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September, 2008 - Shelby on her way to start her third grade year.
WELCOME TO SHELBY'S WEB PAGE!
Shelby was diagnosed with Pre-B ALL (Acute Lymphoblastic Leukemia) on January 16, 2004.
Shelby completed her treatment in March, 2006.
Visit Shelby's Quilt of Love...http://quiltsoflove.com/quilt_2004/shelby_NS/shelby.html
This journal is being done to help keep people updated about Shelby and our family.
In journal entries, we will refer to her blood counts.
HgB: Hemoglobin: If less than 7.0, a blood transfusion will need to be done
WBC: White blood Cells (Normal 5.0-15.0)
RBC: Red Blood Cells (Normal 3.92-5.23)
NEUT: Neutrophil Count: this provides an indication of Shelby's ability to fight infection.(normal 2.5-7.4) Anything above 1.0 she can go to school.
PLT - Platelets (normal 150-450)
Diagnosis Story: See March 24, 2004 Journal Entry
Treatment Protocol: See 3-3-05 Journal Entry
OFFICIAL TREATMENT END DATE: 3-12-06...ENJOYING REMISSION/SURVIVORSHIP SINCE 3-12-06..
Journal
Tuesday, October 7, 2008 10:42 AM CDT Again, another long time between updates. I apologize….I know I keep saying it’s because things are crazy….well they are! Not enough hours in the day (or maybe I “volunteer” for too many projects!)
First off, things are going great on the home front. Everyone is feeling good and growing bigger and bigger each day. Shelby keeps getting so tall—it is getting hard to find skirts that fit her! She is currently in a phase where she wants to wear a skirt to school..we’ll see how long this lasts!
Doctor Updates
Ear/Nose/Throat Doctor: She returns on October 17 for hopefully the final follow up appointment. She still sounds rather stuff, but is being really good about putting her cream in and the best part….NO BLOODY NOSES!!!!
Oncologist: We go this Thursday for her regular appointment. I’ll update the counts on Friday.
Gastro Doctor: She goes back this Friday for a follow up appointment. She has been on that Miralax and it seems to be working. She still does wake up with stomach pains in the morning---but now it is only in the morning and not throughout the day or in the evening like it used to be.
School Updates
The kids are doing great in school. Shelby brought home her progress report and got all “4’s” on it (that is the best). She is doing really great and loves 3rd grade. Evan is doing equally well and is excited about this being his last year in elementary school.
Trips
We survived the Camp Quality Family Weekend to the Kalahari Waterpark Resort. It was a very nice event for the campers and their families. Lots of work for me, but it turned out really nice and we have re-booked the place to return next year—but it will be toward the end of September.
Tom’s Hike in the Smoky Mountains. We survived this too—the kids did remarkably well on the 10 hour car ride (we did break it up on the way down, but on the way home we drove right through only stopping for lunch). Even that was a little too long for me. The weather was not that fantastic when we were there. Tom even go to the top of the mountain..but it was way too cloudy to get any type of view. It was brisker which was nice and overall he did have a nice hike. Not sure if he is planning on hiking next year or not. I think he is leaning toward the Grand Canyon again..but we’ll see. We might even tag along if he goes on that one..but I think that one is right when school gets out which is a super busy time for the kids, and for me with the Camp stuff. Our camp dates for next year are July 5 – 11 and training happens on June 7.
Kids Activities
Evan is loving his guitar lessons. He only has two more left then we will decide what to do next. He is really catching on well and does good (when we don’t have to fight him to practice). He never seems to want to practice when I am around..but he will do it for Tom anytime. Evan also started Cub Scouts again and he is a Webelo II. He now says he wants to move on to Boy Scouts in middle school..so we will see if he keeps saying that. His soccer team is doing great. They have won all their games except one. They have 2 more left and he has to soccer clinics that he is going to be going to. Then when soccer ends, Karate starts up and both kids are in the school choir and the church youth group choir also starts up again this Thursday.
Shelby LOVES, LOVES, LOVES her jazz classes. She is really good at it too. She loves to sing and dance and is getting very excited to see which costumes they are going to pick out for the recital in the spring. She really looks forward to going to dance class. She also started Brownies again and loves that. They have some really great things planned for this year.
I have enjoyed my little “break” from Camp stuff without any committee meetings. We have our camp reunion on Sunday, October 19 at the camp. We expect about 180 people. This should be a fun event. From 1-5, you can do activities – archery, pumpkin bowling, mountain biking, zip line, horses, etc. Then from 5-6 is my presentation and dinner than 6-7 is a campfire. Should be fun—pray for no rain!!! Then the committee meetings start back up. I am going to Houston from Thurs, 10/24-Sun, 10/27 for National Camp quality meeting so Daddy will be on his own with the kids. I’m sure he will do fine….
Well, that’s about it. Thanks, as always, for checking in on us. I will try to post more as things occur…but as you can see, we are just living a normal life that is very, very busy!
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