Brandon Eugene Rolen Welcome to our Miracle Baby's Website Our Angel Brandon
Brandon Eugene Rolen
Born: February 8, 2003 at 8:03 am Weight: 8 lbs & 6 ounces Length: 21 inches Brandon has been diagnosed with having S.M.A. Type 1(Spinal Muscular Atrophy). It's a fatal genetic disorder and the doctors do not believe he will make it to his first birthday. -God Bless our Precious Angel Brandon.
Journal
Friday, September 3, 2010 11:49 AM CDT September 1, 2010
Brandon was doing good so we decided to stepped out to get some movies for him at the house and pick up some grocery for us. We left past 1PM and back at Brandon's side about 3:30PM. The incoming nurse have informed us that Brandon's G-tube (Feeding tube) was pulled out accidentally when they were changing his diaper and yanked his Trach tube :(, I wanted to get more information on what happen but the incoming nurse can't give me more details because she said she wasn't here when it happened and the nurse who was here was already relieved. Since then, we decided not to leave Brandon's side.
Sampson is so amazing and I am so lucky that he is always here for Brandon, with his broad medical knowledge and experience greatly help. He is Brandon's 24 hours doctor :).
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Hospital Information: Patient Room: Brandon's Room We Are Home Now!!! 18863 Englewood Circle Farmington, MN 55024 612-845-4479
Links: http://www.fightsma.com http://www.fsma.org http://www.brandonrolenfoundation.com
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