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Sammi Jean Elisabeth Robertson

New Update September 5, 2008




These are some pictures of Simonne and I, and also of me at the Zoe Bergan Cancer Foundation Hockey Game.







Sammi's Candle



These are the pictures of the first day at American Girl Place in Chicago with Rachel! It was the best Birthday Party ever!!




*HUGS* TOTAL!
give SammiJean more *HUGS*

Get hugs of your own




Info on Me:

Date of Birth: February 10th,1993

Favorite color: Blue and Lilac

Favorite Food: err, Let's just say..I was a pig in a past life! What? I'm on growth Hormone!

Favorite Drink: The H2O Baby!

FavoriteSport:Bowling

Favorite Animal:My Flabbs of Steel,Of course!

My Heroes: All of the CB kids and Fred Epstein!

Life Ambition: Become the Best Neuro Oncologist ever!

Something I would like to see: A Non-Shot Growth-Hormone!

Something I couldn't do without: EMLA Cream!!

Something I could do without: The Pain sensitivity I get with the Adrenalin Insufficiency.






Hi, thanks for visiting my website.My name is Samantha Jean Elisabeth Robertson!(whew!You can't imagine writing that on MEAP tests!) On March 27, 2003 I was admitted into Children's Hospital for Meningitis and had a cat scan which showed a tumor of some kind in my pituitary gland( the most important Hormone producing Gland in your body).

The burst of chemicals(Gag)from the Cyst, irritated my spine and caused me to not be able to absorb spinal fluid in my brain which is called Communicating Hydrocephalus.(Hydro meaning water and Chephulo meaning head, How rude!!) In December 2003 I had a shunt put in to take the fluid and sort of spit it out in my abdomen. In April 2006, They switched my drainage spot to my subclavian vein so now I have an LA shunt, with 2 valves, a medos(programmable)and a brown.

This is Kristina and I at the Zoe Bergen Childhood Cancer Foundation Hockey Game!!

Since then I have had 35 surgeries.(13 pressure monitors in my head,one irrigation and debridement, 1 broviac,which almost sent me into septic shock!, 20 shunt related surgeries, and of course the craniotomy to remove the tumor, which was found to be a benign Rathkes cyst, which can also be called a Hypophysial Duct Tumor. (Did I spell that right, mom??) The newest one was an "irrigation and debridement, it's as fun as it sounds, because my 6th...no, my 7th ICP monitor got infected!) So all in all I've missed about 13 months for school, 4 of which during I was being home schooled.



Now I have Growth Hormone Deficiency, Adrenal Insufficiency, Pituitary Dwarfism, and Panhypopituitarism(missing more than 3 hormones.), and Diabetes Insipidus. I have a Burr hole, a hole drilled in my head.(doesn't that sound weird?)
Yes I spelled all that without a dictionary.... okay, okay except for the anti diuretic part below!

*****************************

Simonne & I...The world Famous iPodicals!!
*~*~*~*~*~*~*~*~*~*~*

This my favorite picture of Simonne and me for some reason!
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
Diabetes Insipidus is not remotely related to the normal Diabetes most people know about. I described it to Caitlin like this....Pretend the kidneys are children and the hormone, ADH, is the parent. Normally the hormone keeps the kidneys in check, lets them do their thing but doesn't let them go crazy. Then one day, the parent goes out of town. The kids go crazy and just start throwing water all over the house, or into Sam's bladder!(MOM!! ixnay on the adderblay, Thank-you!) Maybe the parent will come back, we don't know yet. But in the meantime, we have foster parents (.15 mls of desmopressin or DDAVP twice a day) keeping the kids in check, for the most part. Does this make it easier to understand?



The WeatherPixie


The awesome Web Page was done by Susan And Jeff Ott, Web Masters of Stephanie's Angels Foundation! Thanks soooo much!


Please keep signing the guest book. I love to be reminded that so many people are behind me in this!
********Please pray for Emerald, who has finally won her battle with George. (That's her tumor's name!) We all miss you! WE LOVE YOU EMMA AND KIM!!!!
********Also, please pray for Simonne and her two brothers Chase and Shane. They all have Cystic Fibrosis. But they are fighters and very good friends in the hospital! ********Bravery isn't being fearless, it's doing the feared...*****This is my new life script..
********New-Mom's email address scanmom@hotmail.com and My E-mail address is Neurogirl716@hotmail.com
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Check out my brothers web site, as he deals with anxiety and atypical eating disorder.
Alec's Website



These are the shirts I created on Zazzle. Click on the panel to check them out!



**Earthly Lessons**

God saw that you were hurting,
and couldn't bear it anymore.
He only wanted to banish,
the pain behind your every door.
He saw that you were brave enough,
and had love for all to feel.
He knew that death could never
banish the lessons you've appealed.
So he took away the discomfort,
that you felt more and more,
He gave you a big bear hug
and said,"Heaven's all yours!"
Your family who is just as strong,
though they will feel grieved at first
will come to realize the lessons,
you taught them here on earth.


** I wrote this at school after Leah died.Leah I got the Idea of the poem from my classmate Daniel's Prayer card at his funeral. Keep both families and friends in your prayers!


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These are some more of my friends on Caringbridge! Check out their sites!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

My Caringbridge Friends

Simonne
Emerald Isle
Stephanie Ott
Stephanie’s Angels
Kelly Muldoon
Nicole
Beth

We Support Dylan Hartung


July 16th, 2004

It was early in the morning,
about 7:30 am,
when they wheeled me down to surgery.
Then I was born again.

The time had finally come and
I just wanted it out and gone.
I wanted to defeat the tumor
that had been draining me for so long

I was about to go back to the OR
when my mom said to me, "I love you"
and after weeks of feeling too sick to answer her,
I said, "Mom, I love you too.".

I laid down on the table
and put the mask over my face.
As I started to go under
I gave the doctors my trust and faith.

I woke up in the ICU
and the first thing that they said
was that the tumor was finally and forever,
gone from my head.

I was in the hospital for a month
for half my summer break
I missed out and riding on a parade float
and going to summer camp on a lake

But a month and five days later
I was back at school.
There was one thing that was different, however...
it was everything that I knew.

The scar was 6 inches long
on the top of my head, on the right
but the most unnerving and significant change
was the one taking place inside.

I had learned how precious life is
but also how fragile it can be.
In just one summer I had changed
physically, mentally, emotionally
exponentially.

It was early in the morning
the day my life forever changed.
I'm so grateful for the second chance I got
the morning I was born again.






















adopt your own virtual pet!

This is my Virtual cat, Skinny Minny! But I still love Flabby Abbey better!




Music Video:
href="http://216.180.244.187/videos/s/switchfoot/this_is_home.html" target="_blank">This Is Home by (Switchfoot)



Music Video Code by Video Code Zone









I've got my memories
Always inside of me
But I can't go back
Back to how it was
I believe you now
I've come too far
No I can't go back
Back to how it was

Created for a place I've never known

This is home
Now I'm finally back to where I belong
Where I Belong
Yeah, this is home
I've been searching for a place of my own
Now I've found it
Maybe this is home
This is home

Belief over misery
I've seen the enemy
And I won't go back
Back to how it was
And I got my heart set on what happens next
I got my eyesa wide it's not over yet
We are miracles and we're not alone



And now after all my searching
After all my questions
I'm gonna call it home
I've got a brand new mindset
I can finally see the sunset
I'm gonna call it home

Now I know
Yeah, this is home
I've come too far
And I won't go back
Yeah, this is home

This is a slideshow of some more of the pictures we took in Chicago, when I went with Rachel for my Birthday at American Girl Place! There are also a couple of pictures of Rachel, my friend Sarah, and I at my house for my Birthday Party at home.




Sammi's magazine article

**********Check out Sam's article in the Children's Hospital magazine....



This is Sam on January 15, getting her valve adjusted and 7 x-rays....

Journal

Friday, September 5, 2008 8:09 PM EDT

Please pray for Hadley Fox. Her website is cb/ca/hadleyfox.

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Hospital Information:

Patient Room: The room by the bathroom

Childrens Hospital of Michigan
3901 Beaubien
Detroit, MI 48201
734 934 7908 Ellen's Cell

Links:

http://www.caringbridge.org/mi/4theloveofzoe   Cutest Zoe Ever!!!
http://www.caringbridge.org/visit/lucasmoore   Cute Cranio Kid
http://www.campsunshine.org   Camp Sunshine - Maine


 
 

E-mail Author: scanmom@hotmail.com

 
 

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