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Darling Sophia Hi. For those of you that are new to this site, my name is Sophia Karin Doebbert. I was diagnosed with SMA type 1 when I was six months old. It was a very difficult time for our friends and family. Through prayers, love, and encouragement we have been getting stronger. Please take a few moments to view my pictures and sign the guest book. If you would like a detailed history of events, please read the journal as well as the journal history. 
Journal
Friday, December 26, 2008 10:14 PM CST Merry Christmas & Happy New Year!
We celebrated the birth of Jesus with lots of snow & cold. The girls were in very festive moods and loved the decorations and lights. We are very, very thankful for a healthy family this season.
Sophia & Lila have entered a magical stage of sisterhood. They play so well together, and Lila has become very dependant on Sophia. They help each other out: Lila will place toys in Sophia's hand (and always the left hand, because she knows the right hand is for driving) and loves to race Sophia around the house in her bike. They play make believe with Playmobil sets and build forts in the living room. Sophia is also very protective of Lila, and will "run down" any potential threat with her powerchair. You don't want to get in her way!
Sophia continues to enjoy school and even finished out the term attending five days a week. She enjoyed helping out during the "Kids Against Hunger" food drive, where she was a box runner. She is blossoming. She has become so talkative, saying the most profound and witty things. She also loves to sing, and has a great ear for music. She will listen to a song one time and be able to sing it back to you, in tune. Her latest thing is telling everyone that she is "getting married" (like our recently-engaged friend Cassie) and will be going to live in the castle. The groom is none other than Prince Phillip. She has picked out a dress from a bridal magazine and has a gigantic faux diamond ring. She will put everything on, including a pair of glass slippers, and dance around the living room in her powerchair to the theme from Sleeping Beauty.
Busy little Lila has been enjoying the snow - sledding & skating with her Daddy - and is looking forward to her 4th Birthday. She is a smart, observant girl who will not let you forget anything. She is also loads of fun and loves to giggle and smile. Her favorite gifts from Christmas were Tumbles, a stuffed puppy that rolls over when you press his paw, and a big elephant that she can ride. Animials continue to be her passion.
We thank God for all of our wonderful blessings and look forward to the new year. Most importantly, Sophia & Lila will welcome the arrival of their new sibling in early June! We are all very excited about this addition! The girls are convinced it will be a boy. Sophia asks me every day "Mommy, do you have a baby in your tummy...a boy?" We would be happy for either, and will be leaning on God during this exciting (and crazy) time.
God bless,
Andrea & Doug
Read Journal History
Links: http://www.fsma.org Families For Spinal Muscular Atrophy Website
http://www.smasupport.com SMA Info & Support Group
aldoebbert@comcast.net Andrea's E-mail Address
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