Corey was born April 25, 2001. He weighed 6 lbs and 7 oz and was only 17 inches long, very small compared to our usual 9 pound babies. From the beginning Corey had problems, from not breathing on his own at birth with low apgar scores to not regulating his temperature. He never cried, was unable to breastfeed and never met milestones. At 6 months he was diagnosed as failure to thrive and thus began our quest for a diagnosis. He first was misdiagnosed as having CP and static encephalopathy. He is currently diagnosed as having mitochondrial disease, CF, autism, sensory intregration disorder and has an undiagnosed neuromuscular disease. He has gone thru numerous biopsies and tests to this date without being fully diagnosed, it is unknown if he ever will be. Corey is legally blind, hearing impaired and g-tube fed. He sufferes from multiple seizures each day but never lets his disease get in the way of him enjoying his life. He is the sunshine in his Mom's life and is very loved by all his sisters and brothers, Alyssa, Sean, Lexie, Mikayla, Liam ,Evan and Emma. Thank you for stopping by, please sign his guestbook.
Emma "Emmy" was born January 12, 2006 @ 35.5 weeks. She was 6 lbs 12 oz and 19.5 inches. She appeared to be a very healthy little girl at birth. Emmy's feeding issues began shortly after birth. She was unable to breastfeed and had a very weak and ineffective sucking ability. At 2 weeks of age she was diagnosed with severe reflux and put on meds. All this was attributed to her being born early. At 4 weeks she was diagnosed as failure to thrive. Following numerous formula changes an ng tube was placed in March. A few days later she had a g-tube placed. April 7th 2006 Emmy was diagnosed with the same disease as her brother Corey. It is believed to be a mutated form of mito. She also is failing to meet many of her milestones. While our dreams of a healthy baby have been taken away, she is our little princess and loved so very much! She is an absolute joy to have in our lives and is so loved by all her family. In the few months that we have had her blessing our lives she has taught us and others more about what is important in life than can be described. Each day Corey and Emmy are in our lives is another miracle from God.
It's Alyssa once again...thankfully...I can say I have no bad news this time because there really isn't much news worse than what's already been said. Sorry to everyone I made the text too small for...hope it's better now.
My mom wanted to have me get on here and let everyone know kind of the final arrangements for Corey. The funeral will be held Saturday at noon with a visitation beginning at 10AM at Nelson Doran funeral home in Brainerd. (202 Eighth Avenue Northeast Brainerd, Minnesota 56401) followed by a service at the grave site and a balloon release in Corey's honor and lunch. Memorials may be sent to 14665 CTY RD 139 Pierz, MN 56364.
And for those of you in the area, the full obituary will be in Brainerd's Sunday paper.
Also, I've started an online memorial for Corey. Sadly, it will only run for 14 days because I can't pay for it but I think that's enough time to show how loved he was :) The address is www.Corey-mckenneyfamily.virtual-memorials.com Please sign the guestbook!
Thank you all for your love and support during this very difficult time for my family...I couldn't begin to express how much we all truly appreciate it.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Heaven has gained the most precious angel in the world today. Our beloved Corey Edward passed into the arms of Jesus today. Please pray for me and my family! Margo
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