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I love the pictures of Jesse with the cheerleaders! Boys will be boys...hehehehe. HAPPY HOLIDAYS!!

STACEY AND LUCAS

Hello!

Sorry I am late getting here but I hope you all had a wonderful Christmas! Thank you so much for the presents, there are perfect!!!



Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Wednesday, December 26, 2007 12:54 AM CST

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Dear Patty, Jack and Jesse!



Wishing your family a very Merry Christmas and may you have a very happy New Year.
Keeping your family in my prayers for every thing gets better with health and financials. Amen

Abeerah, Khansa & Zahra
Tayyaba Beg <tayyaba@helpourgirls.com>
- Tuesday, December 25, 2007 11:18 PM CST

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Merry Christmas!

Kisses from Hershey
Donna Kay and Tyler
http://www.caringbridge.org/visit/tylerlangan

Donna Kay Langan <langandk@hotmail.com>
Hershey, PA USA - Tuesday, December 25, 2007 8:49 PM CST

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Glitter Merry Christmas Graphics


The Offenbackers
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Travis AFB, CA USA - Monday, December 24, 2007 2:54 PM CST

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Merry Christmas many Hugs from Laura and Will xxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Monday, December 24, 2007 11:37 AM CST

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Hugs & Much Love,
Kim & Scotty
MPS II <cottons@earthlink.net>
Modesto, CA - Sunday, December 23, 2007 8:27 PM CST

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Merry Christmas Comment Graphics
I wanted to stop by and say Hello!! I also wanted to wish you guys a very Merry Christmas and Happy New Year!! Ricky and Kenny sending Jesse big hugs!! I thought that was really funny if it is any consolation Ricky smacks the teachers butts LOL I don't know I guess he is starting early!!
Take care and God bless
DEon, Ricky, and Kenny

Deon Nelson <thumpernel@sbcglobal.net>
Lawton, OK - Saturday, December 22, 2007 1:55 PM CST

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I am so sorry that Jesse suffered another seizure. What great photos of his shopping spree. That is so great of the players and Cheerleaders to do that.We will be praying that Jesse stays seizure free. Mother to Will MPSIIIA www.caringbridge.org/visit/willluthcke
Misty Luthcke <mluthcke@netzero.com>
Indian Springs, AL USA - Thursday, December 20, 2007 10:27 PM CST

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wishing the kids a happy & merry xmas
ed campbell <edpond@alltel.net>
waynesburg, ky u.s - Thursday, December 20, 2007 10:20 AM CST

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Wishing you a Merry Christmas and a Happy New Year!

Caringbridge.org/visit/quiltsofhope
Jaime <aquiltofhope@aol.com>
- Thursday, December 20, 2007 8:13 AM CST

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Hey Patty and Jesse,

Just thought I'd stop by and say hi :)

I've been really busy with college and finals, but I'm home for Christmas now so it's going to be a nice rest from life on reZ ect...

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, Ontario Canada - Wednesday, December 19, 2007 8:13 PM CST

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Hi Patty,

I wanted to wish you a very very Merry Christmas!!!

Love and Hugs,
Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
- Wednesday, December 19, 2007 2:47 PM CST

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Hello Patty and Jesse, I want to thank you for all of your wonderful knowledge. You and Jesse have given Jared Hope for a healthier life. Happy Holidays--REIA CONNOR

P>S I need your address :)
Reia Connor <lilphunk2@aol.com>
Boston, MA USA - Sunday, December 16, 2007 5:20 PM CST

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Patty, I have posted your newest update information on Will's website. I am hoping that we can get you some more help. I will be responding. I am hoping for the best for you and your family. You have been so helpful to most of us with the Genestein dosing and your knowledge of Sanfilippo. I am grateful to you and we are praying for Jesse. Misty and Will www.caringbridge/visit/willluthcke
Misty Luthcke <mluthcke@netzero.com>
Indian Springs, AL U.S.A. - Friday, December 7, 2007 7:13 PM CST

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Hello, Jesse, Thanks for visiting and checking on Vidya . She is of the same age as you. You are very brave and I am sure with such caring mom with you, you are coping up with the disorder.Vidya's physical condition changed with the onset of puberty. One positive change we noticed was that her digestion improved considerably . Her bowel movements are normal except during time, when we put her on anti bioties. The flip side is that she has started getting epileptic attacks.

My best wishes to Jesse.
Kasturi Rangan <kasturi_sys@satyam.net.in>
Bangalore, India - Wednesday, December 5, 2007 8:17 PM CST

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Hi Jesse!
I am coming back around to the world so I wanted to check in on you and see how you have been. Your Mom is so smart with meeting all your nutritional needs, I am trying to learn from her.
Take care...
Love from Hershey
Donna Kay and Tyler
www.caringbridge.org/visit/tylerlangan
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA US - Saturday, December 1, 2007 5:59 PM CST

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Thank you guys for coming by and checking on Dymon. He went to school today and will be having s little treat at school for his birthday and then all the family will be getting together for cake, ice cream and presents later tonight. I'm so glad to hear that Jesse is doing alot better. Thank God no more seizures. Hopefully he'll have no more. Contact us anytime. Here's my address mrs_blak@yahoo.com We will talk to you soon.
Krissy & Dymon <mrs_blak@yahoo.com visit dymonhardy>
Lebanon, Tn USA - Tuesday, November 27, 2007 9:02 AM CST

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Hello I am Deon aka nelson from the forum thought I would come by and check out Jesse site I love it he is a cutie! I hope you had a wonderful Thanksgiving!! Ricky and Kenny sending hugs!
Take care and God Bless,
Deon, Ricky, and Kenny
www.caringbridge.org/visit/nelsonboys
Deon Nelson <thumpernel@sbcglobal.net>
Lawton, OK - Saturday, November 24, 2007 11:02 AM CST

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love Laura and Will x
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, November 22, 2007 12:25 AM CST

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL

<mps3mom@hotmail.com>
- Thursday, November 22, 2007 9:21 AM CST

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Hi Patty & Jesse
We hope you have a wonderful Thanksgiving.
Many Hugs,
Kim & Scotty
MPS II <cottons@earthlink.net>
Modesto, CA - Sunday, November 18, 2007 8:50 PM CST

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Misty and Will checking in on Jesse. I am sorry to hear about the seizures. I am glad they were mild, fever seizures. I can imagine that is a scary thing. We are praying for you all and all Sanfilippo children.
www.caringbridge.org/visit/willluthcke
Misty Luthcke <mluthcke@netzero.com >
- Sunday, November 11, 2007 7:56 AM CST

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Just stopping by to check on Jesse. I hope you all get healthy and stay that way. I know the winter is tuff. I am so greatful right now for being in CA.

Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Travis AFB, CA USA - Tuesday, November 6, 2007 8:56 PM CST

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Hi Patty & Jesse, just stopping by to say 'hello'! So glad that Jesse is doing well, love the new photos! what a handsome young man! Lots of love to you all, Louise & Georgia xxxx
louise lewis <lou_loo@msn.com>
chepstow, uk - Thursday, November 1, 2007 5:55 PM CDT

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Happy Halloween Jesse & Patty!
Hugs,
Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, ca - Tuesday, October 30, 2007 11:25 PM CDT

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Happy Halloween!!!! Guess we need to work on that plane ticket and come your way..huh!


Stacey and Lucas http://www.caringbridge.org/visit/hopeforlucas <lewnstacey@yahoo.com>
- Tuesday, October 30, 2007 9:40 PM CDT

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Thinking of Jesse today.
Tina & Angel Lance <lancejrmommy@comcast.net>
- Wednesday, October 24, 2007 1:17 PM CDT

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HI Patty and Jessie -just wanted you to know we are thinking of you! Hugs Laura and Will xxxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Monday, October 22, 2007 9:49 AM CDT

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We just dropped by to check on you today.
Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, ab Canada - Thursday, October 18, 2007 1:07 AM CDT

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Dear Patty.
Thinking of you and your family. Sorry to know Jesse's Seizures. Oh i hate them. I am praying hard for Jesse for no more Seizures. I hope the Melatonin does help. Sending lots of ((((HUGS)))) your way.

Tayyaba, Abeerah, Khansa & Zahra
NJ <tayyaba@helourgirls.com>
- Wednesday, October 17, 2007 10:53 AM CDT

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Hi Jesse & Patty!

I am praying that this 3 week cycle comes and goes with no

seizure! I hope the Melatonin is the key. :)

Hugs,




Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, CA - Monday, October 15, 2007 3:32 PM CDT

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Hi Patty and Jesse

I am so sorry that Jesse experienced more seizures and am praying that the addition of melatonin will help regulate this. I found the articles fascinating.... thanks for putting the link and always sharing your info. Hugs and Kisses sweet Jesse.
leslie jurado <lijf@comporium.net>
rock hills, sc - Saturday, October 13, 2007 9:49 PM CDT

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Jesse, hailee is jealouse, she misses her bike from school, our new school dosn't have those bikes.. enjoy riding yours.... Do you enjoy the swing? that is hailees favorite thing they have to hide it from her...

have an awesome weekend.
love melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@nc.rr.com>
west end, nc usa - Saturday, October 13, 2007 6:28 PM CDT

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Patty,
Thank you for the support and passing on your knowledge to the rest of us. Jesse is doing so well because of you dedication and love.
Misty Luthcke <mluthcke@netzero.com>
caringbridge.org/willluthcke, - Wednesday, October 10, 2007 7:38 PM CDT

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Hi Patty and Jesse,

Hope things are starting to get better with the seizures, they are no fun I speak from exprience. Thinking of you guys.

Ashlee- www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Sudbury, Ontario Canada - Friday, October 5, 2007 8:25 PM CDT

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Have a great day Jesse!!!!!!!!!!!!!!!!!Fill it with God's Grace!!!!!!!!!!!!!!!!You're in my prayers!!!!!!!!!!!!!!!Frog>Fully Rely On God!!!!!!!!!!!!!!~*MoRgAn*~!:) www.caringbridge.org/visit/morgantaylor
Morgan Taylor <nagrom12345678@yahoo.com>
Douglasville, Ga USA - Thursday, October 4, 2007 7:33 PM CDT

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Jesse and Patty-
We are praying for you both. You are such an amazing mother. You never just accept what the doctor says, you do your own research. I hope changing his vitamin levels is the answer. God bless you both.
Hugs, Carrie and Lauren

Carrie Reed <carrie@laurensinstitute.org>
Queen Creek, Az USA - Saturday, September 29, 2007 7:41 PM CDT

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Thinking of you guys and wanted you to know that we are praying for you!



Karen & Tabby <karenpuddn@comcast.net>
- Saturday, September 15, 2007 8:07 PM CDT

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Hi Jesse & Patty

Seems like forever since I have talked with you!.. Things

have been a little crazy and now we are dealing with these

new reactions. Never a moment of down time...I'm glad

Jesse has rebounded so quickly after the seizures. I like

the theory of the GAGs being broken down in the brain!

I will give you a call this weekend. Give Jess big hugs

for us.

Love,


Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, CA - Thursday, September 13, 2007 9:33 PM CDT

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Patty, I regularly read your journal; you are doing a great job with Jesse and I was sad to read that he has begun seizures. He is a happy young man it seems and you deserve the credit for that. I was so sad when Mackenzie lost her speech .. we had such fun singing together for a while...she knew some of the songs better than me! But she too continues to be a happy little girl thanks to her Mom and Dad. All MPS families are in my prayers each night. All the best to you!
Becky Clarke (Mackenzie's Grandmom) <vabeckyclarke@netscape.com>
Newport News, VA USA - Sunday, September 9, 2007 2:32 PM CDT

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Oh Patty. I am so sorry to know Jessy had another seizure. I am praying hard that no more siezure for Jesse And he continue to improve.
Sending lots of love your way.

Tayyaba Beg

NJ <mps_stinks@yahoo.com>
- Sunday, September 9, 2007 4:09 AM CDT

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Hi Patty,
I just read you emails about Jesse's seizures. I am so sorry that happened, but I'm so glad, too, that he is doing better. You are always in our thoughts, and we will keep you in our prayers. Great web page and pictures!
Anita <ataulton@comcast.net>
JEFFERSON , MD USA - Friday, September 7, 2007 9:18 PM CDT

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Hi Patty and Jesse. We're all so glad to hear that Jesse is back to normal after the seizure. As you know Lewis had his first at the end of July so we know just how scary it must have been for you. Hopefully it was just a one off.
Take care. Love and kisses from Scotland.
The Broadleys

www.caringbridge.org/visit/lewisbroadley
Gordon Broadley <gordon_broadley@hotmail.com>
Falkirk, Scotland - Monday, September 3, 2007 12:43 AM CDT

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Love those photo's of Jesse and his Daddy, bless him
XXX Ria & Jazzy XXX
www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Saturday, September 1, 2007 12:41 AM CDT

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Hi Patty and Jesse!
Sorry it has been SO long since I have been around. I have been really busy around here lately. School starts for me on the 4th of September and I'm kind of excited but a little nervous. There are a lot of things going on in my home right now so please pray for me. I am praying that Jesse has no more seizures. They sure are scary! I know people who battle that monster and it's no fun...as you know. I hope you have a great uneventful weekend.
Love and hugs,
Sami
Philippians 4:13
Sami <samlloydmiller@gmail.com; samibabi@hickorytech.net>
Minnesota United States - Saturday, September 1, 2007 10:00 AM CDT

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Dear Patti

I am so sorry that did not realize that Jesse had had a seizure until I just read the journal. I am amazed that he recovered so quickly and was not groggy for days. It took Izzy about four days to get back to normal. I pray that he will continue to do well and will not experience more seizures.
Leslie Jurado <ijf@comporium.net>
- Thursday, August 23, 2007 1:43 PM CDT

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Stopped by to say Hi!
Gosh I hope Jesse doesn't have anymore seizures Patty
Thinking of you all
Lots of Love
Ria & Jazzy XXXXX
Ria & Jazzy www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Thursday, August 23, 2007 1:40 PM CDT

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praying NO MORE seizures! love Jesses soft ball I know Will would love that too! Hugs Laura and Will xxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, August 23, 2007 5:55 AM CDT

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Just checking in to say Hey and send our Love...
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net (and) www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, August 21, 2007 6:07 PM CDT

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I am so sorry to hear about Jesse's seizure. It must have been an extremely scary thing for you, your mom, and anyone else that may have been there. My heart truely goes out to you and your family. You are all in my prayers. Glad Jesse's back home and doing better. Love you all.
Paul Jr.
Paul Keys Jr. <signman615@hotmail.com>
Boonsboro, Va. USA - Monday, August 20, 2007 6:50 PM CDT

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I was sorry to hear about Jesse's seizure, but am glad to know that he is doing well in the wake of it all. I'm sure that was frightening for you, Patty. You're in my thoughts and prayers. And, if I can help in any way, please ask. The answer will be yes. I don't always know what to offer.
Stacy Bryan
Baltimore, MD United States - Sunday, August 19, 2007 10:54 PM CDT

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I am so gald that Jesse is feeling better and it sounds like you handled everything like a champ. What clear thinking. I am glad you got things checked out medically and things look good. Thanks for keeping us posted. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Sunday, August 19, 2007 1:02 PM CDT

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so sorry to hear about the seizures, hailee has them and she to screams before hand, i would think after 8 years i would be use to them but im not...

Praying he dosn't have any more.
Melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@nc.rr.com>
westend, nc usa - Saturday, August 18, 2007 8:02 PM CDT

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Sorry for not signing the guest book in a while. but we do check in on Jesse often. You always have such good news about Jesse that I was shocked to see that he had his first seizure. It is good to hear that his test results came back good.
Hugs and prayers
Trisha Offenbacker ( Kassi's Mom)

Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Travis AFB, ca - Saturday, August 18, 2007 0:18 AM CDT

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Hi Patty
I was shocked to read about Jesse having a seizure today. I know he is home and doing fine..but it's still scary. It's been a crazy 3 weeks for me and I'm sorry we haven't had a chance to talk. I will call you tomorrow morning before I lose my cell service at Camp Prime Time.
Hugs and Much Love to you and Jesse,
Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, CA - Thursday, August 16, 2007 11:46 PM CDT

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Patty, I just came from the lsdsonline.forum. I am thinking of you, and praying for Jesse. Wish I was there, I so wish I could be there for all of you!

Stacey and Lucas MPSIIIB
http://www.caringbridge.org/visit/hopeforlucas <lewnstacey@aol.com>
- Thursday, August 16, 2007 10:57 AM CDT

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Hi!

Great pictures. Glad all of your tests came back so well. Enjoy what is left of summer, it went by so fast!
Chris, Lou, William and Kat
Brecksville, OH USA - Sunday, August 12, 2007 2:48 PM CDT

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Iam so glad to see jesse's doing well Ithink about him and the orthers all the time thisis my first time signing the guest book madison is doing the best as can be.
TONYA PRICE <laken507@yahoo.com>
BOOMER, N.C. U.S.A. - Saturday, August 11, 2007 1:19 AM CDT

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Hi Patty, Jesse & family
Thank you for signing Aarons guestbook, I will uptdate his journal tomorrow and post the photos of his new garden.
Its great to hear Jesse is doing so well and so lovely to read about him, he is soooooooo handsome.
take care loads of hugs n love to you all
Michelle Aidie Aaron Ryan & Liam
www.caringbridge.org/visit/aaroncraig

Michelle Craig <craigboys@blueyonder.co.uk>
BIRMINGHAM, UK - Tuesday, August 7, 2007 7:05 PM CDT

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Patty it never fails to surprise me with what Jesse is up to, his capabilities are truly astounding. Wonderful photo's and great results too.
Thrilled for you!
Oh yeah - Dave said he chatted with you on the phone and that you have a pet snake!?! Cool??
Lots of Love
Ria & Jazzy XXX
www.caringbridge.org/hi/jasminmay <Riaheap@aol.com>
England - Saturday, August 4, 2007 7:45 AM CDT

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Hello Patty,
so glad that the insurance issue is settle - something less to worry about. Glad to see that Jesse is doing fine. Wish you all a great summer. Jonathan is schedule for hyperbaric chamber therapy in mid-september, I will let you know how it goes..
Christiane Parent <p.chayer@videotron.ca>
La Prairie, qc canada - Monday, July 30, 2007 8:26 PM CDT

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Hery Jess...

I hope you are having
a good summer...we are...
not long enough...not wanting
to go back to school...

the website is awesome...

sending you lots of love

craig, lauren, and helen

CRAIG
helen <trula1@comcast.net>
- Tuesday, July 24, 2007 8:20 AM CDT

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Praying for Jesse, your whole family, and those decision-makers.

www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Monday, July 16, 2007 9:54 PM CDT

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Thank you for your site.
It makes me think about issues such as escalators I had never thought about.
I wil be praying for your insurance isues
David D <ddimmock@bcm.edu>
Here, TX United States - Thursday, July 12, 2007 2:07 PM CDT

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Jesse we love your new photos. Standing next to mom, you sure are a tall, handsome guy! Hope you guys had a great 4th of July holiday.

Stacey and Lucas MPSIIIB
http://www.caringbridge.org/visit/hopeforlucas
- Saturday, July 7, 2007 8:27 PM CDT

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Checking in to say Hi from England, and sending lots of love to you Patty and Jesse.

Photo's are fab - he sure is a handsome lad

Lots of Love
Ria & Jazzy XXX
www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Friday, July 6, 2007 2:19 AM CDT

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Hi Patty & Jess. I think Jessie is having a grow spurt, he seems much taller (2/3")than the last time I saw him.May you both continue to have such a fun summer!!
Sheryl & Family <212224@msn.com>
Westville, NJ USA - Wednesday, July 4, 2007 12:49 AM CDT

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HAPPY 4TH OF JULY...

sending you lots of love

craig, lauren, and helen

CRAIG
helen <trula1@comcast.net>
- Wednesday, July 4, 2007 7:33 AM CDT

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Patty,

I want to "second" what Ann Marie said in her guestbook entry below. THANK YOU, THANK YOU, THANK YOU! Thanks not only for your support of the Langan family, but also for Jesse's website. It is truly inspiring and motivating. I feel blessed to have been allowed to somewhat get to know your family through your entries and photos. Thanks again!
Deb Wood <debbietw4@verizon.net>
Hershey, PA USA - Tuesday, July 3, 2007 10:31 PM CDT

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Dear Patty,
I read your inspirational message to our dear friends, the Langan's, on Tyler's Caring Bridge webpage this morning. Thank you for such a heartfelt, sincere message. I think that was exactly what Donna Kay needed and I am grateful to you for taking the time to write to her. Tyler's diagnosis is so new to us and our hearts are breaking for the pain and anguish the Langan family is going through. With people like you helping out, it makes an incredibly scary situation easier to bear.

Our best to your family and to Jesse, who is a beautiful inspiration,
Ann Marie Weis
Ann Marie Weis <weis4n@hotmail.com>
Boise, ID USA - Tuesday, July 3, 2007 10:56 AM CDT

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Patty I absolutely LOVE that pic of Jesse standing in front of the shed!! I am so happy to hear that Jesse is doing so well. Keep up the good work buddy!!

Love,
Misty (mom to Seth mps II)
Misty <coreyvannostrand@netscape.net>
Lawrence, KS USA - Monday, June 25, 2007 3:17 PM CDT

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We just dropped by to check on you today.

Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Monday, June 18, 2007 11:25 AM CDT

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Hi Patty and Jesse,

I'm gald Jesse is doing so well he looks so grown up. :)

Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Monday, June 18, 2007 10:13 AM CDT

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Thanks so much for starting your new blog. It has been very helpful so far and I am sure I will use it often in the future. We are having issues with Kassi right now so we are going to start her on Flaxseed oil. We are slowly going to add zinc & other vitamins and then slowly add the genistein back into her diet. The hardest thing for us is to get her to take it all w/o her knowing. Well thanks again. You are amazing!
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Mountain Home AFB, Id usa - Saturday, June 2, 2007 1:00 AM CDT

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Hey Jesse and family. Just checking in to see how you have been doing. I know I dont sign the guestbook as often as I used to but I do still check up on you. I really like the Special Olympics pics. Our Izzy is a great thrower too (mainly of sippy cups and other reachable items) so maybe one day she can participate in the softball throw. Glad to hear you are doing well. Take care,
Liz Hindson <lizcon@yahoo.com>
SC - Friday, June 1, 2007 7:35 PM CDT

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Hi Jesse, it sounds like your family has been really busy lately. I check on you often, but you are so popular it takes a long time to pull up your guestbook. I love all of the pictures. Thank you, Patty, for sharing. Wish you all could have been with us on Sunday for our run/walk. It was wonderful to have other Sanfilippo families there to share the day. God bless you.
Cathy Abernathy <cabernat@chestertel.com>
Chester, SC - Saturday, May 26, 2007 5:13 PM CDT

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Good morning Patty
How are you,it has been so long
I am so glad to see your pictures and to hear Jessy is doing so well.
Take good care
Anne and Sebastien
Anne Cairns <buzz.cairns@sympatico.ca>
Markham, Ont Canada - Saturday, May 26, 2007 5:49 AM CDT

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Hi Patty and Jesse,

Loved the pictures of you guys at Disney world.

I hope everything gets solved with the insurence just does not seem fair.

Hugs from Ontario Canada
AshleeXXXOOO
www.caringbridge.org/canada/ashlee

Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Friday, May 18, 2007 8:39 AM CDT

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Hi Jesse,
Your Disney trip sure brought back some happy memories! It looks like you had loads of fun.....a very happy belated birthday from all of us in Falkirk.
Love to you all,
Lewis & Megan send Big Hugs to both Jesse & Patti
Take Care
Norma
Norma Broadley <normabroadley@hotmail.co.uk>
- Wednesday, May 16, 2007 2:54 PM CDT

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Hello Mrs. Taomino, I just love this website and what you are doing with Jessie. He is blessed.
Tina Wilkinson, Lois T Murray School
Baltimore, MD - Tuesday, May 15, 2007 3:30 PM CDT

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Paulina and Andrew
Paulina and Andrew Jump MPS III B <caljump@msn.com >
Sparta, Ky USA - Tuesday, May 15, 2007 7:24 AM CDT

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Hi Jesse!

Looks like you had a GREAT time at Disney World! My Mom & Dad just took me & my sister Sophie to Disneyland in California. My G & G and my cousins went too. It was super fun! Its good to be home because we wore ourselves out! (My dad's still working on updating my Caring Bridge page.) We met some new friends too. Their boy has MPS II and he is my age. His sister is my sister's age. It was cool to meet them! I noticed you have a lizard garden. My Grandma & Grandpa have a house we call the lizard house. Glad to hear you are doing so well! Please keep in touch. Love, Olivia L.
Jill Lovell <jill@lovellcompany.com>
Draper, Utah USA - Sunday, May 13, 2007 11:20 PM CDT

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Your kids are truly blessed to have you has there mommy. You are amazing. HAPPY MOTHERS DAY!
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Mountain Home , ID - Sunday, May 13, 2007 9:33 PM CDT

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, May 13, 2007 10:37 AM CDT

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Happy Mother's Day Patty.
Hope you have a wonderful day!
Hugs,

Kim & Scotty <cottons@earthlink.net>
Modesto, ca - Saturday, May 12, 2007 10:25 PM CDT

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What a wonderful Birthday surprise. Looks like you all had a wonderful time.
Just stopping by to wish you a very Happy Mothers day, Patty!
Those brain articles were very interresting, I too have been searching for brain fuction teachings.... we need this to help bryce to recover from his past PICU experience and the fluid that was on his brain.
keep us updated on your progress with these new techings, we are very interrested.

mommy koren to bryce
k adams <kaadams@charter.net>
webster, ma usa - Saturday, May 12, 2007 9:37 PM CDT

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Well Jess, You and Mommy have been very busy!Glad your having such fun and getting to see and do so much.Your wearing me out just reading about all of it.Hope you continue to enjoy all that summer brings,be happy Buddy !!!!
Sheryl & Family
NJ USA - Wednesday, May 9, 2007 6:56 PM CDT

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Hi Patty and Jesse,
I am so glad to hear that you had a good time at Disney. It is so great that you were able to get a trip going after all these years! I have been busy getting things ready for the end of the year, and still am doing okay. I had a lot of pain for a while. Just wanted to stop by to let you know that you are always in my thoughts and prayers.
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Wednesday, May 9, 2007 1:53 PM CDT

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I am so glad that you and Jesse had fun at Disney. Jesse looks so sweet in the pictures looking at each Disney character. He is a special little boy for sure. Happy late b-day to both of you.
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC - Wednesday, May 9, 2007 1:24 PM CDT

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Hope your birthday was a happy one Jesse. You and I share a May 2 birthday. Also, congratulations on winning a silver medal at the Olympics. I know your family is so proud of you! I think of your family often and keep you in my prayers.
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Tuesday, May 8, 2007 9:51 PM CDT

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It looks like you had a lot of fun. I am glad to hear that you are doing well. You and your husband look so Happy and relaxed in the picture on your get away! It sounds like you kicked off spring with a bang. Good for you!
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Mountain Home AFB, ID - Tuesday, May 8, 2007 6:47 PM CDT

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HAPPY BELATED BIRTHDAY Jesse and Patti. Glad you had a fun trip to Disney. That's where we last year for Hannah's birthday. Love, Anita and all
Anita <ataulton@comcast.net>
Jefferson, MD USA - Tuesday, May 8, 2007 1:00 PM CDT

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Hi Patty and Jesse,

I hope you guys have a great Birthday and have a blast at Disney I had fun when I went in Nov.

Ashlee
www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Friday, May 4, 2007 7:58 PM CDT

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Happy Birthday Jesse!
I hope your day was a very special one! You so deserve it! We also hope you have a fabulous weekend! You are always in our prayers every night at the dinner table!
Tabby & Mom (Karen) <karenpuddn@comcast.net>
- Friday, May 4, 2007 3:34 PM CDT

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Hi there! Thanks for sending me the link and suggesting that I check out the new (and exciting) things happening in Jesse's life. So many blessings. I'll continue to keep everyone in my prayers. By the happy look on his face, I can tell that it helps! (It also helps that he has a mom like you! You're amazing. You really are.)
Stacy Bryan
Baltimore, MD United States - Monday, April 23, 2007 8:09 PM CDT

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Hey Sweetie,

I'm so glad things are going good. I think doing school at home would be very good for Jesse. Just remember to take time for yourself. It really is stressful to have our kids home alllllllll Dayyyyyyy Longggggg. LOL

Love and Hugs
Tami <tlslawson@aol.com>
- Friday, April 20, 2007 8:25 PM CDT

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Hi Patty & Jesse, just waned to wish you both a fantastic time at Disney and thank you so much for your lovely message on Aaron's website.
Loads of love hugs & kisses
Michelle, Aidie, Aaron, Ryan & Liam
Michelle Craig <Craigboys@blueyonder.co.uk>
Birmingham, UK - Thursday, April 19, 2007 10:19 AM CDT

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Hi Patty & Jesse! So pleased to hear that Jesse is doing great! Some interesting articles on his webpage, thanks for sharing. Please give Jesse a big hug & kiss, from me & Georgia xxxxxxxxxxx
Louise Lewis (mum to Georgia)
chepstow, uk - Tuesday, April 17, 2007 4:25 PM CDT

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It was great!
Valerie Patterson <valpatterson@knology.net>
Huntsville, AL - Monday, April 16, 2007 5:36 PM CDT

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Hello - Finally stopping back by to see how everyone is doing. I can't believe Jesse has changed so much - he's really looking like a teenager. It's good things are going well for everyone.
Take care,

Paige Lewis <plewis@email.precisionaire.com>
Middlesex, NC USA - Friday, April 13, 2007 10:20 PM CDT

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Dear Patty and Jesse, Your website is beautiful. I love your new pictures and moreover the message you are sharing. Thankyou for the spiritual uplifting words. Thank you also for the "walk with Jesus " you printed for me , I have shared it with a few and it is beautiful.Keep up the good work. We love you and appreciate you..Love Rosemarie and Chase
Rosemarie and Chase 15 yrs old with hunters <rveliz@nac.net>
Newton, NJ USA - Tuesday, April 10, 2007 6:42 PM CDT

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Happy Easter!! I can't believe we missed the MPS conference in D.C. of all places!!! What was I thinking? I heard about it months and months ago but it slipped my mind and I never gave it another thought. We would have loved to be there. It will probably never be that close again. Oh well.
I am so glad to see Jesse looking so good. I had just said to Jeff that I hadn't heard from you or seen your name in the few times that I have been to the forum lately and was thinking about you and there you were on our guest book!

Have a blessed day. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Sunday, April 8, 2007 9:17 AM CDT

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Hi Patty and Jesse,

It's god to hear that Jesse continues to do well :)

I hope the Easter Bunny is good to him :)

Ashlee

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
Bracebridge, Ontario Canada - Thursday, April 5, 2007 3:05 PM CDT

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Glad to see that thing our going well. I hope that Jesse continues to make progress with everything. We hope that you and your family have a wonderful Easter!
Trisha Offenbacker <trishaofenbacker@yahoo.com>
Mountain Home AFB, ID USA - Monday, April 2, 2007 5:25 PM CDT

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Hi Patty and Jesse,

Just stopping by to say hi, and let you know I was thinking of you.

Hope you get those insurance issues dealt with, I really feel bad for you. Enjoyed your picutures, Jesse is precious!

Keep holding on to HOPE,

Susan

Jordan’s Site <Susan2956@yahoo.com>
Baton Rouge, La - Wednesday, March 28, 2007 12:03 AM CDT

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We just dropped by to check on you today.

Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Wednesday, March 28, 2007 1:05 AM CDT

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Hi Patty and Jesse!
I am so glad to hear Jesse is going on the potty! Wow! He looks great in the pictures. I hope the new supplement works well for him. My blog has some fun updates in them if you're interested.
Love and hugs,
Sami

Sami Philippians 4:13 <samibabi@hickorytech.net>
Minnesota United States - Tuesday, March 20, 2007 2:27 PM CDT

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Happy St. Patricks Day!! I bet you are cooking your cornbeef and cabbage right now! Or Jack is for sure! Patty your webpage is beautiful and again I thank you for being such a wonderful example of Chrisitan Faith..
Rosemarie and Chase 15 yrs old with hunters <rveliz@nac.net>
Newton, NJ USA - Saturday, March 17, 2007 10:25 AM CDT

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Hi guys,

Just popping in to say 'hi'. The picture of Jesse checking the sales always cracks me up... Kariem enjoys that too!!!

levenmethunter.web-log.nl
Sjon (dad to Kariem, MPS II)
The Netherlands - Saturday, March 17, 2007 1:18 AM CDT

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Patty, I replaced my computer some months ago, and had to start over with my addressees,so finally found yours again.
You are doing such a great job with Jesse and he looks so handsome. I looked at your MPS Conference photos and was delighted to see our beautiful Mackenzie .. thanks for including her in your album!
Becky Clarke (Mackenzie's Grandmom) <vabeckyclarke@netscape.com>
Newport News, VA USA - Friday, March 16, 2007 4:54 PM CDT

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Patty~Wish I could have been with you at the conference...bummer. Hugs to you and Jesse!!
Stacey and Lucas MPS III~B
http://lapsforlucas.com
http://www.caringbridge.org/visit/hopeforlucas <lewnstacey@aol.com>
cedar rapids, ia - Friday, March 16, 2007 3:19 PM CDT

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Regret that we could not go to the Conference this year. Thank you for sharing your photos. I enjoyed seeing them, but wish we could have been there to meet Jesse and family. It is beautiful in SC right now - warm sunny days. Spring is in the air. Hope you are having sunny days too!
Cathy Abernathy <cabernat@chestertel.com>
Chester, SC - Thursday, March 15, 2007 4:24 PM CDT

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Hello Patty,thank you for putting the verse in phil 3,12-14 Run toward the goal, it really touch me, I guess I needed to read this today. Congratulations also for your recognition.
I was wandering if you heard of someone who tried the «hyperbare chamber» and had any result ???
I hope and pray for your family.
Christiane (mother of Jonathan)
christiane parent <p.chayer@videotron.ca>
la prairie, canada - Thursday, March 15, 2007 1:24 PM CDT

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Thanks for emailing us the pictures. Congratulations on the award you really deserve it. You have been very helpful to our family w/ all of your knowledge. Thank you so much for that. Glad to see that Jesse is doing so well.

Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Mountain Home, ID USA - Thursday, March 15, 2007 0:41 AM CDT

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Hi Patty and Jesse,

congradulations on the award Patty you difinitley deserve it.

Give Jesse a kiss and a hug for me

Ashlee

www.caringbridge.prg/canada/ashlee
Ashlee <mwccmper@yahoo.ca>
Bracebridge, Ontario Canada - Wednesday, March 14, 2007 7:34 PM CDT

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Hi Patty.
CONGRATULATIONS on your award.
you are an amazing lady. Jesse is so lucky to have mom like you, pouring her heart out for him and making all things better for him. I enjoyed talking to you other day. I hope you are rested well after the busy week in washington D.C.
HUGS for Jesse.

Tayyaba, Abeerah, Khansa & Zahra
NJ <mps_stinks@yahoo.com>
- Saturday, March 10, 2007 8:15 PM CST

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Although we don't always sign... we keep update on you. Glad to see you are doing well. Thankyou for the prayers for Bryce... He has his smile again.
THinking of you-
Mommy Koren to Bryce
www.caringbridge.org/visit/fightforbryce
koren <kaadams@charter.net>
durham, nc 27707 - Wednesday, March 7, 2007 9:29 PM CST

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We just dropped by to check on you today.

Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Tuesday, March 6, 2007 4:16 PM CST

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Hi Patty & jesse, good to hear that Jesse is still doing so well. Good luck with the new supplement, keep us updated. Sending loads of love & hugs, Louise & Georgia xxxxxxxxx
Louise Lewis (mum to Georgia) <jonnyloo2@hotmail.com>
chepstow, uk - Sunday, March 4, 2007 11:11 AM CST

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Hi Jesse. Great website and loads of cool photos. Your Mom has done a great job of helping Lewis get onto the same vitamins as you, but as soon as we catch up she adds another one!!!
Take care and lots of love from your friends in Scotland.

http://www.caringbridge.org/visit/lewisbroadley
Gordon, Norma, Lewis and Megan <gordon_broadley@hotmail.com>
Falkirk, Scotland - Thursday, March 1, 2007 1:59 PM CST

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Hi Patty

I am happy to hear that the new supplement is helping Jesse and that you found a good therapeutic level for him. You are such a devoted mother. I am sure that Jesse feels how much you love him. Thanks for always checking in on Izzy and signing the guestbook. Talk to you soon.
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC - Sunday, February 25, 2007 7:31 PM CST

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Handsome Jesse - wonderful slideshow.
He is such a happy boy - Got a great Mummy hasn't he!
Love to you Patty & Jesse
XXXXXXX
Ria & Jasmin www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England, UK - Saturday, February 24, 2007 11:43 AM CST

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Hello Patty and Jess, I love that happy face on Jess!! You already know your both in my prayers daily. I know you'll get that insurance straightened out soon. Can't wait to see you guys,soon.......Sheryl
Sheryl & Family <212224@msn.com>
Westville, NJ USA - Saturday, February 24, 2007 9:31 AM CST

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Patty,
I so enjoyed visiting your site. I can't believe how tall Jesse is getting. Spencer will be so jealous! I loved the "We couldn't get much higher..." cartoon you sent me. I sent it to Steve. It is hilarious. We are snowed in right now in Minneapolis, but will be in D.C. in a week. Can't wait to see you and Jesse and catch up with you.
Love, Amy
Amy Holland <amy.holland@charter.net>
Ft. Worth, Tx USA - Saturday, February 24, 2007 9:22 AM CST

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Hi Patty and Jesse,
Just stopping by to check on Jesse. Thanks for signing Ty's page, we love it when you visit.
Sorry I have been scarce on-line lately. It just seems like one thing after another right now!! Between Ty and Caroline we have been to the pedi's office atleast once a week (sometimes 3X a week!) since the first of the year!- I cant keep these kiddos well for very long right now. I know a lot of it is the time of year so I am praying for spring!!!!!!!

Hugs to You and Jesse!!!
Love,
Kim
Kim and Caroline and Ty <momtoty@yahoo.com>
Houston, - Saturday, February 24, 2007 0:50 AM CST

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Hello Hello!!!! Hope all is well your way...and hopefully things work on out for us and I will see you guys in a few weeks at the conference! Hugs!!!!
Stacey and Lucas MPSIIIB
http://www.caringbridge.org/visit/hopeforlucas
- Thursday, February 22, 2007 4:02 PM CST

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HI Patty,
I just wanted to wish you a Happy Ash Wednesday and Blessed Peaceful Lent. May your Lenten journey be a growing one filled with many visits from the Holy Spirit.God Bless you during this very holy season.
Love Rosemarie

Rosemarie and Chase 15 yrs old with hunters <rveliz@nac.net>
Newton, NJ USA - Wednesday, February 21, 2007 9:04 AM CST

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Hi Patty,

It was so sweet of you to stop by and visit Jordan's page! I always love meeting new CB families!

Hope you have a great week ahead, I'll be back to check up on Jesse, he is just precious!

With hope,

Susan
Jordan <Susan2956@yahoo.com>
Baton Rouge, LA - Tuesday, February 20, 2007 8:50 PM CST

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Hi!
Turn my back for a minute and you get in trouble! I hope you get things worked out quickly with those bureaucrats. Belated Happy Valentine's Day!

Chris(MPS2), Lou, William, and Kat
Brecksville, OH USA - Monday, February 19, 2007 7:53 PM CST

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Hi Patty,
Thanks for your message in Lucas' website. I've already seen Jesse's website some time ago, but we're quite new in the Sanfilippo "family". We've only heard the diagnose five months ago. I think Jesse indeed has the same hair as Lucas and the're both so cute, don't you think so? I dont know your friends in Holland, but If you inform me where they live, maybe we can meet over here. It's always good to have some people around us with who we can share experiences. Your other son is already married, is Jesse ready to become an uncle yet? It's really great to hear from you. Love and hugs, Linda van der Wielen
www.lucasvanderwielen.nl
Linda, Ad, Anthea, Stijn, Lucas and Julian van der Wielen <linda.olman@planet.nl>
Amsterdam, The Netherlands - Monday, February 19, 2007 2:01 PM CST

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Happy Valentine's Day!
caringbridge.org/visit/quiltsofhope
Jaime <aquiltofhope@aol.com>
- Wednesday, February 14, 2007 11:04 AM CST

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Sending a valentine's message to gorgeous Jesse!

Myspace Glitters

Lots of love, from Georgia xxxxxxx
Louise Lewis (mum to Georgia)
chepstow, uk - Tuesday, February 13, 2007 4:45 PM CST

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Hey Patty and Jesse. I just love your webpage. What a beautiful testimonial to your faith and an inspiration to all of us.Thank you for sharing it with all of us.Please know I pray for you guys often and all of our MPS children.Especially the little ones having such a hard time now. How nice of you to put their names here on your site.You are a great friend to all who know you.
Love and prayers always,
Rosemarie
Rosemarie and Chase 15 yrs old with hunters <rveliz@nac.net>
- Monday, February 5, 2007 7:46 PM CST

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Jesse is such a handsome young man! Love your site.
Valerie Barnett (MPSIII mom) <lincolnwindowandsiding@verizon.net>
Lincoln, IL USA - Saturday, February 3, 2007 9:12 PM CST

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Hi Patty & Jesse
I guess it's been a while since I have been here sorry! Where does the time go? I'm glad you're not wasting your energy on fighting the Ins. issue. I know it's a huge & expensive inconveinence for you. Jesse is healthier than all of us! I'm sure the 6 months will fly by. Give him big hugs and kisses for us.
Love you guys

Kim & Scotty <cottons@earthlink.net>
Modesto, CA - Saturday, February 3, 2007 4:05 PM CST

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Coming by to check on you!
Hope you are staying warm!

~Tabitha's Page~

Karen & Tabby <karenpuddn@comcast.net>
- Wednesday, January 31, 2007 8:49 PM CST

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Hi Jessie & Patty & family your website is fab love the pictures my eyes are stinging with tears you are sooo handsome. Wanted to say hello to you and hope you are well and also to thank your great mum for sending me an email all about you and how she looks after you. You really have a great mum give her loads of hugs for us Jessie. Patty thank you so much for your email about genestein we will be looking into it all for Aaron
God Bless you all
love
michelle aidie aaron ryan & liam
xxxxxxxxx
www.caringbridge.org/visit/aaroncraig
Michelle Craig <Craigboys@blueyonder.co.uk>
Birmingham, UK - Wednesday, January 31, 2007 4:53 AM CST

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ll is well here. Uncle Clarence.
Clarence Burkholder <Posupsnoop@netzero.net>
Lynchburg, Va USA - Monday, January 29, 2007 7:19 PM CST

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Hey Patty and Jesse,

Ya it's been a long time I remember when I used to sign the book at least a few times a week. I'll have time to do all that sort of stuff starting tomorrow. I'll be done high school wow never thought I'd ever graduate.

You are right good-byes are hard but sometimes it's something we have to do and besides it's not like I won't ever see Emily again she promised to come to grad in June.

I'm glad all is well with you guys

big hugs from Ontario Canada

Ashlee

www.caringbridge.org/canada/ashlee

Ps love the slideshow of Jesse


Ashlee <mwccamper@yahoo.ca>
North Bay, Ontario Canada - Sunday, January 28, 2007 12:21 AM CST

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Your getting good at this Web page stuff Patty.I new you could do it!!Glad every one is well now.Jess really looks happy listening to those head phones.I am really looking forward to seeing you and Jess in March.Miss ya
Sheryl & Family
Westville, NJ USA - Saturday, January 27, 2007 2:02 PM CST

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Patty,
Enjoyed the slide shows. Jesse's web page is great. Glad everyone is doing well. Love and prayers.


Anita <ataulton@adelphia.net>
Jefferson, MD - Thursday, January 25, 2007 8:14 PM CST

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Patty and Jack the pictures were beautiful. I am glad that all is well. God Bless
Dawn Parks <d_woodsedge@yahoo.com>
Chestertown, MD US - Thursday, January 25, 2007 7:45 PM CST

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Patty, you and Jack are too much. Keep up the good work, God Bless you both.
Palmtree Charlie <palmtreecharlie@verizon.net>
B-More, Md - Thursday, January 25, 2007 6:09 PM CST

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Hi Patty,
Jesse is beautiful. I love the pictures. Thanks for the updates!
Love Deb and Trey
Deb Purcell <dcehak@telus.net>
Vancouver, BC Canada - Thursday, January 25, 2007 5:21 PM CST

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Hi Patty and Jesse,
I feel like I know you well, Gordon constantly mentions you as he is looking into supplements for Lewis. Thank you so much for all the advice you have given, thankfully Gordon understands it better than me! Jesse's page is great, nice to see the photo's of him......he likes football as does Lewis. Put a ball in front of him, and he'll run for miles.....normally the opposite direction from me of course, helps to keep you fit I guess.

Thanks again, speak to you soon - love to Jesse
Norma X
norma broadley <normabroadley@hotmail.co.uk>
Falkirk, Scotland - Friday, January 12, 2007 6:42 AM CST

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Happy New Year Patty,

I love the pictures of Jesse!! But I love your webpage too.It is always filled with such a joyfull appreciation of your faith. Thank you so much for sharing your faith with all of us. YOu take the time to find your favorite scriptures and share them with us. I so enjoy reading your site. Thanks for the inspiration your faith lends us all. May God Bless you and your family abundantly this new year. May Our Lady keep rapped in her mantle of protection also, and may the Prescoius Blood always protect you from all harm and sin.
God Bless you my dear and special frind in Christ,
Love Rosemarie and Chase
Rosemarie and Chase 15 yrs old with hunters <rveliz@nac.net>
Newton, NJ USA - Wednesday, January 10, 2007 10:14 AM CST

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Hey Jesse and family. Its been a while since I have signed the guestbook but I still visit your site regularly. Sounds like you all had a nice Christmas. I really like the new pictures-Jesse looks so happy in them. Praying that 2007 brings good things to you!

Liz Hindson (Izzy's aunt) www.caringbridge.org/sc/isabel <lizcon@yahoo.com>
- Tuesday, January 9, 2007 2:47 PM CST

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Hi Jesse! We just wanted to stop by and wish you a Happy New Year! Glad to hear you are feeling well and hope that continues.
Hugs, Kris and Kraiggy
Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Tuesday, January 9, 2007 11:12 AM CST

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Hi Patty,
Jesse looks so great! I pray for a healthy and happy 2007 for you and the family. Give me a call sometime.
Hugs,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Monday, January 8, 2007 11:29 AM CST

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Patty,
Jesse just looks incredible!!!! I am so encouraged each and every time I visit Jesse's site!!!!!! I didn't realize he was such a football fan!! Ty loves football too and he has a large toybox full of balls of everykind but mostly footballs his newest- a small green and white Tulane football!!!!! ;>)
Love and hugs to you and Jesse,

Kim Downham <momtoty@yahoo.com>
Houston, TX - Sunday, January 7, 2007 9:54 PM CST

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Hi, I found your page because I was looking for information on Genistien. We have a 3 year old son who was just diagnosed with MPSIIIA in April. We have been praying for God's healing for Alex ever since. Just last week we found out about Genistien. GOD IS GOOD! Alex will hopefully be starting on it soon!
I am so encouraged by reading your journal. We will be praying for Jesse and for you!
Jennifer <mejifair1@ msn.com>
Cottage Grove, MN USA - Saturday, January 6, 2007 9:05 PM CST

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I pray that 2007 is just as happy and joyfull as 2006 ! I LOVE your site! The pics are so georgeous! Jesse is sooooooooooo Handsome Hugs and Kisses Laura and Will xxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, January 4, 2007 2:10 PM CST

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Happy New Year, Jesse and Patty!!

Love,
Sheila and Shelby MPS III www.caringbridge.com/tx/shelby <sjgeorge1013@cox.net>
Edmond, OK USA - Tuesday, January 2, 2007 11:01 PM CST

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HAPPY NEW YEAR!!! THANKS FOR ALWAYS HAVING AN OPEN EAR PATTY..IT MEANS A LOT CONSIDERING I WENT SO LONG WITHOUT ANYONE TO "CONFIRM" WHAT I WAS SAYING..UUGGGHHH. HUGS TO JESSE, WHO SEEMS TO BE GETTING MORE HANDSOME EVERYTIME I DROP BY. SHOOT ME AN EMAIL IF YOU CAN HELP US WITH IMPACTED BOWELS (AGAIN). EVEN WITH THE STRICT DIET ,GENISTEIN. SUPPLEMENTS AND EXERCISE IT HAS RETURNED. I AM STARTING TO WONDER IF IT HIS BOWEL MUSCLES UUGGGHHH. ANY WAY ... HAPPY NEW YEAR, I HOPE YOU HAD A PEACEFUL AND JOYOUS HOLIDAY!!!

STACEY AND LUCAS MPS III~B
http://www.caringbridge.org/visit/hopeforlucas
- Tuesday, January 2, 2007 2:45 PM CST

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H A P P Y N E W Y E A R

Wishing you a positive and peaceful 2007, that is filled with many special magical moments.

With love, Ria & Jasmin
www.caringbridge.org/hi/jasminmay


Ria <riaheap@aol.com>
UK - Sunday, December 31, 2006 7:57 AM CST

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Dear Patty & Jesse, just want to wish you all a very happy, healthy & peaceful new year, lots of love Louise & Georgia xxxxx
Louise Lewis (mum to Georgia) <louise.lewis@udex.com>
c, uk - Friday, December 29, 2006 3:35 PM CST

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hope you are all having a wonderful Christmas! Love Laura and Will xxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Tuesday, December 26, 2006 11:46 AM CST

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Thinking of your family today. Jesse, I hope you are really enjoying the holidays. You look so happy in your photos. May God bless all of you in the coming year.
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Monday, December 25, 2006 6:42 PM CST

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Jesse looks as though he is one happy boy. That's the way Lauren views the world; what a blessing. I see all you parents of MPS children as saints. I asked Carrie how she ever did what she does, day after day. She said, "I just take it a day at a time, or sometimes a minute at a time."
You are remarkable people, and as a group, are in my prayers.
God trusts only special people to care for these special needs children.
Lauren's Great grandma Lafferty
Mesa, AZ` USA - Sunday, December 24, 2006 9:15 PM CST

---

Jesse looks as though he is one happy boy. That's the way Lauren views the world; what a blessing. I see all you parents of MPS children as saints. I asked Carrie how she ever did what she does, day after day. She said, "I just take it a day at a time, or sometimes a minute at a time."
You are remarkable people, and as a group, are in my prayers.
God trusts only special people to care for these special needs children.
Lauren's Great grandma Lafferty
Mesa, AZ` USA - Sunday, December 24, 2006 9:14 PM CST

---

MERRY CHRISTMAS JESSE AND FAMILY
LOVE TOSHA AND SYDNEY VANHOOK
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYNIKOLEVANHOOK
TOSHA VANHOOK <HURLERMOM101@hOTMAIL.COM>
- Sunday, December 24, 2006 1:04 PM CST

---

Happy Christmas & Happy New Year

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
london, Uk - Sunday, December 24, 2006 5:32 AM CST

---

Hi Patty ! I just want to wish you and your familiy a wonderfull and happy christmas!
hugs
Iris
Iris <jophiel@netcologne.de>
Leverkusen, Germany - Sunday, December 24, 2006 3:27 AM CST

---

To Patty & Jesse
Wishing you a Happy and peaceful Christmas with lots of love
Ria & Jasmin
Ria & Jazzy www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
Glos, England - Thursday, December 21, 2006 3:46 AM CST

---

HI Patty.
Thinking of you today. stoping by to check on Jesse. Glad to know he is doing good. I love the snow falling and all the pictures of Jesse.
keeping your family in my prayers at this Holiday season.
((((HUGS))))

3MPS GIRLS
Tayyaba beg <Tayyaba@helpourgirls.com>
NJ - Wednesday, December 20, 2006 5:04 PM CST

---

Merry Christmas!
Thank you for always supporting us-it means so much!
Hope your holiday is as special as you are!

The West Family (Tabitha) <karenpuddn@comcast.net>
- Sunday, December 17, 2006 12:19 AM CST

---

Hello to all your family!!! I'm glad to see that you are all doing so weel. Our Lord does take care of us. He brings us peace and joy through all the trials.
Jonathan is now doing so much better. After 3 months of giving him genistein, he suddendly was able to actually focus...look at people very clearly and intentionnally and believe me this is great. His brother can actually take time to play with him (tickle game mostly). After 4 months, his sleeping is doing alot better. I'm the happiess mother. Thank you for all the information you took time to write. Even though we've never met, I love you dearly and wish all your family the best holidays.
Christiane
christiane parent <p.chayer@videotron.ca>
la prairie, qc canada - Thursday, December 14, 2006 8:41 PM CST

---

Hi Patty & Jesse,
It's always a pleasure to visit Jesses website you make it such a lovely haven.
Beautfiul photographs especially love the one of Jesse smiling at Santa Claus,. Santa must have told Jesse what he's bring him! LOL!
Much love
Ria & Princess Jasmin <riaheap@aol.com>
UK - Thursday, December 14, 2006 4:39 AM CST

---

Hey Patty & Jesse
All your hard work paid off! Your website looks awesome, you didn't tell me you found your snow. LOL
I love all the photos of Jesse.
Hugs,
Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, CA - Tuesday, December 12, 2006 11:09 PM CST

---

Hi Patty and Jesse,

I love the pictures of Jesse he's getting so tall it looks like he would be just about my height or taller. Well have a Merry christmas I hope Santa is good to Jesse

Love you guys

Ashlee

Hugs for Jesse

www.caringbridge.org/canada/ashlee


Ashlee <mwccamper@yahoo.ca>
North Bay, ON Canada - Tuesday, December 12, 2006 9:45 PM CST

---

Hi Patty,
Sounds like Jesse is doing well, and I guess you're getting ready for Christmas. Love the picture of Jesse laughing!
Hugs,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Wednesday, December 6, 2006 1:15 PM CST

---

Hi Patty,
Thank for for sharing your thoughts and prayers with all of us. Your Jesse is so precious, and God certainly blessed him with wonderful parents. Keep up the good work and know you are all in our prayers.
Boyd & Connie Mitchell <boyd.mitchell@cbn.org>
Seaford, DE USA - Wednesday, November 29, 2006 7:56 PM CST

---

Hi guys! Loved the pictures, glad to see Jesse "horsing around".
Chris(MPS2)
Brecksville, OH USA - Wednesday, November 29, 2006 4:58 PM CST

---

Hi Patty & Jesse! Great to hear that Jesse is doing so well, love the photos, especially of Jesse laughing! That really made me smile. Sending huge hugs & kisses, from me & Georgia xxxx
Louise Lewis (mum to Georgia)
Chepstow, UK - Sunday, November 26, 2006 2:45 PM CST

---

Just checking in on Mr. Jesse!! I hope your Thanksgiving was wonderfully filling!

Love,
Misty
Mom to Seth, MPS II, and administrator for lsdsonline.com
(A support forum for families affected by Lysosomal Storage Disorders)
Misty <coreyvannostrand@netscape.net>
KS USA - Saturday, November 25, 2006 8:39 AM CST

---

Greetings from Sweden.
Hope you'll have a nice Christmas!
Anna, Kalle & Sara (26 years, MPSIIIC)
Anna Fahlén <anna.fahlen@bredband.net>
Sundsvall, Sweden - Friday, November 24, 2006 5:45 PM CST

---

Thanks for visiting Lance. Jesse is so cute and always so laid back. Maybe we can meet up again soon.
Tina & Lance <lancejrmommy@comcast.net>
- Wednesday, November 22, 2006 11:44 PM CST

---

HAPPY THANKGIVING...thankyou for giving us hope.

Mommy koren to Bryce
ww.caringbridge.org/visit/fightforbryce
Koren Adams <kaadams@charter.net>
Durham, NC usa - Wednesday, November 22, 2006 10:33 PM CST

---

Happy Thankgiving to my dear friend. I am thankful for your friendship and for your many guided words of faith and wisdom that you have shared with me. I hope you have a Blessed day tomorrow. I am so very, very thankful for your friendship.Love Rosemarie and Chase
Rosemarie <rveliz@nac.net>
Newton, NJ USA - Wednesday, November 22, 2006 8:22 PM CST

---

HAPPY THANKSGIVING!!

HUGS AND PRAYERS,
Paulina and Andrew

Paulina Jump <caljump@msn.com >
Sparta, KY USA - Wednesday, November 22, 2006 6:12 AM CST

---

Hi Patti,
Sounds like things are going pretty smooth at your house. That's always a good thing! Yum corn pudding, never had that before eat extra for me. LOL Hope you and your family have a blessed Thanksgiving.
Hugs,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens

Rebecca Bivens
- Tuesday, November 21, 2006 8:56 PM CST

---

Hi Patty and Jesse!
Thanks for stopping in to check on Cooper. He is doing great as far as recovering from his transplant. We are both nervous and anxious to see how he tolerates his last med weans.
I often check in on Jesse. He gives me strength to help Cooper fight this horrible disease. Jesse seems happy outside on his 'boy toys'. He is one strong young man determined to fight!

Shannon Rieg...Cooper's MOM

shannon rieg <shannon.rieg@hotmail.com>
- Monday, November 20, 2006 7:47 PM CST

---

Hi Patty & Jesse
It seems like forever since I've talked to you but we'll hook up soon. I hope you have a great time tomorrow in Jesse's class sounds like a lot of fun.
Have a wonderful Thanksgiving.
Hugs,
Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, CA - Monday, November 20, 2006 7:41 PM CST

---

Hi Patty and Jesse,

Great pictures :)


I just got back from Orlando last night and while I was there I met a family from just outside of Maryland. Their boy had Cp I think what a sweetie.

Hugs for Jesse and Patty

Ashlee

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, On Canada - Sunday, November 19, 2006 9:40 AM CST

---

We just wanted to drop by and see how Jesse is doing. I'm glad to hear that things are going well. It looks like everyone had a great time at the NJ gathering.
Hugs, Kris, Kraiggy and Chels
Kris Klenke <kklenke@madisontelco.com * * * www.caringbridge.org/il/kraig/ * * *>
Worden, IL - Wednesday, November 15, 2006 8:26 AM CST

---

HI Patty and Jesse.
Just stopping in to check in on you both and to thank you for being such good friends to me. Patty your advice and sentiments are always so appreciated. You are a wealth of knowledge and a gift from God. What a wonderful spokesperson you are for HIm also.Always givng great spiritual support to your friends. Thanks so much for sharing your faith with all of us..We love you!!

Rosemarie <rveliz@nac.net>
Newton, NJ USA - Wednesday, November 15, 2006 7:55 AM CST

---

Hi, Patty & Jesse! Glad to hear things are going well with you guys! Love the photos of Jesse at the horse show! Just wanted to check in and let you know I was thinking of you all! Take care!
Mieke Embry (mom to Luke, MPS-IIIA) www.caringbridge.com/al/lukeembry <embry10198@windstream.net>
Moody, AL USA - Monday, November 13, 2006 4:10 PM CST

---

Hey Jesse!
The horse show looks awesome!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, November 12, 2006 9:48 PM CST

---

Hey Jesse and Patty, just stopping by to check on you. I love the new pics! Glad you are doing well. Sending hugs your way!
Liz Hindson (Izzy's aunt) <lizcon@yahoo.com>
- Thursday, November 9, 2006 5:21 PM CST

---

Hi Patty & Jesse - that is the most amazing photograph of Jesse feeding that bear! I'd get that blown up huge in size and full display as it's such a fabulous shot. Really unique and scary!

Ria & Jasmin May <Riaheap@aol.com>
Glos, UK - Wednesday, November 8, 2006 7:15 AM CST

---

Hey Patty and Jesse,
Wanted to catch up to see how everyone is doing. Jesse looks really handsome in his pictures. I've always thought that he was a cutie!!! Glad things are going well - that's always a blessing. I also want to thank you for putting the scripture on your website. It's comforting.
Love you guys and think of you often.
Paige
Paige Lewis <plewis@email.precisionaire.com>
Middlesex, NC USA - Monday, November 6, 2006 1:52 PM CST

---

Hi Patty and Jesse!

It was wonderful to see you at the NJ gathering. We had a lot of fun too! Glad to hear you've been having some fun!

-Robin and Logan Piefer
Robin Piefer <rpiefer@comcast.net>
Springfield , PA - Saturday, November 4, 2006 7:57 PM CST

---

Hi Patty.
Think of you and jesse often but hard to make time to write. Jess looks so handsome in his new pictures. So happy to know he is using some words. That is amazing. So proud of him. Big ((HUG)) for jesse.

I am so gald you had a great week off with your husband. NJ family gathering sound fun too.
Keeping your family in my prayers.

3 MPS-III Girls
Tayyaba <Tayyaba@helpourgirls.com>
NJ - Saturday, November 4, 2006 2:03 PM CST

---

Jesse looks so handsome in this picture!!! Glad you had a
good week!!

Autumn greetings from the Montgomery's

Stacey and Lucas ~MPS III-B http://caringbridge.org/visit/hopeforlucas
Cedar Rapids, IA - Thursday, November 2, 2006 11:37 AM CST

---

Hey, Jesse and Patty! Love the photos of Jesse getting ready to watch football!!! Glad things are going well w/ you guys. Sorry I've not written! I stop by often ... but do not often leave a note. Luke is doing well for the time being. We've had some weather issues that I think have possibly caused him some discomfort. But, other than that things are pretty good! Today was his 2nd grade field trip to a local pumpkin patch. We had a great time! Have a good rest of the week! Hugs!
Mieke Embry (Luke's mom -- www.caringbridge.com/al/lukeembry ) <embry10198@windstream.net>
Moody, AL USA - Wednesday, November 1, 2006 4:50 PM CST

---

Hope your all having a great week! just wanted to say to our friends love Laura and Willxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, October 26, 2006 1:21 PM CDT

---

Just checking in to say hey! and glad to hear Jesse is doing well now. I hope you and Jack have a wonderful week together! Take care and God bless y'all...k
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Friday, October 20, 2006 10:46 AM CDT

---

Hello Patty and Jesse,

I'm glad things are well with you guys and that Jesse continues to do well.

Hugs for Jesse all the way from North bay Ontario Canada

Ashlee

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, ontario Canada - Thursday, October 19, 2006 8:11 PM CDT

---

Hello, Looks like you are doing well and having fun. Thank you for all the help you gave me over the phone about diet info. Kassi has her own website now too. Itis.. http://www.caringbridge.org/visit/Kasandra. GO RAVENS!
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Mountain Home AFB, ID Elmore - Wednesday, October 18, 2006 11:11 PM CDT

---

Just coming by to check on you! Sorry I haven't been able to visit you as much! Hope you are having a grea weekend!

~Tabitha's Page~

Karen West <karenpuddn@comcast.net>
- Saturday, October 14, 2006 8:23 AM CDT

---

Hi Patty & Jesse,
Just wanted to stop by to say HELLO! Sounds like you are all doing well. That's always good news...have fun carving those pumpkins. Have a blessed week!
Hugs,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Thursday, October 12, 2006 8:36 PM CDT

---

Hi Patty and Jesse!
Wanted to stop by and say "Hi Ya". Hope your week is going well.

http://caringbridge.org/visit/hopeforlucas
Stacey Montgomery
Cedar Rapids, IA - Tuesday, October 10, 2006 3:47 PM CDT

---

Hey friend.
I just wanted to let you know i went to a healing mass last night and prayed for you and Jesse. I know it was a tough week for you going through your testing. God is good and I am happy to hear the testing didn't reveal cancer again.Keep praying and know we are all praying for you too. Let all the love you have for God take over.
God Bless you my dear friend in Christ.
Love and prayers and may many blessings come upon you,
Rosemarie
Rosemarie <rveliz@nac.net>
Newton, NJ USA - Sunday, October 8, 2006 7:11 PM CDT

---

Hey Jesse and family! Just checking in on you. Glad to hear you got over that nasty bug. Izzy picks up most of her viruses at school too. Hope you are enjoying the fall weather. Thinking of you and praying for you,
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Saturday, October 7, 2006 6:27 PM CDT

---

Hi Patty & Jesse, hope Jesse is well again & back at school. Love all the photos! Sending lots of love & big hugs to Jesse, from Georgia xxxxx
Louise Lewis <louise.lewis@udex.com>
Chepstow, UK - Saturday, October 7, 2006 4:40 PM CDT

---

Hi Patty, Hi Jesse,
Hope that all is well with you. Hope Jesse's better now after that horrid bug. Shame you didn't get to see Union Jack play, you were real looking forward to it too, poor Patty.
Take care, lots of Love
Ria & Jasmin XXX caringbridge.org/hi/jasminmay <Riaheap@aol.com>
United Kingdom (UNION JACK!!) - Wednesday, October 4, 2006 9:27 AM CDT

---

Hi Jesse!
I hope you're doing better after that bug!!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, October 4, 2006 5:03 AM CDT

---

Wow! Sounds like you guys have been very busy!
I'm glad you're feeling better now, Jesse!
Hope you have a wonderful week!

~Tabitha's Page~

Karen West <karenpuddn@comcast.net>
- Monday, October 2, 2006 2:07 PM CDT

---

Hey Patty and Jesse! What abeautiful job on your website here and what great new pictures. Patty your joy and love of the Lord is so invigorating. Looking at your website here is very nourishing.Thank you for sharing your faith with us and oh how many blessings you will recieve for all the praise you give to HIM.
God Bless you and your family forever and always.Many prayers from my lips to HIS ears for you and Jesse.

Love,
Rosemarie and Chase
Rosemarie and Chase 15 yrs old with hunters <rveliz@nac.net>
Newton, NJ USA - Sunday, October 1, 2006 6:15 PM CDT

---

Hello Jess and Patty!!

It sounds like you have all been very busy! I am glad you are feeling better Jess. Hugs,
Sheila and Shelby www.caringbridge.com/tx/shelby <sjgeorge1013@cox.net>
Edmond, OK USA - Sunday, October 1, 2006 6:07 PM CDT

---

hey Jess...

just wanted to come by...

thank you so much for checking
on Craig...

sending you lots of love

craig, lauren, and helen

CRAIG
helen <trula1@comcast.net>
- Thursday, September 21, 2006 12:42 AM CDT

---

Hei Jesse!

I just want you to know that I've been here. I know I've been bad signing lately, but I'll try to be better about it.
I hope school is going fine, and that everything is going great with you all!

Love from Vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Wednesday, September 20, 2006 5:32 AM CDT

---

Hey Jesse!
Good to hear that there is a new therapy to help you and that its going well!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, September 20, 2006 3:43 AM CDT

---

We just dropped by to check on you today.

Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Sunday, September 17, 2006 10:54 PM CDT

---

hey guys...the boat
looks so fun...
the website is great...

just wanted to drop by...

sending you lots of love

craig, lauren, and helen

CRAIG

helen <trula1@comcast.net>
- Sunday, September 17, 2006 2:47 PM CDT

---

Hey Jesse and family
Sound like Jesse is doing good in school... Sounds that you had a good time on your boat ride... Keep up the hard work in school...We are keeping you and your family in our prayers Jesse...
Catherine Porter <Catport18@yahoo.com>
Rock Hill, SC USA - Saturday, September 16, 2006 5:03 PM CDT

---

Hey Jesse and family... Just stoped by to say and that we are keeping you in our prayers... Glade to hear that school is going good for you...Keep up the good work in school... I am glade to hear that you had a fun time on your boat ride...
Bye Catherine
Catherine Porter <catport18@yahoo.com>
Rock Hill, SC USA - Saturday, September 16, 2006 4:59 PM CDT

---

Hey Jesse and family. Just stopping by to check on you. Glad to hear school is going well. Enjoy those boat rides while the weather is still nice!
Liz Hindson <lizcon@yahoo.com>
- Saturday, September 16, 2006 8:09 AM CDT

---

Hi Patty and Jesse,

Thanks for stopping by to check on me :)

I am tring out new seating for my wheelchair and it's wonderful.

Glad things are well with Jesse give him a hug for me ok.

www.caringbridge.org/canada/ashlee

Love Ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, Canada - Thursday, September 14, 2006 5:25 PM CDT

---

Hello!

I am still hanging around, but exhausted! Not sure if I will be home much for the next couple of days. John has tomorrow off and then Friday the kids have an appointment with their geneticist so try to call and maybeyou will catch me! LOL




Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, September 14, 2006 0:40 AM CDT

---

Hi Jesse!
Just stopping by to check on you!
Willow and Isaiah (md/bubbles)
Baltimore, md - Tuesday, September 12, 2006 8:19 PM CDT

---

Hey Patty,

I miss you! I have been so busy I haven't had time to check on my babies and friends. So happy Jessy is doing well. I think you do have a PhD. You just do not want to confess to us parents who are without one ;)

Love and Hugs,
Tami <TLSlawson@aol.com>
- Friday, September 8, 2006 12:27 AM CDT

---

Great site!!
Linda SHine <lshine@comcast.net>
Downingtown, PA USA - Wednesday, September 6, 2006 8:38 PM CDT

---

Hi Patty and Jesse,

Just stopping by to say Hi

Jesse testing the waters with your new EA haha I did the same when I had one when I was younger lol.

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, ontario Canada - Tuesday, September 5, 2006 9:16 PM CDT

---

Hi Jesse and Patty, just stopping in to say hi.
Tina & Lance <lancejrmommy@comcast.net>
- Saturday, September 2, 2006 10:42 PM CDT

---

Hey Jesse & Patty
Hope you're enjoying your Labor Day Weekend!
Hugs,
Kim & Scotty (MPS II) <cottons@earthlink.net>
Modesto, CA - Saturday, September 2, 2006 10:10 PM CDT

---

What a trooper you are Jesse! I am not that well behaved at the dentist. I wish Izzy;s dentist trips were that easy. She is like me and hates people working in her mouth. I am happy the school issue seems to be resolved. Have a great LAbor Day weekend!!!
Leslie Jurado <lesliejurado@rhtc.net>
- Friday, September 1, 2006 8:56 PM CDT

---

Hello Patty and Jesse!

Just dropped by to check on you. Glad to hear everything is all set for school.

Hugs,
Sheila and Shelby www.caringbridge.com/tx/shelby <sjgeorge1013@cox.net>
Edmond, OK USA - Wednesday, August 30, 2006 11:29 PM CDT

---

Keeping you in my thougths and in my prayer's always.


Love Brenda MY LOVING DAD'S SITE <brurka@shaw.ca>
Edmonton,Alberta , - Wednesday, August 30, 2006 10:29 PM CDT

---

Jesse, I am so glad that you are doing well and that you had NO cavities, even though they did pull a fast one on you with the tooth pulling! Aren't those massages great?! You are just the little prince! I think of you and your family often and hope to meet you next March.
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Saturday, August 26, 2006 5:04 PM CDT

---

Hi Patty & Jesse,

Just flicked through your photo albums online, there are some wonderful photo's. Jesses play equipment is superb, he looks like he thinks so too! He's so tall and handsome, he holds himself very well. Love the one with Elmo especially.

That is so fantastic that Jesse's enjoying massage - can't believe he stays still for such a long while, amazing. I love massage too - luckily I've two great friends who are beauty therapists with their own salons so I'm often pampered by them.

Poor Jesse having a tooth pulled - he sure deserves his massage after that!

Thanks for visiting Jasmins website and thinking of us when she was so poorly - much appreciated. Jas-a-roo is now pretty much mended now, hooray!

Lots of Love to you,
Ria & Jasmin
Ria & Jasmin May (MPS3A) www.caringbridge.org/hi/jasminmay <Riaheap@aol.com>
Gloucester, U.K - Monday, August 21, 2006 8:23 AM CDT

---

Hey Jesse! Glad to hear your dentist visit went well. I don't think Izzy would have been able to handle all that. Sounds like you are doing well. Enjoy those massages!!
Liz Hindson <lizcon@yahoo.com>
- Sunday, August 20, 2006 11:11 AM CDT

---

Jesse,
I hope you have a fun day today. It looks like you like to read and play with your toys. I hope you get to do all of that today. I will be praying for you and I know that through Christ ALL THINGS ARE POSSIBLE. I will be praying for your comfort. Much love from Oklahoma
Austin's mom
www.caringbridge.org/visit/austin
Mandi Giacomo <mandigiacomo@hotmail.com>
Edmond, OK - Friday, August 18, 2006 8:34 AM CDT

---

Hi Patty and Jesse!
Jesse you are so lucky. I need massage quite often but I don't get it because well....my family doesn't want to pay for that kind of therapy. I'm going to see if when I become a CNA I can get that therapy. It's good for me and helps me to feel better. Anyway, sorry I have not been around lately. I've been busy volunteering at one of the local nursing homes. It's wonderful and the people there are great. I love the people I work with. The staff is amazing and the residents are adorable. SO much has happened, it's hard for me to even begin! I hope you soon have some time to e-mail Patty. I'd like to talk to you for a while.
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Thursday, August 17, 2006 9:09 PM CDT

---

We just popped by to check on you today.

Jodi and McKayla


Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Monday, August 14, 2006 10:21 PM CDT

---

Hi Jesse,

It sounds like you had a wonderful morning! Next time, take me with you!!




Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
Lysosomal Storage Disorder Forum, - Wednesday, August 9, 2006 11:45 AM CDT

---

Hey Jesse!
The park looks totally awesome! I wouldn't mind joining you there! Haha!

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW




Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, August 6, 2006 9:18 PM CDT

---

Hello,
thank you for taking the time to provide us with so much information. Jonathan have started on genistein recently, we are hoping on for great result. Right now, let me tell you he used to eat quite a bit but now it got his appetite flying....(I guess a lot more diaper to change..LOL..). Lately Jonathan was very moody (why.. we couldn't figure it out) but that seems to be changing, he started back laughing and jumping - what a joy. Thank you again.
Wish you well for you, Jesse and all your family.

Christiane <p.chayer@videotron.ca>
La Prairie(montreal), QC Canada - Saturday, August 5, 2006 7:34 AM CDT

---

Hello,
Wanted to see how you and Jesse were doing. We've been really busy with my business trip to Boston, vacation, Wayne's business trip to Tennessee, etc. We took Madison to the beach a couple days - updates will be on the webpage soon. It seems like the summer is flying by. I sent an email the other day already scheduling things around the holidays. Yikes!!! Your outings sound wonderful. Glad things are going well. Take care and tell Jesse Madison said hello!
Paige Lewis <plewis@email.precisionaire.com>
Middlesex, NC USA - Thursday, August 3, 2006 12:57 AM CDT

---

Yum! Your page looks delicious!
Just coming by to check on you guys and see how things were going. Hope your having a good day!
I'm glad you got to enjoy Hershey Park! Looks like you had alot of fun!

~Tabitha's Page~


The West Family <karenpuddn@comcast.net>
- Thursday, August 3, 2006 9:15 AM CDT

---

Hi Patty & Jesse
I was so bummed when you called Friday night to say you & Jesse weren't coming to the Conference! I had been telling my friend who was with us for 3 days how much fun we were going to have when you guys got in Friday night! I completely understand your decision not to come because I would of also saw the flight delays as a "sign"! I guess we'll just have to look forward to the Conference in D.C.
Hugs,
Kim & Scotty (MPS II) <cottons@earthlink.net>
Modesto, CA - Thursday, August 3, 2006 0:17 AM CDT

---

Boy I finally get to come in and sign and let you know I have been here yay!! I love your Hershey park pictures it looks and sounds like you had a blast Jesse!!
Erica Thiel, Beaver Dam, WI <scheiecat@yahoo.com>
- Tuesday, August 1, 2006 1:08 PM CDT

---

Hey Jesse and family! I know you must have been disappointed about not making it to the conference but I think your right about 3 cancellations definately beign a sign! I know Leslie, Jimmy, and mom were looking forward to meeting you and Jesse but maybe next year. Hopefully I will be able to go to the next conference too. Sounds like you all had a good time at Hershey Park. Hope you have a great week!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Monday, July 31, 2006 6:58 PM CDT

---

Oh Nathan & I are so jealous!! Chocolate is our favorite food. (is it in the food group?) YUMMY! Sorry you didn't make it to the conference. I really wanted to go but with our circumstances I didn't want to chance it. Hope to chat with you soon.
Hugs,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens

Rebecca Bivens
- Monday, July 31, 2006 7:36 AM CDT

---

Thanks for signing our guestbook! I love the great pictures of Jesse enjoying the summer! Hope all is well!

Take care- Cari & Jessie
Cari Cornish <cjcornish@yahoo.com>
- Thursday, July 27, 2006 10:38 AM CDT

---

Hi, Patty & Jesse! Just a quick note to let you know you're thought of often! I have a group of Sanfilippo children that I follow at least weekly. Jesse is one of the special ones! I wanted to say, "Hello!" and let you know I stopped by. Glad to see he's doing so well and enjoying his summer!
Mieke Embry, mom to Luke, MPS-IIIA, caringbridge.com/al/lukeembry <embry10198@wmconnect.com>
Moody, AL USA - Thursday, July 27, 2006 7:55 AM CDT

---

We just thought we would pop by and check on you today,
and let you know we are thinking about you.

Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Wednesday, July 26, 2006 1:01 AM CDT

---

Hi Patty & Jesse
See I'm already sad because I won't be seeing you at the Conference next week! There's still time!
Hugs & Much love!
Kim & Scotty (MPS II) <cottons@earthlink.net>
Modesto, ca - Saturday, July 22, 2006 10:31 AM CDT

---

Hey Patty,

I hope you get your issue sorted out how could they do such a silly thing.

I'm gald all is well with Jesse otherwise

www.caringbridge.org/canada/ashlee
Ashlee Dagenais <mwccamper@yahoo.ca>
North Bay, Ontario Canada - Friday, July 21, 2006 8:23 PM CDT

---

just checking in and getting some suplement advice! Love the pics of Jesse and Dad on the boat!
Love, Kim
Kim Ty and Caroline <momtoty@yahoo.com>
Houston, - Monday, July 17, 2006 0:48 AM CDT

---

Jesse and Jack look great in the boat. Let me know how driving lessons go.

Love and Blessings
Valerie Patterson <valpatterson@knology.net>
- Sunday, July 16, 2006 4:16 PM CDT

---

Hi Jesse and family, I haven't signed this book in awhile, but I do check on you often. I love the boat pictures and the birthday pictures as well. Jesse, you and I share the same birthday. A belated birthday wish to you, your mother, and your aunt. Your mom deserves a degree in nutrition, because of all of the research and the lengths she has gone to in order to keep you healthy. Are you loved a lot or what?!! Actually, because of your website you are loved by many of us who have never met you. I was hoping to meet your family in a couple of weeks at the conference, but maybe next year. I do hope to meet some other great kids and families I have learned about through websites like yours and Izzy's. Take care and keep riding that bike!
Cathy Abernathy <cabernat@chestertel.com>
Rock Hill, SC - Sunday, July 16, 2006 2:02 PM CDT

---

Okay-it's been way too long since I last signed in! We sure do love coming by and reading abouut how well Jesse is doing! The pictures are great! Sounds like you're having a great summer!
Thanks for the info on Vitamin D-very informative!
Hope you all have a great week! We will be back sooner than last time!

~Tabitha's Page~




The West Family <karenpuddn@comcast.net>
- Sunday, July 16, 2006 11:03 AM CDT

---

Hey Jesse and family! Its been a while since I have left a guestbook entry. I have had many issues with my computer in the past couple of months! I am glad to hear that you are doing well and enjoying your summer. Patty, I hope that you are able to get the school issue resolved. I know that must be frustrating. Anyway, enjoy the rest of your summer.
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Sunday, July 16, 2006 10:03 AM CDT

---

Dear Patty, I loved the boat pictures and as usual your site is gorgeous. Thank you for sharing it with us.Thank you for everything you do for us!!!
Love Rosemaire and CHASE
Rosemarie
Newton, NJ USA - Friday, July 14, 2006 8:55 PM CDT

---

Dear Patty and Jesse,
Really loved the new boat pictures. Sounds like the boat is getting some good use--fish for dinner--yum! Also enjoyed reading about Jesse's health and the fact that he's sleeping so well. Love, Aunt Vicky
Vicky Sacco
Aberdeen, MD USA - Tuesday, July 11, 2006 7:57 AM CDT

---

Hello,
THANK YOU! I loved your comment. I think you're an awesome mom for Jesse. I think it's great you're trying to get him better. Actually, my mama is trying to do the same thing with me. I have been using products for a while now, if you want to find out more you should e-mail me. They are really great.
I have a praise team practice in a little bit. So, I'm going to hop off after I blog.
Hope you have a great week!
Love,
Sami
angelsamibabi.blogspot.com
Sami Lloyd-Miller; Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Wednesday, July 5, 2006 4:08 PM CDT

---

We are thinking of you.

Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Tuesday, July 4, 2006 11:40 PM CDT

---

Hi Patti & Jesse,
Hope you are having a great 4th! Nathan is sleeping the day away, guess he wants to party during the night. God Bless you always,
Hugs,
Rebecca & Nathan MPSII
Rebecca Bivens
- Tuesday, July 4, 2006 4:13 PM CDT

---

Happy fourth of july.. Praying you guys have an awesome week.

Love melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@cox.net>
- Tuesday, July 4, 2006 2:24 PM CDT

---

Happy 4th of July! Hope you have a lovely day! Keep strong! Love from Jessie and Stana
www.caringbridge.org/visit/jessicamagnus
Stana Magnusova <londonstana@hotmail.com>
London, UK - Tuesday, July 4, 2006 2:10 PM CDT

---

Hey Patty and Jesse,

I'm just stopping by to say Happy 4th of July hope you guys have a great long weekend. I had a great Canada Day weekend. we didn't get to see fireworks till the next day because it rained all night pretty much.

Well I head to Sudbury Ontario in five days for a teen independent program should be fun.

Love Always

Ashlee

www.caringbridge.org/canada/ashlee


Ashlee <mwccamper@yahoo.ca>
North Bay, ON Canada - Tuesday, July 4, 2006 8:43 AM CDT

---

Wakey Wakey,..



Oh boy,..I want all that fun stuff,..when I can have a house again,..I love outside,..
Huggers,..
Daddys Stinker,..
- Tuesday, July 4, 2006 6:54 AM CDT

---

Wishing you and your family a wonderful Fourth of July.
Sorry it's taken me a while to get to the guestbook. I've been checking on Jesse for a while now.
Love,
Sami
angelsamibabi.blogspot.com
Sami Lloyd-Miller; Philippians 4:13 <samibabi@hickorytech.net>
Mankato, Minnesota United States - Monday, July 3, 2006 2:11 PM CDT

---

Hi Jesse!
Love the pictures of your new play equipment as well as your new bedroom!

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW



Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, July 2, 2006 10:04 PM CDT

---

Hi Patty & Jesse,

My name is Jill Lovell & I'm Wes' wife & Olivia's mom. Olivia has recently been confirmed to have MPS IIIA. While coming to terms with the dianosis & trying to get up to speed on everything, I have been perusing the internet & the forums & have found them to be quite informative. It has been so wonderful to see how well Jesse is doing!!! Needless to say, I have a BUNCH of questions for you & plan on sending you an email when I get my thoughts a little more organized. I also have your phone #. We recently started Olivia on the Genestein. I also think it makes excellent sense to build nutritionally. Thanks so much for all your help...You guys are awesome!

Looking forward to getting to know you both better. It was fun to see all your pictures!

Jill

p.s. Jesse, your bike is so COOL!!!
Jill Lovell <jill@lovellcompany.com>
SLC, UT - Sunday, July 2, 2006 2:17 PM CDT

---

Alicia, John, Ciara, Hunter,~~Angel Tommy~~
BENNETT CHILDREN"S JOURNAL

Alicia Bennett <mps3mom@hotmail.com>
Ione, CA USA - Sunday, July 2, 2006 1:28 PM CDT

---

Hello, Just wanted to stop by and say we were praying for your family. Hope all is well. We will keep you in our prayers.

The Pleasant Family <tmp2624@yahoo.com www.caringbridge.org/md/taliapleasant>
Joppa, MD - Thursday, June 29, 2006 11:42 PM CDT

---

Hey Guys, from Green Bay! Love that picture of Jesse on the home page. He looks so much older now. Hope to see you all in Ohio next month!
Andrea - Mother of Rachel (MPS IIIB) www.caringbridge.org/visit/rachel <andrea.longston@gmail.com>
Green Bay, wi - Tuesday, June 27, 2006 4:20 PM CDT

---

Always thinking of you and wishing you nothing but the best! Have a nice week!
Love Always,


~Tabitha's Page~

Karen & Tabitha <karenpuddn@comcast.net>
- Sunday, June 25, 2006 8:19 PM CDT

---

Just hopping by to say HELLO! I haven't forgotten about you, and hope you have a COOL week.(it's always cool here in the mtns.)
Hugs,
Rebecca & Nathan MPSII
Rebecca Bivens
- Sunday, June 25, 2006 12:57 AM CDT

---

Thinking of you today. it is a huge list of supplements Patty. I have to catch up with that. But glad to know that Jesse is doing good. Your family is always in my prayers.


3 Beg Girls


Tayyaba beg
NJ - Friday, June 23, 2006 1:10 AM CDT

---

Hey Jesse...
My goodness! That is a huge list of supplements! lol... But I'm glad to hear that they really do help you!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, June 21, 2006 11:37 PM CDT

---

Patty~ I printed off the supplements and we are going to get going!!! When Lucas was supposedly "autistic" we had him on several different supplements prescribed by physicians of alternative medicine. I have been searching for info on supplements since the MPS diagnosis but have not had any LUCK! However, your our a wonderful wealth of information.We had adverse reactions to fish oil in the past, I have tried several different brands, I will try the NOW brand. We have only been giving 500 mg of Glucosamine and melatonin works some times, and other nights we watch Spongebob!!

www.caringbridge.org/visit/hopeforlucas
Stacey Montgomery <lewnstacey@aol.com>
- Wednesday, June 21, 2006 3:20 PM CDT

---

Hey Patty & Jesse-
Hope things continue to go well. I printed off the supplements last week and girlfriend...I don't know how you keep up with them all. Thanks for taking the time to share that with everyone. You're definitely doing a great job!Have a good one and we'll be in touch!
Paige (Madison's Mom)
www.caringbridge/nc/madisonlewis
Paige Lewis <plewis@email.precisionaire.com>
Middlesex, NC USA - Wednesday, June 21, 2006 1:31 PM CDT

---

Hi Jesse and Patty,
I hope you are both well. Just checking in on you. Hope the supplements help. Take care xxx www.c-h-o-c.org.uk
Nicole <nicole@c-h-o-c.org.uk>
Kent, England - Sunday, June 18, 2006 3:24 PM CDT

---

Hi jesse

I love the pictures of you and your dad! You are so cute!!
Willow and Isaiah (md/bubbles)
Baltimore, md - Thursday, June 15, 2006 11:42 PM CDT

---

Hey Patti and Jesse,
Just stopping by to say HI! to all my MPS buddies! Now that school is out hope Jesse won't be bored at home! Praying for you guys!
Andrea - Mother of Rachel (MPS IIIB)-www.caringbridge.org/visit/rachel <andrea.longston@gmail.com>
Green Bay, WI - Thursday, June 15, 2006 4:56 PM CDT

---

Hi Jesse and Patty! I am the OT that worked with Jesse over the school year. I am writing because I just learned last night that a very close friend of mine has a 3 year old son that was diagnosed in November with SanFillipo's. There is a golf tournament being held in Annapolis this upcoming weekend as well as an auction to raise money for his treatments. If you are interested in attending, feel free to email me! eware2@towson.edu. Hope you have a great summer and enjoy that bike!
Beth Ware <eware2@towson.edu>
Annapolis, MD USA - Wednesday, June 14, 2006 7:27 AM CDT

---

Hi Jesse,

Hope that you had a really lovely birthday - cake looked yummy- as did you!

Hugs, Ria & Jasmin xxxxxxxxx


Ria (Mummy to Jasmin, MPS3A) <riaheap@aol.com>
UK - Wednesday, June 14, 2006 6:18 AM CDT

---

A belated Happy Birthday to you, Jesse. I was lucky to get into the guestbook today. In the past I have not been able to get into it. By the way, we have the same birthday and the same zodiak sign - Taurus, the bull. I can be a little stubborn sometimes. What about you? I, too am glad we now have great weather to play outside, ride bikes, swim and such. Sure hope I meet you one day. You are one of my heroes, and your mom is certainly a hero to MPS families. Hope you have a great summer.
Love, Izzy's Gandy
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Tuesday, June 13, 2006 12:28 AM CDT

---

I'll be waiting to hear how the supplements work for Jesse! Tabby takes Omega 3 and I swear by it!
Have a great day!

~Tabitha's Page~

Karen & Tabby <karenpuddn@comcast.net>
- Tuesday, June 13, 2006 10:57 AM CDT

---

Hi Patty & Jesse
Thanks for checking in on Scotty, we really appreciate it!
It was great talking with you today and I'm so happy that Jesse's appointment with his Geneticist went so well! (besides the wait of course). You're an awesome mom!
Hugs,
Kim & ScottyMPS II <cottons@earthlink.net>
Modesto, CA - Monday, June 12, 2006 6:16 PM CDT

---

First time I have been on Jesse's site, thanks to your entry in Payton's. I am really glad to hear that he is doing so well, and that is something to jump for joy about. Yes, very interesting about the supplements, I will check into them. Prayers for Jesse that he will stay on this healthy streak for many more moons. Shannon, mom to Payton www.caringbridge.org/visit/paypay MPSll
Shannon Cherpes <cookie_sc2000@netzero.net>
Orleans, Mi United States - Saturday, June 10, 2006 8:11 AM CDT

---

Hi Patty and Jesse,

Glad things are going well

I'll check back soon

Love

Ashlee

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, Ontario - Friday, June 9, 2006 8:49 PM CDT

---

I love the new graphics!! It is always good to hear that Jesse is doing well. The information on the new supplements looks very interesting!

Hugs,
Sheila and Shelby www.caringbridge.com/tx/shelby <sjgeorge1013@cox.net>
Edmond, OK USA - Thursday, June 8, 2006 11:00 AM CDT

---

RachelJoy is continuing her recovery here at home. I'm so very, very thankful to the Lord.
I'm praying that your family will also enjoy special blessings this week.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Tuesday, June 6, 2006 11:06 PM CDT

---

Love the new pictures. Glad Jesse is doing so well. He seems to be the exception to the rule, thankfully. Much love to y'all...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, June 6, 2006 9:05 AM CDT

---

Hi Patty & Jesse
Hope you had a great weekend! Can't wait to hear how you're meeting went.
Hugs,

Kim & Scotty (MPS II) <cottons@earthlink.net>
Modesto, CA - Sunday, June 4, 2006 5:37 PM CDT

---

Hi Patty and Jesse. Thanks for dropping by to Luke's site. Sorry I havn't been keeping in touch but weve had a rough year and were just getting back on track. Jesse looks great in all his photos. It looks like he is enjoying life the best he can. Thats all we can hope for with our special children to keep them happy and health for as long as possible. I will try and keep in touch a bit more often Love and best wishes.
Heather Chapman and the boys <the-7th-house@ntlworld.com>
Hartlepool, UK - Friday, June 2, 2006 8:14 AM CDT

---

Hey Patty & Jesse,
Wanted to check to see how everything was going. FYI-Madison has that limping/stiffness thing sometimes also. Like Jesse, her hips look great and it's really unexplainable. Just as long as they are mobile I'm happy. Madison fighting cold/allergies. We're giving her medicine twice a day to help dry up drainage that makes her cough. Other than that she's good. School is out next week so she can begin her lazy days of summer. Yeah - no more getting her ready so early in the morning. We've got sitters coming in at 7:30 so we can get to work on time. That will be one less thing we've got to do daily. Anyway, take care and give Jesse a hug from us.

Paige Lewis <plewis@email.precisionaire.com>
Middlesex, NC USA - Thursday, June 1, 2006 11:51 PM CDT

---

Thinking of you today. New pictures looks great. I am always thinking of you and Jesse and always keep your family in my prayers.

Jesse looks great at Olympics.

3 MPS GIRLS

Tayyaba Beg <tayyaba@helpourgirls.com>
NJ - Thursday, June 1, 2006 0:24 AM CDT

---

Happy Memorial Day Patty and Jesse. Oh I love your new pictures. Jesse is gorgeous.The website looks absolutely incredible once again. We love you guys, Love Rosemarie and Chase
Rosemarie
Newton, NJ USA - Monday, May 29, 2006 7:01 PM CDT

---

Just stopping in to say hi. Jesse is getting so big!
Tina & Lance <lancejrmommy@comcast.net>
- Monday, May 29, 2006 1:15 PM CDT

---

Hey Patty and Jesse,

I love the new picture of you guys :)

Have a great day off I had my "day off" Victoria day last week.

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, Ontario Canada - Monday, May 29, 2006 6:18 AM CDT

---

The Prayer Bears
Hailee
praying your having a safe and happy holiday weekend.
love all the pictures.. your always in our prayers...
melissa <angels4hailee@cox.net>
cavecreek, az usa - Sunday, May 28, 2006 4:44 PM CDT

---

Just stopping to see how Jesse is doing, and wish you a Happy Memorial Day!!!

Carmen Jurado-Paez
Weston, Fl. USA - Saturday, May 27, 2006 6:11 PM CDT

---

We just dropped by to say hi.

Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Saturday, May 27, 2006 11:12 AM CDT

---

Hello, I am Ruth a MPS111B mom. I stumbeled on your guestbook. Our son is Joshua, he is 5. I am so glad to hear that you are doing vitains and watches what he eats. I believe that feeding them as with any other children as healthy as can be . I treat Joshua as natural as possible with as little meds. as possiable, really health foods, and we believe to let these kids be as normal as possiable, let them be a kid, have fun, not to coddle them as this seems to make them not fight as much and be as healthy, your on a good mission. Your in our prayers also, May God be with you and give you strenght and wisdom! Love Ruth
Ruth Murphy <523murf@earthlinl.net>
Rowlett, tx USA - Monday, May 15, 2006 12:57 AM CDT

---

HAPPY MOTHER'S DAY, PATTY!!
Sheila and Shelby <sjgeorge1013@cox.net www.caringbridge.com/tx/shelby>
Edmond, OK USA - Sunday, May 14, 2006 10:49 PM CDT

---

love Laura and Will xxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Sunday, May 14, 2006 3:28 PM CDT

---

Happy Mother's day, Patty! Thank you for visiting Harmen's website! Jesse, what a wonderful bike!
Love,
Harmen, Hanna, Jan and Jacomien
Haren, The Netherlands - Sunday, May 14, 2006 1:19 PM CDT

---

LETTING YOU KNOW THAT YOUR THOUGHT OF ON MOTHER'S DAY.KEEPING YOU IN MY THOUGHTS AND IN MY PRAYER'S ALWAYS.
LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~>
EDMONTON ,ALBERTA, - Sunday, May 14, 2006 12:00 AM CDT

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Happy Mothers Day Patty to my special friend and to a wonderful great mom that you are. I hope your day is full of smiles and happiness.
Love Rosemarie and Chase
Rosemarie <rveliz@nac.net>
Newton, Nj USA - Saturday, May 13, 2006 8:18 PM CDT

---

Happy Mothers Day Patty.
You have a great family. Hi Jesse..Take care of yourself.

Kathleen and Liam and family.
www.caringbridge.org/visit/liamhilferty
Kathleen <twins82000@aol.com>
Chadds Ford, PA 19317 - Saturday, May 13, 2006 7:48 PM CDT

---

Happy Birthday Jesse.
Tina & Lance <lancejrmommy@comcast.net>
- Friday, May 12, 2006 10:04 PM CDT

---

Hey guys! Jesse, I love that new ride! Sweet wheels. I'm glad he loves his playground equipment. Also, HAPPY BIRTHDAY! I'm sorry I missed it! Such a big boy. Are you all going to Ohio? We hope to see you there. Hugs and Kisses from Green Bay!
Andrea - Mother of Rachel (MPS IIIB) <andrea.longston@gmail.com>
Green Bay, WI - Friday, May 12, 2006 3:17 PM CDT

---

just wanted to pop by and say hello,,hope all is well im loving Jesse's new bike looks like he is having so much fun on it.lots of love Terri and Blaise.xxx
terri rayner <terri.rayner1@ntlworld.com>
manchester , uk - Thursday, May 11, 2006 3:12 AM CDT

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MOM BEST ADVISE IS DO WHAT TO FEEL IS RIGHT IN YOUR HEART AND I THINK GIVING THE VITAMINS WILL HELP AND A SPECIAL TOUCH FROM THE LORD MAY GOD BE WITH YOUR FAMILY AND GUIDE YOU IN THE YOUR CHOICES THAT YOU MAKE FOR YOUR SON TO LIVE A MUCH HAPPIER LONGER LIFE
TONYA <dios@mebtel.net>
MEBANE, NC USA - Wednesday, May 10, 2006 0:39 AM CDT

---

Sorry I haven't been in touch lately, but things have been rough around here. Although I must say Nathan has had a few good days. HOORAY!
Hope you have a great Mother's Day! Hope to talk to you soon.
Hugs,
Rebecca & Nathan MPSII
Rebecca Bivens
- Tuesday, May 9, 2006 9:08 PM CDT

---

Hello Jesse!!

Wow you and your mom have been really busy lately. Your new bike and your new playset look like fun!! I hope you and your mom both had a good birthday!! Love,
Sheila and Shelby <sjgeorge1013@cox.net>
Edmond, OK USA - Tuesday, May 9, 2006 11:42 AM CDT

---

Hi Jesse
Came across your link through Nicole's website.Belated Birthday wishes.
Courage and determination has a role to play in the way in which we live our lives. You and your family are blessed with both together with love and support for each other.

Best wishes
Parmjit
www.maxhorwood.com
Parmjit Horwood
Church Crookham, UK - Tuesday, May 9, 2006 3:44 AM CDT

---

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Monday, May 8, 2006 11:50 PM CDT

---

Hi Jesse,

This is my first time to your awesome site! It is so filled with hope. I love the poem on your page, and I agree with every word.

Happy Birthday Jesse, hope it was a great one.

I'll be back to check in on you!

Oh, love your new wheels, how cool...

Blessing to you and your family,

Susan & Jordan
Jordan <Susan2956@yahoo.com>
God is good, all of the time........................, - Sunday, May 7, 2006 11:14 PM CDT

---

Hi Jesse!
I found a post for your website on someone's guest book, so i'm just popping in to say hi. I hope you had a good birthday. Take care, love Nicole x www.c-h-o-c.org.uk
nicole <nicole@c-h-o-c.org.uk>
Kent, England - Saturday, May 6, 2006 1:00 PM CDT

---

Mom told me that the fundraiser was amazing all around. I have to tell you that I'm so thankful for the community for support you've built. No doubt, everyone can see that you are an amazing and dedicated Mom. Stephen and Jesse are as blessed to have you as you are to have them. I love each one of you!
Stacy Bryan
Baltimore, MD USA - Friday, May 5, 2006 5:00 PM CDT

---

WOW what a great party! Patty you did a wonderful job (and I know it was a job!!) with the fundraiser. Happy, Happy Birthday Jesse! You look great on your new bike.
Hugs, Janelle (Alli's Nana)
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, May 4, 2006 10:55 PM CDT

---

Hi Jess & Patty
You've have been so busy! I know you're going to have a great time with Sis celebrating all your birthdays!
Love you guys!
Kim & Scotty (MPS II) <cottons@earthlink.net>
Modesto, CA - Thursday, May 4, 2006 9:40 PM CDT

---

Happy Birthday Jesse! Your birthday is the same as my mom's. Congratulations on the fundraiser-you guys raised alot of money. The pictures were really good too.


Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Thursday, May 4, 2006 9:06 AM CDT

---

Sweet Jesse.

To you.

Patty! All the pictures looks great. You done a great job with fundraiser. You guys are always in my prayers.
(((((((((((HUGS))))))))))) for Jesse.

3 Beg Girls


Tayyaba beg
NJ - Thursday, May 4, 2006 0:30 AM CDT

---

HAPPY BIRHTDAY JESSE !!!!!!HOPE YOUR HAVING FUN TODAY.I ENJOYED OUR WALK SAT.YOUR BIKE IS SO COOL !!THANKS PATTY! YOU DID A GREAT JOB WITH THE FUND RAISER,THE WEATHER WAS EVEN PERFECT.
Sheryl & Family
Westville, NJ USA - Monday, May 1, 2006 7:21 PM CDT

---

Way to go!!! It sounds like you had great day and raised a lot of money, that's awesome!!!




Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, April 30, 2006 10:42 PM CDT

---

Hey Jesse! I LOVE your new swing...it's totally cool. I know you'll have loads of fun on it. Hope your bike ride goes great too! Much love to you and your family...kle

PS Patti: eMail me info on the swing please. Thanks!
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Sunday, April 30, 2006 2:10 AM CDT

---

Jesse, you looked like you were having so much fun on that bike today! I just saw the pictures of you on your new playset...way to go!
Patty, we were so glad we came today. It was a beautiful day! I admire you for your strength and courage.
Love, Karen, Mike, Katie, Michael and Grace
Karen Corcoran <butterfliesandtoads@hotmail.com>
Jarrettsville, MD USA - Saturday, April 29, 2006 6:46 PM CDT

---

Go Jesse Go!!!

I hope you have a wonderful day today and ride, ride, ride your bike for MPS!!! We can't be there today so I thought I would leave these guys in your guestbook to ride for us!

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
Lysosomal Disorder Forum, - Saturday, April 29, 2006 1:08 PM CDT

---

Im so happy Jesse got his new play equipment. He looks like he is really enjoying it. Good luck on the fundraiser this weekend. I will be checking back for an update and pictures. Have a great week!
Liz Hindson <lizcon@yahoo.com>
Clemson, Sc - Monday, April 24, 2006 9:13 AM CDT

---

Hey Patty and Jesse,

Ok I'm on the next flight to Baltimore lol. No you can't even move when the drug dogs come in. You just have to sit there and let the dog sniff around.I'm glad I was not in my wheelchair because there wouldn't have been any room for the cop and the dog to down my asile.

Lots of hugs from Ontario

love

Ashlee

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, Ontario Canada - Monday, April 24, 2006 6:24 AM CDT

---

Hey Patty and Jesse,

I'm loving the new equipment can I come over and play lol.

Lots of love
Ashlee

www.caringbridge.org/canada/ashlee
Ashlee Dagenais <mwccamper@yahoo.ca>
North Bay, Ontario Canada - Sunday, April 23, 2006 6:06 PM CDT

---

Thanks for remembering hailee and her surgury, we had to cancel at the last moment, guess i should update her page...
thats so cool about all the new stuff. Enjoy hailee loves to swing. Have a wonderful week.

love melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@cox.net>
cavecreek, az usa - Sunday, April 23, 2006 5:56 PM CDT

---

Hi Patty & Jesse
Wow a new bike, new play equipment (a new vaccum for mom)
what's next? I can't wait to see the pictures of Jesse on his new swing and slide!


Have a great weekend!

Kim & Scotty (MPS II) <cottons@earthlink.net>
Modesto, ca - Saturday, April 22, 2006 1:57 AM CDT

---

Hey Patty & Jesse,
Haven't stopped by in a while and wanted to see how everyone was doing. I'm so glad things are going well with the new bike and play system. Wayne and I discussed a play system for Madison in her fenced area. We're also looking in getting a ramp built because it's getting harder and harder for her to use steps. Anyway, I just wanted to say hey!
Tell Jesse that we said hello.
Paige Lewis
Middlesex, NC USA - Thursday, April 20, 2006 2:58 PM CDT

---

YEAH JESSE!!!! I hear you love your new playground!!! I can't wait to see the pictures!!!



Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
Lysosomal Disorder Forum, - Wednesday, April 19, 2006 8:17 PM CDT

---

Hey Jesse and Patty,

Oh how beautiful this website is and how it has so much love to share.The pictures are so wonderful. I could play here for hours!!Jesse enjoy your new play ground system outside and take some pictures for me..
Love your friends Rosemarie and Chase
Rosemarie <rveliz@nac.net>
Newton, NJ USA - Wednesday, April 19, 2006 12:01 AM CDT

---

We just popped by to check on you guys, and say hi!
Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Wednesday, April 19, 2006 1:46 AM CDT

---

The Prayer Bears
Hailee
From my family to yours may you have a blessed Easter.


melissa <angels4hailee@cox.net>
- Saturday, April 15, 2006 11:35 PM CDT

---

Happy Easter!


~Tabitha's Page~


Karen & Tabitha <karenpuddn@comcast.net>
- Saturday, April 15, 2006 8:11 PM CDT

---

Happy Easter!!

ANDREW'S WORLD
Paulina and Andrew Jump MPS III B <caljump@msn.com >
SPARTA, KY USA - Saturday, April 15, 2006 8:12 AM CDT

---

Have a special Easter Hugs Laura xxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Friday, April 14, 2006 10:44 AM CDT

---

Happy Easter

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Friday, April 14, 2006 9:58 AM CDT

---

Keeping you in my thoughts and in my prayer's always.

LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~>
EDMONTON , - Thursday, April 13, 2006 9:48 PM CDT

---

Happy Easter Patty and Jesse - I hope you have a wonderful Holiday!!! I love hte new bike and can tell Jesse does to - so glad it finally came!! Hope to see you guys in KY and Miss you!! Love, Erica www.caringbridge.org/wi/ericathiel MPS I S
Erica Thiel <scheiecat@yahoo.com>
Beaver Dam, Wi USA - Wednesday, April 12, 2006 3:49 PM CDT

---

Kim & Scotty (MPS II) <cottons@earthlink.net>
- Tuesday, April 11, 2006 10:19 PM CDT

---

Hello there I am a fellow MPS mom and I think that we might have chatted on a couple of ocasions on the forum or via email. Alicia Bennett thought that you might have some knowledge about long term uss of benadryl being used for sleep in MPS children. It doesn't see to help much anyways, but they don't know what else to try. Please email me with any ideas or insight you might have would be much appreciated.

www.caringbridge.com/visit/gracielaesparza

Thanks so much,
Naomi Esparza <gracitransplant@hotmail.com>
Durham/Sellersburg, NC/IN - Monday, April 10, 2006 0:16 AM CDT

---

STOPPING BY TO SAY HI AND I HOPE THINGS ARE GOING WELL.I LOVE THE NEW BIKE.LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYANHOOK
TOSHA VANHOOK <HURLERMOM101@HOTMAIL.COM>
- Saturday, April 8, 2006 3:12 PM CDT

---

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, April 8, 2006 2:42 AM CDT

---

Hey Patty,

I LOVED the picts of him on his bike! I can't wait to see ya at the conference!

Love and Hugs
Tami <TLSlawson@aol.com >
- Tuesday, April 4, 2006 7:51 PM CDT

---

Just stopping in to say HI! glad to hear Jesse's new bike came in! I know he will really enjoy it!!! Hope you all have a wonderful week!!! and hope to see you at the conference!
www.caringbridge.org/ky/tylerdeskins
Jenn Deskins <tylersmommy11304@yahoo.com>
- Monday, April 3, 2006 2:26 PM CDT

---

Patty,
It is always such a joy to come visit Jesse's site. You have such a wonderful outlook on life and Jesse always seems to be thriving. I think you are amazing. Hugs to Jesse and to you!!! I can't wait to see the pictures of Jesse on his new bike!!! I bet he loves it!

Love,
Kim (momtoty)
Kim Downham <momtoty@yahoo.com>
Houston, TX - Sunday, April 2, 2006 9:11 AM CDT

---

Hey guys just popped by to say hi.

Jodi and McKayla
Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Saturday, April 1, 2006 11:32 AM CST

---

Love, Kim & Scotty (MPS II)
www.caringbridge.org/ca/friends
Kim <cottons@earthlink.net>
Modesto, CA - Friday, March 31, 2006 9:26 AM CST

---

Just wanted to send our love and say Happy Spring! kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Monday, March 27, 2006 11:39 AM CST

---

Hi Patty & Jesse

Thank you for all your wonderful advice! I wouldn't be seeing these improvements in Scotty without your unconditional help! You're awesome and I'm really looking forward to seeing you again this summer!
Love you lots!
Kim & Scotty (MPS II)
www.caringbridge.org/ca/friends

Kim <cottons@earthlink.net>
Modesto, CA - Sunday, March 26, 2006 12:18 AM CST

---

Hey Patty and Jesse,

It's been a while since I last visited your page I have been super busy with school.

Anyway just a note to say I'm thinking about you guys

Hugs from Ontario Canada

Love
Ashlee

www.caringbridge.org/canada/ashlee

come by and check out my page it has a new look.
Ashlee Dagenais <mwccamper@yahoo.ca>
North Bay, Ontario Canada - Wednesday, March 22, 2006 5:55 PM CST

---

Hi Jesse!
I'm just stopping in to see how you're doing. All the best with the fundraiser!! I hope you raise lots!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW


~Simply Joanne~

Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, March 22, 2006 9:58 AM CST

---

Just stopping by to check on Jesse. Im glad to hear that things are moving forward with the playground equipment. Hopefully it will be here in time for Jesse to enjoy the beautiful spring weather.
Liz Hindson <lizcon@yahoo.com>
Clemson, Sc - Saturday, March 18, 2006 8:26 AM CST

---

Thinking of you today.



Beg Girls


Tayyaba Beg
NJ - Friday, March 17, 2006 8:06 PM CST

---

Hey guys just popped by for an update!

Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Tuesday, March 14, 2006 5:15 PM CST

---

Hi Jesse & Patti,
Good news about Jesse hearing!! And love the new bike, you go Jesse, burn rubber!! Patti can't wait to start Nathan on the vitamins, but he is still feeling bad today. Poor Nate!
Hugs,
Rebecca & Nathan
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Thursday, March 9, 2006 3:54 PM CST

---

Hi Patty,

what a handsome young man !!! and what lovely page ! I'm very glad to read the good results of the hearing test.
I'm very happy that I found you an the other parents on the forum.
God bless !
Iris & Nina
Iris <jophiel@netcologne.de>
Leverkusen, NRW Germany - Thursday, March 9, 2006 10:41 AM CST

---

YEAH!!! Look what I learned how to make!!!



Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.cm>
- Wednesday, March 8, 2006 8:28 PM CST

---

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, March 2, 2006 8:41 PM CST

---

Just stopping by to check on Jesse. So glad to hear he is finally going to get his therapy bike. Hope everything goes well with the fundraiser and you all are able to get some media coverage. Wouldn't it be nice if they jumped at the chance to cover something good instead of all the negative aspects of society. Anyway, thinking of you and praying for you to have a great week!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Wednesday, March 1, 2006 1:08 PM CST

---

JUST STOPPIN BY TO SAY HI TO JESSE AND YOU TO PATTY!!! HAVE A NICE WEEK!!
GABBI RIVAS <JACALERA@SBCGLOBAL.NET>
SOUTH EL MONTE, CA USA - Tuesday, February 28, 2006 9:46 PM CST

---

Thinking of Jesse today.
Tina & Lance <lancejrmommy@comcast.net>
- Friday, February 24, 2006 8:50 AM CST

---

Hi Jesse and Patty, thanks so much for signing Rhys's guestbook! I'm glad Jesse likes school too! Makes things alot easier when you don't have fight with them to go! Yes it is cold up here in Canada, but today isn't too bad, lots of sunshine. Hopefully spring is just around the corner! Take care, Trish & Rhys Boyd & family, www.caringbridge.org/visit/rhysboyd
Trish Boyd <boyd.trish@gmail.com>
Kendal, Ontario Canada - Thursday, February 23, 2006 9:21 AM CST

---

Hi Jesse and Patty
Just wanted to let you know I was thinking about you. Miss talking to you but I'm still recovering! I had a Dr. appt. yesterday and have one today :(


Kim & Scotty <cottons@earthlink.net >
Modesto, ca - Thursday, February 23, 2006 8:58 AM CST

---

The photo of Jesse on his bicycle is fantastic, I'm sure he'll have hours of fun on it. Jasmin loves hers - warning to you though, Jas's has a steering/brake bar on the back & she suddenly stops by just holding her feet ridgid on the pedals and I keep going so the bar hits me right in the tummy - ouch -I'm better practised now & quickly halt when she does! Little rascal she is!

Lots of love Ria & Jasmin

Ria (Mum to Jasmin MPS3A, Jasmin is 7) www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
U.K - Monday, February 20, 2006 9:06 AM CST

---

what a handsome picture...



just wanted to
come by to check
on you...

hope you valentine's day
was fun...

sending you lots of love

Craig, Lauren, and Helen

CRAIG

helen <trula1@comcast.net>
- Wednesday, February 15, 2006 2:52 PM CST

---

Just stopping by. Glad to hear everything went well with the doc. Big Valentines day hugs to Jesse!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Wednesday, February 15, 2006 1:29 PM CST

---

Happy Valentine's Day !!
Eli & Fletcher
Michele
- Tuesday, February 14, 2006 9:38 PM CST

---

Happy Valentines Day Patty and Jesse!!! Miss you guys like Crazy and wish I could see you again soon!! Patty I had fun in D.C. Thank You for showing me around!!! Love n HUgs,


Erica Thiel <scheiecat@yahoo.com>
Beaver Dam, WI USA - Tuesday, February 14, 2006 8:43 PM CST

---

Sending lots of love and prayers your way.

3 BEG GIRLS

TAYYABA mom to ABEERAH, KHANSA, & ZAHRA BEG.
- Tuesday, February 14, 2006 6:48 PM CST

---

Hello Jesse and Patty,

Happy Valentine's day

Love you guys lots

Ashlee

www.caringbridge.org/canada/ashlee

Ashlee Dagenais <mwccamper@yahoo.ca>
North bay, on Canada - Tuesday, February 14, 2006 5:11 PM CST

---

Sorry didn't look very close just copied and pasted. Give Jesse big hugs and kisses from us!

XXXXOOOO
Andrea - Mother of Rachel (MPS IIIB)-www.caringbridge.org/visit/rachel <andrea.longston@gmail.com>
Green Bay, wi - Tuesday, February 14, 2006 12:49 AM CST

---

Happy Valentine’s Day!!!!
From all of us in GB with lots of snow! Give LuLu and Hannah hugs and kisses from us! Shakin’ our booties!
XXXXOOO


Andrea - Mother of Rachel (MPS IIIB) <andrea.longston@gmail.com>
Green Bay, wi - Tuesday, February 14, 2006 12:42 AM CST

---

Happy Valentines to you Jesse and Patty

St. Valentines - a day to remind us to let the special people in our lifes know that we care

XXX
Ria Heap (Mum to Jasmin MPS3A, Jasmin is 7) <riaheap@aol.com>
UK - Tuesday, February 14, 2006 2:26 AM CST

---

LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA/CANADA, - Tuesday, February 14, 2006 1:38 AM CST

---

Hey Handsome fellow I just came to wish you a Happy Valentines day!!!

Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Monday, February 13, 2006 11:29 PM CST

---

Thanks so much for signing our guestbook. I hope you have a great Valentine's Day.

The Verchers
Leann Vercher <theverch@aol.com>
Pineville, La usa - Monday, February 13, 2006 10:51 PM CST

---

What a handsome little man you are Jesse!! I'm lovin the picture and sending my love to you and your mommy. Happy Valentine's Day.
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC - Monday, February 13, 2006 9:13 PM CST

---

Love,
Rebecca & Nathan MPSII
Rebecca Bivens
- Monday, February 13, 2006 8:20 PM CST

---

HAPPY VALENTINE'S DAY!!!
LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
LATOSHA VANHOOK <SFROBERTS@HOTMAIL.COM>
BLOOMINGTON, ILL - Monday, February 13, 2006 7:31 PM CST

---

HAPPY VALENTINE'S DAY!!


PAULINA, ANDREW, ALEX AND COLIN <caljump@msn.com>
SPARTA, KY USA - Monday, February 13, 2006 6:38 PM CST

---

HAPPY VALENTINE'S DAY!!!!

Jenn Deskins
- Monday, February 13, 2006 6:15 PM CST

---

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, February 12, 2006 1:12 PM CST

---

Hi Patty, just stopping by to say 'hello'! Great to hear about Jesse's cardiology appt, hope he continues to stay well. We have Georgia's cardiology appt. coming up in March, so I may contact you before then for some advice, what to ask etc. Give Jesse a great big kiss from me & Georgia! xxx
Louise Lewis <starfish26@btinternet.com>
Chepstow, UK - Sunday, February 12, 2006 11:55 AM CST

---

Hey Patty and Jesse,

Just stopping by to say hello it's been a while since I have signed your book. I just started second semester yesterday and already I love it my teachers are great and helpful sometimes I get stuck in the asile of my morning class so my teacher backs me out :). I also have gotten my new afos the have a jean pattern on them they are pretty cool. Also I am still waiting on my k walker and my power wheels hopefully they will come in soon I can't wait.

Hugs from Canada

Ashlee

www.caringbridge.org/canada/ashlee

Ashlee <mwccamper@yahoo.ca>
North bay, On Canada - Tuesday, February 7, 2006 8:32 PM CST

---

Hello Patty and Jesse-

Love and hugs from SC-

May the Lord Jesus continue to bless you and keep you and give you hope and peace and encouragement and strength to face each day. Our love extends across the miles.......

Jenn and Tommy Sprouse
Jenn and Tommy Sprouse <jtsprouse@bellsouth.net>
Pauline , SC - Tuesday, February 7, 2006 12:04 AM CST

---

Hi Jessie, I just visited your new room. I just love Pooh myself. My daughter was a Bone Marrow Donor to Abigail Floyd and we are going to go meet her for the first time in March. I know you pop into her website too. Hope things are going well with you. Take care and enjoy that wonderful bedroom.
Kinda Loew <kindaloew@hotmail.com>
Hamilton, MI USA - Sunday, February 5, 2006 11:00 PM CST

---

Bouncing by to say HELLO! We love your bedroom!
Nathan & Rebecca
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Saturday, February 4, 2006 4:39 PM CST

---

Thanks for your advice Patty. Jesse I am digging your new room.
Leslie Jurado <lesliejurado@rhtc.net>
- Wednesday, February 1, 2006 9:09 PM CST

---

Love the colors!!! Have a great day!!
www.caringbridge.com/ma/abigail
- Wednesday, February 1, 2006 1:52 PM CST

---

your bedroom
is awesome!!!

sending you lots of love

Craig, Lauren, and Helen

CRAIG
helen <trula1@comcast.net>
- Wednesday, February 1, 2006 12:25 AM CST

---

Hi Jesse and Patty,
A belated Happy New Year to you (been somewhat crazy here!)
Wow, you have done a wonderful job of Jesse's new room, no wonder he loves it so much.
Here's to a strong and happy year
Love Ria and Jasmin xxxx

Ria Heap (Mum to Jasmin MPS3A, Jasmin is 7) <riaheap@aol.com>
UK - Wednesday, February 1, 2006 6:14 AM CST

---

Jesse, your room is so bright and cheerful. I know you will enjoy being surrounded by all your favorite characters from Winnie the Pooh. Hope I can meet you some day.
Izzie's Gandy
Cathy Abernathy <cabernat@chesteertel.com>
Chester, SC - Tuesday, January 31, 2006 4:08 PM CST

---

Hi Jesse,
WOW! Sure love your room. Pooh-Bear is my favorite. Nathan use to carry his Pooh with him everywhere, even into surgery. Pooh had alot of bandaids those first few years!
Hugs,
Rebecca & Nathan
www.caringbridge.org/visit/nathanbivens
Rebecca Bivens
- Monday, January 30, 2006 7:23 PM CST

---

Love your new room Jess!Looks like your having lots of fun in there.That mint green looks so nice Patty.
Sheryl & Family <212224@msn.com>
Westville, NJ USA - Sunday, January 29, 2006 3:33 PM CST

---

Wow Jesse-I love your new room!! It looks like you are enjoying it too. I wish you many fun days in your new room!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Sunday, January 29, 2006 9:38 AM CST

---

Hi Jesse!
Now thats a nice looking room! YOu're 1 lucky guy!

With love,
Joanne and the Dream Team
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care


~Simply Joanne~

Joanne <joanne173@gmail.com>
singapore, Singapore - Friday, January 27, 2006 10:24 AM CST

---

Just wanted to say hello! I'm so glad that the soy is working for you. Please stop by our page and leave us a note!
Leann Vercher
www.caringbridge.org/la/kasiekelliekate
Leann Vercher <theverch@aol.com>
Pineville, la usa - Thursday, January 26, 2006 10:06 PM CST

---

I JUST WANTED TO SAY HI AND TO SEE HOW JESSE IS DOING.LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
TOSHA VANHOOK <SFROBERTS@HOTMAIL.COM>
BLOOMINGTON, ILL - Wednesday, January 25, 2006 4:31 PM CST

---

hi jesse&patty i just stop by to say hi.i enjoyed the pictures of jesse"s room.i put a comment in there but i am not sure if it actually went through or not but any way patty you did a wonderful job.talk to you guys later.love ya,mrs.thomas
mrs.thomas <kaycoachbags@yahoo.com>
columbia, md - Tuesday, January 24, 2006 5:06 PM CST

---

Just stopping in to say hi.
Tina & Lance <lancejrmommy@comcast.net>
- Friday, January 20, 2006 11:14 PM CST

---

Hi Jesse and Patty
Just stopping by to wish you a great weekend!
Big fat hugs and kisses for Jesse (you too Patty!)
Love,
Kim and Scotty
www.caringbridge.org/ca/friends
Kim <cottons@earthlink.net>
Modesto, CA - Friday, January 20, 2006 1:50 AM CST

---

Patty,

Thank you for the beautifully written account of Jesse. If love works miracles, you will see one with Jesse.

Love,

Cindy
Cindy <cynburns@comcast.net>
Towson, MD - Wednesday, January 18, 2006 8:08 AM CST

---

Just stopping by to let you know that I'm thinking of you!!! Glad to hear all is going well!
Jennifer Deskins <tylersmommy11304@yahoo.com>
- Tuesday, January 17, 2006 3:29 PM CST

---

I just popped by to check on you guys.

Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Sunday, January 15, 2006 11:17 PM CST

---

Hi Jesse and Patty, Sorry I have been so slow in checking in. With the hurricane and us moving...we have been loaded down. Things are getting easier now and it's time to check on my internet friends! I am so happy all is well and continuing in that direction. You have been in my thoughts and prayers! I smile when I read all about you Jesse. :-)
Hugs, Janelle (Alli's Nana)
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, January 15, 2006 8:37 PM CST

---

Thanks for the hug!!!!!!!!!!!!!!!!!
www.caringbridge.com/ma/abigail
- Sunday, January 15, 2006 5:13 PM CST

---

HI GUYS, JUST STOPPING BY TO SHOW SOME LOVE TO JESSE AND YOU TOO PATTY!!!! REILENE AND NIKK SEND THEIR LOVE!!
GABBI RIVAS <JACALERA@SBCGLOBAL.NET>
SOUTH EL MONTE , CA USA - Thursday, January 12, 2006 11:25 PM CST

---

Jesse
That is great news about your hearing improvement. We hope you are enjoying your new Winnie the Pooh room.
Hugs Lauren
carrie reed <Brian@blreed.com>
Queen creek, az USA - Thursday, January 12, 2006 1:40 PM CST

---

Wishing you and your whole family a happy new year. Make the most of every moment and smile at your precious family. Give big kisses and hugs from us.
www.caringbridge.com/ma/abigail
- Tuesday, January 10, 2006 6:24 AM CST

---

Patty, you are doing a wonderful job with Jesse .. and he is so handsome! We wonder "why Jesse?" -- "why Mackenzie?" - and all the other children ..but look at the difference so many of you MPS parents are making in the MPS world...parents like you are needed to help "push" for a cure....all the best to you and Jesse in 2006.
Becky Clarke (Mackenzie's Grandmom) <vabeckyclarke@wmconnect.com>
Newport News, VA USA - Monday, January 9, 2006 5:43 PM CST

---

Hi Patti & Jesse, just want to wish you all a very happy new year! May 2006 be a very good one. Bigs hugs to Jesse, from me & Georgia xxxxx
Louise Lewis <starfish26@btinternet.com>
Chepstow, UK - Monday, January 9, 2006 4:32 PM CST

---

Hey Jesse and family! I hope that you had a very happy Christmas and New Year. I am so glad that you are enjoying your new room. Take care!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Friday, January 6, 2006 8:09 PM CST

---

Hey Patti,
Jesse looks really great. I love the new pictures. I hope you guys had a great Christmas and New Year. It sounds like it. I bet Jesse is really loving his room. Sounds neat! Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Thursday, January 5, 2006 1:19 PM CST

---

HAPPY, HAPPY NEW YEAR!!!!!
From the Longstons located in the frozen tundra!

God Bless you all in 2006!

www.caringbridge.org/visit/rachel
Andrea - Mother of Rachel (MPS IIIB) <allongston@sbcglobal.net>
Green Bay, wi - Tuesday, January 3, 2006 4:07 PM CST

---

Hi Jesse,
I hope that you and your family had a wonderful Christmas and New Year!
Let's hope that 2006 is a great year for you all.
You are always in our thoughts and prayers!
HUGS,
Lisa and Kari
Kari's Page <Lisa@iamtheshoe.com>
Langley AFB, VA - Monday, January 2, 2006 7:59 AM CST

---

hello Jesse and family
wishing you a wonderful new year and love the description of you new room , hoping that it all works out well for you , I am a friend of Collin s , my name is Maria and my sons name is Sammy-Joe , we are from Australia , come and visit us on our webpage whenever you can
http://www.caringbridge.org/ok/sammyjoe
http://www.vp-it.com.au/sammyjoe/
Maria Liistro <sammyjo2@bigpond.com.au>
craigieburn ,Melbourne, Vic Australia - Monday, January 2, 2006 5:09 AM CST

---

Happy New Year!

Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Monday, January 2, 2006 0:36 AM CST

---

Happy New Year. I hope this is a great year. I love Jesse's picture on Santa's lap. I am glad to hear you love your new room Winnie the Pooh and friends are Andrew's favorite. Hugs to everyone.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Sunday, January 1, 2006 10:07 PM CST

---

Thank you for coming by and visitng Tabitha's page! It is great t o make new friends! We pray that 2006 will be a wonderful year for you! Be back again soon!

~TABBY'S PAGE~

Karen & Tabby <karenpuddn@comcast.net>
- Sunday, January 1, 2006 5:48 PM CST

---

Hi Patty and Jesse,

Jesse your new room sounds so neat it sounds like you have a ton of fun playing in it.

Happy new year guys all the best in 2006

Love
Ashlee


PS I got your card with Jesse's picture in it thanks.
www.caringbridge.org/canada/ashlee
Ashlee Dagenais <mwccamper@yahoo.ca>
north bay, ON canada - Sunday, January 1, 2006 3:40 PM CST

---

hey you guys were just in AZ, thats where Hailee lives....
His new room sounds wonderful..
hoping you have a wonderful new years..
thanks for visiting us.
melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@Cox.net>
caveCreek, az usa - Sunday, January 1, 2006 1:47 PM CST

---

Happy New Year, may 2006 be a good year.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Sunday, January 1, 2006 7:21 AM CST

---

Jesse's room sounds wonderful!!!

HAPPY NEW YEAR!!
Sheila and Shelby George <sjgeorge1013@cox.net>
Edmond, OK USA - Saturday, December 31, 2005 7:11 PM CST

---

HAPPY NEW YEAR!! WISHING YOU THE BEST FOR 2006!!

ANDREW'S WORLD

Colin, Paulina, Alex and Andrew Jump MPS III B <caljump@msn.com>
Sparta, Ky USA - Saturday, December 31, 2005 10:19 AM CST

---

I hope this year bring lots of joy and happiness for your family.
 

BEG GIRLS



Tayyaba Beg <Tayyaba@helpourgirls.com>
NJ - Saturday, December 31, 2005 2:55 AM CST

---

HAPPY NEW YEAR!!!
Jenn Deskins
- Saturday, December 31, 2005 0:59 AM CST

---

JUST WANTED TO SAY HI AND HOPE THE NEW YEAR BRING GOOD HEALTH TO ALL OUR KIDS.LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
TOSHA VANHOOK <SFROBERTS@HOTMAIL.COM>
BLOOMINGTON, ILLINOIS USA - Friday, December 30, 2005 4:01 PM CST

---

Merry Christmas
www.caringbridge.com/ma/abigail
- Sunday, December 25, 2005 1:25 PM CST

---

MERRY CHRISTMAS!
Jennifer Deskins
- Saturday, December 24, 2005 9:10 PM CST

---

I'm so excited to read that Jesse's room is finished and he is sleeping in it! I bet you did an awesome job Patty!
Merry Christmas
Love,
Kim and Scotty
Kim & Scotty <cottons@earthlink.net>
Modesto, ca 95358 - Saturday, December 24, 2005 5:20 AM CST

---

Hello Jesse and Patty-
Sorry I haven't written in so long- you are still in my thoughts and prayers and I wish you a most awesome Christmas- May the Lord bless and keep you and strengthen you and give you incredible joy-
Love from SC,
Jenn Sprouse
Jenn Sprouse <jtsprouse@bellsouth.net>
Pauline , SC - Tuesday, December 20, 2005 9:11 PM CST

---

Happy Holidays! I'm glad Jesse is enjoying his new room as it comes together!
Robin and Logan Piefer <robin.h.piefer@verizon.net>
Springfield, PA - Monday, December 19, 2005 7:46 PM CST

---

I love the Photo with Santa! It's great!
Hope you have a Merry Christmas

Love,
Kim and Scotty
Kim Whitecotton (Mom to Scotty MPS II) www.caringbridge.org/ca/friends <cottons@earthlink.net>
- Sunday, December 18, 2005 3:01 PM CST

---

Just stopped by to wish you guys a very Merry Christmas.

Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Wednesday, December 14, 2005 11:31 AM CST

---

Just stopping by to check all is OK ! love Jesse's pic with Santa and glad he is enjoying his new bedroom-Will has a new room done too! Hugs Laura (mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Monday, December 12, 2005 4:40 PM CST

---

Patty,
Hey - don't fall out!!! I know it's been forever since I've checked in...sorry! I do think of you guys often but just too lazy or busy to check in. Take care and I'm so glad to hear Jesse is doing well. Give him a hug from us and I hope everyone has a great Christmas!
Mom to Madison (MPSIIIA)
Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Monday, December 12, 2005 11:40 AM CST

---

THANKS FOR THE LATEST REPORT ON YOUR TRIP AND JESSE. IT SOUNDS LIKE YOU HAD A WONDERFUL TIME IN ARIZONA AND ON THE PLANE TRIP. I HOPE THAT EVERYONE HAD A NICE THANKSGIVING AND A MERRY CHRISTMAS TO EVERYONE.
CLARENCE BURKHOLDER <POSUPSNOOP@ NETZERO.NET>
LYNCHBURG, VA USA - Sunday, November 27, 2005 7:01 PM CST

---

We hope you have a great Thanksgiving. It looks like you had a lot of fun at the conference. Hugs from Lauren
Carrie Reed <brian@blreed.com>
Gilbert , Az USA - Thursday, November 24, 2005 5:12 PM CST

---

HAPPY THANKSGIVING!!

ANDREW'S WORLD

Paulina and Andrew Jump MPS III B <caljump@msn.com>
Sparta, Ky USA - Thursday, November 24, 2005 7:08 AM CST

---

Thanks for sharing. I admire all you do. You are truly a superwoman. May God bless you and your family.
Melody Baker <Rescue4paws@aol.com>
Parkton, MD USA - Thursday, November 24, 2005 4:39 AM CST

---

Happy Thanksgiving!!!

www.caringbridge.org/visit/katelynvanghle
Andrea Van Ghle <andrea_vanghle@yahoo.com>
- Wednesday, November 23, 2005 11:21 PM CST

---

HAPPY THANKSGIVING!!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
- Wednesday, November 23, 2005 11:21 PM CST

---

Hey handsome
I just popped by to check on you,that bike is so cool.
Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Wednesday, November 16, 2005 1:14 AM CST

---

Hi Patty and Jesse...it was so nice to meet you guys in AZ!!! Hope to see you again in KY next summer!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
- Wednesday, November 16, 2005 1:02 AM CST

---

Great to talk with you Patty the other day. Thank you for your insight into Genstein. We're looking into it for Elisa. Hope your time at the conference is wonderful. We'll be praying for you all.
Love the Linton family in Toronto, Canada
Elisabeth Linton <elisabeth@alifeforelisa.org>
TOronto, Ontario Canada - Friday, November 11, 2005 1:49 PM CST

---

Just wanted to let you know that I will be thinking of you this week as you travel to the MPS conference. Have a great time!! I hope our family will be able to go next year. Take lots of pictures to post on your site.
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Sunday, November 6, 2005 1:51 PM CST

---

Hi Jesse!

I liked hearing you play the drums yesterday, you rock!




Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, November 6, 2005 1:27 PM CST

---

Hey Jesse and family! Just dropping by to check on you. I hope that you have a safe journey out to the conference and that Jesse is able to withstand the long flight. Hopefully, next year we can all make it to the conference. It has been a very eventful past 6 months for our family! Mom and I were talking last night about how much we would love to meet Jesse. Well, have a safe trip and have fun at the conference!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Saturday, November 5, 2005 9:56 AM CST

---

Happy Halloween Patty and Jesse. Jesse looks so good in the pictures. I hope my Izzy is doing that well at his age. Jesse is so lucky to have a mom like you always trying find ways to keep him healthy. Thanks for stopping by our site so often! Have a spooktacular night!
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC USA - Monday, October 31, 2005 10:54 AM CST

---

HAPPY HALLOWEEN!!!!!
Jenn and Tyler Deskins
- Monday, October 31, 2005 1:13 AM CST

---

Hi just stopping by to check on you all! Hugs Laura (Mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, October 27, 2005 3:55 PM CDT

---

Hi: Jesse and Patty Lou. Just got your address and looked at your pictures. Glad you are doing good and hope for your continued improvement. God bless you Love Counsin Leland Bacon
Leland Bacon III <lbacon@lynchburg.com>
Lynchburg, Va USA - Sunday, October 23, 2005 5:43 PM CDT

---

Hi Jesse and Patty
Just came by to check on you guys,I hope
all is going wonderfully! May GOD Bless!
Shannon Mommy to www.caringbridge.org/nc/jesseman <dsjf1201@yahoo.com>
Green Mtn., NC USA - Wednesday, October 19, 2005 2:25 PM CDT

---

I just LOVE those pictures Hugs Laura (Mum to Willmps2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Tuesday, October 18, 2005 3:53 PM CDT

---

Just wanted to stop by and check in on Jesse and family. I love the picture of him on the couch-he was wiped out from the big day! Hope you have a good week!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Tuesday, October 18, 2005 8:50 AM CDT

---

Hi Patty & Jessie: It was good to read your latest progress report on Jesse. It sounds like the genistein use is encouraging. I guess the wedding was exciting for all of you. I liked the pictures and tell your mom she looked real good too. Jesse really looked cute in his tux, I guess he was the talk of the ceremony. Thanks for keeping us informed on Jesse's progress. Bye, uncle Clarence
clarence burkholder <posupsnoop@netzero.net>
lynchburg, va usa - Friday, October 14, 2005 7:25 PM CDT

---

Hey Patty and Jesse,

Just wanted to stop by and check on you. Jesse it sounds like you are going to have a pretty cool new bedroom. Have fun at the marathon
Ashlee <mwccamper@yahoo.ca>
North Bay, Ontario Canada - Thursday, October 13, 2005 8:51 PM CDT

---

Jesse, how handsome you looked at your brother's wedding! I know it must have been lots of fun for all of you. I really loved the after the wedding pictures. We had a wedding in December, and I needed to crash on the sofa afterwards too! I hope you are all rested from the big event. Cathy (Izzy's Gandy)
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Thursday, October 13, 2005 5:41 PM CDT

---

Jesse
I just wanted to stop by and say Hi!
Shannon Mommy to www.caringbridge.org/nc/jesseman <dsjf1201@yahoo.com>
Green Mtn., NC USA - Thursday, October 13, 2005 3:25 PM CDT

---

Just finished looking at wedding pictures, among some of the others. Jesse is so cute and handsome in his tux. Looks like it was a beautiful wedding and everyone was having a great time. Hope all is well. Take care.
Anita <ataulton@adelphia.net>
Jefferson, MD USA - Wednesday, October 12, 2005 7:57 PM CDT

---

I just got done looking through all your photos from the wedding! They are beautiful!!! Everyone looked like they had a wonderful time!!
Hope everything is still going great for Jesse!
Jennifer Deskins <tylersmommy11304@yahoo.com>
www.caringbridge.org/ky/tylerdeskins, - Wednesday, October 12, 2005 0:15 AM CDT

---

Hi Patti,
The wedding Pics are beautiful. Love them. Jesse looks so handsome. Hope all is well. Still no news from Hopkins about test #2 will keep you posted. I owe you a phone call. I promise this week.

Kathleen
Kathleen Hilferty <twins82000@aol.com>
Chadds Ford, pa - Monday, October 10, 2005 4:40 PM CDT

---

Jesse you look sooooo handsome in that tux!
Glad to hear everything went well.

Shannon Fox Mommy to caringbridge.org/nc/jesseman <dsjf1201@yahoo.com>
Green Mtn., NC - Friday, October 7, 2005 1:42 PM CDT

---

Jesse you look so handsome in your tux. The wedding looks like it was beautiful. We hope you are all doing well.
Hugs from Lauren
CArrie Reed <brian@blreed.com>
Gilbert, Az USA - Thursday, October 6, 2005 6:41 PM CDT

---

Wow Jesse-you look so handsome in your tux! Glad to hear the wedding was a success. Can't wait to see more pictures. Have a great week!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Tuesday, October 4, 2005 9:20 AM CDT

---

You look so handsome Jesse! Stephen and Erin look like a beautiful couple ! Sorry Patty and Jack can't really see you guys to good I'll check back later.Soo.. gald all had a great time and a perfect wedding!
Sheryl & Family
Westville, NJ usa - Monday, October 3, 2005 8:09 PM CDT

---

Hi Patty and Jesse
I was just wondering how the wedding went?
I hope all is well!
Shannon Fox Mommy to caringbridge.org/nc/jesseman <dsjf1201@yahoo.com>
Green Mtn., NC USA - Monday, October 3, 2005 1:42 PM CDT

---

Hi Patty, although I don't have the means to put cute pictures in your guest book, just wanted to say I was so glad to hear how the day went yesterday for Stephen and Erin and that you all had a great time. I'm sure it will stay in your memory for ever. Bless them both and I bet Jesse is excited about getting the new room!
Elizabeth Schüpbach <peschuepbach@freesurf.ch>
Bern, Switzerland - Sunday, October 2, 2005 5:01 AM CDT

---

Today is the big day! Call me when you have time, eat a piece of cake for me and I can't wait to see Jesse in his tux!




Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, October 1, 2005 9:49 AM CDT

---

Just wanted to let you know that I'm thinking about you guys! Good luck with the big wedding tomorrow!! Can't wait to see the pictures!!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
www.caringbridge.org/ky/tylerdeskins, - Friday, September 30, 2005 10:21 PM CDT

---

Hey guys I hope you have an amazing weekend!!!
Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Thursday, September 29, 2005 11:24 AM CDT

---

Hello Jesse ! Is good to hear you are doing awesome at school, continue your hard work. I know Mom and Dad are really proud of you....
Love You and god Bless You!
Carmen Jurado Paez <cjpaez@hotmail.com>
Weston, Fla. USA - Wednesday, September 28, 2005 5:01 PM CDT

---

Hi Jesse! Just stopping by to check in on you. Have fun at the wedding this weekend.
Love ya,
Kris & Kraiggy
Kris Klenke <kklenke@madisontelco.com * * * www.caringbridge.org/il/kraig/ * * *>
Worden, IL - Wednesday, September 28, 2005 7:29 AM CDT

---

Just stoped in to say Hi!
I hope you have fun at the
wedding this weekend!
Try not to cry to much Mom!
Shannon Fox Mom to caringbridge.org/nc/jesseman <dsjf1201@yahoo.com>
Green Mtn., NC USA - Tuesday, September 27, 2005 10:22 AM CDT

---

I am glad to read about school going so well. Being a retired teacher I just love to hear about the good teaching being done out there! All kids need to feel safe and have a good time learning.

Hugs, Janelle (Alli's Nana)
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, September 27, 2005 6:10 AM CDT

---

Just stopping by to say HIIIII!!!!!!!
alyssa (forum) <sabiemc@aol.com>
orlando, fl usa - Monday, September 26, 2005 9:11 PM CDT

---

Hi Jesse,
I am glad you are having so much fun in school. I love the pictures! You are in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Sunday, September 25, 2005 2:49 AM CDT

---

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, September 23, 2005 1:57 PM CDT

---

Thank you so much for droping by and
singing Jesse's page. Sounds like
things are going well, I hope that
continues.
Shannon Fox Mom to caringbridge.org/nc/jesseman <dsjf1201@yahoo.com>
Green Mtn., NC USA - Wednesday, September 21, 2005 8:37 AM CDT

---

Hi guys
It sounds like Jesse is liking school,McKayla is finally liking it as well which is nice.Just popped by to check on you guys.Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Wednesday, September 21, 2005 0:27 AM CDT

---

Hi Patty and Jesse -Glad things are going well at the moment! Thinking of you love Laura (Mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Saturday, September 17, 2005 4:08 PM CDT

---

Hey Patty and Jesse,

I'm glad that the transportation issue is solved :)

Have a great rest of the week

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, ON Canada - Thursday, September 15, 2005 9:43 AM CDT

---

Thinking about you
Gephph <jeffpetz@cox.net>
Phoenix, Az. U.S.A. - Thursday, September 15, 2005 7:22 AM CDT

---

Hey Jesse! Just checking in on you. Glad to hear the transportation issue has been dealt with. Hope you all have a good week!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Wednesday, September 14, 2005 8:46 PM CDT

---

Love from Isabel Jurado
Isabel Jurado - www.helpisabel.com <isabel@helpisabel.com>
Rock Hill, SC 29732 - Monday, September 12, 2005 1:47 PM CDT

---

Hi Patty and Jesse,

I know all about school transportation issues last year they said they could not put my chair in the van so Mom got a little mad. It's alright now because I have switched schools and the have an elevator which is great. I also take a wheelchair accessible van which is also a plus.

www.caringbridge.org/canada/ashlee
Ashlee <cp_wiggle87@hotmail.com>
North Bay, ON Canada - Saturday, September 10, 2005 6:54 PM CDT

---

I am glad to hear Jesse is doing so well.
Tina & Lance <lancejrmommy@comcast.net>
- Monday, September 5, 2005 1:29 PM CDT

---

hi..just thought id pop by and say hello and to say i hope you are well..love Terri and Blaise.xx
Terri Rayner <terri.rayner1@ntlworld.com>
Manchester, United Kingdom - Sunday, September 4, 2005 3:43 AM CDT

---

Patty and Jesse-
Hello from SC- Sending much love and hugs and prayers your way- so glad Jesse is doing so well, hope you have a great time at school Jesse.........
May the Lord God Almighty be with you always and heal you, strengthen you and fill you with joy!!!!!! Love, Jennifer
Jenn Sprouse <jtsprouse@bellsouth.net>
Pauline, SC - Saturday, September 3, 2005 9:09 PM CDT

---

Jesse
We are so proud of you and all the progress you have made. Keep up the good work. It sounds like you are keeping your Mom busy. We are praying for you and your family.
Hugs from Lauren to Jesse
Carrie Reed <brian@blreed.com>
Gilbert, Az USA - Thursday, September 1, 2005 6:13 PM CDT

---

Hi Jesse,

I hope you have a great first week at school. I don't start grade 12 untill the 6th of September so in 6 more days.

www.caringbridge.org/canada/ashlee
Ashlee <cp_wiggle87@hotmail.com>
North Bay, ON Canada - Tuesday, August 30, 2005 9:11 AM CDT

---

Just stopping to check on you this week. Hope Jesse had a good first day of school! Izzy is really enjoying school too. She likes to love on all of the children. I picked her up last week and she was so cute leaving with her pink bookbag! She can't wait for her baby brother to get home. Hope Jesse's first week back goes well.
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Monday, August 29, 2005 5:58 PM CDT

---

Justed wanted to say Hi.... we enjoyed all the pictures thanks for sharing..

http://www.caringbridge.org/az/hailee
melissa <angels4hailee@cox.net>
cavecreek, az usa - Saturday, August 27, 2005 6:09 PM CDT

---

Hey Patty and Jesse,

Glad things are going so well :)

www.caringbridge.org/canada/ashlee
Ashlee <cp_wiggle87@hotmail.com>
North Bay, ON Canada - Saturday, August 27, 2005 3:09 PM CDT

---

Hi! I just wanted to stop in and send a big "HELLO!" to you guys! I like that picture of Jesse on your index page! Have a great Saturday!
Leslie <Leslie42457@yahoo.com>
NC USA - Saturday, August 27, 2005 10:24 AM CDT

---

hi jesse and patty,
i am visiting his web sight because i am missing him alot.his picture in the water looks so handsome.i hope all is going well with the wedding. i will see you on monday,august 29. love,mrs.thomas

k.thomas <kaycoachbags@yahoo.com>
baltimore, md usa - Friday, August 26, 2005 6:25 AM CDT

---

patty.
Just want to let you know that you and Jesse are in my thoughts and prayers. It is so nice to read that Jesse is doing great. Hoping and praying for continous improvments.
((((((((((HUGS))))))))))))

ABEERA, KHANSA & ZAHRA
Tayyaba <tayyaba@helpourgirls.com>
NJ - Wednesday, August 24, 2005 2:10 AM CDT

---

Ciara and Hunter BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, August 23, 2005 7:13 PM CDT

---

Just stopping in to say hi.
Tina & Lance <lancejrmommy@comcast.net>
- Tuesday, August 23, 2005 2:26 PM CDT

---

Patty-
Just stopping buy to send Jesse some big HUGS from SC-
may God bless you, heal you and strenghten you daily!!
Jennifer
Jenn Sprouse <jtsprouse@bellsouth.net >
Pauline , SC - Tuesday, August 23, 2005 10:28 AM CDT

---

Just thought I would stop in to say "HI" and let you guys know that I'm thinking of you!! Glad to hear you are doing good!!!
Jennifer Deskins www.caringbridge.org/ky/tylerdeskins <tylersmommy11304@yahoo.com>
Georgetown, KY - Monday, August 22, 2005 10:50 PM CDT

---

Hi Patti -Thanks for sharing the pictures. The website is great. I have a new computor and e-mail so feel free to write anytime. Have a nice September ! ( where did the summer go ?)
Martha <mjean2323@msn.com>
Stoughton, Ma USA - Monday, August 22, 2005 8:13 PM CDT

---

Hey Jesse and family! Sounds like you are doing well. It will be nice for you to have your own big boy room! Good luck with your first day back to school. Izzie started school last week and is doing great. She even has her own bookbag and Leslie said she actually carried it on her back for a while. I think she knows shes a big girl now! Well, take care-have a great week!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Monday, August 22, 2005 5:10 PM CDT

---

Hello Jesse. Down here in florida we started school three weeks ago, and that kept me away from the internet for a while, but we have not forgot you or your family. You're always in our hearts and prayers. i am happy to hear that you are doing much better, lets pray for the summer to go away, so you can go outside and enjoy your go-Kart.
Carmen Jurado Paez <cjpaez@hotmail.com>
Weston, Fla. USA - Friday, August 19, 2005 7:43 PM CDT

---

Just checking in to say hello. I am so happy that you are doing well, Jesse. Hope the weather will cool down soon so you can get out and really enjoy your go cart. I love your pictures.
Cathy Abernathy <cabernat@chestertel.com>
Chester, SC USA - Friday, August 19, 2005 11:43 AM CDT

---

Just popped in to see how things were going!
Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Thursday, August 18, 2005 11:44 AM CDT

---

It was lovely to here from you and I am pleased jesse is doing well. Take care of each other.
regards
Heather from the forum <the-7th-house@ntlworld.com>
Hartlepool, England - Thursday, August 18, 2005 8:27 AM CDT

---

Hey Jesse! I love the picture of you chasing the goat-looks like you were about to get him! Glad to hear you are doing well. I continue to pray for you daily. Lots of love!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Monday, August 8, 2005 12:52 AM CDT

---

Hi Jesse and Patty,

Thanks for the picture Jesse what a sweetheart :)

I don't think the camp Im going to has hay rides but they do have kayaking and stuff like that.

www.caringbridge.org/canada/ashlee

Ashlee <mwccamper@yahoo.ca>
North bay, ON Canada - Sunday, August 7, 2005 7:33 PM CDT

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Hi Jesse,

I'm gald you are doing so well :)

I will pray that your Heart stays in tip top shape :0)

Hugs from Ontario
Ashlee


www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, ON canada - Saturday, August 6, 2005 9:41 AM CDT

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Just read your update, you are doing a wonderful job not only for your son for the future kids and Parents of MPS.
Thanks for sharing your struggles, joys, and goals with us.

Kathleen (liams Mom)
Kathleen <twins82000@aol.com>
Chadds Ford, PA USA - Saturday, August 6, 2005 7:53 AM CDT

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Just wanted to say "hi"...I always read your journal...I'm sure many parents learn from your comments....you work so hard with Jesse and it's great that you can take the time to share the things you are trying...you are doing a terrific job!
Becky Clarke <vabeckyclarke@wmconnect.com>
Newport News, VA USA - Friday, August 5, 2005 7:03 PM CDT

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Jesse is so cute. He always makes me smile. We will have to get together again.
Tina & Lance <lancejrmommy@comcast.net>
- Friday, August 5, 2005 9:30 AM CDT

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Just popped by to see how things were going,love that smile!
Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Friday, August 5, 2005 1:27 AM CDT

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Hi Jesse-I am so glad you are doing so well. We cannot wait to see you again.
Tina & Lance <lancejrmommy@comcast.net>
- Saturday, July 30, 2005 10:16 PM CDT

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Hi Patty and Jesse,

got your email I'm glad your doing so well Jesse

Hugs from Ontario
Ashlee
Ashlee <mwccamper@yahoo.ca>
- Friday, July 29, 2005 12:11 AM CDT

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Thank You for the info on the new treatment - I am trying to find out for my grandson who also has MPSIII some info for the problems he is exper. now. Found the MPS forum yesterday - posted some of his issues & hopefully will get some feed back from others so it can be shared with his Drs. to try to remidy as much as poss. Can you possibyly send me some info. on this treatment?
Any & all would be appreciated!!!
I hope all continues to go well for your son.
Thank You
Kelli Neal <kellineal785@hotmail.com>
Wichita, Ks USA - Friday, July 29, 2005 7:59 AM CDT

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Hi Jesse,

You made me laugh today when I was talking to your mommy on the phone. You are a silly, silly little boy!

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S SOY JOURNAL <mps3mom@hotmail.com>
Ione, CA USA - Tuesday, July 26, 2005 9:42 PM CDT

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Jesse and Patty and family-
A big GOD BLESS YOU and a big HUG!!!!!
May Jesus continue to heal and strengthen-
May your finances be blessed so you can accomplish what you need to!!!
May God increase your faith and hope-
In the name of Jesus, may your prayers be answered!!!!
Love,
Jennifer Sprouse
Jenn Sprouse <jtsprouse@bellsouth.net>
Pauline , SC - Tuesday, July 26, 2005 9:29 AM CDT

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Hey Jesse and family! Just checking in on you. Keeping you in my prayers every day.
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Monday, July 25, 2005 8:14 PM CDT

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Patty-
You don't know me but I found your sons website visiting another- I just wanted to let you know how awesome your entry was and how amazing your faith is. I am a Christian and completely believe everything you said about God not putting that disease on your child and that joy comes from the Lord, so many needed to hear that- you are an amazing woman- my prayers are with you and your family.

I shared your website and your entry with a friend of mine who has really struggled with a disease her child is facing and I know it will bless her-

Anyway, Thanks for being a light in a dark world and much love from South Carolina-
Jennifer Sprouse <jtsprouse@bellsouth.net>
Pauline , SC - Wednesday, July 20, 2005 5:41 PM CDT

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Hi-
My name is Melissa. I am a college student and knew nothing of the disease your son suffers from until today. It saddens me that these children have to go through this, but God wouldn't have made it happen if there wasn't a reason. I found Isabel's website on www.erskinepictures.com and that's how I found Jesse. I just want you to know that he is in my thoughts and so is your family. The strength that you must have as his mother is remarkable. God sees your strength and will only give you as much as you can handle. I am sure you know this already, but I just wanted to tell you that. My best wishes are with your family, and especially Jesse. I hope he surpasses all expectations and I know with the strength that you show, that he will be brought up to fight through it all. Thank you for showing such courage, especially to people like me, who know nothing of the struggles you must go through. It makes me realize that i should too be cherishing my life and my loved ones. Thank you for that.
Melissa
- Wednesday, July 20, 2005 1:02 PM CDT

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Just checking in on Jesse. I hope you all are having a good week. Izzy is doing great. Mom and I kept her this weekend and she was so happy-even slept most of the nights that we had her!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Tuesday, July 19, 2005 1:07 PM CDT

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Hello to Jesse and family. You don't know me but my 1yr old daughter was diagnosed with a genetic disease that was fatal befor the age of 3 and with a stem-cell transplant things are going well. Its only been 4 1/2 months post but she was missing an enzyme that breaks down fat in her liver and in her case her brain. She is producing the enzyme now and we won't know if it is getting to her brain yet but she is making small milestones and the power of prayer from so many friends and family is just amazing. I hope things continue to look brighter each day. Our prayers are with your family. Best of luck with this new drug. God Bless! Here's our website...www.babyjessica.net
Julie <julie@babyjessica.net>
Chicago, IL - Monday, July 18, 2005 10:11 AM CDT

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Hello Patty, I am really happy reading such good news on Jesse. May God bless him and we'll continue praying for all of you. And for a soon cure for MPS.
Carmen Jurado Paez <cjpaez@hotmail.com>
Weston, Fla. USA - Sunday, July 17, 2005 4:41 PM CDT

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Dear Patty and sweet Jesse,How exciting to read in your journal how well you are doing,keep up the good work Jesse(and you too Mom)I know Jesse was placed in your hands by the Lord for a reason,you are such and inspiration to every family not just those who are living with MPS;but all us families coping and dealing with cancer,ect.I look forward to your sharing of scripture and I am thankful that you have a partnership with the Lord,and draw strength from Him,and guidance in Jesse's eveyday care.I am so exciting at how well Jesse is doing(i peek in on him everyday,and pray for you all)Give Him a Hug and Kiss and tell him He doesn't know how much he is loved and care about by people who haven't had the priveledge of meeting him.I can't wait to hear more good news you share.Enjoy the weekend.Love and prayers from a friend in New England
Sharon Ripley (yup Ripley's believe it or not)! <sunokieo@aol.com>
Billerica, Ma 01821 - Saturday, July 16, 2005 11:31 PM CDT

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Dear Patty and Jesse,
I really look forward to hearing about the progress each week. It is so encouraging for all us MPS families. Our little Tess turns 6 tomorrow, and she is having such a difficult time right now. We have never had the time to make a web page for her, and now I wish I had, as we need need any and all support and prayers. I think about you and your family so often and keep you in our prayers, and keep up the great work Jesse!!!
John and Nan Beachem <nascar1@zbzoom.net>
Portersville, PA US - Saturday, July 16, 2005 2:11 PM CDT

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Patty, I so like the sound of how things are going with Jesse. How really, really exciting! My thoughts and prayers are with you.

Janelle (Alli's Nana)
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, July 16, 2005 3:56 AM CDT

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I am so happy you are seeing improvement with Jesse! I hope that his progress continues. Leslie and Jimmy are still trying to make the decision on transplant for Izzy. We are praying that God will lead us in the right direction. Much love and prayers.
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Wednesday, July 13, 2005 10:28 AM CDT

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Hey Pete! I went home for a visit this past weekend and Dad told me about Jesse's new treatment and progress. Hope all continues to go well and I have bookmarked your website so I can check back often.
Tim Burkholder <cowtales2@aol.com>
Asheville, NC USA - Monday, July 11, 2005 11:32 AM CDT

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Jesse, I wish you much luck with the soy. Thanks Patti for all your support of Isabel and the other MPS children. I am Leslie's aunt. You are certainly an inspiration to all.
Nita Porter <jporter@rock-hill.k12.sc.us>
Rock Hill, SC York - Sunday, July 10, 2005 11:34 PM CDT

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Tina & Lance <lneonkia@comcast.net>
- Sunday, July 10, 2005 11:21 PM CDT

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Hey Jesse and family! Just checking in on you-hope you had a good weekend!
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Sunday, July 10, 2005 8:16 PM CDT

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Hi Jesse,

I just had to stop by and leave you with this little guy,he reminds me of you!



Alicia , John, Ciara, Hunter & ^^Angel^^ Tommy <mps3mom@hotmail.com>
- Sunday, July 10, 2005 5:51 PM CDT

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Dear Patty,I came across your beautiful son Jesse's webpage thru The Bennett childrens page(i check on those angel babes everyday,and wanted you to know i will be checking on your little handsome guy,I am so Happy to hear about this soy study and that you are seeing great results.The Lord blessed you with your son and it is awe inspiring to hear you have put your faith,hope and trust in the Lord and not blame him,your son Jesse is a blessing to everyone who comes in contact with him,he is being used of the Lord even at his young age.My prayers are with you and your family each day to endure whatever challenge for that day lays before you.I look forward to hearing of each new milestone and accomplishment that Jesse makes(look forward to more of that charming smiling face of his.Tell him he added another secret admirer to his guestbook.Patty you are a source of inspiration to many other families out there who have a special journey to endure while here on this earth,what joy when we all get to heaven to know that these earthly bodies will be perfect one day!Keep the faith and know many people have you,Jesse and your family upheld in prayer daily.God bless.
Sharon Ripley ( yep Ripley's believe it or not!) <sunokieo@aol.com>
Billerica, Ma United States - Saturday, July 9, 2005 5:58 PM CDT

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He sure is a cute little guy. Looking better all the time. Gretchen & I hope Jesse continues to do well and we'll keep him in our prayers.
Chris
- Friday, July 8, 2005 11:29 PM CDT

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Hi! I am Izzy's grandmother (Gandy, she calls me). Just wanted you to know that I check on Jesse each day when I check Izzy's site. Thank you for being such a fighter for MPS children and for being an inspiration to their parents. Sounds like the soy is helping Jesse, and we are hoping that Isabel will benefit as well. Your family will continue to be in our prayers.



Cathy Abernathy <cabernat@chestertel.com>
Rock Hill, SC USA - Friday, July 8, 2005 9:53 PM CDT

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A really great picture of Jesse on my issue of "Courage" that arrived today -- also your July 4th Journal entry was very good....not only are the MPS children very special , I have noticed they all seem to have very special parents .. parents that will make a difference in the world of MPS.
(God knows what he is doing!)

Becky Clarke (Mackenzie's Grandmom) <vabeckyclarke@wmconnect.com>
Newport News, VA USA - Friday, July 8, 2005 7:01 PM CDT

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I read about Jesse on Isabel Juardo's page. God Bless all the strong and wonderful parents in the world today who are always there for there children and do not ever give up. Thoughts and Prayers!!!
Brandi Comer <brandi.comer@comporium.com>
York, SC - Friday, July 8, 2005 4:39 PM CDT

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Just dropped by to say Hi and read up on how Jesse was doing. Everything soudns great!! Hugs,
Sheila George <sjgeorge@sbcglobal.net>
Spring, TX USA - Friday, July 8, 2005 8:51 AM CDT

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Hi Jesse, I went to college with Leslie and Jimmy, Isabel Jurado's parents. I also live in Maryland and hope you are enjoying the summer. I live in Southern Maryland but like to go to the Inner Harbour in Baltimore whenever I can. You and your family are in our thoughts and prayers. God Bless!
Mindy & Rafael <mjauregui16@yahoo.com>
Waldorf, md USA - Thursday, July 7, 2005 8:43 PM CDT

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Great pics..Thinking of Jesse! Hugs..
Amy and Nicholas <mom2lilnick@alltel.net>
- Thursday, July 7, 2005 5:25 PM CDT

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Holding you and your precious Jesse in our prayers.
Merce <anmb@earthlink.net>
Granada Hills, ca usa - Thursday, July 7, 2005 9:44 AM CDT

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Thank you for your journal entry. I read it twice-very reassuring. Hope you and Jesse are having a good day.
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Thursday, July 7, 2005 9:27 AM CDT

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Hi Jesse,

It sounds like you had a great time at the pool today!




Alicia , John, Ciara, Hunter & ^^Angel^^ Tommy Bennett Children's Journal <Lumberhead@twinwolf.net>
- Thursday, July 7, 2005 2:28 AM CDT

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Dear Jesse,
Very happy to hear of your improvements with the soy. Hope there are many more to come.



Jimmy Jurado - www.caringbridge.org/sc/isabel <jaime.jurado@everlightusa.com>
Rock Hill, SC 29732 - Wednesday, July 6, 2005 12:34 AM CDT

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Patty, Great Journal Entry - very inspirational!
We see Dr. Muenzer today for Madison's annual check-up. I plan to ask what his feelings are with Geinstein because Wayne and I want to start Madison soon. Anyway - hang tight and I'll check back in later!
Paige

Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Wednesday, July 6, 2005 9:00 AM CDT

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Thank you for sharing the info about your son Jesse and your inspirational words.
Sharon Browne <sharon.browne@gmail.com, sharon.browne@ocsarts.net>
Los Alamitos, ca usa - Wednesday, July 6, 2005 0:56 AM CDT

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Hello Jesse, Patty and Family. I hope you guys are enjoying a wonderful 4th of July. I will love to read your documentation regarding the SOY. May God bless you all. Jesse and Family you continue in our prayers next to all those kids with MPS and my niece Isabel. Love U !
Carmen J. Paez <cjpaez@hotmail.com>
Weston, Fla USA - Monday, July 4, 2005 12:03 AM CDT

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Hi Patty and Jesse
Good luck with the trial. Glad to hear that so far so good :) I'll keep checking for updates!

Willow and Isaiah <layne199@surfbest.net>
Baltimore, MD - Sunday, July 3, 2005 7:54 PM CDT

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Hey Jesse and Patty,

Thanks for signing my guest book I just wanted to let you know that I think about you guys everyday.

Hugs from Ontario
Ashlee

www.caringbridge.org/canada/ashlee
Ashlee Dagenais <mwccamper@yahoo.ca>
North Bay, ON Canada - Sunday, July 3, 2005 9:07 AM CDT

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Tina & Lance <lneonkia@comcast.net>
- Saturday, July 2, 2005 6:47 PM CDT

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I hope you all have a fantastic 4th of July!!!



Alicia , Ciara, Hunter & ^^Angel^^ Tommy Bennett Children's Journal <Lumberhead@twinwolf.net>
- Saturday, July 2, 2005 6:31 PM CDT

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I just finished reading the 1 & 2 week reports on the gensitein program you have Jesse on. It sounds like you are seeing some real improvements and I can't help but feel excited for you. I visit Jesse's website often and enjoy the occasional e-mail updates, keep 'em coming.
Have a great 4th of July.

Take care,
Paul
Paul Keys Jr. <signman615@hotmail.com>
Lynchburg, Va. - Saturday, July 2, 2005 7:30 AM CDT

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Happy 4th of JULY. Happy Thoughts heading your way!

Janelle (Alli's Nana)
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, June 30, 2005 8:50 PM CDT

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Hey Gang!!! I am still here in Ohio and I am still thinking of you guys. That's a great picture of Jesse on the slide. Thanks for sharing it with us. All will be fine!!!!
Daryl <doinfine2@aol.com>
Streetsboro, Ohio USA - Wednesday, June 29, 2005 4:21 PM CDT

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Happy 4th to the Taormino gang!

It has been a few years since I last saw Jesse - running around in the pavillion at the state fair as we waited out the rain for that ill-fated UJ concert.

I still appreciate the talks we shared, Patty. Your family shows the rest of of how to discover the best in us.

God bless you...............with lot's of love,

Cindy
Cynthea Burns
Towson, MD USA - Wednesday, June 29, 2005 3:16 PM CDT

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Sending some hugs out to Jesse!
Amy and Nicholas <mom2lilnick@alltel.net>
- Tuesday, June 28, 2005 10:16 PM CDT

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Patty, I get so excited when I read all about Jesse! Thx so much for informing us abou the new soy product. Great results!!

Hugs, Janelle (Alli's Nana)
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, June 28, 2005 6:38 PM CDT

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Hello, Jesse and Family. You don't know me, but I've read your journal from day one. What an awesome family and friends you all have. I am Carmen Jurado Paez, Aunt of Isabel Jurado, who also have MPS III. I will add Jesse to my prayings every day from now on. I think this kids with MPS III are in some way very special for me, since I learned about this disease through out my own niece. God Bless You.
Carmen J. Paez <cjpaez@hotmail.com>
Weston, Fla. USA - Tuesday, June 28, 2005 4:29 PM CDT

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Hi Jesse, Patty and Jack! Jesse, congrats on your medal at the Special Olympics! You should be very proud of yourself! I'm 26 years old and I've NEVER won a medal! Maybe I can look at your medal one day.

I'll bet you're happy that school's out for the summer. Now you can have some fun! I'm sure mom and dad have lots of fun stuff planned for you.

I see you're on a new treatment. Your mom and dad are very particular about what goes into your body, so I'm sure that this treatment is going to do wonders to help you feel beter.

Well, have a great summer and give your mom and dad a big hug and kiss from Ed and Ronda. I'll check in on you again soon!

(((HUGS)))

Ronda & Ed <Mercedes312@yahoo.com>
Centreville, MD United States - Tuesday, June 28, 2005 12:35 AM CDT

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I am Izzy's aunt. We are in the first phase of this horrible disorder. I have read about your Jesse before and he looks like such a sweet boy. This new therapy sounds hopeful. I pray that you will find success in it with Jesse. I am praying for Jesse as I am all the children. Maybe one day, Jesse can meet Izzy. They are our angels here on earth.
Love and prayer
Liz Hindson
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Tuesday, June 28, 2005 11:42 AM CDT

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Hi Guys,

It was nice to see your comment on Isabel's website. I am very close friends with Leslie and Jimmy Juardo. I had dinner with Jimmy last night and he told me about talking with you and the great success your having with the soy product. I am very excited to hear that. Your son is beautiful. God Bless You.
Dana Smith <SMITTY081274@YAHOO.COM>
Rock Hill, sc usa - Tuesday, June 28, 2005 10:45 AM CDT

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Hey Pete, Jack, Stephen and Jesse,
Heard about the new treatment from your mom yesterday. We sure are hoping it helps. We will be thinking about you. Will check back later on the progress.
Lee, Sheryl and Jared Burkholder <blazedogofglory@netzero.net>
Lynchburg, Va USA - Monday, June 27, 2005 6:43 PM CDT

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Wow sounds like some pretty good things are happening,I just thought I would drop by and check on you guys,I hope you have a great week.
Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Monday, June 27, 2005 10:37 AM CDT

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Patty,

Enjoyed our chat last week. Paige made it back home from her meeting. Keep me posted on the Soy project. We are considering it as well.

Take care
Wayne
Wayne Lewis <wlewis@inteltech.com>
Middlesex, NC - Monday, June 27, 2005 9:52 AM CDT

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Hello Pete and Jesse. I got the latest news from your mom this morning and I hope that the soy treatment will be succesfull for Jesse. Good luck
Clarence Burkholder <posupsnoop@netzero.net>
Lynchburg, Va. USA - Sunday, June 26, 2005 12:30 AM CDT

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Hi Patty...Tami Slawson forwarded your latest information to me and I am fascinated. My daughter, Carolyn, has MPS IIIA and just turned 13. We have seen terrible regression over the past year and especially over the past few months. Your info on the genistein is a shining light to say the least. Thank you for sharing the info. I will be trying it as well. I also admire the daily vitamins/diet you are providing for Jesse..I think I can learn a lot from you! I seem to be going through a very sad slump these days because I feel like Sanfilippo is winning the battle. It's just awful. Hugs to your family
Pam Faust <fausthouse@sbcglobal.net>
La Mesa, CA USA - Saturday, June 25, 2005 12:30 AM CDT

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Hi Jesse and Patty,

I just stopped by to see how things are going and to look at the school party pics. Very cool looks like you had a blast Jesse.

Hugs from Ontario
Ashlee

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, ON Canada - Friday, June 24, 2005 10:23 AM CDT

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I really hope that the using the soy will help Jesse!
Prayers are sent.
Hugs from Vibeke

Vibekes Journal
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Wednesday, June 22, 2005 8:17 AM CDT

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Hi! My first time to visit your website. It is very interesting. We will be praying for you all as challenges arise often. Going to look over the pictures now. We met you at the conference, what a wonderful experience that was!
Karen Edwards Taylor, son TJ 7 MPS IIIA <angel_71753@yahoo.com or ktaylor@ cei.net>
Emerson, AR USA - Wednesday, June 22, 2005 0:26 AM CDT

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Hi Jesse,Looks like you had a good time at your school party.Hope you have lots of summer fun.Your friend,Julie
Sheryl & Family (mps forum)
westville, nj USA - Tuesday, June 21, 2005 3:16 PM CDT

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Hi just wanted to stop by and let you know that I have been here. Even though I dont sign your guestbook often I stop by almost every day!

Hugs from your friend from Norway.
Vibeke's Journal
Vibeke <vibekehovd@hotmail.com>
Skaun, Norway - Sunday, June 19, 2005 3:52 PM CDT

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy Bennett Children's Journal <Lumberhead@twinwolf.net>
- Sunday, June 19, 2005 10:32 AM CDT

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Hi Patty and Jesse,

That's great news about the soy research keep me posted.

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, ON Canada - Saturday, June 18, 2005 4:31 PM CDT

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Just checking in...Hello from Mississippi!!

Hugs, Janelle (Alli's Nana)
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, June 17, 2005 8:28 PM CDT

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Hi Patty and Jesse

I'm gald all is well with you and your family

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, On Canada - Wednesday, June 15, 2005 7:53 PM CDT

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Hi Jesse,

I found your website from Jenna. How are you feeling...? hope today is going the best it could... Hang in there!! I'm truly rooting you on!


Peanut - www.caringbridge.com/al/lorin
- Monday, June 13, 2005 7:14 PM CDT

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Congratulations on the MPS get together! It looked like everyone was having a blast and you got lots of stuff collected for it.
Are you still in school? Hannah and Andrew got out the 6th! It is so hot! and humid I can't imagine sitting in one of those buildings without air-conditioning. Those poor kids. Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, Md USA - Monday, June 13, 2005 1:11 PM CDT

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The pictures are great! Such fun!!! Have a great start to the week!
Hugs, Janelle (Alli's Nana)
Janelle Kunellis <janellekunellis@yahoo.com>
- Monday, June 13, 2005 9:08 AM CDT

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Hi patty.
Thinking about you today. Jesse new hair cut looks great. All the pictures are nice. Keeping you and your family in my prayers all the time.

www.helpourgiorls.com
Tayyaba beg <tayyaba@helpourgirls.com>
NJ - Friday, June 10, 2005 9:58 PM CDT

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Hello Jess,(AKA... Charles,lol)Hope you get a new bike very soon,I know how much you loved riding it at the fair.You have a most enjoyable family even Daddy-Mr.Bud lol.I can't help it Patty.Julie is just to much some times.We really enjoyed our get together.Stay well, all of you, Love Sheryl
Sheryl & Family (mps forum) <212224@msn.com>
westville, nj USA - Friday, June 10, 2005 6:13 PM CDT

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Hi Charles, It was nice playing with you at Busch Gardens!Love Julie.
Sheryl Hall
westville, nj USA - Friday, June 10, 2005 6:04 PM CDT

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Looks like you guys had a nice little vacation!!! The pictures are GREAT!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown , KY - Thursday, June 9, 2005 11:50 PM CDT

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Hey guys!
Just checking to see how everyone is doing. I just love the bike. Wayne takes Madison riding on a trailer bike so she can't steer...just pedal! She loves riding but I can tell she's starting to forget how to ride. It takes her a minute or two to understand again. I really like your home page with the frogs! Too cute!!! Take care and I'll check on you guys later.
www.caringbridge.org/nc/madisonlewis
Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Wednesday, June 8, 2005 8:37 AM CDT

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Hi, My name is Carmen. I read about Jesse in Isabel Jurado's website. She is my only niece. We are really touch by all the people who has visit her website. I hope everything comes out good for Jesse, and remember sometimes we don't know why, but God always has a purpose for everything. May God bless you and your family.
Carmen Jurado-Paez
Weston, Fla USA - Monday, June 6, 2005 8:33 PM CDT

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Cool wheels Jesse!!!

Janelle (Alli's Nana)
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, May 28, 2005 8:39 PM CDT

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How exciting to read about the bike. I found a 3 wheel young adult trike at Walmart, but the rider has to do the braking, and I'm just not up for that kind of excitement!
Stephanie & RachelJoy <mom2rj@comcast.net>
- Saturday, May 28, 2005 7:36 PM CDT

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Great job Jesse!!! Great job Sis!! LOL!! Your page looks great. You know when we win the lottery, it will not matter where we live. We will be together all the time!!!

Love Ya!!!

ANDREW'S WORLD
Paulina Jump <caljump@msn.com>
SPARTA, KY USA - Thursday, May 26, 2005 7:57 PM CDT

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Hi Jesse&Patty.I just wanted to drop a few lines to the both of you.THANKS AGAIN patty for all your prayers and phone calls.I hope you enjoy your trip.Talk to you real soon,kiss my buddy Jesse for me.
K.Thomas <kaycoachbags@yahoo.com>
baltimore, md - Thursday, May 26, 2005 6:55 AM CDT

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Hey Patty and Jesse,

Just stopping by to check on how things are going with your family. Congradulations on the meadles I'm proud of ya email me sometime ok

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, ON Canada - Tuesday, May 24, 2005 7:50 PM CDT

---

Hi Patty, Jesse, and family!
I just stopped by to check on everything from the Expo...I am so glad it went well! By the way, Jesse, congratulations on that medal!!!
Leslie (MPS Forum) <Leslie42457@yahoo.com>
NC USA - Sunday, May 22, 2005 1:11 PM CDT

---

Just stopping in to say hi. Glad Jesse had a great party and congrats on winning the medals.
Tina & Lance <lneonkia@comcast.net>
- Wednesday, May 18, 2005 12:34 AM CDT

---

http://www.mpsrun.com/images/AlliHigh.wmv
My Granddaughter's video on two years of her infusions.

Smiles, Janelle
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, May 17, 2005 8:18 PM CDT

---

Hey guys
Just stopping by to see how you are today!
Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Tuesday, May 17, 2005 2:26 PM CDT

---

Hi Patty -Just stopping by to say Hello!! Hope his tooth sorts itself out and that you are all well generally ! But most of HAPPY BIRTHDAY JESSE love Laura,Lily and Will
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Sunday, May 15, 2005 4:51 PM CDT

---

Hi All, Just stopping in to check on everything. Hugs!

Janelle (Alli's Nana)
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, May 14, 2005 10:22 PM CDT

---

Hello Jesse and family,
I found your web site after viewing the website of the Bennett children. I hope all is going well for all of you. Please know that you are all in my prayers tonight.
Jan Pearl
Sidney, MI - Saturday, May 14, 2005 9:35 PM CDT

---

hi, jesse,
i live in maryland, too - my parents mixed up my page when they made it and put me in massachusetts - that's where i have to go anyway this month for radiation...
my name is Jenna Marcella...my parents saw my friend Jenna in Canada's page and saw your page...so we stopped by to visit and send you lots of e-hugs...can i put you on my FRIENDS PAGE, if it's okay with your mommy and daddy?
Love,
Jenna Rae
Jenna's Daddy Dan <danvitocorleone@yahoo.com>
Hanover, MD US - Monday, May 9, 2005 10:35 AM CDT

---

I'm a little late but Happy Mother's Day. That is interesting that Dr. Kaler will be there. He is the one who does all the Menkes research. Sorry I missed Jesse's birthday!!
Tina & Lance <lneonkia@comcast.net>
- Monday, May 9, 2005 8:30 AM CDT

---

Happy Mother's Day
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Sunday, May 8, 2005 9:15 AM CDT

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Saturday, May 7, 2005 10:53 PM CDT

---

From your friends from Davis Tires Center. Dave,Jimmy , Van , Dewey , & Conie . We will always be there !
Jim Miller <Cooljim1957@aol.com>
Reisterstwon, md united states - Friday, May 6, 2005 6:55 PM CDT

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Thursday, May 5, 2005 4:32 PM CDT

---

Hey Patty and Jesse,

Happy belated birthday to both of you :0

Jesse it sounds like you are having fun with special olympics I am starting that in September with a class at school. I will be swimming going bowling and skating it's going to be fun.

Big hugs from Ontario

Ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, ON Canada - Thursday, May 5, 2005 11:36 AM CDT

---

Patty,
Good Thursday Morning! Checking on several of the kids this morning. I didn't know both Jesse and Madison's birthday's were on May 2nd. Madison turned 9 this year. Happy belated B-day to you! Have a great day and I'll check back with you later!
Paige

Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Thursday, May 5, 2005 8:32 AM CDT

---

Hi guys Happy Birthday,hope you had a great time!
Jodi and McKayla


Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Wednesday, May 4, 2005 8:07 PM CDT

---

School and play...that is what it is all about!! (oh and Spring too!!)
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, May 4, 2005 3:56 AM CDT

---

Hi Patty, Jesse and family,
I'm looking forward to meeting you at the social and hope to see you all again in Arizona! It's amazing how much like family the folks in the MPS Society come to be, and so quickly too.
Have a good spring, all of you.

Grace Bodura, Michael's mother <gbodura@adelphia.net>
Bethel Park, PA United States - Thursday, April 28, 2005 8:22 PM CDT

---

Hi Guys, I check in and I so enjoy your updates. It sounds like you are all moving and a grooving!!!

Hugs, Janelle (Alli's Nana)
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, April 26, 2005 7:59 PM CDT

---

Hey Patty and Jesse,

I'm gald you are feeling better Jesse it sure sounds like you are back to your normal self.

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, ON Canada - Monday, April 25, 2005 6:22 PM CDT

---

Hi guys I am glad that Jesse is feeling better as soon as they are running around you know it is good!!!
Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Monday, April 25, 2005 1:34 PM CDT

---

Patty & Jesse,
Long time no talk! I wanted to stop by to see how everything was going. Sorry to hear Jesse had been sick. That's always a bad thing for these kids. They can't always tell you what's wrong and it's so frustrating as a parent trying to figure everything out. Thankfully we get to know our kids and can sort of figure things out as we go. I'm glad to hear he's feeling better.

Have a great weekend. We're supposed to be getting some rain and much cooler weather. Boo!!!

Paige - Madison's Mom
(www.caringbridge.org/nc/madisonlewis)
Paige Lewis <paigel@purolatorair.com>
Middlesex, NC 27557 - Friday, April 22, 2005 3:17 PM CDT

---

Hi guys,
Thanks for the email. You are in my thoughts and I'm glad to hear from you. God Bless.
Mike Major
Michael Major <MajorComp@aol.com>
- Monday, April 18, 2005 9:49 PM CDT

---

Sorry Jesse was not feeling well!! Thinking of you always.
Tina & Lance <lneonkia@comcast.net>
- Saturday, April 16, 2005 9:01 AM CDT

---

Hey Guys

I got your email and decided I would stop by and sign your guestbook. I'm glad things are going well

Big Hugs for Ontario Canada

Ashlee

www.caringbridge.org/canda/ashlee
Ashlee Dagenais <mwccamper@yahoo.ca>
North Bay, Canada - Saturday, April 16, 2005 7:33 AM CDT

---

Hey Jessie!
Glad that you are enjoying school. I always have trouble waking up! lol...


~Joanne’s Corner~



With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Monday, April 11, 2005 6:42 AM CDT

---

Just checking in on Jesse. Glad he is doing well.
Tina & Lance <lneonkia@comcast.net>
- Saturday, April 9, 2005 8:24 PM CDT

---

Hey Patty and Jesse

Glad to hear things are going ok
Things are going ok on my end Mom and I are going to start the fight for special services at home kind of like respite or an EA but at home. I got cut off because they said I did not qualify ya ok you call having over 70 seizures in the summer and not being able to walk not qualfied.

email me soon Patty

Ashlee <mwccamper@yahoo.ca>
North Bay, ON Canada - Friday, April 8, 2005 12:16 AM CDT

---

Hey Patty & Jesse,
Wanted to stop by to see how everything is going. Sounds like your Easter meal was like mine...Delicious! Glad things are going well. Tell Jesse that Madison said hello and we'll talk with you later!
I'm not a huge Carolina fan but after last night...GO HEELS!
See ya!
www.caringbridge.org/nc/madisonlewis
Paige Lewis <paigel@purolatorair.com>
Middlesex, NC 27557 - Tuesday, April 5, 2005 8:56 AM CDT

---

Hey guys! Happy Spring! It's always great to get emails to see how you're doing! The Eastern Shore loves you all!
Andrea <shoe32@myshorelink.com>
Chester, MD USA - Monday, April 4, 2005 6:43 PM CDT

---

I just wanted to come by and see how things
were going with you guys!
Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Monday, April 4, 2005 3:44 PM CDT

---

Hi Jesse,
Just wanted to say hi and let you know you are in our thoughts and prayers. i ope you are having a nice weekend.
jaime www.caringbridge.org/nj/jaimelynn <jaime13042@aol.com>
nj usa - Sunday, April 3, 2005 12:50 AM CDT

---

Hi Jesse! Just stopping by to say hi! Glad to hear that all is going well :)
Willow and Isaiah <layne199@surfbest.net>
Baltimore, MD - Sunday, April 3, 2005 9:18 AM CDT

---

Sending happy thoughts your way today!

Janelle (Alli's Nana)
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, March 31, 2005 7:46 AM CST

---

Hi All,
I am just checking to see how you guys are doing. I am glad to hear that you had a great Easter. I will pray that Jack be safe. Check on you soon. God Bless.
Maria Tuckett <maria.tuckett@jetblue.com>
Murray, Ut US - Thursday, March 31, 2005 2:15 AM CST

---

hi patty&jesse,i wanted to say happy easter and thanks for keeping me in your prayers.i miss my lil buddy jesse.i hope he is enjoying his spring break with the family.as far as myself,tomorrow is my birthday and my husband brought tickets to the jill scott concert and we are also going out for dinner.again thanks for keeping me in your prayers.
k.thomas <kaycoachbags@yahoo.com>
baltimore, md - Monday, March 28, 2005 3:29 PM CST

---

Hi you guys! I hope you had a happy Easter. It came way too soon for me and I wasn't ready. Seems like I'm managing by crisis for everything this year!
ChrisMPS2, Lou, Wm, and Katherine
Brecksville, OH USA - Monday, March 28, 2005 11:10 AM CST

---

Hi Patty. This is Lauren ( from Alabama ) remember me? i hope u all had a wonderful Easter and i hope the whole family is doing well. Good Luck to Jesse. Keep in Touch. Love Lauren (Walker)
Lauren Walker <thegenuinepony@2die4.com>
cullman, al usa - Monday, March 28, 2005 10:06 AM CST

---

HAPPY EASTER!

we hope you had a wonderful easter
Pat,crystal & lee <matthewskenpo@comcast.net>
- Monday, March 28, 2005 8:20 AM CST

---

Hey Little Bud,

I hope you had a great easter

I send you big hugs

www.caringbridge.org/canada/ashlee

Ashlee <mwccamper@yahoo.ca>
North Bay , Canada - Sunday, March 27, 2005 5:40 PM CST

---

Hi Patty, a very happy easter to you all. Great to hear that Jesse is doing really well, give him a big hug from me. xxx
Louise Lewis (Georgia's mum) <starfish26@btinternet.com>
Chepstow, UK - Sunday, March 27, 2005 11:05 AM CST

---

Just stopping by to wish you a happy easter and to let you know I am thinking of you!
alyssa <sabiemc@aol.com>
orlando, fl usa - Sunday, March 27, 2005 9:19 AM CST

---

Happy Easter Jesse!
Tina & Lance www.caringbridge.org/md/lance <lneonkia@comcast.net>
- Sunday, March 27, 2005 9:18 AM CST

---

Blessed Easter to all of you.

Janelle (Alli's Nana)
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, March 26, 2005 11:11 PM CST

---

HAPPY EASTER!!!

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Saturday, March 26, 2005 7:23 PM CST

---

HAPPY EASTER!!!!

ANDREW'S WORLD
Paulina and Andrew Jump MPS III B <caljump@msn.com>
Sparta, Ky USA - Saturday, March 26, 2005 8:13 AM CST

---

Hi Jessie and Ms. Patti, we hope you have a great Easter and find LOTS of Pink eggs. We are so happy to have found you and your family. God Bless You All.
Paula Bass (Zeke's mom) <Bass2brim2@aol.com>
Columbia, Ms Marion - Saturday, March 26, 2005 6:45 AM CST

---

Hi Jesse,
I hope you have a great Easter! Happy Easter, buddy and keep smiling!
Your friend Jenna
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Saturday, March 26, 2005 0:19 AM CST

---

Happy Easter

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Thursday, March 24, 2005 7:39 AM CST

---

Hey Jesse

Just stopping by to check on my little bud glad you are doing well and that your Dad's foot is feeling a little better. Oh ya way to go on the best dressed award keep smiling little bud.

Ashlee www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, Canada - Wednesday, March 23, 2005 8:34 PM CST

---

I wanted to pop in and wish you guys a Happy Easter!Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Wednesday, March 23, 2005 1:39 PM CST

---

Hi Jesse and family,
Thanks for visiting Kari's page. Jesse, you seem like a terrific kid. We are hoping that you continue to do well.
Please know that we are praying for you and will continue to check up on you!!!
Thanks again for visiting us.
Lisa and Kari
Kari's Page <Lisa@iamtheshoe.com>
Yorktown, VA - Tuesday, March 22, 2005 6:59 AM CST

---

Wanted to thank you for stopping by Angela's site. I was up dating it and when I got done I saw where you came by. It is funny how all the caringbridge people are link together. You all will be in our prayers.

Vicki and Angela Davis

http://www2.caringbridge.org/ky/angela
Louisville, Ky USA - Monday, March 21, 2005 9:05 PM CST

---

Hi Jesse, I can't wait to see the picture of you on St. Patricks Day. I am glad you are having such a great week.
Tina & Lance www.caringbridge.org/md/lance <lneonkia@comcast.net>
- Saturday, March 19, 2005 5:02 PM CST

---

Hey Patty and Jesse,

Sorry to hear about Ms Thomas I will pray that she gets well soon I bet Jesse misses her lots

Hugs to both of you

Ashlee <mwccamper@yahoo.ca>
North Bay, Canada - Friday, March 18, 2005 5:45 PM CST

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Thursday, March 17, 2005 3:15 PM CST

---

Hi just came by to wish you guys a Happy St.Patrick's day!I hope you guys have a rainbow day! Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Thursday, March 17, 2005 0:17 AM CST

---

Hi Patty and Jesse -Just popping inbto check all is OK love your 'snow day' photo you look very cool lol -Take care love Laura(Mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Monday, March 14, 2005 1:41 PM CST

---

Hi Jesse, just stopping by to see what is new. Glad to see you are doing well. I enjoyed looking at your pictures.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Monday, March 14, 2005 11:42 AM CST

---

Thanks for the updates. I keep you all in my prayers.

Janelle (Alli's Nana)
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, March 13, 2005 9:02 PM CST

---

looks so handsome!

Hugs from your friend from Norway ~Vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Norway - Saturday, March 12, 2005 10:27 AM CST

---

Hey Jesse & Patty,
Wanted to stop by and just let you know we're thinking of you both. Hope everything is going well!

Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Wednesday, March 9, 2005 9:41 AM CST

---

Thinking of you all today. I hope all is well.
Tina & ~Lance~ <lneonkia@comcast.net>
- Tuesday, March 8, 2005 6:34 PM CST

---

Hi Jesse!! I found your Caringbridge site today. It is a blessing to me to meet new friends whom I can pray for and get to know better. So I'll keep checking up on you, OK? Stay strong, God has big plans for you. Much Love and Prayers,
A Friend in North Dakota
Williston, ND - Sunday, March 6, 2005 5:06 PM CST

---

Jesse
I second what Tina said! I enjoyed watching you and your mommy play today :)
HUGS
Willow and Isaiah <layne199@surfbest.net>
Baltimore, MD - Saturday, March 5, 2005 9:42 PM CST

---

Jesse, it was so nice meeting you and your mom today. You are so adorable. Every time I looked at you, you brought a smile to my face.
Tina & Lance www.caringbridge.org/md/lance <lneonkia@comcast.net>
- Saturday, March 5, 2005 7:53 PM CST

---

Jesse you are such a handsome by just wanted to say hi and that you have a very special Mom too! Jodi and McKayla

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Thursday, March 3, 2005 11:34 PM CST

---

Just wanted you to know you are in our thoughts and prayers.
Jaime www.caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
NJ USA - Thursday, March 3, 2005 8:22 PM CST

---

hi.

think you for coming to my wed page. hope every one in you house is doing will.

anna
anna mcnamara <amcnamara@entermail.net www.caringbridge.org/pa/anna.mcnamara>
allentow, pa usa - Wednesday, March 2, 2005 8:16 PM CST

---

Hi Patty, just stopped by to say 'Hello', all the way from England! Love the photos of Jesse, he's just so cute. Well done to you, for doing the presentation! Give Jesse a big hug from me (Georgia's mum) xxxxx
Louise Lewis <starfish26@btinternet.com>
Chepstow, South Wales, UK - Tuesday, March 1, 2005 2:53 PM CST

---

Hey Jesse,

I hope you had a good day at school today

Take care little bud

Hugs

Ashlee

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, Canada - Monday, February 28, 2005 4:20 PM CST

---

hi jesse,its just your favorite buddy mrs.thomas.i love the pictures you took with the ravens kicker matt stover and the mascot.you are such a lucky kid who enjoys life on a daily basis despite your illness.thats why i am so fond of jesse.he is an inspiration to me and others who sometimes take life for granted and not really doing it intentionally.jesse keep smiling and enjoying life because its so much more instore for you and your family.i know what it feels like not being able to make on a limited income and believe me its very hard especially being out of work for illnesses.thanks for having such good faith and passing it around to others who can benefit from your family.thanks alot patty& family
sincerely,mrs.thomas
kathy thomas <kaycoachbags@yahoo.com>
baltimore, md - Monday, February 28, 2005 1:52 PM CST

---

Just stopping in to say hi, hope we see you next week.
Tina & ~Lance~ <lneonkia@comcast.net>
- Saturday, February 26, 2005 8:49 PM CST

---

You are doing a great job of providing information about MPS awareness! Thanks for the information for all to read.
Thinking about you and Jesse...I send you my thoughts and prayers.

Janelle (Alli's Nana)
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, February 26, 2005 3:06 PM CST

---

Just stopping by to say hi

Hugs and kisses

Ashlee

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North bay, Canada - Saturday, February 26, 2005 1:14 PM CST

---

Wow!
I've been visiting the Bennett's page for years now, and whenever there's a link for another child, I just go 'who dat l'il cutie?'
I don't have children, 'cause I have an auto immune disorder that's had it's ups and downs-but I get to be an ambassador at the theme park I work in when special needs kids come to the park. I ask about the specifics of their medical issues.
The best part of my job, is I play a costumed character from X-Men called Storm.
And X-Men's message is, we are all special and have much to offer the world regardless of if we are different and don't look like everyone else.
But a pair of doe eyes like Jesse's will GET ME every time!
Not only is every child precious, but every moment with them and hearing the story of them from their loving family.
Thank you so much for your sharing.
Take care and lots of love!


Regan DuCasse <mdu24@msn.com>
N. Hollywood, CA USA - Saturday, February 26, 2005 12:25 AM CST

---

Stopping by to let you know I was thinking about you on this MPS DAY. Hope everything is good for you today. Good job about your mother getting the word out about MPS.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Friday, February 25, 2005 9:01 AM CST

---

Jesse, Patty, Jack and Steve! It has been so long since I have seen you...like maybe 2 years!?!?!?!? I no longer had your e-mail address, but found your website on Maryland Party.

It certainly has been a long road for you and yet you still make time to include and share with others. I remember when you first told me of Jesse's diagnosis. I hope you realize that Jesse could not have a more loving family....and the family couldn't have a more precious gift than Jesse.

Alison is doing well at Arc. We have been blessed by the support that we have had through the years. I pray that you will be also.

I hope you can get out one weekend when we are playing. I would love to see you ...and I KNOW how Jesse loved it when Union Jack played.

My love and prayers are with you,

Cindy
Cynthea Burns
Towson, MD USA - Thursday, February 24, 2005 11:59 PM CST

---

Hugs and Kisses to my adorable buddy Jesse! I love being in the picture with you! WHAT AN HONOR!!!
Kaitybug's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville, in - Monday, February 21, 2005 6:09 PM CST

---

Hi, Jesse
Just went on your web page and i wanted to tell you how very brave you are. i have my own web page too it is wwwkirstysstory.co.uk i built my web page to help others too. i am 14 and suffer from neurofibromatosis and scoliosis.
you look like a great kid and i would like to be your friend.
with love from
kirsty x
kirsty <julie.ashton23@ntlworld.com>
uk england - Sunday, February 20, 2005 12:57 AM CST

---

I hope you are having a good weekend. We are praying for you.
Jaime <Jaime13042@aol.com>
NJ USA - Sunday, February 20, 2005 10:38 AM CST

---

Hey Patty and Jesse

I hope you have a great weekend

ps I start my co-op placement on Monday

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, Canada - Saturday, February 19, 2005 10:19 AM CST

---

Hi All, Just checking in!!

Hugs, Janelle (Alli's Nana)
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, February 18, 2005 9:48 PM CST

---

have a good weekend
Jesse!!

sending you lots of love

craig, lauren, and helen

CRAIGGY
helen <trula1@comcast.net>
- Friday, February 18, 2005 6:57 AM CST

---

Jesse you sound like you are doing great esspecialy isnce no shoes have gone MIA lately, just to think of it niether has Hannahka's
www.caringbridge.org/canada/mygirls <hannahka20022000@yahoo.com>
- Wednesday, February 16, 2005 10:56 PM CST

---

Hi Patty,

You were wonderful on the news tonight!!




Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Wednesday, February 16, 2005 9:45 PM CST

---

Many people will walk in and out of your life, but only true friends will leave footprints in your heart. I pray that God will allow many, many footprints in all of your hearts. God is always available if only we seek Him. We none know the troubles in other's lives but we may pray for each other even if we don't know them personally. When we get to heaven oh how perfect everything will be. God bless you.
Hazel S. Sanders <hazelsss@bellsouth.net>
Barnwell, SC USA - Tuesday, February 15, 2005 3:35 PM CST

---

Wow
You guys sound busy,busy!!Just stopping in to say Hi!! Jodi(Mom to McKayla liver transplant)

McKayla's Site

joidphelan@hotmail.com <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Tuesday, February 15, 2005 11:55 AM CST

---

Hey patty and Jesse,

Happy Valentines day

Hugs and Kisses

www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.com>
North bay, Canada - Monday, February 14, 2005 10:59 AM CST

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Monday, February 14, 2005 9:27 AM CST

---

I hope you have a really special Valentines Day Jesse and Family!
Love Ya,
Kris and Kraiggy
Kraig's Journal
Klenke Bowl 2005

Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Monday, February 14, 2005 9:12 AM CST

---

HAPPY VALENTINES DAY

ANDREW'S WORLD
Paulina and Andrew Jump MPS III B <caljump@msn.com>
Sparta, Ky USA - Monday, February 14, 2005 6:51 AM CST

---

HAPPY VALENTINE'S DAY TO ALL!!

Love, Janelle (Alli's Nana)
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, February 14, 2005 6:36 AM CST

---

Hi Jesse,
Thanks for signing Taylor's website. I was beginning to think it was just me putting thoughts to paper. We caught up with Jesse at the conference but didn't get much time to chat. Glad to hear he is doing well with the sleeping. I know this is one of the harder things for families.
Take care till next time.

Jeanne and "Taylor" Blair <jbbbtbbb@cox.net>
Va Beach, Va 23455 - Friday, February 11, 2005 6:20 PM CST

---

Hi Patty and Jesse! Just stopping by to visit!Praying and thinking of you all love Laura (mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, February 10, 2005 4:16 PM CST

---

Just stopping in to say hi.
Tina & Lance-www.caringbridge.org/md/lance <lneonkia@comcast.net>
- Wednesday, February 9, 2005 10:43 AM CST

---

Hi Patty and Jesse,

I got the brownies in the mail today mmmm they are really good. Good luck with the presentation Patty let me know how it goes.

www.caringbridge.org/canada/ashlee
Ashlee Dagenais <mwccamper@yahoo.ca>
North bay, Canada - Tuesday, February 8, 2005 2:21 PM CST

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Dancing, Dancing, Looks like you have lots of fun at at school! I hope you gets lots of Valentine goodies next week! Tell mom and Dad Hi too!

Love Toni
Toni Sherr
Baltimore, MD USA - Tuesday, February 8, 2005 1:58 PM CST

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I love your new picture Jesse!! Save the next dance for me!! Love you!!

Paulina
ANDREW'S WORLD

Paulina and Andrew Jump MPS III B <caljump@msn.com >
Sparta, Ky USA - Monday, February 7, 2005 7:10 AM CST

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Hi Patty and Jesse ... so glad to see that you are doing well! And flirting with a girl at school how cute!! Better watch him mom someone will snatch him right up he is soooo cute!!!
Kaitybug's Aunt Rhonda (from the MPS Forum) <rjapril@insightbb.com>
Jeffersonville , IN - Tuesday, February 1, 2005 8:29 PM CST

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Hey Patty and Jesse,

I will be waiting for those brownies

Jesse that's great tah you are sleeping alot better now
Ashlee <mwccamper@yahoo.ca>
North Bay, Canada - Tuesday, February 1, 2005 11:25 AM CST

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Happy Tuesday! Just wanted to tell you "NO" we don't want any of your snow. All we seem to get is ice so maybe we do! Glad Jesse is feeling better and sleeping. Sleeping is a GOOD thing. Take care and stay warm!
Paige (www.caringbridge.org/nc/madisonlewis)
Paige Lewis <paigel@purolatorair.com>
Middlesex, n USA - Tuesday, February 1, 2005 10:28 AM CST

---

Just checking in to see how things are going and it sounds pretty good!!! Jodi(Mom to McKayla liver tx)
McKayla's Site

Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Monday, January 31, 2005 3:29 PM CST

---

Hi All, First time checking in. I am Alli's Nana and got your website off Jenn's site. I have added you all to my prayers. We are all in this together.

Hugs, Janlle (Alli's Nana)
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, January 27, 2005 9:49 PM CST

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Hey Jesse and Patty,

I will for sure keep you posted as to how my exams went.

Hugs and kisses
Ashlee

www.caringbridge/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, Canada - Thursday, January 27, 2005 6:32 PM CST

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Hi Jesse, Patty and Jack!! Praying this week will be better for your family. Hey Jesse, hope you get to go back to school soon. Kisses and hugs Paulina

http://www2.caringbridge.org/ky/andrewjump/index.htm
Paulina Jump <caljump@msn.com>
Sparta, Ky USA - Tuesday, January 25, 2005 6:40 AM CST

---

Hello Jack.

Glenn Dorris <gedorrisjr@msn.com>
Belcamp, MD 21017 - Monday, January 24, 2005 2:37 PM CST

---

Hi Jesse, Patty

I'm glad that you are feeling better Jesse and continue to do well.

Email me soon ok
Ashlee <mwccamper@yahoo.ca >
North Bay, Canada - Monday, January 24, 2005 9:33 AM CST

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I am so sorry about all your dying appliances. When it rains it pours (in our case maybe that should be POORS) I know just how you feel. Hey Ty, we live real close by maybe you could just bop on over and at least fix the our roof that keeps leaking after paying big bucks to have it fixed. Hang in there. I am glad the new med is working so well. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Monday, January 24, 2005 9:02 AM CST

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Hi Jesse! We just stopped in to see how you are doing. I'm glad that new supplement your mom found is working so well for you.
Love Ya,
Kris and Kraiggy
Kraig's Journal
Klenke Bowl 2005 for MPS
Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Monday, January 24, 2005 8:46 AM CST

---

Just checking in on my buddy Jesse!!! I love your new pictures up!! I sure hope you are feeling better! Mommy said that you have been sick!
Aunt to my "ANGEL" Kaitybug! <rjapril!@insightbb.com>
Jeffersonville, IN - Friday, January 21, 2005 6:41 PM CST

---

Thinking and praying for you always.I found your link on Mckayla's page.
Brenda http://www2.caringbridge.org/ca/daverurka/ <rurka70@hotmail.com>
Edmonton, AB Canada - Thursday, January 20, 2005 0:02 AM CST

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Wow Patty your house sounds a lot like ours,one thing never goes it is everything at once.I came across your site from someone else's it sounds like you guys had a great weekend!Jodi(Mom to McKayla(7)lrd:liver transplant to cure citrullinemia 01/05/04)And Cory 12.
www.caringbridge.org/canada/mckayla
Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Tuesday, January 18, 2005 8:36 AM CST

---

thanks, Jesse, for taking
the time to come by
Craig's website.

sending you lots of love

craig, lauren, and helen

CRAIGGY
helen <trula1@comcast.net>
- Monday, January 17, 2005 1:48 PM CST

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Sunday, January 16, 2005 12:24 AM CST

---

hey Jesse, just found your
link and wanted to come by

sending you lots of love

craig. lauren, and helen

CRAIGGY
helen <trula1@comcast.net>
- Sunday, January 16, 2005 11:48 AM CST

---

Hey Patty & Jesse,
Taking some time to check on everyone. Madison also LOVES music and I LOVE to see her trying to dance. She looks more like a rabbit jumping up and down! It's a hoot! Things are hard with these kids but what a blessing! I pray that everything works out for you guys in 2005. Best wishes from the Lewis Family!
Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Thursday, January 13, 2005 8:26 AM CST

---

Hi Patty and Jesse

Just stopping by to see how things are going. Good luck with the home renovations. My family and I are in the process of applying for funding for renovations for our house as well. www.caringbridge.org/canada/ashlee
Ashlee <mwccamper@yahoo.ca>
North Bay, - Tuesday, January 11, 2005 9:26 AM CST

---

Just stopping by to visit Jesse. I love the new horses on the site. Good luck with the donations page. I think it is a fabulous idea. I will be going there to send a few dollars his way for his juice. I know that is expensive, but it works, and that's what matters most. Tell Jack, Steve and mom hello for me too.

Love you all,
Tony

Tony Shaw
Baltimore, MD USA - Monday, January 10, 2005 7:41 PM CST

---

Patty,
Just stopping by to see your page and check out all your great pictures!! It would be great to get together!
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Wednesday, January 5, 2005 8:34 AM CST

---

Jesse you are one tough little guy
Ashlee <mwccamper@yahoo.ca>
- Tuesday, January 4, 2005 10:03 AM CST

---

Dear Jesse & Family
Sending prayers and wishes for a safe, healthy and happy 2005 from all of us over here at Bridge of Dreams, www.bridgeofdreams.org . May your New Year be filled with love, laughter and lots and lots of smiles!
Blessingz & Big Huggerz,
Melissa
Melissa <myss911@juno.com>
Lancaster, CA USA - Monday, January 3, 2005 9:26 AM CST

---

Thanks for the update Patty!! Thinking and praying for your family!!! Thanks for the great advice, you are a wonderful friend!! Love Ya Paulina


Andrew’s Journal
Paulina Jump <caljump@msn.com>
Sparta, Ky 41086 - Monday, January 3, 2005 9:08 AM CST

---

Happy New Year. I hope 2005 brings you nothing but the best!
alyssa <sabiemc@aol.com>
orlando, fl usa - Saturday, January 1, 2005 10:45 AM CST

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Friday, December 31, 2004 12:18 AM CST

---

Great journal entry explaining everything. It was really good to meet you, as well as, other families! Glad you had a wonderful Christmas. We hope for good things in the New Year. Tell Jesse that Madison & I said hello.
Paige

www.caringbridge.org/nc/madisonlewis <paigel@purolatorair.com>
Middlesex, NC USA - Thursday, December 30, 2004 3:15 PM CST

---

I'm glad you had such a good trip. Jesse will continue to be in my prayers.
Tina and Lance <lneonkia@comcast.net>
- Thursday, December 30, 2004 7:25 AM CST

---

The photos are really wonderful. We hope one year we will be able to come and meet everyone. That would be some trip.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Wednesday, December 29, 2004 12:40 AM CST

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Pat I am so glad you all had a good time at Disney
I am very glad for you that everything went wounderfuly!
All the best
Anne and Sebastien
Thanks for sharing the pictures!
anne cairns <buzz.cairns@sympatico.ca>
markham, ontario canada - Monday, December 27, 2004 7:18 PM CST

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Thanks for the e-mail. I'm glad to hear you guys had a great time. Let me know when your first show will be w/ your new singer. Take care and god bless always.
Natalie <natratmia@aol.com>
Halethorpe, MD USA - Monday, December 27, 2004 10:12 AM CST

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Glad to hear you all had a wonderful time on your trip. Sounds like you had a great Christmas, and I hope you have a Happy New Year!
Paul Keys Jr. <signman615@hotmail.com>
Lynchburg, Va. - Sunday, December 26, 2004 10:21 PM CST

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Patty,
It was nice to meet you and Jesse in FL. Hope you and your family had a good Christmas (sounds like you did :)). Take care and have a Happy New Year!
Anita Taulton
P.S. Nice web page
Anita Taulton <ataulton@adelphia.net>
Jefferson , MD USA - Saturday, December 25, 2004 7:49 PM CST

---

Merry Christmas!
alyssa <sabiemc@aol.com>
orlando, fl usa - Saturday, December 25, 2004 11:03 AM CST

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Friday, December 24, 2004 1:20 PM CST

---

Wishing you a Merry Christmas and Happy New Year!!!!

Love and Hugs,

Tami Slawson ( www.caringbridge.com/ca/slawson

tami <tlslawson@aol.com>
- Friday, December 24, 2004 10:13 AM CST

---

Hey Tomato Family!! LOL! It was so great to finally meet you guy!! Wishing you a Happy and safe Holiday season!!
Thinking and praying for you as always!!!

Love Colin, Paulina, Andrew and Alex

Andrew’s Journal
Paulina Jump <caljump@msn.com>
Sparta, KY USA - Friday, December 24, 2004 6:59 AM CST

---

Merry Christmas Jesse! So glad that I got to meet up in Disney!! I enjoyed the hugs and I want more!!! See you in Arizona!!!
Kaitybug's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville, in - Thursday, December 23, 2004 8:12 PM CST

---

Happy Christmas + Happy New Year
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Thursday, December 23, 2004 2:20 PM CST

---

Was great to finally met you and Jesse in Florida. Hope y'all have a great Christmas!
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpjourney>
Albemarle, NC USA - Wednesday, December 22, 2004 1:25 PM CST

---

Hi, thanks for the card and picture of Jesse. Thanks!
Hope you have a great time at the conference.

A big hug from Vibeke.
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Sunday, December 19, 2004 10:19 AM CST

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Just thinking of you and Jesse. You are in my prayers.
Nice pictures.

www.helpourgirls.com
Tayyaba <Tayyaba@helpourgirls.com>
NJ - Tuesday, December 7, 2004 3:45 PM CST

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Hey there...thanks so much for the card and picture of Jesse. It's posted in Lindsey's PICU room. Hope y'all are doing well. Take care...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Monday, December 6, 2004 6:37 PM CST

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Patty,
I havn't forgotten about you and Jesse!!! I pray for you always!! I hope your classes are going well and that you do great on your upcomming tests!!!!!!! WE have had one sick child after another around here and this afternoon Ty started his high fever, just as Caroline is getting over her week long illness. Hopefully we can talk soon!
Love,
Kim and Ty <jdownham@earthlink.net>
Houston, TX - Saturday, December 4, 2004 8:35 PM CST

---

Stopped by after seeing a post on the MPS page. It seems we are practically neighbors, we live near Frederick. Our daughter Hannah, age 8, was diagnosed with MPS IIIA about three years ago. Our prayers and thoughts are with you. Perhaps we will meet up in Orlando!
Rob and Anita Taulton <rtaulton@adelphia.net or ataulton@adelphia.net>
Frederick, MD USA - Saturday, December 4, 2004 8:13 PM CST

---

Hey Jesse, Patty and Jack!! Just stopping by to say Hi! Can not wait to see you all in Florida!!
Andrew’s Journal
Paulina Jump <caljump@msn.com>
Sparta, KY USA - Saturday, December 4, 2004 6:37 AM CST

---

Just stopping by to say hello, Hope you have a very Merry Christmas! Please visit and sign our web site.
http://www2.caringbridge.org/ca/reileneandnikkolas/
Gabrielle Rivas <gabbi_001@msn.com>
South El Monte, ca USA - Thursday, December 2, 2004 10:34 AM CST

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Patty,
Wishing you a happy holiday season. Jesse's picture on the home page is just great. He's such a handsome fellow! As you probably know, my father is very sick and I'm worried we may not be able to make the Disney trip??? As you know...we can't plan sickness! Take care and I miss talking with you.
Love Paige
www.caringbridge/nc/madisonlewis.org
Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Wednesday, December 1, 2004 8:33 AM CST

---

JESSE AND MRS.THOMAS VIEWING JESSE'S PICTURES AT SCHOOL.
K.THOMAS <kaycoachbags@yahoo.com>
BALTIMORE, MD. - Monday, November 29, 2004 10:43 AM CST

---

Wishing you a happy thanksgiving!
alyssa <sabiemc@aol.com>
orlando, fl usa - Thursday, November 25, 2004 11:11 AM CST

---

From our house to yours Happy Thanksgiving!!!
Kaity's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville, IN - Sunday, November 21, 2004 4:59 PM CST

---

Just wanted to let you know you will be in my prayers.
Tina-www.caringbridge.org/md/lance <lneonkia@comcast.net>
- Tuesday, November 16, 2004 7:21 PM CST

---

Checking in on my cute little Jesse! Glad to hear that you are doing well in school!! And with your hair cuts! We pray that mommy does good in school too! I'm sure she will!
Kaity's Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville , in - Sunday, November 14, 2004 11:05 AM CST

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Monday, November 8, 2004 1:25 AM CST

---

Patty,
Was so glad to get your update. Enjoy knowing what's going on with my MPS friends. Sounds like Jesse had a great halloween with the school party and everything. Wayne took Morgan & Madison out for a while and Madison enjoyed seeing the kids come up to the door in their costumes. My family was visiting so it was a good weekend. It won't be long before we meet at Disney!!! :) Hugs and kisses to everyone. I think of you often! Have a great weekend.
Paige
www.caringbridge.org/nc/madisonlewis <paigel@purolatorair.com>
Middlesex, NC USA - Friday, November 5, 2004 8:48 AM CST

---

Hi Jesse!
It sounds like you had a great week, and a very busy one as well. Sounds like you had a great fall/Halloween week, and that you had lots of fun! You still have that awesome smile of yours! Keep Smiling, and you and your family are in my thoughts and prayers.
Your friend Jenna.
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Wednesday, November 3, 2004 1:43 AM CST

---

Hey Jesse any shoes go MIA latley? Soory we haev been MIA glad to hear your doing good!
Chloe and Hannahka’s <hannahka20022000@yahoo.com>
- Saturday, October 30, 2004 10:26 PM CDT

---

Glad to hear Jesse is feeling better! Happy Halloween! Watch eating all that candy!!! Love the new pictures!!!
Kaity's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville, in - Saturday, October 30, 2004 5:41 AM CDT

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Friday, October 29, 2004 1:31 PM CDT

---

Glad to read jesse's liver is normal. My older daughter born with larg liver and it is getting larger. And we also having the same problem with hearing aids. we try so much but she does not keep them in her ears and pull them out and put in her mouth. (MPS kids)
I am praying for you that Dr don't find any thing and you don't have to go back again.
Jesse is so lucky to have a nice present. Hope you all have fun at Disney. Hug for Jesse.

www.helpourgirls.com
tayyaba <tayyab@helpourgirls.com>
- Tuesday, October 19, 2004 8:31 AM CDT

---

Just checking in on my cute little Jesse! Tell mommy hello too!! So glad that all of your tests have been ok! Thank GOD!!!
Kaitys Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville, In - Sunday, October 17, 2004 7:29 PM CDT

---

Well it's been a While since i last spoke to you guys. Just know that i am Praying for you and hoping for the best, but email me and maybe we can keep in touch.

The Old Nextdoor Neighbor Anthony (TJ) Hall
Anthony Hall <bmorelilyo@yahoo.com>
Tyndall AFB, FL - Wednesday, October 13, 2004 0:07 AM CDT

---

Hey, checking in to see how everyone is doing. Sorry your appt. was such an ordeal. What women go through! We'll be praying that those tests are negative also. I'm so glad to hear Jesse is sleeping and walking better. That's a relief! Sorry I've not been in touch. Things here at work have been turned upside down to say the least. Talk with you soon.
Love, Paige
Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Tuesday, October 12, 2004 12:15 AM CDT

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Saturday, October 9, 2004 9:39 AM CDT

---

Hi. I have a same problem with girls sleeping disorder. Medication work on these kids for just sometimes and after while it stop working and need to be changed.
So happy to read you are doing good. And happy that you can go out and have fun. I am thinking to go to MPS confrence but its hard for me to handle all.
Love to jesse.

Caringbridge.org/nj/helpourgirls/

Tayyaba Beg <Tayyaba@helpourgirls.com>
Teaneck, NJ - Tuesday, October 5, 2004 1:57 PM CDT

---

Checking in on my cute little Jesse! And soooo glad to hear from you that your test results were ok!!
Kaity's Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville , IN - Saturday, October 2, 2004 8:04 PM CDT

---

Hey,
Checking in this morning and glad to see all things are going well. So happy your tests turned up negative. Pictures from Hershey Park are good...I've got to talk to you about that! Anyway, thanks for the update.
Love, Paige
caringbridge.org/nc/madisonlewis
Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Wednesday, September 29, 2004 9:22 AM CDT

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Checking in on my little buddy Jesse!! Love the new pictures!! He is a doll baby!
Kaitys Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville, IN - Tuesday, September 28, 2004 7:19 PM CDT

---

Best wishes for Jessie and the whole family
Holly Niles <ihorsewoman@aol.com>
- Tuesday, September 28, 2004 3:37 PM CDT

---

Hi, Patti and Jack! It looks like Jesse had a blast this summer. I hope you are all doing well, despite the fact that Steve is now 22 and that makes you ...mmmmmmmm....I can't count that high!! : ) That's okay. Alison turned 25 in July and Lauren became Mrs. Jonathan Wood this past Saturday! Take care and I hope to see you again! Cindy Burns

Cindy Burns
Baltimore, MD USA - Tuesday, September 28, 2004 5:40 AM CDT

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Dear Patty & Family: Glad you and Jesse had a nice trip to Hershey. It's great that Jesse is going to school. Happy Birthday to Steve! Best wishes and love to all.
Diane Flatley
- Sunday, September 26, 2004 12:23 AM CDT

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Thursday, September 23, 2004 8:40 PM CDT

---

It sound you guys really have fun. Love the pictures. Hugs to Jesse.
www.helpourgirls.com
Tayyaba Beg <tayyaba@helpourgirls.com>
Teaneck, - Thursday, September 23, 2004 1:50 PM CDT

---

We had so much fun on Sunday, thank you for coming with us! I can't wait to get together again. We dont' have any money for the MPS Conference but we are still hoping to come up with it somewhere. I just finished my journal and put up some pictures but I have so many that I will have to add more in the next few days!
Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Wednesday, September 22, 2004 9:05 PM CDT

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So glad you had a good time with the Bennetts! I loved the pictures of everyone! Jesse and all of the kids looked like they were having a great time too!
Kaity's Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville, IN - Wednesday, September 22, 2004 7:11 PM CDT

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Checking in this AM to see how your weekend went with the Bennett's. Just know you had a great time. Glad things have calmed down a little...what an eventful week!
Paige (Madison's Mom - MPSIIIA)
caringbridge/nc/madisonlewis
Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Monday, September 20, 2004 10:17 AM CDT

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Pat,

You are one exceptional woman. Jesse is a gem and your positive outlook shows that you are one of God's angels.
Melody Baker
Baltimore, MD USA - Saturday, September 18, 2004 8:52 PM CDT

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Hi Patty.
Thank you for visiting my girls website. Thank you for sharing your story. I get to read about Jesse. He is adorible. May God give you strength. Have fun in Florida. Happy you are going to meet Bennett family. They are amazing people.
Give my love to Jesse.
Tayyaba Beg
http://www3.caringbridge.org/nj/helpourgirls/

www.helpourgirls.com <Tayyaba@helpourgirls.com>
Teaneck, NJ - Friday, September 17, 2004 12:28 AM CDT

---

I saw your site through Hailee and Misty's sight. I envy you parents and just want to say that it is wonderful what you all do for each other. It is amazing how far a little word of encouragment will go.
Deedee (Hailee and Misty's cousin) <ptbrenner@bellsouth.net>
Priceville, AL U.S. - Wednesday, September 15, 2004 6:34 PM CDT

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I just discovered your site....thanks so much for sharing Jesse -- he is a beautiful young man! I am the grandmother of Mackenzie Clarke who also has Sanfillipo-A and am trying to learn all that I can..her mom and dad are busy organizing the second "Mackenzie's 5K/Run for MPS" on October 9th in Poquoson, VA.....with everyone working together, one day a cure will be found for this terrible disorder!
Becky Clarke <vabeckyclarke@wmconnect.com>
Newport News, VA USA - Monday, September 13, 2004 7:32 PM CDT

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Out the window? ahh more resourcefull than Hannahka she loves taking ehr shoes offand throwing them! Mabye you too are up late chit chating and planning new tacktics amied at us mummys! Have a great week, and hopefully no more shoes go MIA

Chloe and Hannahka's mum www.caringbridge.org/canada/mygirls <hannahka20022000@yahoo.com>
vancouver, bc canada - Monday, September 13, 2004 0:07 AM CDT

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Hi Jesse, we found your site through the Bennett's
I wil pop be often to see how you are doing, my girls say HI
Chloe and Hannahka's mum www.caringbridge.org/canada/mygirls <hannahka20022000@yahoo.com>
canada - Friday, September 10, 2004 10:01 PM CDT

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What a great picture of you Jesse! You are a doll! Glad you like school! I will be back to check on you from time to time so be good! Patty good luck with your tests on the 20th! You are in our prayers!!!!
Kaitys Aunt Rhonda <rjapril@insighbb.com>
Jeffersonville , In - Friday, September 10, 2004 6:53 PM CDT

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Hello. I just found your site through The Bennett's site. I wanted you to know I will be keeping Jesse and your family in my prayers.
Cathy Rusyniak <Garbmike@optonline.net>
Rockaway, nj - Friday, September 10, 2004 1:31 PM CDT

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Stopped in to see the new pictures. They're great! Jesse is such a handsome young man. We continue to think of you and all the MPS families!
Paige - Madison's Mom! MPSIIIA
Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Friday, September 10, 2004 7:48 AM CDT

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I am fortunate to be able to teach such a wonderful student. Jesse brightens our day!
Nicole Wetta <nwetta@hotmail.com>
Baltimore, MD USA - Thursday, September 9, 2004 7:56 PM CDT

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Patty,

Thank you so much for the phone call, it was great talking to you. I am very excited about meeting you next week!



Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Wednesday, September 8, 2004 9:17 PM CDT

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Patty and Jesse,

Sorry we hadn't signed sooner! Thank you so much for signing Max's guestbook -- we LOVE hearing from other MPS families. We have added you to our "favorites" page and will check in often.

I noticed that you live in Baltimore -- we've been thinking about doing a day-trip to the aquarium and the inner harbor in the next month or so. Hopefully we could get together too. Again, thanks for introducing yourselves!
Paul and Max Forand <Forandkerrigan@comcast.net (www.caringbridge.org/nj/maxforand)>
Millville, NJ - Saturday, August 28, 2004 1:10 AM CDT

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Thank you all for the kind words on my daughter evline's web site. i am blessed that i get to hear different parents and get to know so much about their family and children. thank you for the prayers they really help. i am glad to hear that everything is going well. talk to you all later bye.
tammy <evlinethomas@yahoo.com or tammy_thomas_18@yahoo.com>
evarts, ky harlan - Wednesday, August 25, 2004 8:03 PM CDT

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Sunday, August 22, 2004 1:04 PM CDT

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Hello Jesse and Family!
My name is Jenna, and I came across your website. Jesse, you are an inspiration, and a real Fighter! You are a very specail little hero as well! I love making new friends, and I will come by again to say hi.
You are in my thoughts and prayers.
Your new friend Jenna
www.caringbridge.org/canada/jenna
http://www.matmice.com/home/fighterandchampion
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Saturday, August 21, 2004 2:27 AM CDT

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Hi there. I'am Paige Lewis, mother of Madison MPSIIIA. We're from Eastern NC. I got your site from Lindsey's guestbook. We met the Efird's at MPS Day at UNC-CH 2-years ago and have been friends ever since. I hope you don't mind me posting in the guestbook. Madison is 8 and a typical MPS kid. Diagnosed at age 4 in Nov. '01. She's finally starting to slow down...if you know what I mean. Lost a ton of skills but doing very well. Hope things continue to go well with you and Jesse and hope to talk with you later! Paige
Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Wednesday, August 18, 2004 12:00 AM CDT

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Hey there...thanks for writing. It's good to "meet" you and your family. I'm glad Jesse is doing well. Lindsey would be if it weren't for what happened on Feb 13. Dr. Muenzer said this was NOT the MPS. She was just struck by lighting twice - so to speak. Lindsey was full of life until this (whatever this is) happened. I hope you all have a wonderful time at the conference...it's a wonderful experience being at the National Conference. Take care and let's keep in touch...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4MPS@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Monday, August 16, 2004 1:07 PM CDT

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Thank you so much for visiting James' site and leaving a message. It means a lot to us even though he left us 12/19/00.
I will keep you all in my prayers.

Blessings,
Bonnie, grandma to ^J^ James forever 14 www.caringbridge.com/page/jamiebowman
Columbus, Ohio - Thursday, August 12, 2004 11:09 PM CDT

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Thursday, August 12, 2004 3:36 PM CDT

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hi patty
thank you for the right web site.my katilynn will be starting school monday i cant wait because i know it will be so good for her to go be with the other kids and i am going to go with her i could never leave her.but thats the way it has always been since she was born.well i will be back to check on you guys soon kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom>
tomahawk, ky usa - Wednesday, August 11, 2004 1:46 PM CDT

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Just stopping by to check out your web-site. Love the pictures of Jesse. Hope to meet you guys at the disney conference.
Sharon Cochenour (mother to Andrew MPS II)
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, Ohio USA - Sunday, August 8, 2004 5:38 PM CDT

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Hi Patty!
Just dropping by to let you know that I linked your site to mine at MPS Forum.com on the “Links” page. I hope this was okay and thank you for sharing your site with other MPS/ML parents!
Hugs,
Jessica
(Mom to Kaity~Hurler Syndrome age 13)

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Friday, July 30, 2004 9:44 PM CDT

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Glad to hear Jesse enjoyed the wading pool and interacted well with the other children. Mom and Dad told me about this website and I think it's a great idea. I'll be adding it to my "favorites" section and re-visiting often so I can follow how Jesse is doing. I will also be keeping Jesse (and everyone involved so closely in his life) in my prayers.

Things are just a little tight right now, but rest assured I WILL dig up some money soon and be helping out any way I can. I'll see if I can't get the guys at work, as well as Brian, mom and dad to match what I can come up with. Look for my e-mail end of next week. This conference sounds like something that all of you not only need, but all deserve!

God Bless,
Paul Keys Jr.
Paul Keys Jr. <signman615@hotmail.ccom>
Lynchburg, Va. United States - Thursday, July 29, 2004 5:50 PM CDT

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As soon as I can get back there, I will. The band is on a roll and I have been afraid to turn down gigs so we have played Friday AND Sat. night forever. I will keep in better touch.
Daryl Williams <doininfine2@aol.com>
Streetsboro, Ohio USA - Thursday, July 22, 2004 5:29 PM CDT

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Hi Jesse, my name is Ronda. My fiance, Ed, and I are friends with your mom, dad and brother Steve. I just wanted to introduce myself and tell you that you have the coolest parents ever! They love and care about you very much and want you to be very happy. Sometimes parents are a pain, I know, but just know that they'd do anything for you if they could. God Bless you and keep you safe. Let me know if you ever need anything and we'll be there to help.

All Our Love,

Ed, Ronda and Tommy
Ronda Grove <mercedes312@yahoo.com>
Centreville, MD USA - Tuesday, July 20, 2004 12:22 AM CDT

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Hi all, You are in our thoughts and prayers.
Gloria & Marshall Knapp
Columbia, MD USA - Monday, July 19, 2004 8:33 PM CDT

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Hi Jesse & Family! It's nice to read your journal and get to know you a little better. Kraig LOVES to watch Barney videos, too.

Take Care!
Kris and Kraiggy
Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Monday, July 19, 2004 7:09 PM CDT

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