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Welcome to Lance's page.
It has been provided to keep people updated
about Lance's fight against Menkes Syndrome.
Lance was born on March 9, 2000.
On June 17, 2000, we found out
he had Menkes Syndrome.We were told he would only live three months. Lance had other plans... By the grace of God and his determination to live, he is still here six years later. Lance is such a special little boy. He has touched everyone who has ever met him. He is an inspiration to everyone around him.
Life has not been what we imagined it would
be but we would not change a thing.
Lance is truly a gift from God.
"I would rather have had 30 seconds
of wonderful,
than a lifetime of nothing special."
 
ANGEL GM
CLICK HERE
What is Menkes Syndrome,you ask? Here is my definition: A pointless, horrible disease that has forever changed my life. The medical definition: Menkes syndrome is inherited as an X-linked recessive disorder. The disorder is related to deficient levels of copper availability to cells. Symptoms include progressive mental deterioration, kinked, twisted and brittle hair, as well as skeletal changes.
Death usually occurs in the first few years of life.
About 1 in 300,000 individuals are affected.
Yes, Lance is 1 in 300,000, can you believe that?
CLICK HERE
Journal
Wednesday, July 1, 2009 2:46PM Lance,
I remember I used to be so happy to see July 1st. Almost all of your bad times were in the month of June, which is why everyone was so surprised when you died in December!.
Wish you were here today.
Love you and miss you always,
Tina
Read Journal History
Hospital Information: Home
Links: http://caringbridge.org/cb/inputSiteName.do?method=search&siteName=babywesley Wesley
http://www.friendsofalex.org Alex
http://quiltsoflove.com/quilt_2004/lance_DL/lance_DL.html Lance's quilt
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