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Nathan Neal Robertson 
November 13, 1987 - February 11, 2008
We love you and miss you already!
"Farewell, our beloved son, our brother, our friend, and our many dreams. We release you, at last, not in sadness, but in joy. For the song you brought shall "sing" forever in our hearts!"
Journal
Thursday, July 29, 2010 12:27 AM CDT I never thought it would be this long before I updated this journal.
The caringbridge site keeps these classic journals open but have a whole new site so most people go there. You can turn the journals into a book at a significant cost which I have tried to do several times. Unfortunately the dates on the journal when I make the conversion to book form are all out of place. I cannot seem to make the journal go in chronological order so it is a bit frustrating. I do not want to spend a great deal of money and not have it the way I want it, so I am still trying to figure out what to do.
Gabe is ten months old and doing a little bit of walking . . or should I say . . staggering . . it is just hysterically funny to watch him set off walking. He points his finger the way he wants to go and than starts out sideways, staggering like a little drunken sailor, sideways across the room, and than he'll stop, readjust and start tacting (like a sailboat) the other way just to get to where he wants to go. Sarah thinks he got this idea from holding onto to furniture, holding on, and walking around it so much. It's wicked funny.
As for Nathan . . we still miss him as much as we did when we lost him. The feeling never goes away and sometimes the memory is sharp it is almost as if it all just happened. I do not believe that anyone can ever recover from this type of loss . . nor do I suspect that anyone ever wants to. And, the more I think about that the more I think that no one should ever 'try' to get over it. Nathan is never far from our thoughts and heart . . and he will always, always be there. I saw a video of him when he was about five years old today . . and it just made me smile to see his beautiful face again and hear his voice. I still wish he was here though and none of this had ever happened. Miss him.
Please keep in mind that there are still young people and children fighting this rotten disease. There has been some small progress made and there do seem to be 'survivors' . . but not enough . . at least there is more out there than when we first encountered this disease. Anyway, with better communication it seems we have reached more and more people . . many who thought they were alone with a terrible diagnosis and no where to turn. There is always hope.
Read Journal History
Links: Wiki: DSRCT Database Information collected by patients about the disease.
DSRCT Desmoplastic Small Round Cell Tumor
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