Saturday, August 7, 2004 11:14 AM CDT

Hi Everyone,

Well, I'm supposed to be writing this journal entry in seclusion. It's great. I went in yesterday to get my blood checked and I have no neutrophils (they are the part of the white blood cell that is the first defense against infection and all that other good sick stuff). I also needed a platelet transfusion yesterday because I was at 11,000 and still going down. So with no neutrophils I'm not supposed to do anything! I guess I'll just be a recluse here for the next couple of days...the only way I'm supposed to go in public is to sport one of those beautiful hospital masks. It's pretty tempting. Of course I'm 18 and I'm not being that strict about it, I'm surprised I haven't had a fever yet because I used to have this condition in winter when I would spend a couple weeks in the hospital just waiting for these counts to go up. So we're really monitoring my temperature but really there's not much you can do when you have to be very careful not to even scratch a bug bite or pluck an eyebrow (yes I can do that now!) without getting a staff or bacterial infection. I think this is all kind of funny and I might draw little pictures on my masks later.

Although yesterday was full of medical stuff, I had my claim to fame when I went to the clinic in Mankato to pick up my platelets and talked to some Vikings who were there getting fluids after training camp. We didn't have an intellectual conversation or anything and none of them were totally famous that I would recognize their faces after a year without watching them play, but I thought that was pretty sweet that I just ran into them and they talked to me for awhile while I carried a box that said "human blood" on it!

Two nights ago I also had the awesome privelage of accepting a donation given to me by the parents, cast, and crew of the musical "Godspell" which was done in June. We had everyone over here for ice cream sundaes and had a very good time. I used to act with many of the actors who put on this production and although I wish I could have been onstage with them, it was so enjoyable just to watch. These are true friends that I have that would produce this play completely from scratch. They went to the community to establish the program, organized it, cast it, directed it, choreographed it, marketed it, and of course performed it. They were able to donate over $4500 to help my family and I pay with medical expenses. (haha...I've racked up some pretty hefty ones let me tell you) I can't even begin to express how grateful my family and I are. This was such a creative and meaningful way to help me out. I'm sure all of you who saw it will agree that the contents of the production were just as inspiring as their motivations behind it. Thanks so so so so so so so much!

Thanks for checking on me and I'll try to stay out of the hospital. My mom and I are going to "The Phantom of the Opera" tomorrow night at the Ordway. I have to wear my beautiful mask because God forbid someone would cough on me! We've had these tickets for a while and I just have to go.

Love,
Jenna

Monday, August 2, 2004 3:14 PM CDT

Hi Everyone,

My trip to the great state of Iowa with its endless rows and rows of corn was great. We stayed at Cutty's resort in Okaboji and went to Boji Bay - a huge waterpark complete with a tide pool. I still was attached to my cad pump until Saturday, so I couldn't go swimming until then, but as soon as my medicine was up I had Kyle pull out my needle. I think his secret calling is to be a nurse, he didn't poke me or stab me or anything! Boji Bay was fun. Those lazy rivers are really dangerous, I was very tempted to fall asleep and keep going around and around. My favorite part was the tide pool with its massive waves that pound you and pick you up in their swarm and carry you back to where you started! Probably not the weekend that most people would experience the day after finishing a chemo treatment, but that's how I like to stay healthy. If I stay off the couch and am active, I don't get nearly as sick...it's also way more fun that way. We finished the day boating on Lake Okaboji. The water was extremely choppy and my butt hurt after awhile when I was bouncing up and down as the boat scraped across the waves. If you talk to Kyle, you should ask him what happened to his wallet on the trip...it's a good story!

On the way home I stared at a beautiful thunderhead the entire way. I love the puffiness of the clouds and the way the light reflects off of it, creating a collage of colors. Sometimes the lightning would light up inside of it and that made it all the more beautiful! This is one of those little things I have learned to appreciate now.

As of today, I'm a healthy bald girl. My eyelashes and eyebrows are growing back AGAIN (they fall out and come back all the time) and I can't wait until a little later when I'll be sproutin' some red hairs again. My platelets were at about 50,000, my white blood cell count at about 2 (it should be between 5 and 10) and my hemoglobin at 10 (it should be between 12 and 16). So I'm starting to go down, but hopefully I won't go too far! I have also been slowing losing my sense of smell and therefore my sense of taste. It's not nearly as fun eating that way, but don't worry, I still do! It could either be from radiation or from the tumor pressing against the nerve behind my nose. I hope it's just temporary, I really love knowing the difference between the way steak tastes and the way turtle mochas taste!

I'm going to my dad's tonight and we're going to experience the magic of the new Ikea store. I have no idea how many hours we will spend here, but I do know he's bringing his credit card! haha....gotta love college dorm shopping. Thanks so much for checking on me, I continue to sincerely appreciate your support.

Love,
Jenna

Thursday, July 29, 2004 3:03 PM CDT

Hi everyone,

I'm now on my third day of my last chemo treatment! I'll be done on Saturday and will hopefully be able to avoid all those nasty transfusions, hospitalizations, and all that other good stuff. Although we had to leave at 5 am, I managed not to be too crabby at Mayo yesterday and it also helped that our appointments went quickly. Dr. Anderson says this will be my last chemo because my bone marrow isn't producing blood components well enough anymore. We talked about alternate treatments that I may have to consider after I take all those tests and scans over again on August 25th-27th. It's called an "extensive evaluation" so I'm pretty sure they're going to test just about everything that is testable. Three days of scans isn't my idea of a good time, but I am anxious for the results. He said that he hopes we never have to discuss the alternatives, but we have to be ready to. I'm supposed to "mentally prepare" myself for these test days...it's kind of hard not too! He doesn't forsee any different results than those I had in June and that we should hope for and expect good results. Although I really have started to lose my sense of taste, this is sometimes normal for chemo and radiation patients and will probably get better. I have gotten a little bit sick off of this last round, so I'm just trying to keep my good health in these next days. I am going to Boji Bay and Okaboji this weekend with some friends, so I have a strong will to be healthy this weekend!

Love,
Jenna

Monday, July 26, 2004 3:13 PM CDT

Hi Everyone,

I recently got back from a fun-filled week of family bonding at a resort way up north, almost near Itasca. We rented two cabins, one we considered the "palatial estate" complete with a whirlpool bathtub, king sized beds, air conditioning, huge windows, etc. (which really shouldn't be considered a cabin)
and the other was down in the "ghetto" that I actually preferred because it was cozy and quaint. We had 15 family members there - my grandparents, us, and Ann and Cate's families, Kyle was also there the first couple of days. We played countless board games, tipped each other's rafts in the lake, went canoeing and fishing, read, cooked, told stories around the bonfire and all that other good stuff you would do on vacation. My grandma taught all of us girls how to make sauerkraut and dumplings and to embroider. I think we could make a pretty mean German supper. My favorite day was when we all went horseback riding. A couple horses were a little fiesty and some of us were walking different the next day, but it was a wonderful time. I love spending time with my cousins although we sometimes drive each other crazy, usually on purpose! Everyone really seemed to like the resort's tranquility and activities so we are already booked again for next year!

Yesterday, Melissa, Kyle and I also had the opportunity to fly in my great-uncle Linus' ultralite airplane. I was a little nervous at first because the seats are definitely out in the open, but as soon as we took off, I loved every minute of it. It's so fun because you feel exactly like you're flying. We flew around New Ulm and all the buildings, cars, trees, etc. looked like toys from the sky. It was such an awesome experience.

Tomorrow I go back to Mayo to get started on my 12th and final chemo treatment! I got my blood counts taken today and they are really good, but apparently not good at all for having my last chemo treatment in mid-June. Dr. Anderson already called and said that this treatment will only be able to be three days long for concern that my counts would get too low - especially platelets of course. I feel very well however and actually feel guilty for having such a relaxing, carefree summer. I was anticipating being in the hospital more and being sick more often, but I am definitely thankful for the fun summer I have had. My health has been kind of monotonous the last couple of months with no hospital stays or anything, so it makes it uninteresting but I think we're all thankful for that.

In the meantime I continue to prepare for college and track down dorm room bargains. I'm also looking forward to New Ulm's Relay for Life on August 19th and 20th. I'll be on a team through my mom's work and anyone who would care to join me and walk would be more than welcome and appreciated.

Tomorrow I'm sure we'll also be figuring out a date to schedule all those nasty tests and scans again to determine where I'm at before college and what treatment, if any to continue with after this. Please pray for good results for those tests because I'm really nervous about the fate they hold with my future, especially next year in college. Thanks so much for checking up with me and reading this long novel I just wrote. I know things are somewhat uneventful but thanks for all the continuous support.

Love,
Jenna

Saturday, July 17, 2004 1:56 PM CDT

Hi Everyone,

There really is still no real cancery-health news to report. My blood counts were rising and falling with no real reason or pattern. We were a little concerned but as of my last appointment my platelets suddenly doubled and I'm definitely on my way back to being ready for my next and final chemo treatment. Yes that's right, the last one! Doctor Anderson said that although we don't know the results of the tests and scans I will repeat sometime in August, my bone marrow really can't handle more chemotherapy. Maybe I shouldn't be cheering about this, but I do anyway. My bone marrow just isn't making the blood components quickly or efficiently anymore. So we'll do all those fun tests again sometime in August before I go to collge to see if I can end my treatment or whatever other treatment possibilities I would have to think about. I've also been following Mayo's recent news that they are working on a cure for Melanoma. Although this would be a cure for skin cancer, it would still be a cure in a cancer and would probably open doors to a better understanding of a cure for other cancers. A cure is not a word that I'm used to right now, just a "help".

I walked for Relay for Life last night in Lakeville. I didn't know what to expect at all because I haven't ever been to the event before; I definitely regret that after attending last night. Although I really didn't know anyone besides Cindy and my Dad, I met a lot of interesting people including other cancer survivors. After the opening ceremony, survivors were able to take the first lap and another survivor of breast cancer and I sprinted and skipped during the last quarter of the lap toward the finish line to finish in the front of the group. The rest of the night was filled with more walking, music, games, volleyball, luminaria lighting, and talking with groups around campfires. I really enjoyed the experience and I'm very interested in geting involved in the Relay for Life in New Ulm. My mom is on a team for work and I'd really like to walk the whole night through with other local survivors!

I just went to Valleyfair yesterday with Kyle, Melissa, and Jake. We had a great time riding on all the adventurous rides and walking everywhere. My family and I are leaving for a trip to our cabin soon in Crow Wing County. I'm so excited because my uncles, aunts, and cousins, and us used to go up to a cabin for about 8 years near Pequot Lakes. It will bring back some great memories!

Thanks so much for checking on me! I truly appreciate it.

Love,
Jenna

Thursday, July 15, 2004 1:00 PM CDT

Hello to everyone,

There has not been much to report lately. Jenna's counts have remained low but she did get news from todays blood test that her counts have started to rise, but she is not at a point yet that she can begin her next chemo session.

On Friday night Cindy and I will be with Jenna and we'll be participating in the Lakeville, MN "Relay for Life" Walk for the American Cancer Society.

Relay for Life is a fun-filled overnight event designed to celebrate survivorship and raise money for research and programs of your American Cancer Society. During the event, teams of people gather at schools, fairgrounds, or parks and take turns walking or running laps. Each team tries to keep at least one team member on the track at all times.

Relay For Life represents the hope that those lost to cancer will never be forgotten, that those who face cancer will be supported, and that one day, cancer will be eliminated.

The Opening Ceremony is at 6:00 p.m. at the Lakeville High School Football Stadium with the Luminaria Ceremony at 9:30 p.m. (Luminaria are placed alongside the running track and burn through the night in honor or memory of someone who has had cancer). The Closing Ceremony is at 5:30 a.m.

It is a moving experience and all are invited to attend. The cost is $10. You can come and go at any time!

Thanks to everyone who continues to send Jenna messages. She reads each and every one of them and really appreciates your concern and prayers.

Kurt

Tuesday, July 6, 2004 10:31 AM CDT

Hi Everyone,

Well, I guess they say "no news is good news" and that's kind of how it's been around here lately. I've been going to the clinic or ER just about every other day to get my blood counts checked and then I get transfusions if necessary. Blood transfusions sound like a big deal and they probably are, but I've had so many by now that it's just routine! I should probably become a doctor or nurse after all this; I am beginning to think that I could just hook myself up all the time! I think I'll pass on that career though, I'm a little sick of hospitals - they are way too air conditioned. Judging by my last tests, my blood counts seem to finally be holding a minimal number on their own and will hopefully start climbing. I was supposed to start chemo tomorrow again but I really don't think that's going to happen! Give me a couple more weeks...We may end up just going to Rochester tomorrow for a check up because they just miss me that much. Otherwise, I'll probably continue to get blood tests to monitor my counts, I know it's getting to be monotonous. I haven't had any exciting hospital trips since before prom or anything!

My 4th of July was pretty decent - I watched fireworks in Cambria on the 3rd and Sleepy Eye on the 4th. I love fireworks, I think they're my favorite thing about summer. The summer around here has been absolutely chilly. My tan is fading fast and I would be so happy to spend a couple upcoming days at the beach or valleyfair! My mom is very excited because I'm sprouting a little bit of hair. It looks a little weird because it comes in in patches. Because I'm not done with chemotherapy and I had radiation, it doesn't grow in the spots where the radiation beams were so I'm a little spotty. It's getting long enough where we can make it go one direction or the other though! Very exciting! Maybe I'll wash it today for fun....

Thanks for praying for me!
Jenna

Thursday, July 1, 2004 6:22 PM CDT

Hi Everyone,

I'm so sorry I haven't written in awhile, I've been really busy like always...Over the weekend there really wasn't anything to say. My blood counts were okay but not the greatest but there really was no news. I just was with friends and went to the church picnic! That's the greatest Sunday of the year. My cake that I baked was one of the first to go for the cake walk so I'm pretty proud. I soaked up the sun all day at Flandrau on Monday and got a pretty nice tan. On Tuesday and Wednesday I attended freshman orientation at the U of Minnesota-Twin Cities. I was definitely nervous before going. I hoped I would meet some new, fun people, be prepared well enough, make good decisions as to what classes to register for, and that I wouldn't get lost on the massive campus! I ended up meeting a couple really nice girlfriends and we hung out all night around campus doing random things. Of course we sat through all that course info that is usually very general and familiar, but I'm much more comfortable about leaving in fall now. I'm very excited about college now and I had a really good experience on campus. I will be getting lost between every class and I'll have to get used to sharing the nasty bathrooms with a lot of girls, but I'm all for it. Many of the classes were already full by the time I had to register and I didn't get into every class I wanted to, but I think I worked out a pretty good scheduling that isn't too demanding, but will definitely be a challenge and a change. I'm interested in many areas including sociology, pyschology, English, education, and anthropology. I have my roommate and room assignment all together and now we just have to worry about our decor!

I got home yesterday only to find out that my blood counts were extremely low and I needed a few hours of transfusions today. My hemoglobin was very low at 8.4 and my platelets were once again low at 13,000. Hopefully my counts will be able to start going up by themselves after today. I was surprised that my counts were that low, I had been running around campus all day and felt pretty good. I think if I just stay off the couch and stay active I don't notice everything, which is how I like it to be.

Thanks so much for checking on me!
Love,
Jenna

Friday, June 25, 2004 1:04 PM CDT

Hi Everyone!

Well I thought that they had just given me water or something this time in my pump, it feels that way! But I went to get my blood checked this morning and my white blood cell count is almost non-existant and my platelets are at 7,000, their lowest ever. So I'll be getting a couple units of platelets pretty soon, I'm just waiting for them to call. That's starting to cut it pretty close! My blood is just like tomato juice now I guess! At least I feel fine, so far I've managed to stay away from illness and my energy level is still feels fine, although it isn't that great in reality, but I think all the exercise and food I ate before this treatment really helped. So hopefully I'll continue to stay out of the hospital since my counts are so low. I'll keep my antibacterial hand gel handy! Thanks for checking on me today.

Love,
Jenna

Wednesday, June 23, 2004 11:11 AM CDT

Hi Everybody,

Yesterday and today are supposed to be some really rough days in my chemo cycle, especially because I added a day this time. However, I feel basically fine! I'm just a little tired, but it's nothing like the exhaustion I normally experience so I can still do the Jenna stuff I like to do. My blood counts were low and not good yesterday, but not horrible like they could be. I guess I should have done 5 or 6 days!

Last night I went to see "Annie" with Kyle at the Chanhassen Dinner Theater. The production was really well done like they always are. All the little orphan girls were really talented and cute. I really enjoy seeing plays that I have already been in. This fall "The Phantom of the Opera" is coming to the Orpheum or Ordway or somewhere and seeing that production will be a definite priority.

Other than that, my family and I have just been catching up on everything that got behind while we were gone. We sincerely appreciate you all for checking up on me, your prayers, and your constant support because none of this would be possible without your love.

Love,
Jenna

Sunday, June 20, 2004 6:09 PM CDT

Hi Everyone,

This past week has been pretty difficult for my family. The unexpected, sad death of my cousin, Brea, was something we obviously hoped we would never have to encounter. But we did, and we're still together and hopeful and it was nice to see all of the family together again. The visitation, funeral, and burial services were very nice and hopefully very comforting for my relatives. We know that Brea is now in a better place and probably just watching over us laughing at all the commotion she has caused. I had never really experienced anyone's death in my life yet, especially someone that close. It makes you realize the reality of death but also the fullness of life and all that there is to live for. Family is so important, being yourself is so important, and living for the moment is necessary. This is not a situation that I ever want to see my family in again and I think it has given my family and I a renewed motivation in my own fight.

I finished all my chemo today and got my needed shots and everything at the ER here in New Ulm. I feel really well this time around again! Usually this treatment is kicking my butt by the second day or so and I'm just so tired, but I think with being so busy and being so healthy going into it, I'm responding really well. We did 4 days this time and I'm sure my counts will really be dropping here in the next couple of days and hopefully I'll keep myself out of the hospital! Although I probably will end up at the hospital because I got a sliver yesterday at my grandma's house and none of my cousins would believe me, but it was puffy this morning and if I end up in the hospital I expect presents and foot massages!

Love,
Jenna

Wednesday, June 16, 2004 7:40 AM CDT

Yesterday, Jenna's cousin Brea died of complications from colitis. Brea was 19 years old and had been struggling with this illness for the past year. Never in our imaginations did we, the family, think that things would turn out this way. Brea had had 3 surgeries in the past 4 months, and it seemed that whatever could go wrong went wrong. The doctor called the turn of events a "catastrophe".
Brea is survived by her mom, Mary and dad, Ray. She has an older brother and sister. Mary is my sister.
Brea was disconnected from life support yesterday and died within minutes surrounded by many family members. I am grateful I was able to be with Brea and everyone else yesterday. Today I ask that you say a prayer for Brea's parents and brother and sister. Funeral arrangements are pending.

Jenna and her dad were in Rochester yesterday. She has started a four day outpatient chemotherapy treatment. She is doing well.

Lisa

Monday, June 14, 2004 11:26 AM CDT

Hi Everyone!

We arrived back in Minneapolis at about 1:30 on Sunday morning (I think that's right, I'm still on Barcelona time!) They had to fix some "mechanical problems" on our last plane from Chicago and then of course Jack's luggage got lost so we were basically the last ones in the airport! I thought I had adapted to the time change because we picked up 8 hours on the way but I think my body is still confused!

The cruise was so beautiful. I had the opportunity to see all the historical sights that I was probably supposed to be studying in History and Cultural Literacy class. We began our trip in Barcelona, where we flew in at about noon on Friday. There were a couple complications retrieving our luggage and figuring out rides and hotels but once it was all figured out, Barcelona was definitely one of my favorite places. We were able to stay overnight in the Gothic area of the city, were all the building dated back to at least the 14th century. I love that city because the elaborate, old building rise up tens of stories above you over the very narrow streets. Shops and restaurants line the streets where tiny little cars and scooters zoom everywhere honking horns, swerving in and out of people, and nearly slamming into the traffic ahead. We left the next afternoon to board our ship!

The ship was very extravagant, they thought of nearly everything to cram on there! It had 2 pools, a rock climbing wall, mini golf course, theatre, observatory, bars, lounges, restaurants, shops, a casino, etc. We had very nice rooms that were not at all cramped. Every night we had at least a 4 course meal and the waiters put the napkins on my lap for me, called me sweetie, and brushed the crumbs off our table before dessert. We also had dinner with the captain one night and that was very formal - formal to the point of busting out my prom dress and not being able to eat until he said "bon appetit"! However, I felt a little guilty because I didn't really take advantage of the ship that much until the last few days because we were so tired after traveling around Europe all day!

On Sunday we docked in Marsailles, which is a beautiful harbor lined with tall, French buildings with the little iron balconies from each window. The city was nice, but we weren't able to get its full flavor because almost everything was closed because it was Sunday. On Monday we were still in France, docking at Villefranche. From Villefranche we could take a train to Nice and Monte Carlo, of course we did both! Villefranche was a favorite of all of ours because it was a smaller port with lovely scenery and red, orange, and yellow buildings that climb up the mountains and cliffs that line the sea. We ate dinner at a cute little cafe on a narrow street. We also went to Monte Carlo which was of course very gorgeous, kind of the Beverly Hills of France. There everything is very expensive, but the city is very clean and well-kept as Ferraris and Mercedes cruise the lit streets. Nice was very busy, with horns constantly honking and people bustling along some of the main shopping streets. The beaches there were gorgeous (yes they were topless...), but the water was very blue and the view of the coastline was magnificent.

On Tuesday we arrived in Livorno and from there we took a train to Pisa to see the leaning tower. It's still leaning. It was cool to see the tower for yourself, because it's a lot more breathtaking to bring the pictures you have seen to life. We then took a one hour train to Florence, which was a difficult city to navigate. Because we had already been to Livorno and Pisa and had to travel so much on the train, we didn't have much time at all there, which was very regrettable for us. We stood in line (actually we had my dad do it while we looked around :) for 2 hours to see the real marble Statue of David, sculpted by Michaelangelo. For me it was worth the wait because seeing this amazing work of art in person is amazing. We learned all about its history and looked around in the rest of the museum.

On Wednesday was the big day of Rome. We took a tour this day to ensure that we would see all that we could in the short time we were there. As we traveled from landmark to landmark, we also passed many ruins on the way which were pointed out and got a true history of the city and its rulers. We were in and around the Colleseum, the Sistine Chapel and its museum, the St. Peter's Square in the Vatican, and St. Peter's Basillica. We were able to see the Pieta and the place were Julius Caesar's funeral address was made, and obviously the wonderful frescoes on the ceiling of the Sistine Chapel and the Last Judgement on the front wall. Everything was so wonderful because you could truely get up close to all you saw. The Pieta was the only masterpiece under glass, but everything else was suprisingly accessible. It was a very good day in Rome.

Our next day was spent in Naples and Pompeii. We docked in Naples where my mom and I shopped and walked around all morning. The stores in Europe usually don't open until at least 9:30 and then close for siesta from 1 to 4, the hours are really bad! To fill some of this time, my mom and I stopped at a church to pray and everything. The priest kicked me out! I forgot that I had bare shoulders that day and as he walked up for mass he kicked us out. I don't think any of you can claim that! We really enjoyed the street markets with cow innards and legs hanging in the windows, fish in the streets, fresh fruits and vegetables ready for market, and of course all the other shops. This was where the natives shopped mostly and we really got the true flavor of this very busy, dirty city, but we ended up loving it. We also took a tour of Pompeii that afternoon with my dad and brother. That was probably one of the most interesting things we did. This 2500 year old city was very well preserved and was about 250 acres big. Paintings, columns, marble, mosaics, and even ovens were intact.

The last day was spent at sea as we sailed back to Barcelona and I took the opportunity to try to even out my tan. The trip was wonderful and it is still sinking in that I saw all I did. It truly was magnificent and I know what I wrote didn't nearly describe its beauty, but this entry was already a novel!

I go back to Rochester tomorrow already to probably start another round of chemo, hopefully it will be my second to the last round for awhile!

Love,
Jenna

Tuesday, June 1, 2004 4:25 PM CDT

Hello Everyone,

Well, all this graduation stuff is all over with and I can move around to thinking about my lovely trip! I've basically had something big going on everyday and I had to take it one day at a time, but now I can get myself excited about Spain, Italy, and France! Make A Wish has done an awesome job planning the trip and even the smallest details have been arranged. They have been very thoughtful. We leave tomorrow to spend one night in a hotel in the cities and then we fly out Thursday for Chicago, then London (we get a little layover, yay!), then Barcelona, where we spend one night before departing from the pier. We visit the French Riviera, Naples, Nice, Rome, Florence, etc. We'll get back on the 13th. After that I'll probably do another round of chemo and focus on taking placement tests for college, doing some volunteer work, and just having an awesome last summer with my friends.

My graduation party was very nice. Thank you to all those who came and introduced yourself. I really appreciated that everyone came and it was splendid to meet you all. I'm happy the rain stopped and our tent didn't cave in on everyone like it did that morning! I'm thinking about leaving all those Jenna pictures and awards (basically a shrine) up all year round! haha...Thank you for all your cards, gifts, and presence at my party. I loved it.

Love,
Jenna

Thursday, May 27, 2004 7:54 PM CDT

Hi Everyone,

Well today was marked with many tears....tears of happiness! After 8 tests, injections, and waiting rooms, the Dr. Anderson reviewed the results of all my tests today that were done to check how the radiation had affected the tumor (osteosarcoma if you didn't remember) and to also use as a base to decide how we will continue the treatments when I go to college.

Through the MRI, they found that the tumor had shrunk! It used to be 4x6x4 cm (that's pretty big when I think about it) and it is now 3x5x3. They also did a PET scan which uses blood sugar levels to identify the activity in the tumor. The brighter the scan, the worse the results. My tumor was said to be minimally to mildly active and isn't nearly as white as he had seen other scans. That's basically all the information he was able to give because he actually read the scans on the spot. Again, their purpose was mostly to serve as a reference point for the same tests I'll be taking in August. Surgery right now isn't probable because it is still around the brain, coratid artery, etc. However, some of it seems to be dead cells and will just stay there. The plan for summer is to continue the chemo treatments I am receiving now, which will probably be 2 or 3 more. I may also get 4 days of chemo instead of 3 since I handled it so well last time (besides the transfusions I needed!) But hooray! I didn't get in the hospital last week, which was a milestone in itself. I may be done with treatment by the time college rolls around...but he said I have a very good chance of achieving local control of the cancer. Although the bone scan results weren't back at the time of the consulation, the chest CT didn't show any growths and he said we can assume the same of the bone scan.

So thank you so much for your prayers this today, this week, and always. I finally got some good news and a little bit of a miracle that we've all been praying for.

Also, this Friday and Saturday night (the 28th and 29th) and next weekend (the 4th and 5th) 10 of my friends and former fellow actors are performing "Godspell" at the Sleepy Eye St. Mary's School Theatre. They have been working very hard for a couple months to prepare this musical, which is actually a benefit for me. It is so sweet of them to put on this amazing, difficult show. They are all so talented and I hope that you will attend one of the performances.

I was so glad to deliver this good news today! I was so nervous! I hope to see you all at my graduation party! Even if I have never met you, don't know you very well, or you are my very best friend in the world I would love to converse with you and see you there! It's from 2 until 6 at my house. (519 North Minnesota Street)

Lots of Love,
Jenna

Saturday, May 22, 2004 11:46 AM CDT

Hi Everyone!

This is the first opportunity I have had to write since Monday! To say my week has been busy is an understatement. Monday night was spent in the hospital in New Ulm just getting 3 blood transfusions, I was there until midnight! I felt much better after that though because it raised my hemoglobin about 3 points which was much needed. Tuesday night consisted of me stressing out at my desk trying to finish the paper that I needed to write to graduate. The entire thing including notes and interviews ended up being 57 pages. That's crazy. Wednesday night was completely awesome going to game 7 of the T-wolves game vs. the Kings. Of course you know the kicked some booty and Wally was really workin it on the court :) Of course 6 teenagers from rural Minnesota in Minneapolis is always an experience! We definitely forgot to check not only our parking ramp level, but also which ramp we were actually in. There's nothing like roaming around Minneapolis parking ramps after a Wolves game 7 victory, I'm sure that was perfectly safe! Nevertheless we found our car and I celebrated the first minutes of my 18th b-day still all excited from the game road tripping it home.

I hate to say it, but until about 9:00 at night on my birthday, it really was the worst day ever. My formats were all changed on my paper and it was absolutely horrible to change all the outlines. Then, none of the printers would work to print my paper and I was so frustrated and stressed trying to complete it because it was the last day of school. Secondly, my platelets were extremely low (8,000) and I needed an immediate transfusion. Then the nurse didn't really know what she was doing and the needle wasn't in the right place so when all the fluids were going in, my abdomen swelled up like a balloon and it hurt really badly! Sorry to give you such a negative account of my birthday, but don't worry, I don't even remember that anymore because all was saved when I hung out with Kyle later that night. Thank you to all who sent birthday cards and notes, it was very nice of you and boosted the day!

Yesterday we were supposed to go to Valleyfair but ended up having to return to school after our graduation practice because it was so rainy. Everyone was absolutely disgruntled and were walking around slouching and kicking things...haha. They did pull through by handing out our class paper with all the senior sketches in it, ordering pizza, and renting us a movie to watch. We did have to go to 3 classes that day though when we were actually supposed to be done with school! It just made the actual last day really seem like a last day and now we are definitely all done! Graduation is tomorrow already!

Next week is when I have my MRI, CT scan, body CT scan, PET scan, and bone scan. That's a lot of scans and I basically can't eat before any of them so I'll be hungry for 2 days straight! We had the appointments switched to cover Wednesday and Thursday instead of Friday because as you all know there's a wonderful graduation party that you're all invited to on Saturday! (check the previous entry if you haven't seen the invitation!) So keep up those prayers for me, please, we're hoping for the best!

Lots of Love,
Jenna

Monday, May 17, 2004 11:09 AM CDT

Hey Everyone,

Well today marks my last Monday of school...don't all cry at once! Everybody is dragging around here, anxious, stressed, and eager to get all their work done and not flunk at the same time!

I attended our senior class banquet and awards ceremony last night. I got some nice awards, scholarships and honors and it was nice to see my classmates receive the same. It was another of those class unity type things that I think will be coming up often here in the next couple weeks.

I'm still not in the hospital! Although I'm really tired and dizzy-faint-like, I haven't caught anything yet and I hope I'm not jinxing myself now. I did go in this morning to get my blood checked and I need a couple red blood cell and platelet transfusions, but that will hopefully just make me feel better. If I don't land in the hospital this week, it will be the first time I haven't ended up there after a chemo treatment since the first time I got chemo. I would really like to stay out of Rochester this week with all the "lasts" that are going on...you walk around school like "this is my last monday" or "this is my last cultural literacy test" or "this is the last time pitching up a lawnchair in senior hall". I can't say that I'm too heartbroken at the moment, but you know I'll miss it! Thanks for praying for me and keeping me out of the hospital this week. Thanks for also writing to me in the guestbook. I know it seems kind of one-sided to do so but I definitely check it and appreciate your words everyday.

Love,
Jenna

P.S. Look at the previous history on here to see details about my graduation party. You're all invited!

Saturday, May 15, 2004

Jenna and her parents, Kurt & Lisa, invite everyone to celebrate Jenna's graduation from Cathedral High School. There will be an Open House on Saturday, May 29, 2004 from 2 - 6 p.m. at Lisa's home, 519 North Minnesota Street in New Ulm.

We couldn't possibly send invitations to everyone who has been so generous in the past year, but please stop by - whether you know Jenna a lot, a little, or only through this web page. Don't feel obligated to bring a gift; just join us for a chat and a little snack. Your attention, prayers, and kindness have been amazing!

Jenna's Family

PS - Jenna finished her latest chemo round, and except for being very tired, is doing well. She is quite determined to stay as healthy as possible and is eating, drinking and sleeping as much as she can. Yesterday she was able to go to school and do some other things, which is important! For her it is important to find that magic blend of just enough rest and activity.

Monday, May 10, 2004 6:30 PM CDT

Hi Everyone,

Today was another glorious trip to Rochester. I started chemo today which should hopefully all be outpatient. I can no longer handle 5 days of treatment at once so I'll be getting 3 days again. I have this cute little pump that I get to carry around all day and I just have to switch the cartridges each day. I also have to take another chemo drug in huge, massive horsepill form that I'm very excited about. I shouldn't hopefully get sick initially from this but eventually my counts will go down and all that in another week and they're basically already scheduling red blood cell and platelet transfusions because they're borderline low now, especially for starting chemo. They also scheudled my follow-up radiation tests for May 27th. I'll be having a PET scan, MRI, head CT, bone scan, and another one that I forgot (whoops). These tests will also be used to compare my progress in August to see if I have had enough treatment by then (that will be almost a year of this already!) We're very nervous about these tests considering the last results, but also very optimistic and hopeful. The docs are actually very optimistic about the results because my bone-making enzyme is low and they can no longer tell externally where the tumor is in my head. They have had some success stories with the kinds of treatment I have received in conjunction with osteosarcoma. I'll be curious to have the test results but I am not too excited about the actual test date! MRIs and bone scans aren't my cup of tea! Take care!

Love,
Jenna

Thursday, May 6, 2004 9:34 PM CDT

Hi Everyone,

I just got home from watching the last "Friends" episode...my friend (ahem Katie) actually cried. It was pretty good though, I have to admit.

I've been to school most of the week, working on my paper every chance I get it seems. I didn't go to school on Tuesday though because our Lifetime Activities class went golfing 9 holes at the Country Club in the morning. We played best ball of course and our team had some good shots - we ended up with a 47, not too shabby. It was pretty entertaining watching my left-handed friend use the back of right-handed golf clubs and use her softball swing to try to hit the ball. It really was a good time. Then it was off to a classmate's cabin for a cookout all afternoon. The weather was beautiful and trust me, I ate my fair share of food! Then Katie and I went shopping all afternoon and I got the best shirt. It says "Cancer" on it in big bold letters. It's supposed to be like the astrological symbol but I wear it for fun and I don't think people realize that I mean to be ironic. Then I went to watch the Wolves lose...that was sad and I sincerely hope it never ever happens again.

Otherwise I have been trying to get things for college done. I did find a roommate who is actually from Rochester, name Jennifer. She seems really fun and we'll have a good time. I also have to take some placement tests and figure out orientation and all that...yay!

MOST importantly, I heard from Make A Wish yesterday! The cruise is set! We will actually leave June 3rd and fly to Chicago to London to Barcelona where we'll board on June 5th. We'll be traveling to places like Mersailles, Nice, Florence, Rome, Naples, and Pisa. So far my immediate family gets to go with.

Thanks for checking up on me and thanks for your continuous prayers and thoughts!

Love,
Jenna

Monday, May 3, 2004 7:58 PM CDT

Hello Hello,

I am really sincerely sorry that I haven't written in awhile. I guess that's just a hint as to how busy I've been...or how lazy, whatever! I guess I'll start with the beginning of the week and tell you all about my wonderful life...

Tuesday I needed a platelet transfusion because when I had my blood taken, they were only at 12,000, your's are at least one hundred thousand at the lowest. So after that transfusion I felt really well, although I did prior to that too - it was very surprising to me that they were that low. The rest of the week was great although it was absolutely freezing! The cold really subdues satisfaction in attending baseball games. I went to school all week and even worked on that good ol' paper I need to do for graduation...ugh..Friday night I was treated to a dance performance at MSU by Katie and her mom. Most of the numbers were very good and funny but others were a little too interpretive and even frightening, it was enlightening to see a different style of dance, however. After the show we went to Barnes and Noble for drinks (my favorite caramel steamer) and searching for good books. Mrs. Moeller was very nice and bought me "My Antonia" and "The Grapes of Wrath". I had wanted to read both of them and it looks like my nose will be in a book all summer long.

Of course I had another lovely prom this weekend. I wore a different blue dress with a massive train that I borrowed from a friend, it really was my favorite dress and it's not even mine! I stuffed myself with another chicken kiev dinner...yum! Even though I have been eating non-stop, paying no attention to calories, I have only gained half a pound! I feel like a guy! The dance was very fun, I again attempted to show my skills on the dancefloor although I was more tired this weekend. It was entertaining and different to dance with people from another school, but always a good time. I have some sweet friends at St. Mary's so they made it fun. I meant to take a cat nap after the after prom party but I ended up sleeping all morning...whoops! I slept most of Sunday, and slept both ways to Rochester today and I'm still tired! I think I have an excuse though because my hemoglobin is low.

Today in Rochester I was supposed to start chemo but can't because my platelets are still too low. We are supposed to go back next week to start and hopefully I'll be recovered enough by then although my platelets are always really putzy! They also discussed using another chemo drug because they don't think I'll be able to handle this one much longer because I've been doing chemotherapy for so long and it's taking a toll on my blood counts and bone marrow. The chemo that I'm taking now is supposed to be given over 5 days and I am only able to handle 3 days and even then my platelets are so low. The new chemo drug would be less harsh and wouldn't make me lose my hair! I don't know if this is necessarily a good thing but I wouldn't mind some hair sprouting! Well, I think that's enough of a novel for now. Pictures will be up in a bit! Thanks so much for checking up on me!

Love,
Jenna

Monday, May 3, 2004 7:58 PM CDT

Hello Hello,

I am really sincerely sorry that I haven't written in awhile. I guess that's just a hint as to how busy I've been...or how lazy, whatever! I guess I'll start with the beginning of the week and tell you all about my wonderful life...

Tuesday I needed a platelet transfusion because when I had my blood taken, they were only at 12,000, your's are at least one hundred thousand at the lowest. So after that transfusion I felt really well, although I did prior to that too - it was very surprising to me that they were that low. The rest of the week was great although it was absolutely freezing! The cold really subdues satisfaction in attending baseball games. I went to school all week and even worked on that good ol' paper I need to graduation...ugh..Friday night I was treated to a dance performance at MSU by Katie and her mom. Most of the numbers were very good and funny but others were a little too interpretive and even frightening, it was enlightening to see a different style of dance, however. After the show we went to Barnes and Noble for drinks (my favorite caramel steamer) and searching for good books. Mrs. Moeller was very nice and bought me "My Antonia" and "The Grapes of Wrath". I had wanted to read both of them and it looks like my nose will be in a book all summer long.

Of course I had another lovely prom this weekend. I wore a different blue dress with a massive train that I borrowed from a friend, it really was my favorite dress and it's not even mine! I stuffed myself with another chicken kiev dinner...yum! Even though I have been eating non-stop, paying no attention to calories, I have only gained half a pound! I feel like a guy! The dance was very fun, I again attempted to show my skills on the dancefloor although I was more tired this weekend. It was entertaining a different to dance with people from another school, but always a good time. I have some sweet friends at St. Mary's so they made it fun. I meant to take a cat nap after the after prom party but I ended up sleeping all morning...whoops! I slept most of Sunday, and slept both ways to Rochester today and I'm still tired! I think I have an excuse though because my hemoglobin is low.

Today in Rochester I was supposed to start chemo but can't because my platelets are still too low. We are supposed to go back next week to start and hopefully I'll be recovered enough by then although my platelets are always really putzy! They also discussed using another chemo drug because they don't think I'll be able to handle this one much longer because I've been doing chemotherapy for so long and it's taking a toll on my blood counts and bone marrow. The chemo that I'm taking now is supposed to be given over 5 days and I am only able to handle 3 days and even then my platelets are so low. The new chemo drug would be less harsh and wouldn't make me lose my hair! I don't know if this is necessarily a good thing but I wouldn't mind some hair sprouting! Well, I think that's enough of a novel for now. Pictures will be up in a bit! Thanks so much for checking up on me!

Love,
Jenna

Sunday, April 25, 2004 8:31 PM CDT

Hi Everyone,

It didn't take much for me to recover from prom today, I actually felt really well yesterday and I'm just a tiny bit tired and sore today - you don't use many muscles lying around in a hospital bed! I really had a wonderful time. Kyle and two other friends and I began our day cruisin around in a sweet '04 Mustang convertible that my dad got for us. Although it was a little chilly and rained at the end, we didn't hesitate to take advantage of the car! We then took pictures with the rest of the senior class at Schells. I think we all still have our smiles glued on with all the pictures that were taken. Everyone looked really beautiful (or handsome) of course! Then it was off to church and then to the Country Club for formal pictures and dinner. I decided that I really like that I'm supposed to gain weight and could eat all the chicken kiev I could! I was also very proud of myself for not squirting butter all over my dress. We had a little time to drive around before the Grand March. The theme was "A Night to Treasure" and the decorations were very well done. After another film full of pictures, the dance finally started! Basically my favorite thing to do is dance so I had an awesome time showing my moves...haha. I actually had lots of energy, of course I couldn't dance to my full potential because of my lack of any muscles...I'm definitely not all strong and lifting weights! By the end of the night my feet hurt like all the other girls in heels and I think I just may deserve a foot massage :) The dance was followed by our famous after prom party at the bowling alley. Pool, black jack, bowling, karaoke, massive amounts of food and prizes filled the 4 hours we spent there. Kyle and I had a very accurate caricature drawn of us; it's very beautiful, you should see it. Kyle's smile and long body are accentuated :) - I don't think he likes it! I also won a gorgeous baseball cap that says "Prevent New Infections Naturally" on it...I still don't know why it says that but I am wearing it everyday. I also won a good ol' George Forman grill during the big prize drawings, so I'll be making huge amounts of meat in the future I guess. After that most of the seniors went out to Kyley's house for the after after prom party and breakfast but we were all so sleepy that anything made us laugh and we all ended up falling asleep, can't blame us at 7 am! I had a stupendous night and morning, I don't think I ever stopped smiling, even during the couple mintues when pictures weren't being taken!

I hope you enjoyed my recap of prom yesterday. I really had a wonderful time and thanks for all your prayers for getting me out of the hospital on time. I just needed some blood transfusions and antibiotics. We were out of there around 2 on Friday and then had to run some last minute prom errands. Thank you to all of ya who check my website and write in the guestbook and pray for me and send me cards and think of me and all the other wonderful things you do for my family and I. Don't worry, we are working on the pictures because I know you want to see them :)

Love,
Jenna

Friday, April 23--High Noon

GREAT NEWS!!!!

I just talked to Jenna on the phone. It seems as though she has made a remarkable recovery and will be released from the hospital later today. She was very excited and I am so happy for her. Thanks to everyone for the extra prayers. She will be taking it easy tonight to gain strength for the big day tomorrow.

Kurt

Thursday morning. Hi to everyone. I want to leave Jennas last writing on the main page but wanted to add a brief update. Jenna started feeling worse late yesterday afternoon.Her grandma was with her and it was decided to call Lisa home from work. Lisa called the doctors at Mayo and they asked that Jenna be brought in right away. They packed quickly and we all met at the hospital about 7:30pm. After a couple of hours in Emergency Jenna was moved to a room about 9:45. She was feeling a little better and we hope her stay will be very short.
Kurt

Why Hello Everyone,

We made another treck over to Rochester today for checkups and nothing was too horrible, better than I expected actually! First of all, my counts were definitely low today but not so extremely low that I had to stay hostage in the hospital. I had one transfusion today of platelets and a shot to increase the production or red blood cells. I'll have 2 more on Friday to pump me up or whatever for prom this weekend! My doc was pretty optimistic about everything and very willing to try to work things out. I guess all the nutrition I was inhaling helped and I'll continue to be cautious this week of all the nasty germs out there, none of that is getting in this body! I don't know if I am going to explain this right but I'll try - The doctor also gave me reason to hope things are going in the right direction. Apparently when I was first diagnosed a component of my blood that describes how much bone is forming in your body was at 800. Now that enzyme is at 80, in the normal range, which most likely means that the tumor isn't growing. I hope that made sense but that gives me reason to be optimistic. It's not necessarily concrete evidence but it's hope.

GUESS WHAT?! I was also approved yesterday by the Make a Wish Foundation of a Mediteranean Cruise! I can't even desribe the excitement I felt when I read the letter. The doctor said we should go around the 2nd week of June. It's good for 8 days and 7 nights of pure tropical bliss, all expenses paid for down to souvenirs. I hope it doesn't sound like I'm bragging, I'm just very much looking forward to it. We don't know exactly what countries we'll visit, the Make a Wish people now have to look for the actual cruise now that it's been approved. Thanks for your prayers, they're obviously helping.

Love,
Jenna

Monday, April 19, 2004 11:12 AM CDT

Hey Everyone,

Well I spend this weekend mostly just taking all the precautions not to get sick. I think I have inhaled every nutrious drink my mom could find and all the good fluids and food groups I could! I spent a lot of time outside in the beautiful sunshine. It's definitely very much different than the chilliness of today, I liked the sun shining on me as I read a whole lot of "East of Eden" in my backyard. We definitely felt threatened by the weather last night...very exciting. It got all dark and green and windy, the lightning was awesome, but of course nothing happened besides the excitement of the threats. The Wolves game was pretty good last night, Kevin Garnett and Sam Cassell totally eliminated the Nuggets' attempts to win. Hopefully I'll make it to the softball or baseball game tonight and maybe even a little school later :)...I'm just trying to stay away from all the sick people around, my counts are supposed to be at their lowest tomorrow.

We'll be going to Rochester tomorrow for checkups and hopefully they won't keep me hostage! I see one of my favorite doctors tomorrow who is really good, but also very leniant, so hopefully I'll be turning right back around tomorrow. I finished the last chemo treatment on Friday night (my mom had to take the needle and everything out of me, that was an experience!) I was really weak and exhausted all weekend but I seem to be feeling better so hopefully nothing will happen! Thanks for checking on me and God bless!

Love,
Jenna

Friday, April 16, 2004 12:04 AM CDT

Hello Everyone,

I'm almost done with round...yay! Then there's hopefully only four more to go (or hopefully maybe even less...). I'm very nervous as to how this will all turn out. Last time I ended up in the hospital horribly sick for 2 weeks, but that was last time and I won't let that happen again! The only reason I agreed to having chemo was because I'm allowed to do it 3 days instead of 5 which will hopefully be easier on my body. Also, last time I was just finishing up with radiation which obviously didn't add any comfort to the situation. So I'm giving this a try to appease the good ol' mayo docs and I'm hoping they'll come through for me. So far I've just been very tired but I can' sleep and am restless. I remember these effects from the first time around, I guess it just makes you feel weird when you're all toxic!

I'm really going to try to get out and enjoy my family and friends and this nice weather as much as I can this weekend. I'm so tired of being cold! Summer needs to come very very quickly...sunshine and sapphire skies and all. Thank you so much for continuing to think of me through all these months. I'm still fighting hard although I do have to admit, things are getting a little redundant and annoying. Thank you for your prayers, they are much needed.

Love,
Jenna

Wednesday, April 14, 2004 2:34 PM CDT

Hi
Well we went to Rochester yesterday and the doctor offered Jenna a compromise of 3 days of chemo instead of the regular 5 in order that Jenna can make it to prom on the 24th of April. Jenna agreed and so last evening she started the chemo. We thought we would be able to handle the rest of the treatment through New Ulm once she got set up but there was some confusion at Mayo and so Jenna needs to be there on each of the three days. Jenna has a 24 hour pump she is carrying with her in a fanny pack kind of thing. So every 24 hours we need to get another refill and also she gets another drug through her port at St. Mary's. Anyway she should be all done by sometime Friday night. Now she went to school for a few hours and then we will take off for Rochester. Enjoy this beautiful day.
Thanks for your prayers and kind thoughts.
Lisa

Monday, April 12, 2004 1:16 PM CDT

Hi Everybody,

I'm not going to lie, I was actually jumping for joy when I heard my counts were still too low. I know that sounds bad, but if I would have started chemo I almost definitely would have been sick in the hospital during both proms. Not only am I a girl, but I'm also Jenna so missing prom would be almost tragic! haha...I'm heading back to Rochester tomorrow for a plethera of appointments with its usual redundancy, but you know I'm used to it and it will be fine. However, I really will not let them start chemo until about the 25th of April...you've heard the reasons. I know you're probably all wondering about the effects of the radiation and so am I. I don't know exactly when they will do an MRI and other tests to see, but they did say that they have to wait between 1 and 2 months before they tests so the inflamation and swelling inside my head can go down. Otherwise they don't know is cancer and what is inflamation I guess.

I also hope you all had a wonderful Easter. I really did. I went to my Aunt Ann's in St. Paul with all the family and ate pounds and pounds of food like you really have to do on Easter. I even won our traditional scavenger hunt without even playing; I have skills, what can I say. Thanks for checking up on me and continuing to think of me and pray for me. Happy Easter!

Love,
Jenna

Friday, April 9, 2004 5:24 AM CDT

Hello,

I have a short update on Jenna. Based on yesterdays blood work Jenna's counts were not high enough to enable her to begin her next chemo session. She continues to work hard to gain strength. We will tentatively meet with the doctors next Tuesday to determine a revised game plan. Thanks for all of your thoughts and prayers.

Kurt

Monday, April 5, 2004 8:59 PM CDT

Just a quick note to update you on our appointments today. I wasn't able to start the chemo once again...it's already been a month since the first round and I still haven't recovered. Actually, my white blood cell counts and neutrophils even went down since last week. The doctors really had no suggestions as to why that happened, "I may have had a cold" is their only inclination. They want to start it hopefully this Friday, so I'm not very excited about going to the doc's all day on Friday when everyone has off of school. Also, I'm worried that with prom the last weekend in April, I'll still be sick from the chemo if we start it this late. That's just a little tiny update for today...I actually wrote a good update yesterday so if you haven't, go ahead and read that one too!

Lots of Love,
Jenna

Sunday, April 4, 2004 6:46 PM CDT

Hello Everyone~


I have had a very busy and fun week. I was not able to begin my chemo on Monday because my blood counts weren't high enough yet, especially platelets. I had my blood tested yesterday and if everything is back to normal I should be ready for round 2 tomorrow. We'll be going to Rochester to have all our appointments and hopefully I'll be able to do the chemo outpatient which means I'll have a little pumpy thing to carry around with me all week. This is 80 million times better than being in the hospital for 6 days, yay!

This week I got to go to school often. Although I slept through some of it, I really was attentive and I enjoy school much more than most of my classmates. I guess when you're away from something so long you really miss it, even if it involves sitting in a desk for hours. I also took up guitar this week! One of my classmates, Eric, is really good at it and he's being so awesome and teaching me acoustic. My hands are really small and not very strong but I'm still trying and maybe I'm not too horrible...I also had a lot of fun with friends this week going random places and doing stupid, spontaneous things like riding carousels, hot tubbing, playing Fusion Frenzy (the best Xbox game ever), dancing to "Cotton Eye Joe", and playing laser tag...good times. I also had the opportunity to speak to the 8th grade religion classes at Holy Trinity. I talked about cancer, what it is, how it has affected me, etc. They were particularily good listeners and I didn't even see one person nod off, doodle, or basically takes their eyes off of me...it was a really good experience for me, and I hope for them too.

Friday night was the Tim Orth benefit, which was a huge success. I feel bad that I had never been to the event before because it was a lot of fun for a good cause. 1800 people attended the boys and girls games. The tomahawk conference beat the red rock conference in both games. The mascots were very entertaining, as were the Alexandria Aces. They are a group of young kids who spun the ball in the fingers while doing lots of different stunts. I even got kissed by two mascots and got a picture with 5 midgets and got to touch the bald head of one! A very sincere thank you to all of you who attended and even to those of you who wish you could have been there! It really was a great night because of all of you being there. Thank you.

Love,
Jenna

Sunday, March 28, 2004 2:52 PM CST

Hi Everyone~

Well, I had just a marvelous week being home. I went to parts of school everyday besides Thursday because I had a blood transfusion. Other days I went but I would have to sleep during some parts lest my head would hit the desk in pure drowsiness and you wouldn't be able to pry my eyes open. I also had a couple clinic visits to check blood counts, get shots, etc. My throat still isn't feeling much better; the pain comes and goes. I'm still basically living off of my favorite old people food of delicious Boost drinks, but I am also covering the age range by occasionaly eating banana baby food for some much needed potassium! I know you're all jealous of my diet, just admit it.

I've been really busy balancing sleeping and playing and sometimes school. I'm trying to find a new, creative hobby now that danceline is over and I don't know what to do with my self...maybe kite flying or stamp collecting...haha. Actually, I really want to learn how to play the guitar. I was also thinking of taking up some kick boxing or yoga if I can figure out some class schedule somewhere because I don't think New Ulm has many options! I went to the St. Mary's musical last night which defnitely reminded me how much I miss acting and singing and dancing and such. I'm also really enjoying the warm weather and my ability to frolic in it with friends.

Also, this Friday, April 2nd, is the Tim Orth Memorial basketball game. It is a super big fun game that features senior basketball players from around the area competing against each other. The girls game begins at 7:00 pm and the boys game follows. They also have other entertainment, mascots from both college and pro-sports teams, a slam dunk contest, and a 3 point contest. Each year the proceeds go to local kids with life-threatening or chronic illnesses and I have been graciously selected to be one of the three kids receiving funds from it. It's at Martin Luther College in New Ulm and doors open at 5:45. I would love to see you there, many people have worked very hard to contribute to this event and make it great.

Thanks for checking up on me!

Love,
Jenna

Monday, March 22, 2004 12:08 AM CST

Hello Everyone!

It feels so nice to be home for a whole 4 days, I don't even know what to do with myself. Well, actually I haven't had any problems being bored or anything; when I'm home I never stop smiling because there's just so much to do and so many lovely people to be with. I am feeling pretty well, although I still can't eat very well. We solved that problem by having me eat old people food that has all those yummy nutrients all blended together in a can in 3 fantastic flavors. Other than that it's basically soup and yogurt. mmm....

I plan on being home all week and weekend long so I'm really looking forward to that. I got to keep my radiation mask thing since I am now finished, yes done, with all my treatments, so if you want to see it, just ask. It's really a beautiful sight. Although I do tend to cram a lot of events into my day, don't worry I am a strong believer in sleep and I insist on getting about 12 hours a day.

Can you believe it? Right now I am actually in study hall. Yes, that is right, I am finally back to school. I tried to go on Friday but I ended up in the clinic for a long while getting fluids and potassium and such because I couldn't eat but today is going much better. Although I should be reading "Hamlet" or writing my reivew of "Romeo and Juliet", of course I choose to procrastinate and update my site. That's quite important though too!

I'm sure some of you caught the special that Kare11 had on caringbridge last night. I just want to reiterate how nice it is to come home to your uplifting messages. When I've had a bad day or have had to spend hours in a clinic instead of going to school, it's very comforting and nice to know that you all are thinking of me and praying for me. Together with prayer, we'll beat this thing.

Love,
Jenna

Sunday, March 21, 2004 1:50 PM CST

Hello everyone

Just a quick update, Jenna did get home on Wednesday night and she did see Romeo and Juliet on Thursday. She liked it a lot. On Friday she went in to the clinic in New Ulm for routine blood work and ended up getting fluids and potassium until 4:00. But she still made Kyle's game in Mankato. Unfortunately the Knights LOST!!!!....That was a huge letdown for everybody, but they had a GREAT and exciting season.

Because Jenna's platelets were looking low Friday the Drs. at Mayo said she needed to come in on the weekend for a transfusion. So now we are here at St.Mary's (Sunday)and she is getting those platelets and some potassium, but we don't have to stay.

So those of you who spend a lot of time with Jenna have to bug her to eat and drink more, that would help her get better sooner.

Later
Lisa

Tuesday, March 16, 2004 4:32 PM CST

Why Hello Everyone,

Well things are finally turning around here! Guess who only has one day left of radiation left?! I made it1 You can even throw me a little party complete with little chocolate cupcakes with sprinkles and little Disney Princess party hats! haha...I'm just joshing with you. My white blood cell counts are finally coming up and I got 3 blood transfusions today of platlettes and red blood cells. Therefore, those white blood cells are starting to heal up my throat and lower my fevers. In order to get my tumor fried everyday, I've been having to take a little medicine to make me a little sleepy for radation which helps me handle it better in addition to some extra morphine. But it's ok, I can handle just one more day! I'm also very happy to say that I'm getting out of here tomorrow! I'll just have to be on a lot of antibiotics at home and they'll also send me home with some pain medications. I'm actually supposed to be back here according to schedule next Monday, but that won't happen, not to worry, I'm getting a much needed and deserved break. I've basically been here for 2 and a half weeks straight with a day and half home! Yuck!

I'm very excited because I get to see "Romeo and Juliet" at the Guthrie with my parents on Thursday. That is my absolute favorite story and I'm so in love with it, I may even marry it. I also got to go out on pass last night to Kyle's playoff game in St. Peter. He did very well, scoring 16 points, and I had a really good time talking with everyone and watching him play and such. I can't wait to get home and I'm going to soak up all the fun and smiles and people I can when I get there and I think they're going to have a very difficult time getting me back here! They may need to use some sory of construction equipment to forklift me here or something...haha...Thank you for all your prayers. They got me out of here as soon as possible.
Take care!

Love,
Jenna

Saturday, March 13, 2004 8:35 PM CST

Hi Everyone~

Well it was a pretty rough night, I have been having these really creative, realistic dreams! They're bad because I can't actually fall into a deep sleep so I have been telling my nurses lots of lovely, interesting details of my dreams throughout the night, sometimes even with actions! I have always been spiking really high fevers the last couple of nights. Last night my temperature persisted at about 104 and almost 105. I don't feel too horribly when that happens, the doctors aren't too worried, they say it's my white blood counts trying to work or something...I'm just having very dramatic nights!

Today I spent much of my day catching up on my lost sleep. I was in a calm, peacefull bliss for many hours, it was nice! My cousin Abby and Aunt Cate came to visit us for quite a while today. I helped Abby catch up on her sleep and she brought me a hello kitty bag full o'goods. Encouraged by the doctors to get out if we feel up to it, we later in the night we drove around looking at a lot of rich doctor houses, including "Pill Hill" where all the estates are...haha isn't that funny...they also treated me to my favorite drink at Caribou with this throat - steamed milk with a shot of carmel...yummy. We also got in a very much-need viewing of Wayne's World! I may have fallen asleep during parts of it but shhh

Although I still am in pain, it is much better today because they changed my pain medication regimen. I now have a fetynol patch on my back (3 times the normal dose thank you very much) and I have a fetynol pump where I can push a button up to every 15 mins when I need more. So the pain is starting to get better, but the fetynol does have it's sleepy and kind of "out of it" feelings, but it's ok, im just fine. We romped around Rochester today and I may be watching a chick flick yet tonight, we'll see :)

I didn't go to the U today as planned because of the bad night I had last night, I just didn't think it was really plausible to go and I wouldn't have been able to take anything away from the Dean's Honor Program today. We'll just get someting else set up!

I really do feel your prayers, keep them coming, for Tim too, please!

Love,
Jenna

Saturday, March 13, 2004 8:00 PM CST

We are happy to report that Jenna survived her night of almost 105 degree fevers with flying colors. After her full night of talking to the nurses in her sleep(she's pretty proud of the convincing stories she came up with) she spent the afternoon in a blissful drug induced slumber. No longer delusional she awoke, and decided that on doctor's orders that she would romp around the town of Rochester. On the wonderful romp around town we toured(by car)"Pill Hill." By us I mean Lisa, Aunt Cate, Cousin Abby...I guess that's all of us. After the tour of the doctor's houses(Pill Hill) we ventured to Caribou Coffee at which point Jenna ordered her favorite drink....steamed milk with caramel. She drank the whole thing.

She's had her pain med changed and that seems to help a whole lot. Three more radiation treatments, higher blood counts, a more comfortable throat and eating okay are the goals for this week.

Chicken fettuccine alfredo at the Lamplighter is first on the agenda when she get's home. PLUS LOTS OF TIME WITH FRIENDS!!!!

Abby

Thursday, March 11, 2004 10:33 PM CST

Hi Everyone,

Well I am only able to make this entry so late at night because I just got some very quality sleep on our gorgeous drive back to Rochester. Tonight I got to go the St. Mary's playoff game against Springfield and the green slime (haha) totally crushed them. I can now openly cheer for St. Mary's completely without feeling guilty because Cathedral lost to them on Tuesday and are now done. So it looks like I'll be wearing the green and gold JUST until basketball is over, then I will be ripping it off...they are our rivals...haha...Kyle did awesome, just thought you all should know, 18 points to add to his 26 on Tuesday to make 1000 points. That's skill. It was very nice to get to talk to or (or write to on a little cute notepad) some friends at the game. Since I just spent last week here, I haven't been able to see a lot of friends lately so that's just what I needed. We had a good time, although normally I would have been yelling random things at the players and such....next time I'm making signs!

They just hooked me back up here and I'm getting a whole lot of stuff but I couldn't tell you what it is! Probably antibiotics and fluids...my mom would know, ask her. The pain is still pretty bad, I guess it's really not supposed to be getting better until a couple days after radiation is over. There's a lot of swelling of tissues in my face and throat which makes it so painful. They're going to start feeding me through a beautiful tube tonight because I haven't been able to eat very much while I've been here. Trust me, all I want is some meat and potatos but I can't seem to get that down!

Thank you for all your thoughts and prayers! Could you please also pray for a man named Tim who also has cancer and has only been given a couple of months to live? My mom and I have gotten to know him and his wife here and they are the nicest people and most deserving of your prayers.

Love,
Jenna

Wednesday, March 10, 2004 4:03 PM CST

Hello Everyone,

Well there are some beautiful, big snowflakes falling outside my window right now. They're my favorite kind, espeically when they get caught in my eyelashes (which are almost back to their usual vuluptuous length) haha...

I'm sorry to have to say that things really aren't going to well here. Saying I have a sore throat doesn't begin to describe it. The doctors say it's a bad sore throat like normal people have times 20. This is due to both the radiation and very low (almost non-existant!) blood counts. I also keep getting high fevers, but they are quickly cured by a little Tylenol. Apparently I have 5 more radiation treatments left, not 3 like we had thought, so I'll probably have to be in the hospital until next Wednesday so they can manage the pain and keep me on antibiotics and fluids. However, my lovely doctors are very gracious about getting me out of the hospital once in awhile. They are scheduling some of my antibiotics and such around some events I want to go to this week and I will be able to go as long as I feel well. I actually have a PAK sticker kind of thing on my back that gives me constant pain medicine, so when I go out it shouldn't be too bad. The nurses and doctors are all really nice around here though and they make everything so much easier to handle. They accomodate very well. I am getting two blood transfusions tonight, both platlettes and red blood cells.

I'm trying to keep my spirits up but it's really difficult when I can't even talk! I wish I could be calling everyone like I usually would be. I was just here all last week too so I really didn't have a chance to catch up with everyone. Also, there are some very important basketball games this week, danceline tryouts, visits to the U, people's birthdays, etc. Good luck Sonics with the tryouts, I probably won't be there but it's ok as long as you do the Amish folkdance song like we had discussed. Remember to include long wool pleated skirts and bonnets as well. It really will be a masterpiece.

Thank you so much for checking on me and I'll try to work on getting some good news for you next time!

Love,
Jenna

Tuesday, March 9, 2004 9:34 AM CST

Hello everyone

We weren't able to leave Rochester yesterday and it wasn't because of the snow. Jenna was and is running a fever and so she had to be admitted back into the hospital. She was not happy about that.

Today she is not feeling well at all, she has a lot of mouth and throat pain. It's probably due to the radiation and the chemo. So she is getting antibiotics and a bunch of other meds. It hurts her to talk so the best way to communicate with her is with the computer. She will be here in the hospital until her counts come back up and her fever is gone.

To those of you who will see Jack today wish him a Happy Birthday! Today he is the big 15! I am coming home later today to help him celebrate and Kurt will stay with Jenna.
Dick E.- Jack wants in on the basketball pool-let me know when it is time to make the guesses.

Please keep the prayers coming. Thanks

Lisa

Sunday, March 7, 2004 12:32 AM CST

Hi everybody!
Well I haven't written anything in awhile so I'll give the update this time. We got home yesterday, everything seemed to go well. This was probably our most pleasant hospital stay. Jenna was able to be "unplugged" from her IV pole for good part of the morning and early afternoon so it was easy to get over to the clinic for the radiation plus we did some hanging out at the shops there and went to the mall a couple of times.

Jenna spent some time working on her school project where she is interviewing staff at the hospital who are foreign born. It has been very interesting to listen in and hear their stories.

Then we had the Make A Wish people.....they are great but it sure was hard to come up with 3 good ideas. Realizing that this is a once in a lifetime experience makes it complicated. Of course I was full of ideas, most of which Jenna thought were dumb but it sure is fun to dream. I figured that if it were Jack making the wish he would go towards a remote control lawnmower, Kirby, our big boned beagle, could use a treadmill. I was thinking of a face lift or something cosmetic for me (extreme makeover)! But it is Jenna's wish and we will wait to see what the outcome is.

Jenna has doctors appointments on Monday in Rochester so we will be there for the day and then hopefully for the rest of the week it will just be radiation treatments. Jenna has exactly 6 left! We just have to work on her staying healthy, this chemo does drop her counts again so if you see Jenna and you are sick just wave!

I have some thank you's to send out there:
1. to the Sonics dance team and their parents for making the beautiful quilt. It was admired by the doctors and nurses at the hospital this past week. It is a wonderful keepsake.
2. To all the drivers over the past 6 weeks, Dick and Shirley, my mom, Uncle Charlie, Lupy H, Laurie S., Julaine and Casey, Aunt Lorraine, Aunt Sue, and Melissa K. Thanks!
3. To my mom and dad for taking care of Jack and Kirby when we are gone. (they spoil them but that's okay)
4. To all the people who have sent cards and letters, we are amazed at the number and appreciate the kind words and prayers.
5. To my co-workers at Brown County Family Services and the New Ulm Schools who have been so understanding and supportive. I wish I could be there more, I do miss my job.
6. Thanks to people who have done random acts of kindness: Karen D., Pat and Lenise, Kathleen S., Dorothy W., Sue J., Lee J., Randy and Lisa, Julie K., Harry H., my sisters Ann, Cate, and Mary and my brothers, Tony and his wife Laurie, and Joe. Ann Green and her family and Sue and Jay and kids and Grandma and Grandpa Langer.
There are many more, I know I forgot lots of people.

This must be getting boring by now so I will sign off and wish you all a great week.

Lisa

Friday, March 5, 2004 5:46 AM CST

Hello,

Jenna wanted me to make sure that I say "Hi" to everyone on her behalf. The chemo is starting to take an effect on her. She is not feeling sick, just "out of it". She is determined however to try and keep her strength and stamina up which was re-acquired through recent danceteam practices. Jenna has both an exercise bicycle and some free weights in her room to help keep her in shape. I have noticed that she has a much better appetite during this chemo session than in the past which may be attributed to at least two items; 1) Different chemo medications 2)The new food program in the hospital--instead of ordering your meals 1 day in advance and getting breakfast, lunch, dinner at the same time each day, Jenna can now order off of an extensive menu and get what she wants, when she wants it each day. Its a great idea! I rarely see anything left on her plate, and from the big picture at the hospital, I am sure it cuts down on wasted food by a huge percentage.

Jenna has been working on her school project by interviewing doctors from various countries on a multitude of topics (she can give more specifics during an upcoming update). Last night she was interviewing one of our favorite doctors who was raised in Pakistan. It was a fasinating discussion until Jenna and the good doctor decided to make it a 2 part interview and continue it today.I believe Jenna also has an interview scheduled today with a doctor from the Netherlands.

Jenna is scheduled to be done with the chemo treatment about 1am tonight. If all goes well, she should be released from the hospital Saturday morning. Depending on how she feels, she will either go home or we will drive north a couple of hours to the U of M for an open house for incoming freshman.

I am glad Jenna is not traveling today. We are in the midst of a heavy snow fall which is making traveling difficult. The only thing she will have to worry about is the daily trip from the hospital to the Mayo Clinic and back.

Thankyou to everyone for your prayers and messages. We all appreciate your thoughts very much!

I anticipate that Jenna will update this over the weekend.

Kurt

Tuesday, March 2, 2004 6:57 PM CST

Hello Everyone!

Everything so far is going just fine, right now it's as if I'm not even getting chemo, but it's pumping through me pretty quickly here so I can't deny that. It's only my 2nd day though, so we'll see how I feel by Saturday! My mom and I journeyed over to Mayo today on the patient bus for radiation, too. Usually you don't have chemo and radiation at the same but I guess with this chemo it's ok, it hasn't really affected me too differently.

We met today with the lovely people from make a wish. I didn't know exactly what to wish for but I gave them a couple of ideas to look up! My first choice is a cruise around the Mediterranean with stops at many of the lovely countries encircling it. I love to travel and see pretty things, and a cruise with dancing and pools and such sounds perfect. The climate and scenery is beautiful and the culture, architecture, and history will be very interesting if that wish works out. Otherwise, I'm only really looking at trip wishes such as Aruba or Tahitti, or London. I would like a hot tub or new bedroom or something, but I'll be moving out for COLLeGE in a couple months so that doesn't really make sense. Plus, the trips will be so unforgettable.

I do have some very bad news though. My hair that has grown back appears to be brown, yes brown. I cannot picture myself as a brunette and I really don't think I can pull it off. So I didn't like that color, so that's the real reason I'm getting this new chemo, to see what color I can concoct on my head. I'm still trying to stay a redhead, that's where the true beauty is at!
Take care!

Love,
Jenna

Monday, March 1, 2004 1:45 PM CST

I just checked in here at the hospital and we are waiting for all the chemo orders to go through and to once again get hooked up to my very favorite IV pole! The results from the kidney test were fine, I guess I recovered completely, I'm just that good. My blood counts are pretty good and they obviously gave the OK to start the chemo. I will be on two new drugs called ifosimide and VP 16; the side effects are similar to the last treatments but shouldn't be as harsh. It feels like I've been away from this hospital forever, when actually it's only been about 6 weeks, I still remember all the nurses and I could just tell they were beaming with joy when they saw me, too. This week I'll be doing both radiation and chemo so I'll have to lug my IV pole on the patient bus over to the clinic...that should be fun. I should be out of here by Saturday morning and then have a little over 2 weeks off until my next round starts. It's only Monday and I've been here for about an hour and it's beginning to be monotonous already so you should all write really entertaining messages in my guestbook for me to analyze...haha

We're #5! My teammates and I screamed that as we ran through the XCel Center on Saturday. Although we didn't get a medal, I'm very proud and happy with our performance and finish on Saturday at the State Danceteam Competition. My girls danced insanely well, the best I had ever seen it, and we made it to finals, which was a definite goal. We were even ranked 2nd by a couple judges! We ended in 5th, behind some very good and deserving competition. We had a wonderful time and were all in tears at multiple times during the day. I just had the most awesome feeling when we were announced as one of the teams going on to finals - that is a huge accomplishment for us this year considering all we've been through and all the impressive competition dancing there. I'm very sad to see dance end. It was basically my life for 4 years, what I always dreamt about so now I don't know what I'm going to do! We have tryouts next week though, so that will satisfy me for awhile. Don't worry though, I always find interesting things to do with my time!

Well thanks for checking up on me and I'm sure I'll be writing often this week. Thank you for your prayers.

Love,
Jenna

Thursday, February 26, 2004 5:56 AM CST

NEW PICTURES !!!!!!!!!!!!

Hello,

On Wednesday Jenna had her daily radiation treatment and then Jenna, Lisa and I met with various doctors to discuss how she was feeling( its amazing how many doctors stop by just to say "Hi" to Jenna and to get the latest info on the Sonics!). We also discussed the plans for starting chemo next Monday in addition to continued radiation.

Prior to " getting the green light" for chemo, Jenna has to have a kidney test done which necessitated an unplanned stay overnight in Rochester. The test starts first thing today. After the testing is completed, she will have her radiation treatment and then be on her way back to school hopefully arriving by early to mid-afternoon.

Jenna continues to show amazing energy and spirit. She is really looking forward to the State Danceline Competition Friday and Saturday at the Excel in St.Paul.

Good luck Sonics!!

Kurt

Monday, February 23, 2004 5:48 PM CST

Hi Everyone!

Sorry for the late update, I have had a very busy and exciting weekend. It all began on Friday night with our danceline FIESTA to celebrate sections. It was complete with all you can eat tacos, presents, and pinata breaking! The Sonics make all parties of whatever nationality very interesting. We left on our beautiful coach bus at 6 am Saturday and headed off to Montevideo, watching Romeo and Juliet the entire way, as it should be. Marking (doing the dance once before you compete it to get a feel for the floor and make sure your music is at the right speed) was especially difficult for me. I got sick while I was dancing which made me especially nervous for the actual competition. But I danced Jazz Funk without a problem! I love hearing the music pulse throughout the gym and just having fun dancing my heart out on the floor, even though it takes lots of hard work. The rest of the day was fun running around the school and taking random pictures and dancing (or whatever you call it) in our room and such. Our high kick routine was performed really insanely well, the best I had ever seen it. I knew we were in for sure, not to sound conceited! We got 4th place in high kick and 6th in jazz funk, so we will only be dancing high kick at state. I'm very excited, but it's still bittersweet for me because I won't be able to dance, but that's ok because my girls dance for me.

Yesterday, 10 friends and I got to go to the Twolves game. Kyle and I braved the sleeting, snowing weather and journeyed up to the cities early to eat lunch with my Dad and Cindy and then went to the Target Center where we were met by "John Carlson of the Timberwolves". I got a KG jersey and a basketball before we were led to the team bench to watch them warm up. We basically got everyone's autograph besides the good players...haha...they stayed clear of the area we were at because it was overflowed with FFA members trying to get autographs. However, I did see Wally stretch - that was nice. We then met my friends up at our SUITE and watched the game from our prettily decorated, leather couch, free food-equipped room. The game was really good but disappointing because they didn't get a shot off with 4 seconds left, it was unbelievable! Thanks so much to Sue, Jay, and his dad and whoever helped land those tickets, it was really awesome!

Today I am continuing radiation treatment in Rochester once again. I am starting my 5th week. THe side effects are starting to become noticable, but it's only basically a sore throat and lack of taste which is absolutely nothing compared to chemo. I do get tired from radiation, but I don't notice it because I have a wonderful opportunity for at least a 3 hour nap everyday during the drive. We meet with the doctors on Wednesday and it looks like if everything is ok with my kidneys I will begin the new chemo on Monday. I'm really not looking forward to it at all, especially not staying in the hospital, but I guess it would be kind of stupid to not follow up the radiation with chemo to help it more. We'll see how it all goes. Love you all!

Love,
Jenna

Thursday, February 19, 2004 11:19 AM CST

Hello,

Jenna, Lisa and I met with the good doctors at the Mayo Clinic on Wednesday and discussed options of further treatment for Jenna.

Treatments discussed were based on recommendations of both the Mayo doctors and the University of Minnesota doctors.

What we agreed to was that Jenna will be trying a new chemotherapy combination consisting of 2 different medications. The chemo can be administered at the same time as the radiation. We won't start until March at the earliest which means that an overlap of chemo and radiation will only be 2 weeks at most.

Jenna's "indicators" continue to look strong and she has been feeling pretty good recently.

The next two weekends have been on Jenna's radar since she has been diagnosed with cancer. Her goal has been to get back to the Danceline "Sectionals" competition this weekend and hopefully the "State" competition at the Excel Center in St.Paul the following weekend.

I know that I have totally enjoyed each and every competition in the 4 years Jenna has been involved in Danceline. The practice time, planning, commitment and energy of these student athletes has been inspirational.

Good Luck Greyhounds!!

Kurt

Monday, February 16, 2004 10:57 PM CST

Hi Everyone,

We went today for our second opinion at the U of MN. My parents will update this tomorrow and be more specific because I really get sick of listening to all the medical vocabulary, but he did suggest more chemo. It's a new combination of two different drugs that would be given over a 5 day period and then I would have about 2 1/2 weeks off between them. I would probably do this for 6 rounds. It has similar side effects as the last chemo drugs, but they should be less severe, but you really just have to try it out to see how you individually react to it. We could actually start this while I still got radiation but I don't know what my Mayo docs will think of that...there's also some more alternatives, but my parents can write about them!

I'm just very excited because tomorrow night I'll be dancing! We're dancing our last performance of Jazz tomorrow before our section competition this weekend. This will be both my first and probably my last :( time dancing at Cathedral this season! It's very sad but I'm excited to dance in front of our home crowd that I haven't danced in front of yet. Hopefully it's not as strenuous and exhausting as our last competition, I don't think it will be because practice has been going well and my hemoglobin levels are probably better than yours is!

The only other development I have is that I have a pretty nasty sunburn type thing on my throat from radiation. I guess it wasn't just a cold that made me lose my voice, it was radiation too, so that feels pretty good!

Thanks for checking on me, take care~
Love,
Jenna

Sunday, February 15, 2004 9:00 PM CST

Hi Everyone!

I hope you all had a very sweet and happy Valentine's Day yesterday, I know I did. I've had a pretty busy week, that explains why I have written for awhile, sorry! The daily treatments are going well, it seems as though as soon as we arrive in Rochester we turn around right away. The treatments only take about 15 minutes and are painless. I'm only starting to see some side effects - mostly just a loss of taste, but I figure I can have fun with that, you can feed me ice cream or steak and I won't know the difference...good times. My voice still isn't completely back yet, I have had the most beautiful, low, squeaky voice for over a week now! When I do something (like loosing my voice) I guess I just go all out. The docs said it was really red and swollen and what not, but I don't have strep or anything so I'm just letting it get all better on its own.

Tomorrow we are going to the U of MN for a second opinion, just to see if those docs have any other bright ideas. Even if they do, we can't really do anything until after radiation (which I have a feeling is gonna work, I hope I didn't just jinx that!). We won't know the effects of radition until the full 7 weeks is over and they run all my favorite tests again. I guess it takes a while to see some results. So now I'm just hanging out with the family in a hotel watching the all star NBA game...taking notes for my game. Some friends and I went prom dress shopping at the Mall of America today and I think I tried on about 30 dresses. It was a good time and a successful trip. I did buy one but I don't know if it's the one I'm going to stay with because I couldn't decide between two. I'm trying to convince my parents to splurge on a couple...that will not happen.

I am also very excited because I have little stub eyelashes! You should ask me to show you them because they are really cute because they are like a millimeter long. We think they're blondish/reddish...I think they're just like my old ones. Hopefully the next thing to grow back is the hair on my head and not on my legs! Happy belated Valentine's Day!

Love,
Jenna

Saturday, February 14, 2004 8:25 AM CST

Hello!

It has been a few days since this site has been updated. The past week has been fairly uneventful as far as treatments go. Jenna continues to make the 4-5 hour daily roundtrip (depending on weather)for her radiation treatments. Jenna had a cold early in the week and lost her voice from a combination of the cold and all of her cheering at last weeks dance competition!

Thankyou to family and friends for volunteering to drive each day.The Langer family really appreciates all of your help.

Jenna will have a very busy day on Monday.During the first half of the day,we will be visiting doctors at the University of Minnesota for some additional opinions. From there, we drive to Rochester for the daily round of radiation. Then its back to New Ulm for the big basketball game!

I hope everyone has a great weekend! Thank you for your continued thoughts and prayers.

Kurt

Sunday, February 8, 2004 4:57 PM CST

Hey Everyone~

Well this weekend the Sonics held true to their reputation and kicked some booty at our competition at Irondale. I awoke from my beautiful slumber at 4 am, we were on the bus at 5, at the competition by 7:45, marking by 8:15, and performing by 8:50! Getting ready for jazz is an interesting ordeal with gluing on fake eyelashes, duct taping or pinning black bobbed wigs to our heads, and applying coats of bright red lipstick. We didn't have much down time at all before we performed and my nerves were just catapulting in my stomach. I really don't usually get nervous but I had never even done 2/3 of the dance at once before so I was just hoping I would make it through. Well, I did make it through and I didn't mess up too much! I did the best I could and the routine looked pretty good overall, we were just all still tired in the morning and flustered. I'm not going to lie, I did feel pretty sick out there and there were many times I was seriously considering running off the floor, but I pushed through it and I'm so glad I did. From here on, it's only going to get better. In high kick we rocked and got 3rd place out of 13 teams...we were only within a couple of points with both the 1st and 2nd place teams, too! THey are also probably the best 2 teams in the state, so I'm really proud of my high kicking girls that are gonna kick it all the way to the state floor. We'll get the jazz routine cleaned up in the next two weeks before sections and my endurance and spunk will only increase...haha

I'm hoping my hair is going to come back pretty soon so you all can start anticipating that...haha. Place bets if you must on color, texture, consistancy, elasticity, maleability, really whatever you want! I keep asking the doctors for exact millimeter measurements of how long they think it will be on certain dates but they aren't too exact..."maybe in a couple of months"....it better still be a fire, that's all I have to say!

I'm now home sick with a sore throat, I can't talk basically at all. It's a combination between screaming my head off yesterday and a nasty cold. Don't worry, I'm currently staying home and eating chicken noodle soup, I'll be fine. Love ya all!

Love,
Jenna

Wednesday, February 4, 2004 11:04 PM CST

Hi Everyone,

Guess what?! I only have cancer in one spot, not two! That was the great news of the day - I had a chest CT taken this morning and the mass they found in the last CT had disappeared. I really would not have been excited to have cancer in my lung too, the sinus is good enough for me. When the little helper doctor guy told me I asked if he was sure because I didn't want them to miss anything and he's like "well, I think so, what do you think?" He then proceeded to show me the x-rays and I put in my medical opinion which is now a hot commodity at Mayo. They figure it must have just been an infection from my last chemo treatment and it went away because I was taking so many antibiotics that I think it probably just covered weird lung growths too...whatever the case I'm just happy to breathe now and continue with radiation as planned and not worry about cancer on another battlefront. But serious guys, just take a deep breath, it's really a good feeling!

I went to danceline practice tonight and danced as arduously as I could...I really need to get ready for our competition on Saturday, it's a big'un. There's a lot of good competition there, but that's good because when we beat them it will just be that much better! However, I am not looking forward to how long the competition is - we dance at 8:50 in the morning which means we have to leave here at 5 and we also dance again at 4:15 (a little spread out don't you think?) I'm just excited to go to a competition and even dance at one! It will be my first performance this year and I'm really looking forward to it, our dance is so scandalous, cute, and fun. I'm sure all my exhausted, overtired, crazy, spontaneous teammates and I will figure out something to do with our spare time:)

When we finally came home today I was very excited to see that I received German chocolate from our school's exchange student last year - you're awesome Helena, I'm taking in the calories as we speak!

Thank you so much for all your prayers. The doctors finally had some good news to give me and they were just as happy to give it as I was to receive it - I don't seem to get it that often from them! If it wasn't for you all and your constant prayers I'd probably have cancer in 7 places and lots of exotic treatments and amputated body parts and side effects, you can always have things much worse than they are and I'm definitely lucky. I have all you behind me and that's awesome, just pray for those who are going through something like this alone, too.

Love,
Jenna

Tuesday, February 3, 2004 1:07 PM CST

Hi everybody

Well Jenna and I are in Rochester. It was an interesting ride over here through the snow storm yesterday. I had to make two defensive moves along the way, one to avoid a rear end collision and one while trying to exit the freeway but we made it, we were even on time for her appointment.

Since the jazz funk team isn't dancing tonight at the basketball game(high kick is) we decided to stay the night. Jenna has a CAT scan appointment (7:45)in the morning and then she has another 4 or 5 appointments.
We will come home after all that.

So we have spent some time looking at prom dresses, Jenna has been whirlpooling and swimming. I forgot my suit! We weren't able to get in to the Ronald McDonald House, they had a pipe freeze and so they had some damaged rooms, but they did give us a voucher for a hotel room.

Stay warm
Lisa

P.S. Jack- the snow better be shoveled by the time we get home.

Friday, January 30, 2004 5:37 PM CST

Hi Everyone,

Well, one week done and only six more to go! This first week went really well and I absolutely don't mind the radiation (except the smell!), it is much much much better than spending days in the hospital and suffering from all of its side-effects. My parents actually got to come in the radiation room on Wednesday just to see what it looks like and how they set it up. They thought that it looked like something straight out of a sci-fi movie with all the lasers everywhere. It's a good time. The drive is starting to seem a little shorter each day and I've been able to make it to some basketball games, random excursions with my friends, and sadly even a couple of classes.

I drove down to Rochester with Charlie (my mom's uncle) yesterday and I gave him tips about his trip to Guatemala that he will be taking next week. Remember to not drink the sink, lake, or toilet water, Charlie. Today I was just blessed to be escorted to Rochester by Kacie and Julaine...it was interesting. We took advantage of my handicapped parking pass so we didn't have to slip so much in the frigid weather, very exciting.

As for my radiologist and oncologist appointments this week, things were looking good. My blood counts are almost up and my kidneys seem to be recovering. We discussed some other options after radiation but we won't really worry about that for another couple of weeks once we see how this is all working (it better be working!). I'll have my chest CT next Wednesday to see what that stupid white splotch was in the last one. Thanks for checking on me and take care!

I would also just like to say hi to Macy in Lucy in Phoenix, thanks for always asking about me and praying for me!

Oh yes, since you were all just on the edge of your seats wondering, I would just like to let you all know that I was accepted to the U of M - Twin Cities this week so now I have to choose between there and St. Ben's. Someone tell me what to do.

Love,
Jenna

Tuesday, January 27, 2004 7:04 PM CST

Hi Everyone,

Well I'm home now for about 15 hours - my mom and I got back to New Ulm this afternoon at about 1:30 and I skipped right into school like the dedicated student I am. The drive over to Rochester on Monday was a little slow, no speeding tickets this time! We made it there just before the big flakes really started to fall in Rochester. I love all this snow! If it's going to be this cold there better be a soft blanket of fluffy snow to play with! We stayed at the Ronald McDonald house last night which is actually nicer than a hotel, minus the hot tub...I love hot tubs so I'm thinking you should all collect your pop tabs religiously and donate them to the Ronald McDonald house solely for the purpose of getting a hot tub. I know you'll all get right on that! haha

The two radiation treatments I've had so far have been completely fine. They basically just strap you to a table as tightly as they possibly can so you can't move at all. Then they put the little mask over your head - I think my nose grew or moved or something because my mask doesn't fit as well as it did when I got it made so I get a pretty little mark on my nose when I'm done, feels pretty good. A circle machine just goes around you and makes gun noises whilst it shoots lights at you that I can kind of see if I can open my eyes at all in the mask. The only indication I can feel of the radiation beams is a curious smell that arises - kind of a combination of really highly concentrated chlorine and a tanning bed gone bad. Only 33 left to go!

We leave tomorrow before 8 am, our first appointment is at 10. Besides the radiation, we have our weekly meetings with both the radiologist and oncologist. Take care everyone!

Love,
Jenna

Sunday, January 25, 2004 7:08 PM CST

Hi Everyone,

Well tomorrow begins 7 weeks of tumor bashing...yay! It's been awhile since my last chemo treatment so during this last week or two that I have been home I have felt very well. I'm strong again and ready to get back to Rochester and give this cancer some serious problems. My time home was very well spent and I now realize more than ever how horrible the hospital really is! I'm sorry to say it, but I don't know how I stayed in a little-bity room with unchanging scenery for weeks. This is why radiation will actually be nice, I won't have to spend any time tethered to an IV pole or be awakened every two hours by nurses and beeping machines! I'm excited to torture the bejeezes, yes bejeezes, out of this tumor. Hopefully the much anticipated snowstorm can hold up for just a bit so we can make it over there and maybe it can return later in the week to give my friends a beautiful snowday.

I'm very excited to be dancing again! I've been practicing for the last week with the team and have just been easing myself back into my normal dancing attitude and effort. I'll be dancing jazz funk and I'm working really hard to read my own choreography sheets that I wrote and reteach myself the dance and get my skills perfected. It's been my goal all year to dance, something I really look forward to. I love performing and the energy given off on the dancefloor...so much fun! Our next competition is February 7th at Irondale and I'll probably be performing at a basketball game once before that.

I had an awesome weekend. I went to Kyle's game in Sleepy Eye on Friday night with some chicas from St. Mary's which was fun and..enthusiastic. I then went to a dance that night, which is basically my favorite thing to do. Last night I only stayed up until about 5:30 at our awesome danceteam sleepover! We ate massive amounts of food, pruned up in the hot tub, played wild games of spoons, and just ran around doing stupid random things.

Thanks for checking on me and praying and thinking of me. I'll fight it hard tomorrow.

Love,
Jenna

Tuesday, January 20, 2004 9:05 PM CST

Hi everybody
I thought I would enter an update about where we go from here. Jenna will start IMRT radiation treatment in Rochester next Monday the 26th, this type of radiation can only be given in Rochester, Mankato doesn't have the technology. The plan is for 5 days a week for 7 weeks.

We are going to try driving everyday. I think there are people who are willing to drive. If it turns out to be too much for Jenna we will stay in Rochester part of the time. I think the way I want to approach it is to ask those who may be willing to drive to call me (I am in the New Ulm phone book)or leave a message about when you can drive. Rochester is not able to give us a set time for every treatment but we can ask them to stay within a range. So I told them between 10 and 12:30. Also we can't make the appointments in advance, we are only able to schedule after Jenna has had her treatment that day. Let's just try and schedule for the next two weeks and see how it goes. They say it only takes about 30 minutes for the treatment so it will be about a 6 hour trip (hopefully)

Jenna has been doing well since we have been home. She is going to school and resuming her regular exhausting social life. At least it exhausts me, trying to keep up with where she is, what she's doing etc. Tomorrow she and some friends from school are going over to St. Mary's in Sleepy Eye for their school mass. They have invited Jenna to attend. I am going over to attend mass along with Grandma and Grandpa Domeier. Jenna's friends from St. Mary's have been so supportive and I really appreciate all their visits, phone calls and messages that they have sent Jenna.

We had a lot of visitors this weekend Ann, Emily and Charlie from St. Paul. Louise from Duluth,dad Kurt, Grandma and Grandpa Domeier, various friends- Heidi, Gusty, Andrea, Andrea, Kyle etc. Karen D. brought over some delicious soup too. Thanks!

One more very important thing- I am late in thanking my coworkers at Brown County Family Services, Heartland Express, the License Department and Probation for donating a ton of sick and vacation hours to me. Without your help and generosity I would be a sinking ship. It means more than you can know that I am able to spend some time at home and at the clinic with Jenna trying to concentrate on finding the best possible care for her. You are wonderful people.

Well this is long enough-thanks for all the support.

Lisa

Tuesday, January 20, 2004 8:15 PM CST

Hello to everyone,

I talked to Jenna today and it sounds like she had a busy day. The morning started off with Jenna attending danceline practice. From there she went to school which has "Finals" over the next few days. The afternoon was spent doing errands and being with friends. Tonight Jenna is attending the High School basketball game.

Lisa is trying to coordinate and consolidate meetings this week at Mayo to avoid excess driving.

Next Monday, Jenna is scheduled to begin a 7 week treatment program with a form of radiation called IMRT. This new radiation technology gives us hope and I know Jenna is determined to beat the cancer.

All of us truely appreciate all of the kindness and support shown by all of you. Your thoughts and prayers truely make a difference.........Kurt

Tuesday, January 20, 2004 5:44 PM CST

Hi everybody
I thought I would enter an update about where we go from here. Jenna will start IMRT radiation treatment in Rochester next Monday the 26th, this type of radiation can only be given in Rochester, Mankato doesn't have the technology. The plan is for 5 days a week for 7 weeks.

We are going to try driving everyday. I think there are people who are willing to drive. If it turns out to be too much for Jenna we will stay in Rochester part of the time. I think the way I want to approach it is to ask those who may be willing to drive to call me (I am in the New Ulm phone book)or leave a message about when you can drive. Rochester is not able to give us a set time for every treatment but we can ask them to stay within a range. So I told them between 10 and 12:30. Also we can't make the appointments in advance, we are only able to schedule after Jenna has had her treatment that day. Let's just try and schedule for the next two weeks and see how it goes. They say it only takes about 30 minutes for the treatment so it will be about a 6 hour trip (hopefully)

Jenna has been doing well since we have been home. She is going to school and resuming her regular exhausting social life. At least it exhausts me, trying to keep up with where she is, what she's doing etc. Tomorrow she and some friends from school are going over to St. Mary's in Sleepy Eye for their school mass. They have invited Jenna to attend. I am going over to attend mass along with Grandma and Grandpa Domeier. Jenna's friends from St. Mary's have been so supportive and I really appreciate all their visits, phone calls and messages that they have sent Jenna.

We had a lot of visitors this weekend Ann, Emily and Charlie from St. Paul. Louise from Duluth,dad Kurt, Grandma and Grandpa Domeier, various friends- Heidi, Gusty, Andrea, Andrea, Kyle etc. Karen D. brought over some delicious soup too. Thanks!

One more very important thing- I am late in thanking my coworkers at Brown County Family Services, Heartland Express, the License Department and Probation for donating a ton of sick and vacation hours to me. Without your help and generosity I would be a sinking ship. It means more than you can know that I am able to spend some time at home and at the clinic with Jenna trying to concentrate on finding the best possible care for her. You are wonderful people.

Well this is long enough-thanks for all the support.

Lisa

Saturday, January 17, 2004 12:11 AM CST

Hi Everyone,

Well, after I have been home a couple days and the news has started to sink in in both my mind and those around me, things are starting to look up. I had a senior class meeting on Tuesday and everyone was amazingly supportive and sincerely concerned. I've actually missed school and it was so nice to get back and make my presence known in the hallways! I've been having lots of fun lately...from sleepovers to hot tubs to basketball games and shopping, I've been spending a lot of much needed, quality time with my friends.
I had my appointment in Rochester on Thursday and it went well. I actually liked the little mask thing they made for me, it's comfy! They called yesterday with the results of the scan they had taken and are deciding to do IMRT (Intensely Modulated Radiation Therapy) which is a new form of radiation. They use a physisist to decide where to directly pinpoint the exact angles and places of the radiation beams. This form of radiation is a new advanced treatment where they can use many angles to shoot the little beams at me without harming healthy tissue, nerves, ect. They don't have the technology to deliver this type of radiation in Mankato so I will be going to Rochester everyday. The treatment will last for 7 weeks, 5 days a week, and about half an hour a day. I will being treatment on the 26th - the doctors need time to figure out the exact plan. Right now I plan on commuting because so many awesome people have volunteered to drive - so my day will end up being basically as long as a school day. If I get tired of driving all the time we will make arrangements to stay in Rochester during some of the treatment. Well, that's all I know about this scientific stuff.
I feel even more optimistic about everything since Thursday because there were many signs and banners and such around that were signed by people saying "cancer survivor - 2 years" or "cancer survivor - 20 years". I'll be on one of those posters one day! Thank you so much for your prayers, thoughts, and messages, I really do feel them and I know that they are going to work.

Wednesday, January 14, 2004 11:48 AM CST

Hello Everyone,

It all seemed like what the doctors were saying was unimaginable. I couldn't believe that after all I had gone through there had been no change, even though everything looked and seemed so promising. I got very tired of hearing the words "inoperable" and "this is not a cure". After a while though you just have to soak it all in and realize that God doesn't put anything on your shoulders that you can't handle. I would obviously not be able to handle an ounce of this without the ongoing, awesome support of my family, friends, school, and community. I want you all to know that your letters, thoughts, and prayers mean more to me than you know and are part of the strength that keeps me motivated. The doctors were giving me a lot of "We don't know"s in response to many of my questions but with unanswered questions are undefined answers and right now we will just respond to those with hope and determination.
I will be going back to Rochester for the day tomorrow to figure out a more exact plan for radiation. I plan to be as aggressive as I can to give this cancer a true fight, but also not so aggressive that I will be in the hospital most of my time. Until then, I'm just livin' it up as much as a person can live it up in New Ulm and Sleepy Eye...haha

Love,
Jenna

Monday, January 12, 2004 7:12 PM CST

Hello friends,

A tough entry today but I will do my best.

Today we had a consult with some of Jenna's doctors at Mayo - neurosurgeon, head and neck surgeon, oncologist, and radiologist. It seems that Jenna's tumor has not responded as we had all hoped to chemotherapy. It remains about the same size. Both surgeons felt that not enough of the tumor could be removed to justify the great risk to Jenna's life and function from the surgery. The anatomy in that area is awfully complicated, but we saw how the tumor kind of goes around her carotid artery, involves visual nerves, etc. I think these surgeons would love to operate if there was a chance that it would do more good than harm but they just can't justify it right now.

There is also a spot on her lungs that wasn't there before. It could either be an infection left over from this last chemo round or a new spot of cancer. It will be checked again in two weeks and if it's an infection, it should be gone. If it is another cancer site a treatment plan will be drawn up then.

Jenna is thinking things over for a couple of days but it sounds like she will probably choose to start a seven week course of radiation treatment. The side effects of radiation should not be as pronounced as the chemo side effects. If she does this it will mean that she will get a treatment once daily, Monday through Friday for seven weeks. I hope we can work out the logistics somehow so she can either stay at home and commute to Rochester or get her treatment in Mankato. As far as osteosarcoma goes, radiation is considered "second best" since this cancer usually does not respond as well to radiation as it does to chemotherapy. Nonetheless it is an option that we hope will give her more time even if it doesn't "cure" the cancer. ("Cure" for osteosarcome usually involves removing the tumor surgically). Jenna is also open to the possibility of experimental treatments but for now she needs to regain some strength and recover from her last chemo round.

I just have to say how very, very proud I am of this girl, and it isn't just because she's my niece. When the first surgeon spoke to us and showed us the scans, the room was very still and the mood stunned and sad. By the time we saw the last doctor Jenna had already rebounded and was asking VERY good questions: the "what if" and "I want" and "what about" kinds of things. She had clearly absorbed everything and was processing it and making plans and choices. I am proud and amazed at her fighting spirit, her optimism and her realism. Whoever raised this girl did something right;)

I'm sure I've left things out but that's all for now. Your prayers, positive thoughts, notes, and countless acts of kindness are very much appreciated.

Love,

Ann T.

Saturday, January 10, 2004 10:53 AM CST

Hello everyone
Well it looks like Jenna will be sprung from the hospital today, hopefully around noon. We are both ready for a change of scenery.

Jenna actually was able to do all the tests yesterday (CAT scan, bone scan, MRI) So we are scheduled to come back Monday for the results and consultation. I will be attemping to be nurse Lisa because Jenna still needs some anitbiotics through her port. Actually I think Jenna could do it herself she's watched so many times. I have a teaching session with her nurse coming up here in a few minutes.

Yesterday Jenna had a nice suprise in the mail, her uncle Tony had taped the St. Mary's/Cathedral basketball game along with some messages from kids and teachers at the high school and St. Anthony's. Jenna had a big smile on her face while watching the tapes. Thanks Tony and Laurie.

Thanks for all the messages and prayers.

Lisa

Friday, January 9, 2004 6:04 AM CST

Hello,

Jenna continues to show signs of feeling a little bit better. Her counts are starting to slowly climb as she continues to receive antibiotics, potassium, and an assortment of medications. There are a few tests scheduled today and some more on Monday. There is a chance Jenna may be able to go home Saturday but it depends on a lot of factors. I counted a combination of 9 doctors/nurses in the room at the same time yesterday for Jenna's daily checkup which has been the norm lately. They are all trying their very best to help Jenna get better.

A big "Thank You" to Laurie & family for the balloons you sent Jenna. She really appreciated them.

We will try to have Jenna update the site today if she is feeling up to writing between tests and doctor visits. I want you to know she has been reading each and every message you are sending.

Thanks for all your prayers,

Kurt

Wednesday, January 7, 2004 7:27 PM CST

Hi Everyone,
Well, I woke up this morning not thinking today was going to be any different than the previous, but I started feeling better this afternoon. I was wondering when these endless medications were going to show some effects but I am definitely getting some strength back. They say that laughter is the best medicine and I got my dose of that today when Katie and her parents came to visit. Although her visit was interrupted by a talk with my surgeon, we still managed to get some much needed smiling in. Of course her stay wouldn't be complete without prank phone calls, good conversation, and discussion about the random things we are going to do when I get through with this (like meeting Zack Morris). It was especially great when I moved one of the sticky things that monitors my heart and the nurses ran in because they though I went flatline. Katie and I are going to start timing them on reaction performance. Hopefully I will continue to get better and be home soon.
Love,
Jenna

Wednesday, January 7, 2004 6:00 AM CST

Happy January 7,

Yesterday was another tough day for Jenna. She is still very sick and feels weak and sore from being in bed so much. Her sleep stages are very short throughout each 24 hour period due to the constant interuptions by nurses/doctors, tests, beeps from the IV machine etc. On the positive side, Jenna was able to take a short walk down the hallway both in the afternoon and the evening.

The infection was successfully diagnosed yesterday and the doctors changed the anti-biotics from a "general variety" to anti-biotics that were more suited to attack the infection. Her fevors have been less frequent and lower in temp.

There were some "techical" problems with Jenna's laptop Monday and it was rushed to our computer expert for diagnosis and repairs. Special thanks to Grandpa Langer (applying for job in Geek Squad)for all his help and Jenna should be back on line tonight.

Today Jenna is scheduled for more of the same. We hope she will get stronger and closer to getting out of the hospital. We will try to update the site later tonight.

Thanks for all your prayers and well wishes!

Kurt

Tuesday, January 6, 2004 10:51 AM CST

Hello,
Jenna had a very tiring 24 hours at the hospital. In addition to her white & red counts being so low, she was diagnosed with an infection. Nurses and doctors keep streaming in to do checkups, medications, testing etc. In addition to the normal meds she is given, she receieved red blood cells, plateletes, potassium, magnesium and is also on 24 hour antibiotics for 10 days. As you would expect, her spirits are a little lower than they have been but she is fighting this hard and doing what she can to overcome this latest set back.

Jenna continues to read all of your E-Mails and appreciates them very much. I know they bring a smile to her face and that means a lot to all of us.

I will try to update this site either tonight or early tomorrow with the latest information.

Thanks for your prayers and messages,

Kurt

Sunday, January 4, 2004 1:19 PM CST

Well Hello Everyone,
I am definitely not very excited about this hospitalization because it feels like I was just here! Fevers are the main problem; they get pretty high and uncomfortable. My blood cultures came back positive so I'll be on many anitobiotics. The only awesome part about this is to say I rode in an ambulance, although I was really hoping for the helicopter. As much as I don't want to be here I realize that I need to be because when I was home I would basically just faint all the time and that really isn't as cool as I used to think it would be!
The best part of being home was going to the basketball game because I got to see Nikki work it on the court and kick Nicollet's booty and I also got to see my girls dance our scandalous jazz funk dance for the first time. They did awesome - the dance is really cute and once we perfect it we'll be doing as well is jazz as we are in high kick! I can't wait to be home and see everyone again and hopefully this time I'll be home a lot longer and be back to my little perky self.
Thanks for checking on me and take care.
Love,
Jenna
P.S. if you are trying to call the cell phone it won't work because it's roaming in this room. Melissa and Katie both have my room number.

Saturday, January 3, 2004 2:06 PM CST

Hi everyone -

Well, it seems that Jenna woke up with a fever this morning, something new to share with the doc at her daily clinic visit to top off her fluids. He persuaded her that it would be a good idea to go back to Rochester, though she would have preferred to stay closer to home. He even talked her into an ambulance ride so that they could keep the antibiotic IVs flowing. So as we speak Lisa & Jenna are on their way to good old second floor Francis.

This last chemo combo (adriomycin & cisplatin) is the one with side effects that have been the toughest to manage. Jenna was glad to be home but was pretty weak and not too steady on her feet. Still it was good for her to see friends, nap on her own couch, and even get to a basketball game last night.

With this chemo they expect her blood counts (especially the white cells, the infection fighters) to bottom out about 7-10 days after treatment. And guess what, we're 7-10 days out. Many patients end up back in the hospital at this point so it's not unexpected but still not fun and a little scary. She's in the right spot to manage things so let's hope this is a quick visit.

Thanks again for checking in and all your support. It really really helps.

Ann

Wednesday, December 31, 2003 7:37 PM CST

Happy New Year Everyone!

We got home yesterday at about 6:00. Jenna still wasn't feeling that well, her blood pressure and heart rate kept doing weird things so after having tons of fluids through her port they let us leave.

I decided to stay home from work today to catch up on things around here and I am glad I did because Jenna passed out in the bathroom. She didn't hurt anything but it made for a trip to the NUMC where she was given more fluids. She was instructed to rest.....So that means no wild plans for New Year's Eve.

She still is pretty tired but glad to be home.

Lisa

Monday, December 29, 2003 1:12 PM CST

Hello everybody-

Just a quick update- this chemo has gone well though different from the others. Jenna has been very, very quiet and sleepy. That's why she hasn't called anyone or been online. Also the cell phone is on roaming in her room this time. But they finished running the chemo at 2:00 AM this morning. So today is a recovery day and we plan on leaving tomorrow morning.

Jack joined us yesterday and came equipped with his own TV and Playstation so that explains what he has been doing. Kurt has been here everyday too.

What about those Vikings? I can't say I watched much of the game but did happen to see most of the painful 4th quarter.

It is snowing here a little, on our way home tomorrow we will stop in Owatonna to have Jack's doctor take one more look at his nose. Hopefully that is a done deal.

Thanks for the holiday wishes.

Lisa

Saturday, December 27, 2003 11:01 AM CST

Greetings from St. Mary's hospital in Rochester!

Well we checked in yesterday for the last chemotherapy before surgery. So far Jenna is feeling pretty well, she even ate some toast this morning so I hope that is a good sign for the rest of the treatment.

Jenna had a very nice Christmas, she figures that she celebrated Christmas at 7 different houses. She and Jack spent Christmas Eve with the Langer's and Christmas at Grandma and Grandpa Domeier's. She also managed to get over to Sleepy Eye to visit Kyle and some of his family.
Santa was very good to her.

The loosely laid plans for surgery is for Jenna to recover from this treatment (blood levels where they need to be) and then have all the tests over again like the MRI, CAT scan, (no cats found last time),bone scan etc. Then a consultation with all the doctors involved in the surgery where they will explain their plans for the procedure. So we are looking at the middle of January for the actual surgery.

For the time being we are all doing okay, Kurt and Jack will be up today to spend the day. Jack has plans to finally get to see the new Lord of the Rings movie with Kurt.

Hope you all had a great Christmas and have a few days off from work and school to relax.

Keep in touch and thanks for ALL THE SUPPORT.

Lisa

Tuesday, December 23, 2003 2:41 PM CST

Hi everybody- As Ann noted we did get home yesterday at about 6:30 thanks to Gay Lynn Cowing who gave us a ride home.

We are very glad to be home for Christmas. Jenna's next few days are packed with seeing lots of friends and relatives. She has already been to dance, stayed at a friend's house overnight, sat in a hot tub, had coffee and donuts with friends etc. She packs a lot in.

We go back on the 26th for another round of chemo, but we aren't going to think about that now. We will just celebrate Christmas with everybody.

Merry Christmas to all of you faithful Jenna followers and we will touch base again, hopefully on Friday.

Lisa

Tuesday, December 23, 2003 8:40 AM CST

JENNA WENT HOME YESTERDAY!!!!!!!!!!

:-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-)

Ann

Saturday, December 20, 2003 9:06 PM CST

Who's done with 1/3 of their chemo? That's right, I am. Good guess! It seems like this treatment has lasted forever, but yet everything seems to go by so fast. Well, I still have at least 12 treatments left and surgery, so this is far from over, but it's progressing.

I'm actually doing very well this time around. I am trying really hard to eat and drink and be productive, which is supposed to help. I would say that so far it definitely has because I've been up doing random Jenna things all the days I have been here and I don't mind saying that I think the doctors are infatuated with my dedication. My level dropped to 5.6 yesterday and was already down to .7 today, so we'e placing bets that I will leave Monday. However, as long as I'm untethered from my IV pole by Christmas Eve I'll still be happy. This chemo stuff is unpredictable.

I was accepted to St. Ben's earlier this week and I'm still waiting to hear from the U of M. I have no idea where to go yet but at least I know that I won't be stuck in high school still next year!

Love,
Jenna

Friday, December 19, 2003 12:20 AM CST

Jenna had an OK Thursday morning but felt much better last night. She is being hydrated 24 hours a day until her Metho levels get down to the point where she can be released from the hospital.
She now has an exercise bicycle in her room so she can get some exercise instead of being inactive all day.
Jenna is scheduled for an Echocardiogram (sp?)today but no other tests are scheduled for this visit.
Check out the new pictures on this site. Thanks to Aunt Sue for posting them.
Kyle...you are now featured!! What a great looking couple!!

Happy Holidays to everyone!!

Kurt

Thursday, December 18, 2003 7:23 AM CST

Jenna and Lisa made it to Rochester safe and sound Wednesday. Thank you to Dick Domeier for driving and waiting to find out if Jenna would be admitted to the hospital(We really appreciated the time spent with you!).
Jenna, Lisa and Kurt met with the Oncologist for quite a while yesterday. Jenna was very "upbeat" and told the doctor "she felt really good". There were many areas of discussion including current health, exercize, nutrition, activities, upcoming schedules etc. I thought it was a very informative meeting.
We checked into the hospital and waited for the mandatory escort to take us to the room. They always come with a wheelchair and Jenna always says "No thanks, I'll walk!". We arrived on the floor to find the "Family Life Group" setting up for a big Christmas dinner which would begin at 5pm(I love those early bird specials!). We barely had enough time to unpack and set up the room before dinner started. Main courses were Lasagna, Chicken Strips and Macoroni and Cheese. It all tasted real good. It was great to see all the kids in the ward having a grand time eating in one big area with parents/brothers & sisters, relatives and friends. Each patient was given a real nice hand carved wooden truck which was donated by a very skilled craftman. After dinner we all went up a floor where a Christmas Party was put on by Family Life and a local group. We sang songs and had a special visit by Santa who handed out presents to each and every patient and their brothers and sisters. I could see that eveyone was having a great time. After the party, Jenna went back to the room to start "breaking down the film" of the danceline competition from last Saturday. Jenna had not seen it yet and was anxious to begin.
The nurses hooked Jenna up to the Chemo at about 9:30pm. Lets hope she can get through with the treatment quicker this time and get out of the hospital in time for Christmas. Thanks for all your messages, thoughts and prayers. Jenna really apprecites them.

Kurt

Wednesday, December 17, 2003 5:39 AM CST

Just a brief update. Jenna will be traveling to Rochester today to meet with the doctors. We anticipate checking in to the hospital late in the day to start the next round of chemo. I will update this site as soon as I have more information.

Monday, December 15, 2003 10:13 AM CST

Jenna was released from the hospital at 8am on Saturday. From the point of "official" release I was given approximately 30 seconds to load the car and depart Rochester and head to New Ulm. Jenna was intent on getting back to the Danceline competition in Wintrop(about 30 minutes north of New Ulm).
We pulled in to New Ulm, unloaded the car, picked up Jenna's danceline clothes and her brother Jack and off we went. Jenna was so excited to be with her team!!!
It was very emotional to see Jenna walk out on the floor with her team. While she could not dance, she encouraged and cheered as hard as she could. After the competition was completed, all of the teams waited for the judges results while entertaining themselves on the floor. Finally, results were announced------3rd place-----2nd Place----1st Place--NEW ULM CATHEDRAL!! The team erupted in celebration! Jenna and Heidi Beranek ran up to the table to collect the trophy. It was quite a day.
Sunday---Jenna was able to muster enough energy and get ready for 9:30 Mass. She was the lector and read both readings. At 1pm, Jenna went Christmas shopping in Mankato with many of her friends. I know she had a great time. Jenna was back by 6pm to host a choreography meeting at the house.
Today(Monday) we find out when Jenna has to go back to the hospital. We will update this section as soon as we find out.

Kurt

Thursday, December 11, 2003 1:46 PM CST

Hi
Well here's the update for today-Jenna still is at the same level as yesterday and her mouth and throat is still very painful so she is continuing with the morphine. But Jenna and I are sure that she will make a big turnaround by tonight.

Jenna is eating her pasta with butter and parmasean cheese and that is going well. She is pretty quiet when she has the mouth pain and writes me lots of requests (orders). If you ever wanted to see Jenna speechless this is it.

A couple of days ago I ventured out on the Rochester city bus and surprisingly I made it to the mall and BACK! I did a little Christmas shopping.

Dance team members and coaches-Jenna is very sorry she has the choreography book. She knows you guys need it but she didn't think she would be here this long. I want to thank Jane Beranek for bringing part of team up here last Sunday(Abby, Heidi, Gusty, Sharon and Vanessa). Jenna had a very good day and they worked very hard on the dance.

But that's all for now. Thanks for all the support.

Lisa

Wednesday, December 10, 2003 7:24 PM CST

Hi Everyone!

I was hoping Jenna would be released today but her Methotrexate levels are too high and her mouth is very sore. Jenna is being given morphine to help with the pain but it makes her tired and she slept quite a bit today.

Jenna still has an appetite but it is difficult to eat. She is trying though, when I arrived after work she was eating yogurt and later on she made noodles with butter and parmesan cheese in the kitchen. She is almost ready for her own show on the food network!

Jenna reads all the messages sent to her on this website. Jenna has really been strong through this and draws energy from your positive vibes. She really appreciates all your thoughts and prayers.

Kurt

Tuesday, December 9, 2003 1:15 PM CST

Hi Everyone!
Well I'm very disappointed that I missed a perfectly good snowday at home, but it's snowing like crazy here too and I really don't go to school that much, so I guess it evens out..! I'm just sitting around, living off combos and yogurt...it's fantastic. I predict that I'll be home tomorrow, but I'm actually kind of manipulating the system a little bit, or trying to at least. As of now, I'm supposed to come back again on Friday for more chemo but if I would get out of here a little later, I wouldn't be ready to come back that soon and would therefore be able to be home on the weekend. I have basketball games to attend and danceline competitions to go to! Whatever happens, I'm just glad that I feel pretty decent this time around and that it's finally snowing. yay! Everyone should go outside and make snowangel for me...I love them and the good ol' IV pole doesn't really allow this sort of activity. You will love it too, they're so pretty.
Love,
Jenna

Sunday, December 7, 2003 9:46 AM CST

Hi everybody -

Jenna is having (so far) an uneventful stay! She's finished with the methotrexate and last night they started the drug that removes it. Now we just wait for the levels to go down. From past experience she should be home about Wednesday or so.

Yesterday's visitors included Grandpa & Grandma Langer and Dad & Cindy. Dad videotaped the danceline competition yesterday afternoon and brought it to the hospital where Jenna watched with GREAT interest. Emily & I spent a low key evening there watching one of Jenna's favorite shows, Trading Spaces. Really, the feathers on the wall were too much.

She's had a little nausea and is pretty tired, but all in all she's doing pretty well. Grandma June thought she was about an "8" and Lisa said she was a "7." If she continues to feel okay today some dancing girls will visit this afternoon and work on choreography. I am pretty sure that will be a first for that hospital floor.

Some good news - the doctors are trying to plan to have her home for Christmas, one way or another. So plans for the rest of December will either be one more chemo session and then surgery (if she gets the chemo out of her system fast enough) or else two more chemo sessions, with surgery after Christmas. More good news - one of her doctors said that she thought Jenna's tumor looked quite a bit smaller. HOWEVER that is ALWAYS qualified by saying that no one really knows how things are going until the surgery.

Her current treatment plan calls for a dozen chemo sessions after the surgery, but hey who's counting. This is a marathon and not a sprint. Everyone's amazing generosity, kindness and concern really helps keep Jenna & everyone else going. Thank you, thank you, thank you -

Ann

Thursday, December 4, 2003 4:47 PM CST

Hello everyone- I just phoned Mayo and Jenna's counts look "real good" so we will be leaving tomorrow morning for another round of chemotherapy. I expect we will be gone about 5 days. Jenna had no more fevers after Wednesday. Personally, I think she just had a virus.

She has been having lots of fun the past few days,she went to the girl's opening basketball game (they won!), she's been in school, she got to be a Eucharistic minister for the first time at school mass and has been choreographing lots of dance moves with the team.

And the car- it is being repaired. I have found someone to give us a ride to Rochester tomorrow (thanks to Harry C.) and so they can work on the car while we are gone.

We will check back in once we get to Rochester. Have a nice day!
Lisa

Tuesday, December 2, 2003 12:28 AM CST

I will try to add just a brief update about how things have been going since we got home.

Jenna has been doing some of her usual activities like school, choreography, church,and she finally baked Christmas cookies with friends on Saturday. She is still having the unexplained fevers. She doesn't feel real sick when she has them - they just kind of come and go. But of course the doctors need to know about them. So I phoned Mayo and they had Jenna go in to the New Ulm clinic for an exam, IV antibiotics and blood work yesterday. She has to have another round of antibiotics today.

And then while leaving the clinic yesterday Jenna and I had a small car accident (just what I needed) anyway I managed to rear end this stupid truck that had a homemade wooden beam bumper that was mounted high up. So the raidator blew for sure, to be honest I just put the car in the garage and shut the door. I didn't really want to deal with that last night. As my mom and brother Tony said "that is why you have insurance". So I am waiting for estimates. No one was hurt- we barely touched the truck! So Jenna and I will share her car for a few days.

But Jenna is enjoying being home and we are thankful for this time. Thanks for everything everybody.

Lisa

Saturday, November 29, 2003 11:48 AM CST

WE ARE HOME! Jenna was released late yesterday afternoon and we got back to New Ulm at about 7:30. We had a little more excitement before we left though, while giving Jenna one last transfusion of platelets she had an allergic reaction. She was shaking all over, they immediately stopped the transfusion and gave her medications. She recovered pretty quickly and we were still able to leave.

Last night Jenna had some friends over and today she has few items on her agenda but I am doing my best to keep her from wearing herself out. That is very DIFFICULT to do, those of you who know Jenna well will understand that.

Jenna did ask the doctors if she could start her next round of chemo a few days later so she would have some time to catch up on things at home and they said yes. So now she doesn't need to go back until next Friday the 5th.

I want to thank everybody for all the acts of kindness, gifts,(cell phone), phone cards, the Berg brothers, cards, visitors to the hospital (Cate and Sue) and especially my family for putting on an outstanding Thanksgiving celebration. The nurses were impressed with the table settings! And surprised about the beer! Jenna had a wonderful day. The nurses and doctors said that was what she needed. THANK YOU!

Lisa

Friday, November 28, 2003 12:20 AM CST

I hope you all had an awesome Thanksgiving and you stuffed yourself as much as I tried to! I acutally had a very good Thanksgiving. We crammed about 25 people into this hospital and I think every one of them was happy to be here. We had the complete Thranksgiving meal and attempted to consume as much as possible...it didn't work that well for me but I still tried! I've never had so many people willing to wait on me hand and foot...you gotta love that! However, I didn't really abuse that will too much, I feel bad then. I have also never seen so many kids be so creative with wheelchairs...

I am also very excited because there is a very good chance that I'll be home sometime later tonight! After over a week in the hospital, you better believe that I am more than ready to be home and stay there for a very long time. I had a CT this morning and if nothing shows up wrong on that, I will be able to come home. I haven't had a fever for a whole day! I just have to get one more blood transfusion before I leave so I don't end up back here in a couple days.

My family and I want to thank everyone for all your thoughts and prayers over this tough week. Thanks for all the messages and cards. Also, thank you so much to my family members that abandoned a day in St. Paul to spend their Thanksgiving here. It really really helped cheer me up.

Love,
Jenna

Thursday, November 27, 2003 10:56 AM CST

Hi everyone, it's Thanksgiving morning and I am writing this update in Jenna's room. Jenna is still experiencing spikes in fever and the doctors won't relese her until the fevers subside. Her red and white (patriotic) cells are up as well as her platelets and neutrophils. Her mouth still hurts an awful lot but she was able to down some medication today and her smile muscles in her face still work really well!

We have rearranged the room to accomodate family arriving late this morning. They will be invading the hospital armed with Turkey, dressing, mashed potatoes and dessert.I hope Jenna will be feeling well enough to choke down some grub!!!

Jenna really appreciates all of your messages and needs them all now more than ever. The extended, unexpected hospital stay is really wearing on her.

I am an apprentice at writing these updates so I need to sign off and get more training from Jenna.

Before I sign off, I just thought of one of Jenna's favorite hospital jokes. What do you get when you cross the Mayo Clinic with the Oakland A's?......MayoA's!!!!

Have a great Thanksgiving!
Kurt(Jenna's Dad)

Wednesday, November 26, 2003 9:15 AM CST

Hi Everyone~
Well it's been a very rough week, I'm not going to lie! After another transfusion yesterday, my blood counts are finally up. However, I keep busting out fevers and that just means more time here...that makes it very difficult for even me to keep smiling. Thanks for checking on me.
Love,
Jenna

Monday, November 24, 2003 4:05 PM CST

Hello,

I just talked to Lisa for a little update. Not much to report; still waiting for those pesky blood counts to come up. They are better than they were but not high enough to come home. Jenna is pretty tired and plagued today with some mouth sores inside her mouth that make it difficult to eat and talk, so she had a nutrition consult. Also on the agenda today was a group effort of Lisa, Jenna, Jack and Ms. Prunty (from school) to get some college applications sent off. That's always a stressful process and doing it from the hospital doesn't help any.

Tiredness, low blood counts, mouth sores, etc. are all expected side effects from chemo but that doesn't make them any easier. Let's hope the blood counts are on their way up and the Rochester girls can head home ASAP! A little Thanksgiving R & R would be just the thing right now. Jenna was visited by some awesome friends who braved the weather on Saturday, and also by a couple of sweet therapy dogs. Hopefully Kirby won't be jealous. Thanks for all your concern & prayers.

Ann

Saturday, November 22, 2003 11:36 AM CST

Hi Everyone,
There's nothing like an emergency late night run to Rochester, but everything's calming down here now. I haven't fainted again, although I like to throw a little drama into the mix. I'm feeling much better because they have been relentlessly transfusing me. Red bloods cells yesterday, platelets today, we'll see about tomorrow...I wasn't too excited about seeing a bag of blood hanging next to me, but hey it helps. They're actually disconnecting me from my beautiful IV pole today for a few hours until I need more antibiotics so I can actually get out of this gorgeous room until about 7:00. I'm trying really hard to get home. I was really looking forward to finally spending a weekend at home...my friends and I even had plans to bake Christmas cookies on Sunday and go sleddi ng, skating, etc. in the awesome snowstorm that's going to keep us out of school on Monday! Oh well, I'm sure we'll make cookies soon again since we eat them all right away anyways! Thanks for checking up on me.
Love,
Jenna

Friday, November 21, 2003 2:55 PM CST

Hi, Ann here. If you haven't checked this page in awhile you might want to read Cate's message from yesterday - Jenna came down with a fever yesterday and ended up back in Rochester last night. They had a pretty uneventful trip (thanks for Paul Berg) and got to Rochester about 8:00. By then Jenna's Tylenol had kicked in and she was feeling a bit better and not so feverish. She got settled in, and was in the bathroom at about midnight when she fainted and bumped her head on one of the many hard bathroom surfaces. Scared the heck out of herself and her mom and the doc who was in the room at the time - they got her to bed and she was a little sub-conscious and sick. She could have fainted for any number of reasons including fever, dehydration, low hemoglobin, low blood pressure, meds, etc., etc., etc. All that made for a night with not much sleep since she was checked endless times to make sure she was all right.

So today Jenna's on bed rest and actually not minding it, although she absolutely hates the thought of probably missing a weekend at home. Her white and red blood counts are super low, along with her platelets, and all that needs to come back up for her to feel better. She's getting some blood right now which should perk her up. If she ends up staying the weekend she would probably welcome some company - HEALTHY company that is, the girl doesn't have much resistance right now. That's all for now, thanks so much for checking in -

Ann

Thursday, November 20, 2003 9:30 PM CST

Hello to all from Jenna...from Rochester. She's found herself back at St. Mary's after a quite rapid course of events this afternoon (Thursday). She wasn't feeling well, started to run a fever and it was decided that she needed to be seen back in Rochester for blood work to see what kind of bug she's contracted and to get some really great antibiotics!

She is hoping for a short stay, maybe until Saturday. Any and all forms of cheerleading are welcome. Goodness knows this little side trip was not in her itinerary! Also if anyone is looking, Jack and kirby can be found at their home away from home...Grandpa and Grandma D's.

A special thanks to three angels (boy, they come in strange shapes these days) namely Pat,Steve and Paul who happened to be doing some good deeds in Lisa's house today. Angel Paul stepped in and provided a ride to Rochester today for Lisa and Jenna and was just in the right place at the right time. Bless you all!

Cate

Saturday, November 15, 2003 7:53 PM CST

Just had a short conversation with Lisa and she wanted everyone to know that Jenna was able to get home today (Saturday). They actually got back to New Ulm later this afternoon.

It took some negotiation on the part of the Langers to spring her today. There also had to be some fancy footwork on the part of the impressive St. Mary's staff to coordinate some care that needs to be provided this week either in New Ulm or Mankato. But in the end Jenna triumphed and she is home...why doesn't that surprise any of us? She didn't have much problem this time with nausea etc. but is very tired and will need a few days to get her energy back.

The next trip to Rochester should not be until December 3rd. Yeah! Keep those good thoughts coming.

Thursday, November 13, 2003 8:12 PM CST

Well Hello Everyone~
I'm very surprised that I'm able to write in here now because I figured I would be very sick considering last time I had this treatment I was basically passed out for 4 days! Although I don't feel totally great and ready to run around and do the usual crazy, random things I would normally do, I feel pretty well. The doctors and nurses all comment on how amazing it is that I'm doing so well, must be all those prayers....Well I feel like I'm really kicking it's booty and the docs say I should be home sometime Saturday if I keep this up.
Love,
Jenna

Wednesday, November 12, 2003 3:46 PM CST

I just checked into the hospital and whilst I wait for them to hook me up to my favorite IV pole, I thought I'd do a little update. We met with the radiation oncologists today to obviously discuss the radiation I may be getting if they can't remove the entire tumor during surgery. The radiation actually doesn't sound that bad, except that I will be up here often. It's quick and painless, but would probably keep me up here a lot because I would need it daily. Nothing is for sure yet, they're still reviewing and anaylizing and doing Mayo doctor stuff to find the best way to go. We'll just have to wait to see how the surgery goes and how much tumor butt I've been kicking with the chemo when they do another MRI.
Danceline started this week and I'm very excited, although I am definitely not excited about missing these next 3 practices. I can tell this year will be a lot of fun and I figure we deserve some success with all the drama that we have already experienced early in the season! I am very adament about getting home by Saturday night so I can go to our wonderful annual danceline sleepover....enough said. haha...Well thanks for checking on me!
Love,
Jenna

Sunday, November 9, 2003 12:34 AM CST

Hey Everyone~
Well, FINALLY I'm home! I was hoping to get home last night, but of course my levels didn't come down so this morning it was great to hear that my level is at a .07 and I could escape my hospital room. This stay wasn't too bad; I had some visitors and crazy nurses that kept me smiling. Thanks to all who visited me, sent cards, thoughts, prayers, and messages on this website. It really helps. I'm supposed to go back again this Wednesday for the chemo that makes me basically pass out for 4 days. yay! Oh well, it's an excuse not to do homework. haha
Love you all,
Jenna

Thursday, November 6, 2003 12:39 AM CST

Well, obviously this news just pure sucks. There's nothing else to really say about that, but just know that I am feeling all of your prayers and I still feel as strong as ever. I guess that's evidence that all your prayers really do help and that this thing will eventually just get out of my face! I want you all to know that all of your messages, thoughts, prayers, etc. really strengthen and motivate me, so please keep them coming.
The chemo is going really well this time around, so far I feel totally fine. I even busted out the homework today, don't ask me why because I do not know. Of course, I broke out the choreography book first though. I'm really excited for next week when danceline begins...I probably won't be able to really do much, but then I will just have to watch all my other girls sweat...hahahha. I doubt I will be able to go to the game tomorrow night; I'm highly toxic yet, but it sounds like I should be getting some visitors, which will be greatly appreciated. I can't wait to be home, I miss you all.
Love,
Jenna

Wednesday, November 5, 2003 1:11 PM CST

We are back here in the hospital for more chemotherapy. We got here yesterday and Jenna is feeling pretty well. We had a little time between appointments and discovered a large shopping area attached to Mayo much to Jenna's delight. She talked me in to two new tops from the GAP and Carmel Frappachinos from Barnes and Noble.

Today we met with one of the surgeons who will be part of the surgery scheduled for sometime in December. The news was not what we have been praying for. There is a portion of the cancer that is growing back towards her brain that will not be accessible to surgeons without causing neurological damage. Doctors are looking at other options like radiation to treat what remains. We received a lot of information today and are still processing it. Kurt, Jenna and I were all present for this discussion with the ENT surgeon.

Jenna is looking doubtful for the big game on Friday but if nothing else we should be able to pick it up on a radio station since we are pretty close by.

Jenna will most likely be here until Saturday or Sunday. I know she would welcome visitors and phone calls. The number is the same as the last time she was in. If you don't have it, my mom has it, barbara j. has it too. Call them and they will give it to you.

Thanks for all your prayers and support- but please keep them coming.

Lisa

Thursday, October 30, 2003 3:22 PM CST

The good news as far as Jenna is concerned is that her liver still isn't ready for any chemotherapy just yet so she will have the weekend off! I sense some major social plans being made as I type this. She will have to have a blood test on Monday and then most likely we will be back there on Tuesday. Right now we are all celebrating this little break. I can clean the house! I can walk the dog! We can cheer on the Hounds! Simple pleasures.

Lisa

Thursday, October 30, 2003 8:20 AM CST

Just a brief update, we didn't go to Rochester on Thursday as planned because Jenna's liver has not recovered enough from the last round of chemo. But she will have her blood tested again today and most likely we will go tomorrow. Jenna is hoping she doesn't have to go on Friday though because then she could go to the big FOOTBALL game in Mankato. Jenna went to school yesterday and and will go today too. Keep in touch - Jenna enjoys all your messages. GO GREYHOUNDS!!!!!!!!!!!

Lisa

Tuesday, October 28, 2003 4:35 PM CST

Well, I'm just sitting here watching some pretty rockin reruns of Saturday Night Live as my mom and I wait for my methotrexate levels to come back. I was really hoping to go home yesterday or even this morning, but the docs can't seem to let me go. The hospital starts to get pretty monotonous after a while. Hopefully I'll be out of here within the hour and go to school tomorrow. (it's kind of weird saying that I hope to go to school tomorrow!) Anyways, I just look forward to seeing you all again and being home.
Love,
Jenna

Monday, October 27, 2003 10:25 AM CST

Drat! Still too high a methotrexate level for the docs to spring Jenna. We're trying to get to a 0.1 level and we're at 0.22 so that means probably one more day here drinking lots of fluids and keeping the old IV running. They just need to make sure that the chemotherapy (the methotrexate) had cleared from Jenna's liver and the fluids flushing through her system is the answer. Probably the soonest we'll be home would be tomorrow afternoon.

We'll need to be back here Thursday or Friday (Halloween) for another 4-5 days. Sounds like there is a Halloween dress-up/parade/party here on Friday. Maybe we can get some pictures of Belle for the website. Jenna seems to feel pretty good with this chemotherapy treatment so visitors, phone calls,letter and cards to the hospital here and other shenanigans would be very welcome this next weekend.

We seem to think that Jenna's newest hair growth is a calico pattern similar to a Rosebud type look with some blond mixed up with the red. Who knew she'd be such a beauty minus the red hair.

Stay tuned, we'll update the journal when homegoing plans are known.

Lisa and Cate

Friday, October 24, 2003 3:13 PM CDT

Hi Everyone~
Well, I finally checked into the hospital yesterday at about 3:00 after I spent a little extra time at the Mayo running tests, going to exams, and, of course, waiting. They put me in front of the nurses' desk this time, apparently they know I'm trouble. I began my chemo at about 9:00 last night and it was finished already at 1:00. It was much easier than last time, especially because it happened overnight. They run so many fluids through me that I don't understand where they go. I don't think I have ever been this hydrated; it's amazing! In a little while chemo out of my body. Once it gets down to a certain low level, I can go home. Apparently I am very toxic right now..haha.
I had a lot of fun during my break home. I went to my dance coach, Missy's, wedding dance and worked it until I almost fainted. Oops...I've been hanging out with friends as much as possible, of course, and taking as many random pictures as possible. I have been keeping busy with attempting, but not suceeding, in catching up with homework. I've also been very busy with choreography. I'm pretty sure we got done with the high kick dance..! That is truely amazing, considering how much we fool around. I've also been having a lot of fun abusing my new handicap parking pass. It's great to park in a vacant spot for a while with an escort carload of friends, getting out and sprinting around the wagon, and driving away. That's probably bad...but what's a girl w/ cancer to do? Thanks for all your prayers and I should be updating this quite often in the next 3 weeks since laying in a bed isn't always that fun.
Love, Jenna

Monday, October 20, 2003 8:04 PM CDT

Hi Everybody,

Well, it's finally gone. No more carrot, fire, or torch jokes anymore because the chemo finally did its thing. I actually shaved my head because so much of my hair was coming out that it was more annoying than sad. It would have come out totally by itself in a couple more days anyway. Although I definitely cried, I'm glad that it's just over with. Yes, I was very tempted to get a mullet but then I discovered two things. First of all, it's not actually good to have a mullet. Secondly, it's very easy to hunt for yourself. What would be the fun of mullet hunting when you can just look in the mirror? I fail to see that fun.
I return back to the Mayo for another fun-filled chemo treatment on Thursday. I feel really well now and I'm up for another week of pure hydration. This cancer is going down.

Love,
Jenna

Thursday, October 16, 2003 10:45 AM CDT

Update on Jack: He is back home and doing well after nose surgery in Owatonna yesterday. He had some cartilege removed from an ear to fix the hole in his septum, and also had his adenoids removed. This surgery seems not to be as painful as the one he had this summer since there were no stents involved, so he should soon be breathing easy and sleeping well. To quote Lisa - "he should have a nose even better than Michael Jackson's." I should hope so, I think our surgeons are better than his. I hear that pictures were taken of Jack in his bandaged state and he was threatening retribution to anyone who might post them on this site. So... Jack and Kirby are going to have a few days on the couch together, lovingly tended by sister Jenna...

who by the way had her hair cut shorter yesterday, somewhere between chin and shoulders. She noticed that it was starting to come out and so went in for a cut after school, with some friends coming along for moral support. Her blood counts were low this weekend which is entirely normal 7-10 days after a chemo session. The hard part for Jenna is taking it a little easy when counts are low - she is not a girl who likes to waste time resting when there are more interesting things to do. Hopefully the counts are coming back up again. One of the meds she was given last week was to prevent blood counts from sinking very low and was just approved for use in a pediatric population.

Lisa and Kurt have rearranged her house a bit so that couches, chairs and beds have remotes and tv's easily available. Sounds like the place to be if you need to rest up. Grandpa Langer has been busy researching internet hookups, and he will be down next week to set up his laptop for Jenna and get everything all connected and networked and installed so that Jen will be able to use his laptop in Rochester at the same time Lisa has a good hookup at home. He is officially in charge of "tech support."

Next chemo will be (maybe) in about a week. After this the treatments are closer together. Lisa & Kurt & Jenna & Jack continue to be amazed and touched by the amount of support and concern and kindness out there. Though this is not a situation you would wish on anyone it is amazing to see how it brings out the best in so many people. Thank you once again.

Ann

Friday, October 10, 2003 12:43 AM CDT

Hi -

As you can all see Jenna is out and about. She is catching up on work and fun, and we all know that Jenna is quite proficient in both departments. The next chemo session will be in about two weeks, depending on blood counts and such. The next two sessions will be only one week apart.

Unless Jenna wants to, or we have news to share, we'll slow down on the updates until the next chemo session. ALSO - CaringBridge is doing some maintenance and will be down late Saturday afternoon (the 11th) for sure and for as long as three days afterwards. You should still be able to view the page but may not be able to make guestbook entries. (?We'll see how it goes.)

Please feel free to continue to leave messages if you are inspired to do so, and send any pictures to Sue. They are very welcome. During this little chemo break Jenna's brother Jack will have his nose surgery - he did a little damage this summer when he hit a foul ball to himself :) - so we need to get him in good shape for next baseball season.

Until the next update do as Jenna does - Carpe diem!

Aunt Ann in St. Paul

Tuesday, October 7, 2003 9:46 PM CDT

Well I'm finally home and trying to catch up on my many, many, many hours of homework but I think I kind of forgot how to do it. Of course I can't miss this perfect opportunity to procrastinate. I got home yesterday to lots of cards and everything which made me feel even better to be back. This morning some friends and I got together to take my senior pictures and, you know, skip as much school as possible. I went to school this afternoon and, as much as I hate to say it, I miss being in those hallways and sitting in class. Thank you for all your mullet updates (even though I am already aware of most of those mullet websites out there because I did a mullet slide show last year for micro that included over 100 mullet pictures-very proud of that one-but I still love it, dad updates...haha...school updates, and danceline updates. D-line girls, I have been laying in a bed for 5 days and you better believe I have not failed you in coming up with some beautiful, shall we say creative, moves. Most of all, thank you for your prayers. I really do feel them.
Love,
Jenna

Monday, October 6, 2003 8:12 AM CDT

Hey Everyone,
As you can see it's only 8:12 in the morning and I have no idea why I'm up yet, but I guess when you sleep alll day you get kind of sick of it. I can't tell you how much I appreciate all the mullet sightings but come on people where are the pictures?! haha...Well hopefully I go home today; I'm pretty sure I will if I can just eat some cornflakes or something. Everyone is really nice here but of course it's 10 times nicer to be home and I'm really looking forward to seeing everyone again. Thanks for the endless support.
Love,
Jenna

Sunday, October 5, 2003 12:32 AM CDT

Hey Everyone,
Well I just woke up after many many hours of beauty sleep, or whatever you want to call it. This whole chemo thing sucks a lot more than I thought it would, but it's ok, I've got it. Reading everyone's letters to me really brings a smile to my face and I appreciate it more than you will ever know. I don't take any of your prayers for granted and I really do feel very blessed to have you all. Really, this cancer doesn't know who it's messing with.
I love you all.
Jenna

Sunday, October 5, 2003 11:33 AM CDT

good morning everybody- well Jenna is done with the chemo for this round and now we are just waiting for her to wake up and eat and drink. She won't be coming home today but tomorrow looks pretty likely.

Just to let you know who has all been here with me this past week and a half (it's kinda like I have had a babysitter for me, sometimes I have needed that) My sister Cate from Buffalo stayed with me and the kids most of last week, she left on Friday and was replaced by my sister Ann from St. Paul. She is leaving today and then my cousin, Louise from Duluth will stay today and take us home tomorrow. We have had visitors too like grandma and grandpa Langer, Aunt Sue and Ann and Cindy. My brother Tony has been taking care of Jack. Kurt has been here everyday and yesterday he went to New Ulm to be with Jack for parent's night at the football game, he is spending the day with Jack. Jack can sleep at Grandma and Grandpa's tonight. And my second son, Kirby,is being well cared for at his home away from home at Grandma and Grandpa's. He may not want to leave there after reading his message to Jenna.

Words can not possibly express how grateful I am to all these people for being there for my family. They have all taken off time from work and from their own families to be with us.

So we should be home soon and then after a little rest I think Jenna will be ready to have some of her regular fun.

Lisa

Saturday, October 4, 2003 1:50 PM CDT

Hi -

A quick note from St. Mary's -

Jenna says "hi" to everyone. Right now she's asleep, Dad is watching the Twins game, Lisa is napping and I'm doing this.

The nurse says she's doing very well with a pretty high dose of chemotherapy. Evidently children tolerate higher doses of chemo than adults. But - doing well with chemo and feeling great aren't the same thing. She's very tired and has had some sick moments. She likes the room pretty quiet and we've banished all talk of food. Everyone is working to find the right combination of anti-nausea meds to keep her feeling as good as possible without sleeping all day. But we'll take sleeping all day to feeling sick :)

All day yesterday and today her goal has been to get to this site and do a greeting, and she's come darn close a couple of times. This morning she was all ready to start typing but then took a little break. She may get to it yet today.

Her chemo drugs should be finished sometime during the night tonight. The doctor today mentioned keeping her till Monday just to make sure everything is going okay before she goes home. We'll see tomorrow.

The resources in this place are just awesome. You all should see this computer - it adjusts to about a thousand different positions to suit anyone. And that's not to mention the Child Life people, the nurses, the library, the social workers, on and on and on. In a perfect world everyone would have access to this kind of support.

We're hoping the cancer cells don't know what hit them.

Ann T.

Friday, October 3, 2003 7:12 PM CDT

Hi everyone, this is Lisa. I have many thoughts I would like to share but I think I will keep this kind of brief. Obviously I was devasted to hear the diagnosis of cancer for Jenna. Who could have thought a girl like Jen could be this sick. But that is the way it is and now it is time to put all of our energies and prayers into helping her make a complete recovery.
Jenna began her first chemotherapy treatment today. She has been very tired and has gotten sick a couple of times. She had just gotten her hands on this computer and then they gave her some medication to help with the nausea which caused her to fall asleep. Her goal all day was to see the web site and she had planned to write a note.
Maybe tomorrow she will have something to share. We will be here until Sunday and I know Jenna will want to get back to school as soon as possible.

Thanks to all of you for the many prayers, greetings, floweres, gift baskets (child support unit, Jane B.) We have many of those items with us. A lot of you have offered to help out and I think as the months go by I will be asking for your help.

please keep your prayers coming....

Lisa

Friday, October 3, 2003 10:30 AM CDT

Hello to everyone who has so kindly shared a message with Jenna, Lisa, Jack and Kurt(even you Charlie...but please, no more blister descriptions). This website has become a wonderful diversion for us as we continue through this process of healing. It has already provided opportunities for laughter and continues to connect us to the support we know is out there.

Jenna may provide her own journal update in the next few days so I will keep this short. We got through the rest of the clinic testing that needed to be done yesterday (Thursday, Oct 2nd) and then headed to St.Mary's to start chemotherapy. The doctors have told Jenna that she can plan to stay until Sunday for this first round of therapy.

The hospital staff has already been wonderful by making everyone feel comfortable. Nice digs....Jenna has a private room on the adolescent pediatric unit which has already gotten the Jenna touch--teddy bears, pictures, flowers, etc.

By the way, if you will be spending time with Jenna and her family these next months, the oncologist suggested getting a flu shot. Chemo can wreck havoc with immune systems and this would be one easy way to keep the flu bug away.

That's all for now, stay tuned for an update in the next few days.

Quote of the day (from Lisa): " Coffee just isn't my cup of tea today."

Joke of the day (courtesy of Kurt):
Did you now that the bible says only men can make coffee...it says so in the book of He-brew........


Bless you all,

Cate (Domeier) Macho
another of Jenna's aunts

Wednesday, October 1, 2003 10:32 PM CDT

And to think when I started this on Sunday I thought people might be too shy to sign in...evidently not a problem!

Everyone's greetings are so kind it is just overwhelming. I'm actually thankful for a lot of things - for example the Mayo Clinic; health insurance; the Ronald MacDonald house; these fabulous caringbridge people who provide such a great service on such a teeny budget; and most of all everybody out there who is sending prayers or positive vibes or whatever Jenna's way. Thanks to everyone for the messages, the flowers, the notes, the baskets, the gifts...we are really blessed.

Lots of people have offered to help and believe me, it is appreciated. We're still finding our way through all this and haven't had a chance to really organize much, but when we do we'll be calling. We sure know the frustration of wanting to "do something" when there really isn't much that we can do.

Jenna's out on the town tonight, then it's off to the clinic tomorrow. Will try to post an update in the next few days or so. Until then, hug all the children around you, even the ornery teenage ones...

Ann (Domeier) Tucker
for Jenna's family

Tuesday, September 30, 2003 10:17 PM CDT

Well - I just talked to Jenna and we must have gotten our signals crossed - I was telling her how to update the page herself and I'm thinking she must have given up and gone to bed. So Jenna, if you're reading this and want to add a message - you know everyone would love it - call/email me and we'll figure it out.

Anyway Jenna was back home in NU from the clinic. They had called Grandma ahead of time and requested corn chowder, which of course Grandma hustled right over and whipped up. After polishing off some of that she went up to the volleyball game up at school, and when I talked to her she was in the midst of some pretty serious chocolate consumption.

The port is in and all is looking well on that front. Tomorrow she has a "day off" to go to school and homecoming festivities in Sleepy Eye. Thursday morning it's back to Rochester to start chemo. We're not sure exactly when she can come back home but she'll probably have to stay till Sunday (????) or so.

She had her first look at the web site tonight and was floored (as I am) at all the wonderful messages. Thank you, thank you, thank you all from the bottom of our hearts.

Ann T.

Monday, September 29, 2003 4:42 PM CDT

Greetings everyone -

I just spoke to Cate (Jenna's aunt) at Mayo and got an update.

It seems they are prescribing a nine month course of treatment - chemo from now until December, then surgery, then more chemo. The good news is that they confirmed that the cancer had not spread.

For the rest of today they are doing some more lab tests and a cardiac echo (for baseline purposes). Tomorrow she will have a "port" implanted surgically - that's a device that allows them to easily administer medications, rather than sticking her every time.

After that, well, Jenna is negotiating with the doctors...it seems there is a function on Wednesday night that she REALLY REALLY wants to be home for...so she is promising to be a good girl and return to the hospital on Thursday. At any rate the plan is for chemo to start sometime later this week, and hopefully have her home by the weekend.

I asked Cate how the doctors were and she said "wonderful." At one point the surgeon sent his assistant in to talk to Jenna and WELL, it turns out that this very fit young lady was also a dance line person. Lots to chat about there.

That's all for now. Thanks so much for all the support for Jenna and her family.

Ann T. (Jenna's aunt)

Sunday, September 28, 2003 4:53 PM CDT

Hello everyone -

Greetings from Jenna's page! We hope to use this page to get timely updates out on what's new with Jenna -

To briefly recap - Jenna had been having some ear pain recently. Last week she saw an ENT who referred her to a specialist at the Mayo Clinic, where she was given a preliminary diagnosis of osteosarcoma (a bone cancer). There is a tumor that is attached to one of her left sinuses, sort of above the soft palate.

Though the doctors have said that the tumor is in a challenging position, they felt that it had not spread to any other parts of her body.

Tomorrow there will be a care conference at Mayo with family members and members of the medical teams. The feeling last week was that they would probably recommend chemotherapy, followed by surgery and probably more chemotherapy.

Needless to say this is stunning news, coming only a week and a half after the school play in which Jenna had a part, and days after homecoming, where Jenna had a great time as a princess. We are all adjusting and gathering strength. It will be a long haul and we are busy making preparations for it.

We hope to update this site often to cut down on the phone calling and waiting that go with having someone in the hospital. You all can bookmark it and send greetings to Jenna on the attached pages...Jenna would especially enjoy hearing from her friends, who bring her gifts and gossip and jokes and give her a break from some of the hovering adults around here...

Stay tuned for more....

FOJ

(Friend of Jenna)

PS - Stayed tuned for pictures...

Click here to go back to the main page.

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