David and Chip have Hunter Syndrome. This page has been provided to update their friends and family on how they are doing. Please sign our guestbook so we can know you visited.

Journal

Sunday, June 5, 2011 7:48 AM CDT

We were able to go home on Friday evening. They really wanted to have him stay but really needed to get home. David is now on bipap at night. He seems to be doing ok. He is very junky sounding but is coughing on hiw own. He is tolerating his feeds. We have increased his volume already. He is not back up to full feeds yet but doing awesome. We had a fun party yesterday for Amy. She had 12 friends over yesterday. We had a music theme. She seemed to enjoy it. It is hard to believe she is 8. Before you know it David will be 18. He has his birthday in October. We are busy trying to pack. We think are plans will be to move in @ 5-6 weeks. Still figuring out how exactly.
Well need to feed the boy again. Amy is off to church with Papa and Grandma Radius and Dad has fallen asleep next to the sleeping boy.
In Christ,
Steve,Laurel,David,Amy and Chip in our hearts

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E-mail Author: frazzledblonde@yahoo.com

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