|
Sammi Jean Elisabeth Robertson 
New Update September 5, 2008
These are some pictures of Simonne and I, and also of me at the Zoe Bergan Cancer Foundation Hockey Game.
These are the pictures of the first day at American Girl Place in Chicago with Rachel! It was the best Birthday Party ever!!

*HUGS* TOTAL! give SammiJean more *HUGS*
Get hugs of your own

Info on Me:
Date of Birth: February 10th,1993
Favorite color: Blue and Lilac
Favorite Food: err, Let's just say..I was a pig in a past life! What? I'm on growth Hormone!
Favorite Drink: The H2O Baby!
FavoriteSport:Bowling
Favorite Animal:My Flabbs of Steel,Of course!
My Heroes: All of the CB kids and Fred Epstein!
Life Ambition: Become the Best Neuro Oncologist ever!
Something I would like to see: A Non-Shot Growth-Hormone!
Something I couldn't do without: EMLA Cream!!
Something I could do without: The Pain sensitivity I get with the Adrenalin Insufficiency.

Hi, thanks for visiting my website.My name is Samantha Jean Elisabeth Robertson!(whew!You can't imagine writing that on MEAP tests!) On March 27, 2003 I was admitted into Children's Hospital for Meningitis and had a cat scan which showed a tumor of some kind in my pituitary gland( the most important Hormone producing Gland in your body).
 The burst of chemicals(Gag)from the Cyst, irritated my spine and caused me to not be able to absorb spinal fluid in my brain which is called Communicating Hydrocephalus.(Hydro meaning water and Chephulo meaning head, How rude!!) In December 2003 I had a shunt put in to take the fluid and sort of spit it out in my abdomen. In April 2006, They switched my drainage spot to my subclavian vein so now I have an LA shunt, with 2 valves, a medos(programmable)and a brown.
 This is Kristina and I at the Zoe Bergen Childhood Cancer Foundation Hockey Game!!
Since then I have had 35 surgeries.(13 pressure monitors in my head,one irrigation and debridement, 1 broviac,which almost sent me into septic shock!, 20 shunt related surgeries, and of course the craniotomy to remove the tumor, which was found to be a benign Rathkes cyst, which can also be called a Hypophysial Duct Tumor. (Did I spell that right, mom??) The newest one was an "irrigation and debridement, it's as fun as it sounds, because my 6th...no, my 7th ICP monitor got infected!) So all in all I've missed about 13 months for school, 4 of which during I was being home schooled.

Now I have Growth Hormone Deficiency, Adrenal Insufficiency, Pituitary Dwarfism, and Panhypopituitarism(missing more than 3 hormones.), and Diabetes Insipidus. I have a Burr hole, a hole drilled in my head.(doesn't that sound weird?) Yes I spelled all that without a dictionary.... okay, okay except for the anti diuretic part below!
*****************************
 Simonne & I...The world Famous iPodicals!! *~*~*~*~*~*~*~*~*~*~*
 This my favorite picture of Simonne and me for some reason! ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~ Diabetes Insipidus is not remotely related to the normal Diabetes most people know about. I described it to Caitlin like this....Pretend the kidneys are children and the hormone, ADH, is the parent. Normally the hormone keeps the kidneys in check, lets them do their thing but doesn't let them go crazy. Then one day, the parent goes out of town. The kids go crazy and just start throwing water all over the house, or into Sam's bladder!(MOM!! ixnay on the adderblay, Thank-you!) Maybe the parent will come back, we don't know yet. But in the meantime, we have foster parents (.15 mls of desmopressin or DDAVP twice a day) keeping the kids in check, for the most part. Does this make it easier to understand?

The awesome Web Page was done by Susan And Jeff Ott, Web Masters of Stephanie's Angels Foundation! Thanks soooo much!
Please keep signing the guest book. I love to be reminded that so many people are behind me in this! ********Please pray for Emerald, who has finally won her battle with George. (That's her tumor's name!) We all miss you! WE LOVE YOU EMMA AND KIM!!!! ********Also, please pray for Simonne and her two brothers Chase and Shane. They all have Cystic Fibrosis. But they are fighters and very good friends in the hospital! ********Bravery isn't being fearless, it's doing the feared...*****This is my new life script.. ********New-Mom's email address scanmom@hotmail.com and My E-mail address is Neurogirl716@hotmail.com
 Check out my brothers web site, as he deals with anxiety and atypical eating disorder. Alec's Website
These are the shirts I created on Zazzle. Click on the panel to check them out!
**Earthly Lessons**
God saw that you were hurting, and couldn't bear it anymore. He only wanted to banish, the pain behind your every door. He saw that you were brave enough, and had love for all to feel. He knew that death could never banish the lessons you've appealed. So he took away the discomfort, that you felt more and more, He gave you a big bear hug and said,"Heaven's all yours!" Your family who is just as strong, though they will feel grieved at first will come to realize the lessons, you taught them here on earth.
** I wrote this at school after Leah died.Leah I got the Idea of the poem from my classmate Daniel's Prayer card at his funeral. Keep both families and friends in your prayers!

These are some more of my friends on Caringbridge! Check out their sites! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
My Caringbridge Friends
Simonne Emerald Isle Stephanie Ott Stephanie’s Angels Kelly Muldoon Nicole Beth

July 16th, 2004 It was early in the morning, about 7:30 am, when they wheeled me down to surgery. Then I was born again. The time had finally come and I just wanted it out and gone. I wanted to defeat the tumor that had been draining me for so long I was about to go back to the OR when my mom said to me, "I love you" and after weeks of feeling too sick to answer her, I said, "Mom, I love you too.". I laid down on the table and put the mask over my face. As I started to go under I gave the doctors my trust and faith. I woke up in the ICU and the first thing that they said was that the tumor was finally and forever, gone from my head. I was in the hospital for a month for half my summer break I missed out and riding on a parade float and going to summer camp on a lake But a month and five days later I was back at school. There was one thing that was different, however... it was everything that I knew. The scar was 6 inches long on the top of my head, on the right but the most unnerving and significant change was the one taking place inside. I had learned how precious life is but also how fragile it can be. In just one summer I had changed physically, mentally, emotionally exponentially.
It was early in the morning the day my life forever changed. I'm so grateful for the second chance I got the morning I was born again.


This is my Virtual cat, Skinny Minny! But I still love Flabby Abbey better!

I've got my memories Always inside of me But I can't go back Back to how it was I believe you now I've come too far No I can't go back Back to how it was
Created for a place I've never known
This is home Now I'm finally back to where I belong Where I Belong Yeah, this is home I've been searching for a place of my own Now I've found it Maybe this is home This is home
Belief over misery I've seen the enemy And I won't go back Back to how it was And I got my heart set on what happens next I got my eyesa wide it's not over yet We are miracles and we're not alone
And now after all my searching After all my questions I'm gonna call it home I've got a brand new mindset I can finally see the sunset I'm gonna call it home
Now I know Yeah, this is home I've come too far And I won't go back Yeah, this is home
This is a slideshow of some more of the pictures we took in Chicago, when I went with Rachel for my Birthday at American Girl Place! There are also a couple of pictures of Rachel, my friend Sarah, and I at my house for my Birthday Party at home.
Sammi's magazine article
**********Check out Sam's article in the Children's Hospital magazine....
This is Sam on January 15, getting her valve adjusted and 7 x-rays....
Journal
Friday, September 5, 2008 8:09 PM EDT Please pray for Hadley Fox. Her website is cb/ca/hadleyfox.
Read Journal History
Hospital Information: Patient Room: The room by the bathroom Childrens Hospital of Michigan 3901 Beaubien Detroit, MI 48201 734 934 7908 Ellen's Cell
Links: http://www.caringbridge.org/mi/4theloveofzoe Cutest Zoe Ever!!! http://www.caringbridge.org/visit/lucasmoore Cute Cranio Kid http://www.campsunshine.org Camp Sunshine - Maine
|
|