JUNE 19/2001
Kayden has Trisomy 18 and his story can be read at, http://www.geocities.com/kaydensplace

Journal

Sunday, March 22, 2009 9:29 AM CDT

Good Morning.Kayden is doing very well. He is so full of life and happy. Last night we all sat im his sensory room and played with him. He really loves to play with his drawers full of rice, beans, and noodles each one he gets just as excited with. I love watching him play and interact with Braden and Jaiden.

Well im happy to say that it has now been over 8 months since kaydens last stop breathing episode.

I was starting to think yep it must of been a seizure and the keppra is working. Now im investigating the possibility that these eppisodes were caused from his botox injections as he has not had those for 10 months now. I have found alot of research showing similar eppisodes in other children weeks to even a month after injection. Kayden was having these done every 3 months.

Please pray we find out the answers we need. Even if we dont find in the end that they are from botox kayden will not ever receive these injections again. There is just to much nasty things the botox can cause.

Kayden is in need of extra prayer for Tuesday morning as he will be having surgery. Kayden has a colestiatoma in his right ear.{type of tumor} This he had in his left ear two years ago and now his right. Typically im not nervous about when he gets put under anesthesia but July was his last time and about 30 seconds from being under he had a 60 second V-tach wich is pretty much cardiac arrest. This is very life threatening but thank God he came out of it on his own. We have not had him in for anything since. The Dr's could not find wyhe had this. Please pray he does well Tuesday with no problems at all. Kayden is strong but a little extra help would be lovely.

I will post after his surgery.

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E-mail Author: martamcclanahan@hotmail.com

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