History

Wednesday, September 3, 2008 8:48 PM CDT

Malachi started his second year of school. He loves school it is the same elementry school I went to. Malachi is baring weight more on his legs. He even said I LOVE YOU. That made the entire millenium forme.
Malachi is so funny he watches woman when they walk by him.If they get close enough he will try to kiss them.
I have seen an boost in his stamina since they took him off of CHEMO. So please pray this winter will be better than last.

MELISSA&MALACHI

Friday, August 15, 2008 9:40 PM CDT

Malachi is doing well. We are home just waiting for school to start. he loves spongebob now he gets so happy when he comes on.

Sunday, August 3, 2008 10:05 AM CDT

Malchi is getting better he has not bleed in 2 days. PRAISE GOD!!!!!! They are still not sure why he bleed. The doctors said it might be coming fromm deep in his lungs but they are not sure. His body is building different collateral vessels ( veins to make up for what he is missing in his heart.)To redirect his blood . And they are bursting. but this all speculation..
Malachi is in good spirits he is laughing and smiling he just loves all his nurses. they are really good to him.
The child life department let me use lap top so I wont be bored. I think I am gonna save so I can get mt own.
Please keep on checking this page for updates

MELISSA&MALACHI

Thursday, July 31, 2008 7:25 AM CDT

we are back in the hospital.Malachi started to bleed again, he has been coughing up blood from his trach. AND AGAIN THEY DONT KNOW WERE IT IS COMING FROM. It is so frustrating. He was not crying through all of this he did not even cry when he got his blood drawn or an IV. He was laughing. He thinks it is funny when people get in a ta tizzy. SO please pray the doctors find out what is going on.

Tuesday, July 1, 2008 7:33 AM CDT

we are back in JOHNS HOPKINS. His heart rate shoots up to 160 every time he eats and his oxygen level drops when he coughs. Malachi is in good spirits he is laughing and smiling I will keep everyone updated.

Monday, May 5, 2008 9:53 AM CDT

PRAISE GOD THEY STOPPED THE CHEMO!!!!!!!!!!!!!!!!!! And did not do the MRI they decided it would be to dangerous to put him under and anesthsia. So tommorrow we get to go home.We have to come up here about once a month for check ups with his cardiologist. And we still have to see Neurology,pulmonology AND ENT( EAR NOSE THROAT. He on over 13 medications were he use to be on just 6. He is doing better more energetic. The doctors say his heart is still weak but it may or maynot get better. But you know what i say to that I put it in GODS HANDS. And know everything it is will turn out the way it is supposed to. Please keep up the prayers and I will keep everyone posted on him and all the upcoming events to benifit him
MUCH LOVE
MELISSA MALACHI & FAMILY

Monday, May 5, 2008 9:53 AM CDT

Friday, May 2, 2008 11:34 AM CDT

Malachi I recovering his heart rate has come down and he is not on alot of oxygen. He is more playful and not like a zombie his body is handling his increase of medications well.he still has his times when he drops his oxygen level
Monday or tuesday he is getting AN MRI of his heart so they can get a better look at heart. If it looks abnomal for malachi they will probaly stop the chemo. I am hoping to be home for his birthdat may 15.But I am not rushing anything.

Wednesday, April 30, 2008 12:02 AM CDT

Today has been a test on my faith. But I will never let any negitive thougts enter my head, Only positive.
Today they ssaid again they dont know why his heart has gotten weaker. It could be from the CHEMO or it could be the progression of his illness. They said they just dont know why his heart is failing they can just theorize.
So they are gonna do some test He might be getting an MRI.
All his doctors are gonna discuss what the next step is in MALACHI'S care. They said the chemo might be making his heart weak so they are considering stopping it.But they are afraid he will bleed. But They are still stump on why he was bleeding to begin with.
So I will be in Baltimore Maryland with MALACHI fighting for his life. I am staying at the RONALD MCDONALD HOUSE the staff ther is like family to me Miss MARIANNE is like my mom(The director)And Miss Lisa is like my big sister(house manager) They are always there willing to lend an ear when I need one.

SO PLEASE CONTINUE PRAYING FOR MALACHI BECUASE GOD HAS THE LAST WORD I HAVE FAITH HE WILL BRING MY MALACHI THROUGH EVERYTHING OK. MALACHI IS A WARRIOR AND WILL PROVE HE WILL ALWAYS COME OUT ON TOP

LOVE ALWAYS
MELISSA,MALACHI &FAMILY

Tuesday, April 29, 2008 8:56 AM CDT

Yesterday was a crazy day!!!!!!!!!!!! When I came in the morning there were alot of people around his bed.He had dropped his oxygen to the low 60"s and they had himon 100xtgen andstill would not come up so they had TO BAG HIM UP.FINALLY HE CAME BACK UP.They gave him a neb treatment.
Later on that day they did a eeg of his brain which showed alot of seizure activity. so they gave him a sedative adavan to calm him down. Then they deided to start another seziure med called keppra he is sleepy looking It has him so sedateted. Hopefully soon his body will get use to the keppra and I'll have my MALACHI back.
PLEASE KEEP UP THE PRAYERS

Sunday, April 27, 2008 10:46 AM CDT

Malachi is not on as much oxygen as he was. He is on 30xygen so they are weening him down so hopefully soon he wont need any. He is sleeping alot he becomes tired real easy. They started a medicine yesterday called captipril to aid in his heart function it wont make it better but it will help it work better. He loves his music which is giving him more comfort. THe child life speacialist ( the person who brings the kids toys) let me use one of there laptops so I can play music for him.,and he can watch his music VIDEOS he loves SNOOP DOGS VIDEO sensual seduction and j holiday video SUFFOCATE HE GETS THE BIGGEST SMILE WHEN HE HERES THEM.
PLEASE KEEP UP THE PRAYERS

Melissa

Saturday, April 26, 2008 6:42 AM CDT

we are back at JOHNS HOPKINS. Malachi turned blue and had a hard time catching his breath. so I took him to the emergency room were I live at and we were air lifted to JHH, at night it was very pretty to see all the lights from that high.
They did a sonogram of his heart and said the function of his heart is not as good as it use to be. So they are going to start lasix ( a medicine to help pull water of his body and another to help his heart function). Malachi is being so brave. He does not even cry when he gets needles. I am the one crying he just laughs at me as jusst to say Mommy you know I am gonna be ok.
He is so funny he liked the paramedic on the ambulance he was trying to hold her hand and smiling at her. He loves his woman.
Please every one pray for my MALACHI

Tuesday, February 19, 2008 6:11 PM CST

well we were home a whole entire 4 days. Malachi got sick again He has RSV. HE GOT IT FROM UNIVERSITY OF MARYLAND SHOCK TRAUMA. tHEY PUT HIM IN A ROOM WITH A CHILD THAT HAD IT. He will be just fine he is a strong BOY.

Monday, February 11, 2008 4:36 PM CST

well we are still at the hospital. He was weezing and had some thickm blood streaked seacretions. he will be ok keep up the prayer

Sunday, February 10, 2008 9:21 PM CST

Malachi is doing better. He still has diareah but we get to go home on monday. Pray we stay home for a long time.

Thursday, February 7, 2008 4:01 PM CST

Malachi is back in the hospital he has pnuemonia. and with all the Antibiotics he has had now he haS DIAREAH so they are giving him medicines for that. He smiles all the time and did not cry when they gave him an IV or took blood. He is such a warrior.
Malachi is doing good in school he is becoming more vocal.
Last time we were in the hospital he told someone no becuase they said he would have to go into a regular bed next time so he told them no no no.

Sunday, January 20, 2008 8:38 AM CST

It has been one heck of a week for Malachi.Monday he started the bleeding from his trach, for about 2 days they took him off the ventillator he stoped bleeding until last night they had to put him back on the ventillator for positve pressure. Malachi started having sezuires again on wendsday that was the first time in almost 3 years he had any seizures back to back. The neurologist did an EEG to check his brain waves and showed minor blips so they uped his sezuire meds from 2.5 mlto 4.ml that was a big jump. When I told them he needed an EEG they said it was not nessacary but I persisted and they did one. Doctors need to listen to us parents more dont no one knows a child like there mom.
Malachi still has personality. He likes to pull the vent off just the nurse willl come in and then he laughs. He is smiling at every woman that comes in. He loves THE SONG (THIS LITTLE LIGHT OF MINE ) so we have been singing that alot. And we have been singing some of the songs from his circle time at School.
please pass this web page address to everyone you know we need to flood heaven with prayers for Malachi

Melissa&Malachi

Tuesday, January 15, 2008 6:07 PM CST

well he is back at JOHNS HOPKINS Malachi is bleeding again just like this summer But he is in good spirits he is smiling
PLEASE PRAY THAT ALL THIS BLEEDING STOPS AND NEVER HAPPENS AGAIN.

Thursday, January 10, 2008 10:03 PM CST

I know it has been a while since I posted an update. But I dont have a computer.
Malachi is doing well he goes to school, his favorite part is circle time he loves the songs and stories. They even got him speacial crayons that fit his hand. Malachi is talking more since he is in school.
He like one of the ladies at thearapy. She was telling me she might move. When malachi heard that he yelled out noooooooooooo.
He got measured and weighed at the orthopedic doctor Becuase he needs a new back and feet braces.He is 37lb and is 37 inches long. malachi is tolerating being on his stomach.
Malachi has not had any more bleeding. With the grace of GOD he will get his trach out soon. He is still on CHEMO.Hopefully he will be off that soon. And this summer he probably be getting heart surgery.(his fontan www.pted.org for more info his heart diease is tricuspid atreasia)SO START PRAYING NOW for a complicated free recovery and surgery.
I just want to take this time to give all glory to god for what he has done. He has given me the most strongest person inthe world as my son. GOD has proven he is the Almighty one. Trough GOD EVERYTHING IS POSSABLE.

KEEP ON PRAYING MY SON MALACHI IS LIVING BREATHING PROOF IT WORKS
melissa & malachi

Friday, December 14, 2007 12:36 AM CST

Well it has been one heck of a year for Malachi. He had his bleeding Trach infections but through the grace of GOD he pulled through.
Malachi is doing well,we are now in DC childrens with a trach virus. But we get to go home today. PRAISE GOD!
Malachi is doing well in school, the teacher has a crayon that fits his hand so he can do his work.He gets attitudes with her sometimes and does not want to color. He even has friends which already gave him a nick name they call him keye keye. Malachi even goes to libary at school the libarian is the sam e one when i was in elementry school.
Malachi made me a turkey for thanksgiving and a little mouse to put on my tree. I am so proud of his accomplishments.
I would like thank everyone for ther prayers this year My Malachi is living proof prayer works God is AWESOME.

Monday, September 3, 2007 8:48 AM CDT

PRAISE GOD WE ARE GOING HOME!!!!!!!!!!!
Malachi has been in JOHNS HOPKINS in baltimore for 2 months.It has been a crazy 2 months. Malachi will be going home on the interferon(CHEMO).The nurses showed me how to give it. I cried when they were explain it becuase REALITY HIT ME MY BABY IS GETTING CHEMO and I have to stick him. My oldest daughter was with me she looked at me and said"Mommy just put your big girl panties on and deal with it, you can do it." So one of the nurses let me practice on her with saline, then I gave Malachi the shot, It was not as bad as I thought. He Will have to get blood drwan once a week to check his white counts. And all of this will push back his heart surgery and getting his TRACH out.He has to have no bleeding for 6 months before they consider taking out his trach.So please keep on PRAYING for us.
Melissa&Malachi&Family

Sunday, August 26, 2007 9:59 PM CDT

This past 8 days have been real good no bleeding. Malachi is out of PICU. He is haapier to be away from all that noise. I am hopeing soon we can go home.They have to come up with a plan of action. Becuase malachi was supose to have heart surgery this summer. Now it has been put off cuz of the bleeding, but he has to have his trach out so he can have his surgery. I put his speaking valve on him and of course he said DA DA. hE LOVES HIS FATHER.But when I leave the room you can hear him calling me ma ma ma all the way down the hall. I miss the EASTERN SHORE OF MARYLAND being in the city makes me appreaciate were i live at more. so please keep on prayin it has been working. God is a healer!!!!!!!!!!!!!!!!!

Friday, August 17, 2007 7:53 AM CDT

we have had one heck of a week. Malachidid not bleed for 4 days and yesterday he started to bleed again so the doctors put him on the ventilater to give postive pressure{Which means if you get a cut on your hand you put your hand on it that}He coloring is ggod he was not blue or purple when he bleed. He thought it was funny.
So he was in good spirits he was dancing to his music laughing. I am glad he was not in pain this time. Keep up the prayers.
malachi&melisssa

Monday, August 13, 2007 10:19 AM CDT

Malachi has had one heck of a weekend. He started to bleed again worse than what he did when we came in on july 5. So are bak in the PICU we were only on the "floor" for maybe 2 days. He has given everybody a scare. He turned purlple and had a modled look about him. So I had to sleep at the hospital becuase he gets upset and crieswhen he is bleeding and that will cause him to bleed more. Tje doctors are done fonded at malachi they are continueing with the chemo . We need some serious prayers If he does not stop the bleeding it can potentially take my baby boys life. I have faith that God has brought him this far and will continue to perform healing and miracles on him. so PLEASE TELL EVERYONE YOU KNOW ABOUT MALACHI WE NEED ALL THE PRAYERS WE CAN GET.

KEEP PRAYING
MALACHI&MELISSA

Thursday, August 9, 2007 7:44 AM CDT

Malachi bleed yesterday. It was the first time in 5 days. it was not alot but enough to fill abot 6 tea spoons. He is going longer periods of time without bleeding so that is progress. He was laughing when he bleed I guess he thought it was funny when I got upset. I guess it was his way of letting me know everything is gonna be alright.\
We might have to go to rehab becuase my nursing agency droppped us becuase we were in the hospital a long time.
I wanted a new nursing agency anyway. Maxuim healthcare was not a good agency. nurses would fall asleep not show up or even drop food and drink on malachi's floor annd not clean it up.
So this new nursing agency should be better.
Keep on praying
malachi&melissa

Sunday, August 5, 2007 10:59 PM CDT

This weekend had been very uneventful for Malachi. Which is a good thing. He has been without bleeding for 3 days. He is making some good progress. Malachi is still getting his chemo shots every night. And he is such a brave warrior he does not even cry. He got to wear his clothes yesterday for the first time since july 5. And he wore his feet braces and sneakers. He practiced standing up not as long as he used to but with time he will get better. Malachi might go home on his chemo shots the Doctors said I would have to learn how to give him the shots. I am a little scared about that. But I will put my big girl panties on and get over it. I will do what ever it takes to get him better. Malachi is starting to loose some of his hair I noticed some on his bed today but her still is the cutest thing that JHH PICU ever seen.
I read the baltimore Sun this saturday and read a story that broke my heart. There is a man by the name of ZACHARY SOWERS that was beatin up by 4 complete strangers on his way home from a night out. He was beatin so bad he is in a coma. Please pray for his total recovery and to give his wife Anna the strength she needs. there is a web site you can go on to check his progress it is
www.zachsowers.com
PLEASE PRAY FOR THIS FAMILY
Please continue to pray for malachi and all the sick children of the world. Going through what I have been through these past 3 years has been an eye opening experiance it made me relize the power of prayer it is so powerful. When doctors say it cant be it will be becuase GOD can make it happen.
And no matter were you come from the color of your skin or even your religous beliefs. We all have something in common The love for our families and the yurning to keep them safe and happy.
ALWAYS KEEP ON PRAYING
MALACHI AND MELISSA

Thursday, August 2, 2007 0:10 AM CDT

Malachi did not have a good start for the month. He started bleeding again. It was an entire 48 hours of no bleeding then came the blood 9am august1. I was so disapointed. I took some of his clothes to the hospital but he could not wear them. Becuase they would get all ruined from the blood.
But the doctors say he is having progress. he is going longer between bleeds.
We need some serious prayers,for the bleeding to stop, and for GOD to give me strength to make it through all this with my sanity.
KEEP UP THE PRAYERS GOD ANSWERS PRAYERS
MELISSA& MALACHI

Tuesday, July 31, 2007 4:37 PM CDT

well it has been 2 entire days no bleeding from the trach. Malachi has flu symtoms. He is a little moody< not really sleeping alot, Just taking cat naps.He loves to listen to his radio staion 92Q in baltimore. He gets so excited when BEYONCE comes on. He gets the biggest smile. Of course he is still smiling at every woman that speaks to him. If he did not do that I know he is real sick.
mALACHI IS STILL GETTING HIS CHEMO SHOT (interferon alpha 2 b) every night, not sure how long he will have to take it.
Thank you to everybody who has been praying for him.He has come along way becuase all who have prayed for him. God has truly blessed him. Malachi is my hero.

MELISSA&MALACHI

Thursday, July 26, 2007 6:39 PM CDT

the doctors say we will be here another couple weeks or more. malachi is still having some bleeding. He still remains in good spirits. I went home monday and came back wendsday. The nurses said he was fussy the entire time I was gone. malachi is not use to not seeing me. But it was a much needed trip home. I got to spend some quality time with my other children.He is in good hands I called all the time to check on him. they said when he was not fussing he was flirting.
He is on oxygen normaly he is on none. I was able to bring back some of his toys. Of course I brought back his diego.He gets the biggest smile when he watches that show.And his animated frog and gorilla.
Malachi likes to have the bible read to him so I also brought back his bible cd's.
PLEASE KEEP ON PRAYING we need a break in the bleeding so we can go home and be with the rest of our family.

Thursday, July 26, 2007 6:39 PM CDT

Friday, July 20, 2007 8:49 AM CDT

Malachi has been doing well. He is on oxygen but not alot.Malachi is still on the interferon alpha 2b and it seems to be helping. His bleeds are becoming mor and more infrequent. Yesterday he got his pic line they had to take him to the operating room for that. His heart surgeon DR.Duke Cameron had to cut into the vessel to get a line. With this type of line he does not have to be stuck for blood,they can draw it right off the line.ANd if they need to give him blood they can,they even can give him medicine.
I am still staying at the RONALD MCDONALD HOUSE in baltimore, maryland. It is real nice here. the staff is real friendly.
KEEP UP THE PRAYERS

MELISSA TOLEDO
MALACHI SINGLETON
ROOM 311
635 WEST LEXINGTON STREET
BALTIMORE MD 21201

Sunday, July 15, 2007 9:36 PM CDT

malachi bleed alot yesterday. Every time he coughed he would bleed. He did alot better today just a little bit of blood this morning the rest of the day clear.
He is on 100% oxygen, he usally is on room air. The side affects are kicking in. He is having some flu symptoms, fatigue,increase secreations. he is having a hard time keeping his oxygen level up. But I have faith in god he will get better.
I am really home sick. I MISS MY OTHER KIDS. My 4 year old keeps on asking to talk to malachi. But they do not allow cell phones in the PICU.And I donrt have the money to take trailways home for a couple of days. She cries for me i cant stand to see or hear my babies cry.My other 2 are missing there brother and me alot to.My oldest son likes to play playstation and let malachi hold the other controller in his lap. so he is missing that. Malachi loves my oldest girl she dances in front of him he gets a kick out that.
hopefully sometime this week we will hear something from boston they said they emailed them. Through all this Malachi is still smiling at all his ladies in the hospital.
KEEP PRAYING
Melissa&malachi

Thursday, July 12, 2007 6:15 PM CDT

Please keep up the prayers. Malachi is starting to feel the adverse reactions from the interferon alpha 2b(chemo). he is sleeping alot, they had to put him on oxygen it. the oxygen has been flucuating all day from 50% to 100% at times. One of the side affects is flu syptums and thats what he is experienceing. His eyes are slightly blood shot. And all he wants to do is to lay on my chest.Malachi loves it when I sing to him. He loves the song your beautiful by james blunt and the worlds greatest by R-KELLY. He has a radio the PICU let us borrow it is set to the local r&b station 92Q.HE loves R&B music.If you play country music he will cry or get agatated, and wont calm down till you turn to his R&b station. The boy knows what he likes.
Malachi being malachi he still tries to hold or touch the nurses hand when she is close enough. So that puts a smile on my face.
melissa&malachi

Wednesday, July 11, 2007 7:55 AM CDT

Malachi is doing ok. Tuesday he had some more bleeding so they put him on the ventillator to give postive pressure. Its like putting pressure on a cut when we get one. Malachi being Malachi he was laughing when all of this is going on. Then he got angry once he relized he was on the vent he absolutly hates the vent. He is doing ok on the new INTERFERON ALPHA 2B, there are some cold and flu symthoms so I just hold him to give him comfort. please keep up the prayers

thank you and GOD bless
melissa and malachi

Sunday, July 8, 2007 11:22 PM CDT

I would like to start off by thanking everyone who is praying for MALACHI. HIs father and I are very greatful. GOD has blessed me with MALACHI. I am so proud to be his mother. He has got such a tremendous will to live. And still smiles even when he is getting numerous of needles.My son is living breathing proof the power of prayer.
Today Malachi was started on a drug called INTERFERON ALPHA 2B. It is used in cancer patients.so yes he is getting a form of chemo. NO he does not cancer, but the doctors feel it may help slow down or dasinagrate the growth of collateral vessels and the himangyoma( you might have seen someone with what looks like a strawberry on there skin thats what he has on his heart)The doctors have never seen a hemangyoma on the heart before so they are hoping this works. And they are not sure if that was the cause of his bleeding. The treatment may cause him to get flu symptoms. so pray he dont.
The Doctors are calling and sending data to a vascular malformation clinic in boston to hopefully see if they have any inpute that can help in malachi's care. The hemotology dept. at jhh is also involved and suggested boston.
All of what Malachi has been through has made me relize how blessed I am and he is to be born in the great country of ours.And to live in the state of maryland. We basicly have the BEST hospitals in the world in our back yard.I have met people from around the world that have to come to this country to get medical help. GOD has truly blessed the USA.
Please to continue to pray not only for MALACHI but for all the sick children of the world.

Monday, June 18, 2007 7:18 PM CDT

Today was a frustrating day for us. they lokked with the cameras down his trachea and evvery thing looked good.But cardiology is scared to take the trach out becuase they are scared he will bleed again. so we have to wait until late August early september. Now his heart surgery is gonna be in september. This Will give him some time to heal and and get stronger. So pray everything goes well.

Wednesday, June 13, 2007 9:59 PM CDT

Malachi had his catherzation done today no complications during the cath. they said if he bleeds again they are not sure were it is coming from becuse they coiled off some more vessels. After he got back to the PICU his left leg was blue and they could not get a good pulse. but I prayed and the pulse came back.The POWER OF PRAYER is awesome. the started him on a heprin drip( a blood thinner) so if he has any clots it will help.He has a foley catherder in his worm he hates it. He was so mad when they put it in he dont like no one to mess with his private area. but he needs it so he does not pee allover the line they have in his left groin area. Malachi was supposed to get his trach out on monday the 18th now that is not going to happen.they want to wait to make sure if he bleeds again they will be able to get the blood.
This is such an humbling experiance.My other children if something is wrong with them i can kiss it and all is ok. With Malachi I have to sit back and let other people take care of my son when iam so use to doing everything. But I trust GOD is guideing them inthe right direction.

keep up the prayers
melissa&malachi

Tuesday, June 12, 2007 9:52 PM CDT

We are back at JOHNS HOPKINS. first he had blood in his poop on monday then when they said we could go home he started to bleed from his trach again. so on wendsday the 13 he is getting a heart cath to try to figure out if it is his collateral vessels bursting again.Malachi is scheduled to get his trach out on the 18th I hope this is not a set back. PLEASE PRAY FOR MALACHI AND ME
MALACHI & MELISSA

Friday, April 27, 2007 4:04 PM CDT

It has been one heck of a week.Tuesday he started bleeding from his trach at home. He bleed enough at home it could have filled a urine specimen cup up half way.So I called the ambulance and we quickly got to the hospital. on the way there he continues to bleed he bleed and it shot all over the back of the ambulance. malachi continued to bleed on the way up here he showered the back of the ambulance again. when we got to hopkins he was still bleeding but more. so the ENT doctor looked down his trach and could not find any source of bleeding. so theysent us to the PICU. WERE he continued bleeding.Yesterday with each episode his heart rate would drop and he got real tired. And would not respond to nothing. So they decied to do a emergency HEART CATHERZATUION. malachi has vessels were normal hearts do not have them and they are not good veins. so they put coils in 30 different veins and has not had a signifagant amout bleeding since. So now they know why he was bleeding.they said one or more of the vessels bursted and caused the bleeding. thank god it was not someones fault. They took a sonogram of his heart and found ot the squeeze ofthe left part of his heart was not the same. theyare not sure if it was becuase of all the bleeding so they are gonna do another sonogram in a couple of days.please pray hios heart function gets better. They say this wont set back him getting his trach out on JUNE 18TH.

Sunday, February 18, 2007 4:54 PM CST

Well were do I start so much has happened since I last posted a journal. We had a wonderful Christmas Lankford-sysco sponsored my family.they got the kids so much they really enjoyed there selves.Cj baskets with love gaVe the kids a 100 dollar gift certifacate to TOYS R US.
Malachi really enjoyed the lights he would sit there and watch the lights. With his thearapist he would grab the christmas ornaments off the tree.He got alot of Diego stuff that is a show on Nickeloden he loves it when the camera click comes on he starts smileing and making noises.He loves spanish and people with accents
Malachi is doing so well with his therapy.We go to EASTER SEALS twice a week.The second day we were there he took his first steps.He was in a gate trainer a walker for his size December 21 and he took about4 steps. I was so emotional that day i cried becuase i was so proud. He is standing up for longer periods of time. he even tried to run but he is not strong enough yet. one day he will run and play Basketball with his brother and sisters.
malachi is going to school this spring. so on valentines day we went to school. he got to particapate in class. her had circle time,he just loved that his favorite song was"if your happy ANDyou know it."Malachi participated in his first valentines day party.So on May 15th he will be going to school.
All his progress is becuase of all the prayers and the continued blessings GOD gives my family. So please keep on praying

melissa &malachi

Thursday, November 23, 2006 3:39 PM CST

Happy Thanknsgiving everybody. We are going home tommorrow hopefully we will stay home longer than a day. Malachi has never been home for thanksgiving. But it is still a happy one.He learned how to disconect his feeding tube.His lung Doctor said when I get home To get his pediatrion to schedule a swallow study. So that means Malachi will eat by mouth soon.HE got mad today when I was eating and did not give him any.So I had to let him taste the turkey and the sweet potato pie.But Malachi loves Hershey kisses I let him lick on them.Malachi laughs at the other babies when they cry.keep up the prayers

melissa&malachi&family

Sunday, November 19, 2006 9:22 PM CST

well on the 10th of this month we rushed to Johns HOpkins for peumonia and we were released the next tuesday and in less than 24 hours we had to be rushed back to Johns Hopkins he was worse off with his pneumonia going backthis time than he was origanly. he continues to improve I had him laughing today. If anyone has any info on an oragnazatio that can help me pay for staying at the ronald mcdonald house and pay for food while iam up here let me know please I had to use money I had set aside for christmas for th kids

Saturday, November 11, 2006 6:47 AM CST

well we are back at johns hopkins. He has a trach infection again and possible pnemonia. he managed to flirt with the emt lady in the back of the ambulance. He had a fever and his oxygen level went down.but he is a fighter and GOD HAS GOT HIS BACK so he will be ok. keep up the prayrers

Wednesday, October 25, 2006 7:43 AM CDT

Well Malachi was supposed to get his trach out on the 23. the doctors scoped with all the cameras and said everything looked good. so they sent him to ICU and waited about an hour after that. they took the trach out but they had to put it back in after about 3 hours of being out his air started to get obstructed. I guess Malachi was not ready to get it out. So they will probaly will try again soon. Please pray that next time everything will go as planned

Monday, September 18, 2006 12:39 AM CDT

we are back at JOHNS HOPKINS, he has another trach infection. He is doing alot better. malachi is playing and flirting with his nurses.We will be up here at least until thursday.keep us in your prayers
melissa&malachi

Sunday, August 6, 2006 8:57 PM CDT

Hey everyone I would like to thank everyone who visit this web page. Malachi has come a long way. I am so proud to be his mom. He has such a beautiful soul. You can tell when i look in his eyes how much he loves me. He says om instead of mom. I'll take that he says om om when he wants me.He really loves his Sisters and Brother. They Help me with him. My son Deangelo hates when malachi has spit on his face he wipes it off right away. Malachi tries to stand up he pushes up on his feet when he is angry. I will be able to spend more time with malachi. I am no longer working so i can do his therapy everyday. He is getting so big he wears a 5t shirt and a 4t pants. malachi is 2 and kysha my daughter is 3 and they can wear each others cloths.Next week I should hear when or if they are gonna take his trach out.God is good so i have faith it will be real soon.In January his therapist will reavaluate him and see what school he will be attendind. Were i live they have an a really great school for children with speacil needs.It has a pool and a great physical therapy program.Soon I will be moving to a bigger apartment malachi and deangelo will have there own room and kysha and johnniece will have there own room.Right now all of malachi's stuff is in the living room and my other kids are sharing a room. At least now i can fix my boys room like a little boys room should be.keep up the prayers.
love
melissa &malachi

Wednesday, July 26, 2006 4:54 PM CDT

Malachi is continueing to do well.he is trying to stand up a little he pushes down on his feet a little. His physical therapist saY he understands when you tellhim to push a button or when you tell him to stop.soon he will be getting his trach out hopefully between now and september. so Pray it will be soon

Sunday, June 18, 2006 11:08 PM CDT

this week has been real crazy.Tuesday Malachi pulled his feeding tube out and had to be out a long time I could not get it back in. so I had to take him to the emergency room. Thank GOD they got it back in. Th doctors had to keep on putting big catherders in to dialate the hole .I had to hold his hands they put him in a little papoose so he could not move his legs.They did not numb him at all he was in so much pain.I almost cried. the nurse kept on asking was i ok I told them I've seen him in worst states then that.Malachi tried to punch the doctor.he is something else he is such a fighter.
he has discovered how to put his fingers in his mouth and how to hold on to things bettter
keep on praying
it works
love melissa&malachi

Monday, June 12, 2006 11:06 PM CDT

Malachi is doing very well. last week his trach doctor down sized his trach and said to get a sleep study. so hopefully by the end of the summer he will get his trach out. My baby boy has seperation anxioty he cries for 2 hours after I leave for work. he loves to watch his brother and sisters play PLAYSTATION he hollers at the tv right along with everyone else.since the weather has been warm I've been takingm him outside he just loves it. He enjoys sitting with me on the swing. Please pray everything goes well with his sleep study

melissa&malachi

Sunday, May 21, 2006 10:15 PM CDT

Well were do I start. ok Malachi is doing so well. he is voacalizing of course DA DA IS HIS FIRST word. My baby boy scoots his self across the floor in his rocking chair and when he is on the floor he scoots his self across the house. malachi is even turning over. He scared me today he tried to pull his trach out for the first time. The Doctor down sized his trach so soon he should be getting his trach out.He is 34 inches long and weighs 28 pounds 10 oz. Malachi turned 2 May 15th we had cake of course i let him lick the icing he loved that. during the day when the weather is nice I take him outside he just loves that But he has to were a hat or he is just not happy. he loves to were baseball caps. He started likeing them when he was in the hospital it would keep the bright lights out of his eyes.
Malachi enjoys watching Dora the Explorer and gO DIEGO GO ON nickeloden he loves spanish he talks back to the TV. A chaplen use to come read to him the Bible in spanish ever since then he loves anything or anyone who speaks spanish.
He is such a ladies man he puts his hands on the nurses boobies and likes to lay his head on them. Malachi still loves music his favorite right now is Jamie Fox his face lights up when you play him.
The heart doctor said maybe next year he will get his next repair which will be his final heart surgery.
Everybodyelse is doing real well thekids just love having him home. I started back to work I work at Pizza Hut. I am a supervisor. I finally got my galbladder removed which it is so nice to eat seafood again. please still continue to pray My Malachi is living proof prayer works.

Melissa

Sunday, March 26, 2006 5:41 PM CST

malachi is doing so good. he rolled from his back to his stomach the other day. He still loves music.His new favorite is jamie fox he just grins when I put that cd on.Malachi should not need another surgery until he is about five. Insurance is trieing to cut back my nursing time but i am fighting that. They even denied him his stander itm is a piece of equipment to teach him how to stand and how to bare weight on his legs. we are hoping some other agency might help us get it. the piece of equipment cost 2500,oo. since we have the loaner he learned how to lift his head up his legs are getting stronger. malachi is now 29lbs and 1oz. he is making more sounds through his trach. I swore the other day he said da da. He is such a man he likes to feel on his nurses he rubs there leg and whenthey move them he moves his hand and touches them again

Friday, December 23, 2005 10:15 PM CST

This time of year are thinking about what gifts to give and what they are going to get. I already got my gift Malachi. This will be his Very first Holiday away from the hospital.Thanks to HOME DEPOT in Berlin MD it will be a very speacial one. They sponsored my family, for Christmas. HOME DEPOT gave us gifts and also gave us food.I am so greatful to them. beings I have been unable to work, and could not get my children alot. So for all your home Improvment needs please shop there. He has been through so much this year. But always triumph over all. Becuase GOD has plans for him. He is doing well he now has a peace of equipment called a stander.It helps him learn how to stand. Malachi is lifting his head up while in it. Malachi takes his finger and presses buttons on one of his toys.It teaches SPanish and English words. He prefers spainish. This will be his first year without any surgeries.He will not have to have another surgery until right before Kindergarten. He smiles at everyone. He is in love with one of his Nurses he just smiles and stares at her with such love in his eyes. Please everyone continue to pray for Malachi and my entire family.

Monday, November 28, 2005 10:06 PM CST

We are supposed to go home tomorrow he is doing well they adjusted his fluid intake and calories. That has slimmed him down some. He has a wound on his foot from were a IV went bad we have to put gel they use for burn victims and wrap itin gauze. malachi is such a flirt he has been smiling at all his nurses. And gets mad if you don't pay any attention to him.

Friday, November 25, 2005 5:54 PM CST

Malachi continues to improve.The docs added some more medicine to tak the fluid off.and he is pooping a little bit better. He is such a flirt all his ladies have come to see him he loves that.Malachi does not like it when I leave his site he throughs a fit.THey cut down some more on his feeds so that should help him not gain alot of weight and not retain alot of fluid Keep us in your prayers

Thursday, November 24, 2005 4:36 PM CST

Malachi is doing well today. Still no poop but they are giving him medicine to make him poop.He is in good spirits smiling laughing

Wednesday, September 28, 2005 5:31 PM CDT

we are back at hopkins he had a fever of 104 and heart rate of 170. They thought he had pheumona but one of his docs says he doesn't its just a bad trach infection. The offical test should be back in a couple days. Malachi wouldn't be malachi if he didn't trough some curve balls my way sometimes.He is doing better he is back on room air and is smiling again.He wasn't smileing that is how I knew something was wrong.keep us in your prayers that this will be a SHORT STAY AND A SPEEDY RECOVERY. And for to keep on being strong.
melissa @ malachi

Sunday, September 25, 2005 3:48 PM CDT

Malachi has improved so much.he is moving his left side alot.that is the side he had the stoke.He grabs for his toys he even turns to the side.It feels so good to be home beeing home has made a world of difference in his recovery.his oxygen is sometimes in the 90's.malachi loves his nurse's he tries to feel there breast. you sometime see him putting his hand down there shirts. Now he knows how to pull his feeding tube out of his stomach and even discovered he has a penis. when the nurse or I try to close his diaper he pushes are hand away.We even find his hand down there sometimes. i have lost some of your numbers and address my cell phone fell on the ground and broke in half. my number is on this web site so give me a call so i can keep in touch. Kysha is a big girl now that i am home i can potty train her. becuase buying 2 packs of pampers is getting expensive.Johnniece is so much happier now that i am home she nown plays field hockey And deangelo is playing football.As you can tell GOD continues to bless my family so keep on praying us.I'll try to do more frequent updates but i have to use my moms computer Becuase I dont have one

love
melissa & malachi

Thursday, August 11, 2005 3:29 PM CDT

Tommorrow will be an entire month we have been home. He has Improved tremendously.He Discovered his hands and how to pull out his feeding tube. He is now 25 pounds and growing.It feels so good to be home.All though I had a scare sunday he had a sezuire that lasted of and on for an hour. we went to the emergency room and his potassium was low so they fixed that and we went home that was the 1st time we went to the ER and did not have to go to JHH.Keep us in everyones prayers

love melissa malachi 1 johnniece 7
deangelo 5 kysha 2

Thursday, August 4, 2005 10:31 AM CDT

This is the longest stretch of time we have been home.Malachi has improved so much since he has been home.He use to just turn his head now he turns and lifts his entire body to the side, he no longer needs support when he is sitting up in his exersaucer he uses his little arms to keep his self up.Ky Ky watches anybody that gets near him she dont like people getting to close to him. johnniece does not like to be away from me she thinks i am gonna leave.I tell them we are going no were. malachi starts hi speech thearapy next week and his phytsical thearpy soon.He
loves barney and baby mozart. malachi loves his nurses he looks for them when hears there voice. keep up the PRAYERS.

LOVE
MELISSA AND MALACHI

Sunday, July 17, 2005 4:25 PM CDT

At last we are home! I got a call on my cell last monday on my cell Insurance finally came through. we went home last tuesday and do not have to go to Hopkins until August 23.It feels so good to be home.He handled the ride home well he had no scares on the way home.I will probably be updating this page at least once every 2 weeks.GOD IS GREAT
Melissa Toledo
20 bradley court
pocomoke md 21851
410-957-1039

Sunday, July 10, 2005 0:01 AM CDT

Malachi had a good weekend.He behaved his self.There has been no bleeding for awhile now.I am still fighting with Insurance hopefully we will get it straight this week.I am gonna have to pray extra hard.He has been going through withdraw a little. MALACHI has the sweats and loose stools.Thats nothing malachi get through.He has been doing really well with his thearapy he loves to play with his toys.I am trying to work on getting himuse to laying on his belly so he can lift his head up. he tolerates it very well his oxygen goes up hi which is a very good thing.He likes to sit up I Prop him up with his pillows He looks all around when I do that. Please pray that everything comes through for us real soon and we get to go home by the end of the month.
Love'
Melissa&Malachi

Wednesday, July 6, 2005 10:34 AM CDT

Well malachi has threw another curve ball in the mix.The Doctors said he had a rare reaction to lactose it is were lactose caused some area of his pulmonary system to ruputer and the blood come out of his trach.So they are giving him a lactose free formula.They said it is a chance of 1 In a billion for any one to get it.We all know how malchi like to do rare things.And now Insurance said it was gonna take 10 to 15 bussiness days before insurance is switched. Thank you every body who prayed for the docs to find out what was going on.Kepp on praying
love melissa and malachi

Monday, July 4, 2005 1:23 PM CDT

The doctors say they have no idea why Malachi is bleeding.I think it is becuase someone suctioned him to deeply.They put a scope down his nose and they said it is not upper air way.It might be lower then his upper air way.Please pray they figure out what is going on we get so close to going home and then something always happens.Please pray everything gets back on track and he does not have another set back.Dont forget to sign in the guest book.

Saturday, July 2, 2005 9:20 PM CDT

Malachi has had a ROUGH WEEK. His trach bleeding has slowed down His secritions are just blood tinged. We were supossed to go home on the 5th but with this bleeding it has gotten pushed back.We have nursing but his new insurance has not come through so thats holding us back also. so send up speacil prayers.And dont forget to sign the guest book even if you just say hi I enjoy reading it

Monday, June 27, 2005 1:24 AM CDT

Malachi had a bit of a rough day today. He had bleed from his trach today.It has become less bloody as the day went on now he has only brown to clear secrtions coming out.He was laughing at me when I was upset.Malachi thought it was so funny i was upset.I prayed for the bleeding to stop and it did.God is good.Little man loves to play with his toys and has to have his music playing if you turn it off he gets mad and cries.He likes LUTHER VADROSS,RKELLY, AND, BRIAN MCKNIGHT.kEEP UP THE PRAYERS THEY TRULY DO WORK.

Thursday, June 23, 2005 3:46 PM CDT

Well I finally got the insurance strait.So we should hear something in 7 to 10 days. I am going to be home somtime in July or sooner.He is doing well he likes to sit up and play with his toys.Malachi loves his ball that makes noise.He loves to watch ONE LIFE TO LIVE.He love to be read to I have a story book that has 3 minute stories or I read the bible to him, he stairs at me like he understands every word.Keep up the prayers for a nurse and that malachi continues to do well.
thanks
Melissa

Tuesday, June 21, 2005 8:20 PM CDT

Well I had a good weekend I went home to visit my other children. And I had to get the house ready for Malachi"s arrival.I Purchased a crib, some saftey gates so kysha dont get into the kitchen if i have to suction malachi. The Doctors said the only thing holding us back is nursing.So as soon as we get a nurse we are free at last to go home.Malachi is on room air on his trach. He does not need oxygen through his trach. That is such a big step for my little man.. that means we can go more places, and I won't have to lug as much equipment around.,and he can go into a regular stroller. I sat him up today and he did not fall over.That is a first for him usally he falls right over.But not today.I feel so blessed that malachi is doing so well and he does not need oxygen.Praise god he is so great and wonderful. He has truly blessed my malachi.Pray that we get a nurse FAST so we can go home.
love Melissa

Friday, June 17, 2005 7:26 AM CDT

Guess what? The Doctors said it is a strong porobabilty we will go home next week.Praise God!!!!!! Malachi went from being on the ventilator yesterday to trach collar.NOw he only on 28% oxygen through his trach collar which is really good.SO I am going home to get the house ready for him.I am so excited I have not seen my other kids since April 12.Keep on praying for my little man.DONT FORGET TO SIGN THE GUEST BOOK!
love
Malachi & melissa

Wednesday, June 15, 2005 10:01 PM CDT

Malachi had a good day.The doctors put in a bigger trach and he did so much better.It was like a lite switch went on and his oxygen level went up.They weined him to room air on the vent and tommorrow they will try trach collar.Another one of gods great miracles.Once again Malachi is showing us the power of prayer.

Wednesday, June 15, 2005 7:46 AM CDT

Malachi is having some issues of retaining fluid.They are giving him extra doses of lasix(diaretic)to pull some of the fluid off.So I need everyone to pray that it works.And his air wayb heals up.But I TRUST IN GOD he will heal my little man.

Monday, June 13, 2005 10:39 PM CDT

Malachi Had a good weekend.He is laughing alot and smiling. The nurse let me hold him for a liitle while she changed his bed.She was not supposed to let me hold him but someone had to so she could clean his bed.Wendsday theyw ill do his offical first trach change so then I can hold him all I want.Keep up the prayers

Sunday, June 12, 2005 11:10 PM CDT

My little man had a wonderful weekend.He played a little bit but he slept most the weekend away. The docs have to wein his methadone some more.Maybe he wont sleep as much.Keep up the prayers

Friday, June 10, 2005 4:08 PM CDT

Well Malachi had a good day. His Cardiologist said there is a chance we will be coming home in 7 to 10 days.But they have to get his Respitory system under control.He has Secretions coming from the hole of his trach and hardly from the trach it self.But they said that might change after his offical 1st trach change on tuesday.Malachi did really well with his therapy today. He grabed his dog roof roof with both hands. Malachi never did that before.He seemed more comfortable today.They are weining his methadone and he is tolerating it really well. He is so big I am going to have to buy him all new clothes.he has grown so much. He is gonna be in a 2tor a 3t. I measured from his waist to his ankles and it is 14 inches.He is about 28 inches long.My boy is so amazing.GOD IS SO AMAZING.I give GOD such high praise he has shown alot of people prayer works.Keep up the prayers.
love
Melissa

Wednesday, June 8, 2005 12:39 AM CDT

GOD is great.Once again GOD has blessed my little man.They started his trach Surgery at 8:15 am and was finished before 9am.Malachi went from the ventilator to trach collar in matter of a couple hours.And soon he should be on room air.GOD is so amazing to put such strength in Malachi. We are on the road to being home soon don't when we will go home but it should be real soon.Keep up the prayers Malachi is living proof GOD listens when we pray.

Love
Melissa and Malachi

Tuesday, June 7, 2005 8:26 PM CDT

On wendsday Malachi will be getting his Tracheostomy(TRACH) and the Doctor be checking him with the scope to see if his trachea has healed any or if there is any other damage obsrtucting his air way. tomorrow is abig day he is 1st case so he willbe taken back to the OR around 7:45 and it should take a couple of hours with them taken pictures and all. My MalyMal will be just fine I Truly Trust in GOD.GOD has showed he still performs miracles through my son. Malachi is a true testimony to How much Prayer works and to GODS tremendous love for us all.Keep up the prayers.

Love,
Melissa&Malachi

Monday, June 6, 2005 6:34 PM CDT

Malachi is doing good.He is going through withdraw,they have him on methadone(probably spelled wrong).They have him on 50ml were the average child is on 10ml a day.They will start to wein it after he gets his TRACH.He actually has tears when he cries.He loves his little rings he plays with them like he is a gymnist.Keep up the prayers.there is a place were you can give malachi cybere hugs. give him as many as you want.

Wednesday, June 1, 2005 10:03 PM CDT

Malachi had a eventful day. HE has his dyalisis tubing took out they did that at bedside. Then the doctors took out his breathing tube and put him on cpap it blow air to keep air way open.but ultimitly decided the best thing for Malachi was to put the breathing tube back in and schedule his Tracheosomy surgery(TRACH).he was struggling to breath so his trachea still needs some more time to heal. The surgery should be done by the first part of next week.It was a little disapointing but every thing will be ok. Just keep up the prayers

Wednesday, June 1, 2005 7:39 AM CDT

Well Tuesday the Doctor that does the Tracheostomy said he could not do the Trach becuase Malachi is on asprin and might bleed. so they stopped asprin for 7 days. BUt in the mean while today the PICU docs are going to take the breathing tube out and see how he does. If does fine he wont need a Trach if not they will just but the breathing tube back in and Malachi will get his Trach in a week. They have not took his Dialysis tube out yet they are waiting to see if he needs his trach so they can do it all in one trip.In other words they are scared to put Malachi under Anedthisia more than what they have to.Either way Malachi will be fine I put it in GODS hands I trust in him he knows whats right for my litte man.

Saturday, May 28, 2005 3:59 PM CDT

Malachi continues to do well. sometime next week they are going to try and take his breathing tube out and see how he does then if he does well he might not need his trach back.Which would be so wonderful for Malachi.Then he can work on talking and making sounds, rolling over nd he probably will be able to sit up bettter.

Friday, May 27, 2005 11:23 PM CDT

Malachi had another good day.He got his chest tube took out.His color has improved and his Oxygen in his blood is starting to come up.Sometime next week they will decide weather to put his trach back in or not.He has to sleep with his hat on over his eyes,And his music on.Dont forget to sign in the guest book.

Wednesday, May 25, 2005 10:08 PM CDT

He is continuing to do well.The nurse was mistaken about his breast bone being open.His surgeon said he closed it during surgery.Which is a good thing means his heart didn't swell as much as it could have.So again Malachi did his "MALACHI THING"like his doctors like to call it. He surprised every one once again.Later on in the future he might have to get a angioplasty(Probably spelled wrong)to open up one of his arteries becuase of scaring but that is nothing he will be just fine.Once again MY LITTLE MAN has proven he is truly one of GODS MIRACLES here on earth.
love
Malachi&Family

Tuesday, May 24, 2005 9:39 PM CDT

Malachi did well today.His surgery went well.They had to staple his chest closed becuase they left his breast bone open becuase of swelling but will go back in and close it up in about 24 to 48 hours.He looks so good he was not pale at all he had good color and even opened his eyes when they wheeled him out of the OR.GOD once again had Malachi in his protective arms.God is great.Thanks for all the prayers keep them up my malachi is living breathing proof prayer works., Check out the new photos there are some from his birthday on there

Love
melissa& malachi

Sunday, May 22, 2005 3:36 PM CDT

Malachi had a good weekend.He has been smiling and laughing. They changed his surgery to tuesday. Keep on praying.please dont forget to sign the guestbook
Thank you
melissa&malachi

Friday, May 20, 2005 10:18 PM CDT

Malachi had another good day. He did well in the catherzation lab, malachi had no reactions to anesthisia he woke up with a smile. His Main cardiologist Dr.Everett did his Catherzation.He had some sezuires nothing major they just need to adjust some medication. Monday is supposed to be the day that he goes back in for his Bidirectional glen Heart surgery. He will do just fine. GOD has his arms wraped all around Malachi protecting him.I have faith that GOD will guide the medical staff at Johns Hopkins in the right direction for Malachi.And will guide his surgeon while he is performing the surgery.

Love
Malachi&Melissa

Wednesday, May 18, 2005 3:39 PM CDT

It was a good day for malachi. He watched his TV he loves his ONE LIFE TO LIVE, we even played hospital bingo.Malachi won a toy angel that makes music.Friday at 1:15 he will be getting a heart catherzarzation,that will determine weather he is still a candadate for his glen.The cardiologist are expecting that he is.I read to malachi today he loves to be read to.Yesterday Malachi coughed out his breathing tube he did ok with out it but the DOCS don't want to rock the boat right now.Neither do I .He smiles with the breathing tube in.So I am happy at least I get to see his Beautiful smile,and his tiny little teeth.Please pray that I some how get a van beings my car is no longer in working order.It over heated and the spark plugs caught on fire. so I decided to junk it.
Keep up the prayers
Melissa&malachi

Tuesday, May 17, 2005 4:21 PM CDT

Today was a good day.Malachi was so happy today, I saw a smile behind his breathing tube. He palyed with his toy piano i have to help him I put his hand on the keys to show him how to do it then he does it.They are gonna start doing physical therapy with him. so he does not loose any of his stregth.Thursday or FridAY they are gonna do a heart catherzation to see if heis stillready to recieve hi Bidirectional Glen. they seem to think he will be.Then after he recovers from that he will have to get his trach put back in.Malachi loves to watch his TV he gets so mad if you get in front of it.His favorite show is ONE LIFE TO LIVE. Keep up the prayers they really do work malachi is a living testomony to that.
Love
Melissa&Malachi

Sunday, May 15, 2005 10:44 PM CDT

Malachi had a good birthday.I dressed him and he got presents from some of the medical staff at johns hopkins.I took lots of pictures so look for them shortly on this web page.They let me put a little bit of Icining in his mouth.He loved it,I even put icining on his nose and he wore a birthday crown.Malachi loves to watch TV he got so mad today when I got in front of him he was squirming, until I got from in front of him.Him and his DADwatched basketball on tv together.He loves basketball.Hey you never know he could be the next Koby Bryant.Malchi has to have his own room because he has VRE It means he is vankamicin (an antibiotic and i know probably spelled wrong)resistint. He has had that type of Antibotic so much he is immune to it now. That is one of the most strongest antibiotic they can give him.They Said eventually he can have it again.

Saturday, May 14, 2005 7:56 AM CDT

Malachi's surgeon said the 23 they will go back in and finish his bidirectional glen. His big tooth up top is coming through its half way there.It is so cute.They are even letting me put clothes on him for his birthday.One of his nurse's Megan brought him a outfit frtom the GAP and a pair of sandles.So that is what he is going to wear.I am going to bring a cak e to the hospital and have little tommorrow.IT is so hard to believe he will be on tommorrow.It has been one heck of a year.

Thursday, May 12, 2005 5:46 PM CDT

Malachi had a good day.The doctors told me my little man has a bacteria in his blood and a yeast infection on his penis. the yeast infecton comes from the catheder being in so long.The bacteria comes from his Groin line being in so long and getting pee and poop on it.So they are treating it with antibiotics.Maybe next week he will get his GLEN.He looks good he is not loosing any weight. he loves it wheni sing to him.And it is so hard to believe he will be 1 on sunday. This past year has gone by so fast.Between me being hospitalized when I was pregnant with Malachi becuase of fluid in the sack being low to him being hospitalized I have been at JOHNS HOPKINS HOSPITAL an entire year.I think I need a tropical vacation.Maybe one day.But right now Iam exactly were I need to be.With my little man Malachi.Oh ya Malachi likes to be called MALACHI THAT SEXY GUY.

Wednesday, May 11, 2005 10:06 PM CDT

Malachi had a good day.He stopped the shaking of his body around 4:30am.They are not going to do his surgery until next week.Sunday is his birthday he will be a Year old.I am going to bring a cake up to the hospital and take a picture of a little bit of iceing on his nose.He was looking at tv a little bit to.

Tuesday, May 10, 2005 5:03 PM CDT

Today was a rough day.Malachi is doing somethimg that looks like sezuires.They gave him all kinds of meds but he was still doing the movement Since 2:45 up until the time I Left at 5:30.So they did a eeg to check his brain waves and said he was not having sezuires and they were not sure why he was doing whathe is doing.The doctors said it might be a motion disorder but they are not sure and do not know to much about motion disorders.So they have to look up Information on it.Malachi's Cardiology surgeon said maybe thursday they will go back in and finish his glen.I have faith in god that he will Give the docs the knowledge they need to figure out what why malachi is having what looks like a sezuire but they say is not one.And I have faith his Glen will go just fine.Keep up the prayers

Monday, May 9, 2005 4:28 PM CDT

Malachi had a good day. He was more alert and even got a little excited when i put on his R-Kelly Love Land CD. he Started figgitting.He is peeing more on his own and they are even backing off the dyalisis some.They weighed him yesterday he is 22lb 2oz.He gained a entire ounce in 1 day.He is so fysty he tries to slap them when they suction his breathing tube thats my Malchi. His Heart surgeon said probaly by the end of the week he will get his Glen. DR.Luca Vircella said it should not be a long surgery.Keep up the prayers they really work my son is living proof he is GODS MIRACLE!

Sunday, May 8, 2005 10:37 PM CDT

Today was an unadventful day. He opened his eyes and looked at me and held my hand.I peeked into his mouth and he is growing 3 teeth on top and three on bottom.I shouls hear sometime this week when they will go ahead and do Malachi's Bidirectional glen.

Saturday, May 7, 2005 3:18 PM CDT

Malachi is doing good today.He has been opening up his eyes and held my finger today.He even cracked a smile.Malachi's Dialysis is working well and he is even peeing some more on his own.My boy is so amazing even all he has been through he still manages to smile.The Child life spealist at JHH gave me from Malachi a mold of his hands and feet.That is something I will treasure all my life.

Friday, May 6, 2005 9:15 PM CDT

Today was a rough day. At about 2:45pm malachi started bleeding from his breathing tube then he could not breath and he arrested for what the docs tell me less than 10 minutes.They did a sonogram of his heart and his function is were it was before the surgery.He even when they were giving him meds tried to slap them them away, and was getting mad and crying.If anyone tells miracle dont happen look at Malachi Cuz God is Great.MAybe next week they will go backin and do his bidirectional glen if his kidneys start working a little better. the Kidney docs say they are only 50% working so they resarted his diyalasis today. So please pray that his kidneys get working and the rest of his surgeries go smoothly

Friday, May 6, 2005 7:44 AM CDT

Malachi is doing well. He had some sezuires last night so they started som sezuire medication.They are still keeping him sadated and they are gonna put the trach back after he recovers from his next heart surgery next week. keep up the prayers

Wednesday, May 4, 2005 10:04 PM CDT

Malachi continues to do well to day they cut down on his sadation. He is more awake opening his eyes when me or his dad talk to him. That boy really loves his music. he wakes up when you play his Brian McKnight Cd. Sometime next week they will go back in and do his Bidirectonal Glen.He will do just fine he is a strong guy.

Sunday, May 1, 2005 10:24 PM CDT

Malachi had a good day. He really likes to listen to his music.The nurse said malachi was not moving around alot, so I put his cd on and he was moving his head. He is responding to his Dialysis well his kidneys need to kick in so he can pee they are little by little. Malachi's Dad and I should be hearing somethime this week when he will be getting his glen

Saturday, April 30, 2005 3:15 PM CDT

Malachi had a good day. He had no problems in the OR.They put in what they called a PD catherder in his abdomine. It is used for dialosis. Little man is retaining fluid so they have to get it off him. Until his kidneys kick in. which they will! I left his Bible on his bed when he had his surgery open to PSALMS 23. I read to him Mark 10 verse 27 he like me reading him the bible.
The plan is somtime next week to do his bidirectional glen. I know he will be fine.God has blessed malachi many times. And I have faith he will continue to. Keep on praying

Friday, April 29, 2005 10:32 PM CDT

Today Malachi had a good day.He had a cat scan done of his brain they showed no changes.So that is real good.that means when his heart stopped there was no signifacant damage.So keep up the prayers it works My son is proof.He was opening his eyes and responded to his dad and I. when we were talking to him. He also started to move around when we put his Brian Mcknight CD on.The Doctor said Tuesday they will go back in and finish what they started. Every thing will be just fine. I have faith in god.

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