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~Chayce~
"Brave"
Cast your cares on The Lord and he will sustain you: He will never let the
righteous fall. Psalm 55:22


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He's My Son by Mark Schultz
"He\'s My Son (Live)" by Mark Schultz


I'm down on my knees again tonight,
I'm hoping this prayer will turn out right.
See, there is a boy that needs Your help.
I've done all that I can do myself
His mother is tired,
I'm sure You can understand.
Each night as he sleeps
She goes in to hold his hand,
And she tries
Not to cry
As the tears fill her eyes.

Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place some how.
See, he's not just anyone, he's my son.

Sometimes late at night I watch him sleep,
I dream of the boy he'd like to be.
I try to be strong and see him through,
But God, who he needs right now is You.
Let him grow old,
Live life without this fear.
What would I be
Living without him here?
He's so tired,
And he's scared
Let him know that You're there.

Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place some how.
See, he's not just anyone, he's my son.

Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place somehow.
See, he's not just anyone.

Can You hear me?
Can You see him?
Please don't leave him,
He's my son.




Thank You for visiting Chayce's page and learning about his health battles, that continue to alter his little life. Chayce fights with
Eosinophilic Gastrointestional Disease.



Chayce also suffers from Sleep Apnea, Asthma, Apraxia, Dysphagia, Severe Food Allergies, and Sensory Integration Dysfunction, Developmental Delay, Speech Delay and currently testing to eliminate Vasculitis, Rheumatoid Arthritis, and Flushing.









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Chayce Kyle's Happy Mail Address is:
PO BOX 202 Ortonville, MI 48462



Organizations that have featured Chayce during 2005! Please Visit Them and look for Chayce
Bridge of Dreams
Hugs & Hope for Sick Children
Love Quilts
Make a Child Smile
Tumbleweed Foundation
Songs of Love
Quilting Angels









CHAYCE'S QUILT OF LOVE









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Where Are the Parents?
By Sue Stuyvesant, Parents

Where are the parents?

They are on the phone to doctors and hospitals and fighting with insurance companies, wading through the red tape in order that their child's medical needs can be properly addressed. They are buried under a mountain of paperwork and medical bills, trying to make sense of a system that seems designed to confuse and intimidate all but the very savvy.

Where are the parents?

They are at home, diapering their 15 year old son, or trying to lift their 100 lb. daughter onto the toilet. They are spending an hour at each meal to feed a child who cannot chew, or laboriously and carefully feeding their child through a g-tube. They are administering medications, changing catheters and switching oxygen tanks.

Where are the parents?

They are sitting, bleary eyed and exhausted, in hospital emergency rooms, waiting for tests results to come back and wondering, "Is this the time when my child doesn't pull through?" They are sitting patiently in hospital rooms as their child recovers from yet another surgery to lengthen hamstrings or straighten backs or repair a faulty internal organ. They are waiting in long lines in county clinics because no insurance company will touch their child.

Where are the parents?

They are sleeping in shifts because their child won't sleep more than 2 or 3 hours a night, and must constantly be watched, lest he do himself, or another member of the family, harm. They are sitting at home with their child because family and friends are either too intimidated or too unwilling to help with child care and the state agencies that are designed to help are suffering cut backs of their own.

Where are the parents?

They are trying to spend time with their non-disabled children, as they try to make up for the extra time and effort that is critical to keeping their disabled child alive. They are struggling to keep a marriage together, because adversity does not always bring you closer. They are working 2 and sometime 3 jobs in order to keep up with the extra expenses. And sometimes they are a single parent struggling to do it all by themselves.

Where are the parents?

They are trying to survive in a society that pays lip service to helping those in need, as long as it doesn't cost them anything. They are trying to patch their broken dreams together so that they might have some sort of normal life for their children and their families.

They are busy, trying to survive.

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You will see Chayce in this video, this is what it is like to live a life like Chayce, and many other kids who suffer each day as well.

Journal

Monday, May 25, 2009 9:47 PM CDT

Happy Memorial Day!

I have not updated in a few weeks because we have had an unexpected turn in Keegan's health. He had to have brain surgery May 14th to remove a Suprasellar Arachnoid Cyst, I have updated his page and you can now leave comments at http://keeganjohnkyle.blogspot.com/

Chayce is doing well he got to experience his first ever Super Science Day at school on Friday, he was so elated! He loved it, and could not wait to show us all the science projects he has made. I can not hardly believe my Chaycer is going ending his first grade year. He is getting ready to turn 7 on June 6! Wow! How time flies. He is still only eating the same simple things, we are currently working on "drinking" Gatorade rather than tube feeding extra fluid to prevent dehydration. He is getting better, I will admit. Thanks for checking in on Chayce. I will post again very soon.

The Kyle's :)

Hospital Information:

Hurley Medical Center
One Hurley Plaza
Flint, MI 48503
810-257-9269

Links: