Welcome to the website created for our "Christmas Miracle" Laban James Talo.. Laban is the son of Jason and Sarah (Ketola) Talo. (Laban is pronounced more like Layben) born on Christmas Day, 2001. Laban was healthy at birth but caught RSV at 2 weeks of age and it almost killed him. As a result of that infection (his lungs were so damaged that only 25-33% of his lungs worked at 6 months of age),Laban has chronic lung disease caused by RSV and has been diagnosed as having "mild" cerebral palsy. He has had pneumonia 18 times besides his rsv infection. RSV is respiratory syncitial virus. Laban is our 6th child.He has an older sister, Lyndsey, and older brother, Brent, an older sister Adriana, and an older sister Kaitlyn. He has a brother in heaven, Cainan Victor, who died in 1999 at the age of 3 weeks due to a cord injury at birth. He also has a baby sister, Jasmine. We think that he is a miracle because he almost died 3 times with the RSV and he also caught bacterial spinal meningitis on his last day of being on life support.. and is a happy boy after all of that!!
Laban was diagnosed in June of 2005 with Functional Antibody Deficiency and started a treatment of monthly IVIG.
Update Janurary of 2006 Laban started weekly treatments of subcutaneous gammaglobulin at home in November 2005.
Laban was d/c from the gammaglobulin which he was receiving sub-q in April of 2007. Adriana alsow as diagnosed with a functional antibody deficiency and Lyndsey with an IgA deficiency in May of 2007
Cainan Victor Talo 12-28-98 to 1-17-99
Cainan Victor Talo was born on his Daddy's 25th birthday. He was our much wanted and loved 4th child. He was born on a cold winter night after only an hour long labor. Because it was the middle of a Sunday night, there was no Dr. there when he was born and he was delivered by the nurse. I could see him in the mirror when I was delivering him and he was a greenish color. I thought maybe there had been meconium and that was why he was that color. I never heard him cry. They started to work on him and he only had a heartrate of 50.. his apgars were 0 and 0. I had felt him moving like crazy on Christmas Day.. and then for the next 2 days I hardly felt a thing. I think that on Christmas is when the cord went around his neck and it asphyxiated him by "hanging" him during the fast delivery. The doctors told me that if I had been in labor for 15 minutes longer he would have been a stillborn. They did CPR on Cainan for 3 and half hours before a helicopter came from the closest hospital with a NICU. The doctor that came got Cainan to breathe on his own and then brought him in to see me. He told me that I told him that Cainan was in much bigger hands then his.. I don't remember saying that... I feel that it was the Holy Spirit. Cainan was too brain damaged to live. They tried to do everything they could but once the damage was done to his brain, it was too late. They gave him a chance but when the 3rd EKG showed little to no brain activity, they called us to a meeting. In that meeting were 3 doctors, a nurse, my parents, my Grandmother and ourselves. The doctor told us that a respirator is like blowing up a balloon a thousand times.. by the time the thousandth breath rolls around the balloon would not be in the same shape it was in. I WANTED MY SON TO LIVE!! I did not want to put him in the cold hard ground.. I also was afraid that we were killing him by taking him off of life support. My husband said this "If God wants Cainan to live, he will live off of life support and if God wants Cainan to die, he could die on life support." That was the hardest thing I ever had to say yes to... yes to my son's lifeline... They told us that once they took off his life support he would live for 3 or 4 hours.. 5 days later, he was still alive. He would grunt and stretch but could not open his eyes due to the brain damage. He also could not suck or swallow, so they started to prepare us for taking him home.. On this, the 5th day, they told us that he would have a gasosotromy tube placed on Monday (this was a Saturday) along with a tracheotomy tube. That day, he seemed to be struggling more to breathe and as there was an RSV scare in the nursery, only Jason and I were allowed to see him. After settling the other kids for the night, I walked up to see Cainan. On the way up there, I told Jason "I DON'T WANT HIM TO DIE!!!" The nurse took out a book to show me what it would look like once he had both of the tubes placed. Then I told the Lord... "you know what Lord, Cainan has already gone through so much, so if you want to take him home, you can." The next morning, I woke in a panic.. I threw on my clothes and rushed up to see him. When I got there, there was no blood pressure number showing on his monitor and his skin was a bluish color, so I asked his nurse what was happening.. she said that his blood pressure had started dropping. The doctor told us that he had started to "declare himself".. that he was dying and that today would be the day that he died. So, we gathered all of our loved ones that were there, called his parents who were at home (we live 2 hours away from the hospital he was in).. and got ready for his homegoing. 15 minutes before he died, he started to die and his eyes started to open.. this was after they had told us that he could not open his eyes. When this happened, I panicked, I did not want him to go, so I asked Jason to hold him as I knew he needed to be at peace and I knew that I would try instinctively to keep him alive. That was how it happened that on a cold winter afternoon, our son Cainan Victor "slipped the surly bonds of earth" to be forever warm with his Jesus in Heaven.. His eyes were wide open upon his death, he was seeing His Jesus!! The flicker of life went out of his eyes with a soft little sigh. The instant that he died I felt a physical pain in my heart. He was gone and I was so lonesome... but I knew that he had to be with Jesus and was able to give him back. My oldest son, Brent, went running up on the back of the coach and pulled aside the curtain. I asked him what he was doing and he said he was looking for Jesus. He told us later that he saw Jesus "out the window" and he was with an angel and the angel was carrying Cainan... He had been angry that his baby brother was going to die and I believe that he saw Jesus as he never again questioned why Cainan had to die (he was 3 and a half). We found out within the past few months that my niece who was with us in the room when he died, saw Jesus there with us.. she thought that we all had seen him!! I miss my baby.. I know now that he is much better off with Jesus in Heaven, but there will always be a hole where he should be until I can see him again.. I love him but Jesus loves him more...
Your gift will help millions of people stay connected with friends and loved ones during challenging times.
This page has been viewed 69901 times.
Site Sponsored by:
Note: The foregoing information was
authored by the patient, parent or guardian, or other parties who
are solely responsible for the content. Such announcements or their
content are not necessarily endorsed by CaringBridge, Inc. or any
sponsoring agent. This information does not confirm that anyone
is or was actually a patient at any facility.
