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SHANE'S PAGE
^i^ Shane became and angel on November 30, 2004. He is now in heaven with his grandpa, and his many friends that went there before him. ^i^ ***Please check out the links portion below to go to web sites of other brave kids who are fighting the same battle as Shane did. Also feel free to read and sign our guestbook*** **A picture of Shane's bench can be found in the "view photos" at the bottom of the page**   I like these two. They are both SOOOOOOO Shane.   Journal Saturday, April 26, 2008 5:39 AM CDT It’s hard to believe that Shane would be 22 years old today (I wonder if he would have been any taller – sorry Shane ~ ha, ha). On the 19th of April I read about the 13th anniversary of the Oklahoma City bombing. I guess you always remember where you were when things like that happen (just like when the Twin Towers fell). For me, 13 years ago on the 19th I was in a hospital room with Shane. He had already gone through 5 rounds of chemo (which was 5 different drugs running for a brief time each day for 5 days). The 6th, 7th and 8th rounds however were much harsher. They used the same drugs, but they ran continuously from day 1 through day 5. His first dose of that was the first week of April in 1995. I have to say that I think his body handled that combination worse than it did his two transplants. He spent over three weeks in the hospital, slept most of those three weeks, and ended up getting TPN (liquid food) for awhile. The bombing in Oklahoma happened during that time and all I did was sit quietly with Shane in his room watching T.V. Shane got better, and the doctors and nurses trained me well in running IV’s at home, and we were able to bring him home in time for his birthday. He never was inpatient on his birthday during the ten plus years that he was treated. He did end up down there on his birthday from time to time for outpatient chemo (the bottom, left picture up above is from his last birthday here on earth. I can’t think of a better place for him to have celebrated it at). I think it was his last three birthdays here that he gave up the traditional cake/ice cream celebration, and opted for having pepperoni pizza with candles on it. It was fun, and it was definitely something that we expected every year after he started it. So……… today sometime, I plan on getting a pepperoni pizza and having some for Shane’s birthday. School is over for both Kayla and Adam. They haven’t seen each other since Easter. Adam said that she called him a week or so ago and said that she didn’t remember what he looked like (ha, ha). It’s going to be a couple of more weeks before their schedules will bring them home at the same time. Adam has been done for over a week now, but he has to stay through May 6th because they are making up all of their baseball games that were cancelled because of snow/rain. Out of 18 days, he has 17 days of double headers. He’s going to be one tired boy when he finally gets to come home. I think he starts his summer job a few days after that. A lesson that I do believe he learned while away at school is to maybe spend less of his summer earnings during the first semester of school (ha, ha). We’ll see !! No grades yet for him, or maybe he’s just not saying anything (hmmmm). Kayla finished her exams this week and she couldn’t be happier!!! Between work and studying for exams, it’s been 4 weeks since she’s been home (I think the dog has forgotten about her – I doubt it). Her Anatomy class that we weren’t sure how she would do (thank GOD she didn’t have to dissect anything), she ended up with a B+. Yaaaayyyyy Kayla!! She has started apartment hunting, and I hope she can find a good one for about the same rent that she is paying now, but in Ann Arbor this time. Shane would LOVE to hear her stories about how people drive down there. I can just hear him telling her that he had already lived it and drove for years in it without letting it get to him. Sometimes I think about how ironic it is that all Shane wanted to do was to go to school at U of M, and live down there. Instead, he ended up at CMU, and living in Mt. Pleasant, which he liked. Now, Kayla is living a stones throw away from Ann Arbor, and Adam is living a stones throw away from Mt. Pleasant. I think of Shane a lot every time I go to see each of them. Before I end this I want to bring something to everyone’s attention. For one of Kayla’s classes she had to do a research paper about some type of medical topic. She chose to do hers on Children’s Cancer, Lack of Awareness, and Lack of Funding. I tried finding different resources for her to go to on the internet, and through the Neuroblastoma ACOR that I still belong to. It really got frustrating to me at times about how long I spent on the computer looking, and how little I could find. She was assigned the paper in January, and it was due at the end of March. I put together a list of kids names and ages for her that since January 1st, had either died, or their parents had been told that there was no more that could be done for them. All of them, but one, were fighting Neuroblastoma, and these were only kids that I know about through our ListServ. I’m sure that there are many more. From January of this year till the end of March there were 11 children that had died. The oldest being nine, the youngest being 2. One fighting for over 5 years, two only able to fight for seven months. One, dying one week shy of his fifth birthday. During that same time there were parents of six kids that were told that there was nothing more that could be done for them. All of them have been fighting cancer for over two years. Since the end of March, three of those kids have now died. It just seems so unfair for this to still be happening. I am SO GRATEFUL for Shane being able to fight for over 10 ½ years. I am SO GRATEFUL for all of the memories that were made, and all of the pictures that were taken during that time. I am SO GRATEFUL for all of the birthdays that we were able to celebrate together. HAPPY BIRTHDAY, SHANE!! WE LOVE YOU, AND WE STILL MISS YOU LIKE CRAZY!! Everyone go out and have some pepperoni pizza today!! Read Journal History Hospital Information:
Links: http://www.beebo.info/angels/angels.html More kids with NB. Click on the Warriors picture, NED picture, or the Wings picture, then click on any kid's picture for their story. |
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E-mail Author: cjrezmer@yahoo.com |
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