Corey and Emma McKenney

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Corey was born April 25, 2001. Corey passed into the arms of Jesus, January 6th 2009 surrounded by is family. He weighed 6 lbs and 7 oz and was only 17 inches long, very small compared to our usual 9 pound babies. From the beginning Corey had problems, from not breathing on his own at birth with low apgar scores to not regulating his temperature. He never cried, was unable to breastfeed and never met milestones. At 6 months he was diagnosed as failure to thrive and thus began our quest for a diagnosis. He first was misdiagnosed as having CP and static encephalopathy. He is currently diagnosed as having mitochondrial disease, CF, autism, sensory intregration disorder and has an undiagnosed neuromuscular disease. He has gone thru numerous biopsies and tests to this date without being fully diagnosed, it is unknown if he ever will be. Corey is legally blind, hearing impaired and g-tube fed. He sufferes from multiple seizures each day but never lets his disease get in the way of him enjoying his life. He is the sunshine in his Mom's life and is very loved by all his sisters and brothers, Alyssa, Sean, Lexie, Mikayla, Liam ,Evan and Emma. Thank you for stopping by, please sign his guestbook.

Emma "Emmy" was born January 12, 2006 @ 35.5 weeks. She was 6 lbs 12 oz and 19.5 inches. She appeared to be a very healthy little girl at birth. Emmy's feeding issues began shortly after birth. She was unable to breastfeed and had a very weak and ineffective sucking ability. At 2 weeks of age she was diagnosed with severe reflux and put on meds. All this was attributed to her being born early. At 4 weeks she was diagnosed as failure to thrive. Following numerous formula changes an ng tube was placed in March. A few days later she had a g-tube placed. April 7th 2006 Emmy was diagnosed with the same disease as her brother Corey. It is believed to be a mutated form of mito. She also is failing to meet many of her milestones. While our dreams of a healthy baby have been taken away, she is our little princess and loved so very much! She is an absolute joy to have in our lives and is so loved by all her family. In the few months that we have had her blessing our lives she has taught us and others more about what is important in life than can be described. Each day Corey and Emmy are in our lives is another miracle from God.



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Journal

JULY 5, 2008 7:01 AM

Good news everyone. Corey's headstone went in today and the guy did an amazing job! -Alyssa







Well I survived the 4th. Actually it was nice. We went to a parade on Friday evening, another parade on Saturday morning and the fireworks in the evening. Before the parade Saturday we went to the cementary, placed flags and decorations on Corey's spot and lit some sparklers for him. As I have said before, Corey loved the 4th, noise and fireworks were his thing. Several people at the parade stopped by to see Emmy and to tell me they were thinking of Corey and his love for the 4th. Tony's sister called me when we were on our way home so she and her kids came from Minneapolis to spend the rest of the day with us. She said she knew this day would be especially hard for me. She is one person that truly gets it as she also has a little angel in Heaven. Her daughter died several years ago unexpectedly very young. We had a nice time, enjoying each others company and the kids had fun playing together.
While we were at the fireworks the medical helicoptor landed and someone close by said imagine the view of the fireworks from that coptor. I always say a prayer for the person inside, it is never a good thing to see that. Liam said to me imagine Corey in Heaven with Grandpa and Tony and Hayley they get to see all the fireworks over the US, Corey must be so excited! Wow what a sight it must be but can't compare to Heaven!
I am getting more and more anxious as I am making new decisions and the closer it gets to Emmy's surgery. I am feeling much more at peace with my decisions, trying hard to let go and to let God and trying my best to live Corey's motto, live for today, and my own, to let tomorrow take care of itself.
Margo b>

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Hospital Information:

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Links:

http://http://smilequilts.com/corey.html   Corey's Smile Quilt
http://http://quiltsoflove.com/quilt/coreyMc/corey.html   Corey's Quilts of Love Quilt
http://www.caringbridge.org/mi/mayam/index.htm   Another mito child

E-mail Author: mitomom@hotmail.com

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.