Welcome to our LEXIE LULU SUPERHERO Web Page. It has been provided to keep people updated about our little Superhero. For those that cant keep in touch.

Lexie was diagnosed with ganglioneuroblastoma in October 2003. It was a stage 2b and was removed surgically. She did not have to undergo any chemo or radiation. March 2004 she again has been diagnosed ganglioneuroblastoma/neuroblastoma stage IV this time. It is located in her chest and has migrated into her spinal column in between two vertebrae. She is to receive 5 rounds of chemo, surgery, stem cell transplant (from her twin sister Jaedyn) radiation and then immuniotherapy. Its a long haul for this precious little angel.


Alexandra Roniya Worster Conley was born January 1 2000 at 12:33 am along with her twin sister Jaedyn Carianne Worster Conley at 12:53 am.

Lexie Earned her wings June 27th 2006 at 5:50 am.




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Journal

Sunday, November 9, 2008 11:06 AM CST

Time for an update

I am now working at the American Red Cross as a collection specialist. I am certified to take collect blood as of thursday. Its a great job helping others and it keeps me in mind of how blood is important to cancer victims. In other news Ive been dating a great guy named Jason for 6 months. We are going to get married eventually, I think Lex sent him just for me.

Sorry been so long in updating but its been a long year of trials and ups and downs. Hope your all well and have a happy holiday.

Love Roni and Jae

Links:

E-mail Author: domn8er_8@hotmail.com

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