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ANGELS WATCH OVER OUR LITTLE JASON

Welcome to our Child Web Page. It has been provided to keep people updated about Jason. Jason was diagnosed with Neuroblastoma Stage IIB, a childhood cancer, at the age of 13 months (3/30/04). Neuroblastoma is cancer of the sympathetic nervous system. It is primarily found in the adrenal glands but can be found in the abdomen, pelvis, chest or neck. Jason's was found in the chest. He has had a complete resection of his tumor and positive lymph node involvement and is now on close follow up care. He is a happy little boy who loves life and we are so grateful to have him for our son! Please check the first journal entry in the journal history link to read more about his history and how he came to be diagnosed.

PLEASE STOP BY AND SIGN JASON'S GUEST BOOK! He would love to read about how many people cared about him and loved and prayed for him when he gets old enough to read! Thank you and God bless!

Journal

Monday, April 3, 2006 9:14 PM CDT

It has been MONTHS since I have added a journal entry and that is because we have lived a "normal" life!! Jason has been wonderful and time has flown by. It has been two years now since diagnosis and in some ways it seems like just yesterday, and others, it is seems to be so fresh in our minds. We are due to have scans next week (April 11-13) and the anxiety has officially set in. After being "normal" for 6 months, it seems strange to be going back for scans. I have heard from other parents of neuroblastoma children that it actually gets a bit harder on the nerves when the scans are further apart rather than closer together. I believe it now. It really does get harder after living a so called normal life and then feeling like a slap in the face when you have to go back for scans for cancer. What?!? My kid had cancer?!! And it could come back??!!! Chances are slim that it could come back, we know that, but we still worry!
Jason has been sickly the last couple or three weeks. He had a sinus type infection for 2 weeks and is on antibiotics. We went to Chicago for spring break and he seemed better the whole trip. As soon as we returned home (and he is still on antibiotics), he developed a high fever (104) and drooling and clear runny nose, no appetite. I couldn't help it, but alarm bells immeditely went off. This is exactly the way it was two years ago before diagnosis. He was sick with respitory illness after respitory illness and antiobiotics did nothing for him, plus he had the high fever all the time. I suppose we will always freak out a little bit about these things forever!!
Life has been so busy with the girls in school and Jason being so much more independant and set in his ways! No wonder time has flown by! Jason seems to have had a growth spurt and is so tall now! He weighs 36 pounds and not sure how tall he is but he is taller than most other 3 year olds in Sunday School! He is still quite the character and keeps us laughing constantly. He alternates between a Mommy's Boy and a Daddy's Boy, which is okay because we both get a chance to feel special :)
On some good news, my sister has just had her third baby, a GIRL on March 26!! Her name is Kennedy Morgan and she is just beautiful!! I so want to hold her in my arms and kiss her! She lives 1200 miles away so I have to wait to see her :( I sure miss my nephews Tyler and Carter too! Can't wait to see all of them when they come in May. I think it is so neat that I had two girls and then a boy and my sister had two boys and then a girl! My brother had one of each so he can say he has three nieces and three nephews!
As always please pray for CLEAR scans for our little man!! Thank you for all your thoughts and prayers for all of us over the last two years!
Love, Melissa

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Hospital Information:

Patient Room: HOME

University of Michigan Cancer Center



Links:

http://www.lunchforlife.org   Help us cure neuroblastoma! Give up a lunch, save a life!
http://www.beebo.info/   Jamie's site:Meet some other neuroblastoma warriors on this wonderful site his mother made
http://marrow.org/MEDICAL/neuroblastoma_basic.html   What is neuroblastoma?


 
 

E-mail Author: mmshjlaplow@msn.com

 
 

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