and to buy Riley things she needs. Just an idea, something to think about.

Anyway, I know what you mean when you talk about teething. Aleia has been working on her darn molars for a month now and they just won't come through. It stinks because now it caused an ear infection and a lot more seizures. 5 GTC seizures in 6 days. Pretty much stinks but what can I do about it. We got her on antibiotic and are hoping it kicks in really quick.

Did you get my e-mai responding to your questions on Lyrica? If not let me know and I will send another e-mail. I love to help as much as I can when it is something I know about or Aleia has tried/used.

Well better go before this is an entire novel. Love and hugs to you always.

Rhonda, Kelvin, Drew & Aleia <Rhondadettmer@charter.net>
Fairmont, MN - Monday, October 17, 2005 10:25 PM CDT
Hello Princess Riley I can not believe how big you are getting. When I look at you I see your sister Caitlin all the time. Which means that you are so beautiful. We think of you all the time and We all hope that one day we will have the honor of meeting you. I have to say that it is really cool to have such a large extended family. Zachary and Caitlin talk about you like you are in the next room. I will have to see about them coming there over the summer so they can see you and Mommy and Daddy they really miss Them to. Joseph sends big hugs and wants you to say extra prayers that his surgery goes well. We love you and we will check in on you again real soon. Nikki I love the blankets that you make you are wonderful in so many ways. Aaron we all hope that you get to feeling better real soon. Know that the kids love you much. Take care

Elizabeth and Family <michael_shipley@bellsouth.net>
- Monday, October 17, 2005 11:07 AM CDT

I had to stop by today to say hello and check to see how you were doing. You look like Gods Precious little Angel sleeping. I love that picture. Actually I love all the pictures of you. You have a knack for being photogenic. Gonna be the Princess of your town someday. I know you are already the Princess of your household. That's a very important title to hold. Aleia has the same title at our house and sometimes wins the "Little stinker" award too. Like yesterday when she kept tipping over her toy shelf and dumping all the toys on the floor. I got exhaused picking them up so I finally decided she can have them all over the floor. She didn't like that but she wasn't willing to help pick them up either. Her next appointment in St. Paul is in December. Maybe we can make arrangements to finally meet. That would be so wonderful. I will e-mail your Mom and Dad when the day gets closer. Take care and be a good little girl. Hugs and Kisses from the Dettmer's.
Rhonda, Kelvin, Drew & Aleia <Rhondadettmer@charter.net>
Fairmont, MN - Wednesday, October 5, 2005 9:03 AM CDT

The sweater your Grandma made is ALMOST as beautiful as you are. You have a wonderful Grandma that loves you very much. Have a nice weekend. Thinking of you always. Hope you like Barney. He is Aleia's Favorite!
Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Friday, September 30, 2005 10:19 AM CDT
You personalized her helmet. I LOVE IT!! It is so perfect for her. She is just the cutiest little girl ever!! I like the chair, glad it is working out for you, tiresome though! You'll get used to it and before long you'll be sitting in there watching the Vikings on Sunday with Mom and Dad. Yeah! Hopefully by then their luck changes a little. Glad to click on your page every day and see such a pretty smile and happy little girl. Keep it up. Love and hugs to You, Mom and Daddy too.

Riley I hope you are feeling o.k. Joseph thinks about you often. He loves having such a big "Family" We will check in on you again real soon.

www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, September 20, 2005 7:12 AM CDT
Great pictures! Thanks for sharing Riley's first day with us!

Sherre
Sherre & Lisa <bhappyhlts@yahoo.com>
Burnsville, MN - Tuesday, September 13, 2005 7:59 PM CDT

Rhonda, Kelvin, Drew & Aleia <Rhondadettmer@charter.net>
Fairmont, MN - Tuesday, September 13, 2005 2:19 PM CDT
Hi again! It's been a very long time since I've written, but I check on you guys almost every day! I continue to be amazed at the strength, courage, and wisdom all three of you have. Your family is an inspiration to us all! I still haven't met any of you, but I feel as though I've watched Riley grow up right in front of me....so THANK YOU! Riley, you are so stinkin' adorable, I could just gobble up those cheeks of yours!!!!! I continue to pray for Riley's health and your continued strength and faith, Nikki and Aaron. Take care...
Love, Shannon (Grandma Laura's friend)
Shannon Nordby <tutter23@hotmail.com>
Hibbing, MN USA - Tuesday, September 13, 2005 8:42 AM CDT
She is sooo cute!! Just dropping by to say Hi!! Can't wait to see pics of the famous "tooth"!! :) Hope you guys are having a good week!
Rachael Jantz <cljantz@yahoo.com>
- Tuesday, September 13, 2005 8:18 AM CDT
Hello, What darling pictures.

I pop in and read your journal and look for new pictures every couple of days. You are always in my prayers.

Karen Denne <kdenne@reptron.com>
Keewatin, MN USA - Monday, September 12, 2005 11:02 AM CDT
You might find that Riley has a really high pain tolerance. It is from the seizure medications. Aleia is 6 1/2 and I have only heard her cry probably 5 times from pain. If she cries I know it must be bad. She used to be on Neurontin for her seizures, this was also prescribed to my Mother for cronic back pain. Believe it or not, Aleia was taking 4 times more then my Mom. So some of the medications she is on might reduce her pain receptors. Good thing for teething but it makes it harder to know when something else is going on.

I am so happy for the first tooth, many more to come. Pretty soon it's goodbye baby food, make room the the steak and potatoes. YUMMY!!

You keep reaching those milestones, I love to read your updates.

Always in my thoughts and prayers!!

Rhonda, Kelvin, Drew & <rhondadettmer@charter.net>
Fairmont, MN - Monday, September 12, 2005 10:17 AM CDT
Congratulations Riley on your new tooth!!! I just came back from a little vacation and the first thing I did when I got to work this morning was read all your entries that I didn't get to read. Sounds like everything is going well right now. I sure hope it continues. Riley is such a beautiful baby!!!! Dionilla
Dionilla <dionilla@rangebroadband.com>
Hibbing, MN USA - Monday, September 12, 2005 9:42 AM CDT
Hi Riley! You are such a cute baby! I hope the seizures stop being so frequent, this is my first visit but I will be sure to come again. My best friends have Epilepsy and Rett Syndrome. Both of them have Epilepsy, and Ashley has Rett Syndrome. www.caringbridge.org/mn/aleia www.caringbridge.org/visit/ashleyrett www.freewebs.com/ashleyrett
Sami <samibabi@hickorytech.net>
Mankato, Mn United States - Sunday, September 11, 2005 1:50 PM CDT
I am so excited to see the little pumpkin's new tooth!!!!Please post pictures soon!!!!
Love Grandma Laura
Laura <lignell@uslink.net>
Hibbing, Mn - Friday, September 9, 2005 4:54 PM CDT
Hey Riley! Just me again, congrats on the new tooth! Lots of love for you & your parents. Always.
Candie <RCRindels1@msn.com>
Forest Lake, MN 55025 - Friday, September 9, 2005 2:11 PM CDT

WELCOME TO THE QUILTS OF LOVE FAMILY ! WE ARE DELIGHTED YOU HAVE JOINED US !
SENDING LOTS OF ANGEL ((HUGS))
MANY BLESSINGS

CHRIS
QUILTS OF LOVE
CHRIS <tuesdays_child@earthlink.net>
Los Angeles, CA USA - Friday, September 9, 2005 0:39 AM CDT
I enjoyed meeting Nikki and seeing Aaron again at Bucca's
Many blessing to all of you.

Jane and Jason Moore
Burnsville, MN - Thursday, September 8, 2005 2:51 PM CDT
You all are the greatest ever she is so blessed to have you as parents! Love you both tons!!
Jodi Lucast <jodilucast@edinarealty.com>
Elko, mn 55020 - Thursday, September 8, 2005 1:10 PM CDT
Hi Nikki,Aaron,and Riley
I check Riley's page everyday and I thought I'd just write a quick HI. I am so amazed by how strong you are. I read all of your entries and you are just the strongest people that I know. You guys are my heroes. I hope to get a chance to see you soon. I can't wait to meet Riley and Aaron and to get some catch up time with Nikki. Take care and God bless you.(I think he already has)
tania <trentsbiggestfan@hotmail.com>
neenah, wi usa - Wednesday, September 7, 2005 9:28 PM CDT
I can understand what your saying when some days you want to talk all day about your child and what makes them special from the rest, then the next day you just want to be left alone and don't even want to think about it. I get that way when Aleia is in the hospital. I dread when the phone rings. That's why I love this site, write it down once and that's that. You don't have to talk about it unless you want to.

I think Riley is so cute with her helmet. Aleia had to wear a soft pink seizure helmet for about 6 months when learning to walk. She has ataxia so bad she was always falling down and hitting her head. I didn't mind taking her in public but your right, you get the look. Any parent with a special child knows "the look". People mean well but I am uncomfortable when they feel sorry for me, or Aleia. God gave Aleia to me because he knows I am the best Mom in the world to handle what she is going through. Just like he trusted you to care for Riley. You are the best Mom and Dad she could have, your gift from God.

I've seen helmets like hers before, kids I've seen on caring bridge. There are ways to decorate it to make it her own unique helmet. I am excited to see what you come up with. Looks like the fitting process is very uncomfortable for kids. Not so much the helmet fitting itself as having to be held down or in a certain position. Most kids hate being restrained. But...now it is done and she looks like a cutie with it on.

I will keep coming back to check on Riley. You are in my thoughts and prayers.

Rhonda, Kelvin, Drew & Aleia <Rhondadettmer@charter.net>
Fairmont, MN - Tuesday, September 6, 2005 2:37 PM CDT
My dearest children,..I look here daily , and see the growth Riley has achieved, how beautiful she is and how very healthy she looks. I hope for the day I get to hold her and tell her things in her ear,Like how much she is loved here in Texas, tho she's never been here in person, and that I talk to God all the time about her. There are many days I look at pictures of her thru tears. I am so in awe of you both for the fine parents you are, and the pictures of you all are a blessing to me. I love you very very much!!
Grandma Charla in Texas <imacharla@yahoo.com>
Abilene, Texas USA - Sunday, August 28, 2005 2:42 AM CDT
Hi Nikki, Riley and Aaron!!!
Although it's been a long time since we've all seen each other, Joe and I reminisce about all the funny and bonding times we had with you in the "buca days". We also pray together for your little family daily. We love and miss you both. Keep in touch!
xoxoxoKrista and Joe Comino
Krista <cakeordeath0@hotmail.com>
Orlando, FL USA - Thursday, August 25, 2005 2:54 PM CDT

Elizabeth <michael_shipley@bellsouth.net>
- Wednesday, August 24, 2005 6:29 AM CDT
She looks so cute in all her new outfits. Seems like by the third change of clothes she wasn't having as much fun as you were. lol Her smile is so precious!! Wondering what her seizure looked like? I might be able to help identify it for you. Aleia has had several different seizure types. Even though I know what they are, it seems every seizure is a little different. Never know quit what to expect. Every time we add or take away one of Aleia's medications her seizures change. I will pray for you that maybe it is just from a bug, or cold and that a new medication doesn't need to be added. Take care!

Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Tuesday, August 23, 2005 2:28 PM CDT
Hi Nikki, Aaron and Riley!
She looks so darn cute in those outfits, girls clothes are waaaaay better than the boys. I would be broke if I had a girl! Just wanted you to know I check on you daily and hope you guys are hangin' in there :)
Love
Jill
Jill Cufley
Chino, Ca USA - Sunday, August 21, 2005 8:56 PM CDT
Dear Riley
I love the pictures that Auntie Carla and your mom took today. I hope they didn't tire you out by doing so many fashion changes. I haven't seen you since the "walk' and I miss you so much. Love Grandma Laura
Laura Lignell <lignell@uslink.net>
Hibbing, MN USA - Sunday, August 21, 2005 3:42 PM CDT
Dear Nikki and Family, I met you at the Stroll for Epilepsy at registration. I have worked at the EFM for about 9 months and am constantly amazed by the courage, determination and hope I see from the families with children affected by epilepsy. I am grateful to have the opportunity to meet such wonderful people. Congratulations on the $4000 raised, please know your contribution will directly support EFM programs and services that educate, connect and empower!
You are amazing!
Stephanie Kolari, EFM Project Coordinator <skolari@efmn.org>
St. Paul, MN USA - Friday, August 19, 2005 8:01 AM CDT
WHAT A GREAT BUNCH OF ENTHUSIASTIC FRIENDS THAT LITTLE GIRL HAS! ! ! ! !
MY FATHER WAS EPILEPTIC AND WHAT A DIFFERENT LIFE HE WOULD HAVE HAD WITH THE ADVANCES THEY HAVE MADE IN THE TREATMENT OF THIS CONDITION. OUR PRAYERS ARE WITH ALL OF YOU AND YOUR FRIENDS. LOVE, UNCLE TOM
TOM ARNOLD <tomjudie@rangebroadband.com>
HIBBING, MN ST LOUIS - Friday, August 19, 2005 7:09 AM CDT
Riley...you are just way too adorable! I love the website your parents have created for you. You are such a beautiful little girl & I know that you are going to continue to amaze everyone around you! Love, Tim, Carrie, Caleigh & your "Aicardi Sister" Macey!
Carrie
Oregon - Thursday, August 18, 2005 11:11 PM CDT
Hey Riley,
You have such loving, wonderful parents and friends. You are a lucky little girl to have been blessed with such love, and your family was blessed with you. I am so proud of the effort put into this cause. All I can say is "Job well done!"
with luv,
Lori (mommy to Nicole,one of your Aicardi sisters (now an Angel)
Lori kenney <pkenney72@sbcglobal.net>
Altadena, CA USA - Thursday, August 18, 2005 7:26 PM CDT
HI NIKKI & AARON
AND OUR SPECIAL RILEY
I SURE WISHED THAT I COULD HAVE BEEN ON THE WALK WITH ALL OF YOU. I JUST SEEN THE PICTURES OF THE WALK AND I SURE ENJOYED SEEING THEM. I JUST GOT BACK FROM TOPS AND THE LADIES GAVE ME SOME MORE MONEY. TOO BAD I DIDN'T GET IT SOONER--- RILEY WOULD HAVE GOTTEN FIRST PLACE. GIVE MY BEST AND HUGS TO HER. I LOVE THAT LITTLE MUNCHKIN
LOVE GREAT GRANDMA MARIAN
GREAT GRANDMA NEWMAN <lignell@uslink.net>
HIBBING , MN USA - Wednesday, August 17, 2005 2:37 PM CDT
Hi Princess Riley! It was so nice to hear your "chatter" tonight! It's so wonderful to hear you making so many new sounds every day. Can't wait to see you tomorrow!!
Auntie Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Wednesday, August 10, 2005 11:50 PM CDT
Dearest Nikki, Aaron and Riley, I am happy to FINALLY have your website! I had it and lost it, and so it goes. I will be more careful. Just want you to know how very much we love all of you, and how super proud we are of all you do. Good luck tomorrow! Have a great time! Much love, Betty(Ooma) Ted (Papa) and Janney
Betty Barker <bettyb2@charter.net>
Duluth, MN U.S> - Wednesday, August 10, 2005 11:40 AM CDT
Riley, I am so excited for you to be getting the stroller and hopefully bath chair. We got Aleia the bath chair after her 41 day stay in the hospital from Encephalitis. When we brought her home she weighed 28 pounds and was very lethargic and weak. It was almost impossible to give her a bath. It took us 3 months to get the bath chair approved through Medical Assistance and shipped to us. By then she was almost stong enough to not even need the chair. I would offer to give you hers because right now she doesn't use it but I know if I did that's about the time she would have a horrible seizure and need it again. Aleia also has a special stroller, I fought for that too. MA denied us three times and finally gave it. I love her stroller (We call it the DMV) Development Mobility Vehicle. Hers is good for a child up to 115 pounds which is nice and it adjusts to fit her ever growing body. It has extra pads and supports we can use for days when she isn't doing very good. It can be front or rear facing and it tilts and reclines. I love this feature because if I know she is going to have a seizure I face her towards me so I can watch her every move. The one draw back to the DMV we have is it's really heavy. Try out the stroller before you buy it. Make sure the height is right, it folds to fit into your vehicle, you can lift it etc...Most places that sell these should have a stroller for you to physically look at, walk around with and put Riley into to see if you like it.

Sounds like you are wearing Mom out. Do you have Nursing that comes in to help Mom out during the day? Any kind of respite? If not you need to check into it. I would be insane if I didn't have some help with Aleia.

I think of you often! Hopefully some day soon we can meet.

Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Monday, August 8, 2005 9:11 AM CDT

Rhonda, Kelvin, Drew & <rhondadettmer@charter.net>
Fairmont, MN - Thursday, August 4, 2005 10:24 AM CDT
Hi Riley just dropping by to say Hello and that we wish we could be there to do the walk with your mommy and daddy. We think about you all the time and just want you to know that we all are snding you lots of hugs and kisses. You be a good girl for your mommy and we will visit your page real soon.

p.s. Caitlin wants me to tell you that she is starting kindergaden in 5 days. And she loves you so much.

Elizabeth, Keith, Zachary, Caitlin, and Joseph <michael_shipley@bellsouth.net>
Deltona, Fl Usa - Wednesday, August 3, 2005 8:39 AM CDT
Hi Riley, I haven't seen you in awhile. I wanted you to know that my family is thinking about you, missing you and keeping you in our prayers. We got your cute little picture in the mail ~ so sweet. Know that I love you.
Candie <RCRindels1@msn.com>
Forest Lake, MN 55025 - Tuesday, August 2, 2005 11:45 AM CDT
Riley Smiley,
Uncle Lan and I enjoy our time cuddling and hanging out with you. We are enjoying watching you grow into the most beautiful baby. We cannot wait to walk with you for the Stroll for Epilepsy.
Love you,
Auntie Moe & Uncle Lan
Monique <mnguyen0618@hotmail.com>
- Sunday, July 31, 2005 10:53 PM CDT

Riley - You are such a little cutie! Your Mom signed Aleia's guest book, that is how I found you. I am glad to meet you. My daughter also has seizures. Hers started when she was 3 months old. When she was 10 months old her shortest seizures were 10 minutes long. Her average was 30 minutes. She usually has GTC seizures followed by Complex Partial but used to have Drop Seizures and Simple Complex Seizures. I know what your parents are going through. Aleia has slept every night of her life in my bed with me. I fear something will happen to her and I won't be there to help her. I don't let her out of my sight when I am home and when I am at work, she is cared for by a LPN. At home when I have to shower, use the toilet or cook supper my two children Kelvin and Drew are on "Seizure Patrol" as we call it.

Aleia's Neurologist is Dr. Ritter at the Minnesota Epilepsy Group in St. Paul Minnesota. He is amazing. I don't know who you go to but I highly recommend Dr. Ritter. Aleia has been on at least 12 different seizure medications, the Keto-Genic Diet etc...with no seizure control. Some make the seizures shorter, less frequent but has never been seizure free. She has a GTC at least once a week now but recovers very quickly thanks to the VNS she had placed in April.

Maybe some day we can meet each other. It would be fun to know someone with similar problems and have a support person to call when things seem out of control.

I will keep you in my thoughts and prayers.

Rhonda, Kelvin, Drew & Aleia <rhondadettmer@charter.net>
Fairmont, MN - Friday, July 29, 2005 9:27 AM CDT
Hi! I really have been meaning to write and have been so busy!!! I love the pics of Riley. She is such a beauty!! Things are fine here...I just wanted to touch base. Talk to you soon!
Rachael
Rachael Jantz <cljantz@yahoo.com>
- Saturday, July 16, 2005 9:42 PM CDT
ok.... we were at 100 degrees by 11am with a high of 106.... thank god we have a pool.... hope you guys were able to stay cool and that she enjoyed the pool, she is such a cutie...

Melissa <angels4hailee@aol.com>
cavecreek, az usa - Friday, July 15, 2005 5:20 PM CDT
Hi Riley just dropping by to tell you that we hope you have a bright and sunny weekend. We love you.

From all of us <michael_shipley@bellsouth.net>
- Friday, July 15, 2005 10:50 AM CDT
Just wanted to stop by and "meet" the new friend of Sophie's. I saw that you had signed her guestbook - thank you! Riley is a beautiful baby. She will certainly be in our nightly prayers.
Meagan & Sophie www.carginbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Thursday, July 14, 2005 12:58 AM CDT
We love and think about the three of you all the time. I continue to pray that god pays extra attention to your beautiful little girl. Keep your heads up and know that we are always here for you.

Elizabeth <michael-shipley@bellsouth.net>
Deltona, fl - Tuesday, July 12, 2005 7:02 PM CDT
Hey guys - just checking out the site. I love the new pictures of Riley in her swimsuit! She's such a cutie! I can't wait to see her again soon. Hopefully we will be getting together for a BBQ one of these days!
Danielle Merseth <dmerseth11@hotmail.com>
- Sunday, July 10, 2005 2:50 PM CDT
Riley,
Uncle Lan and Auntie Moe missed you so much and we are so happy to be home to see you and spend time with you. We can't believe how big and beautiful you are becoming. We decided you must take after us. Love you
Monique Nguyen <mnguyen0618@hotmail.com>
- Friday, July 8, 2005 1:09 PM CDT
Riley I love you I wish that i could see you. I like care bears I hope that you like them to. You are my favorite sister. tell mommy and daddy to give you a picture of me so you know that I love you Caitlin

Caitlin <michael_shipley@bellsouth.net>
- Wednesday, July 6, 2005 3:17 PM CDT
Hi Aaron, Nikki, & Riley We want to wish all of you a happy 4th of July.

Elizabeth Keith Zachary Caitlin & Joseph <michael_shipley@bellsouth.net>
deltona, fl - Sunday, July 3, 2005 3:04 PM CDT
Oh, she is soooo cute. I love her red outfit. What a great picture of you two. I am so glad you posts pictures as often as you do. I check probably every other day. ha ha!! Hope everyone feels better soon!!!
Rachael Jantz
Rachael <cljantz@yahoo.com>
- Sunday, June 26, 2005 5:45 PM CDT
Riley,
We are so proud of you. You are a gift from God.

Love,
Mommy and Daddy
Mommy and Daddy <aaronandnikki@charter.net>
Farmington, MN - Sunday, June 26, 2005 1:54 AM CDT
Hi Riley I love you very much and miss you very much and I want to come visit you. I love Riley and really want to see your room. Your big sister Caitlin.

Caitlin Spaulding <michael_shipley@bellsouth.net>
Deltona, fl usa - Thursday, June 23, 2005 10:08 AM CDT
Gram Laura & Judy - Hope Riley is doing better with the ear infection. Pictures are great, love those hats! Keep up the good work - I could use a couple of super nannies. What are you doing from June 22 to Aug l6??!!
Judy Z <tzaitz@rangebroadband.com>
Hibbing, MN USA - Monday, June 20, 2005 8:14 AM CDT

Riley we all love you and pray for you everyday!!!!
Elizabeth and Family <michael_shipley@bellsouth.net>
Deltona, fl usa - Saturday, June 18, 2005 10:37 PM CDT
Grandma Laura and Judy

Glad to hear that you made it to the cities and are taking good care of Riley. Looking forward to seeing those pictures that you plan on posting.

Patty <pschroetter@hotmail.com>
- Thursday, June 16, 2005 10:47 PM CDT
Hey grandma Laura & Judy, sounds like things are under control - but it's just day one. Any problems let me know, I can always call an emergency "meet & confer" with the coffee group -- we can solve any problem!!!! Have fun. Love to Riley
Judy Zaitz <tzaitz@rangebroadband.com>
Hibbing, MN USA - Thursday, June 16, 2005 10:03 PM CDT

Riley We are sending our love over the rainbow for you!!!
Zachary & Caitlin
Zack and Kate <michael_shipley@bellsouth.net>
Deltona, fl usa - Tuesday, June 14, 2005 1:43 PM CDT
What makes A Mother?

I thought of you and closed my eyes
And prayed to God today
I asked "What makes a Mother?"
And I know I heard Him say.

"A Mother has a baby"
This we know is true
"But God can you be a Mother,
When your baby's not with you?"

"Yes, you can,"He replied
With confidence in His voice
"I give many women babies,
When they leave is not their choice.

Some I send for a lifetime,
And others for the day.
And some I send to feel your womb,
But there's no need to stay."

"I just don't understand this God
I want my baby to be here."
He took a deep breath and cleared His throat,
And then I saw the tear.

"I wish I could show you,
What your child is doing today.
If you could see your child's smile,
With all the other children and say....

'We go to Earth to learn our lessons,
Of love and life and fear.
My Mommy loved me oh so much,
I got to come straight here.

I feel so lucky to have a Mom,
Who had so much love for me.
I learned my lessons very quickly,
My Mommy set me free.

I miss my Mommy oh so much,
But I visit her every day.
When she goes to sleep,
On her pillow's where I lay

I stroke her hair and Kiss her cheek,
And whisper in her ear.
Mommy don't be sad today,
I'm your baby and I'm here."

"So you see my dear sweet ones,
your children are okay.
Your babies are born here in My home,
And this is where they"ll stay.

They"ll wait for you with Me,
Until your lesson's through.
And on the day that you come home
they"ll be at the gates for you.

So now you see what makes a Mother,
It's the feeling in your heart
it's the love you had so much of
Right from the very start

Though some on Earth may not realize,
you are a Mother,
Until their time is done.
They"ll be up here with Me one day
and know that you are the best one!"

Thinking of you always
Elizabeth Nazzareno <michael_shipley@bellsouth.net>
Deltona, fl usa - Tuesday, June 14, 2005 11:03 AM CDT
Nikki, Aaron & Riley,
I'm so glad that Riley passed her hearing test. What great news! I think about you often and can't wait to see you in a couple of days in CA. I can't believe the wedding is already here!!
Danielle <dmerseth11@hotmail.com>
Apple Valley, MN - Monday, June 13, 2005 2:30 PM CDT
HI Guys! Thinking of you and wanted to send my love! Have a great time in California and take some time to enjoy a lil R&R. You deserve it!! Give Riley a big kiss for me! I miss you all... let's get together again soon.
Miriam <MJHolmquist@hotmail.com>
Bloomington, MN - Sunday, June 12, 2005 1:22 PM CDT
Nikki,
Riley gets more beautiful as the minutes pass. She looks so adorable in that hat she is wearing. Please kiss her from all of us. Keep your head up. Love all of you !!
Elizabeth Nazzareno <michael_shipley@bellsouth.net>
Deltona, fl usa - Friday, June 10, 2005 8:36 AM CDT
Hi Riley.. I miss you lots and I hope mommy is keeping up with the lotion duties while I am gone. I think of you everyday and wish you could be here with me here in California to lay out by the pool. Love you lots...xoxoxo
Auntie Moe
Monique <mnguyen0618@hotmail.com>
Farmingtion, Mn USA - Tuesday, May 31, 2005 7:48 PM CDT
Happy Birthday Aaron!! I do have to say that meeting your little pumpkin was the highlight of my life, right next to my own children. I enjoyed the time so much! It was also good to catch up with the two of you. I am so sad about the other family please send my thoughts and prayers their way. It made me go tuck my kids in once more and give them an extra hug why they were sleeping.
Jodi Lucast <jodilucast@edinarealty.com>
Elko, MN USA - Sunday, May 29, 2005 2:13 AM CDT
Aaron, you have a beautiful daughter. Thank you for making our daughters night tonight and we will see you again soon. Happy Birthday Aaron!
Ben, Jennifer, Jeffrey, KeliAnn Gutierrez <ben_gutierrez@hotmail.com>
Farmington, MN - Saturday, May 28, 2005 7:16 PM CDT
Riley is the cutest baby and I hope she gets better.

your niece,
Hannah
Hannah Brown
Brownwood, TX USA - Friday, May 27, 2005 7:49 PM CDT
Hey Guys.... Riley is so beautiful. Please give her lots of kisses and hugs from all of us.
Elizabeth, Keith and Kiddies <michael_shipley@bellsouth.net>
Deltona, FL usa - Wednesday, May 25, 2005 4:41 PM CDT
Nikki-
Congratulations on your beautiful little girl!!! While reading your journal, I see why God gave you this miracle. You are a wonderfully strong and loving mother! You and your family are in our thoughts and prayers!
Dawn (Tomatz), Zak & Zane Spaniol <dtomatz@yahoo.com>
Albertville, MN - Sunday, May 22, 2005 9:43 PM CDT
It was great to finally meet the family that Rocky & I had heard all about. You have a little angel. If you ever need to talk you can always call.

Jennifer Barden <onemnhbswife@hotmail.com>
Montgomery, MN usa - Tuesday, May 17, 2005 4:16 PM CDT
Nikki & Aaron, Just wanted to let you know how much we loved seeing your little angel. She is so precious and you are both so lucky to have such wonderful friends (Lon & his fiancee that care for Riley. They are such neat people. Anyway, just wanted to say how much we enjoyed the wedding and seeing all of you. We really had a good time
Dionilla <dionilla@rangebroadband.com>
Hibbing, MN USA - Monday, May 16, 2005 8:28 AM CDT
Oh my gosh, that picture of her on the first page is incredible!!! I just want to kiss those little cheeks!!!
Rachael Jantz <cljantz@yahoo.com>
Spring, TX - Sunday, May 15, 2005 9:14 PM CDT
Hey Nik - Happy 1st Mother's Day! It's an amazing feeling, isn't it. I'm sure you held Riley a little closer, a little longer, and cherished every moment. You are a beautiful friend and a shining mother. Happy Mother's Day! I love you! ~ Candie
Candie <RCRindels1@msn.com>
Forest Lake, MN - Monday, May 9, 2005 9:59 AM CDT
Happy Mothers Day!!! The pictures of Riley are truly precious what a beautiful little girl she looks so cute in her chair!! Take care lots of love...
Jodi Lucast <jodilucast@edinarealty.com>
Elko, MN USA - Saturday, May 7, 2005 5:04 AM CDT
GREAT news about the smiles! Those can warm any parent's heart!

Sherre & Lisa <BHappyHLTS@yahoo.com>
- Monday, May 2, 2005 3:40 PM CDT
Hi there! The quilt that Riley is lying on is gorgeous!! Did you make it...you had said you quilted and crocheted!! Just curious! give miss Riley a hug.
xoxoxo. Rachael
Rachael Jantz <cljantz@yahoo.com>
- Monday, May 2, 2005 3:03 PM CDT
I spent Monday (4-25) with Grandma Lignell - guess what the topic of our conversation was? Spending the previous weekend with Riley - what else? Oh, she did mention some good bonding time with Nikki, too. That's a grandma's right - to brag to anyone who will listen, and we grandmas are very good listeners!!!!!
Patti Williams <pattwill@hibbing.k12.mn.us>
Pengilly, MN USA - Thursday, April 28, 2005 9:57 AM CDT
Riley we love you from your brother Zachary and your sister Caitlin
Zachary & Caitlin Spaulding <michael_shipley@bellsouth.net>
Deltona, Fl usa - Tuesday, April 26, 2005 1:03 AM CDT
Nikki -

Thanks for keeping up so faithfully with your website. I check it frequently and feel like I am in touch with you guys even tho we don't see you that often. What a beautiful babe you have! Sherre
Sherre & Lisa <BHappyHLTS@yahoo.com>
Burnsville, MN - Monday, April 25, 2005 2:19 AM CDT
Nikki -

Hello! I talked to your Mother today and she gave me the wonderful website to view/read the pictures and journaling for Riley. How wonderful! Compliments to you on being such a voice for your sweet baby girl. May you have a wonderful Mother's day with Riley!

God bless,

Tracey Stanich Witherow (Great Auntie Fran's Granddaughter)
Tracey Stanich Witherow <ktwitherow@unique-software.com>
Woodbury, MN Washington - Tuesday, April 19, 2005 10:22 PM CDT
Nikki, I have to say that we make some beautiful girls...I hope the new medicine helps. I think about you all the time. Please let me know if there is any thing I can do for you. Give Riley lots of kisses and hugs from all of us.
Elizabeth Nazzareno <michael_shipley@bellsouth.net>
Deltona, FL USA - Tuesday, April 19, 2005 2:21 PM CDT
Hi Nikki, Aaron, and Sweet Riley,
My heart goes out to you and my prayers are with you. I know you face difficulty everyday. Lean on each other, as well as your family and friends! If there is ever any way I can help, please call on me!
The pictures of Riley are just beautiful! I do believe you have a star on your hands!
God bless you all!
Nellie
Nellie Glover <nglover@austin.isd.org>
Austin, TX USA - Tuesday, April 19, 2005 9:38 AM CDT
Our thoughts and Prayer are with you!
Gary and Julie Windschitl <gpw3@comcast.net>
Eagan, MN USA - Sunday, April 17, 2005 10:32 AM CDT
Riley,
Your dad and I are so proud to be your parents. Throughout this short but crazy journey we have learned more about ourselves and about life than we could ever have imagined. Even with all the worry and sometimes even the sadness, we would never change what we have with you- NEVER! You are the prettiest, sweetest, most special girl! And we thank God for you each and every day.
We love you, our little precious angel....
Mommy and Daddy
Mom and Dad <aaronandnikki@charter.net>
- Friday, April 15, 2005 11:00 AM CDT
Riley - you are the sweetest little girl in the world!! I had so much fun visiting and playing with you yesterday - you were such a good girl!! See you soon!
Love- Auntie Carla
Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Friday, April 15, 2005 9:51 AM CDT
Those have to be the cutest pictures I have ever seen! I love the props, it looks like an Anne Geddes picture...absolutely adorable. I can't believe she slept throught all of those, she is definitely model material!
Jill <jcufley32@hotmail.com>
Chino, ca - Thursday, April 14, 2005 0:35 AM CDT
hey guys....riley gets cuter & cuter!!! i think about you guys every day and pray for you all the time
much love to you all..vicki
vicki <giovanina@earthlink.net>
deltona, fl usa - Monday, April 11, 2005 8:43 PM CDT
Nikki,
I found this saying today that I want to share with you....

It is crucial that we not resist the tides
But instead give in to them
And trust that after each wave
We will be brought safely back to shore

I think about you all the time. Call if you need anything.

Elizabeth <michael_shipley@bellsouth.net>
deltona, fl usa - Friday, April 8, 2005 8:14 PM CDT
dear aaron & nikki, I just read your story about holland & italy,i loved it & it's so true. I'm so glad that you share these things with liz & keith & i think it is wonderful that you all have come together to support each other. you have a beautiful child & i continue to remember her in my list of prayers each night. GG & POP
gg <giovanina@earthlink.net>
deltona, fl volusia - Friday, April 8, 2005 7:07 PM CDT
Hey there you crazy bunch of kids... thanks for the postings on what is new. You all are just so amazing, and I wanted to let you know - as Karen said in an earlier post - how much we think about the three of you. I find myself praying for you nearly every day. I hope that you will be able to still make it to the housewarming / Karens 35th birthday party on May 7th. I promise the invite will go out to you soon! Please know that I look forward to seeing you and meeting the peanut. Much love to you three...
Your biggest Buca Fans
Rachel Swan and Karen Mattison <rmswanny@yahoo.com or raswan@stkate.edu>
Minneapolis, MN USA - Thursday, April 7, 2005 4:30 PM CDT
Nikki, I don't know how you do it, family, job, keeping everyone updated.... Keep you chin up and know that god is watching over your family. Sounds like you've got a supportive group and that will get you through this. Friends and Family through thick and thin....
God bless Riley Nicolle
Cory Schmalz <blushing@uslink.net>
Grand Rapids, MN - Tuesday, April 5, 2005 8:54 PM CDT
Nikki and Aaron,

Wanted you to know my prayers are with you every single day. Riley has been blessed to have the two of you and her extended family who all care so much for her! Remember that God's love is with you, but I think even more so with Riley. I truly believe that he is holding her in his arms. Trust in the Lord. God bless you all.
Cece Boyum <nboyum@yahoo.com>
Hibbing , MN USA - Monday, April 4, 2005 11:25 AM CDT
Nikki & Aaron I just want to let you know that we are all praying for you here. Stay strong. We love all of you. Please let me know if you need anything. Give Riley tons of kisses from all of us.
Elizabeth Nazzareno <michael_shipley@bellsouth.net>
Deltona, Fl usa - Sunday, April 3, 2005 10:57 PM CDT
my sweet freinds. I am thnking of you and wish I was there to hold your hand and help in any way.
Eydie Dianne Weinstein <eydiedianne@aol.com>
Orlando, fl USA - Sunday, April 3, 2005 6:37 AM CDT
Nik and Aaron my heart goes out to you both and my prayers too. Thank God she has you both to give her all the love and care she needs. I love you both and will talk to you soon. Please keep me posted.
Jodi Lucast <jodilucast@edinarealty.com>
Elko, mn USA - Sunday, April 3, 2005 4:17 AM CDT
Nikki and Aaron
You are in my thoughts and prayers right now. I can't imagine what you guys are going through and how you are dealing with all of this. Just know you have many prayers coming at you from so many people. Please let me know if I can help.
Jill <jcufley32@hotmail.com>
Chino, Ca USA - Saturday, April 2, 2005 1:09 PM CST

You are all in our hearts every minute.There is never a time when you are not with me. Whenever a sunny day feels bleak and frightening I think to myself " God please help me to be as strong as Nikki, as brave as Nikki, We love you so much. Sheila
Sheila <jdavis4@mn.rr.com>
Bloomington, MN, mn usa - Friday, April 1, 2005 11:44 AM CST
Oh my, I think we have a Miss America in the makings. Your pictures of Riley were just so cute. I enjoy reading about her and there isn't a day that goes by that she does not cross my mind. Keep on smiling and being the wonderful parents God put you here to be. See you soon at Bucca.
Julie Esman <jkesman@isd.k12.mn.us>
Lakeville, mn United States - Tuesday, March 29, 2005 7:47 AM CST
Happy Easter Riley Love your big brother Zachary and big sister Caitlin
Elizabeth Nazzareno <michael_shipley@bellsouth.net>
Deltona, Fl usa - Sunday, March 27, 2005 0:51 AM CST
Aaron,and Nikki,
Bruce and I met Aaron at Bucca in September 2004, and made the trip from South Dakota again last Sunday. We were all thrilled to see him again, Aaron you are truly an exceptional person. Having just seen the photos of your child, I see that you also have an exceptional family!! Riley is a doll!! Nikki I just want you to know that my trip to the cities was enlightened by Aaron so much!! The love that filled his eyes when he spoke of his daughter was amazing!! You are all truly blessed!! I look forward to checking up on Riley again soon!! Unfortunatly, we seldom make it to the cites but we will always make Bucca our first stop to say hello!! Bless you all and congratulations on such a treasure as Riley, as Aaron said she is truly amazing!!
Melissa Claymore, Bruce Fiksdahl <Mlssaclaymore@aol.com>
Sioux Falls , SD Minn - Tuesday, March 22, 2005 10:48 PM CST
Aaron,and Nikki,
Bruce and I met Aaron at Bucca in September 2004, and made the trip from South Dakota again last Sunday. We were all thrilled to see him again, Aaron you are truly an exceptional person. Having just seen the photos of your child, I see that you also have an exceptional family!! Riley is a doll!! Nikki I just want you to know that my trip to the cities was enlightened by Aaron so much!! The love that filled his eyes when he spoke of his daughter was amazing!! You are all truly blessed!! I look forward to checking up on Riley again soon!! Unfortunatly, we seldom make it to the cites but we will always make Bucca our first stop to say hello!! Bless you all and congratulations on such a treasure as Riley, as Aaron said she is truly amazing!!
Melissa Claymore, Bruce Fiksdahl <Mlssaclaymore@aol.com>
Sioux Falls , SD Minn - Tuesday, March 22, 2005 10:43 PM CST
Hey Riley, thanks for picking such awesome parents! We like to visit them in the bar at Buca and they take such good care of us--they have lots of practice & love to give to you, so you stay healthy & strong so you can share your parents and yourself with all their friends! Nikki & Aaron, we're thinking of you, sending prayers for strength & health for all of you--and always looking forward to seeing you at Buca! Thanks for always making it memorable!

Karen Mattison & Rachel Swan <Ratchetta9@yahoo.com>
Minneapolis, MN - Tuesday, March 22, 2005 5:11 PM CST
Nikki, Aaron and Riley
I just looked at the new pictures of the little doll...she is so cute! I loove the lamb outfit, I don't think it would fly to put Andrew in something like that anymore-darn it! I check your updates daily and can't wait to see you in June-can't you bring her? Pleeeeeease!!!! I would love to meet the little bug. :)
Jill Cufley
Chino, Ca USA - Monday, March 21, 2005 4:27 PM CST
Nikki, Aaron, and Riley,

I just read your journal. Thank you for sharing it with us! We will check back often to see how you are doing. We will include you in our prayers daily and ask that your struggles may be lightened and that you will have more time to bask in the joy of your new little bundle of love!! As always when we arrived at Buca tonight we looked for Nikki and Aaron...it has been too long. Robbie really wanted to know where Nikki was and said that he wished he could see her too. We would love to see you and your little one sometime. We will be in touch. Love & Prayers - Your friends from Buca - Donna (fellow Hibbingite), Peter, and Robbie (Ravioli) Otto
Donna, Peter, and Robbie Otto
Savage, MN - Friday, March 18, 2005 11:09 PM CST
I just got done "catching up" on Riley's progress, and I was in tears! Tears not because of sadness necessarily, but because of the admiration I feel towards two people I have never even met! I am truly inspired by the strength all three of you possess, and I am certain that God gave you Riley because he knew that you are two who have the rare ability to take care of such a precious little girl. I am in awe of the strength and selflessness you show in each journal entry you write. You have an extreme grace and dedication to your angel, despite the pain and fear that remain constant. You make me want to be a better person and a better parent. I hope to meet all three of you in the near future. Please know that you are in my heart, as well as my thoughts and prayers.
Shannon Nordby <tutter23@hotmail.com>
Hibbing, MN USA - Friday, March 18, 2005 2:32 PM CST
Aaron, Nikki & Riley,
Riley is a beautiful baby. Liz as told me alot about the baby and how wonderful both of you are to her. Little Joe and Riley could have not been any luckier to have all ofyou to watch over them and care for them. We will be sureto keep you in our prayers. Love Jessica and Mike Bush
Jessica and Mike Bush <jbush@cotterryan.com>
Deltona, FL - Friday, March 18, 2005 2:04 PM CST
Riley, You don't know me but I want you to know that I think about you everyday. I hope one day I will get to see you. You are one lucky little girl to have such great parents. Your brother and sister send there love and think about you as well.

Nikki.. I want you to konw that I pray for you everyday. You are always in my thoughts. Hang in there. You have a beautiful little girl. And you are a great mother. please let me know if there is evev anything I can do for you. Kiss the baby for all of us.
Elizabeth <michael_shipley@bellsouth.net>
deltona, fl usa - Friday, March 18, 2005 11:39 AM CST
Congratulations on your new addition! I know we haven't talked for awhile, but do know that you and your family are in our prayers every night. We couldn't ever imagine what you are going through, but I know she does have a very strong family and wonderful family support. She is so beautiful and precious and always remember that when you have those bad days. Take Care and hopefully down the road we can reconnect. God Bless your whole family!
Teresa (West), Matt and Dylan Purrington <tmpurrington@msn.com>
Cottage Grove, MN United States - Wednesday, March 16, 2005 3:52 PM CST
Dear Riley,
I have the pleasure to be apart of your life and enjoy watching you grow. I tell God everyday thankyou for such a precious little girl that I am blessed to love and know.I also want you to know how lucky you are to have two wonderful,loving parents who would do anything for you. I love you Riley and always know I treasure the time we get to cuddle, watch T.V, take baths,and just hang out.Thank you Riley for making my life more complete.

love
Auntie Moe

Love
Auntie Moe
Monique Gallarzo <mnguyen0618@hotmail.com>
Rochester, mn USA - Monday, March 14, 2005 7:52 PM CST
Nikki,

Just heard about Riley, your Miracle baby last Friday. I pray for strength for your entire family. Although the trials and tribulations that your are going through are far worse than ours - I feel like I can relate. I am Bazel Hanson's grandmother. He too is one of God's Miracle babies. He has a Congential Mytochondrial Myopathy.
Our love and prayers go out to your entire family

Karen Denne <kdenne2@netzero.com>
Keewatin, MN USA - Monday, March 14, 2005 10:14 AM CST
We'll be thinking of you over the next couple of weeks with all your doctor appt's. Looking at your pictures on-line, Riley is truly a beauty!
Hugs!
Sherre & Lisa <bhappyhlts@yahoo.com>
Burnsville, MN - Sunday, March 13, 2005 4:59 PM CST
dear nikki & aaron, I first want to congradulate you both on the birth of your beautiful daughter. I was sorry to hear of the problems you are facing with her, but God does not give us more than we can handle. I never met you Nikki, but i know Aaron & how wonderful he is with the kids, & it sounds like you are equally a caring mother. I really believe the good Lord knows who will care for his special children. Elizabeth & Keith as you know also share having to deal with medical problems with Joseph, but they also have much love to help them through. Aaron you would be proud to see how Zachary & Caitlin are with joseph, they love him so much,& I am sure they would be the same with Riley if they had the opportunity to see her more often.Well to both of you I wanted to let you know I added all of you to my prayer list.Just take one day at a time,& have faith. love GG&POP
GG & POP
deltona, fl volusia - Friday, March 11, 2005 12:38 AM CST
Dear Aaron,Nicki,Riley
We pray for your beautiful baby everyday. We love you.
Mark,Michelle & all the kids
Mark & Michelle Muscarella <Shiknight@chartermi.net>
Dorr, MI Allegan - Wednesday, March 9, 2005 8:05 AM CST
Riley, I love to look at your picture. I kiss it every night before I go to bed. I hope that you are feeling okay. love your sister Caitlin
Caitlin <Michael_shipley@bellsouth.net>
Deltona, fl usa - Saturday, March 5, 2005 11:37 PM CST
Hi unckle Aaron I love you very much and Beth,Danielle,Daddy,and Mamma love you sooooo much we miss you and we hope the baby is o.k.The baby is realy cute she is adorable...We all love you all and hope the baby is okay...

Love neice,
Marina.
Marina <nikki_dncr@yahoo.com>
Abilene, Tx - Thursday, March 3, 2005 5:05 PM CST
Hi Nikki, Riley, & Aaron,
Thank you for all the great updates! I am so impressed with you, Nikki! Even though I have never met you, it is very clear you are a devoted mom, and I am so glad that Sweet Riley has both you and Aaron to look after her. Aaron can tell you that we have a "special" member in our family, Wayland, who has brought us all such great joy and laughter. I pray that Riley brings that to you throughout her life!
Aaron, I plan to be in Abilene part of the week of spring break, March 12-20. Hopefully Brandon will get to spend some time with us. I will be sure that he has a chance to call you!
Keep strong. You are wonderful parents. God bless you both!
Nellie
Nellie Glover <nglover @austinisd.org>
Round Rock, TX USA - Wednesday, March 2, 2005 10:34 AM CST
Dear Riley, I just wanted to let you know how lucky you are that Nikki and Aaron are your parents!! I have been able to see first hand how wonderful they are with children. God has surely blessed you by giving you to them. Love mema.
vicki nazzareno <giovanina@earthlink.net>
deltona, fl usa - Tuesday, March 1, 2005 6:29 PM CST
I just got this website from your Mom last weekend -- what a great way to keep in touch! Thanks for taking the time to share Riley with everyone. I know you are blessed to have her, but she is also blessed to have such great parents.
Trish Steichen <psteichen@lakesinternational.org>
Forest Lake, MN USA - Monday, February 28, 2005 8:48 AM CST
Nikki, I know that the waiting can seem like a life time. But you are holding one of gods miracle children. Riley could not have a better mother. You hang in there and know that you can call anytime you need to even if its to scream... sometimes we all need to do that. I think about you all the time. I will continue to pray for you.
Elizabeth <michael_shipley@bellsouth.net>
Deltona, florida usa - Sunday, February 27, 2005 11:24 PM CST
Thanks for keeping us all updated! We are thinking of you guys ALL the time and it is nice to be able to find out what is happening in your world without having to bother you with a phone call. Love the new pictures! Riley is gorgeous!
Sherre & Lisa <bhappyhlts@yahoo.com>
Burnsville, MN - Sunday, February 27, 2005 4:21 PM CST
Hi Aaron, Nikki and Riley -
Thanks you for sharing this website with us. We had no idea of the struggles you are going though, along with all the pleasures of a new young one to care for. It sure seems that you are indeed blessed to have so many talented professionals helping all of you, and the many wonderful family and friends who care so much. We'll check back often for updates. Riley is beautiful - just like her mother, sorry Aaron.
Carol & Rory Boucha
P.S. Next time we ask for a Lemonciello, please say NO!
Carol Boucha <carol.s.boucha@seagate.com>
Burnsville, MN USA - Friday, February 25, 2005 3:18 PM CST
Hi Nikki, Nicole, & Aaron
I'm late sending these greetings, but they are heartfelt! I will keep you all in my thoughts and prayers.
Brandon was able to be with us in Abilene last weekend. He is getting so big and is so handsome. You would be very proud of him, Aaron. Everyone is fine and sends you warm greetings.
I wish you all the best!
Love, Nellie
Nellie Glover <nglover@austinisd.org>
Round Rock, TX USA - Thursday, February 24, 2005 12:25 AM CST
Aaron, Nikki, and Riley... Our thoughts and prayers are with you during this wonderful yet difficult time.
Shelly & David Ross <shellyross@comcast.net>
Grand Rapids, MI 49508 - Thursday, February 24, 2005 12:13 AM CST
Nikki, So sorry to hear the Bad news on the kiddo. I'll say a prayer for you and your family. Keep your spirits up my dear. MIRACLES DO HAPPEN
CORY SCHMALZ <blushing@uslink.net>
GRAND RAPIDS, MN ITASCA - Tuesday, February 22, 2005 6:24 PM CST
Congratulations on the beautiful addition to your family! Jessica Dexheimer sent me a link to this site, so I just had to come see the newest addition to the progeny of Hibbing's Class of '94. Though things may be challenging, may you always be able to remember that the strife is far outweighed by the benefits of the angel you have been blessed with. You are all in my thoughts and prayers!
Kristy Murray <krisvanden@yahoo.com>
Stewart, MN - Monday, February 21, 2005 10:51 PM CST
Congrats to you two on your new bundle of joy, Riley! Jessica Dexheimer forwarded me a link to this page. I just had my second little girl New Year's Eve and thank God every day for them both. My thoughts and prayers are with you. Enjoy her - every moment with your baby is precious!
Christie (Westlund) Kearney <kearney@mtaonline.net>
Wasilla, AK USA - Monday, February 21, 2005 1:17 PM CST
Hi Nikki, Aaron, and beautiful Riley!

What a precious bundle of love you have! We just discovered your website and plan to keep up with you this way.
Thinking of you....as we always do.

Sherre & Lisa <bhappyhlts@yahoo.com>
Burnsville, MN - Monday, February 21, 2005 12:04 AM CST
Hi you guys:
boy....it's tough to have anything at all to say about all th is. It's NOT fair and we DON:T understand. All we know is that you obviously have been chosen to love, care, and make decisions for a very special creation that HE has made, tough as it may be. May God bless your entire family with strength, love and peace during this time, and bless little baby Riley with strength and healing. Love, us both, Zak and Shawn
Zachary and Shawn Spaulding <shawnspaulding@hotmail.com>
Houston, TX usa - Monday, February 21, 2005 9:09 AM CST
Hi Nikki and Aaron, and A BIG HUGE WELCOME to the world Riley Nicole! You are absolutely adorable! (your daddy showed me pictures of you) your mom has been busy scrapbooking i see! I bet you are very happy to be home and in your momma's arms. No better place than that. We come into see your mom and dad with our girls Meghan and Maria and have awaited your arrival as all of these people have. Sounds like you are going to need some extra special attention and we want you to know that we are here for you because we have some experience with that. So anytime your momma and daddy feel like they need some advice or resources you tell them to call us! Okay! Much love to you all!
Wendy and Rob Flood and Meghan & Maria <wflood@experiasolutions.com>
Burnsville, MN US - Monday, February 21, 2005 8:46 AM CST
Dear Nikki, Aaron, and Riley --
We know that Riley is presently in the hospital and wanted to let you know that we love you and that we have been praying and continue to pray for all of you. We care very much.
Love, Betty, Ted, and Jan Barker
Betty, Ted and Jan Barker <JanKay9@charter.net>
Duluth, MN St. Louis - Saturday, February 19, 2005 10:30 PM CST
Aaron and Nikki...We want you to know our hearts are with you both at this very hard time. From our mouths to God's ear, we are praying with you. We love you so much.
Mom and Dani <imacharla@yahoo.com>
Abilene, Tex USA - Saturday, February 19, 2005 10:24 PM CST
Riley... We are so happy to have such a cute little sister. We love you and hope you feel better.

love Zachary, Caitlin
Elizabeth Nazzareno <michael_shipley@bellsouth.net>
Deltona, fl usa - Saturday, February 19, 2005 10:19 AM CST
Aaron,Nikki,and Riley... We think about you all on a daily basis. Riley is so beautiful. Hang in there and know that we are praying for you.
Elizabeth <michael_shipley@bellsouth.net>
Deltona, FL usa - Saturday, February 19, 2005 10:17 AM CST
Dear Nikki, Aaron, Riley
You know how proud of you both I am. I have never seen two people more determined to make every moment with Riley so special. Lan and I are so fournate to be apart of your lives and to share in the joy and beauty of Riley. I want you both to know I love her so much and love you guys so much. Love Mo&Lan
Monique <moniquegallarzo@yahoo.com>
Rochester, MN USA - Tuesday, February 15, 2005 4:05 PM CST
Nikki, Congratulations, I just heard of your new baby Riley via Courtnay. What a special time for you your family. Treasure each moment. When Courtnay's (Andrew) was born, she realized the greatest joy of her life. Courtnay had a hard time expressing what a special inner joy she felt because of Andrew. A miracle is the best way to explain. I know now you have many challenges ahead, but I know you will find the strength in all the prayers being sent up for you and your family. Riley is a very special little girl and she is beautiful. I haven't forgot all the special times in gymnastics. Take Care and remember you are being held up in prayers. Love the Meineke's (David and Dorothy)
Dorothy Meineke <dot_meineke@yahoo.com>
Hibbing, Mn US - Tuesday, February 1, 2005 9:15 PM CST
Nikki, Riley and Aaron
Was so excited when I just heard from Jessica (Stalboerger) Dexheimer that you are a new mommy. It has been a long time but everyone once and awhile something would make me wonder what you were up to. Now I know what you are up to and our family can be praying for you. We will pray that you will continue to be surprised with miracles, just like Riley's birth, and that the doctors will be guided by everyone's prayers. There is nothing better than being a mommy. Enjoy the smiles; enjoy the peaceful things she does while she is asleep; and recognize the special ability you have to perfectly care for her by loving her everyday.

Love Courtnay (Meineke) Bot (and Steve and Andrew)
Courtnay (Meineke) Bot <courtnaybrooke@yahoo.com>
Independence, MN USA - Tuesday, February 1, 2005 2:03 PM CST
I wrote in here before but I wanted to write again and thank you for inviting me to see Riley. She is a beautiful baby and I enjoyed holding her, even though she cried. It was so nice to meet Aaron. He seems like such a nice guy and so good with Riley. Thanks again for inviting me. Am looking forward to your new pictures and journal entries.
Dionilla <dionilla@rangebroadband.com>
Hibbing, MN St. Louis - Thursday, January 27, 2005 7:38 AM CST
Good Morning to you all, from your family in Texas,Mom, Dani, and Gary, plus Chelsea, Hannah, Jordan, Marina,Beth, Danielle, and Brandon. We love you and hope Riley continues to thrive in her home that is so filled with love and care....We're all very proud of you and think of you every day. Love always....MOM
charla fowler <imacharla@yahoo.com>
Abilene, Texas USA - Wednesday, January 26, 2005 9:45 AM CST
Aaron & Nikki -

Congratulations on your beautiful baby!!

From your Buca buddies Chris & Lisa
Chris & Lisa West <teborek@yahoo.com>
Burnville, MN USA - Tuesday, January 25, 2005 8:13 AM CST
What an adorable baby girl! The journal you two are writing is great. It sounds like she's keeping you busy and you're enjoying every minute! Your family is in my thoughts and prayers. Best Wishes!!
Stephanie (Perunovich) Campbell <stephanie.campbell@childrenshc.org>
Hudson, WI - Monday, January 24, 2005 8:27 AM CST
Aaron and Nikki
sending all our best wishes to you and want to let you know were here for you guys if you need anything.You two have a very beautiful baby girl and im sure she will only continue to become more and more beautiful as time goes by.Please let us know if we can do anything for you guys.Aaron long time no see,give me a call or email us.Really would like to hear from you.much love, Joey,Rianne and Zain wes Hargrove (6 months old).
Joey,Rianne and Zain wes Hargrove <rbrownjhargrove@yahoo.com or bsbjoey@aol.com>
Bisbee, AZ USA - Saturday, January 22, 2005 0:14 AM CST
Aaron & Nikki - Words cannot express how happy I am for you two...Riley is absolutely adorable. Although the road ahead may be rocky at times, I want you to know that God never gives us more than we can handle. Riley's a special girl...I think you said 1 in 10 million. That says something about you two as parents as well...never forget that. God chose this one baby girl out of 10 million and gave her to you...because he knew that you would be perfect for her. I can't wait to see you guys and hold little Riley in my arms...until that time, my prayers are with all three of you. Take care...
Jimmy Wilkerson <Jwilkerson26@aol.com>
Frisco, TX USA - Tuesday, January 18, 2005 8:59 PM CST
Nikki, Aaron, and Sweet Riley,
You have an adorable baby. It sounds like you are really enjoying her. It's such a special time for all of you.
I think of you often and my prayers are with all of you.
xoxoxox to Riley
Judy Olson <juga@rangebroadband.com>
Hibbing, MN - Tuesday, January 18, 2005 6:08 PM CST
So sorry this is a little later. Riley is absolutely gorgeous. So glad to hear that she is home where she will be loved so much. Enjoy and best wishes!!! Take care!!
Jennifer (Berklich) and Jon Myre <innermarie@hotmail.com>
Tucson, AZ United States - Monday, January 17, 2005 6:20 PM CST
Congratulations on your new beautiful baby girl! Enjoy each day with her.........they grow up fast!!
Sharon <shararch@hibbing.k12.mn.us>
Hibbing High School, MN USA - Friday, January 14, 2005 2:55 PM CST
Was delighted to see the new pictures Grandma Lignell had to show. What a gorgeous daughter you have! I'll bet she is a delight, even if she does keep you awake nights. Anne had her days and nights mixed up for quite a while, and then during the day, I had to take care of Mike. Not much sleep in those days!!! You continue to be in my prayers, but it sounds like all three of you are doing well. Keep up the great work.
Annetta Kokkinen
Annetta Kokkinen <annekokk@hibbing.k12.mn.us>
Pengilly, MN USA - Friday, January 14, 2005 12:15 AM CST
Nikki and Aaron, Congratulations! Your mom filled me in on how your little pumpkin is doing. You are in our prayers. I loved the dozens of pics Grandma L showed me today. Riley is beautiful, just like her mommy. With love from "your band mom" Sue
Sue Atkinson <TIMATK@MSN.COM>
Hibbing, MN - Wednesday, January 12, 2005 6:52 PM CST
Nikki, Aaron and Riley,
Congratulations on your beautiful baby girl! Looking forward to meeting Riley when you visit Hibbing. My thoughts and prayers are with you. Stay strong and take care.
Judy Zaitz <tzaitz@rangebroadband.com>
Hibbing, MN USA - Tuesday, January 11, 2005 3:47 PM CST
Congratulations dear Aaron, Nikki and Precious Baby Riley,
You have been in my thoughts and prayers and continue to be so. What a little miracle Baby Riley is and so are her parents and family. Take care of yourselves and know that miracles do happen and we're cheering you! Grandma Laura is keeping Hibbing High staff updated and your webb page photos are fabulous. Sending hugs, Patty Miller
Patty Miller <happypatty@hotmail.com>
Hibbing, MN USA - Sunday, January 9, 2005 4:43 PM CST
Dear sweethearts, I hope you know that I am constantly thinking of you, and praying for the greatest outcome that can happen, with a God as awesome as ours receiving so many prayers. I'm sure His Grace is with us , and He will make things happen for you. I love you all, and wait for the day I can come see you, and hold Riley. with MUCH Love.....Grandma Charla (Mom)
Charla Fowler <imacharla@yahoo.com>
Abilene, Tx. U.S.A. - Friday, January 7, 2005 3:11 PM CST
Nikki, Aaron, and Riley,
We have been praying hard for all of you. You sound like extremely strong people and will be amazing parents for Riley. We continue to pray for blessings and "no news" and will help Grandma Laura keep her spirits up. God bless.
Annetta Kokkinen and Susan Vesel
Annetta Kokkinen <annekokk@hibbing.k12.mn.us>
Hibbing, MN USA - Tuesday, January 4, 2005 2:15 PM CST
Aaron and Nikki,Congratulations on your beautiful baby girl,I have a feeling she has her grandfather's good looks.Just know she has her grandpa's love and prayers.We love you all. By the way Aaron you look pretty good for an old man of thirty. All our love, Dad and Kathy.
John Spaulding <itsmechattykathy@yahoo.com>
Golden Valley, AZ USA - Tuesday, January 4, 2005 1:38 AM CST
Nikki, Aaron and Riley,
I just heard the wonderful news! Congratulations on your beautiful little angel! I work with Riley's grandma Laura and was very excited to hear that you were all able to spend Christmas together, at home. Your family is in my thoughts and prayers during this time especially. I will say extra prayers for her appointments today and in the future! God bless you (although I believe he already has!).
Shannon Nordby <tutter23@hotmail.com>
Hibbing, MN USA - Monday, January 3, 2005 9:37 AM CST
Nikki, Aaron & Riley
What a wonderful Christmas gift!! You are so blessed to have a strong and precious little girl as she is blessed to have awesome parents! You are always in our prayers!! We are looking forward to the day Will and Riley will go on thier first date!!
Stay Strong and God Bless,

Jessica Dexheimer <jrdexheimer@yahoo.com>
Maple Grove, MN - Tuesday, December 28, 2004 3:26 PM CST
Nikki, Aaron & Riley, I am so glad to hear that you are home and were able to spend your first x-mas together as a family. Riley is so adoreable. My prayers and thought are with you and I know that Riley will be having her grandma Laura jumping.
Renee Hill
Hibbing, MN 55746 - Tuesday, December 28, 2004 2:21 PM CST
Nikki & Aaron, Congratulations new parents. An angel has arrived in time for Christmas...she's adorable. Sending all our support and prayers. We too have a miracle baby. Hugs!
Marva & Tom Harms
Pengilly, Mn USA - Monday, December 27, 2004 8:37 PM CST
Riley Nicolle,
I am thrilled that you made it home safe & sound with Mom & Dad in time for Christmas! You are such a beautiful little girl. Next year we'll make Christmas cookies together! You are always in our prayers, we love you! Candie, Ryan, Kasan & Payton
Candace <RCRindels1@msn.com>
Forest Lake, MN United States - Monday, December 27, 2004 2:12 PM CST
So happy to hear Riley was home for Christmas...what a precious gift. May God continue to bless you and watch over Riley each and every day. All my prayers and love, Miriam
Miriam Holmquist <MJHolmquist@hotmail.com>
Bloomington, MN - Monday, December 27, 2004 10:59 AM CST
Dear little Riley Nicolle,
We are so happy that you're here! You look so much like your mommy, you lucky girl! It will be wonderful to get to meet you -- we love you already! Love and God's Blessings, Ted, Betty and Jan (Barker)
Jan Barker <jankay9@charter.net>
Duluth, mn usa - Sunday, December 26, 2004 12:57 AM CST
Congratulations on bringing such a beautiful little girl into our world. May your christmas dreams continue to be granted!

Diane Hallila <jojolo88@hotmail.com>
Potomac , MD - Sunday, December 26, 2004 8:58 AM CST
Riley Nicolle
We are so glad that you got home for christmas!!We can't wait to come and see you. Our mom said you are so cutie!!We will keep checking up on you.You are in our prayers.
Love your friends Carson and Taylor (our mom and dad too..)
Amy Gasswint <Rugby5@charter.net>
Mankato, mn - Saturday, December 25, 2004 11:23 PM CST
Congratulations on your new daughter; she is much loved! I look forward to updates on her website. With love and prayers.
Susy Barker <suebrkr@yahoo.com>
Riverside, CA USA - Saturday, December 25, 2004 9:07 PM CST
Congratulations Nikki & Aaron, what a beautiful little girl you have. Wishing you all the best and a Merry Christmas. What a little angel you have. Can' wait to see you all.
Laureen & Jerry Danielson <jman@rangebroadband.com>
Hibbing, MN St. Louis - Saturday, December 25, 2004 3:44 PM CST
Little Riley-
I'm so glad that you are with us now. I love you very much even though I've only seen you through pictures. I can hardly wait until you are in Hibbing. I hope to see you soon and give you a hug. God bless you dolly-
Great Gramma Marian
Hibbing, MN - Saturday, December 25, 2004 12:45 AM CST
Nikki and Aaron
Riley is beautiful! What a wonderful Christmas gift for you both...can't wait to see more pictures and read her updates.
Jill
Jill Cufley <jcufley32@hotmail.com>
Chino, Ca USA - Friday, December 24, 2004 4:48 PM CST
Aaron and Nikki,
What a beautiful little bundle of joy you have. Just a little note to let you know that we in the Great Northwest (Washington State) are praying for all 3 of you daily.
Frank & Dianne <diannefohn@comcast.net>
Tacoma, Wa USA - Friday, December 24, 2004 4:15 PM CST
Nikki & Aaron, Heard from your mom that you are bringing that beautiful baby home. We will be looking forward to seeing her when you come to Hibbing. Our prayers are with you and hope all her tests come back good. Merry Christmas!!!!
Dionilla <dionilla@rangebroadband.com>
HIBBING, MN USA - Friday, December 24, 2004 11:49 AM CST
Aaron and Nikki,
What a beautiful gift you've been given! Just know that my thoughts and prayers are with you all. Love to you...
Auntie Barb <blcook@comcast.net>
Puyallup, WA USA - Thursday, December 23, 2004 1:37 PM CST
Dear Nikki and Aaron
What an angel you have in Riley....the pictures show that she is a doll!! So many prayers have been said for you all and will continue to be said. Take care. Marion
Marion May <maym@co.st-louis.mn.us>
Hibbing, MN United States - Thursday, December 23, 2004 1:32 PM CST
Dear Nikki and Aaron,
Riley is beautiful and we can't wait to meet her! You are in our thoughts and prayers, we send you much love.
All the Steichens <steichen@cpinternet.com>
Hibbing, MN USA - Thursday, December 23, 2004 10:26 AM CST
Dear Aaron and Nikki...I love our new baby and can't wait to hold her in my arms!.I pray for all the best that can happen, she is beautiful and much loved by this whole family. Until we meet soon....Grandma Charla
charla Fowler <imacharla@yahoo.com>
Abilene, Tx usa - Thursday, December 23, 2004 9:45 AM CST
Nikki and Aaron...What a beautiful little girl..it runs in the family..lol I am praying everyday for her..I love you!! your sister.. Dani
Dani <nikki_dncr@yahoo.com>
Abilene, Tx USA - Thursday, December 23, 2004 9:42 AM CST
Nicky & Aaron
Uncle Tom and I just took a look at your beautiful little daughter. I can hardly wait to meet her in person. We are all remembering you in our prayers. Take care of yourself Nicky. Love and hugs to all of you.
Judie
Judie Arnold <tomjudie@uslink.net>
Hibbing, MN USA - Wednesday, December 22, 2004 9:07 PM CST
Welcome to the family Riley!
Nikki and Aaron you have a beautiful baby girl and I can't wait to see you all soon. You are in my thoughts.
Love you
Auntie Leanne <leebug44@hotmail.com>
Superior, WI - Wednesday, December 22, 2004 6:55 PM CST
Dearest Riley,
How loved and cherished you are already! We are praying for you and holding on to so much love for you. I look at your beautiful face and see so much of your mom and dad in you. With much love, Ros
Ros Barker <perchlakers@aol.com>
Side Lake, MN USA - Wednesday, December 22, 2004 5:11 PM CST
Nikki and Aaron: You little girl is gorgeous! I can tell you that little girls are the BEST!! You are all in our thoughts and prayers. Congratulations!!! Lyndy and Dick John (Ralph's sister)
Lynda John <ljohn@d.umn.edu>
Duluth, MN USA - Wednesday, December 22, 2004 5:06 PM CST
Nikki and Aaron -
I had to peak at that adorable baby girl! Give Grandma and Grandpa Lignell my congratulations and a hug from us. We have been keeping you in our prayers. Randy and Patty Schroetter
Patty <pschroetter@hotmail.com>
- Wednesday, December 22, 2004 4:36 PM CST
Nikki and Aaron,
Riley is so beautiful, she looks a lot like her mother. We are praying for her and all of you everyday. Take care of yourselves and grandma Laura too. Hope to see you all soon.
Kathy
Kathy Bottoms <bottomsk@co. st-louis.mn.us>
Hibbing, MN US - Wednesday, December 22, 2004 2:15 PM CST
Hi Riley,
Can't wait to meet you and look forward to watching you hang out at the Perch Lake Beach!
Love,
Uncle Ralph
Ralph <rbarker@mesabi.com>
- Wednesday, December 22, 2004 1:39 PM CST
I love you and can't wait til you get to go home. Uncle Jerry and Blake love you too and send lots of hugs and kisses. We all love you little angel!! You are the most beautiful baby!
Auntie Hayley <h_towngirls@yahoo.com>
Montgomery, MN - Wednesday, December 22, 2004 1:15 PM CST
Dear Nikki and Aaron

Riley is so beautiful--I love her little rosebud lips! I can't wait to really get to see her---Take care--you are in our thoughts everyday

Love, Lynn
Lynn Gigliotti <lgigliotti@mchsi.com>
Virginia, MN St. Louis - Wednesday, December 22, 2004 12:53 AM CST
Nicky and Aaron (spelling?)

What a beautiful little girl! We are keeping you all in our thoughts and prayers!
Cece Boyum <nboyum@yahoo.com>
Hibbing, MN 55746 - Wednesday, December 22, 2004 9:13 AM CST
Welcome Riley!!! Can't wait to spend some more time with you soon!
Auntie Carla <carlaannebarker@hotmail.com>
Minneapolis, MN - Tuesday, December 21, 2004 2:01 PM CST

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