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Welcome to Jay's Page. On January 12, 2002, at the age of 13, Jay was diagnosed with Stage IV Neuroblastoma. On January 31, 2002, Jay, with his mother, left for New York to receive treatment at Memorial Sloan-Kettering Cancer Center, where they stayed until late October 2003.
Jay is now 17 years old, and so far, he has had 2 surgeries, 20 cycles of chemotherapy, 10 rounds of 3F8 antibodies, 28 rounds of radiation, completed a Phase I study of beta-glucan combined with 3F8 antibodies, 6 cycles of low dose chemo, irinotecan/temozolomide, 3 rounds of a Phase II arsenic trioxide protocol, 2 rounds of Gemcitabine and Docetaxel, 2 rounds of 17-AAG, and 1 round of ICE.
Currently we are back at MSKCC in NY where we are trying to find the right treatment to halt the progression of his disease.
We very much appreciate everyone's interest in his progress, and all of the support that we have been given.
Please sign the guestbook. Thank you!
Journal
Thursday, March 13, 2008 9:51 PM CDT HAPPY BIRTHDAY JAY!!!
Wow, I can't believe that Jay would have been 20 years old today. I can vividly remember all of his other birthdays, especially the ones that he had after being diagnosed with neuroblastoma.
I also can't believe that a year has passed since I have last written. Many times I have started to write, but then never knew quite where to start or what to say. Maybe one day, I'll get it together.
One thing I do want to say...... Thank you so much to everyone who has remembered Jay and has signed the guestbook. For every person that Jay and I had met, however briefly, and said, "I don't know if you remember me....", I want you to know that yes, I remember every single one of you and am thrilled to hear from you. I also thank those who never knew Jay personally, but have found their way to this site. It is wonderful to hear from you and to know that Jay's story is being heard. And of course, I also cherish hearing from friends and family. It really does bring a smile to my heart to read the entries.
I really will try to write some about what I've been up to lately, and tell some stories about Jay. I'm not much of a writer, and it's taken me almost an hour to write this much, so I'm going to go now. If there's nothing new here in the next few weeks, you have my permission to yell at me!
Virginia
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